Part C:

Informational Support:

1st Concern: Maria and Jose don’t know what Fetal Alcohol Syndrome is and they would like to

know more information about the diagnosis.

Current Resource: The Gonzales family doesn't have any knowledge of FAS. They understand it

is something they need to learn more about, but since no one they know personally has dealt with

it they don’t know where to get information.

Outcome: This will give the family information about FAS so they will be better able to

understand the diagnosis.

Suggested Action: Parents will need to follow this link:

https://kidshealth.org/en/parents/fas.html?WT.ac=p-ra

• Resource Type and Name: National Resource-KidsHealth Website

• Contact Information- To contact the organization you can simply send a reply by going

here:https://kidshealth.org/en/parents/fas.html?view=contactus&WT.ac=cus-en-parents-

fas.html&src=foot. KidsHealth only allows for digital contact through replies due to their

privacy policy (see in policy information).

• Program information- KidsHealth is a national non-profit organization that was founded

by Neil Izenberg, MD. This organization makes easy to read articles and powerpoints for

families, teachers, and children. KidsHealth provides tools and doctor review articles to

help families learn more about certain health issues.

• Policy Information- KidsHealth has an editorial policy so everything that gets published

on this page is fact checked by medical professionals, before it can be published. The

professionals are handpicked and specialized in the field that the article is written about.
 KidsHealth also has a privacy policy. When you leave a comment or reply to them they

do not take any of your private information. They also will not send spam or use any

personal information for their own gain.

• Applications/Forms-To access this website simply copy and paste it into the URL, this

will take you to this form: https://kidshealth.org/en/parents/fas.html?WT.ac=p-ra

Rationale: This resource will help the family get a better understanding of what Fetal Alcohol

Syndrome is and what to expect. This resource was also chosen because it is straightforward and

easy to read; it is especially useful because it was designed for parents with a child with FAS to

read.

2nd Concern: Maria and Jose want to understand more about the characteristics Miguel will

have because of FAS.

Current Resource/Information: The family has seen typical characteristics in their other children

so Maria is unfamiliar with characteristics of a child with FAS.

The Outcome: The family will be able to use this information as a guide to help them know what

characteristics to expect to see in Miguel.

Suggested Action: The family will will need to follow this link to access the information

concerningc haracterisitcs: https://www.nofas.org/wp-content/uploads/2012/05/intervention.pdf .

Resource Type and Name: National Organization of Fetal Alcohol Syndrome

• Contact Information: Phone: (202) 785-4585 Address: 1200 Eton Court, NW, Third

Floor, Washington, D.C. 20007 Website URL: https://www.nofas.org/contact/ Email:

Communications Director Andy Kachor – kachor@nofas.org

 • Program information: The National Organization of Fetal Alcohol Syndrome was

founded in 1990. This organization wants to create awareness of Fetal Alcohol Syndrome

and help society be more open towards accepting and understanding people with FAS.

The organization wants to educate people on why it is so important to abstain from drugs

and alcohol while pregnant. They want to help families find resources and tools in their

area.

• Policy Information: NOFAS does not help with direct service or legal assistance. If you

choose to use certain resources the resource you choose to use will let you know

regarding their fees, but using the website to find those resources it is free of charge.

• Applications/Forms: This form lists out what the normal characteristics are for children

with FAS. It also gives parents strategies to try at certain ages. The form can be found by

following this link: https://www.nofas.org/wp-

content/uploads/2012/05/intervention.pdf.

Rationale: This form allows the family to learn about the characteristics Miguel has and will

have as he grows older. This information will allow to know what characteristics to look for in

Miguel at certain ages.

Informal Support:

1st Concern: The family is concerned about finding community support groups that they can

participate in. The parents of Miguel are looking for some emotional and or physical support

about their family life.

Current Resource/Information: The Gonzales family doesn’t have the emotional support that

they want so they want to know if there is more out there.

Outcome- The family could have emotional support in being able to talk to others that are going

through the same thing as they are.

Suggested Action:

• Contact Information- Chicago Angel Mama’s - Public group

https://www.facebook.com/groups/244250965711934/about/

Linda Rafert admin of group Her facebook information

https://www.facebook.com/linda.yoakam?sk=wall&fref=gm&__tn__=%2Cd-_-

R&eid=ARAqQkHlWDVmAteotpj3kikfG0n4ozxAOK38ii4b7Ap2xJdAZ--

Jkj80B8BIEbUCJpajKqxMEx8EDd_V&dti=244250965711934&hc_location=group

• Program information- This is a local resource/ social media support group for mothers

that have children with disabilities.

• Policy Information- None

• Applications/Forms- None

Rationale: This support group can give the family support emotionally. By being able to talk

with other mothers and families who may go through the same thing as the Gonzales family. The

family can also interact socially with other people when they have community events for

children with special needs. Using this resource it is giving the family new ideas, and advice on

the challenges they may face.

2nd Concern:Maria and Jose would like to find a child care provider for Miguel. They want

someone who could take care of Miguel and his special needs. While they go to family events

and dates as a married couple.

Current Resource/Information: They don’t have anyone that they feel comfortable leaving

Miguel due to his special needs.

Outcome: This will help the family be able to enjoy doing other things. If the other children need

individual time with their parents and so that the parents may keep their relationship healthy by

going on dates and outings.

Suggested Action:

• Resource Type and Name- This is a Community resource/ Care.com

• Contact Information- https://www.care.com/special-needs-nanny/chicago-il

• Program information- Find reviews on nannies in the Chicago area, that have

experience in watching children with special needs.

• Policy Information- The child care providers have profiles about them and their

experiences. You can search based on where you live and when you need the sitter. You

can find find specific nannies that have worked with children with Fetal Alcohol

syndrome. Prices vary from $10.00- $30.00 an hour. Premium account is one month

is $39, 3 months is $26, and 12 months is $13.

• Applications/Forms- Log in with information of family. Premium account is one month

$39 3 months $26 12 months $13. The premium account includes access background check

options & references. Or at no cost have limited access.

Rationale: This would be a safe way to find someone who has experience with children with

special needs. It can help the family and the marriage of Maria and Jose. They can go on dates

and outings and They will also know that Miguel is safe and his needs are being met.

Formal Support:
1st concern: The family is concerned with finding a physical therapist that understands the

specific and unique needs of Miguel. Miguel is experiencing gross motor delays and is in need of

a physical therapist.

Current Resource/Information: The Gonzales family knows Miguel has gross motor delays and

needs a physical therapist.

Outcome: This will give the family the opportunity to give Miguel the support he needs to help

him succeed in his gross motor development.

Suggested Action:The family will have to call the therapist's number to set up an appointment.

Then they will have to bring a doctor's referral and their insurance information to the center for

the appointment to get the process started.

• Resource Type & Name: Community (Private), Little Steps Pediatric Physical Therapy

• Contact Information: Phone: 847-707-6744 Address: 1945 W. Wilson Ave., Chicago, IL

60640 Website: https://littlestepspt.com/ Email: info@littlestepspt.com

• Program Information: Little Steps is a privately owned company comprised of Pediatric

Professionals who focus on providing physical therapy, speech therapy, occupational

therapy, and developmental therapy to children of all ages

• Policy Information: Little Steps accepts several types of insurances and accepts patients

based on doctor referrals.

• Applications/Forms: Provide them with a doctor’s order and your insurance

information. They will verify your benefits and your billing insurance.

Rationale: Having Miguel go to a physical therapist would help him healthily grow and develop,

giving the family the peace of mind that he is getting the support he needs.
2nd Concern: Maria and Jose are concerned about where they can find Speech Therapists for

Miguel. This is a concern because of his poor communication skills and his ability to speak and

express himself.

Current Resource/Information: The Gonzales family knows he has communication delays and

will need additional therapy as he grows.

Outcome: When Miguel succeeds in his communication goals and is continuing to develop

communication skills, the family will be relieved of the stress of Miguel's speech delays.

Suggested Action: The Gonzales family will need to call the number of the Karen George in

order to set up a screening for their son Miguel.

• Resource Type: Community (Private) Karen George Chicago Speech Therapy

• Contact Information: Phone: 312-399-0370 Address: In Home Sessions

Website: https://www.chicagospeechtherapy.com/ Email: None

• Program Information: In-home pediatric speech therapy in Chicago. Karen is a highly

dedicated and highly trained speech-language therapist. Comprehensive services

provided for infants, toddlers, and children with a wide variety of disorders including

problems with speech, language, and feeding

• Policy Information: Not listed

• Applications/Forms: Initial screening needs no applications

Rationale: If Miguel is able to meet with a speech therapist, he will develop communication

skills he needs for a child his age.

Material Support:
1st Concern: Maria and Jose would like to know about financial aid programs they can apply for

to receive help to cover therapies. This is a concern because of Jose’s occupation. They may be

unable to qualify for financial help which would lead to the family paying out of pocket.

Current Resource: They want to know about financial aid program that they can apply.

Outcome: With this the family will have the opportunity to cover all the expenses that they will

have.

Suggested Action: Find out what your insurance will cover Negotiate your fee. While many

therapists don’t take insurance, some have a “sliding scale fee,” which means they’re willing to

treat patients who couldn’t otherwise afford it for less. Seek out lower-cost treatment centers. Try

group therapy.

• Resource type/name-Application for benefits eligibility (ABE), (State)

• Contact information: 800-843-6154

• Policy Information-You can also apply for healthcare and SNAP over the phone by

calling the ABE Customer Call Center

• Program Information-You can use ABE to apply on-line for healthcare, SNAP, cash

assistance and the Medicare Savings programs with the State of Illinois.

• Application form-

https://abe.illinois.gov/abe/access/accessController?id=0.7420149202552272

Rationale: If the family is willing to try group therapy along with negotiating with different

therapist they will be able to find some sort of aid.

2nd Concern: Maria and Jose would like to know more about a private therapist for Miguel. If

the Gonzales have to pay out of pocket or only receive half coverage, they will not have enough

money to pay for the private therapist for Miguel.

Current resource: The family is not sure if they can receive a private therapist or not.

Outcome: Having a private therapist will help Miguel to deal better with his delays.

Suggestion Action: Some people do receive financial aid to help pay for therapist. The best thing

you need to do is get in contact with your insurance what what they will cover and take

advantage of all the different programs out there that are willing to contributes to cause like

yours.

Resource Type/Name- Children place association (Community)

• Contact information-312-733-9954

• Policy information- https://childrens-place.org/about-us/25th-anniversary/

• Program information-Children’s Place Association provides critical assistance to children

and their families in four key areas of impact: health, education, family stability and

financial stability.

• Application form- https://childrens-place.org/wp-content/uploads/2016/02/2017-2016-

Childrens-Place-Assn-Audited-Financials-6-30-17.pdf

• Rationale: Because the family is in need for help and are looking for different ways that

can benefit Miguel in the long run they will be able to get help from this program.