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Breast Cancer Welfare Association Malaysia

Activity Report
2017
BCWA Activity Report 2017

ABOUT BCWA
Breast Cancer Welfare Association Malaysia (BCWA)
was founded in 1986 by medical specialists, who
CONTENTS realised the need for peer support for women with
breast cancer. It is a tax-exempt organisation registered
ABOUT BCWA 1 with the Registrar of Societies Malaysia in 1988, and a
member of the Union for International Cancer Control
MESSAGE FROM THE PATRON 2
(UICC) and Reach to Recovery International (RRI).
MESSAGE FROM THE PRESIDENT 3
BCWA has a two-pronged approach in its services:
MANAGEMENT AND STAFF 4
i) Improving the quality of life for women with
ACKNOWLEDGEMENT 5 breast cancer using the Reach to Recovery concept of
psychosocial and material support
SUPPORTIVE CARE PROGRAMMES 6
SURVIVORSHIP ACTIVITIES 9 ii) Reducing the risk of premature mortality by providing
public education, early detection of breast cancer and
THERAPEUTIC AND EDUCATIONAL SESSIONS 12
navigation of women for further investigations and
PUBLIC EDUCATION: BEING BREAST AWARE 20 timely medical treatment
COLLABORATION, NETWORKING & ADVOCACY 22
Breast Cancer Welfare Association Malaysia (BCWA)
TRAINING, RESEARCH & DEVELOPMENT 24 5th Floor, Bangunan Sultan Salahuddin Abdul Aziz Shah,
16 Jalan Utara, 46200 Petaling Jaya, Selangor.
COMMUNITY SUPPORT 27 Tel: +603 7954 0133 Fax: +603 7954 0122
BCWA IN THE NEWS 35 Website: www.breastcancer.org.my
Facebook:
OUR SERVICES 36 Breast Cancer Welfare Association Malaysia
BREAST CANCER SUPPORT GROUPS IN MALAYSIA 42
Opening hours
Mon-Fri: 8.00 am - 6.00 pm

3rd Saturdays:
New Patient Education: 1.00 pm - 2.30 pm
Group Sharing Session: 2.30 pm - 4.30 pm

Services available
◦ Peer Counselling
◦ Information
◦ Temporary Prosthesis
◦ Mastectomy Bra
◦ Wigs

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BCWA Activity Report 2017 BCWA Activity Report 2017

MESSAGE FROM THE PATRON MESSAGE FROM THE PRESIDENT

“Surround yourself with only “When it rains look for


people who are going to lift rainbows, when it’s dark,
you higher.” look for stars.”
– Oprah Winfrey – Oscar Wilde

Yang Berbahagia Ranjit Kaur


Puan Sri Datin Seri AMP
Dato’ Akmal Abdul Salam
D.I.M.P

It is heartwarming to witness BCWA’s evolvement in terms of planning and execution of activities in the community. Our staff and volunteers showed their commitment to the development of the Association’s activities. BCWA benefits
BCWA’s reach has touched the lives of people of diverse background, uniquely placing the Being Breast Aware from not only its longstanding, inextricable connection to other breast cancer support groups, but also through
programme and Patient Support Programme as pillars of people engagement in our local communities. This cannot collaboration with hospitals, corporate companies and government departments in the country. BCWA aspires to
happen without the dedication of the President, Executive Committee Members, staff and volunteers. Keep up the excel and set a standard for excellence in offering psychosocial and material support to individuals diagnosed with
good work. breast cancer and to enable the population to be vigilant about Being Breast Aware.

I take delight in expressing my sentiments of love and appreciation for all those who contributed to BCWA whether In 2017, our Community Outreach Services reached out to a total of 17,216 individuals while our Psychosocial
it is in cash or kind. A big thank you to corporate companies, associations, clubs, schools, universities and individual Support Programme for newly diagnosed breast cancer survivors touched the lives of 1,007 individuals. With the
well-wishers for their helping hand extended to BCWA. employment of more staff and recruitment of additional volunteers, BCWA is reaching new heights in supportive
care and community outreach services.
I wish BCWA all the best and I hope the organisation excels further under the able leadership of the President and
the Executive Committee. I wish to take this opportunity to thank our Executive Committee members, staff and volunteers for their dedication,
expertise and effort in the growth of the Association. We thank the Patron and the Technical Advisors for their
expertise and guidance. We welcome more volunteers to contribute to the development of our objectives and to
further extend our reach to the Malaysian population.

We are extremely grateful to all donors for their ongoing contribution in cash and kind during the past year.

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BCWA Activity Report 2017

MANAGEMENT AND STAFF Acknowledgement


Executive Committee
We would like to extend our heartfelt appreciation to donors
President Ranjit Kaur
Vice President Connie Yee and supporters for their contributions to BCWA in 2017. The
Treasurer Siew Mei Quin contributions were made in cash and kind. Every contribution,
Secretary Margaret Gabriel whether big or small, is appreciated for it facilitates BCWA to
Committee Members Molly Yap
Lillian Phua
make a significant difference in the lives of women including
Silvia Lee women diagnosed with breast cancer. This form of support
Janet Khor enables BCWA to continue to improve and extend its supportive
Sitting from left: Mei Quin, Ranjit, Connie, Margaret care services, survivorship activities, community outreach
Standing from left: Janet, Lillian, Silvia, Molly
services and training to a larger population in Malaysia.

We look forward to your continuous support to walk this


journey together in fighting breast cancer.

Front row from left: Matron Chew, Jean, Matron Salimah, Marion, Matron Zainab
Back row from left: Matron Nazirah, Navedthra, Alicia, Nazri, Sister Mariyana, Kar Foon, Mei Chien

Staff
General Manager Samantha Lim (January – June 2017)
Community Outreach Services Manager Matron Datin Zainab Bt Abdullah
Community Outreach Services Manager Matron Salimah Bt Salleh
Community Outreach Services Senior Nurse Matron Hjh Nazirah Mohd Zahri
Community Outreach Services Senior Nurse Matron Chew Bok Yu
Community Outreach Services Senior Nurse Sister Hjh Mariyana Bt Hj Abu Bakar
Community Outreach Services Assistant Nurse Wong Kar Foon
Senior Administrative Executive & Clinical Psychologist Loo Mei Chien
Administrative Coordinator Marion Khor
Survivorship Activities Coordinator Navedthra A/P Pragas Rao
Survivorship Activities Coordinator Alicia Samantha De Costa
Administrative and Finance Assistant Jean Lim
Driver & General Worker Mohd Nazri Bin Shamsuddin

Technical Advisors
Consultant Clinical Radiologist Dr. Evelyn Ho Lai-Meng
Consultant Breast Surgeon Dr. Patricia Alison Gomez
Consultant Clinical Psychologist Mr. Paul K. Jambunathan
Consultant Breast Surgeon Prof. Dato’ Dr Yip Cheng Har

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SUPPORTIVE CARE PROGRAMMES Individual and Group Psychosocial Support Sessions


Pink InspirerS
BCWA offers a range of supportive care activities to improve the quality of life of women affected by breast cancer.
The activities cover the provision of psychosocial and material support to individuals in hospitals, over the phone or
This group of women living with advanced breast cancer cope with daily challenges, support each other and inspire at BCWA’s premises. Throughout 2017, BCWA’s programmes touched a total of 1,007 individuals.
others with stories of their battle with the disease. They stay in touch with each other electronically to share
experiences, expectations, hopes and aspirations. Pink InspirerS also participate in advocacy activities to improve Psychosocial and material support is provided by BCWA’s Patient Support Team comprising a group of trained
access to healthcare for individuals with advanced breast cancer. breast cancer survivors. They support patients facing fear and uncertainty; they offer information on diet and self-
management during treatment and beyond. They also guide patients regarding disclosure, financial constraints,
“Like a tree well rooted that can withstand the storm employment concerns and social stigma. The Patient Support Volunteers strive to motivate patients through their
so can I. With high spirit and strong will journey of battling breast cancer.
we can weather through the storm.”
In 2017, BCWA’s support services expanded to nine government
and private hospitals in Kuala Lumpur and Selangor. The Patient
Pink InspirerS participated and gave invaluable feedback in a discussion regarding access to treatment for cancers Support Team members visit patients upon referral by the
which was initiated by Together Against Cancer Association Malaysia on 6 July 2017 in Kuala Lumpur. respective healthcare professionals. A Comfy Kit is given to the
newly diagnosed patient. It consists of a temporary prosthesis
While participating actively in BCWA’s activities, they also attended events to enhance their knowledge of (for those who undergo a mastectomy or removal of the breast),
development in treatment and care for individuals with advanced breast cancer. Among the events attended was a stress ball for physical and psychosocial exercises, publications
a dinner talk on 28 July 2017 in Kuala Lumpur entitled “A New Approach in Diagnosing and Monitoring Metastatic on coping with breast cancer and its impact, and, a bag to carry
Breast Cancer” by Dr Rafael Molina Porto, Director of Biomedical Diagnostic Center, Hospital Clinic de Barcelona. the post-surgical drainage bottle.
The talk was organised by Siemens Healthineers.
On the third Saturday of every month, newly diagnosed women
and their carers are encouraged to attend the New Patient
Education session at BCWA’s premises. She can ask questions, Comfy kit for the newly diagnosed patient
share her fears and concerns, and get support from the
volunteer. This is followed by a group sharing session for newly diagnosed women and their carers to discuss issues
affecting them with other breast cancer survivors. At the beginning of the session, the coordinator of the group
sharing session, namely a Patient Support Volunteer, will list down the ground rules of the session. On weekdays, a
Patient Support Team member and BCWA staff are on standby at the BCWA premises to attend to phone calls and
walk-in patients.

A group photo with Dr Rafael Molina Porto (centre) A small group discussion between Pink InspirerS and
Dr Rafael Molina Porto after the event

On 24 October 2017, the Pink InspirerS also attended the launch of Pfizer’s guidebook entitled “Your Journey Starts
Here” to help individuals living with metastatic breast cancer. Pink Inspirer Chang Chu San was one of the panellists
who shared her journey of advanced breast cancer with the audience.

Seated from left: Ms Noor Yang Azwar


Kamarudin, Director, Corporate Affairs, Health
& Value, Pfizer Malaysia; Assoc. Prof. Dr Ho
Gwo Fuang, Clinical Oncologist; Chang Chu San, Sharing of experiences and concerns in a group session Pearly Ang, Patient Support Volunteer attending
founder member of Pink InspirerS; Dr Mastura to a patient over the phone
Md Yusof, Clinical Oncologist

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Non-Medical Aid
SURVIVORSHIP ACTIVITIES
Women affected by breast cancer are given the opportunity to engage in bonding among themselves through social,
BCWA provides non-medical aid in the form of wigs, temporary breast prostheses and affordable mastectomy bras sports, art and team-building activities. These activities not only enable the women to have a smooth recovery but
to assist affected women to manage their condition and to help lessen their financial burden. Wigs are loaned out they also promote the practice of a healthy and active lifestyle.
at no cost to women who experience temporary hair loss due to chemotherapy. They are guided by a staff on the
selection of an appropriate wig as well as given advice on the care of the hair piece. The woman is then referred to Over the years, BCWA has been facilitating breast cancer survivors to pursue common interest activities which
a volunteer hairstylist for shaving of the hair and styling of the wig so that it looks natural and suits her face, thus offer emotional, physical and social benefit. Through these survivorship activities, BCWA endeavours to inspire
giving a feel-good factor and a sense of self confidence to the woman. individuals about living a fulfilling life after breast cancer. These activities also provide a platform for mutual support
and bonding .

Pink Challengers
BCWA’s Pink Challengers took part in the CCB (Asia) Hong Kong International Dragon Boat Race in June 2017 at
Victoria Harbour. The team participated in the International Women’s Championship and International Cancer
Survivors’ Championship categories. The Pink Challengers achieved seventh placing in the International Women’s
Championship and eighth placing in the International Cancer Survivors’ Championship. A total of nine teams
competed in both categories. It was an unforgettable experience to compete among thousands of athletes from
around the world and to build kinship with cancer survivors from other countries.
Shaving services and wig styling by BCWA’s volunteer hairstylist A selection of wigs for patients
BCWA’s Pink Challengers practiced their paddling skills every Sunday at the Putrajaya Lake. A Canadian study in
The picture on the right shows the survivor wearing the
newly styled wig 1996, showed that dragon boat paddling could help reduce the risk of lymphoedema (swelling of the arm that may
develop after lymph node surgery and radiation therapy). Aptly, the team’s slogan is “Paddle for Courage, Strength
and Change”.
For women who have lost their breast as a result of mastectomy, BCWA offers temporary prostheses (external
breast form) and sells mastectomy bras at affordable prices.

The temporary prostheses are stitched by BCWA’s Thimble Thumb Team of volunteers every Tuesday at the BCWA
premises. The prostheses are feather-light weight and soft to facilitate comfort during healing of the surgical
wound and during or after radiotherapy. A total of 521 temporary prostheses were given away in 2017.

BCWA also offers information on suppliers of wigs, silicone prostheses, mastectomy bras, lymphoedema sleeves
and other attire, including swimwear for women with breast cancer.

Posing at the race site in Hong Kong

Thimble Thumb Team members sewing temporary prostheses Sister Mariyana giving a patient a Comfy Kit

The competitors in action Gearing up for the race to start

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Pink Power Pink Melody

This bowling team was formed in May 2010 with 14 breast cancer survivors. Inspired by BCWA’s Patron, Puan Sri Pink Melody is a choir group comprising breast cancer survivors and friends of survivors. It was set up by BCWA
Dato’ Akmal Abdul Salam, bowling as a sport has many advantages, namely, maintaining a physically active lifestyle, to provide another form of psychosocial activity through music therapy for individuals, promote peer support and
improving mental alertness, correcting body posture, maintaining coordination and balance, and strengthening create breast cancer awareness through public engagements.
muscles. Pink Power members practise on the 2nd and 4th Sunday of every month at the bowling alleys at Tropicana
Golf & Country Resort and at Sunway Pyramid. In 2017, Pink Melody performed at two public events. On 4 May, they performed at a Charity Hi-Tea carrying the
theme Girls Wanna Have Fun which was organised by BCWA’s Patron, Puan Sri Dato’ Akmal Abdul Salam, at the
The fortnightly bowling meet was also a platform for Pink Power members to catch up with each other’s treatment Shangri-La Hotel Kuala Lumpur. The other event was the Hand in Hand concert held at the Damansara Performing
progress. On 14 May 2017, a coaching clinic in bowling was conducted as a refresher course for the experienced Arts Centre, on 1 August.
bowlers and an introduction on basic bowling skills for new bowlers. In 2017, the Pink Power team actively
participated in tournaments and leagues organised by various organisations. Pink Power members also practised in
the fortnightly bowling meet, totalling up to 23 times throughout the year.

Sunway Megalanes organised the 24-week Sunway Doubles League in March-October 2017 which gave Pink Power
members the opportunity to challenge their bowling skills with other skilful bowlers. In April 2017, Pink Power Team
secured third place among 32 teams at the Inter-firm Single-Elimination League organised by the Royal Institution
of Surveyors Malaysia. Mr. Eric Khoo from CK Century Construction Sdn. Bhd. sponsored the Pink Power’s fee for the
event. The highlight of the year was the Inter Team Unity Bowling Carnival 2017 held on 30 April 2017 at Sunway
Megalanes, a joint project with Sports Unite Sports Club for the fifth time in a row. A total of 129 bowlers including
cancer survivors, family members and friends competed in this event with each team of three bowlers captained
by a cancer survivor. The Pink Power Team participated in WBC Bowling at Ampang Superbowl, eCurve, Petaling
Jaya on 16 September 2017. The event was organised by Women Bowlers Club Federal Territory & Selangor. On 8
October 2017 Pink Power Team won third place at a bowling event which was one of the social programmes for QS
International Convention 2017. Entertaining the audience at the Hand in Hand Concert Instructor Darlyn Goh conducting Pink Melody’s performance at
Girls Wanna Have Fun Charity Hi-Tea

The MSU Strixe Bowling gave an opportunity to the Pink Power team to participate in a bowling championship
organised by Management & Science University on 19 November 2017.

Pink Melody members singing their blues away


Learning bowling skills

The teams posing at the Inter Team Unity Bowling Carnival Coaching clinic in progress Practice sessions every Monday at BCWA at 7.00pm Practice makes perfect

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THERAPEUTIC AND EDUCATIONAL SESSIONS Day trip to Bentong, to discover the life in a small town and savour food
22 April 2017
Talks, hands on activities and field trips were organised for breast cancer survivors and their supporters in 2017. The
aim of these activities is to enable women with breast cancer to acquire knowledge and skills, as well as to engage
in relaxation therapy, achieve healing, and gain fellowship among themselves.

Power of Gemstones
18 February 2017

The participants posing with their chosen gems. Mr. K.N. Moorthy, the first Gemmologist in Malaysia who is also
a geologist, explains the difference between precious and semi- Posing at the scenic Chamang waterfall in Bentong
Awesome Blossom Flower Arrangement precious gems.
18 March 2017
Line Dance
18 March 2017

Participants discover how flower therapy has a unique influence on


emotions. The session was facilitated by Bloomthis.
Participants guided by Zumba instructor, Ivy Low, learn to improve
“Look Well, Feel Well, Be Well” balance, footwork and enjoy dancing. Selecting local produce at the market Savouring ice cream at Kow Po coffee shop
Makeup Workshop
15 April 2017
Truth & Myths in Skin Care Products
20 May 2017

Kenny Yee from the Makeup Miracle Academy shares makeup


techniques with products sponsored by CS12 and Ronasutra. Participants get more insight after the talk by Professor Ong Kok Hai, A post-lunch satisfied lot Lemang galore
Professor of Microbiology from the International Medical University.

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Pulau Tioman Retreat


23 - 27 July 2017

A retreat was held at Pulau Tioman with Clinical Psychologist and BCWA’s Technical Advisor, Paul Jambunathan,
in July 2017. This trip brought survivors closer together and enabled them to relax and explore more about what
life can offer. Together with BCWA’s Outreach Team of Nurses, some attendees also participated in community
education activities and obtained a better understanding of the community’s issues relating to breast cancer.

Satisfaction after the beach clean-up

Tioman, here we come!

Students of SMK Tekek, Pulau Tioman learning the art of Interaction with women regarding Being Breast Aware at
Being Breast Aware Klinik Desa Kampung Juara, Pulau Tioman

Scuba diving: good for the body, mind and soul We did it! The jubilant scuba-diving participants!

At a talk: “We had timely medical treatment” A fun ride around the village

Participants washing up after lunch A self-development session with Paul Jambunathan No need cars! Let’s cycle! Watching the sunset!

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Exploring herbs and Ipoh’s Heritage XIXILI-Saito College-BCWA “Pink Art Project”
12 August 2017 9 - 10 September 2017

Collaboration between XIXILI, Saito College and BCWA produced artworks depicting life after breast cancer.
Participants explored different themes including Love, Joy and Faith through teamwork. Each team consisted of
breast cancer survivors, BCWA staff, representatives of XIXILI and students of Saito College. A total of seven artworks
were then displayed at XIXILI boutiques in the Klang valley throughout the month of October.

Group photo with members of Persatuan Pink Champion Perak Learning the benefit of herbs at Taman Herba Perak

Excited participants eagerly looking forward to try their hand at Saito College lecturer, Puan Sharifah Mazwani,
painting briefing on the finer points of artwork and teamwork
Savouring “tau foo fah” (soya bean pudding) at Concubine Street Pomelos, a must-buy when in Ipoh

Managing Bone Health Group Mandala Session


19 August 2017 17 June 2017

Doctor of Chiropractic, Dr Jim Osterwise shares knowledge A group photo with BCWA’s Clinical Psychologist,
on ageing and maintaining healthy bones Loo Mei Chien (right) at the end of the session BCWA Patron, Puan Sri Dato’ Akmal, and One of the teams working together
President Ranjit Kaur putting on the final touches.
Social Media Usage, Awareness & Cyber Security
15 July 2017

BCWA’s Executive Committee Member, Lillian Phua guiding BCWA’s Vice-President, Connie Yee briefing participants
participants on social media applications on cyber security Participants showing off their masterpiece Paintings being displayed at a XIXILI boutique

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Pandora’s Health Box, a public forum organised by ParkCity Medical Centre Different Colours of Breast Cancer
16 September 2017 18 November 2017

Breast cancer survivors, family members and carers attended a half-day event held in conjunction with Malaysia
Day which was spearheaded by BCWA’s Technical Advisor, Dr. Evelyn Ho, a Consultant Clinical Radiologist at ParkCity
Medical Centre, Kuala Lumpur. Aimed at providing an update on cancer treatment, the proceedings of the event
educated the attendees on Treatment for Uterine Fibroids, The Weak Bladder, Myths about Breast Cancer and
Breast Imaging. This was followed by a panel session on Living with Cancer – Is that possible?

Participants engrossed in creating their masterpiece Final product of creativity and innovation
t-shirt with coloured beads, sequins and buttons

Cafe @ BCWA
16 December 2017
Chang Chu San sharing her experience on living with advanced BCWA President Ranjit Kaur (left) was one of the speakers at the
breast cancer panel session Cafe @ BCWA created an environment of laughter
and chatter among participants who got together to
socialise and catch up with each other. BCWA staff had
decorated the premises with balloons and light music
was played to create a cosy atmosphere.

A participant seeking clarification from the panellists Lily Lee (left) and Annie Tang feeling the spirit of Malaysia Day

A visitor signing up for a clinical breast examination Cheque presentation from ParkCity Medical Centre

Yoga session in the morning with BCWA’s MURNI Mobile Clinic in the background

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PUBLIC EDUCATION: BEING BREAST AWARE


BCWA’s Community Outreach Team of nurses and volunteers participate in outreach activities throughout the
nation with the purpose of enabling the public to be breast aware and to practise early detection and timely
medical treatment of breast cancer.

Talks and demonstrations are conducted for members of the public on Being Breast Aware to instil the practice
of being aware of normal changes in the breast and to go for regular breast screening such as clinical breast
examination and mammogram. BCWA’s team of nurses conduct clinical breast examinations in the MURNI Mobile
Clinic (MURNI: Mobile Unit Reaching Nationwide with Information), BCWA’s inflatable clinic or in the privacy of a
Women learning about being breast aware at an event by Women waiting their turn inside BCWA’s MURNI Mobile Clinic
room available in the host organisation’s premises.
Berita Harian held on 2-4 June 2017

In 2017, BCWA’s Community Outreach Team of nurses and volunteers were involved in 209 events and reached
out to 17,216 individuals, compared to 9,726 in 2016. It was encouraging to see an increase in the number of
corporations, associations, academic institutions and even healthcare organizations requesting for BCWA’s services
as this is a positive indication of the increasing awareness regarding breast cancer.

BCWA volunteer and survivor, Amnah Salleh giving a talk for the A session on Being Breast Aware organised by Women’s Institute
staff of Paypal Malaysia on 8 March 2017 and Puspanita in Kuala Lipis, Pahang on 23 April 2017

BCWA’s Matron Datin Zainab Abdullah briefing the women before Visitors queuing up for Clinical Breast Examination in BCWA’s
the Clinical Breast Examination at Masjid Ashabus Solihin in Kajang MURNI Mobile Clinic at an event organised by Ibu Pejabat Polis
The staff of Sensata Technologies learning the art of Matron Chew having a chat session with the women of Kg. Orang
on 23 September 2017 Kontingen & Persatuan Penduduk Perumahan Awam Sri Johor,
Being Breast Aware on 9 May 2017 Asli SAT, Sungkai, Perak. The event was organised with
Cheras on 25 August 2017
PeopleGiving Association on 20 May 2017

Women waiting in queue for a Clinical Breast Examination in Group photo of staff and volunteers from BCWA and PeopleGiving The staff of Daikin Malaysia learning the art of Clinical Breast Exam at an outreach event organised with
BCWA’s inflatable clinic at Sunway Geo Tower on 21 May 2017. Association at Kg. Orang Asli SAT, Sungkai, Perak Being Breast Aware on 21 September 2017 Estee Lauder Companies at The Gardens, Kuala Lumpur
The event was organised with Shaklee Products Sdn. Bhd. on 9-15 October 2017

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COLLABORATION, NETWORKING & ADVOCACY


Besides community outreach events BCWA has also participated in advocacy and networking events.

Book Launch Malaysian Cancer Care Initiative ABC4


BCWA’s Community Outreach nurses attended BCWA President, volunteers and staff attended Advanced Breast Cancer Fourth International Consensus Conference (ABC4) was held on 2-4 November
the launch of a book entitled Mental Health in the Inaugural Malaysian Cancer Care Initiative in Lisbon, Portugal, and, subsequently, the First Meeting of the ABC Global Alliance was convened on 4-5
the Community-Malaysia authored by Prof. Dr. 2017, a one-day Summit entitled Cancer Care As November 2017. BCWA President, Ranjit Kaur participated in the entire event where topics of importance
Sherina Mohd Sidik, Deputy Director of Cancer It Should Be organised by Subang Jaya Medical regarding Advanced Breast Cancer were introduced, deliberated upon and concluded with a consensus.
Resource and Education Centre (CaRE), Universiti Centre at Pullman Hotel Kuala Lumpur on 9 March Clinicians, researchers, advanced breast cancer patients and patient advocates attended the event.
Putra Malaysia on 27 January 2017. 2017. The aim of the Summit was to educate and
empower the public towards greater health and
wellbeing of the nation.
4th National Colorectal Symposium 4th UMMC Breast Cancer The International Conference 2017
BCWA President, Ranjit Kaur was invited to speak Public Forum The International Conference 2017 entitled
University Malaya Medical Centre organised Cancer Today: Road Map for Tomorrow held in
on Creating Awareness among the Public at the
4th National Colorectal Symposium at Hospital
Cancer Awareness Raising Programme the 4th UMMC Breast Cancer Public Forum in New Delhi, India on 18 November 2017 covered
BCWA President, Ranjit Kaur was invited to conjunction with Pink October on 8 October 2017. various topics including the status of cancer, yoga
Ampang, Kuala Lumpur on 4 May 2017. It was
participate in an expert panel discussion for Besides talks, the forum also included exhibition and diet, personal stories of the cancer experience
organised in conjunction with World Digestive Day
the content of the Cancer Awareness Raising and charity sale of artworks. BCWA President, and a panel discussion on case studies. BCWA
and attended by surgeons, gastroenterologists,
Programme (CARP) at the Department of Social Ranjit Kaur gave a presentation on MURNI: A President, Ranjit Kaur was invited to speak on The
public health specialists, general practitioners,
& Preventive Medicine, University Malaya on Community Based Programme. Value of Life in Advanced Breast Cancer.
nurses and staff of the Ministry of Health Malaysia.
5 May 2017. The invitation was from PACED
Initiative (Promoting Awareness of Cancer and
Early Detection Initiative) project. The discussion
Seminar Kesedaran Kanser was about a public education project through
Government staff participated at Seminar different media to be adapted locally by University
Kesedaran Kanser organised by Ministry of of Malaya from University of Ireland.
Health Malaysia at their premises in Putrajaya
on 23 May 2017. BCWA’s Community Outreach
Team conducted Clinical Breast Examinations on
129 women in BCWA’s inflatable clinic. BCWA
International Fundraising Congress
BCWA President, Ranjit Kaur was invited to
President, Ranjit Kaur was invited to speak on the
participate in the International Fundraising
panel at the Seminar.
Congress in Bangkok on 26-28 June 2017. It was
organised by Resource Alliance International.
Patient Support Volunteer, Wan Hanisah bt Omar receiving BCWA President, Ranjit Kaur receiving a token of
Consumer Advocacy in the appreciation certificate on behalf of BCWA at the 4th appreciation from the organisers of The International
Conference 2017 in New Delhi
UMMC Breast Cancer Public Forum
Women’s Health 2nd Annual South East Asia
BCWA President, Ranjit Kaur was invited by Breast Cancer Symposium
University of Malaya to give a lecture on Consumer Organised by the Ministry of Health and Sports, 4th Asia-Pacific Oncology Mesyuarat Jawatankuasa Teknikal
Advocacy in Women’s Health to medical students Myanmar, Shwe Yaung Hnin Si Cancer Foundation Program Pencegahan dan Saringan
of the university on 11 July 2017. This lecture Stakeholder Forum
Myanmar, Myanmar Oncology Society, Global The 4th Asia-Pacific Oncology Stakeholder Kanser Kebangsaan
is part of the Oncology-Palliative Care topic of Focus on Cancer and Breast Surgery International,
Cancer. Forum organised by Asia-Pacific Pfizer was BCWA’s Community Outreach Manager, Matron
the 2nd Annual South East Asia Breast Cancer held in Singapore on 14 -16 November 2017. Salimah Salleh and member Chin Keat Yue
Symposium was held for clinicians, breast cancer Participatory workshops at the Forum included attended a Technical Committee meeting on
survivors and researchers in Yangon on 14-17 July Enhancing Patient Centricity across Asia Pacific National Prevention and Screening of Cancer
2017. BCWA President, Ranjit Kaur was invited to and Patient Communication/Navigation. BCWA (Mesyuarat Jawatankuasa Teknikal Program
speak and chair sessions at the Symposium. President Ranjit Kaur participated in the Forum Pencegahan dan Saringan Kanser Kebangsaan)
with representatives from across the region and organised by the Ministry of Health Malaysia on
also co-led the workshop on Enhancing Patient 25 November 2017. This was the first meeting to
Centricity across Asia Pacific. provide NGOs with an update on the initiatives by
the government.

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TRAINING, RESEARCH & DEVELOPMENT Volunteers learning the technique of Being Breast Aware
A training session for volunteers on teaching the public regarding Being Breast Aware was conducted on 5
BCWA offers training for volunteers, members of the public, university students and healthcare professionals. September 2017 by BCWA’s Community Outreach Team of nurses. Matron Datin Zainab Abdullah, Manager of
BCWA’s Community Outreach Team stressed the importance and method of breast self-examination to familiarise
with normal breast changes and to recognise any unusual changes in the breast.
Reach to Recovery Recertification Session
A Reach to Recovery Recertification session was conducted on 15 April 2017 for 15 patient support volunteers, who
currently visit patients at hospitals. The session included a combination of knowledge and skills enhancement as
well as interactive practice segments to capture issues and share experiences among the attendees. Feedback was
also given on enhancing the interaction with clinicians and staff at the various hospitals.

The Reach to Recovery International (RRI) Breast Cancer Support Network is dedicated to improve the quality of life
of those affected by breast cancer and their families through peer support, advocacy and consumer involvement
in research. RRI member organisations that provide peer support have a responsibility to their volunteers and the
people they serve. They develop, manage and evaluate training programmes in accordance with best practices,
which means that any training programme designed will meet the specific needs of the local community and reflect
the environment and culture.

As a member of RRI, BCWA carefully selects and trains candidates throughout Malaysia, namely those who have Educational Visit by Oncology Nurses
completed breast cancer treatment, who are physically fit and mentally well-adjusted so that they can offer Oncology nurses and their lecturers from Ramsay Sime Darby Healthcare College visited BCWA on 6 September 2017
psychosocial support and non-medical information to newly diagnosed individuals. An annual recertification session and another batch on 8 December 2017 to learn about its supportive care programme and community outreach
is conducted for trained patient support volunteers. services. BCWA’s Community Outreach Team, briefed them regarding BCWA’s mission and its psychosocial support
services for women with breast cancer and early detection programmes in the local communities. The visitors
learned about BCWA’s non-medical aid for women with breast cancer such as shaving services, availability of wigs
and wig-styling, temporary breast prostheses and affordable bras.

Reach to Recovery Workshop in HOSHAS


BCWA volunteers led by President, Ranjit Kaur conducted a skills development Reach to Recovery peer support
workshop on 30 July 2017 for 52 breast cancer survivors at Hospital Sultan Haji Ahmad Shah (HOSHAS) in Temerloh, The visitors learning about Being Breast Aware The visitors familiarising with lumps on breast models
Pahang.

Peer Support Training for Prostate Cancer Survivors Social visit by breast cancer survivors from Perak
They were hesitant at first and did not think men with prostate cancer needed psychosocial support. As discussions Breast cancer survivors from Persatuan Pink Champion Perak paid a social visit to BCWA on 14 September
continued, the participants began to unearth issues surroundings emotional response to the diagnosis of cancer. 2017. They toured the BCWA premises, viewed the non-medical aid for newly diagnosed patients, engaged
Questions were raised, Why Me? Why now? The two-day training held on 23-24 September 2017 in BCWA premises in a discussion with BCWA’s management to get a better insight into BCWA’s services and picked up
was an eye-opener for members of Prostrate Cancer Society Malaysia on the importance of peer support when one pink ribbon souvenirs. The visit ended with a hearty banana leaf lunch at one of the local restaurants.
is diagnosed with prostate cancer. The training ended on a high note whereby the members wanted a follow up
training to practise their skills.

Members of Prostate Cancer Society Malaysia sharing a joke during Participants discussing with their partners
the training session A group photo of BCWA members with the visitors BCWA’s Treasurer, Mei Quin (left) briefing the visitors

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BCWA Activity Report 2017 BCWA Activity Report 2017

Research & Development


BCWA collaborates with universities and other non-government research entities to conduct research, and at the
COMMUNITY SUPPORT
same time, supervise university students in their dissertation. Interviews and participatory research is also conducted The continuous contributions from corporations, clubs, educational institutions, individuals and nominal subscription
with breast cancer survivors on topics such as Survivorship, Quality of Life after Breast Cancer, Patient Reported fees from members have enabled BCWA to implement its activities and operations.
Outcome Measures (PROM) as well as Evaluating the Value of BCWA’s Services. With the recommendations and
results of this kind of research, BCWA can further improve its services. Research organisations also get respondents
for interviews from BCWA. Girls Wanna Have Fun
BCWA Patron, Puan Sri Dato’ Akmal Abdul Salam organised a fundraising Hi-Tea called Girls Wanna Have Fun on
Internship placement 4 May 2017 at Shangri-La Hotel, Kuala Lumpur. This event was organised to raise funds for Pink InspirerS, a group
BCWA supervised students and graduates from universities for internship to improve their skills and gain work of women living with advanced breast cancer to improve their quality of life and to facilitate access to cancer care
experience in specific subjects such as Psychology, Mass Communication, Social Work, and, at the same time gain services. The Hi-Tea included an exclusive fashion show, afternoon tea, fun activities, songs, dance, lucky draw,
hands on work etiquette and practice. auction and sale of clothing and jewellery.

Pink Inspirer, Chang Chu San sharing her life experience Members having the privilege of a photograph with BCWA Patron,
Puan Sri Dato’ Akmal Abdul Salam (3rd from left)

Discussion between BCWA Technical Advisor, Mr. Paul Jambunathan (right), President Ranjit Kaur
and Mendez Wong Jee Vei (centre), a university student conducting research in BCWA

Specially painted tiffin carriers up for auction BCWA’s Executive Committee member, Silvia Lee (3rd from left)
showing the finer points of her painting to guests.

Donation from SOHOM


The Association of Spouses of Heads of Missions in Malaysia (SOHOM) donated RM5,000 to BCWA in memory
of their member, the wife of the Ambassador of Fiji who passed away after her battle with breast cancer. BCWA
President, Ranjit Kaur, attended a cheque presentation ceremony and a coffee morning session at the Argentine
Residence in Kuala Lumpur. A total of 40 or so guests were present at the event.
Navedthra (left), an intern practising her counselling skills.

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BCWA Activity Report 2017 BCWA Activity Report 2017

Outrageously Pink Event by GinRikSha Restaurant Stand Up for Pink Breast Cancer Awareness Campaign
In conjunction with International Women’s Day, GinRikSha, a trendy restaurant in Plaza Damansara and BCWA XIXILI and its corporate partners Hair Salon Number76, AFO Radio, Saito University College, Monte Bianco Malaysia,
organised Outrageously Pink Event on 11 March 2017 to celebrate breast cancer survivors. The event was officiated Dunkin’ Donuts and Juice Works joined BCWA to organise a four-day Stand Up for Pink Breast Cancer Awareness
by BCWA Patron, Puan Sri Dato’ Akmal Abdul Salam. In line with the event, GinRikSha did a month long promotion Campaign at IOI City Mall Putrajaya on 28 September - 1 October 2017. BCWA’s Community Outreach Nurses
called The Pink Ribbon on some of the popular items on the menu. Profits from sale of these items were channelled conducted Clinical Breast Examinations and educated the public on Being Breast Aware. Volunteers from BCWA
to BCWA. Puan Sri Gita Menon, Director of GinRikSha was also present to host the event. The event included a assisted the nurses and created awareness on life after breast cancer.
Walkathon by breast cancer survivors around Plaza Damansara area. At the end of the Walkathon, participants
did the mannequin challenge. By then they were hungry enough to tuck in the delicious dishes and catch up with
friends. BCWA’s MURNI Mobile Clinic was parked in the area for members of the public to take the opportunity to
get a clinical breast examination.

BCWA public education booth The emcee interviewing a member of the public regarding
her views on Being Breast Aware
BCWA Patron, Puan Sri Dato’ Akmal Abdul Salam The Pink Ribbon promotion menu to raise funds for BCWA
flagging off the walk

A helping hand from Amber Chia and Walk2Inspire Charity Walk


Harlow’s & MGI
Amber Chia, Malaysian model, actress, TV host and
Brand Ambassador once again selected BCWA to be
the recipient of RM20,000 raised in conjunction with
Charity Day by Harlow’s & MGI Sdn. Bhd. The event was
hosted by the Executive Director of Harlow’s & MGI,
Encik Mohd Hatim Abdullah on 18 July 2017 at Maya
Hotel Kuala Lumpur. Number76 raising funds through charity haircut BCWA President, Ranjit Kaur (2nd from right) receiving a mock
cheque from Josephine Leong (2nd from left) of XIXILI.

Columbia Asia Hospitals UV Night Run


Chang Chu San (2nd from right) Crowds of family members and friends gathered on the evening of 7 October 2017 at Taman Tasik Cyberjaya to take
represented BCWA as our champion on the 3KM and 10KM challenge. Organised by Columbia Asia Hospitals in the Klang Valley, the aim of the UV Night
to raise awareness about breast
cancer. The event was organised by Run was to promote breast cancer awareness and raise funds for BCWA.
the PeopleGiving Association to raise
funds for NGOs including BCWA.

The mock cheque presentation, (from left) En. Mohd Hatim


Abdullah, Amber Chia, Puan Sri Dato’ Akmal Abdul Salam and
Ranjit Kaur
A bunting with Chu
San’s story

BCWA Patron, Puan Sri Dato’ Akmal Abdul Salam (3rd from left) BCWA’s MURNI mobile clinic on standby for women to get a clinical
receiving a mock cheque from the management of breast examination
Columbia Asia Hospitals

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BCWA Activity Report 2017 BCWA Activity Report 2017

Neubodi’s Pedal Forward Boat Noodle and Chill Chill supports the fight against breast cancer
100 or so cyclists including celebrities, models, Mrs Malaysia Chinatown winners, cycling enthusiasts, breast cancer In conjunction with the breast cancer awareness month of October 2017, Boat Noodle restaurant chain and Chill
survivors and supporters took on the 18KM bicycle convoy challenge which kicked off at the One Utama Shopping Chill drinks joined forces to raise funds to support BCWA’s activities. At a media event on 7 October 2017, guests
Centre, Petaling Jaya on 7 October 2017. The event entitled Pedal Forward was organised by Neubodi, a lingerie were treated to delicacies at the Boat Noodle outlet in Publika Shopping Gallery, Kuala Lumpur. Videos were
brand. The participants had previously created their respective crowdfunding platform to raise at least RM850 produced for the public to understand the challenges faced by breast cancer survivors.
individually to qualify for this challenge.
A photo booth was set up for guests to take pictures with the hashtag #pinktobermy. For every tag that Boat Noodle
Subsequently, Neubodi launched a one-month long Donate, Support, Recycle Bra Drive Campaign to collect old bras received, a sum of 50 cents was channelled to BCWA.
from the public for special recycling before contributing them to needy communities. This project which also helps
to reduce landfills was launched on the same day at One Utama Shopping Centre. Neubodi’s Founder and CEO, Ms.
Anne Tan, gave a speech about Neubodi’s campaign and its corporate social responsibility of helping women with
breast cancer, recycling bras for needy women and at the same time, conserving the environment.

A four-day roadshow was conducted by BCWA and Neubodi to promote breast cancer awareness. The Neubodi GO
PINK campaign sale of special bras channelled RM10 to BCWA for each bra sold at Neubodi outlets.

A total of RM76,080 was successfully collected by Neubodi for donation to BCWA.

The specially designed Chill BCWA President, Ranjit Kaur, presenting an appreciation Breast cancer survivors posing at the
Chill cup for Pink October plaque to Boat Noodle’s co-founder, Tony Lim. photo booth

Estee Lauder Breast Cancer Campaign 2017


Guests were busy narrating their choice of clothes and accessories for this very special Pink Ball, a black tie event.
Estee Lauder Companies Malaysia marked its 25th anniversary of the Breast Cancer Campaign with a worn-out pink
ribbon entitled Time to End Breast Cancer. The power of pink in the fight to end breast cancer was hosted by Estee
Lauder Companies Malaysia on 25 October 2017 at the Majestic Hotel, Kuala Lumpur. The evening was filled with
delicious food and entertainment by Nikki Palikat, Syafinaz Selama and Adibah Noor.

“We are truly encouraged to see greater awareness amongst Malaysians on breast cancer today, and hope that
through our Campaign, women and men will be more purposeful in going for screening, knowing the risk factors
and how they can reduce the risk of breast cancer happening. Breast cancer does not discriminate; everyone must
play their part,” said Paul Slavin, Managing Director of Estee Lauder Malaysia. Proceeds from Estee Lauder’s charity
The participants getting ready at the starting line Donate, Support, Recycle booth golf tournament, an auction of various items at the Pink Ball and the sale of limited edition Estee Lauder products
amounting to a total of RM480,000 will be channeled to BCWA and other NGOs. The other highlight of the evening
was that the Majestic Hotel was lit pink.

In conjunction with the above campaign Estee Lauder Companies also treated 40 or so breast cancer survivors
to a Feel Better Beauty Workshop on 19 October 2017 which consisted of tips to protect the skin, make-up tricks,
personalised scent consultation, hairstyling and a portrait session.

(From left) BCWA President, Ranjit Kaur and Patron, Puan Sri Ms. Anne Tan (left) presenting the final mock cheque to
Dato’ Akmal Abdul Salam receiving the initial mock cheque from BCWA President, Ranjit Kaur
Neubodi’s Founder and CEO, Ms Anne Tan. The Majestic Hotel lit pink Participants trying out make-up techniques
Looking on is an officer from the Social Welfare Department.

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BCWA Activity Report 2017 BCWA Activity Report 2017

ABWM Pink October Lunch Love . Life . Hope. by BodyPerfect


It was Thursday, 26 October 2017 and the hall was filled with pink everywhere. After registering, guests got busy BCWA joined BodyPerfect to celebrate a day of love, life and hope in conjunction with the breast cancer awareness
taking pictures at the backdrop of the event with pink accessories made available including fancy hats, wigs, scarves, month. The event was held at The Boulevard Hotel Kuala Lumpur on 6 October 2017. The guest of honour for the
message boards, masks and fur. A total of 150 guests hosted by the Association of British Women in Malaysia event was Duli Yang Maha Mulia Sultanah Pahang, Sultanah Hajjah Kalsom. The event consisted of a talk on Being
(ABWM) were gathered to celebrate Pink October at Majestic Hotel Kuala Lumpur. The ABWM Pink October Lunch Breast Aware by Dr Patricia Gomez, Consultant Breast Surgeon and Technical Advisor to BCWA, speeches, lucky
gave the guests every reason to have a fun-filled charity afternoon. BCWA was represented by its Patron, Puan draw and clinical breast examination for the guests by BCWA’s community outreach team of nurses.
Sri Dato’ Akmal Abdul Salam and President Ranjit Kaur. Besides savouring a large variety of dishes from the buffet
spread, guests took their time to catch up with each other, enjoy the raffles draw and contribute to the charity
event.

BCWA President, Ranjit Kaur delivering her speech (From left) BCWA President, Ranjit Kaur and
BCWA Patron, Puan Sri Dato’ Akmal Abdul Salam (centre)
receiving the mock cheque from Body Perfect

Wear It Pink Charity Dinner 2017


Pantai Hospital Kuala Lumpur hosted a dinner in
conjunction with its annual charity Wear it Pink
Campaign , at Le Meridien Hotel Kuala Lumpur
on 29 October 2017. Carrying the theme Be
the Light, the event raised funds to support
The 150 guests enjoying themselves BCWA Patron,
Puan Sri Dato’ Akmal (right), underprivileged women suffering from breast
drawing raffles for the lucky winners cancer. Guests were treated to performances
by a violinist, Sutra Academy Dancers and an
auction of items and holiday packages. Besides
Pink October Luncheon Tan Sri Rafidah Aziz, the Patron of the Dinner
The American Association of Malaysia who officiated the event, the guests had the
(AAM) teamed up with the Canadian opportunity to socialise with local celebrities BCWA Patron, Puan Sri Dato’ Akmal Abdul Salam (centre) receiving a mock
Association of Malaysia and The Latin who showed their support for the evening. cheque from Ms Erica Lam, CEO of Pantai Hospital KL (3rd from left),
Ladies Association of Malaysia (LLAM) to BCWA Patron, Puan Sri Dato’ Akmal Abdul witnessed by Tan Sri Rafidah Aziz (2nd from left)
organise a Pink October Charity Luncheon Salam, President Ranjit Kaur and a number of
at Sheraton Imperial, Kuala Lumpur on BCWA members were present at the event.
4 October 2017. BCWA was one of the
beneficiaries of the funds raised from
the event. Mr. Colin Day, President of
the Royal Society of St. George in Kuala Charity Golfathon by Lions Club of
Lumpur gave a keynote speech on his Kuala Lumpur Pavilion
perspective on breast cancer as his wife In collaboration with BCWA, Lions Club of Kuala
was receiving treatment at that time. Lumpur Pavilion organised a charity golfathon
BCWA had set up a booth to sell pink to raise funds for BCWA on 10 November 2017.
ribbon merchandise to the guests. The golfathon was held at the Kelab Rekreasi
Tentera Udara Subang followed by a prize giving
Alicia Rijnberg, President of LLAM (left) and Jill Nanne of the AAM (right)
dinner at a restaurant nearby.
presenting the cheque to BCWA President, Ranjit Kaur
Golfers cheering before the start of the competition

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BCWA Activity Report 2017 BCWA Activity Report 2017

BCWA IN THE NEWS

GUESS Watches Supports Breast Cancer Campaign


The sole distributor of GUESS Watches, FJ Benjamin Malaysia,
launched a limited edition GUESS watch for the month of October
from which proceeds were channelled to BCWA.

OGAWA Massage Chair


in aid of BCWA
Ogawa Malaysia conducted an eight-
week promotional campaign of the
sale of Pink OGAWA massage chairs
from which a certain percentage of the
proceeds were channelled to BCWA.

President Ranjit Kaur receiving the mock cheque


from Ms. Lim Mee Ling, Executive Director of Ogawa Malaysia

Pink Ribbon items


As part of BCWA’s efforts in promoting early
detection and timely medical treatment of
breast cancer, the pink ribbon symbolically
serves as a reminder for the public to take
action. Pink ribbon souvenirs that are practical,
and yet attractive are sold to the public at a
nominal cost.

Pink ribbon souvenir to create awareness BCWA’s activities and interviews were featured in print, online, audio and video news throughout 2017

34 35
BCWA Activity Report 2017 BCWA Activity Report 2017

OUR SERVICES Public Education and Awareness


Talks and workshops are conducted to promote
Networking and Collaboration
BCWA contributes towards the improvement of
Breast Cancer Welfare Association Malaysia (BCWA) is a tax exempt voluntary organisation founded in 1986 and awareness on the importance of Being Breast Aware the quality of life for women living with breast
was registered with the Registrar of Societies Malaysia in 1988. BCWA’s mission rests on the philosophy that a and screening. Women are guided to be familiar with cancer through regular networking and constant
breast cancer survivor can use her experience to help another woman facing the challenges of breast cancer. The normal changes in the breast. Breast cancer survivors communication with government and private
Association is a member of the Union for International Cancer Control (UICC) and Reach to Recovery International from BCWA conduct public awareness on Life After hospitals, Ministry of Health, Ministry of Women,
(RRI). Breast Cancer. Family and Community Development, other
ministries and government departments, cancer
Objectives BCWA has a team of Community Outreach nurses who control organisations, support groups, association of
▪ Provide emotional, social and material support for individuals with breast cancer. conduct clinical breast examinations in BCWA’s pink health care professionals, hospices and palliative care
▪ Strengthen the capacity of individuals with breast cancer to self-manage during and after treatment. Mobile Unit Reaching Nationwide with Information organisations, women’s organisations, educational
▪ Promote public education on Being Breast Aware including screening for breast cancer and early detection of (MURNI), in BCWA’s inflatable clinic or in a suitable institutions and legal entities. Networking and
breast cancer. room within the premises of the host organisation. collaboration is done locally and at the international
level.
Management
BCWA is managed by an Executive Committee and staff members, with support and advice from experts in the Training and Development
field of breast cancer and other related expertise. Volunteers lend their time and effort on a voluntary basis to the BCWA offers regular training in the following for support groups in Malaysia:
Association. ▪ Reach to Recovery training to enable breast cancer survivors to offer psychosocial support to other women
diagnosed with breast cancer.
Support for women with breast cancer ▪ Train-the-trainers programme for conducting public education regarding breast health awareness and early
▪ Individual Psychosocial Support detection of breast cancer.
Trained breast cancer survivors provide individual psychosocial or emotional support to help women cope with ▪ Training in sewing temporary prostheses.
life during and after diagnosis and treatment. Individual psychosocial support is offered in face-to-face sessions in
hospitals and at BCWA, as well as through the telephone and electronically. Healthcare providers also refer their Funding
patients to BCWA. The activities and operations of BCWA are funded through a nominal membership subscription and through public
donations from individuals, clubs, societies and corporate bodies. Contributions can be made via cheques (payable
▪ Group Psychosocial Support Sessions and Education Sessions to Breast Cancer Welfare Association Malaysia) or bank in at Public Bank Berhad Account No. 3166 384 321. A tax
Women with breast cancer and their families can benefit from mutual support, fellowship and information sharing exempt receipt will be issued for donations of RM50 and above.
every third Saturday of the month at BCWA as follows:
▫ New Patient Education Session 1.00 – 2.30pm
▫ Group Sharing Session 2.30 – 4.30pm Breast Cancer Welfare Association Malaysia
5th Floor, Bangunan Sultan Salahuddin Abdul Aziz Shah Phone : +603 – 7954 0133 Fax : +603-7954 0122
Sports, recreational activities and social activities are another form of group psychosocial support provided to help 16 Jalan Utara, 46200 Petaling Jaya, Selangor, Malaysia E-mail : info@breastcancer.org.my
individuals lead an active lifestyle. Website : www.breastcancer.org.my
Monday – Friday 8.00 am – 6.00 pm Facebook : Breast Cancer Welfare Association
▪ Education and Awareness Programmes 3rd Saturdays 1.00 pm – 4.30 pm Malaysia
BCWA organises education and awareness programmes such as talks and forums on issues relating to improving
quality of life for women with breast cancer.
Map to BCWA
▪ Material Support
Prostheses: Temporary prostheses are sewn and offered free to women with breast cancer. Advice on bra

Jalan 12/
Jala
modifications is also offered. Survivors are also helped to procure silicone prostheses, which is part of the

nS
rehabilitation process.

em
Wigs: Women undergoing chemotherapy may experience temporary hair loss. To manage this, and to avoid

19
ang
2
purchasing expensive hair-pieces, wigs are available on loan. 11/
tara kit

at
Information, News and Communication: Each newly diagnosed woman receives a Comfy Kit consisting of support Jalan U Jalan
Utar Bu
a an
Jal
Crysta
l
information and rehabilitation materials. The Comfy Kit set is also available for distribution to breast cancer support Hotel Crown
Petali
ng Jay
groups in Malaysia for free. a
a
ar
Ut Brickfields Asia
A library of reading and audio-visual materials covering information ranging from guidelines to narrations and College (BAC)
an
Na�onal Film Development
Jal
rehabilitation are available at BCWA. Tun Hussein Onn
Corpora�on Malaysia (FINAS)
Fujifilm Malaysia WE ARE HERE
Service Centre Na�onal Eye Hospital
BCWA manages a website (www.breastcancer.org.my) and Facebook page (Breast Cancer Welfare Association Federal High Way - From Klang
Malaysia) which is another avenue for support, communication and information exchange for members and the
public. Federal High Way - From Kuala Lumpur

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BCWA Activity Report 2017 BCWA Activity Report 2017

PERKHIDMATAN KAMI Maklumat, Berita Terkini dan Perhubungan Awam: Wanita yang baru mendapat kanser payudara akan diberikan
Comfy Kit yang mengandungi bahan-bahan sokongan dan pemulihan. Comfy Kit ini juga diberikan secara percuma
Persatuan Kebajikan Kanser Payudara Malaysia (BCWA) merupakan pertubuhan sukarela bebas cukai yang ditubuh kepada kumpulan-kumpulan sokongan kanser payudara di Malaysia.
pada tahun 1986 dan didaftar dengan Pendaftar Pertubuhan Malaysia pada tahun 1988. Melalui persatuan ini, bekas
penghidap kanser payudara boleh menggunakan pengalamannya untuk memberi sokongan psikososial (emosi dan Terdapat juga perpustakaan yang mengandungi bahan-bahan bacaan dan audiovisual. Tajuk-tajuk seperti garis
sosial) bagi membantu pesakit kanser payudara yang baru. BCWA merupakan ahli Union for International Cancer panduan rawatan dan pemulihan kanser payudara, serta cerita-cerita daripada bekas penghidap kanser payudara
Control (UICC) dan Reach to Recovery International (RRI). boleh didapati di perpustakaan.

Objektif BCWA juga mempunyai laman web, iaitu www.breastcancer.org.my dan Facebook, Breast Cancer Welfare Association
• Memberi sokongan psikososial dan sokongan perkakas kepada individu yang menghidap kanser payudara. Malaysia yang merupakan saluran-saluran untuk mendapatkan sokongan, berkomunikasi dan berkongsi maklumat
• Meningkatkan keupayaan individu yang menghidap kanser payudara untuk mengurus diri semasa dan selepas antara ahli-ahli BCWA dan orang awam.
rawatan.
• Mempromosikan kesedaran mengenali payudara sendiri termasuk saringan untuk kanser payudara dan Pendidikan dan Kesedaran Awam
pengesanan awal kanser payudara. Ceramah dan bengkel diadakan untuk meningkatkan kesedaran orang ramai mengenai kepentingan mengenali
payudara sendiri dan saringan untuk kanser payudara. Para wanita dipandu untuk mengenali perubahan biasa
Pengurusan payudara mereka. Bekas penghidap kanser payudara dari BCWA juga akan berkongsi pengalaman mengenai Cara
Persatuan Kebajikan Kanser Payudara Malaysia diuruskan oleh Jawatankuasa Eksekutif dan kakitangannya dengan Hidup Selepas Kanser Payudara.
bantuan dan nasihat daripada pakar-pakar dalam bidang kanser payudara dan bidang-bidang yang berkaitan.
Sukarelawan akan meluangkan masa dan tenaga mereka di BCWA untuk membantu wanita yang menghidap kanser BCWA mempunyai Pasukan Jururawat Kemasyarakatan yang menjalankan pemeriksaan payudara klinikal di dalam
payudara. klinik bergerak MURNI atau klinik “inflatable” ataupun dalam bilik premis yang disediakan oleh pihak penganjur.

Sokongan untuk wanita yang menghidap kanser payudara Perangkaian dan Kolaborasi
• Sokongan Psikososial Individu BCWA sentiasa berkomunikasi dengan pertubuhan-pertubuhan yang berkaitan, termasuk hospital kerajaan dan
Bekas pesakit kanser payudara yang terlatih akan memberi sokongan psikososial (emosi dan sosial) untuk swasta; Kementerian Kesihatan, Kementerian Pembangunan Wanita, Keluarga dan Masyarakat, kementerian dan
membantu mereka yang menghidap kanser payudara menangani kehidupan semasa dan selepas diagnosis dan jabatan kerajaan yang lain, pertubuhan-pertubuhan pengawalan kanser, kumpulan-kumpulan sokongan, persatuan
rawatan. Sokongan psikososial diberikan kepada setiap individu yang menghidap kanser payudara secara bersemuka profesional kesihatan, persatuan hospis dan penjagaan paliatif, pertubuhan-pertubuhan wanita, institusi-institusi
di hospital dan premis BCWA, serta melalui telefon dan secara elektronik. Pihak perubatan juga merujuk pesakit pendidikan dan perbadanan undang-undang. Perangkaian dan kolaborasi ini dilakukan di peringkat kebangsaan
mereka kepada BCWA. dan antarabangsa.

• Sokongan Pendidikan dan Sesi Berkongsi Secara Berkumpulan Latihan dan Pembangunan
Pesakit dan keluarga mereka boleh melibatkan diri dalam sesi berkongsi secara berkumpulan untuk mendapatkan BCWA menawarkan latihan untuk kumpulan-kumpulan sokongan kanser payudara di Malaysia seperti berikut:
sokongan emosi, sosial dan maklumat bagi urus diri dan terus hidup dengan kanser payudara. Sesi ini diadakan pada • Latihan ‘Reach to Recovery’ membolehkan bekas pesakit kanser payudara dapat memberi sokongan psikososial
setiap minggu ketiga hari Sabtu di premis BCWA: kepada individu lain yang menghidap kanser payudara.
▫ Sesi Pendidikan Pesakit Baru 1.00 – 2.30 petang • Latihan untuk Pelatih diadakan untuk memberi kesedaran kesihatan payudara dan pengesanan awal kanser
▫ Sesi berkongsi secara berkumpulan 2.30 – 4.30 petang payudara kepada orang awam.
• Latihan menjahit payudara palsu sementara.
Aktiviti sukan, aktiviti rekreasi dan sosial merupakan salah satu bentuk sokongan psikososial berkumpulan yang
dapat membantu individu menjalani cara hidup yang aktif. Dana
Aktiviti dan operasi BCWA dibiayai melalui yuran keahlian dan derma yang disalurkan oleh individu, badan-badan
• Program Kesedaran korporat, kelab-kelab dan persatuan. Sumbangan boleh dilakukan melalui cek kepada Breast Cancer Welfare
Persatuan Kebajikan Kanser Payudara Malaysia juga menganjurkan program kesedaran seperti ceramah untuk Association Malaysia atau didepositkan ke akaun Public Bank Berhad, Nombor Akaun 3166 384 321. Resit
meningkatkan kualiti kehidupan wanita yang menghidap kanser payudara. pengecualian cukai akan diberikan untuk derma berjumlah RM50 dan ke atas.

• Sokongan Perkakas
Payudara Palsu (Prostesis): Sukarelawan menjahit payudara palsu sementara yang diberikan secara percuma Persatuan Kebajikan Kanser Payudara Malaysia
kepada pesakit baru yang telah menjalani pembedahan mastektomi. Nasihat mengenai pengubasuaian coli juga Tingkat 5, Bangunan Sultan Salahuddin Abdul Aziz Shah Tel : +603 – 7954 0133 Faks : +603-7954 0122
boleh didapati di BCWA. Pesakit turut dibantu untuk mendapatkan payudara silikon sebagai sebahagian proses 16 Jalan Utara, 46200 Petaling Jaya, Selangor, Malaysia E-mel: info@breastcancer.org.my
pemulihan. Laman web: www.breastcancer.org.my
Isnin – Jumaat 8.00 pagi - 6.00 petang Facebook: Breast Cancer Welfare Association
Rambut Palsu: Wanita yang menjalani rawatan kemoterapi boleh mengalami kehilangan rambut sementara. Untuk Sabtu yang ketiga 1.00 t/hari - 4.30 petang Malaysia
mengatasi masalah ini dan mengelak daripada membeli rambut palsu yang mahal, terdapat beberapa jenis rambut
palsu di BCWA yang boleh dipinjamkan kepada pesakit.

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BCWA Activity Report 2017 BCWA Activity Report 2017

服務 民众教育与醒觉
通过讲座会及工作坊来向大众推广提早筛查乳腺癌的重要性,并熟悉乳房的正常變化。另外,推
广教育也涉及指导乳癌病友如何与乳癌共存。
马来西亚乳癌福利协会成立于1986年,是一个免税义务组织,其使命秉持着一个理念,就是
让乳癌康复者以个人的亲身体验,来帮助正在面临乳癌挑战的女性。我们也是国际抗癌联盟 我们有负责临床乳房检查的护士团队提供外展服务在涵盖全国的粉红移动资讯单位(MURNI)或
(UICC) 和「迈向康复」国际组织 (RRI) 的成员之一。 在充气诊所里或在舉辦單位所提供的舒適房間裡。

成立宗旨: 网络联系与共同协作
• 为乳癌病友提供情绪上,社会上及物资上的支援。 为了改善女性乳癌病友们的生活品质,我们经常与国内政府及私人医院、女性家庭与社区发展
• 增强乳癌病友在接受治疗前后期间的自我管理能力。 部与其他政府部门,癌症控制组织、乳癌支援小组、专业健康护理人员协会、临终关怀及纾缓
• 进行推广和教育民众有关乳房保健,包括如何及早发现乳癌等课题。 护理服务协会、妇女组织、教育机构及法律团体等保持密切联系。协会的合作网络涵盖国内和
国际两层面。
管理
由执行委员会和职员管理,并获得乳癌专家与相关专业人士提供諮詢及支助。另外,志工们也 培训和成长
义务性的为协会付出时间与努力。 我们为马来西亚各支援群体提供以下的培训课程:
• 康复之路培训课程 (Reach to Recovery): 为乳癌康复者而设,让她们能为被诊断患上乳癌
为女性乳癌病友提供支援 的女性们提供社会心理的支援。
• 个人社会心理上的支持 • 培训员培训课程 (Train-the-trainers): 指导培训员如何执行民众教育,相关的课题包括乳
经培训的乳癌康复者將为乳癌病友提供个人的社会心理或情绪上的支援,以帮助她们应付初诊断 房保健和尽早检测乳癌等课题。
患上乳癌期间以及接受治疗期间的生活。这些服务包括在医院及协会内进行的个别面谈,以及 • 义乳缝制班。
通过电话或电邮所进行的咨詢。医药护理机构也向乳癌病友们推介乳癌福利协会。
资金
• 群体社会心理支援及教育时段 协会的运作及活动举办经费是来自象徵式的会员费和大众的捐款。大众的捐献来自个人、俱乐
女性乳癌病友们及其家属都能够以互助互持的方式,在该协会每月第三个星期六举行的分享活 部、协会、商业机构等。捐助款项可通过现金、支票(支票抬头请注明Breast Cancer Welfare
动中获得资讯及帮助,其详情如下: Association Malaysia)和汇入银行户頭(Public Bank Berhad: 3166 384 321)等方式进行。捐款
- 病友辅导时段 下午一点至两点半 RM50 或以上者可获税务豁免收据。
- 群体分享时段 下午两点半至四点半

其他形式的群体社会心理支援活动有:运动、康乐及社交活动等,以协助病友迈向健康活跃的 马来西亚乳癌福利协会
5th Floor, Bangunan Sultan Salahuddin Abdul Aziz Shah 电话号码 : +603 – 7954 0133
生活方式
16 Jalan Utara, 46200 Petaling Jaya, Selangor, Malaysia 传真号码 : +603-7954 0122
• 教育与醒觉活动 电邮 : info@breastcancer.org.my
主办教育与醒觉活动,例如提升女性乳癌病友生活素质相关课题的讲座和座谈会。 网址 : www.breastcancer.org.my
星期一至星期五 8.00 am – 6.00 pm 面子書 : Breast Cancer Welfare Association
第三个星期六 1.00 pm – 4.30 pm Malaysia
• 物资援助
义乳:专业缝制的义乳(暂时性)免费提供给女性乳癌病友。另外,我们也提供如何切身改良
胸罩的建议,并协助乳癌康复者采购进口体硅义乳(silicone prosthesis)。这也是康复计划之一
的活动。

假发:接受化疗之后的病友将经歷暂时性的脱发,因此,我们提供假发的租借服务,让病友无
需购买市场上价格昂贵的假发商品。

资讯,新消息及通讯:每一位初被诊断患上乳癌的女性都获得‘康菲’小袋,里面附有支援与
康复资讯。免费的‘康菲’小袋也同时被分发到马来西亚的各个乳癌支援群体。

图书馆: 提供阅读书籍和视听资料,包括指引、过程叙述以及康复等各种资料。

网站及面子書: 提供资讯交换、沟通与交流的平台:
网址:www.breastcancer.org.my
面子書: Breast Cancer Welfare Association Malaysia

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BCWA Activity Report 2017 BCWA Activity Report 2017

BREAST CANCER SUPPORT GROUPS IN MALAYSIA


SELANGOR NEGERI SEMBILAN MELAKA (CONTINUED) PERAK
Breast Cancer Welfare Association Malaysia (BCWA) Breast Cancer Support Society Negeri Sembilan National Cancer Society Malaysia Melaka Branch Persatuan Pink Champion Perak
5th Floor, Bangunan Sultan Salahuddin Abdul Aziz Shah, Contact person: 349C, Jalan Ong Kim Wee, Level 4, Pantai Hospital Ipoh,
16 Jalan Utara, Padma 017-367 9570 75300 Melaka 126, Jalan Tambun,
46200 Petaling Jaya, Selangor Naveen 012-239 7269 Tel: 06-292 1231 31400 Ipoh, Perak
Tel: 03-7954 0133 | Fax: 03-7954 0122 Chai Moei Ho 012-338 5546 Contact person: Tel: 05-543 9021
Website: www.breastcancer.org.my Pn. Che Yah 016-386 4416 Miki Chua 012-323 9300 Contact person:
Facebook: Breast Cancer Welfare Association Malaysia Daily 9.00am-12.00pm Monday-Friday 8.30am-4.30pm Mardianah Mohd Yusof 012-516 1240
Monday-Friday: 8.00am-6.00pm Chen Lee See 011-2640 1236/013-548 1568
3rd Saturdays: 1.00pm-4.30pm NSFPA Breast Cancer Awareness Support Team Melaka Breast Cancer Support Group Angie Ng 016-533 0282
No. 3, Jalan Dr Krishnan, 70000 Seremban, (Home Visit Only) Teh Lee Keow 016-502 6229
JOHOR Negeri Sembilan Contact person: Jamaliah 017-566 2535
Breast Cancer Support Society Kluang Contact person: Ms. Koot 019-657 3608 Monday-Friday 12.00pm-4.00pm
4A, Jalan Kapur, Mdm Sue Loy 012-222 5279 Guat Luan 012-621 2282/012-625 5327
86000 Kluang, Johor Mdm Sathyea 012-635 0844 Nurse Tey 012-643 6882/06-288 1461 Ipoh WeCare Cancer Society
Contact person: Mdm S.F.Wong 010-204 4629 Dr. Chan Ching Phing’s Clinic, Fatimah Hospital
Siti 011-1770 5581 Rasanayaghi 016-917 6203 PENANG Suite 11, No 1, Lebuh Chew Peng Loo,
Fu Foke Ying 010-793 8663 Cynthia Tay 016-279 6103 Penang Breast Care Society Off Jalan Dato’ Lau Pak Khuan,
Tan Sar Fee 012-714 3383 Mount Miriam Cancer Hospital Ipoh Garden, 31400 Ipoh, Perak
Jenny Teh 012-711 9378 TERENGGANU 23, Jalan Bulan, Fettes Park, Tel: 05-5489 098 (Sister Biroo)
Every Sunday 3.00pm-5.00pm Terengganu Breast Cancer Support Group 11200 Tanjung Bungah, Penang Contact person:
Surgical Outpatient Department, Tel: 04-892 3999 (GL) SauWai 012-501 5320
The Breast Cancer Support Group Johor Bahru Hospital Sultanah Nur Zahirah, Jalan Sultan Mahmud, Contact person: Chan Sook Fun 017-573 0771
12, Jalan Ru, Taman Kebun Teh, 20400 Kuala Terengganu, Terengganu June, Secretary 017- 406 8381 Monday-Friday 8.30am-1.00pm
80250 Johor Bahru, Johor Tel: 09-621 2121 Monday-Thursday 9.30am-12.00pm Saturday 8.30am-11.00am
Tel: 07-335 7211 (Jessie Lim) ext. 2058 (Radidah Kamaludin Munirah, Staff Nurse)
Email: thebcsgjb13@outlook.com Sunday-Thursday 8.00am-1.00pm Cancerlink Penang SARAWAK
Monday-Friday 9.00am-1.00pm 2-U, Lorong Delima 17, Island Glades, Sarawak Breast Cancer Support Group Matahari
KELANTAN 11700 Penang Lorong Maxwell 2, Jalan Maxwell,
Breast Cancer Support Society Segamat Reproductive Health Association Kelantan (ReHAK) Contact person: Off Jalan Tun Abang Haji Openg,
438A-438B, Jalan Chelliah, 4261-F, Jalan Kebun Sultan, Ruth Chong 012-457 4912 93000 Kuching
85000 Segamat, Johor 15350 Kota Bahru, Kelantan Monday-Friday 10.00am-4.00pm Tel: 082-41 1137
Tel & Fax: 07-932 5228 Tel: 09-743 2407 Email: swakbreastca@gmail.com
Contact person: Contact person: Klinik Pakar Pembedahan Hospital Seberang Jaya : juriahsulehan03@gmail.com (Datin Juriah Sulehan)
Zorrilah 012-722 8540 Tengku Nur Satzinah: 09-748 3323 Jalan Tun Hussain Onn, Monday-Friday 9.30am- 4.00pm (Closed on Wednesday)
Email: bcss_sgt@yahoo.com Mei Lin 019-910 9073 13700 Seberang Jaya, Penang Contact person:
Facebook:The Breast Cancer Support Society Segamat - BCSS Saturday-Wednesday 8.30am-4.30pm Tel: 04-382 7426 Datin Juriah Sulehan 019-827 4832
Monday-Friday 9.00am-1.00pm Thursday 8.30am-1.00pm Day Care Centre: 04-382 7425 (Sister Che Normah Rus)
Klinik Pakar: 04-382 7235 (Sister Juslyta) Persatuan Kumpulan Sokongan Pink Ribbon
PAHANG Breast Cancer Awareness & Research Unit (BestARI) Monday-Friday 8.00am-5.00pm (Pink Ribbon Support Group Sarawak)
Kuantan Breast Cancer Support Society Hospital Universiti Sains Malaysia (Hospital USM) Bilik Pink Ribbon Support Group Sibu
B3680, Lorong Galing 6, Jalan Haji Ahmad, Jalan Raja Perempuan Zainab 2, SABAH Rumah Anjung Kasih
25300 Kuantan, Pahang Hospital Umum Sarawak
16150 Kubang Kerian, Kelantan Persatuan Sokongan Kanser Payudara Kinabalu
Tel: 019-987 6722 (Mdm. Gauri, WhatsApp only) Tel: 09-767 4056 (Puan Roslaini) Email: suriani56@hotmail.co.uk
Kinabalu Breast Cancer Support Association
Contact person: Email: breastcenter@usm.my Working hours: Anytime
Short Name: Kinabalu Pink Ribbon
Prof Dato’ Dr. Humairah Abdul Samad Cheung, Sunday-Thursday 8.15am-4.55pm Contact person:
Lot 2-06, 2nd Floor,
Chairman 012-215 6722 Hjh. Suriani Hj. Rapaiee 019- 889 0412
Wisma Wanita, Mile 2 1/2,
Matron Tannam 013-958 2522 Hjh. Hajijah Zakaria 013- 566 1657
MELAKA Jalan Tuaran,
Jamilah Abu Bakar 013- 824 3639
Erlinda 012-909 0052 88400 Kota Kinabalu,
Melaka Cancer Society
Monday-Friday 3.00pm-6.00pm Sabah
76, Jalan Melaka Raya 25,
Taman Melaka Raya, Tel: 088-216 237
Cancer Support Group Hospital Sultan Haji Ahmad Shah 75000 Melaka Careline: 016-803 8553
Temerloh Tel: 06-283 0988 (Alvin Ng) Hon-Secretary: 016-831 6015 (Laura Bazan)
Jalan Maran, 28000 Temerloh, Pahang Email: oasismcs@gmail.com Tawau Patient Support: 016-826 2004 (Christy Salazar)
Tel: 09-295 5333 (En. Azmi Bin Hassan) Facebook: Melaka Cancer Society Facebook: www.facebook.com/kinabalupinkribbon/
Monday-Friday 8.00am-5.00pm Monday - Friday 8.30am-4.30pm Email: kinabalupinkribbon@gmail.com

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BCWA Activity Report 2017

NOTES

44
Breast Cancer Welfare Association Malaysia
5th Floor, Bangunan Sultan Salahuddin Abdul Aziz Shah
16 Jalan Utara, 46200 Petaling Jaya, Selangor, Malaysia

Tel : +603 – 7954 0133 Fax : +603-7954 0122


email : info@breastcancer.org.my
Website : www.breastcancer.org.my
Facebook :
Breast Cancer Welfare Association Malaysia

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