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TOWARD A BROADER BIOETHICS AGENDA
by NORMAN DANIELS
Bioethics’ traditional focus on clinical relationships and exotic technologies has led the field away
from population health, health disparities, and issues of justice. The result: a myopic view that misses the
institutional context in which clinical relationships operate and can overlook factors that affect health more
broadly than do exotic technologies. A broader bioethics agenda would take up unresolved questions about
the distribution of health and the development of fair policies that affect health distribution.
I
n its early decades, bioethics concentrated on Promethean challenges are the favorites of the media:
problems arising in two important areas: the how god-like can we become in our relations with
dyadic, very special relationships that hold be- people, with animals, and with our environment
tween doctors and patients and between researchers without losing our moral footing? They attract seri-
and subjects, and Promethean challenges—the pow- ous inquiries about how to use knowledge and tech-
ers and responsibilities that come with new knowl- nology responsibly for the individual and collective
edge and technologies in medicine and the life sci- good. Unfortunately, they also form the frontline
ences, including those that bear on extending and trenches for the contemporary culture wars.
terminating life. The dyadic relationships yield im- Bioethics’ focus on the largely noninstitutional
portant goods, impose significant risks, are rife with examination of these dyadic relations and the emer-
inequalities in power and authority, and yet are gence of exotic technologies means other important
bound by complex rights and obligations. They pro- issues concerning population health and its equitable
vide a rich field for ethics to explore. The distribution are not addressed (although there are ex-
ceptions to this generalization). The doctor-patient
relationship and the researcher-subject relationship
Norman Daniels, “Equity and Population Health: Toward a Broader do have a bearing on population health since medi-
Bioethics Agenda,” Hastings Center Report 36, no. 4 (2006): 22-35. cine and medical research affect the health of indi-
24 H A S T I N G S C E N T E R R E P O R T July-August 2006
Turn from class, for the moment, that is, fair terms of social cooperation the levels of health of all parts of the
to race. American data reveals a signif- developed in abstraction from think- population even as they may increase
icant but complex independent effect ing about health—is good for our ag- health inequalities.15 For example,
of race—or racism—on health. gregate health and leads to a more eq- black infant morality rates were 64
African Americans have worse health uitable distribution of it. percent higher than white rates in
than whites at every income and edu- This conclusion is portrayed in the 1954 but were 130 percent higher in
cational level. Institutional and overt following argument: 1998, even though white rates
racism must be included as further so- 1. Completely maximizing popu- dropped by 20.8 per thousand and
cial determinants of health. For exam- lation health requires making all peo- black rates dropped by 30.1 per thou-
ple, the increasing de facto residential ple healthy. Making all people healthy sand. David Mechanic concludes
segregation that we see in America also achieves complete equity in from this and other cases that we may
contributes significantly to these in- health. (This is a conceptual point.) reasonably accept increasing health
equalities. The complex pattern by 2. There is no social justice with- inequalities caused by policies that
race and ethnicity of key behavioral out equity in health. (This is a widely improve population health, as long as
risk factors (diet, tobacco, alcohol, held normative belief.) the health of all groups is being im-
substance use and abuse, violence) 3. There can be no equity in health proved.
contributes to, but does not account without social justice. (This is an em- Suppose, however, that we have
for, race and ethnic inequalities in pirical and causal claim that depends two interventions (whatever sector,
health. In addition, medical treat-
ment patterns differ by race—a result,
perhaps, of conscious and uncon- Bioethics has barely risen to the challenge of solving distributive
scious stereotyping. A society that has
a legacy of caste structure and exclu- problems when the baselines are morally neutral. It must now also
sion creates psychosocial stresses in
many institutional settings (schools, address the added challenge posed by inequitable baselines.
the workplace, shopping malls) that
are implicated in health inequalities. on what we know about the social de- whatever novel technology) that both
Similar issues affect many immigrant terminants of health, combined with raise the health of all groups. If inter-
ethnic minorities in European coun- the hypothesis that distributing them vention A does less than B for those
tries. in accord with Rawlsian principles of who are worse off but much more for
Racial inequalities seem to be the justice flattens health inequalities.13) those much better off, then both in-
easy case. What about the inequalities 4. Therefore, achieving the best terventions satisfy Mechanic’s criteri-
we began with—those induced by so- level of population health by making on. Yet we may have strong views
cioeconomic status? We live in soci- all people healthy requires (causally) about whether to pursue A or B, de-
eties that tolerate and even encourage that we pursue social justice more pending on further facts about the
some significant degree of inequali- broadly.14 magnitude of the effects or other facts
ty—as incentives, as justifiable desert, If social justice is important to about the sizes of the groups and thus
as an expression of diversity. Should population health and its fair distrib- the total impact of the programs. If
we count as unfair or unjust health ution, then the policies aimed at equi- society is responsible for causing the
inequalities that result from other so- ty in health must be intersectoral in initial inequality through unfair poli-
cial inequalities that we think accept- scope. All socially controllable factors cies, it may have special obligations to
able or justifiable? that affect the distribution of health give more weight to equity than max-
In earlier work, I argued that become the concern of those pursu- imization and to consider the speed at
Rawls’s principles of justice as fairness ing equity in health. In a striking way, which it rectifies the effects of past in-
quite unexpectedly capture what the this perspective challenges one ver- justice.
social epidemiological literature picks sion of the view that we should treat The complexity of inequality itself.
out as the key social determinants of health as a separate “sphere”—focus- Policy choices about reducing health
health—ranging from effective politi- ing on health benefits without think- disparities are especially complex be-
cal participation rights to education ing about the contributions that cause they are at the interface of
and early childhood training to signif- health makes across spheres. claims about injustice and standard
icant restrictions on income and We live in a nonideal world that distributive problems about which
wealth inequalities to supports for the does not comply with Rawlsian prin- reasonable people disagree. Unfortu-
social basis of self-esteem.12 Conform- ciples of justice. We face important nately, another source of complexity
ing with them would flatten socioeco- questions left unanswered by ideal derives from what Larry Temkin has
nomic gradients of health more than theory. Many health-improving inter- identified as the complexity of in-
any we see around us. Social justice— ventions we may undertake increase equality itself.16
32 H A S T I N G S C E N T E R R E P O R T July-August 2006
modifying them appropriately, would even those of equal concern; in any providing funds that might alleviate
greatly enhance the benefits to those case, they go beyond humanitarian some of the push factors underlying
who are largely excluded from benefit considerations. In addition to Pogge’s the brain drain. In seeking these, it
for a significant period of time, and it “no harm” or minimalist approach, might work together with the Inter-
would do so at only modest cost to we thus have available obligations of national Labour Organization, with
those profiting from the endeavor. inclusion requiring us to consider the the World Trade Organization, with
Minimally, it illustrates what a more interests of all those in the interde- WHO, and with the United Nations.
inclusive policy should include; one pendent relationship. These obliga- Such a cooperative endeavor would
can build into it even stronger egali- tions can be translated into various reflect the common interest in all
tarian considerations, if the coopera- policy options that address the brain countries in having adequate health
tive scheme gives rise to concerns drain: it may be necessary to restrict personnel—and thus being able to as-
about equality and not simply inclu- the terms of employment in receiving sure citizens a right to health and
sion. Exactly what form the policy countries of health workers from vul- health care—as well as the common
would take, and the justification for it nerable countries; it may be necessary interest in protecting human rights to
(deriving from the form of coopera- to seek compensation for lost training dignified migration.
tive scheme involved), remain tasks costs of these workers; it may be im- The fuller development of a plau-
for further work. With these issues portant to give aid to contributing sible account of justice in these inter-
worked out, we might then support countries aimed at reducing the push mediary institutions is a task for the
Pogge’s incentive schemes as a way of
moving some countries closer to satis-
faction of a right to health, connect- In order to broaden its agenda to meet these challenges, the field of
ing the effort to human rights goals as
he does. bioethics would have to expand its focus beyond ethics and the
Consider again the example of the
brain drain of health personnel from clinical practice of medicine to the far less familiar terrain of
low and middle income countries to
wealthier ones. Nagel notes that na- political philosophy and the social sciences.
tions generally have “immunity from
the need to justify to outsiders the factors; it may be necessary to prohib- expanded bioethics agenda I have
limits on access to its territory,”56 al- it active recruitment from vulnerable been charting. Bioethicists must:
though this immunity is not absolute, countries.
10) assess the implications of the
since the human rights of asylum We might combine this interde-
obligation not to harm for reduc-
seekers act as a constraint. Still, the pendence with the relationships and
ing health inequalities interna-
decisions different countries make obligations that arise from coopera-
tionally;
about training health personnel and tive schemes. The International Orga-
about access to their territories have nization for Migration, established in
11) develop an account of justice
great mutual impact on them. There 1951 to help resettle displaced per-
for the evolving international in-
is an important interdependency af- sons from World War II, now has 112
stitutions and rule-making bod-
fecting their wellbeing—specifically, member states and twenty-three ob-
ies that have an impact on inter-
the health of the populations con- server states. It “manages” various as-
national health inequalities; and
tributing and receiving health person- pects of migration, providing infor-
nel. The British decision in 2000 to mation and technical advice, and ar-
12) examine Promethean chal-
recruit thirty thousand new nurses guably goes beyond its initial human-
lenges from the perspective of
from developing countries rather than itarian mission. Suppose it took on
their impact on international
try to train more greatly affected the the task of developing a policy that
health inequalities and obliga-
fate of people being served by health helped to coordinate or manage the
tions of justice regarding them.
systems in southern Africa. The un- frightening health personnel brain
derfunding of salaries for African drain. Minimally, it might seek inter-
nurses and doctors—in part a legacy nationally acceptable standards for Preparing the Field
of Structural Reform Programs im- managing the flow—standards for re-
posed by the IMF and World Bank
but clearly continued by local govern-
ments—helps create the “push” factor
cruitment, compensation, and terms
of work. More ambitiously, it might
seek actual treaties that balanced
T he broader bioethics agenda I
have described poses two distinct
and significant challenges to the field.
driving these workers abroad. Ar- rights to migrate with costs to the The first challenge is one of training.
guably, this interdependence brings contributing countries, countering at Many of the problems take us outside
into play obligations of inclusion, least some of the pull factors and even the more familiar domain of ethics
34 H A S T I N G S C E N T E R R E P O R T July-August 2006
duced by other inequalities and intervene to Criteria?” New England Journal of Medicine and Reforms (Cambridge, U.K.: Blackwell
reduce them without having to reduce oth- 350 (2004): 2199-2203. Publishers, 2002); T.W. Pogge, “Human
erwise justifiable inequalities. On another 30. N. Daniels, Am I My Parents’ Keeper? Rights and Global Health: A Research Pro-
reading, Rawls’s theory may not specifically An Essay on Justice between the Young and the gram,” Metaphilosophy 36, nos. 1-2 (2005):
answer this question about residual health Old (New York: Oxford University Press, 182-209.
inequalities. See Daniels, Kennedy, 1988). 44. J. Cohen and C. Sabel, “Extra Rem-
Kawachi, “Why Justice Is Good for Your 31. Ibid. publicam Nulla Justitia,” Philosophy & Pub-
Health.” lic Affairs 34, no. 2 (2006): 147-75.
32. A. Williams, “Intergenerational Equi-
15. D. Mechanic, “Disadvantage, In- ty: An Exploration of the Fair Innings Argu- 45. T. Pogge, “Severe Poverty as a Viola-
equality, and Social Policy,” Health Affairs ment,” Health Economics 6 (1997): 117-32. tion of Negative Duties,” Ethics and Interna-
21, no. 2 (2002): 48-59. tional Affairs 19, no. 1 (2005): 55-83.
33. F. Kamm, Morality, Mortality.
16. L. Temkin, Inequality (New York: 46. World Health Organization, Interna-
Oxford University Press, 1993). 34. K. Shepsle and E. Dickson, “Working
and Shirking: Equilibrium in Public Goods tional Migration, Health, and Human Rights
17. N. Daniels and J.E. Sabin, Setting Games with Overlapping Generations of (Geneva, Switzerland: World Health Orga-
Limits Fairly: Can We Learn to Share Medical Players,” Journal of Law, Economics, and Or- nization, 2003), 13.
Resources? (New York: Oxford University ganization 17 (2001): 285-318. 47. S. Alkire and L. Chen Alkire, “‘Med-
Press, 2002). ical Exceptionalism’ in International Migra-
35. Privatization strategies do not solve
18. N. Daniels, “Fair Process in Patient the problem; they just represent one conclu- tion: Should Doctors and Nurses Be Treated
Selection for Antiretroviral Treatment for sion about what such equity requires, and Differently?” JLI Working Paper 7-3
HIV/AIDS in WHO’s 3 by 5 program,” they do so without allowing us to use a (2004): 1-10.
The Lancet 366 (2005): 169-71. scheme that addresses the age group prob- 48. L. Chen and P. Hanvoravonchai,
19. W. Miller, L.S. Robinson, and R.S. lem at the same time. In addition, privatiza- “HIV/AIDS and Human Resources,” Bul-
Lawrence, eds., Valuing Health for Regulato- tion is not even a starter for lifespan health letin of the World Health Organization 83
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by the Institute of Medicine (Washington, 36. The UN Commission on Human 49. B. Liese, N. Blanchet, and G. Dus-
D.C.: National Academies Press, 2006). Rights “urges States to take steps, individu- sault, “The Human Resource Crisis in
20.L.J. Kotlikoff and S. Burns, The Com- ally and through international assistance Health Services in Sub-Saharan Africa,”
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MIT Press, 2004); P. Peterson, Gray Dawn: technical, to the maximum of their available Development Report 2004, Making Services
How The Coming Age Wave Will Transform resources, with a view to achieving progres- Work for Poor People (Washington, D.C.:
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23. Center for Strategic and Internation- cam Nulla Justita.”
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24. R. Jackson and N. Howe, Global
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