Professional Documents
Culture Documents
People
First
w w w . n c - d d c . o r g
Did
you know...
there’s a good chance
that you or someone
you know has or will
have a disability?
2
People with Disabilities
Did you know there’s a good chance that you or someone you know has or
will have a disability?
7
“Before Prom”
For Josh the big day had come. He felt it that morning as he opened his eyes. He knew that today was the ideal
day to ask Natalie to the prom. They’d only spoken on occasion, but it was enough for Josh to know that she was
the one he wanted to ask. As he got ready for school, he took extra care to make sure he looked his best. During
morning classes, he was distracted by daydreams. He would go up to her after lunch and ask if she would go with
him to the prom. Once she said yes, he would whisk her away in his wheelchair as they fell in love.
looks (noun):
physical
appearance
“Nikkei, what do you think of the scene with comments to their companions. Kim, another
the glass?” student in Nikkie’s English class, came up to
“Um… Sorry, where are we?” Nikkei after watching the mockings of other
“Near the end of the story, when he’s playing peers and asked, “Nikkei, are you ok? Those
the piano and the light hits the glass.” guys were being so rude.”
“I’m not sure where…” “Yeah, I’m O.K. it’s just that it’s so annoying.
“Page 157.” They just don’t get it. I want to
“Um, I think… I think it was shiny,” Nikkei concentrate but I just can’t, and then I look
said as the rest of her classmates gave a like an idiot.”
muffled snicker. “No you don’t. Forget about them, they don’t
“Uh, yes. Thank you, Nikkei. Anyone else?” know what they’re talking about. They just
don’t understand. It might take them a
After class, as the students passed Nikkei in the while, but they’ll learn.”
hall, some of them stared at her and whispered
in·vis·i·ble (adjective):
incapable of being seen
12
FALSE: You can always tell when a person has FALSE: Some people with
a disability. disabilities should live in institutions.
19
“No Loose Change”
Luke walked down the hall toward the cafeteria to get his usual, a
Reuben sandwich with extra sauerkraut and a bag of peanut
M&Ms. When he got there, only a few people were ahead of him
in the hot lunch line and he could feel his stomach growl. While
he waited, he stared at the beverage list, trying to sound out the
words as the line grew behind him. When it came time for Luke
to order, he still hadn’t chosen a drink. The others in line were
starting to get annoyed.
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Famous Faces (continued)
As a self-advocate for his entire life, Bob Williams syndrome. Recognized as the “Father of the
has held many offices from policy associate with Americans with Disabilities Act,” he led the
the United Cerebral Palsy Association to disability rights movement for over three decades
commissioner for the Administration on and was presented with the Medal of Freedom by
Developmental Disabilities. In addition, he is a President Clinton.
well-known writer and poet. Because of his
cerebral palsy, Williams uses a computer with The famous mathematician and scientist Sir Isaac
voice output to communicate. Newton is perhaps best known for developing the
law of gravity and the study of calculus. He also
Chester Finn is another leader in the self- had frequent epileptic seizures.
advocacy movement. His visual and intellectual
disabilities do not prevent him from seeing his Actor and comedian Robin Williams has
work and the surrounding world clearly. He is a Attention Deficit Disorder (ADD).
determined self-advocate and is the current
chairperson for Self-Advocates Becoming Franklin D. Roosevelt, the 32nd president of the
Empowered, a national advocacy group. United States, had polio and used a wheelchair
while in office.
Justin Dart was an internationally known
disability rights activist who had post-polio
Chris Burke who stared in network TV’s “Life Goes
strength (noun): On” and “Touched by an Angel” has Down syndrome.
the quality or state of Geri Jewell who played on “Facts of Life” and now
plays “Jewel” on HBO’s “Deadwood” has cerebral palsy.
being strong
While the achievements of these people with disabilities
have gained national and international recognition,
there are people with disabilities in your own
community who are also leading the lives they want.
Their strengths, like yours, make your community a
better place in which to live.
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People First
When you think of some of the famous people with disabilities
mentioned in the last section, do you talk about them in terms of their
disabilities or in terms of their strengths and accomplishments?
Unfortunately, too often people with disabilities are labeled or identified
by their disability rather than their other attributes.
Remember, the person is not the disability. While someone may have a
disability, that’s not who the person is; it’s just a part of the whole
person. People, with or without a disability, have many parts to who
they are:, funny, smart, fast, have beautiful hair, love games and have a
great laugh. There are so many other ways to describe who people are.
When you talk about a friend without disabilities, do you describe him
as, “That’s Joe and he doesn’t have a disability”? Probably not.
People with disabilities want to be seen for their gifts, abilities, likes and
dislikes – just like everybody else.
Sometimes the way people When you use people first
first (adjective): think about those with language, you are emphasizing
preceding all others disabilities is based on how
they hear other people talk.
the person and not the
disability. If you were using
in time, order or people first language, then
For example, have you ever instead of talking about “the
importance heard someone tease or say disabled” or “the
something mean about a handicapped,” you would say,
person with a disability? Or “people with disabilities.” You
have you heard someone being would not say, “Mary is
called a name, like “retard” or epileptic,” because that is not
“spaz?” This kind of language who Mary is. You would say,
can hurt people’s feelings, “Mary has epilepsy (or seizure
whether they have a disability disorder).”
or not.
When you need to talk about a
How should you treat your person’s disability, there are
Remember, the person friends with disabilities? Just right and wrong ways of doing
is not the disability. like you treat your other it. In the following chart, you
friends. Using people first will find some of the right,
language is one way to do that people first, ways of talking
when you need to talk about a about disabilities and some of
person’s disability. the wrong ways.
27
RIGHT: People first language WRONG
The handicapped, special needs, challenged,
People or individuals with disabilities
afflicted with a disability, suffers from a disability
The girl in the wheelchair, wheelchair-bound,
Bridget, who uses a wheelchair
confined to a wheelchair
A woman with paraplegia, a man that has
A paraplegic, a quadriplegic, crip, crippled
quadriplegia
A class for children with disabilities A handicapped class
Person without a disability A normal person
The mentally ill, the emotionally disturbed,
Person with mental illness
insane, crazy, demented, psycho, lunatic
Accessible bus/parking spot Handicapped bus/parking spot
People with intellectual disabilities; people with
Retarded people, mentally retarded
cognitive disabilities
A person who has Down syndrome or a person
Downs kid, Mongoloid
with Down syndrome
She is a little person, or she is of short stature She’s a dwarf/midget
He has a brain injury He is brain damaged
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There are, however, a few exceptions. Some
right (adjective): people with disabilities choose not to use
being in accordance people first language. For example, some
people with hearing impairments refer to
with what is just, themselves as Deaf with a capital “D”
because they consider themselves a minority
good or proper with their own culture and language, called
American Sign Language. The best thing to
do is to ask what words the person prefers to
use. It’s a great conversation starter!
ca·pa·ble (adjective):
having attributes required
for accomplishement
Learn More: National
• American Association of People with
Important Federal Laws Disabilities (AAPD) www.aapd-dc.org
• Self-Advocates Becoming Empowered (SABE)
Visit http://thomas.loc.gov/ for more www.sabeusa.org
information about the laws listed below. • National Association of Councils on
• Americans with Disabilities Act (ADA) PL 101-336 Developmental Disabilities (NACDD)
• Developmental Disabilities Bill of Rights and www.nacdd.org
Assistance Act PL 106-402 • American Disabled for Attendant Programs
• Fair Housing Act PL 100-430 Today (ADAPT) www.adapt.org
• Air Carriers Access Act PL 99-435
• Individuals with Disabilities Education Act North Carolina
(IDEA) PL 101-476 • North Carolina Disability Action Network
• Rehabilitation Act PL 93-112 (NCDAN) www.ncdan.com
• Assistive Technology Act of 1998 PL 105-394 • North Carolina Council on Developmental
• Architectural Barriers Act PL 90-480 Disabilities (NCCDD) www.nc-ddc.org
• Governor’s Advocacy Council for Persons
Advocacy Organizations on the Web with Disabilities (GACPD) www.gacpd.com
There are many local, state and national groups for
people with disabilities and their families. The ones For more information about terminology, laws and service
listed here can help you find a group that matches providers, call 1.800.357.6916 for your free copy of People
your interests. First: Guide to Understanding Developmental Disabilities.
33
Notes
34
Notes
35
Nort h Caroli n a C o unci l on If you liked this guide, have suggestions or need more
copies in English or Spanish drop us a line.
De ve lopme n t a l Dis abi li t ie s
3801 Lake Boone Trail, Suite 250 -The People First Crew at the NCCDD.
Raleigh, NC 27607
This document was prepared and printed by the North
(919) 420-7901 TTY/voice Carolina Council on Developmental Disabilities through
the Developmental Disabilities Act of 1990, Public Law
Toll Free (800) 357-6916 TTY/voice
101-496. Ten thousand copies of this public document
Fax (919) 420-7917 were printed at a cost of $.xx per copy.
Web www.nc-ddc.org
Robert J. Rickelman, Ph.D., Chair This publication was prepared for the NCCDD
by Woodward Communications.
Holly Riddle, J.D., M.Ed., Executive Director www.woodwardcommunications.com