Professional Documents
Culture Documents
Global Research
Global Research
Summary
The consequences of adverse childhood experiences (ACEs) such as child maltreatment and other
traumatic stressors for health risk behaviours and long-term chronic diseases has been the focus of a
growing number of studies. These have occurred in a context of raised global awareness of ACEs
following the launch of reports such as WHO's 2002 World report on violence and health and the
2006 UN Study on Violence against Children, and increased global interest in noncommunicable and
chronic disease prevention (with the first UN summit on noncommunicable diseases scheduled for
September 2011).
ACE surveillance is spreading through the USA (with several states having integrated ACE questions
into their Behavioural Risk Factor Surveillance Systems) and internationally through country-specific
projects. However many countries have yet to appreciate the major public health implications of
ACEs and their lifelong consequences. For this recognition to spread requires that data on ACEs are
collected as part of broader health and health risk behaviour surveys, and that the findings are used to
advocate for and inform policies and programmes designed to reduce ACEs and promote safe, stable
and nurturing relationships between children and their parent or caregivers.
In May 2009, an international ACE research network was established to advance global understanding
and measurement of ACEs. Led by the WHO Departments of Violence and Injury Prevention and
Disability, and Chronic Diseases and Health Promotion, and the US Centers for Disease Control and
Prevention (CDC), network members agreed to adapt the original ACE questionnaire with the aim of
producing a standardized international questionnaire that reflects the range of adversities prevalent
across low-, middle- and high-income countries.
Field Testing
Between May 2009 and March 2011, the draft ACE-IQ was field tested in China, the Former
Yugoslav Republic of Macedonia, Philippines, Thailand, Saudi Arabia, South Africa and Vietnam.
These field tests aimed to evaluate whether the draft could be easily understood and responded to by
the interviewees, easily understood and implemented by interviewers, and whether the data generated
looked credible. In Vietnam, the draft ACE-IQ was also implemented as part of a broader mental
health survey.
In each country, the draft ACE-IQ was translated (including back translation) into one official national
language (if applicable). It was then administered (usually by interviewers but in some instances
through self-administration) to 200-300 respondents in each of the seven countries. Respondents were
all aged 18 and over, and were purposively selected to include equal proportions of men and women,
and to reflect a wide range in respect of age, socio-economic and employment status. Informed
2
consent was obtained in all cases, and where relevant, interviewees were referred to psychosocial
services.
Each country then produced a report of the findings from the field testing, identifying possible gaps in
the questionnaire, outlining practical issues around implementing the questionnaire, and suggesting
improvements. These reports included a summary of the data obtained and simple descriptive analyses
of the data.
Meeting aims and participants
The meeting aimed to review findings from the field tests; to develop ACE-IQ Version 1, and to
identify opportunities for validating ACE IQ Version 1 by implementing it as part of broader health
surveys.
Meeting participants were the lead investigators from countries where the draft ACE-IQ was field
tested, from Lithuania where the original ACE questionnaire had recently been applied, and staff from
the WHO Departments of Violence and Injury Prevention and Disability, Chronic Diseases and
Health Promotion, and Reproductive Health and Research. Apologies were received from the US
CDC. Annex 1 provides the full list of participants.
Review of findings from field tests of draft ACE-IQ
Field-tests of the draft ACE-IQ (see Annex 2) in China, the Former Yugoslav Republic of Macedonia,
Philippines, Thailand, Saudi Arabia, South Africa and Vietnam showed that most items were easily
understood by respondents and easily delivered by interviewers. However, the phrasing and/or content
of several questions was identified as problematic, and there was consensus that the draft
questionnaire was too long.
Accessibility
On the whole the questionnaire was found to be worded simply by both respondents and
interviewers;
Across the pilots around 85% of respondents said they understood all of the questions;
Improved clarity of wording was required for questions on protection and neglect;
Improved clarity of layout was required for questions relating to violence experienced in the
household.
Acceptability
Level of refusal was relatively low given the sensitive nature of many questions, ranging from
1-20% of respondents refusing to answer at least one question;
Questions on adverse experiences within the household and on sexual violence were found to
be particularly sensitive.
Duration of interview
The duration of interview varied from 5-90 minutes, but on average took around 20-30minutes
Although this was not found to be too long by respondents, it was agreed that it was too long
for a questionnaire that is intended to be included as a module in broader health surveys.
Email : g3jing_qi@bjmu.edu.cn
Email : lsramiro8888@yahoo.com
Email : phstr@mahidol.ac.th
Email : mmakoae@hsrc.ac.za
Email : mahamuneef@gmail.com
Email : marijaraleva@gmail.com
Email : m.dunne@qut.edu.au
Email : thaithanhtruc@gmail.com
Robertas Povilaitis
Childline Lithuania
Vilnius, Lithuania
Email : robertas.povilaitis@mf.vu.lt
WHO
Dr Alexander BUTCHART
Coordinator
Email : butcharta@who.int
Ms Beverly J. FERGUSON
Scientist
Email : fergusonj@who.int
Email : garciamorenoc@who.int
Email : kruge@who.int
Dr Christopher Mikton
Technical Officer
Email : miktonc@who.int
Ms Alison Gehring
Consultant
Email : gehringa@who.int
0
0.1
0.2
0.3
0.4
0.5
0.6
0.7
1
1.1
1.2
1.3
1.4
Question prelude: While you were growing up, during your first 18 years of life . . .
2
2.1
Protection
How true was each of the following statements:
Your parents or guardian communicated
openly with you.
2.2
2.3
Very often
Often
Sometimes
Rarely
Never
Refused
Very often
Often
Sometimes
Rarely
Never
Refused
Very often
Often
Sometimes
Rarely
Never
Refused
Question prelude: While you were growing up, during your first 18 years of life . . .
3
3.1
Neglect
How true was each of the following statements:
Your parents or other adults in your family did
not give you enough food.
3.2
3.3
Question Prelude: When you were growing up, during the first 18 years
4
4.1
Household Dysfunction
Did you . . .
Live with anyone who was a problem drinker
or alcoholic?
Yes
No
9
4.2
4.3
4.4
4.5
a.b.c
4.6
a.b.c
4.7
a.b.c
4.8
a.b.c
4.9
4.10
4.11
4.12
Refused
Yes
No
Refused
Live with a depressed or mentally ill person?
Yes
No
Refused
Have a household member attempt suicide?
Yes
No
Refused
When at home was your [mother (or female guardian) / father (or male guardian) / brother(s) or
sister(s) (or step brother(s) or step sister(s)) ] .
Mother
Father
Brother(s) or
(or female
(or male guardian)
sister(s)
guardian)
(or stepbrother(s)/sister(s))
Often or very often pushed,
Yes
Yes
Yes
grabbed, slapped, or had
No
No
No
something thrown at her/him?
Refused
Refused
Refused
Often or very often hit so hard
Yes
Yes
Yes
that she/he had marks or was
No
No
No
injured?
Refused
Refused
Refused
Ever threatened with or hurt
Yes
Yes
Yes
by a knife or gun?
No
No
No
Refused
Refused
Refused
Often or very often yelled,
Yes
Yes
Yes
screamed or sworn at?
No
No
No
Refused
Refused
Refused
Often or very often insulted or
Yes
Yes
Yes
humiliated?
No
No
No
Refused
Refused
Refused
Was a household member ever sent to jail or
Yes
prison?
No
Refused
Were your parents ever separated or
Yes
divorced?
No
Refused
Did your mother, father or guardian die?
Yes
No
Refused
Live with anyone who misused street or
prescription drugs?
Question prelude: When you were growing up, during the first 18 years . . .
5
5.1
5.2
Abuse
Did a parent, guardian or other adult in the household . . .
Often or very often call you bad words, insult
you, or put you down?
Often or very often threaten you with physical
harm?
Yes
No
Refused
Yes
No
Refused
5.3
5.4
5.5
5.6
5.7
5.8
Yes
No
Refused
Yes
No
Refused
Yes
No
Refused
Yes
No
Refused
Yes
No
Refused
Yes
No
Refused
Question prelude: This question is about being bullied when you were growing up. Bullying is
when a young person or group of young people say or do bad and unpleasant things to another
young person. It is also bullying when a young person is teased a lot in an unpleasant way or
when a young person is left out of things on purpose. It is not bullying when two young people of
about the same strength or power argue or fight when teasing is done in a friendly and fun way.
Before you reached the age 18 years . . .
6
6.1
Peer Violence
How often were you bullied?
Very Frequently
Frequently
Occasionally
Rarely
Very Rarely
Never
Dont know / Not sure
Refused
Question prelude: This question is about how often, when you were a child, you may have seen
or heard certain things around your home and neighbourhood (not on TV, in movies, or on the
radio).
When you were growing up, during the first 18 years
7
7.1
7.2
Many times
A few times
Once or twice
Never
Refused
Many times
11
7.3
7.4
7.5
7.6
Did . . .
A thief or burglar force their way into your
home
A few times
Once or twice
Never
Refused
Many times
A few times
Once or twice
Never
Refused
Many times
A few times
Once or twice
Never
Refused
Many times
A few times
Once or twice
Never
Refused
Many times
A few times
Once or twice
Never
Refused
Question prelude: This question is about whether you did or did not experience any of the
following events when you were a child. The events are all to do with collective violence,
including wars, terrorism and political conflicts, genocide, repression, disappearances, torture
and organized violent crime such as banditry and gang warfare.
When you were growing up, during the first 18 years,
8
8.1
8.2
8.3
8.4
12
9
9.1
9.2
9.3
9.4
Questionnaire Experience
Were there any questions that made you
Yes
too uncomfortable?
No
Were there any questions that you did
Yes
not understand?
No
Were there any questions the participant
Yes
refused to answer? (Record as observed)
No
If yes to 9.3 please note the question
[ ].[ ] [ ].[ ] [ ].[ ] [ ].[ ]
number(s) refused.
[ ].[ ] [ ].[ ] [ ].[ ] [ ].[ ]
[ ].[ ] [ ].[ ] [ ].[ ] [ ].[ ]
How long did the interview take to
complete?
[ ].[ ]
[ ].[ ]
[ ].[ ]
[ ].[ ]
[ ].[ ]
[ ].[ ]
[ ] : [ ][ ]
hrs mins
13
DEMOGRAPHIC INFORMATION
0.1
0.2
0.3
0.4
0.5
0.6
0.7
[ ][ ]
[Locally defined]
[Locally defined]
[Locally defined]
Refused
No formal schooling
Less than primary school
Primary school completed
Secondary school completed
High school completed
College/University completed
Post graduate degree
Refused
Government employee
Non-government employee
Self-employed
Non-paid
Student
Homemaker
Retired
Unemployed (able to work)
Unemployed (unable to work)
Refused
Married (Go to Q.1.2)
Living as couple
Divorced or separated
Single
Widowed (Go to Q.1.2)
Other
Refused
1.1
1.2
1.3
1.4
1.5
Male
Female
Day [ ][ ] Month [ ][ ] Year [ ][ ][ ][ ]
Yes
No
Refused
Age [ ][ ]
Refused
Yes
No
Don't know / Not sure
Refused
Yes
No
Refused
Age [ ][ ]
Not applicable
Refused
14
Question prelude: While you were growing up, during your first 18 years of life . . .
2
PROTECTION
2.1
2.2
Many times
A few times
Once or twice
Never
Refused
Many times
A few times
Once or twice
Never
Refused
Question prelude: While you were growing up, during your first 18 years of life . . .
3
NEGLECT
3.1
3.2
3.3
Many times
A few times
Once or twice
Never
Refused
Many times
A few times
Once or twice
Never
Refused
Many times
A few times
Once or twice
Never
Refused
Question Prelude: When you were growing up, during the first 18 years
4
4.1
4.2
4.3
HOUSEHOLD DYSFUNCTION
Did you live with a household member who
was a problem drinker or alcoholic, or
misused street or prescription drugs?
Did you live with a household member who
was depressed, mentally ill or suicidal?
Did you live with a household member who
was ever sent to jail or prison?
Yes
No
Refused
Yes
No
Refused
Yes
No
Refused
Sub-Question Prelude: When you were growing up, during the first 18 years . . .
4.4
4.5
Yes
No
Not applicable
Refused
Yes
No
15
Refused
Sub-Question prelude: This question is about certain things you may have heard or seen in your
home. These are things that may have been done to another household member but not
necessarily to you. When you were growing up, during the first 18 years . . .
4.6
4.7
4.8
Many times
A few times
Once or twice
Never
Refused
Many times
A few times
Once or twice
Never
Refused
Many times
A few times
Once or twice
Never
Refused
Question prelude: This question is about certain things you may have experienced.
When you were growing up, during the first 18 years . . .
5
ABUSE
5.1
5.2
5.3
5.4
5.5
5.6
Many times
A few times
Once or twice
Never
Refused
Many times
A few times
Once or twice
Never
Refused
Many times
A few times
Once or twice
Never
Refused
Many times
A few times
Once or twice
Never
Refused
Many times
A few times
Once or twice
Never
Refused
Many times
A few times
Once or twice
16
5.7
5.8
Never
Refused
Many times
A few times
Once or twice
Never
Refused
Many times
A few times
Once or twice
Never
Refused
Question prelude: This question is about being bullied when you were growing up. Bullying is
when a young person or group of young people say or do bad and unpleasant things to another
young person. It is also bullying when a young person is teased a lot in an unpleasant way or
when a young person is left out of things on purpose. It is not bullying when two young people of
about the same strength or power argue or fight when teasing is done in a friendly and fun way.
Before you reached the age 18 years . . .
6
PEER VIOLENCE
6.1
6.2
Many times
A few times
Once or twice
Never (Go to Q.6.3)
Refused
I was hit, kicked, pushed, shoved around, or
locked indoors
I was made fun of because of my race,
nationality or colour
I was made fun of because of my religion
I was made fun of with sexual jokes,
comments, or gestures
I was left out of activities on purpose or
completely ignored
I was made fun of because of how my body or
face looks
I was bullied in some other way
Refused
Sub-Question prelude: This question is about physical fights. A physical fight occurs when two
students of about the same strength or power choose to fight each other.
Before you reached the age 18 years . . .
6.3
Many times
A few times
Once or twice
Never
Refused
Question prelude: This question is about how often, when you were a child, you may have seen
or heard certain things in your neighbourhood and community for example in a public area,
park or school, but NOT in your home (NOT on TV, in movies, or on the radio).
When you were growing up, during the first 18 years . . .
17
7.1
7.2
7.3
Many times
A few times
Once or twice
Never
Refused
Many times
A few times
Once or twice
Never
Refused
Many times
A few times
Once or twice
Never
Refused
Question prelude: This question is about whether you did or did not experience any of the
following events when you were a child. The events are all to do with collective violence,
including wars, terrorism and political conflicts, genocide, repression, disappearances, torture
and organized violent crime such as banditry and gang warfare.
When you were growing up, during the first 18 years . . .
8
8.1
8.2
8.3
8.4
Many times
A few times
Once or twice
Never
Refused
Many times
A few times
Once or twice
Never
Refused
Many times
A few times
Once or twice
Never
Refused
Many times
A few times
Once or twice
Never
Refused
18