Professional Documents
Culture Documents
Editors: Ilona Kickbusch, Jürgen M. Pelikan, Franklin Apfel & Agis D. Tsouros
ABSTRACT
This publication makes the case for policy action to strengthen health literacy. Evidence, including the results of the European Health Literacy
Survey, is presented that supports a wider and relational whole-of-society approach to health literacy that considers both an individual’s level
of health literacy and the complexities of the contexts within which people act. The data from the European Health Literacy Survey show
that nearly half the Europeans surveyed have inadequate or problematic health literacy. Weak health literacy skills are associated with riskier
behaviour, poorer health, less self-management and more hospitalization and costs. Strengthening health literacy has been shown to build
individual and community resilience, help address health inequities and improve health and well-being. Practical and effective ways public
health and other sectoral authorities and advocates can take action to strengthen health literacy in a variety of settings are identified. Specific
evidence is presented for educational settings, workplaces, marketplaces, health systems, new and traditional media and political arenas.
Keywords
Consumer health information
Decision making
Health literacy
Health management and planning
Health policy
Social determinants of health
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Contents
Foreword............................................................................................................................................................................................... iv
Contributors....................................................................................................................................................................................... vi
Introduction....................................................................................................................................................................................... 1
A. Making the case for investing in strengthening health literacy.................................... 3
1 European Health Literacy Survey................................................................................................................................. 4
2 Health literacy – a key determinant of health...................................................................................................... 7
Example: noncommunicable diseases..................................................................................................................... 12
3 Limited health literacy – an underestimated problem and equity challenge.................................. 15
Example: migrants and minorities............................................................................................................................... 19
4 Health literacy builds resilience among individuals and communities................................................. 22
Example: Netherlands Alliance for Health Literacy............................................................................................ 24
B. Taking action to create and strengthen health literacy–friendly settings................... 26
5 Attributes of health-literate settings.......................................................................................................................... 28
6 Health literacy is a key attribute of a healthy city............................................................................................... 29
7 Attributes of health literacy–friendly organizations......................................................................................... 31
8 Educational settings............................................................................................................................................................. 35
9 Marketplace and community settings...................................................................................................................... 40
10 Workplace settings............................................................................................................................................................... 44
11 Health care settings............................................................................................................................................................. 49
Example: adherence to medication........................................................................................................................... 54
Example: programmes for self-managing chronic disease.......................................................................... 56
12 Media and communication............................................................................................................................................. 59
13 Social media and mobile health................................................................................................................................... 63
C. Developing policies for health literacy at the local, national and
European Region levels..................................................................................................... 68
iii
Foreword
The WHO Solid Facts series was launched 15 years ago of health status along with age, income, employment
as an accessible source of intelligence on important status, education level and race or ethnic group. Never-
and promising public health topics deemed worthy of theless, although understanding of literacy and health
more policy attention and action. It has two purposes. literacy as critically important determinants of health
First, it aims to distil the best available evidence on continues to grow, they remain neglected areas of pub-
these topics based on often-complex scientific stud- lic health action and research. This publication aims to
ies and reviews. Second, it identifies policy implica- help to change this situation.
tions and action points that could convert these ideas
into realities. Importantly, in addressing these goals, To this end, this publication provides a concise over-
the Solid Facts series has also appraised the strength view of evidence on health literacy. Most evidence, until
of available evidence and identified where research recently, has come from the United States of America
and more solid facts are needed. Distilling evidence is and mainly focuses on people’s functional health lit-
especially challenging for cutting-edge public health eracy (people’s ability to read and understand basic
concepts and the need to attract the attention of deci- health-related information) and the management of
sion-makers. The strength and the extent of the avail- chronic diseases. The European Health Literacy Survey,
able evidence may vary depending on the subject area, summarized here, has generated a rich new source of
setting, health system or methods applied. high-quality data on the comprehensive health literacy
of general populations that enables comparisons both
Several factors make health literacy a compelling and within and between countries and has made major
timely topic in the Solid Facts series. Literacy and health inequities visible. Importantly, the European Health Lit-
literacy are fundamental components of pursuing eracy Survey tools can serve as a basis for strengthening
health and well-being in modern society. As societies capacity to measure how the many promising interven-
grow more complex and people are increasingly bom- tions described here may affect population health.
barded with health information and misinformation
and confront complex health care systems, becom- This publication emphasizes information about prac-
ing a health-literate person has become a growing tical and effective ways public health and other sec-
challenge. Importantly, we now understand that poor toral authorities and advocates are taking action to
health literacy adversely affects people’s health. Literacy strengthen people’s health literacy. It especially focuses
has been shown to be one of the strongest predictors on the health literacy–friendliness of the various
iv
Foreword
settings in which people live, play and work. In doing various sectors and settings. Although much remains
so, it remains well grounded in the values and principles to be learned, especially about the effectiveness and
put forward by the Ottawa Charter for Health Promo- efficiency of interventions in various settings, such as
tion. We hope the book will be used as a tool for spread- mass media and social media, growing European and
ing awareness, stimulating debate and research and, global studies, surveys and experience provide a rich
above all, for informing policy development and action. and promising evidence base on which to draw.
Health literacy is a key dimension of Health 2020, the Finally, a special word of thanks is given to the editorial
European health policy framework adopted by Mem- team for the effective way they drove and coordinated
ber States in 2012. Health literacy is both a means the whole preparation process and for their excellent
and an outcome of actions aimed at promoting the editorial work.
empowerment and participation of people in their
communities and of people in their health care. Tak- Zsuzsanna Jakab
ing action to enhance health literacy provides a unique WHO Regional Director for Europe
platform for the health sector and its own organiza-
tions and professionals to demonstrate their leadership
capacity. As described here, addressing health literacy
Note of caution
requires a whole-of-society approach – many sectors,
settings and actors need to work together to improve Although much can be learned from the activities of oth-
the health literacy of individuals and communities and ers, this guide is not promoting the wholesale adoption
of any policy or programme intervention. Policies are
to make environments easier to navigate in support of subject to political systems and actors and require under-
health and well-being. standing the context in which they are to effect change.
Any planned programme intervention should also rec-
This book is the result of a systematic and compre- ognize the potential effect of cultural differences on the
communication and understanding of health informa-
hensive effort to review scientific and experiential tion. Native language, socioeconomic status, gender, race
evidence and to identify implications for policy and and ethnicity along with mass culture – news publishing,
interventions, drawing on the expertise, suggestions advertising, marketing, and the plethora of health infor-
mation sources available through electronic channels –
and inputs of individuals from many academic cen- all influence the choice of health literacy interventions.
tres and disciplines as well as frontline practitioners in
v
Contributors
vi
Contributors
Irving Rootman
University of Victoria, Victoria, Canada Technical support: Florian Jakob Sparr and Kristin
Ganahl
Rima E. Rudd Text editing: David Breuer
Harvard School of Public Health, Boston, Typesetting: Phoenix Design Aid
Massachusetts, USA Cover and inside graphic design: Christophe Lanoux
vii
Introduction
Knowledge societies in the 21st century confront a in the eight European countries tested have inad-
health decision-making paradox. People are increas- equate or problematic health literacy skills that
ingly challenged to make healthy lifestyle choices adversely affect their health literacy.
and manage their personal and family journeys
through complex environments and health care Weak health literacy competencies have been
systems but are not being prepared or supported shown to result in less healthy choices, riskier behav-
well in addressing these tasks. “Modern” societies iour, poorer health, less self-management and more
actively market unhealthy lifestyles, health care sys- hospitalization. They significantly drain human
tems are increasingly difficult to navigate (even for and financial resources in the health system. Policy
the best educated people), and education systems action to address the health literacy crisis has been
too often fail to provide people with adequate skills slow to emerge at all levels. This publication aims to
to access, understand, assess and use information to help to change this situation. The range of evidence
improve their health. presented supports a wider and relational concept
of health literacy that considers both an individual’s
This paradox has resulted in a health literacy crisis level of health literacy and the complexities of the
in Europe and beyond. The recent European Health contexts within which people act (Fig. 1). Both need
Literacy Survey found that nearly half of all adults to be measured and monitored.
Source: Parker R. Measuring health literacy: what? So what? Now what? In Hernandez L, ed. Measures of health literacy: workshop summary, Round-
table on Health Literacy. Washington, DC, National Academies Press, 2009:91–98.
1
Health literacy
Part A focuses on why policy action to address Mitic W, Rootman I. An intersectoral approach for
health literacy is needed. A case is made for viewing improving health literacy for Canadians. Ottawa, Pub-
inadequate or problematic health literacy as a key lic Health Agency of Canada, 2012.
determinant of health, a high-prevalence problem,
a drain on human and financial resources and an Parker R. Measuring health literacy: what? So what?
obstacle to development. Now what? In Hernandez L, ed. Measures of health
literacy: workshop summary, Roundtable on Health
Part B focuses on how action in a range of settings Literacy. Washington, DC, National Academies Press,
and sectors can enhance health literacy. Evidence 2009:91–98.
is presented on how these actions can combine to
empower and enable people to make sound health
decisions in the context of everyday life – at home,
in the community, at the workplace, in the health
care system, in the educational system, in the mar- Box 1. Note of clarification
ketplace and in the traditional and social media.
The field of health literacy is a work in progress. Because
health literacy is complex, it is not very amenable to ran
Part C focuses on building policy to support the domized controlled trials. Evidence was included if the
strengthening of health literacy at the global, editors and reviewers felt that the intervention is
reasonablycertain to strengthen health literacy. These
regional, national and local levels. promising interventions – to use a term introduced by
the Institute of Medicine of the United States National
Each chapter focuses on an issue, presents evidence Academies – are described with the hope that they will
for why this issue is important and identifies a range attract the interest and support of policy-makers, be
rigorously tested and, if found to be cost-effective,
of evidence-informed interventions that have been brought to scale. This book is intended for multiple
shown to work (Box 1). A list of useful sources is pro- audiences. Policy-makers and those who advise them
vided for each topic. can take note and develop legislation, assign resources
and create programmes based on the priorities identified
and actions recommended. Public health practitioners
and those from other sectors can look at where their
Key sources practices fit and do not fit with the action identified and
(1) share their experiences to build a richer inventory of
health literacy initiatives; (2) seek collaboration with oth-
Comparative report on health literacy in eight EU mem- ers who are engaging in similar activities to build inter-
ber states. The European Health Literacy Project 2009– sectoral synergy; and (3) support the collection of
2012. Maastricht, HLS-EU Consortium, 2012 (http:// evaluation data to examine and document promising
practices.
www.health-literacy.eu, accessed 15 May 2013).
2
A
Making the case for investing in
strengthening health literacy
Health literacy has gained considerable attention – one that is closely related to other social determi-
across the globe in recent years. Research from nants of health such as general literacy, education,
around the world is quickly deepening understand- income and culture. The relationships between
ing of the vast potential that optimizing health lit- noncommunicable diseases and health literacy
eracy can have in improving health and well-being are discussed as an example. Third, key results of
and reducing health inequities. Nevertheless, most of the European Health Literacy Survey are presented
this research is still based on small populations with that show a very high prevalence of inadequate
a focus on the functional health literacy of patients. and problematic health literacy across Europe. How
That is why the results of the European Health Lit- health literacy relates to migrants and minority
eracy Survey have represented such a breakthrough populations is presented as an example. Finally, the
and encouraged this publication. Part A introduces ways health literacy can enhance the resilience of
the concept of health literacy and reviews three key both individuals and communities are reviewed. An
evidence-informed arguments that can be made example from the Netherlands is presented.
in advocating for policy action and investing in
strengthening population health literacy and the
health literacy–friendliness of the systems within Key source
which people seek and use information.
D’Eath M, Barry MM, Sixsmith J. A rapid evidence
The first section introduces the European Health Lit- review of interventions for improving health literacy.
eracy Survey. The second topic argues for the impor- Stockholm, European Centre for Disease Prevention
tance of health literacy as a determinant of health and Control, 2012.
3
1
European Health Literacy Survey
People cannot achieve their fullest Health literacy is linked to literacy and entails people’s
knowledge, motivation and competences to access,
health potential unless they are able understand, appraise and apply health information in
to take control of those things which order to make judgements and take decisions in every-
day life concerning health care, disease prevention and
determine their health.
health promotion to maintain or improve quality of life
during the life course.
Ottawa Charter for Health Promotion1
4
European Health Literacy Survey
Fig. 2. Conceptual model of health literacy of the European Health Literacy Survey
Life course
Understand
Health Health
behaviour outcomes
Access
Knowledge
Competence Health Disease Health
Motivation care prevention promotion
Appraise
Participation Empowerment
Health
information
Apply
Personal
Equity Sustainabillity
determinants
Source: adapted from: Sørensen K et al. Health literacy and public health: a systematic review and integration of definitions and models. BMC
Public Health, 2012, 12:80.
5
Health literacy
Table 1. The European Health Literacy Survey: the 12 subdimensions as defined by the conceptual
model
Health care 1) Ability to access 2) Ability to understand 3) Ability to interpret 4) Ability to make
information on medical medical information and evaluate medical informed decisions on
or clinical issues and derive meaning information medical issues
Disease prevention 5) Ability to access 6) Ability to understand 7) Ability to interpret 8) Ability to judge
information on risk information on risk and evaluate the relevance of the
factors factors and derive information on risk information on risk
meaning factors factors
Health promotion 9) Ability to update 10) Ability to 11) Ability to interpret 12) Ability to form a
oneself on health issues understand health- and evaluate reflected opinion on
related information and information on health- health issues
derive meaning related issues
Source: adapted from: Sørensen K et al. Health literacy and public health: a systematic review and integration of definitions and models. BMC
Public Health, 2012, 12:80.
questions and transformed into a scale from 0 to 50, 2009–2012. Maastricht, HLS-EU Consortium, 2012
where 0 represents the lowest and 50 the highest (http://www.health-literacy.eu, accessed 15 May
health literacy score. Based on this, thresholds and 2013).
ranges for four levels of health literacy were defined:
inadequate, problematic, sufficient and excellent Ottawa Charter for Health Promotion. Geneva, World
health literacy. To identify vulnerable groups, limited Health Organization, 1986 (http://www.who.int/
health literacy was defined as inadequate or prob- healthpromotion/conferences/previous/ottawa/
lematic health literacy. These data allow for compar- en/index.html, accessed 15 May 2013).
isons both within and between these countries and
have made major inequities visible. See Chapter 3 Sørensen K, Brand H. Health literacy lost in transla-
for more details. tions? Introducing the European Health Literacy
Glossary. Health Promotion International, 2013,
doi:10.1093/heapro/dat013.
Key sources
Sørensen K et al. Health literacy and public health: a
Comparative report on health literacy in eight EU systematic review and integration of definitions and
member states. The European Health Literacy Project models. BMC Public Health, 2012, 12:80.
6
2
Health literacy – a key determinant of
health
7
Health literacy
4.
Building personal health literacy skills and the specific characteristics of the health care,
and abilities is a lifelong process. No one public health and other relevant systems and
is ever fully health literate. Everyone at some settings where people obtain and use health
point needs help in understanding or acting on information. When these services or systems, for
important health information or navigating a example, require knowledge or a language level
complex system. Even highly educated individu- that is too high for the user, health suffers.
als may find health systems too complicated to
understand, especially when a health condition 6. Limited health literacy is associated with
makes them more vulnerable. high health system costs. Limited health lit-
eracy cost more than US$ 8 billion, an estimated
5. Capacity and competence related to health 3–5% of the total health care budget in Canada
literacy vary according to context, culture in 2009. In 1998, the United States National
and setting. They depend on individual and Academy on an Aging Society estimated that
system factors. These factors include communi- the additional health care costs caused by lim-
cation skills, knowledge of health topics, culture ited health literacy were about US$ 73 billion.
Fig. 3. Self-assessed health status according to scores on the General Health Literacy Index for the
7780 respondents in the European Health Literacy Survey
100
90 Very poor
80
Percentages of categories of
self-assessed health status
70 Poor
60
50 Fair
40
30 Good
20
Very good
10
0
<15 15–20 20–25 25–30 30–35 35–40 40–45 45–50
Source: adapted from: Comparative report on health literacy in eight EU member states. The European Health Literacy Project 2009–2012. Maastricht,
HLS-EU Consortium, 2012 (http://www.health-literacy.eu, accessed 15 May 2013).
8
Health literacy – a key determinant of health
Fig. 4. Mean scores on general health literacy by level of education in accordance with the
International Standard Classification of Education (levels with n > 10) for each country and the
7770 respondents
45
40
Austria
Bulgaria
General Health Literacy Index
35 Germany (NRW)
Mean score on the
Greece
Spain
30
Ireland
Netherlands
25 Poland
Total
20
Source: adapted from: Comparative report on health literacy in eight EU member states. The European Health Literacy Project 2009–2012. Maastricht,
HLS-EU Consortium, 2012 (http://www.health-literacy.eu, accessed 15 May 2013).
9
Health literacy
more accurately crisscross and intersect “... like 3. Develop plain-language initiatives. Plain lan-
a tangled pile of spaghetti, weaving in and out guage means communication that the listener or
of other paths that rarely ever leave the plate” reader can understand the first time they hear or
(Christakis & Fowler, 2009). In so doing, they illus- read it. Providing meaningful and reliable infor-
trate the complex interconnectedness between mation is required to build health literacy. Health
and among the myriad stakeholders at every information materials should be sensitive to dif-
level of public service. ferences and diversity in cultures, sex, age and
individuals in their content and format (Box 2).
General
Adult educators public
Community-based
and literacy
organizations
practitioners
Health
Health
literacy professionals and
Faith-based
organizations government
agencies
Educators
Health care
and health
facilities
communicators
Business Academic
community community
Source: adapted from: Mitic W, Rootman I. An intersectoral approach for improving health literacy for Canada; a discussion paper. Vancouver, Public
Health Association of British Columbia, 2012.
10
Health literacy – a key determinant of health
4. Invest in measurement and research. Sur- Mitic W, Rootman I. An intersectoral approach for
veys of health literacy and the health literacy– improving health literacy for Canada; a discussion
friendliness of systems should be conducted. paper. Vancouver, Public Health Association of Brit-
Research to support effective intervention ish Columbia, 2012.
needs funding. A first important step in this
direction at the European level has been the Plain Language Association International [web site].
European Health Literacy Survey, which should Ottawa, Plain Language Association International,
be extended to more countries of the European 2013 (http://www.plainlanguagenetwork.org,
Union and of the WHO European Region and accessed 15 May 2013).
repeated at regular intervals.
Weiss BD. Health literacy and patient safety: help
patients understand. Manual for clinicians. 2nd ed.
Key sources Chicago, American Medical Association Foundation
and American Medical Association, 2007 (http://
Christakis N, Fowler J. Connected. New York, Little, www.ama-assn.org/ama1/pub/upload/mm/367/
Brown and Company, 2009. healthlitclinicians.pdf, accessed 15 May 2013).
11
Health literacy
Fig. 6. Estimated annual number of new cancer (in millions) cases by World Bank income groups,
2008 and predicted for 2030
10
9 2008
8 2030
Millions of new cancer cases
7
6
5
4
3
2
1
0
Low income Lower middle income Upper middle income High income
Source: Global status report on noncommunicable diseases 2010. Geneva, World Health Organization, 2011
(http://www.who.int/nmh/publications/ncd_report_full_en.pdf, accessed 15 May 2013).
12
Health literacy – a key determinant of health
literacy is associated with these types of health most consistently and strongly associated with
behaviour. Limited health literacy is often linked health literacy (Fig. 7): the higher the health
with other determinants of noncommunica- literacy, the higher the frequency of physical
ble diseases. For example, lower health literacy exercise. This applies to differing degrees to all
is more prevalent in older population groups, participating countries, except for Spain.
low-income population groups and among cul-
tures in transition, which are also more prone
to developing noncommunicable diseases. The What is known to work – promising
European Health Literacy Survey included indi- areas of action
cators for four types of health-related behaviour
or risks: smoking, alcohol, body mass index and A wealth of experience has contributed to under-
physical exercise. Each showed quite different standing how to improve and contribute to tack-
associations, varying by indicator and country. ling noncommunicable diseases through health
Of these, the amount of physical exercise was literacy. Effective interventions focus on three main
Fig. 7. Frequency of physical exercise according to scores on the General Health Literacy Index for
the 7767 respondents in the European Health Literacy Survey
100
90
80
None
exercising by frequency
70
Percentages of people
A few times
60 per month
50
A few times
40 per week
30
Almost
20 every day
10
0
<15 15–20 20–25 25–30 30–35 35–40 40–45 45–50
Source: adapted from: Comparative report on health literacy in eight EU member states. The European Health Literacy Project 2009–2012. Maastricht,
HLS-EU Consortium, 2012 (http://www.health-literacy.eu, accessed 15 May 2013).
13
Health literacy
areas: supporting people with lower health literacy, The European Health Literacy Questionnaire, for
improving health literacy capacity and improving example, can be used to assess the health liter-
the organizational, government, policy and system acy of specific groups. Austria has used this for
practice. Much research in this field is not yet cate- adolescents and in various regions. Germany is
gorized as health literacy research but is considered including the subscale focusing on health pro-
under other headings such as health education, motion in a national health impact assessment,
health promotion, behaviour research and the like. and the Questionnaire will be applied in the Dia-
betes Literacy project supported by the Euro-
1.
Develop and support the prevention of pean Union to measure health literacy among
noncommunicable diseases through a wide people with diabetes.
range of health literacy interventions. Evi-
dence shows that, to be effective, noncommu-
nicable disease interventions related to health
literacy need to be of high intensity, based on Key sources
theory, pilot tested before full implementation,
emphasize building skills and have a health pro- Beaglehole R et al. Priority actions for the non-
fessional deliver the intervention. Interventions communicable disease crisis. Lancet, 2011,
that influence outcomes indirectly work by inter- 377:1438–1447.
mediately increasing knowledge or self-efficacy
or by changing behaviour. Coalitions such as Berkman ND. Low health literacy and health out-
the Partnership to Fight Chronic Disease in the comes: an updated systematic review. Annals of
United States of America and the Chronic Dis- Internal Medicine, 2011, 155:97–107.
ease Alliance in Europe work intersectorally and
inter-organizationally at the regional, national Comparative report on health literacy in eight EU
and local levels to influence policy develop- member states. The European Health Literacy Project
ment. Such coalitions can help raise awareness 2009–2012. Maastricht, HLS-EU Consortium, 2012
and advocate for stronger policies to address (http://www.health-literacy.eu, accessed 15 May
chronic disease and disability. They also con- 2013).
tribute to empowerment by involving patients,
providers, community organizations, business, Gazanio TA, Galea G, Reddy KS. Scaling up interven-
labour and health policy expert groups. tions for preventing chronic disease: the evidence.
Lancet, 2007, 370:1939–1946.
2. Build interventions on good empirical data.
Comprehensive measurement of health literacy Levin-Zamir D, Wills, J. Health literacy, culture and
provides guidance on what interventions might community. In: Begoray D, Gillis DE, Rowlands G, eds.
need to be put in place to respond to individu- Health literacy in context: international perspectives.
als and communities with limited health literacy. Hauppauge, NY, Nova Science Publishers:99–123.
14
3
Limited health literacy: an underestimated
problem and equity challenge
Nearly half of all Europeans have in- 4. Certain groups are more vulnerable. Specific
adequate and problematic health lit- vulnerable groups have much higher propor-
tions of limited health literacy than the general
eracy skills. population in Europe, including lower social
status (low self-assessed social status, low level
of education, low income and problems in pay-
What is known ing bills), with worse health status (measured
by self-perceived health, long-term illness and
1. Low literacy levels are common. Many chil- limitations in activities because of health prob-
dren, adolescents and adults have limited lit- lems) or relative old age. Again, the diversity in
eracy skills, even in economically advanced Europe is very pronounced (Table 2).
countries with strong education systems.
Excellence in measurement starts with clarity about
2. Limited health literacy is very common. Like what needs to be measured and the purpose. There
general literacy, health literacy can be measured are more than 20 tools for measuring health literacy.
at the individual, organizational, community and The existing measures of health literacy are still too
population levels. The European Health Literacy oriented towards individuals and must be expanded
Survey revealed that 12% of all respondents to include the collective level (including commu-
have inadequate general health literacy and nities) and assessing the literacy-friendliness of
35% have problematic health literacy. Limited materials, organizations and environments (Table 3).
health literacy in Europe is thus not just a prob-
lem of a minority of the population.
What is known to work – promising
3. Countries vary greatly. Inadequate health lit- areas for action
eracy comprised between 2% and 27% of the
population in the eight countries. Limited (inad- 1.
Strengthening health literacy helps to
equate plus problematic) health literacy varied address health inequalities. The people
between 29% for the Netherlands and 62% for who struggle most with limited health liter-
Bulgaria (Fig. 8). acy are most often older people, members of
15
Health literacy
Fig. 8. Percentage distributions of general health literacy for each country and the 7795
respondents
Inadequate health literacy Problematic health literacy Sufficient health literacy Excellent health literacy
Austria
Bulgaria
Germany
Greece
Spain
Ireland
Netherlands
Poland
Total
0 10 20 30 40 50 60 70 80 90 100
Source: adapted from: Comparative report on health literacy in eight EU member states. The European Health Literacy Project 2009–2012. Maastricht,
HLS-EU Consortium, 2012 (http://www.health-literacy.eu, accessed 15 May 2013).
ethnic minorities, recent immigrants, people 2. Invest in measurement: what gets meas-
with lower levels of education and/or low profi- ured gets done. Measuring and monitoring
ciency in the national language and those who health literacy through population surveys can
depend on public transfer payments. The impli- help to develop and evaluate policy and ensure
cations for these more vulnerable groups are that services are accessible to and respond to
that limited health literacy often correlates with individuals with limited health literacy. Invest-
a lack of ability to effectively self-manage health, ment in health literacy aiming at long-term
access health services, understand available improvement should be based on solid empiri-
and relevant information and make informed cal data covering all age groups. Evaluating
health-related decisions. Targeted initiatives can the success of interventions requires monitor-
strengthen health literacy among vulnerable ing not only health literacy but also the condi-
groups and can help to address gaps in health tions in which health literacy is acquired and
inequality. Measures to strengthen health liter- used throughout the life course and how they
acy among children are key. change.
16
Limited health literacy: an underestimated problem and equity challenge
Table 2. Percentage of people with limited (inadequate or problematic) health literacy in specific
very vulnerable groups for countries and the total sample
Indicator Category Austria Bulgaria Germany Greece Spain Ireland Netherlands Poland Total
Education (International
Standard Classification Level 0 or 1 63 76 58 77 74 51 41 100 68
of Education level)
Fairly difficult or
Able to afford doctor 76 80 56 61 68 56 42 74 66
very difficult
Limited activities
because of health Severely limited 82 81 55 80 77 56 35 66 66
problems
Monthly household
Less than €800 38 84 56 70 70 58 38 62 66
income
Source: adapted from: Comparative report on health literacy in eight EU member states. The European Health Literacy Project 2009–2012. Maastricht,
HLS-EU Consortium, 2012 (http://www.health-literacy.eu, accessed 15 May 2013).
3.
Ensure ongoing measurement. Repeated 4. Support research to expand and improve
measurements can help in demonstrating current measures in many settings. Given
whether interventions are effective or not. the relative lack of real-world implementation
Europe now has a unique instrument at its dis- research involving representative populations,
posal, and the European Health Literacy Survey public health agencies should develop mutu-
study should be applied to more countries and ally beneficial partnerships with health literacy
be conducted regularly. researchers to help develop, identify, implement
and evaluate health literacy interventions.
17
Health literacy
Clinical screening tests: reading Identifying difficulties when attempting to understand and use health information,
comprehension, word recognition and including medical labels and instructions. They may result in a sense of shame and stigma
numeracy among people with limited literacy. They are applied at the individual level in face-to-face
interviews and incompletely cover health literacy concepts.
Proxy measures of health literacy using Provides an estimate of the proportion of the population who may have inadequate skills
population literacy surveys to meet the complex demands of everyday life. Incomplete coverage of health literacy
concepts. Provide little guidance for developing or applying interventions.
Direct survey measures a person’s ability This is a rapidly advancing field. New scales applied to groups or populations can provide
to understand, access, appraise and use information to enable practitioners, organizations and planners to provide better services
health information and health services for people with limited health literacy and inform policy responses.
18
Limited health literacy: an underestimated problem and equity challenge
What is known
What is known to work – promising
1. Migrants generally score lower on literacy areas for action
and health literacy measures. Educational
resources and information programmes only 1. Develop specific health literacy strategies
partly reach migrants, often because of eco- for migrants. Specific migrant-friendly strat-
nomic and social barriers. Lack of affordable egies can make systems more responsive to
second-language courses for adults, for exam- migrant needs. Migrant users and communi-
ple, creates a barrier for migrants who want to ties can be engaged in planning, implement-
improve their literacy. ing and evaluating these strategies through
patients, cultural mediators in health settings
2. Migrants have poorer access to and use less and patients’ organizations.
information and health promotion, disease
prevention and care services. Numerous stud- 2. Environmental interventions. Effective inter-
ies show that interventions aimed at increasing ventions include the use of patient navigators,
access to cancer screening, mental health ser- translated signage or pictograms and providing
vices, diabetes education, smoking cessation, HIV health care interpreters. Providing signage in
programmes and child immunization are less suc- minority languages not only helps ethnic minor-
cessful for migrant populations. This also applies ity patients find their way around hospitals but
to ethnic minority populations such as the Roma. also creates a sense of belonging and inclusive-
ness. Although plain language is important in
3. The European Health Literacy Survey following conveying messages, other means of commu-
Eurobarometer methods included only EU citizens nication such as images, photographs, graphic
in its samples, but their migration background illustrations, audio and videos should be consid-
was surveyed (respondents with migration ered in producing materials.
19
Health literacy
4.
Networking and intersectoral interven- Comparative report on health literacy in eight EU
tions. Health care organizations can catalyse member states. The European Health Literacy Project
migrant-friendly action with other sectoral and 2009–2012. Maastricht, HLS-EU Consortium, 2012
stakeholder organizations such as pharmacies, (http://www.health-literacy.eu, accessed 15 May
social work departments, schools, criminal and 2013).
justice departments, voluntary organizations
and companies (Box 3). Equality and diversity [web site]. Bradford, Bradford
Teaching Hospitals Foundation Trust, 2013 (http://
www.bradfordhospitals.nhs.uk/about-us/equality-
and-diversity, accessed 15 May 2013).
Box 3. Case studies
The Bradford Teaching Hospitals Foundation Trust in EU High Level Group of Experts on Literacy. Act now!
the United Kingdom has a formal Communication with Report of the EU High Level Group of Experts on Liter-
Patients Steering Group that has developed guidelines
acy. Brussels, European Commission, 2012.
for patient information.
A nongovernmental organization alliance trained health Health literacy. Research and evaluate: overview
mediators to work in Roma communities to improve the and methods for measuring health literacy. Atlanta,
health of Roma children.
United States Centers for Disease Control and
20
Limited health literacy: an underestimated problem and equity challenge
Prevention, 2011 (http://www.cdc.gov/healthlit- Marmot M et al. Fair society, healthy lives. London,
eracy/researchevaluate/index.html#Assessment, Marmot Review, 2008 (http://www.hospitaldr.co.uk/
accessed 15 May 2013). features/marmot-review-reducing-health-inequali-
ties-in-england, accessed 15 May 2013).
Jordan JE, Osborne RH, Buchbinder R. Critical
appraisal of health literacy indices revealed variable National Research Council. Measures of health lit-
underlying constructs, narrow content and psycho- eracy: workshop summary. Washington, DC, National
metric weaknesses. Journal of Clinical Epidemiology, Academies Press, 2009 (http://www.nap.edu/open-
2011, 64:366–379. book.php?record_id=12690, accessed 15 May
2013).
Learning a living: first results of the Adult Literacy and
Life Skills Survey. Paris, Organisation for Economic Pleasant A. Health literacy measurement: a brief review
Co-operation and Development, 2012 (http://www. and proposal. Washington, DC, Institute of Medicine
oecd.org/education/country-studies/34867438.pdf, of the National Academies, 2009 (http://www.iom.
accessed 15 May 2013). edu/~/media/Files/Activity%20Files/PublicHealth/
HealthLiteracy/Pleasant.pdf, accessed 15 May 2013).
Literacy assessment instruments. Chapel Hill, NC Pro-
gram on Health Literacy, 2011 (http://nchealthlit- van Hoof P. Improving health for Roma children –
eracy.org/instruments.html, accessed 15 May 2013). together for better health, for us, by us. Arlington,
VA, Changemakers, 2013 (http://www.change-
Literacy in the information age: final report of the Inter- makers.com/intrapreneurs/entries/improving-
national Adult Literacy Survey. Paris, Organisation for health-roma-childrentogether-better-health-us,
Economic Co-operation and Development, 2000 accessed 15 May 2013).
(http://www.oecd.org/education/skills-beyond-
school/41529765.pdf, accessed 15 May 2013).
21
4
Health literacy builds resilience among
individuals and communities
22
Health literacy builds resilience among individuals and communities
about their health and improve their skills in competencies needed to function in modern
managing themselves. Empowerment is both a society. Just as there is a universal right of access
process through which people gain more con- to health care, the universal right of access to
trol over their lives, their health and its determi- health literacy should be recognized, and pro-
nants and an outcome that reflects the ability of grammes to build health literacy should be
people – individuals or communities – to influ- introduced accordingly as an essential dimen-
ence the world. Through empowerment, health sion of strengthening health systems (Box 5).
literacy programmes contribute to democratiz-
ing the health care system and to achieving a
stronger commitment to health and well-being Box 5. National Literacy Programme
in communities and in society at large (Box 4).
In the Netherlands, 1.5 million people (10% of the adult
population) are functionally illiterate. In 2004, the foun-
dation Reading & Writing was initiated, spearheading the
Box 4. Capacity of a health-literate person National Literacy Programme, a truly intersectoral pro-
gramme with the involvement of all ministries, employers’
Ideally, a health-literate individual is able to seek and organizations, labour unions, the business community
assess the health information required: and nongovernmental organizations. The Programme
approaches literacy from a human rights perspective. In
• t o understand and carry out instructions for self- the training programmes, improving skills is combined
care, including administering complex daily medical with learning more about important issues for life, such
regimens; as health, childcare and nutrition.
• to plan and achieve the lifestyle adjustments required
for improving their health;
• to make informed positive health-related decisions;
• to know how and when to access health care when
necessary; and
• to share health-promoting activities with others and
address health issues in the community and society.
2.
Health literacy benefits from diversity.
Health literacy initiatives work best when they
What is known to work – promising customize approaches based on understanding
areas for action the diversity of how individuals and communi-
ties approach health. The roles of family, social
1.
Build policies that recognize literacy context, culture and education need to be fac-
and health literacy as a right. Literacy and tored into the development of all health literacy
health literacy are part of the fundamental messages and proposals.
23
Health literacy
Prevention
Individual community interventions
determinants Health literacy
interventions
Empowering
Health Cure
literacy
Population-
based
determinants Care
24
Health literacy builds resilience among individuals and communities
into the daily operations of health institutions, to Health care institutions, hospitals, home care organ-
share knowledge and experience and to plan joint izations and health insurance providers are revising
action. The Alliance has a web site with information their health information on web sites, in brochures,
and organizes regular meetings and workshops. The in folders and on signs in buildings. They get sup-
Alliance supports organizations for empowering port from specialized communication experts, who
individuals and communities. work closely with people with limited literacy. Smart
solutions, such as prepackaged medication, remote
sensors, tablet PCs, phone text messages with
Health literacy approach in the appointment reminders and interactive web sites,
Netherlands are applied to simplify complicated health inter-
ventions or guide people through administrative
Patient groups are well organized in the Nether- procedures. Sensitizing and building the capacity of
lands, and their umbrella organizations provide health workers is an important part of the work, and
a strong political lobby. At the institutional level – their professional organizations support this.
such as hospitals – patient councils negotiate with
management for patient-friendly measures. Patients’
rights are laid down in legislation on informed con- Key sources
sent, which obliges health care providers to provide
proper understandable information and to get the Abel T. Cultural capital and social inequality in
patient’s approval before treatment. In 2011, the health. Journal of Epidemiology and Community
National Health Council produced advice for the Health, 2008, 62:e13.
Minister of Health on tackling limited literacy in the
health sector. This will further strengthen the posi- Abel T, Frohlich KL. Capitals and capabilities: linking
tion of vulnerable patients and their legal rights structure and agency to reduce health inequalities.
with regard to informed consent. Social Science and Medicine, 2012, 74:236–244.
The Netherlands has a decades-long tradition of Marmot M et al. Fair society, healthy lives. London,
special health communication for migrants and Marmot Review, 2008 (http://www.hospitaldr.co.uk/
minority groups, often in foreign languages, using features/marmot-review-reducing-health-inequali-
information materials and involving mediators, ties-in-england, accessed 15 May 2013).
interpreters and trainers. Based on research into
inequities in health, the health communication pro- Mitic W, Rootman I. An intersectoral approach for
grammes were broadened to people with limited improving health literacy for Canada. Ottawa, Public
literacy to ensure that these groups could access Health Agency of Canada, 2012.
health services adequately.
25
B
Taking action to create and strengthen
health literacy–friendly settings
26
B. Taking action to create and strengthen health literacy–friendly settings
27
5
Attributes of health-literate settings
Health is created and lived by people and equity. Health literacy is a key concept in health
within the settings of their everyday promotion and is a key dimension of healthy set-
tings. Health-literate settings infuse awareness of
life; where they learn, work, play and and action to strengthen health literacy throughout
love. the policies, procedures and practices of the set-
tings. They embrace strengthening health literacy
Ottawa Charter for Health Promotion as part of their core business.
28
6
Health literacy is a key attribute of a
healthy city
• r ecognizes at the highest political level the importance of becoming and remaining health literate and gives this priority
through policies and interventions;
• strives systematically to improve the health literacy of its people, its communities, various social groups and its institutions
and services;
• has leaders who understand the high relevance of health for the well-being of the city overall and the need to continually
invest in and enhance the social assets of the city, including health literacy, community resilience, community empower-
ment and participation and social networking;
• is committed to intersectoral work across government because decision-makers in many sectors understand the high
relevance of health and seek health co-benefits and synergy in their policies in cooperation with the health sector;
• provides individuals and communities with skills and knowledge because healthy people and communities are one of the
key assets of cities;
• aids citizens in navigating through the health, education and social service systems, making the healthy choice the easier
choice in settings under city jurisdiction;
29
Health literacy
Box 6. contd
• u ses a range of media to deliver consistent and understandable messages and applies plain-language principles;
• regularly reviews programmes, encourages innovation and adapts services to the health literacy requirements of the most
vulnerable people;
• works with the private sector and the many voluntary organizations in the city as well as adult learning institutions to
improve the overall level of health literacy in the city;
• regularly measures the levels of health literacy in the city; and
• is committed to accountability and transparency.
30
7
Attributes of health literacy–friendly
organizations
Has leadership that makes health literacy integral • D evelops and implements policies and standards
to its mission, structure and operations • Sets goals for improving health literacy improvement, establishes accountability
and provides incentives
• Allocates fiscal and human resources
• Redesigns systems and physical space
Integrates health literacy into planning, • C onducts health literacy organizational assessments
evaluation measures, patient safety and quality • Assesses the impact of policies and programmes on individuals with limited
improvement health literacy
• Factors health literacy into all patient safety plans
31
Health literacy
Table 4. contd
A health-literate health care organization: Examples
Prepares the workforce to be health literate and • H ires diverse staff with expertise in health literacy
monitors progress • Sets goals for training staff at all levels
Includes populations served in designing, • Includes individuals who are adult learners or have limited health literacy
implementing and evaluating health information • Obtains feedback on health information and services from individuals who use
and services them
Meets the needs of populations with a range of • A dopts universal precautions for health literacy, such as offering everyone help
health literacy skills while avoiding stigmatization with health literacy tasks
• Allocates resources proportionate to the concentration of individuals with limited
health literacy
Uses health literacy strategies in interpersonal • C onfirms understanding (such as using the teach-backa, show-me or chunk-and-
communication and confirms understanding at checkb methods)
all points of contact • Secures language assistance for speakers of languages other than the dominant
language
• Limits to two to three messages at a time
• Uses easily understood symbols in way-finding signage
Provides easy access to health information and • M akes electronic patient portals user-centred and provides training on how to
services and navigation assistance use them
• Facilitates scheduling appointments with other services
Designs and distributes print, audiovisual and • Involves diverse audiences, including those with limited health literacy, in
social media content that is easy to understand development and rigorous user testing
and act on • Uses a quality translation process to produce materials in languages other than
the dominant language
Addresses health literacy in high-risk situations, • G ives priority to high-risk situations (such as informed consent for surgery and
including care transitions and communication other invasive procedures)
about medicines • Emphasizes high-risk topics (such as conditions that require extensive
self-management)
Communicates clearly what health plans cover • P rovides easy-to-understand descriptions of health insurance policies
and what individuals will have to pay for services • Communicates the out-of-pocket costs for health care services before they are
delivered
a
The teach-back technique is used in clinical encounters with patients. After describing a diagnosis and/or recommending a course of treat-
ment, the health professional should ask the patient to reiterate what has been discussed by reviewing the core elements of the encounter
so far. The health professional should be specific about what the patient should teach back and be sure to limit instruction to one or two
main points. If a patient provides incorrect information, the health professional should review the health information again and give the
patient another opportunity to demonstrate understanding. Using this method, the health professional can be assured that the patient has
adequately understood the health information presented.
b
After health professionals communicate one important message – a chunk of instructions – they check how much the patient understood.
Source: adapted from: Brach C et al. Attributes of a health literate organization. Washington, DC, Institute of Medicine, 2012 (http://www.iom.
edu/~/media/Files/Perspectives-Files/2012/Discussion-Papers/BPH_HLit_Attributes.pdf, accessed 15 May 2013).
32
Attributes of health literacy–friendly organizations
Plans, evaluates
and improves Prepares workforce
Leadership promotes Integrates health literacy Prepares the workforce Ensures easy access
Has leadership that makes into planning, evaluation to be health literate and Provides easy access to
health literacy integral to measures, patient safety monitors progress health information and
its mission, structure and and quality improvement services and navigation
operations assistance
Source: adapted from: Brach C et al. Attributes of a health literate organization. Washington, DC, Institute of Medicine, 2012 (http://www.iom.
edu/~/media/Files/Perspectives-Files/2012/Discussion-Papers/BPH_HLit_Attributes.pdf, accessed 15 May 2013).
33
Health literacy
34
8
Educational settings
Fig. 12. Model of compatible levels of influence and the education system to strengthen health
literacy
Communities
Curriculum,
teaching, learning
Organizations Improved Improved
health and health
Social School learning literacy
networks Partnerships environment,
and services ethos,
organization
Individuals
35
Health literacy
3.
Wide-ranging and mutually reinforcing 2.
Develop and support health-promoting
learning opportunities are critical. Increas- schools approaches. Health-promoting schools
ing numbers of studies explain that people as a settings approach aims to combine chang-
learn health literacy in the social and cultural ing individual behaviour with changing organi-
contexts in which they live. As such, health lit- zations and policy. An ecological perspective
eracy requires a broad variety of learning oppor- recognizes that developing essential knowledge
tunities. Some of these opportunities are inside and life skills (including those required for health
major societal institutions such as the school literacy) is part of the larger social system or ecol-
system or the health care system. However, simi- ogy. It consists of three interacting components,
lar to most basic life skills, people learn in all their including a broad health education curriculum
settings and activities, and improving health supported by the supportive school environ-
literacy is therefore not confined to such insti- ment and the ethos of the school and its part-
tutions. Other contexts such as family, friends, nerships and services. The health-promoting
peer groups and mass media are important. This schools approach is compatible with the ecolog-
means that wide-ranging learning opportuni- ical model, which emphasizes action and inter-
ties in health literacy should be offered in vari- action between individuals, levels and systems:
ous personal and social learning contexts. Since intrapersonal factors; interpersonal factors; insti-
social learning and engagement require posi- tutional factors; community factors; and public
tive feedback, any attempts to promote health policy factors (Box 7).
literacy should provide such positive feedback,
which fosters gratifying experiences of being 3. Addressing the barriers to adult learning.
able to achieve change in health status and its Policy actions and interventions to address social
determinants. inequities in education and education-related
36
Educational settings
37
Health literacy
38
Educational settings
Nutbeam D. Health literacy as a public health goal: Simovska V et al. HEPS tool for schools – a guide for
a challenge for contemporary health education and school policy development on healthy eating and
communication strategies into the 21st century. physical activity. Utrecht, NIGZ – Netherlands Insti-
Health Promotion International, 2000, 15:259–267. tute for Health Promotion, 2010.
39
9
Marketplace and community settings
The protection of the market is fre- sources can provide important information
quently more important than the about behaviour that promotes and protects
health and prevents disease as well as alterna-
protection of health. A political de- tive therapies, self- and family care, available
bate about health literacy is a debate support services and first aid. By supporting and
about power and transparency: it is promoting interactive and individual health lit-
about a citizen’s right to know about eracy capacity, communities can activate the
cultural capital of their members and contrib-
the origin and composition of food, ute to broader community development and
about hospital infection rates, about strengthening social capital.
which outlets sell alcohol to minors
and about levels of pollution in a way 2. Daily choices for consumers are made dif-
ficult. In everyday life, making healthy choices
that it can be understood broadly and
can be difficult because the information about
easily. which types of behaviour or which products are
healthy can be contradictory or not fully under-
Kickbusch Health literacy, social determinants and stood. For example, people often misjudge the
public policy number of calories they are consuming or the
amount of exercise they take. People shopping
do not always easily understand the composi-
What is known tion of products such as processed food or judge
the accuracy of health claims – since not many
1. Communities are key settings for health of these provide easily understandable informa-
literacy. People make daily health-related deci- tion or labelling. Most are not organized to make
sions in their homes and communities. Fami- the healthier choice the easier choice. Neverthe-
lies, peer groups and communities are usually less, even with access to information, people
primary sources of health information. They often make choices by emotional or situational
help to shape functional health literacy skills impulses – which is the basis of many marketing
related to product and service choices. These strategies (Fig. 13).
40
Marketplace and community settings
Don’t do
Watch out for
drugs
diabetes!
You must be
more active!
41
Health literacy
empowered and supported, not only by good 4. Make the healthier choice the easier choice:
and independent information but also by means use nudging to catalyse change in behaviour.
of counselling and advocacy. The term nudge describes any aspect of the choice
architecture that alters people’s behaviour in a pre-
3. Successful interventions start where people dictable way without forbidding any options or
are and use multiple approaches. Action is significantly changing their economic incentives.
taken in the settings where people live, work and Engaging in nudge approaches requires health pro-
play. Interventions acknowledge a wide variety fessionals to shift from their role as an expert telling
of learning styles and use multiple approaches people what to do to become knowledge brokers
(Box 9). Regulating the promotion of tobacco, and choice architects (Box 10).
alcohol and high-density and high-sugar foods
to children, for example, has been shown to
Box 10. Examples of nudging activities
effectively reduce consumption when com-
bined with awareness-raising and information Smoking nudges could include making nonsmoking
campaigns based on understanding of the per- more visible though mass-media campaigns with the
message that the majority do not smoke and most smok-
ceptions, knowledge and attitudes of the popu- ers want to stop and by reducing cues for smoking by
lations whose behaviour needs to be changed. keeping cigarettes, lighters and ashtrays out of sight.
42
Marketplace and community settings
Health Promotion, Geneva, Switzerland, 11–15 July NHS choices: your health, your choices [web site].
2010 (http://iuhpe.gesundheitsfoerderung.ch/ London, National Health Service, 2013 (http://www.
downloads/en/Programme/abstracts/2010_06_23- nhs.uk, accessed 15 May 2013).
download-SYMPOSIA-MONDAYpm.pdf, accessed
15 May 2013). Sørensen K, Brand H. Health literacy – a strategic
asset for corporate social responsibility in Europe.
KiesBeter.nl [web site]. Bilthoven, RIVM, 2013 (http:// Journal of Health Communication, 2011, 16(Suppl.
www.kiesbeter.nl, accessed 15 May 2013). 3):322–327.
Lifestyle choices [web site]. West Perth, WestOne Thaler RH, Sunstein CR. Nudge: improving decisions
Services, 2013 (http://www.westone.wa.gov. about health, wealth and happiness. New Haven, Yale
au/k-12lrcd/learning_areas/human_bio_science/ University Press, 2008.
hbiol2a/idea1/d1.html, accessed 15 May 2013).
Weisse Liste: Wegweiser im Gesundheitswesen
Marteau T et al. Judging nudging: can nudging [web site]. Berlin, Bertelsmann Stiftung, 2013 (http://
improve population health? British Medical Journal, www.weisse-liste.de, accessed 15 May 2013).
2011, 342:d228.
43
10
Workplace settings
About 350 million working days are diseases, improve lifestyle choices and reduce
lost in the European Union each year, the risk of noncommunicable diseases. They
have also been shown to counter stress factors
with stress and depression recog- (including job (in)security, demands and control
nized as a major cause of sickness. The and effort and reward in the workplace2) and
European working-age population is issues related to achieving an appropriate work–
expected to shrink between 2020 and life balance.
2060 by 13.6%, and the number of 2. There is a strong business case for investing
workers older than 65 will increase. in strengthening health literacy. Strength-
ening health literacy as part of comprehensive
Healthy workplace, healthy society: blueprint for health and well-being programmes improves
business action on health literacy attendance, performance, engagement and
retention as well as health care costs. Where the
employer is responsible for health care costs,
What is known the return on investment has been estimated as
being 4:1.
1. Behaviour change for health in the work-
place can be effective. Workplace health and
well-being programmes have proven particu-
larly effective in encouraging sustained healthy
behavioural change and health education.
These programmes work best not as add-on
offerings but when integrated into core organi- The demand–control model and the effort–reward imbalance
2
zational strategies (Box 11). Interventions in the model are two work stress models that help to identify particu-
lar job characteristics important for employee well-being. The
workplace are highly effective especially for demand–control model predicts that the most adverse health
men, who are more difficult group to reach with effects of mental strain occur when job demands are high and
health messages than women. Workplace inter- the ability to make decisions is low. The effort–reward imbal-
ance model assumes that emotional distress and adverse health
ventions have been shown to help prevent acci- effects occur when there is a perceived imbalance between
dents, lower the risk of industrial or occupational efforts and occupational rewards.
44
Workplace settings
Box 11. Case study: workplace wellness What is known to work – policy and
programmes other interventions
Johnson & Johnson has developed and implemented 1. A strategic approach to workplace health
a comprehensive, holistic, onsite wellness programme
for their employees since 1979. This programme affects literacy programmes can be developed
more than 115 500 employees worldwide and includes (Fig. 14).
the following features:
45
Health literacy
Step 1
Establish a
business case
Step 2
Management buy-in
Decision-making
techniques
Evaluation tools
Step 3 Measurement and
Assess and assessment tools
measure
Source: Healthy workplace, healthy society: blueprint for business action on health literacy. Brussels, Joint Venture of Business Action on Health Lit-
eracy, CSR Europe, 2013 (http://www.csreurope.org/pages/en/hl_blueprint.html, accessed 15 May 2013).
marking distances and/or encouraging physi- dinners-to-go offered in the employees’ café,
cal activity; break rooms with stretching aids; family and/or community access to company
and free filtered water. Moreover, efforts to fitness facilities; and corporate support of physi-
reach family members through employee edu- cal education in schools, playgrounds and parks
cation and targeted communication, healthy have been shown to have positive effects.
46
Workplace settings
3. Provide incentives for changing behaviour. Box 12. Case studies: workplace
Workplaces can provide incentives to employees peer support and health promotion
to adopt healthy lifestyles. Subsidizing employ- programmes
ees who choose not to commute to work by
car, for example, increases the proportion of Volkswagen, a car manufacturer headquartered in Ger-
many, actively involved employees by creating health
employees that walk or cycle to work. Other circles in many company sectors. These problem-solving
incentives include lowering health premiums for groups were tasked with identifying health-related prob-
employees at higher risk of developing a chronic lems and possible measures for improvement. This initia-
tive, supported by training, halved absenteeism from 24
illness who complete health risk appraisals and days per employee in 1986 to 12 days in 1996 and saved
recommended health-coaching activities. Peer personnel costs of roughly US$ 50 million per year as a
support programmes have also been shown result of improved health.
to improve health outcomes and lower costs Another study among firefighters in the United States of
(Box 12). America found that peer support was effective in improv-
ing diet, physical activity and general well-being. A study
in the transport sector in the United States of America
found that peer support programmes reduced substan-
Key sources tially related injuries, with a benefit–cost ratio of 26:1.
Anderson P et al. Communicating incentives for The NHS (National Health Service) National Institute for
Health and Clinical Excellence in England has produced
health. Journal of Health Communication: Interna- a series of guidelines addressing the evidence based
tional Perspectives, 2011, 16(Suppl. 2):107–133. for workplace health promotion programmes includ-
ing smoking cessation, physical activity and mental
well-being.
Chu C et al. Health-promoting workplaces – inter-
national settings development. Health Promotion
International, 2000, 15:155–167.
47
Health literacy
Miller TR, Zaloshnja E, Spicer RS. Effectiveness and Spicer RS, Miller TR. Impact of a workplace peer-
benefit-cost of peer-based workplace substance focused substance abuse prevention and early
abuse prevention coupled with random testing. intervention program. Alcoholism: Clinical and
Accident Analysis and Prevention, 2007, 39:565–573. Experimental Research, 2005, 29:609–611.
Shoup D. Evaluating the effects of cashing out Workplace Wellness Alliance. Case study J&J. Geneva,
employer-paid parking: eight case studies. Transport World Economic Forum, 2012 (http://alliance.
Policy, 1997, 4:201–216. weforum.org/Case-Studies/case-study-jj.htm,
accessed 15 May 2013).
Sørensen K, Brand H. Health literacy – a strategic
asset for corporate social responsibility in Europe.
Journal of Health Communication, 2011, 16(Suppl.
3):322–327.
48
11
Health care settings
Health information is often inacces- critical directions such as those for test prepara-
sible because the literacy demands of tions or for discharge home care. This can be a
health systems and the literacy skills great challenge for adults and even more diffi-
cult for children and adolescents.
of average adults are mismatched.
2.
Patients face multiple literacy require-
Rima E. Rudd Health service interventions – navigat- ments and increasingly difficult decisions.
ing health systems and partnering with health profes- This may include: evaluating information for
sionals (unpublished) credibility and quality, analysing relative risks
and benefits, calculating dosages, interpreting
test results or locating health information. To
accomplish these tasks, individuals may need to
What is known be: visually literate (able to understand graphs
or other visual information), computer literate
1.
Navigating increasingly complex health (able to operate a computer), information liter-
care systems is a major challenge for ate (able to obtain and apply relevant informa-
patients and their families. Health institu- tion), media literate (able to distinguish reliable
tions are complex structures and busy working information from promotions) and numerically
environments with multiple entrances, busy or computationally literate (able to calculate or
hallways and layered signs and postings and are reason numerically).
filled with the sounds of the foreign languages
of medicine, nursing and varied allied health 3.
Health information materials are often
professions. Such institutions require sophisti- poorly written and literacy demands are
cated navigation skills. Initial studies have found excessive. A strong body of evidence indicates
multiple but similar barriers across countries that the literacy demands of health materials (in
and locations. They include problematic web print and online) are clearly mismatched with
sites, phone interactions and street signs; poorly the literacy skills of average adults with second-
marked entrances, passageways and destination ary school education. More than 1500 peer-
points; complex maps that do not match signs reviewed studies indicate that health materials,
or place colours; jargon-filled forms for health across a wide array of content areas and formats
and family background information for legal (such as patient brochures, discharge instruc-
documents such as informed consent and for tions or medicine directions, forms, lists and
49
Health literacy
charts) have been poorly designed, poorly writ- measures, has often led to reorienting prior
ten and geared to a very sophisticated audience. ities. The economic values inherent in an indus
trial and/or for-profit approach have in many
4. Health providers’ written and spoken com- places replaced fundamental commitment to
munication has insufficient clarity and access and care for many vulnerable people,
quality. The skills of health professionals in such as low-income, older and unemployed
communicating with patients have been asso- people. Time management of health profes-
ciated with health outcomes. Studies show that sional visits, for example, reduces the amount of
patients require definition of terms, concrete contact time and opportunities for information
examples, illustrations, narratives and reminder exchange between providers (especially doc-
cues. They require help with solving problems tors) and patients.
and need to be actively encouraged to ask ques-
tions. Good experience has been gained with 6.
Health literacy affects the use of health
best practice guidelines. services. The European Health Literacy Survey
shows that health literacy in European coun-
5.
New “business” models can create new tries is slightly but significantly correlated with
obstacles. The adoption of a business approach the use of health care services, such as the fre-
to health reform, guided by efficiency outcome quency of using hospital services (Fig. 15).
Fig. 15. Frequency of hospital service use in the last 12 months according to scores on the General
Health Literacy Index for the 7764 respondents in the European Health Literacy Survey
100
90
80
≥6 times
service use by frequency
Percentages of hospital
70
3–5 times
60
50
1–2 times
40
30
0 times
20
10
0
<15 15–20 20–25 25–30 30–35 35–40 40–45 45–50
Source: adapted from: Comparative report on health literacy in eight EU member states. The European Health Literacy Project 2009–2012. Maastricht,
HLS-EU Consortium, 2012 (http://www.health-literacy.eu, accessed 15 May 2013).
50
Health care settings
Table 5. Improving the health literacy environment in health care facilities: a toolbox
Web • Generally designed for attractiveness rather than use • Improve navigation and the return to the home
page
• Enable users to make enquiries
• Provide answers to common enquiries
Phone • R ecorded information is often spoken very rapidly • D evelop recordings with care and pilot them
• The operator cannot answer many questions • Provide orientation and training
• Wait times are long and disconnections are common • Provide scripts for frequently asked questions
Way-finding • T he information desk is often welcoming, but the • P rovide orientation and training in using plain
directions are not always clear language
• Many workers do not know the facility layout • Provide orientation booklets for patients
• Maps are very complex • For new construction: do not leave signs to the
• Signs do not apply consistent or common words discretion of the designers
• Consider all staff as ambassadors and provide
orientation to the facility
51
Health literacy
Organization and • M aterials are not written with the audience in mind • esign for reading ease
D
structure or with attention to the reading process • Check for clarity
• People are often overwhelmed with information • Use organizational and navigational cues
presented in complex formats • Organize information by reader preference and
priority
• Pilot written materials
• Use teach-back for spoken information
Design and • M aterials are often designed from the professional • R egulate the development and review of critical
development perspective texts
processes • The production of material lacks professional rigour • Require piloting with members of the intended
• Medical encounters are structured for the patient audience, including children and adolescents
with scarce room for question asking • Encourage and support people in asking questions
and setting agendas
Rigour • F ew if any requirements are in place for designing, • D evelop and apply regulations for designing,
piloting and producing materials piloting and producing critical health texts
• Few protocols are in place for assessing the • Teach and apply teach-back methods
communication skills of health professionals • Institute communication requirements for licensing
exams
discussions should change. Recommendations for health literacy means applying best practices
related to print and online materials include calls for spoken communication to all health care pro-
for institutional review boards with minimum fessionals who interact with patients. Measures
requirements for rigorous pilot testing with related to literacy and/or health literacy must be
members of the intended audiences, evidence integral to any internal programme evaluation
of revisions related to ease of use and clarity and to obtain feedback as to whether ongoing ini-
reports of assessment processes and findings. tiatives are reducing or exacerbating health lit-
eracy disparities, and users have to be included
3.
Make health literacy sensitivity a qual- in the processes of planning, governance and
ity criterion for health care management. quality assurance and improvement. This also
Health literacy has to be included as a relevant includes creating shame-free environments in
criterion in assessing the quality of professionals which patients and visitors feel comfortable in
and institutions. Taking “universal precautions” asking for help, people feel welcomed, where
52
Health care settings
help is offered to everyone, clear signs and post- in clinical research. New types of professionals
ings ease the burden of finding one’s way, mate- are needed who can guide individuals towards
rials are provided and are well designed for use their health goals. New professionals are needed
and talk is friendly and jargon-free. in the community and in all clinical settings to
act as advocates, counsellors and guides.
4. Invest in professional education. Health care
providers should be trained to communicate 5. Use the International Network of Health
more effectively to help them care for people Promoting Hospitals and Health Services
with limited health literacy. Training should focus as well as European patient organizations
on improving clinicians’ communication skills to foster health literacy. The health-literate
and understanding of cultural sensitivity, gen- health care organization is an important model
der differences and various age groups. Further, for hospitals and health services. Health literacy
clinician skills need to be improved for foster- is a core concept for implementing health pro-
ing mutual learning, partnership-building, col- motion. The setting-oriented approach is a rel-
laborative goal-setting and behaviour change evant area in the strategies and policies of the
for people with chronic diseases. Training works Network. Networks such as this are therefore an
best when it is informed by users with limited important resource for promoting health-liter-
health literacy, who are often underrepresented ate hospitals.
53
Health literacy
54
Health care settings
Take 1 or 2 tablets
Wait at least 4 hours before taking again
Stop at 6 tablets in 1 day
55
Example: programmes for self-managing
chronic disease
56
Health care settings
Brach C et al. Attributes of a health literate organiza- Cindy Irvine’s Health and literacy compendium (Bos-
tion. Washington, DC, Institute of Medicine, 2012 ton, Health and Literacy Initiative, World Education,
(http://www.iom.edu/~/media/Files/Perspectives- 1999 (http://healthliteracy.worlded.org/docs/comp,
Files/2012/Discussion-Papers/BPH_HLit_Attributes. accessed 15 May 2013)) contains more than 80 cita-
pdf, accessed 15 May 2013). tions to print and web materials. These cover the
links between health status and literacy status; how
Brach C et al. Health literacy in action: design, devel- to assess and develop easy-to- read health education
opment and measurement. Rockville, MD, Center materials; how to teach health with literacy in mind,
for Delivery, Organization and Markets, Agency and how to teach literacy using health content;
for Healthcare Research and Quality, 2009 (http:// background information on literacy and participa-
www.ahrq.gov/about/annualconf09/brach3.htm, tory education methods; curricula and materials on a
accessed 15 May 2013). variety of health topics for adults with limited literacy
skills; bibliographies and databases of easy-to-read
Brady T et al. A meta-analysis of health status, health or multilingual health information and brochures;
behaviors, and health care utilization outcomes of and bibliographies and databases of materials about
the Chronic Disease Self-Management Program. the connections between health and literacy.
57
Health literacy
Rudd R. Oxford bibliographies: health literacy. Simply put – a guide for creating easy-to-understand
Oxford, Oxford Bibliographies, 2011 (http://www. materials. 3rd ed. Atlanta, United States Centers for
oxfordbibliographies.com/view/document/obo- Disease Control and Prevention, 2009 (http://www.
9780199756797/obo-9780199756797-0033.xml, cdc.gov/healthcommunication/ToolsTemplates/
accessed 15 May 2013). Simply_Put_082010.pdf, accessed 15 May 2013).
Rudd & Anderson’s The health literacy environment WHO Collaborating Centre for Health Promotion in
of hospitals and health centers. Partners for action: Hospitals and Health Care [web site]. Vienna, Ludwig
making your healthcare facility literacy friendly (Cam- Boltzmann Institute, 2013 (http://www.hph-hc.cc,
bridge, MA, Health and Adult Literacy and Learn- accessed 15 May 2013).
ing Initiative, Harvard School of Public Health,
2006 (http://www.hsph.harvard.edu/healthliter- Wolf M. A universal medication schedule to pro-
acy/ files/2012/09/healthliteracyenvironment. pdf, mote patient understanding and use. Rockville, MD,
accessed 15 May 2013)) includes a set of review Agency for Healthcare Research and Quality, 2009
tools and offers an approach for analysing literacy- (www.ahrq.gov/legacy/about/annualconf09/wolf/
related barriers to health care access and navigation. wolf.ppt, accessed 15 May 2013).
It was designed to assist chief executive officers,
presidents, programme directors, administrators Youmans S, Schillinger D. Functional health lit-
and health care workers at hospitals or health cen- eracy and medication management: the role of
tres to consider the health literacy environment of the pharmacist. Annals of Pharmacotherapy, 2003,
their facilities and to analyse ways to better serve 37:1726–1729.
their patients.
58
12
Media and communication
Mass-media communication can sup- and integration of definitions and models. BMC
port health literacy in many ways. For Public Health, 2012, 12:80) (Box 14).
most Europeans, the primary and most
trusted information sources are their Box 14. Case study: social marketing to
enhance health literacy related to avian flu
health care professionals, but most
seek out supplementary information During the 2005–2006 avian influenza outbreak in Turkey,
UNICEF coordinated a multisectoral, multiagency task
from a variety of mass-media sources. force that used social marketing techniques to deliver
target-specific communications to hard-to-reach high-
risk population groups. Focus groups and interviews
Franklin Apfel Mass mediated health communica- were conducted with mothers living in the rural eastern
part of Turkey to better understand their perceptions and
tions and health literacy (unpublished) risk behaviour (such as bringing chickens into the house
to keep them warm), identify messages and incentives
that could reduce risk and mass media and community
channels (such as language-specific radio and television
What is known broadcasts) that could deliver reliable, understandable
information appropriate to the literacy level of the popu-
1. Information alone is not enough. Message lation. The intelligence gathered also informed advocacy
communication approaches focused on craft- strategies for policies for compensating farmers for poul-
try losses.
ing information and sending messages are not
enough to positively influence people’s choices.
Research results and experience from across the 2. Communication is an integral part of com-
wider social and behavioural sciences, including prehensive public health initiatives. Com-
social marketing, social psychology, behavioural munication has been credited with reducing
economics and neurosciences, increasingly some forms of risky behaviour (such as unpro-
provide practical and often cost-effective, solu- tected sexual intercourse); promoting uptake
tions to helping people to “make judgments of disease prevention measures and treatment
and take decisions in everyday life concerning (such as the use of seat-belts and medication
health care, disease prevention and health pro- labelling); and enhancing adherence to medi-
motion to maintain or improve quality of life cation and treatment regimens. Positive effects
during the life course” (Sørensen K et al. Health have been attributed to programmes that tai-
literacy and public health: a systematic review lor health information to the needs of target
59
Health literacy
2.
Enhance public health communication
capacity. Strategic approaches to using mass
media to enhance individual and population
3. Health-compromising mass-media commu- health literacy include strengthening the capa
nication. From the earliest age, people receive city to deliver audience-centred information,
messages from multiple sources, some of which actively countering misinformation, influencing
are highly problematic and directly undermine behaviour and advocating for health literacy–
positive health behaviour. The aggressive global friendly environments and policies. Health com-
commercial marketing of tobacco, alcohol and municators and educators can learn from the
unhealthy food and beverages, for example, communication approaches successfully used
continues to lead people towards unhealthy by commercial advertisers and marketers. These
lifestyles and contributes significantly to the include targeting and market segmentation
rapidly increasing burden of noncommunicable techniques to deliver tested and tailored health
diseases. messages and information.
60
Media and communication
Educational entertainment (edutainment) ap- 4.
Enhance equity in electronic health
proaches positively influence health literacy (eHealth) literacy. Health gains among highly
learning and action. Studies indicate that edu- eHealth-literate people have created new ine-
tainment, especially when it is combined with qualities in digital health information. Groups
other methods and approaches such as move- at higher risk need to be educated and assisted
ment-building strategies and interpersonal and technology designed with accessibility by
communication, has been highly effective in all in mind (Box 17).
several contexts. In some countries, for example,
discussing immunization on soap operas has
increased the number of mothers seeking vac- Box 17. What is eHealth literacy?
cination for their children. Specifically, eHealth literacy is defined as the ability to
seek, find, understand and appraise health information
3. Actively counter misinformation and ensur- from electronic sources and apply the knowledge gained
to addressing or solving a health problem. Unlike other
ing quality. Establishing quality assurance
distinct forms of literacy, eHealth literacy combines facets
systems to prevent misinformation and miscom- of literacy skills and applies them to eHealth promotion
munication can help to facilitate the delivery of and care. At its heart are six core skills (or types of literacy):
reliable and coherent health information. Accred- traditional literacy, health literacy, information literacy,
scientific literacy, media literacy and computer literacy.
itation schemes for health literacy–friendly
information materials can be established at
institutional levels. Media health literacy skills are
needed to distinguish credible, reliable and inde- Key sources
pendent information from sales-driven product
marketing and advertising. Media literacy works European Commission: public health [web site].
towards deconstructing media communication, Brussels, European Commission, 2013 (http://
taking it apart to show how it is made (Box 16). ec.europa.eu/health/ index_en.htm, accessed 15
May 2013).
Box 16. Independent sources of health
information Global epidemic: Ukraine [web site]. Washington,
DC, Campaign for Tobacco-Free Kids, 2013 (http://
Independent municipal, national and international
health information sources, such as WHO, the European
global.tobaccofreekids.org/en/global_epidemic/
Commission or NHS Direct in the United Kingdom, can ukraine, accessed 15 May 2013).
help people in distinguishing fact from fiction. Health
web sites in general, however, lack quality control. Some
Health on the Net (HON) code of conduct for medi-
quality standards and certifications, such as the Health
on the Net standards, have been developed for quality cal and health web sites [web site]. Chêne-Bourg,
control of health web sites but have not yet been applied Switzerland, Health on the Net Foundation, 2013
globally and have not been shown to make web sites (http://www.hon.ch/HONcode/Conduct.html,
easier to understand.
accessed 15 May 2013).
61
Health literacy
Life Regional Advocacy Center [web site]. Kyiv, Life Sørensen K et al. Health literacy and public health: a
Regional Advocacy Center, 2013 (http://center-life. systematic review and integration of definitions and
org/en, accessed 15 May 2013). models. BMC Public Health, 2012, 12:80.
Making preparation count: lessons from the avian WHO Regional Office for Europe [web site]. Copen-
influenza outbreak in Turkey. Copenhagen, WHO hagen, WHO Regional Office for Europe, 2013
Regional Office for Europe, 2006 (http://www.euro. (http://www.euro.who.int, accessed 15 May 2013).
who.int/document/e89139.pdf, accessed 15 May
2013). World Health Organization [web site]. Geneva,
World Health Organization, 2013 (http://www.who.
NHS Direct [web site]. London, NHS, 2013 (http:// int, accessed 15 May 2013).
www.nhsdirect.nhs.uk, accessed 15 May 2013).
62
13
Social media and mobile health
3.
The mobile social web is now enabling
What is known people to easily share, rate, recommend
and find software apps (applications) cov-
1. Social media can potentially improve users’ ering almost any topic, including health.
capacity to obtain, process and understand The advent of smartphones, small-form-factor
health information and services needed tablets and the latest generations of operating
to make appropriate health decisions. Viral systems and web browsers that support the
social marketing (reaching out to many more concept of apps and associated app stores or
people, more quickly and with minimal costs, markets has made downloading and installing
compared with other forms of marketing and software easy and popular. For example, more
advertising) is among the strongest aspects of than 1 million people downloaded a mobile app
social media and can play an important role for trusted and reliable health advice offered by
in health education, promotion and outreach the NHS in England in its first six months after
programmes. For example, viral marketing and launch in May 2011.
other social media techniques have been suc-
cessfully used to promote condom use in Turkey. 4. Smartphones and their apps are rapidly
and radically transforming health care,
2. Online social networks and participatory especially the care of people with long-
communication methods can also provide term conditions. This enables health care to
63
Health literacy
64
Social media and mobile health
5. Social media pose higher risks than other for the NHS Choices in England and United
conventional media (such as television and States Centers for Disease Control and Preven-
print material) because of the much wider (and tion and anti-tobacco campaigns on Facebook.
faster) outreach of the social web and its mes-
sage and its partly uncontrollable and non- 2.
Monitor and moderate. Users should be
moderated nature in which virtually anyone can allowed to post and comment, since this is the
publish whatever they want. The risks include essence of social media. Nevertheless, social
spreading misinformation and disinformation, media masters should regularly monitor and
which can propagate very rapidly through viral moderate their content for any forms of spam,
messages, videos and electronic word of mouth abuse or violations of copyright or patient pri-
and even through the social media accounts vacy. Account administrators should also pro-
of reputable organizations that get hacked. tect their presences with strong passwords to
The viral nature of the social web means that prevent spammers from hacking their accounts.
information and misinformation can travel and Organizations should develop and enforce
get boosted very fast (the water ripple effect), clear policies and guidelines on what their staff
especially during times of mass stress and panic. members can post on various social media and
Further, on the social web, the source (an impor- should also allocate sufficient personnel time
tant clue in assessing information credibility) is and resources to monitor their social media
often omitted or lost (such as in Twitter retweets presences. This task can be very demanding
limited to 140 characters), and the information but can be partly helped by identifying, training
is sometimes paraphrased in a way that dis- and appointing online community leaders from
torts the original message or takes it out of its among patients (expert e-patients) and the gen-
intended context. eral public to assist in moderating and facilitat-
ing social media postings.
65
Health literacy
compiled for clinicians) can be adopted to maxi- an online health literacy course, health literacy train-
mize the efficiency of content authoring and ing materials and a social media toolkit and provides
delivery in relation to varying degrees of patient a monthly health communication publication on
literacy, from the expert patient to the layperson health literacy, social media and social marketing.
with very limited literacy. Even the most readable
(social media) posts will remain difficult to fully In addition, the United States Office of Disease Pre-
and properly understand for much of the popu- vention and Health Promotion has created an online
lation. For this reason, in addition to written text, guide to writing and designing easy-to-use health
online health information providers should also web sites. It also hosts an open-source, online portal
consider alternative and complementary social that contains key tools, research reports, and other
media modalities such as interactive games and resources for individuals interested in health literacy,
live seminars in virtual worlds and plain-English health communication and eHealth. These tools
videos (or in other languages as appropriate), so could be useful to both public health practition-
that no one is left behind. ers and other individuals interested in developing
social media content.
T2X (Teen2Xtreme) [web site]. Teen2Xtreme, 2013 Simply put – a guide for creating easy-to-understand
(http://www.t2x.me, accessed 15 May 2013). materials. 3rd ed. Atlanta, United States Centers for
Disease Control and Prevention, 2009 (http://www.
Plain Language Medical Dictionary [online database]. cdc.gov/healthcommunication/ToolsTemplates/
Ann Arbor, Taubman Health Science Library, Univer- Simply_Put_082010.pdf, accessed 15 May 2013).
sity of Michigan, 2013 (http://www.lib.umich.edu/
plain-language-dictionary, accessed 15 May 2013). Gateway to health communication and social mar-
keting practice [web site]. Atlanta, United States
Centers for Disease Control and Prevention, 2013
Resources available from United States (http://www.cdc.gov/healthcommunication,
agencies accessed 15 May 2013).
The United States Centers for Disease Control and The health communicator’s social media toolkit.
Prevention uses social media extensively in its pub- Atlanta, United States Centers for Disease Con-
lic health campaigns and outreach activities. It offers trol and Prevention, 2011 (http://www.cdc.gov/
66
Social media and mobile health
67
C
Developing policies for health literacy at the
local, national and European Region levels
This publication has presented strong evidence strategically established alongside organizations
for why policy action to address health literacy is that support patient empowerment and health
needed and has highlighted a wide range of prom- promotion. Professional organizations and civil
ising interventions that are being and can be carried society organizations throughout Europe that
out by many stakeholders to strengthen health liter- promote patient participation, public health and
acy. This part summarizes key action areas that can consumer rights can be important advocates
contribute to developing policies for health literacy for health literacy. The International Union for
on all levels. These action areas include: champion- Health Promotion and Education has established
ing and leading for health literacy across society, a Global Working Group on Health Literacy. Alli-
aligning with the values and principles of the public ances such as the NCD Alliance3 can help take
good, advocating to put health literacy on the pub- the health literacy agenda forward in relation
lic policy agenda, strengthening the evidence base to the global challenge of noncommunicable
of health literacy through support for research and diseases. The private sector can make signifi-
monitoring, building adequate capacity for action cant contributions. Corporate social responsi-
and finding effective ways to work together for bility can include providing reliable information
health literacy at the European Region level. to patients and consumers, as should all health
reporting, marketing and advertising. In par-
ticular, the mass media and the information and
Health literacy needs champions and communication industry can work with patients
leadership across society and consumers to contribute to better informa-
tion, experience exchange and transparency
1. Politicians, professionals, civil society and
the private sector can all contribute to
addressing health literacy challenges. As The NCD Alliance was founded by four international federations of
3
68
C. Developing policies for health literacy at the local, national and European Region levels
and accountability for health. Networks such as Declaration of the High-level Meeting of the
healthy cities, health-promoting schools, health- General Assembly on the Prevention and Con-
promoting universities, healthy workplaces and trol of Non-communicable Diseases, European
health-promoting hospitals can significantly Union white papers and declarations of the
strengthen the health literacy agenda. United Nations Economic and Social Council call
for investment in health literacy research and
2. The health sector can lead by example. It action, providing critically important political
can create enabling health care settings that mandates.
empower individuals and promote and support
health literacy. It is a core part of the profes-
sional duty for health professionals to improve Aligning with the values and principles
their communication skills and to develop the of the public good
health literacy skills of their patients. Training all
health professionals is essential – new types of 1. Health-related rights and access to infor-
professionals are needed in the community and mation are needed. Health literacy is a key
in all clinical settings who can act as advocates, dimension of health citizenship. It is a funda-
change agents, counsellors and guides. National mental skill all people need to promote health,
health services and health insurers in insurance- prevent disease and live with chronic disease in
based health systems can create incentives for modern society. Health literacy is a public health
action in the health sector to support health lit- imperative. Health literacy is a strong predictor
eracy, and patient and consumer organizations of health status that is linked with age, income,
can advocate for greater patient involvement employment status, education level and race or
and health literacy–friendly health care settings. ethnic group. Everyone, including children and
Including representatives of patients in plan- adolescents, has a right to health information
ning, governance and improving the quality of and health systems that they can understand
all health care organizations can be an effec- and navigate. They also have a right to informa-
tive means of making these organizations more tion as consumers in relation to products that
health literate–friendly, as experience from the can adversely affect their health.
Netherlands shows.
2. Reducing health inequities. Health literacy
3.
International and regional agencies can follows a social gradient in all countries across
provide moral and political platforms for the European Region and beyond. Half of all
action. For example, Health 2020, the Euro- Europeans have inadequate or problematic
pean policy for health and well-being, acknowl- skills. The implications for these groups is that
edges health literacy as a determinant of health their limited health literacy often correlates
and well-being, offering a unique and timely with a lack of ability to effectively self-manage
opportunity for accelerating action. The Political health, access health services, understand
69
Health literacy
available and relevant information and make is an important part of the strategy to overcome
informed health-related decisions. Targeted ini- inequalities in health; in Austria, health literacy
tiatives can strengthen health literacy among has been included as one of 10 national health
vulnerable groups and can help address health goals. Examples from Ireland and the Nether-
inequities. lands also provide excellent examples.
3. Reducing societal costs. Limited health lit- 2. Make standards for health-literate organi-
eracy incurs significant costs to society, health zations part of quality management and
systems and individuals and their families. corporate social responsibility. Institutions
Building health literacy is a long-term strategy such as workplaces, schools, hospitals and retail
that requires long-term investment. National, outlets can develop and adopt health literacy
regional or local governments can provide sup- standards at the appropriate policy levels. This
portive environments that foster the commit- approach includes plain-language initiatives
ment to health literacy. They can make a high as a means of providing meaningful, reliable,
level of health literacy an explicit goal of health simple and practical information for citizens,
policy as well as of education policy. Health lit- patients and consumers. Standards for health lit-
eracy is a key outcome measure for early child eracy must also become an integral part of what
development, school curricula and lifelong is expected of the producers of health-related
learning for health and well-being that need to goods and services.
be promoted across the life course.
3.
Adopt a multidimensional approach to
4.
Building capacity to sustain change. building health literacy. To reach target pop-
Strengthening health literacy not only improves ulations, initiatives to build health literacy are
health but also builds resilience to help indi- best grounded in settings of everyday life. Poli-
viduals and communities navigate their way cies and approaches must be sensitive to differ-
to health-sustaining resources and actions. ences in cultures, gender, age and individuals in
their content and format. Most countries have
agencies to address problems related to lim-
Advocating – putting health literacy on ited general literacy, and health literacy should
the public policy agenda become an important part of their tasks.
70
C. Developing policies for health literacy at the local, national and European Region levels
research that demonstrates the benefits of tack- Working together at the European level
ling health literacy for the organizations con-
cerned. This may include reduced costs (fewer 1.
European organizations should work
no-shows and better adherence), improving the together to expand the European Health
quality of care and improving patient satisfac- Literacy Survey. This can serve as a barometer
tion. Win-win is the best starting-point for suc- to measure the effectiveness of whole-of-gov-
cess. Health insurance providers can incorporate ernment and whole-of-society approaches to
attention for vulnerable groups in their contract health and well-being – also within the organi-
conditions with health care providers when it zations. It is recommended that health literacy
reduces costs. Surveys of health literacy and the be included in the European Union’s framework
health literacy–friendliness of systems should for key competencies for lifelong learning. The
be conducted at regular intervals to allow com- European Health Literacy Survey should be
parisons over time. Research should not only sustained, have dedicated funding, be applied
focus on adults but also include children and to more countries and be conducted at regu-
adolescents. lar intervals through the continued support of
the European Union, the WHO and countries.
This publication has presented a wide variety The instrument can also be used to assess and
of promising initiatives. Priorities need to be benchmark the health literacy of specific groups
set and investment made in key developmen- and of the effectiveness of policies, programmes
tal areas, such as analysing the effects of mass and projects related to health and well-being
media and social media and better understand- across government sectors and societies.
ing how environmental interventions affect
individual health literacy. 2.
Support European centres of excellence.
Such centers could help drive the momentum
2. Better measurement and comparative data for health literacy further and support both a
at all levels of governance is needed. Existing research and an action agenda. They can help
measures of health literacy are still too oriented expand networks on health literacy in the WHO
towards the individual and must be expanded European Region. Health literacy is an excel-
to include the collective level (including com- lent health action area on which the EU and
munities) and to assess the literacy friendliness the WHO Regional Office for Europe can join
of materials, organizations and environments. forces together with other European and global
Better research will provide better directives for actors – especially in relation to the role of inno-
organizations to improve education and self-care vation in health, given the increasing relevance
interventions for individuals, patient care, quality of health information technologies and social
of the services provided, the service responses media in promoting health literacy.
to community needs and the nature, content
and delivery of health promotion messages.
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Health literacy
3. Support learning exchange. European organ- Project and launched in 2010 at the European
izations should engage with developing health Health Forum Gastein. Countries are already
literacy networks. Health Literacy Europe is a taking national, regional and local initiatives.
rapidly growing network for professionals work- Supporting this exchange of learning can help
ing in research, policy and practice. It was estab- everyone progress faster (Boxes 20 and 21).
lished as part of the European Health Literacy
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C. Developing policies for health literacy at the local, national and European Region levels
Box 21. Swiss Health Literacy Alliance Lynch J. Literacy audit for healthcare settings. Dublin,
National Adult Literacy Agency, 2009 (http://www.
The Swiss Health Literacy Alliance connects stakehold- healthpromotion.ie/hp-files/docs/HSE_NALA_
ers from the health care and educational systems with
researchers, politicians, representatives of the health
Health_Audit.pdf, accessed 15 May 2013).
care industry and the mass media with the common
goal of promoting health literacy in Switzerland. The Alli- Lynch J. NALA audit project 2010. Dublin, National
ance aims to drive the sociopolitical agenda, develops Adult Literacy Agency, 2009 (http://www.nala.ie/
and implements strategies and concepts for promoting
health literacy and supports the realization of specific sites/default/files/publications/NALA%20Audit%20
projects in Switzerland together with partners from Project%20Dec%202010%20report_1.pdf, accessed
inside and outside the Alliance. 15 May 2013).
The members of the Swiss Health Literacy Alliance are:
Health Promotion Switzerland, the Swiss Society for Pub- McCarthy A, Lynch J, eds. Health literacy policy and
lic Health, Careum, the Swiss Medical Association (FMH) strategy: research report for National Adult Literacy
and MSD – Merck Sharp & Dohme AG.
Agency. Dublin, National Adult Literacy Agency,
2002 (http://www.nala.ie/sites/default/files/publi-
cations/Health%20literacy%20policy%20and%20
strategy%20-%202002%20research%20report_1.
pdf, accessed 15 May 2013).
Key sources
NALA policy brief on health literacy in Ireland. Dublin,
delle Grazie J. How can national policy make a dif- National Adult Literacy Agency, 2009 (http://www.
ference? The role of health literacy in national health nala.ie/sites/default/files/publications/NALA%20
strategies. Vienna, European Health Forum Gastein, policy%20on%20health%20literacy_1.pdf, accessed
2012. 15 May 2013).
Fairer health outcomes for all: reducing inequities OECD and Statistics Canada. Literacy in the informa-
in health. Strategic action plan – technical working tion age: final report of the International Adult Literacy
paper. Cardiff, Welsh Assembly Government, 2011 Survey. Paris, Organisation for Economic Co-opera-
(http://wales.gov.uk/topics/health/publications/ tion and Development, 2000 (http://www.oecd.org/
health/reports/fairer/?lang=en, accessed 15 May education/country-studies/39437980.pdf, accessed
2013). 15 May 2013).
Kickbusch I, Wait S, Maag D. Navigating health: the Puntoni S. Health literacy in Wales. A scoping docu-
role of health literacy. London, Alliance for Health and ment for Wales. Cardiff, Welsh Assembly Govern-
the Future, 2005. ment, 2012.
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