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Leading article

Arch Dis Child: first published as 10.1136/archdischild-2018-315818 on 11 June 2019. Downloaded from http://adc.bmj.com/ on January 31, 2020 at King Saud University (KSU). Protected
Complexity and challenge in intensivists, neonatologists, general paedi-
atricians, palliative care consultants,
academics and community paediatricians.
paediatrics: a roadmap for supporting Most participants had a management or
leadership role in addition to their clinical
clinical staff and families role (eg, the group included senior offi-
cers from the Royal College of Paediatrics
and Child Health (RCPCH), two medical
Hilary Cass  ‍ ‍,1 Sarah Barclay,2 Clare Gerada,3 Daniel E Lumsden,1,4 directors of children’s hospitals, specialty
Kaji Sritharan5,6 group leads, clinicians from NHS England,
a Head of School of Paediatrics, network
leads and two paediatric trainees). Non-­
paediatric facilitation was provided by
Introduction all paediatricians presenting to PHP
individuals working in psychology, psychi-
There is much that paediatricians love have mental illness as opposed to addic-
atry and medical mediation.
about their job. The attraction of working tion problems, with the vast majority
Individuals were given a very brief
with children and families, colleagues who displaying anxiety, depression and symp-
opening statement about the issues of
are supportive and non-­hierarchical, and toms of burn-­out. Most tragically, a small
concern and asked in a facilitated but
the diversity of the specialty are all inte- number have committed suicide.
non-­directive plenary session how this
gral to a stimulating and fulfilling career. In 2018 two meetings (‘Spotlight on
resonated with their own experience, both
Yet, despite these positive features, paedi- Paediatrics’) were convened to discuss
as practising clinicians and through their
atricians are seeing an insidious decline the issues which may have contributed
leadership roles. The attendees then split
in morale and well-­ being within the to this worrying trend, and to try and
into smaller groups to produce recom-
profession. find solutions. This paper describes the
mendations for multilevel solutions to the
Most of the current cohort of consul- format and outputs of the two meetings
problems.
tant paediatricians started their careers at and provides key insights into how recent
a time when competition ratios for entry changes in the paediatric environment
to the specialty were high. The perception have produced adverse conditions for clin- Event 2 (16 October 2018)
was of a specialty that was tough due to ical staff. Drawing on this information, the Recognising that the problems were expe-
the long hours and high-­intensity work, authors make recommendations for how rienced more widely, and could not be
but amply compensated by the rewarding individuals and organisations can come solved by the paediatric or indeed the

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nature of the job. However, between together to improve the situation, not just wider healthcare community alone, the
2015 and 2018, although the calibre of for paediatricians but for the whole multi- second event was designed to engage a
applicants remained high, recruitment disciplinary team, and the patients and broader multiprofessional and multia-
to Specialist Trainee 1 in paediatrics fell families they serve. gency group; this included doctors, nurses,
from 97.5% to close to 80%, with this allied health professionals, parents, ethi-
once-­popular specialty having the lowest The ‘Spotlight on Paediatrics’ cists and leaders of third-­sector bodies, as
competition ratio of all the medical meetings 2018 well as a barrister specialising in medical
specialties.1 The ‘Spotlight on Paediatrics’ meetings law and a mainstream media health jour-
Recruitment shortfalls are one mani- comprised two invitation-­only events held nalist. The aim of event 2 was to triangu-
festation of broader problems in the at the Royal Society of Medicine in April late the conclusions of event 1, but more
specialty, with paediatricians now repre- and October 2018, both operated under importantly to share existing work in
senting around 5% of referrals to the the Chatham House Rule.3 This allows the area and discuss how the healthcare
NHS Practitioner Health Programme for openness during debates by commit- community could work with involved
(PHP), a confidential mental health and ting that comments made are anonymised third-­sector bodies, the public and the
addiction service for doctors.2 This is and non-­attributable in any record of the media to address the underlying issues.
an over-­ representation compared with event, thus protecting participants but The recommendations made at event 1
other specialties. In addition, the service sharing important insights. were augmented at event 2 by examples
sees a higher percentage of trainees (70% of existing good practice and additional
compared with an average of 54% across proposals for solutions.
Event 1 (16 April 2018)
all specialties). Neonatologists and inten-
The first event was designed to focus
sive care specialists form a significant
specifically on paediatricians and their Collation and dissemination of
subset of the paediatric group. Almost
perceptions of the issues, with invitees proceedings
1
being practising paediatricians from across The proceedings of both ‘Spotlight’ events
Neurosciences Department, Evelina London Children’s
the clinical community. Although there were collated and written up in a single
Hospital, London, UK
2
Medical Mediation Foundation, London, UK was an appreciation that all members of report. While the events did not constitute
3
Hurley Group, London, UK the multidisciplinary team experience a formal qualitative research study, some
4
Dept of Women’s and Children’s Health, King’s College stresses in the work environment, it was consistent themes emerged both within
London, London, UK agreed that open discussion could best be and between groups. Given the fact that
5
Department of Vascular Surgery, Royal Liverpool
University Hospital, Liverpool, UK achieved using structured and small-­group the contributions of many of the partici-
6
Royal Society of Medicine, London, UK discussion in a safe setting without other pants reflected their national or leader-
professional groups being present, except ship experience, as well as their personal
Correspondence to Dr Hilary Cass, Evelina Children’s
Hospital, St Thomas’ Hospital, London SE1 7EH, UK; in a facilitatory capacity. The group of perspectives, it was anticipated that the
​drhilarycass@​gmail.​com 25–30 participants was selected to include results would have broader generalisability.
Cass H, et al. Arch Dis Child February 2020 Vol 105 No 2    109
Leading article

Arch Dis Child: first published as 10.1136/archdischild-2018-315818 on 11 June 2019. Downloaded from http://adc.bmj.com/ on January 31, 2020 at King Saud University (KSU). Protected
The draft write-­ up was circulated are from paediatricians. Further work is
to all participants, and corrections or
Box 1  Quotes from ‘Spotlight on
needed to fully explore the perspectives of
amendments were incorporated prior to other professional groups. Paediatrics’ meetings
wider dissemination to interested parties. Despite the time spent identifying
Informal feedback from individuals who these negative perceptions, the ‘Spotlight’
Patient complexity.
►► “The patients are often complex and
received the report reinforced the authors’ meetings were strongly solution-­focused,
impression that the issues resonate broadly there are expert parents, so you are
and the range of recommendations put
across the paediatric community. not involved in the decision-­making.”
forward by participants can be found in
►► “There is a feeling of worthlessness,
the full report, available on request from
as the family want to see the
Main themes identified the lead author. The balance of this paper
specialist, rather than a general
The views that emerged on the changing elaborates in greater detail the authors’
paediatrician.”
nature of paediatric practice and its impli- interpretation of why paediatricians have
►► “There is a feeling of increasing stress
cations for clinicians can be divided into become particularly vulnerable at this
which is palpable because of the
the following themes: time and goes on to discuss the proposed
complexity of patients. Moreover, if
►► There has been an increase in patient solutions.
you are feeling vulnerable, then you
complexity, linked to the increased
are more susceptible to stress.”
survival of children with chronic
Learning from previous ►► “Patients can’t go home and
health conditions, disability and life-­
paediatric service challenges therefore sit on the hospital wards
limiting illness.
Paediatricians are not unfamiliar with the with frustrated parents.”
►► Societal expectations of what can and
should be done to extend life have media spotlight falling on their services. Societal expectations and social
changed, and this has culminated in Over the last two decades, children’s media.
polarised and, in some cases, damaging services have been at the centre of a series ►► “There is the expectation from society
and hostile social media debate. of high-­profile cases which have had an of perfect health and that no child is
►► The impact of these changes has been impact across the whole of the National allowed to die.”
an increase in the practical, ethical Health Service (NHS), initially generating ►► “Social media has taken away the
and moral dilemmas faced by clini- adverse publicity, but in the longer term greyness in decision-­making.”
cians and families, leading at times to genuine improvements in practice. For ►► “You can be recorded, and this can be
conflict, and feelings of disempower- example, the Public Inquiry into children’s used against you on social media.”
ment and moral distress. heart surgery at the Bristol Royal Infir- ►► “High profile cases can have an effect

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►► These issues are played out against mary gave birth to modern clinical gover- on other parents. They may feel guilty
a background of workforce short- nance4 and opened the debate on the need that they have not tried hard enough
falls, resource pressures and service to protect whistle-­ blowers.5 The Alder to save their child.”
gaps, which add to the exhaustion Hey organ retention affair6 led to a major
and duress for both clinical staff and rethink about the meaning and process Ethical dilemmas, disempowerment
families. of consent, and the anti-­ MMR vaccine and conflict.
Figure 1 illustrates the interplay campaign raised questions about trust and ►► “There is no system for determining
between the above factors and the self-­ the presentation of information to the who gets high cost care and so he
reinforcing vicious cycle of conflict and wider public.7 However, although chil- who shouts loudest gets it. On an
stress that can develop for all parties, with dren were at the centre of these cases, for ethics committee, you are not able to
box 1 containing representative quotes the most part paediatricians and paediatric discuss cost.”
from the meetings. Although the expe- care were not the subject of criticism. ►► “You are the ground force as a
rience of other clinical staff was incor- By contrast, the pressures and public trainee, but not involved in the
porated into the second ‘Spotlight’ event scrutiny which followed some of the decision-­making.”
and the full report, most of these quotes high-­profile safeguarding cases had a ►► “Don’t forget nursing! There is a
significant stress associated with not
being able to leave a cubicle and not
being able to take a break at will.”
►► “There is an impact of chronic stress
and fatigue on your health and on
your family when you are in the
spotlight or the focus of malicious
behaviour.”
►► “In acute general paediatrics, there
is a low-­level conflict constantly. The
team are on their knees.”
►► “Whilst the big cases are upsetting,
the ongoing cases are more of a
death by a thousand cuts.”
►► “In memory (25 year practice), conflict
hardly used to happen. Now conflict
is happening more and more, and
Continued
Figure 1  Vicious cycle of conflict and stress.
110 Cass H, et al. Arch Dis Child February 2020 Vol 105 No 2
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Arch Dis Child: first published as 10.1136/archdischild-2018-315818 on 11 June 2019. Downloaded from http://adc.bmj.com/ on January 31, 2020 at King Saud University (KSU). Protected
alongside an increasing blame culture, children with multiple healthcare needs,
Box 1  Continued would adversely affect recruitment into disability and/or  limiting illnesses.13
life-­
paediatrics.11 Paediatricians recognised The fragmented health, education and
you then question are you a worse
that urgent action was needed, and social care systems often fail to serve
doctor? There is self-­doubt and guilt
through a concerted approach of strength- these children and families well, through
that maybe you could have done
ening the evidence base,12 improving a combination of inadequate resources,
something better.”
training in safeguarding and court work, difficulty managing complexity and uncer-
Service gaps, workforce pressures and ensuring rigorous support to trainees, tainty, and a mismatch between expecta-
and lack of support in the workplace. the impact of the adverse publicity was tions and what is deliverable. As a result,
►► “Due to a lack of resources, you mitigated, and recruitment to the specialty their parents are often distressed, frus-
become concerned that you are not remained buoyant. This is an important trated and exhausted.
delivering the best quality care.” lesson for today’s challenges. Paediatricians report high stress levels
►► “There is a mismatch between just performing a routine ward round in
community services and the hospital’s Current challenges in paediatric the face of this tension and may feel disem-
expectations. We cannot provide care services powered or experience a sense of failure
in the community and the impact A changing demographic at being unable to achieve consensus on
of cost is huge - trying to expand Safeguarding apart, where the interests of treatment plans. This is in line with a study
community care with no money is the child are not always aligned with those of conflict in a children’s hospital, which
stressful.” of the parents, paediatricians have tradi- demonstrated that conflict is prevalent
►► “Management have a responsibility tionally enjoyed a close working relation- across paediatric specialties, with the three
for not only patients, but also staff.” ship with children and families, and this most common causes being ‘communica-
►► “There is a chronic low level of has been a mitigating factor for the long tion breakdown’, ‘disagreements about
exhaustion.” intense hours. A further attraction of the treatment’ and ‘unrealistic expectations’.14
►► “Rota gaps place pressure on juniors, specialty has been the almost magically An important underlying issue is the
making them feel guilty if they don’t transformative act of being able to make way in which paediatricians are trained
cover them.” sick children better at speed, with many and paediatric care is organised. In North
►► “I am haunted by the death of the quotes from a recent paediatric trainee America, the concept of ‘Children with
6-­year-­old in resus and no one wants twitter campaign (#paedsrocks) making Medical Complexity’ (CMC) has been
to talk to me about it.” reference to this; for example, “#paeds- embraced.15 CMC have been characterised
►► “If I made a mistake, there is a rocks because less than 36  hours ago I as those with significant and/or multiple

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punishment cycle. There should be was considering inotropic support for the chronic health conditions, functional
a recognition that people will make patient I’m currently chasing around the limitations and substantial healthcare use‍.
mistakes.” ward.” Different models of care are emerging in
►► “You can be threatened potentially However, advances in technology and America to address the particular chal-
physically and need police presence. medicine mean that the inpatient demo- lenges and needs of this group.16 17
We do not have the same rights as graphic is changing. More children are The UK has lagged behind in recog-
the family or patient – there is a lack surviving with medically complex condi- nising and adapting to the health require-
of public voice for us.” tions and paediatric wards are no longer ments of the rising numbers of children
filled with patients who bounce back to who would meet the American CMC
health within 24  hours; instead, many definitions. General paediatricians are
more profound impact on paediatricians. beds are occupied by the rising numbers of still being trained to work in an acute
The death of Victoria Climbié in 2000,
followed by that of Peter Connelly in
2007, highlighted the complex judge-
ments made by those involved with at-­risk
children; errors in either direction, either
missing an abused child or incorrectly
identifying abuse, are likely to have long-­
lasting and tragic consequences for the
child and family, but can also be trau-
matic for the professionals involved.8 Yet
for many years child protection was a
poorly researched area, and the science
was inexact and error-­ prone.9 Along-
side these cases, paediatricians were
becoming increasingly anxious about the
controversies surrounding fabricated or
induced illness, and the series of disputed
cot deaths which led to expert witnesses
Roy Meadows and David Southall facing
protracted General Medical Council cases
and a very personal media backlash.10
A decade ago, there was a growing fear
that the pressures of child protection work, Figure 2  Inconsistent clinical responsibility. CMC, children with medical complexity.
Cass H, et al. Arch Dis Child February 2020 Vol 105 No 2 111
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Arch Dis Child: first published as 10.1136/archdischild-2018-315818 on 11 June 2019. Downloaded from http://adc.bmj.com/ on January 31, 2020 at King Saud University (KSU). Protected
A changing relationship with the wider
Box 2 Recommendations from Box 2  Continued
public
‘Spotlight on Paediatrics’ meetings 
With paediatricians already feeling fragile
and/or access to ethics guidance
through changes in their day-­to-­day inter-
Staff training. could be developed.
action with patients, vulnerability has
Three aspects were discussed:
Creating a single narrative. been increased by a more recent series of
►► Better individual and team training in
►► There was extensive debate about high-­profile cases.
self-­care and recognition of mental
how to engage in a constructive First, while looking after children has
health problems.
and open narrative with the public always been ‘high stakes’, with the spectre
►► A changed approach to training staff
about the issues, addressing the of missing a sick child ever present, the
in the advanced communications
societal, political and ethical taboos case of Dr Hadiza Bawa-­ Garba, found
skills needed to manage difficult
and polarised positions, with a range guilty in 2015 of the manslaughter of
conversations and shared decision-­
of constructive ideas. The most 6-­year-­
old Jack Adcock, has heightened
making, as well as in early recognition
consistent view across both meetings anxiety among doctors,20 with paedia-
of signs of conflict.
was that parents and the voluntary tricians feeling this particularly keenly.
►► Improved training in management
sector need to be engaged as part of Controversy still swirls around the
of children with complex disabilities,
the solution. GMC’s case to have her erased from the
palliative care, ethics and law.
medical register, with real concern about
Supporting the workforce. the impact of such an action on Duty of
►► A wide range of measures were Candour. There is considerable potential
discussed, including new approaches care model, and community and neuro- for putting patients at even greater risk if
to clinical and personal supervision, disability paediatricians to work in a blame culture predominates over trans-
debriefing following critical events, predominantly non-­ acute and outpa- parency and the need to address system
better peer and team support tient settings. Nursing teams may cross failures.
structures, and enhancement of social boundaries more effectively but are still Second are cases such as those of Ashya
networks in the work environment. predominantly based in either acute or King,21 Charlie Gard22 and Alfie Evans.
community services. So who should be The hallmark of these cases was that the
Team/Organisational strategies. taking responsibility for this growing parents and treating clinicians differed
►► These included strategies for early cohort of children oscillating between in their views about how the best inter-
recognition of potential conflict home and hospital, wellness and illness, ests of the child should be met. This is

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and breakdowns through ‘ward-­ good quality life and poorly controlled not a unique or unfamiliar situation, but
walking’, review of complaints to symptoms? Arguably, if the parents of the game-­changer in these cases was the
Patient Advice and Liaison Services, these children had a trusted clinician to explosive role of not just the mainstream
shared learning from previous high-­ provide continuity of care and support media, but also the social media,23 partic-
profile events, and ‘learning from across all settings, the difficult decisions ularly in the latter two cases. The perfect
excellence’. that can deteriorate into conflict and storm was generated through medical staff
Supporting parents. stress might be better managed. feeling demonised but unable to tell their
►► Some resources already exist for The community or neurodisability side of the story, the growing public belief
supporting parents through the consultant might be expected to take this that ‘if it can be done it should be done’,
voluntary sector, and these need to role, and in some services they do. But and a ‘post-­truth’ culture where trust in
be augmented. Parents, like staff, too often these consultants are facing experts and evidence is at a low ebb.
also need access to targeted training escalating waiting list pressures to see and
and resources to manage some of assess children with autism and attention
the situations in which they find deficit hyperactivity disorder, as well as Workforce pressures
themselves. dealing with safeguarding, looked-­ after Analyses of Care Quality Commission
children and a rising tide of mental health reports demonstrate that workforce
Use of national guidance and problems.18 They of course see children shortfalls are a major contributor to poor
frameworks. with cerebral palsy and complex health- ratings of children’s services,24 putting
►► Clarification needs to be sought care needs in clinic when they are relatively additional pressure on a demoralised
from the General Medical Council on stable, but do not often have the capacity workforce. Rota gaps have become an
application of patient confidentiality to follow them through their hospital increasing problem, due to a combination
in an era of social media, particularly admissions. Specialist palliative care of trainees working less than full time,
in relation to cases that go to court. consultants may be brought in when the other out-­of-­programme activities and an
►► Several national documents have children are increasingly unwell, but they increase in attrition rates. A briefing from
recently been produced or are in are facing their own workforce crisis19 and the RCPCH25 reported middle-­grade rota
development relating to care of do not have the capacity to take long-­term gaps of up to 24%, with a majority of clin-
children with complex healthcare responsibility for symptom management ical directors being seriously concerned
needs and children’s palliative care, in in this growing population of life-­limited about staffing through the winter. Trainee
addition to existing frameworks about children. This leaves a gap in continuity of surveys26 have highlighted poor morale
withdrawing life-­sustaining treatment. care (figure 2), with general paediatricians due to a combination of rota pressures,
►► There were also discussions about and intensivists trying to provide consis- being required to work extra shifts to
ways in which a national approach tency and coordination, despite a weekly cover gaps and feeling undervalued.
Continued consultant attending system and a lack of These problems provide a backdrop to
specific disability training. the rising distress among paediatricians
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Arch Dis Child: first published as 10.1136/archdischild-2018-315818 on 11 June 2019. Downloaded from http://adc.bmj.com/ on January 31, 2020 at King Saud University (KSU). Protected
but are not the sole driver, nor is paedi- to enable them to work most effec- management in complex disability’ would
atrics the only specialty dealing with tively with the children and their mean that paediatricians, nurses and allied
rota gaps.27 However, it is important families. health professionals could chart their
to recognise that these rota gaps detract ►► The organisational approach to own learning pathways relevant to their
from essential training and experience. supporting staff working in children’s specific and evolving roles.
With trainees being consumed by the services.
demands of acute care and 4-­hour targets This is not to imply that all the prob- Literature review and research on models of
in the emergency department, they are lems outlined in this paper are related to care
less able to attend outpatients, gain expe- the care of CMC, but the development of Finally, it seems timely to critically review
rience of working in new integrated care a different strategy for this group would the needs of the CMC population, and
programmes in primary care, and acquire support transferable skills to address many to revisit paediatric training and service
training in the management of the long-­ of the wider challenges. Since the ‘Spot- delivery models. Can elements of the
term diseases and mental health condi- light’ meetings, there has been growing North American models of care and
tions, which are an increasingly important enthusiasm for such an endeavour among approaches to training be adapted and
part of the specialty. This only serves to relevant organisations (eg, at Royal developed in a UK setting? A literature
exacerbate feelings of anxiety and disem- College level, among specialty groups and review and research on best practice in
powerment when they enter the consul- the children’s voluntary sector, and among this area drawing on international models
tant grade where this is a growing part of children’s hospitals, as well as approaches where available should be an early objec-
the case load. from many interested individuals). The tive of the collaborative, and this should
proposed activities of such a collaborative feed in to the Paediatrics 2040 programme
Solutions and recommendations would be as follows: being run by the RCPCH.
If we are to address these problems effec-
tively, work is needed at the local, regional Sharing of good practice and quality Conclusion
and national level, and needs to be jointly improvement initiatives The stresses on paediatricians are not
owned by the healthcare community and There is already much good practice unique, with other children’s healthcare
the wider public. being developed around the country, and professionals, as well as clinicians in other
better sharing will accelerate the pace of specialties, facing a range of complex
Recommendations from the ‘Spotlight change. Examples of innovation include pressures and problems. However, paedi-
on Paediatrics’ meetings several projects providing better inte- atricians are perhaps a ‘canary down the

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Box 2 provides a high-­level summary of grated care of children with long-­ term mine’ given that sick or dying children
the combined recommendations of both conditions between primary, community generate such dramatic and polarised
‘Spotlight’ meetings. Topics covered and secondary care, a dedicated team for public reactions. In addition, the avail-
include staff training, particularly in early CMC at Birmingham Children’s Hospital, ability of specialty-­specific data from the
recognition and management of conflict and a ‘ward walking’ strategy by senior PHP 10-­ year review and from RCPCH
(an intervention for which there is an staff to proactively identify early conflict surveys, as well as qualitative information
emerging evidence base28); support for situations. A collaborative would enable from the ‘Spotlight’ meetings, provide
both parents and staff; team and organi- not just sharing, but multicentre piloting insights that are not as readily available
sational strategies; and the use of national of new initiatives. There would also be for other members of the multidisciplinary
guidance and frameworks; for example, scope for developing and sharing exam- team.
both RCPCH29 and the Nuffield Council ples of good practice in staff support It would be easy for paediatricians
on Bioethics30 have produced guidance (eg, consideration of adopting Balint to feel that they are unable to influence
on managing disagreements and achieving group approaches or alternative models the challenges that have arisen through
consensus. Most challenging is the need of personal supervision that have been major changes in case load, new societal
for an open narrative between clinicians successful in other professional groups). expectations and the stress that accom-
and the wider community about the diffi- panies conflict with parents and carers.
cult choices that must be made when what However, the historical perspective of
Development and sharing of educational
can be done to extend life is not always the child protection predicament should
initiatives and resources
what should be done. teach us that careful collection of data and
Box 2 touches on some of the training
evidence, an active programme of educa-
initiatives that are needed, but the issue of
tion, exploration of new service models,
Establishment of a collaborative to education for career-­grade staff warrants
and national collaboration and guidance
progress the work specific mention. It is essential that those
can turn a crisis into an exciting new area
Although solving these problems seems already in career-­ grade posts, as well
of innovation and research.
like a large mountain to climb, there are as trainees, have access to programmes
immediate practical steps that can be which equip them to adapt to changing
Acknowledgements  The authors wish to
taken. A collaborative is now being estab- clinical demands, and that educational acknowledge the generous support of the Royal Society
lished with a remit to work on strategies materials are developed and used as effi- of Medicine and True Colours Trust in sponsoring the
to improve the following: ciently as possible. Development of a ’Spotlight on Paediatrics’ meetings.
►► The well-­ being of CMC and their shared suite of modules covering topics Contributors  HC wrote the full manuscript and also
families, including reviewing the such as ‘care of the technology depen- led the two ’Spotlight’ meetings described herein.
service models that would best serve dent child at home’, ‘end of life care for SB facilitated parts of both the Spotlight meetings,
contributed to the components about conflict and was
this group. neonates’, ‘assessment of the child with involved in editing of the text. CG contributed data and
►► The professional and clinical skills of disability in the emergency department’, background information on mental illness and stress
the professionals looking after them, ‘ethics and law in child health’, and ‘pain in doctors and was involved in the planning of the first

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Arch Dis Child: first published as 10.1136/archdischild-2018-315818 on 11 June 2019. Downloaded from http://adc.bmj.com/ on January 31, 2020 at King Saud University (KSU). Protected
Spotlight meeting. She was also involved in editing of GP Health Service / Practitioner Health Programme, 1 9 The All-­Party Parliamentary Group (APPG) for Children
the text. DEL contributed to the section on children 2018. Who Need Palliative Care 2018;. End of life care:
with medical complexity and thinking about this aspect 3 The Royal Institute of International Affairs. Chatham strengthening choice. Bristol: Together for Short Lives,
of the paper. He was involved in editing of the text. KS house rule. https://www.c​ hathamhouse.​org/​chatham-​ 2018.
facilitated both meetings in her capacity as Associate house-​rule (Accessed 27 Apr 2019). 20 Cohen D. Back to blame: the Bawa-­Garba case and
Dean at RSM and also wrote up the proceedings of the 4 Walshe K, Offen N. A very public failure: lessons for the patient safety agenda. BMJ 2017;359:j5534.
first Spotlight meeting. She was involved in editing of quality improvement in healthcare organisations 21 Bridgeman J. Misunderstanding, threats, and fear, of
the text. from the Bristol Royal Infirmary. Qual Health Care the law in conflicts over children’s healthcare: in the
2001;10:250–6. matter of Ashya king [2014] EWHC 2964. Med Law
Funding  The authors have not declared a specific
5 Cassidy J. Name and shame. BMJ 2009;339:b2693. Rev 2015;23:477–89.
grant for this research from any funding agency in the
public, commercial or not-­for-­profit sectors. 6 Bauchner H, Vinci R. What have we learnt from the 22 Hurley R. How a fight for Charlie Gard became a fight
alder hey affair? BMJ 2001;322:309–10. against the state. BMJ 2017;358:j3675.
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