TRANSPLANT NEWS

April, 2013 email: transplant@neo.rr.com

Akron-Canton Transplant Recipients

2013 Schedule of Events

Monthly meeting from 6:30 to 8:30 on the 3rd Tuesday of every month at Education Building A at the North Canton Medical Center. OrganDonorSabbath on April 12th at 7:30 at Akron Temple Israel. Thank you to Micki Wise and the Wise Family for sponsoring the event in memory of Bernie Wise. Hartville Flea Market in June. See Sue & Ray Golden for donation details and visit them at the flea market. LIfebanc August 3rd Gift of Life Walk & Run at Blossom Music Center. Join Amandas or Rosie & Pats team or organize your own team to support Lifebanc. Celebration of Life Picnic, August 11th from noon to 4:00 at the John Torok Community Center, Green, Ohio. November 16th to 24th Akron Childrens Hospital Holiday Tree Festival at John S Knight Center. Please contact Rosie or Sue if you have items for this years cowboy theme tree. Holiday Celebration of Life Dinner on December 17th from 6:30 to 9:00 at NCMC. Donor recognition will be followed by dedication of ornaments by organ recipients or their loved ones.

Lifebanc call for quilt squares by 3/31 Lifebanc is preparing to make its last Threads of Life recipient quilt. If you would like to have a square included in this quilt, please submit your square and your recipients information for the quilt scrapbook to Walt Hinkel or to Lifebanc, Public Education Department, 20600 Chagrin Blvd, Suite 350, Cleveland, Ohio 44122 by MARCH 31, 2013. Instructions for preparing the squares and for the registration and scrapbook information are included with this months TRIO update. Book Signing April 5th by Dr Donald Hricik Nothing to Confess Dr Hricik is chief of the Nephrology Division and Medical Director of Kidney and Pancreas Transplantation at Case Western Medical Center. He has authored more than 200 articles and books dealing with organ transplant tation. His novels are fiction with a transplant themes. Nothing to Confess

April, 2013 email: transplant@neo.rr.com

is his third novel. Dr Hricik will start with a reading from his book. The signing will be held from Friday April 5th from 5:30 to 8:00 at The Club at Key Square, 127 Public Square, 4th floor, Cleveland, Ohio. Information about the book signing is included with this months update. Organ Donor Sabbath Rabbi Robert Feinberg will conduct a memorial service honoring organ donors and recipients on Friday April 12th at 7:30 at Temple Israel, 133 Merriman Rd, Akron, Ohio 44308-1943, phone 330-752-8617. The service will be followed by an Oneg Shabbat where refreshments will be served and we will discuss organ donation and the need for more donors. This will be the 4th Donor Sabbath sponsored by Micki Wise and the Wise family in memory of Bernard Wise.

contest in one of seven categories. The top five images with the most likes in each category will be voted on by all fans. The person who submits the winning picture from each category will be awarded a $100 gift card. Once submitted, all images become property of Donate Life America and may be used by Donate Life America to promote organ, eye and tissue donation without expiration. Blue & Green categories include: Fashion (Kids, Pets & Adults), Arts and Arts and Crafts/Decorations, Food and Recipes, Groups (3+ people,) and Decorated Work Space Visit www.donatelife.net/bluegreen2013 to download the National Donate Life Blue & Green logo, Facebook cover, web banners and more! Lifebanc Legacy of Life Luncheon 4/26 This years luncheon will be at the Renaissance Cleveland Hotel, 24 Public Square, Cleveland, Ohio 44113, on April 26th, 2013. This years guest speaker Scott MacIntyre is a singer, songwriter, author, American Idol Season 8 Finalist and kidney transplant recipient. Hear his inspiring story and his live performance as he celebrates the meaning of hope and the gift of life. For ticket information, contact Lifebanc at (888) 558 LIFE (5499) or purchase tickets on line at: http://www.lifebanc.org/events/legacy-oflife-luncheon.aspx The brochure for the luncheon is included with this months TRIO update.

National Donate Life Blue & Green Day April 19, 2013 Celebrate National Donate Life Blue & Green Day and give HOPE to the more than 117,000 people on the organ transplant waiting list; HONOR organ, eye and tissue donors; REMEMBER those that died waiting for their second chance at life; and CELEBRATE the patients who received the gift of life through transplantation. Think blue! Think green! Think blue & green! Take a picture of your Donate Life colors and upload it to the Donate Life America Facebook page from Friday, April 19 through Sunday, April 21 to participate in this year's contest. You may enter the National Donate Life Blue & Green Day

Robin Pelton update Reminder -- PBS transplant video

April, 2013 email: transplant@neo.rr.com

First, we need to thank Robin for her efforts over the years sending cards celebrating donor and recipient transplant anniversaries. On October 20th, Robin went to Summa ER with a fever. The doctors could not figure what type of infection she had. A few day later, she fell and hit her head. An MRI showed abscesses in her brain. Immediate surgery followed and an egg sized abscess was removed. Pathology determined that she had a bacterial infection (nocardia its in dirt) and she was put on antibiotics (IV and oral), which continue today. Her anti rejection meds were stopped to allow her immune system to kick in. Robin has been on dialysis since November. Robin was in the hospital for 1 months, followed by 2 weeks in rehabilitation. Her mobility has greatly improved and she only uses a cane for steps and when she is out in public. She feels fine and has accepted dialysis as a necessary part of her life. Robin is extremely thankful for being alive and for her loving and concerned family (especially Randy!!) and friends in including her TRIO friends Love, Robin & Randy

There is an interesting PBS video Transplant a Gift for Life on liver transplants at Mayo Clinic, The prime focus is a daughter/father and a friend/friend living transplant where they transplant about half of a living donor's liver. There is also a traditional whole liver transplant with a teenage Florida donor and a Minnesota teenager and a lung transplant. The video is available on the PBS web site and you can view it on line at: http://www.pbs.org/programs/transplantgift-life/ TRIO National Presidents 3-11 call First, thank you to Mary Fread and Sylvia Leach for updating our 2013 IRS 501-c-3 non-profit certification. Second, congratulation to the new Maryland TRIO chapter and its president and founder Marty Maren. Finally, there was a lengthy discussion on the OPTN/UNOS proposal for a new kidney allocation policy. Details on the proposal can be found at: http://optn.transplant.hrsa.gov/kars.asp

About TRIO (Transplant Recipients International Organization)

April, 2013 email: transplant@neo.rr.com

Website: www.trioweb.org

TRIOs MISSION TRIO is a non-profit organization improving the quality of lives touched by the miracle of transplan tation through support, advocacy, education and awareness.

issues, and finances) to transplant candidates, recipients and their families, donors and donor families about initiatives and protocols in the field of transplantation.

Awareness We promote organ and tissue donation as an important social responsibility. We develop and support mechanisms to improve the availability of organs and tissues on an equitable basis to meet the need of transplant candidates.

Support We provide support to transplant candidates, recipients and their families, donors and donor families to help alleviate the stresses and problems associated with the process.
Advocacy

We make the concerns and needs that affect the welfare of transplant candidates, recipients, and donor families known to federal government bodies. We also effectively communicate the views of transplant candidates, recipients and their families, donors and donor families to the general public.

Editor: Nancy & Walt Hinkel 330-497-7815 wwh99@aol.com

Secretary: Mary Fread 1529 19th St NE Canton, Oh 44714-2105

330-453-8214

transplant@neo.rr.com

Education We provide current information (with respect to developments in organ and tissue donation, transplantation, medications, social