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A Clinical and Applied Orientation

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FAMILY MEDICINE
A Clinical and Applied Orientation

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FAMILY MEDICINE
A Clinical and Applied Orientation

Second Edition

CS Madgaonkar MBBS FCGP


Consultant Family Physician
Hubballi, Karnataka, India
Honorary National Professor
Indian Medical Association
College of General Practitioners
Chennai (HQ), Tamil Nadu, India

Forewords
RP Pai
RN Joshi
KH Jituri
GN Prabhakara

The Health Sciences Publisher


New Delhi | London | Philadelphia | Panama

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© 2015, Jaypee Brothers Medical Publishers

The views and opinions expressed in this book are solely those of the original contributor(s)/author(s) and do not necessarily represent
those of editor(s) of the book.

All rights reserved. No part of this publication may be reproduced, stored or transmitted in any form or by any means, electronic, mechanical,
photocopying, recording or otherwise, without the prior permission in writing of the publishers.

All brand names and product names used in this book are trade names, service marks, trademarks or registered trademarks of their
respective owners. The publisher is not associated with any product or vendor mentioned in this book.

Medical knowledge and practice change constantly. This book is designed to provide accurate, authoritative information about the subject
matter in question. However, readers are advised to check the most current information available on procedures included and check
information from the manufacturer of each product to be administered, to verify the recommended dose, formula, method and duration of
administration, adverse effects and contraindications. It is the responsibility of the practitioner to take all appropriate safety precautions.
Neither the publisher nor the author(s)/editor(s) assume any liability for any injury and/or damage to persons or property arising from or
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This book is sold on the understanding that the publisher is not engaged in providing professional medical services. If such advice or
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Inquiries for bulk sales may be solicited at: jaypee@jaypeebrothers.com

Family Medicine: A Clinical and Applied Orientation


First Edition: 2006
Second Edition:  2015
ISBN 978-93-5152-911-8
Printed at

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Dedicated to
The memory of
My loving parents

Smt Sumitra S Madgaonkar

Shri Sachidanand G Madgaonkar

There is no death! The stars go down


To rise upon some other shore,
And bright in Heaven’s jeweled crown,
They shine for ever more.
—John L McGreey

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Foreword

I have great pleasure in offering this testimonial. Dr CS Madgaonkar has done great job in
writing the book entitled Family Medicine: A Clinical and Applied Orientation. Though Dr
CS Madgaonkar is not a full-time teacher in a medical college, he has excelled like a formal
pedagogue. In the days of consumer-oriented, globalized, e-focused medical practice, this book
is a value edition to the desk of a primary care physician.
Most informative and educative, this book focuses on current issues. I particularly liked
the chapters ‘The Difficult Patient’ (Chapter 22), ‘Medical Professionalism’ (Chapter 23) and
‘Comprehensive Geriatric Assessment’ (Chapter 27). This book is a must for all, Primary Care
Physicians, Departments of Community Medicine and Forensic Medicine.
In the days of recertification and accreditation, this book is a worth investment. I recommend
this book without any hesitation to medical students for their internship.
God bless Dr CS Madgaonkar and M/s Jaypee Brothers Medical Publishers for publishing
this ready reckoner.

Salubriously,
RP Pai MS MD PhD
Visiting Professor, School of Public Health, Austria
Professor
Department of Public Health and Primary Care
The International Centre for Health Sciences
Manipal Academy of Higher Education
Manipal, Karnataka, India

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Foreword

Dr CS Madgaonkar MBBS FCGP, Consultant Family Physician is a sincere dedicated doctor


devoted to the welfare of his patients. Despite being a busy professional Consultant Family
Physician, he has taken a lot of time off in preparing his book on family medicine, which is an
eye-opener for all family physicians. I had said many times in our medical colleges, and Dr CS
Madgaonkar, I say with all my force, that he should occupy the first chair in that department.
There is a tendency among doctors to specialize; our country still consisting of 60% rural
population, cannot afford the costly treatment of specialists. At the base of the pyramid should
be the family physicians, and at the apex be the specialists. Base should be wide to aid the basic
and routine treatment to the daily masses. But we see, unfortunately, the reverse of the pyramid
that the base is getting smaller and the apex formed by specialists, is getting wider which is not
conducive to the health of our developing nation like India; hence, doctors like CS Madgaonkar,
would train younger doctors in family medicine if he occupies the professional chair of family
medicine and train them, most of the younger doctors would take to family medicine.
It is truly said if one does not know computers, particularly in the field of medicine, one is
considered as ignorant and no patient would like to take treatment from ignorant doctors.
May the creed of Dr CS Madgaonkar rapidly multiply and may his knowledge of family
medicine be utilized by the universities.
Let us emancipate the students and give him time and opportunity for the cultivation of
his mind, so that in his pupilage, he shall not be a puppet in the hands of teachers, parents
and society but rather a self-relying, and reflecting being. After all, we are still students in the
advancing science of medical knowledge and Dr CS Madgaonkar has proved his book is a treat
in family medicine and knowledge of computer is superb.
I wish him all the best.

RN Joshi
MBBS FRCS FICS FIAMS FIMSA
Consultant Surgeon
Dr Joshi Hospital
Hubballi, Karnataka, India

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Foreword

I have read the book Family Medicine: A Clinical and Applied Orientation by Dr CS Madgaonkar,
a renowned family physician practicing for the last three decades. I recommend this book to
all those who desire to practice the art of family medicine. It contains useful hints, which are
essential for successful practice in this subspecialty.
The author has written this book in a simple fluent language and in an academic style, in
spite of his busy schedule. He deserves compliments for his unique attempt in giving out his
experience to the beginners.

KH Jituri MD FIAMS FICC


KH Jituri Hospital
Hubballi, Karnataka, India

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Foreword

Family Medicine: A Clinical and Applied Orientation by Dr CS Madgaonkar from Hubballi,


Karnataka, is a good attempt for the depiction of family medicine in terms of basic principles,
content, practice, prevention in family medicine and research in family medicine.
Indeed, a teacher for the past 37 years I could see the depth of knowledge of the author in
the field.
He has kept the syllabus of certain training in family medicine including DNB conducted
by National Board of Examination.
I wish the author success and I wish the Publisher the success.

GN Prabhakara
MBBS MD MAMS MAPHA MIPHA
Associate Dean, Professor and Head
Department of Community Medicine
Professor and Head
SDM College of Medical Sciences
Dharwad, Karnataka, India

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Preface to the Second Edition

The second edition of this textbook, Family Medicine: A Clinical and Applied Orientation has
been entirely updated and much of it has been revised. Since nine years of its first publication,
the discipline of family medicine has been greatly developed and refined so that the faculty
of family medicine and general practice are at the forefront of medical education. In an
increasingly global environment for the need of more primary care physicians, and to create
a robust primary care system that is vital to the sustainability of nation’s health care system,
the apex medical councils, especially in developing countries, are in favor of implementing in
near future strategies to ensure proper place for family doctors in healthcare delivery systems
by establishing new departments of family medicine in all medical colleges at undergraduate
and postgraduate levels. Addressing the changes in the medical curriculum, Family Medicine:
A Clinical and Applied Orientation covers the theoretical background of family medicine and
provides essential skills needed to practice in the changing paradigm shift from secondary and
tertiary care to the primary care.
In the present times, with the full spectrum of challenges, modern medicine is expected to
address, family medicine offers flexibility and tremendous diversity. The contemporary family
physicians have at their disposal broad base of literature and skills. The opportunities that family
practice affords in terms of academic and community healthcare delivery, together with great
organizational advancements that have occurred in family medicine and general practice, offer
rich learning resources for budding family physicians. In this context, the present edition is
updated and designed to cover a wide field of common clinical and bedside problems, especially
encountered in the application of its art and science of family medicine. It is hoped that this
treatise for practicing family physicians will encourage deep learning and attempt to reflect its
core information in the clinical and applied aspects, and make them more competent in the
care of their patients. It is hoped that this book will continue to gain appreciation and maintain
its importance. I welcome healthy suggestions and constructive criticism from readers through
email to me (Vidya_csm@yahoo.com) or via my website www.doctorcsm.in or the publishers.

CS Madgaonkar

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Preface to the First Edition

“Before everything else, getting ready is the secret of success.”


—Henry Ford
“All things are ready if our minds be so,” said Shakespeare.
Now that you have made up your mind to invest in this book, is this investment going to help
you be a successful doctor?
Is success elusive or tangible? More so, in medical practice, is success elusive or tangible?
It is generally said that joy, which is internal to one is tangible and the success, which is an
external measure, is rather elusive.
Look at it this way—at the end of each day, you can actually count the number of joyous
episodes you experienced, spread over, familial episodes, patient-related episodes and so on.
But, you will never be too sure of successes that you may achieve during the course of the day!
This book is about increasing both the tangible joy that you experience as a Doctor and the
success that you hope to achieve as a Physician. In a way it is like excellence and perfection.
Perfection may be an illusion, but the process toward it is not. Granted that success may appear
elusive, but the process toward that elusive end is not. This book is about those processes.
Although this book is for Doctors, it is also intended for anyone interested in the domain of
medicine. It is not just about medical practice that one usually learns in medical college. This
book is about successful medical practice, something that was not taught to you, but perhaps
learnt along the way.
I believe this book would have served its purpose, if you were able to pick up some points
from the book and enhance your success in medical practice.
“The practice of medicine is an art, not a trade; a calling, not a business; a calling in which
your heart will be exercised equally with your head”, said Sir William Oslar.
So, let me sign off by encouraging you to write to me if you have found interesting or unique
success formulae for yourself by using your heart and head equally.

CS Madgaonkar

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Acknowledgments

Any accomplishment requires the efforts of many people and this work is no different.
I wish to express my heartfelt gratitude to those who have used this manual. I have received
positive feedback from medical students as well as from many GPs, especially those who were
preparing for fellowship examinations in family medicine, who found the first edition to be a
quick, practical reference text.
I wish to gratefully acknowledge the help, advise of the following who reviewed this book:
Dr RM Pai, Professor of Public Health and Primary Care, Mangaluru; Dr RN Joshi, Consultant
Surgeon, Hubballi; Dr KH Jituri, Consultant Physician, Hubballi; Dr Prabhakara, Emeritus
Professor and Head, Department of Community Medicine, SDM College of Medical Sciences,
Dharwad; and Mr Narayan B Gad, Past Chief Executive of Formulations Marketing for Panacea
Biotec Ltd. Their comments and criticisms helped shape a better product.
My special thanks to my wife, Dr Vidya for her critical and timely review of the manuscript.
She has read and revised majority of the chapters and has offered invaluable advice.
I am grateful to Shri Jitendar P Vij (Group Chairman), Mr Ankit Vij (Group President) and
Mr Tarun Duneja (Director–Publishing) of M/s Jaypee Brothers Medical Publishers (P) Ltd,
New Delhi and their editorial staff for the invitation to produce the second edition of the Family
Medicine: A Clinical and Applied Orientation.
I would like to thank my loved family members for their most generous assistance.
Last but far from least, I am indebted to my wife, Dr Vidya, and our son Varun, for their
unstinted support and constant encouragement throughout the entire process—from conception
to completion of this book.

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Contents

SECTION 1: BASIC PRINCIPLES


1. Philosophy of Family Medicine 3
2. Scope of Family Medicine 8
• Three Facets of Family Practice  8
• Matrix of Family Practice  9
• Proactive Role of Family Physician  10
3. Family Medicine—The Rising Discipline 12
• History 12
• Age of Specialization  14
• Revival of Family Medicine  15
• Future 17
• Family Medicine—Need of the Hour  20
4. Definitions 22
• General Practice  22
• Leeuwenhorst Definition  22
• Changing Domain of General Practice  22
• Wonca Definition—1991 (World Organization of Family Doctors)  24
• Olesen Definition—2000 24
• The European Definitions—2005 (WONCA Europe Definitions—2005)  25
• Definition of General Practitioner  29
• Definition of Family Physician  30
• Family Practice  31
• Difference—Family Practice and General Practice  31
• Advantages of Family Practice  31
• Primary Care  32
5. The “Family” in Family Medicine 37
• Focus on Family Health Care  37
• Family—Definition 37
• Characteristics of a Healthy Family  38
• Characteristics of a Disturbed Family  39
• The Family Life Cycle and Role of Family Physician  39
• Family Dynamics and Illness  41
• Family in Crisis  43
• Family-based Medical Counseling —The “Bathe” Technique  46
• Working with Families—Avoiding Pitfalls  47

SECTION 2: HEALTH FOR ALL


6. The Alma-Ata Declaration 51
• Background 51
• The Genesis of Alma-Ata  52
• Primary Health Care Takes Center Stage  52
• Declaration of Alma-Ata  152

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xxii  Family Medicine: A Clinical and Applied Orientation
7. Primary Health Care Approach to Health for All 55
• What is “Health for All”?  55
• HFA—The Fundamental Principle  55
• The Genesis of Primary Health Care  56
• The Concept of PHC  56
• PHC Definition  57
• The PHC Approach  57
• Ingredients of PHC  57
• PHC Revival—Beyound Declaration  59

SECTION 3: CLINICAL APPROACH


8. The Spectrum of Clinical Diagnosis 63
• Clinical Process—History and Symptomatology  64
• Clinical Process—Physical Diagnosis  67
• Sequence in Clinical Diagnosis  68
• Diagnosis in Family Practice  70
• The Differential Diagnosis  72
• Changing Conceptions of Health, Disease and Diagnosis  72
9. Investigations: General Principles 76
• Refining Clinical Diagnosis  76
• The Reason for the Test  77
• Analytical Errors  77
• Interpretation of Tests  78
• Importance of Chronological Data  81
• Right Choice of Test  81
• Gold Standard Tests  82
• Who the Investigation for: Patient or Doctor?  82

SECTION 4: THE PRACTICE OF FAMILY MEDICINE


10. Communication Skills 87
• Communication as a Core Competency  87
• Definition 88
• Importance of Effective Communication  88
• Key Tasks in Communication with Patients  89
• Key Communication Skills Needed to Perform Key Tasks  89
• Communication Types  91
• Communication with Children  92
• Communication with Older Patients  93
• Barriers in Communication  93
• Common Communication Pitfalls  95
• Acquiring New Skills  95
• Neurolinguistic Programming  95
11. Rapid Access to Improving Communication Skills 97
• Changing Practice Environment  98
• Refining Communication Skills  98
12. The Consultation 104
• Objectives for the Consultation  104
• Tasks in the Consultation  105

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Contents xxiii
• The Consultation Process  106
• Interviewing Skills  109
• Common Pitfalls when Interviewing Patients  113
• Consultations as Routines, Dramas and Ceremonies  113
• Patient Satisfaction with the Consultation  114
• Troublesome Consultations  114
13. The Physician-Patient Relationship 116
• Concepts and Changes  116
• Types 117
• Scope of Physician-Patient Relationship  118
• Ending the Physician-Patient Relationship  121
14. Balint Group 123
• Historical Origins  124
• Balint Groups  124
• Balint Training  125
• Balint Discoveries  126
15. Designing a Patient-friendly Practice 130
• Objectives to Redesign  130
• Designing the Clinic  131
• The Waiting Room and Reception  131
• The Consultation Room  132
• Staff 133
• Greeting Patients—Checking-in and Checking-out  133
• Incorporating New Technology  134
16. Counseling Skills 136
• Counseling Interventions in Primary Care  136
• Counseling 136
• Specific Areas of Counseling  138
• Counseling Procedure  139
• Counseling Strategies  140
17. Patient-centered Care 143
• Why Such Broad Use?  144
• Defining Patient-centered Care  145
• Evidence Base for Patient-centered Care (PCC)  147
• Patient’s Choice  147
• Patient-centeredness—What Determines the Physician’s Clinical Behavior?  148
• Patient-center Care Model  148
• Hypothetical Case Scenario: An Adult Diabetic  149
18. The Team Approach 153
• Need for Team Concept  153
• Personal versus Team Care  154
• Team Training: Current Status and Assessment  154
• Working with Colleagues  155
• Communication Strategies  156
• Team Cover on Off-Duty or Leave  157
19. Leadership 159
• Physicians as Leaders  159
• Changing Leadership Competency  160
• Physicians as Better Leaders  160
• Developing Physician Leaders  161

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xxiv  Family Medicine: A Clinical and Applied Orientation
• Characteristics of Leadership  162
• Tools for Leadership  163
• What Physicians should do when Asked to Lead?  164
20. Addressing Medical Errors 168
• New Approach—Acknowledge Mistakes  169
• Medical Errors—Focus on Primary Care  169
• Definition 169
• Types of Errors  171
• Classification 171
• Understanding Errors in Family Practice  172
• Why should Doctors Disclose Medical Errors  173
• Why Doctors do not Disclose Errors  174
• System Redesign in Family Practice  175
• Apology as a System of Medical Error Disclosure  176
• Eliminating Errors in Family Practice—Current Trends  177
• How to Cope with Clinical Errors  180
• What Patients can Do  180
21. Medical Records 184
• Purpose of Record Keeping  184
• Standards in Medical Record-keeping  185
• Content and Style  185
• Practical Ways of Improving Record-keeping  186
• Weed System: Problem-oriented Medical Record (POMR) and SOAP 186
• From SOAP to “SNOCAMP” 190
• Medical Council of India (MCI)—Importance of Medical Records  191
• Medicolegal Records  192
22. The Difficult Patient 195
• Terminology and Incidence  196
• Characterizing the Difficult Patient  197
• Who is at Fault  198
• Problems in the Physician  199
• Problems in the Physician-Patient Relationship  200
• Disorders to Consider  200
• Strategy to Handle Difficult Patients  201
• Coping Skills for Physicians  202
• Coping Skills for Family Physicians  204
• The CALMER Approach  204
23. Medical Professionalism 208
• Professionalism—Pitfalls 209
• The Evolution of Professionalism  209
• Defining Professionalism  210
• Fundamental Ethical (Moral) Principles­  211
• A Set of Professional Responsibilities  212
• Model Behaviors of Professionalism  214
• Unprofessional Behaviors  215
• Reasons for Teaching Professionalism  215
• The Educational Challenge  215

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Contents xxv

SECTION 5: ADOLESCENT HEALTH


24. Adolescent Care 221
• Introduction 221
• Definition 222
• Adolescent Consultation  223
• Exploring Hidden Agenda  224
• Confidentiality 224
• History 224
• Adolescent Communication  226
• Communication Techniques  226
• Physical Examination  227
• Counseling 228
• Goals of Counseling  230
• Improving Existing Services—Adolescent Care Clinics (ACC) 230
25. A Problem Adolescent 233
• Parenting Stress  233
• Parenting Style and Problem Adolescent  233
• Behavior Problems  235
• Adolescent Depression  235
• Suicidal Risk  236
• Physician’s Role  237
• Indications for Psychiatric Referral  238
• A Scheme for Fortifying the Parent-Adolescent Relationship  238
• Guidance and Counseling to Parents  239
• Preventive Advice to Parents and Family Members  239

SECTION 6: GERIATRIC HEALTH


26. Aging and Geriatric Concepts 243
• Definition 243
• Demographic Revolution  244
• The Role of Family Physician  244
• Characteristics of Disease in Elderly  245
27. Comprehensive Geriatric Assessment 249
• Barriers to CGA  250
• Medical Assessment  251
• History Taking and its Pitfalls  251
• Important Specific Areas  252
• Physical Examination and its Pitfalls  254
• Investigations 259
• Mental Status Examination  259
• Functional Evaluation  259
• Advance Directive 262
28. Management of Common Geriatric Problems 264
• The “Age Wave”  264
• Paucity of Geriatric Care  265
• Geriatric Care and Family Physician  265
• Atypical Symptoms  266
• Physician’s Role  266

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xxvi  Family Medicine: A Clinical and Applied Orientation
• Major Manifestations of Common Geriatric Problems  268
• Psychological Problems and Elder Abuse  270
• Cardiovascular Problems  271
• Respiratory Problems  273
• Gastrointestinal Problems  274
• Incontenance and Urogenital Problems  274
• Endocrine Problems  275
• Musculoskeletal Problems  276
• Falls and Balance Problems  277
• Visual Impairment  278
• Hearing Problems  279
• Nutrition 279
• Attitudes for a Successful Geriatric Practice  280
29. Practical Prescribing to the Elderly 283
• Concerns over Aging Population  283
• Prescribing Cascade  284
• Polypharmacy 285
• When should an ADR be Suspected?  286
• Principles of Good Prescribing  287
• Non-drug Therapy  287
• Begin Therapy with Clear Endpoints in Mind  288
• Treat the Disease Process Rather than Symptoms  289
• Start Low Go Slow  289
• Medication Debridement—Reducing Medications and Doses  289
• Review the Drug Profile at Every Visit  289
• Effective Communication  290
• Medication Noncompliance in the Elderly  290
• Measures to Enhance Compliance  290
• Ethical Principles  291

SECTION 7: PALLIATION AND BEREAVEMENT


30. Communicating Bad News 295
• What is Bad News?  295
• Why is Breaking Bad News So Difficult?  295
• Importance of Disclosure  297
• What Patients Value  297
• How Should Bad News be Delivered?  298
• Communication in Specific Situations  300
• The Future  300
31. Palliative Care: Principles 303
• Recognizing Dying  303
• The Need for Palliative Care  303
• Special Role of the Family Physician  304
• What is Palliative Care?  304
• Principles of Palliative Care  306
• Tasks in Palliative Care and Care of the Dying  307
• When Death is Approaching: Diagnosing Dying­  308
• Patient—Family Involvement: Shared Decision Making  308
• Identification and Management of Symptoms  310
• Support of Family and Carers  312

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Contents xxvii
• Support after the Death  312
• The Limits of Care at the End of Life  313
• Summary of Tasks for the Patients in the Dying Phase  313
• Conspiracy of Silence  313
32. Palliative Home Care 316
• Caring at Home—Some Considerations  316
• Definition 317
• Home Care: Issues in Developing Countries—is There a Need?  317
• Demoralizing Syndrome  319
• Home—The Preferred Choice  319
• Involvement of Family Physician  320
• How to Get Started and Keep Going  321
• Clinical Issues  322
• Patient Issues  323
33. Family and the Grief Process 327
• What is Grief?  327
• Symptoms of Grief  328
• Features of Grief  328
• Course of Grief  329
• Types of Grief Reaction  329
• Risk Factors for Complicated Grief  330
• Family Physician as Counselor  330
• Guidelines to Manage a Grieving Person and Family Members  331
• Referral 331

SECTION 8: PREVENTION AND HEALTH CARE


34. Prevention in Family Practice 335
• The Power of Prevention  335
• Prevention—Family Physician’s Role  336
• Prevention—Limiting Factors  336
• Promoting Prevention  337
• Levels of Preventions and Screening  337
• Opportunity for Prevention  338
• Scope for Prevention  339
35. Preventive Care Delivery: Barriers and Remedies 346
• Overview 346
• Barriers to Prevention  346
• Solutions to Barriers  351

SECTION 9: EDUCATION AND RESEARCH


36. Clinical Audit 359
• Why is Clinical Audit Important?  360
• Different Between Medical and Clinical Audit  360
• Multiprofessional Clinical Audit in Family Practice  361
• Difference Between Clinical Audit and Research  361
• The Audit Cycle  361
• Steps in Clinical Audit in any Particular General Practice  362
• Keep a Record  364

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xxviii  Family Medicine: A Clinical and Applied Orientation
• Confidentiality 365
• Audit—Pitfalls 365
37. Evidence-based Medicine: Principles 366
• A Case Scenario  366
• Case Study Continued  366
• Learning of Evidence-based Medicine (EBM)  367
• What is Evidence-based Medicine?  367
• Distinguishing Features of EBM 367
• Where did EBM Come From?  368
• The Rationale for EBM—The Paradigm Shift  368
• Definition of EBM and EBP  369
• Steps to Practicing EBM  370
• Advantage of EBM 373
• Limitations of EBM 373
• Misconceptions about EBM  374
38. Evidence-based Medicine: Practice 376
• Evidence-based Practice  376
• Adherence of EBP in General Practice/Family Medicine  376
• Concerns about EBM in Primary Care Practice  377
• Essentials of EBM in Primary Care Practice  380
• The Future of EBM in Primary Care  380
39. Research in Family Medicine 384
• Background of Research in Family Medicine  384
• What Constitutes Family/General Practice Research?  385
• Types of Research Methodology  386
• Good Research in Family Practice  389
• Research Strategies for Family Medicine  390
• Aims and Objectives of Research in Family Medicine  390
• Methodology or Logistics of Research  390
• What can Family Physicians do  391
• Suggested Research Training and its Incentives Rewards  393

Appendices 395
Index 407

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1
Section

Basic Principles
™™ Philosophy of Family Medicine
™™ Scope of Family Medicine
™™ Family Medicine—The Rising Discipline
™™ Definitions
™™ The “Family” in Family Medicine

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1 philosophy of
Family Medicine

“The art of medicine cannot be inherited, nor can it be copied from books....”
— Paracelsus

In 1927, in his now-famous essay "The Care of Thus, the physician who attempts to take
the Patient," Dr Francis Peabody, a physician, care of the patient while he neglects those
teacher and humanitarian affirms: factors that contribute to the emotional life of
“The practice of medicine in its broadest his patient is as unscientific as the investigator
sense includes the whole relationship of who neglects to control all the conditions
the physician with the patient. It is an art, that may affect his experiment. The good
based to an increasing extent on the medical physician knows his patients through, and his
sciences, but comprising much that still knowledge is bought dearly. Time, sympathy,
remains outside the realm of any science. The and understanding must be lavishly dispensed,
art of medicine and the science of medicine but the reward is to be found in that personal
are not antagonistic but supplementary to bond which forms the greatest satisfaction of
each other… good practice presupposes an the practice of medicine.”
understanding of the sciences that contribute These prolific words of wisdom, embedded
to the structure of modern medicine, but it indelibly into the minds of generations of
is obvious that sound professional training medical students, concluded the lecture given
should include much broader equipment. by Dr Francis W Peabody to Harvard students
The treatment of disease may be entirely on October 21, 1927, and the words have
impersonal; the care of the patient must be lasted well.1 Although much has changed since
completely personal. The significance of this essay was written, the importance and
the intimate personal relationship between appreciation of having or being a good personal
physician and the patient cannot be too physician has not. The philosophy of medicine
strongly emphasized, for in an extraordinarily expressed therein, i.e. “. . . for the secret of the
large number of cases both diagnosis and care of the patient is in caring for the patient…”
treatment are directly dependent on it, and is more relevant today than in 1927.
the failure of the young physician to establish But I am not a philosopher. I am a
this relationship accounts for much of his contemporary family physician and I practice
ineffectiveness in the care of patients. the well-founded concepts and principles of
What is spoken of as a “clinical picture” is general practice that my colleagues have been
not just a photograph of a man sick in bed; it following for umpteen years. However, at the
is an impressionistic painting of the patient beginning of my career, as a family physician, I
surrounded by his home, his work, his relations, realized that I was practicing a vocation for which
his friends, his joys, sorrows, hopes and fears. I had not received any special training. I found

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4  Section 1: Basic Principles
many of its principles and practices unique of doctor-patient relationship. This, Prof. Dr.
and new when applying them to unselected McWhinney has proposed as an “orgasmic
patients with heterogenous problems in an view”,2 that is an organism reacts to the traumas
ambulatory environment. The experience of life as a whole; all significant illness affects
within the confines of hospital wards, which the organism at every level, from the molecular
provided hardly any formal training in areas to the cognitive and affective.
such as family dynamics, behavioural and Over the years these reflections changed my
social sciences, or health promotion and attitude to illness and sufferings, and also my
prevention made it difficult to unravel the bio- relationship with patients. I began, as did most
psychosocial factors involved in the genesis of general physicians, to develop a continuing
illness and diseases in an individual or family. relationship with my patients who returned to
Many illnesses I encountered were the results of me with different complaints and illnesses. As
complex individual or family factors that defied I became increasingly familiar with individual
conventional treatment. Many were ill with family members that I cared for, I began to see
little physical evidence of disease. On many the family as more than simply a collection
occasions the relentless search for diagnosis of individuals. Instead, I became aware of
was self-defeating. the unique interactions and dynamics within
As time rolled by and I started “graduating” each family and realized that family is a living
in family practice, I realized that the unit and basic social group of society, which
fundamental functions of the family physician influences health status and health behavior of
go beyond the generic clinical process of people. Through them we have an opportunity
history, physical examination, investigations, to learn about shared human experience. Both
diagnosis and treatment, which is emphasized the patient and the doctor transcend to a point
in the management of “cases” we see in the of recognizing and understanding each other.
wards. Rather, the clinical acumen required of In family practice this mutual recognition
a family physician need distinct approach and and trust translates into profound respect for
special skills in eliciting concerns, focusing on the doctor-patient relationship. Recognition
the key issues to negotiate plans, and helping does not merely involve seeing the patient in
solve problems by sharing responsibilities, a whole sense, but also involves recognition
and managing uncertainties. The focus is on of the doctor as a whole personality. Both the
the individual or family members , requiring doctor and the patient appreciate and share
refined interpersonal abilities for observing and this process, which develops gradually and
seeing, listening and hearing, understanding, almost subconsciously. Both the doctor and
finding meaning and, most of all, caring. the patient are enlightened and enriched by the
The essence of our clinical methods in intimate process of personal discovery of trust
general practice is that the body, the emotions, and respect. Although physical examination
and the patient’s experience of illness are and clinical diagnosis were important, the
attended in every case; the degree of attention subtle elements that influenced patient’s illness
obviously depending on the individual outcomes became interwoven with a life story.3
circumstances. If we are to be healers, we Thus, sharing the past and future with
need to know our patients as individuals; patients, I gained an insight in their unique
they may have their illness in common, but in medical history and personal circumstances.
their response to illness they are unique. Even I learnt how family physicians help interpret the
in a relatively minor condition, the illness is symptoms, monitor the course, and raise alerts
assessed as a whole, including an assessment to action when needed. Even when a person

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Chapter 1: Philosophy of Family Medicine 5

is terminally ill, the efforts concentrate on the cure. When therapy fails, physicians must
potential of life’s sustenance. Deliberately find other ways to be with the suffering soul
involving in the last stages of another person’s and their families. Gayle Stephens recognized
life, investing time and energy, and to become that “patient management does not equal
attached to someone who will soon die is a treatment but is a much broader concept,
daring and courageous act. As physicians we including when to treat, when not to treat,
are deprived of our “bag of tricks” and have and how to take responsibility over time for a
no cure to offer for our patients at their end- string of treatment choices.”4 Sooner or later,
of-life existence. Our knowledge of drugs and physicians, after many such experiences,
available support services may ease patients’ realize that, “medicine sometimes cures, often
suffering but, more than anything else, it is our relieves, but always consoles”, and discover
attentive concern and love that are helpful to the extraordinary experience of sharing the
the patient. In this process family physicians human process of life and death. Birth, joy,
shares the pain, distress and suffering along strength and success are as integral as pain,
with the bedridden and their family. In suffering, weakness and dying. Being there
this turmoil of human existence everyone for the patient and the family at these times is
experiences to have “gained” something in a part of the privilege and the process of family
situation traditionally considered one to solely practice. You can pretend to know, you can
of “loss”. During this sojourn, we, as physicians, pretend to care, but you cannot pretend to
are not expected to “know everything”; we are be there. It is by being there for patients that
expected to share our knowledge to the extent the family doctor provides the needs patients
that is useful, but more importantly, we are seek: touch, trust, understanding, comfort and
expected to share our human understanding.3 healing. No substitute suffices.3
For patients, the “good” doctor recognizes This then becomes the basis of what
the common frailty and the humanness within constitutes the “Philosophy of Family Practice”
each person and develops empathy and and what it sets apart from other branches of
respect for every person. Patients recognize medicine.
their doctors may make mistakes and miss The number of specialties in medicine has
diagnosis. No one can be perfect no matter grown significantly over the past several years.
how hard they strive to be. But the impact is At this time, there are numerous specialties
more tolerable, as both doctor and the patient and sub-specialties recognized by medical
recognize each other and all are participants fraternity all over the world. Yet, family medicine
together in the process of human sufferings.3 transcends them all. As Howard Stein argues
Family physicians have the ongoing long- so cogently, “Our legitimacy lies not in the
term contract with patients through thick and ownership of disease entities or social units,
thin, and most specifically, in situations where but in the world-view of inter-relatedness
medical treatment has “failed”. It not only fails which we reintroduce into medicine. If we are
the patient, but also the doctor, who has until able to resolve our identity conflict without
then based his/her whole working relationship choosing either of these two extreme solutions,
on the implicit promise of treatment and — i.e. amalgam and specialty myth* — family

*The "Amalgam Myth" states that family medicine is simply a melding together of the major clinical
disciplines along with some behavioral science … family medicine is seen as nothing more than the sum
of its parts; it consists of the "easy parts" of each of the specialties it comprises. The "Specialty Myth" is
an attempt to achieve credibility with other academic colleagues and status in the eyes of the public, and
thus claim to the family as an area of expertise and become just another specialty.

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6  Section 1: Basic Principles
medicine can fulfill its promise of becoming context of the family and community, “the
a discipline that transcends specialties as it shifting sands of the beaches and remodeling
integrates them into a new whole.”5 Further of the shoreline reminds us that changes
Edmund Pellegrino, MD, observed: “Human occur over time.”9 While the improvements in
diseases do not come in neatly labeled medical technological progress and scientific
categories nor are humans so tractable as to discoveries are promising, it is regrettable
develop disorders in only one organ system at that the absence of warmth is sorely missed
a time. The very development of specialization, in the present day health care to the needy.
while essential, only accumulates the need for a The art of healing has been transformed to a
corresponding development of the integrative highly specialized one, utilizing sophisticated
functions of the generalist.”6 machinery linked to the electronic age. Too
What Dr Francis Peabody foresaw over often the patient is lost or forgotten in the
eighty years ago still holds true today: "Never process of hi-tech diagnosis and treatment.
was the public in need of wise, broadly-trained Decisions are now based on computer
advisors so much as it needs them today to printouts, resulting in doctors becoming part
guide them through the complicated maze of the robotic process themselves, becoming
of modern medicine. The extraordinary dehumanized to the extent that he comes to
development of medical science with its rely on miracle drugs and wonder machines
consequent diversity of medical specialists becoming oblivious of the Supreme Healer.
and the increasing limitations in the extent of Herb Fred10, in his article “The Tyranny of
special fields—indeed, the very factors which Technology”, coins the term “technologic
are creating specialists in themselves—create tenesmus” to describe the uncontrollable urge
a new demand. Not for men who are experts to rely on sophisticated medical gadgetry for
along narrow lines but for men who are in diagnosis. The challenge, therefore, is to use
touch with many lines." technology to enhance the fundamental goals
Family medicine represents an approach and principles of Family Medicine rather than
to patients, which is open-ended and not have technology dictate or interfere with our
delimited by discipline: the commitment is primary mission.11
to the patient, not to a body of knowledge. Our forebears in general practice and the
Anything the patient wants to talk about is founding leaders of family practice movement
relevant. Caring and compassion are valued understood the need for physicians who
more highly than the ability to recite the latest practice medicine with both science and care.
facts. This concern of general practitioners “By its traditions and very nature, medicine
toward total management of patients and is a special kind of human activity — one
family members completes their transition that cannot be pursued effectively without
from a general practitioner to a family doctor. the virtues of humility, honesty, intellectual
It is over forty years since family medicine integrity, compassion, and effacement of
became a recognized specialty.7,8 However, excessive self-interest. These traits mark
medicine is standing at its crossroads today. physicians as members of a moral community
The science of medicine and its organization dedicated to something other than its own
have been changing expeditiously. Although, self-interest”. 12 These principles are more
the specialty of family medicine remains important than ever as we face the changing
grounded in providing comprehensive, currents in the complex world of health care
continuous, compassionate care in the in this new century.

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Chapter 1: Philosophy of Family Medicine 7

References 7. Web site : http://www.rcgp.org.uk/about_


us/history_heritage__archives/history__
1. The Caring Physician: The Life of Dr. Francis
chronology/history_essay.aspx (accessed on
W. Peabody. N Engl J Med. 1993;328:817–18.
21-09-2011).
2. McWhinney IR. Being a General Practitioner:
8. Web site: http://fmignet.aafp.org/online/
What it means. Oration given at the 2000.
fmig/index/family-medicine/defining-the-
WONCA European Conference. Vienna.
specialty/history-scope-resources.html
3. Woolford P. Thesis in Philosophy of general
(accessed on 21-09-2011).
practice. NZFP. 2002:29(1).
4. Stephens GG. The Intellectual Basis of Fam. 9. Philips WR et al. The domain of family
Med. Revisited; Fam Med. 1998;30(9):642–54. practice; scope, role, and function. Fam Med.
5. Stein HF. Family medicine as a meta-specialty- 2001;33(4):273–77.
and the dangers of over definition. Fam Med. 10. Fred HL . The tyranny of technology.
1981;13(3):3–7; as quoted by Wayne Weston in Hosp Pract (Off Ed). 1997;32(3):17–8,21
“The foundations of curriculum for PG education (PMID:9078964:Abstract).
in Fam Med., Dept. of Fam Pract. Residency 11. Ebell MH, et al. What can technology do to,
Program, The Univ of British Columbia. 2000. and for, family medicine? Fam Med. 2001;
6. Brody H, Edmund D. Pellegrino's philosophy 33(4):311–9.(PMID:11322524:Abstract).
of family practice. Theor Med. 1997 Mar- 12. Cranshaw R, et al. Patient-physician covenant.
Jun;18(1-2):7–20.(PMID:9129389:Abstract). JAMA. 1995;273:1553.

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2 Scope of
Family Medicine

“The education of the doctor which goes on after he has his degree is, after all,
the most important part of his education.”
— John Shaw Billings (1838-1913)

Introduction Three Facets of Family Practice


All around the world, family physicians Typically, family practice consists of three
are recognized as the essential link in the characteristic aspects, namely: Knowledge,
health care system. They work as an interface skill and process knowledge, skill, and
between the community on one hand and process.1 While knowledge and skill may be
the health care system on the other. They shared with other specialties, the “process” of
are the doctors of first contact and provide family practice is unique. At the center of this
primary, continuing, comprehensive, and “process” is the patient-physician relationship
coordinated care for patients and families in with the patient viewed in the context of
their community setting. They are strategically the family.  It is the extent to which this
placed to understand the health care needs relationship is valued, developed, nurtured
of the community and how the health care and maintained that distinguishes family
system can meet them. practice from all other specialties. The family
Family, the basic unit of society, is the most physician must accomplish this function in the
fundamental foundation, which influences framework of an increasingly complex social
health status and health behavior of people. system, characterized by rapid technological
Therefore, it should be the focal point of health advances, taking into account the changing
care delivery. Obviously, family medicine patterns of illness and changing expectations
is neither a disease oriented nor a human about health.
organ oriented specialty; rather it is a health In the “process” of caring for the whole
care centered on family as a unit. In the most family, family physicians not only gain
comprehensive sense, the aim of family knowledge, but also enlarge their scope of
medicine is to promote positive health care of action. Whenever situation arises, they can
all family members, diagnose and treat disease change their focus from individual to family
at its early stage, minimize disability and also and back again. In many situations in which
help in rehabilitation, if necessary. Therefore, illness of an individual is followed by family
the scope of practice is extended from personal dysfunction, they can quite readily direct their
care to family care, from first contact to an actions to the family as a whole.
ongoing care, and from curative to health care The family physician’s personal knowledge
prevention and rehabilitation. of patients is a confidential information about

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Chapter 2: Scope of Family Medicine 9

particular patients who the physician has perform autopsies too. Family physicians with
cared for over a series of encounters spanning such skills and capabilities are common in rural
several years. It is a detailed portrait painted areas. At the other end of the spectrum are family
with layers of fact, intuition, and experience physicians who limit their care to office practice
and is comprized of a mix of clinical art, and coordinate comprehensive care for their
science, psychodynamics, and ethics.2 This patients in a multi-speciality group.
personal knowledge can be used in making Furthermore, the speciality of family
hypothesis about problems they encounter in medicine is ever changing.  Depending on
the family. the needs of the patient and the resources
required, family physicians provide definitive
Matrix of Family Practice care, shared care, supportive care, or direct the
Family physicians refer patients when care provided by their colleagues. The Keystone
indicated to other sources of care while III conference3 held at Colorado to discuss
preserving continuity of care. The family family practice in United States and its status
physician’s role as a cost-effective coordinator after thirty years of development found that
of the patient’s health services is integral to the the emerging generation of family physicians
care provided. If the patient is hospitalized, (generation three) sees family practice in a
this role prevents fragmentation and lack of wider variety of roles, choosing academics or
coordination of care. This role also allows research or public administration. They can
the family physician to serve as the patient’s be teachers to all their patients and to many of
advocate in dealing with mediclaim insurance their colleagues. Family physician may also be
and managed care policies that are in vogue in a scientist, scholar and advocate of health care
many countries. organizations and committees, chairing either
The form of family practice follows the independently or collectively, and helping
function of family physicians. Family physicians to define the policies for the future of family
acquire and maintain a broad and varying array practice. Some family physicians develop an
of competencies, depending on the needs of area of special interest and expertise, such
the population they serve, the communities in as sports medicine, geriatrics, preventive
which they practice, and the environments in care, international health, women’s health,
which both they and their patients work and adolescent health or emergency medicine.
live. Therefore, although all family physicians Family physicians who maintain a broad
share a core of information, the dimensions of scope of practice may find themselves better
knowledge and skill vary with the individual positioned to demonstrate their relative value
family physician based on patient’s needs in the new century and justify higher incomes
and the physician’s continuing education.  As as the health care system continues to change
patient’s needs differ in various geographic areas, (Fig. 2.1).
the content of a family physician’s practice and The family physician’s practice continually
scope varies accordingly. At one end are family evolves as competency in current skills is
physicians who may be the only local source maintained and new knowledge and skill
for health care for their community. Besides are obtained through continuing medical
attending patients in outpatient department, education.  This growth in medical information
they look after trauma cases, deliver babies, care also confers on the family physician a
for the seriously ill patients in hospital units, responsibility for the assessment of new
stabilize patients for transport if necessary, and medical technology and for participation in

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10  Section 1: Basic Principles

Fig. 2.1  Family medicine—scope

resolving ethical dilemmas brought about periods of time. The goal of modern medicine
by these technological advances. Although is no longer merely treatment of sickness. The
family physicians should exploit the expanding more important goals that have emerged are
technologies in the field of information and prevention of disease, promotion of health and
communication, they must guard against improvement of quality of life of individuals
displacing the essence of patient-physician and groups or communities. It is this move
communication. from curative to preventive to promotive
medicine that family physicians have to adopt,
Proactive Role of Family Physician if they have to survive in their role of a friend,
At present, family physicians have been philosopher and guide to the family under
devoting most of their attention to curative their care. Therefore, family physicians have to
medicine. But with the rapid changes in be the best health educator of the family. The
society, they are now obliged to get away from ideal patient-doctor relationship that exists—
this traditional pre-occupation of diagnosis the confidence and the respect they have in
and treatment, though they are essential, to their physician—can build an ideal house of
meet a more urgent challenge of keeping their perfect health; and to achieve this goal, the
patients in a state of complete well-being, family physician can use health education as
using every paraphernalia at their disposal. an effective tool.
Thus, medicine today is no longer on the Above all, the scope of family practice
defensive in the fight against disease and its is dynamic, expanding, and evolutionary—
consequences and sequelae, but is now on the encompassing healthcare for all the major
offensive with a positive dynamic promotion events of the family—marriage, birth, infancy,
of optimum health. As the 20th century childhood, adolescence, adulthood, aging,
progressed and scientific medicine advanced trauma, illness and death. Care devoted to the
and differentiated, the pattern of health care patient as a “whole person” all through these
has changed dramatically. The concept of phases of life cycle enriches the knowledge
general practitioner has emerged in a new form of the family physician as well. The family
with several disciplines to what has come to be physician need not be all things, to all people
called “primary care”, providing broad-based all the times. He or she should, however, try to
care to their patients and families over long bring something special to each patient, each

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Chapter 2: Scope of Family Medicine 11

encounter and something more over time. incorporate them to survive in their role of a
“What keeps the doctor devoted to the patient friend, philosopher, and guide to the families
is the reflection at the end of the demanding under their care.
day that he or she made a difference in
the life of an important person. For the References
family physician this reward is enhanced by 1. American Academy of Fam. Phy. Reference
understanding the patient’s life, knowing the Manual. Family Medicine, Scope and
family, and livelihood in the community.”4 Philosophical Statement Web site: http://www.
aafp.org/online/en/home/policy/policies/f/
Conclusion scopephil.html (accessed on 24-09-2011).
In summary, the scope of family medicine is 2. Weyrauch KF. The personal knowledge of
family physicians for their patients. Fam
extended from personal care to family care,
Med. 1994;26(7):452–5. Review. (PMID:
from first contact care to an ongoing care, and
7926363:Abstract).
from curative to a comprehensive health care, 3. The Robert Graham Center, Keystone III,
i.e. from health prevention to rehabilitation. Cheyenne Mountain Convention Center,
In recent years the rapid growth in medical Colorado Springs, Colorado. 2000;4–8. 
technology and information confers on family 4. Phillps WR, et al. The domain of family practice.
physicians the responsibilities to judiciously 2001;33(4):273–7.

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3 FAMILY MEDICINE—THE
RISING DISCIPLINE

“Medicine arose out of the primary sympathy of a man with man; out of the
desire to help those in sorrow, need and sickness.”
“The basis of medicine is sympathy and the desire to help others and
whatever is done with this end must be called medicine.”
— Sir William Osler, “The Evolution of Modern Medicine.”
Yale University, April 1913.

History the time of Henry VIII. They had graduated


from universities and looked after the
The origin of medicine can be traced to the
health of wealthy population. They did not
evolution of mankind. Throughout history
dispense medicine, did not mix freely with
people have tried to cure illness and restore
other health professionals and labor class
health. The development of modern medicine
of society. They did not do any surgery. The
is not only linked with old magical rites and
leading physicians of the time wanted the
religious creeds with primitive opotherapy
power to grant licenses to those qualified
and classical Hippocratism with dogmatic
to practice medicine. “Six physicians, three
doctrines and revolutionary discoveries, but it’s
of them Court physicians, petitioned on
also intimately associated with the economic,
behalf of the physicians of London that they
intellectual and political conditions at different
might be incorporated as a college. Their
times including the past traditional cultures and
leader was Thomas Linacre, who became
knowledge of eminent individuals.
the first president.”2 By royal charter of King
The history of “General Practice” as a Henry VIII in 1518 they formed “The Royal
specific discipline is long and tortuous.1 The College of Physicians,” London.
first physicians were “generalists” (general 2. The Surgeons — In the mid 14th century,
practitioner* is derived from the Latin word there was a separation between medicine
“genus”, meaning “generalis” and the Greek and surgery, the latter having fallen into
word “praktikos” meaning “practice”). For disrepute with operations being carried
thousands of years, these generalists provided out by manual workers who were barbers,
all of the medical care available.  craftsmen and carpenters by profession.
The modern Anglo-Saxon medical system we This was a form of specialization. In fact
know today has its roots in three main groups: in 1462, King Edward IV of England gave
1. The Physician—Initially there were the right to practice surgery to the Barbers’
physicians whose charter dated back to Company instead of the Surgeon’s Guild

*The term general practitioner first came into use around 1810.

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Chapter 3: Family Medicine—The Rising Discipline 13

and this status quo existed till 1745, when In 1704 the Society won a key legal suit
the surgeons broke away from the barbers (known as the Rose Case) against the Royal
to form the Company of Surgeons. In 1800 College of Physicians in the House of Lords,
the Company was granted a Royal Charter which ruled that apothecaries could both
to become the Royal College of Surgeons in prescribe and dispense medicines. This led
London, which later amended its charter to directly to the evolution of the apothecary into
become “The Royal College of Surgeons of today’s general practitioner of medicine.
England” in 1843.3,4 Just over a century later, as a result of
3. T h e Ap o t h e c a r i e s 5 —T h e “g e n e ra l the Apothecaries’ Act of 1815, the Society
practitioner” is a direct descendent of was given the statutory right to conduct
the “apothecary”, which comes from the examinations and to grant licences to practise
Latin word apotheca, meaning a place medicine throughout England and Wales, as
where wine, spices and herbs were stored. well as the duty of regulating such practice.
The origin of apothecaries dates back to The Apothecaries Act of 1815 declared
mediaeval times from the itinerant medicine that only those licensed by the Society of
sellers, known as Grocers, Pepperers, and Apothecaries could legally practice as one.
Spicers. During the thirteenth century in Becoming registered involved a 5- year
United Kingdom, some persons kept a apprenticeship, a 6-month hospital attachment
stock of these commodities which they sold and final exams. This was a momentous step
from their shops or street stalls. By charter that gave apothecaries standing in their own
in the year 1617 the medicine sellers were right. In 1830, following the test case called
allowed the exclusive right to keep a shop Rose case in the courts** where an apothecary
with bottled leeches and lotions of various successfully sued an attorney for the bill for his
kinds. From 1672 until 1922, the Society professional services. The editorial of the Lancet
of Apothecaries manufactured and sold proclaimed that, “the subordinate members of
medicinal and pharmaceutical products at the profession, i.e. the “general practitioners”,
the Apothecaries’ Hall*. Quick to keep them have been raised 1,000 degrees in the scale of
in their place, the physicians obtained an professional respectability and 10,000 degrees
order, forbidding apothecaries to prescribe in the estimation of society.” This decision in the
medicine; but in 1664 the Great plague Rose case gave legal confirmation to the role of
pandemic—“the black death”—turned the apothecary as ‘general practitioners’ rather than
tables. It was noted that qualified physicians tradesmen. This was the first usage of the term
had been the ones who picked up their gear “general practitioner” and it has remained the
and left town, most physicians had fled the common descriptor ever since.8
city for their own safety, leaving the sick and The General Medical Council (GMC)
healthy behind; at a time when they were was established under the Medical Act of
most needed, while the apothecaries stayed 1858 in England which exclusively maintains
to care for the ill.6, 7 the standards and discipline of the medical

*The Society's Hall in Blackfriars, UK, formerly the guesthouse of the Dominican Priory of the Black
Friars, was acquired in 1632. Destroyed in the Great Fire of London, it was re-built by 1672 on the same
site, where it still stands.
**The Rose case of 1703–04: Apothecaries were permitted to charge for medicines but not for medical
advice or diagnosis.

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14  Section 1: Basic Principles
profession. It specifies the requirements for As 20th century progressed and scientific
training and examination of anyone who medicine advanced, specialty medicine was
would be allowed to become a doctor. Indeed it born and the pattern of medical care changed
allowed general practitioners to be addressed dramatically in many European and Asian
with the title of “doctor”, although the College countries. Medical knowledge expanded and
of Physicians fought a 50-year battle against technology advanced and many physicians
this. Women were allowed to join from 1876, chose to limit their practices to specific,
and there was resistance against this move too. defined areas of medicine.  With World War II,
Thus, in the beginning of the 19th century the age of specialization began to flourish.  In
there were three distinct classes of medical the two decades following the war, the number
practitioners comprizing of the physicians, of specialists and sub-specialists increased at a
surgeons (who by then had taken over from phenomenal rate, while the number of general
the barbers), and the apothecaries. Each had practitioners declined dramatically.  The
its own governing body with licensing rights, proverbial art and science of medicine moved
which ensured that minimum standards were from “organisms to organs, from organ to the
kept. In 1815, the Apothecaries Act made it cell, and from cell to molecular and genetic
compulsory for apothecaries to undergo a levels.” 9 The public became increasingly
5-year apprenticeship in anatomy, physiology, vocal about the fragmentation of their care
clinical medicine and materia medica, which and the shortage of personal physicians
was essentially an index of the remedies who could provide initial, continuing and
available then. It also established a qualifying comprehensive care.  This fragmented system
examination, the Licentiate of the Society of of the health care needs of the common
Apothecaries (LSA). It is sometimes argued household people has been explained in an
that the Apothecaries Act of 1815 was not anonymous practitioner’s letter in 1850, which
only the generator of medical education as states:
known today, but that it also led toward a “The countess of A, or Mrs B the city
united medical profession by transforming millionaire’s wife, has a physician for one
the general practitioner into a scientifically complaint, a surgeon for another, a physician
trained professional man. In 1858 the General accoucher for a third; and an apothecary,
Medical Council made it compulsory for all probably provides the medicines and attends
practitioners to pass final examinations in the the children and servants. But how is this
three main subjects of medicine, surgery and possible for a person in ordinary circumstances?
midwifery. “Lancet” coined the term ‘general It is, therefore, absolutely necessary that, to
practitioner’ for them in 1823.1 supply the wants of the middle and lower
Early 20th century was the beginning of classes in the metropolis, and of nearly all
the golden era of general practice, and general ranks in the provincial towns and villages,
practice as a whole was thriving. Medicine was there should exit a branch of the profession,
practiced as a blend of science and art. The the members of which must be competent to
general practitioners were known as family undertake the management of all diseases.”10
doctors. Some critics described this “hi-tech”
medicine as a threat to the health of the
Age of Specialization population at large, leading the health system
The next phase of development was the age of in the wrong direction, i.e. away from the
specialization. health promotion for the many and toward

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Chapter 3: Family Medicine—The Rising Discipline 15

expensive treatment for the few. This has been a need and the expanding pool of knowledge
called as a “failure of success.”11 (Table 3.1). As the frontiers of knowledge are
Way back in 1923, Dr Francis Peabody, pushed further, family medicine itself has
Prof. of Medicine at Harvard, commented evolved into a specialty of its own, requiring
that specialization in medicine had already specialist skills and expertize in providing
reached its apex and that modern medicine comprehensive care for the person as a whole.
had fragmented the health care delivery system
to too great a degree. He called for a rapid Revival of Family Medicine
return of the general physician who would give
The revival of Family Medicine, brought
comprehensive and personalized care.
about by a confluence of political and social
In 1960s, three reports—namely Folson*,
changes in the 1960s, has been hailed by
Millis**, and Willard*** committee reports,
communities and supported subsequently by
along with a generation of visionary leaders
some governments. The upsurge of interest
in general practice in United States, such
was seen especially in USA and United
as Abraham Flexner (1866–1959), who was
Kingdom.
responsible for major transformations of
American elementary, secondary, medical, In America, the American Academy of
and postgraduate education made similar General Practice (AAGP) was founded in 1947
recommendations. 12 The 60s brought the and the first residency training programs in
appropriate social forces, and the right general practice commenced in 1950. In 1969,
environment for Family Medicine to be born the American Board of Family Practice (ABFP)
as a new specialty. In fact many people see was formed and Family Medicine was recognized
Family Medicine as one outgrowth of the as the 20th American medical speciality. Many
“Counterculture movement”, perhaps as a approved family practice residencies in the
child of the sixties.13,14,15 This outcry led to the United States are initiated,16 and the first ABFP
reorientation of medicine back to personal and examination took place in 1970. In the same year,
primary care. The concept of the generalist 1970, the American Academy of General Practice
was reborn with the establishment of family changed its name to the American Academy of
practice as a specialty. Family Physicians (AAFP).11
Thus it can be seen that general practice In the United Kingdom, the Royal College
and other specialties evolved from different of General Practitioners was founded on 19th
origins and the evolution was in response to November 1952. It offers specialty course in

*The Folsom Report. Presented in 1966, this report was sponsored by national public health authorities.
One of the many recommendations of this commission was the concept that every American should have
their own personal physician.
** The Millis Report. Sponsored by the American Medical Association (AMA) and also published in 1966,
the Millis report focused on graduate medical education and encouraged specific efforts designed to
increase the number of physicians who could replace the dwindling reserve of general practitioners. This
report emphasized clinical competence, continuity and prevention.
***The Willard Report. Sponsored by the AMA, the Willard report recommended creating a separate training
track in family practice. It also recommended creating a speciality board to oversee certification in family
practice. The American Board of Family Practice was born in 1969.
(Source: Saultz JW. Family physicians in America: A brief history. An overview and history of the specialty
of Family Practice. In Saultz JW (Ed). Textbook of Family Medicine: Defining and examining the discipline.
New York: McGraw-Hill. 2000;3–16).

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16  Section 1: Basic Principles
TABLE 3.1  Certain events of importance in the history of evolution of general practice

1462 – King Edward IV of England gave the right to practice surgery to the Barbers’ Company
1518 – The Royal College of Physicians, London formed
1540 – The Company of Barber-Surgeon of London established
1617 – The Society of Apothecaries established
1704 – The Rose case: This landmark ruling formed the basis for the legal recognition of apothecaries as
doctors, and marked the beginning of the general practice of medicine
1745 – Surgeons broke away from the barbers to form the Company of Surgeons
1800 – Foundation of Royal College of Surgeons, London
1810 – The term general practitioner first came into use
1815 – The Apothecaries Act/compulsory 5-year apprenticeship
1815 – The title of Licentiate of the Society of Apothecaries (LSA )
1826 – The Association of General Medical and Surgical Practitioners
1843 – College of Surgeons of England
1855 – British Medical Association
1858 – General Medical Council was established in England
1876 – Women were allowed to join
1923 – Dr. Francis Peabody, Prof. of Medicine at Harvard, called for return of the general physician
1907 – LSA title altered to LMSSA, indicating inclusion of Medicine and Surgery
1928 – Apothecaries Society administers postgraduate diplomas in 12 specialist subjects
1947 – American Academy of General Practice (AAGP) was founded
1950 – First residency training programs in general practice commenced in USA
1952 – Royal College of General Practitioners’, United Kingdom, was founded on 19th November 1952.
1958 The Australian College of General Practitioners was formed
1960 – Three reports – namely Folson, Millis, and Willard committee reports in United States recommend
return of the general physician
1963 – Indian Medical Association (IMA) started the College of General Practitioners
1969 – American Board of Family Practice (ABFP) was formed
1969 – Family Medicine was recognized as the 20th American medical specialty.
1970 – First ABFP examination/certification took place
1971 – AAGP changed its name to the American Academy of Family Physicians (AAFP)
1971 – The College of family Physicians Singapore formed
1972 – WONCA was founded
1978 – The Declaration of Alma Ata: The International Conference on Primary Health Care

General Practice with systematic training i.e. World Organization of National Colleges,
programmes on par with other fellowship Academies and Academic Associations of
examinations.17 General Practitioners/Family Physicians -
Today, we have our flagship organization, WONCA)*, which is made up of national
the World Organization of Family Doctors, colleges, academies or organizations concerned

*Ref. Appendix 3.

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Chapter 3: Family Medicine—The Rising Discipline 17

with the academic aspects of general family based and delivered through National Board
practice. Beginning with 18 members in 1972, of Examination—a body of Ministry of Health
there are now 120 member organizations in 99 and Family Welfare, India, accredited health
countries. This includes ten organizations in institution. Further, the present Indian Medical
collaborative relations with WONCA. In all, the Council is in favor of implementing in near
total membership of the member organizations future strategies to ensure proper place for
of WONCA is over 250,000 general practitioners/ family doctors in health care delivery systems
family physicians.18 WONCA represents and acts by establishing new departments of Family
as an advocate for its constituent members at an Medicine in all medical colleges, and the process
international level where it interacts with world of a suitable curriculum of Family Medicine at
bodies such as the World Health Organization. undergraduate and postgraduate level is under
The family physician constitutes the preparation.22 The WHO project report on
fundamental core of the health systems in core curriculum asserts, “The current trend
Canada, Australia, New Zealand, Netherlands in specialization with advanced technology,
and Spain. The general practitioner is the key decentralization and community-based care in
provider in the National Health System in countries of the South East Asia region further
the UK. In Cuba, the family physician is the underscores the need to cut across territorial
chief provider in their comprehensive health boundaries of all traditional specialties with
plan. The family practice is also active with varied clinical skills to promote primary care
university faculty departments in South Korea, in the district health system.”19
Malaysia, Hong Kong, Singapore, Indonesia, From a position during the sixties, when
Taiwan, Philippines, Myanmar, Bangladesh, little if any, attention was paid to the specific
and Pakistan. The nature of care varies from training of the general practitioner/family
country to country, and may even involve an physician at either the undergraduate or
active role in hospital care. Thus the nature graduate levels of medical education, training
of the curriculum of training programmes in programmes in family medicine are now in
family medicine, the time duration, and the the educational limelight. Great progress has
ratio of preventive/curative care varies from been made to establish family medicine as a
country to country.19 distinct educational discipline. Most medical
In countries of South-East Asian region, Sri schools in developed countries have University
Lanka (Family Medicine), Thailand (Family Departments of Family Medicine providing
Medicine), and Nepal (General Practice), training programmes in Family Medicine
have introduced this discipline as full-fledged with teaching responsibilities at both the
specialties. In 1963, the Indian Medical undergraduate and graduate levels of medical
Association started the College of General education.
Practitioners, and since 1977 the College is
conducting its Fellowship examination in
Future
the specialty of Family Medicine. Since 1977
the National Board of Examination, New “You plant a seed, water it, weed it… but you
Delhi, with training for qualified doctors in don’t grow the seed. All you can do is create
accredited hospital throughout the country, perfect conditions for the universe to grow the
is conducting a certifying course in Family seed for you.”
Medicine.20,21* This training program is largely — Sonia Choquette

*Ref. Appendix 1 and 2.

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18  Section 1: Basic Principles
The specialty of family medicine was created 1. Promoting a broader, more accurate
in 1960s to meet people’s needs for renewal understanding of the specialty among the
of the generalist function in medicine, for a public.
whole-person focus, and continuity of care that 2. Identifying areas of commonality in a
was comprehensive and coordinated. specialty whose strength is its wide scope
It is more than 40 years now that a phase and locally adapted practice types.
has reached to assess whether these core 3. Winning respect for the specialty in
attributes were still integral to both how academic circles.
physicians approached their practice and to the
4. Making family medicine a more attractive
patients they care for. “It is widely recognized
career option, and
that family medicine now faces substantial
5. Addressing the public perception that
challenges that imperil its future (Table 3.2).
family medicine is not solidly grounded in
Today, high-tech and sub-specialty medicine
science and technology.
plus chronic disease management are the foci
of most academic health centers and large The FFM Project Leadership Committee
hospital systems, while primary care, including concluded that changes must occur within
family medicine, often is not considered a the specialty, as well as within the broader
key component of medical care. Addressing health care system, to ensure the ability of
these challenges will require an examination family medicine to meet these challenges and
of the present system incorporating health continue to fulfill its unique mission and role.
care economy, our training model, our basic Showstack et al 25 suggests seven core
principles, and our model of care delivery principles (and a set of actions) that will
(Table 3.3).”23 support a renaissance in, and a positive future
Further, the “Future of Family Medicine for primary care. The seven principles are:
(FFM) Project Leadership Report” identifies 1. Health care must be organized to serve the
five challenges affecting our future viability:24 needs of the patients.

TABLE 3.2  Major challenges facing family medicine

Generating an understanding of family practice


Despite its 30-year history, neither the general public nor health care professionals understand all that family
practice represents.
Organizing individuality. There is significant variance in practice scope from one family physician to the next.
As a specialty, family medicine has deliberately resisted specific definition from the beginning.
Winning respect in academic circles. Family medicine suffers as a result of not having gained the respect
and resultant endorsement of key academic institutions. Some medical schools feel that family medicine will
bring neither money nor recognition to the school; as a result, they neither support the specialty nor encourage
students to pursue it.
Making family medicine an attractive career option. Issues requiring attention include: inadequate
remuneration, little recognition in the medical field, managed care challenges, quality of care yielding to
pressures to increase the quantity of visits, and specialists thinking general internists are better diagnosticians
than family physicians.
Addressing the obsession with science and technology in the United States. Family medicine is associated
with neither; some people think family physicians are old-fashioned and cannot handle more critical health
issues. There is a conspicuous absence of family medicine breakthrough research.

Source: Report of the Task Force on Patient Expectations, Core Values, Reintegration, and the New Model of
Family Medicine. Task Force 1 Writing Group* Annals of Family Medicine 2:S33-S50 (2004) © 2004 Annals of
Family Medicine, Inc. doi: 10.1370/afm.134

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Chapter 3: Family Medicine—The Rising Discipline 19
TABLE 3.3  Family medicine: Traditional vs new model of practice
Traditional model New model
Systems often disrupt the patient-physician relationship Systems support continuous healing relationships
Care is provided to both sexes and all ages; includes Care is provided to both sexes and all ages; includes
all stages of the individual and family life cycles in all stages of the individual and family life cycles in
continuous, healing relationships continuous, healing relationships
Physician is center stage Patient is center stage
Unnecessary barriers to access by patients Open access by patients
Care is mostly reactive Care is both responsive and prospective
Care is often fragmented Care is integrated
Paper medical record Electronic health record
Unpredictable package of services is offered Commitment to providing directly and/or coordinating
a defined basket of services
Individual patient oriented Individual and community oriented
Communication with practice is synchronous (in person Communication with practice is both synchronous and
and by telephone) asynchronous (e-mail, Web portal, voicemail)
Quality and safety can be assumed Processes are in place for ongoing measurement and
improvement of quality and safety
Physician is the main source of care Multidisciplinary team is the source of care
Individual physician-patient visits Individual and group visits involving several patients
and members of the health care team
Consumes knowledge Generates new knowledge through practice-based
research
Experience based Evidence based
Haphazard chronic disease management Purposeful, organized chronic disease management
Struggles financially, undercapitalized Positive financial margin, adequately capitalized

Source: Future of Family Medicine Project Leadership Committee. The future of family medicine: a collaborative
project of the family medicine community. Ann Fam Med. 2004; 2(Suppl 1):S3-S32.

2. The goal of primary care systems should Learning to be a family physician requires
be the delivery of the highest quality care a change of perspective that can only take
as documented by measurable outcome. place where the new perspective is dominant.
3. Information and Information systems are If family physicians are to have certain values
the backbone of the primary care process. and certain ways of thinking and feeling,
4. Current health care system must be they must be educated in a setting in which
reconstructed. these qualities are all pervasive. And their
5. Health care financing system must support teachers must be people who exemplify these
excellent primary care practice. qualities and are respected as role models.26
6. Primary care education must be revitalized, The solution must lie, first and foremost, with
with an emphasis on new delivery models education and training for the discipline of
and training in sites that deliver excellent family medicine at both undergraduate and
primary care, and graduate levels of medical education. The
7. The value of primary care practice must be curriculum should provide efficient, quality,
continually improved, documented, and and cost-effective health care system that is
communicated. family and community oriented and focused

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20  Section 1: Basic Principles
on personal service. So, the Reorientation of TABLE 3.4  Strategies for successful family medicine
development
Medical Education (ROME)27 may significantly
contribute to producing future doctors with a Obtain political and financial support for universal
new role, with a new knowledge and skill mix, access to primary care.
having attributes of care provider, decision Integrate clinical and community health care delivery.
maker, communicator, and community advisor Upgrade the status of general practitioners.
that are central to optimum medical practice. Develop family physician faculty and clinician role
The skills the physician needs can be learned models.
through experience, sharpened through Develop undergraduate (medical school) curriculum.
practice, and focused through specialization. Develop postgraduate (residency) curriculum.
According to Larry Green, Director, The Engage sub-specialists in training and work with
Robert Graham Center for Policy Studies in family physicians.
Family Practice and Primary Care, Washington, Develop organizations of family physicians.
DC; Keystone III Conference, Oct. 2000,28 Establish speciality board certification with national
“This is another of those tumultuous times medical society status.
in all of medicine. Most disciplines, not just Encourage governments to take a more active role.
medicine, and most specialties, not just Involve leadership of international health organiz­
family practice, are being confronted with ations.
having to consider their values, their purpose, Work with leadership of international family medicine.
their methods, and the best way to organize
Source: Cynthia Haq et al. Family practice development
themselves to do their work…. It’s difficult around the world. Family Practice © Oxford University
to accomplish the objectives of primary care Press 1996;13(4):351–6.
because the ‘system’ doesn’t support doing it.
Primary care’s salutatory effects depend in part urban. Further, even for those who can afford
on a trusting, sustained partnership between expensive specialist health care, continuous
doctors and patients, but the system constantly and quality assured basic care is essential.
thwarts this…The system is broken, not the To ensure continuity of care for all
specialty.” members of the family, of all ages, and to
“Experience in several countries has address all common and urgent medical
demonstrated clearly that what is needed for conditions cost-effectively, the specialty of
spectacular success is the support from the Family Medicine should be taught through a
government, both ideologically and financially significant exposure to secondary and primary
(Table 3.4). Once a government takes the levels of care and introduced as a required part
decision that family medicine will be the base of the medical curriculum. Without this, the
on which its health system will be built, and new generation of medical graduates will not
properly fund its development, progress will be the basic doctors who form the backbone of
be both rapid and far-reaching.”29 a sound health care system all over the world.
This has been most aptly described below:
“The patient lacked the guidance of a sound
Family Medicine—Need of the
general practitioner who understood his
Hour physical conditions, his nervous temperament
It is common knowledge that the major and knew the daily life. And many a patient,
challenge in health care is in ensuring sound who on his initiative has sought out specialists,
and competent basic health care to the has had minor defects attenuated so that they
disadvantaged communities, both rural and assume a needless importance, and has even

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Chapter 3: Family Medicine—The Rising Discipline 21

undergone operations that might well have Change, 1969–2000 Fam Med. 2001;33(4):
been avoided. Those who are particularly 232–43.
blessed with the world’s goods, who want the 14. Magill M, et al. What Opportunities Have We
best regardless of the cost and imagine that they Missed, and What Bad Deals Have We Made?
are getting it because they can afford to consult Fam. Med, 2001;33(4):268–72.
as many renowned specialists as they wish, are 15. Stephens G. Family Practice and Social and
often pathetically tragic figures as they veer Political Change Fam. Med. 2001;33(4):248–51.
from one course of treatment to another. Like 16. http://www.aafp.org/online/en/home/
ships without a guiding hand upon the helm, residents/match/summary.html (Accessed on
they swing from tack to tack with each new 27-09-2011).
gust of wind but get no nearer to the Port of 17. h t t p : / / w w w . rc g p - c u r r i c u l u m. o r g . u k /
Health because there is no pilot to set the general (accessed on 27-09-2011).
direction of their course.” 18. ht t p : / / w w w . g l o b a l f a m i l y d o c t o r. c o m /
Dr Francis Peabody aboutWonca/aboutwonca.asp?refurl=aw
(Accessed on 27-09-2011).
References 19. WHO Project No. : ICP OSD 002—Family
Medicine: Report of a Regional Scientific
1. Loudon ISL. The James Mackenzie Lecture 13
Working Group Meeting on Core Curriculum;
November 1982. Journal of the Royal College
Colombo, Sri Lanka, 2003;9–13.
of General Practitioners, 1983;33:13–18.
20. h t t p : / / w w w . i m a c g p i n d i a. c o m / i n d e x .
2. George Clark. History of the Royal College of
php?option=com_content&view=article&id=
Physicians of London. Br Med J. 1965;1(5427):
64&Itemid=79 (Accessed on 27-09-2011)
79–82. [PMCID: PMC2165065:Abstract].
21. http://www.natboard.edu.in/index.php
3. Robinson JO. The barber-surgeons of
(Accessed on 27-09-2011).
London. Arch Surg. 1984;119(10):1171–5
[PMID:6383267]. 22. Dr Zachariah P. Family medicine & medical
4. Web site - http://www.rcseng.ac.uk/about/ education reform. The Hindu-Tuesday, 2011.
history (accessed on 26-09-2011). 23. Saultz JW, et al. Is it time for a 4-year family
5. http://www.apothecaries.co.uk/index . medicine residency? Fam Med. 2004;36(5):
php?page=6 363–6.
6. http://www.britainexpress.com/History/ 24. Martin JC, et al. Future of Family Medicine
plague.htm P ro j e c t L e a d e r s h i p C o m m i t t e e. A n n
7. http://www.historylearningsite.co.uk/plague_ Fam Med. 2004;2Suppl(1):S3–32. [PMID:
of_1665.htm 15080220:Abstract]
8. IS Loudon James Mackenzie Lecture. The 25. Showstack J, et al. Primary care: the next
origin of the general practitioner. JR Coll renaissance. Ann Intern Med, 2003; 138(3):268–
Gen Pract, 1983;33(246):13–23. [PMCID: 72. [PMID: 12558378:Abstract].
PMC1972623:Abstract] 26. McWhinney IR. Family Medicine in perspective.
9. Park K. Park’s Text Book of P&PM, 16 th ed. 8. N Engl J Med. 1975;293:176–81.
10. “A Practitioner” Is the practice of Medicine in 27. ROME IV: Report of a Regional Consultation,
1850 a degenerate pursuit? London, 1850. New Delhi, India. 1993;5–10.
11. Park K. Park’s Text Book of P & PM, 16th edn. 8. 28. Bush J. Is it time to re-examine family practice?
12. Graham R. et al. Family Practice in the United Fam Pract Manag. 2001;8(8):43–8[PMID:
States: A Status Report JAMA. 2002;288:1097 11574975:Abstract]
–1101. 29. Goh Lee Gan, et al. Family Medicine
13. Stevens R. The Americanization of Family development in the Asia-Pacific region. The
Medicine: Contradictions, Challenges and Singapore Fam Phy, 2001;27(3):31–36.

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4 Definitions

“If you would converse with me, you must first define your terms”
—Voltaire.

Definitions are statements expressing the It is the synthesis of these functions, which
essential nature, quality or scope of something; is unique. He will attend his patients in his
they may state or distinguish boundaries of consulting room and in their homes and
one field from another. But in the discipline of sometimes in a clinic or hospital.
medical specialities, their clear demarcation is His aim is to make early diagnoses. He will
difficult. Between one speciality and another, include and integrate physical, psychological
there are invariably overlapping boundaries. and social factors in his consideration about
However, it’s more important to arrive at the health and illness. This will be expressed in
center of the discipline accurately, necessarily the care of his patients.
accepting the overlap with other specialties. He will make an initial decision about every
The definition then is more likely to provide a problem, which is presented to him as a doctor.
framework on which the professional skills and He will undertake the continuing management
the core contents of teaching, research, and of his patients with chronic, recurrent or
development can be more precisely applied.1 terminal illnesses.
Prolonged contact means that he can use
General Practice repeated opportunities togather information at
a pace appropriate to each patient and build
The term general practitioner first came into up a relationship of trust, which he can use
use around the year 1810,2 and first appeared professionally.
in The Lancet in 1823. 3 Since then many He will practice in co-operation with other
definitions of General practice/Primary care/ colleagues medical, and non-medical.
Family Medicine have been proposed. He will know how and when to intervene
through treatment, prevention and education
Leeuwenhorst Definition—19744 to promote the health of his patients and their
families. He will recognize that he also has a
This is one of the most quoted definitions,
professional responsibility to the community.”
which states:
“The general practitioner is a licensed
medical graduate who gives personal, primary
Changing Domain of General
and continuing care to individuals, families, Practice (Table 4.1)
and a practice population, irrespective of age, Initially general practice was in its infancy
sex, and illness. as a discipline, particularly with regard to its

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Chapter 4: Definitions 23
Table 4:1  Changing domain of general practice
•  The move from institutional care to domiciliary care or day care centres, e.g. care of the elderly and disabled
individuals at home and by Integrated Intermediate Care Team.
•  Changes in professional boundaries, e.g. trained nurses as home visitors, paramedics in emergency care,
family physicians in hospital management systems.
•  The development of primal care subspecialties, e.g. adolescent medicine, geriatric medicine, palliative
medicine, sport medicine.
•  Health promotion and disease prevention, e.g. in diseases such as HIV, cancer, stroke, diabetes, coronary
artery disease.
•  The development of consumerism and consumer protection act.
•  Wider acceptance of other primary healthcare providers, e.g. primary care nurse practitioners, community
psychiatric nurses.
•  New emphasis on cost containment and resource management.
•  The development of evidence based medicine and guidelines.
•  Information and communication technology.
•  The team concept to improve quality in general practice.
•  Development of Rural general Practitioners as a speciality.
•  Increasing competition from private sectors/organizations.
•  Remodeling of biomedical model/development of new health care models**

Ref. - Wade DT et al. Do biomedical models of illness make for good healthcare systems? BMJ. 2004 Dec 11;
329(7479):1398-401. [PMID: 15591570].

teaching and research base. However, the has lead to compulsory reaccreditations on a
following major changes have influenced the periodic basis. Van Wheel,5 in his recent lecture
contemporary general practice. to RCGP, Spring Meeting, emphasized the need
Demographic, cultural and industrial for academic development to enable transfer of
evolution: In the past 40 years, reforms in health knowledge, expertize, and experience to develop
care systems have taken place all over the world. techniques and methodology addressing the
The changes in demography, culture, rapid specific requirements of general/family practice,
growth in industrialization, lifestyle, medical and the need for common culture of teaching,
advances in information and communication research, and training.
technology, health economics, etc. demand Patient autonomy: Over the years the
new ways of providing and delivering health views of the society has also changed, and
care to the community. Increased travel and there has been an increasing role for the
immigration of population have caused changes patient as a determining factor in health care
in the distribution of health and diseases. and its provision (i.e. patient autonomy). The
This presents a change in the epidemiology opinion of the clinician is no longer regarded
of practice and new challenges for family as sacrosanct and a new dialogue is emerging
doctor. The family doctor needs a broader between healthcare consumers and providers.
understanding of culture, ethnic and religious Richards JG, et al6 state, “The nature of General
differences, and their impact on illness, health Practice, and the environment within which
and their implications for treatment. we operate, has altered immensely, but it
Continuous medical education: Further, in should be recognized that change for the sake
these days of consumerism and performance of change is often a mistake. It is appropriate
management, there is an expectation that family that we should step back and review what has
doctors maintain their skills through life-long been happening to see whether it fits with
learning, and demonstrate them through quality our perception of the role of General Practice
assurance. In some healthcare systems, this and how the community may best be served.

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24  Section 1: Basic Principles
Perhaps we have moved too far and too fast, or individual seeking medical care and arranging
conversely we may not have moved far enough for other health personnel to provide services
or fast enough. Although we may be able to when necessary. The general practitioner/
influence the direction of future change, we family physician functions as a generalist who
also have to accept that ultimately many of accepts everyone seeking care; whereas other
the decisions about where we are going will be health providers limit access to their services
made by others, often having entirely different on the basis of age, sex, or diagnosis.
values and objectives from those that we hold The general practitioner/family physician
to be important. ” The future family doctor has cares for the individual in the context of
to be not only aware of this change, but be able the family, and the family in the context
to thrive in such an environment. of the community, irrespective of race,
Resource management : There is also religion, culture or social class. He is clinically
a developing role in relation to resource competent to provide the greater part of
management*. With the ever-increasing costs their care after taking into account their
of healthcare, the family doctors need to be cultural, socio-economic, and psychological
aware of their role in promoting cost effective background. In addition he takes personal
practice, not only in themselves but also to responsibility for providing comprehensive
their colleagues. and continuing care for his patients.
Therefore, in the context of evolving scenario The general practitioner/family physician
and rapid advances in many facets of general exercises his/her professional role by providing
practice, it is vital that the complex and essential care, either directly or through the services of
role of family doctors within the healthcare others according to their health needs and
systems is fully understood by medical resources available within the community he
professionals, healthcare planners, economists, or she serves.”
politicians and the public. International evidence
indicates that health systems based on effective Olesen Definition—200010
primary care with highly trained family doctors
Olesen et al. have stated that the original
practicing in a community provides both
Leeuwenhorst definition is out of date and
cost effective and clinically effective care;7, 8
does not reflect the reality of family medicine
and to effectively project and manage these
today. The dissatisfaction expressed by
circumstances, new definitions of general
Olesen et al is because many of those who
practice/family medicine have been proposed
regard themselves as family doctors are
by peer organizations or committees across the
working in healthcare systems in which it is
world. The notable ones are:
not possible to comply with many features
of Leeuwenhorst definition; particularly the
Wonca Definition—1991 (World concept of continuity and community setting.
Organization of Family Doctors)9 They cite examples such as family doctors
“The general practitioner/family physician working in emergency departments, pain
is the physician who is primarily responsible clinics, etc. as support to their viewpoint. They
for providing comprehensive care to every have suggested the following definition:

*Resource management is the efficient and effective deployment of an organization's resources when they
are needed. Such resources may include human resources, financial resources, human skills, production
resources, information technology, etc.

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Chapter 4: Definitions 25

“The general practitioner is a specialist which are not primarily mechanistic or


trained to work in the front line of a health care technical in nature, which is the way that
system and to take the initial steps to provide medicine is still predominantly taught in
care for any health problem(s) that patients medical schools throughout the world.
may have. To meet the expanding demands on the
The general practitioner takes care of general practice curriculum in this evolving
individuals in a society, irrespective of the environment, an authoritative statement
patient’s type of disease or other personal which defines both the discipline of general
and social characteristics, and organizes the practice/family medicine and the tasks of the
resources available in the health care system general practitioner, and relate them, at least
to the best advantage of the patients. in general terms, to the context of the present
The general practitioner engages with health care system, and a definition of the role
autonomous individuals across the fields of family doctors with reference to the health
of prevention, diagnosis, cure, care, and care system in which they work needs to be
palliation, using and integrating the sciences of formulated.
biomedicine, medical psychology, and medical
sociology.” The European Definitions—2005*
The two preceding definitions, i.e. those of (Wonca Europe Definitions—2005)11
WONCA 1991, and Olesen 2000, still seem to From the discussion above it’s clear that
have their roots very much in the Leeuwenhorst ‘general practice’ is difficult to define because
definition. The WONCA 1991 statement of its nature of integrating knowledge and
appears to be more relevant to general skill from many disciplines. There is no
practice/family practice, and incorporates, as internationally consistent definition, and
has been described, some of its characteristic the confusion between terms “medical
features such as ‘generalist, comprehensive, practitioners”, “general practitioners”, or
continuing, family focused, collaborative, “family doctor” prevails. The term “family
and community oriented’. In its clinical physician” is used in some countries to
decision making section it describes the early highlight the discipline as a speciality with
presentation of undifferentiated problems, training. Therefore, in order to arrive at a
and a large number of problems which do new and amicable definition of general
not fit with standard biomedical diagnoses, practice/family physician/family medicine,
and the different prevalence of illness and the members of the 30 European countries
disease within the general practice setting as affiliated to WONCA EUROPE (The European
compared with the secondary care setting. Society of general practice or family medicine;
The Olesen el al statement includes curative, The Regional Organization of the World
rehabilitative, and supportive care, and Organization of family doctors – WONCA)
provides a framework for research, teaching, deliberated at the workshop 2001, WONCA
development, and resource management. Europe conference in Tampere, Finland,
These statements emphasize the fact that wherein a substantial majority felt there should
our education process must prepare family be a new definition, and it should encompass a
doctors for very different clinical processes description of both the task and the principles

*Revised in 2005 by a working party of EURACT Council led by Dr Justin Allen, on behalf of WONCA
European Council.

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26  Section 1: Basic Principles
of the discipline (Table 4.1). A draft statement care, or palliation. This is done either directly,
was agreed for consultation more widely. This or through the services of others according
was carried out by WONCA Europe, which to the health needs and resources available
sent the papers for comment to all European within the community they serve, assisting
colleges and National Associations, and other patients where necessary in accessing these
organizations involved in Family Medicine services. They must take the responsibility
in Europe. The responses were collected for developing and maintaining their skills,
and presented to a conference of these personal balance and values as a basis for
organizations in Noordwijk. The Netherlands, effective and safe health care.”
in March 2002, following which the draft was The European definition outlines eleven
finalized. The consensus statements arrived at “characteristics” of the Discipline of General
the conference, with respect to the “Discipline Practice/Family Medicine that in turn can
of General Practice/Family Medicine”, and the be subdivided into six “core competencies”.
“Specialty of Family Medicine” is as follows: For the purpose of clarity the committee has
used the following definitions to clarify what
The European Definition of the Discip­ is meant by each of these terms:
line of General Practice/Family Medicine ™™ “Characteristic” can be defined as a
“General Practice/Family medicine is an distinctive ability which every general
academic and scientific discipline and a practitioner should master.
clinical speciality with its own educational ™™ “Core” means essential to the discipline.
content, research, and evidence base and ™™ “Competence” relates to specific tasks
clinical activity, orientated to primary care.” that a general practitioner should be able
to perform.
The European Definition of the Specialty
of General Practice/Family Medicine Characteristics: The Characteristics
“General Practitioners/family doctors are of the Discipline of General Practice/
specialist physicians trained in the principles Family Medicine are that it:
of the discipline. They are personal doctors, ™™ Is normally the point of first medical contact
primarily responsible for the provision of within the healthcare system, providing
comprehensive and continuing care to every open and unlimited access to its users,
individual seeking medical care irrespective of dealing with all health problems, regardless
age, sex and illness. They care for individuals of the age, sex, or any other characteristic of
in the context of their family, their community, the person concerned.
and their culture, always respecting the “Normally” is used to indicate that in some
autonomy of their patients. They recognize they circumstances, e.g. major trauma, it is not
will also have a professional responsibility to the first point of contact. However it should
their community. In negotiating management be the point of first contact in most other
plans with their patients they integrate situations. There should be no barriers to
physical, psychological, social, cultural and access, and family doctors should deal with
existential factors, utilizing the knowledge all types of patient, young or old, male or
and trust engendered by repeated contacts. female, and their health problems. General
General Practitioners/family physicians practice covers a large field of activities
exercise their professional role by promoting determined by the needs and wants of
health, preventing disease, and providing cure, patients. This outlook gives rise to many

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Chapter 4: Definitions 27

facets of the discipline and the opportunity ™™ Has a unique consultation process, which
of their use in the management of individual establishes a relationship over time, through
and community problems. effective communication between doctor
™™ Makes efficient use of health care resources and patient.
through co-coordinating care, working Each contact between patient and their
with other professionals in the primary care family doctor contributes to an evolving
setting, and by managing the interface with story, and each individual consultation
other specialties, and taking an advocacy can draw on this prior shared experience.
role for the patient when needed. The value of this personal relationship
This “coordinating” role is a key is determined by the communication
feature of the cost effectiveness of good skills* of the family doctor and is in itself
quality primary care ensuring that therapeutic.
patients see the most appropriate health ™™ Is resp onsible f or the provision of
care professional for their particular longitudinal continuit y of care as
problem. The synthesis of the different determined by the needs of the patient.
care providers, the appropriate distribution
The approach of general practice must
of information, and the arrangements for
be constant from birth (and sometimes
ordering treatments rely on the existence
before) until death (and sometimes
of a coordinating unit. Developing team
afterwards). It ensures the continuity
work around the patient with all health
of care by following patients through
professionals will benefit the quality of
substantial periods of their lives and
care. By managing the interface with other
through many episodes of illness. They
specialties the discipline ensures that
are also responsible for ensuring that
those requiring high technology services
healthcare is provided continuously, and
based on secondary care can access them
also coordinating such care with other
appropriately. A key role for the discipline
specialities when they are unable to
is to provide advocacy, protecting patients
provide it personally.
from the harm, which may ensue through
unnecessary screening, testing, and ™™ Has a specific decision making process
treatment, and also guiding them through determined by the prevalence and incidence
the complexities of the healthcare system. of illness in the community.
™™ Develops a person-centered approach, Problems are presented to family
orientated to the individual, his or her doctors in the community in a very different
family, and their community. way from their presentations in secondary
Family medicine deals with people as care, i.e. the prevalence and incidence of
living human beings and advises a humane illnesses is different in general practice
approach to them. The starting point of the from that which appears in a hospital
process is the patient. It is as important to setting, and serious diseases present
understand how the patients cope with less frequently in general practice than
and view their illness as dealing with in hospital. Therefore, decision-making
the disease process itself. The common process and the predictive value, i.e. the
denominator is the person with his/her positive or negative value of a clinical
beliefs, fears, expectations and needs. sign or of a diagnostic test have a different

*Ref. Chapter 10: Communication skills, p. no. 87.

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28  Section 1: Basic Principles
weight in family medicine as compared to none is required may cause harm, and
the hospital setting. wastes valuable health care resources.
™™ Manages simultaneously both acute and chro­ ™™ Has a specific responsibility for the health
nic health problems of individual patients. of the community.
Family medicine must deal with all of the The discipline recognizes that it has a
health care problems of the individual patient. responsibility both to the individual patient
It cannot limit itself to the management of the and to the wider community in dealing with
presenting illness alone, and often the doctor health care issues. On occasions this may
will have to manage multiple problems. The lead to conflicts of interest, which must be
patient often consults for several complaints appropriately managed.
and these complaints multiply with age. ™™ Deals with health problems in their
The simultaneous response to several physical, psychological, social, cultural
demands renders necessary a hierarchical and existential dimensions.
management of the problems which takes The discipline has to recognize all these
account of both the patient’s and the doctor’s dimensions simultaneously and give
priorities. appropriate weight to each. Illness behavior
™™ Manages illness, which presents in an and patterns of disease are varied by many
undifferentiated way at an early stage in of these issues and much unhappiness
its development, which may require urgent is caused by interventions which do not
intervention. address the root cause of the problem for
The patient often comes at the onset of the patient.
symptoms, and it is difficult to make a
diagnosis of a certain disease or illness The Core Competencies of the General
when the symptoms are still evolving. Practitioner/Family Doctor
This manner of presentation means that The European definition of the discipline of
important decisions for patients have to be general practice has six core competencies:
taken on the basis of limited information and ™™ Primary care management includes (1
the predictive value of clinical examination and 2 above) the ability:
and tests is less certain. Even if the signs of a
ƒƒ To manage primary contact with patients,
particular disease are generally well-known,
dealing with unselected problems
this does not apply for the early signs, which
ƒƒ To cover the full range of health conditions
are often non-specific and common to a
many diseases. Risk management under ƒƒ To co-ordinate care with other pro­
these circumstances is a key feature of the fessionals in primary care and with
discipline. Having excluded an immediately other specialists
serious outcome, the decision may well be to ƒƒ To master effective and appropriate care
await further developments and review later. provision and health service utilization
™™ Promotes health and well-being both by ƒƒ To make available to the patient the
appropriate and effective intervention. appropriate services within the health
Interventions must be appropriate, care system, and
effective and based on sound evidence ƒƒ To act as advocate for the patient, i.e.
whenever possible. Intervention when advocacy.*

*Advocacy: Described as “helping the patient take an active part in the clinical decision-making process
and working with the government and other authorities to maximize equitable distribution of services to
all members of society”.

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Chapter 4: Definitions 29

™™ Person-centered care includes (3, 4, and ƒƒ To promote health and well being by
5 above) the ability: applying health promotion and disease
ƒƒ To adopt a person-centered approach in prevention strategies appropriately, and
dealing with patients and problems in ƒƒ To manage and co-ordinate health
the context of patient’s circumstances, promotion, prevention, cure, care and
ƒƒ To apply the general practice con­ palliation and rehabilitation.
sultation to bring about an effective ™™ Community orientation includes (10
doctor-patient relationship, with above) the ability:
respect for the patient’s autonomy, ƒƒ To reconcile the health needs of
ƒƒ To communicate, set priorities and act individual patients and the health
in partnership, and needs of the community in which they
ƒƒ To provide longitudinal continuity of live in balance with available resources.
care as determined by the needs of the ™™ Holistic* modeling includes (11 above)
patient, referring to continuing and co- the ability:
coordinated care management. ƒƒ To use a bio-psycho-social model
™™ Specific problem solving skills includes taking into account cultural and
(6 and 7 above) the ability: existential dimensions.
ƒƒ To relate specific decision-making There are many similarities between the
processes to the prevalence and statements of the principles which define
incidence of illness in the community, general practice/family medicine, but there
ƒƒ To selectively gather and interpret infor­ are also significant differences, which may be
mation from history-taking, physical due to differences in which the statements are
examination, and investigations, and interpreted. Although none of these definitions
apply it to an appropriate management per se encompass all the key features of the
plan in collaboration with the patient, discipline, the statements have provided
ƒƒ To a d o p t a p p ro p r i a t e w o rk i n g an authentic view on what family doctors
principles, e.g. incremental investi­ should be providing in a way of services to the
gation, using time as a tool and to patients, in order that patient care is of highest
tolerate uncertainty quality and also cost effective so that family
ƒƒ To intervene urgently when necessary, medicine will develop to meet the health care
ƒƒ To manage conditions which may present needs of the population of 21st century.
early and in an undifferentiated way, and
ƒƒ To make effective and efficient use Definition of General Practitioner
of diagnostic and therapeutic inter­ A general practitioner is a registered medical
ventions. practitioner who is qualified and competent
™™ Comprehensive approach includes (8 and for general practice. A general practitioner:
9 above) the ability: ™™ Has the skills and experience to provide
ƒƒ To manage simultaneously multiple whole person, comprehensive, coordinated
complaints and pathologies, both acute and continuing medical care; and
and chronic health problems in the ™™ Maintains professional competence for
individual, general practice.

*The Oxford Companion to Medicine defines holistic medicine as: "a discipline of preventive and
therapeutic medicine which emphasizes the importance of regarding the individual as a whole being
integral with his social, cultural, and environmental context rather than as a patient with isolated
malfunction of a particular system or organs".

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30  Section 1: Basic Principles
Definition of Family Physician ™™ The ability to support children during
growth and development and during the
A family physician is a generalist who
adjustments to family and society.
takes professional responsibility for the
™™ A curious and consistently inquisitive
comprehensive care of unselected patients
attitude, enthusiasm for the undifferenti­
with undifferentiated problems, committed
ate d m e d i ca l p ro b l e m s a n d t h e i r
to the person regardless of age, gender, illness,
resolutions; an interest in the broad
organ system affected, or methods used.
spectrum of clinical medicine; the ability to
The American Academy of Family Physicians
deal comfortably with multiple problems
defines the family physician as12
occurring simultaneously in one patient;
“A physician who is educated and trained
and a desire for frequent and varied
in family practice—a broadly encompassing
intellectual and technical challenges.
medical specialty. Family physicians possess
™™ The family physician should be an effective
unique attitudes, skills and knowledge
coordinator in the appropriate use of
which qualify them to provide continuing
specialists, health services and community
and comprehensive medical care, health
resources. As Dr. Francis Peabody describes,
maintenance and preventive services to each
“A new demand has arisen—not for men who
member of the family regardless of age, sex or
are experts along narrow lines but for men
type of problem—be it biological, behavioral
who are in touch with many lines.”
or social. These specialists, because of their
™™ One of the foremost skills in family practice
background and interactions with the family,
is the ability to effectively utilize the
are best qualified to serve as each patient’s
knowledge of interpersonal relations in the
advocates in all health-related matters,
management of patients.
including the appropriate use of consultants,
™™ The family physician recognizes the effects
health services and community resources.”
that spiritual, intellectual, emotional and
Attributes of a Family Physician social factors have on patient’s illness; as
Sir William Osler quoted, “It is much more
™™ A strong sense of responsibility for the
important to know what sort of patient
total, ongoing care of individual and the
has a disease than what sort of disease a
family members during health, illness,
patient has.”
or rehabilitation. The patients consider a
good physician who:
Nine Principles that
ƒƒ Express genuine interest in them,
Define the Discipline
ƒƒ Thoroughly evaluates their problem,
McWhinney13 identifies nine principles that
ƒƒ Demonstrates compassion, under­
govern actions and define the discipline, and
standing and warmth, as every physical
taken together redefine a distinctive world
problem has an emotional component,
view. Family physicians:
which can be extremely significant,
™™ Are committed to the person rather than
ƒƒ Provides clear insight into what is to a particular body of knowledge, group
wrong and what must be done to of diseases, or special technique.
correct it, ™™ Seek to understand the context of the illness.
ƒƒ A high degree of intellectual honesty, ™™ See every contact with their patient as
and an opportunity for prevention or health
ƒƒ A clean sense of humor. education.

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Chapter 4: Definitions 31

™™ View the patients in their practice as a At present, given the differences in the
population at risk. way these terms are used and interpreted
™™ See themselves as part of a community- in different countries, the terms general
wide network of supportive and healthcare practitioner and family physician refer to
agencies. the medical practitioner who has completed
™™ Should ideally share the same habitat as specific postgraduate training, analogous
their patients. to that of other medical specialities, in the
discipline of general practice or family
™™ See patients in their homes.
medicine. Correspondingly, the terms general
™™ Attach importance to the subjective practice, general practitioner family medicine,
aspects of medicine. and family physician are used as being
™™ Manage resources. equivalent.16,10 However, it’s to be noted that,
although general practitioners and family
Family Practice doctors evolve from the best of traditional
general practice, they are differentiated from
Family practice is the professional discipline their former counterparts by being trained
that trains and sustains the doctors who specifically for their roles.
practice the evolving arts and sciences of
family medicine. Family practice is patient Advantages of Family Practice
centered, evidence based, family focused, and
problem oriented. It shares historical roots and ™™ Primary health care is a cost effective
a worldwide movement with general practice. care, which involves a single personal
physician who ensures the most logical and
Family medicine is the academic discipline
economical management of a problem.
that both serves and leads the specialty of
™™ Fa m i l i e s w h o a re u n d e r a f a m i l y
family practice.
physician’s care have a fewer incidences
of hospitalizations, fewer operations, and
Difference—Family Practice and fewer visits for illnesses.
General Practice ™™ House calls, which is an important part of
family practice is a valuable tool to develop
Although family practice follows the general
a thorough understanding of the patients
practice tradition, it has major differences
and their environment. It is also a valuable
from general practice because the training
tool for visiting the elderly immobile
in family practice is broader. Family practice
person at home.
residencies were developed in response to
™™ The family physician can join a group
a perceived need by the public, the medical
practice or individually practice. The
profession, and the government for well-
advantages of joining a group practice are:
trained generalists. In addition to receiving
broad hospital training, family practice ƒƒ Partnership
residents receive extensive training in ƒƒ Opportunity to share house calls
comprehensive and continuous outpatient ƒƒ Spending more time with their families
medicine for persons of all ages. As a specialty, ƒƒ More time to remain current with
family practice has stringent requirements medical advances through CME
for continuing medical education, board programs, and
certification and recertification periodically.14 ƒƒ Financial advantage.

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32  Section 1: Basic Principles
Primary Care Primary Care Practice
What is primary care? 15 A primary care practice serves as the patient's
first point of entry into the healthcare system,
The following five definitions relating to
and as the continuing focal point for all needed
primary care describe the care provided to
health care services. Primary care practices
the patient, the system of providing such
provide patients with ready access to their
care, the types of physicians* whose role in
own personal physician or to an established
the system is to provide primary care, and the
back-up physician when the primary physician
role of other physicians, and non-physicians
is not available.
in providing such care. Taken together they
Primary care practices provide health
form a framework within which patients will
promotion, disease prevention, health
have access to efficient and effective primary
maintenance, counseling, patient education,
care services of the highest quality.
diagnosis and treatment of acute and chronic
illnesses in a variety of health care settings (e.g.
Definition office, inpatient, critical care, long-term care,
Primary Care home care, day care, etc.).
Primary care practices are organized to
Primary care is that care provided by meet the needs of patients with undifferentiated
physicians specifically trained for and skilled in problems, w ith the vast maj or it y of
comprehensive, first contact, and continuing patients’concerns and needs being cared for
care for persons with any undiagnosed in the primary care practice itself. Primary
sign, symptom, or health concern (i.e. the care practices are generally located in the
undifferentiated patient), not limited by community of the patients, thereby facilitating
problem of origin (biological, behavioral, or access to health care while maintaining a
social), organ system, or diagnosis. wide variety of speciality and institutional
Primary care includes health promotion, consultative and referral relationships for
disease prevention, health maintenance, specific care needs. The structure of the primary
counseling, patient education, diagnosis and care practice may include a team of physicians
treatment of acute and chronic illnesses in and non-physician health professionals.
a variety of health care settings (e.g. Office,
inpatient, critical care, long-term care, home Primary Care Physician
care, day care, etc.). Primary care is performed A primary care physician is a generalist
and managed by a personal physician often physician who provides definitive care to the
collaborating with other health professionals, undifferentiated patient at the point of first
and utilizing consultation or referral as contact and takes continuing responsibility for
appropriate. providing the patient's care. Such a physician
Primary care provides patient advocacy must be specifically trained to provide primary
in the healthcare system to accomplish cost- care services.
effective care by coordination of health care Primary care physicians devote the majority
services. Primary care promotes effective of their practice to providing primary care
communication with patients and encourages services to a defined population of patients. The
the role of the patient as a partner in health style of primary care practice is such that the
care. personal primary care physician serves as the
*In this document, the term physician refers only to doctors of medicine (MD) and osteopathy (DO).

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Chapter 4: Definitions 33

entry point for substantially all of the patient's in which the ultimate responsibility for the
medical and health care needs—not limited patient resides with the primary care physician
by problem origin, organ system, or diagnosis. (1975, 2006).
Primary care physicians are advocates for the
patient in coordinating the use of the entire Use of Term
health care system to benefit the patient.
The American Academy of Family Physicians
recognizes the term primary care and those
Non-primary Care Physicians Providing
family physicians provide services commonly
Primary Care Services
recognized as primary care. However, the
Physicians who are not trained in the primary terms, "primary care" and "family practice"
care specialties of family medicine, general are not interchangeable. Primary care does
internal medicine, or general pediatrics may not fully describe the activities of family
sometimes provide patient care services physicians or the practice of family medicine. 
that are usually delivered by primary care Similarly, primary care departments do not
physicians. These physicians may focus replace the form or function of family medicine
on specific patient care needs related to departments (1977, 2006).
prevention, health maintenance, acute
care, chronic care or rehabilitation. These How does Primary Care Differ from
physicians, however, do not offer these Other Levels of Health Care?16
services within the context of comprehensive,
first contact and continuing care. In addition to primary care, health care
The contributions of physicians who deliver systems provide other levels of care including
some services usually found within the scope emergency care and speciality care. These
of primary care practice may be important to other types of care can be distinguished
specific patient needs. However, the absence from primary care by several structural and
of a full scope of training in primary care process characteristics, although in practice
requires that these individuals work in close their respective boundaries are not always
consultation with fully-trained, primary care distinguishable. The Table 4.2 summarizes
physicians. An effective system of primary care how key features of primary care relate to other
may utilize these physicians as members of the levels of care within a healthcare system.
health care team with a primary care physician
maintaining responsibility for the function of Is Primary Care the Same as
the healthcare team and the comprehensive, Ambulatory (Mobile) Care?12
ongoing healthcare of the patient. Primary care and ambulatory care are not the
same. Not all primary care is ambulatory care,
Non-physician Primary Care Providers and not all ambulatory care is primary care. To
There are providers of health care other than illustrate, a primary care provider's responsibility
physicians who render some primary care for coordination does not end when a patient
services. Such providers may include nurse leaves the ambulatory care setting and is
practitioners, physician assistants, and some hospitalized. Similarly, a procedure performed
other healthcare providers. by a specialist in an ambulatory care setting is
These providers of primary care may meet not considered primary care, nor is the ongoing
the needs of specific patients. They should ambulatory care of, e.g. complicated cancer
provide these services in collaborative teams being managed by a specialist.

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34  Section 1: Basic Principles
Table 4.2  Key features of primary care

Level of care First-contact Continuity Comprehensiveness Coordination


Primary care Yes Yes Yes Yes, primary care provider
assumes responsibility for
overall coordination
Emergency care Yes No No Emergency care provider
facilitates coordination by
supplying information on
encounter to primary care
provider
Specialty care No S o m e t i m e s . F o r No Specialty care provider
patients with certain facilitates coordination by
medical conditions, supplying information on
continuity might be encounter to primary care
a feature of specialty provider. For patients with
care certain medical conditions,
specialty care provider might
assume responsibility for
overall coordination

The identifying characteristic of ambulatory provide care to patients and managed care
care is the site in which it's delivered. Ambulatory is a strategy to finance services, which may
care is care provided in all settings except hospital be defined as “any system of health payment
inpatient and other institutional settings. or delivery arrangements, where the health
Ambulatory care can be delivered in physician plan consisting of defined system of selected
offices, hospital or freestanding outpatient health care providers, attempts to control
diagnostic and surgical centers, urgent care or coordinate use of health services by its
centers, outpatient rehabilitation centers, enrolled members in order to contain health
outpatient drug and alcohol rehabilitation expenditures, improve quality, or both.
centers, homes, and hospices. Enrollees have a financial incentive to use
Advances in diagnostic, therapeutic and participating providers that agree to furnish a
rehabilitative services due to technological broad range of services to them.”
and pharmaceutical breakthroughs have Primary care providers are comparable to
shifted many specific health care services from managed care's case-managers in the sense
inpatient to ambulatory or outpatient settings. that both coordinate care as well as directly
Payer and consumer-driven factors, such as provide it to the majority. Managed care is not
cost-containment and convenience, also have necessarily based on a primary care model.
influenced the growth of ambulatory services Managed care often does not place priority
in recent years. These ambulatory care trends, on maintaining continuity of the primary care
both technologically and economically based, practitioner over time or assuring services are
are expected to continue and even accelerate sufficiently comprehensive to cover all health
in the years ahead. care needs of patients. Moreover, managed
care is increasingly used for care of particular
Is Primary Care the Same as Managed types of conditions (such as managed mental
Care?12 health care), whereas primary care is, by
Primary care and managed care are not definition, care of patients regardless of what
the same. Primary care is an approach to particular types of problem they have.

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Chapter 4: Definitions 35

The growth of managed care in recent patient population. Criteria often used by
years is largely attributed to the drive for plans in selecting providers to participate
cost-containment and/or the pursuit of value in a PPO are level of discount, patient
in health care. Managed care seeks to create satisfaction and cost-effective utilization
financial incentives for providers and/or practices. Enrollees can opt to obtain care
patients to limit unnecessary utilization of from this select group of providers or can
services. Primary care, in contrast, is a concept go to providers not on the PPO list. Formal
that is independent of financial incentives, enrollment with a primary care provider is
although primary care oriented healthcare not a feature of PPOs and the plan does not
systems have been shown to cost less than require referrals for visits inside or outside
specialty oriented healthcare systems. the PPO. In this way PPOs resemble fee-for-
Managed care is a broad term encompassing service plans. Enrollees pay more out-of-
a diverse mix of health plans and systems. The pocket for using a provider not on the list.
major types of managed care plans are: ™™ Point-of-service (POS) plans. This recent
™™ Health maintenance organizations (i.e. entry into the managed care world—the
HMOs) POS plan—require formal enrollment with
™™ Preferred provider organizations (i.e.
a primary care provider, but the enrollment
PPOs) is loosely structured and subscribers are
free to use providers inside or outside
™™ Point-of-service (i.e. POS) plans.
of the network on any given day, or at
any point-of-service. POS plans attempt
Role of Primary Care Provider
to balance payers' demands for cost-
in Common Managed Care containment with enrollees' demands for
Arrangements12 freedom of choice of providers. POS plans
™™ Health maintenance organizations are sometimes referred to as open-ended
(HMOs). This highly structured managed HMOs. A referral from the primary care
care plan requires formal enrollment with provider is not required for out-of-network
a primary care provider in the network. visits but is required for in-network care.
HMOs include staff models, group models Enrollees pay more out-of-pocket for using
and independent practice associations. A a provider outside the network.
referral from the primary care provider is Although managed care may be organized
required for all care. If an enrollee chooses with a solid primary care infrastructure,
to seek care outside the HMO, he or she managed care arrangements can exist without
typically must bear the entire cost for the being grounded in a primary care model. PPOs
out-of-network care. are evidence of this.
™™ Preferred provider organizations (PPOs). Similarly, primary care—the provision of
A PPO is a type of managed care plan that accessible, continuous, comprehensive and
offers financial incentives to enrollees coordinated care—certainly can exist in the
to seek care from a designated group absence of managed care. This is evidenced
of providers—typically physicians, by the many primary care providers who
hospitals and labs—that have agreed to are not in an HMO or POS plan and are not
furnish services to a specified population subject to any financial incentives to limit
at a reduced charge. In return for the appropriate utilization, but do actively manage
discounted charges, the providers expect and coordinate care across the continuum for
to experience growth in the size of their their patient population.

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36  Section 1: Basic Principles
Table 4.3  English language definitions

General practitioner/ Synonyms, used to describe those doctors who have undergone postgraduate training
Family doctor or family in general practice/family medicine at least to the level defined by Medical board.
physician
Primary care physician A physician from whatever discipline working in a primary care setting.
Secondary care A physician who has undergone a period of higher postgraduate training in an organ/
physician disease based discipline, and who works predominately in that discipline in a hospital
setting.
Specialist A physician from whatever discipline who has undergone a period of higher
postgraduate training.
Primary care The settings within a healthcare system, usually in the patient’s own community, in
which the first contact with a health professional occurs (excluding major trauma).

English Language Definitions20 8. Jane Doherty, Riona Govender. Disease Control


Priority Projects (The World Bank and WHO)
There is a lot of confusion regarding both Working Paper No. 37. The Cost-effectiveness of
the language used about general practice or Primary care Services in Developing Countries:
family medicine and its interpretation. In A Review of the International Literature. 2004.
order that there can be no misinterpretations 9. The role of gp/fp in the health care systems – a
or misunderstandings for the purposes of statement from WONCA. 1991.
these discussion papers the following terms 10. Olesen F., et al. gen. pract.—Time for a new
are defined in Table 4.3. definition. BMJ. 2000;320:354–7.
11. The European definition of gen. pract./fam.
Med. , WONCA Europe. 2002 ; Barcelona, Spain
References 12. American Academy of Fam. Phy., 1999–2000.
1. Olesen F, et al. General practice—time for AAFP Reference Manual : Selected topics on
a new definition. BMJ, 2000;320(7231):354– health issues, Leewood ; AAFP, 1999.
7[PMID: 10657333: Free full text]. 13. McWhinney IRA. Text Book of Fam. Med. , 2nd
ed., Oxford univ. press. 1997.
2. Louden ISL. The origin of gen. pract., J Royal
14. Framework for professional admistrative
Coll Gen Pract. 1983;33:13–18.
devolpment of Gen Pract/Fam. Med. In
3. Leavesley J. a history of gen. pract., Med J Aust.
Europe; WHO, Regional off. For Europe.
1984;107–9.
15. American Academy of Fam. Phy. Primary Care
4. Leeuwenhorst. The gen pract. In Europe- Reinvestment Act of 2004, AAFP Legislative
European conf. on teaching of gen. pract. 1974; Stance. Web site:
Netherlands. http://www.aafp.org/online/en/home/policy/
5. Van Wheel C. The impact of science on future policies/p/primarycare.html. Accessed on 31-
of medicine: RCGP Spring Meeting. 2001. 01-09.
6. Richards JG, et al. General Practice in New 16. Primary care in VA. Barbara Starfield, et al.
Zealand. Published by The Royal New Zealand Boston: Management decisions and research
College of General Practitioners, 88 The center; Washington, DC: U S depart. of
Terrace, Wellington, New Zealand. 1997. Veterans Affairs. Office of Research and
7. David Haslam. President, Royal College of Development. Health Services Research and
General Practitioners, London. UK. Guest Development Service, 1995.
Editorial: The best of both worlds - How 17. Lamberts H. Internationnal clasiffcation of
primary care can save lives and money. Malta primary care (ICPC): Oxford Univ. Press,
Med J. 2008;20(1). Oxford : Oxford Univ. Press ; 1987

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5 THE “Family”
IN FAMILY MEDICINE

“To put the world right in order, we must first put the nation in order;
to put the nation in order, we must first put the family in order; to put the family in
order, we must first cultivate our personal life; we must first set our hearts right.
—Conficus

Focus on Family Health Care context within which most health problems
and illnesses occur and have a powerful
Family health care (FHC) may be defined as an
influence on health outcomes. 3 Further,
art and science of providing comprehensive
family interventions have been shown to
health care to the family as a whole for the
improve health outcomes for a variety of health
purpose of prevention of diseases, prolonging
problems.4 As James Dennis has written—“it is
life, promoting health and efficiency of family
the family milieu, and very early in life, that we
through organized family efforts. As such FHC
find the genesis of social, anti-social human
encompasses the physical, mental, social,
behavior; mental health and illness; many
psychological and religious well-being of
communicable diseases and many nutritional
members of all age groups and their freedom
or other factors that ultimately lead to many
from “infirmity”. FHC envisages not only
chronic degenerative and disability disorders
absence of disease but also positive health of
of later life. It is not possible to separate poor
all family members. Absence of disease is an
mental and physical health, ignorance and
indication toward a healthy family.
poverty from the pathology of the family.”5
The reason for FHC presently gaining
dominance because it significantly involves
and deals principally with the inherent Family—Definition
“biological and social unit” which facilitates Family is a group of individuals united by
achievement of optimum healthcare. No the ties of marriage, blood or adoption; and
other medical specialty has a family focus usually representing a single household. The
or uses a family-oriented approach. A large family may be extended vertically to include
body of research has demonstrated that health other generations, such as grandparents, and
problems can be managed more successfully horizontally to include other relatives such
by dealing with the family system than by as brothers and sisters. McDaniel et al define
limiting one’s approach to the individual’s family as, “Any group of people related either
illness.1, 2 biologically, emotionally, or legally.” 6 This
It has long been recognized that the status includes all forms of traditional and non-
of an individual’s health has often its origin in traditional families such as unmarried couples,
his/her family health. Families are the primary blended families, and gay and lesbian families.

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38  Section 1: Basic Principles
The family, as an institution, provides rich heritage. Family represents an informally
for the rearing and socialization of children, managed group of members whose behavior,
the care of the aged, sick or disabled, the action, and contribution are governed by
legitimation of procreation, and the regulation “unwritten rules”, carried through generations.
of sexual conduct in addition to supplying
basic physical, economic, and emotional Characteristics of a Healthy Family
security for its members. Successful families have certain characteristics,
The United Nations refer to the family as and their understanding gives the family doctor
the basic unit of the society; it is appreciated a basis for assessing the health of the family and
for the important socio-economic functions a goal to help set targets for change in disrupted
that it performs. In spite of the many changes in families. Such characteristics are:8
society that have altered its role and functions, it ™™ Healthy communication—Family members
continues to provide the natural framework for have freedom of expression for their
the emotional, financial, and material support feelings and emotions. Family members
essential to the growth and development of its talk with one another and listen well to
members, particularly infants and children, and what others are trying to say through their
for the care of other dependents, including the words, expressions, and actions.
elderly, disabled and infirm. The family remains ™™ Personal autonomy—It includes appropri­
a vital means of preserving and transmitting ate use of power sharing between spouses.
cultural values. In the broader sense, it can, and Families decide how responsibilities will be
often does, educate, train, motivate and support divided among family members.
the individual member, thereby investing in their ™™ Flexibility—There is appropriate “give and
future growth and acting as a vital resource for take” with adaptation to individual needs
development.7 and changing family circumstances.
The members of the family are inextricably ™™ Appreciation—This involves encourage­
joined together by social and individual factors ment and praise so that members develop
such as love, affection, mutually supporting, a healthy sense of self-esteem. Families
inter-dependent, complementary in function, function best when the individuality of
consistent in their family obligations. While its each family member is acknowledged and
members share a long history, which carries appreciated.
with it varied genetic, economic, social, ™™ Support networks—Adequate support,
religious and cultural influences, the family especially emotional support, from
unit itself serves to help integrate each of its within and without the family engenders
members into the community and the wider security, resistance to stress and a healthy
society; while at the same time addressing environment in general. The family
itself to the material as well as the emotional, physician is part of this network.
cultural, social, and sexual and physical needs ™™ Family time and involvement—Studies have
of its members. The family offers each member shown that the most satisfying hallmark of a
nurturance, which permits psychosocial happy family is “doing things together”.
growth and development, creates a sense of ™™ Spouse bonding—The importance of a
historical perspective and provides a base sound marital relationship is obvious.
from which the process of social definition Their relationship is meaningful and
begins. Thus “Family” is a social organization, harmonious with each other. They are the
which is based on strong tradition, culture and most important role models in the family.

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Chapter 5: The “Family” in Family Medicine 39

™™ Growth—Appropriate opportunities for It is important that the family physician


growth of individual family members are remain alert to the diversity of presentations
essential. Their needs are fulfilled so that and takes the responsibility for identifying an
they achieve most of their individual goals. underlying family-based problem.
™™ Spiritual and religious values—An
attachment to spiritual beliefs and values The Family Life Cycle and Role of
is known to be associated with positive Family Physician
family health, supporting the saying, “The Family life cycle denotes the span of time from
family that prays together stays together.” the beginning of a family with marriage of a
Pratt 9 has identified six healthy characteristics young couple, the bearing, rearing and raising
of family: their children, through the time when they
™™ Members facilitate an interaction process, are again alone together until retirement and
™™ Members enhance individual development, inevitable death of one or both of the couple. It
™™ Role relationships are structured effectively, consists of set of predictable steps or patterns
™™ Members actively attempt to cope with and developmental tasks families experience
problems, over time. It begins with the marital union of
™™ Members promote healthy home environ­ a couple, expands through the birth of their
ments and lifestyle, and children. Children grow, become independent,
™™ Members establish regular links with the and start their own family. The couple gets older
broader community. and finally the family disintegrates through the
death of the couple. As Neighbor RH befittingly
Characteristics of a Disturbed states, “The phrase family life-cycle implies the
Family7 symbol of a circle, the wheel of life, things going
The following presentations may be indicators round endlessly. But the image of motion in a
that all is not well in the family, and so the circle leaves out the important dimension of
doctor needs to “think family”: development over a period of time...they seem
™™ Marital or sexual difficulties biologically or socially pre-ordained, in that
™™ Multiple consultations of a family member— each can be varied or curtailed, but omission
being labeled as “thick file syndrome”, or of any one causes the death or disfigurement
“difficult patient” of family life as we know it.”10
™™ Multiple consultations by multiple family Neighbor RH 9 has described the seven
members traditional phases in a typical family life-cycle
™™ Abnormal behavior in a child that are recognized as shown in the Table 5.1
™™ Inappropriate behavior in the antenatal Duvall et al11 have described eight definable
and/or postpartum period stages of development in a family cycle.
™™ Drug or alcohol abuse in a family member Understanding the implications of each stage
™™ Evidence of physical or sexual abuse in is necessary for the family doctor as it helps in
wife or child the formation of appropriate hypothesis about
™™ Psychiatric disorders the problem the individual is experiencing at a
™™ Increased susceptibility to illness, stress, particular stage and therefore to tailor a suitable
or anxiety. solution to the specific problem.*
*While the life-cycle approach alerts us to the necessity of change, it gives an impression that all the families
follow the same stages. In the real world this is clearly not the case, e.g. people get married after having
children, or not at all.

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40  Section 1: Basic Principles
Table 5.1  Phases, tasks and issues in the family life-cycle
Phase Task Issues
Pairing/marriage Fusion Leaving family of origin (emotionally and physically);
readiness for intimacy (psychological and sexual);
agreeing roles, goals and values
complementarity/symmetry of marital relationship
Child-bearing Creation Sharing each other; role ambiguity—wife, woman or
mother?;
two's company, three's a crowd pairing off
School-age children Nurturing Providing security (emotional and
environmental); how to be a parent;
separation; involvement with community; mother with more
time again; differences between children
Family with adolescent Boundary-testing Control versus freedom; power struggle and rebellion;
children individuation; social and sexual exploration
Family as 'launching Leaving/letting go Changing roles of children still at home; the empty nest—
ground' loss or opportunity?; parents rediscover each other; latent
marital conflict
Middle years Reviewing/reappraising Mid-life crisis; fulfilment/disappointment; accepting
limitations; changing self-image; anticipating retirement;
death of parents
Old age Intimations of mortality Aging, illness and death; closing-in of boundaries; achieving
serenity; religion and philosophy; isolation/dependency;
bereavement

Stages stage then becomes an opportunity for health


™™ Newly married (couples without children) promotion and intervention.
While the newly married learn to establish
™™ Birth of first child (eldest child from birth
a mutually satisfying relationship and adjust to
– 30 months)
each other and help one another meet social,
™™ With preschool children (eldest 2½–6
economic and sexual needs, the doctor can
years.)
integrate health practices and habits into the
™™ With children in school (oldest 6–13 years.)
lifestyle of the couple, which promote health
™™ With teenagers (eldest 13–20 years.) and prevent disease. For example: practicing
™™ Launching years—Empty nest phase— hygiene; participating in well-balanced
(children leaving home; adjusting to the programs of rest, exercise, and a balanced
ending of parenting roles) diet; advice on safe sex; knowledge concerning
™™ Parents alone in middle years (from last contraception, pregnancy and marital roles
child leaving home till retirement of the and adjustments. The family doctor has to
parents). consciously work out health practices that are
™™ Retirement and later years (from retirement most suitable to the couple’s lifestyle, which
to the death of one or both parents). will promote health as an invaluable asset at
For the family each new developmental the very beginning of the family life cycle.
stage opens up fresh responsibilities, whereas With the birth of the first child, the couple’s
for the family doctor each new stage alerts to functions and responsibilities expand. The
what may be expected and an approximate work needs rescheduling and becomes more
period for anticipating change. Each new stressful, financial strain increases and leisure

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Chapter 5: The “Family” in Family Medicine 41

activities decrease. First time parents often The “structure” (i.e. family roles and
feel the lack of emotional support during relationships) and “functions” (i.e. the process
the first few months of parenthood. Here the of continuous change in the system) of
family physician can analyze the child-rearing the family is a dynamic process, which
needs of the family, advice on the appropriate keeps altering with the passage of time. The
use of resources for child care, including physician and the family together work to
breast feeding, scheduling immunizations, accommodate and adapt additional tasks and
monitoring growth and mile-stones, and change their plans as necessary. Failure of the
advice on childhood behavioral problems. family members to adapt to the changes can
When the children grow up into teenagers— be a source of ill health. The family physician’s
each growing and developing at an individual interventions are aimed at assisting the family
pace—great demands are placed on the in carrying out functions it cannot perform
family, which must meet the critical needs by itself. In health promotion and disease
and interests of the children. Promoting prevention, the physician assists the family in
religious practices, education, sound health, improving its capacity to understand stressful
and disciplinary techniques are critical tasks events inherent to such situations and guide
in socialization of children. At this stage, the the family to its best advantage.
family physician can advice the teenagers
on developmental changes, intersibling Family Dynamics and Illness
relationship, sexual health and hygiene. Health
Family dynamics may be broadly defined as
problems in this age group include violent
the relationship of an individual person in the
deaths (homicide and suicide), accidents,
context of his/her family, the interpersonal
alcohol and drug abuse. The family physician
relationship within other family members, and
needs to analyze the conflicts, if any, between
the relationship of the family to the community.
parents and children, assess risks for engaging
One of the defining characteristics of family
in certain harmful behaviors, and emphasize
medicine has always been the special
the benefits of practicing healthy behaviors.
relationship family physicians have with their
When children grow to adulthood,
patients and that “the patient is viewed in the
they begin to leave home. The last child
context of the family and the family in the
departing from home may create an “empty
context of the community.”
nest syndrome”. The parents have to realign
their priorities, adjust to retirement and its Families have a life of their own that is
consequences, and cope up with the aging distinct from, yet always connected to, the lives
process. The social circle decreases and of the individual family members.
loneliness increases. Health tasks require An individual’s family relationship is an
a new awareness because of susceptibility important determinant of health and disease,
or vulnerability to illness and diseases. At and family dynamics are connected vitally
this stage, the family physician can help to the basic issues of health promotion and
decrease risks by placing a high value on disease prevention in any family. The healthy
physical activity, adequate nutritional family “equilibrium” can get disturbed by
requirements, not smoking, adjusting home an illness, disability, and social deprivation,
environment to be safe and comfortable, and and it is essential for the family physician to
also providing counseling and psychological recognize and manage any illness with a clear
support to overcome loneliness and deal with understanding of the dynamics of the family
bereavement. life to set right this “equilibrium.”

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42  Section 1: Basic Principles
The patient’s perception of his illness ™™ When working with families under
may be different from the doctor’s because stress, e.g. due to a serious illness of
of family’s preconceived ideas, faith, and its member, it is best not to judge their
experiences. The family culture comprises roles or relationship patterns. By offering
of habits, beliefs, and lifestyles, which may support and affirmation of their family
aggravate or alleviate an illness of its members. rules and roles, the family physician can
Therefore, the family physician must be able gain their confidence by offering choices
to meet the healthcare needs of patients and alternatives, which are likely to affect
from diverse culture and socioeconomic a positive change.
backgrounds, and to understand illness in the Certain diseases and disorders are well
context of cultural beliefs and norms so as to known to be either initiated or exacerbated by
provide effective care. factors involved in the family dynamics. For
In a broader context, the implication of example, parental difficulties, such as marital
family dynamics extends beyond the family conflicts, are associated with bronchial asthma
per se. Family physician needs a community in already susceptible individuals. Stressful
orientation with its health beliefs in an illness, experience may result in the inception of
the cultural morals that affect healthcare, and asthma, exacerbations, and inadequate
the social, economical, and physical factors control. Stressful family events, such as marital
that may be related directly or otherwise to disharmony, divorce, death of a parent, or
community morbidity and mortality. a family member are frequently associated
The other important aspects of family with maladaptive behavior in children.
dynamics include: The incidence of migraine, irritable bowel
™™ To recognize the impact of illness on syndrome, anorexia/bulimia nervosa, etc. is
the family — The individual with an higher in stressful families.12,13
illness creates physical, mental, and In certain situations a cooperative and
financial strain within the family. The encouraging family dynamics is extremely
imperative needs and caring of the sick helpful in achieving positive results. For
person with its subsequent responsibilities example, a significant number of individuals
and consequences in the other family have quit smoking and other related
members can lead to conflicts, resentment, deleterious health habits only by the morale
anxiety, and depression. This especially booster support of their family members. A
occurs when the illness is prolonged, holistic involvement of family members in
chronic and serious. The family with strong many diseases and disasters has proved to be
personal bonds will accept such illness as a a critical factor in their final outcome.14,15
challenge to adapt, to grow up, and to make Thus, to understand the family dynamics,
relationship stronger. the family physician needs to follow
™™ To plan and execute allocation of scarce “biopsychosocial model” of illness, considering
health resources, including preventive simultaneously physical, psychological, social,
and curative measures, to the family’s best and environmental factors in assessing health
advantage. The family physician has to and illness in their patients, rather than the
analyze the advantages and disadvantages “biomedical model” (i.e. all illness has a single
of both short and long term cost-effective underlying cause, disease is always the single
healthcare measures in the context of cause, and removal or attenuation of the disease
family resources, desires, behavior, and will result in a return to health) followed in
relationship patterns. routine clinical practice.16 This is important in

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Chapter 5: The “Family” in Family Medicine 43

the early stages which unables to understand ™™ Environmental factors—work pressure,


the relationship between the life events and stress, pollution, travel
the onset of the disease; and in the late stages it ™™ Social and psychological factors—crowding,
helps to make effective plans for continuing care. isolation, fast-life
™™ Healthcare system—overuse, under use,
Risk Factor Estimates inappropriate use.
Throughout the family’s life cycle, family Family physicians need to be aware of such
members are prone to develop age-specific risk factors prone to cause health problems
risk factors, which may ultimately lead to an to which a family may be most vulnerable or
illness with its subsequent morbidity and sensitive so that appropriate health promotion
mortality. For example: and disease prevention strategies can be
™™ In a child-bearing family, risk factors instituted. Moreover, awareness of risk factors
such as lack of prenatal care, poor food may prompt families to make an extra effort to
habits, smoking, alcohol, drug abuse, reduce risks more directly under their control
low socioeconomic levels, etc. may lead and thus lessen overall risk of disease and injury.
to premature labor, low birth weight
infants, birth defects, sudden infant death Assessment of Family
syndrome, fetal alcohol syndrome, etc. Dynamics/Illness7
™™ In a family with adolescents, risk factors The family physician can adopt some of the
such as conflicts between parents and following methods to evaluate the family
children, rigid family values, pressure to live dynamics:
up to family expectations, school problems, ™™ Self-report method—The physician asks
etc. are known to cause depression and family members, individually, together
lead children to acts of deliberate self- or both regarding problems. A more
harm, including suicide. refined or objective method of collecting
™™ In a family with middle-aged adults, risk self-perceptions is to use standardized
factors such as hypertension, diabetes, inventories or questionnaires.
overweight, physical inactivity, stress, etc. ™™ Observation method—Carefully observing
are well known to cause coronary artery family members interacting during
diseases and cerebrovascular accidents. consultation.
™™ In a family with elders, risk factors such ™™ Impromptu method—An ‘impromptu’
as retirement, reduced income, loss of home visit (with some pretext such as
spouse, lack of exercise, failing vision, an inquiry about relative’s health or lab
hearing, sight, etc. are prone to cause report) on the way home from office may
depression, mental confusion, and injuries be very revealing. The ‘surprise’ element
such as falls, acute illness, chronic diseases, may provide factual information in some
and even death without dignity. persistent and problematic cases.
Generally, the risks that are family related ™™ Family interview—Inviting the whole
can be inferred from: family to a counseling session, if required.
™™ Biological factors—genetic inheritance,
congenital malformation, mental retardation, Family in Crisis
™™ Lifestyle factors—dietary habits, physical Although, we all strive for perfection, there
activities, smoking, alcohol, drug abuse, is no perfect family. Each family has its
sexual habits own strengths and weaknesses, assets and

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44  Section 1: Basic Principles
liabilities, challenges and problems. Each 1. Primary Prevention: These are activities
family develops its own ways of coping with designed to prevent a crisis from occurring.
these stresses, some of which work better than 2. Secondary Prevention: These are steps
others. But sometimes problems lead to crisis. taken in the immediate aftermath of the
A family crisis may be defined as a problem crisis to minimize the effects.
that cannot be solved or addressed with the 3. Tertiary Prevention: This provides long-
family’s normal or customary problem solving term follow-up to those most affected.
skills. It is a state of affairs in which a decisive
change one-way or the other is impending. In Transition Stages During a Crisis
other words a crisis is a “turning point”, and an
The following stages usually occur during any
“upset in a steady state”. When a situation, such
severe crisis:
as a serious illness, produces a disturbance in
the steady state, i.e. “equilibrium”, the person ™™ Numbness/shock (Emotional inability to

activates problem solving activities and coping accept the reality of death),
mechanisms to restore equilibrium. If the stress ™™ Denial (This cannot be happening; refuse
is such that it pushes the person beyond the to acknowledge the death of loved one
ability to restore the equilibrium, crisis will result. or other loss, and make every attempt to
Some common examples of cr isis continue on with daily routine as though
situations in a family are: critical illness, nothing has changed),
accidental events, natural disasters, criminal ™™ Anger (The need to find someone to blame
acts, suicide, terminal illness, death, HIV for the loss occurs, e.g. blaming God,
diagnosis, rape, sexual abuse, substance abuse, doctors, destiny),
unemployment, career changes, financial ™™ Depression (Sadness, hopelessness, loss
problems, separation or divorce, and so on. of appetite, changes in sleeping patterns),
A stressful event need not necessarily and
constitute a crisis; the individual’s or family’s ™™ Acceptance of reality (moving on with
perception of and response to the event normal life after the loss has occurred; the
determine if a crisis will occur. For example: reality of the loss comes into focus, the
death of a loved one may be viewed as crisis, but grieving person accepts the loss and begin
it may not constitute crisis for those individuals rebuilding his life).
or families who do not perceive the event as
such and who manage to resolve the event Risk Factors for Crisis
by using their usual coping behaviors and
situational supports. Thus, the ability of families In addition to the factors which are features
to respond to a crisis depends on the resources of disturbed families discussed above,
they have—both physical and emotional. Sound identification of additional risk factors leading
decision-making, confidence, communication, to crisis situation are especially helpful for
unity, supportive friends and relatives are some anticipatory planning, including primary
of the crucial factors that are helpful in a crisis prevention of crisis. These include:
management (Fig. 5.1). ™™ History of frequent crisis, ineffectively
resolved because of poor coping ability
Caplan’s Model of Crisis Intervention ™™ Low self-esteem
Using Caplan’s model, there are three levels of ™™ History of mental disorder or emotional
crisis intervention.17 instability

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Chapter 5: The “Family” in Family Medicine 45

Fig. 5.1  Paradigm of effect of balancing factors in stressful event. (Source: Aguilera DC: Crisis
Intervation: theory and methodology, edn 6, St Louis. 1990. Mosby.)
*Balancing factors

™™ Tendency toward impulsive “acting out” During crisis, the obvious priority for the
behavior—doing without thinking physician is the patient, but the less obvious
™™ History of numerous accidents needs of the family should not be ignored.
™™ Frequent encounters with law/judicial
agencies. Physician’s Role in Family Crisis7
It is extremely important to recognize that An individual or family, in a state of crisis
family crisis have an impact upon all family needs immediate help to solve the crisis,
members. In the long term, other family with the focus of what is happening here
members may be affected more than the and now.
individual actually suffering. This may apply Crisis intervention is a short-term mode of
particularly to children manifesting in them therapy for assisting individuals and families
as behavioral disturbances, poor scholastic to cope with current crisis events. Although
performance and other aberrative habits later cautious, short-term use of benzodiazepines
in their life.7 may be advocated in specific situations, the

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46  Section 1: Basic Principles
family physician should aim at two areas of Among many psychotherapeutic counseling
crisis intervention; namely—to get actively models available to assist the family physician,
involved with the family to help restore the BATHE model is highly useful.
equilibrium, and to obtain help of the family’s The acronym BATHE refers to the
significant others to assist in solving the components of the interview. This interview
immediate crisis. Following steps should be format allows the physician to assess the
actively considered: Background situation, the patient’s Affect,
™™ Assess the individual or family for possible the problem that is most Troubling for the
reasons leading to crisis before planning a patient and the manner in which the patient
strategy for intervention. is Handling the problem. It concludes with a
™™ Once the initial assessment is completed, response that conveys Empathy.
provide help to the individual or the
family to supplement personal strengths Using the ‘BATHE’ Technique
to avoid a crisis state and future health The family physician can usually elicit the
consequences. background situation for the patient visits
™™ Involve as many family members as with a simple statement such as “Tell me what
possible in the early stages of any critical has been happening in your life; is there any
illness. Arrange family conference, if change since you last fell sick.” This conveys
necessary. the physician’s interest and invites the patient
™™ Discuss and decide management issues to share any present concerns. The physician
with family members. Always respect their then moves forward and clarifies the patients
views and wishes. affect, i.e. emotional state by asking, “How
™™ Include the family on a continuing do you feel about what is going on in your
basis—especially if a long-term illness is life; how do you feel about your home/work/
anticipated. spouse/children”. Similarly, the question “what
™™ Include the family in hospital discharge troubles or worries you most in your life/at
and subsequent follow-up visits. home” helps the patient to focus and provides
understanding and insight for both physician
™™ If the family seems overwhelmed with
and patient. Based on the response, the central
problems, or if there is a breakdown in
concern can often be identified.
relationship within the family, it is probably
time to arrange for expert professional The physician then asks how the patient is
help. handling the situation, e.g. “How do you feel
you are coping; do you get any support from
The ultimate goal of crisis intervention is
any one else.” Discussions on such questions
assisting individual/family to function at a
make the physician believe that the patient is
higher level than their present state.
able to cope and the patient in turn appreciates
that his physician understands his method
Family-based Medical Counseling of dealing with the problem. The patient
—The “Bathe” Technique18,19 may even wish to work with his physician to
Numerous studies confirm that emotional develop new coping strategies.
problems are prevalent in patients who The technique concludes with an
present to family physicians.17,20 Therefore, empathetic response by the physician. A
they need an effective method of incorporating response of this type conveys understanding
psychotherapy into the patient’s visit. and support. Empathy is shown by authentic

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Chapter 5: The “Family” in Family Medicine 47

and sincere remarks, such as “That must have just a few of the characteristics of the humane
been very difficult; that sounds really tough on physician. Every physician will, at times, be
you.” Empathy is vital to establish and maintain challenged by patients who evoke strongly
a working relationship between patient and negative (and occasionally strongly positive)
physician. emotional responses. Physicians should be
While the BATHE technique may appear alert to their own reactions to such patients
elementary, it embodies many essential and situations and should consciously monitor
elements of successful psychotherapy. These and control their behavior so that the patient’s
elements include the establishment of a best interests remain the principal motivation
therapeutic alliance, empathy on the part of for their reactions all the time.22
physician, identification of the central conflict,
Physicians should create proactive patients by:
the development of insight and awareness,
™™ Giving them the essential facts and the
and the discouragement of dependency. In
treatment options and then be invited
particular, the BATHE technique discourages
to make their own choice. Although
dependency and encourages adaptation and
patients yield to the physician for their final
establishment of realistic coping strategies.
decision, they however want to learn how
and why he or she arrived at the decision.
Working with Families—Avoiding Most of the patients look for an element of
Pitfalls direction from their physicians.
Physicians are widely criticized for being too ™™ Asking for feedback and responding to it
paternalistic*—assuming the role of a ‘saviour’ (e.g. are you satisfied with the explanation;
or ‘rescuer’. This trait is found more commonly do you have any more questions).
in family physicians, who, because of their ™™ Emphasizing that all the family members
sustained patient-physician relationship over have to work together for maximum
the years with one or more families can easily benefits.
get trapped in the role of paternalistic “doctor ™™ Maintaining confidentiality of the
knows best” model in medicine. The best individuals within the family.
defense against this trap is for the physician to ™™ Avoiding taking sides and/or looking for
respect and restore the family’s autonomy**.21 scapegoats within the family.
Availability, the expression of sincere concern, ™™ Encouraging them to bring along a family
the willingness to take the time to explain all member to support them and to speak up
aspects of the illness, and an attitude of being if necessary.
non-judgmental with patients who have ™™ Involving another family colleague when
lifestyles, attitudes, and values different from important policy-decisions are involved.
those of the physician and which he or she To sum up, working with the families is an
may in some instances even find repugnant are important part of medical practice. Therefore,
*
Paternalism is the unjustifiable substitution of the judgment of the physician for the patient in deciding
what is best. It describes a “father knows best” set of attitudes and behaviors that would limit full disclosure
of medical information with patients and make decisions for patients without their input into the decision
making process.
**
Autonomy is the ability of an individual to determine his/her course of life. Practically speaking, autonomy
in medical practice means that individuals are free to choose and reject medical advice and that patients
are to be fully informed about their medical condition and, as much as is practical, take part in all decision
making that affects them.

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48  Section 1: Basic Principles
it is the physicians’ duty to treat them, as they 12. Mangan JM, et al. The potential for reducing
would like to be treated themselves. Be honest asthma disparities through improved family
and respectful and make this contract with and social function and modified health
them a pleasure. behaviors. Chest, 2007;132(5 Suppl):789S–
801S. Review [PMID: 17998343: Free article].
13. Vázquez Nava F, et al. [The asthmatic patient
References and his/her family dynamics]. Rev Alerg Mex.
1. http://www.searo.who.int/en/section13.htm 2003;50(6):214–9 [PMID:14968985:Abstract].
(Accessed on 03-10-2011) 14. Shoham V, et al. A family consultation
2. Gardner J, et al. Is family therapy the most intervent­ion for health-compromised smokers.
effective treatment for anorexia nervosa? J Subst Abuse Treat, 2006;31(4):395–402. Epub
Psychiatr Danub. 2011;23(Suppl)1:S175–7. 2006 Aug 14. [PMID: 17084793 :Free full text].
[PMID: 21894130: Abstract]. 15. Wen X, et al Analysis on the influence factors
3. Campbell TL. The family’s impact on health: of parental participation in prevention and
a critical review and annotated bibliography. control of smoking among secondary school
Fam Syst Med, 1984;(2,3):135–328. students. Wei Sheng Yan Jiu, 2007;36(3):323–6.
4. Campbell TL, et al. The effectiveness of family [PMID: 17712952: Abstract].
interventions in the treatment of physical 16. Wade DT, et al. Do biomedical models of illness
illness. Journal of Marital and Family Therapy, make for good healthcare systems? BMJ, 2004;
21, 545–83. 329(7479):1398–401. [PMID: 15591570: Free
full text].
5. James Dennis, 1969. In: General practice, ed
17. Alan Rosen. Crisis management in the
John Murtage, The Family, 1996.p.9–10.
community. Web site - http://www.mja.com.
6. McDaniel SH, et al. Family-oriented primary
au/public/mentalhealth/articles/rosen/rosen.
care: a manual for medical providers, 2nd edn.
html. Accessed on 05-10-2011.
New Yory:Springer-Veriag, 2003.
18. Stuart MR, Leiberman JA. The 15 minute
7. Benjamin Schlesinger. Strength in families: hour: Applied psychotherapy for primary care
Accentuating the positive; In: Contemporary physician, 2nd edn., Westport.Conn: Praeger,
Family Trends series. Web site: file:///C:/ 1993:101–83.
DOCUME~1/personal/LOCALS~1/Temp/ 19. Mcculloch J, et al. Psychotherapy for primary
CFT_strengths_families_accentuating_ physician: The BATHE technique: American
positive.pdf (accessed on 04-0402025). Acad of Fam Phy. American Family Physician,
8. John Murtage. General Practice: The Family, 1998.
1996:9–10. 20. Johnstone A, et al. Psychiatric screening in
9. Pratt L. Family structure and effective health Gen. Pract. - A controlled trial; Lancet, 1976;
behavior: the energized family. Houghton 1(7960):605–8.
Mifflin, Boston, 1976. 21. Savage R.et al. Effect of GP’s consulting style on
10. Neighbour RH. The family life cycle R Soc Med. patients’ satisfaction; A controlled study. BMJ,
1985;78 (Suppl 8):11–5. [PMID: 4009579; Free 1990;301:968–70.
full text] 22. The editors. The Practice of medicine. In:
11. Duvall EM, et al. Marriage and family develop­ Harrison’s Principles of Internal Medicine, ed.
ment. 6th ed. New York, 1985 [Harper and Row]. Longo et al. 18th edn. Vol.1, p.6.

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2
Section

Health for All


™™ The Alma-Ata Declaration
™™ Primary Health Care Approach to Health for All

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6 The ALMA-ATA
declaration

“The Alma-Ata Declaration is the real revolution that enables us to restore genuine concepts in the
activities of our Organization. This Organization in the past had lost its way and steered away from the
main path of its work; it had sought to tackle individual diseases or develop health services in isolation
from one another. It had forgotten that health is a comprehensive movement or action, which starts and
ends with the individual. And without this concept I do not believe we can achieve a better world for the
individual.”
—Dr AL-AWADI (Kuwait), WHO Regional participant for Eastern
Mediterranean region; Round Table Debate, 10th Anniv.
Of Alma-Ata, 9th May 1988, Riga, USSR.

Background By the 1970s, the morbidity and mortality


for rural communities was not improving, and
The 1960s and 1970s many developing
in some places they deteriorated. In places
countries in Asia, Africa, and Europe won
where people did have access to services,
independence from former colonial powers.
cultural beliefs about illness meant those
This independence was accompanied by
services were not being accessed.
an enthusiasm to provide high-standard
healthcare, education and other services for Further, developments such as oral
the people. Governments moved to establish rehydration solutions, showed that early
teaching hospitals and medical and nursing and appropriate intervention by carers and
schools, often with the assistance of donor village volunteers could avoid referral and
nations. With rapid advances in medicine and admission to hospital, and, if combined with
its technology, and subsequent specialization an effectively organized vaccination program,
by doctors in various medical sub-specialities, would address the major causes of death and
it was realized that in both developed and illness.2-4
developing countries, health services favoured During the 1970s, a synthesis of these
only the privileged few. Although “health” concepts was undertaken by the WHO
was the fundamental human right, there was and UNICEF. It addressed the need for
a denial of this right to millions of people a fundamental change in the delivery of
stricken with poverty and ill-health. Healthcare healthcare services in developing countries,
services to the rural majority were supplied by with an emphasis on equity and access at
missionary hospitals and clinics, or by “touring affordable cost, and emphasizing prevention
services” provided from urban hospitals. while still providing appropriate curative
There was a wide variety of services of varying services. Thus, in order to render social justice
standard and quality in the rural areas. Most of and equity to health care, the joint WHO-
the population still visited traditional healers.1 UNICEF International Conference in 1978 at

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52  Section 2: Health for All
Alma-Ata, (now called Almaty), USSR, called Declaration of Alma-Ata
for the revolutionary approach to global health
The International Conference on Primary
care.
Health Care (PHC), meeting in Alma-Ata this
12th day of September in the year Nineteen
The Genesis of Alma-Ata hundred and seventy-eight, expressing the
need for urgent action by all governments,
The International conference on PHC, held
all health and development workers, and the
at Alma-Ata, USSR, in 1978, was convened
world community to protect and promote the
in response to an international sense of
health of all the people of the world, hereby
despair over the widespread inequalities in
makes the following declaration:
health and health care that afflicted all the
™™ The conference strongly reaffirms that
nations of the world, developed as well as
developing. Despite great efforts by countries health, which is a state of complete
and WHO in the late 1960s and early 1970s to physical, mental and social well-being,
improve and extend services, large number and not merely the absence of disease or
of people, particularly in the rural areas of infirmity, is a fundamental human right
developing countries, remained with no access and that the attainment of the highest
to basic healthcare and hygiene. This attracted possible level of health is a most important
worldwide criticism as “social injustice.”5 The world-wide social goal whose realization
global conscious was stirred leading to a new requires the action of many other social
awaking that the health gap between the rich and economic sectors in addition to the
and the poor within countries and between health sector.
countries should be narrowed and ultimately ™™ The existing gross inequality in the health
eliminated. status of the people particularly between
developed and developing countries as
well as within countries is politically,
Primary Health Care Takes Center socially and economically unacceptable
Stage and is, therefore, of common concern to
Discussing these issues at the joint WHO- all countries.
UNICEF International Conference in 1978 at ™™ Economic and social development, based
Alma-Ata, USSR, participated by delegations on a New International Economic Order, is
from 134 member states, and by representatives of basic importance to the fullest attainment
of 67 Unite d Nations Organizations, of health for all and to the reduction of
specialized agencies and non-governmental the gap between the health status of the
organizations, called for a “revolutionary developing and developed countries. The
approach” to health care. Declaring that, promotion and protection of the health
“The existing gross inequalities in the health of the people is essential to sustained
status of people, particularly between the economic and social development and
developed and developing countries, as well contributes to a better quality of life and
as within countries is politically, socially and to world peace.
economically unacceptable”, the Alma-Ata ™™ The people have the right and duty to
conference called for acceptance of WHO participate individually and collectively in
goal of “Health For All (HFA) by 2000 AD” and the planning and implementation of their
proclaimed as way of achieving HFA.6 health care.

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Chapter 6: The Alma-Ata Declaration 53

™™ Governments have a responsibility for the ƒƒ Addresses the main health problems in
health of their people, which can be fulfilled the community, providing promotive,
only by the provision of adequate health preventive, curative and rehabilitative
and social measures. A main social target of services accordingly.
governments, international organizations ƒƒ Includes at least education concerning
and the whole world community in the prevailing health problems and
coming decades should be the attainment the methods of preventing and
by all peoples of the world by the year controlling them; promotion of food
2000 of a level of health that will permit supply and proper nutrition; an
them to lead a socially and economically adequate supply of safe water and
productive life. PHC is the key to attaining basic sanitation; maternal and child
this target as part of development in the health care, including family planning;
spirit of social justice. immunization against the major
™™ Primary health care is essential health care infectious diseases; prevention and
based on practical, scientifically sound control of locally endemic diseases;
and socially acceptable methods and appropriate treatment of common
technology made universally accessible to diseases and injuries; and provision of
individuals and families in the community essential drugs.
through their full participation and at ƒƒ Involves, in addition to the health
a cost that the community and country s e c t o r, a l l re l at e d s e c t o r s a n d
can afford to maintain at every stage of aspects of national and community
their development in the spirit of self- development, in particular agriculture,
reliance and self-determination. It forms animal husbandry, food, industry,
an integral part both of the country’s education, housing, public works,
health system, of which it is the central communications and other sectors;
function and main focus, and of the overall and demands the coordinated efforts
social and economic development of the of all those sectors.
community. It is the first level of contact ƒƒ Requires and promotes maximum
of individuals, the family and community community and individual self-reliance
with the national health system bringing and participation in the planning,
health care as close as possible to where organization, operation and control
people live and work, and constitutes the of PHC, making fullest use of local,
first element of a continuing health care national and other available resources;
process. and to this end develops through
™™ Primary health care* appropriate education the ability of
ƒƒ Reflects and evolves from the economic communities to participate.
conditions and sociocultural and ƒƒ Should be sustained by integrated,
political characteristics of the country functional and mutually supportive
and its communities and is based on referral systems, leading to the
the application of the relevant results of progressive improvement of compre­
social, biomedical and health services hensive health care for all, and giving
research and public health experience. priority to those most in need.

*Ref. Appendix 4

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54  Section 2: Health for All
ƒƒ Relies, at local and referral levels, on particularly in developing countries in a
health workers, including physicians, spirit of technical cooperation and in keeping
nurses, midwives, auxiliaries and with a New International Economic Order.
community workers as applicable, It urges governments, WHO and UNICEF,
as well as traditional practitioners as and other international organizations, as
needed, suitably trained socially and well as multilateral and bilateral agencies,
technically to work as a health team non-governmental organizations, funding
and to respond to the expressed health agencies, all health workers and the whole
needs of the community. world community to support national
™™ All governments should formulate national and international commitment to prima
policies, strategies and plans of action PHC and to channel increased technical
to launch and sustain PHC as part of a and financial support to it, particularly in
comprehensive national health system and developing countries. The Conference calls
in coordination with other sectors. To this on all the aforementioned to collaborate in
end, it will be necessary to exercise political introducing, developing and maintaining PHC
will, to mobilize the country’s resources in accordance with the spirit and content of
and to use available external resources this declaration.
rationally. In summary, PHC is a strategy now
™™ All countries should cooperate in a spirit of internationally accepted as the most important
partnership and service to ensure PHC for means of meeting the health needs of people in
all people since the attainment of health communities around the world. To implement
by people in any one country directly this strategy and improve the general level of
concerns and benefits every other country. health amongst populations and in individuals,
In this context, the joint WHO/UNICEF cooperation and efforts must come from all
report on PHC constitutes a solid basis for quarters of the organized health care field, the
the further development and operation of public and social services, and from people
PHC throughout the world. themselves in their communities.
™™ An acceptable level of health for all the
people of the world by the year 2000 can References
be attained through a fuller and better use 1. Chan M. Director-General of the WHO;
of the world’s resources, a considerable Address at the WHO Congress on Traditional
part of which is now spent on armaments Medicine. Web site - http://www.who.int/
and military conflicts. A genuine policy dg/speeches/2008/20081107/en/index.html.
of independence, peace, détente and Accessed on 06-10-2011.
disarmament could and should release 2. Editorial: Oral glucose/electrolyte therapy for
additional resources that could well be acute diarrhoea. Lancet, 1975;1(7898):79–80.
[PMID: 46028: Abstract].
devoted to peaceful aims and in particular
3. Smith LG. Teaching treatment of mild, acute
to the acceleration of social and economic
diarrhea and secondary dehydration to
development of which primary health care, homeless parents. Public Health Rep, 1987;
as an essential part, should be allotted its 102(5):539–42. [PMID: 3116585: Free full text].
proper share. 4. The Mahler revolution [editorial]. BMJ, 1977;
The International Conference on PHC 1:1117– 8[PMID: 861491: Free full text].
calls for urgent and effective national 5. Park K. Park’s Text Book of P&SM, 16th edn.: 1.
and international action to develop and 6. World Health Assembly Resolution–32.30, 34.60,
implement PHC throughout the world and and 41.34: Strengthening primary health care.

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PRIMARY HEALTH

7 CARE APPROACH
TO HEALTH FOR ALL

““When I took office at the start of last year, I called for a revitalization of primary health care as an
approach to strengthening health systems. During the course of last year, I took that commitment a step
further. I became convinced that we will not be able to reach the health-related Millennium Development
Goals* unless we return to the values, principles, and approaches of primary health care.”
—Dr Margaret Chan

What is “Health for All”? need a concrete timeline, although the target
set by the Alma-Ata Declaration was the year
“Health For All (HFA)” is a rallying call to
2000. It is not a single, finite target. Rather, it is a
the international community to enable “the
developmental process leading to progressive
attainment by all citizens of the world by the
improvement in the health of our people.
year 2000 of a level of health that will permit
them to lead a socially and economically HFA Does Not Mean that
productive life.” The HFA is a battle cry to give
renewed impetus to the whole process of social ™™ The best health care will be made available
and economical development of which health for all people to take care of all diseases.
is a vital component. ™™ Nobody will be sick or disabled by the year
Dr Somsak Chunharas, Chairman of World 2000.
Health Organization (WHO) Expert Group on
HFA Does Mean that
Revitalizing Primary Health Care has proposed a
new definition of “Health For All” without a time ™™ Essential health care will be made available
definition for the process of revitalizing PHC, to all individuals and families in an
which states, “A stage of health development acceptable and affordable way.
whereby everyone has access to quality health ™™ There will be more equitable and need
care or practice self-care protected by financial based allocation of finite health resources.
security so that no individual or family is
experiencing catastrophic expenditure that may HFA—The Fundamental Principle
bring about impoverishment.”1 The fundamental principle governing HFA
The HFA is actually a vision of health movement includes the following:
development. For this reason, HFA does not ™™ Health is a basic human right.

*The eight MDG are: 1. Eradicate extreme poverty and hunger, 2. Achieve universal primary education,
3. Promote gender equality and empower women, 4. Reduce child mortality, 5. Improve maternal health,
6. Combat HIV/AIDS, malaria and other diseases, 7. Ensure environmental sustainability, and 8. Develop
a global partnership for development .

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56  Section 2: Health for All
™™ Health resources should be more equitably elements described as “essential health care.”
distributed between and within countries. They are:
™™ People must be involved in the planning ™™ Education concerning prevailing health
and implementation of their health care problems and the methods of preventing
system. and controlling them,
™™ There must be political commitment on the ™™ Promotion of food supply and proper
part of the government to the movement. nutrition,
™™ Countries must take the initiative to solve ™™ An adequate supply of safe water and basic
their problems, although they may need sanitation,
international assistance. ™™ Maternal and child health care, including

™™ Health development is an inter-sectorial family planning,


™™ Immunization against the major infectious
activity that requires the co-operation of
many disciplines and experts. diseases,
™™ Prevention and control of locally endemic
diseases,
The Genesis of Primary Health
™™ Appropriate treatment of common diseases
Care2 and injuries, and
The PHC movement*, as exemplified by the ™™ Provision of essential drugs.
Alma-Ata Declaration, came about because in
many developing countries people in rural and The Concept of PHC
poor areas were deprived of essential health PHC is the corner stone of HFA. It was and still is
care. In such situations, there was an urgent the only rational, cost-effective strategy to achieve
need to re-orient political and administrative basic health for the majority of the people.
thinking, so as to achieve a more equitable The PHC concept incorporates certain
distribution of health resources. Alternative fundamental values common to the overall
ideas and methods to provide health care were process of development but with emphasis on
considered and tried. Several programmes their application in the field of health as follows:
against some of the major scourges such ™™ Health is fundamentally related to the
as malaria, TB, leprosy, filaria, etc. were availability and distribution of resources,
launched. It took some time for the WHO to not just health resources such as doctors,
realize that these were not only expensive nurses, clinics, medicines, but also
but also required lengthy duration to provide other socioeconomic resources such as
expected results. Discussing these issues at the education, water and food supply.
joint WHO-UNICEF international conference ™™ PHC is thus concerned with ensuring that
in 1976 at Alma-Ata (now called Almaty), the available health and social resources are
the governments of 134 countries and many distributed equitably with due consideration
voluntary agencies called for the “revolutionary for those whose needs are greatest.
approach” to health care and proclaimed PHC ™™ Health is an integral part of overall develop­
as a way to achieving HFA. ment. The factors influencing health are
The Declaration of Alma-Ata, in its seventh these social, cultural and economic as well
clause, states that PHC consist of at least eight as biological and environmental.

*In India, the concept of PHC was conceptualized in 1946, three decades before the Alma-Ata Declaration,
when Sir Joseph Bhore made recommendation that formed the basis for organization of basic health
services in India.

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Chapter 7: Primary Health Care Approach to Health for All 57

™™ The achievement of better health requires or city, a majority of the middle—and upper-
much more involvement by people as income group visit a private practitioner that
individuals, families and communities, may be a general practitioner or a specialist,
in taking action on their own behalf by or directly go to a hospital. In many developed
adopting healthy behavior and ensuring countries the family doctor serves as the first
healthy environment. point of contact.

Phc Definition1 The PHC Approach


It is a broad and comprehensive concept that A well-organized health care system would
places national health development into the invariably encompass the following:
overall social and economic development as ™™ Coverage of the population,
embraced in its definition: PHC is “essential ™™ Provision of comprehensive, essential care,
health care based on practical, scientifically ™™ Integration of preventive and curative
sound and socially acceptable methods and services,
technology made universally accessible to ™™ Co-ordination of primary, secondary and
individuals and families in the community tertiary health care services,***
through their full participation and at a cost ™™ Mechanisms of quality control services,
that the community and country can afford to and
maintain at every stage of their development in
™™ Adequate funding and equitable distribution
the spirit of self-reliance and self-determination.
of resources for all relevant services.
It forms an integral part of both the country’s
health system*, of which it is the central function Ingredients of PHC (Table 7.1)
and main focus, and of the overall social and
economic development of the community. It is High technology hospital-based health care is
the first level of contact of individuals, the family vital to handle the complex disease spectrum.
and community with the national health system But these expansive facilities should not be
bringing health care as close as possible to where used to tackle common health problems,
people live and work and constitutes the first which can be more effectively managed by
element of a continuing health care** process.” PHC centers—public or private. How then
Primary health care refers only to the first should we go about organizing an effective
level of contact or close-to-client health care. PHC system? Four vital ingredients are
This first level of contact varies from country to essential.
country as well as by geographical area. In the ™™ A clinically competent profession,

rural area usually it is the health center, health ™™ A caring profession,


sub-center, health post or private practitioner ™™ A cost conscious profession, and
(doctor, nurse and midwife). In the urban area ™™ A more organized profession.

*A health system consists of all organizations, people and actions whose primary intent is to promote,
restore or maintain health.
**Continuing health care process denotes that health care does not stop at the primary level of care or
the first point of contact. If there is need for more comprehensive or sophisticated care the patient will be
referred to a higher level of care—secondary or tertiary level of care.
***Health care service refers to medical and public health services provided by both government (the health
sector) and the private sector. It covers modern and traditional medicine as well as services provided by
the community.

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58  Section 2: Health for All
Table 7.1  How Phc works3
In developing countries In developed countries
Community education programmes Stress control and crisis management
Added training to traditional midwives Weight control and dietary improvement
Encouraging and training community health workers  Life-style modification
Teaching nutrition Special access programmes for disadvantaged groups
Maternal and child welfare Family-oriented ambulatory care, in hand with
emergency care
Clean water and provision of sanitation Health screening
Immunization programmes Care of adolescents and elderly

A Clinically Competent Profession Table 7.2  Misperceptions of PHC

The objective of the medical school must •  Only for the poor
•  Cheap and low-quality of care
be to train primary care doctors who can
•  Aimed at developing countries only
undergo further training in specialization. •  Only for rural areas, and deals with primary care
Clinical training, if it has to be more relevant only
to the objectives, will have to include more
exposure to primary care settings. The range and their relationship should be one of mutual
of medical topics taught and the strategies respect and support.
for management should also reflect the State and government policies should be
epidemiology of community-based practice. modified so that every individual and family
has a primary care physician who guides the
A Caring Profession whole health care system. The patient as a
In PHC, the human element is crucial. Patients consumer does not have adequate knowledge
and families must feel comfortable in relating to exercise his or her decision in matters
to their primary care doctor. They must have of health and may have misperceptions*
the confidence that he will provide good sound (Table 7.2). This is especially so when
advice. symptoms are vague or where patients have
multiple pathologies requiring the attention
A Cost-conscious Profession of different specialists.
This process of PHC service is not an attempt
The health care can be made more cost to deny free access to health care. Instead, it is a
conscious and cost effective by proper planning rational approach to ensure that relevant care
co-ordination and control of expenditure. is given to patients according to the type and
level of need. In this way, patients, physician,
An Organized Profession and specialist are assured of optimum care as
To avoid undue wastage and duplication, there and when the situation demands.
must be greater co-operation among health The PHC requires the use of new
care providers. The primary care physicians management skills in planning, organizing,
and specialists play a complementary role leading and controlling the results of

*Primary Health Care can be a misnomer as it is sometimes regarded as a “primitive” form of health care.
Perhaps it is time to re-label it as “Essential Health Care”.

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Chapter 7: Primary Health Care Approach to Health for All 59

PHC programmes. Practical management management of high-mortality emergencies.


principles and techniques can be learned in The rise of chronic diseases has uncovered
short workshops and can be supplemented further problems—most risk factors lie outside
by reading and continuing education the direct control of the health sector.”4
programmes, seminars or workshops. It Thus, the overall factors which limited
means involving the people themselves in their the progress of HFA by 2000 AD could be
own health care through better diet, proper summarized as follows:
exercise, simple remedies for common minor ™™ Insufficient political commitment to HFA,
ailments, and general improvement in lifestyle. ™™ Slow socio-economic development,
It also means that mass communication and ™™ Unbalanced distribution of and weak
marketing skills must be used the maximum, support for human resources,
so that other disciplines outside the organized ™™ Weak health information system and
health care field can contribute to the total care absence of baseline data,
effort. It means involving agriculturists, public ™™ Rapid demographic and epidemiological
workers, business establishments, legislators, changes,
and other leaders at all levels. ™™ Inappropriate use of, and allocation of
resources for high cost technology,
Phc Revival—Beyound Declaration ™™ Difficulty in inter-sectoral action for health,
At the WHO’s South-East Asia Regional ™™ Pollution, poor food safety and lack of safe
Conference on Revitalizing Primary Health water supply and sanitation,
Care (PHC),1 organized on 6–8 August 2008 ™™ Natural and man-made disasters, and
in Jakarta, Indonesia, it was acknowledged ™™ The continuous low status of women.
that the target of Health for All movement But despite an abject failure to reach the
which was part of the Alma-Ata Declaration target, the basic pillars of the PHC approach,
on primary health care in 1978 that was to be i.e. universal coverage, equity in health,
achieved by the year 2000 has not yet been inter sectoral collaboration and community
accomplished. Dr Margaret Chan, Director- participation, and use of appropriate technology
General of the World Health Organization, remain valid even today.
in her address “Return to Alma-Ata”, on Health For All is holistic concept calling
18 September 2008 states, “Nor could the for efforts in agriculture, education, housing,
visionary thinkers in 1978 have foreseen communications and industry as well as in
world events: an oil crisis, a global recession, health. Implicit in the strategy of HFA is the
and the introduction, by development banks, realization that health is only a part of socio-
of structural adjustment programmes that economic well being. Hence a broad based
shifted national budgets away from the social movement of radical redistribution of economic
services, including health. As resources for and political power and deep transformation
health diminished, selective approaches using of ideas, attitudes and values are called for
packages of interventions gained favor over to achieve HFA. The measures for poverty
the intended aim of fundamentally reshaping alleviation and social justice hold the key to HFA
health care. The emergence of HIV/AIDS, the in all developing countries including India.
associated resurgence of tuberculosis, and an
increase in malaria cases moved the focus of Conclusion
international public health away from broad- PHC is attracting renewed concern with
based programmes and toward the urgent its basics as proclaimed in the Millennium

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60  Section 2: Health for All
Development Goals. Such a movement is of demonstrates that the advent of health care
vital importance as new threats to health are through a base of primary care improves
continually emerging. health better than through the traditional
If health care is to be properly developed vertical disease—oriented health programs
and equitably distributed, there must used around the globe. The global “family” of
be reasonable and effective control and family medicine must advocate for a shift from
coordination to the overall situation in a the current solutions to one in which the family
given country. The health services have to be doctor is part of a well-trained healthcare team
reoriented and restructured towards this goal that can function in networks that incorporate
of HFA. the vertical programs into a broad horizontal
To achieve this vision, the PHC approach approach for better access to primary care.
is valid for all countries today, and even of Perhaps in this way “Health For All” can be
tomorrow, until a better way is discovered. achieved.”
Montegut AJ in his article titled, “To
achieve “Health For All” we must shift the References
world’s paradigm to “primary care access for 1. Regional Conference on “Revitalizing Primary
all”5 reinforce and to this core philosophy by Health Care” Jakarta, Indonesia, 2008. Web site
stating, “Since the early 1950s, the WHO has -http://www.searo.who.int/en/Section1243/
proposed programs to promote primary health Section2538.htm. (Accessed on 07-10-2011).
care around the world. From the 1978 Alma-Ata 2. Education and Health. A manual on health
Declaration to the current promulgation of the education in PHC. WHO. Geneva. 1988.
3. World Health Forum, The world’s main health
Millennium Development Goals, the WHO has
problems. 1981;2(2):264–80.
tried to improve health in developing countries
4. Web site - http://www.who.int/dg/20080915/
through a focus on disease-oriented (vertical) en/index.html. (Accessed on 07-10-2011).
programs. The WHO and other organizations 5. Montegut AJ. To achieve “Health For All” we
have not focused on the horizontal role of must shift the world’s paradigm to “primary
primary care. The expectations created by care access for all”. J Am Board Fam Med. 2007;
these programs have not been met. Evidence 20(6):514–7 [PMID: 17954857: Free Article].

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3
Section

Clinical Approach
™™ The Spectrum of Clinical Diagnosis
™™ Investigations: General Principles

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8 The spectrum of
clinical diagnosis

“The family physician must often diagnose what things are not, rather than what they are; must
sometimes make management decisions before, or instead of, disease decisions; and must frequently
ignore the temptation to be thorough”.
—Anthony Dixon. ‘There’s a lot of it about’: clinical strategies in family practice.
Journal of the Royal College of General Practitioners, 1986. pp.468–71.

Introduction Table 8.1 Common undifferentiated symptoms in


primary care
The discipline of family medicine is probably
•  Abdominal pain
the most difficult, complex, and challenging •  Anxiety
of the healing arts. Among the multitude of •  Back pain
characteristics of the discipline of general •  Change in weight
•  Chest pain
practice/family medicine as pronounced •  Cough
by WONCA, 1 one of the attributes family •  Depression
physicians shoulder is the responsibility for the •  Dizziness
•  Fatigue
“comprehensive care of unselected patients with
•  Headache
undifferentiated* problems”—the so-called •  Insomnia
undifferentiated illness syndrome— regardless •  Nervousness
of age, gender, illness, organ system affected, •  Sexual dysfunction
•  Shortness of breath
or methods used.2 •  Vaginal discharge
Since family physicians are at the very
front line of healthcare delivery system, and
also, as primary physicians shoulder the “diagnosis”** to facilitate early recognition of
responsibility of the early diagnosis in the the disease, which allows starting treatment in
maze of “undifferentiated” symptoms (Tables the early phases of development with the aim
8.1 and 8.2), it is important that physicians of modifying the natural course of the disease
develop a well-founded methodology for and also reduce the margin of error.

*Undifferentiated, meaning they are non-specific and very general in nature, and can be associated with
a number of causes.
**Prof. IR McWhinney, in his “Albert Wander Lecture” says,” I have avoided using the term diagnosis…
medicine has yet to evolve a universal acceptable definition of diagnosis. It is well-known, also, that general
practitioners solve many “problems” without making a diagnosis in the sense of making a statement about
etiology, or of assigning the patient’s illness to a place in the taxonomy of disease.” (Ref. - Proc. Roy. Soc.
Med., Vol.65, Nov. 1972; Albert wander Lecture, Meeting, June 21, 1972; and Chapter 21: Medical records).

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64  Section 3: Clinical Approach
Table 8.2  Characteristics of symptoms seen in family Chancellor, Manipal Academy of Higher
practice
Education, Manipal, affirms, “In this modern
•  Many suggest undifferentiated problems era of hi-tech science, clinical medicine may
•  Many symptoms are characteristic of early disease seem primitive to younger generation of
•  Many symptoms suggest problems that are self-
limited
clinicians. But in reality, it provides an accurate
•  Many symptoms are a complex mixture of social, diagnosis in over 80% of the cases, where as
emotional, and physical factors all the sophisticated investigations combined
•  M any symptoms are related to behavioural
together yield only about 10% more…clinical
problems
•  People present more than one symptom at each medicine is not just marginally superior to
encounter hi-tech medicine but is the only hope. If we
have to keep up the nobility of our profession—
Clinical Process—History and to do most good to most people most of the
symptomatology time—we have to relay on time honored and
time tested medicine. A small percentage
However, a particular problem for physicians
of patients will definitely need hi-powered
in primary care is that the vast majority
hi-tech medicine, but the large majority of
of symptoms encountered is a complex
patients would do well with good bedside
mixture of physical, social, and psychologic
clinical medicine.”
components, and seem to defy a clearcut
organic explanation.3, 4 Often the patient masks
History
such symptoms with a somatic component.
In one study, no physical disorder could be A well-taken history (i.e. patient’s views of
established in 30 to 75% of cases, even after illness) is a record of patient’s experiences,
careful investigations.5 Compared to secondary not only of the current illness for which
care, organic diseases (e.g. malignancy, CCF) help is being sought, but also those related
have low prevalence in primary care, hence to life, work, family situation and previous
the link between symptoms and disease is less health. In additions to these facts, the patient
robust. Further, in order to exclude organic continually offers valuable “clues”*, i.e.
disease in primary care, a physician may discrete information which indicates the
fall into a trap of undertaking investigations nature of something perceived by the patient;
beyond that are absolutely necessary. Since in clues—whether verbal or non-verbal—are
primary care or family practice, “diagnosis” is a always an indirect signal that patients use to try
far more knotty issue, and over-investigation is to alert the doctor to a question or concern to
a constant temptation, the concept of “clinical their attitude, knowledge and belief about their
diagnosis”, i.e. a working hypothesis based on health, which are valuable in total patient care
collected symptom data, both subjective and management. Further, certain clues should
objective, which are used to consider potential alert the physician to avoid thinking solely in
cause-and-effect relationships, without benefit clinico-pathological basis (Table 8.3).
of laboratory tests or imaging modalities has In The Horse and Buggy Doctor, Hertzler7
been stressed.6 Prof. BM Hegde, former Vice wrote, “Having acquired a patient, the first
*McWhinney further classifies cues into two major categories: 1- Certain cues, which are diagnostic and
allow the physician to immediately place the illness into a definite category; e.g. an urticaria following drug
administration; or cough in a patient with past history of pulmonary TB. 2- Probabilistic cue enables the
physician to form a hypothesis, but additional inquiry or testing is necessary to validate the hypothesis.
These probabilistic cues form the basis for hypothesis generation.

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Chapter 8: The Spectrum of Clinical Diagnosis 65
Table 8.3 Historical clues suggesting non clinico- Table 8.4  Patients’ reasons for seeing doctor
pathological illness
•  A new illness
•  F requent attendance with the same somatic
•  An acute episode in a chronic problem
symptoms.
•  Large or endless number of somatic symptoms. •  For repeat medications
•  Attendance with symptoms that has been present •  Request for home visit
for a long-time. •  Request for referral or visit to another doctor
•  Inability to make sense, or being vague of the •  To discuss results of lab investigations
presenting problem.
•  To follow-up previous consultation
•  Conversation that is out of context.
•  Incompatibility between the patient’s distress and •  To obtain certificates, signing bills, recommendation
the comparatively minor nature of the problem. letters
•  Body language — nervousness, tics, rigid posture.

thing to do is obtain a history of his aliment. ™™ “Listens with care”—to what the patient is
The securing of an adequate one is a work of saying (see below),
art. It requires knowledge of disease and of ™™ “Interprets”—what the patient is trying to
human nature. It is hard work and it is time convey,
consuming but it is necessary, because to ™™ “Elicits”—important/relevant information
many cases it is the most important factor not volunteered by the patient, and
in the whole procedure. A good history may ™™ “Ascertains”—that the complaints which
even anticipate what the microscopic slide will the patient has not mentioned are indeed
show.” The symptom—the problem that brings absent.
the patient to the physician—is the starting
point in the medical inquiry, and begins the Listen to Your Patients…and They will
process of problem solving. Tell you the Diagnosis..!
A complete medical history should contain Listening to the patient seems so obvious, and
reasons for the patient’s concern (Table 8.4). yet so often neglected. Sometimes it is because
The elements of the history which are most the doctor has memorized entire “textbook
important in clinical diagnosis are those which of medicine” and assumes, arrogantly, that
provide positive and negative defining features he/she knows patient’s diagnosis better than
of the “working hypothesis” (see below) being the patient does. At other times, it is because
tested. For example, in an adult, if the working the doctor is too distracted or lacks the time
hypothesis is angina pectoris, the physician to really listen and jumps to conclusions.
will inquire about positive features such as The patient knows his/her own body and
precordial pain of short duration, aggravated symptoms far better than a doctor or any
on physical exertion, relived by rest, and its medical textbook. Therefore, a kind and
radiation to arms, and tobacco abuse. Negative attentive doctor, who is willing to spare time to
features that exclude angina pectoris that must listen to the patient—the feeling of not having
also be inquired include: localized chest pain, to hurry during the consultation—is more
not related to exertion, lasting for long duration, important than the actual number of minutes,
and history of musculoskeletal aliments. and it is the most satisfactory therapy in the
majority of patients in family practice.8 As the
Skills in History Taking great clinician Lord Platt in the year 1949 wrote
Taking the history is not simply a “question and – “if you listen to your patient long enough, he/
answer” session. It is a “dialogue” in which the she will tell you what is wrong with him/her”.
physician: This is as true today as it was centuries ago!

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66  Section 3: Clinical Approach
History taking, in which both the physician Limitations of Symptoms
and the patient participate in the “dialogue”, Although, it is common for disease process
therefore, it is not an isolated one-time to manifest themselves through symptoms,
procedure. It is a dynamic process, which physicians should be aware of their limitations
should be refined during physical examination, in certain conditions, for example:
while reviewing investigations, and later
™™ Absence of symptoms—e.g. absence
during the course of the illness.
of chest pain in myocardial infarction,
Analysis of Symptoms9,10 especially in diabetic patients; viral
hepatitis without icterus, as in chronic
Since ancient times*, patients have been hepatitis B, or post-transfusion hepatitis;
presenting to the physician with symptoms
™™ Atypical symptoms—e.g. patient with IHD
and signs as expressions of their illness. These
may c/o “indigestion/gas,” instead of chest
presentations, i.e. symptoms and signs, have
pain;
not changed much over the centuries. But our
insights into what these represent have changed ™™ Non-specific symptoms—e.g. patient

greatly. For example, bacterial infections was the c/o fatigue may be a manifestation of
most common cause of pyrexia a few decades several organic disease, such as iron
ago, but now, with the advent of new diagnostic deficiency anemia, or HIV infection, or
inventions, such as molecular biology, we now bowel cancer; or psychological illness,
have multi-drug resistant viruses, bacteria, and such as depression, or substance abuse;
immunodeficiency disorders as the common both simple and benign, or serious and
causes in the etiopathogenesis of pyrexia. The life-threatening;
physician with the greatest insight into the ™™ Identical symptoms—e.g. fever with chills
etiopathogenesis of illness is best equipped to may be due to malaria, cystitis, abscess, or
deal with the patient’s illness. The knowledge pneumonia;
into the insight of rare disorders further helps in ™™ Medically unexplained symptoms (MUS)—
the treatment of the illness. Terms such as somatization, or functional
Often a symptom that has not concerned symptoms have been used to categorise
the patient has little clinical significance; but symptoms without an organic cause. It is
in certain situations a seemingly insignificant important to appreciate that MUS are not
complaint may have considerable importance. synonymous with unimportant symptoms.
For example, a smoker may ignore his cough Further, even symptoms that have an
as a common smoker’s cough, but when overt organic cause are interpreted and
it is persistent, and associated with other described differently by patients according
systemic manifestations, such as weight loss, to their personality, health beliefs, physical,
it is mandatory to rule out or confirm lung and psychological state. 11,12 Picking
malignancy. Therefore, the physician should up clues to identify problems that are
be constantly alert to the possibility that functional rather than organic is a key skill
any event related to the patient and family for a successful family physician. A policy
members, however trivial or insignificant, may of observation over a period of time may
be the clue to the solution of their illness. further resolve the issue.

*In the ancient world, medicine was closely allied with religion; problem solving was often attempted
through prayer, meditation, and revelation.

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Chapter 8: The Spectrum of Clinical Diagnosis 67

Patient—Symptoms Variables13,14 Other factors, e.g. social class, income,


World Health Organization analysis shows educational and ethnical status are important
that in family practice over 70% of problems determinants of patient’s belief in sickness.
which cause sickness are behavioural related. Often family physicians need not take
Many patients seek medical care because past, family, or therapeutic histories as these
they want to tell to someone who will hear are well-known to them. This “continuing
and sympathize with their problems. They care relationship” is one of the distinguishing
believe that the only “ticket of admission” (see features of family practice.16,17
below) to a physician’s consultation chamber
is by presenting a physical problem—so Patient as an Individual
they find one! A 30-year-old man complains While taking patients’ history, important
of dyspepsia, and asks the physician, “is information can be gained by noticing their
it stomach ulcer?” On physician’s careful tone of voice, facial expression, attitude, and
inquiry, it seems to be related to difficulties other aspects of their body language. One study
he is having at home and work, which was concludes that physicians may capture more
this patient’s prime concern, but was afraid to of their patients’ hidden emotional messages
discuss. Subsequently, physician’s counselling in the consultation by increased awareness of
relieved his dyspeptic symptoms to a great specific verbal characteristics and non-verbal
extent. cues.18 These aspects—mental and physical
Why do patients need “ticket if admission”? expressions—help in the evaluation of their
Many patients would like to talk to a sympathetic emotional status and their relationship to
doctor about personal problems not parochially their social, financial, family and personal
thought as “medical problems”.15 A specific life style, which is of practical importance
question such as, “can you tell me what bothers in the management of patient as a whole. In
you the most?” can help the patient to bring up listening to the history, the physician discovers
their “hidden agenda”, and a truly thoughtful not only something about the disease, but
physician will want to devote time to listening also something about the patient who has the
sympathically to uncover their concerns and disease.19
offer reassurance.
Some patients, although having a clear Clinical Process—Physical
sickness, may not consult doctor earlier,
Diagnosis
with an idea that their illness is trivial and
self-limiting. Although they may be worried By the end of the history, the physician will have
and afraid about the nature of their illness, established sufficient rapport with the patient,
they delay consulting physician by seeking so that the initiation of physical examination is
reassurance from others to ease their anxiety, a comfortable and natural process.
which later leads to worsening of their illness. Levels of concern and anxiety on the part
Some patients seek physician’s advice of the patient must be considered before
not to get cured but be defined as sick. Apart examination of the patient, and a general
from direct financial benefits such as medical explanation of the content and time required
compensation, escape from court, legal or tax for the physical examination must be briefly
matters, “sickness” may satisfy their emotional explained to the patient. This will enhance
needs, such as dependency, or an excuse to patient’s confidence and cooperation during
avoid a stressful situation. physical examination.

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68  Section 3: Clinical Approach
The physician, in general, should elicit able to judge how often and to what extent a
subtle as well as obvious physical findings physical examination should be repeated on a
by four basic modes*—inspection (in some given patient, as findings not present on initial
situations, the diagnosis can be made by examination may appear subsequently.
observation alone – e.g. rash of herpes zoster, Although a plethora of investigations are
acromegaly, Down’s syndrome. Parkinson’s readily available, the physician should always
disease, Cushing’s syndrome, etc.), palpation, do physical examination in detail because its
percussion, auscultation, and use appropriate diagnostic accuracy of a disease is over 80%,
instruments gently when indicated. However, which is cost effective. 20-24 When ordering
the most valuable instruments the doctor investigations, the physician should always
brings to the physical examination are sharp weigh carefully the hazards and expenses
eyes, ears, fingers, and mind, a basic knowledge of any investigations. The question of risks
of the human body, and a healthy curiosity.** verses benefits concerns medical ethics as is
The mechanical gadgets and other hi-tech the question of cost verses benefits concerns
tools extend these primary tools. medical economics.
When sufficient time is available, a
complete examination may be done, unless Sequence in Clinical Diagnosis
inappropriate to the clinical situation.
(Flow chart 8.1)
When hard pressed for time, physician
should develop the skill of concentrating on The findings of the clinical process discussed
relevant physical examination in the shortest above provide the physician two powerful
possible time. tools, namely patient’s historical data and
The physician should know the range of clues in the history, and signs from physical
normal variations of physical findings, and also examination, which together assist in the
alternative techniques capable of confirming diagnosis of over 80% of illnesses commonly
abnormal findings. For example, plantar reflex, seen family practice. When the outcomes of
or Babinski sign. When this sign is equivocal or these two tools are linked to the physician’s
unequivocal, other alternative signs, such as personal and previous knowledge of the
Chaddock, or Gordon’s sign, are helpful to elicit “family dynamics”*** of the patient,**** and
corticospinal dysfunction. Physician should be also the “accumulated knowledge” of
able to integrate physical findings — normal or probabilities of the occurrence of specific
abnormal — with the diagnostic hypothesis. For illness in the community, the physician can
example, tachycardia in an anxiety prone patient arrive at a “hypothesis” (i.e. a pattern of data
could be normal, but resting tachycardia may suggesting a tentative clinical problem), which
be a sign of hyperthyroidism in an otherwise can be applied to a particular clinical situation.
normal individual. Physician should also be This hypothesis can be revised when further

*This approach may vary with different disciplines. A dermatologist may first inspect the skin lesion; a
surgeon may first prefer palpation; a cardiologist may first auscultate the cardia; and a hematologist may
rely heavily on investigations to make a diagnosis.
**“The eyes see, the ears hear, the hands feel, only what the mind knows.” said Chamberlain.
***That is the ways in which family members relate to one another, their communication, cooperation,
financial status, habits, illness, and other related life style factors.
****The family physician’s personal and previous knowledge and family dynamics is a component often
missing in speciality practice.

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Chapter 8: The Spectrum of Clinical Diagnosis 69
Flow chart 8.1  Outline of sequence in clinical diagnosis

clinical data or results of the investigations presentation of dengue fever (a flashback linked
are obtained. to the accumulated knowledge), and therefore,
Thus, initial history, physical examination, it is the most likely, tentative, or provisional
and routine investigations usually narrow clinical “hypothesis”. The attending physician’s
down the initial hypothesis to an intermediate knowledge that this patient recently travelled to
step—a “syndrome” (i.e. a combination of a region, in which the disease is known to occur
symptoms and signs forming a recognizable (a link to family dynamics), further strengthens
disease pattern). this clinical hypothesis, and helps to rule out
Consider, e.g. a young patient with abrupt similar diseases, such as typhoid fever, malaria,
onset of high fever, chills, headache, intense yellow fever, scarlet fever, meningococcemia,
body aches, joint and muscle pains, retro- and several others. The physician, based on
orbital pain, and skin rash. This symptom historical data and a “clue” of his personal
pattern of fever, intense body aches and joint knowledge of travel history, has now ruled out
pains, retro-orbital pain and rash is a classical possibilities of other diseases, and has arrived

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70  Section 3: Clinical Approach
at the intermediate clinical stage of “syndromic specialities, but has special characteristics
diagnosis”, Further, lab work out, such as appropriate to the unique features of family
coagulation profile, and ELISA essay for dengue practice.26,27 Some of these features are listed
virus help to clinch the diagnosis of dengue fever, in Table 8.5.
and thus the physician can arrive at the “specific Because of the nature of family practice,
diagnosis” of dengue fever. diagnosis is more frequently a model of
If the first syndromic approach does not “working hypothesis”. The diagnosis, on many
explain the clinical picture, a second syndrome occasions, is not as clear as when a patient first
or mechanism may need to be considered. In presents to a specialists or hospital.* There are
some clinical situations, further procedures or a number of reasons for this:
investigations may be indicated, but the question ™™ The family physician often deals with
of whether the test is likely to provide essential undifferentiated clinical problems, i.e.
information which will help management problems that have not previously been
of particular patient should be asked. In assessed by a physician.
such a perplexing situation it should also be ™™ The family physician often sees disease
remembered that, if the symptoms and signs in an early stage, before the full clinical
do not suggest an immediate life-threatening picture has developed. Since the sensitivity
condition, the situation may resolve itself with and specificity of clinical data vary with the
observation over a period of time. Further new stages of a disease, tests that are valuable in
symptoms and signs may emerge, or results of family practice may be different from those
investigations, which were negative, may become that are useful in hospital practice.
positive over time. Thus, “judicious delay”, also ™™ The prevalence of disease in family practice
known as “Wait on Event (WOE)”,25 can be an is very different from its prevalence in the
extremely useful diagnostic tool. However, it selected population of a hospital, clinic
requires the knowledge of the potential causes, or ward. Since the predictive value of
and an awareness of what the delay in diagnosis clinical data varies with the prevalence of
may mean to the management of the patient. A
Table 8.5  Characteristics of family practice
serious, life-threatening disease will be therefore
ranked higher than probability would indicate. • Type of illness often encountered:
– Minor, self-limited, or transient illness
For example, in an elderly, myocardial ischemia – Illness with complex mixture of physical,
will precede any other “probable” cause of chest psychological, and social elements
pain. Similarly, a disease which can be treated – High incidence of illness often similar to that
in the community
and cured will be ranked higher than other
• Stage of illness:
diseases with similar probability. For example, – Early stage of illness, often with subtle clues
acute appendicitis will top the list of any other – No previous physician’s evaluation
cause, such as non-specific mesenteric adenitis, • Scope of patients and problems:
– All age groups
due may be the “probable” cause of acute pain – All anatomic systems
in the abdominal right iliac fossa. – All types of etiopathogenesis
– High-volume practice
Diagnosis in Family Practice • Physician-patient relationship:
– Relationship with patients is continuous, and
Diagnostic strategy recommended for family extends beyond individual episodes of illness
physicians is similar to that in other medical – Awareness of family dynamics

*As someone aptly states, “In many cases a GP has to deal with a first draft, whereas the consultant gets
the edited transcript.”

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Chapter 8: The Spectrum of Clinical Diagnosis 71

a disease in a given population, the same In view of these considerations, the


symptom, sign or test will have a different traditional pattern of diagnosis in terms of
predictive value in family practice from a precise statement of pathophysiology as a
that in hospital practice. requirement for treatment is sometimes of
™™ Even after full assessment, a significant doubtful validity. The family physician’s duty
proportion of problems cannot and do not to protect his/her patients from risk, and to
need to be diagnosed in the usual sense relieve suffering will often mean that action
of the term. Many clinical decisions have must be taken before a pathophysiological
therefore to be made without a precise diagnosis is established, or as part of the process
clinical diagnosis. Knowledge of the patient of establishing that diagnosis. To this end,
as a whole encompassing physical, social, management decisions are made on the basis
and psychological aspects often plays a of probability and investigations used with due
major role in these decisions. Often the regard to their sensitivity and specificity. The
most important task is to eliminate the passage of time and the therapeutic trial are also
possibility of serious disease—a process considered valid bases for arriving at diagnoses.
called “eliminative diagnosis”. In many The plan of action will be negotiated with the
cases, therefore, the objectives of the family patient and his or her family, with an honest
physician are to sort patients into “binary presentation of probabilities so that they may
categories” (Flow chart 8.2). make an informed choice.

Flow chart 8.2  Binary tree decision in family practice

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72  Section 3: Clinical Approach
Finally, experience acquired at the bedside The mnemonic, “I’M VINDICATED”
during the course of professional life increases which stands for: Iatrogenic, Metabolic,
knowledge, diagnostic skills and judgment. Va s c u l a r, In f l a m mat i o n , Ne o p l a s m s,
These aspects need to be applied in the process Drugs (Doctor induced/toxins), Infection,
of clinical diagnosis and management of total Congenital (hereditary), Autoimmune,
patient care. Trauma, Endocrine, Degenerative/Don’t know
(idiopathic), may be helpful in considering
The Differential Diagnosis the differential diagnosis in any patient. For
a given specific complaint, each category is
The construction of a differential diagnosis is
mentally perused for possible etiologies.
essential in planning the course of diagnostic
evaluation. Possible diseases should be
ranked in order of likelihood and according
Changing Conceptions of Health,
to prevalence in the population. The impact Disease and Diagnosis28
of this rank order list is determined by the As physicians, we approach our patients
physician’s fund of knowledge, patient’s age, and their problems within the framework
sex, occupation, and lifestyle risk factors. A and culture of the modern, dominant
disease cannot be diagnosed and treated unless medical model—the “biomedical model”.
known and understood by the physician. Biomedical models originate from Virchow’s
The axiom, common diseases present conclusion that all disease results from
commonly, and its converse, uncommon diseases cellular abnormalities. He stated that all
present uncommonly, should serve to focus the diseases involve changes in normal cells, i.e.
physician’s attention on the importance of disease all pathology ultimately is cellular pathology.
prevalence when formulating a differential Its history goes back to the birth of modern
diagnosis. However, physician must also realize science during the renaissance in the 14th
that an uncommon manifestation of a common and 15th centuries, and it is often associated
disease, rather than a common presentation with french philosopher and scientist Rene
of an uncommon disease is not unusual in Descartes’ view of the mind and the body as
clinical practice. Additionally, no matter how separate systems.* It organizes and defines
contrary to the presentation, there should be the questions we ask, the information
serious consideration given to those conditions we seek, the diagnostic and therapeutic
that are potentially life-threatening. Discarding options, and ultimately the outcome of
a diagnosis too early may ultimately jeopardize our interventions.
patient care. Atypical chest pain in ischemic heart The biomedical model sees the body as
diseases, cough and dyspnoea in pulmonary functioning in a mechanical way, and sees illness
embolism, fever and rash of meningococcemia as the result of changes in physiological process
are examples of prompt diagnosis of an astute as a result of injury, chemical imbalances,
physician, because disease process is lethal unless genetic defects, bacterial or viral infections, or
diagnosed and treated early. other physical causes. This view sees health

*The famous mind-body problem has its origins in Descartes’ conclusion that mind and body are really
distinct. The crux of the difficulty lies in the claim that the respective natures of mind and body are completely
different and, in some way, opposite from one another. On this account, the mind is an entirely immaterial
thing without any extension in it whatsoever; and, conversely, the body is an entirely material thing without
any thinking in it at all. (Web site- http://www.iep.utm.edu/descarte/#SH7b. Accessed on 08-11-2011).

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Chapter 8: The Spectrum of Clinical Diagnosis 73

as the absence of illness (i.e. all illness is As the traditional Bio-medical model
secondary to disease), and would expect of medicine is inefficient in addressing the
effective treatments to be those that changed psychological, psychosocial, and spiritual
the physical state of the body in such a way aspects that are the source of many
as to correct the physical cause of illness. The “unexplained” aliments often seen in
approach generally involves looking for a the contemporary primary care practice,
single, very specific cause or cure for illness, i.e. George Engel, in the 1970s, developed the
“reductionistic” view—it begins with a general “Biopsychosocial model”—an expanded model
review of the body systems and progresses of diagnosis and treatment. Engel did not deny
toward a subsequent focus on a particular single that the mainstream of biomedical research had
system most directly related to the presenting fostered important advances in medicine, but
symptom. he criticized its excessively narrow (biomedical)
Although, this biomedical model has served focus for leading clinicians to regard patients
us well, no description of the diagnostic process as objects and for ignoring the possibility that
can overcome the requirement of the physician the subjective experience of the patient was
to have a sound knowledge of normal body amenable to scientific study.29 This model
structures and processes, and their disorders includes the psychological and psychosocial
in disease states, together with an awareness factors that were excluded from the previous
of the modification of the features of disease model, while at the same time maintaining its
by social and psychological factors. With the scientific approach. It does not look for single,
progressive urbanization of life, accompanied specific causes for illness, but sees health and
by industrial and technogic revolutions, illness as resulting from the interacting effects
humankind has seen the development of new of events of very different types, including
and very different adversities, which have biological, psychological, and social factors.
resulted in the emergence of a uniquely new All of these are seen as systems that affect on
category of modern day aliments, particularly another and interact with one another to affect
stress related diseases, and those linked to individual health.
personal attitudes and lifestyle. Further, many
patients present with symptoms that are not A Biopsychosocial Model
attributable to any underlying pathology The medical community is becoming more
or disease, e.g. the so-called medically aware that attending to the psychosocial impact
unexplained symptoms. Patients with medically of illness not only helps patients emotionally
unexplained symptoms—comprizing a but is also cost-effective. Psychosocial
spectrum of disorders ranging from mild intervention, especially in the chronically ill
transitory illness to chronic disorders with can reduce healthcare utilization, days spent
severe disability—do not fit into the existing in the hospital, disability, lost workdays, and
framework of a biomedical model that tends illness-associated morbidity and mortality.
to focus on the exclusion of physical disease. The biopsychosocial model is both a
However, the exclusion of relevant physical philosophy of clinical care and a practical
disease may not in itself cure the patient. He or clinical guide. Philosophically, it is a way
she may still feel ill and seek medical care, and of understanding how suffering, disease,
such patients do not receive a correct diagnosis and illness are affected by multiple levels of
and undergo numerous fruitless investigations organization, from the societal to the molecular.
and attempts at treatment. At the practical level, it is a way of understanding

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74  Section 3: Clinical Approach

Fig. 8.1  Integrated approach to health and disease


the patient’s subjective experience as an (WONCA), The European Definitions of
essential contributor to accurate diagnosis, General Practice/Family Medicine, short
health outcomes, and humane care. version, 2005.
Thus, the biopsychosocial model expands 2. Phillips WR, et al. The domain of family
the vision and reach of modern medicine to practice: scope, role, and function. Fam Med.
2001; 33(4):273–7.
respond to the changing needs and demands
3. Kroenke K. Symptoms in medical patients: an
of a diverse population of patients that must
untended field. Am J Med 1992;92(1A):3S–6S.
be incorporated by every physician in his
[PMID: 1734731: Abstract].
diagnostic skills.
4. Kisely S, et al. An international study
comparing the effect of medically explained
Conclusion and unexplained somatic symptoms on
™™ In family practice the link between psychosocial outcome. J Psychosom Res, 2006;
symptoms and diseases is less robust. 60(2):125–30. [PMID: 16439264: Abstract].
™™ Family physicians utilize a problem- 5. Kroenke K, et al. Common symptoms in
solving approach unique to the demands ambulatory care: incidence, evaluation,
of family practice. therapy, and outcome. Am J Med 1989;
™™ For a family physician, clinical decision 86(3):262–6 [PMID: 2919607: Abstract].
making, with a course of action is more 6. World Organization of Fam doctors, WONCA.
important than a diagnostic label. The Role of GP/FP in health Care system – A
statement from WONCA, 1991.
™™ The Biopsychosocial model strives to provide
7. Hertzler E. The Horse and Buggy Doctor. New
a fuller understanding of the factors involved
York, Harper, 1938.
in illness at the level of both the individual
8. Jagosh J, et al. The importance of physician
and healthcare systems.
listening from the patients’ perspective:
Enhancing diagnosis, healing, and the doctor-
References patient relationship. Patient Educ Couns.
1. World Organization of National Colleges, 2011. [Epub ahead of print], [PMID: 21334160:
Academies and Academic Associations Abstract].

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Chapter 8: The Spectrum of Clinical Diagnosis 75
9. Harrison’s Principles of Internal Medicine, Soc Work Health Care, 2009;48(8):736–49.
Fauci, et al (Ed). 14th edn. 1997.p.1:2–3. [PMID: 20182986: Abstract].
10. Lele RD. Clinical competence. In: The Clinical 20. Diamond GA, et al. Analysis of probability as an
approach:a companion for the practicing aid in the clinical diagnosis of coronary-artery
doctor.Oxford University Press. 1997.pp.3–6. disease. N Engl J Med, 1979;300(24):1350–
11. Barsky AJ. Forgetting, fabricating, and 8[PMID: 440357: Abstract].
telescoping: the instability of the medical 21. Shub C. Angina pectoris. Clinical strategies
history. Arch Intern Med, 2002;162(9):981–4. in diagnosis. Postgrad Med. 1984;76(3):50–4,
[PMID: 11996606: Abstract]. 59–63, 66. [PMID: 6473220: Abstract].
12. Redelmeier DA, et al. Problems for clinical 22. Wainner RS, et al. Reliability and diagnostic
judgement: 1. Eliciting an insightful history accuracy of the clinical examination and
of present illness. CMAJ. 2001;164(5):647–51. patient self-report measures for cervical
[PMID: 112582: Free text]. radiculopathy. Spine (Phila Pa 1976). 2003;
13. Sandner-Kiesling A, et al. A chronic pain 28(1):52–62. [PMID: 12544957: Abstract].
patient: modern diagnosis and concept of 23. David S. Wade et al. Accuracy of Ultrasound in
therapy. Psychiatr Danub. 2010;22(3):459–64. the Diagnosis of Acute Appendicitis Compared
[PMID: 20856193: Abstract]. With the Surgeon’s Clinical Impression Arch
Surg. 1993;128(9):1039–46.
14. Marlowe et al. ABC of mental health: Disorders
24. Salvarani C, et al. Is duplex ultrasonography
of personality. BMJ. 1997;315(7101):176–9.
useful for the diagnosis of giant-cell arteritis?
15. Orient JM. The interview. In: Sapira’s Art and
Ann Intern Med, 2002;137(4):232–8. [PMID:
Science of Bedside Diagnosis. Lippincott
12186513: Abstract].
Williams & Wilkins, 2nd edn. p.18
25. Longmore M et al. Oxford Handbook of Clinical
16. Tarrant C, et al. How important is personal care Medicine, 5th edn.: 8–9.
in general practice? BMJ, 2003; 326(7402):1310. 26. McWhinney I.R. Albert Wander Lecture. Proc
[PMID: 12805168: Free PMC Article]. Roy Soc Med, 1972;65.
17. Schers H, et al. Continuity of care in general 27. World Organization of Fam doctors, WONCA.
practice: a survey of patients’ views. Br J Gen The Role of GP/FP in health Care system – A
Pract 2002;52(479):459–62. [PMID: 12051209: statement from WONCA, 1991.
Free PMC Article]. 28. Dacher ES. A systems theory approach to an
18. Steine S, et al. Words and language used expanded medical model: a challenge for
by patients when describing consultation biomedicine. J Altern Complement Med. 1995;
with general practitioners. Tidsskr Nor 1(2):187–96. [PMID: 9395613].
Laegeforen. 2000;120(3):354–6. Norwegian. 29. Borrell-Carrió F, et al. The biopsychosocial
[PMID: 10827528: Abstract]. model 25 years later: principles, practice,
19. Bikson K, et al. Psychosocial problems in and scientific inquiry. Ann Fam Med. 2004;
primary care: patient and provider perceptions. 2(6):576–82. [PMID: 15576544: Free full text].

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9 INVESTIGATIONS:
GENERAL PRINCIPLES

“To under-investigate is bad. To over-investigate is worse.”

Introduction ruptured tubal pregnancy, and not due to a


Classically, the diagnostic process is based on common cause like acute appendicitis.
medical history, physical examination, and Further, apparently identical symptoms
investigations involving laboratory analysis. may result from more than one etiopathology.
These essential aspects, i.e. knowledge of the For example, fever with chills may be due
patient’s history, key findings on examination, to malaria, cystitis, abscess, or pneumonia.
appropriate investigation reports, and Likewise, a patient’s icterus may be due to
physician’s fund of clinical knowledge hepatocellular or obstructive etiology.
generally help the physician to define an It is also a fact that many physical
illness in a certain pattern of a recognized findings, such as elevated blood pressure,
clinical entity. Such a process is generally and abnormal reports of investigations, such
labelled as “working or provisional diagnosis” as hyperlipidemia and impaired glucose
or a “hypothesis”. The working or provisional tolerance indicate “risk factors” rather than
diagnosis facilitates early disease management symptoms or disease. Recent evidence
while awaiting special or more definitive shows that interventions which modify “risk
studies, and may be changed or improved by factors” have positive effects on subsequent
subsequent tests or repeat examinations or development of morbidity and mortality. This
sometimes by another physician. can only be achieved by means of “screening”
investigations in a specific asymptomatic
However, this conventional approach of
population.
diagnosis of a disease may be misleading
Thus, the symptoms may not co-relate
for many reasons. Many symptoms typical
with common illness; they differ from patient
of one condition are sometimes unusual
to patient, and are further influenced by
manifestations of another (i.e. a symptom can
age, gender, ethnicity, family history, socio-
mimic many disease patterns—both common
demographic and life-style factors. In spite of
and uncommon). For example, an elderly
these variables, it is essential for physicians
patient complaining of tiredness may have
to analyze symptoms and arrive at a working
anemia which may be due to some internal
diagnosis and treat the patient’s illness.
malignancy, i.e. the patient’s symptom of
tiredness is not apparently due to anemia, but
it is secondary to malignancy. Similarly, the Refining Clinical Diagnosis
cause of acute abdominal pain in a woman Although it has been the experience of family
could be due to an uncommon cause such as physicians that, within primary care, over 80%

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Chapter 9: Investigations: General Principles 77

of the diagnosis can be made on the basis of and money, and can increase anxiety and
robust history and physical examination, 1 concern to the person’s health.*
there is a need in the remaining subset of ™™ Will it change my management? If the answer
patients, in whom investigations are necessary is “yes”, the next question to be answered is,”
to confirm the diagnosis. For example, Can the same information be obtained by
patient’s symptoms of polyuria, polyphagia, another cheaper, or quicker, or less invasive
and polydipsia indicate diabetes mellitus; procedure?” if the answer is “yes”, then
however, it’s the investigations showing additional test-evaluation must be done.2
abnormal glucose tolerance that will confirm Richard Asher, a critical medical writer,
the diagnosis of diabetes mellitus. Similarly, has said: “It is in the ordering of laboratory
elevated TSH values confirm hypothyroidism. or radiological investigations that rational
Sometimes, physicians may have to decide thinking is so necessary. It is a salutary exercise
on invasive tests when non-invasive tests in mental discipline to catechize oneself when
are unhelpful or equivocal. For example, in a ordering any medical investigation”. He listed
patient with cough, and chest radiograph with the following questions a physician should ask
evidence of pulmonary TB, but sputum smear before requesting an investigation:
being negative for AFB on three occasions. ™™ Why am I ordering this test?
The sputum does not show malignant cells ™™ What am I going to look for in the result?
on cytological examination. When faced with ™™ If I find it, will it affect my diagnosis?
such an uncertain situation, the physician may ™™ How will it affect my management of the
have to resort to bronchoscopy to ascertain the case?
diagnosis of pulmonary TB or otherwise before ™™ Will it ultimately benefit the patient?
starting specific medications. In general, investigations should be
It is therefore obvious that, along with performed only when the following criteria
the conventional bed-side methods of are satisfied:
diagnosis, i.e. historical data, physical findings,
™™ The consequence of the result of the
investigations are essential in refining the
investigation could not be obtained in a
clinical diagnosis and thus assist in the
cost effective, less invasive method, e.g.
management of the patient’s illness.
taking a better history or using time.
The Reason for the Test ™™ The risks of the investigation should relate
to the value of the information likely to be
Physicians have the responsibility (clinical and
gained.
economic) to be very discerning and selective
™™ The result will directly assist in the diagno­
in selecting an investigation. The questions,
sis, or have an effect on the subsequent
which should be asked in decision-making
management.
include:
™™ Is this investigation necessary? Physicians
should understand the limitations of the Analytical Errors
investigations they employ. Unintelligent A wealth of new investigations has become
use of laboratory tests is wasteful of time essential to the practice of modern medicine.

*This is popularly called as ‘wild-goose chase’ indulged by physicians with ‘zealous over-testing syndrome’
disorder. The ‘goose’ is never caught; the patient (who was previously well) is now unhealthy, because
of worry caused by false-positive results, and the physician is frustrated (in not being able to diagnose
something that is nor there).

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78  Section 3: Clinical Approach
With the availability of vast number of the investigations should be developed as
sophisticated laboratory tests, the physicians’ carefully as other clinical skills required for
dependence on them continues to grow. It good medical practice. A thoughtful and cost-
is essential, however, to bear in mind the effective use of investigations is the hallmark
limitations of such procedures, which by virtue of clinical competence.
of their impersonal quality and complexity
often gain an aura of authority, regardless Interpretation of Tests (Table 9.3)
of the fallibility of the tests themselves, the An ideal investigation or a test would establish
instruments used in the tests, and the individual the presence or absence of disease in every
performing or interpreting them.3 Pre-analytic, individual who is tested.
analytic and post-analytic errors (Fig. 9.1)4 If a test gives a positive result in all patients
such as labelling, incorrect techniques, sample having a disease, the “sensitivity” of the test, (i.e.
contamination, insufficient amount of blood positive in disease) is described as 100%.
collected to the actual requirement of a test If a test gives a negative result in all patients
(the anti-coagulant to blood ratio), improper not suffering from a disease, the “specificity”
storage and transportation of samples, etc. of the test (i.e. negative in health) is described
are inevitable. However, an appreciation of as 100%
pre-analytical errors (Table 9.1), which may Unfortunately no test has these ideal
influence test results independent of the attributes, i.e. 100% sensitive and 100%
laboratory, is often lacking.5 Moreover, reports specific. In reality, tests, instruments, and
of various investigations and laboratory laboratory operations all contribute to small
data do not relieve the physician from the but measurable variations in results.
responsibility of careful observation and Hence it is desirable to understand the
study of the patient. One must know which statistical terms (Table 9.2), namely sensitivity,
abnormalities are sought, why they might specificity, positive predictive value, and
be present, and what one will do if they are negative predictive value used in evaluating
present. The ability to make effective use of the diagnostic performance of the test results.

Fig. 9.1  Laboratory testing cycle


Source:  Frank H. Wians, Jr.Clinical Laboratory Tests: Which, Why, and
What Do The Results Mean? Lab Medicine. 2009;40:105-13.

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Chapter 9: Investigations: General Principles 79

Sensitivity It refers to its ability to identify persons with


Sensitivity (i.e. positive in disease) relates to a certain disease among a group of people
the test’s ability to identify positive results.* all of whom have that particular disease, i.e.
true positive. When the test fails to identify
TABLE 9.1  Pre-analytical factors influencing test results persons having the disease, the result is called
“false negative”, i.e. persons with a disease are
• Biological variables:
– Influence of cyclical circadian hormone
incorrectly identified as healthy.
levels, e.g. cortisone, catecholamines, A highly sensitive test detects most of the
Pituitary hormones, melatonin, renin, people with a certain disease, i.e. true positive,
aldosterone, etc.
and has few false negative. A test that is 95%
– Pregnancy, menstruation status
• Patient related variables: sensitive means the test correctly identifies
– Physical exercise – its intensity and duration 95 having the disease, i.e. true positive, out of
– Postural changes – supine and standing 100 with disease; the remaining 5 persons with
– Diet – pre-and post-prandial status
– Beverages and alcohol consumption
– Stress
TABLE 9.2  Statistical terms of tests
– Drug administration
– Comorbid illness •  ensitivity: The ability of a test to correctly
S
• Blood collection variables: identify those with the disease (true positive
– Incorrect patient identification rate) specificity: The ability of the test to correctly
– In correct source of specimen identify those without the disease (true negative
– Incorrectcollectiontimeforspecificanalytes rate)
– Incorrect sample collection technique • T rue positive: Diseased people correctly
– Incorrect tube or container diagnosed as having a disease
– Inadequate volume • False positive: Healthy people incorrectly
– Incorrect preservative identified as having a disease
– Sample mix up • True negative: Healthy people correctly identified
• Post-blood collection variables: as healthy
– Improper transport conditions • False negative: Diseased people incorrectly
– Sample processing and storage identified as healthy

TABLE 9.3  Interpretation of diagnostic tests

Feature of the test Alternative name Questions that the feature examines
Sensitivity Positive in disease/true How good is this test at identifying people who have the
positive rate disease?
Helpful to “exclude” a disease
Specificity Negative in health/true How good is this test at identifying people who do not
negative rate have the disease?
Helpful to “confirm” a disease
Positive predictive value Post-test probability of a If a person tests positive, what is the probability that
positive test he/she has the disease?
Negative predictive value Post-test probability of a If a person tests negative, what is the probability that
negative test he/she does not have the disease?
Accuracy Gold standard test Highest percentage of all results—both true positive
and true negative combined together—has given the
correct results

*Sensitivity: “I know my patient has the disease. What is the chance that the test will show that my patient
has it?”

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80  Section 3: Clinical Approach
disease are incorrectly identified as healthy, or consistent with myocardial infarction and is
not having that disease, i.e. false negative.* sufficiently specific, i.e. sufficiently unlikely to
A test with high sensitivity is useful to be a false positive result, on the basis of which
exclude a diagnosis because a highly sensitive the patient can be recommended hospital
test will render few results that are falsely ICU admission for thrombolysis or emergent
negative. For example, to exclude infection coronary angioplasty. However, this test is
with HIV virus, a physician may choose a not sensitive, because if admission to hospital
highly sensitive test such as ELISA assay to were restricted to the above ECG criteria alone,
test for HIV antibodies. Though this test has a almost 50% of MI patients, who may have normal
high sensitivity for detecting HIV antibodies, ECG findings in the presence of myocardial
it is not sufficiently specific for making a firm infarctions would be missed.6
diagnosis. Thus, if ELISA assay is positive, it
is repeated. Confirmation of the diagnosis of Predictive Value
HIV antibody positively requires Western Blot, Predictive value of the test is the probability
or an equivalent specific test, to exclude the of having the disease, given the results of
possibility of a false-positive ELISA assay. a test. Predictive value is an answer to the
question: If a patient’s test result is positive,
Specificity what are the chances of that patient actually
Specificity (i.e. negative in health) relates to the having the disease? It reflects the diagnostic
test’s ability to identify negative results.** It refers power of the test. It is determined by the
to its ability to identify persons who do not have sensitivity and specificity of the test and the
a disease. A test that is 95% specific means it prevalence of disease in the population
correctly identifies 95 not having the disease, being tested (Prevalence is defined as the
i.e. true negative, out of 100 normal people; the proportion of persons in a defined population
remaining 5 are false positive, i.e. normal persons at a given point in time with the condition in
incorrectly identified as unhealthy.*** question). The more prevalent a disease in
A test for high specificity is useful to confirm a given population, the more accurate will
a diagnosis, because a highly specific test will be the predictive value of a positive test. For
have few results that are falsely positive. For example, in a population with high incidence
example, the conventional twelve lead ECG of malaria, the positive predictive value of the
criteria to diagnose acute myocardial infarction, malaria antigen rapid diagnostic tests will
which include the presence of new ST-segment be very high. Thus, Positive predictive value
elevations exceeding 1.0 mm in two or more (PPV)**** is the probability that a patient with a
electrically contiguous leads in patients who positive (abnormal) test result actually has the
present with prolonged chest pain; this is disease. Negative predictive value (NPV)*****

*Patient with ‘false-negative’ test result may ignore the signs and symptoms and may postpone treatment,
which may prove detrimental, if not diagnosed early.
**Specificity: “I know my patient doesn’t have the disease. What is the chance that the test will show that
my patient doesn’t have it?”
***Patient with ‘false-positive’ test result may be subjected to further diagnostic tests, at the risk of causing
anxiety and expense to the patient, who was otherwise in normal health.
****PPV: “I got a positive test result of my patient. What is the chance that my patient actually has the
disease?”
*****NPV: “I got a negative test result of my patient. What is the chance that my patient actually doesn’t
have the disease?”

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Chapter 9: Investigations: General Principles 81

is the probability that a person with a negative management; e.g. a single report of Hb 12.5 g%
(normal) test result is truly free of disease. in a patient, whose previous documented
It follows that careful selection of patients Hb levels were 14.5 g% raises the possibility
for study will increase the usefulness of a of recent blood loss due to some etiology;
positive test. In patients with polyarteritis recording of body weight of a patient at one
and morning stiffness in joints will yield more single point is not as informative as weight gain
positive test results for rheumatoid factor than or loss over a period of time; the interpretation
in those with headache. of a ‘q’ wave in a recent ECG would be
drastically altered if the previous ECG a year
Combination of Tests back also shows the same pattern.
Two or more tests can be used in combination
to enhance the sensitivity and specificity of a Right Choice of Test
test. For example, the evidence of ischemia in Depending on the cumulative evidence of test
an ECG tracing in a patient with precordial pain sensitivity, specificity, and predictive values,
is substantiated further with positive cardiac following general guidelines may be outlined
enzyme values. To further enhance the diagnosis to select tests in the context of specific disease.
of cardiac ischemia, both ECG and cardiac In general, highly sensitive tests are useful in
enzymes are monitored at periodic intervals. “excluding” a diagnosis, and highly specific
tests are useful in “confirming” a diagnosis.
Slightly Abnormal Results ™™ Tests with highest sensitivity—usually
The slightly abnormal result requires careful indicated when the disease is:
assessment: ƒƒ Serious and should not be missed.
™™ The test should be repeated, because ƒƒ Prognosis is good.
human and technical errors are possible. ƒƒ False positive results do not cause
™™ Test report may be completely irrelevant to serious physical, psychological, or
the clinical situation. For example, slightly economical harm to the patient,
raised aspartate transaminase (i.e. SGOT) e.g. infectious diseases, endocrine
concentration in a patient with chest pain. disorders, nutritional disorders, etc.
™™ Test report may suggest some pathology not ƒƒ Test examples—Gram stain and sputum
previously suspected. For example, slightly culture in a patient with pneumonia;
raised aspartate transaminase (i.e. SGOT) upper GI endoscopy in a patient with
concentration in an unsuspected alcoholic. peptic ulcer disease.
™™ Alternative tests may confirm or refute the ™™ Tests with highest specificity—usually
suggested information; e.g. elevated values indicated when the disease is:
of CPK-MB may confirm that slightly raised ƒƒ Serious and should not be missed.
values of aspartate transaminase (i.e. ƒƒ Prognosis is poor.
SGOT) were related to myocardial injury. ƒƒ False positive results can cause serious
physical, psychological, social, and
Importance of Chronological Data economical harm to the patient, e.g.—
Review of previous clinical and investigation malignancy, HIV infection, etc.
reports is as important as collecting new ƒƒ Test examples—Western blot test in
data. In many clinical situations, serial tests a patient with HIV infection; lymph
or information may be required to monitor node biopsy in a patient with Hodgkin’s
the response to treatment and to plan future disease.

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82  Section 3: Clinical Approach
™™ Tests with highest efficiency (gold expensive, or may take too long for the results
standard) tests—are indicated when the of the test to be available to be clinically useful.
disease is: With the advent of modern imaging
ƒƒ Serious and should not be missed technology, there appears to be a paradigm
ƒƒ Prognosis is better shift in the concept of gold standard tests. For
ƒƒ Both false positive and false negative example, conventional coronary angiography,
results are equally serious and although an undisputed gold standard in
damaging. For example, both acute coronary lumenography, involves a small but
myocardial infarction and unstable serious risk in the procedure, the cost, and the
angina are potentially fatal but necessary radiation dose, which have triggered
treatable conditions. Equal harm can the development of non invasive alternatives
be done if the diagnosis is missed such as electron-beam computed tomography,
(i.e. false negative report), or if the multi-slice computed tomography, and
diagnosis is made wrongly (i.e. false magnetic resonance coronary angiography.
positive report), and anticoagulant or Evolution in these techniques and increase
thrombolytic therapy is administered. in sensitivity and specificity have been clearly
Therefore, physician opts for tests with seen in all imaging modalities, thus increasing
maximum efficiency prediction value, the clinical relevance and the ability to
like coronary angiography. replace conventional coronary angiography.7
Similarly, non-invasive MR angiography
Gold Standard Tests using turbo-FLASH technique has superior
The results of gold standard tests or procedures sensitivity and specificity as compared to the
define the true disease state of the patient. conventional gold standard aortogram for
These tests have sensitivity of 100% (it identifies patients with advanced aortoiliac disease.8
all individuals with a disease process; it does
not have any false-negative results; i.e. they Who the Investigation for: Patient
are all true positive) and a specificity of 100% or Doctor?
(it does not falsely identify someone with a
condition that does not have the condition; it Investigations serve two prime functions
does not have any false-positive results; i.e. they of diagnosis and management. In addition,
are all true negative). Thus, these tests have it’s common in present practice to see
“highest efficiency”, i.e. highest percentage of investigations used to “reassure the patient”.
true positive and true negative results. Some Often, physicians assume that the patient
examples are: coronary angiography and radio will be reassured by a negative test, such as a
nuclide tests for myocardial function, necrosis, skull X-ray to reassure the patient that there
and its viability; pulmonary arteriography in is no brain tumor. However, it is important
pulmonary embolism; fasting and 2 hours for the doctor to consider whether or not
post-prandial plasma glucose values to the patient will be reassured by such action.
diagnose diabetes mellitus; HbA1C estimation Instead, it is better to find out what the issues
in monitoring diabetes control; and culture is that actually concern the patient and deal
techniques for M. tuberculosis from specimens with those emphatically. As a British Medical
like sputum, CSF, pleural aspiration. However, journal editorial puts it, “Unless their true fears
for many disease states such gold standard are addressed, diagnostic tests may leave them
tests either do not exist, or are very difficult and more anxious than before”.1,9

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Chapter 9: Investigations: General Principles 83

Conclusion they deal with individual patient. However,


you can not judge a physician by the quantity
In routine family practice, an efficiently
of investigations they use but by the quality of
compiled history and clinical examination
use. The intelligent and cost-effective practice
is usually adequate for most cases to be
of medicine consists of selecting those most
diagnosed.
appropriate to a particular patient and clinical
The issues of cost, potential risk, and
situation. Laboratory tests should be hypothesis-
probability-related limitations of diagnostic
directed, and not merely “fishing nets”.
tests provide a strong basis for selectivity in
the use of diagnostic tests in family practice.
The need for investigation comes under the References
following circumstances: 1. Physician Assistant profession. Web site -
™™ The clinical findings do not fit in with http://www.nlm.nih.gov/medlineplus/ency/
a routine disease pattern. Such cases article/001935.htm Accessed on 09-11-2011.
with multiple diagnostic possibilities 2. Stephenson Anne. A T B of General practice,
will need confirmation with tests. A Arnold. 1998.pp.54.
common example would be pyrexia of 3. Harrison’s Prin. of Int. Med. 14th ed. Vol. I, p.2–3.
undetermined aetiology. 4. Frank H. Wians, Jr.Clinical Laboratory Tests:
™™ The diagnosis is common and apparent, Which, Why, and What Do The Results Mean?
but needs investigatory work up since it Lab Medicine. 2009;40:105–13.
needs specific therapy for specific duration, 5. Sciacovelli L, et al. The IFCC Working Group
like malaria, typhoid, and tuberculosis. on laboratory errors and patient safety. Clin
Inadequate therapy leads to relapse and Chim Acta. 2009;404(1):79–85. Epub 2009 Mar
complications. 26. [PMID: 19328194: Abstract].
™™ Less common illness, usually chronic 6. Kabakci G, et al. The diagnostic value of 12-lead
conditions, like endocrinal abnormalities, electrocardiogram in predicting infarct-related
artery and right ventricular involvement in
resistant hypertension, congestive heart
acute inferior myocardial infarction. Ann
failure, nephrotic syndrome, neurological
Noninvasive Electrocardiol. 2001;6(3):229–35.
deficits, rheumatological disorders, and [PMID: 11466142: Abstract].
many others obviously require a complete
7. van Ooijen PM, et al. Noninvasive coronary
work up. Unless family physician feels imaging: CT versus MR.Herz. 2003;28(2):143–9.
confident to treat them adequately [PMID: 12669228: Abstract].
by himself, it is good practice to leave 8. Sivananthan UM, et al. Fast magnetic resonance
investigations to the specialist. The patient angiography using turbo-FLASH sequences in
is saved from unnecessary expenditure in advanced aortoiliac disease. Br J Radiol, 1993;
duplicating investigations. 66(792):1103–10. [PMID: 8293253: Abstract].
In summary, physicians are faced with a 9. Fitzpatrick R. Telling patients there is nothing
large, often bewildering array of potentially wrong. BMJ, 1996;313(7053):311–2. [PMCID:
useful investigations from which to choose as PMC2351770].

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4
Section

The Practice of
Family Medicine
™™ Communication Skills
™™ Rapid Access to Improving Communication Skills
™™ The Consultation
™™ The Physician-Patient Relationship
™™ Balint Group
™™ Designing a Patient-friendly Practice
™™ Counseling Skills
™™ Patient-centered Care
™™ The Team Approach
™™ Leadership
™™ Addressing Medical Errors
™™ Medical Records
™™ The Difficult Patient
™™ Medical Professionalism

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10 COMMUNICATION SKILLS

“Think like a wise man but communicate in the language of the people.”
—William B. Yeats

Introduction investigator in the Macy Institute of Health


Communication, in his 4 year effort that
The patient-physician communication is
was launched in 1999 to strengthen the
an integral part of clinical practice, and
communication skills of physicians states:
continues to be the most important part
“Doctor-patient communication is the most
of patient-physician interaction. Even
critical element of day-in, day-out medical
when patients have appropriate access to
care, yet its been seriously neglected in medical
medical services, they also need effective
education. Today, the field of physician-patient
and empathic communication as an essential
communication has grown from a period in
part of their treatment. When done well, such
which this was taught charismatically, meaning
communication produces therapeutic effect
‘do what I do, and you will be great’, to a period
for the patient.1
in which people are taught empirically, using
methods that have been tested and shown to
Communication as a Core be of value.”4 Moreover, in the present complex
Competency world of physician-patient relationship,
However, the ability to communicate the right communication is emerging as a priority. The
message to the right people at the right time Task Force on Competence of the American
can present a challenge, especially in today’s Council on Graduate Medical Education, and
environment of information overload due to the American Board of Medical Specialities
technologically advanced communicating identified interpersonal and communication
systems. 2,3 Presently, we have powerful skills as one of the six areas in which physicians
high-tech gadgets like pagers, voice-mail, need to demonstrate competence; the other
e-mail, fax, cell phones, personal digital five areas being—medical knowledge,
assistants, laptops, video conference facilities, patient care, professionalism, practice-
and the internet chat rooms which have based learning and improvement, and
made communication faster and easier—just systems-based practice. 2 The National
about to anyone, anywhere, and at any time. Board of Medical Examiners, Federation of
But the question frequently asked is—are State Medical Boards, and the Educational
we communicating any better? Dr Mark Commission for Foreign Medical Graduates
Lipkin Jr, director of the division of primary have proposed an examination between the
care at New York University, and principal third and fourth year of medical school that

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88  Section 4: The Practice of Family Medicine
“requires students to demonstrate they can The important principles facilitating
gather information from patients, perform communication process are:*
a physical examination, and communicate ™™ The Message: This needs to be clear,
their findings to patients and colleagues,” correct, concise, and complete (i.e. 4 Cs).
using standardized patients.5 Besides, training ™™ The Attitudes: Both the communicator and
in patient-physician communication is now the recipient (i.e. patient and physician)
objectively evaluated as a core competency should be genuinely concerned about
in various accreditation settings. 6 The each other.
published literature also expresses belief in ™™ The Rapport between the patient and
the essential role of communication. “It has the physician: An atmosphere of respect,
long been recognized that difficulties in the warmth, and friendliness enhances good
effective delivery of health care can arise communication.
from problems in communication between ™™ The Time factor: One should be unhurried,
patient and provider rather than from any calm and relaxed while conducting an
failing in the technical aspects of medical interview.
care. Improvements in provider-patient
communication can have beneficial effects Importance of Effective
on health outcomes”. 3 Controlled studies Communication
validate that good doctors communicate
Effective communication typically is one of the
effectively with patients; they identify patients’
most important factors that patients consider
problems more accurately, and patients are
in selecting a physician and in gauging their
more satisfied with the care they receive. But
ongoing satisfaction with that physician.
what are the necessary communication skills
When physicians use communication skills
and how can doctors acquire them?7,8 Even
effectively, both the physicians and their patients
if doctors have the appropriate skills, they
benefit.6 Firstly, physicians can identify their
may not use them because they are worried
patient’s problems more accurately. Secondly,
that their colleagues may not give sufficient
patients are more satisfied with their physician’s
practical and emotional support, if needed.9
care, leading to better understanding of their
problems, investigations, and treatment options.
Definition Thirdly, patients are more likely to adhere to
Communication can be defined as, “the treatment and to follow advice on behaviour
successful passage of message from one change, such as food habits and physical exercise.
person to another. It is the art of imparting Fourthly, patients’ distress and their vulnerability
knowledge, or exchanging thoughts, feelings, to anxiety and depression are lessened. Finally,
and ideas by speech, writing, and gestures”. good communication skills help in the better
Communication skills, which are funda­ outcome in medicolegal issues. A growing body
mental to consulting skills, are the key to the of evidence suggests that the qualities of caring
effectiveness of the doctor as a professional. and concern exhibited by physicians make a
Based on this, a sound and lasting doctor- difference in healthcare outcomes—the most
patient relationship is created that ultimately important reason patients with a bad outcome
helps in the diagnosis (physical, social, and decide to sue their physicians for malpractice
emotional) and management of the patient. is not a lapse in the quality of care or medical

*Mnemonic “ MART “

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Chapter 10: Communication Skills 89

negligence, but how the physicians talks to simple explanation. While speaking with the
their patients and respond to their emotional patient, physicians must determine not only
needs.10-13 the main medical problems, but also how
patients feel toward their illness, what they
Key Tasks in Communication with are going through; not only their pain and
Patients discomfort, but how the illness has affected
them, their reaction to it, and what impact has
These can be summarized as rule of five vowels
it had on their families, occupation, and social
—“AEIOU”:
life. Encourage patients to be exact about the
™™ Audition: Listening and eliciting patient’s
sequence in which their problems occurred;
main problems; an important rule for
ask for dates of key events, and about their
interviewing is to listen more, talk less, and
perceptions and feelings. This helps patients
interrupt infrequently.
to recall their experiences, feel understood,
™™ Evaluation: Sorting out relevant from
and cope with their problems.
irrelevant data; tailoring information to
Careful observation of non-verbal clues
what patients’ want to know, and checking
such as patient’s facial expressions as well
their understanding.
as body movements may provide valuable
™™ Inquiry: Probing significant areas requiring
information. The physician’s body language
more clarification; especially the physical,
such as a smile, nod, and silence encourage
emotional, and social impact of the
patients to continue speaking.
patient’s problems on them and their
families.
Eye Contact
™™ Observation: Emphasizes the importance
of observing non-verbal communication Establish eye contact at the beginning of the
while eliciting the patient’s reactions to the consultation and maintain it at reasonable
information given to their main concerns. intervals to show interest. However, prolonged
™™ Understanding: Refers to understanding eye contact, or staring, can be offensive. Lack
patients’ concerns and apprehensions, and of eye contact may be interpreted as a lack of
discussing treatment options, so that they concern.
understand the implications and advice
about changes in lifestyle. Active Listening and Reflecting
Active listening requires staying focused on
Key Communication Skills Needed what the patient is saying, i.e. paying attention
to Perform Key Tasks7 without distractions, maintaining eye contact,
Eliciting Patients’ Problems and clarifying through reflecting what is heard
Concerns (this involves verbally using similar words
or rephrasing to express back to the patient
Open-ended Questions and Body what was understood about the content of
Language (see below) his message; the intension is to understand
A cardinal principle of interviewing is to and accept what is said), showing empathy by
permit patients to express their story in their identifying with their feelings, and listening
own words. Always talk to the patients in the with an open mind in order to understand
language they understand, the vocabulary patient’s point of view.
they use, avoiding long monologues, and During the interview, attention should
keeping the statements short with clear, be more on what the patient is saying, and

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90  Section 4: The Practice of Family Medicine
less on written words. While taking notes, the patient has understood before moving on.
physician cannot observe the facial expressions With complex illnesses or treatments, such as
and body language that are important to the congestive heart failure, rheumatoid arthritis,
patient’s history. One may jot down important psychiatric disorders, etc., check if the patients
points rather than taking down extensive notes would like additional information, which may
while interviewing the patient. be provided in customized written format, or in
the form of hand outs, or that can be accessed
Summarize from many internet web sites providing patient
Summarizing information to show patients information resources.*
they have been heard, and gives them an
opportunity to correct any misunderstandings; Discussing Treatment Options
e.g. “I’d like to get this clear... am I right?”; “Tell Patients should be properly informed of
me if I’ve got this clear....”; “Let’s just recap.... treatment options, and also ascertain if they
have I missed anything out?” want to be involved in decision process.
Inquire about the social and psychological Patients who take part in decision-making
impact of important illnesses or problems of are more likely to adhere to treatment plans.
the patients and families; e.g. “Do you have any Patient’s views and beliefs about lifestyle
specific worries about....”; “Is there anybody changes are also important aspects to be
else you know who has had this problem?”; evaluated, because although physicians have
“I’m sorry to press you, but what was really on ideas about what each patient ought to do to
your mind....?”; this shows patients that you benefit from health behavior changes (e.g. in
are interested in their psychosocial well-being, the secondary prevention of stroke, coronary
and their families. heart disease), they must respect patient’s
ultimate right to choose the course of action.
Giving Information
Ask patients what information they would like, Being Supportive
and prioritize their information needs, so that Use empathy to show that you have some sense
important needs can be dealt with first if time of how the patient is feeling, e.g. an expression
is short. (“What’s the first thing you’d like to such as, “The experiences you describe during
discuss…?”; “What’s the one most troubling your mother’s illness sound devastating”; or, “I
you…?”; “Which one shall we tackle or focus can understand how hard it is to cope up these
on first?”; “Which is the one most important problems you are facing due to this illness”; or
to you?”). “I can see that you are frustrated by the lack
Avoid too many long sentences or medical of improvement in your symptoms”. You may
terms. Present information by category, e.g. also express to patients your impressions about
risk factors, diagnostic possibilities, treatment how they are feeling, e.g. “You say you are
options, etc. Check what patients consider coping well, but I get the impression you are
might be wrong and how those beliefs have struggling with this treatment”. Even if the guess
affected them. Provide information in a is incorrect, it shows patients that you are trying
slow and deliberate fashion. Check that the to further your understanding of their problems.

*Some authentic web sites include: http://www.cdc.gov/; http://familydoctor.org/online/famdocen/home.


html; http://www.healthfinder.gov/; http://www.mlanet.org/resources/medspeak/index.html
**See chapter 30 –Communicating bad news. - p. 295).

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Chapter 10: Communication Skills 91

Communication Types things to neighbors or other relatives even


if you feel they are very close.
Communication is of two types—verbal and
non-verbal14 ™™ When do you say it? There is always a right
time to say something. If you have taken
Verbal Communication (Fig. 10.1) the concerned person away from everyone
else, wait for the right occasion. This way
Verbal communication is when persons put you are telling all and sundry that there is
across their message by speaking; its impact and something that can’t be told to everyone.
significance varies with the tone, pitch, timber, While imparting health education, give it
and speed of the voice with which persons speak. when the patient needs it, e.g. hazards of
™™ What you say? Always say the truth, e.g. if
smoking in a patient with cough; or if the
your injection has resulted in an injection patient has come for treatment of piles, he
abscess, admit it and tell the patient that it will be attentive if you talk of hazards of
can happen with anyone. It may not help constipation.
you immediately, but over a period of time
™™ What you should not say? As a physician
you will build a reputation, and the patients
you are bound by professional secrecy.
will respect your word. Also, how long
At times you may have to hide things
can you hide the truth—there are enough
from members of the family, e.g. you may
doctors out there waiting to catch your lie.
discover that the patient smokes. By not
™™ How you say it? This point becomes
telling the parents, you may win over a
important when you have to break bad
patient, but that doesn’t mean you should
news.** You have to be subtle and approach
not admonish the patient when alone.
the main point without beating round the
At times what you do not say can have
bush. Patients are smart and they know
detrimental effects on practice, e.g. while
something is coming up, and suspense is
referring a case of tetanus or acute MI to
the last thing wanted then. At times you
the hospital, you must tell the family about
may feel that you are very close to the
the likelihood of a bad prognosis, or even
patient and you can crack jokes at their
the fact that the patient may not reach the
expense, but be careful—it may back fire!
hospital. You may not say it bluntly but can
™™ To whom do you say it? Always tell a
say, “Patient is critical, they should hurry
responsible person—mostly head of
and shift him soon as every minute counts”.
the family. In case the matter concerns
the patient, talk directly, and if needed,
possibly involve the spouse, and/or an Where Verbal Communication is
elderly of the family. Never tell important Helpful?
™™ History: To get proper history, patients will
not hide anything if they are comfortable
and trust their physicians.
™™ Investigations: Why is particular investi­
gation required; more so, if they are
invasive and expensive.
™™ Management: To explain their problems
and solutions, and why hospitalization is
Fig. 10.1  Verbal skills essential.

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92  Section 4: The Practice of Family Medicine
™™ Prognosis: To convince patients that their precise accuracy. Our face is very expressive
disease may take longer to treat and not and can communicate many different emotions
that your treatment is ineffective. without the use of words at all. Other parts of the
™™ Compliance: To convince patients to take body such as your arms, hands, fingers, etc. can
treatment for long periods (as in Koch’s) or also be used to communicate. A sympathetic
at times for life (as in HT, IHD, DM, etc). If look or an enthusiastic gesture can convey
patient gets convinced and don’t default, support and increase patient’s understanding
there are lesser chances of relapses and of what is being communicated more effectively
complication. than any words.
Conversely, the physician who arrives
Non-verbal Communication (Body several minutes late, takes hurried notes, and
Language) (Fig. 10.2) turns away while the patient is talking, almost
This is much more important than verbal always conveys impatience and minimal
communication. It is involuntary and in most interest in the patient, despite any spoken
cases beyond ones control. It is the reflection assurance to the contrary. Thus, it is imperative
of ones inner thoughts and hidden fears of an that the physicians be aware of their own
individual. Some examples include: nodding image of body language, as well as recognizes
or shaking of the head, frowning, smiling, the nonverbal cues of the patient.
touching, hugging, yawning, tears, winking,
averting eyes, crossing arms, etc. Communication with Children
Non-verbal communication can be used in Working with children involves many unique
two ways—both by physicians and patients. considerations. When communicating with
First and most important is to establish children, it is vital to remember that the child is
and maintain eye contact with the person to the patient, but the history is usually recited by
whom you are speaking. Speaking face-to-face the parent. Therefore, parent is the key person
on the same physical level further enhances in any transaction, which may get profoundly
communication. To do this, the physician affected (in accuracy and flavor) by the parent’s
often needs to sit in a chair, or perhaps at the observational abilities and interpretations of
side of the bed, comfortably, yet respectfully. the child’s signs and symptoms.
This tells the patient that the message that is Unless other people are specifically meant
being communicated is important and will be to be included, conversation in privacy is
relayed in an unhurried fashion. preferred; the best communication between
Facial expressions can speak volumes. Facial the physician and the child occurs when others
expressions can convey our messages with fairly are not around.
Looking at a problem from the child’s
vantage point may be quite helpful in both
clarifying the nature of the problem and
planning treatment. Other basic skills and
behaviors which are most helpful when
communicating with children and their
parents are:
™™ To look after the comforts of the child and
the parent, e.g. on the parent’s lap, or the
Fig. 10.2  Non-verbal skills floor playing with the toys.

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Chapter 10: Communication Skills 93

™™ To be gentle and led by the child and the In addition, a third person may be part of
parent’s pace. the interaction, as elderly patients often are
™™ To listen carefully and politely, offer accompanied by a family member or loved
support and praise which will reinforce one who is actively involved in the patient’s
and keep communication open. care and participates in the visit.
™™ Not to interrupt the child while telling the Table 10.1 provides general techniques
story and to involve the parent as needed. to enhance communication with older
patients as well as specific strategies to aid
™™ To use clear language appropriate to the
communication with patients who have
child’s age.
sensory or cognitive losses or other caregivers.
™™ Not to embarrass, or put the child on the T h e u l t i mat e b e n e f i t o f a p p l y i n g
spot in front of others (e.g. “What do you these communication techniques will be
know, you’re just a child “); this will lead improvement in outcomes for older patients
only to resentment and hostility, and not and their caregivers. With effective physician—
good communication. older patient communication, patients are:
™™ More likely to share their symptoms and
Communication with Older Patients15 concerns, which will enable the physician
As the size of the older population increases, to make a more accurate diagnosis;
clinical encounters with elderly patients will ™™ More likely to follow through with physician
become increasingly common in primary recommendations;
care offices with its growing impact of ™™ Less likely to skip doses or stop a medication
non-communicable diseases and chronic because of side effects, perceived non-
conditions. Because of chronic disease, the efficacy, or drug cost; and
oldest old have the highest population levels ™™ More likely to self-manage diabetes with
of disability that require long-term care. diet, exercise, blood glucose monitoring,
Therefore, physicians need to understand and foot care.
the unique needs of the elderly population so
that they are better prepared to communicate Barriers in Communication
effectively during visits with older patients. These may be broadly classified as follows:
Older adults* often present with complex ™™ D o ctor-patient factors : Po or past
problems and several chief complaints, which experience like a missed diagnosis; poor
require time to unravel. To some extent, the treatment; differences in billing; personal
skills are the same regardless of the patient differences relating to religion, culture,
involved. However, communication with status, sex, age; familiarity between doctor
older patients can be made more challenging and patient such as friends and relatives.
as a result of age-related sensory impairment, ™™ Doctor’s personal factors: Age—too
such as presbycusis, which particularly affects young/too old; sex—opposite; overly
high-frequency sounds; visual deficits, such as protective staff; delay in returning a phone
cataracts, macular degeneration, glaucoma, call; overloaded practice; appointment
and ocular complications of diabetes; memory delays; physical handicaps like speech,
decline and some form of dementia. hearing; bias toward patient for reasons

*Some gerontologists view the elderly patient population as being composed of several age cohorts: the
young-old (individuals 65–74 years old), the middle-old (individuals 75–84 years old), and the old-old
(individuals 85 years and over).

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94  Section 4: The Practice of Family Medicine
Table 10.1  Tips for effective communication with older patients
General strategies
• Gather preliminary data before the appointment, as older patients typically have complex and multiple
health issues.
• Have patients tell their story only once (and not to a nurse or assistant first and then to you) to minimize
patient frustration and fatigue.
• Address the patient by last name, using the title the patient prefers (Mr, Ms, Mrs, etc.).
• Begin the interview with a few friendly questions not directly related to health.
• Avoid hurrying; maintain an unhurried pace, allowing the patient a few minutes to express his/her concerns
if able.
• Use active listening skills; speak slowly, clearly, without shouting, using a calm tone and pleasant expression.
• Do not interrupt at the very beginning (first 20–30 seconds) of the initial interview.
• Respond to patients’ emotions; demonstrate empathy.
• Avoid jargon; try not to assume that patients know medical terminology or a lot about their disease.
• Schedule appointments earlier in the day, as they are generally more alert.
Compensating for Hearing Deficits
• Make sure patient can hear you. Ask about working hearing aid. Examine auditory canal for the presence
of excess earwax.
• Talk slowly and clearly in a normal tone. Shouting or speaking in a raised voice actually distorts language
sounds and can give the impression of anger.
• Be aware that background noises, such as fans and office equipment, can mask what is being said.
• Tell patient when you are changing the subject. Give clues such as pausing briefly, speaking a bit more
loudly, gesturing toward what will be discussed, gently touching the patient, or asking a question.
• Keep a note pad handy so you can write what you are saying. Write out diagnoses and other important terms.
Compensating for Visual Deficits
• Make sure there is adequate lighting, including sufficient light on your face. Try to minimize glare.
• Check that your patient has brought and is wearing eyeglasses, if needed.
• Make sure that handwritten instructions are clear.
• When using printed materials, make sure the type is large enough and the typeface is easy to read. Provide
written instructions in at least 14-point type.
• If your patient has trouble reading, consider alternatives such as providing large pictures or diagrams.
Cognitively impaired patients
• Do not ignore the patient.
• Ask questions simply, using “yes” or “no” questions and simple gestures.
• When performing the examination, give one instruction at a time.
Encounters with third party involvement
• Prepare the environment of the examination room by setting three chairs in a triangle.
• Direct questions initially to the patient, then ask for input from the patient’s companion.
• Ask the patient and the patient’s companion to repeat back any important instructions.
Conclude the visit: Make sure the patient understands:
• What the main health issue is?
• What he/she needs to do about it?
• Why it is important to do it?

of ‘doctor-shopping’; professional incom­ personality disorders like depression,


petence; lack of training; short of time and anxiety, hysteria, dementia; fears and
running late. phobias of malignancy, HIV; sensitive
™™ Patient’s personal factors: e.g. false beliefs issues like sexuality, bereavement.
such as not to burden the doctor; nothing ™™ Others: frustration over telephone system;
can be done; past illness has no relevance billing mistakes; foreign language; altered
to present suffering; psychological and mental state.

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Chapter 10: Communication Skills 95

Common Communication Pitfalls is being actively advocated to build rapport


with patients. NPL offers mirroring techniques,
Communication may fail to be effective for
both physical and verbal, that can easily be
several reasons. It is important, therefore, to
adapted into the methods in which doctors’
recognize the major pitfalls. These include:
interview patients and take their histories. As
™™ Using highly technical language or jargon
a result, doctors may build better rapport with
when communicating with patients and
their patients, and this is the bedrock on which
family members.
effective physician-patient communication is
™™ Not pausing sufficiently when delivering
built.16
information.
™™ Taking an impersonal approach or displaying
apathy about communicating well. Conclusion
™™ Not showing appropriate concern for Although no single method or medium works
problems voiced by the patient or family ideal to educate students and physicians on
member. good communication skills, the best approach
™™ Not listening to the patient or family is to teach them these communication
member. skills from ‘day one’ and refine those skills
™™ Failing to verify whether the patient or family throughout medical school. Strengthening
member has received and understood one’s communication skills takes time and
information that has been conveyed. ongoing practice. “This is not something that
™™ Not being sufficiently available to the one can learn over hours or weeks…it requires
patient’s family. changing ones whole way of thinking”.4

Acquiring New Skills References


Many new skills are being developed for 1. Williams SL, et al. The therapeutic effects of the
helping doctors to acquire relevant communi­ physician-older patient relationship: effective
cation skills. They are: communication with vulnerable older patients.
™™ Interactive demonstration—watching Clin Interv Aging. 2007;2(3):453–67. [PMID:
physicians’ interview real patients. 18044195: Free PMC Article].
™™ Simulated process—the interviewer asks 2. Brann M, et al. E-medicine and health care
a group to suggest strategies to begin the consumers: recognizing current problems and
consultation, elicits views and feelings possible resolutions for a safer environment.
about methods used, its impact on patient, Health Care Anal. 2002;10(4):403–15. [PMID:
and so on. 12814287: Abstract].
™™ Multimedia course—which includes 3. Akerkar SM et al. Health information on the
instr uctional CD-ROM, text-book, internet: patient empowerment or patient
deceit? Indian J Med Sci, 2004;58(8):321–6.
videotape, power point slides.
[PMID: 15345885: Abstract].
™™ Internet web site resources: For example:
4. Doug Brunk. Patient Communication Receiving
http://www.healthcarecomm.org/index_
New Emphasis. Family Practice News, 2001;
noflash.php? & noflash, and http://www.
31(10):44.
hca-uk.org/Careers
5. Teutsch C. Patient-doctor communication.
Med Clin North Am, 2003;87(5):1115–45.
Neurolinguistic Programming [PMID: 14621334: Abstract].
A novel concept in communication skills, 6. Dacre J, et al. Communication skills training in
called “neurolinguistic programming (NLP)” postgraduate medicine: the development of a

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96  Section 4: The Practice of Family Medicine
new course. Postgrad Med J, 2004; 80(950):711–5. 12. Wilson J. Proactive risk management: effective
[PMID: 15579610: Free full text]. communication. Br J Nurs, 1998;7(15):918–9.
7. Maguire Peter, et al. Key communication skills and [PMID: 9849159: Abstract].
how to acquire them. BMJ, 2002;325:697–700. 13. Moore PJet al. Medical malpractice: the effect
8. Beck RS, et al. Physician-patient communication of doctor-patient relations on medical patient
in the primary care office: a systematic review. J perceptions and malpractice intentions. West
Am Board Fam Pract, 2002;15(1):25–38. [PMID: J Med, 2000;173(4):244–50. [PMID: 11017984:
11841136: Free full text]. Free full text].
9. Booth K, et al. Perceived professional support 14. Asrani CH. Art of Communication: bedside
and the use of blocking behaviors by hospice manners-Counselling. Bombay Hosp J, 2000;
nurses. J Adv Nurs, 1996;24(3):522–7. [PMID: 42(1).
8876412: Abstract]. 15. US National Institutes of Health—National
10. John Easton. Communication skills diminish Institute of Aging
malpractice risk. JAMA, 1997. Web site - http://www.nia.nih.gov/Health
11. Virshup BB et al. Strategic risk management: Information/Publications/ClinicianHB/02_
reducing malpractice claims through more understanding.htm Accessed on 11-11-2011
effective patient-doctor communication. Am J 16. Huang W. Teaching learners to use mirroring:
Med Qual, 1999;14(4):153–9. [PMID: 10452132: rapport lessons from NLP. Fam Med, 2004;36
Abstract]. (8):541–3.

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RAPID ACCESS

11 TO IMPROVING
COMMUNICATION SKILLS

“There is never enough time to do everything, but there is always


enough time to do the most important thing.”
— The Law of Forced Efficiency

Introduction TABLE 11.1  The Calgary-cambridge observation guide


The calgary-cambridge observation guide uses
Most family physicians have excellent a simple five-point plan to structure individual
communication skills, which has helped to communication skills. Based on a sequence of basic
boost meaningful and trusting relationship tasks that physicians and patients routinely attempt
to accomplish in everyday clinical practice, the plan
with our family patients over the years. In a provides a logical organizational schema for both
study conducted by Laidlaw Toni Suzuki et al patient-physician interactions and communication skill
to assess patients’ satisfaction with their family education. As indicated below, each of these five tasks
include an expanded framework of skill sets which
physicians’ communication skills, based on provide further detail about the goals to be achieved.
the Calgary-Cambridge Observation Guide 1. Initiating the session
(Table 11.1) , in a random sample of 204 adults • Establishing initial rapport
• Identifying the reason(s) for the consultation
in Nova Scotia (NS) concluded that, “Overall,
2. Gathering information
the respondents were satisfied both with their • Exploration of problems
medical care and with their family physicians’ • Understanding the patient’s perspective
communication skills…. the NS family • Providing structure to the consultation
3. Building the relationship
physicians seen by our patient sample appear • Developing rapport
to have done very well at initiating sessions • Involving the patient
by putting their patients at ease and showing 4. Explanation and planning
• Providing the correct amount and type of
a genuine interest in their patients’ problems. information
In terms of gathering information, they also • Aiding accurate recall and understanding
appear to have been proficient at identifying • A chieving a shared understanding:
incorporating the patient’s perspective
the reason or reasons for the consultation by
• Planning: shared decision making
providing their patients ample opportunity • Options in explanation and planning
to discuss all their concerns. Because length – if discussing opinion and significance of
of time with the family physician was not a problem
– if negotiating mutual plan of action
significant factor, this suggests that NS family – if discussinginvestigations andprocedures
doctors appear adept at putting both old 5 Closing the session
and new patients at ease and building good
Source: Health Canada: Talking Tools II—Putting
relationships with them.” 1 Communication Skills to Work—Resource Booklet.

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98  Section 4: The Practice of Family Medicine
Changing Practice Environment than as “partners” in trusted physician –patient
relationship.10
However, increasing demands on doctors in
Given this changing practice environment,
today’s healthcare environment often leave
it is important that we in our role as patient
less time to provide care to a greater number
advocates find ways to see more patients in less
of patients. Besides, in today’s demanding
time and still be an effective communicator.
and cost conscious healthcare system, such
While time constraints can make it difficult to
as health maintenance organizations (HMOs),
communicate as effectively as one would like,
preferred provider organizations (PPOs)* and
the quality of time spent with the patient remains
similar “managed care” settings, wherein a
very important. These circumstances, therefore,
doctor is supposed to see a certain number
provide a unique challenge to the physician to
of patients per day, many doctors have to cut
deliver excellent medical care while complying
down on the time they can spend with their
with the guidelines of the organization within
patients. 2,3 And the first thing that usually
which he or she practices. For this reason,
suffers is communication.4,5
effective patient-focused communication skills
The House of Commons Social Services
are essential. They can be applied quickly and
Committee in 1987 reported that, “shortage
effectively within the normal patient encounter.
of time in consultation is the major criticism
of general practitioners expressed by patient
organizations, with particular reference to
Refining Communication Skills
the failure of doctors to listen. It is clear that To achieve this objective, “we need to
shortage of consultation time is the greatest communicate smarter by making better
obstacle to improvement and extension use of the time we have got, refine our basic
of primary healthcare services by general communication skills, and make essential
practitioners”.6,7 On many occasions, not only is adjustments in our communication style to
our time with patients cut short, but the loyalty accommodate today’s more participatory style
of our patients some times feels divided with of care, and take steps to go that extra mile.” 11
our needs and demands on one side and the While one of the main reasons cited
managed care plan’s cost control efforts on by clinicians for poor communication and
the other.8,9 As responsible family physicians, relationship building with patients is a lack of
we often find ourselves at the focus of this time, there is evidence that longer visits do not
concern, trying to balance costs and cures. necessarily improve communication.12-14 As
Many of us have already been sensing that our the internationally acknowledged economist
patients, themselves are different today. The Andrew Barnett states, “More communication
family we once cared for from birth to death can simply end up as a form of pushing
has now switched to a HMO you don’t contract knowledge down a hose-pipe, in the hope that
with, and many of our new patients act more at least some of it will come out the other end.”15
like “consumers”, looking for the best bargain In this context Mauksch LB et al,16 have created

*HMOs are is a type of managed care organizations that provide a form of health care coverage in the
United States that is fulfilled through hospitals, doctors, and other providers such as pharmacies, labs,
X-ray centers, and medical equipment vendors, with which the HMOs have a contract. Most HMOs require
members to select a primary care physician (PCP), a doctor who acts as a “gatekeeper” to direct access to
medical services. A PPO is a health plan that has contracts with a network of “preferred” providers from
which a person can choose. There is no need to select a PCP and the person does not need referrals to see
other providers in the network.

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Chapter 11: Rapid Access to Improving Communication Skills 99

a comprehensive communications model, Helping patients stay on track will increase


directed at primary care providers, that blends efficiency and maximize the value of the time
the quality-enhancing and time-management you have with them. While most patients
features of selected communication and present their complaints in a straightforward
relationship skills with an aim to improve way, others tend to deviate. While one can gain
communication and overcome possible some useful information from their departures,
obstacles that occur in a doctor’s office: the doctor has to use his experience to
determine when the conversation begins to
Greeting the Patient: Rapport Building lack relevance and gently guide it back to the
The first impression a doctor and a patient matter at hand.
make of one another is the most important
one. In those first few minutes in the room with Listen without Interrupting
the doctor, the patient will decide if he/she can
feel comfortable sharing information with the Allow the patient to speak without interruption.
doctor. This is an indication of the doctor’s role Active listening requires attention, patience
and a starting point for rapport building. and suppression of the urge to control the
A smile, a warm greeting with a hand shake, conversation. By actively listening to the
addressing the patient by name (first name patient without interruption the doctor will
or surname whichever the patient prefers), get more information which will save time in
and an inquiry on an important life event can the long run. Communication is more effective
build rapport in less than a minute. Both the if the listener focuses only on what is being
doctor and the patient must sit down at eye said. Studies have shown that if the doctor lets
level; this relaxes the patient, so that both can patients speak for the first 3–4 minutes, they
communicate more openly. tell us 90% of what’s wrong with them.

Do Not Appear Rushed, Even if You are Relate with Your Eyes
Patients are greatly irritated when their doctors Avoid focusing on a computer screen, writing
appear hurried. Non-verbal behaviors such as notes or reading case sheet; look into the
looking at your watch and keeping one hand on patient’s eyes. Your contact should be direct
the doorknob could make the patient feel that but intermittent (not staring) and it should be
they’re being rushed. These behaviors imply sincere and convey interest. Maintaining eye
that the patient in the room isn’t as important contact and sitting when talking to patients can
as the one who’s coming in next. Once you’re communicate attention and respect.
in the examination room, make sure you’re
really there; focus your attention on the patient Organize Your Interviews
and stop yourself from being preoccupied
with what’s happening on the other side of the Most family physicians excel at interviewing—
examination room door. Establish procedures avoiding statements that might evoke
in the office minimizing interruptions unless defensive responses. In an effort to be
absolutely necessary. comprehensive, however, some interviews
may go on too long, especially those related
Keep Conversation on Track to complex psychosocial causes such as
Determine the patient’s priorities (e.g. “What anxiety, depression, and situational stress
would you like to talk about today?” “Tell me disorders. Under such circumstances, it is
what’s troubling you most.”). worth trying the “BATHE” technique.17 The

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100  Section 4: The Practice of Family Medicine
BATHE technique* consists of five specific in their care) had twice the patient retention
questions about the patient’s background, rate as physicians using the traditional
affect, troubles, and handling of the current “authoritative” style of cure.18
situation, followed by an empathic response. To move toward this “participatory”
Background: Tell me what has been happening; style of cure, physicians need to encourage
what is going on in your life? patient’s interaction, keep conversation at the
patient’s level of understanding, and let the
Affect: How do you feel about that. It allows the patient do most of the talking. Patients who
patient to reflect on their feelings and to know take partnership role in their care will often
that their emotions are being recognized. share more information with their doctors
Trouble: What’s upsetting you most about it? and may be more motivated to comply with
This is a key question, as it helps the patient the treatment plan.
and doctor focus on one thing, the most
important problem. The most time-consuming Set Realistic Expectations—Provide
patients present with five or six problems, so More Information in Less Time
this can be a huge time saver. Media coverage about medical advances
Handling: How are you handling the situation? and new technologies has created unrealistic
This includes a presupposition that the patient expectation that doctors can diagnose and
is handling it at some level, however badly, cure just about anything. The media hype
and ensures that the problem belongs to the and its tendency toward “publication bias”,
patient and is not for us, the GP, to take on, so i.e. greater likelihood for favorable studies
protecting us from transference. than for negative studies to get published,
may actually harm the patient. Since most
Empathy: Empathy demonstrates under­ patients do not understand the practice of
standing and normalizes the situation. Use medicine and have little understanding of
phrases such as ‘That must be very difficult the complexities involved in their treatment,
for you.’ it’s for the doctor to explain to the patients
what is realistic by explaining the facts which
Practice Participatory Care is time consuming. One way to deal with
Involve the patient in their care and treatment, such “information overload” in a time saving
making them partners in their health or manner is to integrate patient education
recovery. Where appropriate, it may be materials into the office visit. It is advisable
necessary to include the patient’s close to maintain a file of education handouts
associates in the partnering philosophy of and brochures that are freely available from
health education and information where medical websites and distribute to patients
feasible. In a study contrasting different style of as per their disease requirements. This can
patient care it was found that physicians who be done by any qualified staff member in the
used a “participatory” model of care (i.e. the office, or who can provide patient education
doctor serves as an educator, shares decision on medication, drug-interaction and explain
making and encourages patients to participate disease management. The doctor at a later

*BATHE technique: The procedure takes approximately 1 minute and must be practiced. Physicians may
use it to connect meaningfully with patients, screen for mental health problems, and empower patients
to handle many aspects of their life in a more constructive way.

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Chapter 11: Rapid Access to Improving Communication Skills 101

convenient appointment can explain any diagnosis, allergies, medications, etc. in digital
discussion on other important matters. In form for ready access.
some practices patients can help themselves
E-mail: Many physicians are now using e-mail
to a patient education library, stocked with
to answer patients’ questions. One can even
brochures, books, videotapes, etc. that are
have fixed e-mail hours, which saves time
conveniently housed separately.
besides being faster and more convenient to
both the doctor and his patients.
Going that Extra Mile
Web site: Develop an interactive web site for
Even after you have refined and adjusted
your practice, using a secure communication
your style of practice there is still more you
mechanism to meet various practice
can do to meet and exceed your patients’
protocols, such as mediclaim requirements,
expectations. To make your patients even better
appointments, remainders, details of practice
informed while enhancing the doctor-patient
procedures, etc.
relationship, consider doing the following.
Education: The doctor can also inform patients
Give All Patients a Welcome Letter/ about Internet sites, and web addresses that
Biography are specific to their health care needs.
Update and customize office information
A welcome letter providing an insight into technology. Hand held computers, telemedicine/
the kind of care your patient can expect to teleconferences and many such advances are
receive will make the patient feel familiar with only a click away both to the doctors and patients.
you and your practice at the first office visit.
(Ref. A sample welcome letter). You may also Educate Your Staff
include a brief biography of yourself and your
Communication isn’t just a doctor-patient
colleagues practicing with you (Ref. Sample
issue. Your office staff also represents you to
Biography).9, 19
your patients. In order to maintain over all
Another tool you can use with a new
efficient and cordial relationship between
patients is a hand out of a short medical
your staff and patients, it is important that they
questionnaire 20 which provides a quick
have periodic staff training sessions on patient
medical history and can “jump start” the first
communication and related topics. They will brief
examination. The questionnaire, besides,
your patients with pertinent information before
economizing time, helps you with valuable
their examination which will save your time.
background information on the patient. It
also sends a message that you are interested
Follow-up
in the patient’s total wellness. The health
questionnaire should cover standard questions The doctor has to make sure that all questions,
regarding medical history; it should include concerns and patient related needs have
emotional aspects of the patient and other been fully addressed and discuss with the
issues important to your practice. patient the next steps in care, set up follow-up
monitoring (if needed) or at least reinsure the
Use Internet/Computers Creatively patient to feel free to come back to see him/
her again.
Electronic Medical Records: Work toward the goal When patients do not attend follow-ups,
of establishing a fully EMR system. Establish a it is better to call for information, rather than
secure database for all patients’ demographics, just leaving it for the patients or the referral

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102  Section 4: The Practice of Family Medicine

A SAMPLE OF WELCOME LETTER

Name:.................................

Address:..............................

E-Mail:................................. TEL:.................................

Mobile No.:.......................... Fax:.................................

Office Hours:....................... Emergency contact Tel. No.:

Dear Mr/Mrs.....................................................................

Welcome to my practice. I am honored to be your physician and I am committed to provide you with the best
care I can and help you always to lead a healthy life style.
Here are some important steps you can take toward better health:
• Don’t smoke cigarettes.
• Don’t use tobacco products.
• Exercise at least thrice a week.
• Eat a diet low in fat and high in vegetables and fruits.
• Wear your seat belt whenever you are in a car.
• Drink alcohol in moderation, if at all.
• Learn to manage stress and tension.
• Don’t mix alcohol and driving.
• Discover what spirituality means to you and practice it.
• Maintain ties with your family, friends, neighbors, co-workers and others in the community.
It gives me great pleasure to work with you on these goals, either through my own expertise, through reading
the self-help books I give you, or by referral to other health professionals.
A good beginning would be to have a complete physical examination. No matter what your current state of
health—followed by periodic check-ups to test for a few specific diseases. I look forward to working with you
as your family doctor. The lines of communication are always open. Let’s work together to lead a healthy,
satisfying life that you deserve.

Sincerely,

……………………….

SAMPLE OF BIOGRAPHY
Our Physicians
1. Dr A is a qualified family physician with an experience of about ……… years. He has an added qualification
in ……… medicine. He is a straightforward individual who leads by example. He is a member of .……
faculty/organization.

2. Dr B is board certified in family practice with an experience of about ……years. She has an added
qualification in Medicine. She is a working mother with two children and offers patients the warmth and
grace that only a mother can provide.

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Chapter 11: Rapid Access to Improving Communication Skills 103

physician. This will help the doctor to maintain Pract, 1984; 34(259):71–5. [PMID: 6471020:
continuity of their care as well as showing them Free full text].
that the concerned doctor is interested in their 5. Ogden J, et al. “I want more time with my
health matters. Of course, it is important to be doctor”: a quantitative study of time and the
sure that patients understands that keeping in consultation. Fam Pract, 2004;21(5):479–83.
[PMID: 15367468: Free Article].
touch is a two-way affair and that they you are
6. Wilson A. Consultation length in general
expected to do their share of co-operation.
p r a c t i c e : a re v i e w . B r J G e n P r a c t ,
1991;41(344):119–22. Review.[PMID:2031756:
Conclusion Free PMC Article].
Many physicians find themselves in an 7. House of Commons Social Services Committee.
First report, session 1986-87. Primary health
environment where they must deal with a
care. London: HMSO, 1987.
patient within a restricted time frame, and
8. Leibowitz R, et al. A systematic review of
under “managed care” guidelines that may
the effect of different models of after-hours
at times compromise their ability to exercise primary medical care services on clinical
their optimal clinical judgment. With shorter outcome, medical workload, and patient and
patient visits now a reality, physicians have GP satisfaction. Fam Pract, 2003;20(3):311–7.
even less time to “make or break” the patient- [PMID: 12738701: Free Article].
physician relationship. However difficult 9. Born PH, et al. Health maintenance organization
these restrictions may be, it is the ultimate (HMO) performance and consumer
responsibility of the physician to determine complaints: an empirical study of frustrating
what is best for the patient; this responsibility HMO activities. Hosp Top. 2004;82(1):2–9.
cannot be relinquished in the name of [PMID:15490955:Abstract].
compliance with managed care guidelines.21 10. Teutsch C. Patient-doctor communication.
Med Clin North Am, 2003;87(5):1115–45.
It is therefore, vital that physicians develop an
[PMID: 1462133: Abstract].
understanding of their own communication
11. Belzer Ellan. Improving communication skills
style and adjust that style to meet the needs
in no time. Fam Pract Management, 1999;
of various patients, which will result in more 6(5):23–28.
work satisfaction and increased productivity. 12. Cape J. Consultation length, patient-estimated
consultation length, and satisfaction with the
References consultation.Br J Gen Pract, 2002; 52(485):1004–
1. Laidlaw Toni Suzuki, et al. Patients’ Satisfaction 6. [PMID: 12528588: Free full text].
with Their Family Physicians ‘Communication 13. Wilson AD, et al. Effects of interventions
Skills: A Nova Scotia Survey. Academic aimed at changing the length of primary
Medicine: 2001;76(10):S77–S79. care physicians’ consultation.Cochrane
2. Mechanic D, et al. Are patients’ office visits Database Syst Rev, 2006;(1):CD003540. [PMID:
with physicians getting shorter? N Engl J Med, 16437458:Abstract].
2001;344(3):198–204. [PMID: 11172143: Free 14. Carr-Hill R, et al. Do minutes count? Consult­
Article]. ation lengths in general practice. J Health Serv
3. Blumenthal D, et al. The duration of ambulatory Res Policy, 1998;3(4):207–13. [PMID: 10187199:
visits to physicians. J Fam Pract, 1999; Abstract].
48(4):264–71. [PMID: 10229250: Abstract]. 15. Barnett, Andrew. Reducing poverty needs an
4. Hull FM, et al. Time and the general ‘innovation system’ approach’, SciDev.Net, Web
practitioner: the patient’s view. J R Coll Gen site - www.scidev.net/dossiers/index.

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12 The consultation

“The most important difference between a good and an indifferent clinician


lies in the amount of attention paid to the story of a patient.”

Introduction Impression is created, guidelines are worked


out, and critical data are collected. Because
C o n s u l t at i o n may b e d e f i n e d a s a n
this is usually the first meeting of the two
interpersonal process, between the patient
individuals involved, the conduct and the
and the physician, evaluating aspects of health
progress of the consultation are as important
care, involving both verbal and nonverbal
as the content of the history.
events that may facilitate the understanding
Preparation for a successful consultation
of patient’s illness.
begins with the doctor assuming a professional
The consultation is the cornerstone
role. Formal introduction, exchange of
of all that we do in family practice. It has
greetings, a quiet environment, comfortable
been usefully employed to assess doctor’s
sitting arrangements, and privacy are some
effectiveness in terms of achieving the clinical
of the important conducive aspects to a
diagnosis. Most information leading to
successful consultation.
solution of any individual patient’s diagnostic
There are many consulting models* to
mystery is gathered from medical history taken
help doctors to understand the consultation;
during the consultation. Evidence shows that
most of them are similar in their attempt to
in over 75%, the history obtained by clinicians
broaden the conventional medical approach
at the consultation led to the diagnosis. Most
to include psychosocial issues, the family, and
clinicians rate the patient’s medical history as
the physician (Table 12.1).3,4
having greater diagnostic value than either the
physical examination or results of laboratory
investigations. The clinical adage that about Objectives for the Consultation
two-thirds of diagnoses can be made on the These are mainly 2-fold—patient’s and
basis of the history alone has retained its doctor’s consultation objectives:
validity despite the technological advances of
the modern hospital.1,2 Patient’s Objectives
During consultation the doctor and the Helman’s ‘Folk’ Model 5 helps understand
patient establish their working relationship. why patients come to the doctor. He states
*Consultation models are simplified procedures that give a framework for learning and teaching the
consultation, and to create an increased awareness of how consultations work in general practice. This is
helpful in identifying the skills that are needed to achieve the desired outcome. They actually soon become
second nature of general practitioners in practice.

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Chapter 12: The Consultation 105

that when a patient becomes ill he desires to ™™ Reassurance: The third and perhaps equally
seek answers to six questions. These questions important task is to provide reassurance to
may not be explicit; however, they need to be the patients that they are in good hands
incorporated with in a consultation for it to be and that family doctors are doing their best
fully effective. in the circumstances.
™™ Identity: What has happened? What is it? Ambrose Pare, a 15th century French
™™ Cause: Why has it happened? What caused surgeon, sums up these three tasks aptly: “To
it? cure sometimes, to relieve often, but to comfort
™™ Self-appraisal: Why to me? Why now? always”.
™™ Timeline: How long will it last?
™™ Consequences: What would happen if Understanding Tasks
nothing were done? How will it/has The three principle tasks need for their
affected me? expression, two understanding tasks:
™™ Cure/control: Can it be cured or controlled?
™™ The task of understanding patients’ “ideas,
What should I do about it, or whom should concerns, and expectations” (i.e. ICE- see
I consult for further help? below) for care, and
™™ The task of understanding their clinical
Doctor’s Objectives
problems.
™™ To maintain the doctor/patient relationship. From the accomplishment of these tasks,
™™ To help the patient to present problems. follow the processes of management of both
™™ To educate and involve patients in their patients’ and their illness.
own care.
™™ To satisfy the patient if possible and Management Tasks
appropriate.
On understanding the patients’ and their clinical
™™ To consider long-term management.
problems, comes a series of potential patient
™™ To promote compliance.
management tasks for the doctor to perform;
™™ To use time and resources appropriately.
which depend to a large measure on time
available, knowledge, skills, and awareness.
Tasks in the Consultation6
™™ Management of presenting problems:
The doctor performs many tasks in the course Every consultation needs to address this
of the consultation. These can be grouped as: area. Besides, dealing with the presenting
problems, it is a good practice to embark
Principle Tasks on the other tasks (explained below) as far
™™ Relieve illness: Patients consult doctors to as time permits.
seek relief from the illness and suffering, ™™ Modification of help-seeking behavior:
and if possible, a cure or healing. This is the Occasionally, it may be necessary to change
primary task in the patient-doctor encounter. the help-seeking behavior. For example,
™™ Relieve suffering: The second task is to the patient may insist on antibiotics, which
relieve suffering. There is much that could are not appropriate. The modification
still be done even if it is not possible to of such behavior needs due attention to
cure the patient’s illness, e.g. chronic ideas, concerns and expectations behind
medical conditions like diabetes mellitus, the help-seeking behavior.
hypertension, bronchial asthma and end- ™™ Management of chronic problems :
of-life illness. These need to be addressed whenever

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106  Section 4: The Practice of Family Medicine
patients’ visit. Time spent in this task will (i.e. ICE as defined in Pendlenton et al).
result in better compliance and reduce Patients dwell on such real issues confronting
complications from chronic diseases. them; this is often described as the “patient’s
Opportunistic health promotion*—A agenda”. Doctors, based on their expertise and
consultation in primary health care is ideal experience, decide on an appropriate agenda
for opportunistic health promotion and (e.g. what are the important needs to be
disease prevention. Much can be done discussed, in what order, and time-allocation)
to reduce the onset of disease related to after acquiring sufficient information,
adverse life-style such as sedentary habits, including assessing their ICE. This approach
tobacco and alcohol abuse. However, this results in doctors having better understanding
is a challenging task because the adoption of not only the patients, but also their illness.
of healthy behaviors requires change of Although no disease-specific (i.e. bio-
life-long habits. medical) diagnosis is possible in 25–50% of
patients, the patient-centered method can be
The Consultation Process used to elicit fuller history than doctor-centered
approach, while also addressing the patient’s
The consultation process is aimed at fulfilling understanding and worries regarding their
two tasks: understanding patients and their symptoms. Even when a biomedical diagnosis
clinical problems. Two methods are commonly can be made, successful management often
used in clinical practice:7 requires an understanding of the psychosocial
issues concerned to the disease.
Doctor-centered Method
The patient-centered approach has gone a
The conventional method pays attention to long way and the concept of “Patient-Centered
present complaints, analysis of symptoms and Home Care” (PCMH) has emerged as a new
physical findings, diagnosis, investigations and polestar.8,9 The PCMH is a team-based model
then treatment. This method fits the “hospital” of care led by a personal physician who
setting where the focus is on doctor dominated provides continuous and coordinated care
biomedical problems with reductionist throughout a patient’s lifetime to maximize
approach.** Understanding the patient and what health outcomes. The PCMH practice is
the illness means to the patient usually tends to responsible for providing for all of a patient’s
be an afterthought, something added on after the health care needs or appropriately arranging
diagnostic task has been completed. care with other qualified professionals. This
includes the provision of preventive services,
Patient-centered Method treatment of acute and chronic illness, and
The patient-centered method represents assistance with end-of-life issues. It is a
a reformed clinical method to suit the model of practice in which a team of health
“ambulatory” care consultation, wherein professionals, coordinated by a personal
patients bring to their doctors problems that physician, works collaboratively to provide
may not be entirely biomedical.  Although high levels of care, access and communication,
patients attend with a set of symptoms, they care coordination and integration, and care
also have “ideas, concerns, and expectations” quality and safety.10-12

*Ref. Chapter 34 Prevention in Family Practice: opportunity for prevention.- p. no. 338
**Ref. Chapter 8 The spectrum of clinical diagnosis. - p. no. 63

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Chapter 12: The Consultation 107
Table 12.1  Consulting models in general practice ™™ To establish or maintain a relationship
• Eric Berne’s (1964) with the patient that helps to achieve other
• John Heron (1975) tasks.
• Bryne and Long (1976)
• Stott and Davis (1979)
Stewart et al Model
• Helman’s “ Folk” model (1981)
• The Disease—Illness model (McWhinney1984) The method has six integrated components:
• Balint (1986) ™™ Exploring and interpreting both the disease
• Neighbor (1987) 
and the illness experience,
• Cohen-Cole and Bird (1989)
™™ Understanding the whole person,
• Stewart et al (1995)
• T h e C a l g a r y - C a m b r i d g e A p p r o a c h t o ™™ Finding common ground with the patient
Communication Skills Teaching (1996) about the problem and its management,
• BARD 2002 Ed Warren (2002) ™™ Incorporating prevention and health
• Pendleton, Schofield, Tate and Havelock (1984,
promotion,
2003)
• Traditional medical model: the classical medical ™™ Enhancing the doctor-patient relationship,
diagnostic process involving history, examination, and
investigations, and definitive diagnosis. ™™ Being realistic about time and resources.

Several older models of such approach are Byrne and Long Model
available in the literature (Table 12.1); three It involves the following steps:
of these are summarized below to give some ™™ The doctor establishes a relationship with
background to how the more recent models the patient,
have developed. ™™ The doctor, either attempts to discover,
or actually discovers the reason for the
Pendleton, Schofield, Tate and patient’s attendance,
Havelock Model13 ™™ The doctor conducts a verbal or physical
This model details seven tasks as follows: examination, or both,
™™ The doctor, or the doctor and the patient,
™™ To define the reason for the patient’s
or the patient (in that order of probability)
attendance, including the nature and
considers the condition,
history of the problems, their etiology;
™™ The doctor, and occasionally the patient,
patient’s ideas, concerns and expectations
details further treatment or investigation, and
(i.e. ICE), and the effects of the problems
™™ The consultation is terminated, usually by
on the patient,
the doctor.
™™ To consider other problems: e.g. continuing
It is evident that the three models have
problems and risk factors,
much in common and essentially require
™™ To choose with the patient an appropriate the attending doctor to pay attention to the
action for each problem, following four aspects:
™™ To achieve a shared understanding of the
problems with the patient, Why does the Patient Come?
™™ To involve patients in the management The doctor needs to know why the patient
and encourage them to accept appropriate has come for medical help and what help
responsibility, the patient is seeking. Too often wrong
™™ To use time and resources appropriately: in assumptions may be made by not clarifying
the consultation and in the long term, and   with the patient, especially when language and

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108  Section 4: The Practice of Family Medicine
cultural barriers exist. Cultural assumptions* primarily by physical symptoms for which
and expectations shape the doctor-patient no demonstrable organic explanations or
relationship and may present a formidable physical findings exist. The fear or idea is
barrier to effective care.14 based on the misinterpretation of bodily signs
It may be assumed that the patient has and sensations as evidence of disease. The
come to the doctor because of the symptoms; illness persists despite appropriate medical
but for every patient who presents there evaluations and reassurance.
are many more who are coping with similar Family physicians also encounter patients
symptoms themselves and not seeking help. whose symptoms switch from organ to organ
Therefore, it is not sufficient to know what (hence the name “organ recital”), and some
symptoms the patients are experiencing, but patients stay within one organ system but their
also what sense the patients have made of symptoms keep alternating with each visit. Its–
their symptoms in order to know why they “as soon as one thing is fixed, something else
have come. Some simple questions can help goes wrong.” Repeated physical examinations/
to uncover the link to patient’s symptoms: lab tests are non-contributory; in fact the false
™™ Can you describe in detail the events that positive and/or negative reports add further
led to the present symptoms? dilemma to the diagnosis. Such patients are
™™ What triggers the symptoms? known by different terms; some call them
™™ What makes it worse or better? “heart sink patients”. Many of these patients
™™ How often does it occur? have a “thick file” in the doctor’s office, and
™™ Do symptoms occur at a particular time informally called as “thick-file or fat-folder
or any event? patients”.
™™ Can you predict when it will next occur?
Further, the physician’s conclusion derived
Understanding the Whole Person
from the following questions to the patient can
facilitate sympton analysis: Beliefs, customs, and cultural diversity all
™™ Do the patient’s reported symptoms make play a role in how a person reacts to an
sense in the context of all test results and illness, copes with changes, and adapts to
assessments? the healing process. The person has “ideas,
™™ Is there any collateral information from concerns, and expectations” (i.e. ICE), and also
other sources that confirm the patient’s other problems that may need attention, e.g.
information? continuing problems and risk factors, including
It is often assumed that the patients come limitation of time and resources.   Evidence
for treatment, but what they may need is an proves that the application of a whole-person
assurance that something more serious is not model for diseases, especially of chronic
going on because they have seen someone with nature, has brought improved engagement
a serious problem having similar symptoms; with the individual and more efficient delivery
their concern is that they may have the same of health care outcomes. 15 Therefore, by
problem (see “hidden agenda” below). For knowing the patient’s “ICEs”, the doctor is in
example, patients with somatoform disorders a better position to bring about outcomes the
such as hypochondriasis, characterized patient desires.

*Cultural competence has been defined as “the ability of health care providers and institutions to deliver
effective services to racially, ethnically, and culturally diverse patient populations.” (Ref. Bigby J, ed. Cross-
Cultural Medicine. Philadelphia, PA: American College of Physicians; 2003).

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Chapter 12: The Consultation 109

Find Common Ground for Action having difficulty in trying to work out what may
At the conclusion of the consultation the have led the doctors to their conclusions.
doctor should summarize patient’s concerns as
far as possible and explain matters sufficiently Interviewing Skills
and clearly, so that the patient understands This is the most important phase of the
and remembers all what has been said and be consultation that elicits information verbally
committed to the management plan. from the patient that is unsurpassed in
diagnostic efficacy. Obtaining accurate and
Manage the Patient’s Disease Realistically sensitive information, called as “history of
The goal should be for patients to follow the presenting complaints”, need not be time-
planned management when appropriate and consuming task if the right approach is
ultimately experience beneficial changes in followed. A common mistake is to rush into
their health. investigations before considering the history
The doctor should emphasize compliance* or examination. It needs to be emphasized that
with therapy. A patient who is unable or the art of consultation is to devote all the time
unwilling to follow the advice given will and attention to the patient and nothing else;
frustrate the most careful diagnosis and time invested to establish trust and rapport
appropriate management. Some reasons for initially will be more time-efficient in future
non-compliance are: consultations.
™™ The advice may not fit in with the patient’s It is convenient to divide the interview in
lifestyle. a consultation into three phases:  beginning,
™™ The advice may be too complicated for the main part, and ending. However, physicians
patient to follow. with experience usually develop their own
™™ The advice is related to a diagnosis that the style that they feel comfortable with.
patient is trying hard to reject.
™™ Inability of the physicians to explain timing The Beginning**
and dose or benefit of medication. ™™ Greet the patient; introduce yourself,
™™ Other reasons, e.g. lack of time or other especially to new patients; the patient must
resources. know who you are.
In the experts’ view, a positive attitude ™™ Put the patient at ease; consider physical
toward treatment, insight into illness, accurate comfort. The atmosphere of the consultation
perception of the symptoms, and the doctor- should be calm, gentle, and respectful.
patient relationship correlate strongly with ™™ Obtain some background information
compliance.16 Therefore, the most significant about the patient, e.g. name, how they
point to note is that, advice will be rejected would like to be addressed (personal name,
when it does not fit in with the patient’s own surname), age, status, occupation, etc.
view of the problem. Doctors rarely explain to ™™ It may be prudent to assure the patient that
the patients the reasons why the advice has you will treat all the information in strictest
been given, which results in the patients often confidence.

*Compliance may be defined as the degree of fidelity to treatment recommendations and patient
cooperation.
**Treat patients as you would like to be treated yourself.

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110  Section 4: The Practice of Family Medicine
™™ Remember that the patient is evaluating ƒƒ Facilitation—Verbal, e.g. “Go on, tell
the doctor, as the doctor is evaluating the me more about it”, “What happened
patient. Both may tell each other what they then?”, “You said you felt a pain”, etc;
want to discuss, and what they prefer not or non-verbally, e.g. head nodding,
to discuss. looking, attentive posture.
ƒƒ Listening—giving the patient sufficient
The Main Part of the Interview time to talk and avoiding coming in too
™™ Listen to the patient. It is important to allow quickly with questions or reassurance.
the patient to talk. Make eye contact, and ™™ Encourage patients to be relevant by
encourage talking by: bringing them back to the point if they are
ƒƒ Using open ended questions.  vague, or keep changing their story, or talks
ƒƒ Facilitating responses by saying “yes”, about unhelpful areas of experience, e.g.
“I understand”,” go on.” by saying, “That’s interesting, but could
ƒƒ Showing your interest in what the we return to talking about your headache.”
patient is saying. ™™ Help patients to describe the real nature
ƒƒ Leave direct questioning to the end. and development of any problems by:
™™ Encourage the patient to be relevant. ƒƒ Encouraging them to provide actual
™™ Help patient describe the real nature and examples of the problems and their
development of any problems. effects, e.g. “You say you are having
™™ Review the patient’s history with them; it panic attacks—can you describe a
allows correction of any misunderstanding, typical one?”
and allows to bring the patient back to the ƒƒ Paying attention to verbal leads (I have
point that you may wish to explore in had this terrible pain; I have not been
greater detail. sleeping very well, I have been so
™™ Look out for important leads, verbal and miserable) and non-verbal leads
non-verbal, and follow them up. This is (patient looks in agony; looks upset).
particularly important when exploring ƒƒ Avoid the use of jargon—by the
patient’s understanding of their problems patient, e.g. “What do you mean by
and its impact on their life (see below). ‘depression’?”; or by the interviewer,
™™ Use language which the patient will e.g. “Were you depressed?”
understand. ƒƒ Avoid biasing patient’s story by leading
questions such as, “You are depressed?”,
Details of Techniques Used in Main Part and “You couldn’t breathe very well”?
of Interview Instead use open-ended questions,
™™ Use appropriate open ended questions e.g. “how was your mood at that time”,
to help patient outline key problems; e.g. “How was your breathing?”
“What has brought you to see me today?”; ƒƒ Avoid multiple questions such as,
“What seems to be the problem?”; “How “Were you losing weight, appetite,
can I help you?” Skill at asking such sleep?” Instead ask single questions,
questions probably determines one’s e.g., “What about your weight?”
success as a physician more than any other ™™ Avoid confusion in the history you obtain
factor. by:
™™ Encourage patients to tell their story in ƒƒ Asking the patient to be precise about
their own words by: dates of onset of key symptoms,

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Chapter 12: The Consultation 111

problems or events, nature of previous B. Bub in his article. The patient’s lament 19
treatments, etc. expresses these cues as, “Notice handshake,
ƒƒ Clarifying any uncertainties that arise eye contact, facial expression, body posture,
in the interview, e.g. “I’m not very clear speech pattern, and choice of language. The
when your trouble started, could we try theme of the lamenting person’s narrative
and get that clear?” It may be essential is often peppered with disempowering
to state the same question in several words such as buts, cant’s, shoulds, musts,
different ways at different points of the and if onlys. Notice also: hopelessness,
interview (in order to be sure you have pessimism, weariness, loneliness, and
consistent answer) may be helpful. negativity.” Therefore, when the patient does
ƒƒ Crosschecking key points, e.g., “You reveal sensitive information, take a moment
said it all began after the demise of your to explore what they have told you. It is
husband, and not earlier…?”; “You are appropriate to point out discrepancies to the
breathless only when you walk uphill….?” patient and elicit their understanding about
™™ Picking up and checking out cues. their cause. The Table 12.2 gives common
In the course of consultation patients very guidelines to explore cues.
often provide cues, i.e. a hint or intimation
that provide vital lead to explore some Ending the Interview — Hidden Agenda
unexplained aspects of patient’s illness. 17 Patients often tell very important things to
Usually this happens when it is difficult for family physicians as they are just about to
patients to disclose personal information leave the office which they could not voice
about themselves or problems they may be until adequate courage was summoned at the
experiencing. A study by Tuckett et al 18 shows moment of departure. Such unvoiced concerns
that patients are keen to disclose their own are generally called as patient’s “hidden agenda”
thoughts and feelings, and offer an explanation and known variously as “hand-on-the-doorknob
of their symptoms to the doctor; however, syndrome”20, or “exit problem”, or “parting shot”,
only 7% of doctors actively encouraged or “by-the-way shots.” Some reasons attributed
their patients to elaborate, 13% listened for patients’ hidden agenda are:
passively, and 80% made no attempt to listen
Table 12.2  Examples of cues during consultation
or deliberately interrupted. Half of patient’s
views were expressed covertly rather than Verbal cues
overtly, with overt cues being picked up far • “You seem quite nervous. Can you tell me why
you might be a bit anxious?”
more readily than covert cues. The conclusion • “You mentioned you feel overwhelmed. Can you
here is that many patients provide cues which tell me more about that?”
doctors unfortunately ignore. • “You mentioned you have problems since your
Cues can be verbal, non-verbal, or both*. mother died. May I know more about these
problems?
Studies show that open-ended questioning, • “What do you mean when you say you always
attentive listening, and careful observation feel tired?”
are essential to ensure accurate interpretation • “You mentioned your brother has rheumatoid
arthritis. Is this bothering you now?”
of cues. The physician has to establish an
atmosphere of interest and openness to Non-verbal cues
• “I can see you are upset; e.g. your hands are
explore patient’s feelings and thoughts to shaking; voice is chocked; tears in eyes; crying;
surface during the attentive stage of listening unusual sweating; tense facial expression;
at consultation and explore these cues further anger; sadness; etc.

*Ref. Chapter 10. Communication skills- Communication types; p. 91, 92.

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112  Section 4: The Practice of Family Medicine
™™ Patient embarrassed to talk about problem therefore, be defined as, “the unconscious
(e.g. sexual problem, depression). motivations, fears, and beliefs that underlie the
™™ Patient not sure of trusting particular doctor. patient’s request for a medical consultation”.
™™ Patient worried if confidentiality will be Unless the doctor is able to fathom these,
maintained. the patient may only be left with treat his
™™ Patient not sure if problem is legitimate most obvious symptoms but not resolve the
problem to present to the physician underlying problem.
(e.g. bereavement, financial problems, A thoughtful physician should pay
domestic abuse). attention to these concerns. Further search
During the consultation, knowledge of should be made for the underlying reason
some clues are helpful to suspect that the for the visit when a patient presents with a
patient may have a “hidden agenda”. They are: trivial complaint that appears inappropriate
™™ Body Language of patient—lack of eye at the time because it improves symptom
contact, nervous, embarrassed. management and total treatment efficacy.
™™ Problem mention by patient is very trivial. Therefore, it is a good practice to enquire if
™™ Symptoms do not make sense/inconsistent there is anything the patient would like to add
history. before you finish by asking question such as,
™™ Characteristics of patient, e.g. teenager. “Is there anything else you want to tell me?”,
Hidden agenda often provide a clue to the or “ What you think may be the problem with
primary reason for patient’s visit. For example, you?. This may bring out the real reason for the
a male adult concerned with premature encounter, i.e. “hidden agenda.” (Table 12.3).
ejaculation may complaining mainly of job The patient usually has a long-standing list of
stress and may say at the end of consultation, symptoms (‘shopping list’ of problems), with
“By the way doctor, I am concerned about non-organic pathology. Features that prompt
my low sex; do you think it’s important?”; or physician to probe to unmask the hidden
a patient with non-specific complaints may agenda are:
state, “a friend of mine is diagnosed as cancer ™™ Frequent attendance with minor illness.
of the liver; do you think that has anything to ™™ Frequent attendance with same symptoms
do with my illness?” Similarly, a young patient or multiple complaints.
who knows of someone passing away of heart ™™ Attendance with a chronic illness, which
attack may be anxious enough to seek help has not changed.
when he has aches and pains in chest muscles
Table 12.3  Tips to uncover the hidden agenda
which he would have normally ignored. Since
he has now learnt from experience the link • Open consultation style; encourage the patient
between chest pain and death due to heart to talk without interruptions, especially at start of
consultation.
attack, he may complain of only chest pain • Give patient enough time, do not look hurried.
(and not his worry about heart attack) and • Establish rapport, be empathetic, sympathetic
leave the rest to the doctor to find its cause— and show understanding.
• Summarize and reflect back to patient what has
without disclosing his “hidden agenda ” of been said.
possible heart attack. • Pay attention to subtle cues and hints that the
Thus, because of the fear of rejection or patient may drop.
• Deal competently with trivial complaint if that is
humiliation, patients may test physician with all they tell you at first.
some general complaints before mentioning • Use non-verbal and verbal communication
the specific reason, i.e. “hidden agenda”, skills to find patient’s ideas, concerns and
for their consultation. Hidden agenda can, expectations.

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Chapter 12: The Consultation 113

™™ Fails to recover in expected time of illness, as: routine, drama, transitional ceremony, and
injury, or operation. maintenance ceremony.
™™ Failure of reassurance. Routines are everyday family practice
™™ Frequent visits by a parent with a child with problems, e.g. acute infections, minor trauma,
minor problems. need for reassurance, etc. These are dealt simply
™™ Adult patient with many accompanying by mutual agreement and resolve rapidly.
relatives. Dramas are encounters involving uncertainty,
™™ Inability to make sense of the presenting conflict, and emotion, lack of common ground,
problems. family discord, or diagnosis of an illness with
Most patients with hidden agenda are grave implications. The doctor converts the
young, undereducated, unmarried, who would drama, (e.g. an exited, or emotional patient, or
like to talk to a sympathetic doctor about an unexpected behavioral event) to a transitional
personal problems, not traditionally thought ceremony (ref. next para), or refers the patient to
of as medical problems. a colleague.
Generally, psychosomatic illnesses, inter­ Transitional ceremonies are situations
personal family conflicts, sexual dysfunctions, where the purpose is to provide a transitional
STDs, substance abuse, cancer phobia and fear explanation and protect the patient from
of crippling diseases, such as stroke, arthritis, harm until a longer visit can be arranged.
etc. form the bulk of hidden agenda in patients Often, they unfold in the course of a routine
consulting their family physicians.21 visit. The doctor’s aim in these cases is to
allow the drama to start and buy time. This is
Common Pitfalls when Interviewing accomplished by the following four steps: the
Patients patient must know that the doctor believes him
These are: or her; the doctor must address the patient’s
™™ Poor eye contact.
greatest fears; the doctor should perform some
physical examination; and give the patient
™™ Over reliance on notes.
hope and something to do before the next visit.
™™ Over reliance on ‘systematic enquiry’ (i.e.
One example is the abdominal pain that the
textbook teaching).
doctor does not detect anything serious but
™™ Premature focusing down on the perceived
the situation may still be too early to tell if it is
problem.
serious or not. The patient is told to observe
™™ Lack of clarification and/or precision.
and report back if anything untoward happens
™™ Failure to follow-up patient’s cues as to
such as persistence or worsening of pain.
what they think the problem may be (see
Maintenance ceremonies are consultations
Table 12.2).
that have settled into a regular, recurring
™™ Deficiencies in question style.
pattern. These may be dramas that have
™™ Omitting to ask what the patients ideas are
resolved into a period of adjustment, visits
about their problems.
for control of a chronic disease, or a periodic
need for support and reassurance. Others are
Consultations as Routines, Dramas visits that physicians find disturbing: patients
and Ceremonies with chronic symptoms that do not respond
An interesting way of viewing the consultation to treatment, people with self-destructive
process is to classify them into one of four types tendencies, and those whose wants cannot be
by process. Miller describes these four types satisfied. Ceremonies are so-called because

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114  Section 4: The Practice of Family Medicine
of their ritualized symbolic character. The demented, delirious patient situations in
same ritualized conversation, examination, or which the consultation is flawed.
therapy may take place at each visit. ™™ Significant difficulties can be created
by differences in native language or
Patient Satisfaction with the cultural practices between the doctor and
patient. The risk of misunderstanding and
Consultation
misinterpreting information arises when
The following are what patients judge to be the these differences exist.
most important elements in the consultation: ™™ Problems created by situation or topic:
™™ Their “ICEs” are discussed and dealt with, Direct information may not be available
™™ That the doctor communicates warmth, in situations like in demented, drugged, or
interest, and concern, critically ill patients. Details regarding risky
life style habits, such as sex, alcohol, etc.
™™ The doctor volunteers information,
may have to be obtained from third party;
™™ The explanations are in terms understood
e.g. a spouse, family friend, a care taker.
by them, ™™ Majority of troublesome consultations
™™ Recall and understanding of what has can be surmounted by tact, patience,
been said, experience, and above all by not forgetting
™™ Involvement of the patient in decision- the human dimension of the encounter, i.e.
making, making a humanistic approach integral
™™ Patient’s understanding of health and the and relevant to patient care that are likely
factors involved, to improve clinical outcomes.
™™ Patient’s personality and internal or
external factors affecting the personality, Conclusion
and The consultation is the cornerstone of all
™™ The patients own “Health Belief Model”, that we do in family practice. Information
e.g. social, psychological, superstitious gathering, relationship building, and patient
beliefs; motivation toward wellness or education are the three essential functions
illness; past experience with doctors, etc. of the consultation. A physician-centered
interview using a biomedical model can
Troublesome Consultations22 impede disclosure of problems and concerns.
A patient-centered approach can facilitate
Usually, consultations progress according to patient disclosure of problems and enhance
the best-laid plans. Sometimes, in practice, physician-patient communication. This, in
this is seldom the case. Several things can go turn, can improve health outcomes, patient
wrong with the consultation. Some common compliance, and patient satisfaction and
difficulties encountered are: may decrease malpractice claims. Physicians
™™ Problems created by being sick: Illness can improve their consultation skills through
or worry about potential illness causes continuing education and practice.
behavioral changes in the person. Factors, Consultations are an important part of
such as, pain, fear, anger, frustration, denial medical practice. Treat patients as you would
contributes to difficult consultation. like to be treated yourself. Be honest and
™™ Problems created by behavioral styles: A respectful and make this contact with them a
lying, malingering, manipulative, drugged, pleasure.23

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Chapter 12: The Consultation 115

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– web site - http://www.patient.co.uk/doctor/ of print][PMID: 22054224: Abstract].
Consultation-Analysis.htm. Accessed on 15- 16. Giessler A, et al. Compliance in the treatment
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13 The physician-patient
relationship

“Some patients, though conscious that their condition is perilous, recover their health
simply through their contentment with the goodness of the physician.”
— Hippocrates (460-377 BC)
“The essence of the practice of medicine is that it is an intensely personal matter.
The treatment of a disease may be entirely impersonal; the care of the patient must be entirely
personal. The significance of the intimate personal relationship between the physician and patient cannot
be too strongly emphasized…. in a large number of cases both the diagnosis and the
treatment are dependent on it.”
— John A Benson

Concepts and Changes During the last decade, in many parts of


the world, the one-to-one physician-patient
The physician-patient relationship is one of the
relationship, which characterized the practice
most unique and privileged relations, based
principally on “knowledge, trust, loyalty, and of medicine, is in jeopardy, primarily because
regard.”1 All over the world, this relationship of the growing complexity of medicine and
has been governed by the time-honoured changes in the healthcare delivery system. 2
conventions and ethical principles—in ancient Escalating costs of health care, increasing
times by classical Ayurvedic Senior Triad reliance on technological methods of diagnosis
Literature: the Charaka Samhita, the Sushruta and treatment, increased geographic mobility
Samhita, and the Ashtanga Hridaya Samhita*, of both patients and doctors, the growing
and Hippocrates oath; and in recent times culture of “managed care” such as health
by Medical Councils of respective countries maintenance organizations, have blurred the
or guidelines, and recommendations by individual physician-patient relationship.1,3
international organizations like World Health The “internet” is rapidly changing the
Organization and World Medical Association. physician-patient relationship. By providing

*The Samhita means compilation or collection. The Charaka Samhita is the earliest major medical text
of Ayurveda, attributed to the physician Charaka. Traditionally it is thought that he lived around 1000
to 800 B.C., but according to some Western scholars his period was around the first century AD. The
Sushruta Samhita is the major surgical text of Ayurveda, attributed to the physician Sushruta. It is the most
advanced compilation of surgical practices of its time. The exact period of Susruta is unclear but some
scholars put him at around 600 BC. Ashtanga Hridaya Samhita is the third major treatise in the Senior
Triad, attributed to Vagbhata. It is a concise version of the works of Charaka and Sushruta and possibly
his period was around AD 700.

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Chapter 13: The Physician-Patient Relationship 117

access to medical information, online medical Table 13.1 Some changes affecting the physician-
patient partnership
advice, computer-based home-monitoring
systems, and online support groups, the • Rise of consumerism in medicine
Internet is making it possible for patients to • Shift of care from hospital to community
• Increased attention to prevention and patient
assume much more responsibility for their
education
own health care. Patients present to the • Changing status of women in society
physician with information from the Internet • Emphasis on patient autonomy
about illness and treatment. The quality of this • Doctor’s role as trustee regarding disability
information, at present, is extremely variable in benefits
• Increased awareness of physician’s sexual abuse
terms of its reliability and completeness. Some of patients
information may be false and can actually be • Increased hospital liability for doctor’s care
harmful. • Administrative, containment of medical care costs
Further, an increasing tendency on the part • Increasingly litigious environment
of patients to express their disappointments • Increased use of technology
• Social acceptance of physician-assisted suicide
with healthcare system by legal means
• Multiculturalism
(medical malpractice suits) has given a legal • Social concerns about woman assault and
orientation to this relationship and various violence
legislations have been imposed with punitive • Holistic and alternative health movement
measures. • Increased emphasis on informed consent
• Change in status of all professions in society—
Modern medicine has increasingly been decline of role of medicine and expansion in role
seen in terms of human rights. Considering the of other professionals
changing values of the society, technological • Attacks on professional self-regulation
advances in healthcare system, as well as • The rise of a disabled culture of affirmative action
and pride
the vulnerability of patients, maintaining the
humane qualities of medical care is a major Source: Patient-centered medicine: transforming the
challenge (Table 13.1). clinical method. Moira Stewart et al, Sage. 1995 ISBN
However, it has been felt by various ethical 0-8039-5689–4.

medical organizations and committees


“The significance of the intimate personal
that, “doctor-patient relationships based on
relationship between physician and patient
openness, trust and good communication will
cannot be too strongly emphasized, for in
enable to work in partnership with patients to
an extraordinarily large number of cases
address their individual needs.”4
both the diagnosis and treatment are directly
There is also evidence to emphasize that
dependent on it. One of the essential qualities
“a sustained relationship between a patient
of the clinician is interest in humanity, for the
and a physician is beneficial.” 5,6 From this
secret of the care of the patient is in caring for
sustained relationship over time, other
the patient.”
attributes of primary care are thought to
arise, including trust, comprehensiveness
of care, interpersonal communication, and Types
accumulated knowledge of the patient by Historically, there are at least four types of
the physician. These attributes of physician- doctor-patient relationship described; namely:
patient relationship are well articulated in autonomism, egalitarianism, paternalism, and
the famed statement by legendry Dr. Francis autocracy.7
Peabody, which was delivered more than half ™™ Autonomism (i.e. personal freedom):
a century ago: The patient has the right to make

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118  Section 4: The Practice of Family Medicine
decisions regarding the health care that the concept of “partnership and collaborative”
is recommended by his/her physician. efforts between the two (Table 13.2). This model
Accordingly, patients may accept or respects the patient as an autonomous individual
refuse any recommended medical with a right to hold views, to make choices, and
treatment. However, if the patient takes an to take actions on personal values and beliefs.
autonomous decision, the doctor needs to Patients have been increasingly entitled to weigh
understand the reason for such a decision the benefits and risks of alternative treatments,
and may offer alternative considerations. including the alternative of no treatment (e.g.
For example, if the patient requests a do not resuscitate orders) and to select the
second opinion, the doctor may agree if alternative that best promotes their values.
it’s reasonable, but may resist if it’s deemed
unnecessary and not cost-effective. Scope of Physician-Patient
™™ Egalitarianism (i.e. equal rights): It is a Relationship
situation where the patient is encouraged
to assume more responsibility in decision- The physician-doctor relationship paves the
making. This is conceptually good for way for frank discussion in which the patient’s
the patient, especially in chronic illness. needs and preferences and the doctor’s clinical
However, the doctor needs to know that ill- expertise and knowledge are shared to select
health can diminish autonomy and make the best treatment options.
egalitarianism inappropriate. In the present medical scenario the
™™ Pa t e r n a l i s t i c ( i . e. f a t h e r l y ) : T h i s scope of doctor patient relationship may be
model involves patient’s dependence summarized as below:
on physician’s professional authority.
Believing that the patient would benefit Establish Rapport (Implied Consent)
from the physician’s actions, a patient’s Patient must develop trust and faith in
preference are generally overridden his doctor before he reveals personal and
or ignored. Although paternalism is intimate information. Doctor’s humanistic
traditionally frowned upon, yet it may attributes as encompassing respect, integrity,
be appropriate if the patient is not in a and compassion for the patient’s dignity,
situation to decide because of inability to irrespective of his socio-economic status,
understand or too young to decide. genuineness in approach and positive regard
™™ Autocracy (i.e. dictatorial): Although
play crucial role in establishing the rapport.
viewed by many as unacceptable, yet it
may be necessary in medical, surgical, or Table 13.2 Partnership: Physician’s participation in
psychiatric emergencies. patient care
These levels describe how the doctor and
• Attends all patients with unconditional regard,
patient relate to one another during their • Provides helping actions and communications
negotiation. Teachers and learners can use that are patient centered
this model to describe how the doctor and the • Negotiates patients’ choices, decisions, and
patient affect the negotiation process, and how requests, including possible conflict in the
relationship
the process in turn affects the doctor-patient • Educates patients with respect to disease,
relationship and medical care. investigations, treatment compliance, and
During the second half of the 20th century, prognosis
the physician-patient relationship has evolved • Promotes health education and preventive life
style
toward “shared” decision making based on

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Chapter 13: The Physician-Patient Relationship 119

Be Attentive and a Good Listener “so what...it is not my fault…you may go to


Attaching importance to even the most trivial another doctor.” Patient will feel rejected and
of the patient’s complaints; making the patient there will be higher chances of dropouts.
feel that he is the most important person in Should there be a reason to disagree with a
the consultation room, and his problems are patient’s opinion, be positive in presenting
indeed most significant; only then the patient your views without belittling the patient or
feel relaxed and at ease with the doctor. making him feel inadequate and ignorant.
Tact and dignified diplomacy are the keys to
a successful and long-lasting doctor-patient
Avoid Interruptions
relationship.
Patients should have a right to speak. Many
doctors make a diagnosis in a few seconds Avoid Parenting your Patient
and subsequently ask few questions related to
Be firm and pleasant in your discussions
the possibility they have already considered.
without being involved in patient’s personal
Such an approach will miss vital information
or family life. Also any attempt by the patient
for diagnosis and treatment. Open-ended
to become personally involved with the doctor
questions reveal more information than closed
should be discouraged.
ended questions.
Non-judgmental
Guide the Patient
Doctors should not express their personal
Patients are not expert in giving history; they views on topics which might evoke emotional
need to be guided to enumerate all the relevant reactions in the patient. Personal views on
details. Encourage the patient to focus on caste, religion, politics, family relations,
one point at a time. Focus on specific details. financial status, etc. should not be discussed.
In certain situations the doctor should also
recognize the expertise of the patient. Be Gentle and Concerned when
Examining the Patient
Avoid Criticism Make the patient relaxed through every step of
Never criticize your patients. Criticism leads the physical examination, periodically pausing
to drop-out and poor drug compliance. to explain the need for a particular step.
Communication fails when patient fears that
his feelings and ideas will not be accepted. Explain the Nature of Illness
Never argue with the patient when he relates Many doctors do not explain anything about
what may appear to be irrelevant, but which is the nature of illness, severity, causative factors,
apparently important to the patient. treatment outcome and risks. Patients may
have many misconceptions about the causes
Avoid Emotional Reaction and treatment. These false beliefs need to be
Patient should be given freedom to express addressed and rectified in order to enhance
their resentment and anger. This will enhance treatment compliance. For example, a patient
adherence to treatment and follow-up visits. of anxiety neurosis presents to a physician
For example, patient says, “I have been complaining of palpitation, which he believes
following your advice since a month, but to be due to a heart disease. He is examined
I don’t feel any better.” Doctor might say, and prescribed medication (for anxiety)

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120  Section 4: The Practice of Family Medicine
without any information about the nature of prejudice and without any aura of superiority,
illness. Patient will go back with a firm belief seniority or appearing to be more competent
that he has a heart disease. than the principal doctor, and subsequently refer
the patient back to the principal doctor, with
Be Clear and Discreet suitable suggestions, preferably in confidence.
Be clear and discreet when discussing possible
diagnosis, keeping the interest of the patient in Relatives and Friends
mind, without alarming or frightening him. It Unknown to the doctor coming in contact
is useful to be cautious and be guarded in what for the first time with the patient, there
should be revealed at every stage of the disease, are concerned friends and relatives in the
pending the outcome of investigations. The background. These people do not normally
doctor must keep in mind the mental state appear in the beginning but decent soon after
of the patient, the gravity of the findings, and their patient gets serious. They then have a
wishes of the next of kin. barrage of questions—why did it happen; will
the patient survive, etc. It is important for the
Avoid Presenting Yourself as an doctor to appreciate the influence and the
Embodiment of Noble Profession interest that these relatives and friends have
on the patient, and treat them with respect,
Avoid presenting yourself as an embodiment
while taking pains to answer their questions,
of noble profession and giving the impression
however irrelevant or exasperating they may
that the patient has finally reached to the
be. Ambiguous or deliberately misleading
ultimate healer.
information may afford short-term benefits
while things continue to go well, but denies
Confidentiality individuals and their families opportunities
Medical confidentiality is a traditional and to reorganize and adapt their lives toward the
an integral requirement of doctor-patient attainment of more achievable goals, realistic
relationship. Central to this principle is the hopes and aspirations. As Hippocrates states,
preservation of the dignity, privacy, and “I think the best physician is the one who has
integrity of the patient. The physician’s duty the providence to tell to the patients according
to maintain confidentiality extends from to his knowledge the present situation, what
respect for the patient’s autonomy. When a has happened before, and what is going
third party seeks medical information, such to happen in the future.”8,9 In the event of
requests should only be entertained on the unforeseen eventualities in the course of
explicit written consent of the patient or the patient management, it is this pleasant and
next–of–kin. cordial line of communication that will most
often see the doctor through the crisis.
Referrals
The doctor should himself be prepared to Non-verbal Aspects
initiate a referral to a colleague for a second These are as important as verbal messages.
opinion when situation demands. The doctor The physical appearance of the doctor, in the
must make the patient understand clearly that way of dressing, grooming, and presenting in
this is being done at the patient’s interest to terms of cleanliness and personal hygiene,
clarify areas of doubt. The doctor, giving the are to the patient as important as the doctor’s
second opinion must convey the same without manners, confidence, and general composure.

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Chapter 13: The Physician-Patient Relationship 121

The doctor’s body gestures, voice tone and Ending the Physician-Patient
volume, facial expressions, eye contact, Relationship11
simplicity and good humor convened by a
Physicians enter into the physician-patient
smile or an empathetic laugh have their place
relationship with a commitment to provide
in the art of consultation. To the person who
their patients with quality service. However,
is entrusting personal life and health, or that
when circumstances affect the physician’s
of his loved ones, these aspects of external
ability to achieve this, he/she may decide to
presentation are manifestly as important as
end the physician-patient relationship. In
the doctor’s intrinsic qualities and personal
some cases, it may be the patient who decides
capabilities…“for in the patient’s perspective,
to end the physician-patient relationship.
the image of the doctor is cast in the mould of
physical and moral perfection.”
Situations which may Result in a
Decision to End the Physician-Patient
Closure Relationship
Before leaving the patient, the doctor should ™™ Breakdown of trust and respect between
carry out the following acts of closure: the physician and the patient. This may
™™ Ask the patient if there is anything else to occur when there has been:
add or to ask. This is especially important ƒƒ Patient fraud, such as for the purpose
in individuals presenting with chronic of obtaining narcotics or other drugs;
undifferentiated symptoms without ƒƒ Serious threat of harm to the physician,
significant physical findings. A patient staff and/or other patients;
may present with symptoms, such as ƒƒ Other forms of inappropriate behavior
tiredness, lack sleep or appetite, which toward the physician, staff and/or other
may represent as a camouflaged, disguised patients;
or hidden presenting symptom for the ƒƒ A conflict of interest that compromises
real psychosomatic, behavioral, inter- the physician’s duty to put the interests
personal family conflicts, sexual, or drug of his/her patients first;
related problems. Poor self-esteem, fear ƒƒ A communication breakdown that makes
of malignancy or some other medical it impossible to provide quality care.
catastrophe are just some of the reasons ™™ The physician’s practice has become too
patients present to doctors. Unless the doctor large to manage, resulting in increasing
is sensitive to the patient’s needs and listens pressure on both physicians and patients.
emphatically, and provides an opportunity to
communicate freely, these “hidden agenda” Situations where it is Inappropriate
are likely to be missed by the doctor. As John for a Physician to End the Physician-
Murtagh states, “The bottom line is that Patient Relationship
patients are often desperately searching for ™™ The patient chooses not to pay professional
security and we have an important role to fees or annual fee
play in helping them.”10 ™™ Prohibited by the Human Rights Code
™™ Ascertain that any expectations on the ™™ As outlined in the regulation on pro­
part of the patient have been clarified and fessional misconduct
attended to, and ™™ The patient chooses not to follow the
™™ Thank the patient for cooperation. physician’s treatment advice

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122  Section 4: The Practice of Family Medicine
™™ The patient requires urgent or emergency patients’ perspectives. Br J Gen Pract. 2009;
services not otherwise available. 59(561):e116–33. [PMID: 19341547: Free PMC
Ending the physician-patient relationship Article].
will usually have significant consequences for 2. Harrison’s Prin. Of Int Med, 16th edn. vol.1: 1.
the patient, as he/she will need to find another 3. Herring B, et al. Using HMOs to serve the
health care provider. Medicaid population: what are the effects
Therefore, physicians should always on utilization and does the type of HMO
carefully evaluate any decision to discontinue matter?Health Econ. 2011;20(4):446–60. doi:
10.1002/hec.1602.[PMID:21394815:Abstract].
care and should use reasonable efforts to
resolve any issues affecting the relationship 4. General Medical Council-Good Medical
Practice: Doctor-patient partnership. Web site:
with the patient prior to any final decision.
Reasonable efforts include discussing with the Gmcuk.org/guidance/good_medical_practice/
relationships_with_patients_partnership.asp
patient, when possible, the reasons affecting
(Accessed on 13-10-2011).
the physician’s ability to provide quality care
5. Parchman ML, et al. The patient-physician
and/or the elements that are necessary for an
relationship, primary care attributes, and
effective physician-patient relationship.
preventive services. Fam Med, 2004;36(1):22–7.
[PMID: 14710325: Free Article].
Conclusion 6. Sans-Corrales M, et al. Family medicine
While historically doctors have bound attributes related to satisfaction, health and
themselves by codes of conduct, the society’s costs. Fam Pract, 2006;23(3):308–16. Epub 2006
concepts of health care and its delivery systems Feb 3. [PMID: 16461452: Free Article].
are rapidly changing. It is, therefore, important to 7. Botelho RJ. A negotiation model for the
codify, define, and recognize the privileges and doctor-patient relationship. Fam Pract, 1992;
rights of both the patient as well as the doctor. 9(2):210–8. [PMID: 1505712: Abstract].
While making such efforts, the doctor- 8. Fallowfield LJ, et al. Truth may hurt but deceit
patient relationship must be based on hurts more: communication in palliative
care. Palliat Med, 2002;16(4):297–303. [PMID:
humanistic approach, faith, and confidentiality,
12132542: Abstract].
and should not be allowed to erode; rather
9. Harrison’s Prin. Of Int Med, 14th edn. vol.1: 5.
it should be strengthened by making it a
10. John Murtagh. In: Safe diagnostic strategy:
partnership and collaborative effort to achieve
General Practice. 1996. McGraw Hill Book Co.,
cooperation of the patient and his relatives on
Sydney: 104.
one end and the highest proficiency from the
11. Ending the Physician-Patient Relationship.
doctor and benefits of institutions on the other.
Web site:
http://www.cpso.on.ca/policies/policies/
References default.aspx?id=1592&terms=termination+o
1. Ridd M, et al. The patient-doctor relationship: f+doctor+patient+relationship (Accessed on
a synthesis of the qualitative literature on 14-10-2011).

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14 Balint Group

“The core of every illness, physical as well as psychological, has a fundamental


wound—a struggle of inner conflict which seems insurmountable and which can generate
bitterness and rage, and the loss of the will to live...”
—Michael Balint

Introduction difficult patient-physician relationships and


complicate medical treatment.3
Psychological disorders are highly prevalent Thus, in order to initiate prompt diagnosis
in general practice, although frequently and treatment of psychological disorders, there
unrecognized and untreated, and may present is considerable emphasis being placed on the
as either a primary disorder or as a comorbid capacity of family doctors to recognize and
condition.1 Anxiety and depression can mimic deal with psychological difficulties.4-6
physical symptoms of comorbid illnesses, such Certain techniques such as active listening,
as diabetes, coronary artery disease, stroke, using open questions and emotional words,
cancer or their treatments, and consequently responding appropriately to patients’
emotional distress may not be detected. Many emotional cues, and a patient-centered
patients in general practice may not reveal consulting style can assist in detection of
emotional issues to their general practitioners psychological disorders. Screening tools for
(GPs) as they believe it is not a GPs role to psychological distress and patient question
help with their emotional concerns. The prompt sheets administered prior to the
prevalence of borderline personality disorders consultation can also be useful.7
(BPD) in primary care is higher than that One method that has proved particularly
found in general community studies. Despite helpful for doctors to reflect upon their style of
availability of various pharmacological and relating to patients, to transform uncertainty
psychological interventions that are helpful and difficulty in the doctor-patient relationship
in treating symptoms of BPD, and despite into a greater understanding and meaning
the association of this disorder with suicidal that nurtures a more therapeutic alliance
ideation, comorbid psychiatric disorders, between clinician and patient, to gain a deeper
and functional impairment, BPD is largely understanding of patient’s psychological
unrecognized and untreated.2 These findings needs, thus facilitating the understanding and
are important for the primary care physician, management of difficult cases and increasing
because unrecognized BPD may underlie work satisfaction is the “Balint Group”.

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124  Section 4: The Practice of Family Medicine
Historical Origins8 and the methods of dealing with them. He
felt that a “group setting” in which GPs could
Balint groups* take their name from their
learn from each other, where each would bring
originator, Michael Balint, a Hungarian
clinical material for discussion, and where the
psychoanalyst and biochemist (1896–
doctors’ ways of working could be highlighted
1970), who along with his wife Enid, also
and examined was the best way to achieve
a psychoanalyst, worked in the Tavistock
these aims. The support mechanism afforded
Institute of Human Relations, UK, with a group
by Balint groups was therefore timely.
of social workers and psychoanalysts on the
Thus, Balint groups were developed by
idea of investigating marital problems. Michael
psychiatrist Michael Balint—who worked
Balint became the leader of this group and
with GPs in London in the 1950s—to meet
together they developed what is now known as
the specific and unique needs of GPs. Since
the “Balint group”. The first group of practicing
then, the Balint group method has continued,
physicians was established in 1950.
developed, and become internationally
The situation postwar in England has
recognized, with an International Balint
been described in terms not dissimilar to
Federation and groups and societies in many
our own today—one of high demand for
countries.9
mental health services and a shortage of
mental health resources. Many had served
in the armed forces and those that entered Balint Groups
or resumed general practice met a set-up “Perhaps the essence of Balint Groups has
immeasurably less sophisticated than today. always been to share experiences and enable
Working single-handed was the norm rather people to observe and rethink aspects of their
than the exception, and there was little relationships with patients and their work as
support from nurses, counsellors or deputizing doctors.”
services. GPs were being called upon to offer The Balint group is a group method of
assistance to large numbers of patients with training doctors, generalists or specialists, in
psychological problems and were not feeling the doctor-patient relationship. It consists
equipped to do so. of 6–12 doctors with 1–2 leaders and it meets
In this context, Michael Balint was asked regularly. Meetings usually last for 1–2 hours
to provide mental health training for GPs. His and the group continues for 1 or more years.
original plan was to train doctors to handle The method is that of case presentation without
basic mental health problems by using notes. A doctor reports, as spontaneously as
traditional methods of medical education– possible, a case from his practice that poses
lectures, tutorials, and case presentations. a problem. Participants and leaders then
However, he soon became dissatisfied with help the presenter, by means of associations,
this approach. He realized that problems questions, and interpretations, to elucidate
presenting to specialists like himself were the difficulties in the presenter’s relation with
different from the “undifferentiated illnesses” the patient. The aim is to sensitize the doctor
presenting to GPs, and he believed that the to transference and counter-transference in
only way to acquire the necessary clinical skills the “retroactive action” of the consultation, to
was through experience, and reflection upon it, give the doctor psychotherapeutic qualities,
learning to recognize the difficulties involved and thus to achieve a “considerable though

*Ref. Appendix 5A (Ref. p. 399-401) and 5B (Ref. p. 402)

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Chapter 14: Balint Group 125

limited change in the doctor’s personality to become sensitized to the effects of emotional
enable the doctor to better understand and factors and personality types on the doctor-
help patients.” 10 patient relationship; and to continuously
define their role as family physicians in the
Balint Training context of exploring with colleagues a variety
Balint group training is a well-developed of challenges (Table 14.2).
method of understanding the doctor-patient Balint group discussion stimulates
relationship and learning the therapeutic its members to examine their individual
possibilities of communicating skillfully with approaches and circumstances and explore
patients. alternative ways of responding. This method
The participants bring problem cases for is not a doctor therapy group, nor is it a
discussion with their colleagues. Exploring didactic seminar. The role of the group leader
these cases in depth is the principal method. is not to teach “content” or give advice, it is
The agenda for discussion at each meeting will rather to stimulate the participants to gain a
be formed by the cases which the participants greater understanding of the doctor/patient
bring for discussion. Common and assorted relationship and to expand their repertoire for
categories of issues are invited for discussion handling difficult situations.
(Table 14.1).11 These are regarded as problems Above all, the outcome of Balint training
when they impede the successful management is a synthesis of cognitive and affective
of the patient and patient care, or interfere processing that leads the physician to a more
with the degree of comfort the physician precise, empathic and practical understanding
experiences in practice as a family physician. of doctor/patient interactions and difficult
The extended group discussions create an patients. The physician learns to be more
ongoing learning environment. This process therapeutic in his or her relationship with
provides physicians with an opportunity patients while, equally importantly, learns
to repeatedly explore and validate their a framework within which to view patients
perceptions of the emotional factors that and practice that leads to less frustration,
play a role in illness or interfere with their dissatisfaction with practice, and burnout
successful management of the illness; to (Table 14.3).
Table 14.2  What happens in a Balint group?
Table 14.1  Common cases in Balint groups
• The leader asks “Who has a case?”
• Patients with psychosomatic symptoms • The presenter who volunteers tells the story
• Patients with both physical and psychological of a consultation, this is not a standard case
problems presentation, but a description of what happened
• Difficulties in doctor-patient interaction between the doctor and the patient.
• Difficult situation involving third party such as • It need not be long, complicated or exciting
family member, insurer, employer, social services but something that is continuing to occupy the
• Patients with mental health problems presenter’s mind. It may be puzzling, or has left
• Non-compliance the presenter feeling angry, frustrated, irritated or
• ‘Heartsink’ patients sad.
• Multiple referrals • The group discusses the relationship between the
• Demanding patients doctor and patient and tries to understand what
• Child abuse is happening that evokes these feelings.
• The feelings which the patient evokes are
• Drug seeking behavior
significant and may be reflected in the presenter
• Life-threatening illness
or in the group. This facilitates the understanding
• Dying patients of the patient.
• Bereavement All discussions within the group are confidential.

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126  Section 4: The Practice of Family Medicine
Table 14.3  What can a Balint group do? ranks diseases (and therefore also patients)
• It provides an opportunity for doctors to reflect on in an order of supposed importance. In this
their work, ranking, psychological problems are often
• It can provide an outlet for anxieties and
ranked lower and considered less important
frustrations generated by their work,
• It can arouse a doctors’ interest in patients whom than physical diseases.13,14
they have previously found This ranking methodology often results in
• upsetting, annoying or “difficult”, the referral of difficult-to-diagnose patients
• It can open minds to other possibilities, both of
diagnosis and day to day management, to a specialist. While providing relief for the
• The group provides support and improves GP, this action, Balint showed, could lead
communication with patients and other professionals, to a “dissipation of responsibility” such that
and
• It can improve job satisfaction, the patient’s
important clinical decisions were made
perception of care and help to prevent burn-out. without anyone openly taking responsibility,
and no one taking responsibility for the “whole
patient”—what Balint called a “collusion of
Balint Discoveries anonymity”—created by the involvement
Michael Balint published the results of the of multiple specialists where no one doctor
earlist Balint groups in 1957 in his landmark carried overall responsibility.
book entitled “The Doctor, his Patients and the Clinical enquiry is often superficial and
Illness.”12 Some of the key findings are as follows: diagnosis simplistic. Balint introduced the idea
of “levels of diagnosis”, whereby doctors were
The Doctor as Therapy encouraged not to make just a physical diagnosis,
but to consider what else might be going on, and
By far the most frequently used “drug” in general
to make a “multiaxial” diagnosis.*
practice was the doctor himself. Balint coined the
Balint group is specifically focused on
term “drug doctor”, focusing attention on how the
uniqueness of the general practice setting so
doctor-patient relationship may be therapeutic
familiar to GPs: symptoms which are not part of
or have adverse effects. A good communication
a recognized disease entity, complex mind-body
and teamwork spirit between the doctor and
interactions, difficult patients whom specialists
the patient leads to more accurate diagnosis,
can’t help, time constraints, and patients
better response to treatment, and rapid recovery.
who don’t comply with treatment. The Balint
Patient satisfaction is high and takes more
approach focuses on these types of difficulties
responsibility for improving their health. Balint
rather than on specific diagnoses, seeking to
proposed that the doctor had a “placebo” effect,
understand the meaning of a patient’s behavior
meaning “I please you’—the pleasing aspects of
and symptoms. Without this understanding,
the doctor’s relationship works for the patient’s
there are many patients who are difficult to
well-being.
help. Conversely, there are many patients
who, with this understanding, are ideally
The Diagnostic Process—Multiaxial helped in a general practice context with its
Diagnosis* advantages of continuity of care, integration of
Doctors commonly have a fairly rigid protocol the psychological and the physical, and the GPs
for making a diagnosis, one that implicitly knowledge of family and community.

*Multiaxial diagnosis using the DSM IV consists of five axis models, designed to provide a comprehensive
diagnosis that includes a complete picture of not just acute symptoms but of the entire scope of factors
that account for a patient’s mental health. (Ref. web site - http://mh4ot.com/2012/10/16/multi-axial-
diagnosis-using-the-dsm-iv/. (Accessed on 06-04-2015)

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Chapter 14: Balint Group 127

By including features of the patient’s doctor expects of them and this determines the
personality, relationships with family way in which they seek care and relief when
members and others, the resulting overall distressed.
diagnosis provides a more embracing Furthermore, when a stressed patient first
overview of the individual’s physical and presents, their complaints are often physical, ill
emotional conditions. It has greater ongoing defined, and not yet “organized”. What a doctor
validity in description and of usefulness for does in this situation is critical in shaping the
treatment by centering upon the patient as an subsequent course of events.
individual whose conflicts and sufferings are Patients often present various complaints
felt and understood. It may require lengthy and the doctor has to analyze them legitimately.
interviewing, but this may be shortened in If the doctor misses the underlying distress
practice by focusing upon the particular aspect and the complaint for what it is—an appeal for
of the patient’s world which seems central to care—there is a risk of creating an “illness.” The
the pathology.15 doctor’s capacity to be in touch with the distress
is crucial. A premature diagnosis can be hard
Advice and Reassurance to shift and may leave patients not getting the
G e n e ra l p ra c t i t i o n e r o f te n re s o r t t o help they need. And as Balint quoted, “a great
“commonsense” advice, or at other times number of people have lost their roots and
reassurance. Although, there may be nothing connections... the individual thus becomes
wrong with such interventions, the fallacy more and more solitary, even lonely... any
behind them is the belief that , “an experienced mental or emotional stress or strain is either
doctor had acquired enough well proved accompanied by, or tantamount to, some bodily
‘commonsense’ psychology to enable him sensation... one possible outlet is to drop in to
to deal with his patient’s psychological or one’s doctor and complain... and it is here, then,
personality problems even without attempting that the doctor’s attitude about how to prescribe
a full diagnosis.” While reassurance can at himself to the patient becomes decisive.”16
times be beneficial, it is often inadequate and “The opposite danger however, is also
administered prematurely. present. The doctor might be tempted to brush
aside all physical symptoms and make a bee-
Influence of the Doctor on the line for what he thinks is the psychological
Diagnosis root of the trouble. This kind of diagnostic or
therapeutic method means that the doctor
Doctors commonly believe that their approach
tries to take away the symptom from the
to patients—the customary stepwise diagnostic
patient and at the same time to force him to
process—is purely to make a correct diagnosis
face up consciously to the painful problems
and does not of itself influence the patient. The
possibly causing it. In other words, the patient
research of the Balint groups contradicted this.
is forced to change his limited symptoms back
Balint showed that GPs had very individual
into the severe mental suffering which he
attitudes to patients, expectations of them
tried to avoid by a flight into a more bearable
and ways of dealing with them—ways shaped
physical suffering.”16
by their personalities and beliefs. These could
include a belief of how much suffering a
patient should endure, or a moral stance about The Doctor-Patient Relationship
psychological problems or the meaning of Although, Balint’s early groups began by
pain. Patients become educated to what their exploring the problems with which patients

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128  Section 4: The Practice of Family Medicine
presented and the diagnostic process role of GPs in counseling. Patients will return,
undertaken by the doctors with a view to and psychological work can continue at a pace
incorporating psychological techniques into determined by the patient.
general practice, the focus came more and more Thus, Balint came to see the doctor–
on the quality of the doctor–patient interaction. patient relationship (consultation style) as
Knowledge about diagnosis and treatment the most potent, and most often prescribed,
is necessary but not sufficient for good clinical therapeutic tool. What makes for a good
practice. Because a Balint group is specifically doctor–patient relationship, and how its
focused on general practice, it takes seriously therapeutic effects can be maximized and
the uniqueness of the general practice setting adverse effects minimized, became the central
which creates the particular challenges so question and focus of Balint groups.
familiar to GPs: symptoms which are not part
of a recognized disease entity, complex mind- Conclusion
body interactions, difficult patients whom Balint groups are an effective way for GPs to
specialists can’t help, time constraints, and think about their work in a way that leads to
patients who don’t comply with treatment increased self-efficacy and reduced strain.
The Balint approach focuses on these types of An essential aim of the Balint approach is to
difficulties rather than on specific diagnoses, increase the confidence, competence and
seeking to understand the meaning of a satisfaction of the GP in his/her ordinary
patient’s behavior and symptoms. Without work—to feel more at ease with patients
this understanding, there are many patients and with themselves as doctors, so that they
who are difficult to help. Conversely, there are can help their patients more constructively
many patients who, with this understanding, and with less stress. “With expanding breath
are ideally helped in a general practice with and depth of scope of family practice, how
its concept of continuing relationship with are young family physicians to distill for
patients, families, and community. Over time, themselves a realistic and personal role as
the relationship builds with every experience family physicians? Balint groups are one venue
shared—be it an experience of uncertainty, in which the family physician may explore and
frustration, or satisfaction. Balint likened it to experiment with role clarification in the quest
a “mutual investment fund.”* Every encounter of a more humane and effective practice.”17 No
builds the investment. A further characteristic attempt is made to reconstruct the doctor, but
is the variety of forms the doctor–patient to help them to use their capabilities to the
relationship can take. The doctor can be best advantage. Many GPs grow personally
consulted for a range of problems, see other and professionally as a consequence of their
members of the family, or do a home visit. participation in a Balint group, and become
This intimate yet varied knowledge means that more effective and content in their work. These
patients have many opportunities to discuss outcomes are most needed to deal with the
issues of a psychological nature. This special increasing burden of psychological problems
relationship is relevant when we consider the in general practice.

*The mutual investment fund—All the shared experience and trust that doctor and patient accumulate
over many years in general practice can be used to encourage patients to try interventions which previously
they would not have considered.

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Chapter 14: Balint Group 129

References 8. Clarke D, et al. Balint group-Examining the


doctor patient ralationship. Aust Fam Phy.
1 Ansseau M, et al. High prevalence of mental
2002;31(1):41–4.
disorders in primary care. J Affect Disord. 2004;
9. Web site - http://www.balintinternational.
78(1):49–55. [PMID: 14672796: Abstract].
com/membercountries.html (Accessed on
2. Nock MK, et al. Cross-national analysis of the
15-10-2011).
associations among mental disorders and
10. Balint, Michael. (1957). The doctor, his patient,
suicidal behavior: findings from the WHO
and the illness. New York: International
World Mental Health Surveys. PLoS Med.
Universities Press.
2009; 6(8):e1000123. Epub 2009 Aug 11. [PMID:
19668361: Free PMC Article]. 11. Balint groups—An Australian perspective.
3. Sansone RA, et al. Borderline personality: a We b s i t e : h t t p : / / w w w . r a c g p. o r g . a u /
primary care context. Psychiatry (Edgmont). Content/NavigationMenu/PracticeSupport/
2004;1(2):19–27. [PMID: 21197375: Free PMC Consultingskills/BalintGroups/default.htm
Article]. (Accessed on 15-10-2011).
4. O’Connor EA, et al. Screening for depression 12. Balint M. The doctor, his patients and the
in adult patients in primary care settings: a illness. London: Pitman Medical, 1957.
systematic evidence review. Ann Intern Med. 13. Klapow J, et al. Psychological disorders and
2009;151(11):793–803. [PMID: 19949145: distress in older primary care patients: a
Abstract]. comparison of older and younger samples.
5. Pignone MP, et al. Screening for depression in Psychosom Med. 2002;64(4):635–43. [PMID:
adults: a summary of the evidence for the U.S. 12140354: Free Article].
Preventive Services Task Force. Ann Intern 14. Jackson JL, et al. Outcome and impact of
Med. 2002;136(10):765–76. [PMID: 12020146: mental disorders in primary care at 5 years.
Free Article]. Psychosom Med, 2007;69(3):270–6. Epub 2007
6. Verhaak PF, et al. Patients with a psychiatric Mar 30. [PMID: 17401055: Free Article].
disorder in general practice: determinants of 15. Clyne MB. The doctor-patient relationship
general practitioners’ psychological diagnosis. as a diagnostic tool. Psychiatry Med. 1972;
Gen Hosp Psychiatry. 2006;28(2):125–32. 3(4):343–55. [PMID: 4679752].
[PMID: 16516062: Abstract]. 16. Dr. med. Heide Otten. Balint work leads to Psy­
7. Ryan H, How to recognize and manage chosomatic thinking and is an advantage to the
psychological distress in cancer patients. Eur well-being of patients and doctors. Vienna, 2002.
J Cancer Care (Engl). 2005;14(1):7–15. [PMID: 17. Johnson AH. The Balint Movement in America.
15698382: Abstract]. Fam Med, 2001;33(3):174–77.

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15 DESIGNING A PATIENT-
FRIENDLY PRACTICE

“Designing a patient-friendly practice doesn’t have to


cost you a lot of money or time or cause you a moral dilemma. It is simply a means
for letting patients know that you are willing and able to care for them.”

Introduction the dangers that can result from the health-


care environment. This report, fueled by the
Family physicians (FPs) and general
need for new facilities to be constructed, led
practitioners (GPs) in the 21st century are
to an explosion of research that now links
facing great challenges. The expectations
the physical structure and design of health
of patients, the interest of stakeholders,
care facilities to the health and well-being of
the media, the impact of new information
patients, nurses, other health care workers,
technology, and with the entry of healthcare
and visitors. This report implicated three major
management organizations, insurance
categories of outcomes that have an impact
companies, and the threat of corporate multi-
by evidence-based design: stress reduction,
specialty hospital practice looming large on
safety, and overall health care quality and
the horizon, family physicians and general
ecology.2
practice is truly at a crossroads.
Therefore, GPs have to bear in mind
However, GPs must adapt and grow to
the requirements of patients—to build and
meet new challenges. To bring about a radical
maintain their physical aspects* of practice
change in the quality, organization, and
to cater to their needs, and develop practice
delivery of services, general practices need to
activity, philosophy and culture that satisfy
redefine their roles.
the desires of patients and staff who work in
The vast majority of GPs believe that
office. By developing such a culture, GP can
they can achieve excellence in their practice
build, support and maintain the practice style
when they have developed the optimal mix of
they prefer, even in the face of competition.3
knowledge, experience, skills, attitudes, and
effective consultation techniques. Unfortunately,
what many GPs appear to forget is that the Objectives to Redesign
consultation, the very heart of their clinical Evidence shows that for GPs to provide high
practice, happens within a physical space.1 quality general practice, including quality
Further, a 2001 Institute of Medicine report of the interpersonal relationships between
captured the nation’s attention regarding the people involved, and the quality of the

*In a general practice, “physical aspects” includes the building and its site, all of the rooms and spaces in
the building, and all of the physical components in these rooms and spaces.

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Chapter 15: Designing a Patient-friendly Practice 131

amenities needed to provide such care, clinic directly affect the way the doctor and staff
practice nurses, practice managers and interact with patients and their families. At the
other practice staff are valuable resources. end of the day, it also has an influence on one’s
Further, the provision of quality care must productivity, physical and mental well- being. It
be supported by appropriate infrastructure, is a good reason, therefore, to be very methodical
such as telecommunications, information and careful about its functionality and décor.
technology, clinical technologies (such as To plan a clinic effectively, the designer
those used in pathology and other diagnostics) should have a thorough understanding of the
and other facilities relating to architecture, functional and aesthetic requirements of the
reception, accessibility, and communication. client, followed by an in-depth evaluation
Some evidence also suggest that patients of the possibilities and constraints of the
differentiate doctors on the basis of their given space. Before doing anything to change
manner, style of punctuality, location of office’s design, it’s important to plan how to
consulting rooms, attitude of reception staff, make office processes more efficient, cost-
ambience and caring atmosphere.4,5 effective, and patient-friendly. Without this
In view of the above patient-specific and conceptual foundation, ones approach to
rewarding criteria, it is essential that the physical redesign may end up in an outmoded
traditional physicians’ need to offer more and wasteful exercise.
than their competitors for their survival. “In A clinic should ideally have enough space
today’s medical marketplace, patients see not merely to seat its patients, but to locate
themselves as consumers of healthcare with ancillary and support services—from the
certain customer-service expectations. The stately reception counter to the humble pantry.
medical practice that is indifferent or resistant In addition, it should provide for circulation
to these changes is at risk. Having a good and free movement between these areas with
understanding of “patient-friendly changes” adequate access to stairs and fire escapes.
can help a practice survive in a changing When planning a given space, it is important
environment. A patient-friendly office will to conceive a long-term master plan, keeping in
continue to meet the needs of the patient by mind planned growth and future requirements,
adopting this new practice style.”6 even if the intention is only to implement part
One of the many approaches to achieve of the plan now and execute the rest as need
patient satisfaction is to build “patient-friendly arises. The master plan would ensure that what
practice”, incorporating therein an aesthetic is installed now will not have to be dismantled
architecture with administrative facilities, or relocated when new developments take
which facilitate improved communication, place. This would help eliminate wastage of
maintain hygiene and easy accessibility. material and labor.
Operationally, service-excellence initiatives
will have a profound impact on patient The Waiting Room and Reception
retention and new referrals, and possibly a
Creating a comfortable, practical waiting room
reduction of litigious risks. 7
is a science unto itself. Many patients tend to
judge doctors by the quality of doctor’s waiting
Designing the Clinic room; therefore, a clean, well-organized front
The clinic is the place where the doctors spend desk and reception area will go a long way
a significant portion of their working life. The toward creating a positive impression and
working conditions and the environment in the making patients feel comfortable.

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132  Section 4: The Practice of Family Medicine
Patients should see the receptionist that are updated periodically is beneficial to
counter as soon as they come in, so they don’t all visitors.
feel lost. In turn, the receptionist should be
able to see all patients no matter where they’re The Consultation Room
seated, so nobody is forgotten.
It should be roomy, neat and tidy, soothing to
The front desk should be configured to help
the eyes and pleasant to the nose.
receptionist efficiently perform duties. Various
stationery items repeatedly used should be The examination table and the doctor’s
readily available. Computers must be suitably desk and chairs should be arranged in a way
placed so that its screen is not visible to anyone that facilitates free communication and proper
but the staff. The reception telephones should physical examination. A curtain, which can be
be closely set with the conversation not audible drawn across to provide privacy is an essential
to those waiting. A separate telephone may be requirement. Soundproofing is essential for
dedicated totally for the use of patients for their patients’ trust in the confidentiality of the
urgent needs. Availability of fax and photocopy practice.
equipments to copy insurance cards, driver’s It is acceptable to display certification or
license, referral letters, lab reports, etc. will scrolls of recognized medical degrees and
further enhance efficiency and fool proof diplomas in the consultation room so that the
documentation. The station responsible for patient is fully aware of the credentials of the
collecting payments should have a cash drawer doctor.
and credit card machine available. Clinical equipment should be in good
Furnishings should convey affluence, but working condition and clean and neatly
not opulence. Patients appreciate adequate arranged.
seating, comfortable ambient temperature, A sink and a clean hand towel within reach
and something to occupy while they wait. They will reflect a hygienic practice.
also do not wish to be infected while waiting; The presence of a computer screen appears
patient and receptionist education about not to daunt a majority of patients. Patient
separating children and adults from possible acceptance of computer use in medicine is, in
infectious diseases helps enhance the doctor’s general, quite good. In addition, no consistent
reputation as a healthy practice. decrease in perceived quality of care or increase
The practice waiting room and its in physician-patient indiscrimination was
facilities need to be visibly clean, tidy and identified as a consequence of such computer
well maintained. It should be illuminated use. It was also noted that computer use by
sufficiently for casual reading. A few simple physicians during clinical encounters does
paintings, photographs, health education and not increase post-consultation patient stress.8
health promotion posters add to the general However, when entering data in the computer,
pleasantness of the room. A separate place the physician is not making an eye contact
for storing safe drinking water accessible to all with the patient or observing the patients’ body
patients should be provided. This is very much language, which clearly decreases the quality
desired by patients when there is a long waiting of overall encounter. Further, some studies
at the clinic. One may also provide soothing indicate that while computer use by physicians
music and/or a TV which help patients their during clinical consultations may have an effect
waiting bearable. A notice board, placed upon many areas of the physician-patient
prominently, displaying important events, relationship (e.g. confidentiality), the individual

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Chapter 15: Designing a Patient-friendly Practice 133

personalities of the physicians involved appear They must be efficient and be able to prioritize
to play an even greater role.9 patients and their problems, so that the doctor
will be able to see more ill patients earlier.
Staff
The front-office staff and the reception area Greeting Patients—Checking-in
represent the first and last impressions that and Checking-out
patients will have of a practice on any given visit.
A friendly, attentive receptionist can reduce
These impressions endure, and in many cases
the anxiety of a doctor’s appointment.
they shape the patient’s perception of the doctor.
Be the first to say hello. Everyone in the
It’s therefore critical to the success of doctor’s
practice should take the initiative in greeting
practice that these be good impressions.10
patients. Use the patient’s name whenever
Besides being knowledgeable about the entire
possible, maintain ‘eye contact’ while speaking
working of the office system, the doctor’s
and ‘listen attentively’ to patients.
schedule and the responsibilities of the other
staff, the front-office personnel should have The receptionist and/or staff should greet
the ability to project the specific image of the each patient by name. For new patients,
doctor’s working philosophy and culture* and an appropriate greeting could be: “Hello,
provide standards to support it, and it is vitally you must be Mr/Mrs ……….. I am .…… It’s a
important that these standards are maintained pleasure to meet you. The doctor will be with
and supported by the rest of the office team. you shortly. Please make yourself comfortable
They must also take care to avoid destructive in the reception area.” Greeting the patient
and disruptive behaviors and conditions such personally is preferable to a sign that says,
as noise, interference, excessive repetition, long “Sign in please and sit down.”
waits, appointment delays, and staff rudeness. Patients requiring special assistance
Staff should arrive at the office at least should be escorted to a seat in the reception
fifteen minutes before the first scheduled area and then to the examination room.
appointment. This is a good time to hold an The receptionist or the other staff should
informal staff meeting to discuss the upcoming politely verify the name, address, telephone
days appointment, open slots, special meetings, numbers, insurance coverage, referral letters,
emergency calls, potential problems, as well as previous health records, payment bills, etc.
reviewing previous day’s records. with the patients or their family members.
The day’s list of scheduled patients and Checking out also provides an important
appointment times should be prepared and impression for patients. It is everybody’s
kept ready for the receptionist as each patient wish that the patient leaves the office with a
arrives. The front desk staff should be ready favorable impression of the practice. Before
to turn their undivided attention to the first the patient leaves, ask if there is anything else
patient as he or she opens the door. you can do. Conclude the visit by thanking
The nursing staff must be neatly dressed, the patient and, if appropriate, relaying your
courteous and sympathetic in their handling concern for his/her wellbeing (“Thank you, I
of the patient and accompanying persons. hope you’ll be feeling better soon.”)

*Work culture is a combination of qualities in a doctor’s organization and office staff that arise from what is
generally regarded as appropriate ways to think and act. Work culture is the vehicle through which individuals
coordinate their activities to achieve common goals and expectations. (e.g. What are the organizations values?
How are decisions made? Which behaviors are encouraged? Which are prohibited? etc.)

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134  Section 4: The Practice of Family Medicine
If a follow-up appointment or referral letter Online Appointments and Consultation
is needed, it should be handled immediately. Some e-health portals are offering services that
Proper referral letters and telephone numbers permit patients to make their own appointments.
and directories should be provided if the If this option is employed, it is important to
patient has to be sent to a hospital or lab for ensure that those patients who do not have
tests. The staff should politely check with access to the internet have equal priority to
the patient that all payments are collected doctor’s appointments. Many e-appointment
as per the practice procedure and receipts systems have specific protocols (e.g. registration,
endorsed. An extra effort to arrange for instructions how to register, etc.) which need to
suitable transportation of needy patients and be read and agreed before any appointment is
a cheerful word of assurance and thank you is processed, and misuse or abuse of such facility
the hallmark of best health practice. can revoke ones access to such systems.
Because check-in and check-out process
have so many components, they need to be Recalls
reviewed and updated periodically. Regular
Providing recalls/reminders for follow-up of
staff meetings about the welfare of the staff,
patients’ prognosis of disease is an important
their views, resolving problems, changes in
aspect in healthcare practice. This can be done
insurance policies, updating health code
manually but may be time consuming. With
numbers, physician delays, and the like have
increasing use of computers, practices can
to be resolved within the practice policy. As
provide recalls for services like vaccination,
new problems arise, the entire staff can work
screening procedures, hypertension, diabetes,
on providing a solution.
Pap smear, etc.

Incorporating New Technology Build a Website


Patient Education A website is a great way to reach people
Patient education boosts patient satisfaction worldwide—24 hours a day, 7 days a week. A
and reduces medical errors. Besides the posters, website can give the right kind of exposure to
books, pamphlets and handouts regarding health doctor’s practice by incorporating therein every
information, we now have audiotapes, videotapes bit of information and services that are provided.
and CDs suitable for patients’ education. Even It therefore makes a very good marketing tool.
a suitable lending library with a deposit can The only thing to make sure is that the host
be set up. A card file kept in alphabetical order provides very good support system.
with relevant details entered facilitates to recall
precious resources when needed.11 Conclusion3
Increasing consumer activism has been a
Patient Information feature of last part of the 20th century. Patients
A computerized patient information system demand clinical and technical competence for
promotes clinical safety and cost containment. medical profession, but also highly rate quality
It allows interactive online consultations, clinical service and good interpersonal skills. Patients’
cross-checking, the production of computerized satisfaction has become central to many health
reports and schedules, fast response to laboratory services both in the private and public sector.
results, and safer drug administration, all of which The challenge now is to establish a
help improve the quality of care. partnership, which will work cooperatively

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Chapter 15: Designing a Patient-friendly Practice 135

to create the patient-friendly family practice. universal room design. Crit Care Nurs Q. 2006;
This will ensure not only our financial viability, 29(4):326–41. [PMID: 17063100: Abstract].
but also professionally satisfied doctors and 6. Dooley SK. The patient-friendly practice. J
patients who can take an active role in the Med Pract Manage. 2006;21(6):358–61. [PMID:
maintenance of their own health. 1683307: Abstract].
7. Lasserre C. Fostering a culture of service
excellence. J Med Pract Manage. 2010;
References 26(3):166–9. [PMID: 21243888: Abstract].
1. Ruga W. Your general practice environment 8. Legler JD, et al. Patients’ reactions to physician
can improve your community’s health. Br J Gen use of a computerized medical record system
Pract. 2008;58(552):460–2. [PMID: 18611310: during clinical encounters. J Fam Pract. 1993;
Free PMC Article]. 37(3):241–4. [PMID: 8409874: Abstract].
2. C e s a r i o S K . D e s i g n i n g h e a l t h c a r e 9. Garrison GM, et al. 21st-century health care:
environments: Part I. Basic concepts, principles, the effect of computer use by physicians on
and issues related to evidence-based design. J patient satisfaction at a family medicine clinic.
Contin Educ Nurs. 2009;40(6):280–8. [PMID: Fam Med. 2002;34(5):362–8. [PMID: 12038718:
19639918: Abstract]. Abstract].
3. Mann L, et al. Designing a consumer friendly 10. Hertz KT. Front office: asset or liability?
practice. Aust Fam Physician. 2001;30(3):241–4. MGMA Connex. 2004;4(9):2. [PMID: 15379207:
[PMID: 11301762: Abstract]. Abstract].
4. Beaton G. Marketing in medical practice. Aust. 11. Helwig AL, et al. An office-based Internet
Fam Phy. 1987;16(10):1506–9. patient education system: a pilot study.J Fam
5. Brown KK, et al. Impacting patient outcomes Pract. 1999;48(2):123–7. [PMID: 10037543:
through design: acuity adaptable care/ Abstract].

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16 COUNSELING SKILLS

“When we turn to one another for counsel we reduce the number of our enemies.”
—Kahlil Gibran

Introduction Counseling Interventions in


Now, at the dawn of the third millennium, Primary Care
non-communicable diseases (NCDs) are Since mortality and morbidity due to NCDs
sweeping the entire globe. 1 Today’s major continues to increase, their prevention at all
health problems are increasingly the result levels—primary, secondary and tertiary—
of NCDs such as cardiovascular diseases, requires a broad range of integrated, population-
ischemic strokes, chronic respirator y based interventions, as well as measures
diseases, diabetes and some cancers. 2, focused on individuals at high risk, including
3
Overweight and obesity are common the guidance and support from the physician.5,6
precursors and risk factors often called as Individuals and patients must take responsibility
lifestyle diseases—diseases of affluence or for following their day-to-day preventive
excess. That terminology suggests that people behaviors, report their progress to the physician,
adopt unhealthy habits—such as energy- and discuss health related problems. While
dense diets, smoking, and reduced activity physicians cannot fill all the educational needs,
level—from personal preference and related they can be pivotal in starting and guiding the
to individual’s behavioral patterns, and life- process.7 There is good evidence from high
long personal habits that have developed quality studies that physicians can change
through the processes of socialization. The patient behavior through simple counseling
latest World Health Organization data paints interventions in the primary care setting.8-14
a worrying picture. At present, out of every Several general points have emerged from
10 deaths in urban India, eight are caused by these and other studies of effective counseling
NCDs. In rural India, six out of every 10 deaths to change behavior, which can be incorporated
is caused by NCDs. Dr. Nata Menabde, WHO into strategies for effective patient counseling
representative to India, states, “Globally, with its subsequent impact in reducing mortality
60% of the deaths are now caused by NCDs. and morbidity from NCDs.15-17
Similar are the numbers in India. NCDs are
affecting the entire globe. If not controlled,
Counseling
they will become a tsunami that will not only
kill people but impair development and crash In the clinical context counseling can be
economies.”4 defined as—“the confidential therapeutic

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Chapter 16: Counseling Skills 137

dialog between a patient and a physician, Communication Technique


aimed at enabling the patient to explore the Attentive Body Posture and Languages
nature of his/her problem and take personal,
™™ Speaking audibly, clearly, and slowly
realistic decisions relating to health problems,
™™ Maintaining eye contact, but not staring look
in such a way that he/she determines his/her
™™ Nodding and other expressions to convey
decisions about what to do, without direct
understanding
advise from the councillor.” It enables the
™™ Reassuring by using terms,”I understand”,
patient to solve his/her problems—personal,
“Is it so?”
social, or psychological—through a special
™™ Asking effective questions
therapeutic relationship with the physician,
™™ Reflective listening—giving feed-back to
who provides contactual information,
the individual
education and psychological support and
™™ Identify feelings by statements, “I think you
allows patient to take decisions that facilitate
are upset/angry.”
coping preventing behaviors.
Counseling is concerned with individuals, Appreciate Use of Silence
couples, families and groups. Counseling ™™ Sometimes silence can mean more than
means choice, not force, not advice. A physician spoken words. It means the person needs
may think that his or her advice seems more time to understand and reflect
reasonable, but it may not be appropriate to information.
the particular circumstances of the patient
receiving the advice. With counseling, it is the Using a Language Person Understands
patient concerned who takes the decision so and Paraphrasing
that the solutions adopted are more likely to
™™ Use same language, avoid technical words,
be appropriate. An appropriate solution will be
and keep checking whether the person
one that the patient can independently follow
understands.
with successful results.
Thus, the basic aims of counseling include: Conveying Acceptance (being Non-
™™ To help patients gain an insight into the judgemental)
origins and development of emotional ™™ Make the person feel that intimate matters
difficulties, leading to an increased capacity can be discussed; being open minded for
to take rational control over feelings and discussion rather than opposing it.
actions, ™™ Conveying Willingness to help.
™™ To modify maladjusted behavior,
Effective Communication Pattern
™™ To assist patients to move in the direction
of fulfilling their potential, or achieve an ™™ Encourage the individual to talk
integration of conflicting elements within ™™ Give hope but do not give undue optimism.
themselves, and ™™ Listen to all facts
™™ To provide patients with the skills,
™™ Create an atmosphere where patient feels
awareness and knowledge, which will accepted and understood
enable them to confront social inadequacy. ™™ Guard against value and moral judgement.
In family practice, the counseling process is Qualities of a Good Counselor
based on the therapeutic effect of the doctor ™™ A good listener
and relies on effective communication skills. ™™ Emphathetic

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138  Section 4: The Practice of Family Medicine
™™ Non-judgmental physician has a responsibility in the continuing
™™ Emotionally mature management and follow-up of such cases. Areas
™™ Able to maintain confidentiality—able to requiring special counseling include:
discuss sensitive topics ™™ Any crisis situation, e.g. epidemic or pandemic
™™ Flexible. illness such as influenza-like illness.
™™ Bereavement and grief.
Errors of Counseling
™™ Terminal illness or palliative care, e.g.
™™ Giving advice.
malignancy, AIDS.
™™ Offering solution without listening or
™™ Marital problems, e.g. separation, divorce,
analyzing the problem.
infidelity.
™™ Moralizing—preaching good behavior.
™™ Chronic pain, e.g. cancer pain, neuropathic
™™ Making a person dependent, so that the
pain.
person can not take own decision or action. ™™ Sexual dysfunction, e.g. low sexual desire,
™™ Blocking emotions; not allowing the
sexual pain disorders.
person to express feelings and emotions. ™™ Domestic violence, e.g. battering, physical
™™ Imposing ones values or judgement.
aggression, humiliation.
™™ Interrogating—questioning like a lawyer,
™™ Sexual abuse/child abuse/elder abuse.
policeman.
Individual Counseling
Family Physician as an Effective
Individuals require counseling because they
Counselor18
are experiencing emotional difficulties such as
Family physicians can be effective counselors depression, anxiety, addiction, grief, traumas,
for the following reasons: low self-esteem, guilt, interpersonal problems,
™™ They have an intimate knowledge of the stress reactions and problems in living. The
family and the family dynamics. bottom line is that they are inflicted internally
™™ Their generalist skills and holistic approach and are in emotional pain. The aim of the
permit them to have a broad grasp of the counsellor in working with individuals is to
patient’s problems. enable them to find ways of living that reflect
™™ They are skilled at working as a member of their needs and values. The counsellor uses
a professional team and solicit their advice the interview for “therapeutic” purposes.
when necessary. When, through the interview, the individual
™™ They can provide continuing patient care is permitted to think aloud in the presence of
with appropriate follow-up treatment a sympathetic listener, it can give a clue to a
programs. number of problems of the individual.
™™ They can provide treatment/counseling in
comfortable and familiar surroundings—at Family Counseling
their office or patient’s home.
The areas which a family needs counseling are
™™ The patients have the advantage of
usually mental problems, any crisis situation,
economy of time and effort.
bereavement and grief, terminal illness,
infertility, handicap in a child, domestic
Specific Areas of Counseling violence, any disease or illness of chronic
There are a number of distinct situations in family nature.
practice requiring basic counseling. Complex Family counseling is concerned with the
problems require a referral, but the family family system and changes that can be made in

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Chapter 16: Counseling Skills 139

that system. If the interaction of the family with Provide for privacy: Privacy is an essential
one of its individual members leads to stress, it condition of counseling. It is necessary that the
is a symptom of a sick system. The symptom, patient be in a proper frame of mind induced
if allowed to persist, may not only cause much by privacy.
misery to the individual but also to the rest
Practice taking patient’s point of view: The
of the members of the family. Therefore, the
physician must be able to see the patient’s
goal of family counseling is not merely to
point of view, how he/she looks at the problem,
remove some symptoms but to create a new
how he/she reacts to counseling.
way of living. This involves helping individuals
express emotions, hopes and aspirations. The Know your own personality: The physician
family change in facilitated by the counsellor needs to be objective, must be able to
by striking a balance within the family and by introspect, overcome or at least control
advising the individuals on how to relate to one personal opinions, convictions, attitudes,
another in new ways. preconceptions, prejudices and notions.
Although, family physicians are an
important source for health education and have The Approach
unique opportunities to influence and modify Establish rapport: Establishing relationship
health-risk behaviors of their patients, many of confidence, trust and mutual appreciation
surveys have concluded that multiple barriers helps the patient express views without
such as lack of time and compensation and, to inhibitions and resistance. The atmosphere of
a lesser extent, lack of knowledge and resources the physician’s room, attitude and the initial
prevent family physicians from providing reception given to the patient helps in this
counseling.19-21 Besides, many patient-related process.
barriers such as patient’s refusal for follow-
up, non-compliance with medications, and Help the patient feel at ease and ready to talk:
lack of effective patient reminding system Counseling should begin with topics, which
prevent to provide effective counseling.22 Since are easy to talk about and thus warm up the
family physicians are not trained in the art of patient. After getting to the main topic, the
counseling, and to promote greater patient- physician should make the patient talk freely.
physician involvement in counseling, it is Listen: Effective listening is more than passive
helpful to learn its basic strategies. taking in information; it is actively focusing
attention on the discussion, events and
Counseling Procedure experiences, including patient’s feelings
Preparation : Before the interview, the and distress. Physicians should develop
physician needs to work out the entire empathy (understanding and acceptance)
interview procedure—how to initiate the for a patient’s feelings, not sympathy (sorrow
dialogue, what responses can be expected, and pity). The emphasis here is more on the
how to eliminate unwanted responses and communication skills of facilitation, silence,
achieve definite objectives. It is advantageous clarification, paraphrasing and summary,
to get acquainted with the patient’s earlier than on questioning. In many cases this phase
health records, which will give a good start to of the counseling constitutes the major part
the interview and in establishing the rapport. of the therapy; e.g. in grief or bereavement
Make appointment: When appointments are counseling, where the doctor supports the
made, both the patient and the physician are patient through a natural but distressing
prepared. It saves time. process.

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140  Section 4: The Practice of Family Medicine
Secrecy: Physicians will be told many personal behaviours. Most of them can be incorporated
and embarrassing problems of patients. This into existing office practice. Many can be
information must be kept secret from all other implemented in brief periods of time during
people, even from patient’s relatives. The routine health visits.
information is never revealed without specific
permission. Explore Patients’ Beliefs and Concerns
Closing: At the close of the interview, watch for To persuade patients to change their behavior,
additional information or new leads in the casual it is first necessary to identify their beliefs
remarks of the patient. The doctor should be relevant to the behavior and to provide
alert to note the patient’s change of expressions, information based on this foundation.
which may be more relaxed after the interview The physician can elicit important beliefs
has ended and the tension has been released. by asking such questions as “what gets in your
The patient may say things, which would have way of eating a low fat diet? Why do you think
been expressed earlier (i.e. hidden agenda), you can’t follow exercise programme?” Once
but which seemed irrelevant or too trivial to the patients’ concerns and understanding on
mention. The doctor must always remember that the issues are apparent, teaching can then be
the interview has not yet closed even when the focused appropriately.
patient has asked all his questions.
Interpretation: What the patient says is often Inform Probable Time Duration and
a mixture of facts—the views as seen and Outcome
felt by the patient. The patient may remain
on a superficial level of self-understanding. Telling the patient when to expect to see
The doctor needs to interpret varied aspects beneficial effects from the intervention may
of these facts and their relationship to the avoid discouragement. For example, informing
emotional life of the patient with great skill patients that the beneficial effects of low-
and understanding. fat diet or regular exercise may not become
apparent for several months might increase
Developing insights and action plan: The
the likelihood of long-term compliance. If side
process of clarifying and gaining insight
effects are common, the patient should be told
naturally leads to its decisions and planning
what to expect, and under what circumstances
of its action, and the decision thus reached is
the intervention should be stopped or the
put to action with doctor’s help.
patient consulted.
The doctor helps the patient to reach
decision and put them into practice.
Piecemeal Approach
Establish a contract for counseling—with
periodic follow-up to evaluate progress. Patients can be advised to do slightly more
than their present effort. When someone is
Recording—there should be an efficient system
overweight, losing 100 pounds might seem
of recording and maintaining the notes. The
like an impossible task. Whereas losing
entire counseling session may even be tape-
3 to 4 pounds in the next month seems
recorded.
reachable. Successful persuasion involves
not only increasing patient’s faith in his
Counseling Strategies23 or her capabilities but also encouraging
The following recommendations have been accomplishments so that they are likely to
found to be useful in changing certain health experience success.

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Chapter 16: Counseling Skills 141

Be Specific and how they plan to achieve a specific target


Specific and informational instructions will this week. If the patient expresses uncertainty,
generally lead to better compliance, e.g. the physician should explore the problems for
advising the patient to do physical activity the uncertainty. The physician and patient can
three times a week, and then add to it10 to 25% then seek situations for potential problems.
more per week until the patient is performing
aerobic exercise 20 to30 minutes for 3 to 4 Follow-up
times a week. Behavior change is enhanced Follow-up appointment or telephone call
if the regimen and its rationale are explained. within a reasonable time frame to evaluate
progress and reinforce success.
Add New Behavior
If the patient is unable to follow dietary advice Refer
or cannot change it for some inherent reason In a busy practice, it may not be possible to do
in order to loose weight, then suggesting complete patient education and counseling.
moderate physical activity or like any suitable Besides, some patients are refractory to
indoor games may be more effective. routine counseling. They must be referred for
specialist services.
The Use of Combination of Strategies
Educational efforts that integrate individual Conclusion
counseling, family group, audio visual aids, The physicians and public health community
written materials and other community are faced with substantial morbidity and
resources are more likely to be effective than mortality from chronic NCDs that are related
those employing a single technique. Multiple to personal behaviors. With a large and
studies have demonstrated that physician’s growing body of literature demonstrating its
individual attention and feedback are more effectiveness in promoting healthier behavior,
useful than the unscientific and hollow patient education and counseling has become
news media’s success reports in changing an increasingly important part of the delivery
individual’s knowledge and behavior. of clinical preventive services.

Involve Office Staff References


A team approach facilitates patient education. 1. B o u t a y e b A . T h e d o u b l e b u r d e n o f
Physicians, receptionist, nurses, health communicable and non-communicable
educators, dietitians and the allied health diseases in developing countries.Trans R Soc
professionals can form a ‘patient education Trop Med Hyg. 2006;100(3):191–9. Epub 2005
committee’, which can help to generate Nov 4. [PMID: 16274715: Abstract}.
program ideas and staff commitment. 2. Bahler C, et al. Lower age at first myocardial
infarction in female compared to male
Get Explicit Commitment smokers. Eur J Cardiovasc Prev Rehabil,
2011. [Epub ahead of print][PMID: 21930718:
Asking patients to describe how the intended Abstract].
program will be followed encourages them to 3. Weiner P, et al. Smoking and first acute
begin to think about how to integrate this new myocardial infarction: age, mortality and
behavior into their daily schedule. Physicians smoking cessation rate. Ist Med Assoc J. 2000
should ask patients to describe what, when Jun; 2(6):446-9. [PMID: 10897236: Free Article].

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142  Section 4: The Practice of Family Medicine
4. Kounteya Sinha. Cancer, diabetes, hypertension care based counselling intervention on
largest cause of death. In: Times of India, 2011. physical activity, diet and CHD risk factors.
5. Beaglehole R, et al. Priority actions for the non- Patient Educ Couns, 2008;70(1):31-9. Epub
communicable disease crisis. Lancet. 2011; 2007 Nov 7. [PMID: 17997263: Abstract].
377(9775):1438–47. Epub 2011 Apr 5. [PMID: 15. Richardson JL, et al. Effect of brief safer-
21474174; Abstract]. sex counseling by medical providers to
6. Hickman LD, et al. Can principles of the HIV-1 seropositive patients: a multi-clinic
Chronic Care Model be used to improve care assessment. AIDS, 2004;18(8):1179–86. [PMID:
of the older person in the acute care sector? 15166533: Abstract].
Collegian. 2010;17(2):63–9. [PMID: 20738058: 16. Wu JY, et al. Effectiveness of telephone
Abstract]. counselling by a pharmacist in reducing
7. Battersby M, et al. Twelve evidence-based mortality in patients receiving polypharmacy:
principles for implementing self-management randomised controlled trial. BMJ, 2006;
support in primary care. Jt Comm J Qual Patient 333(7567):522. Epub 2006 Aug 17. [PMID:
Saf. 2010;36(12):561–70. [PMID: 21222358: 16916809: Free PMC Article].
Abstract]. 17. David Spiegel et al. Group Support for Patients
8. Handley M, et al. Using action plans to help with Metastatic Cancer: A Randomized
primary care patients adopt healthy behaviors: Prospective Outcome Study. Arch Gen
a descriptive study. J Am Board Fam Med. 2006; Psychiatry, 1981;38(5):527–33.
19(3):224–31. [PMID: 16672675: Free Article]. 18. John Murtagh. General practice. 1996
9. MacGregor K, et al. Behavior-change action Counseling skills: 23.
plans in primary care: a feasibility study 19. Kushner RF. Barriers to providing nutrition
of clinicians. J Am Board Fam Med. 2006; counseling by physicians: a survey of primary
19(3):215–23. [PMID: 16672674: Free Article]. care practitioners. Prev Med, 1995;24(6):546–
10. Olson AL, et al. Changing adolescent health 52. [PMID: 8610076: Abstract].
behaviors: the healthy teens counseling 20. Sturm R. Effect of managed care and financing
approach. Am J Prev Med, 2008;35(5 on practice constraints and career satisfaction
Suppl):S359-64. [PMID: 18929982: abstract]. in primary care. J Am Board Fam Pract. 2002;
11. Nordin TA, et al. Empirically identified 15(5):367–77. [PMID: 12350059: Free Article].
goals for the management of unexplained 21. Hansen L, et al. STD and HIV counseling
symptoms. Fam Med, 2006;38(7):476–82. practices of British Columbia primary care
[PMID: 16823672: Free Article]. physicians. AIDS Patient Care STDS, 2005;
12. Sinclair J, et al. Which patients receive advice 19(1):40–8. [PMID: 15665634; Abstract].
on diet and exercise? Do certain characteristics 22. Hutchison BG, et al. Preventive care and
affect whether they receive such advice? Can barriers to effective prevention. How do family
Fam Physician, 2008;54(3):404–12. [PMID: physicians see it? Can Fam Physician. 1996;
18337535: Free PMC Article]. 42:1693–700. [PMID: 8828872: Free PMC
13. Williams EC, et al. Readiness to change in Article].
primary care patients who screened positive for 23. Guide to Clinical Preventive Services: Report
alcohol misuse. Ann Fam Med, 2006; 4(3):213– of the US. Preventive Services Task Force.
20. [PMID: 16735522: Free PMC Article]. 2nd edn. US Preventive Services Task Force.
14. Hardcastle S, et al. A randomised controlled Washington (DC): US Department of Health
trial on the effectiveness of a primary health and Human Services; 1996.

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17 patient-centered care

“The essence of the practice of medicine is that it is an intensely personal matter. The treatment of a
disease maybe entirely impersonal; the care of the patient must be entirely personal. The significance
of the intimate personal relationship between the physician and patient cannot be too strongly
emphasized—in a large number of cases both the diagnosis and the treatment are dependent on it. One of
the essential qualities of the physician is in his interest in humanity.’’
—John A Benson

Introduction health System for the 21st century,” which


It is a remarkable fact that the science of medicine states, “… Medical science and technology
is progressing at a breakneck speed. Today the have advanced at an unprecedented rate
medical landscape has been transformed during the past half-century. In tandem has
beyond recognition. It is an accepted knowledge come growing complexity of health care,
that science has revolutionized medicine by which today is characterized by more to
giving it tools and a scope unimaginable to those know, more to do, more to manage, more to
who lived a millennium ago. There have been watch, and more people involved than ever
impressive technological improvements and before. Faced with such rapid changes, the
breakthroughs in the medical sciences that have nation’s health care delivery system has fallen
contributed to enhanced life span and quality of far short in its ability to translate knowledge
life. Diseases that were once widespread, and into practice and to apply new technology
often fatal, are now easily treatable or have been safely and appropriately. And if the system
virtually eradicated. The drugs are smarter, the cannot consistently deliver today’s science and
surgical tools more powerful, and the diagnostic technology, it is even less prepared to respond
tests astonishingly precise. to the extraordinary advances that surely will
However, curing disease is only part of what emerge during the coming decades.”1
makes modern medicine so remarkable; the Recent studies show widespread consumer
other side of its reality is that, while the science dissatisfaction with the delivery of health
of medicine has leapt forward in mercurial care. While patients may feel that they receive
strides, the art of medicine has not kept pace, excellent technical care, they complain
and in many ways has suffered a decline in that the healthcare system is impossible to
quality in an era that values high technology navigate; that they receive scarce information
and cost efficiency over the human aspects from providers; that patients and families
of care. These sordid facts have been further are not actively involved in discussions
reinforced by the Institute of Medicine’s project about care options; and that they are not
report titled, “Crossing the quality chasma new supported emotionally. Most patients wanted

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144  Section 4: The Practice of Family Medicine
acknowledgement of harm done and doctors Table 17.1  Complementary and alternative medicine
(CAM) can include the following:
punished.2-6
Thus, the dissatisfaction in the conventional •  Acupuncture,
•  Alexander technique,
treatment of individual’s chronic and multiple
•  Aromatherapy,
aliments and their exacerbations has generated •  Ayurveda (Ayurvedic medicine),
an unprecedented drift of healthcare seekers •  Biofeedback,
to “traditional medicine” (TM) that includes •  Chiropractic medicine,
•  Diet therapy,
the Complimentary and Alternative Medicine •  Herbalism,
(CAM)* management of their illnesses. 7-9 •  Holistic nursing,
The longer life expectancy has brought with •  Homeopathy,
•  Hypnosis,
it increased risks of developing chronic, •  Message therapy,
debilitating diseases such as heart disease, •  Meditation,
cancer, diabetes and mental disorders. Women •  Naturopathy,
•  Nutritional therapy,
may use CAM supplements for dysmenorrhea,
•  Osteopathic manipulative therapy (OMT),
premenstrual syndrome, infertility, nausea and •  Qi gong (internal and external Qigong),
vomiting during pregnancy, and symptoms of •  Reflexology,
menopause. The World Health Organization •  Reiki,
•  Spiritual healing,
(WHO) estimates that 80% of world’s population •  Tai Chi,
presently uses CAM for some aspects of primary •  Traditional Chinese Medicine (TCM), and
health care (Table 17.1).10-12 Besides, CAM is •  Yoga.
occurring in the context of broader societal Source: Complementary and Alternative Medicine (CAM);
changes, including consumer movement on web site—http://www.medicinenet.com/alternative_
healthcare, which have produced a political medicine/article.htm. Accessed on-24-10-2010.
climate in which CAM can increasingly challenge events and trauma has dramatically improved,
medicine and seek its own power.13 Further, chronic conditions require innovative and
the WHO has launched its comprehensive fundamentally different approach. Unlike
traditional medicine strategy in 2002, designed treatment for acute illnesses, which often
to assist countries to develop national policies respond to one or two focused interventions,
on the evaluation and regulation of TM/CAM optimal care for chronic diseases demand
practices.14,15 that patients pay meticulous attention to
their day-to-day diet, physical activity, self-
Why Such Broad Use? management and medication use. To equip
While the conventional medical system’s ability patients with the knowledge and skills required
to treat acute health problems such as coronary to care for chronic aliments, physicians need to

*“Traditional medicine” is the sum total of the knowledge, skills, and practices based on the theories,
beliefs, and experiences indigenous to different cultures, whether explicable or not, used in the
maintenance of health as well as in the prevention, diagnosis, improvement or treatment of physical and
mental illness (WHO). The terms "complementary medicine" and "alternative medicine" are sometimes
used to mean the same thing, but they have different implications. Complementary medicine refers to
therapies used in combination with conventional medicine, while alternative medicine is used in place
of conventional medicine. An example of complementary medicine is using hypnotherapy (hypnosis)
with pain medications to reduce anxiety and enhance relaxation in people recovering from severe burns.
An example of alternative medicine would be following a special diet and taking herbs or vitamins rather
than medications to treat attention-deficit hyperactivity disorder (ADHD).

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Chapter 17: Patient-centered Care 145

provide an extensive amount of education and Table 17.2  Basic principles of CAM
support.16,17 When patients are systematically •  T he focus is on the whole person -physical,
provided with information and skills to reduce emotional, social, and spiritual.
health risks, they are more likely to reduce •  Prevention of illness is a primary concern
•  Treatments are highly individualized.
substance use, stop using tobacco products, •  Treatments are aimed at the causes of illness
practice safe sex, eat healthy foods, and engage rather than at its symptoms.
in physical activity. •  Treatments are designed to support the natural
healing processes of the body.
However, the limited time given for office
appointments makes providing comprehensive
individuals, consisting of body, mind, and spirit.
care a challenge. 18,19 During the course of
As Padmashri Dr R Martanda Varma*, Founder
the treatment, the patient must be content
Director and Prof. Emeritus, Nimhans, India,
with fleeting consultations with physicians
has aptly said, “Human achievement is high but
who are polite but distant, as they are
humanness is lagging behind. We must adopt
invariably overloaded with work. Additionally,
an integrated approach. The integrated holistic
in an increasingly technological medical
approach is “twice blessed”. It blesses the healer
environment, the importance of time honoured
as well as the healed.”20
doctor-patient relationship can easily be
overshadowed by the latest drugs and therapies.
Parallel to the advancement of medical
Defining Patient-centered Care
science, physicians have become more and Fortunately, in the last couple of decades it
more mechanical and stereotype in treating has been felt that patients need to be treated
patients. As physicians depend increasingly on as a whole. Patient-centered care has attracted
sophisticated diagnostic tests and specialized leaders in visionary healthcare organizations,
knowledge, patients tend to loose their identity research institutions and public policy centers
as human beings. The high-tech speciality care who advocate that patients’ interests and
is indifferent to patients’ values and concerns. concerns should be at the center of their own
For example, if a person has an infection, healthcare experience.21-24
a conventional physician may prescribe In many patients with physical illness,
an antibiotic to kill the invading bacteria. psychological factors are important—even
CAM practitioners, on the other hand, take crucial. In others, social factors are vital. In yet
a more “holistic” approach to health care. others, there are spiritual factors, such as a sense
They believe that health and disease involve of guilt or fear of death. Emotions, personality,
a complex interaction of physical, spiritual, life style, behavior, etc. play a very important role
mental, emotional, genetic, environmental, in causing diseases and hence there is a need to
and social factors. In order to treat a disease or take care of these factors as well in the long-term
promote good health, CAM practitioners treat management of such patients.
the whole person (Table 17.2). As against the “disease-centered”
It’s the absence of patient-centered care consultation—the attitude derived from
and warmth that is sorely missed in the present undergraduate teaching in which history,
day procedures while administering healthcare physical examination, and investigations
to the needy. The conventional scientific are taught to “hone in” on a specific area of
medicine has lost the art of treating patients as physical or pathophysiological diagnosis

*Padmashri Dr R Marthanda Varma, the Founder-Director of the National Institute of Mental Health and
Neurosciences (NIMHANS), Bengaluru, passed away in Bengaluru on March 10, 2015, at the age of 93.

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146  Section 4: The Practice of Family Medicine
that is attempted to correct, the “patient- in their care. As patient-centered physicians,
centered” consultation emphasizes the physicians emphasize the patients’ needs
need to look at the whole person, including and feelings and attempt to gain a better
analysis of physical, nutritional, emotional, understanding of the impact of medical decisions
environmental, social, spiritual and life style on our patients’ lives (Table 17.4). Using patient-
values. It includes all stated modalities of centered techniques, physicians move beyond
diagnosis and treatment, including drugs the pathophysiology of disease and explore the
and surgery, if no safe alternative exists. The biological, psychological, and social components
physician also focuses on education and of our patients’ illness. Balient stated, “More
responsibility for individual’s efforts to achieve often than scientific medicine cares to admit,
balance and well-being (Table 17.3). it is not with a part but with a whole man that
Patient-centered care represents a departure something has gone wrong, so that not one part
from the historically passive role of our patients but the whole man must be examined.”26
Prof. Dr McWhinney IR 27 gives the grounds
Table 17.3  Whole individual approach: Diagnosis and
management25 for the patient-centered clinical method; his
reasons seem first and foremost based on
Disease-centered Patient-centered
Diagnosis Diagnosis philosophical and ethical considerations.
• Etiology of • Significance of illness to the The one-dimensional biomedical paradigm is
disease patient insufficient for the comprehension of current
• Effect of family and relationship
• Effect on work and income medical knowledge, and more important, it
•  Physiological effect: is based on an inadequate and impoverished
–  Stress and anxiety view of reality. A reciprocal bio-psycho-
– Abnormal illness and
behavior
social paradigm is advocated, where the
–  Sleep understanding of the patient’s perspectives
–  Depression and subjective meaning of health problems is
•  Effects on sexuality
a basic task for the clinician.
•  Effects on attitudes and
spirituality In 2001, the Institute of Medicine
Disease-centered Patient-centered management described patient-centered care as, “being
management •  Psychological support respectful of and responsive to individual
•  Rest •  Appropriate reassurance patients’ preferences, needs, and values and
•  Drugs •  Patient education
•  Intervention • Empowering self-
ensuring that patient values guide all clinical
•  Surgery responsibility decisions.”28 The physician’s role, then, is to
•  Other invasive •  Anticipatory guidance help patients find goals that are more relevant
techniques •  Prevention to them and then use those goals to develop
•  Health promotion
•  Lifestyle the patient-specific plans.
Recommendations/ Thus, patient-centered care will reflect
modifications patients’ values and engage them as partners
–  Diet/nutrition
–  Exercise Table 17.4  Patient-centered clinical method:
– Alcohol Components of patient-centered care
–  Smoking
–  Stress management •  Exploring the disease and the illness experience.
•  Family and social support •  Understanding the whole person.
•  Self-health groups •  Finding common ground regarding management.
•  Alternative options •  Incorporating prevention and health promotion.
•  Consultation and referral •  Enhancing the doctor-patient relationship.
•  Follow-up •  Being realistic.

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Chapter 17: Patient-centered Care 147

in their care. Patients and their families must In a study conducted by Ratanawongsa N
be involved in decision-making. They need et al to improve residents’ competencies in
education, information, and coaching to delivering patient-centered care, it was found
facilitate their informed and full participation. that, “A patient-centered inpatient curriculum
was associated with higher satisfaction ratings
Seven Prime Aspects of Patient- in patient-centered domains by internal
centered Care 29 medicine residents and with higher satisfaction
1. Safe—avoiding injuries to patients from the ratings of their physicians by patients.”31
care intended to help them. In a study of women with breast cancer,
2. Effective—providing services based on Mellinger J.B. et al state that, “patient satisfaction
scientific knowledge to all who could is improved when physicians incorporate
benefit, and refraining from providing patient-centered behaviors into their care.” 32
services to those not likely to benefit. There is also a growing body of evidence
3. Patient-centered—providing care that is supporting other key dimensions for PCC such
respectful of and responsive to individual as respect for patients’ values, preferences, and
patient preferences, needs and values, expressed needs; coordination and integration
ensuring that patient values guide all of care; information, communication, and
clinical decisions. education; physical comfort ; emotional
4. Timely—reducing waits and harmful delays support; involvement of family and friends;
for both those who receive and those who transition and continuity of care; and access
give care. to care
5. Efficient—avoiding waste: including waste There is also good evidence for PCC having
of equipment, supplies, ideas, and energy. favorable impact on chronic diseases such as
6. Equitable—providing care that does not vary diabetes, asthma, hypertension, and musculo-
in quality because of personal characteristics skeletal conditions, especially if a team
such as gender, ethnicity, geographic approach to the management is developed.33
location, and socioeconomic status.
7. Transition and continuity—Delivery Patient’s Choice
systems provide for caring and sharing Little et al 34 conducted research to seek
ongoing care between different providers answers to crucial questions about patient
and phases of care. centered medicine. What is it? Do patients
want it? Their results indicate that the answer
Evidence Base for Patient- to these questions is a resounding “yes.”
centered Care (PCC) Patients want PCC which:
™™ Explores the patients’ main reason for the
There is considerable evidence that patients
prefer a patient-focused approach. visit, concerns, and need for information;
In a study to measure the use of medical ™™ Seeks an integrated understanding of the
services and related charges monitored patients’ world that is, their whole person,
over 1 year, Bertakis KD et al reported, emotional needs, and life issues;
“Patient-centered care may result in greater ™™ Finds common ground on what the
knowledge of the patient, greater trust between problem is and mutually agrees on
physician and patient, and diminished need management;
for additional specialty referrals, diagnostic ™™ Enhances prevention and health pro­
testing, and use of hospital care.”30 motion; and

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148  Section 4: The Practice of Family Medicine
™™ Enhances the continuing relationship Patient-center Care Model
between the patient and the doctor.
The model of patient-center care described by
Brown et al36 consists of six essential interactive
Patient-centeredness—What
components:
Determines the Physician’s 1. Exploring both the disease and the illness
Clinical Behavior? experience:
A study of primary care physicians in Disease: The traditional approach of
Singapore, consisting of ninety GPs in a cluster history taking, physical examination to
of nine polyclinics, using case scenarios and arrive at a differential diagnosis.
patient-centered statements through a self- Illness: At the same time, the physician
administered questionnaire was carried out. tries to evaluate patient’s ideas, feelings,
The object of the study was to assess patient- and fears concerning the illness and its
centered care behavior amongst physicians effect on his activities. Knowledge of past
and explore reasons for non-patient centered illness experiences and the effect of the
behavior.35 family on previous illness can be useful to
The analysis of the results for non- access the severity of disease the patient is
patient centeredness revealed that the major going through.
contributory factor was doctor-centered The physician usually maneuvers back and
attitudes, followed by time and skill issues, forth between the “doctor disease” and the
which appeared to be situation-specific. “patient illness” agendas.
Wi t h i n d o c t o r- c e n t e re d i s s u e s, 2. Understanding the whole person:
negative regard for the patient, inflexible Physicians need to approach patients not
professionalism, concern about policy as “cases” or “diseases” but as individuals
matters of health system, protecting one’s whose problems all too often transcend the
own legal interest, and diminished personal complaints that bring them to the doctor.
accountability were important issues. Whatever patients complaints, including
Within skill-centered issues, communi­ their attitude and beliefs toward their
cation skills, negotiation skills and professional illness, the physician needs to consider the
inadequacy predominated. Time allocation settings in which an illness occurs, in terms
was a limiting factor to provide health of not only the patients themselves, but also
promotion guidelines. of their families and social backgrounds.
The study concludes to state, “Can we Patient’s life in terms of development,
postulate that these attitudes are part of the previous contacts with the patient over the
professional ego that has been acquired during years can provide the physician valuable
the course of medical training? If so, have our insights into the present problems.
senior colleagues been less than ideal role 3. Finding common grounds (i.e. concordance):
models in teaching patient centeredness? The physician must ensure coordinating
There is probably a need for more training personal views of what should be done with
on PCC at all levels of seniority from medical that of patient’s.
students to professors. There is also a need Understanding the nature of patient’s
to recognize current structural limitations problems, setting priorities and goals of
on doctor’s practice, e.g. time constraints, treatment, mutual responsibilities and
patient’s autonomy and disillusions. Steps cooperation are essential for effective
should be taken to overcome these.” management.

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Chapter 17: Patient-centered Care 149

Finding common ground rather than of antihypertensive medications. She is


bargaining or negotiating requires an overweight, does not smoke or drink; her BP is
understanding of the patient’s ideas, fears, 170/96 mm Hg; spot glucometer blood glucose
and expectations regarding the problems. shows 240 mg/dL. She is on ACE inhibitor and
4. Incorporating prevention and health statin. When questioned further about her
promotion: present illness history, she informs that her
The physician is in a favorable position to neighboring physician recently told her, she has
provide patients with specific information mild diabetes not requiring active treatment.
a b o u t h e a l t h p ro m o t i o n , d i s e a s e
prevention and risk reduction at every Management: Disease-centered
contact with patients and these families. Physician: you may have diabetes. You also
This continuous process facilitates effective have a number of risk factors. Combined with
patient-centered relationship. This paves a your hypertension this makes your risk very
smooth way for the patient’s acceptance great for vascular events. You must loose at
of suggestions from the physician for least 10 kg weight. Get plenty of exercise and
appropriate life style modifications. avoid sweets. I will order tests (diabetic and
5. Enhancing the doctor-patient relationship: lipid profile) and adjust medications.
The physician makes full and intelligent
use of the opportunity of the intimate Ms X: Yes, of course, you are a doctor, so tell
doctor-patient relationship. In patient- me what to do.
centered care this relationship is not static; Physician: It is really important that you control
it develops in the light of patients’ needs, your blood glucose levels; the consequences
but it is grounded in the timeless clinical could be otherwise serious.
virtues of trust and confidence.
Two years later: Ms X has given up job; she is
6. Being realistic:
confined to her home with a foot ulcer; her BP
Treating the whole person with caring
remains unstable, and she has angina.
and compassion and attending to the
preferences and needs of patient means
Management: Patient-centered
understanding what is important to the
patient. This requires priority setting, Physician: Both blood glucose and blood
resource management, and teamwork. pressure is high today. Have you been regularly
The physician needs to plan carefully taking pressure tabs?
the time and the resources to meet these Ms X: Not exactly doc… my husband is also
tasks without being overburdened, overly on medications, and I got to buy them as
distressed, or emotionally depleted. well… I have no adequate mediclaim cover
Physician needs to work as a part of a to reimburse these expensive drugs. So I am
community team across disciplines for on occasions hard for cash to buy all drugs…
optimum PCC. nothing seems to happen if I miss a few
pressure pills…so I thought I would get them
Hypothetical Case Scenario: An after my next pay.
Adult Diabetic37
Physician: Both diabetes and high blood
Presentation pressure are silent diseases. Missing doses
A 50-year-old lady, Ms X, working as a cause complications without hurting. If you
secretary, presents for a repeat prescription can’t afford drugs, I can help getting them

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150  Section 4: The Practice of Family Medicine
from specific pharma companies who will an appointment. We hope you will be better
mail you necessary drugs at no cost on my equipped to deal with life, with all its demands
recommendation. Now please tell me about and perplexities.”
your diet.
Two years later: Ms X has lost 5 kg weight; she
Ms X: Thank you doc…about my diet, I try to is active for half an hour on most days with the
follow, but we have frequent guests and I have local walking group; she remains at work; her BP
to eat with them when they visit. is mostly under 140/90 mm Hg and HbA1c 7.5%.
Physician: Your spot blood glucose is high. We
Teaching Points
need to monitor it regularly. It is important that
we learn more about your diabetes and help ™™ Patient’s beliefs about disease are considered.
you look after it. Let’s make an appointment ™™ Poor adherence may be due to physical or
for you with our dietician at the local Diabetic socioeconomic reasons; each needs to be
Center this week. She will help you work out explored.
balanced diet to reduce weight as well as ™™ Lifestyle modifications in terms of diet and
proper blood glucose control. exercise are stressed.
Ms X: I understand I must loose weight. Do I ™™ Key behavioral strategies include a written
have to follow rigid dieting? plan for behavioral change, reinforcement,
and follow-up.
Physician: Perhaps we should set a small ™™ Support links to ease financial burden is
target for weight loses for the first 2 months offered.
or so. Diet is important, but rigid dieting is ™™ Community links to diabetic organization
not advisable. Adding a bit more of physical established.
activity is very helpful to reduce weight. Can ™™ Outcome—improved quality of life.
you keep a list of all your daily activities? Please
go through this information booklet; it explains
Conclusion
how to maintain your chart for daily physical
activities—it’s simple to follow and maintain. Patient-centered care is an important and
evidence-based concept for improving health
Ms X: I will try to follow…I understand its outcomes for people with chronic disease in
importance. primary-care practice.
Physician: Let’s talk about it more next week. The Institute of Medicine report states there
I will call you to know about your progress. I is a “quality chasm” in our healthcare system
will also enroll you as a member of the Diabetic today, and this certainly applies to the spectrum
Organization; you will receive useful support of chronic disease management. The tension
services from them. between the need to deliver comprehensive
care and the time allotted to do so can be met
A fortnight later: Ms X receives a letter from the effectively only by changing the way we manage
Diabetic Organization. our visits: by conducting patient-centered,
The letter adds: “Please be assured you are goal-focused care; working collaboratively
not just another ‘diabetic case’. You are an with formal patient education programs; and
individual, with needs of body, mind and spirit, continually looking for ways to educate and
and you live in a home perhaps beset with many motivate patients to better care for themselves.
problems. Please be free to talk to our expert Systematic reviews show that patient-
educational team; they will soon visit you with centered care results in increased adherence

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Chapter 17: Patient-centered Care 151

to management protocols reduced morbidity 11. Akerele O. Nature’s medicinal bounty: don’t
and improved quality of life for patients. throw it away. World Health Forum. 1993;
To deliver the highest quality care means 14(4):390–5. [PMID: 8185790: Abstract].
to address all of patients’ health related needs, 12. Bodeker G, et al. A public health agenda for
concerns, and interests. A broad, comprehensive traditional, complementary, and alternative
education in medicine, including CAM, must be medicine. Am J Public Health. 2002;92(10):
1582–91. [PMID: 12356597: Free Article].
fashioned to meet the needs of a diverse and
changing population of patients. 13. Coulter Ian D, et al. The rise and rise of
complementary and alternative medicine: a
References sociological perspective. Med J Aust. 2004;180:
58–89.
1. Crossing the Quality Chasm: A New Health
14. WHO launches the first global strategy on
System for the 21st Century. Institute of
traditional and alternative medicine. Cent Eur
Medicine, March 2001.
J Public Health. 2002;10(4):145, 156. [PMID:
2. Wong LL, et al. Patients’ complaints in a
12528386].
hospital emergency department in Singapore.
Singapore Med J. 2007;48(11):990–5. [PMID: 15. WHO Policy Perspectives on Medicines—
17975687: Free Article]. Traditional Medicine—Growing Needs and
3. Lim HC, et al. Why do patients complain? A Potential, No. 2 May 2002, World Health
primary health care study. Singapore Med J. Organization, Geneva.
1998;39(9):390–5.[PMID: 9885716]. 16. Rao JK, et al. Visit-specific expectations and
4. Taylor DM, et al. Analysis of complaints lodged patient-centered outcomes: a literature review.
by patients attending Victorian hospitals, 1997- Arch Fam Med. 2000;9(10):1148–55. [PMID:
2001. Med J Aust. 2004;181(1):31–5. [PMID: 11115222: Free Article].
15233610: Free Article]. 17. Kravitz RL, et al. Internal medicine patients’
5. Daniel AE, et al. Patients’ complaints about expectations for care during office visits. J Gen
medical practice. Med J Aust. 1999; 170(12):598– Intern Med. 1994;9(2):75–81. [PMID: 8164081:
602. [PMID: 10416431:Free Article]. Abstract].
6. McKinstry B, et al. Can doctors predict 18. Lin CT, et al. Is patients’ perception of time
patients’ satisfaction and enablement? A spent with the physician a determinant of
cross-sectional observational study. Fam Pract. ambulatory patient satisfaction? Arch Intern
2006;23(2):240–5. Epub 2006 Feb 3. [PMID: Med. 2001;161(11):1437–42.PMID:11386893:
16461447:Free Article]. Free Article].
7. Astin JA, et al. A review of the incorporation
19. Landau DA, et al. Patients’ views on optimal
of complementary and alternative medicine
visit length in primary care. J Med Pract
by mainstream physicians. Arch Intern Med.
Manage. 2007;23(1):12–5.[PMID:17824257 :
1998;158(21):2303–10. [PMID: 9827781: Free
Abstract].
Article].
20. Padmashri Dr. R Martanda Varma. Founder
8. Fink S. International efforts spotlight traditional,
Director and Prof. Emeritus, NIMHANS,
complementary, and alternative medicine. Am
Bangalore, India; Deccan Herald, 2002.
J Public Health. 2002;92(11):1734–9. [PMID:
12406796: Free Article]. 21. Committee on Hospital Care. American
9. Vohra S, et al. Ethics of complementary and Academy of Pediatrics. Family-centered care
alternative medicine use in children. Pediatr and the pediatrician’s role. Pediatrics, 2003;112
Clin North Am. 2007;54(6):875–84; x. Review. (3 Pt 1):691–7. [PMID: 12949306: Free Article].
[PMID: 18061781: Abstract]. 22. Zimmerman J, et al. Collaborative models of
10. Ozorio P. World Health Organization encourages patient care:new opportunities for hospital
traditional medicine in the third world. Dev Dir. social workers. Soc Work Health Care. 2007;
1979;2(4):16. [PMID: 12309965: abstract]. 44(4):33–47. [PMID: 17804340: abstract].

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152  Section 4: The Practice of Family Medicine
23. Ekman I, et al. Person-centered care - Ready 31. Ratanawongsa N, et al. Effects of a Focused
for prime time. Eur J Cardiovasc Nurs. 2011; Patient-Centered Care Curriculum on the
10(4):248–51. Epub 2011 Jul 20. [PMID: Experiences of Internal Medicine Residents
21764386: Abstract]. and their Patients. J Gen Intern Med. 2011.
24. Maizes V, et al. Integrative medicine and [Epub ahead of print][PMID: 21948228:
patient-centered care. Explore (NY). 2009; Abstract].
5(5):277–89. [PMID: 19733814: Abstract]. 32. Mallinger JB. et al. Patient-centered care
25. Murtagh John. General Practice: whole person and breast cancer survivors’ satisfaction
approach to management, 1996:72. with information, Patient Education and
26. Balient M et al. Treatment or diagnosis: A study Counseling. 2005;57(3):342–49.
of repeat prescriptions in general practice, 33. Coates Heather. Integrating patient-centered
Tavistock Publications Ltd. London, 1970. care and evidence-based practices: What is
27. McWhinney IR. Philosophical and scientific the prognosis for healthcare? School of Library
foundations of family medicine. In: A Text Book and Information Science, Indiana University -
of Family Medicine. New York, Oxford: Oxford Indianapolis, S653: Research Paper. 2007.
University Press. 1989:43–71. 34. Little P et al. Preferences of patients for patient
28. Committee on Quality of Health Care in centered approach to consultation in primary
America, Institute of Medicine. Crossing the care: observational study. BMJ. 2001;322:468–72.
Quality Chasm: A New Health System for 35. Yvette Sh Tan et al. Patient centeredness: What
the 21st Century. Washington, DC: National determines the doctor’s clinical behavior. Oral
Academies Pr; 2001. presentation at WONCA Europe, Slovenia. 2003.
29. The Picker Institute. Patient-Centered Care 2015: 36. Brown JB, et al. Patient centered medicine:
Scenarios, Vision, Goals & Next Steps. July 2004. transforming the clinical method. Saga
30. Bertakis KD, et al. Patient-centered care publications. 1995.
is associated with decreased health care 37. Bauman AE et al. Getting it right: why bother
utilization. J Am Board Fam Med. 2011; with patient centered care? Medical J of Aust.
24(3):229–39. [PMID: 21551394: Free Article]. 2003;179(5):253–6.

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18 the team approach

“The sum total of medical knowledge is now so great and wide-spreading that it would be futile for any one
man... to assume that he has even a working knowledge of any part of the whole.… The best interest of the
patient is the only interest to be considered, and in order that the sick may have the benefit of advancing
knowledge, union of forces is necessary.… It has become necessary to develop medicine as a cooperative
science; the clinician, the specialist, and the laboratory workers uniting for the good of the patient, each
assisting in elucidation of the problem at hand, and each dependent upon the other for support.”
—William J. Mayo, 1910
“Coming together is a beginning, keeping together is progress, and working together is success.”
—Henry Ford

Introduction participation in team-based efforts. High-


quality and effective clinical practice in this
In today’s complex world of modern
environment requires a physician to be a
medicine, no one professional system is
member, and often a leader, of many teams
able to provide the multifaceted care which
that must work together to deliver health care
families need—from acute care to those
(Fig. 18.1).1
suffering from terminal illness. Besides
planning and implementing health policies
Need for Team Concept
that will enhance patients’ health, including
health promotion, screening, and preventive Since the patient-centered care has become a
care, family physicians shoulder the unique priority in family practice, family physicians
responsibility of arranging coordination of should be aware of the availability and the
care, specialist referrals, hospital, home, role of other professionals, such as specialists,
and hospice visits to provide continuing and therapists, dieticians, nurse practitioners,
comprehensive care. Family physicians also pharmacists, office staff, social workers, and
have an important role in the effective use of many health workers, in the overall care
community resources. To optimally manage of patients. The concept is that all these
the care of the individuals and groups of professional services should be available to
patients, physicians must understand how the families according to their needs, and
the healthcare system functions, and how that services should be cooperative and
to effectively use those systems to deliver coordinated.
safe, timely, effective and patient-centered Such an approach calls for “team
healthcare. Managing the care of individuals concept”— a team wherein all concerned
and populations often requires physician are associated together for the good of the

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154  Section 4: The Practice of Family Medicine

Fig. 18.1  Team care concept in family healthcare system

patient. Yet, getting individuals with distinct fosters respect for the skills and perspectives
personalities, experience, likes, and dislikes, of all health-care providers.
and motivating them to work together
toward a common goal is one of the most Personal versus Team Care
challenging tasks faced by the health resource
There is a very fine line to be treated in
organizations. When individuals from different
employing teamwork so that it does not
backgrounds and areas of expertise come
undermine the important concept of “personal
together, conflict often arises and creates
care”. Most patients prefer to be cared for by
barriers to teamwork and progress.
one physician who they know and trust, rather
In order to eliminate the negative impact than by a team of physicians who are unknown
of team conflict, and to get team individuals to them. As patients do not always appreciate
moving in the right direction, a team sharing of responsibility that is an integral part
leader is essential, who will take the overall of the teamwork, it is necessary for the primary
responsibility, and be answerable if something team physician to explain such interventions
goes wrong. In theory any member of the when necessary. The team doctor should take
team can act as leader, but usually the person the responsibility for ensuring that:
who has vast knowledge and experience is ™™ The team provides care which is safe,
best suited for this role. In the community a effective and efficient, works effectively to
strong argument can be made for the family achieve high standards of care, including
physicians to lead the healthcare team clinical effectiveness and efficiency; and
because they form a common link between
™™ The whole team understands the need to
the patients and the community. Besides,
provide a polite, responsive and accessible
family physicians, in the role of a team leader,
and effective service, and to treat patient
are aware of the strengths and weaknesses
information as confidential.2
of the team members, and are able to utilize
their services to the patient’s advantage.
Team Training: Current Status and
Such an approach facilitates involvement
of connected teams of health professionals Assessment3
working together to provide more coordinated Numerous reports during the past 10 years
and comprehensive care to patients. It places from national oversight and safety institutes
priority on the preferences of the patient and and agencies have supported the need for

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Chapter 18: The Team Approach 155

team training in the healthcare environment, ethics, they must not discriminate against
especially as a means to decrease errors and colleagues. It is morally unacceptable
increase patient safety. Hospital training for physicians, whatever their personal
p ro g ra m s have b e gu n i mp l e m e nt i ng impressions may be about a colleague,
interdisciplinary team training around high- to adversely comment on his or her
risk scenarios for their trainees and staff.4 professional competence to patients or
Teamwork has become a major focus in members of public.
healthcare. In part, this is the result of the ™™ Physicians should not allow the views of
Institute of Medicine (IOM) report entitled,” To their colleague’s lifestyle, culture, beliefs,
Err Is Human: Building a Safer Health System”, race colour, gender, sexuality or age to
which details the high rate of preventable prejudice their relationship with the
medical errors, many of which are the result concerned colleague.
of dysfunctional or non-existent teamwork. ™™ Physicians must treat their nursing and
T h e I O M h a s re c o m m e n d e d t h a t ancillary staff with respect and understanding,
organizations establish interdisciplinary team and listen and act sympathetically to their
training programs that incorporate proven legitimate work or service complaints. They
methods for team management. Teamwork must perform their services as part of a team,
can be assessed during physician medical and help to create a working environment
education, board certification, licensure, that is pleasant and harmonious.
and continuing practice. Team members ™™ Physicians must avoid looking at colleagues
must possess specific “knowledge, skills, in their areas of practice as competitors or
and attitudes” (i.e. KSAs) and the ability to rivals. It is more useful for physicians to
exchange information which enable individual project the image of a team, with common
team members to coordinate. practice guidelines so that patients will
appreciate this and avoid clinic hopping.
Assessing Physician Teamwork ™™ As multidisciplinary teams are increasingly
providing healthcare, they are expected
KSAs might be elicited and assessed across a
to work constructively within teams and
physician’s career, starting in medical school
to respect the skills and contributions of
and continuing through licensure and board
colleagues and other healthcare staff.
certification. Professional bodies should be
™™ Finally, physicians must always remember
responsible for the development of specific
that they have attained their medical
team knowledge and skill competencies
education and training through teaching
and for promoting specific team attitude
by their peers. It is therefore an honor and
competencies. Tools are available to assess
privilege to them to perpetuate the art and
medical student, resident, and physician
craft of medical practice by imparting their
competence in these critical team KSAs.5
knowledge and sharing their experiences
with their colleagues and students at all
Working with Colleagues times.
When working in a team, physicians should act The General Medical Council in United
as a positive role model and try to motivate and Kingdom has the following guidelines in the
inspire their colleagues. The major conduct context of “working in team”: 6
codes of impotence are: Physicians must:
™™ Physicians should always treat their ™™ Respect the skills and contributions of your
colleagues fairly. In accordance with the colleagues.

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156  Section 4: The Practice of Family Medicine
™™ Communicate effectively with colleagues things; treat colleagues the same, irrespective
within and outside the team. of their professional status.
™™ Make sure that your patients and colleagues
understand your role and responsibilities Listen
in the team, and who is responsible for Listen intently to the other person; do not
each aspect of patient care. interrupt or cut off another person; engage in
™™ Participate in regular reviews and audit of active listening; it shows concern and interest.
the standards and performance of the team,
taking steps to remedy any deficiencies. Try to Understand the Other Person’s
™™ Support colleagues who have problems
Viewpoint
with performance, conduct or health.
Ask for clarification; ask probing follow-up
Communication Strategies questions which will give your colleague
the opportunity to bring up hidden agenda.
In academic medical settings, healthcare team
The information you gain will help you to
members share the same goal, i.e. to provide
determine a responsible course of action.
optimal care for the patient and effective
training for house staff and students. However,
Acknowledge the Other Person’s
communication and teamwork failures are a
Thoughts and Feelings
common cause of adverse events. Therefore,
instituting a multidisciplinary teamwork Using “yes–no” questions may generate more
training program that uses simulation offers information to arrive at a suitable solution.
a risk-free environment to practice skills,
including communication, role clarification, Be Cooperative
and mutual support.7,8 Further, Spanager L, et Assume good faith with colleagues’ through
al. state that, “Good clinical skills and dexterity friendliness, interest, empathy, and non-
alone do not make a good surgeon. Skills in judgemental attitude.
leadership, decision-making, communication
and teamwork, the so-called non-technical Look for Shared Concerns
skills, are also needed.”9 Therefore, giving
Include all team mates in meetings, discussions,
team members the opportunity to improve
training, and events. Focus attention on the
their communication skills facilitates their
importance of teamwork and communication in
work together.
avoiding unintended harm to patients and errors.
The following strategies, outlined by
Rider Elizabeth et al, that have contributed
State your Feelings
to the success and lessons learned from
incorporating clinician communication skills Share information about yourself and team
in medical teams can help healthcare team performance; use words such as,” In my
members communicate more effectively and opinion…or, I think…or, I feel…” Avoid
resolve conflicts.10, 11 judgments and accusations.

Be Respectful and Professional in Don’t Take Things Personally


your Interactions There are times when ineffective
Treat team-mates with dignity, politeness, and communication creates conflict (anger,
kindness; do not nit-pick or criticize over little frustration) even in situations where there is

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Chapter 18: The Team Approach 157

no real “conflict issue” or disagreement about a appointments if they are on regular follow-up.
specific issue and tends to erode relationships. Suitable arrangements by another physician or
However, avoid unsolicited advice. If needed, team mate should be provided when patients
take a break, or you may say, “I am sorry …I urgently need treatment.
lost my cool ….can we discuss about this later In the case of hospital patients, the physician
after things cool off?” going on leave must ensure effective hand
over procedures to a colleague to continue
Learn to Say, “I was Wrong” management. The colleague covering such
Apologizing when it is appropriate can be patients must agree, and the patient and his
particularly effective, especially to keep and relatives must also be made aware of this
develop a good relationship. There are no arrangement. Messages left on the pager or
winners or losers. The two of you are on the answering machines are considered discourteous.
same team and need to work together. It is an The physician or team mate standing
act of a true leader when you are able to admit in should have, as far as possible, similar
a wrong or mistake. qualifications, experience, knowledge and
skills as the physician proceeding on leave.
Don’t Feel Pressured to Agree Instantly This will enable the incoming physician to
perform the duties at par.
Try not to solve the problem prematurely.
“Let’s consider the next step and find the time Conclusion
to meet again.”
A growing body of literature indicates that
medical teamwork improves the quality,
Think About Possible Solutions safety, and cost-effectiveness of healthcare
Before Meeting delivery, and expectations for teamwork in
What do you really want? What might you give health care have increased. However, success
in order to get it? Is there a compromise you is highly dependent on organizational factors
can live with? Offer and ask for solutions. A such as leadership support, learning climate,
neutral third party may be useful. and commitment to data-driven change.12
Within primary care, it has been suggested
Think of Conflict Resolution as a that multidisciplinary team working is essential
Helical Process to develop an integrated approach to promoting
Handling conflict is not a linear process, and maintaining the health of the population
and conflicts are rarely resolved in one whilst improving service effectiveness.
interaction. Rather, participants return to Forming a healthcare team from diverse
the spiral, readdress issues at a higher level, groups of individuals with distinct abilities,
and sometimes regress before reaching a experiences, and values is a complex process;
resolution. Real progress is gradual, being built but when such a team works in harmony,
patiently, and often step-by-step. it heralds practice success, professional
fulfillment, and patient satisfaction. As Andrew
Carnegie aptly states,” Teamwork is the ability
Team Cover on Off-Duty or Leave5 to work together toward a common vision; the
Physicians on off-duty, or before proceeding ability to direct individual accomplishments
on long leave from practice, should give toward organizational objectives. It is the
advance notice to their regular patients, fuel that allows common people to attain
and whenever possible give alternative uncommon results.”

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158  Section 4: The Practice of Family Medicine
References 7. Deering S, et al. Multidisciplinary teamwork
and communication training. Semin Perinatol,
1. O’Connell MT, et al. Undergraduate Medical
2011;35(2):89–96. [PMID: 21440817: Abstract]
Education for the 21st century: Ledership and
Teamwork. Fam Med, 2004;36(January Suppl.): 8. Sehgal NL, et al. A multidisciplinary teamwork
S51–S56. training program: the Triad for Optimal Patient
2. General Medical Council, UK. Good Medical Safety (TOPS) experience. Gen Intern Med,
Practice. 2nd edn. 1998. 2008;23(12):2053–7. Epub 2008 Oct 2. [PMID:
3. Baker DP, et al. The role of teamwork in the 18830769: Abstract].
professional education of physicians: current 9. Spanager L, et al. Surgeons also need non-
status and assessment recommendations. Jt technical skills. Ugeskr Laeger, 2011;173(6):410–3.
Comm J Qual Patient Saf, 2005;31(4):185–202. Danish. [PMID: 21299932: Abstract].
[PMID: 15913126: Abstract]. 10. Rider Elizabeth. Twelve strategies for effective
4. Morrison G, et al. Team training of medical communication and collaboration in medical
students in the 21st century: would Flexner teams. BMJ, 2002;325:S45
approve? Acad Med, 2010;85(2):254–9. [PMID:
11. Rider EA, et al. A model for merging residency
20107351: Abstract].
programmes during health care consolidations:
5. Niraj L, et al. A Multidisciplinary Teamwork
a course for success. Medical Education,
Training Program: The Triad for Optimal
2003;37:794–801.
Patient Safety (TOPS) Experience. J Gen Intern
Med, 2008;23(12):2053–7. 12. Salas E, et al. What are the critical success
6. Web site : http://www.gmc-uk.org/guidance/ factors for team training in health care? Jt
good_medical_practice/working_with_ Comm J Qual Patient Saf, 2009;35(8):398–405.
colleagues_working_in_teams.asp. [PMID: 19719075: Abstract].

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19 Leadership

“The child: “what can you do for me?” The adolescent: “I want to do it alone.”
The adult: “Let’s do it together;” The leader: “What can I do for you?”
—Denis Waitley. “Empires of the Mind.”

Physicians as Leaders chairs, professional societies, and residents;


In today’s modern medicine, family physicians must know how to think in terms of both the
(FP) are as vital to the community as the individual patient and the community; must
general practitioners (GP) of the eighteenth practice with humane and technical qualities;
and nineteenth centuries—both FPs and must fight against the abuse of technology and
GPs normally being the point of first contact the fragmentation of healthcare; and is expected
within the healthcare system for patients, and to be prestigious, competent and polyvalent.3
they continue to provide the bulk of medical In addition to knowing the technical aspects
care even in today’s arduous ambulatory of medicine, the GP/FP must learn about the
healthcare system. The time honoured core applied aspects of epidemiology, behavioral
competencies, i.e. primary care management, science, environmental health, and basic health
patient-centerd care, specific problem solving economics that are relevant to general/family
skills, comprehensive approach, community practice. The World Health Organization’s
orientation, and a holistic approach underpin charter for general practice/family medicine
the fundamental principles for both GPs and in Europe states, “Although general practice
FPs, regardless of the age, sex, or any other is an old profession, its profile has been
characteristic of the person concerned. reshaped during recent decades, and adapted
However, modern medicine, characterized to emerging needs and new opportunities
by the enormous impact of rapid advances in following social and technical developments.
science and technology, has vastly enhanced the Several professional and scientific groups and
doctor’s professional capabilities and has made organizations have reformulated the status
the practice of medicine more intellectually and aims of general practice/family medicine
challenging.1,2 Unlike the GP of olden days, the (FM). In particular, there is a need for a clear
present-day FP plays a more complex role in the understanding of the role of GP/FM in many
process of ensuing the community’s healthcare countries of central and eastern Europe
delivery system. In order to succeed, the 21st and some other countries trying to improve
century GP/FP must be self-confident and professional support for the development of the
believe in oneself; must know how to cooperate primary healthcare concepts.”4
with other health care professionals at various A similar concern is voiced by Mark T.
levels—from medical directors, departmental O’Connell et al, who states, “The modern

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160  Section 4: The Practice of Family Medicine
healthcare delivery system is complex and Further, family physicians with appropriate
rapidly changing. The role and responsibilities skills are called on to guide students groups,
of physicians are evolving with these changes, residency programmes, hospital departments,
requiring new knowledge and skills for today’s managed care organizations, university
and tomorrow’s physicians. To optimally manage departments, professional groups and political
the care of individuals and groups of patients, organizations in building the stature of
physicians must understand how systems of family medicine.8 No one really knows what
care function, and how to effectively use those medical practices, academic health centers,
systems. Managing the care of individuals medical training programs, clinical services,
and populations often requires physician or research will look like in 5 years, let alone
participation in team-based efforts. High-quality 25 years from now.9
and effective clinical practice in this environment In such challenging times, wherein health
requires a physician to be a member, and often care is delivered by complex systems, often
a leader, of many teams that must work together involving large number of individuals and
to deliver health care in the United States.”5 organizations, it is especially important to
be able to imagine quickly and in detail, the
Changing Leadership Competency possible sequences of events leading to a very
It is evident that the medical education and different organization than currently exists.
health departments are undergoing as much It is important to understand the mission,
change as any part of an institution. This is needs, strength, and weaknesses of one’s own
especially true for family physicians in academic organization, and quickly create a favorable
health centers. Medical schools are restructuring scenario out of rapid changes. We need a fresh,
their curricula at all levels to provide integrated enduring strategy for viewing our potential
cost effective health care to the population and mapping our goals—goals that are truly
(Table 19.1). Teaching hospitals and medical worthwhile, believable and achievable.
centers are growing up to conduct health
services and outcome research that they ignored Physicians as Better Leaders
completely until very recent times.6, 7
In the present set up of healthcare system,
with the establishment of family medicine as
Table 19.1  The proposed six key leadership a specialty, and its institutionalization in an
competency domains academic faculty, who can make this happen?
1. T echnical skills and knowledge (regarding
Who can perhaps be nurtured to be the “leader”
operational, financial, and information systems, with character traits such as integrity, creativity,
human resources, and strategic planning), dedication, competency, assertiveness,
2. Industry knowledge (e.g. regarding clinical humility and magnanimity, and also inspire
processes, regulation, and healthcare trends),
3. P roblem-solving skills (to understand the others, assist in times of crisis, work within the
problem, create a plan to solve the problem, ethical framework, and impart knowledge and
seeing the plan through and reviewing the plan teach colleagues?10,11 In a medical organization,
to ensure that the problem is solved and is not
repeated), it has to be a physician, because, as a rule the
4. Emotional intelligence (the ability to perceive, entire staff and organization looks to him or
control, and evaluate emotions), her for leadership, guidance and vision. “It is
5. Communication (to communicate effectively;
to carry out the thoughts and visions of an
common knowledge that doctors have become
organization to the people), and leaders in various sectors of society. One of
6.  Commitment to life-long learning. the fundamental advantages a doctor has

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Chapter 19: Leadership 161

over others in leadership positions is his basic The traits demanding high leadership
training in studying and understanding human qualities may appear daunting to physicians
nature. With years of practice and experience, who have received at best informal training in
the doctor, a student of human nature, has leadership. The demands of being a competent
a good grasp of human behavior which physician, as well as community and academic
enables him to become a better leader”.12,13 Jeri leader are too rigorous for most physicians
Hepworth, PhD, in her presidential column to assimilate in a causal manner. As a result,
titled,” Leadership for the Future of Family many physicians shy away from a role in which
Medicine: STFM’s People and Power” states, “It they could make a tremendous impact.16
is not an accident that many in family medicine Actually, most leaders are made, not
are being asked to take on leadership roles born. As former President of United State
in our medical schools, hospitals, and health Eisenhower told his son, “The one quality that
care agencies. The skills of family phy­sician can develop by studious reflection and practice
educators are needed at all levels, and we can is the leadership of men”.9 While physicians
no longer wait to be asked. The stakes are too may not have extensive experience or formal
high. Be­cause we are passionate about medical training in leadership, they can build on the
education and the future of health care, we skills they use daily in clinical practice to
have a responsibility to seek these increased become a highly effective leader in any setting.
leadership positions.”14 Therefore, leadership skills should be part of
health services administration programs in
schools of public health, which should see
Developing Physician Leaders their mission as helping to identify and train
Leadership is critical in medical practice not leaders, not simply technical specialists in
only because of a line up of patients and staff management.17,18 The 1999 American Academy
expect it, but because quality improvement, of Physician Assistants (AAPA) Leadership
particularly quality service and patients’ Project Task Force Report (adopted 2003)
safety, which entail through planning and states, “Leadership skills can be learned
execution, demand leadership.15 The factors through a variety of methods and media,” and,
that underscore the need for developing “becoming a good leader is a lifetime process,
physician-leaders include: not a certification* (Table 19.2).”19,20
™™ Physicians may lack inclinations to Table 19.2  The top eight learning objectives related
to leadership from the highest rank in descending order
collaborate and to follow
1.  Leadership theories, styles, and functions
™™ Healthcare organizations pose challenging
2.  Team building
environments in which to lead 3.  Working with others
™™ Traditional criteria for advancement in 4.  Strategic thinking
5.  Strategic analysis and planning
medicine regard clinical and/or academic 6.  Motivating and empowering
skills rather than leadership competencies 7.  Conflict management
8.  Conducting a meeting
™™ Little attention is currently given to
training physicians regarding leadership Source: Leadership Advisory Commission survey of
competencies.4 155 AAPA leaders

*Ref. Appendix 7 “Distance education programme for physicians to become” “physician leaders in
healthcare”—JIMA-March 2011; vol. 109, No 3,p.ii.
web link < http://www.expresshealthcare.in201009/tradetrends01.shtml> Accessed on 18-11-2011

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162  Section 4: The Practice of Family Medicine
Characteristics of Leadership21 Leaders are Self-confident
Leaders Look Forward Self-confidence, self-assurance, self-
Leaders examine the current situation, look conviction are the hallmarks of a strong leader.
ahead to future possibilities, and recognize the There is magnetism about these leaders who
need for improvement. They then create a new are sure of themselves without having to say so.
system, or change the system from what it is to The simple appearance of confidence builds
what it should be. In keeping pace with rapid trust and a feeling of security in people who
changes, they introduce modern methods that report to them. It also builds trust and security
increase effectiveness and efficiency, lower costs, in the people who supervise them.
and encourage ideas to enhance productivity.
They learn how, why, and where things are Leaders are Courageous and Decisive
changing, so that they can expect the possibilities, Leaders try new ways to do something because
create fresh avenues and opportunities. they might be better. They don’t say, “We don’t
do it that way”, without a very good reason. And
Leaders Define Reality if the event fails, or a certain method doesn’t
Leaders often substantiate facts and figures work, leaders don’t lose faith or lay blame.
with evidence. Problems are analyzed to the When all the information is available, the
core and required information sorted out. The correct decision is usually obvious. The tough
results are put into action, which become a decisions are when all the data isn’t available
powerful stimulus for improvement, resulting and a decision has to be made any way. It takes
in enhanced performance. courage to make a decision that could be wrong.
Delay in decisiveness, procrastination is all clear
Leaders Take Initiative—Take Risks messages that the leader is demoralized, and no
Whatever they are trying to accomplish, one respects or follows a demoralized leader.
leaders take control of the situation and act
on their own convictions. They seek the work Leaders Maintain Integrity
they like, or from which they can learn. They
view mistakes as learning opportunities. They Integrity is the single most important
are skilled at critical thinking, and can find characteristic of competent leaders; it is the sine
possible reasons to reject a new idea. Leaders qua non of a trusted and effective leader. People
take that risk. Taking risks builds resistance are willing to be led by someone who is honest.
and self-confidence, which helps empower Being honest isn’t a matter of not lying—it is
them to strive toward a leadership position. taking the extra effort to display honesty. They
acknowledge their mistakes and admit failures
Leaders Like Colleagues, when something did not work. They do what is
Professionals, and People promised, and don’t promise what they can’t.
The best leaders care about people. They People without integrity and honesty may gain
show sincere interest in what others are doing, power, but they don’t truly lead.
and this recognition makes people feel good
about them and about the leader. They are Leaders are Preservers
approachable. The best leaders are humane. Persistence in the face of adversity is one of
They recognize their own weaknesses, which the cornerstones of resilience. Leaders stay
makes them more understanding of the resolute in their values and goals. They remain
weaknesses of the others. determined and self-disciplined in their efforts

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Chapter 19: Leadership 163

to achieve them. Persistence doesn’t mean to fully integrate family physicians into multi-
they feel discouraged. Rather, they remain disciplinary healthcare team.”
focused on the goal in spite of their feelings A leader is committed to this vision, and
of discouragement. They keep going because inspires others to action by analyzing their
they believe in what they are doing. goals with this vision. Without a clear vision,
it’s easy to be lead by the expectation of others.
Leaders are Teachers
Throughout history, leaders have naturally Establish an Advisory Board
served as teachers, coaches and mentors,
Although, medical profession puts a premium
and it is important to realize that the teaching
on self-reliance, everyone needs guidance and
goes beyond just the job at hand. Leaders
support. Some organizations retain old leaders
disseminate the skills of leadership as well, and
as advisors or mentors.
prepare the next generation of leaders for their
organization, and thus help people to develop One of the key assets of effective leadership
self-confidence, ambition, honesty, integrity, is having the right person in the right job,
courage, enthusiasm, and many such fine encouraging desirable behavior in others.
qualities essential for successful leadership. It enables to obtain assistance from several
experts. Each has a unique contribution to
make, without burdening any other person.
Tools for Leadership
The process of leadership is not something Establish Network
that can take place overnight. It needs hard
work, perseverance, and a strong desire to As the knowledge is expanding exponentially
improve—a desire to become an achiever. For in today’s information technology, it is
this, one needs to plan in earnest and define essential to have an efficient network. It
the kind of improvements you wish to see in enables to obtain updated information by the
the organization. Some useful methods to fastest route that may be essential in urgent
achieve these objects are: matters.

Create Your Vision and a Mission Become an Excellent Communicator


Statement A leader must communicate the vision in a
Successful leaders create a compelling vision way that energizes people and galvanizes
that gives a sense of direction and purpose. them toward action. The ability to gain the
It is a picture of the future to which you cooperation and support of others through
can commit. It expresses your values, the negotiation, persuasion, and influence
contribution of the team mates want to make, depends upon communication skill, which is
and the way the organization or the objectives essential for leadership.
have to progress for desired outcome. An
example of visionary statement could be: Group Discussion
“To develop outstanding family physicians who Group discussion is one of the best ways
have excellent clinical and communication to enlisting the cooperation to arrive at
skills; to emphasize patient dignity, personal best possible solution for any problem. For
responsibility and health maintenance as example, how will your practice respond
concepts critical to optimal healthcare, and if a new corporate hospital opens in your

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164  Section 4: The Practice of Family Medicine
community area? What is your group doing discipline or even dismiss fellow physicians.
to protect your patients’ loyalty? What will Persistent incompetence, disobeying rules,
you do to ensure that your group will survive or active undermining of work of the team
the competition? What methods can be should never be tolerated. Even though it is
implemented to document the enhanced painful to do it, leader must use power in such
quality and efficiency of care? What will you circumstance or quality will suffer.
do if your practice is brought by managed
caretakers? These and many other sudden Maintain Balance in Your Life
and unexpected situations demand rapid The best leaders are able to maintain a balance
responses to evaluate wide range of options in their lives. They believe that personal and
and quick actions. Physicians developing family times, as well as a healthy life-style are
leadership skills should study and practice their rights. They schedule their activities into
effective communication in the wildest their busy lives on a regular basis.
possible array of settings. They should listen,
read, talk and write as often as possible.
What Physicians should do When
Learn the Rules and Obey Them Asked to Lead?13,14 (Table 19.3)
Knowledge of the rules is vital. It helps the leader Asses the Task
which decisions he/she can make and which First try to get bird’s eye view. As you gaze
must be referred to higher authority. Rules make down, ask yourself: Whom do you serve?
it possible to figure out how to implement the What is the main thing expected of me? What
vision within the parameters of organization; it facilities and services are presently available?
helps to understand where the grey areas are, Are the physicians, nurses, receptionists,
and where it might be possible to innovate. and administrators in harmony with each
Knowing the rules of the organization and other? What is the status of physician-patient
respecting them is one way a leader can earn
the trust of his/her colleagues and subordinates. Table 19.3  Ten leadership action steps9

1. Acknowledge and accept your role and


Develop and Maintain a Support System responsibility as leader.
Taking the time to maintain supportive and 2. Read about leaders and leadership in all fields
and endeavors.
close connections with others, such as role 3. Ask others for their opinions and ideas.
models, referral agents and personal friends is 4. Listen to the opinion and ideas of others, both
necessary to attain and sustain the energy and solicited and non-solicited. Implement them
well-being you need to achieve career success. when you can.
5. Don’t be afraid to delegate.
Learn to delegate well. Leaders are clear about 6. Participate in processes when possible.
their expectations when giving assignments. Demonstrate interest and enthusiasm for staff
But don’t allow perfectionism to derail good events and activities.
7. Recognize the participation and contributions
delegating. Instead, they will help others to of others.
increase their own competence by proper 8. Be enthusiastic.
understanding of their expectations. 9. Make decisions. Then explain them—before,
during or afterward, depending upon the timing
and circumstances.
Leadership and Power 10. Let others make decisions. Give them authority
and accountability. It’s not power over others,
Leaders must occasionally use power, especially but “empowering” others.
in circumstances where the leader must

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Chapter 19: Leadership 165

relationship in the set up? How stable is the Every individual work and responsibilities
organization financially? What priorities stand should fit into that aim to achieve a common
out for quick implementation? As a leader, the goal. Leaders in medical practice need to have a
first job is to take a bird’s eye view. vision of how their practice, residency programs,
departments, hospitals or organizations could
Get to Know Your Customers do better. They must be able to communicate
In medical practice, the ultimate customers their vision to their customers.
are not physicians, hospital administrators, or
paramedical staff. They are those who use and Visit with Your Team
pay for services, namely, patients, employees This is sometimes referred to as “management
and taxpayers. It is essential to evaluate as by walking around”. You cannot know your
accurately as possible how they judge the practice staff, the work they do, or the patients
services. As a physician leader, you must bring you serve if you sit behind your desk. By visiting
this reality to your team. Make it a habit to go various departments and by being frequently
to them, invite them to your departmental present in the midst of your team’s work, you
meetings, hear what they say, and involve them gain a real sense of what is wrong and what is
in suitable policy decisions. possible. You make yourself available to hear
their concerns, complaints and suggestions.
Physician-Patient Relationship During the visit ask several questions, such
A physician’s primary responsibility is the as—“what is the stock position in drug store?
well-being of the patient. Therefore, it is Has drug expiry check been updated? How
critical to have a deep understanding of the efficient is the central oxygen supply system
nature of the physician-patient relationship. in ICU? Why frequent errors are reported in
Let patients know you are interested in them. patient billing system?” An understanding of
Do it with your eyes, your body language, in working of various departments and ancillary
any number of ways. Somehow let them know services is essential. Your regular visits help
you are sincerely interested. Spend time in real keep track of the progress made and evaluate
conversation with patient, gather useful data, the team against the standards set.
do statistical analysis, document them in terms
of words, graphs and picture in such a way that The Limits of Spoon Feeding
all members of the team share the value of As the physician leader you may be an
physician-patient relationship. Ultimately, it’s excellent diagnostician and a good problem
not just the knowledge, but also the humane solver. That does not mean that you should
aspect of their approach to patient’s needs, now solve the other doctors’ problem cases for
aspirations and care that they will notice. them, because you cannot provide leadership
in the form of solutions. You must enable the
Share Your Vision people in your office practice to analyze their
An important task is to begin a series of problems and find solutions, because as soon
discussions with team members to share your as one improvement is made, there will be a
ideas and objectives. You can then develop new problem to solve. If your practice staff
a “mission statement” that brings everyone cannot continually improve their work, if your
into agreement about the scope of the project organization cannot adapt and learn rapidly,
at hand and the purpose of the organization. you will have to do all the work yourself.

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166  Section 4: The Practice of Family Medicine
Drive out Fear intensive cultivation to flourish which will
An environment of fear or intimidation is enable them to take their right place in the
unhealthy in the progress of any organization. leadership of medicine for the 21st century.
In medical practice, if the nurses’ fears As physicians develop and practice their
physicians, and physicians in turn fear leadership skills, it’s worth recalling the advice
administrators, the ultimate result will be of the Chinese Philosopher Lao Tzu: “The best
a mismanaged patient. As a leader, you of all leaders is the one who helps people so
must make it clear to your staff that you are that, eventually they don’t need him.”
interested in learning the truth, even if it hurts, The physician-leader is responsible for
and that you are not looking for someone to developing future physician-leaders, the great
blame for problems. As a leader, your role is to leader models, mentors, monitors, motivate,
avoid the search for “bad apples”, rather, focus and multiply.
on improving the processes and systems in
which your physicians work. References
1. Lim P. Demands and challenges of modern
Improve Yourself medicine. Ann Acad Med Singapore, 2007;
36(8):698–701. [PMID: 17767343:Free Article].
Self-improvement is the need of the hour. 2. Starfield B. The future of primary care
Leaders have to spend time and effort on in a managed care era. Int J Health Serv
improving their own performance. This can be 1997;27(4):687–96. [PMID: 9399113: Abstract].
achieved by target reading, attending seminars 3. Gérvas J, et al. [Some causes (and solutions)
and workshops, viewing tapes and speaking with of the loss of prestige of general practitioners/
others, who might mentor you. One of the best family doctors. Against the discrediting of
ways to learn is simply to observe good leaders, heroes]. Aten Primaria. 2007;39(11):615–8.
notice the leadership process—what is the leader Spanish. [PMID: 18001645: Free article].
doing to establish harmony and to effect change? 4. A charter for general practice/family medicine
“Look for some one who has that Midas touch, in Europe – working draft. Report on a WHO
that Houdini, or Stradivari quality that will really meeting, Copenhagen, Denmark, 6–7 February
1998.
inspire you, motivate you, and guide you.”22 Act
5. Mark T. O’Connell, et al. Undergraduate
self-employed, but be a team player. Take “I”,
Medical Education for the 21st Century:
“me” and “mine” out of your vocabulary. This is
Leadership and Teamwork. Fam Med,
an amazing exercise of self-control. The benefit 2004;36(January suppl):S51-S56.
of working with a group of people comes when 6. Stoller JK. Developing physician-leaders: a call to
the synergy among members allows the group action. J Gen Intern Med. 2009;24(7):876–8. Epub
to achieve what no individual could do alone. 2009 May 20. [PMID: 19455370: Free full text].
7. Williams SJ. What skills do physician leaders
Conclusion need now and in the future; Physician Exec.
2001;27(3):46–8. [PMID: 11387895:Abstract]
Healthcare environment is rapidly changing,
8. Taylor RB. Leadership is a learned skill, Fam
and a growing number of physicians are being Pract Manag, 2003;10(9):43–48.
invited to lead clinical and academic medicine. 9. Magill MK. Becoming an effective physician
The skills physicians use in clinical practice leader. Fam Pract Manag, 1999;6(5):35–7.
are an excellent foundation for leader’s roles. [PMID: 10537795].
The seeds of leadership skills have been 10. Gustafson RP, et al. Who will lead? Physician Exec.
planted in physician’s practice, but they need 1997;23(8):37–40. [PMID: 10176685: Abstract].

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11. McKenna MK, et al. Development of physician Public Health, 1994;84(10):1569–72. [PMID:
leadership competencies: perceptions of 7943472. Free full text].
physician leaders, physician educators and 18. Kuo AK, et al. An innovative residency program
medical students. J Health Adm Educ, 2004; designed to develop leaders to improve
21(3):343–54. [PMID: 15379370: Abstract]. the health of children. Acad Med, 2010;
12. Woo KT. leadership. Singapore Med J, 2007; 85(10):1603–8. [PMID: 20703151: Abstract].
48(12):1069–73. [PMID: 18043833: Free Article].
19. Martins HM. Why management and leadership
13. Reinertsen JL. Physicians as leaders in the
education for internists? Eur J Intern Med, 2010
improvement of health care systems. Ann
Oct; 21(5):374–6. Epub 2010 Jul 13. [PMID:
Intern Med, 1998;128(10):833–8. [PMID:
20816587: Abstract].
9599196: Abstract].
20. Goldstein AO, et al. Teaching Advanced
14. Hepworth J. Leadership for the future of family
Leadership Skills in Community Service
medicine: STFM’s people and power. Fam Med,
(ALSCS) to medical students. Acad Med, 2009;
2011;43(6):442–4. [PMID: 21656404: Free Article].
84(6):754–64. [PMID: 19474554: Abstract].
15. Brown SW, et al. Lighting and leading the way.
In: Patient satisfaction pays. Aspen Publishers, 21. Legnini MW. Developing leaders vs training
Inc. Maryland 1993.pp.48. administrators in the health services. Am J
16. Darosa DA, et al. Barriers to Effective Teaching. Public Health, 1994;84(10):1569–72. [PMID:
Acad Med, 2011;86(4):453–9. [PMID: 21346500: 7943472. Free full text].
Abstract]. 22. Terri Sjodin—author, speaker, consultant,
17. Legnini MW. Developing leaders vs training and the principal and founder of Sjodin
administrators in the health services. Am J Communications.

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20 Addressing
Medical Errors

“The physician must have two special objects in view with regard to disease,
namely, to do good or to do no harm”
—Hippocrates

Introduction risks inherent in medical practice, and


biological variability among individuals.4
One of the most basic and oft-repeated Although technology is helping in some
quotations in medical lore, Premium non- ways, it is also causing a growing risk of new
nocere, i.e. first do no harm—a mandate unexpected adverse events. As Bernard
among physicians which has been an Lown, MD, winner of the noble peace prize
expression of hope, intention, humility, and states emphatically in his book, “The lost art
recognition that acts with good intentions may of healing”, “The reason for this shift includes
have unwanted consequences, and places the a romance with mindless technology, which
welfare of the patient above other concerns— is embraced in large measure as a means for
is one of our medical profession’s guiding maximizing income…diagnosis is performed
principles. But, in reality, most of us who look by exclusion, which opens floodgates for
back on our careers realize that medicine is a endless tests and procedures.” 5 This is a
human endeavor, and in fact most physicians problem that must be addressed. Even though
do make mistakes.1 Although the vast majority not a popular problem in health care, if not
of patients who have access to medical services critically tackled, it will get worse in the
today are healed, there are some, however, future.6 Atul Gawande, Associate Professor
who suffer unintended consequences of care. 2 of Surgery at Harvard Medical School, in his
The dictum often quoted in medical profession book “Complications: A Surgeon’s Notes on
is that every physician is vulnerable to errors, an Imperfect Science” argues—“Whether all
irrespective of competence and care. Many errors are truly preventable can be debated …
errors in health care are unknown and the total no matter what measures we take, medicine will
number may be unknowable.3 sometimes falter, and it isn’t reasonable to ask
The inevitability of adverse events* in that it achieve perfection….what is reasonable
medicine arises from human fallibility,** to ask is that medicine never ceases to aim for
negligent care, limits of medical knowledge, it.” 7 Therefore, what should be the attitude of

*The IOM defines “adverse event” as “an injury caused by medical management error rather than the
patient’s underlying disease or condition.”
**“To err is human” is a well-known saying that captures the fallibility of human beings. Humans are
fallible and as such they will make mistakes in their lives and work, be they builders, bankers or doctors.

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Chapter 20: Addressing Medical Errors 169

the medical profession? Once medical errors States in November, 199911, it is estimated that,
have occurred, and will continue as long as “... at least 44,000 Americans die each year as a
physicians remain fallible humans, should it result of medical errors ... the number may be
be accepted as a matter of fact and physicians as high as 98,000.”
withhold such information from patients since Although the IOM’s estimates have been
“what they don’t know can’t hurt them”; or, criticized, and its validity is being debated,12
should such information be honestly disclosed it’s to be noted that such mortality statistics are
to patients and appropriate measures taken to based on medical errors in hospitals—solely
redress and prevent any such errors in future?8 on inpatients’ errors, and most medical error
research has been performed in indoor hospital
New Approach—Acknowledge settings.* However, the majority of medical
care is provided in the ambulatory arena, with
Mistakes
an estimated 119.2 million visits to hospital
Since 1990, several studies have scrutinized OPDs and emergency departments, or 40.5
medical error. These publications mark a visits per 100 persons during 2006.13 Therefore,
break from the traditional secrecy surrounding considering the magnitude and the likely drastic
mistakes by physicians. A new approach in consequences of medical errors on ambulatory
medicine encourages physicians to acknowledge or primary care patients, “it is not possible to
mistakes, both to themselves and to others.9 learn about making health care safer for patients
The US President Mr. Obama, and the Secretary by limiting research to investigations that harm
of State Ms. Clinton, in their article, “Making patients in hospitals only”.14
Patient Safety the Centerpiece of Medical Thus, in order to broaden the horizons of
Liability Reform”, state: “A safe and appropriately medical errors, its health consequences, and
confidential environment must be created prevention, many health organizations in
that allows open communication between Europe and United States have initiated research
physicians and patients about adverse outcomes. to investigate this major clinical issue of medical
Initially, medical-error transparency may be errors with its focus on primary care settings,
difficult to foster. However, organizations that wherein medical errors are as much an issue as
have put disclosure programs into practice they are for hospital based providers.8 Hospitals
have been effective in resolving disputes represent a very small percentage of patient visit.
in a less adversarial manner, providing fair Outpatient care is significantly more common,
compensation, and improving patient care. more complex, and much less structured and
We believe that the National Medical Error regulated. Besides, patients are seldom at risk
Disclosure and Compensation (MEDiC) Bill of anesthetic or surgical complication as in
provides a common-sense solution that avoids hospital setup. So, it seems prudent to ask—are
the political pitfalls that have hampered other medical errors equally serious and perhaps
efforts to reform the medical liability system.”10 more prevalent in family practice? If so, what
can be done to avoid them?15
Medical Errors—Focus on Primary
Care Definition
According to the landmark report released What is a medical error? Despite a growing body
form Institute of Medicine (IOM) in United of literature and research on error in medicine,

*The report cited two studies, one based on hospital discharges in New York in 1984 and the other based
on discharges in Colorado and Utah in 1992.

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170  Section 4: The Practice of Family Medicine
few studies have defined or measured “medical has created an elegantly simple and functional
error”* directly. Instead, researchers have definition of medical error. It is “…. an error is
adopted surrogate measures of error that largely defined as: something in your own practice that
depend on adverse patient outcomes or injury,** should not have happened and that makes you
i.e. they are outcome-dependent (Table 20.1). Table 20.2 Assorted medical error definitions from
One study found 25 different definitions for error medical literatures
in the medical literature (Table 20.2).16 A lack • A failure to meet some realistic expectation (an
of standardized nomenclature and the use of action, process, diagnosis or endpoint) (Cosby KS)
• An act of commission or omission that caused, or
multiple and overlapping definitions of medical
contributed to the cause of, the unintended injury.
error have hindered data synthesis, analysis, (Wilson RM, et al)
collaborative work and evaluation of the impact • An act of commission or omission that
of changes in healthcare delivery.17 It’s obvious substantively increases the risk of a medical
adverse event. (Hayward RA, et al)
that these potential areas of confusion need • An adverse event or near miss that is preventable
further study. However, the American Academy with the current state of medical knowledge.
of Family Physicians National Network for (Foundation NPS)
• An unintended event, no matter how seemingly
research in family practice and primary care trivial or commonplace, that could have harmed
or did harm a patient. (Bhasale AL, et al)
Table 20.1  Glossary • An unintentional deviation from standard operating
procedures or practice guidelines.(Segen JC)
• Anything that happened in your own practice
Adverse Bad patient outcomes due to adverse that should not have happened, that was not
event drug-effects, nosocomial infections, anticipated and that makes you say, "That should
improper transfusions, retained objects, not happen in my practice and I don't want it to
decubitus ulcers, wrong-site surgery, happen again.(Dovey SM, et al)
peri-operative myocardial infarction, IV • Error…A commission or an omission with
line and catheter infections. potentially negative consequences for the patient
that would have been judged wrong by skilled
Error "The failure of a planned action to
and knowledgeable peers at the time it occurred,
be completed as intended (error of
independent of whether there were any negative
execution) or the use of a wrong
consequences. (Wu et al)
plan to achieve a medical outcome
• Errors in healthcare are by definition, human
(error of planning). Errors can include
errors, and human errors are errors in human
problems in practice, products,
actions.(Zhang J, et al)
procedures, and systems."
• Failure to meet reasonable expectations for goal-
Outcome or Procedure that identifies potential directed activity.(Pani JR, et al)
Root-cause causes of error within three main • Preventable incidents that result in a perceived
analysis domains of cause: harm. (Kuzel AJ, et al)
•  Human or cognitive error (e.g. error • The failure of a planned action to be completed
in judgment) as intended (i.e. error execution) or the use of
•  Organizational or system error (e.g. a wrong plan to achieve an aim (i.e. error of
insufficient staff) planning). (Forum NQ)
•  Technical or engineering error (e.g. • The failure of planned actions to achieve their
inexperienced operator) desired goal. (Reason J)

*A medical error is failure of a planned action to be completed as intended or the use of a wrong plan to
achieve an aim.
**Adverse events, on the other hand, can be defined as harm resulting from the process of medical care
rather than from the patients’ underlying disease.
It should be noted that the vast majority of medical errors are not associated with an adverse event (i.e.
do not cause harm). Similarly, most adverse events are not associated with a medical error and therefore
are not preventable.

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Chapter 20: Addressing Medical Errors 171

say: ‘that should not happen in my practice, and ƒƒ Wrong diagnosis.


I don’t want it to happen again’; it can be small ƒƒ Improper management of correct
or large, administrative or clinical—any thing diagnosis.
that you identify as something to be avoided in ƒƒ Prescription errors, such as wrong
the future.”8 drug, wrong dosage or duration, failure
to recognize drug-drug interaction,
Types of Errors illegible prescription, etc.
Most people believe that medical errors usually ƒƒ Failure to monitor drugs that require
involve drugs, such as a patient getting the wrong monitoring, such as digoxin, Insulin,
prescription or dosage, or mishandled surgeries, anticoagulants, etc.
such as amputation of the wrong limb. However, ™™ Errors of omission, i.e. patients are harmed
there are many types of medical errors. The as a consequence of, “What is not done,
following seven categories summarize types of but should have been done to prevent an
medical errors that can occur: adverse outcome”; for example:
™™ Medication errors, e.g. a patient receiving ƒƒ Failure to follow-up a test result, such
the wrong drug. as Pap smear.
™™ Surgical error, e.g. amputating the wrong ƒƒ Failure to inform patients of test result.
limb. ƒƒ Lack of necessary follow-up with
™™ Diagnostic error, e.g. misdiagnosis leading physician.
to an incorrect choice of therapy, failure ƒƒ Failure to coordinate care with
to use an indicated diagnostic test, consultants.
misinterpretation of test results, and failure ƒƒ Delay in diagnosis.
to act on abnormal results. ƒƒ Failure to provide proven disease-
™™ Equipment failure, e.g. defibrillators with
specific care.
dead batteries or intravenous pumps ƒƒ Failure to perform preventive care.
whose valves are easily dislodged or Table 20.3  Types of medical errors
bumped, causing increased doses of Diagnostic
medication over too short a period. •  Error or delay in diagnosis
•  Failure to act on results of monitoring or testing
™™ Infections, e.g. nosocomial and post-
•  Failure to employ indicated tests
surgical wound infections. •  Use of outmoded tests or therapy
™™ Blood transfusion-related injuries, e.g. a Treatment
patient receiving an incorrect blood type. •  Avoidable delay in treatment or in responding to
an abnormal test
™™ Misinterpretation of other medical orders,
•  Error in administering the treatment
e.g. failing to give a patient a salt-free meal, •  Error in the dose or method of using a drug
as ordered by a physician. •  E rror in the performance of an operation,
procedure, or test
Leape et al have characterized the types
•  Inappropriate (not indicated) care
of errors that resulted in medical injury in the
Preventive
Medical Practice Study as diagnostic, treatment, •  Failure to provide prophylactic treatment
preventive, or other errors (Table 20.3). •  Inadequate monitoring or follow-up of treatment
Other
Classification •  Equipment failure
•  Failure of communication
Errors can be classified as: •  Other system failure
™™ Errors of commission, i.e. patients are
Source: Leape, Lucian; Lawthers, Ann G; Brennan,
harmed as a consequence of, “What is done
Troyen A., et al. Preventing Medical Injury. Qual Rev
to them”; For example: Bull. 1993;19(5):144–9.

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172  Section 4: The Practice of Family Medicine
Understanding Errors in Family ™™ Errors due to gaps in “knowledge and
Practice skills”, (e.g. wrong diagnosis or treatment)
accounted for a minority of errors—just
The majority of people in a primary care
14%.
setting or family practice receive high quality
™™ Errors due to “System Failure”* accounted
care but, unfortunately, for some people, this
for 86%. These included lapses in patient
care may be potentially harmful. This could
follow-up, misfiling and/or never
be due to variety of factors that characterize
documenting receipt of lab work or
family practice, such as multiplicity of health-
consultations, miscommunication among
care providers and patient consultations.
families, physicians and patients, lack of
The IOM report highlights this problem as,
coordination among physicians’ offices
“the decentralized and fragmented nature
and hospitals, emergency department,
of the health care delivery system—or non-
skilled nursing facilities and home care.
system to some observers. When patients see
The physicians reported that 44% of their
multiple providers in different settings, none
errors led to adverse events; ten errors
of whom has access to complete information,
resulted in patients being admitted to
it becomes easier for things to go wrong”.
hospital and one patient died.
Furthermore, in a typical busy family practice,
In a similar group of studies 19 about
it’s impossible for physicians to give totally
medical errors in family medicine, the five
accurate medical care when only a brief time
error types most often observed and reported
is available for appointments for each patient.
by US family physicians were:
The IOM report concludes that, “the
™™ Errors in prescribing medications,
majority of medical errors do not result from
individual recklessness or the actions of a ™™ Errors in getting the right laboratory test

particular group—this is not a “bad apple” done for the right patient at the right time,
problem. More commonly, errors are caused ™™ Filing system errors,
by faulty systems, processes, and conditions ™™ Errors in dispensing medications, and
that lead people to make mistakes or fail to ™™ Errors in responding to abnormal
prevent them.” This is illustrated in a study laborator y test results. “Er rors in
in primary care office of US family physicians prescribing medications” was the only
which was designed to develop a preliminary one of these five error types that was also
taxonomy of primary care medical errors.18 commonly reported by family physicians
In this study the qualitative analysis of 344 in other countries.
medical reports made by 42 physicians were Most studies show that poorly designed
quiet different in character than hospital based “processes of care,”** and not individual
medical errors: physicians’ mistakes are the primary cause of

*“System” means any group of people (e.g. physicians, nurses, programmers); objects (e.g. signs,
equipments, computer system); and knowledge (e.g. medical training, hospital procedures) that come to
play in a particular healthcare process. The American Heritage Dictionary defines a system as "a group of
interacting elements functioning as a complex whole."
**Desired processes of care includes: the need for convenient access to providers (telephone, internet or
in person); clear communication of individualized care plans; support from a single coordinator of care
who can help prioritize their competing demands and continuity of relationships; providers who would
listen to and acknowledge their needs, appreciate that these needs are unique and fluctuating, and have
a caring attitude.

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Chapter 20: Addressing Medical Errors 173

error (Table 20.4). As the IOM report quoted These principles, in a nutshell, essentially
above stresses, “the problem is not bad people in mean that the physician is merely an advisor,
health care — it is that good people are working who can opine and suggest and not `force’ any
in bad “systems” that need to be made safer.” form of therapy. The physician is obligated
Although the major aspects contributing to help patients attain their own interests
to medical errors are due to system and and goals as determined by the patient. The
deficiencies in the process of care, it’s a time-honoured principle of “do no harm,
common knowledge that some share of prevent harm, and remove harm” should guide
medical errors and mistakes are also due to physicians while suggesting a treatment plan.
both physicians’ and patients’ behaviour and Every patient deserves and must be provided
approach to their illness (Table 20.5). optimal care as warranted by the underlying
medical condition and futile treatment and
Why should Doctors Disclose interventions that have no patho-physiologic
Medical Errors rationale need not be performed.
Practice of modern medicine all over the Table 20.5  Physician’s and patient’s traits in medical
world is governed by a code of conduct and errors
Ethics. It symbolizes the principles by which Physician’s:
a group defines itself. Ethical guidelines are • Casual attitude: everyone makes them, even the
very essential for medical profession, as this best physicians
profession handles the power of healing and • Substance abuse: physicians who are drunk or
on illicit drugs
deal with life and death. • Poor handwriting: causing errors in filling pre­
The cornerstone of medical ethics is the scriptions or tests
distinctive fiduciary nature of physician- • Poor dosage instructions: difficult to read
numbers, e.g. zeroes, decimal points—can cause
patient relationship.20 A fiduciary is, “one who dispensing wrong dosages
pledges to maintain a high-degree of trust, Patient’s:
loyalty, and truthfulness when acting on behalf • Delayed or failure to report symptoms: not
of the beneficiary”. As a fiduciary relationship, disclosing to the physician all their symptoms for
various reasons (embarrassment, thinking it will
it must rely on principles of autonomy, be irrelevant, the doctor didn't specifically ask
beneficence, non-maleficence, justice, and about it, denial that something is wrong, etc.)
fidelity at all times.21 • Failure to report other medications they are on,
either prescription or over-the-counter medi­
cations
Table 20.4  Errors in the system and process of care
• Failure to report other alternative medicines they
• Types of errors the system and process of care: are taking
– Administrative error • Failure to read medication labels and instructions
– Communication error fully
– Equipment malfunction • Non-compliance with treatment plan or medi­
– Failure to prevent injury cations: over-looked medications, financial
– Incorrect laboratory results troubles, laziness, etc.
– Medical procedure error • Dishonesty of patients: faking or malingering
– Medication errors factitious syndromes to obtain restricted drugs,
– Technical errors insurance fraud, getting time off work, etc.
• Primary cause of error: • Fear of legal issues: e.g. failure to admit to taking
– Carelessness/negligence illicit drugs
– Communication gap • Fear of social issues: e.g. failure to admit to
– Misread prescription or pharmacy error lifestyle or social habits
– Overworked staff • Fear of doctor's scolding: e.g. failure to admit to
– Untrained staff/incompetence not following treatments

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174  Section 4: The Practice of Family Medicine
It is, therefore, abundantly evident that Table 20.6  Reasons for non-disclosure of errors
the physician has a multifold ethical duty to Fear:
admit mistakes to the patient. The current • Fear of legal liability
opinion of American Medical Association’s • Fear of being blamed for negative patient outcome
• Fear of reprimand from physicians
AMA’s Code of Medical Ethics clearly states, “ • Fear patient will develop negative attitude
It is a fundamental ethical requirement that a • Fear of “telling” on someone else
physician should at all times deal honestly and Understanding:
openly with patients … Situations occasionally • Confusion over definition of error and near misses
• Disagreement with the organization’s definition of
occur in which a patient suffers significant error
medical complications that may have resulted • Providers unaware that errors occurred
from the physician’s mistake or judgment…. • Providers’ bias about which incidents should be
in these situations, the physician is ethically reported
• Some incidents, i.e. near misses, thought too
required to inform the patient of all the facts trivial/unimportant to report
necessary to ensure understanding of what • No perceived benefit
has occurred. Only through full disclosure Administrative/Management/Organization:
is a patient able to make informed decisions • Lack of feedback on reported errors
• Persistent culture of blaming the individual
regarding future medical care”.22 • Slow or poor administrative response to errors
Timely and openly disclosing an error or Burden of effort:
mistake would benefit patients. Knowledge • Reports take too long to complete
of an error could affect the patient’s decisions • Providers forget to make a report, too busy
• Contacting providers take too much time
regarding future care. The patient may even • Extra work involved in reporting
cooperate to facilitate physician’s management
to mitigate the burden of errors. Further, Source: Patient safety and quality. From Chap. 35-Error
physician’s candor about error may lessen, reporting and disclosure-an evidence-based handbook
for Nurses, ed. Ronald G. Hughes, Rockwell, April
rather than increase the medico-legal liability. 2008, Publication no. 08-0043. (PMID: 21328753: Free
Patients have a right to know about critical full text).
incidents even if they are not physically harmed
them. An important patient right is informed
consent. This means that if a patient needs occur, in reality, most doctors (and institutions)
a treatment, the healthcare provider should do not disclose such mishaps to patients and
give the patient the information the patient their families. Recent studies suggest that,
needs to make a decision.23 Non-disclosure of although the malpractice environment in
medical errors, therefore, interferers with the many organizations and countries such as
doctrine of informed consent since patients Australia, Canada, the United Kingdom, New
may not understand the reason or need for Zealand, and the United States is clearly
additional interventions to rectify undisclosed changing toward supporting physicians in
errors. It is, therefore, important to disclose effective and full disclosure of error, harmful
errors in order to respect autonomy and medical errors are infrequently disclosed
facilitate the process of informed consent. to patients.24 Incidentally, some healthcare
groups subdivide medical error into cases
that are not medically remediable and those
Why Doctors do not Disclose
that are medically remediable. 25,26 In the
Errors (Table 20.6) former non-remediable errors, physician’s
Although most doctors believe that errors disclosure should occur for all errors that
should be disclosed to patients when they involve significant harm to the patient case;

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Chapter 20: Addressing Medical Errors 175

and in the latter case, where there has been the criticism of the public and the freedom of
an error but the patient only experienced the media…still, legal channels are even now
minor, reversible harm that can be easily too slow in resolving such cases.30 However, not
corrected, physicians fear that mentioning withstanding the media hype, sweeping errors
the error would damage the relationship with under the carpet undermines public trust in
the patient, and this relationship is important medicine because patients feel that doctors
to the patient’s well-being. However, there is are more interested in protecting themselves
a significant gap between these beliefs and and their colleagues than their wellbeing. This
actual practice since currently, disclosure is a breach of professional ethics—a lapse in
occurs in only about one-third of these cases. the obligation to act only for the patient’s best
Research has clearly indicated that there interests.
are three barriers to disclosure of harmful
errors:27 System Redesign in
First, coping with medical error when it has Family Practice
occurred is never easy. Emotions and feelings The landmark Institute of Medicine report
such as vulnerability, fear of criticism, anxiety, stating that—“The majority of medical errors
etc. significantly erode self-esteem as well as do not result from individual recklessness
self-confidence, which make disclosure of or the actions of a particular group …more
errors difficult. Revealing an error to a patient commonly, errors are caused by faulty systems,
is often difficult and painful for the physician. processes, and conditions that lead people to
The patient may become angry and upset, make mistakes or fail to prevent them; thus,
and such reactions can be highly stressful to mistakes can best be prevented by designing
physicians. the health system at all levels to make it
Second, the fear of retaliation. Many safer—to make it harder for people to do
physicians fear that disclosing a serious something wrong and easier for them to do it
medical mistake will expose them to the risk right; but when an error occurs, blaming an
of malpractice suit, with the added financial individual does little to make the system safer
burden of increased malpractice premiums.28 and prevent someone else from committing
Further, subsequent to disclosure of medical the same error”—has focussed the attention of
error, physicians fear loss of referrals, hospital healthcare professionals on improving patient
admitting privileges, and even licensure. safety through changes in “systems” of care.
But doctors often fail to realize that a policy These reports resulted in a new paradigm
of honesty and active disclosure of adverse that, rather than centering on individual
events has been shown to reduce malpractice errors, focuses on the “systems” is necessary
claims.29 to facilitate and enhance quality and protect
Third, physicians fear, often justifiably, that patients. Leape, an internationally recognized
media may use their incident as fuel to fire a leader of the patient safety movement suggests
campaign against medical profession. Media three features of a system: first, it needs to be
can wreck professional careers of doctors objective, i.e. it needs to be based on data
when it reports genuine mistakes and errors and objective information and not opinion
in judgement as negligence. Public perception or personal feelings; second, it needs to
and reporting of medical malpractice is now be scrupulously fair, involving everyone’s
very common. In the last 20 years, the health performance, and not to be a stigmatizing
system has evolved in a way that it now “allows” event; and third, it needs to be responsive both

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176  Section 4: The Practice of Family Medicine
in terms of getting information back to the standardized format minimizes inappropriate
physician and in terms of taking action when variation in practice procedure that can
it is needed.31 lead to errors. Every system operating in
If errors result from system failures, not the physician’s office must have its own
people failures, and that achieving acceptable standardized protocol, which must be followed
levels of patient safety will require major meticulously.
system changes, what role can individual
physician play in rectifying the situation? Emphasize Error Avoidance when
The following five basic principles of system Training Medical Staff
redesign as suggested by Leape32 are:
Physicians and health care units should
Reduce Reliance on Memory provide thorough training to its staff that
focuses on possible errors and emphasizes
The medical system relies heavily on physician’s methods to them. A proper knowledge of the
memory. Physicians must remember diagnostic ground rules, use of checklist to ensure that
criteria, treatment options, dosage schedules, nothing is forgotten, and periodical orientation
monitor medicines, test reports, preventive programs provide office medical staff the
measures, and many such patient related necessary skills to recognize potential for error
records. By making a conscious habit of and to address errors when they do occur.
entering such items in checklists, reminders,
computer aids help ease this burden.
Apology as a System of Medical
Improve Information Access
Error Disclosure
I m p rov e d a c c e s s t o p at i e nt-s p e c i f i c Apology is an important expression of empathy.
information, such as treatment charts, test Offering an apology for harming a patient
results, and to knowledge database, such as should be considered to be one of the moral
electronic text books references, drug index, responsibilities of the profession of medicine.
allow physicians to have all the information An apology includes acknowledgment of
needed at the point of care so that they can the mistake or wrongdoing, acceptance
make the right decision in a timely fashion. of responsibility, expression of regret, and
assurance that the offense will not be repeated.
Strive for an Error-proof System Brown SW et al, in their book titled “ Patient
Satisfaction Pays”, call this as “Triple-A Action
The various systems operating in physician’s Plan”, which includes three steps, namely,
office or a healthcare delivery unit should Acknowledge, Apologize, and Amend,
work efficiently and in tandem. The systems of (Fig. 20.1) for service recovery. 33 An authentic
physicians, laboratory, pharmacy, etc. should apology must include repentance, which
communicate directly with all the updates encompasses two essential elements: the
belonging to the patient. A computer alert- expression of sorrow and the admission of
system should be incorporated in various wrongdoing. The absence of either, renders the
systems as a safe guard to prevent any errors. apology incomplete and thus transforms it into
a “botched apology.”34 Indeed, the botched
Standardize Processes of Care apology not only fails to inspire forgiveness
A uniform approach to patient’s health but instead may create even further harm and
problem which is documented serially in a fuel bitter vengeance.

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Chapter 20: Addressing Medical Errors 177

the physician, an apology can help diminish


feelings of guilt and shame. For the patient, it
can facilitate forgiveness and provide the basis
for reconciliation.
The process of apology should be followed
by suitable measures (amendments) in trying
to prevent future errors.
A Colorado-based medical liability carrier,
COPIC Insurance Company, has employed
Fig. 20.1  Triple ‘A’ action plan—steps to service an early intervention program called the “3Rs
recovery program”, standing for recognize, respond, and
resolve. The program emphasizes disclosure,
transparency, apology, and patient benefits.36
When medical errors occur, an apology from
Of course, the apology may be extremely
the attending physician can be beneficial to the
unpleasant, humbling, humiliating, and
patient/family and the healthcare provider(s).
may be regarded as a stain on the physician
The purpose of the apology is to convey a
personally and professionally. The apology
human, compassionate, and empathetic
may be misconstrued by the patient as legal
response to the patient’s misfortune. Such
weakness on the physician’s part. It could
conduct by the physician is reasonable, and
be in conflict with the liability insurance
indeed, apology in the setting of medical errors
contract. And it might be introduced as
is becoming increasingly acknowledged by
evidence of wrongdoing in court in a
governments and codified in law.35
subsequent proceeding.37 Thus, under certain
Full and honest disclosure of errors is most
circumstances, the link between litigation risk
consistent with the mutual respect and trust
and the practice of disclosure and apology may
patients expect from their physicians. Most
be questionable, and for any one physician, the
patients’ families are incredibly forgiving if they
outcome of a particular error disclosure may
are informed about a situation that may have
not be so favorable.38,39
resulted in an error. They are even more forgiving
if they get a personal apology. It doesn’t have to
Eliminating Errors in Family
be an acceptance of guilt, just an “I am/we are…
so sorry that this event has occurred to you.”*
Practice—Current Trends
An apology can have profound healing No matter how well organized a practice, how
effects for all parties. Apology by a com­ knowledgeable and understanding the staff
passionate physician benefits the patient or how quality oriented the attitude, errors
by easing the worry, decreasing anxiety, will happen. Therefore, the ultimate purpose
and alleviating confusion, thereby causing of analyzing errors is to learn how to avoid
immediate and significant positive effects. them by developing administrative, clinical
Patients feel that some of their questions and therapeutic systems, which assist family
have been answered and are reassured by physicians toward this goal. The following are
their physician’s continuing support. For some of the important events:

*Ref. Chapter no. 30 “Communicating Bad News”, for the details of how to communicate with patients
after adverse outcome.

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178  Section 4: The Practice of Family Medicine
Developing Taxonomy of Errors in e.g. Av Med Health Plan. 40 These devices
Primary Care are installed at patient’s home and assess
critically various health parameters. The data
The American Academy of Family Physicians
is transmitted to physician’s office directly and
(AAFP), in association with family doctors in
the monitoring system gives early warming for
the United States, Australia, Canada, England,
any corrective action to be taken, thus reducing
Germany, Netherlands, and New Zealand
morbidity and mortality considerably.
have undertaken research project to classify
errors in primary care, chaired by Dovey. Electronic Medical Records (EMRs)41
This study will help develop and validate a
Today, with the availability of inexpensive
classification system which will be useful to
EMRs, family physicians are designing their
collect, categorize, and analyze errors in family
own administrative systems to avoid errors
practice. They have developed taxonomy or
and document the quality of care they provide.
description of medical errors in which there
In most contemporary software packages,
are more than 500 different types of errors
different elements of the chart are accessible
occurring in primary care practices. As Dovey
through graphic user interface methods
emphasizes, “… we can demonstrate that
that allow the user to move easily from one
these are not trivial concerns they can and do
part of the record to another. In addition to
hurt patients, precipitate their admission to
having the ability to enter text, the user can
hospitals, and sometimes contribute to their
navigate through the record and gain access to
death. They are important, redeemable, and
progress notes, lab reports, insurance forms,
they need to be fixed”.12
prescription, medications, or perform countless
other clinical and administrative tasks.
Establish a Patient Safety Center12
An extension of EMR is the “decision
It is a computerized, web-based error reporting support-system”, which assists physicians
system that meets federal confidentiality in medical decision-making. “Diagnostic”
standards. Based on the feedbacks from decision support systems integrate clinical
physicians, more than 185 practical solution findings (e.g. signs, symptoms, and test results)
have so far been offered to medical errors in with disease profiles to produce probability
primary care. This international study has based pairings of findings and diseases,
given clues into how GP’s in some countries while “therapeutic” decision support permit
do things more safely than other countries. the physician to generate a patient-specific,
The patient safety center even encourages disease-specific treatment plan, including
physicians to participate even in an medication prescriptions, patient education
“anonymous error-reporting system”, which and diet therapy.
has now become a “powerful method of The clinical and administrative staff
promoting positive change in the quality of will save time by automating repetitive
care provided by general practitioners”.12 tasks, reduce malpractice by maintaining
updated, secure, and complete information
Computerized Disease-specific Health for determining a course of treatment, and
System improve patient education and compliance.
These are customized to patient’s requirements Although EMRs can help reduce errors,
are now available from private agencies, it can also cause errors.* For example, if two

*A computer maxim states, “To err is human but to really foul things up requires a computer.”

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Chapter 20: Addressing Medical Errors 179

medications that are spelled similarly are ™™ Psychological: Physicians have concerns
displayed next to each other, substitution errors regarding the use of EMRs that are based
can occur. Furthermore, many computerized on their personal issues, knowledge, and
physician order entry systems lack even basic perceptions. The physicians without
screening capabilities to alert practitioners to an EMR doubt that EMRs can improve
unsafe orders relating to overly high doses, patient care or clinical outcomes. Other
allergies, and drug–drug interactions. Also, researchers have stated that those who are
clinicians may write an order in the wrong unwilling to use such a system are skeptical
patient’s record. 42, 43 about claims that EMRs can successfully
In a recent systematic literature review,44 improve the quality of medical practices.
based on research papers from 1998 to This creates a personal resistance to the
2009, conducted concerning barriers to the adoption of EMRs.
acceptance of EMRs by physicians, eight main ™™ Social: Lack of technical skills and support
categories of barriers, including a total of 31 from external parties such as vendors,
sub-categories, were identified. These eight subsidizers, insurance companies,
categories are: patients, administrative staff, and managers
™™ Financial: The monetary aspect was an impedes physicians in further adopting the
important factor for many physicians, and system.
includes those related to the monetary ™™ Legal: EMRs deal with medical information
issues involved in implementing EMRs, on patients, and this should be treated
i.e. involving purchasing, coordinating, as private and confidential. Physicians
monitoring, upgrading, and governance believe that keeping such information
costs. The questions commonly facing safe is very important, because otherwise
physicians are whether the costs of it could create legal issues.
implementing and running an EMR system ™™ Organizational: Physicians work in
are affordable and whether they can gain a medical practices and hospitals, and the
financial benefit from it. organizational characteristics of individual
™™ Technical: A certain level of computer skills practices will be a factor in the adoption
by both venders and users (the physicians) of EMRs. Physicians in different sizes and
is required. Further, there are still some types of practices may well have different
technical problems with EMRs, which lead attitudes toward EMRs.
to complaints from physicians, and they ™™ Change Process: Implementing EMRs in
need to be improved. Therefore, barriers medical practices amounts to a major
exist related to the technical issues of the change for physicians who tend to have
systems, the technical capabilities of the their own unique working styles that
physicians and of the venders. they have developed over years. This can
™™ Time: The introduction of EMRs will slow a make them unwilling to make or adapt to
physician’s workflow, as it will always lead changes in their work.
to additional time being required to select, In order to study the various aspects
implement and learn how to use EMRs, of causes and prevention by computer
and then to enter data into the system. As information technology, a multinational
a result, their productivity will be reduced research is underway, chaired by Dovey
and their workload will be increased. This “This is a critical research for primary care
can cause financial problems, such as a providers in several countries who are on the
loss of revenue. verge of making a wholesale commitment to

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180  Section 4: The Practice of Family Medicine
computerized process (Australia, the US, and “Five Steps to Safer Health Care,”46 developed
Canada) and for providers in other countries by the U.S. Department of Health and Human
(New Zealand, England, and Germany), who Services in partnership with the American
have used computers for sometime, but may Hospital Association and the American Medical
be not in the best way.12 Association gives following tips to help improve
Note: Anybody interested in being involved the safety of their health care.
in the above research project, may please
contact—“sdovey@aafp.org”) Ask Questions
Ask questions if you have doubts and concerns,
How to Cope with Clinical Errors45 and make sure you understand the answers.
Mistakes are a natural part of practice; Take a relative or friend with you to help you
perfectionism is an impossible goal. Hence, ask questions and understand the answers.
following strategies are helpful in coping with
medical errors: Keep and Bring a List of All the
™™ Accept responsibility for your mistake. Medicines You Take
™™ Discuss the error with colleagues,
Give your doctor and pharmacist a list of
supervisors, or close family or friends; this
all the medicines that you take, including
will help you put the error into perspective,
non-prescription medicines. Tell them about
while providing professional reaffirmation
any drug allergies you have. Ask about side
and personal reassurance.
effects and what to avoid while taking the
™™ Reveal the error to the patient and offer an
medicine. Read the label when you get your
appropriate apology.
medicine, including all warnings. Make sure
™™ Analyze the error.
your medicine is what the doctor ordered and
™™ Implement measures to prevent future
know how to use it. Ask the pharmacist about
errors.
your medicine if it looks different than you
In order to minimize emotional damage to
expected.
the patient and his relatives and to improve the
quality of medical practice, acknowledgement
Get the Reports of any Test or Procedure
of having made a mistake comes first.
Thereafter management with respect to the Ask when and how you will get the results of
patient or his relatives should be established tests or procedures. Don’t assume the results
with aid of the group. Guidelines are: make an are fine if you do not get them when expected,
appointment with the patient without delay; be it in person, by phone, or by mail. Call your
take ample time and avoid disturbance; listen doctor and ask for your results. Ask what the
to the patient and respect his feelings; express results mean for your care.
regret with regard to the consequences for
the patient; contact the patient again after Talk to Your Doctor About Best
an interval to check if new questions have Hospital for Your Health Needs
arisen. This approach is helpful in restoring
Ask your doctor about which hospital has the
the patient-doctor relation after a mistake.
best care and results for your condition if you
have more than one hospital to choose from.
What Patients can Do Be sure you understand the instructions you
Patients are an important resource in lowering get about follow-up care when you leave the
the rate of medical errors. The fact sheet entitled hospital.

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Chapter 20: Addressing Medical Errors 181

Make Sure You Understand What will the issues surrounding medical errors. Errors
Happen if You Need Surgery should be regarded as an opportunity to learn
that health care should to be patient centered
Make sure you, your doctor, and your surgeon
and not physician centered.
all agree on exactly what will be done during
No system is fail-safe unless the patient is
the operation. Ask your doctor, “Who will
central in the minds of those who administer
manage my care when I am in the hospital?”
drugs or procedures.48
Ask your surgeon:
™™ Exactly what will you be doing?
™™ About how long will it take?
References
™™ What will happen after the surgery? 1. Makeham MA, et al. An international taxonomy
™™ How can I expect to feel during recovery? for errors in general practice: a pilot study. Med
Tell the surgeon, anesthesiologist, and J Aust. 2002;177(2):68–72. [PMID: 12098341:
nurses about any allergies, bad reaction to Free article].
anesthesia, and any medications you are 2. Nalini Singh, et al. Primum Non Nocere.
The Society for Healthcare Epidemiology of
taking.
America. Infect Control Hosp Epidemiol. 2008;
29:S1-S2.
Conclusion 3. Bender NL. Action to improve patient safety:
The prevalence of medical errors in health “safety” prone health care systems. Ambul
care systems has generated immense interest Outreach. 2000 Spring: 6–13. [PMID: 11067446:
in recent years. Abstract].
Although physicians may be instrument 4. Fischer G, et al. Adverse events in primary care
in providing care to patients, the total patient identified from a risk-management database.
care needs support from various “systems” J Fam Pract. 1997;45(1):40–6. [PMID: 9228913:
Abstract].
to minimize medical errors. Indeed, because
5. L ow n B erna rd. Ma l prac tic e c or r u pts
the “system” is now the focus of quality, all
healing. In: The lost art of healing-practicing
members of the healthcare team assume
compassion in medicine. Hay House India,
an even grater role; they must be vigilant First Indian Ed. 2009. pp.156–57.
of all aspects of care and note all actual and 6. Bender NL. Action to improve patient safety:
potential sources of error, going beyond their “safety” prone health care systems. Ambul
traditional activities and observations. Outreach. 2000 Spring: 6–13. [PMID: 11067446:
When serious error occurs, it may Abstract].
be difficult to ascertain the cause or the 7. Gowande A. Complications. New York.
responsible party; but keeping quiet and Penguin Books. 2002.
hoping the error passes unnoticed is the worst 8. Edwin A. Non-disclosure of medical errors an
policy. egregious violation of ethical principles. Ghana
Malpractice suits are largely the conse­ Med J. 2009;43(1):34–9. [PMID: 19652753: Free
quences of depersonalized medical practice. full text].
9. Karlsen KA, et al. Medical error reporting
When practice is time-intensive rather than
in America: a changing landscape. Qual
technology-intensive, and focused on the
Manag Health Care. 2009;18(1):59–70. [PMID:
primacy of caring, there need be little worry 19148030: Abstract].
about litigation.47 10. Clinton HR et al. Making patient safety the
The health care professionals, both in centerpiece of medical liability reform. N Engl
primary and secondary care, are beginning J Med. 2006;354(21):2205–8. [PMID: 16723612:
to demonstrate a better grasp of reality and Free article].

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182  Section 4: The Practice of Family Medicine
11. Sox Jr HC,et al. How many deaths are due to 24. Levinson W, et al. Disclosing medical errors to
medical error? Getting the number right. Eff patients: a status report in 2007. CMAJ. 2007;
Clin Pract. 2000;3(6):277–83. [PMID: 11151524: 177(3):265–7. [PMID: 17664451: Free full text].
Free full article]. 25. Wu AW, et al. To tell the truth: ethical and
12. McDonald CJ, et al. Deaths due to medical practical issues in disclosing medical mistakes
errors are exaggerated in Institute of Medicine to patients. J Gen Intern Med. 1997; 12(12):770–
report. JAMA. 2000;284(1):93–5. [PMID: 5. No abstract available. [PMID: 9436897: Free
10872021: Abstract]. full article].
13. Pitts SR, et al. National Hospital Ambulatory 26. Palmboom GG, et al. Doctor’s views on
Medical Care Survey: 2006 emergency disclosing or withholding information on
department summary. Natl Health Stat Report. low risks of complication. J Med Ethics. 2007;
2008;(7):1–38. [PMID: 18958996: Abstract]. 33(2):67–70.[PMID:17264190 :Free full text].
14. Dovey SM. Advancing understanding of 27. Kalantri SP. Medical errors and Ethics. Indian
medical errors in general practice: A discussion J Anesth. 2003;47(3):174–5.
of recent research from American Academy of 28. Dove JT, et al. Medical professional liability
Family Physician NZFP. 2003;30(4). and health care system reform. J Am Coll
15. Rivo ML. Can we avoid errors in family Cardiol. 2010;55(25):2801–3. [PMID: 20579535:
practice? Fam Pract Management July – Aug Abstract].
2002.
29. Helmchen LA, et al. How does routine
16. Elder NC, et al. What do family physicians
disclosure of medical error affect patients’
consider an error? A comparison of definitions
propensity to sue and their assessment of
and physician perception. BMC Fam Pract.
provider quality? Evidence from survey
2006;7:73. [PMID: 17156447: Free article].
data. Med Care. 2010; 48(11):955–61. [PMID:
17. Sandars J, et al. The frequency and nature of
20829723: Abstract].
medical error in primary care: understanding
30. Škaričić N. (Un) responsible health system -
the diversity across studies. Fam Pract. 2003;
system or chaos? Croat Med J. 2010;51(6):568–
20(3):231–6. [PMID: 12738689: Free Article].
70. [PMID: 21162171: Free full text].
18. Royal S, et al. Interventions in primary care
to reduce medication related adverse events 31. Leape LL. When good doctors go bad: a systems
and hospital admissions: systematic review problem. Ann Surg. 2006;244(5):649–52.
and meta-analysis. Qual Saf Health Care. 2006; Review [PMID: 17060752: Free full article].
15(1):23–31. [PMID: 16456206: Abstract]. 32. Leape LL, Errors in Medicine. JAMA. 1994;272
19. Dovey SM, et al. Types of medical errors (23):1851–7.
commonly reported by family physicians. 33. Brown SW, et al. Patient satisfaction pays -
A m Fa m P h y s i c i a n . 2 0 0 3 ; 6 7 ( 4 ) : 6 9 7 . Service recovery: When things go wrong, what
PMID:12613722: Free full article]’ makes them right. An Aspen Publication. 1993;
20. Faunce TA, et al. Fiduciary disclosure of medical 318–25.
mistakes: the duty to promptly notify patients 34. Berlin L. Will Saying “I’m Sorry” Prevent a
of adverse health care events. J Law Med, Malpractice Lawsuit? AJR Am J Roentgenol.
2005;12(4):478–82. [PMID: 15957590: Abstract]’ 2006;187(1):10–5. [PMID: 16794148: Free
21. Gillon R. Doctors and patients. Br Med J (Clin Article].
Res Ed). 1986;292(6518):466–9.[PMID:3081128: 35. Wei M. Doctors, apologies, and the law: an
Free full text]. analysis and critique of apology laws. J Health
22. Website < http://www.ncbi.nlm.nih.gov/books/ Law. 2007 Winter;40(1):107–59. [PMID:
NBK20549/> (Assessed on 17-11-2011). 17549933: Abstract].
23. We b s i t e < h t t p : / / w w w . n l m . n i h . g o v / 36. Quinn RE, et al. The 3Rs program: the Colorado
medlineplus/patientrights.html> (Accessed experience. Clin Obstet Gynecol. 2008;
on 17-11-2011). 51(4):709–18. Review [PMID: 18981795].

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Chapter 20: Addressing Medical Errors 183
37. MacDonald N, et al. Medical errors, apologies 44. Boonstra A, et al. Barriers to the acceptance
and apology laws. CMAJ, 2009;180(1):11, 13. of electronic medical records by physicians
English, French. [PMID: 19124780: Free full text]. from systematic review to taxonomy and
38. Mazor KM, et al. Health plan members’ views interventions. BMC Health Serv Res, 2010;
about disclosure of medical errors. Ann Intern 10:231. Review [PMID: 20691097: Free full text].
Med. 2004;140(6):409–18. [PMID: 15023706: 45. West CP, et al. Association of perceived medical
Abstract]. errors with resident distress and empathy: a
39. De Cremer D, et al. How important is an apology prospective longitudinal study. JAMA. 2006;
to you? Forecasting errors in evaluating the 296:1071–8.
value of apologies. Psychol Sci, 2011;22(1):45–8. 46. Five Steps to Safer Health Care. Patient Fact
Epub 2010 Dec 1. [PMID: 21123857: Abstract]. Sheet. AHRQ Publication Number 04-M005,
40. Rivo ML. Can we avoid errors in family practice. February 2004. Agency for Healthcare Research
Fam Pract Management July – Aug 2002. and Quality, Rockville, MD. http://www.ahrq.
41. Computing for doctors. Chip special - gov/consumer/5steps.htm (Accessed on 17-
Computing in focus. Jasubhai Digital Media: 78 11-2011).
42. Bates DW, et al. Rreducing the frequency 47. L ow n B erna rd. Ma l prac tic e c or r u pts
of errors in medicine using Information healing. In: The lost art of healing-practicing
Technology. J Am Med Inform Assoc. 2001; compassion in medicine. Hay House India,
8:299–308. First Indian Ed. 2009. pp.154.
43. Loomis GA, et al. If electronic medical records 48. L ow n B erna rd. Ma l prac tic e c or r u pts
are so great, why aren’t family physicians using healing. In: The lost art of healing-practicing
them? J Fam Pract. 2002;51(7):636–41. [PMID: compassion in medicine. Hay House India,
12160503: Abstract]. First Indian Ed. 2009. pp.156.

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21 Medical Records

“Testimony based on recorded facts is given as greater consideration than


testimony dependent on memory”.
“In the present days of medical practice, documentation has become more
and more important; it has now reached a point that if something is not documented,
it is de facto considered not to have happened”.

Introduction Table 21.1  Purposes of the medical record*

• To act as a working document for day-today


Creating and maintaining medical records
recording of patient care
(MR) is an integral part of medical practice. The • To store a chronological account of the patient’s
existence of MR dates back to emperor Ashoka’s life, illnesses, its context and who did what and
time when individual physician developed to what effect
a practice of keeping records. Western world • To enable the clinician to communicate with him-
or herself
(USA and European nations) is practising MR • To aid communication between team members
keeping since last 200 years; in our country in • To allow continuity of approach in a continuing
spite of tremendous advances in medical audit, illness
accreditation and medical insurance systems in • To record any special factors that appear to affect
private and public sectors, the MR keeping is still the patient or the patient’s response to treatment
• To record any factors that might render the
in nascent stage.1,2 patient more vulnerable to an adverse reaction
to management or treatment
• To record risk assessments to protect the patient
Purpose of Record Keeping and others
Well-kept MRs are the hallmark of good medical • To record the advice given to general practitioners,
other clinicians and other agencies
practice. The MR has many functions, the most
• To record the information received from others,
important of which are listed in Table 21.1 MRs including carers
give a clear and accurate picture of the care • To store a record to which the patient may have
and treatment of patients and assist in making access
sure they receive the best possible clinical care. • To inform medico-legal investigations
They help doctors to communicate with other • To inform clinical audit, governance and accreditation
• To inform bodies handling complaints and inquiries
doctors, with other healthcare professionals
• To inform research
and with themselves, and are essential to ensure • To inform analyses of clinical activity
that an individual’s assessed needs are met • To allow contributions to national data-sets,
comprehensively and in good time. morbidity registers, etc.
Besides documenting the patient’s history,
*Adapted from: Scottish Records (1995) Case records: Good
physical findings, investigations treatment practice group; CRAG good practice statement. Edinburgh.
and other related data, it shows how clinicians HMSO. Government publication.

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Chapter 21: Medical Records 185

assessed the problems, what actions they took, ™™ Record accurately date; also include the
and how the patient responded to their efforts. time that you are writing notes.
An accurate, clear, well organized record ™™ Record all data—both positive and
reflects and facilitates: negative—that contribute directly to your
™™ High standards of clinical care, assessment. They should be as objective
™™ Continuity of care, as possible. Hostile or demoralizing
™™ Better communication and dissemination comments should be avoided.
of information between ™™ Avoid using personal unexplained
™™ Physicians, abbreviation. Other physicians must be
™™ To detect complication at an early stage, and able to understand whatever you have
™™ Documentation of evidence for medico- documented. Employ abbreviation and
legal purpose. symbols only if they are commonly used
Such records should be accurate, legible­, and understood.
comprehensive, up-to-date, and contribute to ™™ The record must be legible. Not only the
easy recall of patient information for continuity physician who writes the notes should
and follow-up of patients, as well as for future be able to read, it should be reasonably
references, such as research. comprehensible to others as well. Use of a
dictation service or other documentation
Standards in Medical modality assures that the medical records
are legible. Diagrams, explaining certain
Record-keeping
physical findings, add greatly to the speed
In the present days, due to heterogeneous and ease of communication.
pattern of healthcare, involving plethora of ™™ The medical record should accurately
healthcare providers and institutions has led to document all evaluations, treatments,
fragmentation of patient medical records, with patient compliance problems, follow-
no single body responsible for maintaining a up advice, reasons for omitting specific
comprehensive record. There is no single model tests or treatment protocols, physician
for a record. In general it may be stated that referral notes, all telephone conference with
the best record is the one that is evaluated and patients and family members, including
adapted in response to the needs of individual phoned-in prescription and medical advise.
and/or inter-professional health care team in the ™™ Be sure to document all explanations with
context of the patient and the local healthcare the patient relating to care and treatment
regulatory authorities. Thus records may including with respect to informed consent
differ depending on the needs of the patient or issues. At every point, should any objection
institution. The record must, however, follow be raised by the patient and clarification
a logical and methodical sequence with clear sought, the patient should be carefully
objectives. Structuring the record can bring heard out and necessary information
direct benefits to patients by improving patient offered to clear doubts or apprehensions.
outcomes and doctors’ performance.3-5 However, refusal by the patient for specific
treatment or procedural investigation
Content and Style should be recorded in the note. In the case
There are number of factors that contribute to of a minor, consent should be obtained
effective record keeping. Following guidelines from the parent or guardian.
may be useful:6,7 ™™ Notes once written should not be altered
™™ Accurate patient/family identification data. or erased, or new words added after a lapse

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186  Section 4: The Practice of Family Medicine
of time, as these may indicate defensive ™™ A clear form of communication to
action by the physician in the event of discuss management/prognosis between
unexpected eventualities in the course of physicians, and
patient management. ™™ A testimonial to the quality of care being
™™ If new information has to be added, it delivered to that patient by the medical
should be done in a new note that is dated team in charge of his care.
as of the time of updated or corrected Unfortunately, few of us can say in all honesty
information. All notes should be signed in that our records uniformly match the above
the order of date, time, and events. description. More commonly, the record consists
™™ All records should be documented as soon of a disorganized collection of facts, comments
as possible, before the data fade from and opinions about the case. It’s a common
memory. experience to many physicians to find X-ray
reports in one section, laboratory data in another,
Practical Ways of Improving the history and physical findings in a third, the
Record-keeping8* consultants’ opinions in yet another. Under such
a system (really a non-system), aspects of the
™™ Personally sign all typed letters and entries
patient’s illness are all too frequently ignored or
on the case record.
forgotten. Also, because MRs do not conform to
™™ Sign and write name in block capitals for any given single format, assessing their accuracy,
clear identification of handwritten entries. completeness and quality of care, i.e. medical
™™ Date and time all case-record entries. audit, is virtually impossible.
™™ Give as much thought to case-record To overcome the state of disorganized
entries as to dictated letters. and confusing case notes, Dr. Lawrence
™™ Be thorough but concise. Weed published his proposals of the POMR9
™™ Include periodic summaries in the records of in 1968 and SOAP (Fig. 21.1) in 1969. 10-12
patients in long-term contact with services. Dr Weed first introduced and has since
popularized the concept of the POMR and
™™ Be mindful that the quality of the case
at the same time succinctly pointed out the
record will be assumed to reflect the quality
deficiencies of our present non-system of
of the care received.
record keeping. Dr Weed proposed that both
patient care and clinical education could be
Weed System: Problem-oriented
improved by changing traditional medical
Medical Record (Pomr) and Soap records to a problem-oriented format. The
Good MR keeping is part of providing the best POMR approach concentrates primarily upon
quality of medical care. Ideally, MR should identifying all of the patient’s problems (not
represent: making diagnoses) and dealing with these
™™ A careful documentation of a given problems in a logical and orderly fashion.
patient’s illness, The POMR consists of four essential
™™ The diagnostic and therapeutic approaches elements: data base, problem list, assessment
of the physician to that illness, and analysis, and progress notes (Fig. 21.1).13,14
™™ The day-by-day progress made in dealing Data base: It’s the counterpart of conventional
with each aspect of the illness, clinical and hospital records consisting of

*Remember the acronym “Olfactory”, which stands for; Originnal, Legible, Accurate, Complete, Timely,
Objective, rational, and Yours, will help to define a good MR.

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Chapter 21: Medical Records 187

Fig. 21.1  Weed system of POMR and SOAP

history and physical examination findings. The problem list is thus a dynamic statement
It should endeavour to include all the of the patient’s medical history and allows a
information which the physician thinks is rapid assessment of the situation existing at
necessary and should be designed to meet any given moment.
individual requirements. Plans: For each problem a goal is decided
Problem list : It the key to the POMR. and a plan of action prepared. These Initial
Each problem list should include all of a plans are written up under individual problem
patient’s problems: symptoms, diagnoses, headings and they are divided logically into
pathophysiological findings, abnormal three parts (see below):
physical signs and laboratory investigations. 1. Diagnosis (Dx)
Psychiatric and social problems are also noted, 2. The choice of therapy (Rx), and
as well as relevant past illnesses and any other 3. Patient education (E), which is a statement
factors that may influence patient care. of the outcome of counseling, which has
The problem list can, if necessary, be taken place with patients about their illness
changed. If an existing problem is clarified, and subsequent management.
or if it is discovered that an entry has been
made in error, then the list can be modified Progress Notes
and changes incorporated. As new problems These are follow-up notes which are recorded
arise they are simply added to the problem list. under four major subheadings, i.e. “SOAP”*:

*Guidelines and Examples on the SOAP Format for Chart Notes. Available at the web site—
http://www.hptn.org/MOP%20NEW%20CD/PDFs%20Complete/Appendices%20and%20Glossary/
Appendix2SOAP%20Guidelines%20and%20Examples.pdf (accessed on 06-11-2011).

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188  Section 4: The Practice of Family Medicine
1. Subjective data—related to the progress of examination, and investigations have to be
the patient’s symptoms, completed which form the initial “data base”
2. Objective data—findings on physical for further clinical activity.
examination and the results of investi­ In the Weed system, two columns are used:
gations, active problems go to the left, inactive ones to
3. Assessment and analysis—related to the right15 (Table 21.2).
physician’s outcomes of the illness and The list illustrated here includes problems
prognosis, and that need some attention now (such as the
4. Plan for future action—additional data headaches), and others needing further
collection, lab work-up, interventions, observation in future (such as the hypertension
referral to other physicians, etc. and obesity). For each “active problem”, an
Weed pointed out that the features initial management “plan” is developed which
with which patients present to physicians is written in the records in the form of “SOAP”
could, by the application of their inquiring model.
and experienced mind, be designated as
“problems”. These might be a symptom, a sign, Physician’s “plan”
an abnormal laboratory or imaging finding, a S = Subjective data: This is compiled from
psychosocial factor or a previously diagnosed history, symptoms
disorder. The list of such problems vary in their of headache, family
emphasis and significance according to various history, etc.
factors, including physicians’ specialties, and O = Objective data: This includes doctor’s
the perceptions of their appropriate roles in physical findings and
the care of the patient. Such a list of problems tests reports.
is further grouped into two, namely “active A = Assessment/
problems”, which need prompt evaluation Analysis: The doctor’s under­
and “inactive (or resolved) problems”, which standing of the
physicians need to be aware of. To identify problems in terms of
all the problems, patient’s history, physical its pathophysiology.
Table 21.2  Weed system

Name—Ms. X  Age—48yrs  Sex—F


Date problem Sl. no. Active problems Inactive problems
Entered
06.05.04 1 Migraine Headaches —
06.05.04 2 — UTI
06.05.04 3 Sulfa allergy —
06.05.04 4 Stress in family —
06.05.04 5 Low back pain —
06.05.04 6 Borderline hypertension —
BP-140/90
Diet-high in calories; low —
in calcium.
06.05.04 7 Obese-BMI-31.5
Obesity
06.05.04 8 — Family h/o migraine
06.05.04 9 — Diabetic profile—normal
06.05.04 10 — Fundus—normal

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Chapter 21: Medical Records 189

P = Plan— Goals, action, advise, Plan (P)—Follow-up BP recording in 3


etc., which includes months.
Diagnostic (Dx), Thus, to begin with, a problem list is
Therapeutic (Rx) and prepared after completing the history, physical
 Education (E) in examination and data from investigation,
the context of above etc. These are assigned as active/inactive
mentioned data. problems. For each active problem, a tentative
management plan in made out in term of its
For Example: In the illustration above, the
Dx, Rx, and E. At subsequent visits or those
active problems of this patient (Ms. X) may be
responsible for changing the management
documented as below:
plan, use the mnemonic SOAP to record their
1. Plan for migraine headaches: findings and reasons for doing so. Discharge
Diagnostic (Dx) — observe the patient and summaries and letters to colleagues use the
note any precipitating factors. same format.
Therapeutic (Rx) — Continue paracetamol These proposals by Weeds were designed
as needed. to improve the structure of medical records
Education (E) — Nature of migraine and to encourage a logical thought process
discussed, advised to maintain headache and approach to record keeping, aiming to
diary. generate less narrative and clearer records
2. Plan for borderline hypertension: for community information about a patient to
Diagnostic (Dx) — Monitor BP periodically, another clinical professional.
and urinalysis.
Therapeutic (Rx) — None now, consider Weed System and Medical Audit
diet advice. The problem oriented approach offers several
Education (E) — Importance of BP important clinical and educational benefits,
monitoring explained. particularly its ability to audit the quality of
A month later, when Ms. X returned for a medical care. Weed audit is a key factor in the
second visit, her follow-up or progress notes training of both undergraduates and hospital
could be written as follows: junior staff and has also been recommended
1. Migraine headaches for the continuing education of both the general
Subjective (S)—Has had only 2 headaches, practitioner and the hospital consultant.16,17
mild, without associated symptoms, The concept of POMRs facilitates better care
no longer worried about them, no of patients by supporting continuity of care,
precipitating factors detected. removing redundant and confusing information,
Objective (O)—Not reexamined. and enabling easy overview of and access to its
Assessment (A)—Improved. content.18 Predictably, the POMR will avoid
Plan (P)—Continue paracetamol as problems associated with malpractice litigation;
prescribed; return as needed. conform to regulations of third-party payers,
2 Borderline hypertension. and facilitate practice analyses and quality
Subjective (S)—None. assessment, i.e. through computer-assisted
Objective (O)—BP – 145/06 – Right arm, tracking of patient care based on problems
lying; urinalysis—normal. and not just treatment rendered. In contrast to
Ass essment (A)—Is olate d systole, existing computerized patient record systems,
hypertension. which merely offer static functionality for storage

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190  Section 4: The Practice of Family Medicine
and presentation, a helpful patient record 1992 and first published in a guidebook on
system is a problem-oriented, knowledge- documentation in 1993.25,26
based system which provides the clinician with SNOCAMP is a medical records format (Table
situation-specific information from the patient 21.3) that includes the same four elements of
record, relevant to the activity within the patient SOAP format — Subject, Objective, Assessment
care process.19 As many practices today focus on and Plan of treatment — with the addition of:
a “patient-centered” approach to practice, the 1. Nature of patient’s presenting problems
problem-oriented record clearly supports such (low/medium/high/severity)
a philosophy in its completeness of managing 2. Counseling
patient care information.20 3. Medical Decision Making (high/medium/
low complexity)
Limitations of the POMR Subjective (S): As in the SOAP format, “subjective”
One major objection to Weed system is with is the first component in the SNOCAMP format.
respect to its complete collection of data base In this portion, patient’s chief complaints,
which is too cumbersome and lengthy progress history of present illness, past and family history,
notes, resulting in its impracticable application and system review are recorded.
for the busy doctors in general practice or in Nature of the Presenting problems (N or NPP):
outpatient departments. Some studies suggest This is the second component of SNOCAMP.
using the POMR only when the patient is It describes the complexity or severity of the
assessed for the first time or when information patient’s chief complaints, which can be a
is passed from one team of doctors to another, disease, any illness, injury, symptom, sign,
while others observe that POMR is primarily lab reports, or other reasons for the encounter.
focused on the individual, and thus has serious The physician’s opinion of the NPP is a vital
deficiencies for the family-oriented physician.21, 22 component of documentation, as it plays a
critical role in the management plan of the
From Soap to “Snocamp” patient and assigning appropriate “evaluation
The Weed’s methodology was widely adopted and management” (E&M)* service code for
in the USA and was also in widespread use mediclaim purposes. The NPP component
throughout the UK in general practice. 23
However, with the intrusion of third–party Table 21.3  From SOAP to SNOCAMP
audits, malpractice suits, medical guidelines, From SOAP To SNOCAMP
health insurance codes, and many other
Subjective
administrative and legal procedures in the Subjective
Nature of Illness (high/medium/low
practice of medicine, a need was felt to expand severity)
the traditional SOAP model.24
Objective
As a defense against new mediclaim Objective
Counselling
policies and increased risk of physician
Assessment Assessment
practice audits, an improved method of
documentation, without sacrificing ease of Medical Decision Making (high/
medium/low complexity)
use, efficiency, and cost-effectiveness, a new
Plan Plan
SNOCAMP model was developed in early

*E/M Coding or E&M Coding is a medical billing process that practicing doctors in the United States
must use to be reimbursed by Medicare, Medicaid programs, or private insurance for patient encounters.

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Chapter 21: Medical Records 191

is described in terms of one of fine possible recorded in the assessment, counseling, and
levels: minimal, self-limited or minor, low management plans of the medical record.
severity, moderate severity, and high severity. Plan (P): The final section of the SNOCAMP
When the NPP falls between two descriptive format involves the plan of treatment or
levels, e.g. low to moderate, it can be stated as treatment options the physician will utilize
such or can be described as the more complex in managing the patient’s problems. It also
of the two. The word “potential” can be added includes the rationale for recommending or
to reinforce physician’s concern regarding the changing a previously designated therapy or
potential severity of the presenting complaint ordering of diagnostic tests, unless already
(e. g. pericardial chest pain could easily be discussed in the counseling or the assessment
described as “potential high severity” even sections.
if subsequent investigation revealed that the The main advantages of SNOCAMP format
patient had costochondritis). are two fold: first, it allows the physician
Objective (O): This is the third component to present documentation efficiently and
and includes the vital signs and physical effectively in style that will enhance the
examination findings. Results of diagnostic selection of an appropriate “evaluation
tests are recorded in this portion of the and management” service code level in the
documentation. context of mediclaim policies, and secondly,
the format also has the potential to increase
Counseling and/or Coordination of care (C): audit protection and defend against possible
The fourth component details any discussion litigation (Table 21.4).
the physician may have had with a patient
and/or family concerning the physician’s
Medical Council of India (MCI)—
clinical impression, prognosis, risk and
benefits of management options, follow-up Importance of Medical Records27
instructions, importance of compliance with It is the responsibility of every physician to
treatment, risk factor reduction, and patient properly maintain; in accordance with the
and/or family education. standard proforma provided (as laid down by
the MCI) all medical records relating to his/her
Assessment (A): The fifth portion of the
outdoor/indoor patients for a period of 3 years
document consists of physician’s personal
form the date that the treatment was started.
analysis of patient’s problems, based on the
The phrase “medical records” takes
data obtained thus for. It should show the
within its fold the following documents which
analysis of differential diagnosis, management,
normally form part of the medical service
treatment options and likely complications.
rendered by the medical practitioner. Marginal
Medical decision making (M): The sixth difference may occur depending upon facts
component of medical decision-making and circumstances of a given doctor patient
includes the analysis of complex issues relationship.
involved in making a diagnosis or selecting a. ‘Informed consent’ form (i.e. valid and free
a management options. Determination of written consent for medical management
the appropriate level of medical decision of illness, which has been explained to
making comprises multiple factors, which the patient, and given voluntarily by the
include differential diagnosis or management patient in a healthy state of mind).
options, risks of complications and morbidity b. Diagnostic records.
or mortality. It is based on information c. Referral and prescription ships.

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192  Section 4: The Practice of Family Medicine
Table 21.4  Example of SNOCAMP Patients if treated “free” are not “consumers”
S Patient, 45 years/Male, garage mechanic, and are not entitled for compensation under
smoker, c/o retrosternal chest discomfort, Consumer Protection Act. Therefore, if patient
radiation of pain are arms, shoulders,
precipitated by exertion, emotional stress, lasts
is treated free it should be clearly mentioned.
for approximately 1–5 minutes and relieved by Some doctors do not keep records of ‘free’
rest; wife 40 years? Ca. breast and DUB. cases. Since free treatment is an important
N High severity; NYHA classification – class 3 defense, records should be maintained even
O No skin xanthomas, BP-148/96, pulse-82/mit, in case of free treatment.
regular, peripheral pulses – normal, cardia – S1,
S2 normal,? mitral regurgitation; other systems
– normal Medicolegal Records
C Discussed diagnostic possibilities; risks and Doctors encounter patients suffering
management options with patient from illnesses or injuries arising out of
A 1 – Angina pectoris/unstable angina circumstances, which have legal implications,
2 – Mitral valve prolapse i.e. a medical case with legal implications or a
M Rest, sublingual nitroglycerine, aspirin, beta- legal case requiring medical expertise. Such
blocker cases are generally termed as “medicolegal
P 1 – Resting ECG; ? TMT; 2D echocardiogram; cases (MLC).”*
lipid and metabolic profile In 1995, the Honourable Supreme Court
2 – Coronary angiogram of India gave the decision that all doctors,
3 – Consider coronary revascularization and/or whether in government service or private
medical management practice, come under the purview of the
4 – Prevention – diet/exercise advice; medi­ Consumer Protection Act (1986).28 Courts are
cationsanti-platelets, beta-blockers, statins;
periodic follow-up
looking with increasing favor on the patients’
interest in the content of their records—a
d. Patient case sheet. phenomenon which is closely linked to the
e. Operation notes. nationwide trend in favor of the patients’ right
f. Certificates issued. to know and determine their own physical
g. Discharge summary and/or “Discharge destiny. For all these reasons, medical records
against medical advice” details no longer serve exclusively as the physician’s
h. Death summary where applicable. private aid; medical records are increasingly
i. All medical receipts serially numbered. becoming legal documents as well.
In case patients or attendants authorized Medical records are also important in
by them, or concerned legal authorities make workman’s compensation cases, insurance
a request for medical records, it should be duly claims, and even in physician disciplinary
acknowledged and the relevant documents hearings—hearings where physicians’ right
must be made available within a period of 72 to practise may be affected or where their
hours. integrity or reputation may be called into
Courts generally believe in doctor’s records question, as well as their collection of bills.
if the records apparently appear to be genuine. Further, in creating and maintaining patient
However attempts should not be made to records, physicians and hospitals have several
“create” records afterwards. legal duties, including the duty to do so
*A medicolegal case is a case of injury/illness where the attending doctor, after eliciting history and
examining the patient, thinks that some investigation by law enforcement agencies is essential to establish
and fix responsibility for the case in accordance with the law of the land.

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Chapter 21: Medical Records 193

adequately, to safeguard the records’ physical for the doctor to inform the appropriate
existence, and to prevent such use of the investigating authority to decide whether or
records as would violate the patient’s right not the case is a MLC. There should not be
to confidentiality. Thus, medical records any unnecessary delay in doing so. A case may
have become an important aspect of written be registered as an MLC even if it is brought
evidence. several days after the incident.
In the Criminal Procedure Code of India The records of medicolegal evidence
(CrPC), following categories of cases are should be stored in secured place and a
designated and dealt with as MLCs, and as register should be maintained of its movement.
such the doctor is “duty-bound” to intimate No unauthorized person should have access to
to the police regarding such cases: this record and no copy should be given to any
™™ Sudden death with unknown cause. one, except to the legal authorities.
™™ Cases brought dead with improper history
creating suspicion of an offence. Conclusion
™™ Death caused by homicide, suicide Medical records speak louder than words.
or infanticide, i.e. death by violent or Clear, complete, and adequate medical
unnatural means. records, including negative findings, prognosis,
™™ Death caused by use of a vehicle in the progress notes and plan of treatment are
street, public road or private place. doctors’ best friend and best defense in the
™™ Death caused by rash and negligent act. court, if maintained properly and honestly.
™™ Death occurring in jail or any place of MLCs pose no problem if one uses proper
detention. caution and due care and attention, while
™™ Criminal abortions. dealing with them. Proper documentation,
™™ Hurt, including grievous hurts. timely information, a methodical and
™™ Hurt caused voluntarily by shooting, thorough examination — including all relevant
stabbing, cutting, or any instrument which investigations and referrals, etc, are all that
is used as weapon of offence, or by means are necessary to see such cases through,
of fire (burns), corrosive substance, or successfully.
poison, or explosive substance. Although the method of POMR keeping
™™ Unnatural sexual offences, i.e. sodomy, is time consuming and may not ensure
bestiality, etc. excellence in medical care, it does serve as
™™ Intoxication of alcohol in those states a tool without which excellence would be
where prohibition is in force. difficult to achieve and virtually impossible to
™™ All cases of suspected or evident poisoning. identify.
™™ Cases referred from court or otherwise for
age estimation. References
™™ Cases of compensation.
1. Daga Surendra, et al. Medical record keeping
Apart from the cases listed above, any case – Are we prepared? JIMA. 2008;106(3):145.
having direct or indirect legal bearing and not 2. Menon Girish et al. Research involving medical
falling under the above categories but has records review: an Indian perspective Indian J
legal implications, can become a MLC at any Med Ethics. 2006;3(2).
stage. Further, in all other cases, where there 3. Mann R, et al. Standards in medical record
is ambiguity, improper history, history not keeping. Clin Med. 2003;3(4):329–32. [PMID:
correlating with the clinical data, it is better 12938746: Abstract].

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194  Section 4: The Practice of Family Medicine
4. Chamisa I, et al. Setting the records straight—a J Dent Educ, 1975;39(7):472–82. [PMID:
prospective audit of the quality of case notes 1080162: Abstract].
in a surgical department. S Afr J Surg. 2007; 18. Bayegan E, et al. A problem-oriented,
45(3):92, 94–5. [PMID: 17892187: Abstract]. knowledge-based patient record system.
5. Pourasghar F, et al. What they fill in today, Stud Health Technol Inform, 2002;90:272–6.
may not be useful tomorrow: lessons learned [PMID: 15460701: Abstract].
from studying Medical Records at the Women 19. Bayegan E, et al. The helpful patient record
hospital in Tabriz, Iran. BMC Public Health. system: problem oriented and knowledge
2008;8:139. [PMID: 18439311: Free PMC based. Proc AMIA Symp, 2002:36–40.
Article]. [PMID:12463782: Free PMC Article].
6. Alan Lambert. Red flags in medical record
20. Valenza JA. Medical risk report: improving
documentation; your records can be your best
patient management and record keeping
friend or your worst enemy—The Legal Corner.
through a problem-oriented approach. J Gt
Podiatry Management, 2004.
Houst Dent Soc, 1994;65(9):46–8; quiz 49.
7. Guidelines for records and record keeping.
[PMID: 9584737: Abstract].
Nursing midwifery council. Guidence 02.04.
8. Pullen Ian et al. Improving standards in clinical 21. Antoniou AG, et al. Problem orientated
record-keeping; Advances in Psychiatric medical records--all or none? Med Educ, 1979;
Treatment. 2006;12:280–86. 13(3):217–8. [PMID: 314561: Abstract].
9. We b s i t e — h t t p : / / m e d i c a l - d i c t i o n a r y . 22. Grace NT, Et al. The Fam Pract, 1977;4(1):91–8.
thefreedictionary.com/Problem-Oriented + [PMID: 299885: Abstract].
Medical + record 23. Margolis CZ. Problem-oriented record. A
10. Weed LL: Medical records that guide and teach. critical review. Paediatrician, 1979;8(3):152–62.
1; Eng J Med. 1968;278:593–600 and 652-657. [PMID: 315045: Abstract].
11. Weed LL. Medical records, Medical education, 24. Larimore,W L et al. SOAP to SNOCAMP:
and primary care: The problem – oriented improving the medical record format. The
record as a basic tool. Cleveland, OH: Case Journal of family practice; Vol: 41, Issue: 1995.
Western Reserve Univ, 1969.
25. Walter LL. SOAP to SNOCAMP: Improving
12. NHS Information Authority: POMR and SOAP
medical record format. Dowden health Media.
Briefing paper. 1999.
Inc. 1995.
13. Gardner LB. The Problem Oriented Record
26. Jordan E.V St Anthony’s guide to E/M coding
in Critical Care Medicine. Chest, 1972;62:
and documentation. 1st Ed. Reston, Va: St.
63S-69S.
Anthony Publishing, 1994.
14. Mcintyre Neil. The Problem Oriented Medical
Record BMJ, 1973;2:598–600. 27. Purnapatre, et al. Doctor and the Consumer
15. Barbara Bates. Physical exam and history taking: Protection Act: Part II. Maharastra Law Agency,
The patients record. 4th Ed, 1974;623–24. Nashik, 1994.
16. Barresi BJ, et al. Implementation of the 28. Consumer Protection Act 1986 & Its Medical
problem-oriented system in an optometric Profession related Provisions After The
teaching clinic. Am J Optom Physiol Opt, 1978; Judgment Honorable Supreme Court of
55(11):765–70.[PMID: 313158: Abstract]. India dated 13-11-95. Web site - http://www.
17. Ingber JS, et al. The problem-oriented record: medindia.net/doctors/cpa/CPA1-12.asp.
clinical application in a teaching hospital. Accessed on - 02-11-2011.

mebooksfree.com
22 The Difficult Patient

“Despite all the adversities and all the stumbling blocks put in our way, it seems
that we must revert back to the centuries-old advice that Plato espoused, that modern philosophers
promote, and that consensus medical committees tell us is still the corner­stone of medical care, namely,
the an­swer to handling the difficult patient is nothing more than communica­tion, loyalty, and a strong
commit­ment to the power of the doctor-pa­tient relationship.”
“Your most loyal patients will always be those who had a problem that you solved to
their satisfaction rather than patients who never had a problem.”

Introduction This study concludes that, “no consistent


Physicians in their practice encounter patients associations were found between adverse
who are unique in their combination of age, work conditions and the quality of patient
health, personalities, experience, up bringing, care, and no associations were seen between
faith, reasoning abilities, and many other facets adverse physician reactions and the quality
of individuality. Patients can be demanding, of patient care.” 1 It is apparent that in the
annoying, unrealistic, loud and objectionable. present rapidly changing healthcare system
They can be pleasant, easygoing, intelligent, with pressure of time, achievements, income,
accommodating and knowledgeable. They and other responsibilities in hasty and
can also be timid, questioning, unprepared, disorganized work conditions providing
lacking knowledge, and uncertain about what quality service is a continuing challenge; and
they want or need. However, patients get indeed, providing great service to ‘difficult’
good medical care on most of the occasions, patients is an exceptional challenge. It is,
no matter how they act or behave. This therefore, important to learn how to identify
observation has been supported in a study and pleasantly meet the real needs of the
published in the Annals of Internal Medicine, challenging patients. This involves learning
participating 422 family practitioners and proven strategies for meeting the needs of
general internists, and 1795 of their adult difficult patients while maintaining peace and
patients with diabetes, hypertension, or heart harmony of physician’s practice.
failure, to assess the relationship among: Dealing with difficult patients does not
1. Adverse primary care work conditions (e.g. need all the time and energy, not if the
time pressure, chaotic work place), physician understands how to communicate
2. Adverse physician reactions (e.g. stress, successfully with them. Learning how to get
burnout, and intent to leave), and the best of the medical concerns and patient’s
3. Patient care. hardships with appropriate use of patient-

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196  Section 4: The Practice of Family Medicine
doctor communication skills, and an effort Different terms have been used to describe
to improve relations with patients through “difficult” patients. They may be described by
empathy, tolerance and non-judgmental their personality which is often aggressive,
listening, physicians will be more successful abusive, rude and demanding. At the most
than ever. It’s important to understand that superficial level, difficult patients are defined
the objective of identifying ‘difficult’ patient by the feelings physicians have when they
is not to label that patient, but to recognize work with them. They arouse helplessness
the need for special skills to manage such and exasperation leading to frustration,
patients.“Several factors may assist the 21st uncertainty, anger and a feeling of being
century physician in managing the ‘hateful manipulated or controlled by the patient.3
patient’ in an empathic manner and in making Some call them “heartsink patients”. In
some sense of why the patient has resorted the United Kingdom, Tom O’Dowd4 initiated
to negative response patterns. Ultimately, a discussion of such patients in the BMJ in
failure to consider these issues will result in 1988, coining the term “heartsink” to describe
poorer medical care and, no less important, intuitive feelings of impending doom or
reduced satisfaction of both patients and helplessness when certain names appear
doctors”.2 in the appointment book. Ellis, a general
practitioner, coined the phrase “dysphoria”
Terminology and Incidence to define “the feelings felt in the pit of your
(Table 22.1) stomach when their names are seen on the
morning’s appointment list.” 5 Heartsink
The term ‘difficult’ often refers to a legendary patients exasperate, defeat and overwhelm
and well-recognized group of patients lacking their doctors by their behavior. Importantly,
the cooperation between patients and he described how they were a source of stress,
physicians. Although patients seek help and as they aroused negative feelings and so
care, they do not readily accept what is offered made some doctors feel unprofessional and
resulting in physicians experiencing difficulty frustrated. Many of these patients have a “‘thick
forming a normal therapeutic relationship. file” in the doctor’s office and are informally
called as “thick-file or fat-folder patients”.6
Table 22.1  Characteristics of the difficult patient
Difficult patients include those who are
•  Frequent consultations/visits (fat-folder patients) medically challenging, interpersonally difficult,
•  Multiple (unexplained) physical symptoms
•  Undue concern about minor symptoms psychiatrically ill, or lacking in social support.
•  Unrealistic expectations of cure The overall impression from the literature is
•  Behavior—aggressive, abusive, demanding, that difficult patients consume considerable
hostile
•  Scant regard to physician-patient relationship
time and resources, receive many unnecessary
•  Personality disorder—either undiagnosed, or investigations, can be litigious, and can cause
borderline present their doctors considerable anguish. Such
•  Won't or can't get better—sick role issues
•  May have chronic medical disorders or social
patients make up 15–30% of primary care
disabilities practice populations.7 It is generally observed
•  Somatization disorders that the incidence of difficult patients is more in
•  Chronic pain syndromes present women who are widowed or divorced; however,
•  Alcohol, drug addiction
•  Non-compliance (including treatment) this ratio equals both in women and men as age
•  Manipulative advances. The average age of their presentation
•  Legal/compensation problems is over 50 years, with lower educational status,
•  Litigious
have higher scores of anxiety and depression,

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Chapter 22: The Difficult Patient 197

and lower perceived quality of life. They are ™™ Consider delayed response, i.e. make them
more likely to have chronic diseases.8,9 However, wait before you see them; stop them from
the incidence of difficult patients decreases with feeling so special.
experienced doctors who perceive less difficult ™™ Encourage self help behavior. Help them to
patients as they learn to acknowledge greater form their own coping strategies. Get them
diversity of behaviors in their patients. to accept ownership of the problem, i.e. it’s
their problem, not yours!
Characterizing the Difficult Patient ™™ Check yourself, i.e. stop carrying your
views or feelings into the subsequent
In a seminal article, Groves et al10,11 characterize
consultations.
four stereotypical “hateful patients” (i.e.
patients whom most physicians dread or get
Entitled Demanders
upset) according to their manner of interacting
with physicians: “These patients view doctors as a barrier to
receiving services and complain when every
Dependent Clingers request is not met.”
They seek attention through intimid­
“While thanking the doctors for all they have ation, devaluation, and inducing guilt in
done, patients are desperate for reassurance the physician. These patients always want
and visit them repeatedly with an array of something and they want it now; e.g. they
symptoms.” may demand investigation, treatment or
They prolong the consultation and are even referral! They get their way by instilling
dependent on physicians all the time; they keep a sense of fear, intimidation, and guilt, or by
coming back again and again for minor illnesses/ devaluing the doctor (unlike the dependant
complaints for reassurance or a ‘pill for an ill’, ask clinger who uses flattery to get his/her way),
for repeated prescriptions or favors. They flatter and often threaten the doctor with legal
the doctor by excessive praise; e.g. “I’m sorry action if their request is not honoured, e.g.
to trouble you again doctor but you are such a “I want some antibiotics for my chest cold…
careful doctor …”; “Doc, you are great…your pills only antibiotics will work…if you don’t and if
worked like magic, thanks…and came to see you anything happens, be it on your head.” They
just in case…!”. Their care involves protracted and may try to establish control over a physician
intense physician-patient relationship — they are by, e.g., withholding payment or instituting
“doctor dependent.” litigation. Entitled demanders evoke fear and
The best strategy with dependent clingers, attack upon their entitlement.
according to Groves is — early identification With these patients Grove recommends
of the problem, be consistent and firm, control supporting the entitlement (rights, priorities,
your own feelings, and deal tactfully but firmly etc.), but trying to redirect it along the lines of
to patient’s problems without unduly prolonging the treatment plan.
the consultation.
How should We Handle them?
How should we Handle them? ™™ Try to be pleasant, helpful, and establish
™™ Set boundaries and limits, i.e. give fixed a rapport.
appointments and adhere to the time ™™ Negotiate a treatment plan that is indicated
allotted, or alternatively, set a professional rather than giving way to the wishes of the
fee for every time-bound consultation. patient.

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198  Section 4: The Practice of Family Medicine
™™ Beware of your ethical and legal safety— from their own self-destruction and defy
better to be wise than sorry! physician’s attempts to preserve their lives.
Often, they have life-threatening illness, e.g.
Manipulative Help-rejecters ischemic heart disease, COPD; but in addition,
“Patients need abundant emotional support they indulge in injurious habits such as
and visit often to tell physicians the therapy tobacco smoking that worsen their condition
did not work.” which they are not prepared to give up; they
want a miracle cure from the doctor instead.
They are not hostile and they do not claim
They are not prepared to alter their lifestyle!
to deserve treatment. On the contrary, they
These patients abandon all hope and become
believe that no treatment whatsoever will help
profoundly dependent … ‘only you can help
them. They derive satisfaction from repeatedly
me doctor…!’
reporting to physicians that their treatment
Grove advices not to abandon these
has failed, but despite failed therapy, they still
patients, but instead to work with them
keep coming back to the same physician. If one
compassionately and diligently, just as one do
symptom disappears, another invariably takes
with patients who have terminal malignancy.
place. Even if a symptom/ailment has been
successfully resolved, it will only be replaced
by another! These patients do not seek relief How should We Handle them?
of symptoms, but rather an interminable ™™ Explore their health belief system and get
relationship with the physicians and also make them to try and change it if possible (ref.
them feel guilty and inadequate. the CALMER approach below).
The best strategy with these patients, ™™ Encourage self help behavior.
Grove claims, is to share their pessimism, ™™ Get them to accept ownership of the
but at the same time try to ally their fears by problem.
counseling and scheduling regular follow-up ™™ A psychiatric consultation to determine any
appointments. treatable depression may be considered.

How should We Handle them? Who is at Fault


™™ Set boundaries and limits, i.e. identify what A “difficult” patient can be the result of
the patient wants and set limits on their personal flaws in a physician or failure in
expectations. the physician-patient-relationship (Table
™™ Share the responsibility with others, 22.2). Physicians have different personalities
e.g. delegate to nurses, other doctors, and personal characteristics. Hence it’s not
counsellors, psychologist, psychiatry, etc. surprising that different physicians have
™™ May be even agree with their views, e.g. different sets of difficult patients. Patients
‘OK, you’re right, that probably won’t help! considered “difficult” by one physician
Let’s try another way.’ might not be thought “difficult” by another.12
4. Self-destructive deniers: “Although patients Labeling and thus dismissing difficult patient
possibly suffering from serious disease, is easy, but not helpful. Instead, it is more
they make no alteration in lifestyle. It seems helpful to consider that the “relationships”
that patient’s aim is to defeat physician’s may be difficult rather than the patients; or to
attempts to preserve their lives.” put it another way—“there is no such thing as
They unconsciously engage in behavior a difficul patient; simply a failure in the doctor-
that is likely to be fatal. They derive satisfaction patient relationship.13

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Chapter 22: The Difficult Patient 199

Problems in the Physician does not take social or psychological factors


into account.14 Many patients present with
Physicians’ own attitude and behaviour can
symptoms that are not attributable to any
generate difficult patients (ref. physician’s
underlying pathology or disease, e.g. functional
factors in Table 22.2). Besides, the survey of
somatic syndromes and personality disorders
Sheffield GPs conducted by Mathers et al
which are most prevalent in difficult’ patients.
(1996) found that physicians who were more
Physicians who are educated in such “disease-
likely to label patients as difficult were those
centerd” system sometimes feel frustrated when
that were:
the biological patho-physiologic sequence
™™ Greater perceived workload,
breaks down, as it surely will when dealing
™™ Low job satisfaction,
with ‘difficult’ patients. The physician may
™™ Lacking in counseling/communication
then order additional diagnostic tests, or
skills, and
prescribe different drugs in the hope of curing
™™ Lacking in appropriate/post graduate
the aliment, or respond to a perceived failure
qualifications.
by becoming angry and demanding. The
Hegemonic education: The present medical patient is viewed as a “problem” because the
education teaches a “biomedical-model”2 of physician has not taken a comprehensive view
diseases which focuses on physical processes of psychological and psychosocial determinants
that affect health such as physiology and that ails majority of ‘difficult’ patients.
pathology of diseases. There is a sequence Where a biomedical approach is clearly
from symptoms to objective data, diagnosis, failing, the model has been widened to be
treatment, and then to care. However, this more inclusive of the patient’s “psychosocial
dominant biomedical model cannot fully model”.11 This in turn leads to the development
explain many forms of illness because it of “patient-centered” clinical methods (i.e. the
patient as an individual, emotional reaction to
Table 22.2  Difficult patient: Causes for failure in
illness, the family, the effect of relationships,
physician-patient relationship
work and leisure, lifestyle, the environment)
1. Situational factors: in which physicians shift their approach to
• Time pressure
• Language barrier
empower patients in healthcare delivery
• Lack of privacy system by concentrating more on patients
2. Physician factors: perception of illness (what is the patient trying
• Overwork to tell me?) rather than their own.
• Failing to take comprehensive view of illness
Further, physicians who are new to practice
• Failure to recognize psychosocial determinants
• Poor communication skills lack sufficient ongoing contact with patients
• Being overly critical or judgmental and increasing time pressure make it ever
• Having a defensive personality more difficult to establish the rapport that’s
• Low level of experience
essential to get to know patients as individuals.
3. Patient factors:
• Hostile, demanding, dissatisfied behavior In such circumstances physicians are most
• Manipulative behavior likely to perceive patients as “problems
• Doctor shopping and develop feelings of inadequacy and
• Failure to pay bills
• Difficult to communicate
despondency when required to address
• Lack of literacy multiple vague symptoms.”15,16 However, as
• Patient non-compliance they gain experience and confidence, they
• Seductive, sexually or otherwise
become more tolerant and adopt a practice
• Drug-alcohol abuse
style suitable to individual needs.

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200  Section 4: The Practice of Family Medicine
Problems in the Physician- Disorders to Consider18
Patient Relationship In an Israeli qualitative research study
A crucial aspect of treating a difficult patient conducted in the setting of family practice,19
is the cultivation of a clear awareness within the contributory disorders the difficult patient
the physician of what is happening to the is likely to suffer from were:
physician-patient relationship. Physicians can 1. Behavioral problems, e.g. violent, aggressive,
then direct their efforts toward developing a verbally rude, lying, manipulative,
structure for the relationship that will allow demanding, seeking secondary gain and
for efficient medical management and will be exploitative of the doctor, unresolved
supportive of the patient’s emotional needs. repeated complaints, and non-cooperation.
Some important causes of difficult patients To these group alcoholics, drug addicts may
in the context of physician-patient relationship be included because of they are associated
(Table 22.2) include not communicating well with violent behavior.
with a patient, not finding what a patient wants, 2. Psychiatric disorders, e.g. depression,
not recognizing how a patient copes with his anxiety, panic, hypochondriasis, and
disease, and not understanding the meaning somatoform disorders.
of illness for a patient. Any of these can lead Depressed patients often seek a medical
to counter productive, negative, or non- explanation for chest pain, backache,
compliant behavior on the part of a patient. But headache, fatigue, low energy or libido, as well
these failings are the fault of the physician. They as problems with eating, weight, and sleeping.
should not be obscured by blaming patients Anxiety can present as hypochondriasis,
for their personality or for some problem which prompts patients to express intense
they allegedly have. Rather, the breakdown concern about relatively minor or transient
in the physician-patient relationship should symptoms.
be identified and remedied.9 In addition, a Patients with somatoform disorders, who
physician’s failure to carefully listen, show are unaware of their emotional distress, channel
empathy, or establish trust may result in an their stress into a wide range of clinically
inadequate understanding of the patient’s inexplicable multiple and chronic unexplained
history and illness.17 physical symptoms that may occur in different
Physicians are not only responsible for their sites simultaneously, e.g. gastrointestinal,
own behavior with patients but also for their sexual, and neurological symptoms, including
employees. Employees who are inconsiderate ‘disease phobia’, i.e. the fear that they may
of patients’ can cause many difficulties in the acquire those identified disease.
physician-patient relationship, e.g. denying or Survivors of abuse, particularly childhood
withholding medical bills, or reimbursement sexual abuse, are more likely than others to
of bills, or delay in referral. It is important that seek frequent medical attention as adult.20
physicians’ understand and work-out their Patients with a hysterical personality,
employees’ healthcare plans and ideas. They characterized by their pervasive pattern of
hear their patients’ comments and complaints excessive emotionality and attention seeking
and can be a storehouse of suggestions for behavior, are experienced as difficult patients
improving services specifically tailored by some physicians.
to manage difficult patients so that these Malingering constitute another
patients are treated in a pleasant and efficient category. These so called disability seekers
atmosphere. may be consciously seeking a high level of

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Chapter 22: The Difficult Patient 201

unproductive medical care in order to validate Table 22.3  An approach to difficult patients
compensation claims. •  Exclude primary disease (or keep open mind
about it)
•  Acknowledge patient's concerns and try obtaining
Strategy to Handle Difficult patient’s perspective, i.e. their ideas, fears and
Patients (Table 22.3) expectations
•  Take a structured history – including a socio-
Even the “hardest-to-please” patients can psychosocial review.
•  Do a routine physical exam and screening lab
become loyal patients when problems are
work – this will help to identify any coexisting
handled courteously. Physicians can develop medical problems and assure the patient you
comprehensive strategy suggested below to have been thorough.
improve their care of difficult patients: •  Summarize main complaints and reflect back,
e.g. "Let me see if I've got this right", "Have I
missed anything?”
Acknowledge •  Complete any indicated testing promptly.
Limit investigations – do not fall into the trap
With difficult patients, the first thing is to of ordering new tests every time the patient
acknowledge their concern. This gives both describes a new symptom.
the physician and the patient a chance to •  Work together, e.g. "let's see how best we can
together help you manage …"
restart their relationship. Both can pause and •  Guide expectations toward coping rather than a cure
reflect on questions such as—“something is •  See if the patient can identify links between
wrong, why?” symptoms and life events
•  Try a cognitive behavioral therapy (CBT) approach
•  Involve the patient, and possibly partner/family
Schedule Time members in finding solutions
•  Never say "there's nothing wrong, or there is
A mutually convenient time and agenda are nothing I can do for you", however tempted! This
likely to make the encounters with difficult may only trigger persistent attempts to prove that
a problem exists
patients much easier. Due to limited time
•  Be aware of your own negative feelings; avoid
available to each patient, especially in a busy emotional outburst
outpatient clinic, it is important for the physician •  Set limited objectives; keep visits short and
to inform that you want more time to evaluate focussed
•  Schedule regular visits – then gradually increase
him/her and schedule an appointment, and be the interval between visits
strict about ending the encounter on time, even •  Educate yourself on cultural aspects of illness
if the patient has much more to say or request. •  Discuss with at multidisciplinary team meetings.
This may provide other ideas, support and
The physician can always suggest an additional awareness of problem
follow-up session at a later date.

Cultivate a Sense of Partnership the illness and the patient’s expectation about
what should be done. Discuss past treatment, its
Physician must assure the patient that they
outcome, any difficulties faced by the patient in
are equal in the same team and that they must
following treatment plan, and what the patient
understand each other and work together, so
thinks will improve the outcome.
that conflicting or confusing approaches can
The role of these questions is two fold.11
be avoided that may hinder treatment.
“First, they maximize the information physician
needs for an effective partnership with the
Obtain the Patient’s Perspective
patient. It is a partnership that allows these
Physician, by skilful questioning, should guide consultations to be truly effective. The more
the patient to narrate his/her story. Ask about information about the background to the illness,

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202  Section 4: The Practice of Family Medicine
the patient’s understanding and meaning, the between their patients and family members.
better it is for the physician to get involved in the The patient’s consent is, of course, essential
process. Secondly, they reinforce the patient’s before approaching the family.
feelings that it is a partnership in which they
are equal. Often these consultations degenerate Schedule Regular Follow-up Visits
into mutual hopelessness, where the patient Follow-up is critical; it provides feedback and
feels hopeless as the doctor can ‘do nothing’, opportunity for patients to bring up forgotten
and the physician feels hopeless for the same or unaddressed issues or symptoms. They also
reason. Once both the physician and the patient make patients feel cared for and understood.
agree on achievable goals, then hopelessness Setting appointments as often as weekly at first
may be lifted”. and gradually extended to once a month may
satisfy dependent patients.
Review
This includes patient’s history, especially in Referral
the context of bio-psychosocial factors, such There will be occasions when physician will
as life stressors and patient’s coping abilities. need help from colleagues. This can be obtained
A thorough physical examination is done from a trusted colleague, a psychotherapist, or
to assure the patient. Any screening or lab a support group. The one caveat is to ensure
tests indicated are promptly carried out and that, “the patient does not think you are trying
their results are explained so that patient to get rid of him/her. Conversely, if you are
understands their significance. It is usually indeed referring to another doctor or agency for
unwise to start with a mega work-up to rule complete management, make sure the patient
out any conceivable disease.2 understands why”.21

Assess for Potential Coping Skills for Physicians


Personality Disorder
Handling or responding to difficult patients
While reviewing the patient, the physician requires preparation. Physicians must learn
should be alert to note any symptoms, which to develop the right skills and techniques. The
may suggest personality or psychiatric disorder authors of the Israeli study17 mentioned above
(e.g. frequent mood swings, angry outbursts, have described a variety of strategies the GPs
distrust and suspicion of others, lack of interest used to cope with the ‘difficult’ encounter
in social relationships, etc.). Effective treatment (Table 22.4).
of such patients requires team approach, Below are a few elements of coping skills
including mental healthcare providers. toward better handling difficult patients.

Family Involvement Empathy


A candid discussion of the problems with Acknowledging the patient’s emotion and
patient’s family and friends help resolve offering practical, helpful action is the most
many controversies. Their views and concerns common and most effective means of coping
can be incorporated in the management of the patient’s distress.
difficult patients. Considerable tact, patience, Emphatic statement such as, “You are
and understanding of the core problems are obviously very irritated”; “I understand your
essential for physicians to do a balancing act disappointment”, in a calm, serious, assertive

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Chapter 22: The Difficult Patient 203
Table 22.4  Steinmetz and Tabenkin’s means rushed. This adds to patient’s frustration.
of coping with the difficult patient or encounter (in
Misunderstandings and misinterpretations
descending order of relative frequency)17
cause more conflicts. To be certain that you
1. Empathy
grasp the other person’s meaning, repeat what
2. Non-judgemental listening
3. Patience and tolerance patients have said in your own words and
4. Direct approach ask if you have understood correctly. (“Let
5. Defining limits of time and content in advance me see if I understand you, but….”; “I see the
6. R eferral to various consultants, lab tests,
alternative medicine and mental health services situation as ….”). Make sure you understand
7. Confrontation with the patient how patients view their condition. Rather than
8. Recommendation for transfer to another doctor tell the patient, “there is nothing wrong with
9. Use of humor
10. Involving the patient’s family
you”, try to elicit more information: “What do
11. S haring some of the doctor's personal you think is the reason?.” Frequently patients
experiences with the patient assume a certain illness they may be suffering
12. Ignoring the patient's feelings
from based on other sources of information.
Understanding and explaining such beliefs
tone, and not a sarcastic one, helps to diffuse can spare further frustration.
the emotion. The physician should become
sensitive and open to the needs of distressed
Develop a Positive Attitude Toward
patients. A helpful action such as passing a box
Patients
of tissue paper when you notice the patient’s
eyes filled with tears, or offering a glass of Affirm in your mind to serve your patients the
drinking water when the throat is parched, best you possibly can, e.g. the physician should
conveys a sense of understanding the feelings take the time to fully explain the patient’s
to the distressed patient. condition, treatment options, and prognosis.
Answering the patient’s questions reduces
Non-judgmental Listening patient apathy and apprehension.
Listen openly and carefully, even when you Once you have made the commitment, the
disagree with what’s being said. The best desire to serve your patients their way rather
way of doing this is simply to repeat back than your way will start to grow.
a summary (i.e. paraphrasing) of what the Learn to use other positive techniques,
patient has said to you (called as ‘reflective or such as positive affirmations, positive self-
active listening’). It is better done in a form of talk, talk with colleagues, meditation, prayer,
statement such as: “I understand that you are exercise. They all help in positive motivation
not satisfied with the service…”, or “I get the and other emotional well-being in the patient.
impression that you don’t like me being late...”
Avoid imposing questions such as—“are Harness the Power of Self-control
you telling me…,or …do you really think… ”, etc. Try to control yourself and avoid emotional
— because distressed patients are in no mood outbursts. Sometime after the outburst, you
to offer satisfactory replies; their thinking is will realize that you were wrong. It will be
not rational. Postpone such questions and too late. During each unpleasant experience,
clarifications until after the outburst. think before you respond. Take responsibility
for your feelings; you can’t change other
Improve Communication Skills peoples’ behavior, so you might as well charge
In a busy practice, patient sometimes get the your own. It is best to stop blaming others
impression that they are unheard or being for your circumstances and take personal

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204  Section 4: The Practice of Family Medicine
responsibility for your feelings. If there are 4. Learn the tools for coping with emotional
problems to resolve “fix the problems, don’t outbursts, such as anger, rejection, etc.
fix the blame” (Stephen Coscia). 5. Learn relaxation techniques.
6. Undergo postgraduate training, mainly in
Make a Conciliatory Gesture the field of communication.23
When an issue seems to become uncom­ 7. Participation in support groups with
promising, it is wise to offer conciliatory colleagues, and groups for personal growth,
gestures and save all further conflicts. Some of such as Balint24,25 or a joint meeting with
the gestures that may be offered are: a genuine people who deal with behavioral sciences,
apology, a statement of regret, a compromise, and analyzing difficult cases.
acceptance of responsibility for your share
of problem, a statement which indicates that The Calmer Approach26
you would like to see a positive outcome to the A practical approach that teachers and learners
conflict for both parties. Say ‘Thank You’ for can use to alleviate the stress in difficult
giving you the opportunity to solve the problem. patients’ encounters and better management of
the patient’s needs known as CALMER model
Coping Skills for Family Physicians has been developed by Pomm Ha et al,
Little has been written to date about the family The CALMER approach consists of six
physicians’ arenas of coping with the difficult steps; several of which only take moments to
patients. The qualitative research studies quoted complete:
earlier16,17 describe various means of coping, 1. Catalyst for change.
which are suitable and can be implemented in 2. Alter thoughts to change feelings.
family practice setup. These include: 3. Listen and then make a diagnosis.
1. Get the patients to meet medical students 4. Make an agreement.
and interns to let them get more deeply 5. Education and follow-up.
involved with the patient and his family. 6. Reach out and discuss feelings.
2. Presentation of a “difficult care” as learning
material for the students.22 Catalyst for Change
3. Videotape presentation and discussion A difficult patient with problems undergoes
with a colleague or a behavioral scientist ‘stages of change’, which have been identified
to analyze the interview and learn form it. as depicted in the Table 22.5:27

Table 22.5  Stages of change in CLAMER approach


Stages of change Explanation
•  Precontemplation Patient denies or minimizes problems. (Not yet acknowledging that there is a
problem behavior that needs to be changed)
•  Contemplation Patient acknowledges problem but not ready to change. (Acknowledging that
there is a problem but not yet ready or sure of  wanting to make a change)
•  Preparation/determination Patient commits to time and plan for resolving the problem. (Getting ready to
change)
•  Action/willpower Patient makes daily efforts to overcome problem
(Changing behavior)
•  Maintenance Patient has overcome problem for at least 6 months but must remain vigilant.
(Maintaining the behavior change)
• Relapse Patient has gone back to problem behavior.
(Returning to older behaviors and abandoning the new changes)

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Chapter 22: The Difficult Patient 205

In the precontemplation stage, patients are the patient make a clear agreement on the
not thinking seriously about changing and are need to work on the problem together to keep
not interested in any kind of help. They do not the patient as healthy as possible. Thus the
focus their attention on quitting and tend not initial problem is logically followed to its end
to discuss their bad habit with others. Patients with better outcome.
in this stage tend to defend their current bad
habit(s) and do not feel it is a problem. They Education and Follow-up
may be defensive in the face of physician’s In the process of continuing physician-
or other people’s efforts to pressure them to patient-relationship, physicians prescribe
quit.However, the physician endeavours to “homework” to their patients depending on
identify the patients current status in the ‘stages their status in the ‘stages of change’ table
of charge’ model and serves as a catalyst for mentioned above. For example, a patient
change by giving recommendations on how the who is in the stage of ‘contemplation’ to
patient can advance to the next stage of change quit smoking, the physician may prescribe
and eventually overcome the problem. The homework such as, “over the next 2 weeks,
physician can guide the patient before, during, please write down your unbiased feelings
or after an interaction with a difficult patient. and thoughts about the good as well as bad
Alter Thoughts to Change Feelings effects of smoking cigarettes on your health,
irrespective of your final choice to smoke
The principle of cognitive-behavior therapy or not to smoke. We will talk about your
that the only way individuals can control experience when we meet after 2 weeks. Is that
their reactions (feelings) is to alter their OK?” The physician and the patient should
thoughts about the situation is applied. First, agree on the “home work assignment” and
the physician identifies the dominant feelings the time frame in which it is to be completed.
experienced by the patient, what are the reasons
or answers for such behavior (e.g. past abuse, Reach out and Discuss your Feelings
poor finances, loneliness, etc.), and how these
feelings might be affecting the physician-patient When dealing with difficult patients, physicians
relationship and the management plans. do not have to feel alone. If the care of difficult
Depending upon their analysis, the physician patient is becoming more stressful, it is advised
offers therapy at correcting maladaptive to discuss it with someone—a colleague, your
feelings, thinking and behaviour that will make own physician, or a friend. They may point
the situation less distressed. out something you have over looked. Let them
share in the working, providing emotional
Listen and then Make a Diagnosis support, and the gratification that comes when
By engaging in the first two steps described effective care leads to healthier behavior. But
above, the physician will be better equipped to be sure that your colleagues understand and
listen what patients are trying to communicate. honor their absolute responsibility to respect
This will help in making more accurate the privacy of these patients.2
diagnosis and will lead to better working The CALMER approach incorporates six
relationship with patients. steps that physicians can utilize to feel more in
control and less distressed during encounters
Making an Agreement with difficult patients. The rationale behind
This step attempts to reinforce physician- “staging” people, as such, was to tailor therapy
patient relationship. Both the physician and to a person’s needs at his/her particular point

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206  Section 4: The Practice of Family Medicine
in the ‘change’ process. However, the stages 4. O’Dowd TC. Five years of heartsink patients
are no longer considered to be linear; rather, in general practice. BMJ, 1988;20–27;
they are components of a cyclical process 297(6647):528–30.[PMID:3139188:Free full
that varies for each individual. This strategy text]
< http://www.ncbi.nlm.nih.gov/pmc/articles/
is also helpful to faculty teachers to increase
PMC1840368/?tool=pubmed> Accessed on
the learner’s self-efficacy in managing difficult
21-11-2011.
patient encounters.
5. Ellis CG. Making dysphoria a happy experience.
Br Med J (Clin Res Ed), 1986;293(6542): 317–8.
Conclusion 6. Adams J, et al. The general approach to the
difficult patient. Emerg Med Clin North Am,
In the present set up of healthcare delivery
1998;16:689–700.
system and pressure of time to manage
7. Schafer Sean, et al. Personality disorders
patients in busy practice, the incidence among difficult patients disorders. Arch Fam
of difficult patient encounters is bound to Med, 1998;7(2):126–9.
increase. However, being labelled as ‘difficult’ 8. Robles R, et al. Sociodemographic and
depends on the perception of the doctor psychopathological features of frequent
involved. attenders in Primary Care. Actas Esp Psiquiatr,
These patients have chronic, painful 2009;37(6):320–5.[PMID:20066583:Abstract]
problems, and interpersonal difficulties, which < http://www.ncbi.nlm.nih.gov/
are amicable more to bio-psychosocial than pubmed/20066583>
9. Verhaak PF, et al. Persistent presentation of
biomedical approach. Learning these skills
medically unexplained symptoms in general
before graduation is ideal.
practice.Fam Pract. 2006;23(4):414–20. Epub
Making a paradigm shift from thinking 2006 Apr 21. [PMID;16632487: Free full text ]
“difficult patients” to “difficult relationships” < h t t p : / / w w w . n c b i . n l m . n i h . g o v /
is the first step to manage such relationships pubmed/16632487>.
better. 10. Groves JE. Tacking care of hateful patients.
Implementing effective strategies, NEJM, 1978;298(16):883–7.
especially based on humane approach, can 11. Christie RJ et al. Ethical issues in Fam Med.
enhance physicians practice satisfaction and Oxford Univ Press, 1986.
12. Steinmetz D, et al. The ‘difficult patient’ as
improve patient outcomes.
perceived by family physicians. Fam Pract,
2001;18(5):495–500.[PMID:11604370:Free full
References text]
1. Linzer M, et al. Working conditions in primary 13. Pearce Chris. The difficult patient. Aust Fam
care: physician reactions and care quality. Phy, 2002;31(2);177–8.
Ann Intern Med, 2009;151(1):28–36, W6-9. 14. Wade Derick T. Do biomedical models of
[PMID:19581644:Abstract] illness make for good healthcare systems? BMJ,
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Relevance for 21st centur y medicine. 933–8.
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patient. The Lancet, 1978;1:138–40. [PMID:17090786: Free full text]
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23 Medical
Professionalism

“The physician professional is defined not only by what he/she must know and do, but most importantly
by a profound sense of what the physician must be.”
—Jordan Cohen, MD, Presidential Farewell Address
The Association of American Medical Colleges, November 6, 2005.

Introduction ethical terms.2 For example—in the recent


In recent times there is a growing concern H1N1 influenza campaign, the Health
about the “quality of healthcare services”, Committee of the European Parliamentary
i.e. “achieving desired health outcomes that Council has launched an investigation into
are consistent with current professional the ‘pandemic’ scandal of drug corruption
knowledge,” provided by the private and between World Health Organization, the
the public sectors. 1 The symptoms of pharma industry and academic scientists
deterioration such as steady decrease in that has permanently damaged the lives of
monitoring health care and the change of millions and even caused deaths. 3 A large
healthcare into profit-seeking service are number of complaints are filed against
visible. Newspapers scream the dreadful doctors in various forums, including bringing
headlines of surgeries gone wrong, unjustified a malpractice claim and seeking redress in
medical and surgical procedures, medications the courts, on charges of medical negligence.
with awful side effects, tainted vaccine Prof. K. Ganapathy, Neurosurgeon and
research, dubious drug and research claims, Medical Director of the Apollo Telemedicine
and kickbacks for drug prescriptions, organ Networking Foundation, Chennai, India,
trafficking, sharing or reusing syringes and states: “The complexity of modern medicine
unsanitary conditions. As a result of such leads to more opportunities for error… the
ignoble and immoral acts millions of people information explosion has resulted in patient
all over the world are victims of deadly empowerment leading to decrease in medical
adverse drug reactions, disabling injuries and autonomy. Doctors must produce evidence
even death. Several high profile scandals in for their patients. The health care industry
medicine have led to increased scrutiny of is perceived as being too big, dangerous,
medicine and to calls of health professionals and costly to entrust its working solely to
and managers to justify their practice in white coated doctors. Continuous Quality

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Chapter 23: Medical Professionalism 209

Improvement (CQI)* techniques used in professionalism: engaging the mind but


monitoring industrial processes are now used not the heart” argues, “Today’s culture of
in tracking patient care. The health consumer medicine is hostile to altruism, compassion,
is trying to ensure that customer delight, integrity, fidelity, self-effacement, and other
not satisfied doctors, is the new slogan for traditional qualities. Hospital culture and the
healthcare industry.”4 narratives that support it often embody a set
of professional qualities that are diametrically
Professionalism—Pitfalls opposed to virtues that are explicitly taught
as constituting the “good’ doctor”. 7 The
What could be the reasons for such eroded medical profession has been criticized for its
ethics which is fundamental to our profession? “Emphasis on remuneration, its failure to self
Why today’s healthcare system harms patients regulates adequately, its apparent inability
too frequently and too often fails to live up to to address problems felt to be important by
its potential? Why we are largely characterized society, and the fact that the profession often
as unethical? Patients seem to have lost faith puts its own welfare above that of both society
in our profession — we are seen as traders and and individual patients.”8
not health care professionals!
The answer to this thorny question is
The Evolution of Professionalism
not simple — its genesis has been attributed
to various factors. “The noble profession of We know for a fact that today’s healthcare
medicine, taken up as a ‘calling’ by those who ‘business’ (i.e. too greedy to truly care about
are expected to put the needs of the patient patients’ welfare) climate creates more ethical
above their own, appears to have become a challenges than ever before, and the society is
fees-for-service business model and trade. becoming more criticizing and urging health
Parental expectations, the diminishing sense care professionals to deliver their services
of responsibility in teachers, lack of role better. Nevertheless, there also exists a volume
models, technological advancements, sub- of evidence that has been supportive of dignity
specialization and third-party involvement and honor of the healing arts;9 our colleagues
in the healthcare delivery system have been have rendered humanitarian services beyond
identified as reasons for these concerns”. 5 the hospital walls, and that our profession is no
There are flaws in medical education and longer viewed as being principally responsible
its implementation, such as the teaching of for the defamatory direction of the health
professionalism in undergraduate medical care —it is shared with the state, the corporate
education varies widely and the strategies sector, and numerous increased external
used to teach professionalism are not always influences affecting the healthcare profession,
adequate.6 Coulehan, in his article “Today’s causing “defects in the system”.8 Thus, there

*“CQI is a disciplined approach to problem solving. The four basic building blocks of the program include:
leadership, planning, quality control, and quality improvement. It is customer focused, data driven,
and empowers the employees to meet the needs of their patients. Management teams that successfully
adopt the underlying philosophic tenets of the program and provide adequate resources for training
and implementation may realize such benefits as improved clinical outcomes, increased patient and
staff satisfaction, increased staff productivity, fewer adverse events, enhanced cost effectiveness, and
an improvement in overall organizational performance”.(Ref. web site: http://www.ncbi.nlm.nih.gov/
pubmed/11349250)

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210  Section 4: The Practice of Family Medicine
is an opportunity for the profession per se to to have a clear understanding of what
address the issues facing it in an atmosphere “professionalism” means.
that is less hostile. The medical fraternity has A definition of “profession” which is useful
woken up and has decided to put its house in to medical educators with responsibilities for
order. teaching about the professions, professional
In a bid to re-establish its role as a responsibilities, and professional behavior is
“friend, philosopher, and guide”, the medical suggested by Cruess SR et al11, which states,
organizations all over the world, notably, “An occupation whose core element is work
European Federation of Internal Medicine, based upon the mastery of a complex body of
The American College of Physician, American knowledge and skills. It is a vocation in which
Society of Internal Medicine (ACP-ASIM), and knowledge of some department of science
The American Board of Internal Medicine or learning or the practice of an art founded
(ABIM), gave a clarion call for a “renewed upon it is used in the service of others. Its
sense of professionalism” — one that is activist members are governed by codes of ethics
in reforming health care systems. These three and profess a commitment to competence,
organizations designated members developed integrity and morality, altruism, and the
a “charter” consisting three principles and promotion of the public good within their
ten commitments, (Table 23.1) to encompass domain. These commitments form the basis
a set of “principles to which all medical of a social contract between a profession and
professionals can and should aspire….which society, which in return grants the profession a
is applicable to different cultures and political monopoly over the use of its knowledge base,
systems, because its members share the role the right to considerable autonomy in practice
of a healer, which has roots extending back to
and the privilege of self-regulation. Professions
Hippocrates.”10
and their members are accountable to those
served and to society”. Society awards certain
Defining Professionalism benefits to those of a profession and may
Because medicine is a “profession” and withdraw these benefits if the obligation is
physicians are “professionals”, it is important not being fulfilled. It is important to note that,
Table 23.1  The charter on medical professionalism10
although at the heart of every profession there
is a legally sanctioned control over a specified
Fundamental principles:
• Principle of primacy of patient welfare
body of knowledge and a commitment to
• Principle of patient autonomy service, the medical profession, in addition
• Principle of social justice to its particular knowledge and skills,
Professional responsibilities: distinguishes itself from other jobs and trades
• Commitment to professional competence
by a high code of behaviour that insists on
• Commitment to honesty with patients
• Commitment to patient confidentiality health care responsibility and public service.
• Commitment to maintaining appropriate relations In this context the Physician Charter
with patients
• Commitment to improving quality of care
quoted above10 states “professionalism” as a
• Commitment to improving access to care “basis of medicine’s contact with the society”.
• Commitment to a just distribution of finite It demands placing the health interest of
resources
• Commitment to scientific knowledge
patients above those of the physicians, setting
• Commitment to maintaining trust by managing and maintaining standards of competence
conflicts of interest and integrity, and providing expert advice to
• Commitment to professional responsibilities society on matters of health.

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Chapter 23: Medical Professionalism 211

The American Board of Internal Medicine patients the most important consideration.
recently embarked on a study of medical Without the oath as a guide, physicians are
professionalism. In a monograph entitled merely skilled workers. Practicing what is
“Project Professionalism” published in 1995, described in the oath results in physicians’
the Board characterized professionalism in being professionals, and most importantly, it
medicine as, first and foremost, requiring is not what we do as physicians but how we do
the physician “to serve the interests of the it that defines medical professionalism.14
patient above his/her own self-interest.” It
specifically spelled out these six elements of Fundamental Ethical (Moral)
professionalism: altruism, accountability, Principles15
excellence, duty, honor and integrity and
respect for others (Table 23.2).12, 13 These are moral standards laid down by society
and the medical profession to regulate the
The Hippocratic Oath, regarded as the
physicians’ behavior toward their patients. The
cornerstone and foundation of the medical
four basic moral principles in the physician-
profession, and probably the earliest code
patient relationship are:
of conduct instituted for physicians, and the
introduction of series of codes of ethics for 1. The Principle of Altruism: It is based on the
physicians in several different fields, such as supremacy of patients’ welfare, i.e. first and
declaration of Geneva, declaration of Helsinki, foremost, requiring the physician to serve
International code of medical ethics, etc. the health interests of patients and public
describe our profession and our mission to health needs above their own self-interests.
help those in need of care and reduce their 2. The Principle of Autonomy: It implies that a
pain and suffering, making the welfare of the patient is capable of deciding what is good

Table 23.2  Attributes in professionalism in medicine

Attributers Description Examples of deficiencies


Altruism Unconditional caring of the patient, putting Refusing to see a patient admitted at ‘odd’
others before self; the best interest of patients, hours, e.g. after midnight
not self-interest
Accountability Responsible, accountable to patients for Failure to follow up patient’s progress; failure
fulfilling the implied contract governing the to refer patient to specialists as and when
patient/physician relationship; accountable indicated
to society for addressing the health needs of
the public
Excellence Conscientious effort to exceed ordinary Casual attitude to group discussion; inability
expectations and to make a commitment to to acknowledge limited experience; not
life-long learning heeding expert advise
Duty Commitment to service; advocating the best Failing to respond to on-call messages;
possible care for the welfare of the community unreasonable delay in attending emergency
patients
Honor and Truthful with patients, families, colleagues, Accepting gifts from industry; falsifying clinical
integrity adhering to ethical and moral code; recognition evidence; plagiarizing scientific and research
and avoidance of conflict of interest articles
Respect for Treating patients, families, professional and Making derogatory comments about patients’
others other colleagues with respect; maintaining personal issues or illness; disobeying
confidentiality; maintaining respectful confidentiality
physician-patient relationship

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212  Section 4: The Practice of Family Medicine
or otherwise, as long as those decisions a different ethical action, simply because of
are in keeping with ethical practice and the different weightage given to the ethical
do not lead to demands for inappropriate values. What is important is that the ethical
care. In difficult cases, a mutually agreed decision must be valid one, namely, it must be
solution in the context of physician-patient defendable on logic.16 , 17
relationship helps to mitigate a particular
problem. A Set of Professional
3. The principle of beneficence (do good)
Responsibilities18 (See Table 23.1)
and non-maleficence (do no harm): This
is the time honored principle of “do not Commitment to Professional
harm, prevent harm, and remove harm”, Competence
which guides physicians while suggesting a Physicians must be committed to lifelong
treatment plan. Every patient deserves and learning and be responsible for maintaining
must be provided optimal care to cure or the medical knowledge and clinical and team
comfort the underlying medical condition. skills necessary for the provision of quality
4. The Principle of Social Justice: The care. More broadly, the profession as a whole
medical profession must promote justice must strive to see that all of its members are
in the healthcare system, including the competent and must ensure that appropriate
fair distribution of healthcare resources. mechanisms are available for physicians to
Physicians should work actively to accomplish this goal.
eliminate discrimination in health care,
whether based on race, gender, socio- Commitment to Honesty with Patients
economic status, ethnicity, religion, or any
other social category. Physicians must ensure that patients are
Ethics varies according to place, time, completely and honestly informed before the
circumstances, and context. For example, patient has consented to treatment and after
traditional ethics often fall short of guiding treatment has occurred. This expectation does
the complex issues involving patients in not mean that patients should be involved in
intensive critical-care, terminal disease, every minute decision about medical care;
organ transplantation, assisted conception, rather, they must be empowered to decide
cloning and euthanasia and in biomedical on the course of therapy. Physicians should
research. Besides, involvement of managed also acknowledge that in health care, medical
care organizations and the directives of the errors that injure patients do sometimes
insurers, the ethical concerns about the occur. Whenever patients are injured as a
authority and trustworthiness of physicians consequence of medical care, patients should
have become important debatable topics be informed promptly because failure to
in clinical ethics. Therefore, in practice, do so seriously compromises patient and
there may be conflicts between one or more societal trust. Reporting and analyzing medical
moral principles in a given situation and mistakes provide the basis for appropriate
the physician has to weigh which is more prevention and improvement strategies and for
important in terms of the patient’s interests. appropriate compensation to injured parties.
There may be different opinions from different
physicians depending on the values and beliefs Commitment to Patient Confidentiality
that the individual physician attaches to each Earning the trust and confidence of patients
of these principles. It is not wrong to come to requires that appropriate confidentiality

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Chapter 23: Medical Professionalism 213

safeguards be applied to disclosure of patient and implementation of mechanisms designed


information. This commitment extends to encourage continuous improvement in the
to discussions with persons acting on a quality of care.
patient’s behalf when obtaining the patient’s
own consent is not feasible. Fulfilling the Commitment to Improving Access to
commitment to confidentiality is more Care
pressing now than ever before, given the
Medical professionalism demands that
widespread use of electronic information
the objective of all health care systems be
systems for compiling patient data and an
the availability of a uniform and adequate
increasing availability of genetic information.
standard of care. Physicians must individually
Physicians recognize, however, that their
and collectively strive to reduce barriers to
commitment to patient confidentiality must
equitable health care. Within each system, the
occasionally yield to overriding considerations
physician should work to eliminate barriers
in the public interest (e.g. when patients
to access based on education, laws, finances,
endanger others).
geography, and social discrimination. A
commitment to equity entails the promotion
Commitment to Maintaining
of public health and preventive medicine, as
Appropriate Relations with Patients
well as public advocacy on the part of each
Given the inherent vulnerability and physician, without concern for the self-interest
dependency of patients, certain relationships of the physician or the profession.
between physicians and patients must be
avoided. In particular, physicians should never Commitment to a Just Distribution of
exploit patients for any sexual advantage, Finite Resources
personal financial gain, or other private
purpose. While meeting the needs of individual patients,
physicians are required to provide health care
Commitment to Improving Quality of that is based on the wise and cost-effective
Care management of limited clinical resources.
They should be committed to working with
Physicians must be dedicated to continuous
other physicians, hospitals, and payers to
improvement in the quality of health care.
develop guidelines for cost-effective care.
This commitment entails not only maintaining
The physician’s professional responsibility for
clinical competence but also working
appropriate allocation of resources requires
collaboratively with other professionals to
scrupulous avoidance of superfluous tests
reduce medical error, increase patient safety,
and procedures. The provision of unnecessary
minimize overuse of health care resources,
services not only exposes one’s patients
and optimize the outcomes of care. Physicians
to avoidable harm and expense but also
must actively participate in the development
diminishes the resources available for others.
of better measures of quality of care and the
application of quality measures to assess
routinely the performance of all individuals,
Commitment to Scientific Knowledge
institutions, and systems responsible for health Much of medicine’s contract with society
care delivery. Physicians, both individually and is based on the integrity and appropriate
through their professional associations, must use of scientific knowledge and technology.
take responsibility for assisting in the creation Physicians have a duty to uphold scientific

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214  Section 4: The Practice of Family Medicine
standards, to promote research, and to create Model Behaviors of
new knowledge and ensure its appropriate use. Professionalism19,20
The profession is responsible for the integrity
It may be noted that the above official
of this knowledge, which is based on scientific
statements defining professionalism have been
evidence and physician experience.
mainly academic and principle based, without
a clear description of what professional
Commitment to Maintaining Trust by
behaviors look like in practice. Therefore,
Managing Conflicts of Interest a more behavioral oriented attributes, as
Medical professionals and their organizations determined by multiple observation-based
have many opportunities to compromise their assessments by peers, senior residents,
professional responsibilities by pursuing facult y, me dical students, and non-
private gain or personal advantage. Such physician professionals, makes the pursuit
compromises are especially threatening in of professionalism, i.e. behaving in a manner
the pursuit of personal or organizational to achieve optimal outcomes in professional
interactions with for-profit industries, tasks and interactions in daily practice more
including medical equipment manufacturers, accessible and attainable. These may be stated
insurance companies, and pharmaceutical as follows:
firms. Physicians have an obligation to
recognize, disclose to the general public, Responsibility
and deal with conflicts of interest that arise
™™ Arrives on time and prepared for work.
in the course of their professional duties and
™™ Appropriate dress and cleanliness.
activities. Relationships between industry and
™™ Willingly sees patients throughout the
opinion leaders should be disclosed, especially
entire shift.
when the latter determine the criteria for
™™ Writing appropriate sign-outs (e.g. patient
conducting and reporting clinical trials,
management plans), both giving and
writing editorials or therapeutic guidelines, or
receiving.
serving as editors of scientific journals.
™™ Completes medical records honestly and
punctually.
Commitment to Professional
™™ Appropriate use of symptomatic care.
Responsibilities
™™ Accepts blame for failure.
As members of a profession, physicians are
expected to work collaboratively to maximize Maturity
patient care, be respectful of one another, and
™™ Demonstrates sensitivity to patient’s pain,
participate in the processes of self-regulation,
emotional state, and gender/ethnicity
including remediation and discipline of
issues.
members who have failed to meet professional
standards. The profession should also define ™™ Accepts responsibility/accountability.
and organize the educational and standard- ™™ Effectively coordinates team.
setting process for current and future members. ™™ Actively seeks feedback and immediately
Physicians have both individual and collective self-corrects.
obligations to participate in these processes. ™™ Open/responsive to input/feedback of
These obligations include engaging in internal other team members, patients, families,
assessment and accepting external scrutiny of and peers.
all aspects of their professional performance. ™™ Participates in peer-review process.

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Chapter 23: Medical Professionalism 215

™™ Fairness in recruitment of residents, Reasons for Teaching


faculty, and staff. Professionalism21
Patients expect physicians to be professional: All
Communication Skills
patients want to be looked after by doctors with
™™ Is not hostile, derogatory or sarcastic. up-to-date medical knowledge and clinical
™™ Is not loud or disruptive. skills, strong ethical standards and bedside
™™ Maintains patient confidentiality. manners that is empathetic, courteous and kind.
™™ Protects staff/family/patient’s interests/
confidentiality. Teaching and assessing professionalism does
™™ Discusses death honestly, sensitively, not occur by chance alone: The elements of
patiently, and compassionately. professionalism discussed earlier should be
™™ Uses humor/language appropriately. intentionally taught, which requires formal
curricula and authentic fostering of a culture
™™ Is patient.
of profes­sionalism in learning environments.
Respect Professionalism is associated with improved
™™ Unconditional positive regard for the medical outcomes: Professionalism results
patient, family, staff, and consultants. in increased patient satisfaction and trust;
™™ Treats patients/family/staff/para­ increased patient adherence with treatments,
professional personnel with respect. increased likelihood patients will stay with a
™™ Is sensitive to physical/emotional needs. physician, fewer patient complaints, and less
™™ Is not biased/discriminatory. patient liti­gation. In addition, professionalism
is associated with overall physician excellence
including medical knowl­e dge, skills and
Unprofessional Behaviors18
conscientious behaviors.
™™ Substance abuse and/or dependence.
™™ Abandons patients. Unprofessional behavior is associated with
™™ Refractory lying, cheating, stealing. adverse medical outcomes: for example,
™™ Unable or unwilling to learn from past reduced employee morale and pro­ductivity,
mistakes. re duce d nurs e satis ­faction, re duce d
™™ Fails to show up for work. communication, teamwork and efficien­c y,
higher costs and decreased learner satisfaction,
™™ Discriminates against others based on
burn­out, and depression.
race, creed, gender, or sexual orientation.
Medical professional societies expect
™™ Takes risks that seriously threaten safety of
or require it. There is a growing consensus
patients and staff.
among medical educators and accreditation
™™ Harasses or unfairly punishes students/
organizers that to promote the professional
patients/staff.
development of medical students, schools
™™ Verbally or physically assaults patients/
of medicine should provide explicit learning
family/staff.
experiences in professionalism.
™™ Falsifies medical records or research data.
™™ Inappropriate sexual contact with patients,
students, or staff. The Educational Challenge
™™ Personal life interferes with work. Perhaps the most ideological issue of medical
™™ Unkempt appearance or poor grooming. professionalism is the question of how to
™™ Suggestive or sloppy dress. implement and enforce professional standards.

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216  Section 4: The Practice of Family Medicine
A review of the literature suggests that ™™ Relevant material drawn from sociology,
professionalism is not completely understood p h i l o s o p h y , e c o n o m i c s, p o l i t i c a l
or practiced.22 Although many approaches have science, and medical ethics as related to
been suggested to achieve this goal, such as professionalism, including interpretations
periodic board recertification, Balint training, of both the historical course of events and
involving consumer groups and media as of doctors’ behavior that are critical of the
watchdog committees, imposing legislations medical profession.
on health matters, policies to minimize the ™™ The link between professional status and
influence pharmaceutical companies and the obligations to society must be fulfilled
their representatives, 23,24 the one striking to maintain public trust. These obligations
observation is, “the lack of literature dealing should be explicitly outlined and included
with professionalism available to the average in the teaching.
doctor. When this is coupled with the absence The teaching of professionalism begins with
of relevant material in the curriculum of most the first year medical student in the classroom
medical schools, it is understandable why, and continues as the student progresses into
in a rapidly changing world, doctors may not the clinical arena. A curriculum that includes
have a clear understanding of what the public clinical and professional ethics, social issues
expects from its professionals ... most doctors in medicine, community service activities, and
do not fully understand the obligations they longitudinal patient care is necessary. It is the
must fulfill to satisfy public expectations and responsibility of the institution to create an
maintain professional status. However, the environment for professionalism, have leaders
doctors will meet their obligations if they who are involved with mentorship, and ensure
understand their origins and their nature. that the entire faculty is contributing to the same
Therefore, professionalism must be taught”.8 outcome.25
Medical schools, teaching hospitals, and
those responsible for continuing medical
Conclusion
education should teach professionalism as a
subject formerly identified in the curriculum. With the changing values and in a competitive
The teaching of professionalism should world, the practice of medicine is beset
include several components:8 with unprecedented challenges. The waves
™™ Identifying educational content in the of consumerism, enterpreneurism, and
undergraduate medical school curriculum commercialism are threatening to drown what
devoted to professionalism which should is professionalism. To maintain the fidelity of
be reinforced in postgraduate programmes medicine’s social contact during this turbulent
and in continuing medical education. The time, the physician must reaffirm their active
subject should be part of the evaluation of dedication to the welfare of patients and society.10
all students. Professionalism, long a consideration
™™ A clear definition of professionalism and of physicians and patients, is coming to the
its characteristics. forefront as an essential element of medical
™™ Knowledge of codes of ethics governing the curriculum. Ethics should be thought to
doctor-patient relationship. medical students actively and must not be
™™ Professionalism as an ideal to be pursued, relegated to a ritual of the Hippocratic Oath.
emphasizing its inherent moral value. The The next generation of practicing
concept of altruism must be highlighted as physicians must regain the high degree of
essential to professionalism. public trust that medicine once experienced

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Chapter 23: Medical Professionalism 217

by understanding their obligations to society 12. American Board of Internal Medicine: Project
and by maintaining their position not just as Professionalism, 1995.
students of science but also as disciples of 13. Schwartz, Ann C, et al. Developing a Modern
learning and wisdom.24 Standard to Define and Assess Professionalism
in Trainees; Acad Psychiatry, 2009;33:442–50.
References 14. Har r is GD. Professionalism : Par t I –
Introduction and being a role model. Fam
1. Shipon DM, et al, Quality in health care: what Med, 2004;36(5): 314–5.
are the problems and what are the solutions? 15. Longmore M,et al. Oxford Handbook of Clinical
Tex Med. 2000;96(10):61–5. Review. [PMID: Medicine 5th edn. Oxford University Press.
11070737:Abstract] 2001:17.
2. Parker JM. Getting ethics into practice. BMJ, 16. Goh L G. The doctor-patient relationship.
2004;329:126. Singapore Fam Phy: 1993;19(1).
3. F. William Engdahl. European Parliament to 17. Iyalomhe GB. Medical ethics and ethical
Investigate WHO and “Pandemic” Scandal. dilemmas. Niger J Med, 2009;18(1):8–16.
Web site : http://www.european-hospital. Review. [PMID: 19485140: Abstract]
com/en/article/6837-European_Parliament_ 18. Me dica l P rofessiona l ism in th e New
to_Investigate_WHO_and_%22Pandemic%22_ millennium: web site -http://www.annals.
Scandal.html org/content/136/3/243.full
4. Ganapathy K. Patient power. The Hindu; 14th 19. Larkin GL et al. Defining and evaluating
Dec. 2003. professionalism: A core competency for
5. Sivalingam N. Teaching and learning of Graduate Emergency Education. Academic
professionalism in medical schools.Ann Emerg Med, 9(11):1249–56.
Acad Med Singapore. 2004;33(6):706–10. 20. Reed DA, et al. physicians. AMA. 2008;
[PMID:15608822:Free article] 300(11):1326–33. [PMID: 18799445: Free
6. Swick HM, et al. Teaching professionalism article]
in undergraduate medical education JAMA. 21. Mueller P S. Incorporating Professionalism
1999;282(9):830–2 [PMID:10478688: Abstract] into Medical Education: The Mayo Clinic
7. Coulehan J. Viewpoint: today’s profession­alism: Experience .Keio J Med, 2009;58(3):133–143.
engaging the mind but not the heart. Acad Med. 22. Gaiser RR. The teaching of professionalism
2005;80(10):892–8.[PMID:16186604:Abstract] during residency: why it is failing and a
8. Cruess SR, et al. Professionalism must be suggestion to improve its success.Anesth
taught. BMJ, 1997;20–27;315(7123):1674–7. Analg, 2009;108(3):948–54. Review. [PMID:
[PMID: 9448538: Free article] 19224808: Free article]
9. Freidson E. Professionalism reborn. Chicago. 23. Adams KE, et al. Effect of Balint training on
University of Chicago Press, 1994. resident professionalism. Am J Obstet Gynecol,
10. Me d i ca l Pro f e ssi o na l i sm i n t he Ne w 2006;195(5):1431–7. Epub 2006 Sep 25. [PMID:
millennium: A Physian Charter. Project of the 16996457]
ABIM foundation, ACP-ASIM Foundation, and 24. Rothman DJ. Medical Professionalism –
European federation of Internal Medicine. Focusing on real issues. New Eng J med, 2000;
Annals of Int Med, 2002;136(3):243–6. 342(17):1284–6.
11. Cruess SR, et al.”Profession”: a working definition 25. Harris GD. Professionalism: Part II– Teaching
for medical educators. Teach Learn Med, 2004 and Addressing the Learner’s Professionalism.
winter; 16(1):74-6. [PMID: 14987179: Abstract] Fam Med, 2004;36(6): 390–2.

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5
Section

Adolescent Health
™™ Adolescent Care
™™ A Problem Adolescent

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24 ADOLESCENT CARE

“There is no greater challenge in the world than that of being a parent.”

Introduction Although for the majority of young people


adolescence is not a tumultuous developmental
On the eve of the World Population Day,
period, there is a significant group of young
11 July, 2011, Dr Babatunde Osotimehin,
people for whom the adolescence is associated
United Nations Population Fund (UNFPA)*
with considerable morbidity and concerns
Executive Director, while addressing the world
about medical issues.
of 7 billion, put forth his vision: “This year,
on October 31st, world population reaches 7 Adolescence is a time of many transitions
billion. This milestone represents a challenge, both for teens and their families. To ensure
an opportunity and a call to action, we have that teens and adults navigate these transitions
an opportunity and responsibility to invest in successfully, it is important for both to
the world’s 1.8 billion adolescents and youth understand what is happening to the teen
aged 10–24 years. They constitute more than a physically, cognitively, and socially; how these
quarter of the world’s population and almost transitions affect teens; what adults can do;
90% live in developing countries. Every young and what support resources are available.
person deserves education, including sexuality However, at present times certain health
education and access to comprehensive health problems have emerged which are closely
services. With the right policies, investments related to the lifestyle of teenagers. Young
and social support, young people can enjoy people are being targeted increasingly by the
healthier lives free of poverty and enhance music, fashion, and leisure industries, and
prospects for peace and stability”.1 this “youth industry” shapes to a considerable
The above message of hope and action extent, the evolving patterns of youth culture.2
clearly distinguishes adolescents as an Obesity, substance use and abuse (e.g. tobacco,
emerging significant proportion of the alcohol, illicit drugs, and inhalents), unprotected
population group which transcends the sex, disruptive behavior, mental illness and
confines of geography, economics, education, nutritional deficiencies are common health
culture and race. problems in the adolescents. The major causes

*UNFPA, the United Nations Population Fund, is an international development agency that promotes
the right of every woman, man and child to enjoy a life of health and equal opportunity. UNFPA supports
countries in using population data for policies and programmes to reduce poverty and to ensure that
every pregnancy is wanted, every birth is safe, every young person is free of HIV/AIDS, and every girl and
woman is treated with dignity and respect.

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222  Section 5: Adolescent Health
of injury and death in the adolescents are account for significant patient population,
motor vehicle and other road traffic accidents, requiring primary healthcare needs. Surveys
homicide, and suicide. It’s a common knowledge show that teenagers have many health concerns,
that preventive services particularly needed are though they do not always tell their GP about
for addictive problems, emotional disorders, them; however, they do visit their GPs on an
suicidal states, and conditions related to sexual average 2–3 times a year (with about 70% of
activity.3-6 These health needs are not met by all teenagers visiting their GP in any one year).
existing health care delivery systems. At present, These visits provide opportunities to deal with
there is no unified approach to the development their health concerns.11 Therefore, it behooves
of health care programs for adolescents, but family physicians to respect these findings and
important explorations of effective methods are foster an improved atmosphere, and provide
taking place in a fragmentary way. The challenge improved health care and establish enhanced
is to provide the necessary technology and level of confidence and motivation in them.
professional expertise in an accessible setting
and then to weld these services into programs Definition
which will become cohesive and stable.7 Adolescence is the transitional period of
With rapid industrialization, urbanization development involving two important
and erosion of traditional social cultures, physiological and psychological aspects —
adolescent healthcare in the primary sector from childhood to adolescence, encompassing
are fast gaining its importance in the present puberty, and that from an increasingly protracted
modern society, especially in developing adolescence to adulthood2— involving multiple
nations. A major goal in the healthcare of today's physical, intellectual, personality, and social
youth is to increase access to and use of health developmental changes.
services for adolescents, and to strengthen Technically, adolescence is a period from
contributions from the education, media and the beginning of sexual maturity to completion
other communication sectors to improve of physical growth.
adolescent health so that adolescents can Adolescence begins with the onset of
become knowledgeable about the relationship physiologically normal puberty, and ends
between their lifestyle and their physical and when an adult identity and behavior are
mental health.8 They also need help in achieving accepted. This period of development
the maturity essential to choosing a healthy corresponds roughly to the period between
lifestyle and accepting responsibility for their the ages of 10 and 19 years.
personal health. In this context, family physicians Although adolescent phase ranges from
and primary care clinicians, who are trained to age 10–19 years (age 11–21 years is also
integrate physical, psychological, social, cultural included by some authorities), it is to be
and existential factors, utilizing the knowledge noted that those responsible for providing
and trust engendered by repeated contacts, healthcare to adolescents must allow sufficient
can play a critical role in preventing adverse flexibility in this age span to encompass special
outcomes and promoting healthy lifestyles.9,10 situations such as an emancipated minor*
Furthermore, in family practice, adolescents or a young person with a chronic condition

*The term, “emancipation” refers to the point at which a minor becomes self-supporting, assumes adult
responsibility for his/her welfare, and is no longer under the care of his or her parents. Upon achieving
emancipation, the minor thereby assumes the rights, privileges, and duties of adulthood before actually
reaching the "age of majority" (adulthood).

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Chapter 24: Adolescent Care 223

leading to delayed development or prolonged initial encounter, establish what the parents'
dependency.12 concerns are, obtain a family history, and
World Health Organization defines ask about previous medical problems. This
adolescence* as a progression from appearance begins the transition from parent to teen as
from secondary sexual characteristics to sexual the medical historian. Next, ask parents to
and reproductive maturity, development wait in the waiting room so that the physician
of adult identity, and transition from total can speak privately with the adolescent. The
socioeconomic dependence to independence. physician interviews the adolescent alone,
However, while adolescence is a recognizable perform a physical examination with a
phase of life, its end is not always easily chaperone, and then invite the parents back
demarcated. This poses problems for into the room at the conclusion of the visit to
practitioners when adolescent patients require discuss clinical findings. Such an approach
care in facilities with restrictive age limits.12 gives the message that the physician is treating
them with respect as individuals and that their
Adolescent Consultation opinion is important.
It is important to recognize that adolescents There are occasions when physicians face
often have little knowledge of primary care, problems to come to an amicable solution,
except for their experience as children when especially when dealing with their life-
they were accompanied by parents or relatives. style behavior. At such times, the physician
It is a commonly seen that appointments for should try to concentrate on areas where
adolescents tend to be made by parents, and the adolescent is doing well, keeping the
this “parental involvement” in scheduling discussion positive.
appointments for their sons and daughters Although adolescents are assuming greater
(irrespective of age) is found to be an responsibility for their own health care, yet
important factor in yielding better compliance they have a high rate of broken appointments.14
to consultation appointments.13 When adolescents visit physician’s office,
There is no standard approach to they frequently comment on number of
consulting with adolescents that is found potential negative issues such as uncaring
to be most successful. Neither the standard staff, delays in appointments, uncaring health
“pediatric” consultation (i.e. doctor normally professionals, breaches in confidentiality,
communicates with parents), nor the standard unfriendly atmosphere, inappropriate health
“adult” consultation (i.e. doctor mostly promotion, and lack of respect for their
communicates with the patient), is appropriate viewpoints. It is therefore essential for the
for adolescents.13 physician to respect these feelings and foster
Initially, it is best to see adolescents an improved atmosphere in which they
together with their parents, and after the feel more comfortable and respected, and
parents’ narration is over, adolescents should thus improve their understanding of the
be interviewed individually. A useful beginning potential negative outcomes associated with
is an initial introductory meeting with both noncompliance to improve appointment-
the adolescent and parents. During this keeping behavior.15

*WHO defines “adolescents” as individuals in the 10–19 years age group and “youth” as the 15–24 years
age group. These two overlapping age groups are combined in the group “young people” covering the age
range 10–24 years.( web site - http://www.searo.who.int/en/Section13/Section1245_4980.htm)

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224  Section 5: Adolescent Health
Exploring Hidden Agenda it is based on mutual respect. This requires
speaking to the adolescent alone after obtaining
Adolescents normally present to primary care
another relevant history from parents.
physicians with routine health problems,
Providing confidential services is an
such as upper respiratory tract infections,
essential part of adolescent health care
minor injuries, allergies, acne; and long-term
that works best with the alliance of parents.
health needs such as immunization, asthma,
Further, educating parents about privacy
diabetes, migraine etc.
issues results in a significant improvement
On the other hand, it is important to
in parental opinion about confidentiality;
appreciate that adolescents have health
an over whelming majority of parents
issues that they may not desire to openly
support the idea that teens should speak
share with physicians (hidden agenda); they
with a provider alone if the teen so desires,
often conceal some of the health issues they
suggesting that parents acknowledge a need
choose to discuss (e.g. being pregnant or
for independence.17
having sexually transmitted infection), or
Although adolescents, as they grow
parents may disregard certain health issues
older, become increasingly concerned that
(e.g. teenage depression) presuming they are
their health information should remain
not the major issues for their teens. However,
confidential, it is vital for the physician to
they need to be addressed to enhance good
clarify the limits of confidentiality as early
health. Therefore, the physician skillfully
as possible during the consultation if the
has to develop a supportive environment by
physician feels the patient is at serious risk
astutely observing the adolescent’s both verbal
of significant harm such as suicide, physical
and non-verbal emotions and expressions,
or sexual abuse, or reveal plans to harm
and by actively listening to their problems
others. However, it is important to include the
and giving them an opportunity to voice their
adolescent along with parents in the process
concerns, the physician can explore issues that
of revealing confidential information despite
concern the adolescent.
the trouble and inconvenience it might cause.*
Confidentiality
Adolescents seek health care on their own History
initiative or at the suggestion of their parents. The presence of the parent or guardian while
They may come alone or at least with one eliciting the formal history of the patient
parent or a relative. In either case, they are enhances its accuracy and completeness. An
often worried about breaches of confidentiality, initial focus on "getting to know" the patient
especially about sensitive issues such as with questions about routine home and school
contraception, pregnancy, HIV, and drug activities, interests, or hobbies is useful in
abuse.16 It is therefore essential for the treating reducing the patient's anxiety. Subsequently,
physician to make it known to both the parents after establishing an effective relationship with
and the young the importance of confidentiality the patient, the formal information about the
in your practice; emphasizing to both the reason for visit, i.e. chief complaint, and the
parent and the adolescent that the confidential history surrounding it, i.e. history of present
relationship is not based on “keeping secrets”; illness can be elicited.

*Adolescent consent and confidentiality laws vary from state to state. Physicians and other healthcare
providers must be aware of the health implications of federal policies, common law, and their individual
state's laws pertaining to this topic.

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Chapter 24: Adolescent Care 225

The history seeks information to assess how the first office visit can be a time-efficient and
well the adolescent is currently functioning in the useful way to manage limited time available to
physical, emotional, and cognitive spheres (Table the physician to discuss more pressing issues
24.1). Much attention is focused on the patient’s during the initial visit.
progress through puberty and adolescence, One method of getting a through adolescent
i.e. the onset, sequence, characteristics, and history is the “HEADDSS” approach (Table
interrelationships of the critical features of 24.2), a formula designed for both genders,
pubertal growth and development (sexual which reminds physicians to cover the
maturation, increases in height and weight, important domains of psychological and
completion of skeletal growth accompanied by behavioral development. Parents, family
a marked increase in skeletal mass, and changes members, or other adults should not be
in body composition).* present during the HEADDSS assessment
Besides the comprehensive medical history unless the adolescent specifically gives
which includes any acute or chronic medical permission or asks for it.
issues, the current list of medications, medication If intensive, long-term treatment is required,
allergies, and vaccination, psychosocial history physicians may need to refer the young
and family interrelationships are explored in person to an appropriate treatment service.
greater detail. Referral to specific health professionals, such
It is prudent to request the parent or guardian as psychologists, drug counsellors or social
to wait in the reception room before asking workers, may also be necessary, depending on
the patient more sensitive and confidential the outcome of the assessment.
history, especially related to adolescent’s family Before ending the interview, give the
relationships (parents and siblings), relationship adolescents an opportunity to express any
with peers, teachers, and friends, parental abuse concerns the physician has not covered, and
(physical, emotional or sexual), drug abuse, ask for feedback about the interview. Try
alcohol, tobacco and sexual habits. to provide whatever educational materials
Providing the adolescent a standard or information brochures young people are
questionnaire** to complete at home before interested in.

Table 24.1  Psychosocial processes and substages of development


Adolescent substages Emotional Cognitive Social
Early Adjustment to new body Concrete thinking ↑ peer bondage
(11–14) image
“Am I Normal?”
Middle Emotional separation from ↑Abstract thinking ↑ health risk behavior,
(15–17) parents ↑ verbal ability ↑ sexual interest in peer,
“Who Am I?” ↑ school demands ↑ early vocational plans
Late Personal sense of identity Further development of ↑ impulse control,
(18–20) abstract thinking, its rele­ ↑ social autonomy,
“Where am I going?” vance to personal life values ↑ vocational capability,
↑ intimate relationships

*For normal physiological information about pubertal growth and development, the web site < http://
www.usc.edu/student-affairs/Health_Center/adolhealth/content/a1.html> may be helpful.
**A basic adolescent health screening questionnaire is available at the web site - < http://www.ahckolkata.
org/questionnaire.html>.

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226  Section 5: Adolescent Health
Table 24.2  Example of HEADDSS screening general, adolescents expect the physician to
questions
use understandable adult language and not
H Home/health the teen jargon.
•  Where and with whom do you live? The physician, either before or at the time
•  Are your parents your legal guardians?
•  How well do you get along with the people you of the initial visit, should establish the “limits of
live with? confidentiality” with the patient as well as his
•  How is your health in general? or her parent(s) or guardian. After the parents
•  Do you have any health problems?
have had their say, a separate consultation
E Education/employment with the young person alone will help create
•  Do you go to school? an impression of respect and confidence.
•  What grade are you in and what school do you
attend?
One example of effective statement is, "Our
•  Are you in a specialized education program? conversations will be between you and me
•  Do you have a job? alone unless I consider something to be of
A Activities danger to you or others. In such instances,
•  What do you do for fun? although I will not discuss it behind your
•  Do you have friends to socialize with? back, I will share such information with your
D Drugs parent(s) and I will ask you to be present.
•  Do you smoke? Regarding your diagnosis and any treatment
•  Do you drink? If so, how much and how often? required, you and I will discuss what you wish
•  Do you use drugs?
to be shared with your parent(s) and whether
D Depression (including suicidal feelings) you, I, or both of us will talk with them about
•  Do you ever feel depressed? it." A clear statement in this regard provides
•  What do you do to cheer yourself up?
•  Do you ever want to hurt yourself?
the basis for a mutually trusting relationship
•  Do you have anyone to discuss your problems with? between the physician and the adolescent as
S Safety well as the physician and the parent(s).18
•  Do you feel safe at school? The key skills required for effective
•  Do you feel safe at home? communication with adolescent are:
S Sexuality ™™ Provision of a physically and emotionally
•  Have you ever had sex? safe environment in which clinical
•  Are you using birth control? interaction can take place.
•  Do you use condoms every time you have sex? ™™ Strict confidence.
•  Have you ever been pregnant?
•  Did anyone ever make you do something that you ™™ Listening skills.
didn’t want to do? ™™ Empathy.
Source: Adapted from the Minnesota Health Improvement ™™ Patience and endurance.
Partnership Services Action Team in partnership with the ™™ Encouragement.
Minnesota Department of Health, Updated 2006. Originally adapted
from Goldenring JM, Cohen E. Getting into adolescent heads. ™™ Respect, non-critical, non-judgmental.
Contemp Pediatr 1988; 5(7): 75-90. (website- http://medschool. ™™ Understanding the link between physical
ucsf.edu/sfghres/fhc/HCM/HEADSS.htm Accessed on 20-12-11).
and emotional well-being.
Adolescent Communication
It can be extremely difficult communicating Communication Techniques
with young people. Early adolescents generally Certain simple techniques for making
find difficulty in expressing themselves, and communication effective are:
rarely volunteer information. They are often 1. KISS—keep it simple and sweet—In
self-conscious and avoid eye contact. In communicating with adolescents, care

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Chapter 24: Adolescent Care 227

should be taken to keep the conversation important for the physician to diffuse anxiety
short and sound as sweet as possible. They that may be either generated or accentuated by
should never have the feeling that elders the examination. This may be accomplished
are disinterested. by:
2. VAK – Principle: ™™ Providing an examination gown that covers
V—Visual—Eye contact is most important the trunk and pelvic area, prior to the
in communication. patient’s disrobing,
A—Auditory—Implies attentive listening. ™™ Ensuring privacy and respecting modesty,
K—Kinesthetic—The kinesthetic feel/touch ™™ Providing thorough explanations as the
or any gesture of appreciation, e.g. pat on examination proceeds (e.g. what are
the shoulder will definitely strengthen their you doing and why you are doing it; the
confidence. conversation should be appropriate to the
3. Sandwich technique: area being examined),and
In this technique, the most difficult ™™ Offering reassurance about findings that
situation is cleverly sandwiched in between are normal.
and the good qualities projected. It is an Special attention is focused on:
indirect way of saying unpleasant things ™™ Vital signs: height, weight, blood pressure
in the sweetest manner and temporarily – sitting and supine,
hiding its significance without causing any ™™ Skin: acne, hyperkeratosis, hyperhidrosis,
displeasure. This approach encourages to and in females hirsutism,
develop a positive approach to life and to ™™ Breasts and genitalia: staging of the
see things in a lighter perspective. For this, genitals in the male, breasts in the female,
the guidance of a mature dependable adult and pubic hair in both; breasts in the male
is essential. for possible gynecomastia,
Certain expressions to be avoided in ™™ Teeth: for obvious dental pathology,
communicating with adolescents are - ™™ Vision: visual activity,
(mnemonic “A D O L E S C E N T”): ™™ Ears: hearing, and
A – Accusing ™™ Orthopedic concerns: back for scoliosis
D – Demanding (particularly females) and dorsal kyphosis.
O – Over expectation
A rectal examination in males is required
L – Lying, laziness
only when there is a suspicion of prostate
E – Evaluating, judging
or bowel disease, unexplained anemia, or
S – Soreness
homosexual activity. In the latter instance, a
C – Comparing
rectal culture for gonorrhea should be obtained.
E – Error highlighting
A female pelvic examination is required
N – Negative emphasis
when there is a suspicion of disease, abnormal
T – Transferring our problems
secondary sexual development, pregnancy,
contraception is requested, or the patient is
Physical Examination sexually active. If an examination is performed,
Adolescents are acutely aware of his/her body a baseline pap smear and culture for gonorrhea
and the changes that may or may not have should be obtained.18
occurred. The intimate nature of physical The Table 24.3 summarizes the major
examination has the potential to magnify elements for clinical interaction with young
anxieties in body image. Therefore, it is people.

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228  Section 5: Adolescent Health
Table 24.3  Improvements practices can make of confusion and clouding that occurs in the
Reception staff thought process of a person. The cognitive
•  T rain receptionists to show consideration to dissonance in adolescent patient, entangled
adolescents. in a time of major physical, emotional, social,
•  It may not be necessary to ask why an individual and cognitive growth and development, poses
wishes to see the physician.
•  Try to encourage a friendly atmosphere in the
a unique challenge to the physician.
waiting room. In general, the features that lead to
•  Maintain respect and confidentiality of the individual. cognitive dissonance in adolescents are:
Health professionals ™™ Growth concerns: The prominence of
•  In consultation, show respect for the individual. physical changes is a matter of concern
•  See young people by themselves as well as with to adolescents. Ignorance of biological
their parents.
•  Maintain non-authoritarian, non-judgmental attitude.
changes that occur rapidly in the body often
•  Allow time to put young patients at their ease. lead to a state of fear and embarrassment,
•  C onduct examination in a friendly, courteous especially among adolescent girls. This
manner. can to a great extent alleviated by proper
•  Be yourself, maintain appropriate boundaries.
•  A ssure confidentiality – both in the clinical parental guidance.
interaction and hospital set-up. ™™ Sex and sexuality problems: With the
•  Look for any ‘hidden agenda’ and consider the development of secondary sexual features,
possibility of a psychological element.
•  P rovide health advice in the context of the adolescents are curious and inquisitive about
consultation. sex related issues. Parents and teachers also
do not have clarity of thinking and comfort
level to discuss sexual matters. In their hunt
Counseling for more information on sex, they fall easy
Adolescence is a unique rapid developmental prey to promiscuous behavior. Teenage
period, both biologically and psychologically, love affairs, teenage sexuality/pregnancy,
between puberty and maturity. This upsurge homosexuality and such perverted sexual
of changes in biological, psychological and relationship further aggravate development
social aspects sometimes lead to behavioral of normal interpersonal relationship.
contradictions. They often feel stuck between ™™ Emotional problems: Adolescents by their
wanting independence and still needing very nature are sensitive individuals,
guidance. The roles and responsibilities making them prone to emotional outbursts.
that are expected by the society and the The stress and strain of modern society
conflict between the actual expectations and have led many adolescents to extreme
achievements of the adolescents put them in a steps of committing suicide. This tendency
state of confusion, a sense of guilt and anxiety of escapism is an unhealthy sign that needs
in some situations. This state is sometimes to be discouraged. Emotional control can
referred as “cognitive dissonance”*—a state be attained only through proper nurturing.

*The term cognitive dissonance describes a psychological state in which an individual’s cognitions—beliefs,
attitudes, and behaviors—are at odds (Festinger, 1957). Cognitive dissonance is the mental conflict that
occurs when beliefs or assumptions are contradicted by new information. The unease or tension that the
conflict arouses in a person is relieved by one of several defensive maneuvers: the person rejects, explains
away, or avoids the new information, persuades himself that no conflict really exists, reconciles the
differences, or resorts to any other defensive means of preserving stability or order in his conception of the
world and of himself. (Ref. http://www.britannica.com/EBchecked/topic/124498/cognitive-dissonance).

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Chapter 24: Adolescent Care 229

™™ Academic problems : High academic greater access to care after implementation.24


achievements from adolescents, increasing Further, studies also support the efficacy of
competition in securing admission to providing training, tools, and resources as a
professional schools and job opportunities, method increasing preventive screening and
financial instability, scholastic counseling of adolescents across multiple risky
backwardness are yet other perpetuating health behaviors during a routine office visit.25
factors in most of the academic problems Brief counseling interventions by physicians
faces by the adolescents. Poor performance or other clinicians have been shown to be
in subjects and examinations create a effective in modifying health risk behaviors in
sense of inferiority complex, leading to adolescents. Adolescents also have indicated
aversion to the subjects, which in turn both a belief that physicians should counsel
leads to school abstinence and falling into them on risk behaviors and a willingness to
bad company. The increasing number of discuss risk behaviors if asked about them in
suicides is an indication of growing distress a confidential manner.26
in the adolescent population with regard to The key to providing relevant and useful
academic expectations. preventive Counseling for adolescent patients
™™ Involvement in social issues: It is not is developing the trust necessary to discuss
uncommon to see today’s adolescents and the specific issues that impact this age group.
youths involved in anti-social activities, Therefore, primary care physicians, with their
destructive agitations leading to strikes, long-standing association with families, have an
campus fights, and even murders and important role to play in promoting adolescent
similar criminal activities. health through a strategy of providing health
Adolescents visit physicians infrequently. guidance to adolescents and parents, screening,
When they do, few receive counseling on critical and promoting immunizations.
adolescent health issues.23 Often physicians Physicians and other primary care health
feel overwhelmed by or uncomfortable with providers may use recommendations, such as
counseling teenage patients about sensitive Guidelines for Adolescent Preventive Services
areas such as sexuality or drug and alcohol use. (GAPS)27-29 developed and promoted by the
However, both family physicians and American Medical Association's Department
pediatricians have room for improvement. of Adolescent Health and American Academy
Providing appropriate health care to of Pediatrics' Health Supervision Guidelines, to
adolescents in an effective manner, terms expand the quantity and quality of preventive
of preventing the onset of health-risking services they offer to adolescents. These
behaviors and promoting a healthy lifestyle, elements include:
requires an in-depth understanding of ™™ Providing a framework for the organization
these changes. As many chronic diseases of and content of well-adolescent care (see
adults have their origins during adolescence, “adolescent care clinic” below),
this approach holds promise for reducing ™™ Offering guidance for parents and families
morbidity and mortality in later life as well as as an essential part of adolescent health
during young adulthood. care, and
Evidence shows that quality of health care ™™ Dealing with a wide range of adolescent
improved in adolescents who received more health problems, with an appropriate
comprehensive screening and counseling, focus on the behavioral, emotional, and
more health education materials and had developmental aspects.

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230  Section 5: Adolescent Health
Although, guidelines for clinical adolescent ™™ Promoting mental health
preventive services recommend that primary ™™ Improving scholastic performance
care clinicians routinely screen for and counsel ™™ Proper follow-up.
adolescents about behaviors, identify and
address related social, psychological and Improving Existing Services—
biologic factors, there is lack of well-defined Adolescent Care Clinics (Acc)
theory-based models for adolescent office-
based counseling, the complexity of measuring Adolescence being the tender and most
counseling quality, and the many factors that vulnerable stage in life, it demands special
influence adolescent outcomes.30,31 However, attention. Hence, a common platform where all
since physicians’ are dealing directly with adolescents can come together and share their
adolescents, their work involves matters of views and ambitions is the need of the hour.
sensitive and confidential nature. Therefore, The objectives and guidelines for ACC
they need to exhibit certain skills and qualities are in tune with the recommendations of the
to perform well in this profession: American Medical Association's Department
™™ Listening more than talking
of Adolescent Health, and endorsed by the
American Academy of Family Physicians’
™™ Empathy
Association, in their document titled
™™ Professionalism
“Guidelines for Adolescent Preventive Services
™™ Effective communication
(GAPS)”34
™™ Constructive in approach
™™ Confidentiality
Objectives
™™ Respect for religious beliefs and customs
™™ Individual freedom. ™™ To make adolescents aware about the need
In some adolescent care centers, new for taking care their health and positive
cost-effective concepts of computer-based health development concepts
screening for adolescents have been ™™ To introduce health cards to adolescents.
introduced successfully, using non-physician Monthly health check up can be conducted
health counselors,32,33 and have proved to to create a sense of health consciousness
be faceable, economical and acceptable and to ensure positive health attitude
alternative to traditional clinical practice among adolescents
for screening young people for health- ™™ To identify scholastic and behavioural
compromising behaviors and providing problems among students and to render
individualized health education and routine appropriate services
physical examinations. This model would ™™ To take height, weight measurements and
likely increase adolescents' access to needed detailed hearing and visual assessment
preventive services at a very modest cost. ™™ To deal with psychological problems.

Goals of Counseling Guidelines for ACC


™™ Resolution of problems ™™ ACC should be adolescent friendly
™™ Improved personal effectiveness ™™ Weekends may be more ideal for ACC
™™ Decision-making, avoiding impulsive ™™ ACC may be conducted at clinic, hospital,
actions, reducing possibility of error school or Teen clubs.
™™ Modification of behavior, removal of ™™ Age 10 and 19 years should be the only
undesired behavior criteria for availing services.

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Chapter 24: Adolescent Care 231

™™ Boys and girls above 10 years, reporting to 4. Staton M, et al. Risky sex behavior and substance
family/pediatric outpatient for any illness use among young adults.Health Soc Work.
should have followed up at ACC. 1999;24(2):147–54. [PMID: 10340165: Abstract].
5. Melzer-Lange MD. Violence and associated
™™ The family physician/pediatrician who
high-risk health behavior in adolescents.
has been looking after the child is the ideal
Substance abuse, sexually transmitted
ACCC physician and family counselor. diseases, and pregnancy of adolescents.
™™ Adolescents need privacy to open up Pediatr Clin North Am, 1998;45(2):307–17.
™™ Physicians may be more comfortable [PMID: 9568011: Abstract].
examining adolescent girls in the presence 6. Middleman AB, et al. Anabolic steroid use and
of their mothers. associated health risk behaviours. Sports Med,
™™ Part time services of a gynecologist, 1996;21(4):251–5. [PMID: 8726343; Abstract].
psychologist, psychiatrist, dermatologist, 7. Levine DA. Need for services in a new urban
teenage clinic for men. J Natl Med Assoc,
cosmetologist, etc. may be ideal.
2000; 92(1):42–5. [PMID: 10800287: Free PMC
™™ Create a team of adolescent friendly doctors Article].
and well-wishers in the community. 8. WHO web site - http://www.who.int/features/
factfiles/adolescent_health/facts/en/index9.
Conclusion html. Accessed on 05-12-11.
Adolescence is a phase of intense change and 9. Committee on Adolescence American
Academy of Pediatrics. Achieving quality
throws up in its wake a gamut of problems not
health services for adolescents. Pediatrics,
found in any other age group. Parents, elders,
2008;121(6):1263–70. [PMID: 18519499: Free
family dynamics, teachers, and friends play a Article].
vital role in modulating adolescent personality 10. Telfair J, et al. Quality health care for adolescents
and behaviour. Customized consultations, with special health-care needs: issues and
communications, and counseling skills clinical implications.J Pediatr Nurs, 2005;
are the cornerstone of the assessment and 20(1):15–24. [PMID: 15834355: Abstract].
management of adolescent problems. 11. McPherson Ann. ABC of adolescence -
Existing adolescent care should preferably Adolescents in primary care. BMJ, 2005; 330:
be decentralized with due recognition to local 465–67
cultures and the need to maximize community 12. Adolescent Health Committee(2002–2003).
participation. Age limits and adolescents. Paediatr Child
Health, 2003;8(9):577.
Family physicians occupy a central role,
13. Irwin CE Jr, et al. Appointment-keeping
balancing adolescents’ aspirations at one end
behavior in adolescents. J Pediatr, 1981;
and the realities of the world at the other. 99(5):799–802. [PMID: 7299561: Abstract].
14. Litt IF, et al. Satisfaction with health care. A
References predictor of adolescents’ appointment keeping.
1. Youth and Adolescents in a World of 7 Billion. J Adolesc Health Care, 1984;5(3):196–200.
Web site - http://www.unfpa.org/public/ [PMID: 6735836: Abstract].
home/news/pid/7971. Accessed on 03-12-11. 15. Irwin CE Jr, et al. Appointment-keeping
2. Barton Joanne et al. Adolescence. In: The behavior in adolescents: factors associated with
Oxford TB of Public Health, 4th ed, 2002.p.1623. follow-up appointment-keeping. Pediatrics,
3. Ferreira MM, et al. Life styles in adolescence: 1993;92(1):20–3. [PMID: 8516080: Abstract].
sexual behavior of Portuguese adolescents.Rev 16. Thrall JS, et al. Confidentiality and adolescents’
Esc Enferm USP, 2011;45(3):589–95. [PMID: use of providers for health information and
21710062: Abstract]. for pelvic examinations. Arch Pediatr Adolesc

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232  Section 5: Adolescent Health
Med, 2000;154(9):885–92. [PMID: 10980791: 26. Klein JD, et al. Improving adolescent health
Free Article]. outcomes. Minerva Pediatr, 2002;54(1):25-39.
17. Hutchinson JW, et al. Changing parental [PMID: 11862164: Abstract].
opinions about teen privac y through 27. Montalto NJ. Implementing the guidelines
education. Pediatrics, 2005;116(4):966–71. for adolescent preventive services. Am Fam
[PMID: 16199709: Free Article]. Physician, 1998;57(9):2181-8, 2189-90. [PMID:
18. H. Verdain Barnes. The adolescent patient, 9606308: Free Article].
Chapter 223. In: H Kenneth Walker et al. (Eds). 28. Knishkowy B, et al. GAPS (AMA Guidelines
Clinical Methods, 3rd edn. Emory University for Adolescent Preventive Services). Where
School of Medicine, Atlanta, Georgia, Boston: are the gaps? Arch Pediatr Adolesc Med, 1997;
Butterworths; 1990. 151(2):123-8.[PMID:9041865: Abstract].
19. Warrell DA, et al. Oxford TB of Medicine. Vol. 29. W e b s i t e h t t p : / / w w w .
III 4th ed.: 1372. uspreventiveservicestaskforce.org/tfchildcat.
htm (Accessed on 20-12-11).
20. Ste i n b e rg L . Co g n i t i ve a n d a f f e c t ive
30. Hedberg VA, et al. Health counseling in
development in adolescence. Trends Cogn Sci.
adolescent preventive visits: effectiveness,
2005;9(2):69-74. [PMID: 15668099: Abstract].
current practices, and quality measurement.
21. Romeo RD. Adolescence: a central event in J Adolesc Health, 1998;23(6):344-53. [PMID:
shaping stress reactivity. Dev Psychobiol, 9870328: Abstract].
2010;52(3):244-53. [PMID: 20175102: Abstract]. 31. Mangione-Smith R, et al. Assessing the quality
22. Harikumar SK. Counseling for youth. J of of healthcare provided to children.Health Serv
Teenage care and premarital counseling, 2002; Res, 1998;33(4 Pt 2):1059-90. [PMID: 9776949:
2(8&9):24. Free PMC Article].
23. Ma J, et al . U.S. adolescents receive suboptimal 32. Paperny DM, et al. Computer-assisted
preventive counseling during ambulatory health counselor visits: a low-cost model for
care. J Adolesc Health, 2005;36(5):441. [PMID: comprehensive adolescent preventive services.
15841517: Abstract]. Arch Pediatr Adolesc Med, 1999;153(1):63-7.
24. Klein JD, et al. improving adolescent preventive 33. Paperny DM. Computerized health assessment
care in community health centers. Pediatrics, and education for adolescent HIV and STD
2001;107(2):318-27. [PMID: 11158465: prevention in health care settings and schools.
Abstract]. Health Educ Behav, 1997;24(1):54-70. [PMID:
25. Ozer EM, et al. Can it be done? Implementing 9112098: Abstract].
adolescent clinical preventive services. Health 34. Montalto Norman J. Guidelines for Adolescent
Serv Res, 2001;36(6 Pt 2):150-65. [PMID: Preventive Services (GAPS); Am Academy of
16148966: Free PMC Article]. Fam Phy, 1998.

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25 A problem adolescent

“The main problem with teenagers is that they are just like their parents were at their age.”

Introduction of adolescents, adolescence still represents the


most troubling years. The nature and pace of
Few periods of human development are so
these changes may be stressful not only for the
distinctly marked by changes in maturation
adolescent, but for his/her family. Research has
as in adolescence—that time of dramatic
suggested an association between “parenting
and rapid physical, psychosocial, moral, and
stress” and childhood externalizing behavior
cognitive growth. Hall depicted adolescence
problems. i.e., parenting stress is increased
as a tumultuous period, a havoc caused by the
when children behave badly. Parenting stress
“raging hormones” brought about by puberty.1
also appears to exacerbate children’s problem
Growth spurt occurs, secondary sexual
behaviors. Parental stress seems to increase
characteristics appear, fertility is achieved,
parent irritability, influence their disciplinary
and profound psychological changes take
practices and increase the likelihood that parents
place. The adolescent is rich in knowledgeable
initiate or maintain aversive interchanges or
spheres such as memory, perceiving things,
counterattack in response to child aggression.
concept formation, association, generalization,
Parents experiencing high levels of stress are
imagination and decision-making.
likely to pay more attention to negative behavior
However, adolescent risk taking has and attribute them to the child rather than to the
emerged as a leading public health concern. situation. These factors seem to directly promote
High-risk activities in adolescence— or mediate the aggression and oppositional
unprotected sex, substance abuse, violence, behavior in children.2,3
and other forms of risky behavior—remain a
pervasive and costly problem in our societies, Parenting Style and Problem
despite extensive efforts to prevent or reduce Adolescent*
these activities through intervention programs.
Adolescents often struggle being dependent on
their parents while having a strong desire to be
Parenting Stress independent. They may also feel overwhelmed
Although most adolescents live a life with few by the emotional and physical changes they
serious personal or social problems, for a minority are going through.

*Three different parenting styles have been formulated by a famous psychologist Diana Baumrind in the
1960s and are today known as the “patenting styles”: the authoritarian parenting style, the permissive
parenting style, and the authoritative parenting style; and the later added, neglectful parenting style.(Ref.
web site - http://www.positive-parenting-ally.com/3-parenting-styles.html)

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234  Section 5: Adolescent Health
At the same time, adolescents may be Table 25.1  What an adolescent expects from parents
facing many pressures — from friends to fit in • Parental help and interest: Parent’s willingness
and from parents and other adults to do well and to take interest in the adolescent’s activities,
in school, or activities like sports, and on many friends and their parents and the problems the
adolescents face; their willingness to backup
occasions a part-time job too. wherever necessary gives the adolescents a
feeling of being loved.
Authoritative parenting style*: When parents
• Listening, understanding and talking: Adolescents
are caring and loving, give a sense of security expect their parents to listen to their ideas and
and permit adolescents to handle their own accept their opinions as relevant. Adolescents
affairs within reasonable boundaries, without value sympathetic, understanding parents who
feel that their child has something important to
being over-indulgent and demanding, it is say and are willing to communicate with their
easier for the adolescent to cope up with the adolescents freely.
problems (Table 25.1). Adolescents whose • Love and acceptance: Parents are expected to
parents convey clear expectations regarding express their love in words and actions and show
it subtly by accepting whatever he or she is, with
their children’s behavior and show consistent their mistakes and their problems.
limit setting and monitoring are less likely to • Trust: Adolescents get a feeling of being respected
engage in risky behaviors. In such a scenario, and loved when their parents trust them.
parents are considerate, reasonable and • Autonomy: Adolescents aspire to be treated as
consistent while dealing with their adolescents. independent individuals. Parents should give
them freedom in gradually increasing measures.
Permissive parenting style**: If parents are
not reasonable and understanding, or the
child is being brought up by a single parent not supervising their children adequately.
with disturbed family dynamics, the child This often happens if a parent is depressed,
may show signs of behavior disorders. exhausted or overwhelmed.
Studies to investigate the correlation between If corrective measures are not instituted at
behavioral problems and single parenting, appropriate stages by the parents or elders, e.g.
family communications and medical care by advocating permissive parenting style, the
delivery show that single-parent homes child grows up as an amateurish adolescent,
had a 3-fold higher incidence of behavioral experiencing futility. Many adolescents feel
problems, a greater degree of communication inadequate, impersonalized and alienated.
and a lower use of community resources than Such a disturbed or distressed adolescent
two-parent families. 4 Parents themselves may be labeled as a “problem adolescent”
can sometimes unknowingly make things by the parents or teachers. As the parents are
worse by giving too little attention to good emotionally close to adolescents, they are the
behavior, always being too quick to criticise, ones who can detect the earliest indications of
or by being too flexible about the rules and disturbed adolescents.

*Authoritative parents reflects a balance between two values - freedom and responsibility; and emphasize
setting high standards, being nurturing and responsive, and showing respect for children as independent,
rational beings. The authoritative parent expects maturity and cooperation, and offers children lots of
emotional support.
**Permissive parenting style: Parents strive to accept and meet as many of the child’s needs and desires as
possible; parents don’t have high expectations of behavioral standards. Rather than being a parent who
tries to shape and mold his/her child according to set standards via control measures, the permissive
parent’s goal is to be available whenever the child needs it.

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Chapter 25: A Problem Adolescent 235

Behavior Problems Before adolescents experience distress


Behavioral problems can occur in adolescents and show disturbed behavior, they are likely
of all ages. Generally, mundane issues such to show some indications of disturbed mind
as confrontation with parents, disobeying through their behavior, which may present
parent’s advise, an occasional violent reaction themselves in the following manner:
or tantrums, breaking and spoiling things are a ™™ Behavior changes:

common occurrence in any family. However, ƒƒ Agitated or restless behavior


parents and physicians must distinguish ƒƒ Weight loss or gain
occasional errors of judgment from a degree ƒƒ Trouble concentrating
of misbehavior that requires professional ƒƒ Ongoing feelings of sadness
intervention. If adolescents are repeatedly ƒƒ Not caring about people and routine
being disobedient and aggressive, and their work
behavior is out of the ordinary, and seriously ƒƒ Lack of motivation
break the rules accepted in their family and ƒƒ Fatigue, loss of energy and lack of
community (Table 25.2), this is much more interest in activities
than ordinary childish mischief or adolescent ƒƒ Low self-esteem
rebelliousness.
ƒƒ Trouble falling asleep
™™ Addictions—alcohol, drugs
Table 25.2  Rules and behavior
™™ Academic—drop in grade
• Set clear and reasonable limits: Communicate
traditional family rules to teens; make them aware ™™ Organic problems—bed-wetting, stam­
of the consequences of frequent disobeying family mering, stuttering, encopresis
rules – its nature and severity.
• Enforce the rules consistently: Parents should do
ƒƒ Neurotic problems—hysterical symp­
everything possible to make sure that they are in toms, depression, anorexia nervosa
agreement about rules and consequences. Teens ƒƒ Antisocial problems—violence, van­
are experts on manipulation when they sense
there is disagreement on an issue and possess
dalism, sex crimes
skills to get what they want from others. ƒƒ Legal—involvement or clash with laws
• Let teens experience the consequences of
their behavior within reasonable safety limits:
Consequences like missing assignments, being Adolescent Depression
late for school or writing apologize to others when
True depression in teens is often difficult to
appropriate can prove valuable learning experiences
for your teen. But don’t compromise safety. diagnose, because normal teenagers have
• Voice your concern when teens’ behavior is up and down moods. Their moods may go
objectionable: How issues such as smoking, back and forth over a period of hours or days.
alcohol and drug use, sexual activity, violence,
harassment of others and destruction of property Also, symptoms of depression in adolescents
affect their lives must be explained. (Table 25.3) may not be the same as in adult
• Let your teen know there is parental support no depression. An astute watch by parents, elders
matter what happens—then follow through: If they
break the law or cause harm to another person or
and teachers is essential for changes in school
property they will have to face the consequences work, sleep, and behavior to detect and treat
of their actions, but need not fear they will “lose” adolescent depression.
their parent as a result.
Depression can be a response to many
• Grant independence in stages: Parents should
expand a teen’s rights and responsibilities gradually situations and stresses. In teenagers, depressed
over time. By demonstrating trustworthiness, mood is common because of:
teens will have a personal stake in establishing ™™ Biological factors: Normal process of
what they are allowed or not allowed to do.
maturing, influence of “raging hormones”,

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236  Section 5: Adolescent Health
Table 25.3  Depression symptoms in adolescents self-esteem and self-confidence. Emotional
• Depressed humor pain arises if these psychological needs are not
• Difficulty in concentrating met. When such pain becomes unbearable and
• Feelings of hopelessness and/or guilt
• Irritability and instability overwhelming with no way out, they may choose
• Isolation the option of ending their lives by suicide (Flow
• Lack of motivation and a significant lack of interest chart 25.1). There are usually more than one
• Loss of energy
• Low self-esteem
reason for ending their lives. Suicide is most
• Poor school performance commonly understood as a desperate act to
• Psychomotor retardation avoid the pain of living as much as it is an effort
• Severe behavioral problems
to seek death. The “suicide attempt”**, whether
• Sleep disorders
• Suicidal ideas and attempts successful or not, is a communication of that
emotional pain.
™™ Family dynamics: Conflicts with parents, Suicide is one of the top three causes
poor parenting or caregiving, loss of a of death between ages 15 and 24 years in
parent to death or divorce, authoritarian developed countries, surpassed only by
parenting style, homicide and accidents.5 The two major risk
™™ Social factors: Death of a friend or relative, factors for adolescent suicide are conflict
breakup with a boyfriend or girlfriend, with parents and an undiagnosed psychiatric
™™ Academics: Failure at school, bullying or Flow chart 25.1  Pathway to suicide
harassment at school or somewhere else,
™™ Personality traits: Low self-esteem or
being overly dependent, self-critical or
pessimistic, obesity,
™™ Chronic illness: Asthma, diabetes, anxiety
disorders,
™™ Substance use and abuse: alcohol, nicotine
and other drugs, and
™™ Child abuse: Both physical and sexual.
A severely depressed adolescent* may require
psychiatric help. If not helped, the adolescent
may indulge in destructive behavior, including
suicide.

Suicidal Risk
All adolescents have emotional or psychological
needs which include the needs for love,
acceptance, praise, recognition, companionship, Source: http://www.searo.who.int/en/Section1174/Section1199/
sense of achievement and success, responsibility, Section1567/Section1824_8080.htm Accessed on 07-01-12.

*For details of “Diagnostic criteria for primary DSM-IV depression disorders in children and adolescents”:
ref. web site - < http://www.ncbi.nlm.nih.gov/books/NBK35129/>.
**The term ‘attempted suicide’ is potentially misleading in that the majority of patients are not unequivocally
trying to kill themselves. The preferred term is “DSH-deliberate self-harm-”.(Ref. Davidson’s Prin. and
Pract.of Med. 19th edn. p. 252)

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Chapter 25: A Problem Adolescent 237

disorder such as depression, bipolar disorder, ™™ Breakdown in communication with


and drug addiction, especially when combined parents, friends, and other important
with another mental health disorder.6 persons around
Adolescents with previous suicidal ™™ Statements like ‘I wish I was dead’, ‘ what is
behavior—a history of previous suicide there to live for’
attempts, explicit statement of suicidal ideas ™™ Enquiries about lethal properties of drugs
or feelings, such as, “I want to go to sleep and ™™ Increasingly social isolation and withdrawal
never wake up”, or “I’m going away and you
™™ Any obvious stress event, such as failure in
won’t have to worry about me anymore” —
examination, breakup of a love affair, death
are at increased risk for subsequent suicide
of a near one
attempts. Factors related to family adversity,
™™ Self-destructive behavior, e.g. reckless
social alienation and precipitating problems
driving, alcohol/drug abuse
also contribute to the risk of suicide.7 Evidence
indicate that, in general, adolescents from ™™ Declining school performance
one parent and stepparent families reported ™™ Firearms in the home
lower self-esteem, more symptoms of anxiety ™™ Attempts at suicide.
and loneliness, more depressed mood, more
suicidal thoughts and more suicide attempts Physician’s Role*
than children from intact families.8 If family physicians have been attending
Because most patients seek some form of to adolescents, they have the immense
medical help, including their family physicians, advantage of the rapport and the goodwill
within a month of their suicide, recognition already established over the years. They have
and treatment of depression is a promising the parents’ trust, insight into family and local
way to prevent suicide. community, and essential general medical
According to the National Mental knowledge about management of mental
Health Association, four of five teens who health problems in this age group.9,10
kill themselves have given a clear warning Most adolescents presenting with “suicide
of their intentions. Parents and friends attempts” should be offered outpatient
should recognize these behaviors commonly treatment. This takes the form of brief individual
associated with suicide. therapy and family therapy. Individual therapy
Although it is difficult to accurately predict aims to improve their capacity to solve problems
which persons with these risk factors will and handle stress in a more adaptive way. A
ultimately commit suicide, there are some family approach is often indicated to improve
possible indicators of disturbed adolescent the relationship and communication between
that may lead to suicide. Research has the adolescents and the parents so as to enable
demonstrated that it is possible to identify the parents to understand and support the
such “high-risk adolescents” if one is sensitive adolescents in distress. If the suicide risk is high
and open to words, actions and signals such as: and a major psychiatric disorder is present, the
™™ Persistently depressed or disappointed patient should be admitted to a hospital for
mood further treatment.

*An exhaustive information about the role of health professionals, community, federal governments, etc. in
suicide prevention is available at the web site – < http://www.searo.who.int/en/section1174/section1199/
section1567_6745.htm>.

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238  Section 5: Adolescent Health
Following principles and strategies are In general, health professionals should be in
helpful in dealing with problem adolescents: close touch with the community in order to know
™™ In the evaluation of every depressed the people better and to be able to intervene
adolescent, consider suicide in a variety of action-oriented programmes.
™™ Interrogate the parents individually and Due to their involvement in health matters
adolescent separately and their unique and respected stature, health
™™ The choice of the presence of the parents, professionals can offer and deliver a wide range
when adolescent is being interviewed, of services to people with suicidal thoughts and
should be left to the adolescent behavior, and to those families with a history of
™™ Establish a trusting relationship with suicide among its members.
adolescent and parents Increasingly, Internet-based information
™™ During the interrogation be alert to and interventions are being used to engage
note the troubled spots or events in the young people in the help-seeking process.
psychosocial environment, especially “Reach Out”—a national Internet-based
related to family matters mental health service for young people—
™™ Interrogation should also include school/ plays a role in the prevention of mental
teacher impressions and circle of friends health problems by: facilitating help-seeking
™™ After identifying the causal factors, the and connecting young people with services,
parents need to be counseled on the such as general practitioners, and allied and
problems of the adolescent and corrective mental health professionals in their local
measure initiated communities; and providing opportunities
™™ Psychiatr ic disorders do occur in for all young people to develop the skills and
adolescents, and they should be rightly capacity to better understand mental health
diagnosed. They should not be confused difficulties and manage adversity, thereby
with ‘just growing problems’ or written off complementing traditional support.12,13
as “adolescent turmoil”
™™ In mild to moderate cases, pharmaco­ A Scheme for Fortifying the Parent-
therapy, coupled with behavioral therapy, Adolescent Relationship
can be initiated
™™ Ensure regular follow-up.
Teach “parents” about adolescent development:
™™ Offer guidance about physical and

Indications for Psychiatric psychosocial changes of adolescence, and


when they occur.
Referral11
™™ Increase sensitivity to the adolescent’s
Commonly, a referral should be strongly needs by having parents reflect on their
considered if the adolescent is not behaving own adolescence.
or functioning in a manner characteristic
™™ Correct parents’ negative perceptions of
of his/her age group. Following are strong
normal adolescent changes.
indications for psychiatric referral:
™™ Active suicidal thoughts Teach “teenagers” about adolescent development:
™™ Drug/alcohol abuse ™™ Offer guidance about physical and
™™ Violent, destructive behavior psychosocial changes of adolescence, and
™™ Persistent somatic complaints with no when they occur.
evidence of organic pathology ™™ Encourage a discussion about development
™™ School truant. by normalizing probable curiosity.

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Chapter 25: A Problem Adolescent 239

™™ Provide verbal and written information Preventive Advice to Parents and


(such as pamphlets) about development. Family Members14
Teach “parents and teenagers” to communicate ™™ Don’t brush off a suicide threat. Draw the
with each other: teenager in. Surround him or her with love
™™ Teach parents to be good listeners. Instruct and reassurance that they are suffering
them to listen to the adolescent’s concerns from depression, which can be treated
calmly and nonjudgmentally. medically.
™™ Demonstrate how parents can facilitate ™™ Make sure that the adolescent realizes that
conversations with the adolescent. there are people who want to help. Mention
Encourage parents to use nonthreatening, teachers, school counselors, parents of
open-ended questions. friends, trusted family members, priest,
™™ Discourage counterproductive communi­
etc. — whatever it takes to persuade them
cation, such as lecturing, preaching, that they have someone to share their
accusatory remarks, and distracting feelings with.
nonverbal behaviors. ™™ Seek professional help immediately. Start
with your family physician. They usually
™™ Encourage parents and teenagers to set
have resources you can contact.
aside a time regularly to discuss family
™™ Do not leave the adolescents alone if you
issues and build communication skills.
have a “gut feeling” that he/she is desperate.
™™ Please remember that depression is an
Guidance and Counseling to
illness, which can be treated, usually
Parents very effectively. There is no stigma, and it
™™ As far as possible, parents should not be doesn’t mean there’s no hope.
blamed or labeled guilty for the behavior ™™ If you have firearms in your home please
of the adolescent. They should be made to safeguard them so that the guns and
understand and assured that adolescents ammunition are totally inaccessible to
have behavioral difficulties, causing stress your children.
and anxiety in them. ™™ If there is a news item or newspaper article
™™ Reinforce positive qualities of the dealing with a local suicide, don’t be
adolescents. Every adolescent has some afraid to discuss it with your adolescents.
strength or positive points in his/her Bringing the subject up, and out into the
personality, which should be reinforced by open, does not “give adolescents ideas”.
appreciating or rewarding them. Rather, it opens a line of communication
™™ Explain difficulties. The difficulties so that you have an opportunity to discuss
experienced by the adolescents in alternatives to suicide and to make sure
behaviour adjustments must be explained that your adolescent knows that he/she
to the parents. Suitable remedial measures can come to you in case they are feeling
should be discussed to achieve desired depressed or having suicidal thoughts.
outcome.
™™ Focus on expectations of the adolescents
Conclusion
from their parents. This will help the parents Adolescence is a time of change. During
to understand their own behaviour, which a d o l e s c e n c e t e e n s e x p e r i e n c e rap i d
might have disturbed their adolescent. physical, social, emotional, and intellectual

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240  Section 5: Adolescent Health
development.The assessment of stressful life 6. Sourander A, et al. Childhood predictors
events during adolescence is important for of completed and severe suicide attempts:
both parents and physicians. Depression and findings from the Finnish 1981 Birth Cohort
undiagnosed psychological problems are the Study. Arch Gen Psychiatry, 2009;66(4):398–
406. [PMID: 19349309: Free Article].
commonest aetiological factors for distress,
7. Pelkonen M, et al. Child and adolescent suicide:
leading to a “problem adolescent”. Problems
epidemiology, risk factors, and approaches to
may arise because parents do not change their prevention. Paediatr Drugs, 2003;5(4):243–65.
parenting style. Physicians play a pivotal role [PMID: 12662120: Abstract].
in making the parents aware of ideal ways of 8. Garnefski N, et al. Adolescents from one parent,
parenting. Due to their involvement in health stepparent and intact families: emotional
matters and their unique and respected problems and suicide attempts. J Adolesc,
stature, physicians can offer and deliver a wide 1997;20(2):201-8. [PMID: 9104655: Abstract].
range of services to families with a history of a 9. Lykke K, et al. “This is not normal ... “--signs
problem adolescent. that make the GP question the child’s well-
being. Fam Pract, 2008;25(3):146–53. Epub
2008 May 30. [PMID: 18515812: Free Article].
References 10. Hafting M, et al. “You may wade through them
1. Hall GS. Adolescence. New York: Appleton, without seeing them”: general practitioners
1904. and their young patients with mental health
2. Morgan J, et al. Parenting stress and problems. Nord J Psychiatry, 2009;63(3):256–9.
externalizing behavior: Research Review. Child [PMID: 19391060: Abstract].
and Family Social Work, 2002;7:219–25. 11. Kisely S, et al. Collaboration between primary
3. McCarty, et al. Conduct Problems Prevention care and psychiatric services: does it help family
Research Group. Mediators of the relation physicians? Can Fam Physician, 2006; 52:876–7.
between maternal depressive symptoms and [PMID: 17273487: Free PMC Article].
child internalizing and disruptive behavior 12. Burns J, et al. Reach Out! Innovation in service
disorders. Journal of Family Psychology, 2003; delivery. Med J Aust, 2007;187(7 Suppl):S31–4.
17(4):545–56. [PMID: 17908022: Free Article].
4. Hawley LE, et al. Resident and parental 13. Web site < http://www.reachoutuk.org/HTML/
perceptions of adolescent problems and family index.html> Accessed on 07-01–12.
communications in a low socioeconomic 14. Beardslee WR, et al. A family-based approach
population. J Fam Pract, 1984;19(5):651–5. to the prevention of depressive symptoms
[PMID: 6491630: Abstract]. in children at risk: evidence of parental and
5. http://www.nlm.nih.gov/medlineplus/ency/ child change. Pediatrics, 2003;112(2):e119-31.
article/001915.htm [PMID: 12897317: Free Article].

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6
Section

Geriatric Health
™™ Aging and Geriatric Concepts
™™ Comprehensive Geriatric Assessment
™™ Management of Common Geriatric Problems
™™ Practical Prescribing to the Elderly

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26 Aging and
Geriatric Concepts

“Old age is a temporary inconvenience, destined to be banished in the next century.”

Introduction used as a basis for decision-making in terms of


investigations and interventions.3
Aging, in the sense of senescence, is a progressive
loss of adaptability of an individual organism
as time passes. Aging can also be defined as Definition
a progressive functional decline or a gradual The word “Geriatrics” was derived from the
deterioration of physiological function with age, Greek word “geras”, meaning old age, and
or the intrinsic, inevitable, and irreversible age- “iatrike” meaning medical treatment. Nascher
related process of loss of viability and increase coined it in 1909.****4 Nascher suggests that
in vulnerability.1 As individuals grow older, the geriatrics deals with what he refers to as the
homeostatic mechanisms on which survival senile state, rather than years of life.
depends become on average less sensitive, Unlike specialties like cardiology and
slower, less accurate, and less well sustained. neurology, geriatrics does not deal with a group
This decline (referred to as “homeostenosis”), is of diseases or organs. The British Geriatric
usually evident by the third decade and is gradual Society has defined “Geriatrics” as: “that branch
and progressive, although the rate and extent of general medicine concerned with the clinical,
of decline vary.2 Each organ system’s decline is preventive, remedial and social aspects of
largely independent of changes in other organ illness in older people”, and the goal of geriatric
systems, and is influenced by interactions care is “to restore an ill and disabled person
between intrinsic, genetically determined to a level of maximum ability and wherever
factors and extrinsic factors in lifestyle and possible return the person to an independent
environment.* The terms “chronological”** life at home.”5 The wide definition necessarily
and “biological”*** aging have been coined to implies that geriatric care must be delivered
try to define such differences, and increasingly in both hospitals and community, requires
“biological” rather than “chronological” age is a multidisciplinary approach and shares

*“Some are aged before they are old, some are old but are not aged.” … Mark Twine
**Age determined by the passage of time since birth.
***Age determined by physiological parameters, e.g. physical structure of the body as well as changes in
the performance of motor skills and sensory awareness.
****Ignatz Leo Nascher, MD, (1863–1944) New York physician, was the first modern American geriatrician.
He is the author of many articles on geriatrics and edited a book entitled Geriatrics: The Diseases of Old
Age and Their Treatment.

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244  Section 6: Geriatric Health
overlapping philosophies with preventive, decline and rising life expectancy. Whereas the
rehabilitation, palliative and family medicine. number of persons aged 60 or over is expected
The specialty of geriatric medicine, i.e. to triple,** that of persons aged 80 years or
“gerontology”*, is defined less in terms of the over—usually termed as the “oldest-old”—is
diseases it treats, rather than in the range of projected to increase four-fold, to reach 395
responsibility it accepts. This responsibility million in 2050. Today, just about half of the
embraces preventive care, health promotion, oldest-old live in developing countries, but that
diagnosis, and treatment of acute illness, followed share is expected to reach 69% in 2050. Further,
by rehabilitation of patients in the community. 65% of the world’s older persons already live
in the less developed regions, and by 2050
Demographic Revolution nearly 80% will do so. While population aging
is less advanced in developing countries,
Due to rapid industrialization, urbanization,
the population of majority of them is poised
and advanced healthcare delivery system,
to enter a period of rapid population aging,
there is no denying the fact that health status of
increasing by more than five-fold in developing
both the developed and developing countries
countries, compared to slightly more than two-
has vastly improved, resulting in increased life
fold in developed countries. In developed
span of its individuals (Table 26.1). Globally,
countries as a whole, the number of older
the number of persons aged 60 years or over—
persons has already surpassed the number of
usually termed as “elderly”—is expected to
children (persons under age 15 years), and by
almost triple, increasing from 739 million in
2050 the number of older persons in developed
2009 to 2 billion by 2050 as a result of fertility
countries will be more than twice the number
of children.6
Table 26.1  Ageing scenario in India: Population
60 years or over
1901 12 millions
The Role of Family Physician
1961 24 millions Presently, as the fastest growing segment of
1991 56 millions
the population is 60 years, and the number of
“oldest-old” is increasing at an even faster rate,
2001 70 millions
many of our patients are “frail”***, needing not
2010 115 millions
only astute medical diagnosis and treatment,
2025 133 millions
but also interventions which address physical
Projected figure
and mental functioning. Therefore, the elderly
Life expectancy at birth
require special care. But “the fact remains that
1901 24 years
the government infrastructure is grossly falling
1991 55 years short, and hence the onus of health care is
2010 66.6 Male falling on the private sector; be it hospitals,
67.8 Female
nursing homes or family physicians.”7 Besides,
2025 70.5 Male most hospitals do not have a special geriatric
Projected figure 73.3 Female
facility and if there is one, it is prohibitively

*Multi- disciplinary study of the phenomena and problems of ageing.


**Every 8 seconds…a Baby Boomer turns 60…! (Ref. The American Geriatrics Society)
***The clinical phenotype of frailty manifests as multi-system pathologies characterized by low physical
activity, global weakness with low muscle strength, fatigability/exhaustion, overall slowness particularly
of gait, loss of weight among others.

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Chapter 26: Aging and Geriatric Concepts 245

expensive. To correct this imbalance, the ™™ Chest infection without cough or sputum: In
principles of health economics suggest that the the old, lobar pneumonia, instead of having
elderly requiring treatment for longer periods its presence indicated by cough, fever, and
are best kept at home for better resource leukocytosis, as in the young, may present
utilization. Further, “the principle focus of insidiously with slight breathlessness or
WHO activities has been on the community unproductive cough.
participation and family care. Promotion of ™™ Acute abdomen may have “silent”
traditional family ties has, therefore, been presentation; only mild vague abdominal
underscored as compared to institutional care. pain, constipation, or mild breathlessness
Making optimum use of the available primary may be the presenting symptoms.
healthcare services is the cornerstone for ™™ Thyroid disease: An elderly with
supporting traditional family care.”8 ,9 hyperthyroidism may not have goiter,
This change in the demographic scenario, tremor, exophthalmus, but may present
with its wide-ranging socioeconomic with atrial fibrillation, confusion, syncope,
ramifications, elder patients constitute and weakness.
a significantly large proportion in family ™™ Diabetes is easily missed, as glycosuria may
practice. 10 We, as family physicians, must not occur owing to high renal threshold;
realize that our elderly patients need more a random blood sugar measurement is a
than just medications and counseling to more reliable screening test.
help them cope up with the aging process.
™™ Parkinsonism is often overlooked, being
Therefore, we need the knowledge and the
common in old age but missed because
skills to provide competent professional care
the tremor is either absent or slight and the
and services to the elderly so that they can
typical rigidity may not be noticed.
lead a life as comfortable and independent as
possible in the community.11 ™™ Malignancy: Poorly localized skeletal
and muscular aches and pains that are
Characteristics of Disease in generally attributed to “rheumatism”
Elderly can be due to osteomalacia, metastasis
in bones from breast or prostate. Silent
There are differences of emphasis in the masses of the bowel, especially those from
approach to the elderly as compared with the ascending colon, may exist without
young people, and in particular, it may be major symptoms due to reduced neuronal
entirely non-specific. sensitivity in the GI tract.
™™ Falls and Blackouts: This is an important
Nonspecific Presentation of Illness
presentation of illness in the elderly.
Typical or specific signs and symptoms that Pa t i e n t s w i t h Pa r k i n s o n i s m a n d
point to a specific diagnosis may be absent. osteoarthritis are particularly prone to
For example: repeated falls. Patients with rheumatoid
™™ Silent myocardial infarction: Myocardial arthritis affecting the cervical spine
infarction occurs quite commonly in the may have falls owing to vertebra-basilar
elderly but is usually not accompanied insufficiency which occurs on moving
by typical chest pain. Often the pain is the neck. The side effects of drugs e.g.
totally absent and the patient presents anti-hypertensives, diuretics and tricyclic
with an episode of collapse, confusion, or antidepressants may result in falls due to
breathlessness. postural hypotension.

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246  Section 6: Geriatric Health
™™ Iatrogenic illness: These illnesses should status, such as headache, fatigue, insomnia,
always be considered. The elderly are irritability, abdominal pain, indigestion, low
particularly vulnerable to the adverse back pain, or simply not feeling well should
effects of drugs, such as drug-induced be taken seriously and evaluated promptly, so
Parkinsonism from phenothiazines, that management can be planned early.
weakness due to hypokalemia following
diuretic therapy with inadequate potassium Multiple Causes
supplementation, and depression from Since many homeostatic mechanisms (i.e.
reserpine containing drugs sedatives and milieu interieur) may be compromised
tranquilizers. concurrently, one problem may have several
Thus, the non-specific presentation of illness causes. Treating each alone may do little
in the old should never be dismissed as due to good; treating all may be of many benefit.
“ageism”, “senility” or some other vague label For example, urinary incontinence may
applied to them. Many opportunities for effective be worsened by fecal impaction, drugs,
treatment of old patients can be missed by the and excess urinary output; treating these
traditional approach to diagnosis, at the cost of contributory factors simultaneously will result
unnecessary suffering and disability. in substantial functional improvement, even if
In the elderly, a comprehensive review of the disease per se is untreatable.
medical history, functional history (activities
of daily life), along with a detailed review of all Multiple Pathology
medications, and targeted investigations will
often reveal the underlying cause or “hidden Several disease processes may coincide; their
illness” (Table 26.2) and treatment of this is combination usually leading to the development
often successful. of new disability. For example, combination
of senile cataract and arthritis leading to falls;
Early Symptom Manifestations dyspnea may be contributed by a pulmonary as
well as a cardiac pathology; hence, all possible
Due to reduced physiological reserve, older causes should be looked into. As patient may
patients often develop symptoms at an have multiple complaints due to multiple
earlier stage of the disease, e.g. urinary diseases or factors, trying to explain all findings
retention by mild prostatic enlargement, by a single diagnosis, as is customary in adults
heart failure by only mild hyperthyroidism, (i.e. unitary model of diagnosis) is usually
nonketotic hyperosmolar coma by only mild inappropriate in the old. Once people are in
glucose intolerance. Thus, treatment of the their 60s or 70s, they commonly show evidence
underlying disease can be easier in the elderly of several different pathological possesses, some
because it may be less advanced at the time of active, others inactive. As a consequence of
presentation. It is important that any symptom, multiple diseases, the symptoms and signs of a
particularly those associated with functional new disease may be wrongly attributed to the old
Table 26.2  Hidden illnesses in elderly disease already diagnosed. A problem-oriented
• Dementia approach in relation to functional assessment
• Depression that includes the ability to perform “activities
• Falling of daily living” (e.g. dressing, cooking, eating,
• Hearing loss
• Incontinence
drinking, washing, bathing, getting in and out of
• Musculoskeletal stiffness bed, continence and shopping) is very helpful to
• Orodental problems, poor nutrition assess the overall morbidity caused by disease
• Sexual dysfunction
process.

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Chapter 26: Aging and Geriatric Concepts 247

Delayed or No Reporting of Diseases/ classical giants of geriatric, Table 26.4 includes


Dysfunctions (Table 26.3) the “modern” geriatric giants in elderly people.
Though diseases manifest earlier in elderly
due to poor physiological reserve, elderly
Normal Occurrence of Nonspecific
report late or ignore symptoms (Table 26.3). Abnormalities (Table 26.5)
This may be due to low expectation of health, Many findings that are abnormal in younger
misinterpretation of symptoms as normal patients are relatively common in older people,
markers of aging, fear of hospitalization, social e.g. impaired glucose tolerance, premature
stigma, economic factors, or dementia. Poor ventricular contractions, low bone mineral
communication skills and unawareness of density, bacteriuria. They are usually incidental
physician about geriatric illnesses may also findings and benign in nature. On the other
contribute to delayed presentation.12 hand, a number of illnesses in the elderly have an
atypical presentation (Table 26.6). However, the
Mild Disease may Result in Serious belief about silent presentation of diseases is not
Dysfunction true. This appearance is due to clinical features
being masked, ignored or becoming atypical due
In the elderly, homeostatic mechanisms to repair
to the interaction of different diseases or drugs
any damage are impaired by pre-existing diseases
being administered.
or by physiological decline (i.e. homeostenosis),
hence even mild diseases may tip the balance,
e.g. urinary retention may be precipitated by
Dual Role of Therapy and Prevention
mild prostatic hypertrophy, congestive cardiac Both therapeutic and preventive measures
failure by mild hyperthyroidism. are effective in the management of diseases
Table 26.4  The I’s of geriatrics—classical and modern
Certain Patterns of Disease geriatric giants
Presentation in Elderly • Instability (frailty)
Certain patterns of presentation of diseases • Incontinence
• Intellectual impairment
are peculiar to old people, such as Immobility, • Incoherence (delirium)
Instability (falls), Incontinence, and • Insulin resistance (diabetes mellitus)
Intellectual impairment. These “four Is” have • Immobility
• Inanition (malnutrition)
been designated as “giants of geriatrics” (as • Impoverishment
described by Bernard Isaacs 1924–1995).
These are extremely common and present Table 26.5  Commonly present nonspecific
challenges to diagnostic skills in determination abnormalities in elderly
of precipitating cause and to uncover
• Diminished skin turgor
exacerbating factors. Apart from these four • Senile purpura and hirsutism
• Wasting of muscles of hand
Table 26.3  Factors contributing to delayed • Ventricular premature beats
presentation of illness • Systolic murmurs—mostly benign aortic stenosis
• Rales at bases of lungs due to fibrotic changes
• Insidious and vague symptoms associated with in lung
illness • Osteoporosis leading to vertebral compression
• Ageism—Patients and families assume symptoms fracture
as a part of normal aging • Impaired GTT
• General tendency to avoid burdensome tests; fear • Testicular atrophy
of economic or social consequences • Diminished vibratory sensation in toes
• Communication deficits due to speech problems, • Diminished or absent ankle jerks
forgetfulness, poor vision and hearing deficit • Mild renal insufficiencies

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248  Section 6: Geriatric Health
Table 26.6  Atypical presentations of specific illnesses References
in elderly
1. Partridge L, et al. Messages from mortality: the
• Infectious disease without fever, leukocytosis,
evolution of death rates in the old.Trends Ecol
tachycardia
• Depressions without sadness Evol, 1999;14(11):438–442. [PMID: 10511720:
• Myocardial infarction without chest pain Abstract].
• Apathetic thyrotoxicosis 2. Neil M. et al. Geriatric Medicine. In: Harrison’s
• Silent malignancy (mass without symptom)
Internal Medicine, vol. 1, 16th edn. p.44.
• Nondyspneic pulmonary edema
• Silent surgical abdomen 3. Colledge NR. Frail older people. In: Davidson’s
Principles and Practice of medicine, 19th edn.
in elderly people. For example, fractures may Churchill Livingstone. p.238.
be prevented by improving bone metabolism, 4. www.jlgh.org/JLGH/media/Journal.../JLGH_
improving balance, and strengthening legs V3n3_p105-107.pdf
by exercises and physiotherapy. Treatment 5. http://www.bgs.org.uk/About/composition.htm
of hypertension and transient ischemic 6. American Association of Retired Persons
attack prevents falls and neurological deficits. (AARP) Statement to the 42nd Session of
Annual immunization against influenza the UN Commission on Population and
is modestly found to be cost-effective in Development. Publish Date: April 1, 2009.
URL:http://www.un.org/esa/population/cpd/
preventing complications due to influenza and
cpd2009/comm2009.htm ;
pneumonia in the elderly.13
http://www.aarpinternational.org/resources/
re s o u rc e s _ s h o w . h t m ? d o c _ i d = 8 5 4 2 1 0 .
Conclusion
(Accessed on 23-01-2012)
As family physicians, we need to first recognize 7. Aggrawal A. et al. 1999: the International
that our patient profile is aging, and we Year of the Older persons. J Ind Med Assoc,
need to be better informed about caring for 1999;97(4):117–8.
the elderly. In the elderly and frail patients, 8. Uton M. Rafei, WHO Regional Director for
multiple diseases, physiological decline in South-east Asia: Message on the Occasion of
multiple organs, co-administered drugs, World Health Day, 7th April 1999. J Ind Med
and psychological factors may interact to Assoc, 1999;97(4):159.
mask clinical features or make them atypical. 9. Ramli AS et al. Managing chronic diseases in
Besides, delayed reporting by patients, poor the Malaysian primary health care – a need
communication skills, and unawareness for change. Malaysian Family Physician, 2008;
3(1):7–13.
about geriatric problems and their atypical
10. Fortin M et al. Prevalence of multimorbidity
presentations of illness in physicians add to
among adults seen in family practice. Ann Fam
the problem of diagnosis.
Med, 2005;3(3):223–8.
Since the majority of the elderly live
11. Uijen AA, et al. Multimorbidity in primary care:
within the community, family physicians
prevalence and trend over the last 20 years. Eur
are in the best position to provide their care. J Gen Pract, 2008;14(Suppl 1):28–32.
An understanding of the above concepts in 12. Helen M. Fernandez et al. House Staff Member
the development of the disease in elderly Awareness of Older Inpatients’ Risks for
patients facilitate family physicians to the Hazards of Hospitalization. Arch Intern Med,
common themes in the approach to the 2008;168(4):390–6.
assessment of the elderly patients, the choice 13. Vaccines for preventing influenza in the elderly.
of preventive measures, and the management Web site: http://www.cochrane.org/reviews/
of multifactorial geriatric syndromes. en/ab004876.html

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27 Comprehensive
Geriatric Assessment

“It is not enough for a great nation to have added new years to life. Our objective must be to add new life
to those years.”
– John F. Kennedy

Introduction Table 27.1  Components of comprehensive geriatric


assessment
Comprehensive ger iatr ic ass essment
Component Elements
(CGA) is defined as a multidimensional
Medical assessment Problem list
medical, functional, psychosocial, social and Comorbid conditions and
environmental evaluation of an older* person’s disease severity
problems and resources (Table 27.1)1, in order Medication review
Nutritional status
to develop a coordinated and integrated plan
for treatment and long-term follow-up. 2,3 Assessment of Basic activities of daily
functioning living
The CGA means any look at an older patient, Instrumental activities of
which measures the person’s performance daily living
of the survival skills required to negotiate Activity/exercise status
Gait and balance
everyday life using standardized protocols. The
individual is assessed in relation to his or her Psychological Mental status (cognitive)
assessment testing
environment and a comprehensive functional Mood/depression testing
data is obtained, which includes essential Social assessment Informal support needs
physical and cognitive functioning, physical and assets
environment of the patient, socio-economic Care resource eligibility/
financial assessment
situation of the patient, and patient’s wishes
concerning quality of life (Fig. 27.1).4 Environmental Home safety
assessment Transportation and
The CGA is time and labor intensive. telehealth
Ideally, under these circumstances, an
interdisciplinary team—consisting of medical,
psychological and nutritional consultants, intervention strategy, initiate treatment, and
physical and occupational therapist and other follow-up on the patient’s progress.
specific healthcare professionals such as Although the research has shown that
geriatricians—performs a detailed assessment, comprehensive assessment techniques have
analyze the information, formulate an several clinical benefits for geriatric patients and

*The age of 60 or 65 years roughly equivalent to retirement ages in most developed countries is said to be
the beginning of old age.

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250  Section 6: Geriatric Health
Table 27.2  Self-administered questionnaire
Condition Screening questions
A – Depression Have you felt sad or depressed
during the past 4 weeks?
B – Falls Have you fallen all the way to the
ground or fallen and hit something
like a chair or stair during the past
12 months?
C – Urinary Do you have trouble holding urine;
incontinence did you lose urine when you don’t
want to; does urine come out by
itself when coughing or laughing
in the past 12 months?
D – Functional 1. During the past 4 weeks: did
impairment you have any difficulty while
eating, dressing, and bathing
and while moving in and out of
Fig. 27.1  Components of comprehensive geriatric bed or chair?
functional assessment 2. During the past 4 weeks: did you
have physical difficulty walking
that many physicians use some techniques of in and around your home or
geriatric assessment, most practicing physicians walking some distance outside
or shopping?
do not perform comprehensive assessment 3. During the past 4 weeks: did
of geriatric patients.5 Most of the healthcare you have any physical difficulty
benefits are seen in hospital or ward-based driving a car or using other
management units with little contribution from transportation?
4. During the past 4 weeks: did
ambulatory or team-based care.6 you have any physical difficulty
However, in clinical practice, CGA can be participating in community
activities or volunteer work or
improved by selectively targeting community- visiting friends and relatives?
dwelling elderly people, (i.e. those above
60 years age), using a standardized self-
an evaluation alone or at any one time. 9,10
administered questionnaire (Table 27.2) for each
Studies have identified certain barriers to
of four “geriatric syndromes”, namely depression,
improving geriatric education in family
urinary incontinence, falls and functional
practice residencies which include:11–13
impairment (i.e. basic activities of daily living),
™™ Variable and/or inadequate training and
and thus can identify elderly people likely to
education in geriatric medicine;
benefit from geriatric assessment. Based on these
™™ Lack of knowledge, professional education,
findings probable etiologies regarding impaired
experience, and/or interest among phy­
anatomy and physiology can be identified and
sicians in dealing with the complex needs
practical solutions planned to enhance their
of the elderly;
quality of life.7,8
™™ Lack of staff supports, such as geriatric
nurse specialists, whose role is to ensure
Barriers to CGA optimal geriatric care as defined above;
Although, family physicians have provided ™™ Disinterest among new-to-practice
the bulk of health care to the elderly and physicians in treating elderly patients
probably will continue to do so, they are who present with more challenging and
neither trained nor expected to perform such time-consuming problems; and

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Chapter 27: Comprehensive Geriatric Assessment 251

™™ Fee-for-service payment systems leading to 3. It frequently takes advantage of an inter­


financial disincentive to caring for elderly disciplinary team of providers (Table 27.3).
patients who tend to require more time for The important aspects which need to be
comprehensive assessments, aware of are:
However, family physicians are expected to ™™ Whether the patient looks acutely ill,
be familiar with critical areas of everyday life chronically ill, or generally well
of older patients, understand and synthesize ™™ Non-specific or atypical presentation of
their needs, from suitable medical decision, disease
and involve specific key personnel who can ™™ Presence of multiple diseases
assist in this task.14,15 ™™ Prevent complications to the extent
possible
Medical Assessment ™™ To always seek the reversible causes of
Like any effective medical evaluation, the disability.
geriatric assessment needs to be sufficiently The principles of medical assessment include:
flexible in scope and adaptable in content to ™™ History
serve a wide range of patients. ™™ Physical examination
Much of what applies to the examination ™™ Investigations
of the younger patient applies equally to an ™™ Mental status examination
elderly one, but a geriatric assessment has ™™ Functional assessment
particular assessment, which is uniquely ™™ Advance directive.
“geriatric” in three general ways:
1. It focuses on elderly individuals with History Taking and its Pitfalls
complex problems. Aging patients pose special opportunity and
2. It emphasizes functional status and quality special problems. They become increasingly
of life. aware of their personnel aging and begin to
measure their lives in terms of the years left
Table 27.3 Disciplines involved in the care of the rather than the years lived. It is normal for the
elderly
older people to reminisce about the past and
Core team to reflect upon previous experience, including
• Geriatric medicine and psychiatry
• Nursing joys, regrets, and conflicts. Listening to this
• Physiotherapy process of review gives important insights into
• Occupational therapy their lives, helping to plan their priorities and
• Social work
Other disciplines
goals, besides their healthcare aspects.
• Speech therapy Aging patients have longer histories and
• Hearing services they may narrate them more slowly; often
• Continence advice requiring extra time. Therefore, do not try to
• Ophthalmology and opticians
• Clinical psychology accomplish everything in one visit.
• Chiropody If the patient is unable to comprehend or
• Cosmetic services communicate, information should be sought
• Dentistry
• Recreational services from family, friends or caregivers (Table 27.4).
• Volunteer services The use of questioners*, which can
• Community liaison nursing be completed at leisure at home with the

*Ref. Appendix 6

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252  Section 6: Geriatric Health
Table 27.4 Tips for communicating effectively with Table 27.5  Signs and symptoms of depression
elderly
• Tiredness and loss of energy
• Provide a well-lit, moderately warm setting with • Sadness that doesn’t go away 
minimal background noise and safe chairs and • Loss of self-confidence and self-esteem
access to the examining table • Not being able to enjoy things that are usually
• Face the patient and speak in low tones; make pleasurable or interesting
sure the patient is using glasses, hearing devices, • Feeling anxious all the time
and dentures if needed • Avoiding other people, sometimes even your
• Adjust the pace and content of the interview to the close friends
stamina of the patient; consider two visits for initial • Feelings of helplessness and hopelessness
evaluations when indicated • Sleeping problems—difficulties in getting-off to
• Allow time for open-ended questions and sleep or waking up much earlier than usual
reminiscing; include family and caretakers when • Very strong feelings of guilt or worthlessness
needed, especially if the patient has cognitive • Thinking about suicide and death
impairment • Self-harm
• Make use of brief screening instruments, the
medical record, and reports from allied disciplines
• Carefully assess symptoms, especially fatigue,
™™ Psychological: Especially for any evidence
loss of appetite, dizziness, and pain, for clues to of depression (Table 27.5).
underlying disorders ™™ Mental and emotional evaluation: Early
• Make sure written instructions are in large print
in the interview try to form some idea of
and easy to read
whether the patient is confused or not. This
Sources: 1. Bates’ guide to physical examination and history can be done by introducing questions from
taking. Ch.20, The older adult.
2. C o m m u n i c a t i n g w i t h o l d e r p e o p l e . W e b Abbreviated Mental Test (Table 27.6), after
site: http://www.who.int/ageing/publications/ you have gained confidence of the patient
PPCommunicationwithOlderPeople.pdf
by stating a comment such as, “ I am now
help of family members, is most useful as going to ask you some questions which
complimentary to the medical interviews. may seem very simple to you, but they are
an important part of my examining you; I
Important Specific Areas hope you don’t mind.”
Important specific areas to focus on are: ™™ Current health status: It includes a history
™™ Present complaints and past medical history, of allergies, immunizations, screening
including hospitalization: Patients may tests, and use of safety measures (Table
respond to their questions slowly, often 27.7).16
pausing, but this does not necessarily indicate ™™ Medications, including OTC drugs :
mental impairment. In some cases, slowness Medications are so often likely to be part of
of verbal response may be due to Parkinson’s the problem, rather than part of the solution,
disease, myxoedema or depression. and hence become a high priority focus,
™™ Personal history: About diet, sleep, tobacco, along with compliance. With the multiplicity
alcohol, substance abuse, exercise and of disease in the elderly, medications to
leisure activities. An inquiry into the multiply, leading to more likelihood of side
activities of daily living, like bathing, effects and iatrogenic disease. Keeping an
dressing, toileting, continence must be elder’s drug profile in a state that optimizes
skillfully incorporated and evaluated. the function is an enterprise, which demands
™™ Family and household issues: For example, a lot of surveillances, repeated assessment,
number of people, friends, relationship, and frank judicious risk assessment on the
attitude, comforts; important experiences part of the attending physician. Therefore,
like upbringing, marriage, retirement, and the physician should regularly assess what
finance. drugs the patient is taking, their timing

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Chapter 27: Comprehensive Geriatric Assessment 253
Table 27.6  Abbreviated mental test and frequency, besides cautioning them of
• Age—must be correct important side effects.
• Time—without looking at a timepiece, correct to ™™ Vision, hearing and mobility: If eye sight
the nearest hour or hearing is a problem, difficulty in
• Address—e.g. 7, Race course road, New Delhi.
Given as a test of immediate memory, and retested communicating and taking instructions
at the end naturally follow, so that problems related
• Month—must be correct to special senses often need specific or
• Year—must be correct
• Name of place, e.g. hospital, clinic, home
direct questioning; e.g. eye pain, diplopic,
• Date of birth—exact scotoma, difficulty driving, reading and
• Date of specific events, e.g. wedding, retirement, watching television, sudden vision loss.
independence day
High-toned deafness, i.e. presbycusis—
• Name of the present leader/monarch, e.g. who is
the President or Prime Minister of our country? gradually progressive hearing loss with particular
• Counting backwards from 20 to 0; can prompt to difficulty understanding words and conversation,
18 and patient may self-correct or hesitate especially when there is high level of ambient
Recall the address given as a test above.
A score of 6 or less out of 10 strongly suggest background noise—commonly occurs in the
mental impairment elderly; therefore, the physician has to speak in
a clear low-pitched voice (Tables 27.4 and 27.8).
Failure to appreciate deafness may lead to an
Table 27.7  Home safety for the elderly incorrect diagnosis of dementia. If the patient has
Fall Prevention a hearing aid, make sure he/she uses it during the
• Keep clutter away from the floor space interview.
• Ensure that all floor surfaces are non-slip, securely
in place and in good condition Table 27.8  Suggestions for communicating with the
• Arrange furniture to aid easy movement hearing impaired
• Keep the stairs clear at all times and make sure
that the handrail is secure • Face the elderly directly; position yourself within
• If at all you have to climb up always use proper a meter of the patient, they must be able to see
steps you to hear you
• Fit safety rails by the toilet and the bath to assist • Maintain a good light on your face. Face a window
entry and exit or a lamp so the light illuminates your mouth as
• Use non-slip rubber mats in the bath or shower you speak. Elderly with hearing loss rely a great
• Discard poorly fitting slippers or shoes; don’t wear deal on lip-reading
high heels • Ensure that you have the patient’s attention.
• Avoid trailing clothes which may trip you up Establish eye contact and address what you want
to talk about clearly and concisely
Burns and scalds prevention • Eliminate background noise. When you are
• Ensure that all electrical appliance leads are not beginning a conversation turn the radio or TV
left trailing on the floor. Where necessary these down or off
could be stapled along the walls • Speak slightly louder than normal, but do not
• Use long life light bulbs as they don’t require shout. Speak slowly, pausing between phrases
frequent changing and sentences. Articulate carefully without
• Boil only enough water for your immediate needs exaggeration
• Always run cold water first when having a bath • Rephrase rather than repeat verbatim. If you
or a shower cannot get your words across rephrase what you
• Consider fitting thermostatically controlled bath are saying and change up the sentence structure
taps • Check comprehension periodically. Elderly often
• Buy a cordless kettle or one with a coiled flex nod in agreement to indicate they understand
• Consider fitting smoke alarms what you are saying to avoid frustration and
embarrassment, regardless of whether or not they
For more details about “Home Safety Checklist for truly absorbed what you said. If you are unsure
Older Consumers”, please visit - http://www.nachi.org/ if the elderly understood you, have them repeat
elderlysafety.htmfor your words back to you

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254  Section 6: Geriatric Health
Bereavement: Mourning and grief reactions Table 27.9  Suicide warning signs
occur normally after the death of a loved one. • Appearing depressed or sad most of the time.
In elderly people, this emotional trauma leads Feeling hopeless and/or worthless, Feeling
to increased incidence of physical and mental excessive guilt or shame. (Untreated depression
is the number one cause for suicide)
illness, and generally present with somatic • Losing interest in things or activities that are
symptoms following loss, including increased usually found enjoyable
risk for abuse of alcohol, tobacco, and • Withdrawing from family and friends. Cutting back
social interaction, self-care, and grooming
medications. Besides chronic illness, physical
• Exhibiting a change in personality. Experiencing
impairment, unrelieved pain, financial stress, dramatic mood changes. Feeling strong anger or
and social isolation are known risk factors rage. Acting recklessly
leading the elderly to contemplate or commit • Breaking medical regimens (such as going off
diets, prescriptions)
suicide. • Experiencing or expecting a significant personal
Most of the elderly who commit suicide do loss (spouse or other)
so not long after visiting a physician. A review of • Putting affairs in order. Giving away prized
possessions. Writing a will or making changes
studies analyzing this clinical scenario estimated in wills
45% of those dying by suicide saw their primary • Stock-piling medication or obtaining other lethal
care physician in the month before their death.17 means
• Preoccupation with death or a lack of concern
Only 20% saw a mental health professional about personal safety. Remarks such as "This is
in the preceding month. Women and older the last time that you'll see me" or "I won't need
patients are more likely to have sought care in any more appointments" should raise concern
the month before suicide than men and younger • The most significant indicator is an expression of
suicidal intent
patients. Thus, the responsibility for prevention
lies not only with the family and friends of the to details, is necessarily time-consuming.
suicidal elderly person but with the physician But the time involved is never wasted. The
as well. These aspects, as also suicide warning information collected at this stage plays a
symptoms and signs (Table 27.9) need to be vital role in planning patient’s ongoing care.
assessed carefully while interviewing the elderly. Additionally, physicians’ interest in the well
The family physician, who has the intimate being of their patients helps consolidate the
knowledge of patients’ medical, functional, and doctor-patient relationship.
social problems, is in a unique position to help The following areas should be examined.
the bereaved to express their feelings and come ™™ Weight, height: Evaluate BMI and nutritional
to terms with their loss. status.* In the elderly it is often better to
have a BMI between 25 and 27, rather than
Physical Examination and its Pitfalls under 25. In the elderly, a slightly higher
The conventional physical examination BMI may help protect from osteoporosis.
consisting of system review, past and family On the other hand, being too thin and
history and medications is similar to that of the having a BMI that’s below the healthy range
adult, but certain areas require more attention, (18.5 to 24.9) can also be a health concern.
depending in part on clues from the history, Although BMI alone cannot predict health
e.g. cognition and activities of daily life. The risk, most experts say that a BMI greater than
examination, besides requiring great attention 30 (obesity) is unhealthy.

*Ref. Web site - http://www.mna-elderly.com/forms/mna_guide_english.pdf , for “A guide to completing


the Mini Nutritional Assessment (MNA®)”.

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Chapter 27: Comprehensive Geriatric Assessment 255

™™ Temperature: The normal oral body faintness, and even when these symptoms
temperature is close to 37°C (98.6°F). Fever are not present postural unsteadiness and
is defined as an oral temperature greater falls may be present. In the early stages
than 38°C (100°F). of the condition, the drop in the blood
Recording by regular oral thermometer may pressure may only be present first thing in
be less accurate. Rectal temperature recorded the morning, when the circulating blood
with low reading calibrated thermometer is volume is at its lowest. In order to be
preferred. If they are not available, a regular certain that postural hypotension is not
oral thermometer should be set aside and used present, the pressure should be measured
solely for rectal temperature recording.* Often, when the patient first rises in the morning.
elderly patients develop systemic infections ™™ Hearing, vision and speech: The elderly
with the body temperature remaining in often become isolated because of problems
the normal range. Fever, the cardinal sign with these functions. Visual impairment is
of infection, may be absent or blunted 20– an independent risk factor for falls. Testing
30% of the time. In the old, bacteremia, vision by using ophthalmic ‘pin-hole’ and
endocarditis, pneumonia, and meningitis may a Snellen chart may be needed as initial
present with lower fever than in the young. screening method, followed by referral to
Similarly, acute surgical abdomens, e.g. acute optometric services.
cholecystitis, perforation, and appendicitis During the history, the physician,
often present with temperatures <37.5°C can ask specific questions** which help a
(<99.5°F). An absent or blunted fever response simple assessment of hearing acuity, e.g.
may, therefore, contribute to diagnostic delays does a hearing problem cause you to feel
in this population, which is already at risk embarrassed when meeting new people?;
for increased morbidity and mortality due to does a hearing problem cause you to feel
infection.18 frustrated when talking to members of your
™™ Blood Pressure: The merits of treating family?; does a hearing problem cause you
hypertension in elderly have now been difficulty when visiting friends, relatives, or
well documented. More Important neighbors?.
in the elderly is postural (orthostatic) Hearing acuity can be tested by simple
hypotension, which is a reduction of methods such as asking the patient to
“systolic” blood pressure of at least 20 identify the sound of a ticking watch
mm Hg or a reduction of” diastolic” blood or the presence of two fingers rubbing
pressure of at least 10 mm Hg within 3 together by the ear. Difficulties with speech
minutes of erect standing. comprehension can be assessed by the
There are many causes of postural “whisper test” (Table 27.10). An inability to
hypotension (e.g. diabetes, autonomic repeat 50% of the words can identify those
neuropathies, myocardial infarction, patients who may have poor results with
aortic stenosis, vasodilatation as a result the hearing-aid because of dysfunctional
of fevers). The characteristic clinical auditory processing. Tuning forks are of
features are complaints of dizziness and limited utility in assessing auditory acuity.

*In clinical practice the rectal site has been viewed as an effective minimally invasive method to estimate the
“true” body temperature. Traditionally the oral and axillary readings are adjusted to the rectal temperature
by adding 0.3°C and 0.5°C, respectively (Betta et al, 1997).
**Ref. web site - http://consultgerirn.org/uploads/File/trythis/try_this_12.pdf

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256  Section 6: Geriatric Health
Table 27.10  Conducting the whispered voice test loss is invisible: it cannot be seen, heard,
• T
 he examiner stands arm’s length (0.6 m) behind or touched. It may not be noticeable in
the seated patient and whispers a combination of a quiet office environment and in one-
numbers and letters (e.g. 4-K-2) and then asks to-one conversation. Therefore, it is
the patient to repeat the sequence
imperative that primary care physicians
• T
 he examiner should quietly exhale before
whispering to ensure as quiet a voice as possible
screen patients—especially those age 65
and older—for hearing loss, and refer
• If the patient responds correctly, hearing is
considered normal; if the patient responds them to an audiologist if hearing loss is
incorrectly, the test is repeated using a different suspected. 19 It’s therefore crucial that
number/letter combination family physicians guide their patients to
• T
 he patient is considered to have passed the accept hearing loss and to support the
screening test if they repeat at least three out of
more open use of amplification systems.
a possible six numbers or letters correctly
Today’s hearing aids differ significantly
• T
 he examiner always stands behind the patient to
prevent lip-reading from their analog predecessors. Changes
in technology, assistive devices, and the
• E
 ach ear is tested individually, starting with the
ear with better hearing, and during testing the development of the cochlear implant
non-test ear is masked by gently occluding the have improved the ability of the hearing
auditory canal with a finger and rubbing the tragus impaired to compensate for their disability.
in a circular motion
However, the benefits of new technology
• T
 he other ear is assessed similarly with a different
combination of numbers and letters.
should not overshadow the importance of
simpler considerations such as how we can
Source: Sandi Pirozzo et al. Whispered voice test for screening
for hearing impairment in adults and children: systematic review. speak more effectively to those who have
BMJ. 2003 October 25; 327(7421): 967. [PMCID: PMC259166] difficulty in hearing.
When the patient has a hearing aid,
Check the patient’s ears for wax. physicians should make sure the battery
Otoscopic examination for cerumen is working and that the patient knows how
or serous otitis is essential and should to use the aids. Also, physicians should
be done before any testing for hearing get acquainted with the mechanism and
loss. Cerumen obstruction commonly functioning of hearing aid.
contributes to hearing loss, and its removal Even in the absence of speech disorders
can dramatically improve acuity. related to the neurological diseases such as
Hearing aids are often not worn even stroke, Bell’s palsy or Parkinson’s disease,
when provided. Many old persons and speech in the elderly may be unclear as a
their relatives are reluctant to confront result of aging processes affecting the speech
the reality of hearing handicap and try mechanism such as diseases of oral cavity,
to hide the fact that they need sound tongue, pharynx and larynx; dental trouble—
amplification. Major barriers to improved chronic irritation may lead to oral ulcers;
hearing in older adults include lack of ill-fitting dentures—poor-fitting dentures
recognition of hearing loss; perception may be associated with oral ulceration and
that hearing loss is a normal part of aging poor nutrition. The “portcullis” sign (i.e.
or is not amenable to treatment ; and the top denture falling on to the bottom one
patient nonadherence with hearing aids when the mouth is opened) may be due to
because of stigma, cost, inconvenience, poor fitting, but its de novo presence may
disappointing initial results, or other indicate dehydration, or a stroke leading to
factors. Besides, to the physician, hearing loss of tone in the buccal musculature. The

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Chapter 27: Comprehensive Geriatric Assessment 257

“caviar tongue” (i.e. clusters of sublingual Table 27.11 Hyperthyroidism—clinical presentation


in the elderly
varicosities) seen sometimes in elderly is a
benign condition. • Nonspecific symptoms
™™ Skin: With aging the skin looses its elasticity. – Anorexia
–  Weight loss and loss of appetite
There is decreased subcutaneous fat and • Constipation
loss of collagen. The skin sags and wrinkles – Cardiovascular:
appear. There is increased capillary fragility— –  Atrial fibrillation
– Dyspnea
the blood vessels are easily disrupted, – Angina
resulting in bruises. These changes lead to –  CHF and MI
senile purpura and their presence do not • Apathetic thyrotoxicosis”
• Muscle weakness and proximal muscle wasting
indicate bleeding disorders. Benign senile
angiomas, i.e. cherry hemangiomas (De
Table 27.12 Hypothyroidism—clinical presentation
Morgan Spots) are commonly found on the
in the elderly
trunk and sometimes also occur on the face,
neck, scalp, arms and legs. • Cardiovascular
– Bradycardia
The incidence of malignant basal
–  Low voltage QRS
cell and squamous carcinomas is more; –  Diastolic hypertension
hence their clinical diagnosis should –  Increased LDL
be confirmed by performing a biopsy of –  Pericardial effusion
• Neuropsychiatric N
the suspected lesion for histopathologic –  Lethargy, fatigue, sleep disturbance
interpretation. –  Poor concentration, cognitive impairment
Particular attention should be paid to – Depression
– Myxedema madness (confusion, paranoia) in
the “pressure areas” as the development of severe disease
pressure sore is a disaster to the patient. Risk • Pulmonary
factors include immobility, fecal or urinary –  Sleep apnea
–  Exquisite sensitivity to sedative medications
incontinence, diabetes, glucocorticoid use,
and poor nutrition. Prevention is essential,
e.g. positional rotation every few hours to absent and may be erroneously attributed to
distribute the compressive forces and to normal aging or coexisting disease. Physical
minimize further injury. examination of the thyroid gland may not be
™™ Thyroid: Despite the increased frequency helpful, as the gland is often shrunken and
of thyroid problems in older individuals, difficult to palpate. If there is a suspicion
physicians need a high index of suspicion to of malignant disease, early biopsy or fine
make the diagnosis since thyroid disorders needle aspiration for cytology should be
often manifest as a disorder of another considered.
system in the body. While some of the ™™ Breasts : The breasts should not be
symptoms of thyroid disease are similar overlooked, since older woman are more
to those in younger patients, it is not likely to have breast cancer and less likely
uncommon for both hyperthyroidism and to do breast self-examination.
hypothyroidism to be manifested in subtle Some observant women will volunteer
ways in older patients, often mimicking that they have noted a recent change in the
symptoms of aging or masquerading size of the breast, irregularity in the shape of
as diseases of the cardiovascular, the breast or asymmetry. However, the area of
gastrointestinal, or nervous system (Tables concern to the patient should be examined in
27.11 and 27.12). Typical symptoms may be detail. The site and physical characteristics of

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258  Section 6: Geriatric Health
any masses including size, tenderness, shape, Table 27.13  Get up and go test
consistency, mobility, margin and fixation • The patient should sit comfortably in a straight-
to skin or muscle, including nipple shape, backed, high-seat chair with arms rests
retraction, discharge, and supraclavicular and • Ask the patient to rise from the chair (with or
without an assistive device, as is his/her usual
lower cervical lymph nodes should be noted. manner of ambulation)
™™ Falls and Gait Impairment: Falls are the • Ask the patient to stand still momentarily (10
leading causes of non-fatal injuries in sec) with eyes open (with or without an assistive
device, as is his/her usual manner)
older persons, and their complications • Ask the patient to stand still momentarily (10
are the leading cause of death from injury sec) with eyes closed (again with or without an
in elderly. Many elders harbor fear of assistive device), you may need to guard them
from falling
hospitalization, due to which they may
• Ask the patient to walk approximately 50 ft forward
suppress history of fall. Because elderly (with or without a device and/or assistance as
persons may not volunteer the information, appropriate, preferably toward a wall)
physicians should, on at least a yearly basis, • Ask the patient to turn around at the end of 50 ft.
• Ask the patient to walk back to the chair, another
ask their elderly patients about any falls 50 ft, to the original destination
and ask about and look for any difficulties • Ask the patient to sit down when he/she reaches
with balance or gait.20* the chair
The most serious consequences of the
geriatric fall syndrome are fractures of hip, walk through the test once before to become
humerus, wrist and pelvis. Fear of falling familiar with the test. The physician makes
and self-limitation of physical activity is “qualitative” observations about each aspect
self-imposed psychological impairments. of the mobility trial.**
There is a pathological cascade from age- The physician carefully notes—Is the
associated gait and balance disorders patient able to rise from a chair without use
to locomotor falls and further to fall- of arms in a single smooth attempt? Is there
related fractures. Significantly increased stability immediately upon standing, or does
fall risk caused by gait and balance the patient stagger? Is balance maintained
disorders can be considered as a distinct when the patient is pushed lightly on the
chronic pathological condition. It is sternum? Is there steadiness when standing
strongly age-related and definitely has with eyes closed? Can a 360-degree rotation
a multifactorial origin. The term “age- be achieved in a smooth, continuous motion?
associated multifactorial gait disorder” has How is walking initiated? Are the steps equal?
been coined for this condition.21 Is there a wide based gait? Is a walking aid
While assessing gait and balance, (cane, walker) necessary? 22
physician should pay attention to the following Incontinence: Many patients fail to tell and
“Get up and go” Test (Table 27.13). This test discuss symptoms relating to urinary and fecal
is done in ambulatory patients only. One incontinence. Physicians must evaluate these
practice run is allowed, i.e. have the patient symptoms because suitable interventions

*A detail “patient visit note–falls and motility disorders” is available at web site - http://www.ncbi.nlm.nih.
gov/pmc/articles/PMC2686332/figure/f1-cia-2-545/
**This test is often timed, e.g. Expanded Timed Up-and-Go’ (ETUG) test, and different cut off times—varying
from 10 to 30 seconds—exist for different indications. In the present setting, where the physician is trying
to identify the major or multiple causes of the fall, the end result is to be able to tailor the treatment plan
by identifying abnormalities in gait or stature, so timing is not as critical.

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Chapter 27: Comprehensive Geriatric Assessment 259

can improve most patients. In men, rectal artery disease) may be preferred to invasive
examination, scrotum, and testes; and in coronary angiography in the evaluation of
woman vaginal examination and cervical elderly with suspected CAD in the elderly.
smear, if appropriate, may be indicated. ™™ The views of the patient and, where
appropriate, the family: The views of the
Aids and appliances: This is an essential part
patient and family/relatives should also
of the examination. Physicians must verify
be taken into account. However, relatives
the aids, such as walking stick, wheel chairs,
should never be made to feel responsible
inclusive of their tyres and breaks, walkers,
for difficult decisions, e.g. consenting for
armchairs, dining chairs, toilet aids for their
HIV screening tests, or biopsy procedures.
suitability and safety.

Mental Status Examination


Investigations23,24
Mental state examination would revolve
In the elderly, frequently only a clinical
around evaluation of cognition (i.e. higher
assessment is required. Some simple laboratory
mental functions) and depression.
investigations that may be helpful are—complete
The abbreviated mental test (Table 27.6)
blood count, renal function panel, chest X-ray,
consisting of ten point assessment score referred
electrocardiogram and lipid profile. In a frail
to earlier have their limitations to detect mild to
patient, thyroid function test, vitamin B12, folate,
moderate intellectual impairment. As a simple,
and serum calcium are helpful. When planning
fast, cheap, sensitive, and specific screening
complex or invasive investigations, following
model is the combination of the “clock draw”
principles need careful evaluation:25
(in which the patient is asked to draw a clock
™™ Patient’s general health: Do patients
face, with all the numbers placed properly, the
have the physical and mental capacity to
two clock hands positioned at a specified time,
tolerate the proposed investigation? For
(e.g. 10 minutes before 2.00) and the “three-
example, an elderly with knee joint arthritis
item recall” (i.e. India, politics, black; Table
may not be able to perform exercise
27.14), is fairly quick and has reasonable test
ECG; or, an elderly with phobic disorder
characteristics. When the patient is able to recall
(claustrophobia) may not be a suitable
all three items after 3 minutes, the likelihood
candidate for MRI investigation.
ratio for dementia is 0.06. Conversely a markedly
™™ Whether the investigation will alter
abnormally drawn clock is associated with
management: Would the patient be fit for
likelihood ratio of 24.2 When patients fall into
or benefit from the treatment that would be
an intermediate range, further testing with the
indicated if investigations proved positive?
“Mini-Mental State Questionnaire” (i.e. MMS-
The presence of co-morbidity is more
Table 27.14)26, or other instruments can be used.
important than age itself in determining
a patient’s likely benefit from specific
interventions. The more pathogenesis a Functional Evaluation (Table 27.15)
patient has, the less likely he/she will be able Functional evaluation measures a patient’s
to withstand an invasive or an aggressive ability to manage tasks of every day life.
intervention. For example, noninvasive Traditionally, it has focused on those skills that
workup, such as CT coronary angiography, relate to self-care, household management,
or pharmacological stress echocardiography and mobility.
(perfusion imaging with real-time contrast 1. Activities of Daily Living (ADL)—(mnemonic
echocardiography for detecting coronary “DEATH”): These include patient’s ability to

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260  Section 6: Geriatric Health
TABLE 27.14  A Practical adaptation of MMS questionnaire
Introduction
‘I’d like to ask you some questions about your health.’
‘What’s your sleep been like?’ ................. ‘Your appetite?’ .................
‘Your interest?’ ................. ‘Your energy?’ ................. ‘Your concentration?’ .................
‘What is your memory like these days? Do you mind if I test it?’
Memory registration
‘What I want to do, is given you three things I want you to try to remember for me. First I want you to
repeat them, and then in a few minutes I’ll ask you how many you can recall. Here are the three things
I want you to remember for me.’
‘India, politics, black”.
-/3 ‘Can you repeat them for me?’ (Score number of attempts required -/3, e.g., CORRECT FIRST TRY =
3; SECOND TRY = 2; THIRD TRY = 1)
‘Good, now can you try to remember those three things for me, because I’m going to ask you to recall
them shortly. But first I’d like to get you to do some things that might interfere with your memory.’
Attention and concentration
‘First I’d like you to count out loud from 1 to 20.’ .................
‘Now could you count backwards from 20 to 1.’ .................
‘Next can I get you to spell the word WORLD for me?’ ................. WORLD
-/5 ‘Now can you try to spell WORLD backwards for me?’ _D_L_R_O_W
Memory recall
‘Now what were those three words I asked you to remember for me?’
-/3 --/3 SPONTANEOUS RECALL: ................. India ................. Politics ................. Black
Optional: Cued recall (................. City, ................. Sport, ................. Color)
Recognition (List four cities, four sports, four colors)
Language
‘Sometimes as people get older they have trouble remembering words, the right word, does that ever
happen to you?’
‘Well, let’s see. What do you call this?’
-/1 ................. PEN (Optional more difficult items ................. Cap ................. Point)
................. WATCH (Optional difficult items ................. Strap ................. Winder)
‘Can I get you to repeat a sentence, exactly as I say it?’
-/1 NO IFS, ANDS OR BUTS .....................................................................................
‘Can I get you to do three things with this envelope?’
-/ ‘PICK IT UP WITH YOUR LEFT HAND ................., FOLD THE ENVELOPE
IN HALF ................., and PUT THE ENVELOPE ON THE FLOOR’.................
‘Can you read what’s written on the envelope and do what it says?’
-/1 ‘CLOSE YOUR EYES’ (Written in large letters)
‘Can you write a sentence for me on the back?’
-/1 SENTENCE (should contain subject and object and make sense)
Orientation
‘Can you put your address on the envelope?
-/5 NUMBER ..........., STREET ..........., SUBURB/CITY ..........., STATE ..........., COUNTRY ...........
‘Can you put today’s date on the back?’
-/5 DATE ................., MONTH ................., YEAR ................., DAY ................., SEASON ..................
Visuospatial skills
‘Can you make a copy of this figure for me?’
-/1
-/30 Total Score: Probable cognitive impairment <24
Definite cognitive impairment <17

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Chapter 27: Comprehensive Geriatric Assessment 261
Table 27.15  Functional geriatric screening instrument
Assessment Procedure Abnormal Action
Do you have difficulty with eyesight? Yes Refer
Jaeger Card or Snellen chart Can’t read 20/40
Test each eye (with glasses)
Whisper short sentence form 6–12 inches (out if view) Unable to hear Cerumen check
or audiometry Refer
“Touch the back of your head with your hands” Unable to do either Further examination
“Pick up the pencil” Consider occupational
therapy?
“Rise from your chair (do not use arms to get up), Observed problems, or Formal balance and gait
walk 10 feet, walk back to the chair, and sit down” unable to perform in <15 evaluation; further exami­
seconds nation; home evaluation
and physical therapy
“Have you had any falls in the last year?” “Do you Yes Formal balance and gait
have trouble with stairs, lighting, bathroom or other Yes to any evaluation
home hazards?” Home evaluation, physical
therapy
Body mass index <21 or weight loss exceeding 5% Yes to either Nutrition evaluation
“Do you have a problem with urine leaks or Yes Incontinence evaluation
accidents?”
“Over the past month, have you often been bothered Yes to either Geriatric Depression
by feeling sad, depressed, or hopeless?” Scale or other depression
“During the last month, have you often been bothered assessment
by little interest or pleasure in doing things?”
Name Three objects: ask again in three 3 minutes Unable to recall Mini-Mental State
Examination
Do you have problems with any of the following areas? Who assists? Do you use devices to help you? (For
“yes” answers, consider referral to occupational therapy, physical therapy, social services)
– Strenuous activities (e.g. fast walking, bicycling) –  Transferring out of bed
– Cooking – Dressing
– Shopping –  Using the toilet
– Heavy housework (e.g. washing windows) – Walking
–  Doing laundry –  Bathing (sponge bath, tub, shower)
–  Transportation by driving or bus
–  Managing finances

perform basic, personal activities of daily life: (e.g. banking, paying bills, financial affairs),
Dressing, Eating, Ambulating (i.e. all forms of Food Preparation (e.g. cooking), Transport
mobility: bed mobility; transfers, e.g. bed to (e.g. by bus, taxi, own car).
chair, chair to toilet, and bathroom; walking 3. Information about function can be used
with or without assisted device on level to determine the need for therapeutic
ground and climbing steps or stairs; balance; interventions and need for support. In
wheel chair movements), Toileting, Hygiene general, many persons who need help
(e.g. bath, grooming) with ADL can live at house with caregivers,
2. Instrumental Activities of Daily Life while those who need help with IADL may
(IADL)—(mnemonic “SHAFT”): These need placement in institutions.
include patient’s ability to perform more The simple functional geriatric screening
complex task required for independent (Table 27.15) developed by Lachs and Moore27,
living, the instrumental activities of daily in addition to ADL and IADL evaluation, also
living: Shopping, House work, Accounting looks for evidence of health problems that

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262  Section 6: Geriatric Health
affect functions; sensory impairment, limited The early elicitation of a patient’s preferences
upper extremity range of motion, mobility, and values can often help both physicians and
falls, weight loss, incontinence, depressed families to set priorities, deciding what specific
mood and cognitive impairment. evaluations and therapies are most likely to
Through such an assessment, asymptomatic provide benefit, taking into considerations
illness may be detected and a health maintenance other aspects like life expectancy, the status
programme planned. A problem list (as in the of the specific disease, and effectiveness of
Weed’s system of records) and diagnosis can be therapeutic interventions.
formulated. Rationale therapy can be instituted.
Referral to the institutions, physiotherapists, Conclusion
medical social workers and nursing homes may
A comprehensive geriatric assessment reflects
be required.
a structured approach using standardized
Advance Directive28 protocols. It identifies clinical problems,
Many older patients have definite ideas about including disability and psychological issues.
what they want from their doctors and firm More importantly, it helps in the assessment of
attitude about screening, life prolongation, risk of preventable disorders and adverse events.
willingness to undergo medical testing and Thus, in comprehensive geriatric assessment,
use of medications or invasive procedures. the physician endeavors to see not just the
Knowing about such values and goals early isolated problem, but also how the older person’s
helps the physician to focus on suitable problem fits in to the larger context of their life.
management strategies.29 Besides working with the existing
If an “advance directive”, i.e.—“a written community service staff, the physician needs
document, completed by a competent person, to develop multidisciplinary care plan for an
that aims to guide health care decisions in the integrated approach with other services and
event that the person should become unable to health professionals for optimum care and
communicate medical preferences or participate improved quality of life.
in medical decision making” - has been executed, Improving geriatric education in family
it should be documented in the medical records practice residencies will require greater
and the physician should proceed accordingly. emphasis on faculty development and
On many occasions, documented written integration of geriatric principles throughout
evidence is not available30, but “instructions family practice residency education.
directives”, indicating the type of treatment or
the treatment interventions that the person References
would want in various clinical situations, made
1. Darryl Wieland, et al. Comprehensive Geriatric
either informally, through oral instructions Assessment. Cancer Control. 2003;10(6).
given to family members, friends, caregivers, Web site - http://www.medscape.com/
or formally in a written “living will” is available. viewarticle/465308_4.
Another type of advance directive is 2. Stuck AE. Multidimensional geriatric assessment
“surrogate or proxy directive”, in which the in the acute hospital and ambulatory practice.
person authorizes someone who takes health Schweiz Med Wochenschr, 1997;127(43):1781–8.
care decisions on his/her behalf if he/she [PMID: 9446195: Abstract].
becomes unable to do so. 3. Comprehensive geriatric assessment. Wieland W
Besides oral and written documents, audio and Hirth V. Cancer Control, 2003;10(6):454–62
taped, video taped discussions of person’s 4. Forciea MA et al. Geriatric Secrets. Jaypee Bros.
advanced directives are in force.31 Medical Publishers. 1st Ind Ed. 231–34.

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Chapter 27: Comprehensive Geriatric Assessment 263
5. Tryon AF, et al. Use of comprehensive geriatric review of the evidence. Am J Psychiatry, 2002;
assessment techniques by community 159(6):909–16. [PMID: 12042175: Abstract].
physicians.Fam Med, 1992;24(6):453–6. [PMID: 18. Norman DC. Fever in the elderly. Clin Infect
1397816: Abstract]. Dis, 2000;31(1):148–51. Epub 2000. [PMID:
6. Ellis G, et al. Comprehensive geriatric assessment 10913413: Free article].
for older hospital patients. Br Med Bull, 2005;71: 19. Walling A. D.et al. Hearing loss in older adults.
45–59. Print 2004. [PMID: 15684245: Abstract]. Am Fam Physician, 2012;85(12):1150–6.
7. Inouye SK, et al. Geriatric syndromes: clinical, [PMID: 22962895: Abstract].
research, and policy implications of a core 20. Mary E.T. Preventing falls in elderly persons.
geriatric concept. J Am Geriatr Soc, 2007; 55(5): NEJM, 348, 1;2003.
780–91. [PMID: 17493201: Free PMC Article]. 21. Runge M. Diagnosis of the risk of accidental falls
8. Cravens DD, et al. Home-based comprehensive in the elderly. Ther Umsch, 2002;59(7):351–8.
assessment of rural elderly persons: the CARE [PMID: 12185951: Abstract].
project.J Rural Health, 2005 Fall;21(4):322–8. 22. Bree Johnston et al. Geriatric Disorders. In:
[PMID: 16294655: Abstract]. Stephen J (Ed.). Current Med Diag and Treat
9. Epstein AM, et al. The emergence of geriatric 48th edn. 2009;64.
assessment units. The “new technology of 23. Flanagan PG, et al. The evaluation of screening
geriatrics”. Ann Intern Med, 1987;106(2):299– tests in a Geriatric Day Hospital Assessment
303. [PMID: 3800188: Abstract]. Clinic. Irish Journal of Medical Science,
10. Chiang L. The geriatrics imperative: meeting 1988;157(5):142–5.
the need for physicians trained in geriatric 24. Colgan J, et al. The routine use of investigations
medicine. JAMA, 1998;279(13):1036–7. [PMID: in elderly psychiatric patients. Age Ageing.
9533508:Free Article]. 1985;14(3):163–7.
11. Gazewood JD, et al. Geriatrics in family 25. Colledge NR. Frail older people. In: Haslett
practice residency education: an unmet C. et al. Davidson’s Prin. And Pract. Of Med.
challenge. Fam Med, 2003;35(1):30–4. [PMID: Churchill Livingstone 19th edn. 240–41.
12564861: Abstract]. 26. John Murtagh. General Practice. McGraw Hill
12. English SK, et al. Creating a geriatric medicine Book Co. Sydney 1996:47.
fellowship program in 10 “easy” steps. J Am 27. Lyons WL, et al. Geriatric Medicine. In: Tierney
Geriatr Soc, 2011;59(10):1934–40. doi: 10. LM Jr. Current Med Diag & Treat 14th edn.,
1111/j.1532-5415.2011.03554.x. Epub 2011 Aug 2001;49.
8. [PMID: 21824121: Abstract]. 28. Web sites: http://www.direct.gov.uk/en/
13. Ms. Fillion Lois. Geriatric Emergency Manage­ G overnmentcitizensandr ights/D eath/
ment: Are We Prepared to Provide Quality Patient Preparation/DG_10029683
Care in the Emergency Department? December http://depts.washington.edu/bioethx/topics/
1997. advdir.html
14. Webb TP, et al. Geriatrics for surgeons: infusing h t t p : / / w w w . a m e r i c a n g e r i a t r i c s . o r g /
life into an aging subject. J Surg Educ, 2008; education/forum/advance.shtml
65(2):91–4. [PMID: 18439526: Abstract]. 29. Gross. What do patients express as their
15. Tandeter H, et al. Teaching geriatric assessment preferences in advance directives? Arch of Int
in home visits: the family physician/geriatri­ Med, 158 (Issue:4):363–365
cian attachment.Teach Learn Med, 2003 Spring; 30. Doorenbos, Ardith Z., Nies, Mary A. The Use
15(2):123–6. [PMID: 12708070: Abstract]. of Advance Directives in a Population of Asian
16. For more details about “Home Safety Checklist Indian Hindus Transcult Nurs, 2003;14:17–24
for Older Consumers”, please visit - http:// 31. Elisabeth A. et al. Impact of Advance Directive
www.nachi.org/elderlysafety.htm Videotape on Patient Comprehension and
17. Luoma JB, et al. Contact with mental health Treatment Preferences. Arch Fam Med, 1996;
and primary care providers before suicide: a 5(4):207–12.

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Management of

28 Common Geriatric
Problems

“When a 100-year-old man finishes a marathon*, as happened last year, we have to rethink conventional
definitions of what it means to be ‘old’.
Margaret Chan, Director General of the WHO,
World Health Day 2012, 03 April 2012, Geneva.
“We cannot heal the old age, but let us protect it, promote it and prolong it.”
Sir J Ross.

The “Age Wave” and long-term care, prevention of disease, and


other activities, WHO, in April 1995, launched
Aging of the population is one of the most
a program on “aging and health”, with the
important developments that took place at the
theme of promoting “healthy aging”. Further, to
turn of the 20th and 21th centuries. Longevity
underscore the importance of aging and health,
has increased due to significant progress in
the WHO on its World Health Day 2012, focused
medical technology, which has contributed in
its theme as “Good health adds life to years”.
promoting and extending survival rates from
several life-threatening diseases. The growing evidence substantiates the fact
The World Health Organization (WHO) that health promotion and preventive health
designated the year 1999 as the “International approaches are effective in improving overall
Year of the Older Persons” (IYOP), and to health and well-being, reducing the burden of
underline this aspect, the theme of the World chronic disease and injury. Thus, investing in
Health Day 1999, in the IYOP was designated health and its promotion throughout the life
as “active aging makes the difference”, span is the one of the holistic ways to ensure that
emphasizing thereby the importance of more people will reach old age in good health
continued participation in social, economic, and will be capable of contributing to the society
cultural, spiritual and civic affairs, and not intellectually, spiritually, and physically.
just the ability to remain physically active or However, the magnitude of healthcare
to participate in the labor force. delivery to the elderly are so extensive that “the
In response to these public health challenges whole world resources have to be geared up
posed by the aging and the aged population towards meeting their challenges”1 of keeping
in the areas of health services, rehabilitation the elderly diseases free, productive and self-

*100-year-old Fauja Singh, a British citizen who was born in India in April 1911, “The Turbaned Tornado,”
as he’s been nicknamed, finished Toronto’s waterfront marathon Sunday evening (Sun, Oct 16, 2011), in
8 hours, 11 minutes and 5.9 seconds, securing his place as the oldest person—and the first centenarian—to
ever accomplish a run of that distance.

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Chapter 28: Management of Common Geriatric Problems 265

sufficient. Recently, numerous developed Geriatric Care and Family Physician


countries have started to develop long-term care
In advanced countries, approximately one-half
service programs to the elderly that will both
of the ambulatory primary care for adults older
meet the rising needs for this service and be cost-
than 65 years is provided by family physicians.7
effective. The WHO in its “Active aging” series
In India, about 75% of the elderly reside
states, “In order to prepare for unprecedented
in rural areas. At present, most of the geriatric
population aging now, it is of utmost importance
outpatient department services are available
that health systems in developing countries are
at tertiary care hospitals. Also, most of the
prepared to address the consequences of these
government facilities such as day care centers,
demographic trends”, and launched “toward
old age residential homes, and counseling
age friendly primary health care” project, with
and recreational facilities are urban based.
an aim to sensitize and educate primary health
Factors such as a lack of transport facilities
care providers about the specific needs of their
and dependency on somebody to accompany
older clients.2
an elderly person to the health care facility
impede them from accessing the available
Paucity of Geriatric Care health services. Therefore, for timely and
Although, living longer is a true privilege, care proper treatment, peripheral health workers
for the graying population, suffering from and community health volunteers should
chronic and disabling diseases will impose also be trained to identify and refer elderly
enormous challenges to healthcare systems patients. Further, to ensure good quality
and geriatric education.3 geriatric healthcare services at the primary
Reuben et al4 pointed out that the rapid level, and to improve the outcomes of geriatric
growth of the older population in the next ambulatory care, it is prudent that geriatric
40 years (as baby boomers age*) would have a healthcare services be made a part of the
dramatic impact on the number of physicians primary healthcare services.8 This calls for
needed. Further, the marked increase in the specialized training of primary health care
elderly population expected over the next professionals. The defining features of
few decades will place a heavy strain on the primary care (i.e. continuity, coordination,
current healthcare system. The Institute of and comprehensiveness) are well suited to the
Medicine has noted challenges related to the care of chronic illness.
preparation of a geriatric workforce due to Family practice residents need to be prepared
lack of faculty, inconsistent curricula, and few to take care of the geriatric population. To
training opportunities.5 accomplish this task, Li I et al9 suggest, “Faculty
Many studies conclude that despite a development to enhance the number of faculties
rapidly aging population, a tremendous who can teach geriatrics and broadening the
shortage now exists of faculty with interest and exposure of residents to the elderly in a variety
expertise in geriatrics. The persistent difficulty of settings will be important to ensure that future
in finding physicians who are interested generations of family physicians are adequately
in geriatrics suggests that the number of equipped to care for the geriatric population”.
physician geriatricians will probably remain This shortage presents an opportunity for
lower than optimal.6 the family physicians to once again fulfill its

*Although, an official definition of the” baby boom” does not exist, consensus describes a period of
increased birthrates lasting from 1946 to about 1965 as the baby boom.

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266  Section 6: Geriatric Health
mission of providing care to a population that is depression, dementia, malignancy, etc. An
underserved.10 A rapidly growing body of health unfortunate consequence of multiple diseases
service research points to the design of the is that the symptoms and signs of a new disease
care system, not the specialty of the physician, may be wrongly attributed to the old disease
as the primary determinant of chronic care already diagnosed.
quality.11 In a recent study conducted by Moore When dealing with younger patients, it is
A et al,12 substantiated the fact that a core family customary to try to explain every symptom,
health team, compromising a family physician, sign and abnormal laboratory finding in terms
nurse practitioner, registered practical nurse, of a single pathological process. This approach
and a visiting geriatrician, is ideally positioned is completely inappropriate in the old.
to deliver shared care for the frail elderly, its In the elderly patients, disturbance of
outcome being a short referral time and easy the function in one system is commonly
access, which might allow seniors to remain in associated with adverse effects on other
their environment of choice. Therefore, the role organs. Further diagnosis may be delayed or
of trained and certified family physicians in the missed due to complicating factors, such as
health care management of the elderly cannot iatrogenic illness caused by side-effects of the
be overemphasized. drugs and polypharmacy. In old people, one
has to be more careful to ascribe symptoms
Atypical Symptoms (Table 28.1) to a single disease condition without looking
A striking feature of disease in the elderly is that for other possible causes for the symptoms
it is very often multiple. Once people are in their and for hidden complicating factors like
60s and 70s, they commonly show evidence of hypothyroidism and malignancy.
several different pathological processes like Some characteristic features which generally
diabetes, hypertension, metabolic syndromes, lead to atypical presentations of illness, causing
delay or missed diagnosis in the elderly include:
Table 28:1  Characteristics of disease in old age ™™ The aliments are usually insidious in
• Non-specific presentation of disease: Typical origin, gradually progressive, long drawn,
signs and symptoms may be absent. Perception irremediable and natural
of pain is altered. (e.g. MI without chest pain. The ™™ They have limited intellectual, functional
pyretic response is blunted so that infection may
not be obvious at first (e.g. chest infection without reserve and impaired reserves
cough or sputum) ™™ Their lifestyle is altered
• Multiple pathologies: One problem may have ™™ They are accident-prone
several causes. (e.g. fall and unsteadiness
because of osteoarthritis, poor vision and postural ™™ They are more vulnerable to environmental,
hypotension).Treating one alone may do little pathologic or pharmacological insults.
good; treating all may be of much benefit Therefore, a better understanding of the
• Late presentation of illness: Many elderly accept
ill health as a consequence of aging and thus processes through which elderly individuals
may tolerate symptoms for lengthy periods before perceive, evaluate, and act on symptoms
seeking medical advice will enable physicians to respond more
• Rapid deterioration can occur if disease is
untreated. Complications are common
appropriately to the rational management of
• More time is required for recovery the older patients.
• Impaired metabolism and excretion of drugs. Dose
may need lowering
• Social support, e.g. relations with family, friends Physician’s Role
and neighbors; physical, emotional and financial Family physicians or primary care physicians
aids are central in aiding recovery and return
usually initiate an assessment in their offices

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Chapter 28: Management of Common Geriatric Problems 267
and inpatient units. Nevertheless, most Table 28.2  The four stage ‘geriatric process’
geriatric assessments, performed under
• Assessment:
the constraints of time tend to be less –– Assessment of health: By core geriatric team;
comprehensive. ‘getting to know’ the patient as an individual;
Whereas the standard medical evaluation to build mutual trust and friendship
–– Assessment of function: In particular ‘activities
works reasonably well in most other patients, of daily living
it tends to miss some of the most prevalent –– Assessment of mental function: By using “abbre­
problems faced by the elder patient - often viated mental test score’ or “Folstein mini-mental
examination’; and ‘geriatric depression scale’
referred to as the “Five I’s of Geriatrics”, –– Assessment of cultural, educational back­
namely, intellectual impairment, immobility, ground; protection of patients’ autonomy;
instability, incontinence and iatrogenic involvement of family in planning care
disorders. • Agree objectives of care:
–– What does the patient want and what is
It’s not uncommon for elderly patients
feasible: A dialogue and negotiation between
to have multiple chronic problems and to be doctor who knows what could be effectively
taking multiple medications from multiple done and the patient who decides what should
doctors because of the “vague” nature of their be done
complaints. In addition to medical diseases, • Formulating a management plan:
psychological, social, cognitive, and functional –– Using therapeutic and prosthetic interventions.
issues influence the health of older persons. • Regular review:
Ideally, under these circumstances, –– Regular review of patient’s progress; conduc­
ting multiprofessional meetings; reha­bilitation;
an interdisciplinary team—representing review needs of family and other members;
medicine, psychiatry, social work, nutrition, implementation of altered plans.
physical and occupational therapy and others
Source: Evans JG. Medicine in old age. In: Warrell DA et al.
performs a detailed assessment, analyzes the Editors. Oxford TB of Medicine, 4th ed. Vol. III: 1388.
information, devises an intervention strategy,
initiates treatment, and follow-up on the care needs, the fact is that in today’s expanding
patient’s progress. but fragmented healthcare system, family
Taking cognizance of the distinct recognized physicians simply can’t meet expectations
needs of the elderly, geriatric assessment which without drafting other members to join the
is sufficiently flexible in scope and adaptable practice team. As stressed earlier, a core family
in content to serve a wide range of patients has health team, compromising a family physician,
been developed (Table 28.2), which utilizes nurse practitioner, registered practical nurse,
specific tools to help determine patient’s status and a visiting geriatrician, is ideally positioned
across several different dimensions, including to deliver shared care for the elderly. Team-
assessment of medical, cognitive, affective, based care at its best should offer a better
social, economic, environmental, spiritual, and patient experience, improved patient health
functional status. Family physicians can improve and reduced healthcare costs.
the care that they provide for their older patients With the above caveat in mind, the
by using the following organized approach to the following points are useful in providing
varied aspects of geriatric health. appropriate interventions and improve quality
Although family physicians in practice of life for geriatric patients:
today feel overworked and overwhelmed by an ™™ Family physicians must do a comprehensive
influx of elderly patients with complex health geriatric assessment* (physical, mental and

*Ref. Table 27-1, Chapter 27.

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268  Section 6: Geriatric Health
socioeconomic) of their patients with social Dementia, depression, and delirium: They may
attention to the problems of the elderly occur individually or may co-exist. Dementia
™™ They must diagnose and treat various is an acquired, persistent and progressive
systemic and mental diseases, with special impairment in intellectual function, with
emphasize on atypical presentations of compromise of memory and at least one other
illness in the elderly cognitive domain.
™™ They must provide psychological support Suitable office procedures, such as “Criteria
™™ They must help in accident prevention and for Dementia” (Table 28.3) and models like
guide in lifestyle and diet management “Mini Mental State examination”* are available
™™ They must encourage domiciliary treatment for initial screening of dementia.
™™ Medicines must be cost effective
Table 28.3  DSM-IV criteria for the diagnosis of
™™ They must educate patients and their dementia of the Alzheimer’s type
family members the disease process and
its clinical course A. The development of multiple cognitive deficits
manifested by both:
™™ They must be able to organize inter­ 1. Memory impairment (impaired ability to learn
disciplinary care and be a part of a critical new information or to recall previously learned
care team. information)
2. One or more of the following cognitive
disturbances:
Major Manifestations of Common a.  Aphasia (language disturbance)
Geriatric Problems b. Apraxia (impaired ability to carry out motor
activities despite intact motor function)
Neuropsychiatric Problems c. Agnosia (failure to recognize or identify
Confusion and forgetfulness: Although, aging objects despite intact sensory function)
is normally associated with some decline in d. Disturbance in executive functioning (i.e.
planning, organizing, sequencing, abstracting)
specific areas of cognitive performance (termed B. The cognitive deficits in criteria A1 and A2 each
commonly as benign senile forgetfulness), the cause significant impairment in social or occupational
elders normally retain near-full capacity functioning and represent a significant decline from
a previous level of functioning.
to learn and remember new information,
C. The course is characterized by gradual onset and
perform problem-solving and communicate. continuing cognitive decline.
The elderly may have deficient short-term D. The cognitive deficits in Criteria A1 and A2 are not
memory, i.e. they may completely forget what due to any of the following:
1. O ther central nervous system conditions
happened yesterday or a few hours back; but that cause progressive deficits in memory
long-term memory, i.e. events which occurred and cognition (e.g. cerebrovascular disease,
years or decades ago is retained. Therefore, Parkinson’s disease, Huntington’s disease,
confusion and disorientation, i.e. a pattern of subdural hematoma, normal -pressure
hydrocephalus, brain tumor)
memory loss that interferes with the elder’s 2. Systemic conditions that are known to cause
capacity to perform daily activities, are not a dementia (e.g. hypothyroidism, vitamin B
normal aging phenomenon. They are almost or folic acid deficiency, niacin deficiency,
hypercalcemia, neurosyphilis, HIV infection)
always manifestations of pathological process
3.  Substance-induced conditions
(e.g. cerebral hypoxia due to congestive cardiac E. The deficits do not occur exclusively during the
failure, myocardial infraction, or metabolic course of a delirium.
disturbances), and some of them may even F. The disturbance is not better accounted for by
another Axis I disorder (e.g. Major depressive
manifest as medical emergencies (e.g. infection, episode, schizophrenia).
stroke, intoxication, or adverse drug effects).

*Ref. Chapter 27.

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Chapter 28: Management of Common Geriatric Problems 269

A large majority of patients with dementia It’s very important for family physicians
have Alzheimer’s disease, which presents early to recognize depression early and offer
with problems in memory and visuospatial therapy, because suicide, the most dreaded
abilities (e.g. becoming lost in familiar complication of depression has its highest
surroundings, inability to copy a geometric risk in the geriatric age group. 14 However,
design on paper). Personality and behavioral despite the high epidemiological relevance of
changes usually develop later. depressive disorders in daily clinical practice,
Depression: 13 Although, depression is a they are insufficiently diagnosed. Older
common problem in older adults, it is often adults often do not directly or spontaneously
undetected, undiagnosed, untreated, or report thoughts of suicide, which can impede
undertreated. suicide prevention efforts. Therefore, the
Risk factors for developing depression use of additional approaches to suicide risk
after age 65 years are similar to those in detection is needed, including the use of
younger individuals and include being female, screening tools. Therefore, for initial screening
unmarried and poor, having chronic physical for depression, the US. Preventive Services
illness, social isolation, a history or family Task Force has proposed simple “two-question
history of depression. screen” aiming at finding depressive core
Additional risk factors that are particularly symptoms, which consists of asking “Over the
important in older adults include loss and grief, past 2 weeks, have you felt down, depressed,
loneliness and care-taking responsibilities. or helpless?”, and “Over the past 2 weeks, have
Other risk factors that increase the likelihood you felt little interest or pleasure in doing
of depression in the medically-ill elderly things?” The two screening questions showed
include presence of cognitive impairment, a sensitivity and specificity of 97%.15 Positive
age greater than 75 years, poor social support, response can be followed up with more
active alcohol abuse and lower educational comprehensive interviews, such as “Geriatric
attainment. depression scale” (Table 28.4).
Geriatric patients with depression are more Delirium:* It’s an acute confusional state—a
likely to have somatic complaints (e.g. fatigue, syndrome which typically develops over a
anorexia, body aches and pains), less likely short time, becoming clinically apparent over
to report depressed mood, and more likely to a few minutes, hours, or days, with the level
experience delusions (e.g. thoughts such as, “I of consciousness, cognition, and perpetual
am going to die”, “world is ending”) than younger disturbances such as space or size distortion or
patients. Other common feelings and expressions confusion tending to fluctuate (Table 28.5). It is
are “I am not needed”, “nobody needs me,” or “I often the only apparent clinical manifestations
feel I am just in everyone’s way.” Such utterance of a serious illness. For example—myocardial
may indicate a patient’s loss of self-worth or infarction or pulmonary embolus in elderly
sense of loneliness. In addition, depression may present initially with confusion in the
may be an early symptom of neurodegenerative absence of chest pain or dyspnea. Similarly,
condition, such as Parkinson’s disease, multiple abdominal catastrophes like bowel infarction,
sclerosis, or dementia. perforation, peritonitis may be heralded by

*An aide-memoire to help remember the common causes of delirium is HIDEMAP: i.e. H – hypoxia, I –
infection, D – drugs, E – endocrine, e.g. diabetes, M – metabolic, e.g. hyper/hypocalcemia, A – alcohol,
P – psychosis.

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270  Section 6: Geriatric Health
Table 28.4  YESAVAGE Geriatric Depression Scale16 One of the most frequent causes of
(Short form)
delirium in the elderly is overmedication,
1. Are you basically satisfied with your life? (No) the use of a new drug, or the discontinuation
2. Have you dropped many of your activities and of a medication known to cause withdrawal
interests? (Yes)
symptoms. Hence, review of all the medications
3. Do you feel that your life is empty? (Yes)
4. Do you often get bored? (Yes) (Table 28.6), including OTC drugs, is a crucial
5. Are you in good spirits most of the time? (No) step in the management of delirious patient.
6. Are you afraid that something bad is going to Family physician must have a high degree
happen to you? (Yes)
of suspicion to recognize and evaluate acute
7. Do you feel happy most of the time? (No)
8. Do you often feel helpless? (Yes) confusion, or any unexplained behavioral
9. Do you prefer to stay home at night, rather than changes as possible delirium and look for
go out and do new things? (Yes) an organic cause and initiate therapy at the
10. Do you feel that you have more problems with
memory than most? (Yes)
earliest to prevent usually reversible morbidity
11. Do you feel it is wonderful to be alive now? (No) and mortality.
12. Do you feel worthless the way you are now? (Yes)
13. Do you feel full of energy? (No) Psychological Problems and Elder
14. Do you feel that your situation is hopeless? (Yes)
15. Do you think that most persons are better off than Abuse
you are? (Yes)
Psychological problems in the elderly are
Score one point for each response that matches the frequent and arise from many factors such as:
yes-or-no answer after the question ™™ Failing memory, vision and hearing, which
Scores: Normal 3 +/- 2; Mildly depressed: 7+/-3; Very cause embarrassment
depressed: 12+/-2
™™ Confinement at home due to immobility
Table 28.5 Differentiating features of delirium and
or disability
dementia
™™ Chronic unrelieved pain
Features Delirium Dementia
™™ Feeling of insecurity due to financial
Onset Acute Insidious difficulties
Course Fluctuating Progressive
Duration Days to weeks Months to ™™ Loss of self-respect and prestige
years ™™ Diseases like diabetics, hypothyroidism,
Consciousness Altered Clear parkinsonism
Attention Impaired Normal, except
™™ Drugs like opiates, benzodiazepines,
for severe
dementia corticosteroids
Psychomotor Increased or Often normal ™™ Loss of work and retirement.
changes decreased Rarely
Elders may lack the ability to put their
Reversibility Usually
feelings into words, and hence, may lack the
confusion in the very old. Even when delirium ability to seek help and to identify the problem.
is caused by less serious conditions, like mild The rapid pace of changes in the family
dehydration, medications, pneumonia, or structure, which has traditionally been the
sepsis, it can lead to significant reversible co- main support for the elderly, has also proved
morbidity and excess disability in the elderly. upsetting for them.
When the underlying cause is identified and Besides, psychological (or emotional)
properly managed, confusion and other abuse (Table 28.7),17 i.e. insulting, threatening,
cognitive disturbances associated with humiliating, intimidating, or harassing through
delirium are usually reversible and improve words or actions, ignoring the elder, giving
quality of life. silent treatment, or isolating them from family

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Chapter 28: Management of Common Geriatric Problems 271
Table.28.6  Toxic causes of delirium Table 28.8 lists questions that are helpful to
elicit a history of elder abuse.20
• Substance intoxication—Alcohol, heroin, phency­
clidine, amphetamine, cannabis, and LSD Family physicians should be aware of the
• Medication-induced delirium differential diagnosis of psychiatric disorders
–– Anticholinergics (e.g. tricyclic antidepressants)
–– Antihistamines (e.g. diphenhydramine)
in the elderly and not simply label patients as
–– Narcotics (e.g. opioids, meperidine) `senile’. The elderly are subject to acute brain
–– Sedative hypnotics (e.g. benzodiazepines) syndromes* caused by physical illness or drug
–– Histamine-2 (H2) blockers (e.g. cimetidine)
toxicity. When acute brain syndromes are
–– Corticosteroids
–– Centrally acting antihypertensives (e.g. excluded, the illness is likely to be a functional
methyldopa, reserpine) one—the most common functional illness
–– Anti-Parkinson drugs (e.g. levodopa) in old age is depression or a chronic organic
• Substance withdrawal from alcohol, opioids, and
benzodiazepines brain syndrome due to degenerative disease,
nutritional deficiencies, endocrine disorders,
Table 28.7  Types of elder abuse or neoplasms.
Family physicians, besides initiating
• Physical Abuse: Inflicting, or threatening to inflict,
physical pain or injury on a vulnerable elder, or
therapy and referral to other members of the
depriving them of a basic need. team, can try to arrange activities to boost the
• Emotional Abuse: Inflicting mental pain, anguish, patient’s morale and self-confidence.
or distress on an elder person through verbal or
nonverbal acts. The benefit of an empathetic therapist
• Sexual Abuse: Non-consensual sexual contact can do much to supplement anti-depressant
of any kind. medication with careful and regular monitoring,
• Exploitation: Illegal taking, misuse, or concealment
of funds, property, or assets of a vulnerable elder. and helping the elder to find ways to manage
• Neglect: Refusal or failure by those responsible to many of the psychological problems of growing
provide food, shelter, health care or protection for older. Charitable clubs, religious organizations,
a vulnerable elder.
• Abandonment: The desertion of a vulnerable elder
developing a secondary career and hobbies
by anyone who has assumed the responsibility for are very helpful areas for family physicians to
care or custody of that person. counsel elderly for gainful involvement.
• Self-neglect: An inability to understand the
consequences of ones own action or inaction, which
leads to or may lead to harm or endangerment. Cardiovascular Problems
The prevalence of cardiovascular diseases in
members, friends, or their regular activities, the elderly population has increased due to
cause mental or emotional pain, distress, increase in the worldwide aging population,
suffering, or anguish; and its incidence is on and the aged population itself becoming older
the rise in the elderly population.18,19 This may with more people surviving to advanced ages.
be unknowingly or purposely done by family Presentations of cardiac illness often differ
members or any person that is caring for an from those in a younger population. Most of
elder. These factors frequently result in social the available data on therapy and prognosis
withdrawal, loss of emotional support, feelings do not apply to contemporary practice, so that
of loneliness and neglect, anxiety, depression, clinical decisions are often extrapolated from
and at times a tendency towards suicide. information acquired in younger patients.

*Any disorder of cognition that cause decreased mental functioning (such as problems with attention,
concentration, thinking, judgment, emotional liability) caused by permanent or temporary brain
dysfunction and characterized especially by dementia.

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272  Section 6: Geriatric Health
Table 28.8  Questions to elicit history of elder abuse Table 28.9  Common age related changes associated
with cardiovascular disease
1.  Has anyone ever hurt you?
2.  Has anyone ever touched you without permission? Age-Related Changes Cardiovascular Disease
3. Has anyone ever made you do things you didn’t • Decreased heart rate • Sinus pauses
want you to do? response • Second and third
4. H as anyone taken anything of yours without • Longer P-R intervals Degree AV block
asking? • Right bundle branch • Left bundle branch
5.  Has anyone ever scolded or threatened you? block block
6. Have you ever signed any paper that you didn’t • Increased atrial • Atrial fibrillation
understand? ectopy • Sustained ventricular
7. Is there anyone at home you are fearful of? • Increased ventricular tachycardia
8.  Are you alone much? ectopy • Decreased systolic
9. Has anyone refused to help you to take care of • Altered diastolic Function (i.e. ejection
yourself when you needed help? function fraction)
• Aortic sclerosis • Aortic stenosis,
• Annular mitral Aortic regurgitation
Clinical evaluation of elderly patients calcification • Mitral regurgitation
is often hampered by multiple co-existing
diseases involving other organ systems,
problems in reporting symptoms, and Table 28.10 Common cardiovascular diseases in
associated functional and structural changes of elderly
aging that may mimic or mask cardiovascular • Isolated systolic hypertension
disease. • Orthostatic hypotension
With advancing age, the heart undergoes • Congestive heart failure
• Aortic stenosis
subtle physiologic changes, but the rate of • Mitral annular calcification
this change or decline in cardiovascular • Heart block
function varies greatly among individuals. • Sick sinus syndrome
• Atrial fibrillation
In an otherwise healthy person, the decline • Stroke
is not likely to be of great importance, but
in the elderly, with increasing incidence of
cardiovascular diseases, these age-related Hypertension is more common with
changes (Table 28.9) 21 may compound advancing age, and so are its associated
the problem or its treatment. However, it complications. Therefore, family physicians
is important to differentiate the cardiac must maintain the blood pressure record
manifestations of normal aging (Table 28.10) (Table 28.11). The benefits of prompt treatment
from cardiac disease in the older patient. of both isolated systolic hypertension and
Atherosclerotic coronary heart disease is the combined systolic and diastolic hypertension
most prevalent problem, followed by hypertensive in elderly have now been well documented.
cardiovascular disease. Calcific aortic stenosis is Treatment reduces the risk of transient
the most common hemodynamically important ischemic attack, stroke, angina, myocardial
valvular lesion; surgical correction significantly infarction, and also reduces the risk of vascular
improves the prognosis. Pulmonary embolism dementia and Alzheimer’s disease.
occurs frequently, related to immobilization and Cardiac risk factors like lipid abnormalities,
co-morbidity. Congestive heart failure is both obesity, diabetes, tobacco smoking, and life
under-diagnosed and over-diagnosed. Complete style should be assessed and interventions
heart block and sick sinus syndrome increase initiated. Basic ECG should be recorded and
with age; appropriate pacemaker therapy can exercise ECG done with proper precautions
improve the length and quality of life. in selected patients.

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Chapter 28: Management of Common Geriatric Problems 273
Table 28.11  American College of Cardiology gases, impaired diffusion of oxygen, and tissue
Foundation/American Heart Association consensus
hypoxia. The resultant impaired ventilation,
document for evaluating hypertension in older patients
decreased maximal breathing capacity, vital
• Take at least three different blood pressure capacity, residual volume, and functional
measurements on two different office visits
• Two of those measurements should be obtained
capacity (i.e. senile emphysema) leads to
after the patient has been seated comfortably for reduced ability to cough, increased susceptibility
at least 5 minutes with the back supported, feet on to infections such as a cold or pneumonia.
the floor, and arm supported in horizontal position,
Accumulation of toxic substances over time such
with the blood pressure cuff at heart level
• Take a blood pressure measurement with the as cigarette smoke or environmental pollutants
patient standing for 1–3 minutes, particularly after may give rise to chronic bronchitis, emphysema,
a meal, to evaluate for postural hypotension or COPD, bronchogenic carcinoma and interstitial
hypertension
• The older the patient, the more likely that PAD is lung disease.
present, so it is important to take an ankle brachial Associated decreased immune system
index (ABI). Diagnose PAD if the ABI is less than functions, decreased resistance to disease,
0.90 or 1.4 and higher
• Target systolic blood pressure is =140/90 mm Hg
infection, slowed response to inflammation,
in patients aged 55–79 years; a systolic blood and associated co-morbid chronic diseases
pressure of 140–145 mm Hg, if tolerated, can be may decrease the efficiency of the respiratory
acceptable for those older than 80
system even more severely. Thus, the elderly
*Website—http://content.onlinejacc.org/article. readily get infected because of reduced
aspx?articleid=1146473 tolerance, lowered vital capacity, and pollution
Smoking cessation, regular physical activity and co-existing systemic diseases like diabetes.
and healthy diet are, as in younger individuals, The elderly are less tolerant to extremes
appropriate and effective measures for of temperature and high altitudes. Absence
preventing cardiovascular events in the elderly. of signs of inflammation like fever may not
be obvious in elderly even in the presence of
severe infection. Even with healthy lungs the
Respiratory Problems
common age-associated morbidity of spinal
The great reserve function of the lung permits osteoporosis with loss of height profoundly
reasonable physical capacity in healthy influences lung volume, oxygenation, and
individuals despite aging changes. In principle, exercise capacity.
loss of function equivalent to more than one Neurologic conditions may affect the
lung is necessary to impair aerobic capacity swallowing mechanism, leading to aspiration
at any age. of oropharyngeal contents, which presents as
Elderly people are subject to the same signs and symptoms localized to the upper
respiratory diseases as younger adults but may airways, lung parenchyma, or as unsuspected
manifest them differently. They may present in radiographic findings. Likewise, the only
atypical ways such as in bacterial pneumonia, indicators of heart failure or esophageal reflux
tuberculosis, and asthma, all modified by disease may be reported or observed dyspnea
anatomical alterations or deterioration of or a cough.22
immunological defence mechanisms. Adverse reactions to respiratory drugs such
The normal physiological changes in the as theophylline (may contribute to insomnia);
respiratory system with advancing age include oral corticosteroids (worsening glaucoma
muscle atrophy, increased AP diameter, rigid rib control, osteoporosis, and diabetes) and beta-
cage; alveoli become thinner and bronchioles blockers (worsening asthma, COPD) increase
lose elasticity which decreases exchange of with age.

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274  Section 6: Geriatric Health
A basic work-up should include chest digestible food are to be recommended.
X-ray, peak flow rates, blood counts, and Constipation is common, but before initiating
indirect laryngoscope. Spirometry can be treatment, the patient’s views and expectation
useful in the evaluation of chronic cough, of ‘bowel normality’ must be elicited, and any
wheezing, breathlessness or chest pain. history of recent change in bowel habit must
Baseline oximetry should be performed on all be further evaluated.
dyspnoeic patients and those with abnormal Certain common drugs, like oral iron and
spirometry. Persistent hoarseness of voice, laxative overuse can lead to constipation;
hemoptysis, and cough are indicators of other drug classes that can cause constipation
tuberculosis or malignancy, requiring referral include anticholinergics, antidepressants, and
to a chest physician. anxiolytics, anti psychotics, opiate analgesics,
and antihypertensives. A diet rich in fiber
Gastrointestinal Problems (Table along with exercise and behavioral bowel
28.12) training generally helps relive constipation.
In resistant cases judicial use of mild laxatives
Metabolism is reduced, needing supplemental
may be indicated.
vitamins and minerals to prevent
Any obstruction in the gastrointestinal
malabsorption. Food selection is limited
(GI) tract must be ruled out, its commonest
because of loss of teeth or an improper fitting
cause in the elderly being fecal impaction.
denture. Small frequent meals and easily
Gastrointestinal bleeding occurs frequently
in elderly people, and aspirin, NSAIDs, and
Table 28.12 Common gastrointestinal problems in
the elderly antiplatelet therapy are associated with an
increased risk of both upper GI and lower
• Age-related changes in esophageal function:
GERD
GI bleeding this population. If there are any
–– Due to: decreased contractile amplitude; signs of malignancy anywhere in G.I. tract, e.g.
polyphasic waves; incomplete relaxation of the dysphagia, malena, lump in the abdomen, or
lower esophageal sphincter and esophageal
dilation.
a feeling of obstruction, the patient must be
• Aging-Associated Changes in Colonic Motility: referred for its evaluation.
Common disorders observed:
–– Constipation
–– Diverticular disease
Incontenance and Urogenital
–– Diarrhea Problems
–– Fecal incontinence
• Common causes of diarrhea: The age related decrease in the renal function
–– Infections leads to reduced glomerular filtration rate,
–– Drug-induced diarrhea and equations like Cockroft-Gault formula
–– Malabsorption
–– Fecal impaction to estimate creatinine clearance can mislead
–– Colonic carcinoma in extreme old age; 23 however, a formula
–– Small bowel bacterial overgrowth developed by the Modification of Diet in
–– Diabetic diarrhea
• Less common causes of diarrhea:
Renal Disease (MDRD), based on the patient’s
–– Celiac disease creatinine levels, age, sex, race and serum urea
–– Inflammatory bowel disease nitrogen and serum albumin levels, has shown
–– Thyrotoxicosis
to be more accurate.24
–– Pancreatic insufficiency
–– Small bowel tumors There is decline in the bladder capacity and
–– Scleroderma with systemic manifestations loss of bladder control. The changes in the lower
–– Amyloidosis with small bowel involvement urogenital tract predispose to incontinence

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Chapter 28: Management of Common Geriatric Problems 275

in the presence of additional pathological, In the elderly , clinical presentation of


pharmacological, or physiological insults endocrine dysfunction are frequently subtle,
usually outside the urogenital tract (Table harder to detect than in younger persons and
28.13). Possible iatrogenic causes must be may be incorrectly linked with other causes,
reviewed, including diuretics, antidepressants such as normal aging, other medical disorders
and sedative drugs. Treatment of the or drug therapy.
factors precipitating incontinence such as The elderly group of people also has
infection, stool impaction, hyperglycemia, different physiological standards/ranges, and
hypercalcemia, unrecognized congestive consequently, results of their investigations
cardiac failure may restore countenance may differ from younger adults. Examples
without correcting the underlying pathology. include a lower cut off level for serum
In men, if the postvoid residual urine volume testosterone in the elderly, and varying values
is more than 150 mL. due to benign prostatic for Z scores in the diagnosis of osteoporosis.
hypertrophy, surgical intervention may Also, there is gradual elevation of the fasting
be indicated. In many instances urinary glucose level by 6–14 mg/dL per decade after
incontinence may be a problem only at night. age 50 years. It is also common for elders to
A range of incontinence pads and holders have hypoglycemia following meals, as well as
are available to the needy disabled elderly hyperglycemia caused by insulin resistance.
individuals. Treatment of endocrine disease also varies
markedly in the elderly. Doses of growth
Endocrine Problems hormone, thyroxine and insulin are relatively
Despite age-related changes, the endocrine lower in this age group. Psychosocial factors
system functions well in older people. unique to the elderly play an important role
However, some changes such as reduced in management of endocrine and metabolic
hormone production, secretion and their disorders, such as osteoporosis and diabetes,
metabolism occur because of destruction of and should be taken into consideration in the
cells during the aging process and genetically search for optimal care of such patients.
programmed cellular changes. Adult hypopituitarism, hypothyroidism,
osteoporosis, diabetes mellitus, adrenal
insufficiency, various forms of hypogonadism,
Table 28.13  Forms of urinary incontinence and endocrine malignancies are more frequent
• Acute in old age.
–– Transitory due to illness, delirium, epilepsy,
etc. Hypothyroidism: In the elderly hypothyroidism
• Established is usually of autoimmune origin, although
–– Infection previous thyroid surgery and radio-iodine
–– Functional—difficulty in getting to the toilet
–– Stress—loss of urine on coughing or straining therapy account for a less proportion. Because
–– Urge—often due to precipitate bladder of the frequent atypical symptoms such as
contractions insidious decline in health with psychiatric
–– Overflow—secondary to obstruction of bladder
outflow
manifestations, particularly depression,
–– Fistulous—e.g. vesicovaginal fistula hypothyroidism in elderly is difficult to
–– Disinhibitory—e.g. in frontal brain damage, detect clinically. Serum TSH levels should
dementia
be measured at least once in asymptomatic
Ref.—Evans J.G. Medicine in old age. In: Warrell DA et older people. Thyroid replacement therapy in
al. Eds. Oxford TB of Medicine, 4th edn. Vol. III: 1359. elderly needs cautious approach, particularly

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276  Section 6: Geriatric Health
in the presence of coronary artery disease. It is Dietary management plays less of a role
often necessary to seek the assistance of family in older diabetic patients but exercise, with a
members or visiting nurse to ensure life-long particular emphasis on balance and stability, is
treatment. an important component of the management
and treatment of older diabetic patients.
Hypothyroid coma (myxedema coma):
Although, rare in occurrence, this condition Treatment decisions are influenced by
needs prompt diagnosis to avoid potential age and life expectancy, comorbid conditions
lethal complications. It is usually precipitated and severity of the vascular complications.
by systemic infection, or failure to comply Adherence to dietary therapy, physical
with treatment. Symptoms such as mental activity, and medication regimens may be
confusion, severe headache, seizures, compromised by comorbid conditions and
hypothermia are typical presentation. Patients psychosocial limitations. Drug-induced
need to be monitored in ICU with immediate hypoglycemia has been the main consideration
intravenous  thyroid hormone replacement and the most serious potential complication.
while awaiting confirmatory test results (T4 Optimal glycemic control should be
and TSH), even if the diagnosis of myxedema possible for every patient if treatment is
coma is only probable. individualized; however, strict glycemic
control may not be achievable in all patients
Hyperthyroidism: It is less common in elderly or even desirable in many elderly patients.
than hypothyroidism. Typical eye signs,
tremor, and goiter are less common, but
atypical presentation such as weight loss, Musculoskeletal Problems
depression, atrial fibrillation, and congestive Musculoskeletal pain (Table 28.14) is a
heart failure is frequently observed. common cause of disability in the older person.
Diabetes mellitus: In the elderly, diabetes The cause (or site) of musculoskeletal pain
differs from that of young patients. Elderly can usually be determined by careful history
people are more glucose intolerant and insulin taking and physical examination leading to the
resistant than young individuals. Relatively appropriate diagnosis (Table 28.15). Although,
few present with classical symptoms such as the majority of musculoskeletal pain and
polyuria and weight loss. Many are diagnosed disorders in the elderly are self-limiting and
as a result of screening procedures for medical reversible, it’s important not to overlook ‘red
or surgical illness. flags’ for musculoskeletal pain (Table 28.16)
Depression, impaired cognitive function, Also, physicians should be cautious not
and lack of recognition of thirst and subsequent to over-interpret X-ray or similar imaging
dehydration are important factors to be taken findings (e.g. senile, postmenopausal, or
into account in the management of older diabetic disuse osteoporosis; solitary bone cysts, etc.)
patients, who may also have impaired physical as they are of normal occurrence in the elderly
function, an increased rate of injurious falls, age group and might not be the reason for the
and increased prevalence of pressure ulcers, pain.
amputations and tuberculosis. Hyperglycemia Besides pharmacotherapy, the family
can result in a decreased pain threshold leading physician must guide regarding physiotherapy,
to increased incidence of ischemic coronary exercises, correct posture, and style of walking,
events and urinary incontinence. shoes, and walking aids.

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Chapter 28: Management of Common Geriatric Problems 277
Table 28.14  Different types of musculoskeletal pain Table 28.15  Common causes of musculoskeletal
pain in the elderly
• Bone pain: Usually deep, penetrating, or dull;
commonly due to injury; important to rule out Disease Major site of pain
fracture or tumor.
Osteoarthritis Knee, hip, neck, back,
• Muscle pain: Often less intense than bone pain;
hands
commonly due to injury, an autoimmune reaction,
infection, or a tumor. The pain can also include Rheumatoid arthritis Hands, feet, knees, wrists
muscle spasms and cramps.
• Tendon and ligament pain: often caused by Osteoporosis Back
injuries, including sprains; pain often becomes
Polymyalgia rheumatic Shoulder, neck, arms
worse when the affected area is stretched or
moved. Soft tissue rheumatism Generalized aches and
• Fibromyalgia: A condition that may cause pain joint stiffness
in the muscles, tendons, or ligaments; usually in
multiple locations and can be difficult to describe; Crystal arthritis Feet, hands
usually accompanied by other symptoms such (gout, pseudo gout)
as fatigue, irritability, insomnia, headache, Lumbar/cervical Leg or arm claudicate
depression, anxiety, etc. canal stenosis pain
• Joint pain: Joint injuries and diseases usually
produce a stiff, aching, “arthritic” pain; pain may Bone pain due to Spine or site of pain
range from mild to severe and worsens when malignancy
moving the joint. The joints may also swell. Joint
inflammation (arthritis) is a common cause of pain.
• “ T u n n e l ” s y n d r o m e s : T h e s e i n c l u d e
musculoskeletal disorders that cause pain Table 28.16  Red flags for musculoskeletal pain
due to nerve compression, e.g. carpal tunnel
• Night pain
syndrome, cubital tunnel syndrome, and tarsal
• Fever
tunnel syndrome. The pain tends to spread along
• Sweats
the path supplied by the nerve and may feel like
• Neurological features
burning. These disorders are often caused by
• Previous h/o malignancy
overuse.

Falls and Balance Problems multiple disorders or risk factors can be directly
grouped into intrinsic and extrinsic factors.26
Falls* and unsteadiness are common in
older people. About one-third of people over Intrinsic factors (Table 28.17) are inherent
65 years fall each year, and the frequency to the individual and include the presence
increases markedly with advancing age. of chronic, age-related physical and mental
Furthermore, the fear of falling may lead changes, acute health problems or acute
some elders to restrict their activities, which exacerbations of disease and effects of drugs.
may lead to a form of “postfall syndrome”25, Although some of these may not be treatable,
in which the patient becomes morbidly afraid the family physician should always endeavor to
of falls, progressively more immobile, and correct or try to ameliorate as many conditions
socially isolated. as possible, thus decreasing the risk of fall
The incidence of falling in elderly is related significantly.
to the accumulated efforts of multiple factors** Extrinsic factors (Table 28.18) include
superimposed in age related changes. These environmental hazards as well as activity

*‘Fall’ can be defined as, “an involuntary event producing a change in posture resulting in the individual
adopting an unpleasant supine position”. This definition differentiates another term ‘trip’, which refers to
an event where some corrective manoeuvres result in maintenance of an erect posture.
**Ref. Chapter 27, Table 27.15.

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278  Section 6: Geriatric Health
Table 28.17  Intrinsic medical causes of falls Table 28.18 Extrinsic risk factors or environmental
home hazards
• Cardiovascular:
–– Hypotension (e.g. postural, exertional, drug- • Ground surface:
induced) –– Slippery floors
–– Syncope (e.g. cough/micturition/defecation, –– Loose carpets
carotid sinus sensitivity) –– Low-lying objects on the floor, e.g. cords
and wires
–– Cardiac arrhythmia (e.g. tachy/
–– Stairs with rags or in poor repair
bradyarrhythmia, sick sinus syndrome)
• Furniture:
–– Shock (e.g. volume depletion, myocardial
–– Clutter
infraction, congestive heart failure, pulmonary
–– Unstable or low-lying furniture
embolism, sepsis)
–– Low chairs without armrest support or seat
• Drugs:
back
–– Antihypertensives, antiarrhythmics, sedatives,
–– Beds/cabinets that are too high or too low
neuroleptics, anticonvulsants
• Lighting:
• Endocrine/metabolic: –– Absence of night lights
–– Hypoglycemia, hyperglycemia –– Glare from unshielded windows or lamps or
• Hematologic highly polished floors
–– Anemia, malignancies • Bathroom:
• Neuromuscular: –– Low toilet seats and/or no secure grab bars
–– Senile gait disorder –– Absence of nonslip surfaces
–– Transient ischemic attacks • Others:
–– Seizures –– Poorly maintained walking aids and
–– Parkinson’s disease equipment
–– Dementia –– Improper shoes (not slip-resistant, high-
–– Autonomic neuropathy or myelopathy heeled, too large)
–– Visual field defects
–– Ménière’s disease Ref. Capezuti Elizabeth. Falls. In: Geriatric Secrets.
–– Intermittent delirium (e.g. alcohol, drugs) Forciea MA, et al (Eds). editors. Jaypee Brothers Med.
Publishers, 1st edn. 1996.p.112.

related factors, such as rising from the chair assessment of a person who has sustained a
or walking. Since most falls occur in or around fall. It is, therefore, strongly recommended
the home, it will not be out of place for the that all elderly patients be asked about falls
family physician to personally visit the home or fear of falling and that they undergo a
of the elderly or depute a visiting nurse or screening test of gait and balance such as
physical therapist for an in-home evaluation of ‘get-up-and-go’** test. A more comprehensive
potential health hazards and offer suggestions multifactorial assessment (e.g. medical
such as adequacy of lightning (illumination) assessment, monitoring of drugs, assessment
in living rooms, bed room, stairs, kitchen, of physical activity and exercise, home safety
bathroom and toilet; non-skid floor; furniture checks and advice, behavior assessment and
with proper high, arm rest and back support; its modification) is indicated in elderly who
toilet seat with proper height; grab bars for have difficulties with balance and gait, or who
tub; footwear with nonskid soles. Walking aids report recurrent falls.
and other mobile accessories needed must be
provided on individual basis.* Visual Impairment
History alone, especially ‘pre’ fall condition Cataract and glaucoma (symptoms of low
of the patient, is the most vital part in the vision, loss of peripheral vision, glare from

**Ref. Chapter 27: Table 27.13

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Chapter 28: Management of Common Geriatric Problems 279

lights at night, etc.) and age related macular problems with chewing and swallowing and
degeneration (loss of central vision) are too dependent on others.
common in the elderly and need to be evaluated. Degenerative diseases such as cardio­
Systemic side-effects of eye drops, e.g. beta- vascular and cerebrovascular disease,
blocker timolol used to reduce intraocular diabetes, osteoporosis and cancer, which are
tension, causing confusion, fatigue, and among the most common diseases affecting
asthma should be looked into the elderly. older persons, are all diet-affected.
Sudden, permanent loss of vision in one eye Micronutrient deficiencies are often
should alert the physician of the possibility of common in elderly people due to a number of
giant cell arteritis requiring urgent ophthalmic factors such as their reduced food intake and
referral. a lack of variety in the foods they eat.
Patients belonging to the high-risk group,
In the elderly, both lean body mass and
e.g. diabetics, hypertension, family history of
basal metabolic rate decline, therefore, their
glaucoma, must be regularity referred to an
energy requirement per kilogram of body
ophthalmologist for evaluation.
weight is also reduced. Therefore, guidance
must be given in dietary requirements of
Hearing Problems normal elderly persons and also for those
The external ears must be examined for requiring special dietary considerations e.g.
occlusion by cerumen, which can be readily elderly with diabetes, cardiac, renal and other
treated by the family physician by careful diseases along with poor dentition, that reduce
syringing or instrumental manipulation. the patient’s nutritional status.
Middle ear diseases like acute or chronic In general, to meet the nutritional needs
ottitis media need specialist treatment so of the elderly it is essential to provide a
as to prevent tympanic perforation and its balanced diet containing carbohydrates (65%),
intra cranial complications like extradural or fats (about 25%) and proteins (about 10%),
subdural abscess and meningitis. which include adequate doses of vitamins,
Hearing loss related to aging, known minerals, antioxidants and fiber. If the family
as presbycusis, affects significant elderly physician detects any sign of nutritional
population. In such individuals, a hearing aid deficiency—e.g. protein, calorie malnutrition,
may be useful. anemia, avitaminosis, etc. the diet must be
All cases of unilateral hearing loss with modified. Increasing consumption of fruit and
tinnitus or imbalance must be carefully vegetables by one to two servings daily could
evaluated to rule out acoustic neuroma. cut cardiovascular risk significantly.
Although weight loss is seen with aging,
Nutrition recent unintentional weight loss – especially if
Older persons are particularly vulnerable it is more than 10% of one’s usual weight over a
to malnutrition. The reasons older people period of 6 months or a loss of 5% in one month
may eat too little food can be due to poverty; must alert the physician to find the underlying
disabilities or functional impairments resulting pathology. The leading causes of involuntary
in their inability to shop for groceries or cook weight loss are depression (especially in
for themselves; co-morbid chronic diseases residents of long-term care facilities), cancer
and conditions, many of which are associated (lung and gastrointestinal malignancies),
with malnutrition; too many medications; cardiac disorders and benign gastrointestinal
loss of their natural teeth contributing to diseases.

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280  Section 6: Geriatric Health
Exercises* best fit into their routines and what support is
Research shows that it’s never too late to adopt needed to overcome their sedentary lifestyles
and reap the health benefits from a more and encourage continued participation.
active lifestyle. For example, older adults who Generally, the exercise prescription for the
are active will reduce their risk of coronary elderly should emphasize low to moderate
heart disease and stroke, type 2 diabetes, intensity and low-impact activities, avoid
colon cancer, breast cancer, osteoarthritis, hip heavy static-dynamic lifting, and allow a
fracture, falls, depression and dementia. gradual progression in training. The increased
Before initiating an exercise program, older vitality, strength, flexibility, balance, and
adults should undergo a history and physical general sense of well-being that can be
examination directed at identifying cardiac achieved through this intervention will reward
risk factors, exertional signs/symptoms, and patient and physician alike.28
physical limitations.
The difference in the exercise prescription Attitudes for a Successful Geriatric
for the elderly participant is the manner in Practice29
which it is applied. Given that the elderly ™™ Consider broad-based rather than narrowly
person is more fragile and has more physical- focused interventions
medical limitations than the middle-aged
™™ Appreciate the importance of the social
participant, the intensity of the program is
factors in older people’s health and well
usually lower while the training frequency
being
and duration are increased. The mode of
training should avoid high-impact activities, ™™ Maintain an active approach in the face of
and the progression of training should be degenerative or terminal disease
more gradual. The prescribed training heart ™™ Practice patience for the time required and
rate for the elderly at 40–80% of maximal heart complexity encountered with seniors
rate reserve is slightly lower than the 50–85% ™™ Anticipate being confronted with one’s
recommended for young and middle-aged youth and inexperience
participants.27 ™™ Encourage team work with family and
There are few contraindications to aerobic other providers (shared authority)
exercise or resistance training (e.g. severe ™™ Focus on function, rehabilitation, and
orthopedic conditions, uncontrolled diabetes quality of life rather than survival
and hypertension, etc.). Even patients with
™™ Strive to anticipate the older adult’s needs
these conditions can safely exercise at low
and advocate for care
levels once appropriate evaluation and
treatment have been initiated. ™™ Approach the elderly with a “sort out”
rather than a “rule out” view of illness and
Family physician should enthusiastically
disability causality
discuss physical activity at every office visit,
including any symptoms associated with ™™ Cultivate an appreciation for cultural as
exercise, know who needs further evaluation well as physiologic diversity
before initiating an exercise program, explore ™™ Be aware of greater heterogeneity among
with patients which types of exercise would the aged; have flexibility

*Website for exercises for older people-http://www.nhs.uk/Tools/Documents/NHS_Exercises For Older


People.pdf

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Chapter 28: Management of Common Geriatric Problems 281

™™ Be willing to physically interact (touch); persons? Physician manpower needs for the 21st
give concrete health advice Century. J Am Geriatr Soc, 1993;41:444–53.
™™ Have capacity to tolerate dependency yet 5. Houde SC, et al. Caring for an aging population:
press for optimum autonomy review of policy initiatives. J Gerontol Nurs,
™™ Be able to lead as well as follow in the 2009;35(12):8–13. doi: 10.3928/00989134-
person’s care and decisions 20091103-04. Epub 2009 Dec 11. [PMID:
1992871: Abstract]
™™ Display an ongoing commitment to clinical
6. Kovner CT, et al. Who cares for older adults?
education.
Workforce implications of an aging society.
Health Aff (Millwood), 2002;21(5):78–89.
Conclusion [PMID: 12224911:Abstract].
The role of the family physicians is very 7. Xakellis GC. Who provides care to Medicare
specific and important. They have to be beneficiaries and what settings do they use? J
vigilant to detect the onset of any disease or Am Board Fam Pract, 2004;17(5):384–7. [PMID:
disability at the earliest and treat accordingly. 15355953: Free Article].
A generous dose of psychological support and 8. Ingle Gopal K, et al. Geriatric health in
paramedical advice has to be given. India: Concerns and solutions, 2008;33(Issue
Treatment requires a multifaceted and Number:4):214–8.
comprehensive approach. Geriatric treatment 9. Li I, et al. A national survey on the current
emphasizes on reducing symptoms and status of family practice residency education in
geriatric medicine. Fam Med, 2003;35(1):35–41.
improving functions rather than curing the
10. Gazewood JD et al. Geriatrics in family practice
underlying pathology, which is not always
residency education: an unmet challenge. Fam
possible.
Med, 2003;35(1):30–4.
Family physicians help the elderly to realize
11. R o t h m a n A A , e t a l . C h ro n i c i l l n e s s
that they have to learn to live with disability.
management: what is the role of primary care?
Rehabilitation has to be carefully planned and Ann Intern Med, 2003;138(3):256–61. [PMID:
implemented with the help of paramedical 12558376: Abstract].
staff. Even a partial improvement by way 12. Moore A, et al. Interprofessional and integrated
of reduction of pain and increased activity care of the elderly in a family health team. Can
means a lot between a life of abject misery with Fam Physician, 2012;58(8):e436–41. [PMID:
dependence on others and a tolerably happy 22893345. Free PMC Article].
independent existence. 13. Park M, et al. Geriatric depression in primary
care. Psychiatr Clin North Am, 2011;34(2):469–
References 87, ix-x. doi: 10.1016/j.psc.2011.02.009. [PMID:
21536169:Free PMC Article].
1. Aggrawal A, et al. The International Year of
the Older Persons. J Ind Med Assoc, 1999; 14. Abraham VJ, et al, Suicide in the elderly
97(4):117–18. in Kaniyambadi block, Tamil Nadu, South
2. World Health Organization. Towards age- India. Int J Geriat Psychiatry, 2005;20:953–5.
friendly primary health care (Active ageing doi: 10.1002/gps.1385.
series), 2004. 15. Arroll B, et al. Screening for depression
3. Michel JP, et al. Europe-wide survey of in primary care with two verbally asked
teaching in geriatric medicine. J Am Geriatr questions: cross sectional study. BMJ, 2003;327
Soc. 2008;56(8):1536–42. doi: 10.1111/j.1532- (7424):1144–6.[PMID: 14615341: Abstract].
5415.2008.01788.x.[PMID:18808600 : Abstract]. 16. Johnston CB, et al. Geriatric Disorders. In:
4. Reuben DB et al. How many physicians will McPhee SJ, et al (Eds). Current Med. Diag. and
be needed to provide medical care for older Treat. McGraw-Hill, 48th edn. 2009;63.

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282  Section 6: Geriatric Health
17. Web site: http://www.ncea.aoa.gov/ncearoot/ 24. MacAulay J, et al. Serum creatinine in patients
Main_Site/FAQ/Questions.aspx with advanced liver disease is of limited
18. Fisher BS, et al. The extent and frequency of value for identification of moderate renal
abuse in the lives of older women and their dysfunction: are the equations for estimating
relationship with health outcomes. Gerontologist. renal function better? Can J Gastroenterol,
2006;46(2):200–9.[PMID: 16581884:Abstract]. 2006;20(8):521–6. [PMID: 16955148: Free PMC
19. A. Etemadi A, et al. Psychological Disorders Article].
of Elderly Home Residents. Journal of Applied 25. Evans JG. Medicine in old age. In: Warrell DA et
Sciences: 2009;9(Issue: 3):549–54. al (Eds). Oxford TB of Medicine, 4th edn. Vol.
20. Johnston CB, et al. Geriatric Disorders. In: III: 1381.
McPhee SJ, et al. Current Med. Diag. and Treat. 26. Neil M, et al. Geriatric Medicine. In: Kasper
McGraw-Hill, 48th edn.2009:71. DL, et al. Harrison’s Prin. Of Int Med Vol. 1;
21. Web site: http://www.galter.northwestern. 16th edn. 2005;50–51.McGraw-Hill
edu/geriatrics/chapters/cardiovascular_
27. Pollock ML, et al. Exercise training and
function_disease.cfm
prescription for the elderly. South Med J. 1994;
22. Jomarie Zeleznik. Clinics in geriatric medicine.
87(5):S88–95. [PMID: 8178210: Abstract].
In: Normative aging of the respiratory system.
2003;19(Issue 1):1–18. 28. Heath JM, et al. Prescribing exercise for frail
23. Fastbom J, et al. Levels of serum creatinine and elders. JABFP. 2002;15(3).
estimated creatinine clearance over the age of 29. Geriatrics-Myths and Perspectives, Special
75: a study of an elderly Swedish population. Guest Editorial. February 2003:
Arch Gerontol Geriatr, 1996;23(2):179–88. Web site: http://www.medscape.com/
[PMID:15374161:Abstract]. viewarticle/449250_print

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29 PRACTICAL PRESCRIBING
TO THE ELDERLY

“If what you are doing is doing good, keep doing it. If what you are doing is not doing good, stop doing it.
If you don’t know what to do, do nothing. Never make treatment worse than the disease.”

Concerns over Aging Population workers in the most healthcare settings will
One of the most important demographic trends deal with substantial numbers of older adults
facing the world at large is the aging of its whether or not they are specialists.
population. In almost every country, as a result This phenomenon has also contributed to
of longer life expectancy and declining fertility the increase in the prevalence of chronic disease.
rates, the proportion of people over 60 years of With people living longer, many diseases and
age is growing faster than any other age group. conditions, such as arthritis, cardiovascular
All over the world, between 2000 and 2050, the ailments, and neurodegenerative diseases,
absolute number of people aged 60 years and including Alzheimer disease, have time to
over is expected to increase from 605 million to manifest. Long-term care services, such as
2 billion. By 2050, India will be home to one out nursing homes, home health, personal care,
of every six of the world’s older persons.* day care and hospice care will become much
Modern medications, improved standards more important sources of care. Since this is
of nutrition, and good hygiene practices have an inevitable phenomenon in a rapidly aging
contributed significantly to increased longevity, population, the healthcare costs have increased
improved health, and enhanced quality of life due to aging. Therefore, physicians must develop
for older people. Today’s medicines effectively appropriate medication management strategies
treat diseases that were untreatable just a few to reduce their cost. It is also prudent to take
years ago, relieving pain and suffering and into consideration the altered drug kinetics
preventing life-threatening complications of and responses as well as altered sensitivity to
many diseases and conditions common in the drugs, impaired compensatory, mechanisms,
older population. unusual disease presentation, as well as the
This brings great challenges to family physiological changes that occur with aging**
physicians. The demand for medical attention while administrating medications to the
in the later stage of life is likely to increase elderly. These biological, pharmacokinetic and
substantially in future. A majority of the health pharmacodynamic changes in the elderly

*The share of India’s population ages 60 years and older is projected to climb from 8 percent in 2010 to 19
percent in 2050, according to the United Nations Population Division (UN 2011). By mid-century, India’s
60 and older population is expected to encompass 323 million people.
**For example, decreased cardiac output, vital capacity and creatinine clearance; lean body mass declines
and arteriosclerosis, atrophic gastritis, altered hepatic drug metabolism and osteoporosis develops.

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284  Section 6: Geriatric Health
apprise the physician to judiciously balance Table 29.1  Characteristics of chronic diseases
medications for complex comorbid chronic • Have a complex and multiple causes
diseases (Table 29.1), minimize polypharmacy, • Generally have a gradual onset, although sudden
and remain vigilant to potential medication onset of a chronic illness may occur
• Manifests in early life and gradually worsens
misuse. over years
• Quality of life deteriorates over a period of time
Prescribing Cascade due to disability and functional limitations
• May not be life-threatening to begin, but over
Age is clearly associated with both acute and the years they aggravate mortality, leading to
multiple chronic conditions, e.g. hypertension, premature death
acute coronary syndromes, stroke, diabetes
mellitus, obstructive lung diseases, Parkinson’s
disease, arthritis, osteoporosis, malignancy,
and the treatment of these illnesses are likely
to be associated with the use of multiple
drugs. However, for elderly, medications—
both prescription and over-the-counter (non-
prescription)—can be a two-edged sword. When
not used appropriately, effectively, and safely,
this ‘inappropriate prescription’ (IP)* and lack
of monitoring of multiple drugs increases the
likelihood of unwanted drug reactions.
Fig. 29.1  Prescribing cascade
Prescription of potentially IP to older
people is highly prevalent and serious global events which is misinterpreted as a new medical
healthcare problem in elderly people, leading condition. This new medical condition is then
to increased risk of adverse drug reactions treated with another medication that may itself
(ADRs)**—polypharmacy*** being the main cause adverse effects. New adverse effects may
risk factor for both IP and ADRs. then be treated with additional medications.
The use of multiple medications in the For example, consider a 75-year-old woman
older population may be partly due to what with hypertension taking amlodipine 10 mg
has been called the “prescribing cascade” (Fig. a day (drug 1). She complains of palpitation
29.1). A new medication added to an elder’s and pedal edema, which are common ADRs
regimen may cause an adverse event that is then of amlodipine. However, to “treat” the ADRs
misinterpreted as a new medical problem. This of this medication, a prescriber may initiate a
starts a vicious circle of testing, more medication, beta-blocker and a diuretic (drug 2). Here, the
more drug/drug reactions, and more adverse prescribing of one therapy to treat hypertension

*Prescribing may be regarded as inappropriate when alternative therapy that is either more effective or
associated with a lower risk exists to treat the same condition.
**The WHO defines an ADR as “any response to a drug which is noxious and unintended, and which occurs
at doses normally used in man for prophylaxis, diagnosis or therapy of disease, or for the modification of
physiological function”. If the response to a usual dose is excessive, it is termed idiosyncratic. If the observed
signs and symptoms are an unexpected response of the immune system, the response is termed hypersensitivity.
***At one time polypharmacy was defined only as multiple drug use, but this definition is not specific
enough. Polypharmacy is now used to indicate that a particular patient receives too many drugs, drugs
for too long a time, or drugs in exceedingly high doses.

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Chapter 29: Practical Prescribing to the Elderly 285

has resulted in addition of two drugs, i.e. a beta- the past simply because there are more
blocker and a diuretic. After a period of therapy, drugs available for treating these patients.
this woman complains of syncopal attacks and Although the discovery of a broad range
severe leg cramps, and a routine ECG shows of pharmaceuticals for a wide variety of
signs of bundle-branch block and hypokalemia, conditions has helped many patients, this
i.e. cumulative ADRs. new development, unfortunately has also
The key to avoiding the prescribing cascade led to both overuse and inappropriate use
is to determine whether the initial medication is of prescription medications.
actually needed. If not, it should be discontinued ™™ Many drugs that were once obtainable only
immediately. If the medication is necessary with a prescription, such as omeprazole and
but is causing problems, then a lower dose loratadine, are now readily available over
of the medication or a more appropriate the counter, and their use is on the rise.
medication with potentially fewer adverse ™™ In addition, complementary and alternative
effects should be prescribed. Fortunately, today medicines, such as herbal therapies, are
many treatment options are available for a wide becoming increasingly popular among all
range of conditions and symptoms. Patients patients, including the elderly.
and caregivers must understand that they have ™™ Compared to the general population,
options; if a medication either is not effective or is elderly are more likely to have several
causing undesirable side effects, there are usually chronic disorders, each requiring at least
other medications that can be prescribed instead. one medication.
It is also essential for the physician to pay
™™ Age-related decrease in organ function
due attention to some of the non-specific
reserve and homeostatic mechanisms
abnormalities in the elderly which do not need
(e.g. decrease in glomerular filtration
active treatment (Table 29.2).
rate, reduced hepatic clearance, reduced
protein-binding of some drugs) combine
Polypharmacy with chronic illnesses make elderly patients
Several factors contribute to polypharmacy much more vulnerable to ADRs.
among elderly patients: ™™ Elderly patients with more than one health
™™ Physicians may be prescribing more drugs condition are likely to receive care from
for their elderly patients than they have in several healthcare providers, each of whom
may prescribe a different medication to
Table 29.2  Commonly present non-specific
treat the same symptoms.11
abnormalities in elderly
™™ As explained above, the possibility of
• Diminished skin turgor unsuspecting phenomenon of ‘prescribing
• Senile purpura and hirsutism
cascade’ adds to polypharmacy.
• Wasting of muscles of hand
• Ventricular premature beats In addition to the health risks of
• Systolic murmurs—mostly benign aortic stenosis polypharmacy, patients who are taking
• Rales at the base of lungs due to fibrotic changes multiple medications face tremendous
in lung economic costs. It’s not uncommon for our
• Osteoporosis leading to vertebral compression
fracture
patients stating that they cannot afford all
• Impaired GTT their prescribed medications and ask which
• Testicular atrophy ones are the most important. In addition to the
• Diminished vibratory sensation in toes economic costs of polypharmacy is the toll of
• Diminished or absent ankle jerks drug-drug and drug-disease interactions.

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286  Section 6: Geriatric Health
It is relatively straightforward to know Table 29.3  Patient characteristics predictive of higher
risk of ADRs
when to start a drug based on an indication,
but deciding when to stop it can be a • No. of drugs
challenge. It is an even greater challenge in –– 8 drugs = high risk
–– ≥ 5-7 drugs = intermediate risk
our fragmented healthcare system where other • Previous ADR
healthcare practitioners, such as hospitalists or • ≥ 4 medical comorbidities
specialists may have started a medication. This • Liver disease
• Heart failure
fragmentation sometimes leaves the physician
• Renal disease
guessing why the medication was started and • Receiving high-risk drugs:
whether it can be stopped. –– Anticoagulants
–– Insulin or oral hypoglycemic drugs
The fact that a patient is on multiple –– Psychotropic medications
medications to treat multiple disease states is –– Sedatives/hypnotics
not independently problematic. For example, –– Cardiovascular drugs (especially digoxin,
nitrates, and vasodilators)
consider a patient with type 2 diabetes and
–– Nonsteroidal anti-inflammatory drugs
existing coronary artery disease who has • Cognitive impairment
undergone angioplasty after a myocardial • Living alone
infarction. It is not unreasonable or uncommon • History of nonadherence
• Known psychologic disorders or substance
for this patient to be on multiple medications abuse
to reduce the long-term risk for diabetes
complications and secondary coronary events. Sources: 1. Bayoumi I, et al. Interventions to improve medication
reconciliation in primary care. Ann Pharmacother. 2009;
In fact, as per the recommended treatment 43:1667-1675.
guidelines , this patient will receive minimum 2. Klarin I, et al. J. The association of inappropriate druguse
with hospitalisation and mortality: a population-based study of
of six concurrent prescription therapies the very old.JAMA. 2005; 293:2131-2140.
– either independently or in combined 3. Scott IA, et al. Minimizing inappropriate medications in older
populations: a 10-step conceptual framework. Am J Med. 2012
formulations - consisting of insulin, oral anti- Jun; 125(6):529-37.e4. doi: 10.1016/j.amjmed.2011.09.021.
diabetic/hypoglycemic agents, anti-anginal Epub 2012 Mar 3. Review. [PMID: 22385783].

drugs, statins, fibrates, and anti-platelet drugs.


anti-coagulants, aspirin, and NSAIDs ;
Polypharmacy becomes problematic when
hepatotoxicity with antitubercular drugs;
negative outcomes occur due to unnecessary
cough with ACE-inhibitors; bronchospasm
and/or inappropriate medication prescribing,
with beta-blockers ; and bone-marrow
leading to increased risk for drug interactions
depression with chemotherapeutic agents.
and ADRs, medication nonadherence, and
However, any time an elderly patient has an
also increased overall drug expenditures.
unexpected change in physical, cognitive, and
physical function, or virtually any domain of
When should an Adr be Suspected? function, an ADR should be considered and
Multiple factors independently predict an should prompt an early evaluation of drug
increased risk for ADRs in older patients (Table therapy and work-up for its potential etiology
29.3). (Table 29.4). Therefore, the possibility of an
Many ADRs are common and well ADR needs to be included in every differential
understood, e.g. bleeding complications diagnosis considered for an elderly patient.*
or dyspepsia or gastritis associated with Other factors which are useful pointers to

*Any symptom in an elderly patient should be considered a drug side effect until proved otherwise. Brown
University Long-term Care Quality Letter, 1995.

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Chapter 29: Practical Prescribing to the Elderly 287
Table 29.4 Signals that may point to a medication Principles of Good Prescribing
problem
The basic aim while treating elderly people in
Musculoskeletal: an office setup is to ameliorate the patients’
• Falls
Neuropsychiatric: symptoms, so that they can get back to normal
• Restlessness pre-sickness, independent life activities.
• Confusion Hence, although multiple illnesses are the
• Loss of memory
• Sleep disorders rule, and chronicity of the problems frequent,
• Dizziness prescribing for the elderly by following
• Depression principles of good prescribing reduces the risk
Gastrointestinal:
• Weight loss
of drug toxicity (Table 29.5).
• Constipation Further, blanket application of evidence-
• Bowel changes based clinical practice guidelines must be
Renal: approached with caution in the elderly. Most
• Incontinence
guidelines are based on a single disease focus,
but most elderly patients have comorbidities.
ADRs in elderly include: This makes the risks of drug-to-drug
™™ Taking five or more prescribed medications* interactions more likely.
At the same time, older people are often
™™ Taking dietary supplements, vitamins or
denied potentially beneficial, clinically
over-the-counter drugs
indicated medications without a valid reason.
™™ Taking homeopathic remedies or herbal
For these reasons, new geriatric IP criteria have
medicines
been devised and validated, called ‘screening
™™ Multiple pharmacies to fill prescriptions
tool of older persons’ prescriptions’ (STOPP)
™™ Multiple prescribers; having more than one
and ‘screening tool to alert to right treatment’
doctor prescribing medications
(START) for detection of potential errors of
™™ Multiple dosing schedule
prescribing commission and omission (Ref.
™™ Poor dexterity; having trouble opening
Box 29.1) .
medicine bottles, inability to break tablets
™™ Having poor eyesight; difficulty reading
labels on prescription labels and over-the- Non-drug Therapy
counter products Basically, drugs are not the answer to all patients’
™™ Difficulty hearing instructions from problems. Often social stress rather than physical
healthcare professionals illness is the main problem, and hence social
™™ Impaired communication problems manipulation, e.g. minimizing social isolation
™™ Impaired cognitive status; poor recall, rather than drug therapy might provide greater
forget to take medications relief, especially for the elderly. Sometimes
™™ Recent discharge from hospital patient’s concern about symptoms is mistaken
™™ Use of drugs with a narrow therapeutic as a desire for a medication when in reality the
index, e.g. digoxin, warfarin, phenytoin, concern is for reassurance. Further, if it is possible
etc. to treat a condition or a symptom with a local or
™™ Living alone. physical measure, this is always preferable to

*The frequency of an ADR is estimated to be 6% when two drugs are taken, 50% when five drugs are
taken, and almost 100% when eight or more drugs are taken. (Ref. web site: http://www.medscape.com/
viewarticle/461905_print).

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288  Section 6: Geriatric Health
Table 29.5  Principles of good prescribing to the
elderly Box 29.1: Stopp/Start Screening Tool

• Check Potentially inappropriate prescribing (IP) is an


–– Is the diagnosis correct? issue of major importance in the pharmacotherapy
–– Is treatment necessary? of older people globally. To date, Beers’ criteria
–– Is this the safest drug available? have been in common research usage for defining
–– Is it effective? potentially inappropriate medications (PIMs)
–– Is it acceptable to patient? in older people. However, Beers’ criteria have
–– Is there duplication with other drugs being a number of serious flaws and are of doubtful
used? relevance to routine geriatric pharmacotherapy.
• Choice of drug Prospective data show that STOPP criteria detect
–– Is this evidence-based practice? Is there adverse drug effects (ADEs) that are causal or
relevant evidence of effectiveness? contributory to acute hospitalization in older people
–– Short-rather than long-acting 2.8 times more frequently than Beers’ criteria. This
–– Distinctive color and shape suggests that ADEs are likely associated with PIMs
–– Simple dosage regime in older people, contrary to recent research data
• Dosage showing no significant association on the basis of
–– Is this the most appropriate dose, route of defining PIMs using Beers’ criteria.
administration and dosage form?
–– Any dose adjustment needed for renal and Recent studies show that STOPP/START criteria
other problems? as an intervention significantly improves medication
–– Titrate drug dosage based on patient’s appropriateness in hospitalized older people.
response Whether STOPP/START can prevent ADEs and
–– If in doubt, ‘start low, go slow’ reduce drug costs remains to be elucidated by
• Monitoring means of further randomised controlled trials.
–– For how long is the medication required? However, STOPP/START is a valid, reliable
–– Do the benefits outweigh the risks? and comprehensive screening tool that enables
–– What ADRs should be watched for? the prescribing physician to appraise an older
–– Is the indication for treatment still present? patient's prescription drugs in the context of his/
–– When should dosage be reviewed? her concurrent diagnoses.
–– When can the drug be stopped?
–– Do not treat the ADR of a medicine by adding
Source: http://www.ncbi.nlm.nih.gov/pubmed/ 18218287
another medicine
–– Educate about the importance and use of Abbreviation: STOPP, Screening Tool of Older Person’s
each medicine Prescriptions; START, Screening Tool to Alert Doctors
–– Remember iatrogenesis. to Right Treatment

the use of systemic medication. Physiotherapy, Begin Therapy with Clear Endpoints
massage, walking aids is preferable to NSAIDs in Mind
for musculoskeletal problems. Raising the head
of the bed, advising against too many large Every time elderly patients receive a medication,
meals, alcohol, smoking is preferable to systemic its outcome may be beneficial or harmful to
medications for GORD. The role of physical them. Although some medications neither
exercise, lifestyle changes, and holistic living benefit nor do any harm to elderly patients, e.g.
have been the cornerstone in the management placebo medications, it is critical to have advance
of coronary artery diseases, cerebrovascular knowledge and prepare oneself to evaluate these
accidents, diabetes, psychosomatic disorders, outcomes prior to starting the drug. Physicians
obesity, hypertension and other innumerable must know the baseline or initial parameters of
disorders. Evidence supports the conclusion that the ‘target symptom’ they are evaluating a drug
even the oldest old can benefit from beginning for its final outcome. For example, if a drug is
an exercise program. expected to produce orthostatic hypotension

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Chapter 29: Practical Prescribing to the Elderly 289

as an adverse consequence, the physician must of questions (Table 29.6) and use the answers
know the initial blood pressure values in sitting, to help guide your decisions about starting,
standing, lying positions. Similarly, the advance stopping, or continuing medications, particularly
knowledge of symptom such as constipation or in patients in the geriatric population.
an ECG finding of bundle-branch block cautions Unnecessary drugs accumulate, which
the physician to avoid prescribing drugs like the patient may be consuming. Such drugs
tricyclic antidepressants or beta-blockers which need to be identified and discontinued.
are known to aggravate constipation or cause This process must be slow and done in
syncopal attacks respectively. small increments. Follow-up is essential
so as to watch for rebound phenomenon
Treat the Disease Process Rather often observed after stopping a particular
than Symptoms drug, e.g. antidepressants, antiepileptics,
Try to establish a working diagnosis or a antihypertensives, and corticosteroids.
definite diagnosis first, i.e. know what you are
treating. Establishing a diagnosis often permits Review the Drug Profile at Every
selection of the proper drug or drugs and a Visit
treatment period. The therapeutic goal must be Drugs are more often part of the problem than
to modify the natural disease process (diabetes, part of the solution. Every patient’s visit must be
hypertension, coronary syndromes, rheumatoid an occasion for a drug review. This makes the
arthritis, and depression) and to enhance process of periodically reducing unnecessary
functional ability and life expectancy that results drugs easier and helps to prevent accumulation
in improved quality of life. It is also important to of toxic unnecessary forgotten medicine. The
consider whether any new symptoms and signs importance of this is stressed in many policy
could come from drugs the patient is already on, documents and guidelines on a common set of
so as to avoid a prescribing cascade. definitions and principles for medication review
have been issued (Table 29.7).
Start Low Go Slow
Unless a condition needs to be treated Table 29.6  Medical debridement—the 10 questions
immediately, therapy is begun with less than to ask
the usual adult dosage and the dosage increased   1.  Do I know the medication?
slowly, consistent with its pharmacokinetics in   2.  Is the drug indicated?
older patients. As a rule, one-quarter to one-half,   3.  Has the drug outlived its utility?
the usual starting dose of a drug is safe. However,   4. Do side effects outlive the potential benefits of
age-related changes in drug distribution and this drug?
elimination are variable among individuals, and   5. Do this drug interact with another drug or one of
individual titration will be required. It is also wise the patient’s diseases?
to be cautious about adding a new medication  6. D o this drug interact with herbal or OTC
medications?
without eliciting the history of drug allergy and
  7. Is this drug being used to treat the side effects
optimizing current drug regimen. of another drug?
 8. Is there a non-pharmacological approach
Medication Debridement— available instead of a drug?
Re­ducing Medications and Doses   9. Will the patient live long enough to gain potential
benefit from the medication?
When you decide to treat a patient, especially 10.  Is this drug harmful?
an elderly, it’s helpful to ask the following series

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290  Section 6: Geriatric Health
Table 29.7  Levels of medication review of all medication-related hospital admissions
The levels of review in the existing framework are: are attributed to non-compliance.
Level 1: Prescription review: Technical review of the The most important factor that leads to
list of patient’s medicines, usually conducted without noncompliance in elderly is due to difficulty
access to the clinical notes, and does not usually faced by elderly in following prescription
include a review of the full repeat prescription. The
patient may be present, but not always.
instructions because they generally have
more medication prescribed, often suffer from
Level 2: Concordance and compliance review:
Treatment review of medicines with patient’s full cognitive decline, and frequently have physical
notes; normally occurs under the direction of a limitations such as failing eye sight and
doctor, nurse, or pharmacist, in partnership with the hearing that may further impede compliance.
patient and/or the patient’s carer or advocate.
Other important determinants of non-
Level 3: Clinical medication review: Face-to-face
clinical medication review of medicines and condition
compliance are:
requiring access to the patient’s notes, full record of ™™ Demographic factors: such as age, sex,
prescriptions, over-the-counter remedies, and lab education level, socioeconomic status,
reports. The patient is involved as a full partner in
the discussion.
occupation, marital status
™™ Patient’s attitude: If patient perceives their
illness to be severe then compliance will
Effective Communication be more
™™ Physician-patient relationship: Strong
Although family physicians are ideally placed to
manage all medications used by their patients, physician patient relationship leads to
it is prudent not to assume they are the only greater compliance
™™ Patient’s knowledge: knowledge about
prescriber or that the patient is taking what they
have prescribed. There is evidence that elderly disease and treatment has beneficial effect
people visit multiple family physicians and new on compliance
medication may be prescribed at discharge from ™™ Therapeutic regimen: complex medication

hospital, outpatient clinics, and emergency regimen will lead to noncompliance.


department visits. Sharing such information is Adverse effects of drugs also lead to non-
vital. Accurate knowledge can only be acquired compliance.
with good patient-doctor communication
and relies heavily on effective communication Measures to Enhance Compliance
between primary and secondary care. ™™ Understand the patient’s drug history in
detail including use of over-the-counter dugs
Medication Noncompliance in the ™™ Give permission for the patient to relate
Elderly exactly how drugs are taken
Medication non-compliance is defined as a ™™ Probe for the patient’s opinion about
patient’s passive (i.e. non-intentional) failure problems and adverse effects
to follow a prescribed drug regimen in the ™™ Educate the patient on the relative
manner recommended by the doctor. importance of each medication
Non-compliance in the elderly is a ™™ Use family, visiting nurses, and home
significant problem facing medical practice health aids as allies
today. It has been estimated that as many as ™™ Simplify drug regimens and encourage
50% of prescriptions for elderly fail to produce easy open bottles
the desired results because of non-compliance. ™™ Pay attention to cost if this is a concern to
Additionally, between one third and two thirds the patient

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Chapter 29: Practical Prescribing to the Elderly 291

™™ The patient should be taught the principles Conclusion


of self-medication before leaving the
Balancing medication use in the elderly is
hospital or if is being treated as outpatient.
a complex task, made more difficult by the
This is best done predischarge.
physiological changes and increased burden of
disease seen with aging. The success of a drug
Ethical Principles
therapy in elderly depends on considering
The family physician, besides knowing the these factors in addition to correct diagnosis,
basic theory and practice of prescribing drugs treatment plan, prescription, patient education
to the elderly, should be guided by the ethical and dose adherence. Care should be taken to
principles that form the basis for appropriate avoid iatrogenic diseases in this population
prescribing in elderly people: by avoiding inappropriate prescribing. For
™™ Beneficence—“what is the evidence for the appropriate and rational prescription in
likely benefit in this particular patient?” elderly patients the following factors should
Can the dosage of drugs gradually reduced be taken into account:
or even withdrawn (drug holiday) after a ™™ Prescribing in the elderly is made more
period of stabilization while monitoring complex by the physiological changes
the patient during this transition? associated with aging and increased
™™ Nonmaleficence—“what are the adverse burden of disease.
effects likely to be in particular patients,
™™ Polypharmacy is associated with a
taking into consideration their age,
significantly increased risk of adverse
comorbidities and other medications?”
drug reactions and represents a largely
The high rate of adverse drug reactions in
preventable cause of patient morbidity.
elderly patients should be balances against
™™ Underprescribing on the basis of age alone
the often-uncertain efficacy evidence in
older people before drugs are prescribed. may result in suboptimal patient care.
™™ Autonomy—“what does the older person ™™ Regular review and rationalization of
want?” Older patients may be concerned medications should be part of routine
about issues of independence and side practice and can improve patient outcomes.
effects of medications rather than whether Above all adding quality life to years should
their disease or risk factor is managed be the major concern of a physician than mere
according to the latest published guidelines. addition of years to life.
Other points which physicians should “The challenge for the general practitioner
understand are: is to balance an incomplete evidence base
™™ The treatment of a disease should not be for efficacy in frail, older people against the
more unpleasant than the disease itself, problems related to adverse drug reactions
i.e. ‘primum non nocere.’ without denying older people potentially
™™ Often, what the patient is craving for is a pair valuable pharmacotherapeutic interventions”.
of sympathetic ears to listen to his woes, and
does not really care for a drug. A prescription References
need not be a necessary part of treatment. 1. Cerreta F, et al. Drug policy for an aging
™™ There is no drug to combat senescence – population--the European Medicines
many a pharmaceutical company’s claim Agency’s geriatric medicines strategy. N Engl
notwithstanding. J Med, 2012;367(21):1972-4. doi: 10.1056/
™™ Mere prolongation of life can never be a NEJMp1209034. [PMID: 23171092: Free Article].
valid aim. 2. Web site - http://www.who.int/ageing/en/

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292  Section 6: Geriatric Health
3. Assessing the Costs of Aging and Health Suppl):S598–608; discussion S609-10. PMID:
Care. Web site: http://www.nia.nih.gov/ 11427784
research/publication/global-health-and- 9. A Guide to Medication Review, 2008.
aging/assessing-costs-aging-and-health-care We b s i t e : h t t p : / / w w w . n p c i . o r g . u k /
4. Cameron KA, et al. A Guide to Medication and medicines_management/review/medireview/
Aging. American Society on Aging, Academic library/5mg_medreview.php
journal article from Generations, Vol. 24, No. 4.
10. Evans L, et al. The problem of non-compliance
5. Juliv Galivis, et al. Polypharmacy: Keeping
with drug therapy. Drugs. 1983;25:1983.
the elderly safe. Web site - http://www.
11. McDonnell PJ, et al. Hospital admissions
modernmedicine.com/modern-medicine/
resulting from preventable adverse drug
news/polypharmacy-keeping-elderly-safe
re a c t i o n s. A n n P h a r m a c o t h e r. 2 0 0 2 ;
6. Guiding principles for the care of older adults
36(9):1331–6.PMID: 1219604
with multimorbidity: an approach for clinicians.
J Am Geriatr Soc. 2012;60(10):E1-E25. doi: 12. Daniel E Everitt. Preventing adverse drug
10.1111/j.1532-5415.2012.04188.x. Epub 2012 reactions. In: Forciea MA et al. Editors-
Sep 19. [PMID: 22994865: Full online text]. Geriatric Secrets. Jaypee Brothers Medical
7. American College of Sports Medicine Position publishers, 1st Ind. Ed.:108.
Stand. Exercise and physical activity for older 13. Le Couteur David G, et al. Prescribing in older
adults. Med Sci Sports Exerc, 1998;30(6):992– people. Austr. Fam Physician, 2004;33(10):
1008. PMID: 9624662 777–81.
8. Spirduso WW, et al. Exercise dose-response 14. Le Couteur David G, et al. Prescribing in older
effects on quality of life and independent living people. Austr.Fam Physician, 2004;33(10):
in older adults. Med Sci Sports Exerc, 2001; 33(6 777–81.

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7
Section

Palliation and
Bereavement
™™ Communicating Bad News
™™ Palliative Care: Principles
™™ Palliative Home Care
™™ Family and the Grief Process

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30 COMMUNICATING
BAD NEWS

“If we, as a caring profession – in which I include all specialties – cannot, or will not, acknowledge the
fundamental need to take time to communicate with our patients, without whom our existence would be
unnecessary, what sort of professionals are we?”
Alison Franks

Introduction and dying. Bad news can come in many forms,


e.g. a treatment plan that is burdensome,
Breaking bad news to patients is one of the
painful or costly, like end stage renal disease
most difficult responsibilities in the practice
requiring renal transplant; resistant angina
of medicine. Virtually all physicians in clinical
requiring CABG; loss of vital bodily function,
practice encounter situations entailing bad
like loss of vision, amputation of an extremity;
news. Yet medical education typically offers
a pregnant women’s ultrasound reporting
little formal preparation for this daunting
fetal death; diagnosis of a chronic illness, like
task. However, the increased importance
multiple sclerosis and juvenile diabetes.2
noted by current literature in family medicine
on end-of-life issues reflects the desire on There are many factors, which may influence
the part of society to collaborate with their the individual’s perception of the news, making it
family physicians in dealing with such issues. ‘bad’ for that particular person at that particular
Family physicians who provide continuity time. Patient’s or family’s previous experiences,
of care to patients are in an ideal position expectations, anxiety about treatment
to compassionately, yet clearly, convey bad possibilities, financial implications, cultural
news. The importance of physician-patient impact, society’s attitude and similar factors are
relationship in such engagements is critical. important in the context of ‘bad’ news.
Having already developed a sense of mutual The manner in which the bad news is given
trust, the family physician is often in a position also affects its impact, e.g. the words used, the
to break such news. setting, the demeanour of the giver, the time
allowed, the place of discussion, and whether
What is Bad News? it is one-or-two way exchange.

It is generally defined as “any news that


Why is Breaking Bad News So
drastically and negatively alters the patient’s
views on his or her future”.1 Difficult?
Bad news is typically associated with Breaking bad news is one of the most important
terminal illness such as cancer and AIDS. and challenging physician’s duties in routine
However, bad news is not confined to issues daily work. However, there are many reasons
around terminal and incurable illness, death why physicians have difficulty breaking bad

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296  Section 7: Palliation and Bereavement
news. Table 30.1 shows some feelings of doctors often on their emotional distress, and seldom on
which may affect their ability in communicating their suffering.”6
bad news with patients and families. The way physicians break bad news
In a cross-sectional study conducted to patients with poor prognosis may have
using a questionnaire administered to a total been retrospectively associated with poor
of 458 practicing physicians working in both psychosocial outcomes for patients e.g. in the
hospitals and Primary Healthcare centers, past Hippocrates advised, “concealing most
it was concluded that although most of the things for the patient while you are attending to
participating physicians were keen to help their him. Give necessary orders with cheerfulness
patients, they lacked the essential knowledge and serenity, revealing nothing of the patient’s
and skills for breaking bad news. Thus, they future or present condition. For many patients
needed specific training in this regard.3 who have taken a turn for the worse…by
The present teaching in medical schools forecast of what is to come.”7
emphasize on ‘biomedical model’ that values Further, in the past, practicing physicians
technical skills more than communication skills, were taught to ‘protect’ patients from
especially how to demonstrate clinical empathy. disheartening news. This is evident from the
Medical education typically offers little formal American Medical Association’s first code of
preparation for this daunting task. Without medical ethics (1987) which states, “The life of
proper training, the discomfort and uncertainty a sick person can be shortened not only by the
associated with breaking bad news may lead acts, but also by the words or the manner of a
physicians to emotionally disengage from physician. It is, therefore, a sacred duty to guard
patients.4,5 Rabow and McPhee, in their article, himself carefully in this respect, and to avoid all
“Beyond breaking bad news, how to help patients things which have a tendency to discourage the
who suffer,” sum up the end result, “clinicians patient and to depress his spirits.”
focus often on relieving patients’ bodily pain, less Thus, the fear to being exposed to unexpected
strong emotional reactions by the patient, such as
Table 30.1 Adverse feeling of doctors on breaking
bad news
aggression or despair, may cause the physician
to adopt unproductive coping strategies such as
• Fear of hurting or upsetting the recipient
discussion about technical details while avoiding
• Fear of adverse response from the recipient
to deliver the main message.
• Uncertainty about how to react to the recipient’s
reaction Physicians also have their own reasons
• Fear of being blamed
about breaking bad news. It is an unpleasant
task. Physicians do not wish to take hope
• Shame and feeling guilty of self-inadequacy and
impotence from the patient. They may be fearful of the
• Worry over the questions they may be asked
patient’s or the family’s reaction to the news
or may not be able to deal with an intense
• Anger of mistakes made by patient or family
emotional response. The atmosphere or the
• Anger of non-compliance made by patient or
family
circumstances may not be congenial to deliver
bad news, or other responsibilities may be
• Anger of mistakes made by other health
professionals competing for the physician’s attention.
• Sadness which we, as professionals, tend to Although, several professional groups have
suppress in front of patients published condensed guidelines on how to
discuss bad news, their clinical efficacies of
Source: Franks A. Breaking bad news and the challenge of
communication, European J Palliat Care, 1997;4(2):61-65. recommendations have not been empirically

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Chapter 30: Communicating Bad News 297

demonstrated. 8 As a result, emphasis on Importance of Disclosure


training in communication skills, i.e. how to
In recent decades, the paternalistic model
break bad news is lacking in many physicians.
of patient care has been replaced by one
Therefore, physicians may feel unprepared to
that emphasizes patient autonomy and full
deal with the intensity of the braking bad news,
disclosure.* Honest disclosures of diagnosis,
or they may injustifiably feel that they have
prognosis and treatment options allow patients
failed the patient.
to make informed healthcare decisions that are
Some patients have multiple physicians,
consistent with their desires and values. When
making it unclear who should break the bad
physicians withhold bad news, they diminish
news. The cumulative effect of these factors
patient autonomy. Furthermore, the patient
is physician uncertainty and discomfort,
will eventually learn the true nature of his/her
and a resultant tendency to disengage from
illness. Patients who discover that information
situations in which they are called to break bad
has been withheld may no longer trust their
news.
physician.
Factors that can make breaking bad news Physicians have a legal obligation to obtain
difficult for health professionals may be informed consent from the patient and have
summarized as follows: a moral, ethical, and legal duty to inform the
™™ Fear of hurting or upsetting the receiver
patient of the news, unless the patient refuses.
™™ Fear of being blamed Moreover it is important to recognize that,
™™ Feeling of “failing” the patients while any news – good or bad – is offered,
™™ Anxieties over how they may respond and not all patients want active involvement in
how to deal decision making. At times the physician may
™™ Worry over the questions being asked be requested not to tell the nature of illness
™™ Possibly having to admit one doesn’t know to the patient in order to ‘just to keep up the
all the answers morale’, or to suppress strained relationship
™™ Awareness of lack of knowledge, especially issues, or to suppress dysfunctional family
in respect of treatment options and dynamics.9
prognosis
™™ Feeling inadequately trained or prepared What Patients Value
for handling such sensitive human inter- The most important factors for patients
reactions when they receive bad news are physician’s
™™ Uncertainty about how one should react in honesty, attention, competence, time
front of the receiver and thereafter. allowed for questions, a straightforward and
The last three factors mentioned above may understandable diagnosis, and use of clear
be major issues, especially for inexperienced language. Besides, patients expect high levels
junior doctors who may feel particularly of empathy and information quality, no matter
vulnerable because of their limited experience, how bad the news.
scant knowledge of prognosis and highly Families rank privacy, physician’s attitude,
specialized treatment options. competence, clarity, and time for questions as

*Paternalism in the context of healthcare is constituted by any action, decision, rule, or policy made
by a physician or other care-giver, or a government, that dictates what is best for the patient(s) without
considering the patient’s own beliefs and value system and does not respect patient autonomy which refers
to the capability and right of patients to control the course of their own medical treatment and participate
in the treatment decision-making process.

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298  Section 7: Palliation and Bereavement
important. Knowing the physician well and the Table 30.2  The ABCDE mnemonic for breaking bad
news
physician’s use of touch (e.g. holding patients
hand) rank lower.10,11 • Advance preparation
–– Arrange for adequate time, privacy and no
interruptions (turn pager off or to silent mode)
How Should Bad News be –– Review relevant clinical information
Delivered? –– Mentally rehearse, identify words or phrases
to use and avoid
Communicating bad news, as Franks 12 –– Prepare yourself emotionally
observes – “It is not an isolated skill but a • Build a therapeutic environment/relationship
particular form of communication”, which –– Determine what and how much the patient
has to be delivered most compassionately and wants to know
–– Have family or support persons present
effectively.
–– Introduce yourself to everyone
Rabow and Mcphee 6 have developed –– Warn the patient that bad news is coming
a practical and comprehensive model, –– Use touch when appropriate
synthesized from multiple sources10,12,13 which –– Schedule follow-up appointments
• Communicate well
uses the simple mnemonic ABCDE (Tables
–– Ask what the patient or family already knows.
30.2 and 30.3), and serve as a general guide –– B e f r a n k b u t c o m p a s s i o n a t e ; a v o i d
and most common recommendations to euphemisms and medical jargon
physicians for breaking bad news. –– Allow for silence and tears; proceed at the
patient’s pace
–– Have the patient describe his or her
A dv a nc e P r e pa r a ti on: P r e pa r e understanding of the news; repeat this
Yourself to Feel Bad information at subsequent visits
–– Allow time to answer questions; write things
Breaking bad news should be done in private down and provide written information
only; the patient, his/her loved ones, and the • Deal with patient and family reactions
members of the healthcare team should be –– Assess and respond to the patient and the
present. family’s emotional reaction; repeat at each visit
The physician should have all the basic –– Be empathetic
–– Do not argue with or criticize colleagues
information and knowledge about the patient’s
• Encourage and validate emotions
illness, prognosis and treatment options. –– Explore what the news means to the patient
The physician should sit down to facilitate –– Offer realistic hope according to the patient’s
eye contact, face the recipient with eyes at the goals
same level and keep an unhurried attitude. –– Use interdisciplinary resources
–– Take care of your own needs; be attuned to
The physician should mentally practice on the needs of involved house staff and office
how to deliver the news in a composed and or hospital personnel
compassionate manner, e.g.
Source: Adapted from Rabow MW, McPhee SJ. Beyond
™™ “I wish I had better news”, as opposed to “I breaking bad news: how to help patients that suffer. West J
am sorry, I have bad news”, “I admire your Med. 1999;171:261.

courage.” Physicians need to get permission to share


bad news and how the patient would like to
Build a Therapeutic Environment/ get others involved. Asking permission lets the
Relationship family know that they need to focus on you as
Ask: Physicians, after their introduction, you are going to give information. Ways to do
should ask members of the patient’s family this include:
their names and relationships to the patient; ™™ “Is this a good time for me to talk about what
check who everyone is. has happened since your dad was admitted?”

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Chapter 30: Communicating Bad News 299
Table 30.3  Frame work for communicating bad news ™™ “I understand how you feel”; “I can see that
• Preparation:
you are upset by this news”.
–– Familiarize yourself with all the clinical Tell me more: Encourage them to ask questions.
information
Make sure that every question is answered. It
–– Have the case notes with you
–– Ensure adequate time for discussion; no is alright to show ignorance and uncertainty.
interruptions Touch: Use touch wherever appropriate,
–– Find a location with adequate privacy,
comfortable sittings facing at eye level but be sensitive to cultural differences and
• Knowledge: personal preference. As physicians, we have
–– Assess patient’s current understanding and the opportunity to ‘touch’ our patients at many
thoughts
–– Check what has been told and what has been levels – physically, emotionally and spiritually.
understood (e.g. word ’tumor’ does not mean
‘cancer’ to everyone) Communicate Well: Deliver Bad News
–– Explore how much that patient wants to know
• Inform the news: Clearly and Unequivocally
–– Provide information honestly, but sensitively, Physicians need to have prior knowledge
without emphasining
–– Use simple, every-day language
of what the patient knows about his/her
–– Watch for body language illness before breaking bad news. Assessing
–– Provide comfort as appropriate – say ‘sorry’ or patient perceptions allows the physician to
‘pardon’ or ‘I don’t know’
correct misinformation and tailor the news
–– Use drawings, leaflets to reinforce
• Respond to the patient’s emotions: to the patient’s level of comprehension.
–– Allow others to express their emotions and Undue bluntness and misleading information
empathize should be avoided. Frank, compassionate
–– Don’t argue or crticise colleagues  
• Treatment options: communication in simple language and
–– Offer to discuss implications of the news proceeding at the patient’s pace is essential. It
–– Give brief updated information may be tempting to use euphemisms to soften
–– Allow time for informed decision making and
consent:
the delivery of bad news, but by doing so one
–– Discuss prognosis can be extremely misleading and create a
• Offer additional resources: good deal of confusion. (Don’t say, “There’s a
–– Other support services, specialist nurse
lesion in your chest X-ray” or even “You have
• Summarize the discussion:
–– Check back on important points a tumor;” say, “You have cancer”).
–– Ask if there are any other questions There is nothing wrong in using ‘D’
–– Give realistic hope as appropriate words—“dead—died or dying” if they are
• Follow-up meeting:
–– Future plan for patient and family questions accurate. Using honest words is integral to
and concerns effective communication and minimizes
• Document the discussion in the medical record confusion. At the conclusion of each visit,
summarize and make follow-up plans.
™™ “Would you like to hear our recommendation Deal with Patient and Family Reactions
about what should be done?” Physicians should assess and respond to
Tell: Sufficient time should be allowed to patient’s emotional reactions and should possess
answer questions. Interruptions (e.g. cell cognitive coping strategies while dealing with
phones) should be minimized. Deliberate fear, anger, shame, sadness and guilt experienced
periods of silence allows patient to process by the patient and his family members.
bad news and ventilate emotions. Physicians Be composed. Do not argue with or criticize
should add few emphatic statements, e.g. colleagues. Remember practical things – giving

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300  Section 7: Palliation and Bereavement
information about where to obtain death frequently is even more important than
certificate, legal formalities like postmortem and when communicating face-to-face, because
how to organize cremations may all seem far expressions and other body language cannot
from the clinical side that we are trained for, but be used to check for understanding.
they are of importance to the patient’s relatives. In general, it is preferable to keep the
telephone conversation as brief as possible
Encourage and Validate Emotions: without appearing abrupt or insensitive, and
Never Destroy Hope urge the family to come to the hospital so that
Discuss treatment options and offer realistic a meeting can take place.
hope and encouragements and develop In some situations, before any urgent need
strategies to realize them. for notification, it may be appropriate for a
Physicians should assure the patient of physician to find out whether family members
their availability to address symptoms, answer wish to be notified by telephone about changes
questions and meet other needs. in a patient’s condition (including notification
of death) or whether they wish to be asked to
Inquire about patient’s emotional and
come to the hospital.
spiritual needs and means available to fulfill
them. The knowledge of spiritual beliefs gives
Using a Translator
us an insight about how they may cope with
illness or how their beliefs might influence If there is a language barrier it is important
their decisions regarding treatment. When to enlist the service of a translator skilled in
appropriate pray with patient and relatives. medical terminology and communication,
Doing so will show your support for their beliefs. to ensure effective and accurate delivery. If
At the end, summarize the family concerns possible, avoid using a family member as a
and problems to show that the problems have translator, because he/she may not be the best
been understood. Explore the options with person to communicate medical information.
the patient. Let the patient make decisions. Also, in the role of a translator, a family member
Offer further meetings or channels of may tend to supplement the information being
communication. Offer referrals as needed. Use conveyed, withhold information, or otherwise
interdisciplinary services to enhance patient soften the delivery in an effort to protect the
care e.g. hospice services. patient. The potential for a family member to
“editorialize” the information is great. Always
be sure to face the patient when speaking; your
Communication in Specific
eye contact should be with the patient, not the
Situations translator.
Using the Telephone
Frequently in critical care practice, information The Future
needs to be conveyed urgently to a patient’s Although delivering bad news is something
family. When the family is not available at that occurs daily in most medical practices,
the hospital, a telephone call is necessary. the majority of clinicians have not received
This need for urgent communication most formal training in this essential and important
often occurs when a patient’s condition has communication task. A variety of models are
become suddenly worse, or in the event currently being used in medical education
of an unexpected death at night hours. to teach skills for delivering bad news. For
When communicating by telephone, pausing example, simulation-based education,

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Chapter 30: Communicating Bad News 301

videotaped role-plays and the subsequent patient. As a result, family physicians are in an
video-based analyses are rapidly developing ideal position to help patients with a disease,
method of supplementing and enhancing face their illness with compassion and dignity.
the clinical education of medical students. “To manage bad news well, the clinician
Clinical situations are simulated for teaching must place his/her relationship with the
and learning purposes, creating opportunities patient, the strength and reality of their human
for deliberate practice of new skills without bond, over the insecurity of disease, the threat
involving real patients.14,15 of dissolution, and the fear of death. Breaking
Courses and seminars concerning end-of- bad news is not as much a delivery as it is a
life care and spirituality are becoming more dialogue between two people, both striving
prevalent. One is a joint venture between the to discover in each other a simple faith in
American Medical Association (AMA) Institute the future and an understanding of meaning
of Ethics and the Robert Wood Johnson beyond themselves.”
Foundation, entitled Educating Physicians on
End-of-life Care (EPEC).16 References
In addition, courses are available in 1. Buckman R. Breaking bad news- why is it so
many countries providing EPEC training to difficult? BMJ, 1984;288:6430,1597–9.
interested family physicians, primary care 2. VandeKieft GK. Breaking bad news. Am
professionals and allied healthcare workers. Fam Physician, 2001;64(12):1975–8. [PMID:
11775763: Free Article].
In India, project Education in Palliative
3. Al-Mohaimeed AA, et al. Breaking bad news
and End of Life Care in India (EPEC-India) has issues: a survey among physicians. Oman Med
been developed to augment the education of J, 2013;28(1):20–5. doi: 10.5001/omj.2013.05.
professionals and the volunteers in palliative [PMID:23386940:Free PMC Article].
care.* 4. Afghani B, et al. Medical students’ perspectives
on clinical empathy training. Educ Health
Conclusion (Abingdon), 2011;24(1):544. Epub 2011 Apr 9.
[PMID: 21710425: Abstract].
Dying patients need their physician’s
5. Ali AA. Communication skills training of
presence—not necessarily to attend to their undergraduates. J Coll Physicians Surg Pak.
ailing problems, but to express, hear and be 2013;23(1):10–5. doi: 01.2013/JCPSP.1015.
understood with respect and empathy. It is [PMID:23286616:Abstract].
in this context the communication skills are 6. McPhee SJ, et al. Beyond breaking bad news:
vitally important. how to help patients who suffer. West J Med,
A growing body of evidence demonstrates 1999;171:260–3.
that physician’s attitude and communication 7. Hippocrates. Decorum, XVI. In: Jones WH,
skills play a crucial role in how well patients Hippocrates with an English Translation. Vol
2. London: Heinemann, 1923.
cop e w ith bad news. Higher quality
8. Girgis A, et al. Breaking bad news: consensus
communication and increased physician’s
guidelines for medical practitioners. J Clin
knowledge of patient’s wishes is associated Oncol, 1995;13(9):2449–56. [PMID: 7666105:
with greater satisfaction. Abstract].
The training of a family physician and his 9. Chhablani RK. How to Deliver a Terminal
practice philosophy support open and honest Diagnosis to Patients: A Helpful Approach.
communication between the physician and American Medical Association Institute for

*Website: http://palliumindia.org/about/epec/

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302  Section 7: Palliation and Bereavement
Ethics. Education for Physicians on End-of-life 14. Rosenbaum ME, et al. Teaching medical students
Care (EPEC) Participant’s Handbook. Chicago: and residents skills for delivering bad news: a
American Medical Association; 1999. review of strategies. Acad Med, 2004;79(2):107–
10. Jurkovich GJ, et al. Giving bad news: the family 17. [PMID: 14744709: Abstract].
perspective. J Trauma, 2000;48(5):865–70; 15. Kopecky-Wenzel M, et al. Breaking bad news-
[PMID: 10823529: abstract]. -a video-based training unit for medical
11. Ishaque S, et al. Breaking bad news: exploring students.Z Kinder Jugendpsychiatr Psychother,
patient’s perspective and expectations. J
2009;37(2):139–44. doi: 10.1024/1422-
Pak Med Assoc, 2010;60(5):407–11. [PMID:
4917.37.2.139. [PMID: 19402001: Abstract].
20527623: Abstract].
12. Franks A. Breaking bad news and the challenge of 16. EPEC project: Education for physicians on end-
communication. Eur J Palliat Care, 1997;4: 61–65. of-life-care, 1998, AMA, Institute of ethics.
13. Baile, et al. SPIKES – A six-step protocol for 17. Quill TE, et al. Bad news: delivery, dialogue, and
delivering bad news: application to the patient dilemmas. Arch Intern Med, 1991;151(3):463–
with cancer. Oncologist 2000;5(4):302. 8. [PMID: 2001128: Full text].

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31 PALLIATIVE CARE:
PRINCIPLES

“You matter because you are you. You matter to the last moment of your life, and we will do all we can,
not only to help you die peacefully but also to live until you die”.
Dame Cecily Saunders
Founder of the modern hospice movement

Recognizing Dying The Need for Palliative Care2


Eventually, every one dies. Despite all the Nu m e ro u s s t u d i e s 3 , 4 c o n f i r m e a r l i e r
success of medical progress, and physician’s observations that, while receiving expensive
spirited battle to prevent dying by the care that is concentrated on pathophysiology
application of biomedical technology, which and treatment of disease, dying people and
may successfully extend life and make dying their families experience a wide range of
more protracted, death inevitably comes. patients’ unmet needs for their symptom
If dying really is an inevitable natural such as amelioration of severe pain, disability,
process of the life cycle, reintegration of the emotional trauma, and depression. In such
dying patient into the routine course of living precarious life-and-death situations—when
is necessary. Therefore, providing excellent the burdens of treating an illness outweigh
humane care to patients near the end of life, the benefits—the goal of a patient’s care may
when curative means are either no longer change from curing to comfort, so that the
possible, or no longer desired by the patient, patient can find solace in the time remaining
is an essential part of medicine. and achieve personal goals at the end of life.
Medical organizations all over the world Many patients die with high ‘symptom
recognize that most people near the end of life burden’—such as severe pain, weakness,
want to live as fully as they can. They want their fatigue, anorexia, weight loss, and dyspnea—of
health care providers to honor their wishes and preventable suffering. Family members often
goals, and to help them maintain their dignity experience social and financial devastation,
and independence while relieving symptoms having to quit a job, or suffering major losses of
and maximizing comforts. income, or savings because of life-threatening
For physicians and health care providers, illness.
to provide excellent care to dying patients and Recent studies indicate that not only
their families, they need expertise as well as doctors seem reluctant to speak to patients
compassion.* Physicians who care for dying about death, but also that they give inaccurate
patients often find this work fulfilling, a source optimistic views about the future course of the
of pride, and even a privilege.1 illness. Physicians acknowledge that it is easier
*As Sir William Osler stated, our goal as physicians is "to cure sometimes, to relieve often, and to comfort always."

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304  Section 7: Palliation and Bereavement
to continue treating than to make a decision to degree of technologic intervention at the end
stop, thus avoiding difficult conversations or stage of life.
ethical decisions,5 thus delaying timely sharing Typically, family physicians provide care
of information and referral to appropriate through life, which strengthens their trusting,
palliative care services.6 ongoing relationship with most of the family
Palliative care is an important means of members over time. Thus, they are skilled
relieving symptoms that result in undue suffering advocates for patients and their families in all
and frequent visits to the hospital or clinic. Lack aspects of health care. Also, by virtue of their
of palliative care results in untreated symptoms training and practice, family physicians are in
which hamper individual’s ability to continue a unique position to champion the philosophy
his/her activities of daily life. At the community of terminal care to their families. A key feature
level, lack of palliative care places an unnecessary of family physicians is their ability to provide
burden on hospital or clinic resources.7 patients the essential care at home.9,10
Providing end-of-life care services improves Another area wherein family physicians can
patient and family satisfaction while reducing gainfully utilize their expertise is in the field of
overall costs through decreased use of acute pediatric palliative care.11,12 Although the pattern
hospital care. Contrary to some expectations, of morbidity and mortality in children may be
studies demonstrate palliative care significantly different from those in adults, it is the parents
prolongs life among selected patient populations. who are usually the main guardians for ailing
Studies have shown that patients who received children, with care taking place at home.13 Many
early palliative care in the ambulatory care children have prolonged ‘life-limiting illness’
setting, as compared with patients who for which no curative treatment is available and
received standard oncologic care, would have in which premature death is likely, e.g. cerebral
a better quality of life, lower rates of depressive palsy, mucopolysaccharoidise, cystic fibrosis and
symptoms, and less aggressive end-of-life care.8 HIV/AIDS.14,15 The intimate family relationship
which the family physicians develops with
Special Role of the Family such suffering families facilitates them to play
Physician an active palliative role, providing support to
the ailing child, child’s siblings and the family
The family physician is an ideal person to
members.
manage palliative care for a variety of reasons,
such as availability, knowledge of the patient
and family, and the relevant psychosocial What is Palliative Care?
dynamics of the family. Besides, by virtue Modern Palliative care has its origin in the
of their lifelong association with patients, opening of St. Christopher’s Hospice in
most family physicians practice some form London in 1967, under the leadership of Cicely
of palliative care, although variations exist in Saunders.* The first patient was admitted on
different health care settings regarding the 13 July 1967 and the official opening followed

*Born 22 June 1918 in Barnet, England, Dame Cicely was trained as a nurse, a medical social worker and
finally as a physician. She was involved with the care of patients with terminal illness since1948. She is
recognized as the founder of the modern hospice movement She founded St. Christopher's Hospice in
1967 as the first research and teaching hospice linked with clinical care, pioneering the field of palliative
medicine. During her career, Saunders received many awards for her pioneering work, including the
Templeton Prize in 1981, and wrote and edited a number of books on her subject. She was made a Dame
of the British Empire by Queen Elizabeth II in 1980.Dame Cicely died on 14 July 2005 at St Christopher's
Hospice, London.

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Chapter 31: Palliative Care: Principles 305

disease. Since, it emphasizes that the dying


The History of Palliative Care
process is a part of life, the expression ‘end-of-
In the early development of medical care, palliative
care was one of the few effective services physicians life-care’ is preferred by some authors.16 End-of-
could provide. Physicians were unable to offer cures life care is provided to patients in the last days,
for most life-threatening illnesses but worked instead, weeks, and months of life.
within the long tradition of “healers,” to provide solace
and comfort to the ill. The ‘spectrum of palliative services’
With the emergence of medicines and technologies includes palliative care that can be provided
that enabled physicians to postpone death of many both by hospice programs and by non-hospice
patients, the focus of medical care shifted to curative care, across all medical settings, including in
attempts.
the hospital, at home, and in nursing facilities.
More recently, the realization that for some there
may be “fates worse than death” (that is, prolonged There are various definitions of palliative
unrelieved suffering, overly aggressive technological care. The most straightforward is that of the
intervention, and loss of dignity at the end of life) has National Council for Hospice and Specialist
led to the modern hospice movement.
Palliative Care Services, which is based on
Palliative care is a further development of this
idea, recognizing that an either/or choice between
an earlier definition from the World Health
curative care and hospice care is neither necessary Organization:17
nor desirable for most people with terminal illness
“Palliative care is the active total care of
Source: Palliative Care in California: Fundamentals of patients whose disease is not responsive to
Hospital-Based Programs. Web site: http://www.chcf.org/~/
media/MEDIA%20LIBRARY%20Files/PDF/P/PDF%20
curative treatment. Control of pain, of other
PalliativeCareFundamentals.pdf symptoms and of psychological, social and
shortly on 24 July 1967. A holistic approach, spiritual problems is paramount. The goal of
caring for a patient’s physical, spiritual and palliative care is achievement of the best possible
psychological wellbeing, marked a new ‘quality of life’ for patients and their families”.
beginning, not only for the care of the dying but A ‘holistic approach’, i.e. ‘patient centered
for the practice of medicine as a whole. Since approach’ (biopsychosocial model—Table
then palliative care has developed around 31.2), rather than a ‘disease centered approach’
the world;* and has irreversibly improved the (biomedical mode), is the underlying
standards of care for the dying. philosophy of palliative care.** It is concerned
However, as palliative care has developed with physical, psychological, social, and
in different ways in different countries, spiritual aspects of care. The patient is not seen
questions have been raised as to how palliative as an individual, but as a part of a family unit.
care should be defined, what it should be Interdisciplinary team, generally consisting
called —is it synonymous with terminal care, of nurses, social workers, home health aids,
care of the dying, end-of-life care, hospice care; physical therapists, personal caregivers,
and what is its scope. chaplains, volunteers, and the patient’s family;
The terms ‘palliative care’, ‘care of the dying’ working and supporting each other achieve
and ‘end-of-life-care’ imply a focus on care of effectively the holistic approach to the patient’s
the whole person who is approaching death care, and this is the principle which has been
rather than on an attempt to cure the underlying central to the development of palliative care.

*Ref. web sites: http://www.medhealthwriter.com/_mgxroot/page_10814.html;


http://www.carebeyondcure.org/inindia.htm; and
http://www.hospicecare.com/global-palliative-care/global-directory-of-education-programs/
**Ref. Chapter 8: The spectrum of clinical diagnosis

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306  Section 7: Palliation and Bereavement
In practical terms, the fundamentals of The overall philosophy of palliative care
palliative care can be described as: symptom fit the chronic disease model, i.e. any place,
control, rehabilitation, continuity of care, any time; outpatient, inpatient, or the home,
and terminal care. This process emphasizes with home care supported with other medical
that palliative care, which begins long before and paramedical systems; regardless of the
end-stage care, and instituted throughout the prognosis, whether the goal is to cure disease,
course of any serious, chronic, and terminal or manage chronic illness.
illness for which curative treatment is neither
possible nor appropriate, and from which Principles of Palliative Care22
death is certain. This varies from a few days to
(Table 31.1)
many months.
The United Kingdom’s Policy Framework Palliative care improves the quality of life of
for Commissioning Cancer Patients18 states patients and families who face ‘life-threatening
that, “Palliative care should not be associated illness’, such as cancer, congestive heart failure,
exclusively with terminal care. Many patients chronic obstructive pulmonary disease, kidney
need it early in the course of their disease, failure, Alzheimer’s, Parkinson’s, Amyotrophic
sometimes from the time of diagnosis. The Lateral Sclerosis and many more.
palliative care team should integrate in a Palliative care focuses on relief of symptoms
seamless way with all cancer treatment such as pain, shortness of breath, fatigue,
services to provide the best possible quality constipation, nausea, loss of appetite, difficulty
of life for the patient and their family.” A sleeping and depression, and provides spiritual
shared-care approach between palliative and psychosocial support to the end of life and
care specialists and other disciplines has bereavement. Palliative care:
been found to be helpful in ensuring that
™™ Provides relief from pain and other
care is adaptive and responsive throughout
distressing symptoms
the patient’s disease trajectory, particularly
™™ Affirms life and regards dying as a normal
where there is a complexity of symptoms.
Therefore, the overall scope of palliative care is process
much broader and may be needed for months ™™ Intends neither to hasten or postpone
or even years.19,20 The relationship between death
palliative and curative care is depicted in ™™ Integrates the psychological and spiritual
Figure 31.1.21 aspects of patient care

Fig. 31.1  The scope of palliative care

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Chapter 31: Palliative Care: Principles 307
Table 31.1  Principles of palliative care Table 31.2  Biopsychosocial model23
Holistic Care of the body, mind and spirit; • Physical:
approach focusing on social, emotional, Cultural,
–– Relief of symptoms—both pain and non-pain
and spiritual aspects of care, supported
symptoms
by an interdisciplinary team and training
• Psychological:
Quality of Patient centered approach, incorporating
life respect for patients’ values and –– Safety—feeling of security
preferences, promotes autonomy in –– Understanding—explanation about symptoms/
decision making, and attends to the disease; opportunity to discuss the process
needs of physical and emotional support of dying
Ongoing Ongoing end-of-life-care to illness –– Self-esteem—involvement in decision-making;
care to such as cancer, AIDS, cardiac failure, opportunity to give as well as to receive
Life- dementia, cerebral palsy, cystic • Social:
threatening fibrosis, metabolic disorders and
and life- many more –– Acceptance—non-condemnatory attitude in
limiting the guardians, regardless of one’s mood,
illness appearance, or social class
–– Belonging—a feeling of need; not a burden
Patients Helps the patient and family understand
and the illness and choices for care, –– Disengagement—to hand over responsibility
families offers guidance and support with to others; to tie up lose ends in business and
difficult medical decisions, assists with family matters
communication between medical staff, • Spiritual:
ease transition between healthcare
–– Love—expression of affection, touch
settings, offers compassionate family
support –– Reconciliation—to seek forgiveness
–– Self worth—knowledge that one is loved and
valued
™™ Offers a support system to help patients live
–– Purpose—feeling one’s life has meaning and
as actively as possible until death direction
™™ Offers a support system to help the family
cope during the patients illness and in their
complex medical tasks and decisions related
own bereavement
to the terminal illness, which have significant
™™ Uses a team approach to address the needs
impact on suffering and the quality of living
of patients and their families, including
and dying.
bereavement counseling, if indicated
The medical tasks and decisions related
™™ Will enhance quality of life, and may also
to end-of-life are often the most challenging
positively influence the course of illness
for terminally ill people and those who care
™™ Is applicable early in the course of illness,
about them. However, each of these decisions
in conjunction with other therapies that
should ideally be considered in terms of the
are intended to prolong life, such as
relief of suffering and the values and beliefs of
chemotherapy or radiation therapy, and
the dying individual and his/her family. These
includes those investigations needed to
mainly include the following:
better understand and manage distressing
™™ When death is approaching—diagnosing
clinical complications.
death
™™ Patient family involvement—shared
Tasks in Palliative Care and Care decision-making
of the Dying ™™ Symptom management
As people approach the end of their lives, ™™ Support of family careers
physicians and their families commonly face ™™ Support after death.

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308  Section 7: Palliation and Bereavement
When Death is Approaching: Table 31.3  Karnofsky performance status25-27

Diagnosing Dying20 Able to carry on Normal no complaints; no


normal activity 100 evidence of disease
Healthcare professionals (HCPs) have an and to work;
90 Able to carry on normal
important role in helping patients understand no special care
activity; minor signs or
needed
that their lives are ending. This information symptoms of disease
influences patient’s treatment decision and 80 Normal activity with effort;
changes how they may spend their remaining some signs or symptoms of
disease
life span. However, diagnosing dying is often a
complex process because even in the terminal Unable to work; 70 Cares for self; unable to
able to live at carry on normal activity or
stages various illnesses have variable and home and to do active work
difficult to predict prognosis. Nonetheless, care for most
60 Requires occasional assist­
clinical experience, epidemiological data, personal needs;
ance, but is able to care for
varying amount
guidelines from professional organizations, like most of his personal needs
of assistance
Hospice Centers, Computer Based Prediction needed 50 Requires considerable
Tools, Karnofsky Performance Status,* (Table assistance and frequent
medical care
31.3) and the Eastern Cooperative Oncology
Unable to care 40 Disabled; requires special
Group (ECOG) performance status (Table 31.4) for self; requires care and assistance
may be employed which help HCPs and patients equivalent of
30 Severely disabled; hospital
identify the end period of their lives. institutional or
admission is indicated
Recognizing the key signs and symptoms hospital care;
although death not imminent
disease may
is an important clinical skill in diagnosing be progressing 20 Very sick; hospital admission
dying. The dying phase for some disease can rapidly necessary; active supportive
treatment necessary
be precipitous, e.g. massive hemorrhage and
myocardial infarction; but is usually preceded 10 Moribund; fatal processes
progressing rapidly
by a gradual deterioration in functional status.
0 Dead
The following symptoms (Table 31.5) and signs
of active phase of dying (Table 31.6) are often
and then refocus care appropriately for the
associated with the dying phase, i.e. disability or
patient.
disease that is progressively worse until death.
In the course of patient’s terminal illness,
Patient—Family Involvement:
physicians do come across some barriers,
which either delay or prevent diagnosing dying Shared Decision Making**
(Table 31.7). In caring for patients at the end of life,
Once dying has been diagnosed, physicians physicians and health team members face
need to overcome the said barriers (Table 31.8) a number of unforceable situations in the

*The Karnofsky Performance Scale Index allows patients to be classified as to their functional impairment.
This can be used to compare effectiveness of different therapies and to assess the prognosis in individual
patients. The lower the Karnofsky score, the worse the survival for most serious illnesses.
**‘Shared decision making’ is a process in which clinicians and patients work together to select tests,
treatments, management or support packages, based on clinical evidence and the patient’s informed
preferences. It involves the provision of evidence-based information about options, outcomes and
uncertainties, together with decision support counselling and a system for recording and implementing
patients’ informed preferences. Source; Angela Coulter: In ‘Evidence: Helping people share decision
making’ June 2012; published by the Health Foundation, 90 Long Acre, London WC2E 9RA.

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Chapter 31: Palliative Care: Principles 309
Table 31.4  ECOG performance status Table 31.6  Signs of active phase of dying
Grade ECOG • Coma (inability to arouse patient at all) or, semi-
coma (ability to only arouse patient with great
0 Asymptomatic: Fully active, able to carry effort but patient quickly returns to severely
on all pre-disease performance without unresponsive state)
restriction • Agitation, hallucinations
1 Symptomatic but completely ambulatory: • Apnea (transient cessation of respiration),
Restricted in physically strenuous activity Cheyne-Stokes (cycles of respiration that are
but ambulatory and able to carry out work of increasingly deeper then shallower with possible
a light or sedentary nature, e.g. light house periods of apnea)
work, office work • Patient breathing through wide open mouth
continuously and no longer can speak even if
2 Symptomatic, <50% in bed during the day: awake
Ambulatory and capable of all self-care but • Death rattle (severely increased respiratory
unable to carry out any work activities up congestion or fluid buildup in lungs
and about more than 50% of waking hours • Dysphagia (inability to swallow any fluids at all and
not taking any food by mouth voluntarily as well)
3 Symptomatic, >50% in bed, but not • Urinary or bowel incontinence in a patient who
bedbound: Capable of only limited self-care, was not incontinent before
confined to bed or chair more than 50% of • Oliguria (marked decrease in urine output and
waking hours darkening color of urine or very abnormal colors
4 Bedbound: Completely disabled. Cannot such as red or brown)
carry on any self-care. Totally confined to • Blood pressure (BP) dropping dramatically from
bed or chair patient’s normal BP (more than a 20 or 30 point
drop)
5 Dead • Systolic blood pressure below 70 mm Hg, diastolic
blood pressure below 50 mm Hg
Table 31.5  Symptoms that can occur when a person • Patient’s extremities (such as hands, arms, feet
enters the dying phase and legs) feel very cold to touch
• Cyanosis or a bluish or purple coloring to the
• Profound weakness patients arms and legs, especially the feet and
hands
• Withdrawal from the world
• Jaw drop; the patient’s jaw is no longer held
• Reduced cognition straight and may drop to the side their head is
• Reduced levels of consciousness lying toward
• Reduced intake of diet and fluids
Note: Hearing may be one of the last senses to be lost
• Difficulty with swallowing medications
- even up till the very end, even though he/she cannot
• Retained bronchial secretions (death rattle) respond by speaking.
• Increased nausea and vomiting Source: Hospice patients alliance. Web site: http://www.
• Terminal agitation hospicepatients.org/hospic60.html
• Reduction in urine output
• Cessation of bowel movement different. However, in such terminal care
of patients, physician must appreciate the
Source: Sykes (2004); The National Council for central role played by the patient and, where
Palliative Care (2006); Marie Curie Palliative Care
Institute (2007); Clark and Butler (2009); Morris (2009) appropriate, by family members in the process
of decision making policies; e.g. where the
process of decision making policies about patient may wish to die, statements regarding
how best to proceed with treatment, e.g. will, decisions regarding futile treatment
what patients choose for themselves may and/or life-sustaining measures and organ
not be in unison with what the family or donation.
physicians believe should be done. Even Initiating discussions on the transition
between seemingly similar individuals, from curative care to palliative care can be
treatment options may prove to be radically stressful for doctors, patients and families.

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310  Section 7: Palliation and Bereavement
Table 31.7  Potential barriers to diagnosing dying Table 31.8  Overcoming barriers to diagnosing dying29

• Hope that the patient may get better • Work together – be a member of a multi
• Concerns about with-holding or withdrawing professional team
treatment • Communicate sensitively on issues related to
• Concerns about having the resuscitation death and dying
conversation • Recognize key signs and symptoms of the dying
• Continuation of unrealistic and futile interventions patient (Tables 31.5 and 31.6)
• Disagreement about the patient’s condition among • Prescribe appropriately for dying patients:
professionals –– Discontinue inappropriate drugs
• Failure to recognize key symptoms and signs –– Prescribe essential drugs, including for pain,
• Lack of knowledge and/or experience of the agitation, nausea, and vomiting
clinician particularly around end of life prescribing –– Prescribe subcutaneous drugs for delivery by
• Inability to communicate with the patient and/or a syringe driver
their relatives • Consult “Ethical and Medicolegal Committee”
• Fear of shortening life or of litigation that deals with issues related to dying patients,
• No definitive diagnosis resuscitation withholding and withdrawing
• Cultural or spiritual barriers treatment, fore shorting life and fatality.
• Refer appropriately to a specialist palliative care
team.
Most patients desire doctors to discuss these
issues. They may not ask about it openly
because of anxiety or fear of adverse impact. Table 31.9  Useful questions for determining terminally
ill patient’s needs and wishes
However, physicians should voluntarily and
tactfully explore reasons for such a request and • Are you comfortable with the present care?
• What has been most difficult about this illness
ask the patient, “Do you have any questions?”
for you?
(Table 31.9). The challenge for doctors’ is to • What do you fear most?
maintain open communication and ‘shared • How is your family dealing with your illness?
decision making’ with patients’ and family • What is your highest priority?
• What would you like to accomplish in the time left?
members at this very sensitive time. Physicians • How can I help you achieve this?
need merely to listen, accept the patient’s • Is religion important to you?
feelings, and respond to their questions • Do you need assistance of priest?
positively and honestly, e.g. “I will keep you
as comfortable as possible”, “I will do my best
to fulfill your wish”.
Identification and Management of
Physicians can also help formalities in Symptoms (Table 31.10)
various other areas of decision making by A marked proportion of patients (though not
modifying their approach. For examples, all) will develop new symptoms or worsening of
™™ Improving communication—listen existing symptoms. Patients may not mention
carefully to family members, provide these to the physician on the assumption
guidance, particularly when the patient is that nothing can be done to help, or they
no longer able to make decisions about his/ may be exhausted and forget to mention.
her own healthcare Full examination may cause discomfort, so a
™™ Facilitate advance care planning by focused examination should be carried out.
focusing on patient’s wishes and discussion Investigations have little if any role to play
with the family members in the end of life care. Common symptoms
™™ Facilitate legal advance directives, e.g. include:
execution of a living will, organ donation, ™™ Pain
autopsy and funerals. ™™ Agitation or restlessness
™™ Following up with family after death. ™™ Confusion

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Chapter 31: Palliative Care: Principles 311
Table 31.10  Symptoms, drugs used and management
Symptom Drugs and Treatment Comments
Pain • Paracetamol Opioids are the mainstay of pain
• NSAIDs management; combinations of NSAIDs and
• Tricyclic Antidepressants (nortriptyline, opioids are most commonly used. Respiratory
desipramine) depression uncommon. Concurrent use of
• Anticonvulsants (gabapentin) PPIs helpful to prevent gastrointestinal (GI)
• Opioids (morphine-oral/parenteral; hydro­ side effects. Steroids for nerve blocks in
codone, codeine; tramadol; fentanyl) neuropathic pain
• Steroids
Dyspnea • Opioids (including aerosolized morphine) Address underlying cause, e.g. cardiac
• Anxiolytics/Benzodiazepines disease, pneumonia, effusion, bronchospasm
• Oxygen
• Complementary Therapy (relaxation
technique)
Nausea & • Metoclopramide Reduce opioid dosage; address reversible
Vomiting • Cyclizine cases, such as constipation, hypocalcemia;
• Ondansetron stop all non-essential drugs
• Haloperidol
• Promethazine
• Steroids
Constipation • Bisacodyl/Senna Increase patient activity, fluid, intake, dietary
• Lactulose fiber; modify opioid dosage; provide privacy,
• Sorbitol toilet training
• Magnesium Citrate
• Enema
Confusion • Haloperidol Many causes, e.g. metabolic disorder,
• Chlorpromazine infection, side effect of a medication
Agitation, • Lorazepam Many causes: as above
Restlessness, • Midazolam
Delirium • Haloparidol
Noisy breathing/ • Hyoscine Dying with suffocation must be avoided
Death rattles • Glycopayrrolate
• Suction
Urinary • Catheterization
Incontinence/
Retention
Dry/Sore mouth • Good oral hygiene Rule out oral thrush
• Frequent Moistening
• Frequent sips of liquids
• Ice cubes
• Artificial saliva
Extreme fatigue • Steroids In selected cases blood transfusion may be
considered

™™ Dyspnea Care of the dying patients should focus


™™ Dyspepsia on the relief of symptoms, not limited to
™™ Extreme fatigue pain, and should use both pharmacological
™™ Noisy breathing and non-pharmacological means. There are
™™ Bladder—urinary incontinence/retention a variety of alternative and complementary
™™ Dry or sore mouth treatments available (TENS, acupuncture,
™™ Constipation. aromatherapy massage, hypnotherapy, etc.)

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312  Section 7: Palliation and Bereavement
and local resources will vary. Many hospices ™™ Provide physical treatment as necessary, e.g.
and hospitals now offer these treatments— pleural tap, paracenthesis and nerve block.
even for outpatients. ™™ Provide complementary conservative
A multispecialty team approach to assess therapy e.g. massage, physiotherapy,
and evaluate the symptom disability helps occupational therapy, dieting advice,
to overcome or ameliorate the problems by relaxation therapy
employing innovative therapeutic techniques ™™ Close follow-up and review regularly.
and creative solutions to restore or improve
the quality of life; e.g. many patients are unable Support of Family and Carers
to swallow drugs during dying phase, and Family caregivers, who are patients’ relatives
medications must be given by parenteral and friends (commonly called as ‘carers’)
route, such as transdermal route, continuous are actively involved in caring for their loved
subcutaneous infusion, or syringe driver (Table ones and play a significant and arguably
31.11). Drugs that can be administered using most important role in enabling patients
syringe drivers include clonazepam, cyclizine, to make choices about their place of care
diamorphine, dexamethasone, glycopyrronium, during advanced disease and in the terminal
haloperidol, hyoscine, ketamine, ketorolac, phase. Family carers invest a great deal of
metoclopramide, midazolam, morphine, their time on emotional and social support
octreotide, ondansetron, and oxycodone.* as well as on assisting in the provision of
Symptoms should be treated as vigorously personal care and offer domestic support
as is appropriate to the patient’s situation and like home maintenance, meal delivery and
preferences to maximize comfort, even if the transportation. Their involvement provides
unintended effect of these efforts is on rare warmth and helps to cope with their physical,
occasions hastening of deaths. psychological and emotional needs. It also
The general principles of symptom provides an opportunity to say ‘goodbye’.
management can be summarized as follows:
™™ Determine the cause Support after the Death
™™ Offer suitable explanation of symptoms
Physicians must always show sympathy and
™™ Treat simply as much as possible
listen to relatives patiently and be prepared to
™™ Give medication regularly round the clock
go through what has happened again. Avoid
and ‘add on’ drugs when indicated harsh and insensitive words. Relatives may
Table 31.11  Syringe driver—indications feel utterly sad, numb and be thankful that
their relative’s suffering is over. Remember to
• Acute pain
• Nausea and vomiting acknowledge that all such feelings are normal.
• Dysphagia Explain about the administrative procedures
• Intestinal obstruction like obtaining death certificate, registering
• Other inability to swallow or absorb drugs
• Rectal route inappropriate death and funeral arrangements. Bereaved
• Semi-comatose/comatose patient family members highly value a physician
• Patient convenience (e.g. massive doses of condolence telephone call, letter, or visit, as
morphine)
• Terminal stage debility
well as attendance at the patient’s funeral.
This solace is found to improve bereavement
Note: It is important to seek expert advice before outcome. Encourage the family to be in touch
initiating a syringe driver. with the primary care team who knows the
*Details are available at the web site: http://www.elmmb.nhs.uk/palliative-care/

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Chapter 31: Palliative Care: Principles 313

family for several years and be able to offer Psychological Issues


ongoing support. ™™ Assess patients’ ability to communicate
Dams Cicely Saunders, a pioneer in the clearly in native language
modern palliative care movement once said, ™™ Ascertain patient has the insight and status
“How people die remains in the memories of the illness
of those who live on”. Therefore, physicians ™™ Establish communication with patients’
have a special responsibility and fundamental family and social circle of friends,
opportunity to pay special attention to grief guardians, and well-wishers—both young
and bereavement following death of a loved and old.
one. Thus, in caring well for family caregivers
at the end of life, physicians not only improve Religious and Spiritual Support
the experiences of patients and family, but also ™™ Assess religious and spiritual needs with
find greater substance and meaning in their patient and family.
own work.
Communication with Family and
The Limits of Care at the
Family Doctor
End of Life30
™™ Identify how family and other people
The care at the end of life is not passive but an
involved are to be informed of patient’s
active and potentially exhausting act. Many
impending death
physicians find it the most rewarding aspect of
™™ Provide necessary hospital death pro­
their practice. However, they must recognize
cedure information
and respect their own limitation and attend
™™ Keep updating the family physician about
to their own needs in order to avoid being
patient’s condition.
overburdened, distressed, or emotionally
depleted. Physicians should learn that care
Conspiracy of Silence
of patients at the end of life is not solely their
responsibility. It is a multidisciplinary care Although, respect for individual and cultural
involving physicians, physical and occupational differences in attitudes toward death and dying
therapists, nurses, psychologists, dieticians, is considered an essential aspect of appropriate
social workers and volunteers, who co-ordinate care for terminally ill patients, physicians and
their skills and support one another. healthcare workers often find caring family
members desiring not to disclose the diagnosis
Summary of Tasks for the Patients to the patients. Statements such as, “We do not
in the Dying Phase20 want my father to know the diagnosis because
Physical (Comfort) Measures we are sure he will not be able to take it and will
develop depression with suicidal tendency”,
™™ Assess current medication, discontinue are common requests from patient’s family
non-essentials members. Frequently, the patient’s ability to
™™ Discontinue inappropriate interventions know the truth is underestimated. The patient
(e.g. lab tests, IV Fluids, invasive monitors) may already suspect the truth, but also tries to
™™ Document DNAR, i.e. Do not attempt spare the family members the pain of knowing
resuscitation that the diagnosis and prognosis are already
™™ Administer subcutaneous drugs as per the known to him/her. Thus, a ‘conspiracy of
protocol (pain, agitation, nausea, vomiting, silence’ is developed to protect the patient.
respiratory tract secretions). Further, conspiracy of silence is prevalent in our

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314  Section 7: Palliation and Bereavement
society because families are usually concerned Effective palliative care requires a broad
about the coping needs of the patients. Also, multidisciplinary approach that includes the
the economic and cost-effective outcomes, family and makes use of available community
although well meant, results in a heightened resources.
state of fear, anxiety and confusion—not The palliative team:
one of calm and equanimity. Ambiguous or ™™ Provides relief from pain and other
deliberately misleading information may afford uncomfortable symptoms
short-term benefits while things continue to go ™™ Assists in making difficult medical decisions
well, but denies individuals and their families’ ™™ Coordinates care with other doctors and
opportunities to reorganize and adapt their lives helps navigate the often-complex health
toward the attainment of more achievable goals, care system
realistic hopes, and aspirations. ™™ Guides in making a plan for living well, based
Therefore, in recent years, there has been a on your needs, concerns and goals for care
trend toward candor and straightforwardness
™™ Provides emotional and spiritual support
with patients. Truth disclosure is fast becoming
and guidance
the accepted pattern. In general, the physician
End-of-life concerns, such as where the
shall disclose the diagnosis to the patient and
patient may wish to die, decisions regarding
with due care, circumspection and responsibility
futile treatment and/or life sustaining
inform the most likely prognosis. The physician
measures and organ donation should be
shall also inform the closest relatives or
addressed openly and honestly, with support
whomever the patient designates. It might be
offered according to the patient’s and family’s
sensible not to immediately communicate a very
cultural and religious values.
poor prognosis, for the benefit of the patient,
although this approach should be considered
References
exceptional in order to safeguard the right of the
patient to decide about his future. Another policy 1. American Geriatrics Society (AGS) Position
Statement. The Care of Dying Patients Ags
that can be followed for solving family-related
Ethics Committee. Last updated 2007.
barriers to truthfulness in cases of terminal
2. Billings JA. Palliative care Recent Concepts.
illness is that health professionals communicate
BMJ, 2000;321:555–8.
with families first and discuss the possible
3. Field MJ, et al – Committee on care at the end of
emotional reactions from patients, give patients
life. Institute of Medicine. Approaching death:
enough time to reflect on their sicknesses Improving care at the end of life. Washington
and discuss further what patients have been DC: National Academy Press, 1997.
told, and then disclose information, based on 4. Desbiens NA, et al. SUPPORT investigators. The
patients’ expectations and support them. Thus symptom burden of seriously ill hospitalized
the consensus is - at a time when a terminally ill patients. J Pain Symp. Manag, 1999;17:225–48.
patient most needs closeness with loved ones, a 5. Anne Simmonds, Director, Chaplaincy
lie may serve to push them apart.31,32 Services, Decision-Making by Default :
Experiences of Physicians and Nurses with
Conclusion Dying Patients in Intensive Care. J of the art
and science of medicine, vol 12, no.4.
Palliative care is an approach that improves 6. Christakis, et al. Extent & Determination of
the quality of life of patients and their families error in doctor’s prognosis in terminally ill
facing the problem associated with life- patients: prospective cohort study BMJ, 2002;
threatening illness. 320:469–73.

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Chapter 31: Palliative Care: Principles 315
7. WHO web site: http://www.who.int/hiv/ 19. Rabow MW, et al. Palliative care & Pain
topics/palliative/PalliativeCare/en/ management. In: McPhee SJ et al (Eds) Current
8. Temel JS, et al. Early palliative care for patients Med Diag & Treat, 2009.pp.73.
with metastatic non-small-cell lung cancer. N 20. Benjamin L. Pain management in sickle
Engl J Med, 2010;363(8):733–42. doi: 10.1056/ cell disease: palliative care begins at birth?
NEJMoa1000678.[PMID:20818875: Free Article]. Hematology Am Soc Hematol Educ Program.
9. Mitchell GK . How well do general practitioners 2008;2008:466–74. [PMID: 19074128: Free full
deliver palliative care? A systematic review. text].
Palliat Med, 2002;16(6):457–64. [PMID: 21. A New Vision Of Palliative Care NHWG;
12465692: Abstract]. Adapted from the Canadian Palliative Care
10. Murray SA, et al. Internationally, it is time to Association & Frank Ferris, MD
bridge the gap between primary and secondary 22. WHO Palliative care web site: http://www.who.
healthcare services for the dying. Ann Acad int/cancer/palliative/en/
Med Singapore, 2008;37(2):142–4. [PMID: 23. Working Party Report. Mud & Stars. Oxford:
18327351: Abstract]. Sobell Publications, 1991.
11. The Royal College of Pediatrics and Child
24. Paul Glare, et al. A systematic review of
Health. A guide to the development of children’s
physicians’ survival predictions in terminally ill
palliative care services. London: RCPCH, 1997.
cancer patients BMJ, 2003;327:195 (Published
12. Jennings PD. Providing pediatric palliative
24 July 2003)
care through a pediatric supportive care team.
25. Crooks V, et al. The use of the Karnofsky
Pediatr Nurs, 2005;31(3):195–200 [PMID:
Performance Scale in determining outcomes
16060583: Abstract].
and risk in geriatric outpatients. J Gerontol,
13. Vickers J, et al. Place and provision of palliative
1991;46:M139–M144.
care for children with progressive cancer:
26. Oxford Textbook of Palliative Medicine, Oxford
a study by the Paediatric Oncology Nurses’
University Press, 1993;109.
Forum/United Kingdom Children’s Cancer
Study Group Palliative Care Working Group. 27. Schag CC, et al. Karnofsky performance status
J Clin Oncol, 2007;25(28):4472–6. [PMID: revisited: Reliability, validity, and guidelines. J
17906208: Free full text]. Clin Oncology, 1984;2:187–93.
14. Menon BS, et al. Pediatric cancer deaths: 28. Oken MM, et al. Toxicity And Response Criteria
curative or palliative? J Palliat Med, 2008; Of The Eastern Cooperative Oncology Group.
11(10):1301–3. [PMID: 9115887: Abstract]. Am J Clin Oncol, 1982;5:649–55.
15. Muenzer J et al. Mucopolysaccharidosis I: manage­ 29. Ellershaw J, et al. Care of the dying patient: the
ment and treatment guidelines. Pediatrics, last hours or days of life. BMJ, 2003;326:30–34.
2009;123(1):19–29.[PMID: 19117856: Abstract]. 30. Rabow MW, et al. Care at the End of Life. In:
16. Rahow MW, et al. Pallitive care & pain Tierney LM Jr, et al (Eds); Current Med Diag &
management. In: Stephen J, et al (Eds) Current Treat, 2001.pp.111.
Med Diag & Treat, 2009.pp. 83. 31. Hu WY, et al. Solving family-related barriers
17. WHO Expert Committee. Cancer pain relief and to truthfulness in cases of terminal cancer in
palliative care. No. 804. Geneva: World Health Taiwan. A professional perspective. Cancer Nurs,
Organization Technical Report Series, 1990. 2002;25(6):486–92. [PMID: 12464841: Abstract].
18. We b s i t e : h t t p : / / w w w . d h. g ov. u k / e n / 32. Fallowfield LJ, Truth may hurt but deceit hurts
Publicationsandstatistics/Publications/ more: communication in palliative care. Palliat
PublicationsPolicyAndGuidance/ Med, 2002;16(4):297–303. [PMID: 12132542:
DH_4071083. (Accessed on 19-01-20090). Abstract].

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32 PALLIATIVE HOME CARE

“Palliative care at home embraces what is most noble in medicine: sometimes curing, always relieving,
supporting right to the end.”
Gomas 1993
“Let’s not assume people need to be moved up and down a continuum. The less we move people the easier
it will be for them to develop relationships and support systems that will help them maintain recovery. If
there is any moving to do, let’s move the staff instead”.
Ashcraft L et al. Home is where recovery begins. [PMID: 18561620].

Caring at Home—Some including, e.g. nurses, general practitioners,


Considerations social workers, pastoral care workers, volunteers,
working alongside specialists and other
People with serious life limiting illness such community organizations that manage day-
as cardiac disease, respiratory disease, kidney to-day care and support. However, providing
failure, Alzheimer’s, AIDS, neurodegenerative such homogeneous care at home is a great
disorders and other age related problems need commitment as well as a challenge for the family
good palliative care, which is an approach that members and other supporters because caring
improves the quality of life of patients and their at home is a 24 hour a day, 7 day a week job.
families facing problems associated with life- Palliative home care may also get hampered
threatening illness. This is accomplished by for want of good communication with the
way of prevention and relief of suffering, early patient and family, availability and willingness
identification and impeccable assessment of family to care for the patient at home, team
and treatment of pain and other problems, work by all concerned in such care, necessary
physical, psychosocial and spiritual. resources, and taxing finances. Therefore, the
Providing such care, in an institutional family members and other informal supporters
set up such as hospital or hospice*, involving (e.g. family relatives, friends, neighbors, pastors,
multidisciplinary team is much easier due to the and community volunteers) need to consider
infrastructure and immediate support available, resources carefully and plan ahead (Table 32.1).
*Hospice is an institution that provides a centralised program of palliative and supportive services to dying
persons and their families, in the form of physical, psychological, social, and spiritual care; such services
are provided by an interdisciplinary team of professionals and volunteers who are available at home and
in specialised inpatient settings.
Palliative care is not the same as hospice care. Palliative care may be provided at any time during a person’s
illness, even from the time of diagnosis. And, it may be given at the same time as curative treatment. Hospice
care always provides palliative care. However, it is focused on terminally ill patients-people who no longer
seek treatments to cure them and who are expected to live for about six months or less.

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Chapter 32: Palliative Home Care 317
Table 32.1  Can you take care of a terminally ill person Table 32.2  Dignified death**
at home?
“A model of dying with dignity would include at least
Some questions to ask yourself when deciding to the following elements:
undertake end-of-life care of a loved one: • Dying without a frantic technical fuss and bother
• Has the patient set forth his/her preferences for to squeeze out a few more moments or hours of
end-of-life care that include remaining at home? biological life, when the important thing is to live
• Is qualified, dependable support available to out one’s last moments as fully, consciously, and
ensure 24-hour care? courageously as possible
• Will your home accommodate a hospital bed, • Dying without that twisting, racking pain that
wheelchair, and bedside commode? totally ties up one’s consciousness and leaves
• Are transportation services available to meet daily one free for nothing and for no-one else
needs and emergencies? • Dying in surroundings that are worthy of a
• Is professional medical help accessible for routine human being who is about to live what should be
and emergency care? one’s “Finest hour”. The environment of a dying
• Are you able to lift, turn, and move your loved patient should clearly say: the technical drama
one? of medicine has receded to the background to
• Can you meet your other family and work give way to the central human drama of a unique
responsibilities as well as your loved one’s needs? human being “wrestling with his God”
• Are you emotionally prepared to care for your • Dying in the presence of people who know how
bed-ridden loved one? to drop the professional role mask and relate to
others simply and richly as a human being.
Adapted from: The Loss of Self: A Family Resource for the
Care of Alzheimer’s Disease, Donna Cohen, PhD, and Carl **David Barnard. Palliative Care: Whole-Person Care of the
Eisdorfer, PhD. Dying Patient. In: World Anesthesia Online. 1998;16(2):1.

Definition* maintenance, social adaptation and integration,


and support for the family caregiver.
WHO defines palliative home care as:1
Home care services help people with
“The provision of health services by
a frailty or with acute, chronic, palliative
formal and informal caregivers in the home
or rehabilitative healthcare needs to
in order to promote, restore and maintain a
independently live in their community. While
person’s maximum level of comfort, function
the majority of clients receiving home care are
and health, including care toward a dignified
seniors aged 65 years and over, home care is
death” (Table 32.2).
provided to individuals of all ages.”
The Canadian Home Care Association
defines Home Care as:2
Home Care: Issues in Developing
“… an array of services, provided in the home
and community setting, that encompass health Countries—is There a Need?
promotion and teaching, curative intervention, Western countries have ‘model palliative care
end-of-life care, rehabilitation, support and teams’** which practice multidisciplinary

*Home care services can be classified into : geriatric care(e.g. instability, disability, incontinence, dementia);
convalescent care (e.g. post-operative); rehabilitative care (e.g. stroke, fracture); maintenance care (i.e. to
prevent deterioration, complications, or to improve clinical outcome); palliative care (i.e. to patients whose
disease is not responsive to curative treatment with poor clinical prognosis expected, their life expectancy is
usually not more than six months); and psychiatric care (e.g. severe dementia, agoraphobia).
**Members of a palliative care team may include professionals from nursing, medicine, social work,
chaplaincy, nutrition, rehabilitation, pharmacy as well as other disciplines. Trained volunteers are
sometimes part of palliative care teams as well. Team leadership, collaboration, coordination and
communication are key elements for effective integration of these disciplines and services.

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318  Section 7: Palliation and Bereavement
approach and also have a very efficient ‘mobile and pain relief are essential to provide good
palliative team’* network.3-6 Therefore, it is quality life for these patients.12
possible to achieve good symptom control and With respect to HIV/AIDS, worldwide, an
give efficient palliative care at patient’s home estimated 34 million people were living with
because physicians and nurses are trained HIV at the end of 2011. Worldwide, 2.5 million
in palliative care in those countries. Besides, [2.2 million–2.8 million] people became newly
‘Macmillan Cancer Support’ project offers infected with HIV in 2011.13
supportive care to not only patients who live With respect to Asian countries, the rate of
with cancer, but also help carers, families, and HIV transmission slowing down; however, an
communities, supporting them every step of estimated 3, 60,000 adults were newly infected
the way.7 with HIV in Asia in 2011, i.e. at least 1,000
However, in developing countries, new infections among adults continue to be
the numbers of palliative care centers are reported in the continent every day in 2011.14
few,** health delivery systems are often Although India has registered 57% reduction
patchy and deficient, medications for pain in new HIV infections during last decade, India
management are not widely available and has the third largest HIV/AIDS epidemic in the
cultural considerations limit opportunities to world. According to the 2008 Government of
face advanced illness and symptom control India national estimates, there are 2.27 million
in terminal illness. 8-10 There are few pain people living with HIV/AIDS. Despite having
relief units, but it is important to realize that a low prevalence rate (estimated adult HIV
palliative care is much more than pain relief— prevalence is only 0.29% of the population),
it’s an investment in whole personal care. with a high population rate and low economic
The magnitude of cancer problem in the growth, an epidemic would take a huge toll in
Indian sub-continent is increasing due to high the region—even small increase in the HIV/AIDS
rates of smoking, tobacco use, occupational rates in India could have global ramifications.
risks, unhygienic residential living conditions, Existing preventive efforts, although improving,
unhealthy life-style factors and inadequate are often insufficiently comprehensive or
medical facilities. The prevalence of cancer inadequately tailored to local epidemics. Further,
in India is estimated to be around 2.5 million, the cost of Highly Active Antiretroviral Therapy,
with approximately 8, 00,000 new cases and although at reduced cost, is a major limiting
5, 50,000 cancer related deaths per annum, factor in continuing drugs, which hastens
and more than 75% of deaths occur at home.11 the emergence of resistance by not adhering
Further, more than 75% of cancers in India to prescribed therapies. Therefore, due to
present in advanced stages and palliative care lack*** or high cost of anti-retroviral therapy, or
*Mobile palliative team covers the whole province; the teams consist of medical doctors, care staff and
social workers who collaborate with the family doctors and the professional and informal carers. Such a
team can be called in by all those concerned, the patients, the relatives, the family doctors, etc., and the
service is free of charge: the costs are covered by the State Health Fund.
**India has witnessed hospices like Shanti Avedhana (Mumbai); Amrita Kripa Sagar Cancer Hospice
(Mumbai); AIMS (Kochi); Cipla (Pune); Pain and Palliative Clinic , Calicut – now a WHO recognized
model of delivery of palliative care for South-east Asia, among a couple of others coming up to meet the
challenge of providing care for the no-cure diseases.
***Over 7 million other people who are eligible for ART still have no access to treatment.
Source: WHO, 10 facts on HIV/AIDS. Nov. 2012. Web site:
http://www.who.int/features/factfiles/hiv/en/index.html (Accessed on 26-06-2013).

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Chapter 32: Palliative Home Care 319

development of anti-retroviral drug resistance, stage chronic diseases needing palliate care.
these patients will die prematurely. It is estimated When chronic life-limiting or terminal
that about 1.48 lakh people died of AIDS related illness advances, the individual’s fear of loss
causes in 2011 in India.15,16 of dignity and perception of being a burden on
Further, as a result of growing elderly others may evolve a desire to die or to commit
population due to increased life expectancy, suicide. Such feeling of despair, isolation,
there is large number of elderly patients with hopelessness, loss of meaning and existential
end stage chronic diseases needing palliate distress, is called ‘demoralizing syndrome’
care. This elderly population with serious (Table 32.3), and commonly associated with
chronic diseases exceedingly needs help at chronic medical illness
the end of life from their potential family care It has been argued that as demoralizing
givers. However, the society is changing with syndrome being diagnosed a specific
one of the most significant alterations being psychiatric condition in the terminal phase of
the disintegration of the joint family and the a terminal illness, there will be an opportunity
rise of nuclear and extended family system. for patients to assist in overcoming these
The break-up of the traditional large family negative emotions. Patients and their families
group and other sociological trends, such as can be regularly supported, comforted, and
urbanization, complicate the situation. indeed palliated by a range of appropriate
Family groups are often intact in rural psycho-social approaches.18
areas, taking care of the older or disabled family
members. In the urban communities, factors Home—the Preferred Choice19-21
such as small family units, limited living space
Recent Cochrane Database has documented
and the younger generations often moving
extensive evidence showing that well over 50%
away from their families because of work
of people prefer to be cared for and to die at
commitments, it’s an onerous task for such a
home provided circumstances allow choice.
family to take care of the older or disabled family
This justifies providing home palliative care
members. The WHO document for “Home care
for patients who wish to die at home.22
in Europe: The solid facts” states: “urbanization
In another study, 23 nearly 90% of the
and the break-up of the traditional large family
subjects preferred to die at home. Quality of
group will lead to gaps in the care of older or
life, availability and ability of family caregivers,
disabled family members. These changes in
concerns of being a burden to others, long-
needs and social structure require a different
standing relationships with healthcare
approach to policy and services in the health
providers, and quality of healthcare were
and social sectors; a disease-oriented approach
the major considerations in decision making
alone is no longer appropriate. Evidence suggests
that disabled and older people tend not to Table 32.3  Demoralization syndrome: Diagnostic
criteria
want institutional care, and families and other
informal carers prefer strongly to continue to care 1. S ymptoms of existential distress, such as
for their dependent family members in a friendly meaninglessness, pointlessness, hopelessness.
2. Sense of pessimism, “stuckness”, helplessness,
environment such as their own homes and local loss of motivation to cope differently
communities.”17 3. Associated social isolation, alienation or lack of
support
4. Phenomena persist over more than 2 weeks.
Demoralizing Syndrome
*1, 2 and 4 are essential for the diagnosis.
As a result of increased life expectancy, there Source: Sahoo S. Demoralization syndrome—A
is large number of elderly patients with end Conceptualization. Orissa Journal Psychiatry, September 2009.

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320  Section 7: Palliation and Bereavement
regarding the place of death. Terminally ill Table 32.4  Home care: Advantages
patients with cancer acknowledged dying • Facilitates psychological transition to palliative
at their preferred place of death as highly phase from curative phase
important. • Enhances patient-centered care, privacy, and
autonomy in their own environment
A chronic illness often leaves the family
• Provides care for the patient and their family
and the patient depleted of their financial as a unit
resources and any further hospitalization adds • Patient spends maximum with family members
to the burden. On the contrary, homebound • Provides maximum symptom control under closer
observation
care reduces admission, length of hospital • S u p p o r t s p a t i e n t a n d f a m i l y m e m b e r s
stays, re-admissions, intensive care unit psychologically and spiritually within their own
admissions, and inappropriate diagnostics environment
• Endeavors to provide overall maximum quality
and interventions. In-home palliative care of life till end
significantly increased patient satisfaction
while reducing use of medical services and
Involvement of Family Physician27
costs of medical care at the end of life.24
A matter of vital importance is the family With the ever-increasing burden of palliative
bondage which is a strong component of care on one side and limited resources available
many societies universally. Although social on the other, the network of palliative care
and cultural life styles are changing, members needs to be extended from few regional centers
of the family are available and willing to to primary care centers in a phased manner
provide care. This is a major strength in with adequate training and availability of basic
family dynamics and every effort must be necessities. In this regard, the important role
made to encourage support and harness these of the family physicians as a result of their
resources, so that the quality of life toward the intimate partnership with the aiding patients
end of life can be maximized by home care— and their family cannot be over emphasized.
when someone with an advanced illness gets By virtue of their lifelong relationship
home palliative care, their chances of dying at with patients most family physicians practice
home more than double.25 some form of palliative care. Family physicians
A key component of palliative care is home- and the primary care team manage 90% of a
based care, which in many resource-limited patient’s palliative care needs. In most cares,
settings is the only way to deliver care to the the patients are ambulatory and seen in
patient. Further, medical facilities often lack doctor’s clinics or in their own homes or other
trained personnel and basic medical supplies community settings. When family physicians
and medications. In these settings, palliative provide palliative care, they bring skills that
care programmes that focus attention on are unique to their broad based practice
integrated community and home-based philosophy. Family physicians provide person-
care, i.e. a sustainable approach to prevent centered, continuous, comprehensive care
the need for unnecessary acute or long-term that is accessible and available at the time of
institutionalization and to maintain people need. A definition proposed by Royal College
in their homes and communities as long as General Practitioners’ Cancer Working Group
possible, is the most efficient and cost-effective of Primary Palliative Care states that:
approach to healthcare delivery.26 “General practitioners, within the context
The practical advantages of home care for of primary care, provide palliative care which
patients with advanced or terminal care are incorporates the palliative care approach and
symmetrized in Table 32.4. in addition uses those skills in consultation,

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Chapter 32: Palliative Home Care 321

diagnosis, treatment and management that expectations of the services, the PCSNs
are peculiar to general practice. These will formulate a care plan. They conduct
include a holistic approach, advocacy, and preliminary interview with patients and
continuity of care and enhanced symptom their families, establish rapport, assess
control as befits the GP’s experience and pain and other symptoms, administer
training. This would be progressed to that drugs and nursing care, educate patients
point where the expertise inherent in specialist and their family members, and act as a
palliative care would be invited to contribute liaison and case managers for various
the patient’s overall care. GPs usually retain services. Physicians and other healthcare
overall responsibility for patient’s care while professionals also visit patients when
the patients remain in their own home or indicated.
similar community base”. ™™ Nursing services: The availability of
nursing services varies widely. In most
How to Get Started and cases daytime nursing care can be provided
Keep Going without much difficulty; but night shift
services are limited. The choice may
There are many Institutes for Palliative Medicine
depend on the complexity of care and the
offering accredited palliative medicine
need for the drugs to be administered.
fellowship training. Fellows who complete the
™™ Communication: For effective coordination
program gain experience in a variety of settings,
of professionals, optimum system of
whether in a hospice inpatient setting, at a
communication is essential. A clear
patient’s home, or in a consultative capacity at
communication of the management plan,
a hospital. This experience prepares the fellow
appropriate drugs, their dosage, and
to work in a leadership role in palliative care,
routs of their administration, and regular
education or research.
monitoring of compliance, and the effect
However, with proper planning and
of treatment are essential to good symptom
support from colleagues, hospital facilities
control at home. In recent years, wide
and community support, a family physician
varieties of methods have been used to
can provide homebound palliative care with
improve communication between the
emphasis on the following essentials:
hospital, hospice, and primary care centers
™™ Core and support team : Identify a
in palliative care. The most successful are:
‘core team’ for home care, consisting of
physicians, ‘palliative care specialists nurses’ ƒƒ A patient held record card
(PCSNs), social workers, therapist (physio/ ƒƒ Dedicated telephone slots allocated for
occupational), counselors, psychiatrist, direct contact
religious heads, transportation, and drivers. ƒƒ Fax and E-mail facilities
™™ This core team may be further supported by ƒƒ Internet chat rooms for patients and
a ‘support team’ consisting of volunteers, professionals.
dietician, pharmacist, public relation ™™ Teamwork: It is important to define the
officer, and family members. role of each team member and ensure
™™ Commonly, the PCSNs act as case their appropriate training, when needed
managers and provide holistic care to they should also be prepared to overlap
their patients after an initial assessment of in role function. Training of the family to
home set-up and family dynamics. Based provide effective care at home is important.
on the patient’s condition, needs, and Family physician must maintain overall

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322  Section 7: Palliation and Bereavement
responsibilities for the medical care of the Table 32.5  Basic principles of introducing oral
morphine
patient at home.
™™ The core and the support team should • Give morphine orally—tablets10 mg, to 20 mg
meet regularly for discussion of patient 4th hourly, or in aqueous solution, e.g. 2 mg/ml).
Lower doses may be needed in elderly people
related issues, general issues, and for and those with renal impairment
training of team members. • Use rescue dose in addition, if pain returns
between the regular doses
• Titrate dose upward, e.g. from 5–10 mg, 10–15
Clinical Issues mg, or 20–30 mg, if the pain is not at least 90%
relieved during the first 24 hours
Symptom control is by far the most important
• With ordinary tablets or solution, a double
area in palliative home care management of bedtime dose usually enables a patient to go
the patient. through the night without walking in pain
• Treat side-effects with a laxative and antiemetic
• When pain is controlled, convert to a slow-
Controlling Pain release form of morphine (30 mg/12hours), with
™™ Untreated pain takes a major toll through added immediate-release preparation available
for rescue pain
its direct effect on the patient and the fear • Only one-third of patients require more than
it instills in both the patient and the family 30 mg morphine every 4 hours, or more
members. The family physician, therefore, than 100 mg every 12 hours of slow release
morphine. Only a few patients require 100
needs to be proactive in alleviating it. mg every 4 hours, or 600 mg slow release
Providing a patient with quality care morphine every 12 hours
to the end of life requires knowledge
of new information and techniques for by adjuvant antiemetics and laxatives. There
symptom control. Virtually all end of life are many pain control charts and assessment
interventions use agents and techniques tools,30 which are very useful for determining
with which family physicians are familiar, changes in patient’s progress, particularly
although the dosages and delivery systems when verbal communication becomes
are sometimes different. That these skills difficult.
are obtainable by family physicians is ™™ Though in developed countries ‘model
addressed in a study in a community palliative care teams’ provide high
based hospice patients.28 Family physicians technological home care, including
can achieve successful pain relief in intravenous infusions, these are not
nearly 90% of dying patients by following practicable in many peripheral and home
recommended guidelines on the use of care set ups. Such patients may require
analgesics, including narcotics.29 hospitalization only for parenteral therapy.
™™ Morphine in still the mainstay of pain control, To overcome such problems, exploration
along with a number of related opiates. The of other routes of drug administration
dosage, various routes of administration, and will result in better symptom control at
side-effects of morphine should be familiar home and also cost effective. Transdermal
to the physicians and nursing staff (Table fentanyl patches, sublingual lorazepam,
32.5). Co-analgesic is often needed for the sublingual nifedipine are some examples
various forms of neurological, bone, and of alternative routes of drug therapy.
visceral pain. Fears of respiratory depression Some drugs are available in rectal forms
and dependence are unfounded in this group in different parts of the world, e.g.
of patients. Confusion may be short lived. paracetamol, aspirin, NSAIDs (naproxen,
Nausea and constipation can be controlled ibuprofen, diclofenac, indomethacin),

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Chapter 32: Palliative Home Care 323

Opioids (morphine, hydromorphin, codine, ™™ Anticipate the kind of emergency a patient is


methadone), diazepam, chlorpromazine, likely to face in advance, e.g. in a patient with
phenobarbital, atropine, ondansetron, vertebral metastasis who is likely to develop
imipramine, etc. Rectally administered spinal cord compression—draw an agreed
medications require minimal family plan to be followed methodically, rather than
education and expense as compared with struggle with arrangements at odd hours,
parenteral infusions. e.g. who needs to be contacted, whether the
patient is to be hospitalized or stay at home
Controlling other Symptoms and what life-prolonging measures would be
Morphine is very useful for controlling appropriate. Someone should always remain
nonpain symptoms such as breathlessness, with the patient.
agitation, pruritus and diarrhea. Various ™™ Ascertain emergency drugs are available
other drugs, e.g. tricyclic antidepressants, such as injection morphine, midazolam
anticonvulsants, corticosteroids, anxiolytics by subcutaneous route, and clonazepam
and antiemitics should be used as per the tablets by sublingual route. In certain
needs and guidelines.* situations, essential support equipment,
like oxygen cylinders, suction apparatus
Copying with Emergencies can be made available which trained family
members can use.
In the course of palliative care a variety of ™™ Be aware of patient’s wishes in the event
medical emergencies arise (Table 32.6). The of emergency, e.g. resuscitative measures
most common ones are hemorrhage, fractures, and living will.
intestinal obstruction, spinal cord compression, ™™ Be aware of family/carer wishes, e.g. to be
convulsions, hypercalcemia, superior vena with the patient till the end, to perform
caval obstruction and sudden worsening of religious formalities in the dying phase.
dyspnoea. Nearly all of these need specialist ™™ Always arrange follow-up for the family to
intervention, but not all require admission to minimize distress, panic, and guilt feelings.
hospital or hospice. The following measures
help to minimize patient and family distress and Drug Compliance
enhance care in the event of an emergency:
Although drug compliance of palliative
Table 32.6  Emergencies in palliative care care patients at home has been generally
Not to miss Other emergencies unsatisfactory, much can be achieved by
• Spinal cord • Seizures avoiding polypharmacy, stopping unnecessary
compression • Intestinal obstruction and ineffective drugs, using simple regime,
• Superior vena cava • Obstructive
syndrome nephropathy clear explanation of the use and regular
• Hemorrhage • Cardiac tamponade monitoring of side-effects of the drugs.
• Hypercalcemia • Tumor lysis
• Pathologic fracture
• Drug toxicity/side
• Febrile neutropenia
• Increased
Patient Issues
effects intracranial pressure Personal Care
• SIADH
• Hypoglycemia As patients become increasingly ill, they will
• Extreme anxiety/ need help with different aspects of personal
apprehension
attention like brushing their teeth, bathing,

*Ref. Chapter 31-Palliative care: Principles: Table 31.10

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324  Section 7: Palliation and Bereavement
shaving, trimming nails and dressing. In as also practical utility equipments like
addition they will be required to be moved wheelchair, bedpans commode, bath aids,
periodically in their beds to avoid pressure pressure mattress, walkers can be obtained on
sores. Any member of the family, nurse or loan for temporary use from charitable trusts
volunteer can provide this sort of care at home or hospice institutions.
with basic training.
Back up Services
Emotional Support The palliative home care team, however
Patients go through different stages of terminal good its intension and efforts may be, will
illness such as denial, anger, depression, not be able to provide every type of service,
and acceptance. Family, friends, doctors, equipment or other help to the patient and
and nurses can give emotional support at family. It is therefore essential to enroll the
such times. However, many times emotional services of physicians, palliative consultants,
support might be needed for the family nurses, legal experts, spiritual services and
themselves, in which case services of skilled medical equipment suppliers who are willing
counselor should be arranged. to come to the rescue in critical situations.
The details of this list, complete in all aspects,
Spiritual Support should be made available to all the members
On many occasions patients deny any spiritual of the core team as well as the family members
faith during their lifetime, but feel its necessity of the patient.
as they face an impending end. A religious
counselor should be arranged to visit, listen, Financial and Legal Aids
and counsel the patient. Due care should be A non-controversial and reliable legal advisor
taken not to advocate a faith other than the can be arranged to assist the patient in
patient’s own. preparing a will, sorting out property matters,
ensuring that insurance policies are complete
Nutrition in all respects, etc. In some cases patients are
Good nutrition helps to boost the immure known to express a wish to specify the extent of
system of the body which is more important life sustaining methods to be used in the event
in terminally ill patients. Unfortunately, eating of their going into coma. Any other important
is a problem for many terminal patients. issue that the patient may not have covered
Many drugs can alter the taste of food and during such discussions and which may have
even specific and hitherto favorite foods important implications for the future of the
become unpalatable. Depression and other family may be brought out by the adviser
GI problems make it difficult to digest food. without in any way influencing the decisions
With some clever diet manipulation in its of the patient.
variety and consistency the family members
can overcome such problems. In selected cases Respite Care
the help of a dietician will be of immense help. Both the patient and the caregiver need to have
a respite—a change of scene from the sickroom
Medical Supplies and Equipment at home for a few hours or even a day or two—in
Medical equipment, like syringe driver, order to avoid a possible breakdown from sheer
nebulizer oxygen cylinders, suction apparatus; exhaustion. This can be arranged in two ways.

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Chapter 32: Palliative Home Care 325

The caregiver may take a break for a specific References


duration and another attendant can look after 1. Home based care and long term care. Home
the patient. Another way is to offer temporary care issues and evidence. WHO 1999.
care as an in-patient in a hospice who is willing 2. Canadian Home Care Association. Home Care:
for such a make-shift arrangement. This would Meeting the Needs of an Aging Population (Sept
give both the patient and the caregiver the 2008). Web site: http://www.homecarestudy.
break they both deserve. This arrangement com/overview/index.html#def. (Accessed on
requires some advance preparation for 19-01-2009).
the caregiver to ascertain required care in 3. Cox Ivan G. Palliative care. Medicine Update,
the hospice concerned. It must be clearly 2000;1606–10.
understood that there is no sense of guilt at 4. Web sites: http://www.macmillan.org.uk/
leaving the patient and also an understanding Home.aspx;
that this sort of break is necessary to avoid 5. Geriatrics, Palliative Care and Interprofessional
physical and mental exhaustion. Te a mw o rk Cu r r i c u l u m, Mo d u l e # 2 :
Interdisciplinary Teamwork. Web site :
http://www.nynj.va.gov/docs/Module02.pdf
Bereavement Support (Accessed on 26-06-2013)
After the death of the patient, the surviving 6. Mobile Palliative Teams (MPTs) web site:
relations undergo a variety of emotions. Some http://interlinks.euro.centre.org/model/
of these are relief, guilt, anger, regret, grief. example/MobilePalliativeTeams (Accessed on
There could be a period of denial before the 26-06-2013).
acceptance of the final parting. All these need 7. Web site: http://www.macmillan.org.uk/
to be acknowledged as real. A bereavement Home.aspx (Accessed on 26-06-13).
visit by team members to acknowledge these 8. Maddocks I. Palliative care education in the
developing countries. J Pain Palliat Care
emotions, to assist the family to vent their grief,
Pharmacother. 2003;17(3-4):211–21.[PMID:
to come to terms with the reality of the loss of
15022964: Abstract].
a loved one, and to assist them to rejoin the
9. Webster R, et al. Palliative care: a public health
main stream of life again is an essential task priority in developing countries. J Public
of home palliative care. Health Policy, 2007;28(1):28–39. [PMID:
17363933: Abstract].
Conclusion 10. Rajagopal MR, et al. Palliative care in India:
The ultimate goal of the management of the successes and limitations. J Pain Palliat Care
Pharmacother, 2003;17(3-4):121–8; [PMID:
patient at home by the home care team is to
15022956: Abstract].
provide uninterrupted care to promote the
11. Imran Ali, et al. Cancer Scenario in India with
quality of life through relief of symptoms—
Future Perspectives. Cancer Therapy. 2011;8:
may they be physical, psychological, social or 56–70.
spiritual—to patient and family. Web site : http://www.iarc.fr/en/media-
Family physicians should view palliative centre/pr/2012/pdfs/pr210_E.pdf
care as a special area that requires personal 12. Cherian Varghese. Cancer prevention and
commitment and can give great satisfaction. control in India. Web site: http://www.
All family physicians must become familiar rcfcare.org/admin/articles/doc/pg56to67.pdf
with the science and art of palliative care and (Accessed on 25-06-2013)
use this care aggressively to help patients and 13. The global fund, fighting aids. Web Site: http://
their families have the best life possible to the www.theglobalfund.org/en/about/diseases/
very end. hivaids/

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326  Section 7: Palliation and Bereavement
14. New HIV cases decline by half in India: UN 22. Gomes B, et al. Effectiveness and cost-
report: In DNA news, Jul 19, 2012 effectiveness of home palliative care services
http://www.dnaindia.com/india/1717217/ for adults with advanced illness and their
report-new-hiv-cases-decline-by-half-in- caregivers.Cochrane Database Syst Rev, 2013;
india-un-report (Accessed on 25-06-2013). 6:CD007760. [Epub ahead of print][PMID:
15. Press Information Bureau, Government of 23744578: Abstract].
India, Ministry of Health and Family Welfare. 23. Tang ST. When death is imminent: where
30-November-2012. Web site: terminally ill patients with cancer prefer to
http://pib.nic.in/newsite/PrintRelease. die and why. Cancer Nurs, 2003;26(3):245–51.
aspx?relid=89785 (Accessed on 25-06-2013). [PMID: 12832958: Abstract].
16. HIV/AIDS in India, World Bank, July 10, 2012. 24. Brumley R, et al. Increased satisfaction with
Web site: care and lower costs: results of a randomized
htt p : / / w w w . w o r l d b a n k. o rg / e n / n e w s / trial of in-home palliative care. J Am Geriatr
feature/2012/07/10/hiv-aids-india (Accessed Soc, 2007;55(7):993–1000. [PMID: 17608870:
on 25-06-2013). Abstract].
17. WHO 2008, Europe. Home carein Europe:The 25. Gomes B, et al. Effectiveness and cost-
solid facts. Web site: effectiveness of home palliative care services
http://www.euro.who.int/__data/assets/ for adults with advanced illness and their
pdf_file/0005/96467/E91884.pdf (Accessed caregivers.Cochrane Database Syst Rev, 2013;
25-06-2013) 6:CD007760. [Epub ahead of print][PMID:
18. Julia Anaf. Demoralisation Syndrome and the 23744578: Abstract].
end of life. The World Federation of right to die 26. Home care in Europe. The solid facts.
societie. August 21, 1970. Web site http://www.euro.who.int/InformationSources/
h t t p : / / w w w . w o r l d r t d . n e t / n e w s / Publications/Catalogue/20081103_2. (Accessed
demoralisation-syndrome-and-end-life on 20-01-09).
(Accessed on 27-06-2013). 27. Marshall D, et al. Enhancing family physician
19. Brumley R, et al. Increased satisfaction with capacity to deliver quality palliative home care:
care and lower costs: results of a randomized an end-of-life, shared-care model. Can Fam
trial of in-home palliative care. J Am Geriatr Physician, 2008;54(12):1703–1703.e7.[PMID:
Soc, 2007;55(7):993–1000. [PMID: 17608870: 19074714: Abstract].
Abstract]. 28. Nowels D, et al. Cancer pain management
20. Brumley RD, et al. Effectiveness of a home- in home hospice setting: a comparisons of
based palliative care program for end-of- primary care and oncology physicians. J
life. J Palliat Med, 2003;6(5):715–24.[PMID: palliative care, 1999;15(3):5–9.
14622451: Abstract]. 29. Whitecar PS, et al. Managing pain in dying
21. Tang ST. When death is imminent: where patients. American Fam Phy, 2000;61:755–64.
terminally ill patients with cancer prefer to 30. Macmillan Cancer Relief. Helpful essential
die and why. Cancer Nurs, 2003;26(3):245–5. links to palliative care, 3rd edn. London:
[PMID: 12832958: Free full text]. Macmillan Cancer Relief, 1999.

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33 FAMILY AND THE
GRIEF PROCESS

“Time alone is not enough to heal the wounds of the heart. There is work involved in grieving.”
Good Grief, Zita Annette Weber, 2001

Introduction relationship and familiarity with the family


and its culture and are, therefore, placed in a
The experience of grief wears many faces
better position to manage grieved individual
for physicians and their patients, colleagues,
and family members.
individuals and families whose lives are
challenged by change, turmoil, illness, death
What is Grief?
or the loss of hopes and dreams.
It is commonplace in the bereavement Grief may be defined as deep and intense
literature that ‘unresolved grief’* can lead to sorrow or distress, it refers more to what is
difficulties coping with any losses throughout felt or experienced. Raphael uses the term
life. It inevitably causes great distress, and ‘grief’ to convey: “the emotional response to
can give rise or contribute to the onset loss: the complex amalgam of painful affects
of psychosomatic and prolonged grief including sadness, anger, helplessness, guilt,
disorders.1-3 and despair.”4**
Knowledge of the process of grief and how Grief is:
to help individuals and families cope with ™™ The normal response of sorrow and
their loss experiences can be an invaluable emotions, thoughts and behaviors that
asset to family physician—including primary follow the loss of someone or something
care providers—who have an established important to you.

*Unresolved grief refers to prolongation of normal grief, or grief that does not go away or interferes with the
person’s ability to take care of daily responsibilities. It is identified by (1) painful response to recall of the
deceased, (2) realization of not having accepted the loss or of not being able to grieve, and (3) unexplained,
recurrent depression.
**The literature uses many terms to indicate reactions to loss, often interchangeably: Bereavement: the state
of loss resulting from death; Grief: the distressing emotional response to any loss; Mourning: the process
of adaptation, which includes cultural and social rituals; Anticipatory grief: the distress that occurs before
an expected loss; Pathological, complicated or prolonged grief: an abnormal emotional response to loss
involving mental and/or physical health morbidity; Disenfranchised grief: hidden grief, i.e. when one is
grieving but you can’t talk about or share your pain with others because it is considered unacceptable
to others. It’s when you’re sad and miserable and the world doesn’t think you should be, either because
you’re not “entitled” or because it isn’t “worth it”, e.g. diverse or separation, abortion, job loss, coping with
chronic illness etc.

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328  Section 7: Palliation and Bereavement
™™ A typical reaction to death, divorce, illness, Table 33.1  Signs and symptoms of grief
job loss, a move away from family and Emotional:
friends or any life-changing experience. Sadness, fear, anger, guilt, anxiety, loneliness,
helplessness, shock, yearning, relief, numbness
™™ A natural part of life. In order to move on,
Physical
grieving must take place and one must
Nausea, tightness in the chest and throat,
grieve the loss and find new purpose and hyperacusis, depersonalization, shortness of breath,
goals in life. weakness, fatigue, dry mouth, agitation, sighing,
™™ Very personal—it is different for everyone; restlessness
there is no right or wrong way to grieve. Cognitive
Disbelief, confusion, guilt related to the deceased or
How long it takes to grieve and what that the circumstances of death, preoccupation with the
new purpose or goal will be different for image of the deceased, sense of the presence of
everyone. the deceased, hallucinations of the deceased, fear
of the inability to care for oneself, heightened sense
of awareness of the potential for personal death
Symptoms of Grief Behavioral
Healthcare providers will see grief in all Sleep and appetite disturbance, dreams of the
deceased, social withdrawal, avoidance of reminders
its forms over a wide variety of losses, and of the deceased, searching, crying, visiting places
encounter bereaved individuals throughout as reminders of the deceased, use of a transitional
their personal and professional lives. The object, decreased ability to perform day-to-day tasks,
adopting traits of the deceased
nature of loss and patient’s reaction to it varies
Social
individually. Every person is unique; hence, Feelings of withdrawal, isolation, a greater
there will be many individual differences in dependency on others, rejection by others, a
grief experiences. Most people will experience reluctance to ask others for help, change in friends
or in living arrangements, a desire to re-locate or
common or normal grief and will cope well; move, a need to find distractions from the intensity
others will experience more severe grief of grief (to stay busy or to over-commit to activities)
reactions such as prolonged or complicated Spiritual
grief and will benefit from treatment. Bargaining with God in an attempt to prevent loss,
Although grief responses may differ feeling angry at God when loss occurs, renewed
or shaken religious beliefs, feelings of being either
from one person to another, there are many blessed or punished,
predictable expressions of grief. These
expressions are well documented and occur Source: 1. Worden JW. Grief Counselling and Grief Therapy:
A Handbook for the Mental Health Practitioner. New York, NY:
on emotional physical, cognitive, behavioral, Springer; 1991.
social, and spiritual levels (Table 33.1). 2. Weissman MM, Markowitz JC, Klerman GL. Comprehensive
Guide to Interpersonal Psychotherapy. New York, NY: Basic
Books; 2000.
Features of Grief
Three main characteristics of normal grief are may misidentify sights and sounds as
observed during the process of grieving. They indicating the presence of the dead person,
include the urge to look back, cry, searches may experience hypnagogic hallucination
for what is lost; the conflicting urge to look of the dead person during periods of
forward, explore the world that now emerges; drowsiness or may dream of reunion.
and discover what can be carried forward from 2. Distraction: The person keeps busy, tries
the past. These features can be groped as: to avoid situation that evoke grief, suppress
1. Crying: An urge to cry aloud, search, and if emotion and thoughts about the loss.
necessary, fight for the lost person occurs 3. Grief work: The term ‘grief work’ implies
following permanent separations. They active and necessary exploration to

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Chapter 33: Family and the Grief Process 329

establish a new identity between the ™™ Disorganization and despair: As time


person’s external and internal worlds. passes the intensity and frequency of the
Over time, grieving starts to lessen, and pangs of grief tend to diminish, although
the individual begins to see life in a more they often return with renewed intensity
positive light again. on occasions such as anniversaries and
A common definition of ‘grief work’ is birthdays, which bring the dead person
summarized by the acronym TEAR: strongly to mind. The bereaved person thus
T = To accept the reality of the loss, oscillates back and forth between longing
E = Experience the pain of the loss, and despair many times before coming to
A = Adjust to the new environment without the the final phase of reorganization.
lost object, and
R = Reinvest in the new reality Recovery Stage
Reorganization (Adjustment): A final phase of
Course of Grief5 reorganization; grief usually resolves when the
It is sometimes difficult to discriminate the person accepts the reality of the loss, begins
course of grieving as there is increasing adjusting to the absence of the deceased, and
awareness of the amount of oscillation can think about the deceased without pain.
between its stages and the interaction Individuals develop new relationships, interest
between its phases varies widely. The way and a new identity is discovered.
in which a person will grieve depends on the
personality of the grieving individual and his/ Types of Grief Reaction
her relationship with the person who died.
Besides, one’s cultural and religious beliefs, Although the grief literature has proposed
coping skills, and psychiatric history; the many types of grief reactions, the fact is
availability of support systems; and one’s that every individual grieves in his/her own
socioeconomic status all affect the pattern of way. Circumstances vary widely and one
reaction and coping with the loss of a loved person may react in one way to a loss that
one. However, there is at least a tendency for affects another in a completely different
people to move between the following stages: way. However, most literature attempts to
distinguish between normal grief and various
Initial Stage forms of complicated grief. The following
classifications are general and may overlap.
Initial Shock: A phase of numbness and
disbelief which lasts for hours or days.
Normal Grief
Intermediate Stage Uncomplicated or normal grief is believed to
™™ Pangs of grief (i.e. yearning): A phase of proceed through a series of anticipated stages,
intense feelings of longing for the lost i.e. initial, intermediate, and recovery stages
person accompanied by intense anxiety. (vide above).
These ‘pangs of grief’ are transient episodes In general, normal or common grief
of separation distress between which the reactions are marked by a gradual movement
bereaved person continues to engage in the toward an acceptance of the loss and the
normal functions such as eating, sleeping, severity of symptoms diminishes over time.
and carrying out essential responsibilities The healing process usually reaches resolution
in an apathetic and anxious way. between 6 months to 2 years. It is common

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330  Section 7: Palliation and Bereavement
for its brief exacerbations brought on events grief. Factors increasing risk of developing
such as anniversaries, birthdays, holidays; and complicated grief are outlined in Table
sensory reminders, such as hearing a song, 33.2. If physicians are aware of these risks,
cooking of a dish favored by the decreased. interventions in both preventive psychiatry
Grief usually resolves when the person accepts and management can be instituted.
the reality of the loss, begins adjusting to the
absence of the decreased, and can think about Family Physician as Counselor
the decreased without pain.
One of the fundamental concepts of family
Complicated (Morbid or Pathological) physicians is to provide care for a wide range
of health issues throughout the lifecycle, from
Grief
birth through death, in a variety of settings
This term has been used to describe distortions within the community.
of the normal pattern of grieving. Horowitz et Family physicians have the ongoing long-
al define complicated grief as, “the current term contract with patients through thick and
experience (more than a year after a loss, i.e. thin, and most specifically, in situations where
chronic or prolonged grief ); characterized medical treatment has “failed”. Even when the
by intense intrusive thoughts, pangs of person is terminally ill, the efforts concentrate
severe emotion, distressing yearnings, feeling on the potential of life’s sustenance. In this
excessively alone and empty, unusual sleep process, the family physician shares the pain,
disturbances, and maladaptive levels of loss distress and suffering along with the bedridden
of interest in personal activities (i.e. most and his family.
symptoms of normal grief are absent—a state
referred to as ‘inhibited grief’); and excessively
avoiding or delaying grief reactions at the Table 33.2  Factors increasing risk after bereavement
time of loss, but expressing them at a future Personal:
date where they seem disproportionate to the • Low self-esteem
situation ( i.e. ‘delayed’ grief’)”.7 • Concurrent life stressors, employment difficulties
• Presence of premorbid psychiatric problems,
The key characteristic of complicated grief substance abuse
is a significant decline in emotional, physical, • History of multiple losses
cognitive, behavioral, and social attributes. • Past history of grief difficulties
Complicated grief is more common Traumatic circumstances:
after unexpected and violent deaths such • Death of a spouse or a child
• Death of a parent, especially in early childhood
as suicide,8 and may also be associated with or adolescence
increased risk of cancer, hypertension, cardiac • Sudden, unexpected, untimely deaths (particularly
events, and suicidal ideation, plus adverse if associated with horrific circumstances)
health behaviors such as increased smoking Social or cultural:
• Perceived inadequate or absent support system
and alcohol misuse.9 This syndrome is distinct
• Lower socioeconomic class
from major depression and post-traumatic • Controversial loss (abortion, suicide)
stress disorder, but complicated grief may • Ambiguous loss (e.g. kidnapping.)
comorbid with each.10 • Inability to carry out valued religions ritual
Familial or relationship:
Risk Factors for Complicated • Ambivalent, conflicted, or highly dependent
relationship with the deceased
Grief11 • Hostile family (high conflict, poor cohesiveness,
low expressiveness)
It is important to identify those at risk for • Presence of young children in the home
developing complicated or pathological

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Chapter 33: Family and the Grief Process 331

In the present contemporary community, resolution. Silence is an important part of


with dominant ‘nuclear families’* the traditional listening.
support to the bereaved from ‘joint families’ ™™ Be non-judgmental: There is no right or
is often absent or inadequate. Also, there is wrong way to grieve. Do not impose your
disruption of the ‘extended family members’** opinions, advice or copying mechanism
and the lack of support of neighborhood on your patient.
communities. Within this social context, family ™™ Avoid clichés: Comments such as, “its god’s
physician has a unique opportunity to offer will”, “don’t cry”, “everything will be okay”,
bereavement counseling and plays an important invalidate the grieving person’s feelings and
function in helping people express their feelings beliefs. These comfort clichés can impede
and adjust to their loss. or terminate effective communications.
Frequently, grieving people will come ™™ Be patient: Take your time: Be willing to
to the family physician complaining of spend enough time with a grieving person
physical manifestations of normal grief, e.g. so that support, comfort, and reassurance
anxiety symptoms, such as tightness in chest, are effective.
breathlessness; symptoms of depression, such
™™ Physical contact: First ask a grieving person
as lack of appetite, and lack of energy. Some
before attempting to provide comfort by
people, however, may complain of cognitive
using physical contact. An uninvited or
manifestations of normal grief by simply
unwelcome touch may be offensive or
describing the loneliness and emptiness of
threatening and may cause the patient to
life. In such grief-ridden situations, family
withdraw.
physicians’ unique, intimate relationships
™™ Promises: Do not make promises you
with patients that enriches doctor-patient
cannot keep. If a request cannot be met, say
relationship, allows physicians to customize
so with honesty and compassion.
a management plan that is more appropriate
and sympathetic for grieved individuals and ™™ Confidentiality: Keep every revelation in
family members. confidence unless specific consent is given
The family physician, by becoming fully to do otherwise.
aware of the reality of the loss, and helping
to overcome various impediments in the Referral
readjustment over the loss, can play a role in When the patient’s grief is causing concern—
making the family a potential center of strength showing the following warning symptoms and
for the bereaved. signs of decline in health—refer the patient to
a support group that can better address the
Guidelines to Manage a Grieving patient’s ongoing needs. Being familiar with
Person and Family Members12 the stages of grief (vide above) helps to judge
unfavorable prognosis.
™™ Be there: One’s presence can be the greatest
gift given to a grieving individual. ™™ Lack of basic self-care activities
™™ Be a good listener: A grieving person needs ™™ Substance abuse
to express emotion repeatedly to achieve ™™ Multiple losses that can be overwhelming

*The basic family unit, consisting of father, mother and their biological children.
**Generally a family with parents, their children, the grandparents, and other family members, aunts,
uncles, etc.

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332  Section 7: Palliation and Bereavement
™™ Severe withdrawal and/or feelings of Res, 2013;207(1-2):68–72. doi: 10.1016/j.
intense depression, hopelessness or apathy psychres.2012.09.021. Epub 2012 Oct 12.
™™ Radical lifestyle changes; decreased [PMID: 23068081: Abstract].
2. Stammel N, et al. Prolonged grief disorder
interest and participation in activities he
three decades post loss in survivors of the
or she previously enjoyed
Khmer Rouge regime in Cambodia. J Affect
™™ Unusual and alarming behavior patterns; Disord, 2013;144(1-2):87–93. doi: 10.1016/j.
inability to handle routine life and work tasks jad.2012.05.063. Epub 2012 Aug 4.[PMID:
™™ Noticeable physical changes, such as 22871529: Abstract].
extreme weight loss or gain, severe 3. Shear MK, et al. Bereavement and anxiety.
headaches, sleep changes, inattention to Curr Psychiatry Rep, 2012;14(3):169–75. doi:
personal hygiene and appearance 10.1007/s11920-012-0270-2. [PMID: 22538558:
™™ Suicidal feelings (if your loved one Abstract].
4. John Murtagh. General practice, counseling
mentions suicide—even in a joking
skills: 1996;28.
manner—take him or her seriously and
5. Parkes CM. Bereavement in adult life. BMJ,
seek immediate professional help). 1998;316(7134):856–9. [PMID: 9549464: Free
PMC Article].
Conclusion 6. Breen LJ, et al. The fundamental paradox in
the grief literature: a critical reflection. Omega
™™ The experience of grief and loss are (Westport), 2007;55(3):199–218. [PMID:
universal 18214068: Abstract].
™™ People grieve in their own way. Some may 7. Horowitz MJ, et al. Diagnostic criteria for
take longer to heal than others complicated grief disorder. Am J Psychiatry,
™™ A high degree of suspicion is essential to 1997;154(7):904–10. [PMID: 9210739; abstract].
detect complicated grief reactions needing 8. Mitchell AM, et al. Complicated grief and
expert therapy suicidal ideation in adult survivors of suicide.
Suicide Life Threat Behav, 2005;35(5):498–506.
™™ With an established relationship and
[PMID: 16268767: Abstract].
familiarity with the family and culture, 9. Prigerson HG, et al. Traumatic grief as a risk
family physicians have an advantage in factor for mental and physical morbidity.
identifying and assisting grieving patient Am J Psychiatry, 1997;154(5):616–23. [PMID:
™™ Dealing with grieved individual helps us 9137115: Abstract].
become not only better physician, but also 10. Miller MD. Complicated grief in late life.
better human beings. Dialogues Clin Neurosci, 2012;14(2):195–202.
[PMID: 22754292: Free PMC Article].
References 11. Frances Sheldon. Bereavement (abc of
palliative care). BMJ, 1998;316:456–8.
1. Boelen PA. Symptoms of prolonged grief, 12. Carnnell C.W.PA-C.Guiding your patient
depression, and adult separation anxiety: through the grieving process. - JAAPA -
distinctiveness and correlates. Psychiatry December 1997.

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8
Section

Prevention and
Health Care
™™ Prevention in Family Practice
™™ Preventive Care Delivery: Barriers and Remedies

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34 Prevention in
Family Practice

“The purpose of medicine is to make available to all the people, in the greatest possible
degree, the achievements of science as they relate to the promotion of health and
to the prevention and treatment of disease.”
WG Smillie, MD
Prof. of Public Health
and Preventive Medicine
New York Hospital.1

The Power of Prevention fewer hospitalizations and surgeries, took fewer


The old saying, “an ounce of prevention is medications, and lived longer than people who
worth a pound of cure” is no exaggeration and didn’t.4
has a lot of truth in it; and never more so today Although the primary goals in medicine are
when it seems likely that the most dramatic prevention of disease and promotion of health,
advances in saving lives lie in preventing the present biomedical advances, coupled with
diseases rather than curing them. improved living and educational standards of
In recent times, there has been a paradigm the public have opened up number of avenues
shift in medicine from the “curative model”*, to prevention. The horizons of preventions
which has wrongly equated the health with in medicine have extended far beyond the
lack of disease to “health promotion and medical field. For example, interactive health
disease prevention-model”** which aims at communication using internet technologies
improving the health status of individuals and is expanding the range and flexibility of
consequently the community.2,3 intervention and teaching options available
Numerous research studies over the in preventive medicine and health sciences
last few years have shown that people who for delivering automated, self-instructional
began paying attention to real preventive health behavior-change programs through
healthcare in midlife—stopped smoking, the Internet.5,6 Further, with the ability to help
exercised, and made dietary changes—had predict disease risk and enable preemptive

*Treatment and therapies provided to a patient with intent to improve symptoms and cure the patient’s
medical problem, generally using antibiotics, chemotherapy, etc.
**For example—immunization, cervical screening, smoking cessation, fluoridation of water, etc. Preventive
medicine aims to improve and maintain health by ensuring people do not fall ill in the first place. On the
contrary, curative medicine restores and maintains health by treating people after they fall ill. Curative
medicine does emphasize in practice to alleviate pain and suffering for a time, but ignores critical factors
that contribute to the persistence of disease.

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336  Section 8: Prevention and Health Care
health plans, genome-guided preventive family members too, they play an important
medicine has the potential to improve role in disease prevention and health education
population health on an individualized level.7 to the community and thus improve their
Modern preventive medicine has been quality of health.
defined as, “The art and science of health As the key providers of primary medical
promotion, disease prevention, disability care, family physicians have a central role in
limitation and rehabilitation“.8 It is in this the prevention of disease and there is evidence
context family physicians have to integrate that physicians in their practice can effectively
their services for not only curative, but also provide preventive care that reaches the
promotive, preventive, and educational majority of the population.13
aspects of health, which have also been
emphasized in the Alma – Ata Declaration.9 Prevention—Limiting Factors
While public health education is vital
Prevention—Family Physician’s to improving overall health in developing
Role countries, education does not always predict
Family practice is regarded to have the most compliance with medically proven health
potential in prevention,10,11 the most obvious practices.14
reason being, family physicians care for patients It’s a common knowledge that, in spite
in many different environments, including the of extensive health education programs,
home and settings that are underserved by individuals and families, whether sick or well,
other medical providers. Patients, therefore, spend far more time making independent
have better access to their family physicians decisions, such as when to go to a doctor or
and primary health care providers. Working in clinic, where to go, and whether or not to
partnership with patients, and the progressive follow the advice they receive from health
doctor-patient relationship established by workers, and do so with minimal training or
frequent contracts, family physicians play information.
essential roles as educators, interpreters, and As a result of such detrimental behavior,
advocators for promoting health and preventing untold number of people die unnecessarily,
diseases of individuals, their families, and the not because they have a disease for which there
community at large. is no cure, but because they did not go to their
Family physicians continue to be the doctors for investigations and treatment soon
first contact for all patients, requiring enough.
patient-centered, culturally-appropriate Today, with the rapid advances in medical
and continuous source of care, regardless of treatment, early diagnosis is of vital importance
income, insurance status, or race/ethnicity. in preventing unnecessary tragedies, because
Further, according to data released by the many of the modern treatments are curative
Agency for healthcare Research and Quality, only if applied in the initial stages of illness.
family physicians provide more healthcare It is clear, therefore, that the limiting factor
to rural areas than other primary care or in all too many cases of illness today lies not
subspecialty physicians.12 in what the doctor can do, but in whether the
Since family physicians understand patient comes to seek medical advice in time.
the whole person in the context of their If such millions of decisions are to be made
environment, track their healthcare through wisely, people need to be equipped with the
different stages of life, and usually take care of knowledge and skills necessary to exercise

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Chapter 34: Prevention in Family Practice 337

individual and community responsibility. Levels of Preventions and


Primary barriers to preventive service utilization Screening
such as ability to pay, perception of need, service
availability, accessibility of services, and cultural, Primary Prevention
gender, racial, and religious barriers have to be Primary prevention, (i.e. health promotion
resolved.15,16 Any effective method of helping to and specific protection), prevents disease
persuade people to seek medical help early is from occurring by removing its cause. As a
thus likely to be more effective in saving lives. result there is no disease. It also includes the
Primary health care, therefore, is the prime concept of “positive health”—a concept that
source to implement health promotion and encourages achievement and maintenance
health education—to make people more aware of “an acceptable level of health that will
of what they can do for themselves by increasing enable every individual to lead a socially and
their knowledge about how they themselves can economically productive life”. It concerns
affect their own health. individual’s attitude toward life and health,
and the initiatives taken about positive and
Promoting Prevention responsible measures for self, family, and the
Physicians and associated health care community.
professionals have a duty to ascertain that Primary prevention strategies include:
the facts about disease prevention and health ™™ Immunization against many communic­
education are delivered to the community in a able diseases.
form that they can comprehend. To be effective
™™ “Health education” to bring changes in
in this role, family physicians need to be:
life style, factors known to be associated
™™ Opportunistic in offering preventive care with diseases, e.g. smoking cessation,
when patients present with other problems healthy balanced diet, exercise, reduction
and concerns in alcohol intake, safe sexual activity, use
™™ Anticipatory in routinely assessing the of seat belt and bicycle helmet, use of job
preventive care needs of their patients specific protective devices such as ear and
™™ Proactive in targeting preventive care most eye protection from toxic exposure.
intensively to high risk individuals and ™™ In addition to these individual activities,
reaching all of their patients, especially those communities may provide primar y
who are least likely to seek out assistance. prevention through sanitation, keeping
This involves looking beyond the individual water supply clean and disposing efficiently
consultation to the population of patients sewage and industrial wastes.
we serve, e.g. we know that to be effective in
immunization or screening programs, we must Secondary Prevention
reach a large proportion of patients at risk in our Secondary prevention (i.e. early diagnosis
practice or community. However, to reach this and prompt treatment) detects disease when
ideal is difficult. Each preventive activity uses it is asymptomatic and when early treatment
up some of the available time that physicians can stop it from progressing. It is largely
have with their patients. Therefore, only those the domain of clinical medicine. By early
activities and measures, which have been diagnosis and adequate treatment, secondary
proved to be cost effective by carefully designed prevention attempts to arrest disease process
studies and have relevance to family practice, and restore normal health. It may also protect
need to be integrated and followed diligently.17 others in the community from acquiring the

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338  Section 8: Prevention and Health Care
infection and thus provide at once secondary Opportunity for Prevention
prevention for the infected individuals and
Physicians must take every opportunity to
primary prevention for their potential contacts.
deliver preventive services, especially persons
Examples of secondary prevention are
with limited access to care. Those individuals
community-screening programs to detect
at highest risk for many preventable causes
hypertension, glaucoma, mammography,
of premature disease and disability, such
and pap smear examination for screening of
as tuberculosis, poor nutrition, human
cervical cancer.
immunodeficiency virus infection, cervical
Tertiary Prevention cancer, are the same individuals least likely to
receive adequate preventive services. Devising
Tertiary prevention (i.e. disability limitation
strategies to increase access to preventive
and rehabilitation) refers to management
services to such individuals is more likely to
of established disease so as to reduce
reduce morbidity and mortality from these
complications and disability. Examples
conditions then performing preventive
include comprehensive management of
services more frequently or those who are
diabetes in order to reduce complications and
already regular recipients of preventive care
improve functional status, and post myocardial
and who are often in better health.
infarction medications to reduce the incidence
One important solution is to deliver
of re-infarction. A patient who has suffered
preventive services at every visit, rather than
a stroke because of hypertension may be
exclusively during visits devoted entirely on
restored to a useful lifestyle with appropriate
prevention. Any visit provides an opportunity
rehabilitation. Maximizing the quality of life is
to practice prevention. In fact, some individuals
one of the key goals within the framework of
may see clinicians only when they are ill or
any tertiary preventive strategy.
injured. The illness visit provides the only
Screening opportunity to reach individuals who, due
Screening (Table 34.2) is often mentioned to limited access to care, would be otherwise
in the same context as prevention activities. unlikely to receive preventive services.
Screening may be defined medically as the Some specific opportunities, in family
identification of an unrecognized disease practice wherein primary prevention can be
or risk factor by history taking, physical practiced par excellence are:
examination, laboratory test, or other ™™ Antenatal care

procedure. It separates people who are ™™ Postnatal care


apparently well but have a disease or risk factor ™™ Pre-marital checkup*
for a disease from those who do not. Screening ™™ Periodic health examination
may also be a part of some primary and ™™ Health insurance examination
secondary prevention approaches. However, ™™ Pre-employment and pre-placement
it should not be considered diagnostic. health examination**

*It’s a comprehensive group of tests meant especially for those who are planning to get married. The tests
are designed to identify potential health problems that may have an impact on one’s fertility and also to
detect some of the hereditary diseases and infections.
**A Pre-employment medical is a medical exam or health assessment of an employee, which can be used
as part of the decision of whether to make a job offer to a prospective employee.
A Pre-placement medical is a medical conducted after the employee has been extended a job offer, but
before they have been ‘placed’ in the position.

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Chapter 34: Prevention in Family Practice 339

™™ Traveling overseas health examination but which has been applied to the management
™™ At times of crisis or potential crisis of all the behavioral risk factors in primary
™™ (e.g. mass immunization after natural healthcare (Table 34.1).21,22
disaster) Common preventive activities in family
™™ School health services practice include the following:
™™ Industrial medical services ™™ Specific screening
These various opportunities are, of course, ™™ Immunization
not found in neat compartments. They are ™™ Health promotion, disease prevention, and
intermingled with one another and with the education
day-to-day tasks of diagnosing and treating ™™ Physical checkup
illness. They are found in private practice and
also in community programs in which the
Screening
doctor actively participates.
Screening is an integral part of good family
Scope for Prevention medicine. It allows early detection and sub­
In general, preventive medicine must be a sequent treatment of disorders. For example:
component in the professional service of ™™ Developmental screening: For children,
every practicing physician. Irrespective of generally from birth through 3 years of age,
the individual’s specialty, physicians should to access height, weight, head circumference,
include attention to preventive medicine as vision, hearing, speech, nutritional status,
an integral part of every office visit.18 emotion, mental functions, etc. Any
Ideally all family physicians should work concerns raised during surveillance should
toward the prevention of avoidable death be promptly addressed with standardized
and illness within the community. Family developmental screening tests.
physicians have the greatest potential in ™™ Women: Screening for breast and cervical
achieving this goal as they see a wide range of cancer.
patients and are more likely to be familiar with ™™ Adults and elderly patients: Screening
their family background and lifestyles. for chronic disease and disabilities like
Consultations are the common hypertension, diabetes, mental and
professional encounters in family practice and emotional problems, etc. (Table 34.2).
frequently present opportunities to discuss
health promotion issues. A brief, direct and Table 34.1  The 5As approach
meaningful advice offered to people by the
ASK: Ask all patients about smoking, nutrition, alcohol
doctor regarding life style behavior changes
or physical activity
to promote health is helpful. Although this ASSESS: Readiness to change, dependence
may not be seemingly apparent to doctors, (smoking and alcohol)
much can be achieved by brief and repeated ADVISE: Brief, nonjudgmental advice with patient
education materials (such as Life scripts) and
counseling, reinforced over a period of time, motivational interviewing
resulting in small but permanent behavioral ASSIST: By providing motivational counseling and
changes to individuals under their care. a prescription (life script or pharmacotherapy if
indicated for nicotine or alcohol dependence)
There is evidence that brief interventions ARRANGE: Referral telephone support services,
can be effective.19,20 Most of these are consistent group lifestyle programs or individual provider (e.g.
with the 5A’s approach first developed as a dietician or exercise physiologist) and a regular
follow-up visit
framework for reducing alcohol consumption,

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340  Section 8: Prevention and Health Care
Table 34.2  Routine preventive health measures for adults
Service Age Ages 18–39 Ages 40–64 Ages 65 and Over
Physical exam Recommended every 1–3 years to include Recommended Recommended once a year
the following: every 1–3 years to include the following:
• Blood pressure to include the • Blood pressure
• Height and weight following: • Height and weight
• Blood • Consideration of
pressure hearing and vision
• Height and screening
weight • Consider TSH if any
signs or symptoms of
hypothyroidism
Prevention of • See diet and exercise, avoid tobacco • Blood • Blood cholesterol
heart disease • Blood cholesterol with HDL every five cholesterol every 5 years to age
years for males, beginning at age 35 every five 75 years
years for men • See nutrition and
and women exercise, avoid
age 45 years tobacco
and older
• See nutrition
and exercise,
avoid tobacco
Other • Consider • Consider diabetes
screening and diabetes screening if not done
prevention screening, age in last 3 years (also
45 years (also see diabetes risk
see diabetes factors below)
risk factors • Counsel regarding
below) risks and benefits of
hormone replacement
therapy
Cancer Breast cancer • Clinical breast • Clinical breast • Mammogram and
screening exam suggested exam once a clinical breast exam
as part of the well year once a year
woman exam • Mammogram
every 1–2
years between
age 40 and 50
years annually
beginning at
age 50 years
Cervical cancer • Pap smear • Pap smear • Pap smear every
every 1–3 years, every 1–3 3 years (at the
depending on years, discretion of patient
prior Pap smear depending and physician, these
results and on prior Pap may be discontinued
other risk factors smear results if there has been a
including sexual and other long history of normal
history risk factors Pap smears)
including
sexual history
Prostate cancer • For men age 50 years and older, discuss
risks and benefits of screening
Colorectal cancer • Fecal occult blood (a test for blood in
the stool) every year beginning at age
50 years and sigmoidoscopy every 4–5
years1 (also see risk factors below)
Contd...

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Chapter 34: Prevention in Family Practice 341
Contd...
Immunizations • Tetanus booster • Tetanus booster • Tetanus booster every 10 years
every 10 years every 10 years • Flu shot annually
• MMR • MMR • Pneumococcal vaccine: once
recommended if recommended
no serologic proof for all non-
of immunity or pregnant women
documentation of of childbearing
a dose given on age born after
or after the first 1956 with no
birthday evidence of
rubella immunity
or vaccination
Safety • Lap/shoulder belts, bicycle/motorcycle or • Same as other adults with addition of fall
and Injury All-terrain vehicle (ATV) helmets precautions
prevention • Smoke detectors, firearms safety, • Remain alert for signs of elder abuse
avoidance of smoking near bedding or
upholstery
• Be alert for signs of domestic violence
Substance • Routine screening for tobacco use and counseling regarding adverse effects of tobacco
use • Be alert for signs of substance abuse, counseling regarding avoidance of excessive
alcohol, under-age drinking, avoid alcohol during pregnancy and while driving, boating,
etc.
Nutrition and • Limit fat and cholesterol, maintain caloric balance, emphasize fruit, vegetables and
exercise grains, adequate calcium intake
• Folic acid supplementation for women in child-bearing years
• Regular physical activity
Sexual • Reproductive awareness, contraceptive options, avoid high risk sexual behavior and risk
practices of sexually transmitted disease
Dental care • Floss and brush daily with fluoride containing toothpaste, regular visits to a dentist

Childhood Immunization Table 34.3  Concept of health promotion and disease


prevention
Childhood immunization is an example of
Health Promotion Disease Prevention
a successful preventive health program for
Alcohol and drug Audiometric screening
better health in the community. Small pox has avoidance Blood pressure
been eradicated on a global basis. Presently Breast self-examination Screening
poliomyelitis is on the verge of extinction. Exercise Focal occult blood
Low fat diet testing
Besides supervising and administrating
Reducing ultra-violet Immunization
vaccination, the family physician has a light exposure Lipid screening
special duty to perform to clear ignorance and Safe sex Mammography
superstitions prevailing in the community with Seat belt use Pelvic exam and pap
Helmets for bicycle smear
regards to immunization. Riders Sigmoidscopy
Testicular self Tuberculosis
Health Promotion and Disease examination Weight control
Tobacco avoidance
Prevention (Table 34.3)
World Health Organization defines “health physical and emotional well-being that
promotion” as, “the process of enabling increases length, vitality, and quality of life.
people to increase control over and improve “Disease prevention” refers to activities
their health.” It is the application of methods f o c u s e d o n h e a l t h r i s k p ro f i l i n g o f
and adoption of healthy practices that foster asympto­matic persons and appropriate use

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342  Section 8: Prevention and Health Care
of screening tests for early detection of disease, promotion and education can be imparted at
followed by patient education and therapeutic different levels in general practice, namely:
intervention when indicated.23
Level 1: Reception area: use of brochures,
The Centers for Disease Control and
postures and display of other visual and
National Center for Chronic Disease Prevention
audiovisual techniques.
and Health Promotion has developed a variety
of tools and resources to aid professionals, Level 2: Life style measures: e.g. making
public health professionals, policymakers, and premises no smoking areas.
other stakeholders in their chronic disease
prevention efforts.24 Level 3: Consultation: Opportunistically asking
and recording smoking habits, alcohol intake,
diet, exercise, and family dynamics.
Health Education
Level 4: Patient Follow-up: Special arrange­
Health education is the provision of information
ments may be made to determine progress and
about how to maintain or attain good health.
modify subsequent management in specific
It is a “dynamic ever changing process of
areas.
development in which a person is accepting or
rejecting new information, new attitudes, and Level 5: Special Clinics: Antenatal clinics, child
new policies concerned with the objectives survelleillance clinics, family planning clinics
of healthful living”. Health education, then, is and those for specific disease management
concerned with getting people to act in ways such as hypertension and diabetes.
deemed favorable to prevention at all levels— Computer software, medical internet web
primary, secondary, and tertiary. The needs sites, and CD-ROMs are the current high-
and interests of individuals, families, groups, tech methods of education that have made
organizations, and communities are at the heart a significant impact on health promotion,
of education programmes, which provide many disease prevention, and health education.
opportunities for practicing health education. Other electronic resources such as educational
Family physicians have a central role to voice messages, automated and/or interactive
play, and family practice provides a potentially phone follow-up and support, interactive
important setting for a community approach computer programs, and electronic patient-
in providing health education. They are in a doctor communication provide tailored
favorable position, as acknowledgeable and information and feedback or address health
respected figures, in advising and influencing concerns.
their patients and constitute a credible source
to convey important messages and to change Patient Education
patient’s behavior. Areas of particular concern The primary aim of a physician should not
are lifestyle, self-care, smoking, alcohol and be merely treating an illness, but rather to
drug abuse, STD, HIV and AIDS infections, help people to remain healthy, and patient
sexual behavior, domestic and traffic accidents education is vitally important in this respect.
and mental health. Much can be achieved by However, for individuals to realize the benefits
family physician in this respect because they of health education requires a high level of
are often the first health professionals to be engagement, but ultimately result in improved
consulted for health related matters. long term outcomes and significant clinical
The Royal Australian College of General benefits as seen from trials of self-management
Practitioners 25 has described how health or lifestyle interventions across conditions

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Chapter 34: Prevention in Family Practice 343

such as diabetes, coronary heart disease, heart Not educating a patient about their
failure and rheumatoid arthritis. care for reasons of such as lack of time, or
The obvious benefits of patient education indifference to patients’ clarifications and
include improved quality of care, improved understanding leaves the patient at risk of
patient satisfaction, increased compliance, having complications. These complications
improved staff satisfaction, and effective use can cause unnecessary admissions to the
of resources. hospital, an increase in medication costs and
Other beneficial issues that are contri­ financial burden to the patient, family and
butory to increasing the public health impact insurance company. Educating the patient is
of patient education include: an effective way to prevent these complications
and also thwart any new diseases from
™™ Participation and advocacy: Patients are
occurring.27
allowed to participate in making their
decisions as equal partners; as a result
Physical Check-ups28
patients are more satisfied.
™™ Internet-based education: In the present
Many practices provide pre-employment
days of information technology, internet examinations, physical check-ups, medical
access is rapidly changing the landscape of examination for immigration application, and
health information. The number of patients similar periodic health evaluation schedules,
bringing internet-based health information including complete physical examination,
to physicians is on the rise. Intelligent and routine biochemical, hematological tests,
patients do have updated knowledge about and other specific screening tests. Depending
many advances, especially related to their on one’s age, health and family history, and
illness. However, whether health information lifestyle choices such as diet, physical activity
found on the internet is helpful for patients and smoking provide an opportunity to early
in clinical consultations appears to depend detection of any illnesses. It is crucial for
on the how patients use the information they physicians to integrate preventive care guidelines
retrieve, as well as on physicians’ affective and provide access to evidence-based preventive
responses to these patients. Discussions health services to infants, children and adults at
with such patients and their aliments provide routine health check-ups.
a unique opportunity for physicians to
streamline the delivery of health information Conclusion
and services.26 Prevention and health promotion must be
™™ Risk management: Patient education is viewed as a responsibility to be shared among
the only sure away to prevent malpractice all healthcare providers, rather than the
claims. Explanations given to patients’ and sole responsibility of any medical specialist.
families in the management of their illness, However, family physicians have a special
and its prognosis; confirming patient is opportunity to be an effective force in disease
made fully aware of treatment scope, prevention and health promotion.
alternatives and risks (i.e. informed consent) Although immunizations and screening
reduce the risk of doctors being sued if tests remain important preventive services, the
complications do occur. Such protocols most promising role for prevention in current
are an integral part of risk management in medical practice lies in changing the personal
defensive medical practice today. health behaviors of patients long before

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344  Section 8: Prevention and Health Care
clinical disease develops. This is the prime aim and Quality, Rockville, MD. Web site : http://
of health promotion—to make people more www.ahrq.gov/research/findings/factsheets/
aware of what they can do for themselves and primary/pcwork3/index.html (Accessed on
educating them about how they themselves 07-07-2013).
13. Common Wealth Dept. of health and family
can affect their own health.
services. General Practice in Australia, 1996.
14. Hanna Saltzman. Barriers to Oral Rehydration
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Chapter 34: Prevention in Family Practice 345
22. Goldstein MG, et al. Multiple behavioural risk http://www.racgp.org.au/your-practice/
factor interventions in primary care: Summary guidelines/greenbook/applying-the-framework-
of Research Evidence. Am J Prev Med, 2004;27: strategies,-activities-and-resources/ability/
61–79. providing-quality-prevention-information/
23. Am Assoc Fam Phy. Recommended core (Accessed on 09-07-2013).
Educational guidelines for Fam Pract 26. Ahmad F, et al. Are physicians ready for patients
Residents: health Promotion and disease with Internet-based health information? J Med
Prevention; Revised 6/2012 by Floyd Family Internet Res. 2006;8(3):e22. [PMID: 17032638:
Medicine Residency Program. Free PMC Article].
24. CDC:Chronic Disease Prevention and Health 27. Jernigan Kristie. The Importance of Patient
Promotion. Web site: Education. Suite. 2013;101.
http://www.cdc.gov/chronicdisease/resources/ 28. CDC - Regular Check-Ups are Important
index.htm (Accessed on 09-07-2013). Web site: http://www.cdc.gov/family/checkup/
25. RACGP. Providing quality prevention (Accessed on 09-07-2013).
information. Web site:

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PREVENTIVE CARE

35 DELIVERY: BARRIERS
AND REMEDIES

Prevention…the true aim of medicine is not to make men virtuous, it is to safeguard and rescue them from
the consequences of their vices. The physician does not preach repentance; he offers absolution.
HL Mencken*
“Of all the forms of inequality, injustice in health care is the most shocking and inhumane.”
“If doctors are to remain relevant to the changing needs of society, they have to shape their roles within
the context of total human development”.
Martin Luther King Jr

Overview active participation by the patient with


guidance and support from physicians. 1, 2
Health care professionals have always
One of the evidence based and cost-
intuitively acknowledged the value of
effective approach to reduce the impact of
prevention. The benefits of incorporating
NCDs and to strengthen their early detection
prevention into medical practice have become
and timely treatment is through a primary
apparent over the past four decades. The
healthcare approach. The most promising
incidence of previous debilitating conditions
remedy may lie in changing the personal
such as poliomyelitis, diphtheria, and pertussis
health behavior of patients long before
has declined following the introduction
clinical disease develops. Evidence shows that
of preventive health services. But, on the
such interventions are excellent economic
other hand, there is growing evidence of
investments because, if applied to patients
increasing mortality and morbidity linked
early, can reduce the need for more expensive
to trauma and chronic conditions related to
treatment.
individual behavior. A significant proportion
of noncommunicable diseases (NCDs) such
as heart disease, stroke, diabetes, chronic
Barriers to Prevention
respiratory disease, and cancer can be Although, preventive healthcare services have
attributed to patient behavior. While mortality become an integral component of primary care
from some of these conditions is decreasing, practice, studies have shown that physicians
morbidity from most NCDs continues to often fail to provide recommended clinical
increase. For these conditions, prevention preventive services, and that compliance with
at all levels—primary (preventing disease), guidelines has been found to be unsatisfactory
secondary (early diagnosis), and tertiary for most types of preventive services.3 Surveys
(preventing or slowing deterioration) requires indicate that, although general practice

*HL Mencken. Screening and the family physician, Can Fam Physician. 2009;55(2):121.

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Chapter 35: Preventive Care Delivery: Barriers and Remedies 347

has the potential to play a major role in Table 35.1  Barriers to effective clinical care
disease prevention, family physicians are not • Insufficient time with patients to deliver the range
maximizing the opportunities, which present of recommended preventive services
in every day practice to deliver preventive care. • Lack of knowledge of services offered for
preventive care
A number of other studies have concluded
• Economic implications—such as the cost or
that, although vast majority of primary care routing screening
physicians believed it was definitely their • Fragmentation of healthcare delivery
responsibility to educate patients about risk • Different recommendations from multiple sources
• Poor reimbursement for preventive care services
factors and help them to adhere to their • A lack of willingness for the patient to pay for
regimens, they felt inadequate in doing so.4-8 preventive healthcare services
Although, the message is simple—deliver • Poor reimbursement for preventive care services
• A patient’s lack of motivation for making lifestyle
evidence-based clinical preventive services to changes
help keep people healthy and save lives—yet, • Lack of knowledge or skepticism about the
research shows that even the most effective and effectiveness of services
• Doctors lack of necessary training to implement
accepted preventive services are not delivered preventive care services
regularly in the primary care setting.9 ,10 • Complications or adverse events of some
There are many barriers suggested to prevention interventions, particularly when given
to healthy individuals
explain the failure to provide adequate
preventive services (Table 35.1). Further, these
barriers can be systematically classified into Documentation and maintaining medical
three groups as those: records of patients is yet to develop into a proper
™™ Related to the organization of practice, process in the large number of smaller clinics
™™ The patient and hospitals that cater to a large section of
™™ The doctor factors.11
the people in many countries. Further, health
records do not usually have a separate summary
Organization of Practice sheet of preventive care in the patient’s file, which
facilitates ease of retrieving specific information.
The government out-patient clinics are It is very time consuming to go through the
overcrowded. Many are understaffed. This clinical notes to try to find the right information.
results in limited time available for each Most doctors will probably give up after a quick
consultation. Lack of time is also a major search of the notes if they are unable to find the
barrier in some private practices as some busy necessary information.
physicians may see too many patients per day. These two factors—lack of time and
Physicians report they do not have enough incomplete health records—resulting in
time to provide preventive services because inadequate system of tracking, monitoring and
most of their time is spent responding to follow-up of delivery of preventive services,
patients’ need for treatment. If physicians make it virtually impossible to carry out any
were to provide all services recommended meaningful prevention, as continuity of care
by preventive service guidelines, it has is not possible.
been estimated that it would require 7.4
working hours per day.12 Because physicians The Patient
clearly cannot spend this amount of time on
prevention, they are forced to forego some Religious and Cultural Factors
services either by omitting them completely People in the community are strongly
or addressing them only briefly.13 influenced by the prevailing culture, which

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348  Section 8: Prevention and Health Care
has a direct impact on their health-belief and distresses of every-day life. While this ‘watch-
model.14,15 Not all customs and beliefs are bad; and-wait’ policy is an acceptable approach in
some have positive values, e.g. all religions, clinical practice in certain low risk patients,
with the well-being of humans at heart, are in many patients tend to neglect even when
a position to show disfavor with tobacco use, if alarming symptoms and signs develop, and delay
not to prohibit it totally. Also, religious people medical aid. For example, an elderly patient
tend to live longer than the non-religious, with headache may attribute it to stress, but its
in part because they smoke less.16,17 On the recurrent occurrence with visual deficit may be
contrary, some customs and beliefs may be further attributed as common refractory error,
useless or positively harmful, e.g. Flores18 when in fact this patient may have impending
reported that Latino parents sometimes vision loss due to giant call arteritis. A timely
have false beliefs about the cause of certain ophthalmic intervention could have saved
illnesses and therefore are more likely to catastrophic outcome in such patients.
delay vaccinations in children and use home Further, initially asymptomatic NCDs,
remedies. such as diabetes, hypertension, obesity, and
Some cultural beliefs, which continue to be immunodeficiency diseases, 19 when not
followed by centuries of practice, have come in detected and treated in their initial stages, can
the way of implementing health programmes. develop life-threatening complications later.
In communities, where health system is the Thus, lack of awareness and motivation on
coexistence of multiple health traditions, the part of patients, to seek health screening
patients attribute an illness to supernatural measures initially, is a major barrier in
factors—people believe that God is punishing promoting preventive care to such patients.
them for bad behavior and making them ill; Adequate education about disease prevention
diseases like leprosy, tuberculosis are a curse is crucial in improving outcomes with
of past sins; hysteria and epilepsy are due to preventive guidelines.
invasion of ghost/spirit into the body, and the
services of an exorcist are sought to drive away Doctor Shopping
the evil spirit or ghost, and promote prayer or Doctor shopping may be defined as the
other spiritual interventions that counter the changing of doctors without a professional
presumed disfavor of powerful forces. referral during the same illness episode, or
As can be seen, various religious and consulting multiple doctors during the same
cultural practices bring their own perspectives illness period.20
and values to the healthcare system, which The reasons for doctor shopping are
frequently create barriers to care. Such barriers varied. Some relate to clinician factors, such
have been further compounded by differences as inconvenient office hours or locations,
in language and education between patients long waiting times, personal characteristics
and providers from different backgrounds. or qualities of the provider, and/or insufficient
communication time between the patient and
Absence of Symptoms and Motivation clinician. Some relate to patient’s personal
It is a common observation that many patients factors such as symptom persistence, lack
often neglect warning symptoms, especially so of understanding or nonacceptance of the
when an illness is in its early incubation stages. diagnosis or treatment, as well as psychological
The symptoms are often mild and unobtrusive factors, e.g. to obtain unnecessary prescription
as to be undistinguishable from the discomfort medications for illicit use.21

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Chapter 35: Preventive Care Delivery: Barriers and Remedies 349

However, the fact is that, this complex Out-of-pocket Expenditure*


phenomenon of doctor shopping is detrimental
Healthcare, in India, is primarily financed
to the establishment of an effective doctor-
t h ro u g h o u t- o f-p o c k e t p ay m e n t s by
patient relationship, which is central to the
households. Many low and middle-income
provision of care by the doctor. It is most
countries also rely on out-of-pocket payments
disturbing to the physicians that they are never
to help finance health care. 23 Insurance
certain whom the patient may go to the next
schemes which cover only hospital expenses,
time he/she is ill.
like those being rolled out nationally in India,
Lack of continuity of health care is
will fail to adequately protect the poor against
associate with decreased patient and doctor
impoverishment due to spending on health—
satisfaction and may positively affect other
there being no reimbursement for preventive
health outcomes, such as adherence to
services.24
treatment, uptake of preventive services, and
increased hospitalizations, and emergency R e s u l t s s h o w t h a t o u t- o f -p o c k e t
admissions. expenditures create financial barriers to
accessing health services. Studies from India
Anxiety About Procedures and Possible provide evidence that out-of-pocket payment
Results for chronic conditions, even for outpatient
care, pushes people into poverty. 25 Households
The patient may have his own apprehensions that have difficulties paying medical bills may
regarding the effectiveness of various preventive delay or forgo needed health care. Patients
procedures. Patients may believe that they are do not see immediate benefits of paying for
likely to be exposed to the risk of adverse effects preventive consultation or investigations.
from the test. While this concern applies to Preventive services cost money, and while
all clinical practices, it is especially important they may yield on ultimate saving, few families
in relation to preventive services because the are readily inclined to spend for medical care
individuals who receive these interventions when they are not faced with definite illness.
are often healthy. Minor complications or rare
Out-of-pocket costs remain a barrier to
adverse effects that would be tolerated in the
use preventive health services for uninsured
treatment of a severe illness take on greater
population. Although financial protection
importance in the asymptomatic population
through public or private health insurance
and require careful evaluation to determine
substantially reduces the amount that people pay
whether benefits exceed risks. Further certain
directly for medical care, yet in some countries
screening procedures and tests are known to
the burden of out-of-pocket spending can still
give ‘false positive’ results, leading to further
create barriers to healthcare access and use.26
testing, which many not be cost effective, besides
causing unnecessary mental and physical harm
The Doctor
to patients. Studies have reported that false-
positive mammography results, coupled with Several studies have explored physicians’
reports that women’s physicians did not advise attitudes toward prevention and barriers to
regular screening, could lead to non-adherence the delivery of preventive health interventions.
to future screening.22 Participants in such studies saw preventive
*Out-of-Pocket medical expenditure could be payments toward doctor’s fees, medicine, diagnostics,
operations, charges for blood, ambulance services, etc. while non-medical expenditure include money
spent toward travelling expenses, lodging charges of escort, attendant charges, etc.

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350  Section 8: Prevention and Health Care
care as legitimate in family practice when it several medical journals publish viewpoints
was associated with concrete action or a test, and counter-viewpoints supporting or opposing
but rated their physicians as poor at delivering a wider utilization of statins for primary
prevention. Collectively, these studies have prevention. The upper limit of desirable total
identified the following physician’s barriers cholesterol level in the local healthy population
that hinder a wide variety of preventive care.27,28 and for those with other co-morbid diseases like
diabetics, renal and hepatic impairment vary
Lack of Training from guidelines issued by the Adult Treatment
Physicians are generally not geared to health Panel III (ATP III) of the National Cholesterol
promotion because of ‘inadequacies’ of the Education Program; the National Institute for
present medical education, which is hospital Health and Clinical Excellence (NICE), and
based and disease oriented. The present curative the American Heart Association and American
healthcare system ignores the integral aspects College of Cardiology Foundation. Further,
of health promotion and disease prevention. although the benefits of detecting and treating
Because attention to health promotion and dyslipidaemia in patients with known CVD is
disease prevention can contribute greatly to clear, controversy remains regarding screening
reducing costs, improving health outcomes, asymptomatic individuals who are not known
and enhancing patient satisfaction, it will be to be at increased cardiovascular risk.30
essential for physicians to be skilled at helping Besides, physicians’ intrinsic attributes may
patients maximize their health and prevent be possible barriers to implement guidelines in
illness. This calls for the redesigning of medical their clinical practice (Table 35.2).
education system to cater for the health needs All such issues require local experts to
of the population. In a study reported in BMJ, provide clear consensus guidelines rather than
the author Tamblyn R, et al states, “Transition relying on other countries for the information.
to a community oriented problem based The Royal Australian College of GPs states in its
learning curriculum is associated with significant position paper that clinical guidelines should
improvements in preventive care and continuity be developed by “practicing clinicians in such a
of care and an improvement in indicators of Table 35.2  Physician’s barriers to using guidelines***
diagnostic performance”.29
Physician attribute Barriers

Lack of Clear Guidelines for the Local Knowledge Lack of awareness


Lack of familiarity
Population
Attitudes Lack of agreement
The major goal of clinical guidelines is to Lack of self-efficacy*
maximize benefits to patients with specific Lack of outcome expectancy**
Inertia of previous practice
diseases by encouraging standardization among
Behavior External barriers
healthcare providers. However, guideline Patient related barriers
multiplicity is an important problem in clinical Environmental related barriers
decision-making. Some physicians may perceive Guideline related barriers
specific guidelines as more influential than other *Lack of self-efficacy: Self-efficacy is the belief that one can
guidelines; some may favour multiple guidelines, perform a task.
**Lack of outcome expectancy: Outcome expectancy is the
whereas others may follow conservative belief that if one carries out
guideline combinations. a task it will make a difference to patient outcomes.
***Bruce Arroll Why are guidelines not used and what can be
Too many guidelines may also cause done to change that?
confusion among some doctors. For example, NZFP, Volume 30 Number 5, October 2003.

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Chapter 35: Preventive Care Delivery: Barriers and Remedies 351

way as to provide useful assistance in practical and most in the first three months after quitting.34
settings rather than a “recipe” for invention.”31 If doctors set an unrealistic barrier in terms of
time duration or outcome for themselves for
Lack of Confidence an individual’s quit attempts, and give up their
As observed earlier, multiple, bulky, paper counseling, medication reinforcement, and
manuals, which have insufficient access at the other supportive therapy altogether after a short
point of care and difficult to implement to the period of trail, they fail to achieve the target.
local population at risk, create an academic
barrier for physicians to familiarize with the The Payment System
outcomes of guidelines. These factors include inadequate reimbursement
Many physicians are sceptical of the for preventive services. Financial incentives to
evidence behind new recommendation health care professionals appear to be strong
because in their judgment they may be drivers to promote preventive services. Survey
compromised by bias.32 This is especially true data show that significant increase in ‘pay for
when medical device and pharmaceutical performance’ incentives may accelerate the
companies or professional societies are adoption of guidelines, and that small rewards
involved in guideline development.33 will not motivate doctors to change their
As a result, some doctors do not provide preventive care routines.35
any evidence based prevention as they do not
perceive any benefits of such practice. This may Solutions to Barriers
be due to the fact that preventive measures often
First, family physicians should be made
do not provide immediate results.
aware of their great contributions to health
promotion by e.g. providing information to
Communication Skills*
their patients on health promoting as well
The skill in communication is central to all as harmful behaviors. The doctor-patient
forms of preventive care. It needs special relationship provides profound knowledge to
skills to convince, particularly asymptomatic the complex health issues of the patients and
individuals to agree to preventive measures. their family members to family physicians,
and their advice facilitates to overcome
Unrealistic Targets barriers that present in the process of disease
Some harmful addictive behaviors, such as prevention and health education.36,37
smoking, alcoholism and drug abuse take While physician’s preventive advice and
considerable time and perseverance to resolve. activities traditionally have been directed at
For example, the average success quit rate for the individual patient and family, interventions
smokers per year is just 5–10%. This is possible aimed at community populations are becoming
only after a year of persistent motivation and more important. The detrimental health
health education by the doctor. Research is clear behavior of many individuals and unhealthy life
that most people who try to stop smoking relapse style in the ‘population at risk’** has precipitated
a number of times before finally succeeding— significant risk to many noncommunicable and

*Ref. Chapter 10 Communication skills.


**Populations at risk may be defined broadly, including but not limited to the poor, frail, disabled,
economically disadvantaged, homeless, racial and ethnic minorities, persons with low literacy, victims
of abuse or persecution, and persons with social risk factors such as isolation.

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352  Section 8: Prevention and Health Care
infectitious diseases. It is the responsibility of Prevention and Health Promotion, US.
physicians, by joining with others in public Preventive Service Task Force, is very useful
health campaigns, to maintain population at risk to follow and the recommendations therein
patients’ as healthy as possible and preventive can be suitably molded to suit local need.43
care is one of the essential ingredients in Care should be taken to keep a sense of
achieving this goal.38, 39 priorities when investigations and screening
Lifestyle habits such as smoking, abuse procedures are planned. Unnecessary
of alcohol and drugs, sedentary habits and interventions, provoking much anxiety,
unhealthy food habits which have developed should be kept to a minimum. Unnecessary
over many years, can be very difficult to anxiety can result from false positive results
change even when the individual is well and depression from untreatable conditions.
motivated. There are a variety of instructional Thus, we need to demonstrate and ensure that
motivational and behavioral techniques screenings are done rationally.
available,40 which include general information Display of posters in waiting rooms to
about the approach, as well as links, training remind patients to avail preventive services
resources, and information on reprints and and to encourage patients to ask about
recent research and can be used to initiate a preventive services, providing flow chart
lifestyle change programme. Family physicians sheets (e.g. adult/childhood immunization);
should be aware of such resources and use patient reminder postcards for continuity
them in collaboration with multidisciplinary of preventive services and preventive care
team to give support and to motivate people timetable posters to remind physicians, office
who find behavior modification difficult. staff and patients when preventive care is
Successful preventive practice will certainly recommended are very helpful in health
demand more time and skills from physicians. education and disease prevention.
There is also an urgent need to reduce the
In the wider community context, the
patient load for doctors in both the public
government and its health agencies should
and private practices. These objectives can
provide education to the public on the need to
be achieved to a great extent when physicians
have a regular “family doctor” for every family
work closely with other health professionals in
and individual so that continuity of care is
organized health care centers for better results.
provided to facilitate the practice of preventive
In some countries such as the United Kingdom,
care. On the other hand family physicians must
“nurse facilitators” are appointed, whose job is
realize that, it’s not only their professional ,
to help family physicians and primary health
but also ‘cultural’ competency (Table 35.3).44
care teams extend preventive medicine in
is of importance, without which it is not easy
family practice.41 “Health promotion clinics”
to change patient’s health belief model and
are successfully functioning under authority
it can only be achieved over a long period of
of National Health Services in UK, wherein
time with the combined effort from individual
clearly defined protocols and guidelines are
doctors and public health agencies.
provided for family physicians with respect to
preventive services.42
Providing comprehensive, clear and
Conclusion
agreed guidelines should be made available, Advances in medicine offer unprecedented
especially applicable to local population. opportunities to improve health; yet, globally
The “Handbook for Putting Prevention into the leading causes of morbidity and mortality
Practice”— published by office of Disease are intimately linked to preventable factors

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Chapter 35: Preventive Care Delivery: Barriers and Remedies 353
Table 35.3 Strategies for working with patients in ™™ Some preventive actions can have a quick
cross-cultural settings
impact on the burden of disease at the
• Learn about the cultural traditions of the patients population level.
you care for ™™ Interventions that combine a range of
• Pay close attention to body language, lack of
response, or expressions of anxiety that may evidence-based approaches have better
signal that the patient or family is in conflict but results.
perhaps hesitant to tell you
• Ask the patient and family open-ended questions
™™ Comprehensive prevention strategies
to gain more information about their assumptions must emphasize the need for sustained
and expectations interventions over time.
• Remain nonjudgmental when given information
that reflects values that differ from yours
• Follow the advice given by patients about References
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Chapter 35: Preventive Care Delivery: Barriers and Remedies 355
31. RACGP – Position on evidence based medicine Care, 2002;29(3):571–82. [PMID: 12529898:
– December 1998. Abstract].
32. Lenzer J. Why we can’t trust clinical guidelines. 38. Shavers VL, et al. Barriers to racial/ethnic
BMJ. 2013;346:f3830. doi: 10.1136/bmj.f3830. minority application and competition for NIH
[PMID:23771225]. research funding. J Natl Med Assoc. 2005;
33. Abramson J, et al.The effect of conflict of 97(8):1063–77. [PMID: 16173321: Free PMC
interest on biomedical research and clinical Article].
practice guidelines: can we trust the evidence 39. Chin MH. Populations at risk: a critical need
in evidence-based medicine? Ambulatory for research, funding, and action. J Gen Intern
Care and Prevention, Harvard Medical School, Med, 2005;20(5):448–9. No abstract available.
Cambridge, MA, USA [PMID: 16148253: Free [PMID: 15963170: Free PMC Article].
full text].
40. Web site: http://www.motivationalinterviewing.
34. How Smokers Are Quitting: The Wisconsin
org/#sthash.4hbYjJAZ.dpuf (Accessed on 17-07-
Tobacco Survey.
2013).
We b s i t e : h t t p : / / w w w . c t r i . w i s c . e d u /
41. Fullard E et al. Facilitating prevention in
Publications/publications/HowSmokersQuit.
primary care. BMJ, 1984;289:1585–7.
pdf b (Accessed on 16-07-2013).
35. Town R, et al. Economic incentives and 42. Davies BM, Davie Tom. Community Health,
physicians’ delivery of preventive care: a Preventive Medicine and Social Services. 6th
systematic review. Am J Prev Med, 2005; ed. 1993: 29.
28(2):234–40. [PMID: 15710282: Abstract]. 43. Web site: http://www.ahrq.gov/professionals/
36. Demak MM, et al. The doctor-patient clinicians-providers/guidelines-
relationship and counseling for preventive recommendations/uspstf/index.html (Accessed
care. Patient Educ Couns, 1987;9(1):5–24. on 18-07-13).
[PMID: 10301559: Abstract]. 44. Web site: http://www.euromedinfo.eu/
37. Thakur NM, et al. Prevention in adulthood: how-culture-influences-health-beliefs.html/
forging a doctor-patient partnership. Prim (Accessed on 18-07-2013).

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9
Section

Education and Research


™™ Clinical Audit
™™ Evidence-based Medicine: Principles
™™ Evidence-based Medicine: Practice
™™ Research in Family Medicine

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36 Clinical Audit

“Knowledge advances not by repeating known facts, but by refuting false dogmas.”
Karl Popper

Introduction has caused harm to patients. The point has


been that the medical profession should be
The audit of medical practice, i.e. quality of
made answerable for the standard of their own
medical care and the process of its delivery
treatment—the main object of an audit being
against prescribed standards of care to patients
to maintain or improve the medical standards.
is neither a new concept nor a new activity.*
Therefore, hospital administrators, medical
From earlier days all good doctors and other
staff and medical associations including family
health care providers have always attempted to
physicians have come to view medical audit with
improve the care they provide for their patients
increasing concern.
by periodically assessing their work. Studies
have shown that from ancient times physicians
Definition
have at least on occasion been driven to seek
the consent of their patient either because of The generally understood concept of an ‘audit’
respect for the patient’s autonomy or from fear is an unbiased examination and evaluation
of the consequences of their failure.1 It has been of the financial statements of a business
realized that the effective and safe practice of organization. It’s a retrospective analysis of
medicine by physicians can be achieved by credit and debit in a business and provides
analyzing their clinical outcomes, such as quality formulation of a prospective plan to achieve
of care, morbidity and mortality periodically. greater work efficiency by cost-effective
However, notwithstanding the good quality management in the following year. Audit in
health care delivery, the subject of medical medical practice should be viewed in a similar
audit has been a matter of in depth discussion fashion as a positive retrospective analysis
and debate at various government, consumer, to further improve prospective standards of
medical media and other lay bodies. There are healthcare delivery system.
documented reports wherein departure from There are few terms which can be confusing
accepted standards of medical care, health care, but which illustrate the way the audit has been
or safety on the part of health care providers understood in medical practice:

*Clinical audit has a history stretching back to the work of Florence Nightingale (1800s) and US Physician,
Ernest Codman (early 1900s). Both Nightingale and Codman monitored mortality and morbidity rates in
their respective institutions. Nightingale used an epidemiological method of review, monitoring rates of
nosocomial infections in relation to standards of hygiene. Codman established a plan to enable the tracking
of patient treatment outcomes as a way to identify clinical misadventures.

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360  Section 9: Education and Research
Medical audit is defined as the review of the ™™ Identifies and promotes good practice
clinical care of patients by medical staff only, and can lead to improvements in service
i.e. ‘uni-professional’ audit. delivery and outcomes for users.
Clinical audit is the review of the activities ™™ Can provide the information you need to
of all aspects of clinical care of patients by show others that your service is effective
medical and paramedical staff, i.e. ‘multi- (and cost-effective) and thus ensure its
professional’ audit. development.
The current accepted definition of ‘clinical ™™ Provides opportunities for training and
audit’ appears in Principles for Best Practice in education
Clinical Audit (2002) and was endorsed by the ™™ Helps to ensure better use of resources and,
National Institute of Clinical Excellence is: therefore, increased efficiency
“Clinical audit is a quality improvement ™™ Can improve working relationships,
process that seeks to improve patient care communication and liaison between
and outcomes through systematic review staff, staff and service users, and between
of care against explicit criteria and the agencies.
implementation of change. Aspects of the Generally, the audit demonstrates evidence
structure, process and outcome of care are of one of the following:
selected and systematically evaluated against ™™ Benefit to patient care
explicit criteria. Where indicated changes are ™™ Benefit to health care professionals
implemented at an individual, team, or service ™™ Benefit to the specific sub-specialty, e.g.
level and further monitoring is used to confirm primary care
improvement in healthcare delivery”. ™™ Continuing high quality of pathology
Clinical audit is essentially all about service
checking whether best practice is being followed ™™ Deterioration in health delivery system
and making improvements if there are shortfalls ™™ Continuing underperforming health care
in the delivery of care. A good clinical audit will services
identify (or confirm) problems and should lead ™™ Deterioration in patient care.
to effective changes being implemented that
result in improved patient care. Different Between Medical and
Clinical audit is the review of clinical Clinical Audit
performance—the refining of clinical practice In the practice of family medicine, “medical
and the measurement of performance against audit” has moved to become “Clinical audit”,
agreed standards—a cyclical process of because other practitioner groups’ and
improving the quality of clinical case. managerial staff involvement is essential to
quality improvement.
Why is Clinical Audit Important?2 Audits conducted by doctors are often
There are a number of reasons why clinical referred to as ‘medical audits’, although the
audit is an important activity. The main reason term ‘clinical audits’ could also be used. It
is that it helps to improve the quality of the is important to stress that very few health
service being offered to users. Without some care procedures involve just one medical
form of clinical audit, it is very difficult to know discipline and that non-medical staff such as
whether clinicians are practicing effectively, receptionists, secretaries, managers and social
and even more difficult to demonstrate this to workers also play a vital role in the quality of
others. The benefits of clinical audit are that it: services provided. Clinical audit therefore,

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Chapter 36: Clinical Audit 361

is usually a multi-disciplinary activity. Many In simple terms, research potentially


clinical audits are also ‘multi-sectoral’, i.e. discovers the right thing to do, whereas audits
they usually involve health and social services, look at whether or not the right thing is being
acute care providers, education and similar done.
health event organizations. Key differences between clinical audit
Thus, ‘clinical audit’ term is used to cover and research are outlined in table below
wider perspective for any audit conducted by (Table 36.1).
professional in a health care system.
The Audit Cycle (Fig. 36.1)
Multiprofessional Clinical Audit in Clinical Audit is directly related to improving
Family Practice services against a standard that has already
been set by examining.
The aim of clinical audit in family practice is 1. Whether or not what ought to be happening
two-fold: firstly, to improve the quality of care is happening.
being given to patients; and secondly, motivating 2. Whether current practice meets required
the staff in the practicing team to analyze standards.
periodically what is being done and achieved. 3. Whether current practice follows published
However, because family practice being the guidelines.
initial referral point for the majority to receive 4. Whether clinical practice is applying the
care, the relationship between all members of knowledge that has been gained through
the practice team and the patient is always very research.
important in the evaluation of medical audit.
Table 36.1 Main differences between clinical audit
Therefore, medical audit in family practice and research
must not only concern itself with the quality
Clinical audit Research
of clinical care (diagnosis and treatment), but
Based on facts Based on hypotheses;
also encompass all practical factors which may
(standards) creates new knowledge
encourage or deter any patient from seeking help
Each patient receives May involve
in the practice team; e.g. the timely availability the same care randomization into
of not just the physician, but also the other different treatment
office staff to any patient. Clinical audit should, groups, including
placebos
therefore, include actively all members of the
practice team—family doctor, practice manager, Informed consent might Informed consent
be required always required
nurses and receptionists.3
Results usually apply to Results are often
the local population generalizable, i.e.
Difference Between Clinical Audit they may influence
widespread clinical
and Research practice
“Research is concerned with discovering the Methodology is less Rigorous methodology
right thing to do; audit with ensuring that it is stringent than in and extensive statistical
done right” (BMA Clinical Audit Committee). research analysis
Typically do not require Always require ethical
For example, research might ask: “What is the
ethics approval, but approval from the
most effective way of treating pressure sores?” should abide by an local or national ethics
Audit would then ask: “How are we treating ethical framework committee
pressure sores and how does this compare with Source: Farah Janmohamed. student BMJ. 2006;14:1-44
accepted best practice?” January ISSN 0966-6494

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362  Section 9: Education and Research

Fig. 36.1  The aduit cycle

5. Whether current evidence is being applied Treatment of High Blood Pressure) that people
in a given situation. know or feel practice could be improved upon.
Choose a topic that is considered to be
Who should Participate? important or significant. These cover a wide
Any member of the multi-disciplinary team range, such as: whether patients can easily
providing care to patients may participate in obtain help (accessibility); non-attendance
clinical audit. This includes managerial as well when patients fail to return (for immunization,
as clinical staff. various follow-up examination); whether
certain methods of diagnosis produce results
Ethical Issues* (HbA1c levels in diabetic patients); and
why some treatments do not work properly
Clinical audit, as defined previously, does (antihypertensive drugs and resistant
not require approval by a Research Ethics hypertension).
Committee, but it may raise ethical issues.
Choosing an interesting topic is crucial
For example:
in maintaining motivation and interest
™™ Sharing of patient data with another
throughout the audit. Interested team
healthcare organization
members are more likely to attend meetings,
™™ Surveying patients about sensitive issues
willing to put in a little extra time, which
The process of registering the audit with
audit invariably requires. A topic will only be
State ethical committee will ensure that any
interesting if it deals with an acknowledged
ethical issues are identified at an early stage.
problem, preferably related to the local set up.
There is no point in auditing something that
Steps in Clinical Audit in Any has already been done well.
Particular General Practice** The topic should not aim just to provide
Following are the well-tried stages in clinical better care but also more efficient care, i.e.
audit in a general/family practice (Fig. 36.2). how the results may reduce the time we spend
on much seemingly unproductive work. Audit
Identifying Problems—Choosing a ideas can be taken from:
Topic ™™ National guidelines
™™ NICE guidelines
The reason for undertaking the audit may
arise from a problem that may be identified ™™ Patient management

from every day practice, medicolegal cases, ™™ Compliance


or practice guidelines (e.g. Joint National ™™ Patient complaint
Committee on Detection, Evaluation, and ™™ Adverse drug incidents

*Although clinical audit evaluation does not require approval from a research ethics committee, it is
mandatory that “the dignity, rights, safety and well-being of participants must be the primary consideration”.
**Ref. “A Basic Guide to Clinical Guide at Kingston Hospital NHS Trust”
Web site: http://education.kingstonhospital.nhs.uk/documents/clinical_audit_/A_Basic_Guide_to_Clinical_
Audit

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Chapter 36: Clinical Audit 363

Fig. 36.2  Steps in audit cycle

™™ Areas of high volume, high risk, high cost Setting Priorities


when improvements can be made, e.g.
In any health practice, it is rarely possible to
serious accidents, new service that needs
correct immediately all problems, so some
to be assessed.
system of priorities have to be worked out. To
help yourself priorities, ask yourself:
Agree Criteria—Consult, Involve
™™ Is the problem common?
‘Appropriate’ Others
™™ Does it have serious consequences?
Keep the data collection forms as simple as
™™ Can I do something about it?
possible. Speak to others who have audit
experience before starting. Discuss plan with
relevant groups, e.g. other professionals who Set Standards for Achievement—
care for the patient group being audited; Criteria (i.e. What should be Happening)
other departments involved in the care, e.g. An audit criterion is a ‘specific, evidence based
accident and emergency faculty, diagnostics; statement’ of what should be happening?—e.g.
administrative staff managers and patients. It all asthmatics should have had a peak flow (PF)
is good practice to engage service users in the recorded in the past year. It should be easily
audit process, especially if you are auditing measurable or quantified—e.g. ‘asthmatics
patient experience. should have had a PF recorded in the past
Discussing with others who have done audits year’. Do not try to audit too many criteria at
will have two advantages—first the problems that once—one or two will be just enough.
others had with their audits and the measures
they took to solve them will be valuable; second,
Agree Criteria (Data to be Collected
the data from others can be used comparison
and Analysed (i.e. What is Happening)
with your practice. If such comparison is
contemplated, sampling, inclusion and exclusion One has to collect data for audit from various
criteria have to be similar. sources.

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364  Section 9: Education and Research
You can collect information from: need to compare our data with earlier defined
™™ Computer registers targets within our practice or with similar
™™ Review of contents of medical records practices and provide feedback.
™™ Questionnaires—patients, staff and doctors If targets have not reached, we need to work
™™ Date collection sheets. out possible reasons why the practice hasn’t
You can delegate this responsibility to all met the standard we have set. Some common
the office staff who can help you set up the reasons are:
search or organize questionnaires.
Practice • Failing to feed exact ‘code’ on
reasons computer
Identify Areas of Improvement and • Failing to feed information on the
Setting of Standards spot (delay tactics)
• Failing to delegate responsibility
This stage can be difficult and time consuming. (not my job)
Adequate standards can only be achieved after Patient • Refusing to have tests done
much study and consultation, not only between reasons • Absent on appointment day/time
(holidaying)
members of the practice team but with other
Doctor • Not all physicians are aware of the
physicians and comparison with standards
reasons practice policy
recommended by parent organizations or those • Not all partners agreed with the
laid down in the contract. policy
An audit standard is a minimum level of • Lack of ‘statistical’ knowledge
acceptable performance for that criterion. For
example, at least 60% of asthmatics should Re-pilot—Implement Changes (Repeat
have PF recorded in the past year. Some criteria the Cycle when Changes are Needed)
are so important that they need 100% standard. Above evaluation shows what changes need
However 100% standards are unusual— to be done. Find new methods to correct any
patients or circumstances prevailing prevent deficiencies and alternative practice styles.
perfection, which is reflected in the ultimate Repeat the cycle, i.e. reevaluate care to ensure
results obtained. For Example: that any remedial action has been effective.
Criteria Standard Results
Re-audit
Asthmatics should have PF Minimum 40%
meter recorded once a year 60% This is the final stage of further assessment to
check whether the corrective action has been
All patients should be seen Minimum 45%
within 15 minutes of their 70% successful in remedying any deficiencies.
appointment At the same time, a quick evaluation should
All drug allergy patients Minimum 95% take place to make certain the problem is
listed on computer as 100% unlikely to recur.
‘active problem’
All eligible women aged Minimum 50% Keep a Record
30–65 years should have 75%
pap smear once a year Keep brief written record of—
™™ The reason for doing the audit
™™ Criteria and standards
Pilot Audit—Make Changes, Evaluate ™™ Results
Information ™™ Plans for change
This is a stage of ‘performance versus targets’. ™™ Action taken
Is our performance in line with our targets? We ™™ When/whether to repeat the audit.

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Chapter 36: Clinical Audit 365

Confidentiality ™™ Audit in the right atmosphere—‘aims to


encourage, foster and maintain highest
In all stages of any audit, maintaining standard in family practice’.
confidentiality is very important.
Because all audit is examining performance Conclusion
in practice, suspicion and uncertainty are
Clinical audit has become a key activity for
bound to arise and deter some physicians
healthcare organizations. The clinical audit
from involving themselves too actively. It is
process is frequently described as a cycle
therefore essential that audits be designed
of steps and gives a clear checklist of the
to create a positive force to help physicians
components required to undertake an audit
enhance their performance rather than to
project successfully; however, it also requires
inspect and find faults.
the creation of a supportive environment. The
identification of explicit audit criteria is the
Audit—Pitfalls core feature of any systemic approach to audit.
Audit may: Adequate clinical contact and referral systems
are also very essential. The resources should
™™ Be seen as a threat
be cheap and simple and cause minimal
™™ Be seen as an unpleasant time consuming
disturbance to clinical work. Implementing
distraction from day-to-day practice changes is the most challenging stage in the
™™ Antagonize if introduced in an insensitive audit cycle.
way
™™ Give the impression of implied criticism. Refrences
Audit must: 1. Dalla-Vorgia P, et al. Is consent in medicine a
™™ Assist staff
concept only of modern times? J Med Ethics.
2001;27(1):59–61. [PMID: 11233382: Free PMC
™™ Be effective at improving care
Article].
™™ Not be a menace or a means of discipline 2. Clinical audit: what it is and what it isn’t.
™™ Have a clear purpose W e b s i t e : w w w . r c p s y c h . a c . u k / p d f /
clinauditchap1.pdf (Accessed on 26-07-13).
™™ Use the no-blame approach
3. Chambers R, et al. Audit activity and quality
™™ Respect the individual skills of staff of completed audit projects in primary care in
™™ Crete an atmosphere in which mistakes can Staffordshire. Qual Health Care. 1995; 4(3):178–
be admitted without blame 83. [PMID: 10153426: Free PMC Article].

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37 Evidence-based
medicine: PRINCIPLES

“The absence of evidence is no evidence of absence.”

A Case Scenario investigations for viral fever in a child with


stable vital parameters had mostly negative
A 2-month-old infant was brought to a rural
findings for more serious problems.2 However,
health center at 11.00 pm with a temperature
he could not substantiate the potential risks
of 104°F (i.e. 40°C). The child was in good
due to premature investigations (e.g. lumbar
health until 2 days previously when there was
puncture, doubtful treatment), with added
onset of intermittent fever to 104°F. There
anxiety that may arise due to both false positive
was no vomiting or lethargy. The vitals were
and false negative results, against benefits of
within normal limits. There was no rash or
‘wait-and-watch’ approach in such low-risk
neck rigidity or signs of dehydration. Systemic
infants, and re-examination of the infant after
examination was normal. The child was in
couple of hours for any deteriorating symptoms
good health all along, parents not having
and signs, versus emergency admission to
noticed anything abnormal with the child. The
the children’s hospital to investigate for any
family had no health insurance cover.
unusual sepsis etio-pathogenesis.3
The physician, who had seen similar illness
However, the parents contacted a
in infants and children in the recent past in his
pediatrician over the phone at the hospital,
rural surroundings, and had learnt through
who advised admission (also without
Centers for Disease Control and Prevention of
estimates of harms versus benefits). The
the prevailing influenza-like-illness with low
infant was rushed late night to the hospital.
morbidity and mortality, suspected an acute
The investigations were non-contributory,
viral febrile episode. He explained that it was
with added advice—“correlate clinically.” The
not reasonable to admit the febrile infant and
family acquired a sizable hospital bill (as the
do tests to all of them or start empiric antibiotic
family had no insurance cover); the child was
therapy,1 and advised close follow up. But
discharged with symptomatic treatment 2 days
parents could not be convinced of the possible
later with further uneventful recovery.4,5
benign nature of the child’s illness, and desired
to know if the child was suffering from some
life-threatening condition such as pneumonia,
Case Study Continued
and opted referral for hospitalization. The physician later undertook a brief literature
The physician knew that the nearest network search, which showed that the risk
children’s hospital was about 100 km away, of bacterial meningitis and serious bacterial
which had emergency admission facilities, and infection are about 0.5% (1 in 200) and 1.5%
specialized investigations for sepsis diagnosis. respectively. 6 A practice guideline, based
He was also aware of the fact that most upon meta-analysis, has been formulated

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Chapter 37: Evidence-based Medicine: Principles 367

for the management of infants with fever patient care requires skills that need to be
without source (without localizing signs).7 This taught. Most practicing physicians are not
guideline provides solid evidence supporting taught these skills in medical school.10
“close ambulatory follow-up of low-risk infants” Therefore, in most cases, the clinician
(i.e. normal WBC counts, urinalysis and stool usually relies on his/her clinical experience
examination). Interestingly enough, a later and judgment, perhaps associated by the
study evaluated parent preferences for the advice of colleagues or consultants who
care of febrile infants without apparent source. practice the same way.11
Parents were given a case scenario similar to
the case discussed above. They were informed What is Evidence-based Medicine?
of the risks, outcomes and costs of close EBM is probably best understood as a decision-
ambulatory follow-up versus hospitalization making framework that facilitates complex
for lumber puncture and sepsis work-up. About decisions across different and sometimes
80% of the patents chose the ambulatory option conflicting groups. EBM enable clinicians
of less testing because of fewer painful tests to “see” the difference between alternative
and procedures, lesser chances of unnecessary decisions that would be hard to ascertain
antibiotics, and the assurance that re-evaluation otherwise. It involves considering research
was available if the child failed to improve.8 and other forms of evidence on a routine
In the case scenario discussed above, basis when making health are decisions. Such
evidence-based approaches could have decisions include clinical decisions about
clarified harms versus benefits of hospital choice of treatment, test or risk management
admission for sepsis work-up and enabled for individual patients, as well as policy
better informed partnership decision making decisions for groups and populations.
between the physician and the patents. EBM comes under several names, some of
which are: clinical—practice guidelines directory,
Learning of Evidence-based standardized plans of care, clinical algorithms,
Medicine (EBM) clinical policies and clinical pathways.
The above case is a typical example of a common
clinical situation faced almost daily by family
Distinguishing Features of Ebm
physicians—how to quantity harms versus Physicians sometimes question the novelty of
benefits and counsel patients and families EBM, noting that medicine has always been
about patient treatment options, when required ‘evidence-based’. Indeed since the times of
evidence is either unavailable or unknown, Ancient Greece, physicians have engaged in
especially when point-of-care decisions have scientific study. The traditional medical practice
to be made in remote healthcare centers with has always drawn upon research—evidence at
unique challenges such as scarcity of specialty different times to form key decisions (Fig. 37.1).
care and under-resourced infrastructure. What distinguished EBM from the traditional
There is evidence concerning primary care application of evidence in medicine, however,
clinicians that EBM is not always relevant to is the explicit linkage between formation of a
primary care and that undue emphasis placed specific policy based on research evidence that
on it can lead to conflict with a clinician’s duty is comprehensive, critical and explicit.
of care and respect for patient autonomy.9 Comprehensiveness is important to ensure
Further, developing the ability to access that all evidence is considered rather than
information from the medical literature, just those studies that support a particular
critically appraising it, and applying it to viewpoint or that reflect a selection bias.

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368  Section 9: Education and Research

Fig. 37.1  The sequence of traditional medical decision-making12

Critical appraisal is emphasized to examine The Rationale for Ebm—the


the strengths and weakness of the study design Paradigm Shift (Table 37.1)
so that judgments about evidence can be
linked to quality. For years, clinical decision-making was based
primarily on physician’s knowledge base and
Explicitness gives transparency to evaluation, expert opinion. Accountability was centered
allowing readers to understand the methods on patient outcomes, with success determined
used in the analysis, the strengths of the by meeting the agreed treatment goals. The
evidence, the gaps that exist, and the rationale system of accountability to medical boards
for practice recommendations or policies, or healthcare insurance companies was not
whether evidence—or opinion based. rigidly applied. State medical boards invariably
provided the “final” accountability; if at all the
Where Did Ebm Come From? patient sought legal action.
The philosophical origin of EBM extends back But in the last few decades the amount of
to mid 19th century in post-revolutionary information concerning available treatment
Paris. In the current era, the term EBM was and management options for many conditions
coined by clinicians and epidemiologist group has increased exponentially. This development
led by Gordon Guyatt, at McMaster University has particular relevance for general practice
in Ontario, Canada in 1988.13 It became known given the breadth of conditions managed.
worldwide during the 1990s. Its core idea— Increased patient sophistication, brought
that we should consider the effectiveness about largely by mass media coverage of
and harms of different interventions before medical advances and by information
implementing them, using reliable estimates of accessibility on the internet and its global
benefit and harm was, of course, not new. Many impact requires that physicians provide
people worldwide had previously pioneered evidence validating the treatments or testing
many of the epidemiological and statistical procedures they choose.
methods needed to perform EBM. One leader Soaring health care costs have prompted
who stands out was Archie Cochrane, who, government and healthcare insurance
early on, championed the importance of companies to scrutinize the effectiveness and
understanding the effectiveness and efficiency appropriateness of health care service utilization.
of healthcare interventions—and the methods The high cost of medical case, in terms of both
for doing so.14 The McMaster group, in turn, morbidity and expenditure, are driving the need
developed these methods into user-friendly to base clinical decision making on standardized
toolkits that clinicians could apply in real guidelines that can help physicians provide the
time to patients, making them more widely best care to all patients at the lowest-cost to the
available for practical applications. individual and to society.15

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Chapter 37: Evidence-based Medicine: Principles 369
Table 37.1  The paradigm shift occurring in modern medicine16
The former paradigm The new paradigm
• Observation from clinical experience is a valid • Clinical experience is crucial to become a competent
way of building and maintaining one’s knowledge physician and attempts to systematically record
about patient prognosis, diagnostic tests and the observations in a reproducible and unbiased fashion
effectiveness of treatment can significantly increase one’s confidence about
• Understanding of mechanism of disease and basic his/her skills necessary for clinical practice
pathophysiology principles are a sufficient guide for • The understanding of basic mechanisms of disease
clinical practice is necessary but an inefficient guide for clinical
• Combination of traditional medical knowledge and practice
experience is sufficient to allow one to evaluate and • Understanding, specific rules regarding the quality
adopt new medical interventions of evidence available is essential to correctly
• Content expertise and abundant clinical experience interpret medical literature on new or existing
are sufficient for generating valid guidelines for medical interventions
clinical practice • In addition systematic and rigorous review and
• The focus is on traditional scientific authority and evaluation of current scientific evidence is necessary
adherence to standard approaches where answers for making clinical guidelines recommendations
are often sought from direct contact with local and • Focus on independent assessment of evidence and
international experts its implementation in clinical practice

Definition of EBM and EBP benefits of potential interventions, and their


There are a number of definitions of EBM or personal values and expectations.
Evidence-based practice (EBP). Below are ™™ ‘Patient values’ means the unique
reproduced some of those that are sited most preferences, concerns and expectations each
commonly. patient brings to a clinical encounter and
which must be integrated into the clinical
Evidence-based Medicine (EBM)17 decisions if they are to serve the patient.
EBM is the integration of best research evidence When these three elements are integrated,
with clinical expertise and patient values. clinicians and patients form a diagnostic and
™™ ‘Best clinical evidence’ means clinically therapeutic alliance, which optimizes clinical
relevant research, often from the basic outcomes and quality of life.
sciences of medicine, but especially from
patient centered clinical research into Evidence-based Practice (EBP)18
the accuracy and precision of clinical “EBP is an approach to health care where in
examination, diagnostic tests, the power health professionals use the best evidence
of prognostic markers, and the efficacy and possible, i.e. the most appropriate information
safety of therapeutic, rehabilitative, and available to make decisions for individual
preventive regimens. patients. EBP values, enhances and builds
New evidence from clinical research on clinical expertise, knowledge of disease
both invalidates previously accepted mechanisms, and patho-physiology. It involves
diagnostic tests and treatments and complex and conscientious decision-making
replaces them with new ones that are more based not only on the available evidence but
powerful, more accurate, more efficacious, also on patient characteristics, situations, and
and safer. preferences. It recognizes that health care is
™™ ‘Clinical expertise’ means the ability to use individualized and ever changing and involves
our clinical skills and past experience to uncertainties and probabilities. Ultimately EBP
rapidly identify each patient’s unique health is the formalization of the care process that the
state and diagnosis, their individual risks and best clinicians have practiced for generations.”

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370  Section 9: Education and Research
Steps to Practicing EBM19 In many systemic reviews, studies are
(Fig. 37.2) assigned a ‘grade’ or ‘level’ of evidence that
reflects the strength of evidence. The US
At the technical level, EBM involves converting Preventive Services Task Force (USPSTF)
complex information from literally thousands grades the quality of the overall evidence
of individual studies into user friendly risk for a medical service on a 3‐point scale:20
estimates. It involves a defined five step
approach of: Good
1. Asking an answerable clinical question:
Defining a structured question(s) relevant Evidence includes consistent results from
to clinical situation is the first step. A good well designed, well‐conducted studies in
clinical question will have four major representative populations that directly assess
elements considered: Patient, Intervention, effects on health outcomes.
Comparison and Outcome, commonly
known as PICO. For example: in a 50-year- Fair
old man with diabetes and no heart disease Evidence is sufficient to determine effects
(patient), does a statin (intervention) on health outcomes, but the strength of the
compared to placebo (comparison) reduce evidence is limited by the number, quality,
outcomes (CV events or mortality)? or consistency of the individual studies,
Another example could be: In the case of a generalizability to routine practice, or indirect
50-year-old male (Patient) is Omega 3 fatty nature of the evidence on health outcomes.
acids (Intervention) as effective as Vitamin
E (Comparison) in treating cardiovascular Poor
disease (Outcome)?
Evidence is insufficient to assess the effects on
Different types of questions are best
health outcomes because of limited number or
answered by different types of studies
power of studies, important flaws in their design
(Tables 37.2 and 37.3).
or conduct, gaps in the chain of evidence, or lack
2. Search the literature for the best available
of information on important health outcomes.
evidence.
Some examples of the way evidence ratings
This step requires a familiarity and some
will appear in the text of an article are:
skills in selecting accurate, appropriate cross-
referencing terms to provide useful literature ™™ “To improve morbidity and mortality, most
searches. Choosing sufficiently precise and patients in congestive heart failure should
sensitive keywords help to identify studies be treated with an angiotensin-converting
of relevance to selected question. enzyme inhibitor. [Evidence level A, RCT]”
Online medical databases, such as MEDLINE ™™ “The USPSTF recommends that clinicians
or Pub Med, are commonly used sources. routinely screen asymptomatic pregnant
In the context of EBM, randomized clinical women 25 years and younger for chlamydial
trails (RCTs) are commonly regarded as infection. [Evidence level B, nonrandomized
the ‘gold standard’ methodology to assess clinical trial]”
the effectiveness of different forms of ™™ “The American Diabetes Association
interventions, although other methodologies, recommends screening for diabetes every
such as cross-sectional studies, cohort three years in all patients at high risk of the
studies, case reports, expert opinions, peer disease, including all adults 45 years and
reviews, etc. are also evaluated. older. [Evidence level C, expert opinion]”

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Chapter 37: Evidence-based Medicine: Principles 371

Fig. 37.2  Steps in guideline development

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372  Section 9: Education and Research
Table 37.2  Some examples of questions that EBM can help to answer are:

Specific question EBM category


• Should we prescribe COX-2 inhibitor or proton-pump inhibitor plus non-selective Treatment question
COX inhibitor for elderly people with painful osteoarthritis?
• What is the chance that fibrates will reduce coronary mortality in women with
isolated low-high density lipoprotein cholesterol?
• Should we screen the general population for colorectal cancer using fecal occult Diagnostic test question
blood test?
• What is the chance that raised prostate—specific antigen correctly diagnoses
prostate cancer in men over 60 years of age without urinary symptoms
• What is the chance that cell phones cause cerebral tumors? Risk factor question
• What is the chance of an infant suffering from HIV after being delivered by Prevalence question
cesarian section of a mother suffering from AIDS?
• What is the chance in a given year a patient with Rheumatic arthritis developing Incidence question
valvular heat disease who is not on prophylactic antibiotic therapy?

Table 37.3  Question and evidence-based study 3. Critically appraising the evidence
support
Several Internet sites that appraise the
Type of Question/ Type of Study/ research literature for readers have been
Domain Methodology developed. Physicians can go directly to
Therapy/Treatment Double-Blind these web sites to find the evidence they are
Selection of treatments Randomized Controlled seeking. Several sites offer ‘best evidence’
or interventions that do Trial (RCT), Systematic on a number of specialties for either
more good than harm Review/Meta Analysis
and that are worth the of RCT
primary caregivers or specific specialties.
effort and cost The following are a few established web
Diagnosis Controlled Trial
sites (Table 37.4).
Selection and Systematic Review/Meta Basically, appraisal involves looking first
interpretation of Analysis of Controlled at most reliable studies and comparing and
diagnostic tests, in order Trial contrasting their results. In most situations,
to confirm or exclude
a diagnosis, based they all find more or less the same kind of result.
on considering their The results of these studies can be summarized
precision, accuracy, either in descriptive form of ‘compare and
acceptability, expense,
safety, etc. contrast’ results or using a technique called
‘meta-analysis’. This process is typically time-
Prognosis Cohort Studies, Case
Estimation of a patient’s Control, Case Series
consuming, requiring organizational support,
likely clinical course over including statisticians. The use of above websites
time and anticipation of provides easy source of readily available and
likely complications of
updated evidence based information.
disease
4. Applying evidence based data to the
Harm/Etiology Cohort Studies
clinical problem:
Identification of causes
or risk factors for disease This step requires physicians to apply the
validated evidence to the particular clinical
Prevention RCT, Cohort Studies
situation or patient. Both the objective and
Quality Improvement RCT subjective data are collected. Some of the
Adapted from: Sackett et al. Evidence-Based Medicine: How to
questions that need to be answered in this
Practice and Teach EBM process are:

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Chapter 37: Evidence-based Medicine: Principles 373
Table 37.4  EBM-Websites ™™ Document the strength (i.e. grade or
Web source URL level) of the evidence that supports each
BMJ publishing group http://clinicalevidence. recommendation.
clinical evidence bmj.com/x/index.html ™™ Not only make statements about which of
The Coherence http://www.cochrane. the two options (treatments) is better, but
database org/ quantify the difference in outcome, including
The National Guideline http://www.ahrq.gov/ benefit and harms, between them.
Clearing house clinic
™™ Provides a comprehensive summary of the
American College of http://www.acponline.
Physicians Journal Club org/journals/acpjc/ available evidence, the clinician therefore
jcmenu.htm is freed from the onus of having to search,
Bandolier http://www.jr2.ox.ac.uk/ review and assimilate all such evidence.
bandolier/ ™™ Helps physicians to decrease inappropriate
Centre for Evidence- http://cebm.jr2.ox.ac.uk/ variability in medical practice and to
based Medicine
practice according to emerging research
TRIP Database http://www.ceres. evidence.
uwcm.ac.uk/frameset.
cfm?section=trip ™™ Can also be accessed by patients and
U.S. Preventive http://www.ahrq.gov/ consumers. They can therefore be aids to
Services Task Force clinic/uspstfix.htm interaction between the patient and their
(USPSTF) health care providers. Guidelines provide
PubMed http://www.ncbi.nlm.nih. information to permit joint decision making
gov/pubmed
between parties to pursue outcomes that
they both agree and desirable.
ƒƒ Is the diagnostic test or treatment based
™™ Can be effectively applied to evaluate
on evidence is accurate for the patient’s
various health care services and procedures
specific condition at this particular
in terms of their costs and outcome, the
institution?
results of which can be translated into
ƒƒ Are the diagnostic tests or treatment
cost control and quality improvements in
procedures suitable in terms of
practical health care development.
patient’s capabilities, preferences and
quality of life?
ƒƒ Do the treatment or procedures Limitations of Ebm
used provide answers to the clinical There are theoretical and practical limits to
questions and, if not how the process EBM/guidelines.
can be improved? Theoretically, EBM addresses questions
5. Evaluation of performance such as, “What is the chance/risk” of a certain
Although EBM is now widely accepted drug, procedure, etc. which compare benefit
and used in primary care as well as in or harm to the patient. It does not answer
many specialties, it remains a relatively questions such as “how or why” a drug or a
young discipline. Its positive impacts procedure acts the way it does. This limits
are beginning to be validated, and it will the application of EBM to an important, but
continue to evolve. defined, subset of questions in clinical practice
or policy decisions.21
Advantage of Ebm Practical limitations usually encountered are:
Evidence based guidelines: ™™ Insufficient data/evidence for too many
™™ Clearly differentiate ‘opinion’ from ‘evidence’. problems and poor generalizability

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374  Section 9: Education and Research
™™ Insufficient skills for interpreting evidence Correction: Because of much of medical
based information, which can lead practice has been based on traditional
physicians reaching invalid conclusions medical education and global subjective
in translating evidence into guidelines judgment without broad access to
™™ Biases or conflicts of interest among electronic database, this review is clearly
panel members can produce different not well founded.
recommendations than the data support 2. It will replace clinical judgment.
™™ Evidence-based guidelines often do not Correction: EBM makes clinical autonomy
change practice behavior of physicians. Most more thoughtful and more transparent.
studies indicate that passive dissemination EBM increases, rather than diminishes,
of guidelines, such as publishing them in a professional responsibility and authority,
medical journal, is ineffective in charging because it provides a much more secure
behavior. Guidelines have been shown to basis for decision-making.
be effective in changing practice patterns 3. It will foster ‘cook-book’ medicine.
when they are accompanied by active Correction: Good guidelines are not
implementation strategies, such as standing ‘decisions’ but rather ‘decision aids’. They
orders, reminder systems, audit academic articulate summary statements, which
detailing and feedback.22 facilitate decision-making. The process of
™™ Practice guidelines can have adverse EBM requires that physicians assess the
implications for clinicians, especially quality and relevance of whatever current
if they are rigidly enforced by Health evidence can be found. In an individual
Management Organizations (HMOs), clinical situation, the physicians’ need to
Mediclaim or malpractice courts. They apply the evidence as it is appropriate to
can have adverse policy implications for the patients needs and preferences, where
society if they increase the costs of care, in guidelines are helpful.
decrease quality, or divert resources from 4. I don’t have time for it.
more effective health care interventions. Correction: With continued advances in
™™ The need to develop new skills in searching medical informatics and ready availability
and critical appraisal can be discouraging. of predigested evidence-based analysis of
Busy physicians have limited time to common clinical problems, this problem
master and apply their new skills and the may well decrease in future.
resources required for instant access to
evidence—to obtain relevant evidence
Conclusion
to assist in clinical decision-making With the growth of clinical research during
at the time of patient’s visit—are often the last 30 years, together with new emphasis
inadequate in majority of clinical settings. on cost and outcome assessment and the
increased use of randomized clinical trails and
Misconceptions about EBM meta-analysis, EBM is being hailed as a new
EBM has elicited some confusion and paradigm of medical education and practice.
misconceptions among many physicians. Rooted in the epidemiology, EBM has the
Sackett and his colleagues have observed the potential to inform and guide clinical decision
following common misconceptions raised by making not only for the care of individual
physicians in their work with EBM:17 patient but also for cost effectiveness analysis
1. It’s what we have always done. and health policy for population being served.

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Chapter 37: Evidence-based Medicine: Principles 375

The application of EBM can thereby help 9. Slowther A, et al. Ethics of evidence based
formulate clinical practice guidelines for medicine in the primary care setting. J Med
quality performance measures in healthcare Ethics, 2004;30(2):151–5. [PMID: 15082808:
delivery system. At the same time, EBM Free PMC Article].
10. Bradt P, et al. How to teach evidence-based
requires institutional support by way of
medicine. Clin Perinatol, 2003;30(2):419–33.
specialist skills, supply of evidence, and widely
[PMID: 12875363: Abstract].
accepted standards, which will take some
11. Harrison MB, et al. Adapting clinical practice
time to be widely available. In the meantime, guidelines to local context and assessing
clinicians can benefit from learning evidence barriers to their use. CMAJ, 2010;182(2):E78–
based interpretive skills both for informing 84. doi: 10.1503/cmaj.081232. Epub 2009 Dec
their own practice and for contributing to its 7. [PMID: 19969563: Free PMC Article].
future healthy health care delivery system. 12. Didshury P. Benefits of best practice guidelines.
New Zealand Fam Phys, 2003;30(5):317–23
References 13. Evidence based medicine working group.
Evidence basec medicine. A new approach to the
1. Kevalas R. Febrile infant and small child: what
practice of medicine. JAMA, 1992;268:2420–5.
solution could be rational?. Medicina (Kaunas),
2005;41(11):974–87 [PMID: 16333221: Free 14. Cochrance AL. Effectiveness and efficiency.
Article]. Random reflections on health services.
London, UK: Nuffield Provincial Hosp. Trust;
2. Guidance for Clinicians on the Use of Rapid
1972.
Influenza Diagnostic Tests
15. Chalfin DB. Evidence Based Med. And cost
We b s i t e : h t t p : / / w w w . c d c . g o v / f l u /
effectiveness analysis. Crit.Care Clin, 1998;14:
professionals/diagnosis/clinician_guidance_
525–37.
ridt.htm (Accessed on 19-07-2013).
3. Recommendations for Management of 16. Users’ guide to EBM. JAMA, 1992;268(17):
Common Childhood Conditions: Evidence 2420–25.
for Technical Update of Pocket Book 17. Sackett DL, et al. Evidence based medicine:
Recommendations, WHO 2012. what it is and what it isn’t. BMJ, 1996;312
Available from: http://www.ncbi.nlm.nih.gov/ (7023):71–72.
books/NBK138338/ 18. Mc Kibbon KA. Evidence based practice.
4. Geyman JP. Evidence-based medicine in Bulletin of the Medical Library Association,
primary care: an overview. J Am Board Fam 1998;86(3):396–401.
Pract, 1998;11(1):46–56. 19. Donald Anna. How to practice EBM. Medscape
5. Geyman JP. Evidence-based medicine in General Medicine, 2003;5(1).
primary care: an overview. J Am Board Fam 20. Appendix A: How the US. Preventive Services
Pract, 1998;11(1):46–56 [PMID: 9456447]. Task Force Grades Its Recommendations
6. Baraff LJ, et al. Probability of bacterial infections Guide to Clinical Preventive Services, 2012
in febrile infants in less than three minths of age: a Web site: http://www.ahrq.gov/professionals/
meta-analysis. Paed infect Dis J, 1992; 11:257–64. clinicians-providers/guidelines-
7. Baraff LJ, et al. Practice guidelines for the recommendations/guide/appendix-a.html
management of infants and children 0 to 36 (Accessed on 20-07-13).
months of age with fever without source. Ann 21. Anna Donald. Evidence-Based Medicine: Key
Emerg Med, 1993;22:1198–1210. Concepts, Medscape General Medicine, 2002;
8. Oppenheim Pl, et al. Incorporating patient 4(2).
preferences into practice guidelines. 22. Davis DA, et al. Evidence for the effectiveness
Management of children with fever without of CME: a review of 50 randomized controlled
source. Ann Emerg Med, 1994;24:836–41. trails. JAMA, 1992;268:1111–17.

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38 Evidence-based
medicine: PRactice

“Evidence is not implemented in a simple linear way, as some definitions of evidence-


based practice imply, but in an evolving process whereby reciprocal contributions from
the doctor and the patient over time influence how evidence ultimately is used.”
Freeman AC

Evidence-based Practice Unfortunately, even though providing


evidence-based care is an essential component
Evidence-based practice (EBP) is the
of health care quality, it is well-known that
conscientious and judicious use of current best
evidence-based practices are not used
evidence in conjunction with clinical expertise
consistently, and much of the evidence is not
and patient values and preferences to guide
acted on everyday clinical practice. This is
health care decisions.1 The full integration of
especially the case in general/family practice
these three components into clinical decisions
wherein patient centered factors exert a powerful
enhances the opportunity for optimal clinical
influence on clinical decision-making. The
outcomes and quality of life (Fig. 38.1).
majority of family physicians and primary health
“Evidence-based practice,” “evidence-
care providers have a sceptical view toward EBM
based medicine,” “evidence-based healthcare,”
and their enthusiasm in its implementation has
“evidence-informed practice” and similar terms
been tempered with some doubts.3
all revolve around using the highest quality basic
and clinical research information to make a
Adherence of Ebp in General
well-formed decision to the health care needs
of populations and individuals. This implies
Practice/Family Medicine
that EBP appropriately applies evidence to the Family physicians and primary health care
specific situations and unique needs of patients. providers have a commitment to quality care

Fig. 38.1  The domain of evidence-based practice

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Chapter 38: Evidence-based Medicine: Practice 377

and attempt to practice on the basis of their Concerns about Ebm in Primary
knowledge of the most effective management Care Practice
strategy for a particular condition. The unique
Although EBM is an invaluable tool for the
advantage of their trusted relationship with
practice of medicine because it facilitates a
patient and families adds to the sustenance in
systematic examination of study methodology
the management of their problems by taking
and its clinical application, physicians, however,
into account many facets of the patient’s life.
predictably face difficulties when they try to
However, in the last few decades the
apply EBM in actual clinical practice, and they
amount of information concerning available
may not be able to answer all questions about
treatment and management options for
patient care using the EBM model.
many conditions has increased exponentially.
The evidence obtained from studies such
Although this development has particular
as those quoted above suggest that the central
relevance for general practice given the breath
assumptions of the EBM/EBP paradigm may
of conditions managed, there are reasons
not be shared by many general practitioners,
for pause before accepting in an uncritical
making its application in general practice
manner the tenets of EBP as applicable to
problematic.
primary health care delivery system.
Concerns that primary health care providers
Generally, general practitioners have been
have expressed, either about EBM, or its
cautions about the evidence-based model.
possible use, may be summarized as below:
In one of the questionnaire study of general
practitioners’,4 it was noted that, “the major
Restrictive Definition of ‘Evidence’ as
perceived barrier to practicing evidence-
Applicable to EBM
based medicine was lack of personal time….
reading all important articles to keep in touch The definition of ‘evidence’ as applicable
with relevant information was impossible… to EBM is highly restrictive; it eliminates a
GPs thought the most appropriate way to number of important inputs to the clinical
move toward evidence-based general practice decision-making process that would be
was by using evidence-based guidelines or considered under a broader definition of
proposals developed by colleagues”. evidence. For example, patient values and
In another cross-sectional electronic preferences, which are meant to be integrated
survey among 703 GPs in the Netherlands,5 into decision-making (i.e. patient centered
to address the attitudes toward guidelines in care), are excluded as forms of evidence. It’s an
general, and to rate their perceived adherence acknowledged dictum that clinical medicine
and barriers to their implementation, it was is a discipline that involves individuals and
found that only rarely did general practitioners therefore the art of medicine must take into
made use of the research service offered; the account particular individual attributes (i.e.
reasons included lack of time and the general autonomy) in the context of evidence that is
practitioners’ doubts that the service would be available.
of benefit to their patients. The evidence derived during the course
In an Australian GP study, 6 the most of clinical practice—the type of practical,
commonly cited barrier to EBM was ‘patient experiential knowledge that only develops
demand for treatment despite lack of evidence over time—is also excluded in the initial model
for effectiveness’, and the preferred resources for of EBM. Feinstein AR et al state,7 “… the new
EBM included clinical practice guidelines and collection of “best available” information has
journals that summarize research evidence. major constraints for the care of individual

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378  Section 9: Education and Research
patients derived almost exclusively from pharmaceutical and medical device industries
randomized trials and meta-analyses, the data … this has occurred because physicians have
do not include many types of treatments or allowed it to happen, and it is time to stop.”11
patients seen in clinical practice.”
Disparity between the “Levels of
Concern about the Credibility of
Evidence”
Evidence
The disparity between the “levels of evidence”
Family physicians have expressed concern
or “strength of recommendation” (Table 38.1)
about the credibility of evidence. A recent
and its importance in terms of therapeutics
study on the promotion of EBM in primary
and preventive application can be a misleading
case showed that while family physicians are
factor in the context of EBM. For example, most
generally accepting the concept of EBM, they
of the diseases seen in family practice have a
have difficulty with the credibility of certain
large lifestyle component; hyperlipidemia,
evidence claims.8 Part of the explanation is the
obesity, smoking, alcohol, hypertension,
explosion in the number of industry-sponsored
combined with sedentary life style are the
randomized clinical trials, especially the
major factors in chronic diseases such
growing influence that large pharmaceutical
as coronary heart disease, stroke, type 2
companies are capable of undermining the
diabetes, osteoporosis, chronic respiratory
truth about the published evidence doctors
diseases, and some specific cancers. These
use to treat patients. The suspicion is that
risks factor can only be effectively modified
pharmaceutical companies may be trading
by health education and disease prevention
lives for profits.9
at the level of the whole population and
Clinical trials are one of the main sources
results reported in population studies. The
of information that guide doctors when they
WHO 2008–2013 Action Plan for the Global
treat patients. However, there are many studies
Strategy for the Prevention and Control of
in the literature claiming that drug promotion
Noncommunicable Diseases states, “these
may lead to ethical problems, irrational use
diseases are preventable. Up to 80% of heart
of medication, and increased costs, as well
disease, stroke, and type 2 diabetes and over
as negative effects on the patient-physician
a third of cancers could be prevented by
relationship and the medical profession. 10
eliminating shared risk factors, mainly tobacco
The many instances of controversial drug
withdrawals have given doctors good reasons Table 38.1  Strength of recommendation: Taxonomy
to be sceptical about the evidence that reaches
Strength of Definition
them, and eroded their trust in the evidence recommendation
base. Some of the reputed journals have drawn A Recommendation based on
attention to the failure of such companies to consistent and good-quality
publish unfavorable trails and thereby basing patient-oriented evidence
the evidence. Further bias arises from the B Recommendation based on
professional journals in which contradictory inconsistent or limited-quality
patient-oriented evidence
conclusions are drawn in various drugs
C Recommendation based on
and procedural trails. The JAMA editor-in-
consensus, usual practice,
chief, Catherine DeAngelis, MD, says, “The opinion, disease-oriented
profession of medicine, in every aspect— evidence, or case series for
clinical, education and research—has been studies of diagnosis, treatment,
prevention, or screening
inundated with profound influence from the

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Chapter 38: Evidence-based Medicine: Practice 379

use, unhealthy diet, physical inactivity and the ‘red book’) since 1989. The red book is now
harmful use of alcohol … promotion of health widely accepted as the main guide to the
across the life course and prevention are the provision of preventive care in Australian
most important components for reducing the general practice. It provides the evidence base
burden of premature mortality and disability for which primary healthcare resources can be
due to such diseases.”12 However, such studies used efficiently and effectively while providing
only reach Grade B evidence even though the a rational basis to ensure the best use of time
results may have great impact on the public’s and resources in general practice.17
health.
Lack of EBM Curriculum
Guidelines could be Misused or In some faculties, EBM is often taught as an
Abused independent topic and is poorly integrated into
Narrowly focused clinical practice guidelines the clinical teaching of residents. Most EBM
could be misused or abused to implicate education occurs in a journal-club format,
negligence to GPs adopting different focusing on question development, searching,
management strategies in complex cases, and critical appraisal. The challenge of discussing
which have adverse outcomes.13,14 the evidence with patients is rarely addressed.18
Clinicians fear that the proliferation Residents also identified a general lack of
of guidelines will increase their medico education, time constraints, lack of priority, and
legal exposure. However, notwithstanding staff disapproval as important factors limiting
the medicolegal implications of clinical incorporation of EBM. Curriculum reform may
practice guidelines, Samanta A, et al, while help overcome these barriers.19
discussing the Apex court arguments states,”…
Guidelines are not mandatory… they need Barriers in General Practice
to be interpreted and applied in a way that Freeman AC et al,20 in their qualitative study to
is clinically appropriate … and therefore explore the reasons why general practitioners
could be overridden by clinical judgment in do not always implement best evidence in
an individual case… they represent just one primary care, identified six main themes that
option for improving the overall quality of indicated barriers to implementation:
clinical care.”15 ™™ The process of implementing clinical
Evans JG, in his article titled, “Evidence- evidence is affected by the personal and
based and evidence-biased medicine” states, professional experiences of the doctor;
“There is a fear that in the absence of evidence ™™ The patient-doctor relationship: the
clearly applicable to the case in hand a relationship that the doctor has with
clinician might be forced by guidelines to individual patients also affects the process;
make use of evidence which is only doubtfully ™™ T h e d o c t o r ’s c h o i c e o f w o rd s i n
relevant, generated perhaps in a different consultations can sway patients to accept
grouping of patients in another country and or reject clinical evidence. Doctors realize
some other time and using a similar but not this and can use it to preempt patients’
identical treatment.”16 decisions;
In order to facilitate evidence-based ™™ A perceived tension between primary
preventive activities in primary care, the and secondary care: the doctors thought
RACGP has published the Guidelines for the specialists approach evidence-based
preventive activities in general practice (the practice differently;

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380  Section 9: Education and Research
™™ General practitioners’ feelings about ™™ Increasingly many physicians will practice
their patients and the evidence have an in a multidisciplinary context, and where
important role in modifying how clinical appropriate, clinical guidelines should
evidence is applied; and be constructed in a multidisciplinary
™™ Logistical problems: many primary health environment so that they are able to
care units aren’t adequately staffed or promote effective teamwork in relevant
supported to implement evidence and practice settings.
arrange systems for disease management. ™™ Promoting and improving access to
summaries of evidence, rather than teaching
Essentials of EBM in Primary Care all general practitioners literature searching
Practice and critical appraisal, would be the more
appropriate method of encouraging
Since family/general practice is a broad-based
evidence-based general practice.
specialty and an essential foundation in effective
healthcare systems, it follows that providing
evidence-based primary care should reflect
The Future of EBM in Primary Care
positively on the community’s health. Further, Finally, there is the issue of the new EBM.
the practice of family/general practice involve In a recent article, Haynes et al21 in BMJ
knowledge of a wide array of different problems; have stated, “A criticism directed at EBM is
therefore, it necessarily requires the physician that it ties the hands of practitioners and robs
to manage a broad range of conditions, which patients of their personal choice in reaching in
are typically presented in an ill defined manner, decision about optimal care. There are many
incorporating therein not just physical aspects barriers to implementing health research in
of illness, but also mental, social, environmental practice, but conceptually at least tying clinical
circumstances. Hence, to be useful to the hands and robbing patients of their choices are
community at large, EBM and clinical practice not among them. Rather patients’ preferences
guidelines may be formulated with the following were incorporated into the first model of EBM
essential features incorporated therein: (Fig. 38.2) and their importance has been
™™ Clinical guidelines may be based on underscored in a recent revision depicted in
evidence, which is applicable to family/ the Figure 38.3.”
general practice setting to identify their In the newly devised model of EBM, “clinical
use, limitations and benefits. A rigid expertise” is placed at the center of overlapping
protocol would be inappropriate for the concerns with three essential components.
complexities of conditions presenting in
general practice and may therefore not Contemporary Definition of EBP22
improve health outcomes. Since the early definition proved to have some
™™ It is important that clinical guidelines important limitations in practice, i.e. did not pay
formulated on the basis of assessed enough attention to the traditional determinants
evidence that are developed by practicing of clinical decisions by purposefully
physicians in such a way as to provide emphasizing research knowledge but did not
useful assistance in practical settings rather equally emphasize the individual’s advocacy
than merely as a ‘recipe’ for intervention. in terms of needs, situation, wishes and goals;
™™ It is crucial that the skills and judgments and also eliminated the clinician’s expertise
of physicians in the practical setting are in assessing and integrating all these elements
respected and enhanced by EBM. into a plan of intervention, a contemporary

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Chapter 38: Evidence-based Medicine: Practice 381

are available. In any given situation the


patient’s clinical stage and circumstances
may predominate. For example, a patient
with chest pain staying in a remote location
may have to settle for aspirin, if it is the only
effective treatment at hand, whereas one
in an urban set up will likely have more
treatment options. In another situation,
the patient’s preferences make take
precedence. For example, a patient with
myocardial infarction in whom primary
PTCA is indicated may accept only an
alternative conservative therapy.
2. Research Evidence: The best available
research evidence obtained for clinical
Fig. 38.2  A model for evidence-based clinical decision application varies from one patient to
[Haynes RB et al. APC journal club 1996;125(3):A14-16]
another according to individual clinical
circumstances. Patient’s age, sex, existing
risk factors, and other variables need to be
considered. Thus, evidence alone does not
lead to decision-making process. Given the
likely consequences associated with each
option, the physicians must consider the
patient’s preferences and likely actions
(in terms of what interventions he or she
is ready and able to accept).
3. Clinical expertise: The clinical expertise
of the practitioner to bring these
considerations together and recommend
the treatment so that the patient is
agreeable to accepting.
Fig. 38.3  An updated model for evidence-based clinical
decisions In summary, the patient may refuse
(DaCruz D. You have a choice, dear patient. BMJ interventions with strong research support due
2002;324:674) to differences in beliefs and values. Similarly,
the clinician may be aware of factors in the
definition of EBP is favored which is simply “the situation (co-occurring disorders, lack of
integration of the best research evidence with resources and lack of funding) that indicate
clinical expertise and patient values” (Sackett, et interventions with the best research support
al. 2000). This simpler, current, definition gives may not be practical to offer. The clinician may
equal emphasis to: also notice that the best research was done
1. Patient preferences and actions: The on a population different from the current
patient’s situation, goals, values and client, making its relevance questionable, even
wishes and also patient’s clinical and though its accuracy is strong. Such differences
physical circumstances to establish what may include age, medical conditions, gender,
is wrong and what treatment options race or culture and many others.

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382  Section 9: Education and Research
Conclusion 8. Tracy S, et al. Qualitative study of Canadian
Family Physician’ perceptions of EBM. BMC
The term EBM was developed to encourage family practice, 2003;4:6.
family physicians/general practitioners and
9. Lexchin J, et al. Pharmaceutical industry
patients to pay due respect—no more no less to sponsorship and research outcome and quality:
current best evidence in making decisions. An systematic review. BMJ, 2003;326(7400):
alternative term that may find more appealing 1167–70. Review. [PMID: 12775614: Free PMC
is, “Research enhanced Health care”.23 The Article].
focus of task now is to articulate both a theory 10. Civaner M. A proposal for the prevention of
of evidence in clinical practice that admits a ethical problems related to drug promotion:
variety of inputs into consideration. The newly a national network for drug information. Turk
revised model of EBM is a step in that direction; Psikiyatri Derg. 2008 Fall, 19(3):310–7. [PMID:
however, it is clear that primary care providers 18791884: Free Article].
and family physicians have much to contribute 11. Berger E. Ghostwriters, data manipulation and
to the ongoing evolution of EBM, as they are the dollar diplomacy: how drug companies pull
central interface with the healthcare system.22 the strings in clinical research. Ann Emerg
Med, 2008;52(2):137–9. [PMID: 18672488].
Web site: http://www.annemergmed.com/
References article/S0196-0644%2808%2900941-4/
1. Sackett DL, et al. Evidence-based medicine: fulltext#sec1(Accessed on 22-07-13).
how to practice and teach EBM. London: 12. World Health Assembly Document A61/8 (18
Churchill-Livingstone; 2000. April 2008)
2. Sackett DL, et al. Evidence based medicine: We b s i t e : h t t p : / / w w w . w h o. i n t / n m h /
what it is and what it isn’t. BMJ 1996; publications/ncd_action_plan_en.pdf
312(7023):71–2. (Accessed on 22-07-2013).
3. Saitz R. Evidence-based medicine: time for 13. Lohr KN. Guidelines for clinical practice:
transition and translation (to practice). Evid applications for primary care. Int J Qual
Based Med. 2010;15(4):103–4. doi: 10.1136/ Health Care, 1994;6(1):17–25. [PMID: 7953199:
ebm1094. Epub 2010 Jun 22. [PMID: 20570949: Abstract].
Full text]. 14. Bogdan-Lovis E, et al. It’s NOT FAIR! Or is it?
4. McColl A , et al. General practitioner’s The promise and the tyranny of evidence-
perceptions of the route to evidence-based based performance assessment. Theor Med
medicine: a questionnaire survey. BMJ, 1998; Bioeth, 2012;33(4):293–311. doi: 10.1007/
316(7128):361–5. [PMID: 9487174: Free PMC s11017-012-9228-y.[PMID:22825592: Abstract].
Article]. 15. Samanta A, et al. Legal considerations of clinical
5. Lugtenberg M, et al. Perceived barriers to guidelines: will NICE make a difference? J R Soc
guideline adherence: a survey among general Med, 2003;96(3):133–8. [PMID: 12612117: Free
practitioners. BMC Fam Pract, 2011;12:98. doi: PMC Article].
10.1186/1471-2296-12-98.[PMID: 21939542 : 16. Evans JG. Evidence-based and evidence-biased
Free PMC Article]. medicine. Age Ageing, 1995;24(6):461–3.
6. Young JM, et al. Evidence-based medicine [PMID: 8588532: Full final text].
in general practice: beliefs and barriers 17. Harris MF, et al. Developing the guidelines for
among Australian GPs. J Eval Clin Pract, 2001; preventive care - two decades of experience.
7(2):201–10. [PMID: 11489044: Abstract]. Aust Fam Physician, 2010;39(1-2):63–5. [PMID:
7. Feinstein AR, et al. Problems in the “evidence” 20369139: Free Article].
of “evidence-based medicine”. Am J Med, 1997; 18. Korenstein D, et al. Mixing it up: integrating
103(6):529–35.[PMID: 9428837: Abstract]. evidence-based medicine and patient care.

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Acad Med, 2002;77(7):741–2. [PMID: 12114160: 21. Haynes RB, et al. Physicians’ and patients’
Abstract]. choice in evidence based practice. BMJ, 2002,
19. Bhandari M, et al. Challenges to the practice 2002;324(7350):1350, [PMID: 12052789: Free
of evidence-based medicine during residents’ PMC Article].
surgical training: a qualitative study using 22. Drisko JW. Smith College School for Social
grounded theory. Acad Med, 2003; 78(11):1183– Work Research, Northampton, MA. Web site:
90. [PMID: 1460488: Abstract]. http://sophia.smith.edu/~jdrisko/evidence_
20. Freeman AF, et al. Why general practitioners based_practice.htm (Accessed on 24-07-2013).
do not implement evidence: qualitative study. 23. Upshur REG et al. Evidence based medicine in
BMJ, 2001;323(7321):1100–2. [PMID: 11701576: primary care. New Zealand Fam Phys: 327:330.
Free PMC Article].

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39 Research in
Family Medicine

“Medical science has developed so amazingly within the past few years that it is now almost
impossible for a doctor to find anything all right about a patient.”
Earl Wilson.

Introduction With the development laboratory methods


for early detection of disease at the close of
Research can be viewed as “Organized
19th century, medicine moved faster toward
curiosity”, 1 an endeavor to discover facts
specialization. Further, “with the advent
or investigation into how and what we do,
of biomedical techniques and increasing
whether it works, whether we can do it better
sophistication of basic sciences, research
and more effectively.
methodology moved into hospitals and
All medical progress involves learning laboratory settings. The belief subsequently
about what is already known, which education developed that research was the province of
is, and learning to find out what is not yet only certain kinds of scientists”.2 For example,
known, or perhaps has been forgotten, Sir James Mackenzie noted:
which is research. Research extends our
quest for knowledge along uncharted ways, “About 1883, I resolved to do a series of careful
and increases the range and depth of our observation, entirely for my own improvement,
understanding. never dreaming of research, for I was under the
prevalent belief that medical research could
only be undertaken in a laboratory or in a
Background of Research in Family hospital.2,3
Medicine This belief is still prevalent among the
Research has always been part of general majority of primary care providers. Currently,
or family practice, particularly in the family medicine research into common clinical
area of microbes and their role in disease problems is relatively limited mainly because
causation—the well-known “germ theory of they occur outside hospitals and are unexciting
disease”—in the 19th and early 20th century. to highly trained research professionals. The
During this period, some of the finest and family medicine research activity that does
epidemiological research was undertaken by exist on common clinical topics in family
general practitioners, such as, Louis Pasteur practice—the common cold, hypertension,
(1822–1895), Robert Koch (1843–1910), rashes, and many others—is mostly descriptive
Edward Jenner (1749–1823), Ronald Ross in nature; i.e. the research has studied how
(1898), Patrick Manson (1900), many such physician and patients deal with the problem,
ingenious physicians. rather then having determined the best way to

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Chapter 39: Research in Family Medicine 385

deal with the problems of the patient viewed in intra cranial lesions; while frequent use of
the context of the family. 4 Ronald Goldschmidt such neuro-imaging on unselected patients
et al, in their article “the family in the family in family practice office will generally waste a
medicine literature” conclude that, “unique lot of money. Similarly, a positive antinuclear
family medicine approaches and perspectives antibody test in a patient with joint pain is
are not discussed commonly in clinical article likely to signify the presence of disease in
in the family medicine literature”.5 Further, a rheumatologist’s office, while the same
in one of the study by Mainous et al6 found positive test in the “unselected” patient
that most family medicine department chairs population of a family practice office is most
placed a relatively low priority on research; likely a false positive result.4
most chairs ranked research as fourth on a list
of five priorities—below clinical activates and What Constitutes Family/General
below most educational activities. Practice Research?
One may then ask why this neglect has
Research conducted by family physicians and
occurred. The answer may lie in Dawber’s
general practitioners themselves within their
comments:
own practice settings clearly, can be labelled
“The tremendous growth of medical research family/general practice research.
has created an echelon of professional In 1991, Culpepper 8 defined family
researchers concentrated in academic medicine research as follows, pointing out
institutions—it has little effect on the solutions that this definition also could serve for primary
of many of the problems in medical practice— care research:
there is almost no opportunity for physicians “Family medicine research addresses the
in private practice to participate in the need for knowledge by family physicians so
decision making process (of what should be they may better manage their patients, their
researchable questions). Practicing physicians families, and their practices and fulfill their
should have a much louder voice in suggesting health care role at the community level. Further,
the direction in which research should go.2,7 family medicine research particularly seeks
This paucity of research in family medicine to answer questions which require the family
has left has us in a situation whereby most of practice setting or the relationship among family
what we know about how to diagnose and treat physician, patient, family, and community. It
common clinical problems is derived from the investigates issues from the family physician’s
expert opinion of specialists and from research and the patient’s perspectives.”
generated in tertiary care research settings. Culpepper argued that while there was still
As numerous authors have noted, such need for basic descriptive and exploratory work,
information may or may not be applicable to including natural history studies in primary care
primary care practice in general or to family settings, the discipline must become theory
practice in particular. based, with investigations grounded in the
For example, diagnostic tests have a Institute of Medicine’s definition of primary care:
different significance depending on the patient “the provision of integrated, accessible, health
population in which the tests are obtained. care services by clinicians that are accountable
Routine diagnostic methods such as CT for addressing a large majority of personal health-
scan and MRI in an exclusive neurological care needs, developing a sustained partnership
practice for evaluation of headache is likely with patients, and practicing within the context
to turn up occasional brain tumors an other of family and community.”9

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386  Section 9: Education and Research
However, any study could be considered when a combination of both qualitative and
family/general practice relevant research if quantitative forms of inquiry are used.
its findings potentially affect a family practice, Table 39.1 summarizes the difference
whether it is conducted by specialist medical between the qualitative and quantitative
discipline, primary health care colleagues approaches to research.10 In reality, there is
(such as practice nurses and pharmacists) a great deal of overlap between them, the
or other professional groups. For example, a importance of which is increasingly being
sociologist might survey community attitudes recognized
with regards to specific health issues, such
as community response to directly observed Quantitative Research
therapy for tuberculosis; or a pharmacist It includes following types:11
research in how many patients actually
present prescriptions to their chemist; or Cross-sectional Study
a practice nurse reporting her feed back
on family doctor’s follow up therapy. Thus It is based on a single examination of a cross-
family/general practice research should utilize section of population at one point in time, the
and adapt methods from many sources and results of which can be projected on the whole
customize new task-specific tools to enhance population, provided the sampling has been
research in their specialty. done correctly. Cross-sectional study is also
The common denominator is endeavoring to known as ‘prevalence study’—i.e. a study which
provide the best possible health care for patients, tells us about the distribution of a disease in a
and continuing to monitor that physicians’ population rather than its aetiology.
performance is as optimally safe and effective
as current state of knowledge will allow. Table 39.1  Qualitative verses quantitative research
Qualitative Quantitative
Types of Research Methodology Social theory Action Structure
Research “methodology” is the philosophy Methods Observation, Experiment,
or the general principles, which guide the Interview Survey (rigid
(relatively structure of
research, its overall approach to studying unstructured) research
a topic and includes issues such as the design, data
constraints, dilemmas, statistics, and ethical collection and
choices involved in the research. Research analysis)

“methodology” is different from research Question What is X? How many XS?


(Classification) (enumeration)
“methods”—the latter are the tools used to
gather data, such as interviews, questionnaires, Reasoning Inductive* Deductive**

and other appropriate communication Sampling Theoretical or Statistical-


method imaginative huge random
modalities. sampling samples with
Research methodology is generally divided control
into two broad groups: Quantitative and Strength Validity Reliability
Qualitative research. Quantitative research (Closeness to (Repeatability)
generates statistics through the use of truth)
large-scale survey search, whereas qualitative *Inductive = the investigator observes, conceptualizes and them
forms a hypothesis.
research explores attitudes, behavior, and **Deductive = A precise hypothesis is made and the investigator
experience. The term “triangulation” is used sets to collect data to either prove or disprove it.

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Chapter 39: Research in Family Medicine 387

Case Control Study subjects are assigned on a random basis to


They are basically comparison studies; cases either of two groups, experimental or control.
and controls must be comparable with respect The experimental group receives the drug or
to known “ confounding factors ”, such as age, procedure while the control group does not.
sex, occupation, social status, etc. Case control Laboratory tests or clinical evaluations are
studies have their major use in the chronic performed on both groups (usually using the
disease problems when the causal pathway double blind technique) to determine the
may span many decades, e.g. malignancies, effects of the drug or procedure.
CHF, cirrhosis of the liver, etc. RCTs have become of major area of clinical
trials to evaluate various disease processes
Cohort Study and drug therapies in their different forms of
In epidermiology, the term “cohort” is permutation and combination. An example
defined as a group of people who share could be the United Kingdom prospective
a common characteristic or experience diabetes study (UKPDS) designed to establish
within a defined time period. Cohort study in type 2 diabetic patients, whether the risk of
is usually undertaken to obtain additional macrovascular or microvascular complication
evidence to refute or support the existence could be reduced by intensive blood glucose
of an association between suspected cause control with oral hypoglycernic agents or
and disease. Three types of Cohort studies insulin and whether any particular therapy
have been distinguished on the basis of the was of advantage.
time of occurrence of disease in relation to
time at which the investigation is initiated Qualitative Research
and continued: prospective (or current), Qualitative research aim to “study things in
retrospective (or historical) and combination their normal setting, attempting to make sense
of the two. Some well-known examples of of, or interpret, and phenomena in terms of
cohort studies are—the Framingham Heart the meanings people bring to them”, and they
study, wherein the relationship of risk factors, use “a holistic perspective which preserves the
like smoking, serum cholesterol, blood complexities of human behavior.”11
pressure, weight, etc. to the subsequent In family practice a number of authors
development of cardiovascular disease was have conducted qualitative research in
evaluated. Similarly, the Diabetes Control areas such as doctor-patient relationship,
and Complication Trial (DCCT), wherein practice organization, medical education at
the role of ‘intensive insulin’ as against undergraduate and postgraduate levels, research
‘conventional insulin’ therapy was evaluated training methodology in family medicine,
in normalization of blood glucose in type 1 and many such subjects. With research in
diabetic patient. practice organization, medical records have
been standardized, precise and comparable
Randomized Controlled Trials (RCTs) internationally. Subject of practice organization
This is an experimental epidemiological also includes designing clinic, efficient time
study similar to cohort study excepting that management by doctor, uses of computers in
the conditions in which study is carried out is maintaining patient records, effective use of
under the direct control of the investigation. paramedical staff and group practice. All these
RCT studies assess the effects of a particular have improved a great deal in last 20–25 years as
variable—such as a drug or treatment in which a result of qualitative research in family practice.

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388  Section 9: Education and Research
Following are some of the methods employed world” consisting of “unselected population”,
in qualitative research:11 often find it hard to follow such evidence. Some
™™ Direct or passive observation—systematic of the limitations of application of evidence of
observation of behavior and talk in RCTs in family practice are:
natural occurring situation and often uses ™™ Family practice has a different population
technology such as video cameras. and deals with different conditions in
™™ Participant Observation—In addition to comparison to hospital-based practice.
the above, the researcher becomes much Practices vary widely in nature according to
more involved in the lives of the people location, ethnic, and socio-economic factors.
being observed. ™™ Patients in family practice often have complex
multifaceted problems with both biological
™™ In depth interviews—also called as
and psychosocial components. General
“unstructured or life history interviews”.
practitioners often have to manage multiple
Here the researcher attempts to archive a
interacting factors. Occasionally patients do
holistic understanding of the interviewees’
present with simple symptoms that require
point of view or situation. There are
a simple diagnosis and cure, but more often
no preset questions—the participant is
they have a multiple interwoven issues that
free to talk about what he/she deems
need unraveling. Therefore, may not be
important, with little directional influence
possible to eliminate biases and confounders
from the researcher. Further, researchers
in research methodology, especially in RCTs.
have to be able to establish “rapport”
™™ In areas of medicine where psychosocial
with the participant - they have to be
dimension is a major component,
trusted if someone is to reveal intimate life
quantitative research becomes a blunt and
information and requires tact, diplomacy
cumbersome tool. In some situations, only
and perseverance.
qualitative methods can yield meaningful
™™ Focus groups—also called “discussion
results, e.g. the emotions of terminally ill
group or group interviews”. Here a number
patients and the doctor-patient relationship.14
of people are asked to come together in a
™™ In family practice a well-taken history by
group to discuss a certain issue to generate
a physician is a testimony of the patient’s
data. Focus groups may be video recorded
experiences, not only of the current illness
or tape-recorded.
for which help was being sought but of his
™™ Questionnaires—three basic types of life, work, family situation and previous
questionnaire—closed-ended, open- health. In addition to these facts, which
ended or a combination of both are also the physician is trying to elicit, the patient
employed to generate data on specific also offers valuable clues to his attitudes,
topics. knowledge, and beliefs about his social,
spiritual, economical and physical aspects
Limitations of Quantitative- of health. Because qualitative research
Qualitative Research tries to understand and interpret personal
Most medical research evidence is biomedical experience to explain such aspects of
data derived from quantitative research health, it can address such questions
(especially RCTs) done in secondary and tertiary that quantitative research cannot. Some
care settings. Practicing physicians, especially examples are: why patients do not comply
family physicians, who have to deal with patients with a treatment regimen or why a certain
with “undifferentiated problems” living in “real- health care intervention is successful.

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Chapter 39: Research in Family Medicine 389

™™ In general, if the objective of the research including pharmaceutical companies. 13


was to explore, interpret, or obtain “deeper In order to avoid biased outcome result of
understanding” of a particular clinical research, it is essential to strictly adhere to the
issue, qualitative methods were almost research protocols. A clear understanding of
certainly the most appropriate to use. If, the objectives and main applications of results
however, the research aimed to achieve should be declared at the outset.
some other goal (such as determining the
incidence of a disease or the frequency of Consider All Potential Settings
an adverse drug reaction, testing cause Since family medicine is a broad based
and effect hypothesis, or showing that one specialty, it is essential that the family
drug has a better risk benefit ration than physician is aware of its research potentials
another), a case-control study, cohort in combination with other closely related
study, or randomized trial may have been medical specialties. This will unable an
better suited to the research question.11 understanding of the relevance of the results
™™ Further, best research project might to the diverse range of family practices.
incorporate a combination of qualitative
and quantitative methods and perspectives Cultural Issues
when evaluating a problem. There is an In recognition of the changing demography of
increasing move toward a multimethod primary care practice, consideration of other
approach involving the collect, analysis, and ethnic groups is important for good research.
integration of both these types of data.12 Cultural influences on health and disparities
in outcomes are well documented. This is
Good Research in Family Practice12 of considerable importance in primary care
For research to be successful in family practice, practice where the whole population has access.
several issues should be addressed:
Adequate Resources
Consultation with Primary Resources, besides financial back up, also
Care Groups include participation of staff and patients.
It is essential to consult primary care groups Their goodwill should not be taken for
before the research starts so as to make certain granted. While it is encouraging to be working
that the research topic or question is relevant toward the greater good, practicalities have
to everyday practice. to be taken into consideration in planning
the range and depth of research and its cost
Good Research should Take Account effectiveness. Besides, reimbursement for time
of the Participants and resources provided by participants need
In medical research, including primary care to be considered.
research, usually the patients are the subjects
of research; therefore, their needs have to Ethical Considerations
be considered in terms of benefits, adverse Ethical considerations may have to be
events, and cost effectiveness. expanded upon and addressed suitably with
ethics committee.
Be Aware of Competing Interests
The objective of findings what is good for Team Approach
patients can be compromised by groups Conducting rigorous academic research
interested in the research for other reasons— of high caliber generally requires a team

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390  Section 9: Education and Research
approach. This is best achieved within the to be worth answering, and acceptable of
university environment in collaboration being answered within a predictable and
with participating family physicians, general acceptable time frame. A question is not worth
practitioners, primary health care and social pursing if the solution is beyond the resource
organizations, statisticians, network and other of the researcher, or will not contribute to
key professionals. improvements in patient care.
Other significant aims of research in family
Research Strategies for Family medicine should include:
Medicine2 1. To develop research in fields that have been
relatively ignored, such as, early diagnosis,
To develop strategies and effective organization
illness and its effect on health behavior,
to undertake research in family medicine,
psychological factors in health care, the
certain prerequisites are needed.
family as a unit of care placebo effect.
1. Research may be qualitative or quantitative
2. To improve the research training of
It may include biomedical, management,
physicians entering primary care.
or behavioral fields. Original creative
or coincidental thought and inductive 3. To develop relationship between family
reasoning are all acceptable and are to be medicine and other disciplines in the
encouraged. research area.
2. Research activity in family medicine 4. To substantiate the existence of an
consists of two major components: academic component of family medicine
a. Clinical investigation and observation, that will be acceptable and equal to that of
hypothesis testing, and critical thinking. other disciplines.
b. Training in data collection, investigative 5. Medical students—provide an awareness
methods, data analysis, and writing of the scope of problems; skills required
skills. to investigate in primary care; encourage
3. The research laboratory for family practice curiosity and self-criticism.
of located in three main areas: 6. Individual physicians—to develop the
a. University medical school settings capacity to think precisely and logically
where resources, teaching, and about a problem—the physician will
interdisciplinary activity are possible become less open to the fallacies that exist
and desirable. in medical literature.
b. Hospital in-patient services at university 7. To substantiate the existence of an
and community hospital sites academic component of family medicine
c. Ambulatory “practices” involving that will be acceptable and equal to that of
healthy and unwell people in their other disciplines.
homes, communicate, and work places. 8. To improve healths care for the individual
and the family.
Aims and Objectives of Research
in Family Medicine2 Methodology or Logistics of
It is obvious that the chief purpose of Research14 (Fig. 39.1)
conducting family medicine research is 1. Define clearly and precisely the aim of
to answer research questions relevant to the study. This is the statement of why
everyday practice. Good questions are those the research was done and what specific
that are interesting and important enough question it addressed.

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Chapter 39: Research in Family Medicine 391

ƒƒ Facilities and budget: how will we pay


for it all?
ƒƒ Is it ethical?
8. Preliminary test runs—Sometimes, before
a protocol is completed, preliminary (pilot)
studies have to be made to find out the
feasibility, operational efficiency of certain
procedures, policies, or unknown effects.
9. Project launch and mid-course correct­ions—
The final version of the protocol should be
agreed upon by all concerned before the
Fig. 39.1  Logistics of research
trial begins. However, there may be a need
for midcourse corrections before completing
2. Scan the relevant literature. the project (i.e. iterative approach).
3. Establish the research team and other key 10. After the project is over call for proforma.
participants. Meet all the participants of 11. Analyze the data and form a conclusion.
the research project, discuss and form core 12. Verify it with the hypothesis.
ideas about the chosen topic.
4. Consult a statistician to determine the What Can Family Physicians Do
sample size to avoid bias and to decide There are many ways in which the family
what level of evidence/significance one physicians can actively participate in research.
wants from the study. 1. Family physicians can identify the gaps in
5. Take help of specialists whenever necessary. their knowledge and generate a research
6. Finalize the proforma. question needing answers.
7. Prepare the research protocol. 2. Family physicians must cultivate the habit
Protocol is the blueprint for a research of reading and following research based
project. It involves thinking, planning and articles published in family medicine
documentation. Protocol consists of following and other related journals, which publish
sections: articles of importance in primary care
ƒƒ Background and general aims: why is practice. Such journals are published by
the study worth doing? General Practitioners’/Family Physicians’
ƒƒ Specific objectives: what exactly do we organizations in countries like USA, UK,
want to learn from the trial? Ireland, Canada, Australia, New Zealand,
ƒƒ Study population: who precisely will Singapore, Hong Kong, to name just a few.
we study? Regular perusal of these journals will help
ƒƒ Treatment: what exactly will we do to to identify research-based articles that
the subjects? may provide insights into the best way to
ƒƒ Trial Design: how will the trial be treat patients in clinical family practice.
organized? An exclusive global Family Physicians’
ƒƒ Procedures: how will the trial be Organization, “World Organization of
administrated? Family Doctors, WONCA”, provides a
ƒƒ Statistical analysis: how will the results wealth of updated articles from reputed
be analyzed and conclusions drawn? journals published all over the world.*
*Ref.–Appendix – 3-WONCA

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392  Section 9: Education and Research
3. While RCTs are generally the best methods practice perspectives when relevant, both
to answer questions on treatment in the instructions to authors and through
effectiveness, other methods can be used the review process”5
to answer different question types. Family 6. Participation in “Primary Care Research
physicians can use qualitative research to Networks”(PCRN)*
explore a topic and help in formation of a With the development of academic faculty
quantitative research design to explain the of primary care through out the world,
quantitative results, or converge both data more primary care practitioners are
analysis (triangulation), which broadens participating in research. In order to
the perspective of outcome results. develop collaboration between primary
4. The involvement of family physician in care professionals (general practitioners,
research may range from study participant nurses, health visitors, etc.) and a variety
to active collaborator, or even primary of academic faculties, PCRNs were
investigator. The latter is more feasible for established in 1997 in United Kingdom,
the physician engaged in postgraduate although its activity began in the 1960. The
studies with academic support and research activity of the PCRNS includes:
guidance. ƒƒ Collection of morbidity data
5. It should be the endeavor of all family ƒƒ Clinical research
physicians to utilize primary care research ƒƒ Practice—centered research
based evidence in their practices instead ƒƒ Large multicenter trials, and
of blindly accepting specialty-based ƒƒ Research training.
recommendations as the standard of The family physician who is interested in
care for primary care practices. This does becoming part of such a research networks
not mean that our specialty colleagues needs to enroll as its member.
haven’t a great deal to offer and that we Physicians in the networks typically
should not learn from them or seek their develop clinical questions and the
advice. Nor does it mean that they are network researchers design studies to
not critical participants in healthcare answer those questions. The practicing
system who enhance the well-being of physicians collect data, which are then
our patients. However, specialty practices analyzed. Research conducted by PCRNs is
often operate under different logistical potentially valuable because the research
circumstances and involve selected patient setting is primary care practices. Shared
population, which are different form what planning and discussions can result in
family physicians encounter in frontline cross-pollination of ideas and skills.
primary care practices. Family physicians New theories are emerging that may show
need more research guidelines based in haw different professional groups in a
primary care settings, which involve family primary care group can words together
practice perspectives in the literature to more efficiently.
a greater degree. “Some modest changes 7. In the United States several small and large
might generate such a shift. Editors could networks have emerged since 1980, e.g. the
encourage authors to address family Ambulatory Sentinel Practice Network.15

*Website: http://www.crncc.nihr.ac.uk/Resources/NIHR%20CRN%20CC/Networks/PCRN/Documents/
nihr_pcrn%20_updated%20March%202012_WEB.2.pdf (Accessed on 29-07-2013).

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Chapter 39: Research in Family Medicine 393
The ASPN is a network of primary health 4. Faculty—in-service training and faculty
care practices across the United States and development skills.
Canada offering: Rewards—acquisition of research skills,
ƒƒ A l a b o r a t o r y f o r t h e s t u d y o f improved teaching capability, presentation
populations under the care of primary at meetings, publications, possibility of
care providers grant awards and promotion.
ƒƒ Surveillance of primary care problems 5. Private Practitioners—short-continuing
and services. education courses in research methods.
8. Further examples of different styles of ƒƒ Part time continuous training programs
general practice networks are available on ƒƒ Collaborations of project with academic
the BMJ website.16 Over 30 networks are faculty.
currently members. The research activity ƒƒ Reward—presentations at meetings,
of the networks has included collection publications.
of morbidity data, clinical research, ƒƒ Provide stimulus to the practitioner
practice based research, large multicenter for postgraduate studies while actively
trials, and research training. In future, in practice.
research networks may be able to produce
multidisciplinary coalitions of researchers, Conclusion
provide widespread ownership of research While there are distinguished scientists of
activity, and motivate members to research among family physicians, the research
disseminate research findings quickly. enterprise has yet to be institutionalized world
wide into the care of family medicine.
Suggested Research Training and
Good research for family medicine, of all
its Incentives Rewards2 types and origins, gives useful results that are
Training activates may occur in the following relevant and important for improving practices
ways: and improving health of our patients.
1. Medical student—research internship Good research in family practice can
programs in department of family medicine, be very rewarding to be a part of, while
community medicine, and epidermiology. respecting the interests of related specialties
Rewards—Financial support, presentation and organization involved.
at meetings, publications. More primary care professionals need to
2. Residents—courses in epidermiology and get involved in research. They need the skills
primary care research methods. to access the vast research knowledge, assess
the quality of evidence, and ultimately make
Involvement in individual or group projects.
a judgment of the relevance of this knowledge
Rewards—presentations at meetings, for an individual patient.
publications, acquisition of special skills. Family physicians, who have training in
3. Fellows in Family Medicine—1 or 2 year critical appraisal of research, are best able to
postgraduate programs containing a major assess the validity of therapies and procedures
component of research training. efficiently.
Rewards—acquisition of special skills, Ultimately, the usefulness of any type of
publications, presentation at meetings, the research in medicine depends on making
improved job opportunities in academic it relevant to the real world of patients and
medicine. healthcare providers.

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394  Section 9: Education and Research
References 9. Donaldson M, et al. Primary Care: America’s
Health in a New Era. Washington, DC: Institute
1. Eimera TA. Organised curiosity. J R Coll Gen
of Medicine, National Academies Press; 1996.
Pract, 1960;3:246–52.
10. Trisha Greenhalgh, et al. Papers that go beyond
2. Curtis P. What kind of research in Family
numbers (qualitative research): how to read a
Medicine – further reflections. Fam Med, 2000;
paper. BMJ, 7110;315, 1997.
32(6):389–92.
3. Mac Kenzie J. Symptoms and their inter­ 11. Park K. Park’s TB of P& SM, 16th edn: 59–72.
pretation, 4th edn. London: Shaw & Sons, 1921. 12. Kerse N, et al. What constitutes good research
4. Weiss BD. Why Family Practice Research? Arch in general practice? NZFP. 2003;30(6):385–7.
Fam Med, 2000;9:1105–07. 13. Wazana A. Physicians and the pharmaceutical
5. Goldschmidt Ronald, et al. The family in Family industry: is a gift just a gift? JAMA, 2000;283:
medicine Literature. Fam Med, 2003;35(9): 273–80.
661–65). 14. Cresswell J, et al. handbook of mixed methods
6. Mainous AG, et al. A comparison of family in behavior and social sciences. Thousand
medicine research in research intense and less Oaks, California: Saga publications; 2003.
intense institutions. Arch Fam med, 2000;9: 15. Green LA, et al. The Ambulatory Sentinel
1100–04. Practice Network: purpose, methods, and
7. Dawber RT. Annual Discourse – unproved policies. J Fam Pract, 1984;18(2):275–80.
hypothesis. New Eng J Med, 1978;299:452–58. [PMID: 6699565: Abstract].
8. Culpepper L. Family Medicine research: major 16. Thomas P, et al. Networks for research in primary
needs. Fam Med, 1991;23(1):10–4. [PMID: health care. BMJ, 2001;322(7286):588–90. [PMID:
2001773: Pubmed]. 11238155: Free PMC Article].

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Appendices

Appendix 1
Indian Medical Association
College of General Practitioners

POSTGRADUATE QUALIFICATION
Started in the year 1963 by Dr PG Batla, CGP was airing at providing knowledge to the general practitioners.
admissions open for all existing and new courses:
1. PGDEM
2. DCH/IPPC
3. MRCGP
4. Fellowship in Family Medicine
5. Diploma in Family Medicine
6. Cardiology
7. Echocardiography
8. Reproductive Medicine
9. Diabetes and Noncommunicable Disease
10. Sexual Medicine
11. Emergency Medicine
12. Cancer Palliative Medicine
13. Sports Medicine and Rehabilitation
14. Ultrasonography
For details of the “contact program courses”—please visit the web site.1,2
For details of the “online courses” offered—please visit the web site.3,4

References
1. http://www.imacgpindia.com/index.php?option=com_content&view=article&id=80&Itemid=455
(accessed on 02-04-2015).
2. Web site - http://www.imacgpindia.com/ (accessed on 02-04-20150).
3. http://www.imacgpindia.com/index.php?option=com_content&view=article&layout=edit&id=151
(accessed on 03-04-2015).
4. http://www.imacgpindia.com/index.php?option=com_content&view=article&layout=edit&id=134
(accessed on 03-04-2015).

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396  Family Medicine: A Clinical and Applied Orientation
Appendix 2
REVIVAL OF FAMILY MEDICINE: A PRIMARY HEALTHCARE
SPECIALTY

• In 1963, Indian Medical Association started a College of General Practitioners on the lines of Royal
College of General Practitioners of England and Canada.
• In 1966, formal training for family physicians was enacted by law in USA. Similar provisions in Canada,
Australia and other European countries soon followed it.
• In 1977, FCGP (Fellowship of College of General Practice) examination was started by Indian Medical
Association’s College of General Practitioners.
• In 1977 MNAMS (Membership of National Academy of Medicine) examination in general practice
was started, it was later changed in 1982 to DNB (Diplomate of National Board) in Family Medicine.

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Appendices 397

Appendix 3
WONCA
What’s in a name?
“Wonca” Explained
WONCA is an unusual, yet convenient acronym comprising the first five initials of the World Organization
of National Colleges, Academies, and Academic Associations of General Practitioners/Family Physicians.
WONCA’s short name is World Organization of Family Doctors.
WONCA has come a long way since 1972. WONCA now has 118 Member Organizations representing
over 400,000 family doctors in over 130 countries and territories around the world.

What is WONCA’s Mission?


The mission of WONCA is to improve the quality of life of the peoples of the world through defining and
promoting its values, including respect for universal human rights and including gender equity, and by
fostering high standards of care in general practice/family medicine by:
• Promoting personal, comprehensive and continuing care for the individual and the family in the
context of the community and society;
• Promoting equity through the equitable treatment, inclusion and meaningful advancement of all groups
of people, particularly women and girls, in the context of all health care and other societal initiatives;
• Encouraging and supporting the development of academic organizations of general practitioners/
family physicians;
• Providing a forum for exchange of knowledge and information between member organizations and
between general practitioners/family physicians; and
• Representing the policies and the educational, research and service provision activities of general
practitioners/family physicians to other world organizations and forums concerned with health and
medical care.

WONCA Membership for Individual Doctors


Individual family doctors can join WONCA for a modest fee. WONCA direct member can enjoy reduced
registration fees at all WONCA conferences.
Family doctors around the world are welcome to join the WONCA online discussion area called the
WONCA forum. This provides access to a general discussion area and the new section to ‘Ask a Colleague’
a question. You do not have to be a WONCA member to participate so why not join today.
Note: For more resources for GPs/FPs, please visit the web site: http://www.globalfamilydoctor.com/
Resources.aspx1,2

References
1. Web site : http://www.globalfamilydoctor.com/AboutWonca/brief.aspx (accessed on 02-04-2015).
2. Web site : http://www.globalfamilydoctor.com/member.aspx (accessed on 02-04-2015).

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398  Family Medicine: A Clinical and Applied Orientation
Appendix 4
Primary Health Care in India*

As per the Alma-Ata conference declaration


“Primary health care is the essential health care made universally accessible to individuals and acceptable
to them, through their full participation and at the cost of the community and country can afford.”
In the Indian context, primary health care is provided by the complex of primary health centers (PHCs)
and their subcenters through the agency of multipurpose health workers, village health guides and trained
dais under the guidance for primary care physicians.
Elements of primary health care in India as defined by the alma-ata declaration are:
• Education concerning prevailing health problems and the method of preventing and controlling them.
• Promotion of food supply of safe water and proper nutrition.
• An adequate supply of safe water and basic nutrition.
• Maternal and child health care, including family planning.
• Immunization against major infectious diseases.
• Prevention and control of locally endemic diseases.
• Appropriate treatment of common diseases and infections.
• Provisions of essential drugs.

*Park k. Park’s textbook of p&sm. 16th. ed:632-633.

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Appendices 399

Appendix 5A
‘ESSENTIAL’ AND ‘DESIRABLE’ CHARACTERISTICS OF A
BALINT GROUP
(Approved by the Council of the British Balint Society, March
1994)

ESSENTIAL CHARACTERISTICS
1. A small group
There are no absolute rules but groups with less than about six or more than about twelve participants
are unlikely to work well.

2. Defined group leader who is one of the following


GP who has attended Balint type groups and has had some training in small group leadership, ideally to
include co-leading with an experienced Balint leader and/or attendance at the Balint Society leaders’
workshop.
Psychologist, psychoanalyst, counselor or related professional who has attended Balint type groups
and has had some training in small group leadership. Such a leader would need to have an interest in the
clinical area of the participants (e.g. general practice).

3. Group members are in clinical contact with patient


Members are usually GPs or GP trainees but groups have been run perfectly well for medical students,
nurses, psychosexual counselors etc.

4. The material of the group is based on the presentation of current cases giving the
presenting clinician cause for thought
The cases may have given rise to distress, puzzlement, difficulty or just surprise. Random cases have
occasionally been used (even in groups run by Michael Balint) but we would not recommend this for
‘starter’ groups.

5. The discussion focuses on the relationship between the presenting doctor and
his patient
Matters of ‘fact’ may need to be cleared up at points during the discussion but only those that have a
bearing on the doctor/patient relationship are relevant. Discussion of general issues is also not relevant.

6. Case notes should not be used


The presenting doctor may prepare himself with reference to the case notes. In the actual presentation and
discussion relying on memory is crucial. Slips of memory are not considered as signs of poor doctoring
but as vital clues to the understanding of the patient.

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400  Family Medicine: A Clinical and Applied Orientation
7. The groups are not for personal therapy
Self-awareness will increase as a result of attending a Balint group but the discussion is firmly focused
on the patient and the doctor/patient relationship ‘Discomfort or distress in the doctor are not ignored
but are worked through in the context of the needs and problems of the patient rather than of the doctor.1

8. Standard rules for small group working apply


Confidentiality, honesty, ownership, respect for other group members etc. are essential. Group members
should be arranged in a circle, preferably on chairs of similar size. Each group session should normally
last between one and two hours. Usually, the discussion of each new case lasts between half an hour and
an hour.

9. The purpose of the group is to increase understanding of the patient’s problems,


not to find solutions (Paraphrased from Campkin, 1986)
Participants are therefore encouraged to speculate as to how they see what might be going on. Questions
are discouraged. Advice is discouraged even more.

10. The leader takes ultimate responsibility for trying to ensure that the group
functions as described above
Group members should also have a responsibility (see 8 above). The leader must above all ensure that
group members, particularly the presenter, are not unduly hurt (Some increase in anxiety on the other
hand, is an almost inevitable concomitant of learning).

DESIRABLE CHARACTERISTICS OF A BALINT GROUP


1. The group is ‘ongoing’
The original Balint groups used to meet weekly over several years. Nowadays, this is usually unrealistic but
a commitment to regular meetings is important. On the other hand, even a single session can be enough
to taste the method and attendance at, say, a Balint Society weekend can lead to some useful learning.

2. The group is closed


It is best if the group membership is unchanged for much of the time. On the other hand, in the real world
of, say, GP training, carousel groups are much better than nothing.

3. There is a co-leader
Joint leadership by a GP and an analytically oriented leader or by an experienced leader and a leader in
training gives added value to the group.

4. The leader has psychoanalytical training


Common sense suggests that a leader with a facility of understanding the unconscious is likely to help
participants more effectively to understand the doctor/patient relationship. On the other hand, good small
group leadership skills are probably even more important than analytical training. Experience of coleading
with an analytically oriented leader is obviously useful too.

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Appendices 401

5. The group does not have to include all-comers


Ideally leader(s) should interview potential participants beforehand but groups of ‘conscripted’ trainees,
for example, can work very well. It could be argued that those with insufficient flexibility to contribute
usefully to a Balint group may have major problems with clinical practice.

Reference
1. Campkin M. Is there a place for Balint in vocational training? Journal of the Association of Course
Organizers. 1986;1:100-4. (Compiled, after consultation with other members of the Balint Society
council by Paul Sackin, vice president of the British Balint Society).

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402  Family Medicine: A Clinical and Applied Orientation
Appendix 5B
Michael Balint: Biography

Michael Balint
Hungarian psychoanalyst and biochemist, 1896-1970.

Associated Eponyms
Balint group
Self-help group for people mainly formed by a small number of doctors interested in improving their
relationships with their patients and coordinated by a especially trained psychiatrist.

Biography
Michael Balint was born Mihály Maurice Bergmann, the son of a practising physician in Budapest,
Hungary, on December 3, 1896. It was against his father’s will that he changed his name to Michael Balint.
He also changed religion, from Judaism to Unitarian Christianity. During World War I Balint served at the
front, first in Russia, then in the Dolomites. He completed his medical study in Budapest in 1918. On the
recommendation of his future wife, Alice Székely-Kovács, Balint read Sigmund Freud’s “Drei Abhandlungen
zur Sexualtheorie” (1905) and “Totem und Tabu”.
He also began attending the lectures of Sándor Ferenczi, who in 1919 became the world’s first university
professor of psychoanalysis.
Balint married Alice Székely-Kovács and about 1920, the couple moved to Berlin, where Balint worked
in the biochemical laboratory of Otto Heinrich Warburg (1883-1970), the later (1931) Nobel Prize recipient.
His wife worked in a folklore museum. Balint now worked on his doctorate in biochemistry, while also
working half time at the Berlin Institute of Psychoanalysis. Both Michael and his wife Alice in this period
were educated in psychoanalysis.
In 1924, the Balints returned to Budapest, where he soon assumed a leading role in Hungarian psycho-
analysis. During the 1930s, the political conditions in Hungary made the teaching of psychotherapy
practically impossible, and they emigrated to Manchester, England. Here, Alice died in 1938, leaving Balint
with their son John. In 1944 Balint remarried, but the relationship soon ended, although, they were not
divorced until 1952. In 1945 his parents, about to be arrested by the Nazis in Hungary, committed suicide.
That year Balint moved from Manchester to London, continuing his group work with practicing physicians,
and obtaining the Master of Science degree in psychology.
In 1949, Balint met his future wife Enid Flora Eichholz, who worked in the Tavistock Institute of Human
Relations with a group of social workers and psychologists on the idea of investigating marital problems.
Michael Balint became the leader of this group and together they develop what is now known as the Balint
group. The first group of practicing physicians was established in 1950. Michael and Enid married in 1958.
In 1968 Balint became president of the British Psychoanalytical Society, the chair, he continued to serve
until his death on December 31, 1970.

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Appendices 403

Appendix 6
BASIC GERIATRIC HEALTH QUESTIONNAIRE
NAME: DATE:
Yes/No
Questionnaire Please tick Please give details
1. Compared with two years ago:
–– Is your sight poorer? —
–– Is your hearing poorer? —
–– Do you feel more tired? —
–– Has your weight changed? —
–– Are you more breathless? —
–– Do you pass water more often— —
–– especially at night?
–– Can you move about as freely? —
–– Is your memory poorer
- for recent events? —
- for events long ago? —
–– Is your concentration poorer? —
2. Do you have any of the following:
–– Anxiety —
–– Depression —
–– Dizzy spells —
–– Blackouts —
–– Insomnia —
–– Pains in:
- head —
- abdomen —
- legs on walking —
–– Breathlessness —
–– Persistent cough —
–– Indigestion —
–– Constipation or diarrhea —
–– Wetting —
–– Swollen ankles —
–– Foot problems —
–– Pain or swelling of joints —
3. Can you move about as well as 12 months ago? —
4. Have you been in hospital in the past years? —
5. Have you any other health problem? —

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404  Family Medicine: A Clinical and Applied Orientation
Health problems*
1. Medical disorders Action recommended*
a. Need for:
b. 1. Doctor
c. 2. Nurse
d. 3. Health visitor
e. 4. Chiropodist
2. Socioeconomic problems 5. Physiotherapist
a. 6. Occupational therapist
b. 7. Social worker
c. 8. Voluntary worker
d. 9. Other for e.g.
e. cutlery fittings, meals on wheels,
f. more home, help time etc.
g.
h.
3. Disabilities
a.   b.   c.
.....................................................................................
Adaptation–good fair poor
.....................................................................................
Next of kin–Address/Telephone

.....................................................................................
Relatives/friends
prepared to help in crisis–Address/Telephone
.....................................................................................

.....................................................................................
Welfare representative Risk index–Please Tick*
Address/Telephone Medical problems Socioeconomic
1. Nil Nil
2.   Minor Minor
3. Major Major
4. Dependent
5.  Wholly dependent

* to be assessed/filled by health professional.

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Appendices 405

Appendix 7
distance Education Program

Distance education program for physicians to become “physician leaders in healthcare” - JIMA.
2011;109(3):p.ii.

Value-Add
Apollo and ACPE Offer Post-Graduate Diploma in Advanced Physician Leadership.
The program consists of 14 courses totaling 150 credit hours, covering subjects relating to professional
management of hospital and healthcare organizations.
In order to meet the growing demand for formally trained physician executives in India, Apollo
Hospitals Group, Asia’s largest corporate healthcare organization, in association with the American College
of Physician Executives (ACPE) of USA will offer Asia’s first postgraduate Diploma in Advanced Physician
Leadership (PGD-APL) program.
ACPE (www.acpe.org) has been in operation in the US and Canada since 1975. It originated at the
Medical School of the University of Wisconsin, Madison and has demonstrated expertise in adapting the
distance education model.
PGD-APL program is exclusively for physicians. It can be completed in 1 year through fully supportive
interactive and distance education modes. The program consists of 14 courses totaling 150 credit hours,
covering subjects relating to professional management of hospital and healthcare organizations.
The program is scheduled to start in the second half of 2010. The unique features of the program
include opportunity to pursue education regardless of location with internet connection, at ones own
convenience, secure international exposure in healthcare, developing professional network and special
interest groups, as well as membership in ACPE.
Medical graduates holding MBBS and a valid Medical Council of India/State Medical Council
registration with 3 years clinical and 1 year of management experience are eligible to enroll in the program.
The program is of immediate benefit to physicians, who are aspiring to become physician executive to lead
the stand-alone, corporate, trust, public sector hospitals, healthcare and hospital consultancy organizations.
The opportunity for physician executives will open unprecedented opportunities in India’s dynamic healthcare
industry and abroad.
Hospital and health organizations can build their physician leadership by sponsoring their promising
and high caliber physicians to be groomed for leadership positions in the organization.
The program includes ACPE member­ship, course materials and 1-week contact program. Assistance for
educational loans from nationalized banks in India will be explored. Placement assistance will be provided
upon successful completion of PGD-APL.

CONTACT: Prof Habeeb Ghatala, Dean


Apollo Hospitals Educational and Research Foundation
Apollo Health City,
Jubilee Hills, Hyderabad
Andhra Pradesh, India
Mobile: +91 99484 40701 (24 × 7)
Email: habeeb_ghatala@apollohospitals.com/habeeb.ghatala@gmail.com

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Index

Page numbers followed by f refer to figure and t refer to table

A Autonomic neuropathy 278


Ayurveda 144
Acupuncture 144
Ayurvedic medicine 144
Adolescent care 221, 230
Adolescent communication 226
Adolescent consultation 223 B
Adolescent depression 235 Balint group 123, 124, 125t, 126t
Adolescent preventive services, guidelines for 229, Balint training 125
230 BATHE technique 46, 99, 100
Adverse drug incidents 362 Biofeedback 144
Aging and geriatric concepts 243 Biopsychosocial model 73, 307t
Agitation 310, 311 Blood pressure 255
Alexander technique 144 Bradyarrhythmia 278
Alma-ata Breath, shortness of 63
declaration 51, 52 Byrne and Long model 107
genesis of 52
American Academy of Family Physicians 15
American Academy of General Practice 15 C
American Academy of Physician Assistants 161 Calgary-Cambridge observation guide 97t
American Board of Family Practice 15 CAM, basic principles of 145t
American College of Cardiology Foundation 273t, Canal stenosis 277
350 Cancer
American Heart Association 273t, 350 breast 340
Anemia 278 cervical 340
Antenatal care 338 colorectal 340
Anticonvulsants 278 prostate 340
Anxiety 63, 349 Caplan’s model of crisis intervention 44
Appreciation 38 Cardiovascular disease 272t
Aromatherapy 144 Carotid sinus sensitivity 278
Ashtanga Hridaya Samhita 116 Charaka Samhita 116
Attitudes 88, 280 Chest infection 245
Audit cycle 361, 362f, 365 Chronic diseases 284t
steps in 363f Clinical audit 359-361
Audition 89 Clinical research 392

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408 Family Medicine: A Clinical and Applied Orientation
Cognitive impairment 286 Dizziness 63
Cohort study 387 Doctor-centered method 106
Communication 92, 93, 313 Drug compliance 323
barriers in 93 Dry/sore mouth 311
pitfalls 95 Dyspepsia 311
skills 87, 203, 215, 351 Dysphagia 312
strategies 156 Dyspnea 311
techniques 226
types 91 E
Comprehensive geriatric functional assessment,
components of 250f EBM
Computerized disease-specific health system 178 curriculum, lack of 379
Conducting whispered voice test 256t limitation of 373
Confidence, lack of 351 Electronic medical records 101, 178
Confidentiality 120, 224, 365 Emotional support 324
Confusion 268, 310, 311 Empathy 202
Congestive heart failure 278 Errors, types of 171
Constipation 311 Establish advisory board 163
Consultation process 106 Establish network 163
Consultation room 132 Establish patient safety center 178
Conveying acceptance 137 Establish rapport 118
Coping skills for physicians 202, 204 Evidence-based clinical decision, model for 381f
Cost-conscious profession 58 Evidence-based medicine 367, 369
Cough 63 learning of 367
Counseling 136, 191, 228, 228 practice 376
procedure 139 principles 366
skills 136 Evidence-based practice, domain of 376f
strategies 140 Extreme fatigue 311
errors of 138
Cross-sectional study 386 F
Cultivate sense of partnership 201
Family-based medical counselling 46
Cultural issues 389
Family counseling 138
Current health status 252
Family dynamics and illness 41
Family health care 37
D system 154f
Daily life, instrumental activities of 261 Family life cycle 39
Daily living, activities of 259 Family medicine 10f, 12, 19t, 20, 37, 390
Death rattles 311 philosophy of 3
Delirium 268, 269, 270t, 311 research in 384, 390
toxic causes of 271t revival of 15
Dementia 246, 268, 270t, 278 scope of 8
of Alzheimer’s type 268t Family physicians 30, 130, 138, 330
Demoralization syndrome 319, 319t attributes of 30
Depression 44, 63, 236t, 246, 268, 269 involvement of 320
signs and symptoms of 252t proactive role of 10
Develop and maintain support system 164 role of 39, 244
Diabetes mellitus 276 Family practice 18, 31, 70t, 389
Diet therapy 144 Binary tree decision in 71

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Index 409
matrix of 9 Hyperglycemia 278
prevention in 335 Hypertension, borderline 189
Fatigue 63 Hyperthyroidism 257t, 276
Fever 277 Hypnosis 144
Fibromyalgia 277 Hypoglycemia 278
Flexibility 38 Hypotension 278
Functional geriatric screening instrument 261t Hypothesis 76
Fundamental ethical principles 211 Hypothyroid coma 276
Hypothyroidism 257, 275
G
Gastrointestinal problems 274
I
General Medical Council 13 Immunization, childhood 341
General practice 22, 31 Incontinence 246, 258
consulting models in 107t Insomnia 63
General practitioner 29, 123 Intermittent delirium 278
General strategies 94 Interview, main part of 110
Geriatric care Intestinal obstruction 312
and family physician 265
paucity of 265 J
Get up and go test 258t Joint pain 277
Gold standard tests 82
Good counsellor, qualities of 137
Gout 277
K
Grief 327 Karnofsky performance status 308t
complicated 330
course of 329 L
features of 328 Laboratory testing cycle 78f
normal 329 Leaders maintain integrity 162
reaction, types of 329 Leadership 159, 162, 164
symptoms of 328 Licentiate of Society of Apothecaries 14
Group discussion 163 Liver disease 286
Growth 39
concerns 228
M
Malignancy 245, 277, 278
H Manipulative help-rejecters 198
Harness power of self-control 203 Maturity 214
Headache 63, 189 Medical assessment 251
Health education 342 Medical audit 189, 360
Health insurance examination 338 Medical Council of India 191
Health maintenance organizations 35, 98 Medical decision making 191
Health promotion and disease prevention 341 Medical education, reorientation of 20
Healthy communication 38 Medical errors 169
Healthy family 38 types of 171t
Hearing deficits 94 Medical professionalism 208
Hearing loss 246 Medical record 184
Hearing problems 279 importance of 191
Heart failure 286 purpose of 184t

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410 Family Medicine: A Clinical and Applied Orientation
Medicine, complementary and alternative 144t P
Medicolegal records 192
Pain 310-312
Meditation 144
abdominal 63
Ménière’s disease 278
back 63
Mental and emotional evaluation 252
bone 277
Mental status examination 259
Message therapy 144 chest 63
Migraine 189 controlling 322
Morbidity data, collection of 392 muscle 277
Morphine, massive doses of 312 musculoskeletal 277t
Multiprofessional clinical audit in family practice night 277
361 tendon and ligament 277
Musculoskeletal pain Palliative care 303-304, 316, 321
causes of 277t principles of 306, 307t
types of 277t scope of 306f
Musculoskeletal problems 276 Parenting stress 233
Musculoskeletal stiffness 246 Parkinson’s disease 278
Myelopathy 278 Payment system 351
Myocardial infraction 278 Pendleton, Schofield, Tate and Havelock model 107
Myxedema coma 276 Periodic health examination 338
Permissive parenting style 234
N Personal autonomy 38
National Cholesterol Education Program 350 Personality disorders, borderline 123
Naturopathy 144 PHC
Nausea 311, 312 concept of 56
Negative predictive value 80 ingredients of 57
NICE guidelines 362 Physician’s plan 188
Noisy breathing 311 Physician’s role 45, 237, 266
Noncommunicable diseases 136, 346 Polymyalgia rheumatic 277
Non-drug therapy 287 POMR, limitations of 190
Non-judgmental listening 203 Positive predictive value 80
Non-physician primary care providers 33 Postfall syndrome 277
Nonspecific abnormalities, normal occurrence Postnatal care 338
of 247 Potential personality disorder 202
Non-verbal aspects 120 Practice participatory care 100
Non-verbal communication 92 Preferred provider organizations 35, 98
Non-verbal skills 92f Primary care 28, 32
Numbness 44 physician 32
Nutrition 279, 324 practice 32
Nutritional therapy 144 Primary health care 52, 55, 59
genesis of 56
O Problem-oriented medical record 186
Olesen definition 24 Professionalism
Open-ended questions and body language 89 evolution of 209
Oral morphine 322t model behaviors of 214
Osteoarthritis 277 Pseudo gout 277
Osteopathic manipulative therapy 144 Psychological issues 313
Osteoporosis 277 Pulmonary embolism 278

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Index 411

Q Sushruta Samhita 116


Syncope 278
Qualitative research 387, 388
Syringe driver 312t
Quantitative research 386, 388
System redesign in family practice 175

R T
Randomized controlled trials 387
Team training 154
Record keeping, purpose of 184
Ten leadership action steps 164t
Rectal route inappropriate 312
Terminal stage debility 312
Refining communication skills 98
Thyroid disease 245
Reiki 144
Traditional medical decision-making, sequence
Renal disease 286
of 368f
Research 361 Traditional medicine 144
logistics of 390, 391f Training, lack of 350
methodology, types of 386 Transient ischemic attacks 278
training 392 Tunnel” syndromes 277
Restlessness 310, 311
Rheumatoid arthritis 277
U
S United Nations Population Fund 221
Urinary incontinence 275t, 311
Safety and injury prevention 341 Urinary retention 311
Screening 338, 339
Sedatives 278
Seizures 278
V
Senile gait disorder 278 Vaginal discharge 63
Sensitivity 79 Verbal communication 91
Sepsis 278 Verbal skills 91f
Sexual dysfunction 63, 246 Visual field defects 278
Sexual practices 341 Visual impairment 278
Shock 44, 278 Vomiting 311, 312
Sick sinus syndrome 278
Silent myocardial infarction 245 W
Skills, interviewing 109
Waiting room and reception 131
Soft tissue rheumatism 277
Weed system 186, 188t, 189
Spiritual healing 144
World Health Organization 264
Spiritual support 324
Spoon feeding, limits of 165
Strategies, combination of 141 Y
Suicide warning signs 254t Yoga 144

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