02/19/13 NAMIOC Mental Health hufsathegreat @GailZahtz Saw the blog post just now. Thank you so much!!

!! Everyone-remember Tweetchat #cphc 10am PST today! #mentalhealth #healthcare GailZahtz @hufsathegreat Sure! Look forward. Feel free to have people send out the link #cphc hufsathegreat Looking forward to the Carpool Health Care chat! #mentalhealth #cphc stevePitman4 Looking forward to this discussion on cphc #cphc NAMIOC Awaiting the cphc chat. Many advocacy issues regarding #mentalillness to discuss. Get involved http://t.co/QHQsAa6A #cphc KatieatNAMIOC Hi I'm Katie, Program Coordinator at NAMI-OC for 2 of our programs, Peer-to-Peer & Family-to-Family. #cphc ChatHealth @KatietNAMIOC Hi Katie, good to see a program coordinator- could you please explain your position with @NAMIOC and why you do it? #CPHC KatieatNAMIOC @ChatHealth I oversee Peer-to-Peer, 10 wk course for adults w/ mental illness, Family-to-Family, 12-wk course for family members #cphc nursefriendly @NAMIOC Have you used http://t.co/am96g0Co before to follow along? http://t.co/EmQJ7nh4 Tweetdeck is my personal favorite. #cphc NAMIOC @nursefriendly Thank you so much! Tweetchat looks like the winner for most of us. Very excited. Chat 10AM PST! #cphc #mentalhealth nursefriendly @NAMIOC Welcome, my personal favorites are http://t.co/SzH8YAkg or http://t.co/tfbqKzjh but for most tweetchat works just fine #cphc ChatHealth @KatieatNAMIOC can you explain peer to peer and family to family courses? #CPHC is very interested in peer advocacy programs. KatieatNAMIOC @ChatHealth Peer-to-Peer is 1x/wk led by 2 individuals living well w/ mental illness. teaches abt brain, relapse prevention, stigma... #cphc KatieatNAMIOC NAMI's Family-to-Family prgrm is 12 wks, 1x/week, for family members w/ an adult relative affected by mental illness. #cphc hufsathegreat @KatieatNAMIOC Follow-up, here is an article about NAMI helping a family when others couldn't: http://t.co/OLDNkvE6 #cphc KatieatNAMIOC NAMI-OC expects to have at least 22 Family-to-Family classes this fiscal yr and at least 12 Peer-to-Peers, helping hundreds! #cphc drseisenberg Who's driving carpool today? #CPHC NatriceR Good ? @GailZahtz ? RT @drseisenberg: Whos driving carpool today? #CPHC ChatHealth Join #CPHC in ten minutes with a panel from @NAMIOC background information and guests http://t.co/hgHuTmGi #mentalhealth

ChatHealth People are so excited they are signing in early to #CPHC with @NAMIOC here is our new twitter ID- please follow to get daily updates! NatriceR Hi all, catching a chair to listen to topic #mentalillness, retired PSW, family caregiver from Ontario...wanting to send snow south:) #CPHC ChatHealth Great to see @NatriceR geared up and ready to drive too. Remember to follow this "person" currently it's @GailZahtz tweeting for #CPHC CSlaterMD @CMROpen MT @GailZahtz: Care about mental health? Join rare panel @NAMIOC at #CPHC 1 ET hour only. http://t.co/ojCu0rAt #mentalillness #cphc ChatHealth There is the amazing doctor with wheels @CSlaterMD great to see you and @CMROpen join us today with @NAMIOC for #CPHC CSlaterMD Love this ride @ChatHealth: There is the amazing doctor with wheels @CSlaterMD great to see you & @CMROpen join today with @NAMIOC for #cphc NAMIOC Great summary of #mentalhealth funding discussions. Where does it leave those with illnesses? http://t.co/RFXe5rQz #cphc ChatHealth For anyone who did not see the avi here is a peak at part of new logo. A sneak peak at the interim home page #CPHC http://t.co/dhveuzMb MDWebPro @ChatHealth The mock-up looks GREAT! When is it going live? #cphc CSlaterMD Fantastic! MT @ChatHealth:did not see the avi here is a peak at part of new logo?sneak peak interim page #CPHC http://t.co/EZgBUCMD #cphc ChronicPainGPS @ChatHealth - I must say, that logo is looking FABULOUS! #cphc ChatHealth Thank you @ChronicPainGPS I think that logo is feeling fabulous- it's a disguise only BETTER #CPHC LAlupusLady Today's topic is #mentalhealth join the convo or lurk... come over to #cphc NAMIOC Nomi speaking for NAMIOC today. LOL Nomi for NAMI Long time volunteer, manage http://t.co/XbFi8xtT website and newsletter #cphc ChatHealth Great to see @Supple_LLC and @LALupusLady please don't be shy and start introducing yourselves and your interests in #CPHC LAlupusLady < Amanda, thriving w/ lupus ~ sharing that "Lupus Awareness is fun, lupus is not." #cphc ChronicPainGPS @ChatHealth: awww shucks! Followed ya! Patti here - ePatient, Pt Advocate/Educator and Pain Ambassador for @ArizonaPain #cphc Nursefriendly Hello Everyone, Andrew Lopez, RN from New Jersey :) #cphc MDWebPro Hi Everyone, Stuart from Minneapolis! I blog about social media and the healthcare community at MDWebPro. #cphc ChatHealth Great to see @MDWebPro who has graciously asked @GailZahtz to interview on all the great work shown with #CPHC StorkBrian @nursefriendly Working but in a blizzard Will try 2 be there @sandyhubbard @sherree_w @solete @sourcepov @steven_paul @teaminspire #CPHC CSlaterMD @StorkBrian Brian, be safe! #cphc

ChatHealth And look who the storm has dragged in! Live from Michigan or travels the great urologist @StorkBrian #CPHC nursefriendly @StorkBrian @sandyhubbard @Sherree_W @solete @sourcePOV #cphc They give "Mail Carriers" all the credit for working in rain/snow :) giasison @ChatHealth Glad to have the team! Gia here, doctor and patient advocate from the Philippines #cphc #chathealth #hcsm ChatHealth From the Phillippines our fabulous physician @giasison here to talk mental health (and connections with employee health?) with @NAMIOC #CPHC IFCanada thanks @namioc: Great summary of #mentalhealth funding discussions http://t.co/5EkDA6EJ #cphc ChatHealth Thanks for joining @IFCanada please introduce yourself to the group. Great to have you #CPHC IFCanada @ChatHealth #cphc Hi group! IF is for child&youth #mentalhealth support and we share (y)our stories to raise #awareness ChatHealth We would love to help you share more stories @IFCanada please be in touch across the platforms and we can set you up! #CPHC IFCanada @chathealth thanks for the #support we'll be staying in touch #cphc Thsnthat #cphc new and keenly interested, ty for follow dr eisenberg, pls may I listen along, SM new, appreciate all insights will share as able ChatHealth Please jump right in @thsnthat We are an open group and thrilled to have you! Is @drseisenberg here too? #CPHC charter4values @nursefriendly @ChatHealth @GailZahtz @NAMIOC Agree! Lurking more today as clinical duties prevail. Will join in when can. :) #CPHC Chameleon23 Hi I'm Melissa the Resource Specialist from the NAMI OC Warmline! #cphc stevePitman4 Melissa Please send the phone number for the WarmLine #cphc Chameleon23 714.991.6412 or 877.910.9276 is the Numbers for the Warmline #cphc sourcePOV @GailZahtz at last :) I made it to #cphc ChatHealth So glad you made it! Everyone this is @sourcePOV who has a partner chat #ecosys that we support from #CPHC sourcePOV @ChatHealth so glad to be here. #ecosys has roots back to #innochat and #hcsm too, I think (we share a family tree) #cphc sourcePOV Chris Jones here, Charlotte NC; working on social change, supporter of social enterpreneurs #socent #cdnaQCF & collaborative models #cphc Supple_LLC @chathealth I'm afraid I can only lurk today - is #cphc always at the same time? LungCancerFaces Hi all! #cphc Drseisenberg Hey there! #CPHC Strangely_T1 Oh hi all... lurking along mostly #cphc ChatHealth Jump right in- the water is fine! @Strangely_T1 #CPHC ChatHealth Great to see you @Strangely_T1 we're talking about stigma. Do you find that still in diabetes? Do you encounter mental health issues? #CPHC Strangely_T1 @ChatHealth yes still stigmas re: diabetes and it's frequent cocompanion depression. Nasty combo of stigma diabetes depression #cphc

ChatHealth Great to see @drseisenberg our oncologist with the greatest heart! Still @GailZahtz just sporting a new look for the hour #CPHC

TheIteratedTri0 #mentalhealth #cphc please check out http://t.co/BIh9KqyP and "like" The Jani Foundation on facebook TheIteratedTri0 #mentalhealth #cphc and check out michael's blog on janisjourney. ChatHealth Good to see a new face @TheIteratedTrio please feel free to introduce yourself to everyone at #CPHC TheIteratedTri0 @LAlupusLady please signal boost http://t.co/BIh9KqyP i gotta go to class check it out and rep it on here #mentalhealth #cphc ChatHealth #CPHC has panel of 5 people from @NAMIOC who will be discussing mental health programs- please note their matching grant ends this week! NAMIOC NAMI-OC matching funds by Roy W. Smith Foundation will end Feb. 28 Every dollar donated doubled http://t.co/7ss2NTfH #cphc ChatHealth In full gear at #CPHC with a great guest panel from @NAMIOC their matching grant $1 for each $1 given ends this week http://t.co/mWYRtsQQ stevePitman4 The silence re #mentalillness serves no good end. 25% of any group will have a diagnosable mental illness in their life time. #cphc stevePitman4 Most families and most consumers resist a diagnosis because of stigma. Stigma is magnified by our mutual silence re mental illness #cphc ChatHealth Thanks for joining @stevePitman4 please do talk more about the stigma- we were working two decades ago on trying to reduce it! #CPHC stevePitman4 @ChatHealth Stigma is borne of ignorance. Education is the key. In order to educate we must be willing to speak. #cphc stevePitman4 @nursefriendly Consumers and families isolate because of stigma. it is easier to isolate than to speak. #cphc nursefriendly agreed. RT @stevePitman4: Consumers and families isolate because of stigma. it is easier to isolate than to speak. #cphc nursefriendly @stevePitman4 @ChatHealth #cphc We're talking a whole lotta #education to address #mentalhealth #mhsm #stigma #discrimination :( LAlupusLady No matter what the the condition. Education is essential to lose the stigma #lupus or #mentalhealth #cphc MDWebPro @LAlupusLady Absolutely agree! The more education, the easier it is to raise awareness! #cphc NAMIOC @MDWebPro NAMI's across the country have NAMIWalks raising funds and AWARENESS on mental illness #cphc nursefriendly Get more people talking! RT @MDWebPro: @LAlupusLady Absolutely agree! The

more education, the easier it is to raise awareness! #cphc nursefriendly Major barrier :( RT @LAlupusLady No matter what the the condition. Education is essential to lose the stigma #lupus or #mentalhealth #cphc NAMIOC @LAlupusLady NAMI is the leader in mental health education. Classes for families, peers, community. http://t.co/XbFi8xtT #cphc giasison @ChatHealth @NAMIOC You guys are fabulous! Yes all for workplace wellness,preventive med,social media in healthcare,etc #cphc hufsathegreat @nursefriendly @MDWebPro @LAlupusLady @KatieatNAMIOC True. Took @NAMIOC peer-to-peer class, edu reduced my #self-stigma, better health #cphc CSlaterMD @nursefriendly @stevepitman4 @chathealth speaking is the first half. compasionate listening the 2nd #cphc KatieatNAMIOC @CSlaterMD NAMI programs like Peer-to-Peer & Family-to-Family encourage those affected to discuss & listen 2 their challenges & needs #cphc Nursefriendly @stevePitman4 See the same kind of reaction to #cancer #patients, #patients facing death, #dying #eolchat go figure. #cphc CSlaterMD similar stigma @nursefriendly: @stevePitman4 same kind of reaction #cancer #patients #patients facing death, #dying #eolchat go figure #cphc nursefriendly Start discussing period . . RT @CSlaterMD: @stevepitman4 @chathealth speaking is the first half. compasionate listening the 2nd #cphc ChatHealth What does this isolation do to further cause difficulty for families with mental illness? @stevePitman4 #CPHC nursefriendly @stevePitman4 The more educated a family is, the better they can watch for "red flags" potential problems. #Empower them! #cphc Nursefriendly @ChatHealth t1 The #social #isolation, #stigma leads to #depression Feelings of #helplessness, lets untreated conditions worsen #CPHC KatieatNAMIOC @ChatHealth common across mental illness: critiques of unproductive, lazy, anti-social, weird. but each illness has its stereotypes #cphc

ChatHealth You can be the first to follow us @CSlaterMD Everyday #CPHC is making incredible progress. See us Thursday in the AAMC! CSlaterMD @ChatHealth Done! follow follow follow! :) #cphc ChatHealth For those who don't know, @GailZahtz behind the avi is tweeting from the hospital, so if I fade out- please continue on #CPHC with @NAMIOC

Nursefriendly @ChatHealth @GailZahtz @NAMIOC Lol, Gail, you're incredible, few people in the hospital would make time for a #healthcare #tweetchat #cphc ChatHealth We are missing lots of folks. I didn't get a chance to send out invites- and it isn't running on @GailZahtz stream- so please invite #CPHC GailZahtz I am tweeting now from a new avi, please join #Cphc GailZahtz If you are watching my stream, chat in full force, I am just using our new id! Please join! #Cphc KatieatNAMIOC We're glad to have all who are here! With your help NAMI-OC wants to help as many individuals & families affected as possible #cphc ChatHealth Thanks for joining @NursSciWatch love to hear thoughts on mental health, and also we will have open sections you can build for nurses #CPHC NAMIOC @ChatHealth Mental health laws need to be changed-waiting for danger is too late http://t.co/R4CAEOI3 #cphc ChatHealth What laws do you "target" that will make the most change in mental health? @NAMIOC #CPHC KatieatNAMIOC @ChatHealth Here in CA NAMI-OC endorses Laura's Law to help those who lack insight into their conditions get med. attention they need #cphc nursefriendly Major overhauls :( RT @NAMIOC: @ChatHealth Mental health laws need to be changed-waiting for danger is too late http://t.co/t0juOqqF #cphc NAMIOC Important that people become more politically active help change laws on mental health and tx. Write to your legislators #mentalhealth #cphc NAMIOC Treatment and Advocacy in Virgina has been working to change the treatment laws for all states get involved http://t.co/R4CAEOI3 #cphc stevePitman4 One link too often missing is the family. Families are exhausted by a system that is largely unresponsive. #cphc stevePitman4 Families must be embraced as a part of the solution not as a part of the problem. #cphc nursefriendly Truth is, they need to be in loop RT @stevePitman4: Families must be embraced as a part of the solution not as a part of the problem. #cphc ChatHealth How can we all support exhausted families? @stevepitman4 #CPHC Similar for all caregiverrs? @NatriceR KatieatNAMIOC @stevePitman4 that's why it's important to be knowledgeable abt support grps, NAMI courses, etc. to refer families in need #cphc MDWebPro @stevePitman4 any suggestions on how to be more inclusive of the family? #cphc LungCancerFaces @nickdawson @drseisenberg How about starting with our children? #cphc Nickdawson @stevePitman4 very astute and different family members are in different places, emotionally and ability-wise #cphc

Nursefriendly @nickdawson Very true Nick, not everyone is cut out to be a #caregiver, no do they all want the responsibility of dealing with it #cphc ChatHealth Many many patients do not have a caregiver even if they have a spouse @nursefriendly @nickdawsom #CPHC ChronicPainGPS Without a Doubt!! RT @stevePitman4: Families must be embraced as a part of the solution not as a part of the problem. #cphc CSlaterMD @KatieatNAMIOC so often families don't know where to go for support and tx. Do u help at that level? @chathealth #cphc NAMIOC @ChatHealth Refer families to the NAMI closest to them. Lots of programs for the family members and the individual affected as well #cphc ChatHealth How can we all help families know where to go for support? @CSlaterMD @stevePitman4 Would space on the new #CPHC with resources help? MDWebPro @ChatHealth That would be a great first step! #cphc CSlaterMD @ChatHealth @NAMIOC @stevepitman4 I think yes, where to get tx, support, resource would help! #cphc KatieatNAMIOC @CSlaterMD NAMI-OC can direct ppl to resources (ex low-cost counseling) through our OC WarmLine. Courses give edu foundation, support #cphc Nursefriendly @KatieatNAMIOC We need that information on resources in every #PrimaryCareProviders office, at every visit when needed. #cphc NatriceR @ChatHealth exhaustion, burnout happens to all sooner or later, may feel different, may need hammer over head to get it! offer help:) #CPHC Nickdawson @chathealth I've seen an increase in hospitals building "inns", connected hotels, for exhausted families #cphc ChatHealth Can you tell us more about the hospital inns and how they help exhausted families @NickDawson #CPHC MDWebPro @nickdawson This is an interesting concept. I think having more of these housing tools available would go a long way. #cphc Nickdawson @ChatHealth @mdwebpro generally, the idea is to keep families close to the hose, and reduce the burden/cost of staying nearby. #cphc nickdawson @MDWebPro to idea of inns? Mayo has been doing similar for years, not a new. Patients love it. Some hospitals see mgmt of inns as hard #cphc giasison @nickdawson @MDWebPro That's a great idea- INN.Helps eliminate the element of "stigma" of rehab centers in patients #cphc Nickdawson @ChatHealth Admittedly, I'm biased towards this one http://t.co/AhitCK7U, Bon Secours also built one when I was there. #cphc MDWebPro @nickdawson @ChatHealth what kind of adoption rate are you seeing in the community? Are clinics/hospitals receptive to this? #cphc nickdawson @nursefriendly We used to see the out of town fam have harder time w/ EOL care than in-town family who had more complete picture. #cphc

ChatHealth How is it harder for EOL care for out of town families? @NickDawson #CPHC stevePitman4 Who will love a consumer longer or more than his or her own family. The family must must be part of the solution. #cphc giasison @NatriceR @ChatHealth @nickdawson Stress resiliency much needed in families & communities on my side of the globe #cphc nursefriendly @stevePitman4 Yes, the strain of #caregiving, can be a tremendous drain on #family #resources #cphc NAMIOC @nursefriendly yes, we need to lower the bar and treat earlier before person becomes dangerous from symptoms http://t.co/iUQa667c #cphc charter4values @nursefriendly @stevePitman4 @ChatTweet #CPHC Absolutely! Need patients' and families' voices and perspectives.

LAlupusLady sometimes a diagnosis (ie: #lupus) or other condition brings out the need to address #mentalhealth for all family members. #cphc KatieatNAMIOC @LAlupusLady You are so, right! Thanks for being an aware ally to individuals and families affected by mental illness! #cphc LAlupusLady @ChatHealth attempt to share that Lupus Awareness (education) is fun but the condition isn't. Sharing is caring. #cphc LAlupusLady @hufsathegreat #truth and often patients have to ask HCPs "Could it be #lupus ?" #cphc ChatHealth How can we all promote being allies to individuals and families? @KatieNAMIOC We are all patients even if we are providers some days! #CPHC Nursefriendly @LAlupusLady For those that were undiagnosed, it can suddenly answer a lot of questions, #empower families #lupus #mentalhealth #cphc KatieatNAMIOC @nursefriendly Friends can also be engaged! For ex a close friend to someone w/ mental illness can take our Family-to-Family class too #cphc Hufsathegreat @KatieatNAMIOC @nursefriendly Boyfriend or girlfriend, fiances, as well #cphc ChatHealth How can we engage friends better @KatieNAMIOC #CPHC ChatHealth You count on your big walk every year don't you @NAMIOC how about this fundraiser this week that matches- how can we help? #CPHC ChatHealth Are the stigmas similar across different diagnosis or are they different with mental health? #CPHC ChatHealth It doesn't seem other illneseses blame the patient like that @KatieNAMIOC do they? #CPHC LAlupusLady Stigmas are similar across health conditions, they are fears. Awareness is key, educate HCPs and patients to share. @ChatHealth #cphc Nursefriendly @LAlupusLady All of a sudden, "It" has a name, potential treatments, support groups #lupus #mentalhealth #cphc

LAlupusLady @nursefriendly the relief of "IT" having a name and IT was not in my head. #lupus diagnosis relief then reality of chronic condition. #cphc LungCancerFaces @LAlupusLady Have definitely heard that one before. Have a friend with Lupus. #cphc sourcePOV @LAlupusLady @AutoimmuneGal .. m/b blame is what it looks like .. but is it really defensive behavior on part of the healthy? #cphc ChatHealth What are healthy family members being defensive about? @SourcePOV #CPHC LAlupusLady before my diagnosis, i was sent to therapy b/c Drs thought my "pain" was attentionseeking device, lupus is real. #cphc Hufsathegreat @LAlupusLady Very unfortunate to hear :( #cphc ChatHealth How have you fought stigmas in Lupus and similar diagnosis @LAlupuslady #CPHC LungCancerFaces I constantly make comparisons to mental illness when talking about #lungcancer stigma. Wrong to stigmatize any condition. #cphc Drseisenberg @LungCancerFaces concur! #CPHC LAlupusLady @LungCancerFaces all stigmas are wrong. #cphc CSlaterMD @LungCancerFaces Agree! #cphc Drseisenberg There is NO place for ANY stigma related to ANY health condition - period. #CPHC CSlaterMD Definitive, articulate! RT @drseisenberg: There is NO place for ANY stigma related to ANY health condition - period. #cphc GailZahtz Agree but how stop? RT @drseisenberg: There is NO place for ANY stigma related to ANY health condition - period. #Cphc giasison THIS! RT @drseisenberg: There is NO place for ANY stigma related to ANY health condition - period. #CPHC stevePitman4 @drseisenberg Yes! And problems above the neck should be treated in the same way that problems below the neck are treated. #cphc ChronicPainGPS Amen! RT @drseisenberg: There is NO place for ANY stigma related to ANY health condition - period. #cphc Thsnthat Hear Hear! @drseisenberg RT There is NO place for ANY stigma related to ANY health condition - period. #CPHC Did I do that right? hufsathegreat Completely right! @drseisenberg RT There is NO place for ANY stigma related to ANY health condition - period. #CPHC nursefriendly @drseisenberg There is no place for #racism or #discrimination either, but they still exist, persist :( #cphc drseisenberg @nursefriendly unfortunately... #CPHC Nickdawson @drseisenberg in other words, I love the goal of removing all stigma, and yet it seems so counter to our nature. #cphc CSlaterMD @nickdawson @drseisenberg but why? is it our need to fit things in a box with a label and then move on? #cphc

charter4values @nickdawson @drseisenberg @ChatHealth #CPHC Need to enhance the best in our nature--teach values. Working on here: http://t.co/ui5e5GuF ChatHealth How can teaching values (can we TEACH values?) help reduce stigma? @charter4values #CPHC sourcePOV .. well .. RT @ChatHealth "How can teaching values (can we TEACH values?) help reduce stigma?" @charter4values #cphc giasison @charter4values @nickdawson @drseisenberg @ChatHealth Well said! Reiterate basic values. #cphc sourcePOV @ChatHealth imo, teaching values starts w/ parents, continues at school .. but culture HUGE (often highly negative) influence .. #cphc charter4values @giasison @nickdawson @drseisenberg @ChatHealth #CPHC Values so important! We've found universal values held around world. Can enhance! ChronicPainGPS @nickdawson @drseisenberg: that's cuz everyone loves 2 slap a label on everything! It will B difficult transition but needs 2B made! #cphc hufsathegreat @LAlupusLady It seems that doctors/psychs misdiagnosis often delay effective treatment. #cphc LAlupusLady @ChatHealth i had a pro-active pediatrician... after 10 "failed" mono tests b/c a tired 15 yr old usually has mono. #cphc LAlupusLady after 5th "failed" mono test, i told RN that i hadn't kissed anyone since the last test, could she test me for something else? #cphc LAlupusLady then it was suggested that i go to therapy, for asking for a different test. #mentalhealth was the issue b/c #lupus was not diagnosed. #cphc CSlaterMD @LAlupusLady its the story of SLE, may be the condition that wears most hats b4 actually the one that fits properly #cphc LAlupusLady stigmas go away when fear is transformed ~ wearing a cape & purple boots is fun & people are intrigued. #LupusStyle #cphc hufsathegreat @LAlupusLady Another way is to put a face on what's stigmatized. Speaking to others about MI is very effective in breaking barriers #cphc Chameleon23 @hufsathegreat I agree Hufsa! I tell my story to groups of people all the time - teachers, providers, people w/ MI #cphc hufsathegreat @Chameleon23 :) Began telling my friends and gathering courage to tell more. Also started http://t.co/6XiOcoxj #cphc ChatHealth How can we better put faces to the mentally ill to see them as family? @StevePitman4 #CPHC ChatHealth Were your friends helpful or harmful or both in gathering courage? @hufsathegreat #CPHC

Hufsathegreat @ChatHealth Very helpful. After knowing friends so long, they won't turn their backs on me after knowing about my MI - they support #cphc Hufsathegreat @ChatHealth There were bad apples here and there, but in the overall scheme of things, not significant! #cphc LungCancerFaces @hufsathegreat @lalupuslady YES! Putting a face to it is key. #cphc KatieatNAMIOC @hufsathegreat NAMI-OC In Our Own Voice presentation in colleges 4 psych students, psychiatric units 4 patients, conferences, & more! #cphc sourcePOV @ChatHealth .. so to fight 'stigma' is to foster a non-judgmental, inclusive culture (ok t/b diff) @NickDawson @giasison @drseisenberg #cphc ChatHealth How do we foster a non judgmental inclusive culture? @sourcePOV #CPHC Chameleon23 @ChatHealth We begin by sharing our own stories, modeling non judgment and inclusion #cphc Strangely_T1 Education don't tolerate bullying RT @ChatHealth How do we foster a non judgmental inclusive culture? @sourcePOV #CPHC ChatHealth Bullying has been brought up a lot in many circles lately @Strangely_T1 How can we help with the bigger cause of stigma from bullying? #CPHC CSlaterMD @strangely_T1 bullying adds a synergistic twist that is so destructive @chathealth #cphc Nursefriendly #bullying is prevalent in society :( RT @CSlaterMD: @strangely_T1 bullying adds a synergistic twist that is so destructive @chathealth #cphc ChronicPainGPS Please don't forget to check out @HealthyPlace Stand Up for Mental Health Campaign http://t.co/5V4VliDN - focus on eliminating stigma #cphc ChatHealth Please tell us more about the warm line @KatieNAMIOC #CPHC stevePitman4 @NatriceR The NAMI-OC WarmLine Number is a place to start. We have numbers for other resources as well. #cphc Chameleon23 The Warmline is a Resource and help line where people can call in to get resources on various topics or just to talk #cphc ChatHealth Thank you @Chameleon23 for sharing the warmline numbers. Could you introduce yourself also? #CPHC Chameleon23 I am Melissa the Resource Specialist for the Warmline. I have been a NAMI volunteer for 7 years and now work for the Warmline #cphc Nickdawson @Chameleon23 warmline seems like a great model which can be extended to SM too, for online groups #cphc ChatHealth Are there ways technology can offer something similar to the warm line? Like a warm chat or email? #CPHC @Chameleon23 Chameleon23 @ChatHealth We do have a live chat already which you can access on the NAMI OC website - http://t.co/8Q4i50Ng #cphc

CSlaterMD @ChatHealth @chammeleon23 could have warm chat up 24/7 (Sound familiar :)) with support in a pinch #cphc Chameleon23 The NAMI OC Warmline is open from 9am - 3am weekdays and 10am3am on weekends #cphc Chameleon23 All NAMI OC Warmline Mentors are either family members or consumers with mental health problems themselves #cphc Chameleon23 ...Providers, people with mental illness, family members, friends, anyone who wants to learn more. #cphc giasison @Chameleon23 Commendable advocacy Melissa! #cphc ChatHealth What do you mean about providers and others who want to learn more? @Chameleon23 #CPHC Chameleon23 @ChatHealth the Warmline is for anyone who wants to call in, not just people who have mental illness. #cphc ChatHealth What other calls may you get to the warmline other than mental illness? @chameleon23 #CPHC NAMIOC NAMI-OC developing NAMI on Campus at local colleges. Early identification and intervention is needed to reduce the severity of MI #cphc Chameleon23 The NAMI OC warmline has an extensive Resource Database which I am responsible for updating and adding to. Anyone can call us... #cphc ChatHealth Do you find mental illness goes hand in hand with your chronic patients? @StorkBrian #CPHC sourcePOV < BIG fan of @DanielGolemanEI .. looks like Empathy front & center in today's conversation .. just from reading tea leaves .. #cphc giasison @StorkBrian @ChatHealth I concur Brian! Avid fan of empathy-based medicine #cphc drseisenberg 1000% RT @giasison: @StorkBrian @ChatHealth I concur Brian! Avid fan of empathy-based medicine #CPHC ChatHealth What are ways that we can use the new site for #CPHC and our platform reach to help @NAMIOC and others with the mental health stigma? NAMIOC @ChatHealth We empower individuals affected to become leaders and provide support to their peers #cphc stevePitman4 Early identification and treatment is essential. Mental Illness is a progress disease. The sooner is it is IDed and treated the btter #cphc hufsathegreat I thought to post my own #mentalillness story. #stigma & #self-stigma are really important to eliminate! http://t.co/iUdvK2s3 #cphc ChatHealth What were your experiences with stigma @hufsathegreat Do you prefer patient or consumer? #CPHC And why?

hufsathegreat @ChatHealth I don't really like patient or consumer - seems to purposely hide the fact that I have a #MI. If I had to choose: consumer #cphc hufsathegreat @ChatHealth Patient seems to suggest that I'm always sick, when I am healthy most of the time #cphc CSlaterMD important to remember RT @hufsathegreat: @ChatHealth Patient seems to suggest that Im always sick, when I am healthy most of the time #cphc Chameleon23 I am a consumer myself, I have been managing my Bipolar 2 disorder for over 10 years #cphc ChatHealth Have you both had delayed effective treatment? Please share. @hufsathegreat @Lalupuslady #CPHC hufsathegreat @ChatHealth @Lalupuslady Personally no b/c relative diagnosed. For him, wrong diagnosis for years meant wrong treatment. Delayed 4 yrs #cphc ChatHealth So difficult to hear about relative who was wrongly diagnosed @hufsathegreat is this common in mental illness? How can @NAMIOC help #CPHC hufsathegreat @ChatHealth Yes know at least 40 consumers thru @NAMIOC, many of them wrongly diagnosed or even personality blamed. Esp. older ones! #cphc nickdawson @drseisenberg to err is human...and to judge may also be human, huh? #cphc sourcePOV Afraid so RT @nickdawson @drseisenberg "to err is human .. and to judge may also be human" #cphc nursefriendly Final: #Stigma #Judgements are often based on #rumor #misconceptions #myths. Dispel them with #education, break the cycle. #cphc charter4values @nursefriendly @stevePitman4 @ChatHealth #CPHC Suggest having section of CarPool website on resources,help 4 families. CSlaterMD Agree MT @charter4values: @nursefriendly @stevePitman4 @ChatHealth #CPHC Suggest section of CarPool on resources,help 4 families. #cphc ChatHealth We will be having rated and recommended resources at #CPHC @charter4values It is one feature that will take some planning- hence idea labs Annie_Hindes #cphc what are current trends for tx of schizophrenia paranoid type Annie_Hindes @nursefriendly @stevepitman4 what are current trends in tx of schizophrenia paranoid type #cphc ChatHealth Thanks for joining @Annie_Hindes I didn't get to see your introduction- would love to learn more about you and your interest in #CPHC stevePitman4 @ChatHealth I have yet to talk to a group re #mi and not been flooded with people with an ill famaily member and never discussed it #cphc NAMIOC @ChatHealth NAMI has a very powerful program In Our Own Voice presentations to help eliminate stigma #mentalillness #cphc KatieatNAMIOC @NAMIOC Yes, this presentation shares 2 ppls' lived experienced w/ mental illness from darkest days, acknowledging m.i, moving forward #cphc

KatieatNAMIOC @ChatHealth acknowledge our mental illness need, support intervention programs before illness escalate, join NAMI as member or @ event #cphc StorkBrian @ChatHealth All I know is that our community and our society needs to commit more resources to mental health And reduce the stigma #CPHC ChatHealth Speaking of patients and families voices- are all of our guests still here. Everyone at #CPHC you should know this is their 1st ever chat! KatieatNAMIOC @nursefriendly NAMI Family-to-Family exposes normative Emotional Stages to m.i. a part is that ppl in 1 fam can b in diff. places #cphc stevePitman4 @ChatHealth The relevant question is why. In the case of MI, it is because of blame and shear exhaustion. #cphc nursefriendly @stevePitman4 Agree, though many "outside looking in" are very quick to be judgemental :( #cphc KatieatNAMIOC @CSlaterMD Promote non-judgment by sharing true statistics & stories abt prevalence of MI, eve prevalence even among "successful" ppl #cphc GailZahtz @KatieatNAMIOC Do statistics help reduce stigma? #Cphc charter4values @GailZahtz @KatieatNAMIOC @ChatHealth #CPHC Yes! Great idea. Statistics are neutral. Can be reassuring. Show prevalence >more acceptance Nursefriendly @KatieatNAMIOC Yes, offer "did you know" this #athlete #moviestart #politician has "It" also? So does . . . . normalize it. #cphc Chameleon23 @GailZahtz I think that stats can help, but I think a more powerful message is that of the real lived experience of someone with MI #cphc nursefriendly Some respond better to #numbers #statistics, others do not. @charter4values: @GailZahtz @KatieatNAMIOC @ChatHealth #CPHC #cphc hufsathegreat @Chameleon23 @GailZahtz Agreed. Numbers don't necessarily appeal to the general public as much as real faces #cphc stevePitman4 Final take on judgement. Judgemnt implies a decision. People with #MI no more decided to embrace MI any more thn a prsn chses cancr. #cphc charter4values @ChatTweet #CPHC Here's interesting idea that addressed stigma for cancer survivors. Consider for mental health? http://t.co/3yZKpkjn ChatHealth Terrific to see you jump in @LungCancerFaces Do you find connections with mental health and chronic complex disease? #CPHC ChatHealth Have you done work on the comorbidity of metal illness with chronic illness @NAMIOC #CPHC LAlupusLady Great? RT @ChatHealth Have you done work on the comorbidity of metal illness with chronic illness @NAMIOC #cphc

giasison Vital to stand up and speak of any discrimination felt when experiencing stigma in mental health. #CPHC hufsathegreat @ChatHealth @NAMIOC helps already thru classes for consumers, families, and also speakers for providers, can u say more @KatieatNAMIOC #cphc GailZahtz We were doing education for stigma 20 years ago, have we made progress? @LungCancerFaces @drseisenberg Education! #Cphc Strangely_T1 @GailZahtz @LungCancerFaces @drseisenberg little progress... it seems only time MI is mentioned in media it is a tragedy of some type #cphc hufsathegreat @Strangely_T1 @GailZahtz @LungCancerFaces @drseisenberg Yes, I worry that MI will only be associated w/violence. #cphc NAMIOC @GailZahtz Stigma is reduced as the myths are replaced with science. Many people continue to stigmatize themselves. More talk needed #cphc GailZahtz @NAMIOC Can you tell us more about your education programs? #Cphc NAMIOC NAMIOC also has programs for parents of school age children dx with MI called NAMI Basics. #cphc KatieatNAMIOC @Chameleon23 positive role models like u who help others see: acknowledging ur mental health needs doesn't exclude a bright future! #cphc stevePitman4 @GailZahtz go to http://t.co/3XiXwDZp There are plenty of resources. One challenge is who to find them. This is one place to start. #cphc KatieatNAMIOC @hufsathegreat W/ 22 Family-to-Family classes projected this Fisc Yr, NAMI-OC expects to help 300-400+ families w/ that program alone! #cphc ChatHealth Many times the fear of treatment attached with stigma prevents seeking help- would you find that true? @NAMIOC #CPHC stevePitman4 @ChatHealth To accept treatment is to accept the diagnosis. Many families and consumers consistently resist the diagnosis. #cphc Annie_Hindes @Annie_Hindes @chathealth is there a point of no return for those who refuse treatment? #cphc StorkBrian #CPHC It effects physicians as well... Physicians not immune to developing mental health problems but tend to delay seeking TX d/t stigma Nursefriendly @NatriceR @ChatHealth #cphc Agree, some who are getting crispy around the edges don't even realize it, don't know the warning signs CSlaterMD in some ways stigma magnifies @StorkBrian: #CPHC effects MDs too MDs not immune 2 mental health problem but delay seekingTX d/t stigma #cphc GailZahtz @CSlaterMD How dies stigma magnify? What can we do? #Cphc LungCancerFaces @GailZahtz @drseisenberg My kids are 25 and 26. There was no education in their schools. They learned to be mensch from us. Schools! #cphc ChatHealth Can you talk about what work we CAN do to help? @LungCancerFaces #CPHC That's what we're here for- action too!

LungCancerFaces @sourcePOV @chathealth AIDS/HIV used to be greatly stigmatized. Not as much now. Education is key. #cphc ChatHealth How did AIDS reduce the stigma and how can we learn from that for mental health and others? @LALupusLady #CPHC LAlupusLady @ChatHealth AIDS stigma was my stigma in 1985, describing lupus would say "lupus is an Auto Immune Disease" then the step back. #cphc Nursefriendly @LAlupusLady Where do we start with the #misconceptions #myths surrounding #mentalillness #mh #mhsm, #aids #hiv #lupus :( #cphc sourcePOV @ChatHealth .. but to try to answer your Q better .. education, YES; awareness; encouraging values of openness, tolerance, empathy .. #cphc ChatHealth How can we promote seeking help and yet not connect mental illness only with violence? @hufsathegreat #CPHC charter4values @CSlaterMD @nickdawson @drseisenberg @ChatHealth #CPHC Focus on each person & their perspective & the relationship helps. stevePitman4 @Chameleon23 Great point the vast majority of people with MI are not violent and many violent people are not MI #cphc drseisenberg +1MM RT @charter4values: @CSlaterMD @nickdawson @drseisenberg Focus on each person & their perspective & the relationship helps. #CPHC hufsathegreat @ChatHealth I believe people w/ #mentalillness need to come out and share their exp to show that not all of us are violent. #cphc giasison +1000/RT @ARJalali: Academic promotion criteria should include #SoMe ! #hcsm #meded http://t.co/TZQ3IzWX #cphc charter4values @giasison @ARJalali @ChatHealth #CPHC Promotion criteria--also include: relational competency, values. ChatHealth Did I just see the fabulous Canadian doctor @ARJalali come by? Yeah! Please follow this blue person too- will have updates for #CPHC KatieatNAMIOC @ChatHealth Engage w/ ur local NAMI! Take a NAMI course & then get trained to b a volunteer teacher, donate $ b/c our prgrams r FREE! #cphc NAMIOC NAMIOC ALL programs offered FREE. Funds needed to keep programs going. Roy Smith Challenge will double donations http://t.co/7ss2NTfH #cphc KatieatNAMIOC @Chameleon23 thanks for that beautiful suggestion! #cphc sourcePOV @ChatHealth is it just me, or does our culture have a strong bias for 'perfect and healthy'? no thx to Hollywood, Pro Sports, etc #cphc LungCancerFaces @sourcePOV @chathealth They do in Los Angeles. #cphc stevePitman4 @sourcePOV These people are our sons and daughter, our mothers and fathers, and our brothrs and sistrs. They need support not jdgment #cphc nursefriendly @ChatHealth Highlighting #celebrities in the media, showcasing #mentalillness #mhsm in popular culture increases acceptance #cphc

Annie_Hindes @LAlupusLady also suffer with lupus #cphc ChatHealth What has your experience been with lupus @Annie_Hindes #CPHC KatieatNAMIOC @JBBC True. No grp --by age, profession, religion, ethnicity, etc -- is immune to MI. But some grps have even worse stigma #cphc JBBC @katieatnamioc yes indeed #cphc ChatHealth Great to see you @JBBC please follow along so we can keep in touch! What brings you by? Great to have you! #CPHC Hufsathegreat @KatieatNAMIOC @JBBC e.g. NAMI's fact sheet on African American women, #mentalhealth & #stigma http://t.co/uU59rNyd #cphc charter4values @JBBC @StorkBrian @ChatHealth #CPHC Yes, like others. Need to "normalize" mh problems. Most families have some.

Thsnthat @GailZahtz @drseisenberg wups #cphc 1 Educ, Solid Pt Advocacy def keys, more needed rehab'g chronic complex cases mid-age displaced pts ChronicPainGPS Can find out how to get involved or when the next NAMIWalk in your area is at http://t.co/l1VNCUHn #cphc LAlupusLady in 2013, the need to educate that "Lupus is not contagious, but my passion is." Stigma still. #cphc AutoimmuneGal @LAlupusLady Great point. #autoimmunedisease is not contagious overall and to not blame those who are ill for becoming sick #cphc AutoimmuneGal @sourcePOV @LAlupusLady interesting point. might be component of fear? #cphc LAlupusLady @sourcePOV @AutoimmuneGal fear is not a defense, "i don't know" usually means i don't want to know. #cphc ChatHealth Great to see you @Pamskid please follow here also so we can get to know you better and see how we may help your interests! #CPHC Drseisenberg Hey gang! Don't forget 2 refer any1 u know who has ever been touched by cancer 2 the #bigCchat M-thru-F 12 noon PST. #CPHC Thsnthat #cphc @GailZahtz @drseisenberg 2 Community Outreach Wrkr and Comm Support Groups invaluable in helping me heal from dmge of workpl stigma KatieatNAMIOC @thsnthat glad to hear support grp was useful to you. Maybe in the future you'll become a support grp leader to others. :-) #cphc NAMIOC @nursefriendly Lots of media on MI "Silver Linings Playbook" has generated a lot of discussions. #mentalhealth #cphc

hufsathegreat @NAMIOC @nursefriendly You can see these #SilverLinings videos on our Facebook page: http://t.co/ggg6Nv7H #cphc ChatHealth How has the Silver Lining Playbook generated discussions? Can this be used around the world? @NAMIOC #CPHC Drseisenberg @ChatHealth great great flick. #CPHC sourcePOV @gailzahtz @stevePitman4 I think what's beneath ALL negative energy, ultimately, is fear .. "don't let this happen to me" .. #cphc ChatHealth Totally agree about the fear under the stigma. So how do we reduce fear? We did a program of 200 parts called "fearless October" #CPHC KatieatNAMIOC @ChatHealth Bring NAMI In Our Own Voice to your community center, library, place of worship to show what life w/ MI can be -beautiful! #cphc ChatHealth How can we show real and livid experiences? Would journals and/or videos help? @chameleon23 #CPHC Hufsathegreat @ChatHealth @chameleon23 NAMI In Our Own Voice consumer #mentalillness story lectures, but I don't see online-perhaps ppl too scared #cphc KatieatNAMIOC @Chameleon23 Lived stories humanize, show hope. Statistics help us see these powerful stories r not singular incidents-we r not alone. #cphc ChatHealth So the key of the power of the stories is that they show hope? @KatieNAMIOC #CPHC AutoimmuneGal @hufsathegreat @Chameleon23 @GailZahtz statistics can help those impacted speak up. realize not as alone as once thought. #cphc AutoimmuneGal @Chameleon23 People telling & writing stories is powerful. Having the courage to speak up can create a cascade of change. #cphc Chameleon23 @ChatHealth I think that would be one way to do it. Also live presentations but that isn't always possible. #cphc NAMIOC @ChatHealth MI featured by Katie Couric, Patrick Kennedy, Robert DeNiro many hi profile people talking about MI #cphc charter4values @nursefriendly @ChatHealth #CPHC Agree! How about a 'flash mob' to normalize, reduce stigma. Like this: http://t.co/3yZKpkjn NAMIOC @charter4values Great idea to "flash mob" the more talk about a topic the better. People become desensitized over time #cphc NatriceR Fast & furious hour, so many grt twts - have a super week and include #CPHC when u have things to share during the wk.! ty @GailZahtz #CPHC ChatHealth As we wrap up- all can stay, but please stop by http://t.co/mWYRtsQQ and donate $1 or more this week while they have matching grant #CPHC CSlaterMD TY @ChatHealth @GailZhatz @NAMIOC for energizing chat replete with helpful resource and insight #cphc sourcePOV @ChatHealth @GailZahtz .. need to run, glad I stopped in; hope t/b back .. find me at #socialchange h/t, esp at #smchat 4th WEDS 1pET #cphc

ChatHealth TY to all from @NAMIOC who took the time to join. Hope you had a rewarding first chat. Hats off to @hufsathegreat for pioneering! #CPHC hufsathegreat Thanks for having us @GailZahtz @ChatHealth! #cphc KatieatNAMIOC TY to everyone who shared ur thoughts on MI and took the time to learn about what NAMI-OC and NAMIs across the country have to offer #cphc KatieatNAMIOC Yes, Special Thank You to Gail! #cphc ChronicPainGPS Thanks for sharing all the great info that @NAMIOC has to offer - definitely making a difference! Have a great day everyone! #cphc Nickdawson @ChatHealth sorry #CPHC, got pulled away, looking forward to reviewing the transcript. #cphc ChatHealth Great you could drive in @autoimmunegal sounds like we have a lot to do to put faces and voices to reduce stigma of mental illness! #CPHC Hufsathegreat Please join our NAMI Facebook Page for mroe detailed updates. Thank you! http://t.co/ggg6Nv7H #cphc ChatHealth We have a robust community started now at G+ and FB. New interim site should be out by @gobigfishgo in 2 weeks. Lots of work ahead! #CPHC GailZahtz Yes! link to ours plz RT @hufsathegreat: Please join our NAMI Facebook Page for mroe detailed updates. Thank you! http://t.co/2aLNkxWC #Cphc Thsnthat @nickdawson @drseisenberg Instinctual yes but civilised society needs its higher functioning to be inclusive or its merit is flawed #cphc ChatHealth This team was great. @hufsathegreat took initiative and reached out to @GailZahtz then brought all of @NAMIOC onto chat for 1st time! #CPHC