FACTS ABOUT ME !

You can contact my Mom Luisa

HI
1 I was born in Medellin, Colombia on the 10th of
February 1998.
by email on luferotero@gmail.com I’m
or by phone 314 524 6789 Home or
1 I was Diagnosed with Angelman Syndrome on
May 2003. 314 327 9678 Cell NICO
1 I was a Blessing for my parents Luisa Otero
and Oscar Betancourt.
1 I live in St Louis Missouri, US with my mother
Luisa , my stepfather Mike and Paul an Andrew
my stepbrothers.
1 I have great and very cool cousins , Isa, Gaby,
July, Dany , Jaime Andres , Andrea and
Andres Felipe.
1 I Have a lot of sensory needs, put rubber
things in my mouth, chewing , massages and
some pressure in my head or ears generally
make me calmer.
1 I attend Ackerman Special School in St Louis.
1 I have Speech therapy and Ocupational
therapy at school.
1 I go twice a week to my Biofeedback Sensory
integration sessions.
1 I Can walk very fast , I like to walk and run
around the house with my stepbrothers, we do
a lot of laps in a few seconds, they barely can
reach me. I have
1 I love to jump on the trampoline, but beds are Angelman Syndrome
great too!
1 My favorite food is Pasta, Tortellinis and
Noodles are the best!
1 My favorite snacks are Graham crackers, Thanks for taking the time
Golden Cereal, and Pita chips, sometimes I to learn more about me
choose to eat only crunchy food.
1 I am a Water drinker, after that I like to © Design Christos Concepts
May 2009
drink shakes and hot chocolate.
christosconcepts@gmail.com
 WHAT IS ANGELMAN SYNDROME ? REMEMBER WHAT MY FAMILY & FRIENDS SAY
Angelman I am still a boy who enjoys the same things as
most other boys. NICO will always
syndrome is rare
non-degenerative have a great
neurological These are things in particular that I like: unconditional smile,
disorder. I have a 0 Smiles , Words and Hugs from you he offers me his
deletion in my 0 Walking, running and climbing hugs and his unique
chromosome 15 0 bubble baths, Pools energy; the sound of
that affects 0 Being outdoors his laughter brings
parts of my brain joy to any place and
particularly 0 Being on a trampoline makes us feel united
associated with 0 Watching videos, Barney, Ernie and the around a special and
language and movement. You can find more Giggles, are still my favorites delicate star.
detailed information on the Angelman Syndrome Uncle Quique
0 Listening music and Dancing. From Classical to
Foundation website www.angelman.org or
Colombian, music is great!
www.angelmanforum.org The form of Angelman NICO.... is an angel that heaven gave us, his
“

Syndrome I have, is nonhereditary from my 0 Playing with sand

family, so that when we look at him in the
family. 0 Soft play areas eyes we can remember the kindness and
sweetness of God's own look.”
ABOUT ANGELMAN SYNDROME ? 0
0
Sliding down chutes
Eating & drinking
Aunt Cecilia

There are many characteristics of Angelman

0 Getting massages “When I want to feel the beauty of God
Syndrome
beyond what surrounds me, all I need to do is

Some of the common ones that I share are:

THINGS I AM GOOD AT to bring his eyes
and his smile to
memory.” Nico's
1 Happy, smiling demeanor; easily excitable 0 Walking, Running, Climbing
Dad
personality
0 Greeting people
1 Developmental Delay (but no loss of skills)
1 Speech Impairment (non-verbal) 0 Smiling
“Nico is love
1 Movement or balance disorder usually
0 Making people laugh personified...he
ataxia of gait
Giving kisses is the most
1 Hyperactivity, short attention span 0
beautiful angel on the planet. Every day I
1 Excessive chewing/mouthing behaviour 0 Finding water to play in
1 Seizures, abnormal EEG thank the supreme God for having me allowed
0 Emptying things the gift of spending time of his existence by
1 Sleeping Disorder
1 Obsession with water 0 Tearing paper his side, and for sharing with him his energy,
filled with love and sweetness. “
Grandmother Elsa
! Excessive chewing/mouthing behavior

! Seizures Disorder. abnormal EEG

! Sleeping Disorder

! Water Obsession
ABOUT ME
0 I was born in Medellin, Colombia on the 10th of February 1998.

0 I was Diagnosed with Angelman Syndrome on May 2003.

0 I was a Blessing for my parents Luisa Otero and Oscar Betancourt.

0 I live in St Louis Missouri, US with my mother Luisa , my stepfather Mike and Paul an
Andrew my stepbrothers.

0 I have great and very cool cousins , Isa, Gaby, July, Dany , Jaime Andres , Andrea and
Andres Felipe.

0 I Have a lot of sensory needs, put rubber things in my mouth, chewing , massages and
some pressure in my head or ears generally make me calmer.

0 I attend Ackerman Special School in St Louis.

0 I have Speech therapy and Ocupational therapy at school.

0 I go twice a week to my Biofeedback Sensory integration sessions.

0 I Can walk very fast , I like to walk and run around the house with my stepbrothers, we
do a lot of laps in a few seconds, they barely can reach me.

0 I love to jump on the trampoline, but beds are great too!

0 My favorite food is Pasta, Tortellinis and Noodles are the best!

0 My favorite snacks are Graham crackers, Golden Cereal, and Pita chips, sometimes I
choose to eat only crunchy food.

0 I am a Water drinker, after that I like to drink shakes and hot chocolate.
REMEMBER
................................
! Smiles , Words and Hugs from you