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    My Journey With Meniere's Disease
    My Journey With Meniere's Disease
    My Journey With Meniere's Disease
    Ebook89 pages1 hour

    My Journey With Meniere's Disease

    By Peggy Holloway

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    About this ebook

    This is a memoir of one woman's 10 year battle with Meniere's disease. This disease is challenging to patients and doctors alike because no two cases are the same and the sudden onset of vertigo episodes can be life changing.

    The author recalls in detail the years leading to her diagnosis, her years of treatment, the two surgeries that she underwent and how she is now learning to live with partial deafness. She presents her story in a simple non technical format that makes this an easy and interesting read.

    Peggy notes "Writing about my experience with Meniere's was very challenging. My hope is that what I experienced and learned along the way will help others touched by this disease."

    Recommended for anyone that is touched by Meniere's disease.

    LanguageEnglish
    PublisherPeggy Holloway
    Release dateJul 11, 2013
    ISBN9781301100125
    My Journey With Meniere's Disease
    Author

    Peggy Holloway

    After retiring from three different careers, I decided to try my hand at writing. I felt that I had learned a lot about writing after reading one to two books a day for over fourty years. It's the best career I've ever had. I also like to read, of course, paint, swim and walk on the beach.

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      Book preview

      My Journey With Meniere's Disease - Peggy Holloway

      Introduction

      Meniere's disease is never described the same by those that suffer from it, we all have our own story. Meniere's is a disease that can affect at minimal or extreme degrees. It was told to me that if you line up 100 patients and their 100 doctors, they would relay 100 different stories and 100 different treatment plans. My story and treatment plan were unique to me.

      I began my 10-year journey with Meniere's disease at age 46. For me, this disease showed up in the form of intense vertigo episodes, occurring seldom at first and then more frequent until finally they were almost a daily event. When I got to the later years, it felt to me like Meniere's was slowly devouring my life.

      I decided to write about my journey because there are not many books published about this disease. I found it helpful to learn as much as I could about my disease, when I was in it, and I relied on medical websites for that. What I really wanted to know was how other people with Meniere's were handling their lives. I browsed chat rooms and looked through the varied discussion forums. It was insightful but I wanted to know more. I now hope that my story, my journey with Meniere's disease, will help someone that is on his or her own journey.

      I want to acknowledge my husband, Joe, first and above all others because he was literally by my side through the worst days of my disease. I cannot imagine a better caregiver than Joe was for me and I will always be grateful to him for taking such good care of me.

      My family, especially my children, were very caring and concerned for me and I know they worried about me. I want to thank them for praying for me and for understanding when and how to help both Joe and I, when we needed it most.

      Dr. Danko Cerenko became my hero. He brought Joe and me through the most difficult stages of the disease and he did it perfectly. He shared information freely and his straightforward approach was exactly what we needed to help us manage our life when it seemed to be out of control. He will forever have my respect and gratitude.

      1998

      It was in the spring, about 6PM on a Friday night and I was sitting on my couch watching television and waiting on my boyfriend. We were going to go out to dinner and I was dressed and ready, waiting for him to arrive.

      In an instant, literally, I felt this swooning sensation and when I moved my head, just a tiny bit, I realized that I had double vision. I remember blinking and thinking that would make it go away but it didn't. I laid my head back on the couch, closed my eyes, and quickly realized that the swooning feeling was making me very nauseated. I think I was panicking now. It was not going away and I was sure I was going to get sick but I also knew I could not walk. I don’t recall the actual transition, but I remember that my double vision was replaced by the room spinning. By now, I had my eyes closed and I was certain I was going to vomit. It was at this moment that Wes walked in.

      I told him I needed to get to a hospital and that I could not walk because everything was spinning. He gave me a plastic bag and carried me to the car. I was vomiting all the way to the car and continued to vomit as we drove to the hospital. When we arrived at the hospital emergency room, I was seen right away.

      The doctor came in to find me throwing up in my sack and totally disoriented. I could not open my eyes and I was not aware of what was going on other than I was spinning and extremely nauseated. He asked Wes what I was on, how much alcohol I had consumed, and what kinds of drugs I had taken. None. He informed Wes that he would need to take a blood sample, to test for drugs and alcohol, and Wes agreed to that. The lab results were negative.

      They started an IV and I was given an injection of Valium. The Valium, as the nurse explained to us, would relax me and soon the spinning would stop. As I relaxed, the spinning did stop and I finally quit vomiting. Although I am using the word vomiting, I should clarify it by saying that after a period of time I ran out of stomach content and began dry heaves. I was at that point when I arrived at the hospital.

      I slept in the emergency room for about 30 minutes before the doctor came back and cleared me to go home. He gave me a prescription for an anti-nausea medication and said I should follow-up with my primary doctor. He could not tell me what was causing me to go into a vertigo state. This was the first time I had heard this word, vertigo.

      In my mind, I was sure I had a serious brain disorder. In my life, I have had little moments of light-headedness, but I had never experienced double vision, spinning and that horrible swooning feeling I had that day. On the way home, I was trying to determine what could have caused this and all I could think of was something is wrong inside my head, probably in my brain. I could not think about it too clearly because I was absolutely sapped and empty feeling.

      I got home, went to bed and slept through the night. The next morning, I called my mom to tell her about what happened. I didn't have any symptoms at all over the weekend and I never filled the prescription that was given to me in the emergency room.

      On Monday, I went to my doctor's office at Kaiser Permanente, as directed. I was given a brief explanation about vertigo, which it is a state you go into resulting from something. I learned that vertigo is a result, not a symptom. There was little to pinpoint what caused me to go into vertigo and so my doctor said she would just watch me and see if this occurs again. If it does, we will explore it further and if it does not occur again, we won't worry about it.

      I wasn’t happy to leave her office without knowing why I had the

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