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Case Study: Alexa Sutherland Home / Case Study
Diagnosed with Juvenile Rheumatoid Case Studies
Arthritis at 15 months old
> Alexa Sutherland
> Ashley Boynes-
‘shuck
‘Simple tasks that became
impossible because of rheumatic
disease:
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+ Putting on shoes
+ Walking up the stairs to
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+ Cheerleading
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hitplsimpletasks.orgicase-study-alexe-sutherland! 7swisv2018 RA Case Study: Alexa Sutherland | Simple Tasks
Alexa Sutherland was 15-months old when she was officially
diagnosed with juvenile idiopathic arthritis (also called juvenile
rheumatoid arthritis or juvenile arthritis). Since then, the disease has
intermittently prevented her from being a normal kid ~ attending
school, playing with friends, cheerleading, and shopping at the mall
Despite her everyday struggles, Alexa has a glowing spirit and a
Positive outlook on life, with big hopes for the future.
> Shanelle Gabriel
> Tierra Springer
e
U
Alexa’s Story: Living Big with Arthritis A
‘Alexa took her first steps around the age of one. The soft pitter- Finda
patter of feet was a well-known sound in the Sutherland household, Stl
until the day Alexa suddenly couldn't walk anymore. Almost eect cedlabes
overnight, her knees had begun to swell so badly that her mother fe
rushed her to the emergency room. Shortly after the hospital visit,
Alex was placed into leg braces and given the diagnosis of JIA. The
sweet-faced baby girl was barely two years old, and already coping
with a chronic disease. Fast forward twelve years and you find a
Vivacious teenager who loves to cheerlead, paint nails, and read
books. Alexa also dreams of becoming an actress and advocating |
for patients with rheumatic diseases.
Growing up with a Rheumatic Disease: Finding Her Power
Alexa was just 15 months old when she saw her first,
rheumatologist. Her mother and father were frightened ~ they'd
never heard of JIA. They thought that Alexa would be treated, given
some medications and would go on to lead a normal life; end of
story. The reality of the disease took a while to set in. Luckily, their
daughter was diagnosed early and was treated within the “window
of opportunity.”
Alexa vividly remembers what it was like to grow up with juvenile
arthritis. She knew she was different from most children, particularly
at school, and often experienced pain that would prevent her from
Participating in activities. “kids would come up to me during PE
[physical education] and say that their knees were hurting. They
didn't feel like participating in gym class, so they told our teacher
that they had arthritis too. My classmates thought | was ‘faking’ or
that I wasn't really sick. They had no idea what | was feeling inside or
what it was like to be me,” she says.
“I tell my story, and | tell it as much as | can. | do it because it's
important for people to learn and know more about my disease. |
want other kids out there to know that | understand what they're
going through” She's an advocate for the disease and she's a role
model for other children living and dealing with juvenile rheumatoid
hitplsimpletasks.orgicase-study-alexe-sutherland! 2aswisv2018 RA Case Study: Alexa Sutherland | Simple Tasks
arthritis. When asked what she wants to be when she grows up,
Alexa says, “An actress; I've always wanted to be an actress.”
Alexa's Window of Opportunity: Physician Referral Leads
to Unbreakable Bond
Alexa, by many definitions, was lucky. She was lucky to have been
diagnosed early - within the “window of opportunity.” Alexa’s
pediatrician recognized the signs and symptoms of her disease and
referred her family to a rheumatologist for proper treatment. Alexa
has been going to the same rheumatologist, Deborah McCurdy, MD,
since she was a baby. Their relationship and bond is unbreakable -
crafted through years of experiencing highs and lows, successes
and failures, struggles and smiles. "Dr. McCurdy is amazing. She
calls me on her days off ~just to check in. We love her” says Alexa,
Alexa is living with juvenile rheumatoid arthritis and she's
determined to not let the disease slow her down, Alexa aims to lead
a full and productive life, and million other Americans with
inflammatory rheumatic diseases share similar hopes and dreams
Through early referrals and receiving early and appropriate treatment
from a theumatologist, the possibilities for these individuals are
limitless,
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