Professional Documents
Culture Documents
Marie Curie People April 2014
Marie Curie People April 2014
Marie Curie
EVERYTHING IN THE GARDENS ROSY
New partnership encourages greenngered supporters
PAGE 5
Roadshows: be there
Members of Marie Curies Executive Board (the charitys Chief Executive and directors) will be visiting 15 locations across the four nations to talk about the new Strategic Plan with staff and volunteers. FOR MORE INFORMATION See page 4 for a full list of venues and a form for booking your place. To attend a roadshow, visit mariecurie.org.uk/strategicplanroadshow or speak to your line manager. Please let your line manager know so that there is sufficient cover at your place of work.
News
YOU CAN DO THIS MONTH 5 THINGS
1. ATTEND A STRATEGIC PLAN ROADSHOW Members of the Executive Board (Chief Executive Dr Jane Collins and Marie Curies directors) will be visiting 15 locations across the four nations. So make the most of your opportunity to nd out about our charitys exciting ambitions and plans and ask lots of questions. Register now online at mariecurie.org.uk/strategicplanroadshow or see page 4. 2. REGISTER YOUR TEA PARTY Enjoy baking? Love entertaining? The Blooming Great Tea Party is the event for you. Its a very simple concept: we ask supporters across the UK to host a tea party, invite their friends and raise some money. This years event is set to take place from 20-29 June. And we're determined to make 2014s party even bigger and better than last years hugely successful campaign. You can register online now and catch up with some of the highlights from last years campaign at mariecurie.org.uk/teaparty 3. PREPARE TO WALK TEN Walk Ten is one of the highlights of our fundraising calendar. Its an opportunity to join an evening 10k twilight walk, with family, friends and hundreds of other Marie Curie supporters, at a beautiful location. Weve just announced this years venues, including some spectacular new locations, as well as a host of old favourites. See page 7 for full details. 4. INFLUENCE OUR RESEARCH Marie Curie is still asking everybody involved with palliative care staff, volunteers, patients and families to highlight areas that theyd like to see addressed by our future research. Our survey with the James Lind Alliance is running until 30 April and weve had more than 1,000 responses to date. So if there are questions that you have been unable to nd the answer to, please do tell us. Visit www.palliativecarepsp.org.uk and ll in the answers. You can also request a hard copy of the survey by emailing peolcpcp@mariecurie.org.uk or calling 020 7091 4153. 5. SAVE PENNIES WHEN YOU PRINT In many of Marie Curie Cancer Cares ofces, we now have highly efcient multi-function devices that have replaced a large number of printers, scanners and faxes. They enable Marie Curie to offer improved print, scanner and fax functionality to support you with your work. But did you know that printing a sheet in colour costs roughly 10 times as much as printing it in black and white? Obviously, if you are circulating a pie-chart or working up a programme design, youre going to need full-colour printing. But 95 per cent of the time, black and white is ne and it saves us cash. So please think about whether your colour print out is really necessary; and if it isnt, make sure your PC is set to print in black and white. All these little savings really add up.
People
Marie Curie
Marie Curie People is the charitys official newspaper for staff and volunteers. It is published monthly.
Editor: Nick Moulton Writers: Rebecca Evans, Ana Malinovic Designers: Artful Dog Publishing and Marie Curie Creative Services Repro by: Selsey Press
Printed by: Mortons Managed & distributed by: CDL Circulation: 6,500
Celebrities
DEMONSTRATING HER SUPPORT The Rt Hon Ann Widdecombe MP called for people to back the appeal outside Parliament. She said: I am supporting Marie Curie Cancer Cares Great Daffodil Appeal. When my brother, Malcolm, passed away at home in 2010, surrounded by family, he was able to do so because of Marie Curie Nurses. They helped Malcolm be at home, where he wanted to be, in the last days of his life. Marie Curies Great Daffodil Appeal is vital in helping Marie Curie Nurses provide more free care to people with terminal illnesses.
IMAGE: PETE JONES PRODUCTIONS
SOPHISTICATED SUPPORT Actor Stephen Mangan, in his current role in the Jeeves and Wooster play, got behind the appeal.
IMAGE: PETE JONES PRODUCTIONS
A host of famous gures from TV, fashion, acting and politics posed with daffodils, garnering lots of highprole media coverage for the Great Daffodil Appeal. Among the celebrities supporting the Appeal were Birds Of A Feather's Linda Robson, who appeared on The Lorraine Show and The Alan Titchmarsh Show to talk about the care her mother received at the Marie Curie
Hospice, Hampstead. I can never thank them enough for what they did and how they helped all of us, the actress told host Lorraine Kelly. Photographs of celebrity supporters helped the appeal further, with former politician Ann Widdecombe, The Only Way Is Essex star Lydia Bright and actor Stephen Mangan all donning a daffodil for the charity.
YOU'RE HIRED TO WEAR YELLOW Nick Hewer, TV presenter and Alan Sugars adviser on The Apprentice, helped the charity in the countdown to the appeal.
IMAGE: IAN STRATTON
THE ONLY WAY IS DAFFODILS Reality star Lydia Bright donned a daffodil pin to support Marie Curie. Lydia, formerly of TV show The Only Way Is Essex, said: Im thrilled to be supporting the Great Daffodil Appeal. Marie Curie Nurses do a brilliant job caring for people when they need it most. Yellow is also the perfect colour to incorporate into your spring wardrobe.
HATS ENTERTAINMENT Actor Warwick Davis did a daffodil-themed photoshoot to help launch the appeal.
Strategy
CHIEF EXECUTIVES VIEW
the country to involve staff and volunteers in developing the charitys values. Many of our staff and volunteers work in the community and dont have daily access to the charitys email system and intranet. So that everyone has a better opportunity to nd out for themselves whats happening and how they can get involved, we have launched this site specically for our staff and volunteers: mariecurie.org.uk/staffandvolunteers We will be running a staff and volunteer charity-wide survey later in the year so we can learn more about what matters to you.Well let you know how you can take part.
Melanie Bond, Internal Communications Manager, Marie Curie Cancer Care, 89 Albert Embankment, London, SE1 7TP
We will conrm your joining details by email.
Are you a
staff member
volunteer
Do you have line manager responsibilities? Yes No If you have line manager responsibilities, would you like to attend the short line manager session which follows the main roadshow session? Yes No What is your main or only role? Fundraising Hospice (nursing) Hospice (other) Marie Curie Nursing Service Shop work Office-based work Other supporting work not covered by the above (please tell us what that is below)
4 April 7 April 9 April 10 April 11 April 11 April 14 April 16 April 17 April 17 April
Mamhilad Park Estate, Pontypool Marie Curie Hospice, Liverpool Marie Curie Hospice, Cardiff and the Vale (Penarth) Bristol Rovers Memorial Stadium, Bristol Marie Curie Hospice, Bradford 89 Albert Embankment, London Marie Curie Hospice, Belfast Marie Curie Hospice, Edinburgh Marie Curie Hospice, Glasgow Marie Curie Hospice, West Midlands (Solihull) Northampton Guildhall, Northampton Marie Curie House, Tiverton Marie Curie Hospice, Newcastle Marie Curie Hospice, Hampstead (North London)
Every contribution has been carefully considered. This is a plan we can all be proud of.
We are running an online webinar session of the roadshows at the end of April for those who cannot make any of the above dates and locations. If you would like to join the webinar, please tick the box and leave your email address above. We will be in touch with further details
News
Marie Curie calls for 24/7 care and access to pain relief
Marie Curie has called for clinical commissioning groups to do more to ensure that 24/7 care is universally accessible for all terminally ill people, no matter where they live. The issue was highlighted in a new report published by Marie Curie, Difcult Conversations with Dying People and their Families. Families reported having to chase after prescriptions, nurses waiting hours for vital drugs to arrive, and locums unable to prescribe. Imelda Redmond CBE (pictured), Director of Policy & Public Affairs at Marie Curie, said: GPs, families and carers are telling us that more needs to be done to improve access to specialist palliative care and pain control at home. We know that effective pain management at home is an important factor that inuences whether someone has a good death, and we only have one chance to get it right. Terminally ill people and their families need timely access to care and pain relief around the clock. At the moment, two-thirds of this time is considered to be out of hours by the healthcare system. With only 17% of terminally ill people at home having their pain relieved completely, it is vital that healthcare professionals are available to terminally ill people around the clock and that they are equipped to provide pain relief.
GOOD WORK: Chris Dainty (left), Marie Curie Nurse Olive Hoare, and Stephen Murphy launch the Gardens for Good partnership at Syon Park Garden Centre
PAIN CONTROL
GPs were also asked to indicate factors that are likely to reduce quality of pain control:
59%
Our Marie Curie audit was one of the most enjoyable jobs we have ever done. It was inspiring to see the care that people take to do their jobs well.
STEVE CONNOR, MIAA
39%
53%
The survey was commissioned by Marie Curie with doctors.net.uk (DNUK) and conducted by DNUKs research division medeConnect Healthcare Insight. Respondents were recruited from the doctors.net.uk membership. Responses were collected from 1,003 regionally representative GPs in the UK. The survey eldwork was conducted over the period 22-28 January 2014.
News
HAY, BIG SPENDERS: Marie Curie Nurse Tracey Wylie and Thompsons Gordon Donaldson mark another year of fundraising
Marie Curie Cancer Care is celebrating the announcement of the third year of its fundraising partnership with John Thompson and Sons Northern Irelands leading animal feed manufacturer. Marie Curie Nurse Tracey Wylie and Thompsons Sales Director Gordon Donaldson marked the occasion at Greenmount Agricultural College, Funds raised by Antrim with a herd of friesians. Thompsons employees Thompsons Chief Executive and customers since the Declan Billington said: 2012 partnership Thompsons prides itself on its launched partnerships, which are always based on a footing of likeminded aspirations and a focus on what is important both to us and to our employees and customers. Partnering with Marie Curie has not been a chance encounter, but a decision taken by our employees, and therefore it is something the company supports from
20,000
its core. We look forward to seeing what our fundraising in 2014 will bring to this extremely worthwhile cause. Anne Hannan, Marie Curie Partnerships Manager, said: Marie Curie is proud to be partnered with Thompsons and delighted to have been chosen for a third year. We have built a great relationship with all at Thompsons and want to say thank you for the support and commitment so far. We look forward to 2014 this partnership just continues to gain strength. In 2012, Thompsons employees and customers embarked on a partnership with Marie Curie Cancer Care that has so far raised 20,000 through numerous fundraising efforts by Thompsons 160 staff and its customers. Thompsons rst event in 2014 was a bacon buttie day to raise money for the Great Daffodil Appeal.
News
NEWS IN BRIEF
RAFFLE RESULT The raffle of an original oil painting in East Dorset has raised 750 for Marie Curie and a local charity. The painting of Wimborne Minster was specially provided by local artist Paul Dolman, while tickets were sold throughout East Dorset Council Chairman Malcolm Birrs year-long term of office. The raffle was drawn at Councillor Birrs sponsored gala dinner, which raised 2,500 for the two charities. ROCK N ROLL Marie Curie and Alzheimers Society benetted from the Rocking All Over the World dance event at the Lodge Hotel, Coleraine, County Londonderry. Organised by Rio Salsa and friends, the event included displays of cancan, Bollywood, tango and many more dances from round the world. BRA NECESSITIES An underwear shop offered free bra ttings in aid of Marie Curie. Bare Necessities, of Marple, Stockport, donated 1 from every item sold. Canapes and cupcakes provided for donations at the event were donated by Archers Bakery. PHIL HONOURED More than 150 people gathered to honour the life of Phil Welsh, a founder member and former Chairman of West Whitlawburn Housing Co-operative, who died last year. The social occasion and celebration, which was organised by members of his family, raised over 2,000 for Marie Curie. MORE COFFEE The 10th annual daffodil coffee morning took place at Otterham and St Juliot Hall, Marshgate, North Cornwall. The event, which was organised by June Smyth and friends, included a raffle and quiz and the sale of tea, coffee and home-made cakes. PIZZA POUNDS The Pizza Oven, Garvagh, Northern Ireland held a fundraising event on Sunday 9 March. Every penny spent in the shop on that day was donated to Marie Curie Cancer Care. Fundraising Manager Anne McRoberts said: We are delighted to have been chosen to benet from this fundraising event. On behalf of Marie Curie Cancer Care, we would like to say a huge thank you to owner Michael OKane and all his staff for their generosity. MSPs TEA The offices of Gregg McClymont, MP for Cumbernauld, Kilsyth and Kirkintilloch East, and Mark Griffin, MSP for Central Scotland, organised a daffodil tea at Sacred Heart Chapel Hall, Cumbernauld. The event, which attracted around 100 local people, raised over 300 for Marie Curie.
normally open to the public. Were also delighted to be returning to many of our most popular venues. Volunteers are needed at all Walk Ten events and Marie Curie People readers are invited to help out. There are three key volunteer roles, Sophie said. We need set-up crews, marshals to show people the route, and cheerers along the route. All are really good fun especially if you volunteer with a friend and youll be playing an essential part in making some of our biggest events possible. Last year, Walk Ten raised more than 850,000 signicantly above its target. This years events have an ambitious 1 million target. Our aim is that at least 750 people will take part in every Walk Ten, Sophie said. At the bigger venues, well be expecting more than 1,000 people.
6 September Ulster American Folk Park 6 September Glamis Castle 13 September Boughton House
FOR MORE INFORMATION To volunteer, email event.delivery@mariecurie.org.uk or call 01883 832 621. To register to take part in Walk Ten, visit mariecurie.org.uk/walkten or call 0845 052 4184.
SCIENTIFIC ACTIVITY
Medical Director Dr Bill Noble said: Were funding a diverse range of studies that reect current scientic activity in palliative care research. These are all important topics. I was delighted that this year, for the rst time, we received more high-quality grant applications than we could fund. There were four other ambitious and interesting studies that were potentially fundable but beyond the capacity of this years funding call. Marie Curie continues to be the major funder of palliative care research in the UK. No other charity targets this kind of research. Our research strategy aims to double our activity in palliative care research over the coming three years, although this will depend on nding donors who understand the importance of funding this kind of work.
The Marie Curie Research Conference took place on 28 March as Marie Curie People went to print. Delegates were set to hear from leading gures in the eld of palliative care research. They included researchers funded by previous rounds of the Marie Curie Cancer Care Research Programme, including Professor Sheila Payne, who was set to speak about the Unpacking the Home research project. See the May issue for a full report.
Digital
PERSONAL ELEMENTS
Alex has been working in the digital industry since 1997. He was Head of Digital at the IP-TV (internet TV) company Homechoice until 2006, before going freelance to work for, among other clients, Shire Pharmaceuticals and International SOS. He describes creating the new website as a big project, but fairly straightforward in most aspects. However, there is one aspect of the project that he has not encountered in the commercial sector. Supporting the advice and information service makes it an extra challenge, Alex said. The emotional side is hard. I spent some time listening to carers telling their stories, and I found it harrowing. Aside from the professional element, theres a personal element to the need to do a good job. While the website will look, and respond, very differently from the current site, a signicant amount of text and content will be transferred over, especially from areas that are less heavily used. This will gradually be updated over time. Replacing the charitys website is one of the three Better Connected projects that will be carried out in the rst year of the new Strategic Plan.
USER TESTING
Alex and his team are carrying out research with potential users patients, carers, bereaved relatives and potential supporters. They are working closely with an agency that specialises in user experience. The team is using the Agile project methodology, which involves working in fortnightly bursts or sprints to deliver parts of the website that are then tested and improved. Each fortnight, we test designs with real users. We can build material really quickly,
WEB OF CHANGE: Alex Langley says the new website must focus on the end-user
IMAGE: ALETIA/SHUTTERSTOCK.COM
Overall, the most important factor is the extent to which it will be centred on the needs of the end-user the person who uses the site not the business needs of the organisation.
ALEX LANGLEY
Finance
FUNDRAISING BOOST: Marie Curie had a very successful Swimathon in April 2013
Carefully planned expenditure will benet Marie Curie over the medium to long term... Service improvements are all about ensuring patients and families get the highquality care they need, consistently.
ANDREW WHITEHEAD
money is a means to an end helping people with a terminal illness. The growth in patient numbers this year represents a signicant increase in our patient care, Andrew said.
EXTRA SPENDING
Marie Curies fundraising has performed signicantly better than forecast throughout the year so does the charity end the year with balanced books and money in the bank? Its not that simple although it does mean that the charity is in a better position in other ways. Were actually aiming to end the year with a slightly bigger decit than we originally planned, Andrew said. The reason for this is that the charitys trustees have authorised additional spending (see box below left) as the charitys fundraising has continued to improve. This is all carefully planned expenditure that will benet Marie Curie over the medium to long term. Donor recruitment will increase our income, and our capacity to raise income in the future. Improving our infrastructure makes us more efcient and more reliable. Service improvements are all about ensuring patients and families get the high-quality care they need, consistently and reliably.
Additional spending
Money is being invested in the following areas: Service improvements, including the introduction of real-time patient feedback. Donor recruitment to produce long-term fundraising growth, including the Direct Response TV ads reported on page 6. Strengthening the charitys infrastructure, including increasing staff at the volunteering centre in Pontypool, and several key IT projects.
Feature
POSITIVE COVERAGE: End of life care is tackled sensitively in Call The Midwife as the mother of Miranda Harts character passes away
Letting a loved one go with tenderness and care can be immensely healing for all involved. The end of life is as important as its beginning.
HEIDI THOMAS, CALL THE MIDWIFE EXECUTIVE PRODUCER
Feature
Scotland
Delivering consistent high-quality care in rural locations presents many challenges. Marie Curie People took a look at how the charity is ensuring its care reaches patients in some of the most remote parts of the UK.
training and travel, its important that Its late at night, and a man is dying. we meet National Institute for Health His wife is caring for him, but shes and Care Excellence quality standards exhausted. The nearest Marie Curie Nurse for end of life around diversity, including lives 50 miles and a ferry crossing away. rurality. Being able to deliver nursing in Thats a common situation for the Marie these areas demonstrates the charitys Curie Nursing Service in the Scottish commitment to the quality standard. Highlands and Islands. The region has a population of 448,000 similar to Brighton or Cardiff but GOING THE DISTANCE spread out across an area of 15,000 In practice, all this means that nurses in square miles. rural Scotland can nd themselves Our main issue is about going the extra mile or a lot the spread of population further. over a big geographical Val Maxwell, Regional Area of the Scottish area, with difcult terrain Manager, said: Our and transport networks, nurses will travel. Highlands and Islands said Diana Hekerem, On occasion, we in square miles, Divisional Business and provide nurses with with only 30 people Service Development accommodation during per square mile Manager (Scotland). the day between overnight In Scotland, the divisional visits because the distances caring services team recognises are so far. The winter can cause that rurality is one of the aspects of us real difculties, particularly lost time diversity that where someone lives trying to get nurses from mainland areas should not mean that they cannot have when ferries are cancelled. high-quality care at the end of their The charitys robust business lives. Families and carers in rural areas continuity planning means that even need the same support and can often feel in difcult conditions, we can maintain incredibly isolated at one of the most the care. We are able to prioritise care difcult times in their lives. and work with the local NHS and other While it can be more difcult to set up organisations to access 4-wheel drive and run services, and there are additional vehicles. set-up costs in terms of recruitment, Close community networks bring other benets, added Diana. Our fundraising groups in these areas are really strong. They understand the value of what we do. And rural MSPs have made it very clear to the Scottish Government that we are making that commitment to delivering care in Scotland. delivering nursing. Even very remote areas have GP and district nurse services. And rural doctors and nurses are used to offering care that might in a town or city be provided by a specialised service or local hospital. Marie Curies solution is to make use of their skills and expertise by providing additional training to nurses who work primarily in other roles. This enables them to provide the high-quality overnight nursing care that Marie Curie delivers, as and when it is needed. Val said: The skills and knowledge that community nursing teams have in delivering palliative care are combined with the additional training provided in their Marie Curie roles. Changing the way were working has had a demonstrable impact on our being able to meet the needs of patients in those areas.
OPEN ROAD: Reaching patients living in the Scottish Highlands can be a long journey
15,000
Where someone lives should not mean that they cannot have high-quality care at the end of their lives.
DIFFERENT APPROACH
The challenges of providing care in remote regions have led to Marie Curie devising a different approach to
DIANA HEKEREM
Art
ARTISTIC DONATION: Peter Howson with the painting he created at the age of six
Marie Curie volunteers. May became Patron of the Marie Curie Hospice, Glasgow after her husband, Donald, died at the hospice in 2012. Donald was Patron of the hospice after chairing the Big Build appeal to rebuild it. When Donald passed away, I wanted to carry on the work where he had left off, said May. Organising this event is a very positive thing to do. FOR MORE INFORMATION Art for Care takes place at the Lighthouse Gallery, 11 Mitchell Lane, Glasgow, Scotland G1 3NU between 12-16 May. The gallerys website is thelighthouse.co.uk
FOR MORE INFORMATION Marie Curies Private View of the Summer Exhibition at the Royal Academy of Arts takes place on 14 July. For more details see mariecurie.org.uk/RA or email Chandni.Mistry@mariecurie.org.uk.
My story
ETERNALLY GRATEFUL: Robena Shiekh with her children, Usnan and Zaynah
hospice helped us manage this its not something we could have done in a hospital.
REASSURING STAFF
The hospice staff were so supportive and reassuring, telling me what symptoms to expect. I was worried that I might not be there with Zahir when he died I might be checking on the children or have popped out. But one nurse said that if I was meant to be there when he died then I would be. That felt like just the right thing to say. I was with him at the end on 19 September 2010 I will never forget it. He had stopped eating three days earlier, he hadnt woken up for two days and I was pacing all day when they told me it was only a matter of time. I was in the room when he took his last breath. He suddenly opened his eyes and lifted his head. I knew he saw me it was like he was going to say something to me and couldnt. He passed away peacefully. He died late on Sunday night. The following morning, his body was taken to the funeral parlour and then the mosque and buried at lunchtime on Monday. It is very important in my religion to be buried quickly otherwise it would have been very distressing and stressful for me. The community would have passed judgement on us. Zahirs death was very hard for me to come to terms with. We had been married 18 years. He was the organiser in our family and I felt lost without him. I had counselling at the hospice for around a year afterwards it really helped me. But, after Zahir died, I would have liked more contact with those who helped when he was ill. My daughter, Zaynah, published a poem about her dads death and she raised money for Marie Curie at school. I regularly donate in the name of my husband. In giving to charity, I believe and its linked to my culture that it will help ease his burden and pain. I teach my children this. I would very much recommend the hospice to friends and family. Often in the Asian community, people believe the family should look after the relative at home. But I know that this hospice felt like home for me and I couldnt have looked after my kids and my husband. I will always be grateful for those last days with him. Sometimes I go to visit the hospice garden or chapel to remember my husband. Robena has dedicated this feature to the memory of her husband Zahir, and also to her two children Zaynah and Usnan
MY STORY
CONSTANT CARE
Looking after Zahir and two small children was difcult. Zahir needed constant care because he was losing his balance and had trouble walking. I couldnt leave him on his own. In August, the palliative care team suggested we go to the Marie Curie Hospice, Bradford for an assessment. The consultant said Zahir had only weeks or months to live so it made sense to move him into the hospice. That was a big shock. Zahir still seemed very strong, determined and positive we thought we had much more time. I had hoped he might at least make it to our little boys birthday in October. Sadly, he didnt. When he moved into the hospice it was so much better than I expected. Zahir had his own room where visitors could stay overnight. There was a prayer room, conservatory, a multi-faith chapel and eating areas.
The staff listened to me and talked to me about how I was coping. I didnt expect to make so many new friends and to experience such a loving environment.
At the hospice, I really saw the warmth of humanity... It felt like there was a ring of people holding hands around me and my children. Ive never experienced this before or since.
News
POINT OF VIEW
Cyclists
25
Fundraising target
in grandstand seats as they witness the yellow jersey claimed for 2014. Cheryl Barrett is Marie Curie Project Manager of the Tour de France Grand Dpart, for which Marie Curie is the ofcial charity partner. She said: Its a unique money-cant-buy opportunity, and is limited to just 25 people. We are asking them each to raise 19,000, which will fund a Marie Curie Nurse for a year. The challenge is incredible both from a fundraising perspective and physically. Its a tough route, and participants will need to maintain 18mph on a bike for around eight hours. But theyll be nishing to huge applause from the crowd Harrogate is Mark Cavendishs home town and its widely acknowledged that he aims to win in front of his home crowd. FOR MORE INFORMATION If youre a keen cyclist whos looking for the ultimate fundraising challenge, or you know of someone perhaps a successful business person who might be interested, please do get in touch with Cheryl Barrett on 07984 022 066 or email cheryl.barrett@mariecurie.org.uk
19,000
These devices are designed to save lives. They are very safe and straightforward to use.
CAROLINE HAMBLETT
Without carers, the NHS would collapse and Wales would face a 7.7 billion care bill it can ill afford. Carers provide 96 per cent of all community care in Wales, with 90,000 providing over 50 hours of care per week. The main carers benet is worth just 55.55 for a minimum of 35 hours equating to just 1.58 per hour. Caring is part and parcel of life, but without the right support, the personal costs of caring can be high. Caring can take its toll on nances, health, career and family life. Carers may have to give up work to care and rely on low-level benets, forcing them into poverty. Carers contribute so much to family and community by looking after the person they love, yet in return may face isolation and worry, and get little or no recognition or support for what they do.People providing high levels of care are twice as likely to be permanently sick or disabled. Caring for someone who is terminally ill at home places a huge amount of stress on carers. If they are unsupported, that stress can frequently become too much, leading to a breakdown in carer health. Marie Curie recognises the importance of supporting carers. With appropriate support, caring can be life-afrming, deeply satisfying and can provide a real opportunity for both carer and loved one to say goodbye. When carers are enabled in this way, it would be more likely that the people they are caring for will be able to remain in their preferred place of care. Carers need clear, easily accessible information about the support and benets available to them. The Marie Curie Caring for Carers Wales Project has developed a series of end of life care awareness sessions around the practical information and support carers need, building skills and condence in their caring role. Every day in Wales, over 345 people take on a new caring role which adds to the estimated 370,000 carers already identied within the principality. By working in partnership with Local Health Boards, local authorities, voluntary organisations and other carer support services, we can expand the reach of the project to meet the needs of more Carers across Wales. FOR MORE INFORMATION Contact Susan Court by email at susan.court@mariecurie.org.uk or call 029 2042 6000.
ESSENTIAL EQUIPMENT: Caroline Hamblett demonstrates an automated external debrillator with the help of Senior PR and Media Officer Ben Wicks
Fundraising
SCOTTISH SUPPORT: Members of East Kilbride Fundraising Group with (second from left) Scottish Parliamentary event host Linda Fabiani MSP
SOCIAL MEDIA
Thousands of Marie Curie supporters took to social media to pledge their support, tell the charity about their fundraising and share their stories. One of those was Victoria Beckham, who tweeted a daffodil picture and asked her 7.4 million Twitter followers to support the appeal.
PLANS FOR GROWTH: Head of Fundraising Campaigns Tracey Murray
A SONG OR ALBUM
Id take three songs: Firstly, Bonnie Tylers Total Eclipse Of The Heart. I read this song out as a speech at my best friends 21st birthday party. Secondly, Bon Ivers Skinny Love. I saw his band play live last year and it was pretty amazing. Finally, Id take Lordes Team. It would be pretty remiss of me if I didnt mention my home countrys (New Zealand) current favourite export.
HAMMER TIME: Kirsten Hearn, Policies and Publications Lead for Caring Services, would bring essential tools to her desert island
Sudoku solutions
Below are the answers to the Sudoku puzzles on page 19.
8 3 7 2 6 5 1 9 4 5 1 6 9 7 4 2 3 8 9 2 4 8 1 3 7 5 6 6 5 1 4 8 7 3 2 9 2 4 3 5 9 6 8 7 1 7 9 8 1 3 2 4 6 5 3 7 9 6 4 8 5 1 2 4 6 2 3 5 1 9 8 7 1 8 5 7 2 9 6 4 3
A FILM
Bright Star, a movie about the poet John Keats, with lots of beautiful clothing in it.
A USEFUL ITEM
A hammer. Having just moved house, I can attest to the importance of a good hammer.
A BOOK
Leviathan by Paul Auster. As the story is told through the eyes of the main leads best friend, it has this really interesting reective quality to it.
A LUXURY ITEM
If possible, can I take an app? If I could, I would like WhatsApp. I message my mum in New Zealand on this constantly.
ON THE RUN: Camila Fernandez is running the London Marathon in aid of Marie Curie
WRITE TO US
Do you have an idea for the Food for thought page a recipe or advice column? Perhaps you would like to feature in our Desert island essentials section? Write to us at mariecuriepeople@mariecurie.org.uk
ANNS INSIGHT
METHOD:
1 Melt the butter in a medium saucepan on the hob. Once melted, take the pan off the heat, add in the tea and leave for ve minutes. 2 Mix together the our, icing sugar and salt in a large bowl. 3 Pour the tea butter through a sieve into the our, icing sugar and salt. Press down on the tea to release as much butter as possible. Discard the tea leaves. 4 Using your hands, mix together the ingredients. Add in the milk and work together until you have dough. 5 Roll dough into a log shape, cover in cling lm and chill in the fridge for 30 minutes. 6 10 minutes before the end of chilling time, preheat the oven to 180 degrees. 7 Remove dough from the fridge. Slice into biscuits and place on a baking tray lined with baking parchment. 8 Bake on the middle shelf for 12-15 minutes, until the biscuits are light golden brown. 9 Cool on a wire rack, and serve with a good strong cup of tea.
PS Why not experiment with different teas? IT COULD BE YOU Would you like to be our chef of the month? Email your favourite recipe, a photo of yourself TAKING and a picture of the THE nished dish to BISCUIT: Niall Durdin ana.malinovic@mariecurie.org.uk
Hard Easy
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TOP TWEETS
Here is a selection of the top tweets from the past few weeks. Follow us on @mariecurieuk or tweet using #mariecurieuk
AltrinchamAirCadets @AltyAirCadets
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THANK YOU FOR MAKING A GREAT DIFFERENCE FOR US
Inbox is Marie Curie Peoples forum for your letters and emails. If youve a brilliant idea or a question about our work or if something is bugging you email mariecuriepeople@mariecurie.org.uk
Thank you to everyone that has supported us today collecting for @mariecurieuk #daffodilappeal #Hale #whatwedo
Now bedtime for me just thought Id share these pics of my mum reet and Larz @mariecurieuk heartfelt Thanks xxxx
I would like to thank all Marie Curie People readers who volunteered to make the Great Daffodil Appeal 2014 truly special. Once again, we appealed to you all to give up a couple of hours to support our services. As ever, the response was truly magnicent. Marie Curie staff and volunteers including so many people from roles outside fundraising really went the extra mile for us, supporting every aspect of the appeal. We havent got the results in yet, but the weathers been really good, and we had a formidable presence on the street and in shopping centres, right across the UK. So were expecting a good nal gure. So, whether you were out collecting or working behind the scenes, thank you so much. You really did make a difference. Tracey Murray Head of Fundraising Campaigns PS Wed love to see you all back next year.
BIRTHDAY GIFT: Chairman Ted Mutimer and the Pennines Fundraising Group present Janine Larkin with a certicate of thanks. Janine recently turned 30 and asked her party guests to donate to Marie Curie instead of giving her presents, raising 510 during the night. Janine is a Fundraising Group member and a Marie Curie Nurse
Thanks are also due to our fantastic fundraising teams, who work hard to recruit and support our groups. March is always an extremely busy time for our groups and, having already beaten last years total of 3,043,670, Im really looking forward to seeing the nal total for 2013/14. If you have any questions about the Fundraising Groups programme, please do contact me. Kerry Marland Fundraising Volunteer Programme Manager kerry.marland@mariecurie.org.uk
@mariecurieuk 20 = 1hr care! You gave my dad dignity and respect. There is no price you can put on that.
Bolton Lions Charity @BoltonLions
CARING SERVICES
Were also considering getting distinctive headgear to match that of @mariecurieuk daffodil hats.
The refurbishment of hospices to create brighter, open spaces is an exciting element of the charitys continuing development
Dawn Tame-Battell, Assistant Director of Patient Services, outlines the signicant building work underway at several Marie Curie Hospices, and why this work is critical to providing specialist care
Every year during the Great Daffodil Appeal, I hear wonderful and moving feedback about the excellence of our care, with members of the public taking the time to speak with collectors about their experiences. How frequently do we hear about the buildings in which some of our care takes place? Not often, I would guess. Yet our hospices are a vital part of the way we are able to provide invaluable specialist care to over 8,000 people and their loved ones each year. Im very pleased to say that we now work only in purpose-built hospice buildings. Last year, we opened our brand new West Midlands Hospice, but I really want to share with you some of the other exciting things we are doing. A few of our hospices are now starting to show their age, so we are working through our estate, using a combination of Department of Health grants and Marie Curie funding, to deliver improvements. In Hampstead, one of Marie Curies rst purpose-built hospices opened by the Queen Mother in 1978 some of the outpatient areas are being totally overhauled, including the lounge, activity of improvements currently underway at Bradford, which include redecoration, improved ventilation, replacing ooring in certain areas, and improvements to how we use space, such as making the family room open plan. To make sure we are able to deliver these developments, we have taken the difcult decision to close eight beds for up to six weeks. This is more than rst planned, but we felt that the discomfort the works will cause would compromise care for patients in some rooms. The teams at Bradford are going above and beyond to ensure high standards of care and a comfortable and calm environment, not just for patients but their visitors too. Refurbishments can be disruptive. Sometimes they can even mean completely moving a hospice facility to a temporary site, as we had to do when the Edinburgh team worked from the Western General Hospital. But when we get through these challenges, we can provide a very special and specialist environment where people can receive care, with their loved ones around them. Well keep you updated on progress through Marie Curie People and Pssst!
FACEBOOK FRIENDS
Followers on Facebook are speaking out about the valuable support from Marie Curie. Follow us at facebook.com/MarieCurieUK
Sandra Watson Only lost my dad last week, but had already signed up to be a collector tomorrow. Im still doing it. In fact Im gonna do more hours than I intended to. x Alison Jewitt My husband died nearly 27 years ago and because of Marie Curie he was able to get his wish of dying at home. I am still in contact with our then nurse... I believe it is the right of anyone who is terminally ill to be able to die where they want. Zamiera Karwar Marie Curie nurses are angels. My family and I will never forget the nurses who cared for my aunt (Nov 2011). They provided amazing care and support for my lovely aunt in the last few days of her short life. Sandra Watson lost my dear husband a few days ago and had several MC Nurses. They were all fantastic, but the one I had when my husband passed went that extra mile and I will never forget her.
rooms, gym and clinic. This refurbished area will provide a brighter and more spacious day therapies unit. In Newcastle, a beautiful new patient, visitor and staff cafe facility has just been opened. This is a big improvement on the previous facilities which were no longer meeting the needs of this busy hospice. And Im very excited about the array
TEA TIME: Building work on the new cafe facility at Newcastle has just completed
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Do you have a comment about the charity or one of our articles, or a suggestion for a story? Write to us at mariecuriepeople@mariecurie.org.uk. Comments and letters may be edited.
Noticeboard
Events support duo earn quarterly award
A long-term volunteer at the Marie Curie Hospice, Cardiff and the Vale has received a special royal thank you for his contribution to the hospice. Basil Priest (pictured with Gloria Hunniford) attended the Royal Voluntary Service Diamond Awards ceremony at Lancaster House, London. He was one of the 60 champions chosen from over 2,000 nominees to receive the Diamond Champion award from HRH The Duchess of Cornwall. The awards were made to celebrate the fantastic contribution older people make to the community and the difference they make to the lives of others. Basil joined the charity as a volunteer 26 years ago following the death of his wife at the hospice. He has given his time ever since, and spends four days a week helping all departments at the hospice. His duties are varied and include helping with driving, gardening, and supporting maintenance, housekeeping and kitchen staff.
60 SECONDS WITH...
Diana Hekerem
Diana Hekerem fan of sports, cheese and the countryside is Divisional Business and Service Development Manager (Scotland). Q: What did you do before you joined Marie Curie? I worked in development in Ukraine and Nigeria. I also had brief periods as a dental clinical audit assistant and quality control in a paint factory literally watching paint dry. Q: What are the three most important aspects of your job? Working with experts in and outside Marie Curie trying to innovate new ways to support people at the end of life; working with commissioners of services to maintain or develop the contracts we have with the NHS; and working with operational colleagues to support implementation and design and review of our services. Q. Describe your typical day. Analysing and mapping services, drafting a business case, reviewing current service design project status, reviewing a policy consultation with the policy team, providing info to major gifts, and reading the latest research to inform a meeting. Q. What do you do when youre not at work? I set up the Chukwu Trust for micro credit and education in Africa, and lead the 200 junior section of Falkirk Rugby club. I also run, swim, ice skate and shout at the side of rugby pitches, thanks to my kids. Q. When was the last time you laughed? This morning, playing my daughters dressing game. Q. If you were an animal, what would you be? A platypus. Q. What makes you happy? Being in the Scottish countryside or sitting under mango trees with a cold Star in an African village. Q. What makes you sad? How much ignorance can ruin peoples lives. Q. What did you want to be when you grew up? A nancial consultant and hippy. Q. Whats your favourite pudding? Cheese. Q. Which ve people, alive or dead, would you like to invite to dinner? Mohammed Yunus (founder of microcredit); my gran (she was a scientist 80 years ago and died before I could ask her interesting questions); Dr Ben Goldacre, author of Bad Science; Sandi Toksvig (The News Quiz); and Emily Pankhurst (suffragette).
Baby Elizabeth Henderson, weighed in at 9lbs 4oz on 5 March. Marie Curie Senior Project Manager Andrew Henderson is her proud dad.
WRITE TO US SUDOKU
Easy
Do you have a birth, wedding, civil partnership, retirement or long service award to celebrate? Send details and a photo to mariecuriepeople@mariecurie.org.uk
To play: Complete the grid so that every row, column and every 3x3 box contains the digits 1 to 9. There is no guessing or maths involved, just use logic to solve. Find the solutions on page 17.
Hard
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7 9 5 7 8 6 1 8 5
4 1 7 9 3 4 8
2 6 1 8 5 3
9 3 6 8 7 4 5 8 9 9 2 6 5 4 5 8 6 2 7 1
8 1 2 7
6 3 4 1
1 6 8 9 5 3 4 2
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Y T R A P D D N A
Get your friends, family and community together and celebrate the Tour de France
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