Bucharest

10 -13 May 2012

Pan-European Network for Care of Survivors after Childhood and Adolescent Cancer

th

PanCare Meeting
& the annual meeting of the

Romanian Society of Paediatric Onco-Hematology

SROHP
10 -13 May 2012 Hotel Pullman Bucharest World Trade Center PanCare
is a multidisciplinary pan-European network of professionals, survivors and their families that aims to reduce the frequency, severity and impact of late side-effects of the treatment of children and adolescents with cancer. PanCare is working to achieve equity of access to care for childhood cancer survivors across Europe, to perform collaborative research and to act as a resource of research based information concerning all late side-effects of cancer treatment. An important aim of PanCare is to work with the European Community to increase awareness and research about childhood cancer survivors. The longterm strategic aim of PanCare is to ensure that every European survivor of childhood and adolescent cancer receives optimal long-term care.

Overview
10 May 11 May PanCare open business meeting PanCare Open Session Inviting Eastern European delegates to the dialogue Parallel sessions PanCareSurFup SROHP meeting SROHP meeting The annual gathering of the Romanian National Society of Paediatric Hemato-Oncology

12 May

13 May

Local organizer:

Register online here: www.pancare-srohp-2012.ro

10 -13 May: specialists from across Europe will have a dialogue in a multidisciplinary setting about long-term care plans for survivors of childhood and adolescent cancer. For the first time, Eastern European priorities will be firmly on the agenda and will be represented by a maximum turnout of specialists from Romania and its neighboring countries.

Bucharest

9 PanCare-Meeting in Bucharest, Romania

10-11 May 2012 (Draft agenda, subject to change)

th

10-13 May 2012

10 May
Room Mexico
13.00 14.00 14.00 15.30

Arrivals and lunch PanCare Business meeting including minutes from Amsterdam, Newsletter, web site, constitution matters and discussion within the Fertility and Ototoxicity Working Groups

Sitting buffet in the Paris-Bucharest room

15.30 15.45 15.45 17.30

Coffee Break PanCare Business meeting cont.

Discover the Belle Epoque beauty of Bucharests centre or see the colossal, communist-era Palace of Parliament. For recommendation for eating out and local attractions please go to the conference website: www.pancare-srohp-2012.ro

Bucharest

10-13 May

11 May
Room Mexico + Seoul
9.00 10.45 9.00 09.15 Morning Session Opening Speeches Chair Chairs of host organizations PanCare and Little People President of the Romanian Paediatric Onco-Hematology Society Representative of the Bucharest University of Medicine and Pharmacy "Carol Davila" & the Bucharest Oncology Institute Survivor representative Patient advocate Introduction of the Pan-European Network for Care of Survivors after Childhood and Adolescent Cancer. www.pancare.eu Update on the FP7 EU-funded project of 16 European institutions carrying out research into late effects of treatment for cancer, to establish guidelines for follow-up for health care professionals, survivors and their families based on existing evidence. www.pancaresurfup.eu Assessing the possibility of creating a European template of an electronic tool that will contain comprehensive information on the medical history of a cancer survivor. Update on the FP7 EU-funded project. Presentation and open discussion, welcoming contributions about such a tools possible Eastern European dimensions. www.ENCCA.eu Julie Byrne Lars Hjorth and Katie Rizvi Despina Baghiu Monica Dragomir Alexandru Barac Paul Catana Lars Hjorth

9.15 09.35

What is PanCare

09.35 09.55 PanCareSurFup

Lars Hjorth and consortium members

09.55 10.45 Survivorship Passport and ENCCA

Riccardo Haupt

10.45 11.00 Coffee Break 11.00 12.20 Morning Session cont. 11.00 11.20 TEMERARII Romanian case study Chair A case study of TEMERARII the Romanian Community of cancer survivor young people Presentation and open discussion about follow up care after childhood and adolescent cancer and the issues rising about transition from paediatric to adult medicine Despina Baghiu Katie Rizvi

11.20 11.40 Relapsed young adult care in Romania

Monica Dragomir

Bucharest Overview of the Romanian national priorities and challenges in child-cancer and long term follow up of paediatric cancer survivors 12.00 12.20 Childhood cancer The National Child Cancer Register registration in Registry has now entered its second year. Romania 2009 2011: Indicators for policy planning and for the lessons learned and development of the first Romanian national future directions strategy for paediatric cancer 12.30 13.45
Press Conference and Lunch

10-13 May Despina Baghiu

11.40 12.00 SROHP presentation

Mihaela Bucurenci

Lunch served in room Paris-Bucharest Chair Cardiotoxicity and cardiomyopathy in long term survivors of childhood cancer. Possible interventions and prevention. TBD Health-related quality of life study in adolescent and young adult survivors of childhood cancer in Romania, including results of a medical avoidance questionnaire and findings on how survivors see their role in getting sick again or keeping healthy Amalia Kuglis Gisela Michel Elvira Van Dalen Leontien Kremer

13.45 15.00 Afternoon Session 13.45 14.15 Cardiotoxicity

14.15 14.45 2 Submitted abstracts 14.45 15.00 Health Related Quality of Life

15.00 15.15 Coffee Break 15.15 17.30 15.15 15.30 study 15.30 15.45 Afternoon Session cont. Chair Fertility project Ototoxicity project Fertility study in long term survivors of childhood cancer Ototoxicity study in long term survivors of childhood cancer International patient group of childhood cancer survivors updates Katie Rizvi Julie Byrne Anja Borgmann of Life a Romanian Staudt Thorsten Langer Alexandra Brownsdon

15.45 16.15 SurvivorNet

16.15 16.35 Irish survivor meeting Reports Italian survivor meeting 16.35 17.00 Horizon 2020
Running from 2014 to 2020 with an 80 billion budget, the EUs new programme for research will provide researchers with access to priority research infrastructure, and fund collaborative research to open up new and promising fields of research. An excellent opportunity to discuss Eastern European participation

Julie Byrne Momcilo Jankovic Lars Hjorth

17.00 17.15 Any other Business 17.15 17.30 Next meeting, farewell and close of meeting 17.30 18.00 PanCare photo 19.00 Social program

Lars Hjorth Katie Rizvi Lars Hjorth

Bus departs from Hotel to PanCare Networking Dinner in Restaurant Caru cu bere

Bucharest

10-13 May

12 May
Room Mexico
09.00 10.45 10.45 11.00 11.00 12.30 13.00 PanCareSurfUp working meeting for project participants Coffee break PanCareSurfUp working meeting continues Lunch

12 & 13 May
Room Seoul
The 24th Romanian National Conference of Paediatric Hematology and Oncology

Were looking forward to meeting you in Bucharest!

we you lose. win! cancer,

www.potisitu.org