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Michigan State University Objective: This study reports early findings of a still-developing Youth Education
and Support (YES) pilot intervention of multifamily group psychoeducation for
Peg Whalen youth with a parent with a psychiatric illness. Methods: Hypotheses predicted YES
participants would increase pre-to-post: 1) Knowledge of psychiatric illness and
Alliance for Children & Families, recovery, and 2) Coping. A purposive sample of 17 youth, ages 10-16, participated
Milwaukee, WI in six lively, activity-focused, two-hour sessions within four groups facilitated by
the PI and professionals employed within two public mental health agencies. Data
revealed a significant increase in pre-to-post youth-reported knowledge (p= less
than .001) and no significant change in overall coping. At post-intervention, youth
reported significantly increased use of the coping skills of avoiding problems and
relaxing, as indicated within these coping subscales. Conclusions: Study limita-
Acknowledgements: The authors thank the tions merit interpretation caution. They are useful for future research, including
Families and Communities Together (FACT)
Coalition of Michigan State University for
development and testing of youth psychoeducation programs with longer inter-
funding this pilot study. ventions, more emphases on coping, parent-inclusion, and larger samples using
randomized, experimental designs. Suggestions for research, practice, and policy
are provided.
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P s y c h i at r i c R e h a b i l i tat i o n J o u r n a l Early Outcomes of a Pilot Psychoeducation Group Intervention for Children
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fa l l 2 0 0 9 — V ol u m e 3 3 N u m b e r 2
for children with a psychiatric illness. Meier, & Kümmel, 2008). Given issues the “word of the day” that guided the
They included: 1) increased social sup- of practicality and resources, the first content of the session. They were: 1)
port (Fristad, Goldberg-Arnold, & phase of the intervention pilot targeted learning, 2) illness (psychiatric), 3) ef-
Gavazzi, 2003), 2) increased service only youth. Family member participa- fective (rehabilitation), 4) stigma, 5)
utilization (Fristad et al., 2003; Pollio, tion was deferred to the next phase of coping, and 6) hope. Each session
McClendon, North, Reid, & Jonson- model development. ended with youth receipt of an incen-
Reid, M, 2005), 3) improved youth be- tive and a take-home handout.
The YES Psychoeducation Curriculum
haviors (Ruffolo, Kuhn, & Evans, 2005;
was developed by the primary investi- Session one focused on getting ac-
Miklowitz et al., 2000), 4) lower psychi-
gator (PI) with a lively, activity-focused quainted, group rules, and purposes of
atric rehabilitation attrition (Pollio, et
format to fit the developmental needs the group. Participants completed a
al, 2005), and 5) reduced youth depres-
of adolescents, and as per youth sug- “feelings” craft activity tied to youth
sion and mania (Miklowitz, et al.,
gestions (Lenz, 2005, Riebschleger, protective factors of identifying feel-
2000).
This article is intended solely for the personal use of the individual user and is not to be disseminated broadly.
2004). The intent was to strengthen ings. Session two was guided by the
This document is copyrighted by the American Psychological Association or one of its allied publishers.
Beardslee et al. (2007) piloted a pro- youth protective factors, including in- correct answers to the knowledge scale
gram for children whose mothers had creased access to information about questions about prevalence. Youth cus-
depression. Professionals helped pre- parental psychiatric illness and in- tomized t-shirts with a fabric paint
pare mothers and other family mem- creased coping skills. Trained public handprint to delineate “one in five.”
bers for a “family meeting” to discuss mental health professionals referred They discussed psychiatric illnesses
the maternal psychiatric illness. youth to YES after obtaining parental and famous people with psychiatric ill-
Outcomes included improved child, consent and youth assent for participa- nesses. They engaged in a physical
parent, and family functioning. Riley et tion. The professionals provided demo- tug-of-war to represent “nurture” ver-
al. (2008) developed a youth and par- graphic data; this included parents’ sus “nature” debates about causes of
ent psychoeducation program. psychiatric diagnoses, and as applica- psychiatric illnesses. The tug-of-war
Outcomes included improved youth ble, youth psychiatric diagnoses. aligned with youth protective factors of
functioning, parent mental health, fam- team “problem-solving” and to no
Two to three professionals facilitated
ily togetherness, and family involve- small extent, “regulating one’s affect.”
each group (facilitator n = 5). Four had
ment for mealtimes and chores. Session three focused on the effective-
master’s degrees and all had five-plus
Children demonstrated decreased at- ness of psychiatric rehabilitation/
years of professional experience with
risk clinical status from 62% pre-inter- recovery. The youth created a decora-
children and families. Agency facilita-
vention to 38% post-intervention. tive mobile of recovery components,
tors and the PI discussed in advance
e.g., medication, exercise, sunlight,
Youth Education and Support (YES) how to implement the psychoeducation
positive thinking, and having friends.
The still-developing YES psychoeduca- group. This led to a draft manual writ-
Session four focused on stigma. Youth
tion program appears to be one of the ten by the PI, with modifications per
generated a list of negative terms de-
first multi-family group youth psychoe- youth suggestions during the pilot. The
scribing people with psychiatric ill-
ducation programs to be developed content explicated instructions, ses-
nesses. They shared stories of how
and tested. It was formulated from sion objectives, the sequence of activi-
people with a psychiatric disability can
main constructs of adult psychoeduca- ties, and written materials to
be treated. They viewed advertise-
tion, including information and coping. implement the curriculum similarly
ments showing how people with a psy-
The YES program content also added across groups in order to promote fi-
chiatric disability are incorrectly
new youth-focused materials. Per evi- delity. Six (two-hour) group sessions
presumed to look physically strange
dence from adult psychoeducation pro- were held in a community setting; each
and/or to be more violent than people
grams, the program used a included a themed discussion, a craft
without a psychiatric illness. They
multi-family youth group approach. The activity, and a small attendance incen-
played “Simon Says” in two-person
program targeted middle school chil- tive, e.g., inexpensive toys/gadgets,
teams, advancing with correct answers
dren. Early adolescence is a time of de- school supplies, and chain restaurant
to the knowledge scale. Session five
velopmental risks for youth as they coupons. Most included a physical
addressed coping. Youth identified
negotiate increased academic expecta- group activity, e.g., a nature versus
their coping strategies by drawing a
tions and peer pressures, while under- nurture tug-of-war and “Simon Says.”
“shield” of coping. Youth were asked
going physical maturation (Hampel, Each session began with a snack and
to identify activities that they are
article
135
P s y c h i at r i c R e h a b i l i tat i o n J o u r n a l Early Outcomes of a Pilot Psychoeducation Group Intervention for Children
“good at” or that help them to feel bet- dren’s services units of two public support, investing in close friends,
ter when stressed. They prepared indi- mental health agencies, along with seeking professional support, engag-
vidual crisis plans with steps to follow child consumers’ middle school sib- ing in demanding activity, being hu-
and people to contact. They watched a lings. The referred children had a par- morous, and relaxing. Corcoran and
video about a child separated from his ent with a psychiatric illness. Fischer (2000) stated that the A-COPE
mother due to her psychiatric crisis; has fair to good internal consistency.
Data were collected at the beginning of
each child took notes and presented The reliability data from the Young
group one (pre-intervention) and at the
discussion about feelings and coping. Adult-COPE, which is only slightly mod-
end of the group six (post-intervention).
This aligned with the protective factors ified from A-COPE, showed an overall
Youth completed the Knowledge of
of identifying feelings, problem-solving, Cronbach’s alpha of .82, with good sta-
Psychiatric Illness and Recovery Test
talking with peers, and building/ bility per a test-retest correlation of
(KPIRT) (Riebschleger, 2006) to assess
developing special talents. Session six .83. They reported A-COPE has a fair
their knowledge of psychiatric illness
focused on hope for achieving youth predictive validity for youth using sub-
This article is intended solely for the personal use of the individual user and is not to be disseminated broadly.
article
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fa l l 2 0 0 9 — V ol u m e 3 3 N u m b e r 2
Wraparound, child therapy, and servic- and “psychiatric illness gets better garding psychoeducation interventions
es coordination programs. with medication and counseling.” for an underserved population, i.e.,
Items that youth answered most cor- youth with a parent with a psychiatric
The youth came from 13 families. All
rectly at pre-intervention were: “anti- illness (Beardslee et al., 2007; Riley et
but two of the youth lived in the home
stigma programs give the facts of al., 2008). Youth participating in YES
of a parent in recovery. Single parents
psychiatric illness,” “psychiatric recov- increased their knowledge of psychi-
or single grandparents headed 11 of
ery can affect sleep, appetite, and/or atric illness and recovery from pre-to-
the families. Of the 15 custodial and
relationships,” “people who talk about post intervention. While youth-reported
non-custodial parents with psychiatric
suicide should not be ignored,” and coping improved slightly, particularly
illness, nine had more than one diag-
“people with psychiatric illness are not for subscales of avoiding problems and
nosis. Most were recovering from mood
more dangerous than other people.” relaxing, overall coping did not in-
disorders, including bipolar disorder (n
Two items showed non-significant de- crease.
= 6), depressive disorder (n = 5), dys-
clines in youth pre-to-post intervention
This article is intended solely for the personal use of the individual user and is not to be disseminated broadly.
article
137
P s y c h i at r i c R e h a b i l i tat i o n J o u r n a l Early Outcomes of a Pilot Psychoeducation Group Intervention for Children
Table 1—Youth with a parent with a psychiatric illness participate in multi-family group psychoeducation:
Pre-post intervention youth-reported Knowledge of Psychiatric Illness and Recovery Test (KPIRT)
Category and Items Mean SD Mean SD Paired- Sig.
(Question Number) Percentage Percentage Sample (1-tailed)
Correct at Correct at t-scores
Pre- Post- (df =16)
Intervention Intervention
Prevalence/Incidence
Psychiatric illness (PI) is more common than 70.6 .47 88.2 .33 -1.14 .27
cancer, diabetes, or heart disease (1) a
PI is a major reason for going to the hospital (3) a 41.2 .51 82.4 .39 -2.75 .01**
This article is intended solely for the personal use of the individual user and is not to be disseminated broadly.
Most common PI is anxiety (16) 11.8 .51 41.2 .51 -1.77 .10*
This document is copyrighted by the American Psychological Association or one of its allied publishers.
PI often begins when a person is a teenager 23.5 .44 64.7 .49 -2.38 .03*
or young adult (17)
One of five people experience PI (18) 17.6 .39 88.2 .33 -4.95 .000***
Prevalence Subscale 32.9 .20 72.9 .22 -4.20 .001***
Causes of PI
Brain is not working right (2) a 76.5 .44 76.5 .39 .000 1.00
Cannot catch from someone (5) a 94.1 .24 100.0 .32 -1.00 .33
Children do not cause parent’s illness (6) b 76.5 .44 94.1 .24 -1.8 .08*
Sometimes causes of PI are not known (7) b 94.1 .24 82.4 .42 1.00 .33
Risks of getting PI are genetically higher for 29.4 .47 47.1 .51 -1.4 .19
offspring (8) b
PI is not caused by being a weak person (9) b 58.8 .51 82.4 .39 -1.72 .10*
PI is not caused by having mean parents (14) 76.5 .44 88.2 .33 -1.00 .33
Cause Subscale 72.3 .18 81.5 .14 -2.02 .06*
Functioning
People with PI usually can function well (4) a 35.3 .49 64.7 .49 -2.1 .056*
Stress can make PI symptoms worse (10) 82.4 .93 94.1 .24 -1.5 .16
People with PI can usually think well enough 41.2 .51 58.8 .51 -1.4 .19
to make good decisions (13) a
PI can affect sleep, appetite, and/or 52.9 .51 52.9 .51 .00 1.00
relationships (26)
Functioning Subscale 52.9 .26 67.6 .32 -2.06 .06*
Stigma
People with PI are not more dangerous than 76.5 .44 82.4 .39 -.44 .67
others (11) c
It’s not easy to tell if someone has PI by look- 52.9 .51 94.1 .24 -3.35 .004**
ing at them (12) c
Stigma is thinking people with PI are lazy or 52.9 .51 82.4 .39 -2.1 .06*
stupid (15)
Most homeless people do not have PI (27) 64.7 .49 76.5 .44 -.81 .43
Stigma Subscale 61.8 .29 83.8 .25 -2.50 .02**
Continued on next page
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fa l l 2 0 0 9 — V ol u m e 3 3 N u m b e r 2
Table 1—Youth with a parent with a psychiatric illness participate in multi-family group psychoeducation:
Pre-post intervention youth-reported Knowledge of Psychiatric Illness and Recovery Test (KPIRT)
Category and Items Mean SD Mean SD Paired- Sig.
(Question Number) Percentage Percentage Sample (1-tailed)
Correct at Correct at t-scores
Pre- Post- (df =16)
Intervention Intervention
Psychiatric Rehabilitation
Most people with PI do not get help for their 29.4 .47 76.5 .44 -3.77 .002***
illness (19) a
Mental health treatment usually works as well 58.8 .51 52.9 .51 .32 .75
This article is intended solely for the personal use of the individual user and is not to be disseminated broadly.
A major reason people with PI do not get help 47.1 .51 76.5 .44 -2.58 .02**
is feeling ashamed of the illness (21) a
Severe PI often gets better with medication 35.3 .49 70.6 .47 -2.95 .009**
and counseling (22)
People with depression often feel better with 41.2 .51 58.8 .51 -1.00 .33
sunlight, exercise, eating healthy foods, and
talking to friends (23)
People who talk about suicide should not be 76.5 .44 82.4 .39 -.44 .67
ignored (24)
Anti-stigma programs help people learn 76.5 .44 76.5 .44 .000 1.00
about the facts of PI (25)
Rehabilitation Subscale 52.1 .22 70.6 .22 -2.72 .02**
velopment and testing. These findings comes improve with model tweaking, Implications for Practice and Policy
are not surprising or discouraging. In e.g., more sessions, parent sup- The data support the need for profes-
light of the significant improvement in port/inclusion, and simultaneous addi- sionals to provide more information for
youth knowledge of psychiatric illness tional services to the youth, parent, consumers of all ages and their family
in only six sessions, as well as the po- and/or family? Does family psychoedu- members about psychiatric illness and
tential to increase program sessions cation for youth help parents in recov- recovery. It is important that adult pro-
devoted to coping skills, there is limit- ery from a psychiatric illness? Should grams address parenting as a key life
ed, but suggestive, evidence to warrant other interventions and/or “packages” role within psychiatric rehabilitation
pursuing additional groups and contin- of interventions be developed and test- and recovery. At the very least, adults
ued data collection. ed (Place, Reynolds, Cousins, & O’Neill, in recovery should be asked if they
2002)? Finally, there is a need for lon- have children and whether they would
This study raises many future research
gitudinal research to learn more about like to include this life role within their
questions. What are the barriers to,
youth knowledge, coping, and func- recovery plans. This data should rou-
and facilitators of, recruitment of youth
tioning over time, e.g., what are the tinely be included within intake and
for psychoeducation groups? How can
long-term outcomes of youth psycho- services planning. Both adult and child
youth and parents be identified within
education? services professionals should consider
mental health services? Do youth out-
article
139
P s y c h i at r i c R e h a b i l i tat i o n J o u r n a l Early Outcomes of a Pilot Psychoeducation Group Intervention for Children
ways to increase youth access to pre- Dixon, L., McFarlane, W. R., Lefley, H.,
vention programs. Some of the stigma-
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