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The NEW ENGLA ND JOURNAL of MEDICINE

Perspective July 18, 2019

C a se S tudies in Social Medicine

The Right and Left Hands of the State — Two Patients


The Right and Left Hands of the State
at Risk of Deportation
Anita Berlin, M.B., B.S., Ed.D., Victoria Koski-Karell, B.A., Kathleen R. Page, M.D., and Sarah Polk, M.D., M.H.S.

Case A: London

T
wenty-year-old Ms. Z. her in a house, where she was
presented to the emer- raped repeatedly over the ensuing
gency department (ED) 6 months and threatened that “If
of a hospital in Lon- you leave, you will be arrested and
don, anxious and hyperventilating sent back home to die.” When her
after 4 days sheltering on night captor left the door unlocked,
buses. She was brought in by Ms. Z. escaped.
an elderly couple whom she In the ED, Nurse M. took
had approached when she down Ms. Z.’s details, noting
overheard them speaking that her immigration status was
her Nigerian language. ambiguous. The ED doctor ex-
Once in an exam room, plained to Ms. Z. that her symp-
Ms. Z. reported that toms resulted from panic and
she’d fled to the United trauma. He provided instructions
Kingdom from Nigeria on registering for a full assess-
after witnessing the ment and ongoing National Health
murders of her husband Service (NHS) care at the local
and her father. Distant family medicine clinic, emphasiz-
relatives, warning her that ing that the care is free regardless
her life was in danger, of patients’ immigration or fi-
brought her to London with nancial status. But as Ms. Z. left
an offer of employment. When the ED, she was arrested. She
Ms. Z. arrived, however, they con- spent a month in detention until
fiscated her passport and locked a lawyer specializing in human

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PERS PE C T IV E The Right and Left Hands of the State

trafficking arranged for her re- deserve care. The nurse’s action responsible for protecting the
lease. was a direct response to recent health service from abuse by mi-
It was later revealed that Ms. Z. training she’d attended about a grants who were said to be at-
had been arrested because Nurse new NHS Visitor and Migrant tracted to the United Kingdom
M. had called the police, believ- Cost Recovery Programme that because of its health and welfare
ing that undocumented immi- restricts free access to hospital system.
grants were “illegal” and did not care for migrants. Nurse M. felt

Case B: Baltimore
In Baltimore, D., a 3-year-old boy
born in the United States to un-
documented Mexican parents,
visited a pediatrician’s office for
follow-up on his significant
speech delay. His mother, Gloria,
told the pediatrician that Immi-
gration and Customs Enforce-
ment (ICE) agents had recently
come to their house, searched the
backyard, and pounded on the
doors. She had remained silently
hidden inside, and eventually the
agents had left. Assuming that
ICE was randomly targeting the
homes in the neighborhood be-
cause of the high concentration
of immigrant families, Gloria
moved her family to a predomi-
nantly non-Hispanic neighbor-
hood. Their new home, however,
was far from the pediatrician and
critical early-intervention ser-
vices for children with develop-
mental delays.
Recognizing the potential
ramifications of parental deporta- the United States. Another clini- citing concerns about the scope of
tion for D.’s well-being, the pedia- cian, however, reported the pedia- clinical practice for physicians. The
trician provided the family with trician to the hospital’s legal office legal staff questioned the signifi-
“know your rights” materials cov- for distributing this information to cance of the parents’ risk of depor-
ering the basic legal entitlements immigrant families. The legal of- tation to the child’s health and
for undocumented immigrants in fice admonished the pediatrician, well-being.

Social Analysis Concept: The Right and Left Hands of the State
Medical professionals serve a cates and death certificates, de- the work of municipal, state, and
number of “parastatal” functions, termine eligibility for disability national governments. The soci-
actions partly of and for the gov- benefits and paid sick leave, and ologist Pierre Bourdieu grouped
ernment: they sign birth certifi- fill other roles that intersect with these state functions into two

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PE R S PE C T IV E The Right and Left Hands of the State

ing as an agent of a therapeutic pects of professionalism and re-


form of governance (the left stricting access to care. On the
The right and the left hands of the hand) or a punitive form (the one hand, physicians routinely
state, a concept developed by the so- right hand)?1 support patients by, for example,
ciologist Pierre Bourdieu, represent In the United Kingdom, documenting disabilities and ad-
the punitive or policy forms of gover- health care has been a universal vising on rights to health care
nance, on the one hand, and the ther- public benefit since 1948. In con- and other benefits. On the other
apeutic or welfare modes of gover- trast, in the United States, access hand, the state can recruit clini-
nance, on the other. The clinic serves to health care is usually mediat- cians to police health care access
ed by market forces as employee by people perceived as undeserv-
many functions that mediate be-
benefits, with limited state enti- ing. With shifting governance
tween patients and local and national tlements. The specific exclusion priorities and expanding net-
governments, and it is vital for clini- of undocumented immigrants works of regulatory control,
cians to understand when they are from the Affordable Care Act health professionals may come
serving a therapeutic role and when (ACA) was rationalized with the to believe that it’s their duty to
they may be playing a punitive one. argument that people who have enact punitive immigration poli-
broken the law do not deserve cies. It was a clinician, not a se-
benefits. In 2016, the United curity agent, who called the po-
Kingdom also began restricting lice to detain Ms. Z.; and it was a
NHS care on the basis of mi- fellow clinician, not a lawyer,
main categories, which he called grant status. Responding to pop- who reported the pediatrician for
the “left hand” and the “right ular fears that universal health providing “know your rights” in-
hand” of the state (see box).1 In care served as a magnet for an formation to D.’s undocumented
nations like the United States influx of undeserving outsiders, parents.
and the United Kingdom, the left political leaders introduced poli- The presence of punitive gov-
hand of the state encompasses cies that prioritized disciplinary ernance in the clinical setting
therapeutic services such as edu- mechanisms to create a hostile complicates clinicians’ ability to
cation, health care, food support, environment for immigrants. fully advocate for the welfare of
public housing, and social assis- In the cases of D. and Ms. Z., their patients, especially when
tance that protect and expand the right and left hands of the health professionals become en-
life choices, providing relief to state were in tension: clinicians’ forcers of that power. When the
vulnerable people. The right hand efforts to use medical resources clinic serves as a site for police
of the state serves punitive func- to address the added health risks action instead of care and wel-
tions such as justice, police, cor- faced by undocumented migrants fare, access becomes contingent
rectional, and regulatory opera- conflicted with institutions’ ef- on citizenship, not personhood.
tions that control deviance and forts to comply with increasing Health professionals can find
enforce discipline. expectations of police presence themselves acting as agents of
Understanding these two and use of clinical spaces as sites the punitive state, turning pa-
“hands” can help clinicians recog- of detention and deportation. As tients into deportees. Health
nize and map the roles that health the cases demonstrate, state-de- professionals who resist this
care professionals play when we rived codes regarding citizenship role, such as the Baltimore pe-
mediate between patients and and legality impinge on health diatrician, may be subject to
state organizations: Are we act- care delivery by regulating as- sanction.

Clinical Implications

Faced with such unsought entan- patients and their own profes- tween the state and medical care. Cli-
glements, clinicians can take some sionalism and values. nicians serve key functions that
important steps to protect their 1. Recognize the relationship be- mediate between patients and the

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PERS PE C T IV E The Right and Left Hands of the State

state, in both supportive and pu- be best directed at seeking and cians to recognize the health
nitive roles. Awareness of how leading a collective, organiza- needs of vulnerable migrants,
these roles change over time helps tional reassessment of priorities such as children of undocument-
clinicians to be vigilant about — which can be effective in ad- ed-immigrant adults and survi-
moments when new responsibili- vocating for specific patient vors of trafficking, is the first
ties to the state conflict with cli- groups. For example, some clin- step.4
nicians’ fiduciary responsibilities ics and hospitals appropriately Also key is for health care or-
to their patients.2 train and support staff to work ganizations to support legal and
2. Prioritize the clinical mission. within ethical codes of care and advocacy training for primary
Clinicians have a fiduciary re- declare their services a sanctuary care practitioners and to offer
sponsibility to act in their pa- for patients. Some institutions patients referrals to and infor-
tients’ best interests. When they may take steps to limit the im- mation about local organizations
encounter clear threats to a pa- pact of surveillance policy, as is that provide trustworthy infor-
tient’s well-being, even if those increasingly done by health care mation. Clinicians can provide
threats appear to be outside the providers in Britain and Califor- medicolegal reports to support
scope of immediate and conven- nia, who register patients with- asylum applicants, in collabora-
tionally constructed medical care, out asking for identification or tion with immigration lawyers
clinicians can prioritize actions who use the health care facility’s and nongovernmental organiza-
that improve health by mitigat- address as patients’ mailing ad- tions.5
ing effects of harmful structures dress. Health care professionals
and policies. Such actions may 4. Integrate legal training and col- trained to think critically about
include offering direct guidance laboration into clinical practice. Being their relationship with shifting
regarding the right to care with- threatened with detention or de- governance priorities can more
in the clinical setting, even if portation affects people’s health.3 easily recognize when a given
there is organizational pressure Addressing these threats in the policy may be turning them into
to do otherwise. clinical encounter is therefore instruments of exclusion and
3. Engage in resistance through or- within a clinician’s scope of duty, punishment. This tension war-
ganizational advocacy. Clinicians as long as it’s clear to patients rants resistance from individual
and the organizations they work that the information they provide clinicians and professional groups
for are often subject to compet- to health care professionals will to maintain the integrity of the
ing priorities. In the face of such not be used in ways that can medical code of ethics.
conflicts, individual action may harm them. Educating physi-

Case Follow-up
When Ms. Z’s immigration law- The Baltimore pediatrician been omitted in the story of D., to protect
the family’s privacy.
yer reviewed her case, he advised challenged the sanction and pre- The editors of the Case Studies in Social
Ms. Z. to sue the hospital be- sented the case to the hospital Medicine are Scott D. Stonington, M.D.,
cause Nurse M. had breached her ethics committee, which ruled in Ph.D., Seth M. Holmes, Ph.D., M.D., Hele-
na Hansen, M.D., Ph.D., Jeremy A. Greene,
confidentiality by calling the po- favor of distributing “know your M.D., Ph.D., Keith A. Wailoo, Ph.D., Debra
An audio lice. Ms. Z. chose rights” materials in the clinic, Malina, Ph.D., Stephen Morrissey, Ph.D.,
interview with not to sue and sim- given the well-documented nega- Paul E. Farmer, M.D., Ph.D., and Michael
G. Marmot, M.B., B.S., Ph.D.
Dr. Berlin is ply sought an apol- tive effects of family separation Disclosure forms provided by the au-
available at NEJM.org ogy and assurance due to deportation on children’s thors are available at NEJM.org.
that hospital staff would be health and well-being.
From Barts and the London School of Medi-
trained so that “this would not The story of Ms. Z. is based on more cine and Dentistry, Queen Mary University
happen to others.” than one case; identifying details have of London, London (A.B.); the University of

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PE R S PE C T IV E The Right and Left Hands of the State

Michigan, Ann Arbor (V.K.-K.); and Johns The impact of local immigration enforce- 5. Scruggs E, Guetterman TC, Meyer AC,
Hopkins University, Baltimore (K.R.P., S.P.) ment policies on the health of immigrant VanArtsdalen J, Heisler M. “An absolutely
Hispanics/Latinos in the United States. Am J necessary piece”: a qualitative study of legal
1. Bourdieu P. The weight of the world:​so- Public Health 2015;​105:​329-37. perspectives on medical affidavits in the
cial suffering in contemporary society. Cam- 4. Berlin A. Migrants and healthcare:​edu- asylum process. J Forensic Leg Med 2016;​44:​
bridge, United Kingdom:​Polity Press, 1999. cating tomorrow’s doctors for a global chal- 72-8.
2. Locked up, locked out: health and hu- lenge. Presented at University College Lon-
man rights in immigration detention. Lon- don, December 20, 2016. London:​University DOI: 10.1056/NEJMp1811607
don:​British Medical Association, 2017. College London, 2016 (https://www​.youtube​ Copyright © 2019 Massachusetts Medical Society.
The Right and Left Hands of the State

3. Rhodes SD, Mann L, Simán FM, et al. .com/​watch?v=jQfAmc​-­diPw).

Sodium-Intake Reduction and the Food Industry

Sodium-Intake Reduction and the Food Industry


Jane E. Henney, M.D., James A. O’Hara III, M.A., and Christine L. Taylor, Ph.D.​​

A  recent report from the Na-


tional Academies of Scienc-
es, Engineering, and Medicine
duce population-level sodium in-
take date back more than 40
years. Ten years ago, the obvious
the safety, quality, and taste
functions of sodium in various
foods and consumers’ need to
(NASEM) on dietary sodium in- failure of these initiatives led adapt to lower sodium levels. The
take adds overwhelming weight federal health agencies to com- report sought to create an even
to the already strong imperative mission a report from the Insti- playing field for food manufac-
to reduce the amount of sodium tute of Medicine (IOM, now the turers and restaurants by recom-
in the U.S. food supply.1 Some National Academy of Medicine) mending that the Food and Drug
food companies had used the on- on strategies for reducing sodi- Administration (FDA) begin a
going work on this report as a um intake in the United States.2 process of setting mandatory so-
reason to slow sodium-reduction The IOM’s 2010 report (on which dium standards. It encouraged
efforts, citing the possibility of two of us collaborated) conclud- the FDA to partner with the food
substantial changes to existing ed that U.S. consumers couldn’t industry because of the agency’s
conclusions about sodium and meaningfully reduce their sodi- expertise and its regulatory au-
health. The report, however, con- um intake by means of food se- thority over substances added to
firms that sodium intake among lection and modification of salt food. The report recommended
adults should be reduced from use in the home, since only about an approach based initially on
an average of 3400 mg per day to 5% of sodium intake comes from dialogue, research, voluntary so-
2300 mg per day and links ex- salt added at the table or during dium reductions, and frequent
cess sodium intake to cardiovas- home cooking and nearly 80% evaluation and monitoring, to be
cular disease, hypertension, and comes from sources over which followed by regulatory limits on
stroke — chronic conditions that consumers have little control, in- sodium in processed and restau-
have staggering direct and indi- cluding processed and restaurant rant food when necessary to en-
rect costs in the United States. foods with added sodium (the sure safety.
The report gives due consider- other 15% comes from foods Under the FDA’s food-additive
ation to the evidence presented that naturally contain sodium).2 law, there are typically two ways
in arguments against reducing The IOM therefore recom- substances can be safely and
sodium intake and concludes mended comprehensive but grad- lawfully added to food. A sub-
that there is no harm associated ual reductions in sodium through- stance can be approved by the
with such dietary changes. out the food supply. Such FDA under a safety standard that
Public health initiatives to re- reductions were to account for requires scientific evidence es-

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