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How Clinical Information Can Improve

Future IBD Care and Outcomes


Dr Fraser Cummings
Clinical Lead UK IBD Registry
Consultant Gastroenterologist University
Hospital Southampton NHS FT
IBD Registry. All rights reserved

ibdregistry.org.uk

Question
Do you have a means of data capture
which allows you to easily obtain your
colonoscopy caecal intubation rate? Y/N
Do you have a means of data capture
which allows you to easily obtain your
mean comfort score for colonoscopy? Y/N
Are your endoscopy GRS outcomes part of
your annual appraisal documentation? Y/N
IBD Registry. All rights reserved

ibdregistry.org.uk

IBD Registry. All rights reserved

ibdregistry.org.uk

IBD Registry. All rights reserved

ibdregistry.org.uk

IBD Registry. All rights reserved

ibdregistry.org.uk

IBD Registry. All rights reserved

ibdregistry.org.uk

IBD Registry. All rights reserved

ibdregistry.org.uk

IBD Registry. All rights reserved

ibdregistry.org.uk

IBD Registry. All rights reserved

ibdregistry.org.uk

IBD Registry. All rights reserved

ibdregistry.org.uk

IBD Registry. All rights reserved

ibdregistry.org.uk

Question
Do you have a system for identifying patients
who have been on steroids for >3 months?
Yes/No
Do you have a robust system for
Immunomodulator monitoring? Yes/No
Do you have a system for initiating and
monitoring patients on biologics? Yes/No

IBD Registry. All rights reserved

ibdregistry.org.uk

IBD Registry. All rights reserved

ibdregistry.org.uk

IBD Registry. All rights reserved

ibdregistry.org.uk

IBD Registry. All rights reserved

ibdregistry.org.uk

IBD Registry. All rights reserved

ibdregistry.org.uk

IBD Registry. All rights reserved

ibdregistry.org.uk

IBD Registry. All rights reserved

ibdregistry.org.uk

IBD Registry. All rights reserved

ibdregistry.org.uk

Point of care data entry systems


CIMS Patient Management System
IBD Registry Web Tool
Ascribe/Emis gastroenterology system

IBD Registry. All rights reserved

ibdregistry.org.uk

IBD PMS Functions

Patient Summary
MDT
Flareline
Nursing support
Drugs
Biologics
IMM monitoring
Steroids
5-ASA

IBD Registry. All rights reserved

Cancer Surveillance
system
Bones
Letters
GP
Patient Summary,
information etc.
Virtual clinics

ibdregistry.org.uk

IBD Registry. All rights reserved

ibdregistry.org.uk

IBD Anaemia Project


Determine level of service and treatment IBD patients
receive with respect to iron deficiency
Outputs
Prevalence of iron deficiency

Total iron deficit


Treatment in an IBD outpatient population
5 centres, 10 consecutive UC and 10 CD patients each

IBD Registry. All rights reserved

ibdregistry.org.uk

Conclusions
How do you use data?
Can you use it more effectively to improve:
Patient outcomes?
Quality of patient care?
Service development?
Research?

What are the barriers to this?


www.ibdregistry.org.uk

IBD Registry. All rights reserved

ibdregistry.org.uk