NPR

Sickle Cell Patient Reveals Why She Is Volunteering For Landmark Gene-Editing Study

Victoria Gray, 34, of Forest, Miss., hopes the gene-editing technique CRISPR will relieve her lifelong suffering caused by the genetic blood disorder that affects millions of people around the world.

Victoria Gray is waiting patiently in a hospital room at the Sarah Cannon Research Institute in Nashville.

"It's a good time to get healed," she says. The 34-year-old from Forest, Miss., has struggled with sickle cell disease throughout her life.

Gray is at the hospital because she volunteered for one of the most anticipated medical experiments in decades: the first attempt to use the gene-editing technique CRISPR to treat a genetic disorder in the U.S.

She's the first patient ever to be publicly identified as being involved in such a study.

"I always had hoped that something will come along," Gray says in an exclusive interview with NPR. "It is just amazing how far things have come. I just want to kind of help bring awareness to this disease and let other people know that there is hope."

Sickle cell affects millions of people around the world. About 100,000 are in the U.S.,

You’re reading a preview, subscribe to read more.

More from NPR

NPR2 min readCrime & Violence
After Two Boeing 737 Max Crashes, Families Are Still Seeking Answers From DOJ
More than five years after two 737 MAX crashes killed 346 people, families of the victims are still pushing the Justice Department to hold Boeing accountable. They're frustrated by the response.
NPR5 min read
Netflix's 'Baby Reindeer': A Dark, Haunting Story Bungles Its Depiction Of Queerness
The new series, based on creator and star Richard Gadd's one-man show, depicts queer sexuality as something that happens to people.
NPR1 min readInternational Relations
Haiti's Prime Minister Ariel Henry Has Resigned As A Transitional Council Takes Over
Haiti's de facto prime minister, Ariel Henry, has formally stepped down and a new transitional council has been sworn in. Finance chief Michel Patrick Boisvert is the new interim prime minister.

Related Books & Audiobooks