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NDTA 2014

CONFERENCE THE NEURO-DEVELOPMENTAL TREATMENT ASSOCIATION • JANUARY/FEBRUARY 2014 • VOLUME 21, ISSUE 1
see pages 16-19

DEVELOPING THE PLAN OF CARE

CLINICIAN’S CORNER

How the NDT Developing a Plan of Care


Certificate One Step at a Time
Course Changed By Abby Leibrand, PT, DPT and Jennifer Tenney, MS, CCC-SLP

My Professional
Life Within a M any times, caregivers of children with
therapeutic needs feel overwhelmed by
the complexity of their child's impairments.
approach that emphasizes caregiver partici-
pation as an essential component of the
treatment plan. Upon initial evaluation, the
Few Days They often enter treatment with the idea that therapist talks with the caregivers about their
their child’s diagnosis will require a lifetime specific therapy goals and their expectations.
By Kaushal Bhatt, MPT, C/NDT of therapy. When children with medically- After completing a hands-on assessment of
based therapeutic needs arrive at one of the patient, the therapist facilitates a conver-
I work with a child named Kabir, a three- Weisman Children's Rehabilitation outpatient sation with the caregivers that aims to merge
year-old diagnosed with Williams centers, Episodic Care is the model of choice the patient’s functional goals as seen by the
syndrome. Williams syndrome is a devel-
opmental disorder that affects many parts
of the body. This condition is charac-
Episodic Care focuses on a partnership between
terized by mild to moderate intellectual a family and a therapist to achieve a functional goal
disability or learning problems, unique
personality characteristics, distinctive during an established time period.
facial features, and heart and blood vessel
(cardiovascular) problems. we use to structure a patient’s plan of care. therapist with the caregivers’ long-term expec-
People with Williams syndrome typically Episodic Care focuses on a partnership tations for the patient. Based on this conver-
have difficulty with visual-spatial tasks such between a family and a therapist to achieve a sation, specific and measureable goals with a
as drawing and assembling puzzles, but functional goal during an established time projected date of achievement are established.
they tend to do well on tasks that involve period. This model aids the caregivers in Every episodic care plan requires a set
spoken language, music, and learning by breaking down their child's functional limi- duration and frequency. Some children benefit
repetition (rote memorization). Affected tation(s) into several components to make a from a short period of regular weekly therapy.
individuals have outgoing, engaging specific and measurable goal targeting each Other children benefit from periodic therapy
personalities and tend to take an extreme component one step at a time. with a stronger emphasis on a home exercise
interest in other people. Attention deficit program. The frequency at which the patient
disorder (ADD), problems with anxiety, The episode of Care Model will receive services is based on the amount
(continued on page 15) The Episodic Care model is a patient-centered of skill-based thera- (continued on page 7)

I N S I D E T H E N E T W O R K :
3 President’s Message | 5 NDTA Membership Spotlight | 6 NDTA Seminars
9 Benefits of a Team Approach | 12 NDT in Action | 16 NDTA 2014 Conference Program | 20 Member Research
L E A D E R S H I P D I R E C T O R Y

NDTA BOARD OF DIRECTORS I NS TRUC TOR S GRO U P


PRESIDENT / IG REP / NATIONAL CONFER- IG REP / THEORY IG EXECUTIVE COMMITTEE
CENTERS OF EXCELLENCE ENCE PLANNING / Barbara H. Hodge, PT, C/NDT Chair: Lauren Miller Beeler, PT, DPT, PCS, C/NDT
Jennifer Inglett, DPT, PCS, PUBLICATIONS Needham, MA Chair Elect: Gay-Lloyd Pinder, PhD, CCC-SLP, C/NDT
C/NDT Jacqueline Grimenstein, PT, C/NDT (781) 449-8892 Vice Chair: Pam Ward, PT, DPT, C/NDT
Oakland, NJ Audubon, NJ Secretary/Treasurer:
bhdennett@gmail.com
(973) 801-0314 Phone (856) 547-0078 Phone Therese McDermott, MHS, CCC-SLP, C/NDT
ok_kyung@hotmail.com jgrimenstein@ President: Jennifer Inglett, DPT, PCS, C/NDT
IG CHAIR ELECT /
weismanchildrens.com IG Liaison to BOD: Barbara H. Hodge, PT, C/NDT
CURRICULUM
PRESIDENT ELECT / IG Liaison to BOD: Jacqueline Grimenstein, PT, C/NDT
Gay-Lloyd Pinder, PhD,
NOMINATIONS MEMBER AT LARGE / Adult Hemi Chair: Kris Gellert, OT, OTR/L, C/NDT
CCC-SLP, C/NDT Pediatric Chair: Ann E. Heavey, MS, CCC-SLP, C/NDT
Teresa Gutierrez, PT, MS, PCS, MEMBERSHIP
Renee Cortise, PT, PCS, C/NDT (253) 854-5660
MSPT, C/NDT IG STANDING COMMITTEES
San Jose, CA glpin@mac.com
Lakewood, WA Grievance Committee Chair:
(253) 582-5776 (408) 646-0286 Phone Timmie Wallace, PT, C/NDT
anisa@msn.com rcortise@yahoo.com MEMBER AT LARGE / Peer Review/Quality Assurance
EDUCATION Committee Chair: Karen Brunton, PT, C/NDT
SECRETARY / TREASURER / MEMBER AT LARGE / Sara Kerrick, MPT, C/NDT Theory Committee Chair: Judi Bierman, PT, DPT,
FINANCE CERTIFICATION C/NDT
Puyallup, WA
Cheryl Peters, PT, MPT, C/NDT Astrid Gonzalez-Parrilla, OTR/L, Curriculum Design Chair: Linda Kliebhan, PT, C/NDT
(253) 697-5200
San Diego, CA C/NDT Course Review Committee: (Co Chairs)
sara.kerrick@multicare.org
(619) 992-6961 Phone Fort Myers, FL Beth M. Tarduno, MS. Ed., OTR/L, C/NDT and
cheriepeters2011@hotmail.com (239) 343-3675 Phone Wendy L. Kline, OTR/L, C/NDT
MEMBER AT LARGE /
astrid.gonzalez-parrilla@
IG Chair leememorial.org RESEARCH
Lauren Miller Beeler, PT, DPT, Sue Ann Muenks, OT, C/NDT
PCS, C/NDT Houston, TX
NDTA OFFICE
Cypress, CA (832) 309-6289 Phone 1540 S. Coast Hwy, Ste. 203
(714) 893-7399 Phone smuenks@caregrp.com Laguna Beach, CA 92651
sctdir@cox.net 800/869-9295 • 949/376-3456 Fax
info@ndta.org • www.ndta.org

N D T A C O M M I T T E E C H A I R P E R S O N S

CENTERS OF EXCELLENCE CURRICULUM NATIONAL CONFERENCE


Tori Rosenthal, DPT, C/NDT Linda A Kliebhan, PT, C/NDT PLANNING
torirosenthal@yahoo.com lindakliebhan@yahoo.com Kimberly Westhoff, OTR/L, C/NDT
dkwest4@gmail.com
CERTIFICATION THEORY
Carmen Pagan, SLP, CCC-SLP, C/NDT Judith (Judi) C. Bierman, PT, DPT, C/NDT EDUCATION
Carmen@milestonestx.com ndtprograms@gmail.com Sara Kerrick, MPT, C/NDT
sara.kerrick@multicare.org
RESEARCH INSTRUCTOR GROUP EXECUTIVE
Janet Powell, OTR/L, PhD, C/NDT COMMITTEE PUBLICATIONS
jmpowell@u.washington.edu Lauren Miller Beeler, PT, DPT, PCS, C/NDT Marcia Stamer, PT, MH, C/NDT
sctdir@cox.net paul-stamer@att.net
MEMBERSHIP
Julie Ricklefs-Haggerty, DPT, PCS, C/NDT FINANCE
juliehaggerty@aol.com Cheryl Peters, PT, MPT, C/NDT
cheriepeters2011@hotmail.com

Views expressed in the NDTA Network are those of the authors and are not attributed to the NDTA, the Chair of Publications or the Editor, unless ex-
pressly stated. The NDTA does not endorse any non-NDTA instructors, courses, educational opportunities, employment classifieds, products or
services mentioned in the NDTA Network. Copyright © 2014 by the Neuro-Developmental Treatment Association. Materials may not be reproduced
without written permission from the Editor.

NDTA NETWORK • JANUARY/FEBRUARY 2014 • DEVELOPING THE PLAN OF CARE • 2


ABOUT THE
M E S S A G E F R O M T H E P R E S I D E N T
NDTA™ NETWORK
A subscription to the Network, which is published
six times annually to more than 2600 members, is
included in every NDTA membership. Copies of
archived articles/editions dating back to 1998 are
available online. Developing the Plan of Care
EDITORIAL INFORMATION
We invite members and non-members to submit ar-

In
ticles, ideas and comments to the editor. Editorial
all honesty, my private practice of pedi- The function of a
assistance and guidelines are available for writers.
Marcia Stamer is the NDTA Publications Committee atric physical therapy often includes a plan of care is closely
Chair and Network Editor. Contact Marcia via email
plan of care that is a quickly written statement associated with NDT
at paul-stamer@att.net.
of frequency and duration on a quite lengthy practice. It is a require-
ADVERTISING INFORMATION
report. Each child’s initial report is about 8- ment for therapists to
To reach health care professionals who practices
using NDT, advertise your products, services, em- 10 pages in length with a large portion dedi- deliver intervention
ployment classifieds, educational opportunities
cated to examination and data collection, eval- appropriately and is a means to communicate
and NDTA-approved courses in the Network. All
ads are placed on a first-come, first-served basis. uation and analysis, noting functional the necessity of services. It is also a critical
Payment is required prior to insertion. assessment and clinical analysis, listing of goals element of the NDT Practice Model for
DISPLAY AD RATES and objectives, and descriptive intervention. guiding both the therapists and the client
Advertise your products and services in multiple
My plan of care takes not more than a few and family towards meaningful outcomes.
themed issues to maximize your investment.
For more information or to place your ad, contact sentences and is typically dictated by variables
the NDTA Office at (800) 869-9295, ext. 314, or including the family’s schedule availability,
email advertise@ndta.org.
resources for payment (third party payers or
Space Per issue 4 or more issues
Full page . . . . . . $800 . . . . . . $600 per issue self-pay capability), and timeframe for
Half page . . . . . . $500 . . . . . . $400 per issue projected outcomes. I realize that this varies
Quarter page . . $350 . . . . . . $250 per issue
from each individual’s practice setting and Jennifer Inglett, PT, DPT, PCS, C/NDT
EMPLOYMENT CLASSIFIEDS experience level, but perhaps you also feel the President, NDTA
Have an open position? Find your next employee
here. NDTA members can place employment clas- same about a briefly written plan of care.
sified ads for $100 for the first 50 words, plus $1 In rev iew ing Neuro-De velopmental resourCes
for each additional word. Non-members may place
classifieds for $150 for the first 50 words, plus $1
Treatment Approach: Theoretical Foundations 1. Howle JM. Neuro-Developmental Treatment
for each additional word. Placement is for one issue and Principles of Clinical Practice, I am Approach: Theoretical Foundations and Prin-
of the Network and 60 days on the NDTA website.
reminded that the plan of care is inclusive of ciples of Clinical Practice. Laguna Beach, CA:
Longer placement is available for an additional fee.
For more information or to place your ad, contact not only frequency and duration of services, The North American Neuro-Developmental
the NDTA Office at (800) 869-9295, ext. 314, or
but also anticipated goals and specific inter- Treatment Association; 2002.
email advertise@ndta.org.
ventions based on interpretation of the exam-
EDUCATIONAL OPPORTUNITIES
Organizing a workshop? Your educational opportu- ination and evaluation process in collabo-
nity can be placed in one issue of Network for $250. ration with the client and caregivers. Some
This is a text advertisement of no more than 200
words. The NDTA reserves the right to refuse the of the elements to developing a plan of care
publication of any advertisement it does not deem include: identifying and prioritizing critical
appropriate. Longer placement is available for an ad-
ditional fee. For more information or to place your impairments and functions that can be
ad, contact the NDTA Office at (800) 869-9295, ext. addressed in NDT treatment, recommending
314, or email advertise@ndta.org.
frequency and duration, setting team func-
ARTICLE & ADVERTISING DEADLINES
Copy received after the dates specified will be
tional outcomes and goals, identifying
considered for the following issue. Contact us for strategies the client is currently using and
current deadlines and special opportunities for
suggesting alternatives, identifying measures
NDTA Corporate Partner members!
to promote wellness, describing the role of
Marcia Stamer the family and others involved in the client’s
Editor, NDTA Network
Chair, Publications Committee care, and means for re-examination.1
2949 Millboro Rd., Silver Lake, OH 44224
330-923-0696
paul-stamer@att.net

NDTA NETWORK • JANUARY/FEBRUARY 2014 • DEVELOPING THE PLAN OF CARE • 3


N D T A N E W S

IS YOUR FACILITY A CENTER OF EXCELLENCE?


NDTA proudly continues the Centers of Excellence program by linking NDT to
education and research, therapy facilities and clients, and membership and
NDTA. To be considered a Center of Excellence your facility must meet the basic
requirements:
• Your center must be a Facility Partner. A Facility Partner is an NDTA
membership category for a group of therapists under the same employer.
• Ideally, your facility must have a minimum of four NDT certified therapists
currently employed, representing two of three disciplines (OT, PT, SLP). Facil-
ities that do not meet this minimum criterion are still encouraged to apply.
• Your facility must have the ability to host an NDTA educational course (seminar,
certificate, or advanced course) a minimum of once every 12 months.
• Your facility must have the ability to submit one article to the Network a
minimum of once every 12 months.
• Your facility is encouraged to host one NDT study group per 12 months.

For more information on centers of Excellence and to receive a copy of the application packet,
please contact the National Office or visit www.ndta.org/COE.

INTERESTED IN BECOMING
NDT CERTIFIED™ ?
Great, let’s get you started! Certification is available to those who currently
hold active NDTA membership and have successfully completed either the
Peds or Adult Certificate course.

HOW DO I APPLY FOR NDT CERTIFICATION?


First, you must login to your NDTA membership account and select the “Get
NDT Certified” link on the right hand side of your My Account page. Then
proceed with the steps of entering in your Certificate course information. The
final step will be to pay the $150 fee. Once approved your certification will be active for 3-years (active
membership is required all 3-years of certification).

HOW DO I RE-CERTIFY?
In order to recertify you will need to hold active membership, have 20 hours of continued education
and pay the $150 re-certification fee. Of the 20 required hours, a minimum of 8 hours must be of NDT
training and the remaining 12 hours can be profession-related. For more detailed information regarding
recertification, please visit the NDT Certification home page at www.ndta.org.

NDTA NETWORK • JANUARY/FEBRUARY 2014 • DEVELOPING THE PLAN OF CARE • 4


N D T A N E W S

By the NDTA Membership Committee

NDTA’s Membership Committee highlights an NDTA member each edition of the Network. This edition’s
member spotlight will be shining on Vanessa Passos. Vanessa is a physical therapist specializing in treating
adult hemiplegia throughout the continuum of care. She graduated with a Bachelor of Science degree in
business and a Master of Science degree in physical therapy from Florida Gulf Coast University. She is an
active clinical instructor for PT students and mentor for new staff at The Rehabilitation Hospital. The
Rehabilitation Hospital is part of the Lee Memorial Health System in Fort Myers, Florida. Lee Memorial is
an NDTA Center of Excellence for the adult population.

Q: What is your discipline? Q: How did you change the way you treat patients after taking
A: Physical Therapist your NDT course?
A: I was better able to integrate function and participation
Q: What setting do you currently work in?
into evaluation and treatment.
A: I work at an Inpatient Rehab Facility

Q: How long have you been practicing? Q: Can you describe the approach that you take to treat or look
A: Six years at your patients?
A: It’s a compilation of a functional problem solving approach
Q: How did you become aware of NDT?
with reflective practice.
A: I became aware of NDT through my pediatric internship
as a PT student. My pediatric internship was with Debbie
Q: What would be the one thing about NDT that you would tell
Flannigan-Thornton at Naples Community Hospital (Green
a therapist who is interested in learning more about NDT
Tree Plaza), which allowed primarily pediatric neuro and one
treatment techniques?
day a week adult TBI exposure through their day program.
A: It’s a thorough problem solving approach that promotes
This was a voluntary additional rotation for which, I believe,
effective and efficient strategies while engaging your patients
made a huge difference in my clinical experience.
in their participation roles. It prioritizes impairments and
Q: When did you take your first NDT course? promotes function.
A: I took my first NDT course in fall of 2010. It was an Adult
Hemiplegia course by Kay Folmar that was hosted by Lee Q: Can you tell us how much influence NDT has had in your career?
Memorial Health System. Since then, I have completed both A: It has enriched my clinical rationale, expanded my profes-
advanced and master classes with Kay and have attended the sional goals and engaged my passion to consistently promote
last two NDTA conferences. At the last conference, I submitted skilled interventions to all survivors of stroke throughout the
a poster presentation. continuum of care. ■

NDTA NETWORK • JANUARY/FEBRUARY 2014 • DEVELOPING THE PLAN OF CARE • 5


N D T A N E W S

NEURO-DEVELOPMENTAL TREATMENT ASSOCIATION

U P C O M I N G N D TA S E M I N A R S
FEBRUARY 28-MARCH 1, 2014 JUNE 27-29, 2014
Blending NDT and Modified CIMT An NDT Guide to Baby Treatment
Interventions to Enhance Function for MedCare Pedatric Group, Stafford, TX
Children with Hemiplegic CP
MUSC – College of Health Professions, JULY 31-AUGUST 1, 2014
Charleston, SC Neuro-Developmental Treatment Approach
to Infants and Toddlers
MARCH 15-16, 2014 County of San Bernardino/Therapy Unit, Hesperia, CA
Starting Out Right, Using NDT Treatment
with Infants and Young Children
OCTOBER 17-19, 2014
St. Luke’s Rehabilitation Institute, Spokane, WA
Rib Cage: Focus on the Rib Cage for
Improvement In Respiration, Phonation,
APRIL 25-26, 2014
Postural Control
Functional Changes Through Aquatic
Arlington Pediatric Therapy, Arlington Heights, IL
Therapy: An Intermediate Level Course
Children’s Mercy Hospital, Kansas City, MO
SEPTEMBER 26-27, 2014
MAY 9-10, 2014 Using the Ball for Therapeutic Intervention
Using the Ball for Therapeutic Intervention for Children with Movement Disorders
for Children with Movement Disorders Children’s Therapy Unit/MultiCare Good Samaritan,

The HSC Pediatric Center, Washington, D.C. Puyallup, WA

JUNE 12-14, 2014 OCTOBER 17-19, 2014


Rib Cage: Focus on the Rib Cage for NDTA C/NDT Master Class: Is the Arm
Improvement in Respiration, Phonation, Really Connected to the Leg?
Postural Control Texas Children’s Hospital, Houston, TX

Allied Integrated Health System/Heinz Rehab,


Wilkes Barre, PA

REGISTRATIO N O PEN!
Register online at www.ndta.org or fax your form into the National NDTA™ office at 949/376-3456

NDTA NETWORK • JANUARY/FEBRUARY 2014 • DEVELOPING THE PLAN OF CARE • 6


F E A T U R E A R T I C L E

Developing a Plan of Care One Step at a Time (continued from page 1)

peutic intervention the child needs on a weekly basis and during treatment sessions and home practice activities are essential,
whether he or she is at risk for potential regression at this time. the therapist must gain the caregivers’ commitment to the
When determining the most appropriate duration of treatment, treatment plan. The therapist provides all of the information
the therapist also takes into account the patient’s current period discussed to the family in a written brochure format. The caregivers
of skill acquisition, his or her medical needs, and any caregiver are then asked to sign this document which serves as a contract
and/or patient barriers that may negatively impact the treatment and signifies their commitment to the treatment plan.
plan. The frequency and duration may be adjusted due to the During each treatment session, the therapist routinely reviews
identified barriers, including any insurance limitations. the patient’s progress towards the goals and updates the home
Throughout the duration of treatment, a patient’s progress program as necessary. The caregivers are provided with written
towards goals is assessed continuously to determine the effec- educational materials whenever possible to support what was
tiveness of the current treatment approach and the frequency reviewed during the treatment sessions. Ideally, families participate
or duration of therapy may be adjusted as necessary. during each treatment session. This participation allows for the
practice of the therapeutic interventions prescribed for home
frequenCy Models aT our faCiliTy exercise along with the therapist to ensure caregivers’ complete
Weisman Children’s Rehabilitation utilizes four models of understanding and confidence in facilitating the targeted skill.
frequency when implementing Episodic Care. These models While conversations about progress are happening during

[W]e have found that reviewing the patient’s plan of care at the time of the
progress evaluation prepares the family and eliminates some of the fear
caregivers may experience when the discharge date arrives.

are Intensive, Weekly, Periodic, and Consultative. Intensive each treatment session, the therapist must also complete a
therapy is offered 3 or more times per week and is utilized for formal progress evaluation with the patient and caregivers a
a patient after an acute injury or illness and/or for a patient few weeks before the established ending date for the plan of
quickly accomplishing their established goals. Weekly therapy care. This evaluation establishes the next step for the patient.
is offered 1 to 2 times per week and is ideal for a patient with Some possibilities for the next step may include: a discontin-
the potential for consistent progress utilizing a home exercise uation of services, a transition from one service to another, a
program, which is performed daily by the family. Periodic discharge from therapy services, or the start of a new episode
therapy is provided at regularly scheduled intervals (e.g., bi- of care with advanced goals. A discontinuation of services may
weekly) and is appropriate for children who are progressing occur when the patient is making minimal progress towards
more slowly towards their goals. These patients typically need the established goals and/or the goals are not achieved. Many
a longer time between therapy sessions to practice a skill within times, this is a result of patient or caregiver barriers such as
their activities of daily living. Consultative therapy is an appro- poor attendance, non-compliance with a home program, and/or
priate recommendation for children who are making minimal financial hardship. The therapist will make every effort to make
progress but need to be reevaluated periodically or when an adjustments to the plan of care and provide ongoing parental
update to their current equipment or technology is warranted. education as needed at this time to facilitate progress and
accommodate for any newly identified patient or caregiver
planning Care wiTh The Caregivers barriers to treatment. However, if these attempts fail, a discon-
The details of the established treatment plan, including the tinuation of therapy services is typically recommended.
duration and frequency of services and the therapy goals for the A transition of therapy services may occur when the therapist
Episode of Care, are reviewed with the caregivers at the time of and/or caregivers feel the patient may benefit from a different
the initial evaluation. Given that active caregiver participation therapy frequency or another therapy (continued on next page)

NDTA NETWORK • JANUARY/FEBRUARY 2014 • DEVELOPING THE PLAN OF CARE • 7


F E A T U R E A R T I C L E

Developing a Plan of Care One Step at a Time (continued)

service. For instance, a speech-language pathologist may to determine whether a new episode of care is appropriate at
recommend that a patient receiving dysphagia services to treat that time. The caregiver(s) also bring forth new functional
a sensory-behavioral feeding disorder participates in an occu- goals for the patient and again the therapist and caregivers
pational therapy evaluation to address the patient’s global sensory work together to take the next step.
needs. The speech pathologist may also recommend that the
patient return for a dysphagia re-evaluation in 3 to 6 months suMMary
following his or her participation in occupational therapy. Overall, episodic care is a “one step at a time” approach for imple-
Finally, the completion of a progress evaluation may result menting a patient’s plan of care. This approach emphasizes parental
in the therapist recommending that the patient be discharged involvement during treatment and is an essential component to
at the end of the established duration of the current episode the success of this model. From the time of initial evaluation, the
of care. Discharge is recommended when a patient has achieved family is asked to commit to the treatment plan. They are included
his or her goals and when establishing additional goals is not in the goal writing process and empowered by the therapists to
considered clinically appropriate at this time. complete daily practice through the use of a home exercise program.
Following the completion of the progress evaluation, the In this model, the caregivers and therapists truly work together
therapist will review the patient’s progress towards the estab- as a team to address the patient’s functional goals. ■
lished goals and review the set discharge date with the caregivers.
This is an excellent time to map out the plan for the remaining Abby Leibrand, PT, DPT is the Clinical Educator for the Physical
duration of the episode of care and also answer any questions Therapy Department at Weisman Children’s Rehabilitation Hospital.
and/or concerns the family may have at that time. At Weisman Jennifer Tenney, M.S., CCC-SLP is the Assistant Director of
Children’s Rehabilitation Hospital, we have found that reviewing Outpatient Services and Senior Speech Therapist at Weisman
the patient’s plan of care at the time of the progress evaluation Children’s Rehabilitation Hospital.
prepares the family and eliminates some of the fear caregivers
Weisman Children’s Rehabilitation Hospital is a leading
may experience when the discharge date arrives. provider of pediatric rehabilitation services in the Delaware
When the discharge date arrives, the therapist often times Valley. Rehabilitation therapy for children from infancy through
makes recommendations for the patient to return for a follow- teens is provided through four outpatient pediatric rehab
up evaluation. This follow-up typically occurs 3 to 6 months centers, medical day care facilities, as well as an inpatient and
post discharge date. Upon reevaluation, the therapist is able day hospital program located in the Southern New Jersey Area.

NEURO-DEVELOPMENTAL TREATMENT ASSOCIATION

THE NDTA CONSUMER CATEGORY


COMPLIMENTARY MEMBERSHIP PROGRAM
The NDTA continues the Consumer Category Complimentary Membership Program. A membership will
be provided at no cost to new applicants in the NDT Consumer Category of membership for one year.
This consumer membership category is comprised of non-therapist individuals including parents, patients,
spouses, or caregivers who support NDTA and its goals. Current NDTA members are asked to invite their
clients, patients, and families of those with neurological impairments to visit NDTA.org and apply for the
consumer membership category. Once their application has been approved, membership will be granted
for one calendar year from date of acceptance. Once a member, they receive full access to members-
only webpages and the newly expanded and redesigned family/caregiver site full of articles and resources.
They also receive membership discounts on most NDTA educational products.

Visit www.ndta.org or call 800-869-9295


NDTA NETWORK • JANUARY/FEBRUARY 2014 • DEVELOPING THE PLAN OF CARE • 8
F E A T U R E A R T I C L E

A Child, a Family, a Therapist,


and a Plan of Care
Benefits of a team approach
By AmrutaThatte, PT, C/NDT

I work with a young girl named Samaira who is five years


old. She has spastic diplegia and functions at Gross Motor
Function Classification System Level III. She has a twin brother.
There were issues with acceptance that Samaira was born
with special needs and required specific care to meet them.
This further delayed the intervention and the therapy in total.
He has developed typically and is now a first grader. The twins Samaira is the princess in her family. They never allowed her
were born via C-section, with Samaira delivered four minutes to cry or to struggle for her wishes. If she would cry, her parents
after her brother. The C-section was necessary due to malpo- would discontinue the therapy. They still get worried when
sitioning. Samaira’s motor delay was noted by the family at the they see her crying. But they also know that crying is Samaira’s
age of 13 months, as she did not achieve sitting. Her pediatrician learned behavior to avoid therapy.
advised her family to begin therapy. Samaira is loved and cared for a little more than the other
kids in the house. Initially when Samaira came in for therapy,
saMaira’s faMily her mother was reluctant to start the therapy as they had been
Samaira lives on the fourth floor of an apartment. They do to other places, and there was no result. She would howl and
not have a lift in their building, and her mother has to carry cry, resisting the therapy. With us also she cried, but then in a
her everywhere she goes. She lives in a joint family with grand- couple of weeks she became accustomed to the exercises. Her
parents, uncle, aunty, and her cousins. Her mother had a tough mother also understood that therapy was necessary and needed

With time, all the family members also started taking interest in
her rehabilitation, and they began to give me goals that they wanted
Samaira to achieve.

time convincing the family members of the benefits of Samaira’s to be continued. But because Samaira’s twin does not have any
therapy, as they were very sure that whatever was said and done disabilities, Samaira’s family members would say that she would
would not improve Samaira. We had to work a little extra to be okay too, so why have therapy?
prove to her family that a change was possible with some effort. Then I realized that just explaining to Samaira’s mother or
The twins were always subjected to comparison – Samaira’s trying to convince her to continue her daughter’s therapy was
brother always has the upper hand. Her siblings would boss not helping. To convince Samaira’s entire family, I had to
Samaira to watch TV or play games on cell phones. Her grand- involve them in the rehabilitation program. I requested that
parents were very protective of her, handing everything to her her family members accompany Samaira to therapy. Some
so that she did not move much. They feared that she might days her uncle would bring her, other days her granny or her
spoil something or end up in a mess. After she went to school, aunt would come along, and near the end of the week it would
she was made to sit and study separately, as she was lagging be either her dad or grandpa. We also involved her twin in
behind her siblings. the therapy, as he would encourage her (continued on next page)

NDTA NETWORK • JANUARY/FEBRUARY 2014 • DEVELOPING THE PLAN OF CARE • 9


F E A T U R E A R T I C L E

A Child, a Family, a Therapist, and a Plan of Care (continued)

to reach out in different directions, play with her, and encourage rotation and forearm supination with a weak grasp. She
her to complete the task. showed postural insecurity with a fear of being erect. She is
Along with Samaira, her family members who accompanied obstinate, very talkative, and daddy’s girl.
her to therapy would be given a weekly task, such as having her The only task identified for her summer break was to learn
write numbers from 1 to 10 or drawing her a figure and asking to stand holding a chair at its armrest and drink a strawberry
Samaira to colour it, or taking her to the garden. It was not simply milkshake all by herself. This was a difficult task but was
that her aunt or granny would give something to Samaira; they selected specifically as this milkshake was the thing Samaira
also had to attend to the task and make sure that the work was wanted to reach for.
done. With time, all the family members also started taking Selecting this task allowed me to determine a specific plan
of care. Samaira would not have
learned the task just by standing
against a chair. We started with
therapy for Samaira and four months
later she received Botox therapy for
both her lower extremities in her
hamstrings, tendo-achillies, and hip
adductors, and with the plaster casts
on, we started with exercises in long
sitting, legs abducted,picking up toys
from one side and dropping them on
the other side, reaching with both
hands in front and behind; prone on
a ball, reaching up and to the front;
and prone to sit on the ball.
Samaira works . . . and plays in therapy. Once the plaster was removed, she
underwent vigorous therapy sessions
interest in her rehabilitation, and they began to give me goals twice a day. We assisted her with reaching activities with disso-
that they wanted Samaira to achieve. It took almost six months ciated standing, stepping up, sit to stand, and reaching up for
to get the family together and work for Samaira. her teddy bear, walking up the bolster placed inclined on a bench,

With all the vigorous therapy and home programs, Samaira now does her
task as if it was ever so easy and attempts to stand holding the milkshake
with both her hands without support for about twenty seconds.

planning and inTervenTion wiTh and bear walking on the floor. Small goals were set to be attained
saMaira and her faMily for a duration of two to three weeks. With continued therapy,
When Samaira came to our therapy clinic a year ago, she had her sitting improved. Now she only needs a reminder to sit erect.
scissoring in her lower extremities, her feet were plantar flexed, She also improved in her supported standing. She learned to
she had very little trunk movement in the transverse plane, transition from half kneel to stand. We also used activities such
she sacral sat, she would flop onto one side to move in and as balancing over the tilt board with moderate support, one leg
out of sitting, and she would pull to stand by weight bearing standing, transitions such as bear stand to standing upright,
on her toes. She had partially restricted shoulder external quadruped to half kneel to bear stand to (continued on next page)

NDTA NETWORK • JANUARY/FEBRUARY 2014 • DEVELOPING THE PLAN OF CARE • 10


F E A T U R E A R T I C L E

A Child, a Family, a Therapist, and a Plan of Care (continued)

Samaira demonstrates her new standing skills.

stand, bear climbing up the exercise balls, crossing a small bolster,


and stepping over a small table with support.
Back home, she was asked to write capital letters and small
letters in a four-line notebook, do math workbooks to learn
writing numbers, draw and colour, make hand prints on the
paper, bang the table with both hands alternately, eat by herself,
open a lock with the key, play a piano, make toys with clay, and
play games such as catch the ball and kick the ball. She was
asked to wear her hip abduction/knee extension splints for
about 6-7 hours a day.
000 000 0

saMaira and her faMily Today


Samaira’s family is now very supportive of therapy, and they
motivate her to co-operate. They also divert her at times by talking
about her favorite cartoon series or her favorite food. Her father Client, Family, and
sometimes bribes her with a chocolate box or a surprise gift.
With all the vigorous therapy and home programs, Samaira Advocacy Links
now does her task as if it was ever so easy and attempts to stand
holding the milkshake with both her hands without support for
about twenty seconds. And yes, Samaira is now bored with the
milkshake. She now aims for the chocolate and blueberry donuts
O N LIN E!
kept on the top shelf of the refrigerator and so do we. ■ These links offer clients, parents, and caregivers
access to reliable health care information and
Amruta Thatte, PT, C/NDT is an NDT Certified physical general advocacy resources.Visit today at:
therapist associated with Sukrut Pediatric Rehabilitation
Center, Vadodara, Gujarat, India. She can be reached at www.ndta.org/familylinks.php
coolamu8988@gmail.com.

NDTA NETWORK • JANUARY/FEBRUARY 2014 • DEVELOPING THE PLAN OF CARE • 11


F E A T U R E A R T I C L E

NDT in Action
excerpts aBout the plan of care

These excerpts are reprinted with permission from the forthcoming book NDT in Action.The plan of care is presented in the book
within the context of the NDT Practice Model. These excerpts serve only as glimpses into the book’s content, which includes NDT
practice and case report examples.

Stamer M. Evaluation and developing the plan of care. In: ■ prepare for the next intervention session
Bierman J, Franjoine MR, Hazzard C, Howle J, Stamer M, eds. ■ educate the client and family
NDT in Action. Forthcoming. ■ advocate for the client’s civil rights and personal needs
So far in the examples in this chapter, the clinician wrote a • Referral, discussion, and planning with other team members
prioritized list of functioning → disability in all domains that to address intervention and management needs of the client
relates to current function/dysfunction, long and short term and family
outcomes, and a range of prognoses. Now the clinician docu- • Anticipated assistive technology and intervention strategies
ments the following: needed to optimize outcomes
• Length of session, frequency of sessions (number of sessions • Date of next formal re-examination and re-evaluation with
per week or month), and duration (episode of care). measurement of outcomes
Although this determination is made according to outcomes • Discharge planning (continued on next page)
and the client and family’s abilities to
engage in intervention and management
sessions, often third party payers and family
financial and time resources weigh heavily
The plan of care organizes intervention around
in determining session length, frequency, Information Gathering, functional outcomes. The clinician then
and duration. Examination, Evaluation determines specific intervention strategy
• A general outline of intervention strategies choices and combinations of strategies to
to address the impairments, activity limita- address the domains of functioning that
tions, and participation restrictions in the interfere with the outcomes. Clinicians may
context of the client and family when inter- address single system impairments, the
Management interaction of system impairments, activity
vention is the choice of client management.
Direct Intervention is One Option limitations, and participation restrictions with
This includes time with the clinician and intervention strategies. The clinician determines
activities recommended outside of inter- the ordering of the selected strategies.
vention sessions to Constant evaluation of the client’s responses to
■ practice newly learned portions or entire intervention determines future choices of
Intervention Strategies Sequenced
posture and movement sequences within According to Plan and to Constant strategies, what to practice outside of
Client Responses intervention sessions, and strategies to interact
functional activities and participation
with society. This happens within each session
■ address impairments, activity limitations,
Practice Schedule and Advocacy
Outside Intervention Planned as well as across sessions.
and participation restrictions that require
time or place to complete (i.e. night
splinting for muscle length, ability to sit
for an hour or two at a time, ability to
A general intervention plan of care
eat a meal in a favorite restaurant)

NDTA NETWORK • JANUARY/FEBRUARY 2014 • DEVELOPING THE PLAN OF CARE • 12


F E A T U R E A R T I C L E

NDT in Action (continued)

The following information is in the “Evaluation


and Developing the Plan of Care” chapter and
The functional outcome for intervention is
is based on the case report presented later in the JW Outcome determined first because the plan of care and
book by Karen Guha and Sherry Rock. Putting on Coat its subsequent intervention strategies are
specific to the outcome. The strategies
J.W. is a 51-year-old woman post stroke. After indicated show what J.W.’s therapists
information gathering, examination, and eval- hypothesize will be necessary for her to
uation, her PT and OT focused intervention accomplish in order to put on her coat.
on outcomes that J.W. saw as requirements for Intervention choice is procedural; client Intervention strategies that address
instructions; team communication impairments, often within functionally
return to work: putting on a coat, typing speed,
simulated tasks, are ordered in this case:
walking with or without an assistive device on
• postural stability work
a large university campus, negotiating stairs. • mobility of restricted motions while
continuing active postural work
Plan of Care for procedural inter-
Bierman J, Franjoine MR, Hazzard C, Howle J, vention for putting on coat includes • closed chained and then modified closed
Stamer M. NDT intervention – A session view. strategies to increase proximal chained UE movements
In: Bierman J, Franjoine MR, Hazzard C, Howle stability in trunk, shoulder, and hip; • open chained UE movements
sustain activity in scapular depres- • practicing portions or all of the task of
J, Stamer M, eds. NDT in Action. Forthcoming. sors, elbow extensors; stretch shoul- putting a coat on
der internal rotators, progress to
closed chain movement then open • home program: management of tasks she
Intervention is the part of the plan of care that
chain movements can complete on her own (or with help of
the clinician puts into action strategies to
a family member)
address the restrictions in participation, limi-
tations in activity, and impairments in body
systems. During the intervention session, the
Intevention Choices
clinician applies procedural knowledge to Activities often interweave and are
achieve functional outcomes that have been modified as client changes
• Closed chain upper extremity activi-
written in the plan of care, with problem
ties to facolitate scapular stability
solving in the moment to address the thera- and elbow extension
peutic needs of the client in all ICF domains: • Simultaneous stretching of shoulder
internal rotators
participation, activity, and body systems, in • Change body postures and move-
functional contexts. All domains are addressed ment plane/direction while continu-
ing UE closed chained activities
within each intervention session.
• Modified closed chain with UE while
The session outcome forms the foundation from surface and/or hand moves
which the session is planned, designed, imple- • Progress to distal UE open chain
movements including practice with
mented, and evaluated. It is an independent, portions or all of targeted outcome
stand-alone measure of performance for the (putting on coat)
• Home program to reinforce portions
client. The session outcome provides a frame
of posture and movement that
of reference, an expectation of what is to be could be achieved on her own
achieved during the therapy session. Work • What time of day and where to
practice part or all of putting on
within an intervention session sets the stage for coat
motor learning. ■

J. W.’s plan of care

NDTA NETWORK • JANUARY/FEBRUARY 2014 • DEVELOPING THE PLAN OF CARE • 13


N D T A N E W S

nDta approVeD courses now online!


the nDta Board of Directors and education committee are excited to announce that the nDta Distance
learning program (online education) has expanded to now include streaming video!
the nDta Distance learning Videos are an online mechanism for providing continuing education credit
for courses regarding topics of interest for therapists that are felt to be relevant and appropriate for review.
access them through www.ndta.org/distance-learning. these videos are awarded ceus by the
nDta for use in the nDt re-certification program only. on completion of the online course, the indicated
number of ceus will automatically be added to your ceu Bank in your nDta membership account.

ViDeos
integrating ndT with other adjuncts: optimizing extremity function
christine cayo, otr/l, c/nDt & mary hallway, otr/l, c/nDt • 2 ceu credits available

getting the Best out of every Child: emphasizing function for the
Child with severe Challenges
Jane styer-acevedo, pt, c/nDt • 2 ceu credits available

online ceu articles

The language of disability


stacey lehrer, med, otr/l, atp • 1 ceu credit available

The Conceptualization of ndT-Based handling Techniques for infants: Two perspectives


Gerard J Demauro, ms, pt, c/nDt • 1 ceu credit available

The relationship of the quality of posture and Movement to outcomes of intervention


marcia stamer, mh, pt, c/nDt • 2 ceu credits available

Cerebellar pathophysiology in Children Born preterm: implications for ndT practice


marcia stamer, mh, pt, c/nDt • 1 ceu credit available

integrating Motor development, Motor Control, and Motor learning


Theories in ndT practice
sara Kerrick, pt, pcs, cnDt • 2 ceu credits available

social participation and quality of life in adults with Cerebral palsy


laura K.Vogtle, phD, otr/l, faota • 1 ceu credit available

www.ndta.org/distance-learning

NDTA NETWORK • JANUARY/FEBRUARY 2014 • DEVELOPING THE PLAN OF CARE • 14


C L I N I C I A N ’ S C O R N E R

How the NDT Certificate Course Changed My Professional Life... (continued from page 1)

and phobias are common among people with this disorder. that he continues to enjoy it as he grows.
Kabir has developmental delay and other sensory issues. He NDT taught me about function and facilitation. As I work
is unable to play when standing with his cousins. In play group, with Kabir and my other challenging kids coming to me for
he is unable to run and play with his peers. He has attention treatment, I see them changing within a week. NDT allows
deficit. He gets easily distracted to even small noises or small changes in many families’ lives like Kabir’s. Facilitation and
movements in his surroundings. He is irritable when he is unable fun contribute to his function. And the changes give me positive
to play with his cousins or peer group or when he doesn’t get feedback for myself. ■
things he wants. He is fearful of falling and is not comfortable
doing exercises on a therapeutic ball, especially in standing. His Kaushal Bhatt completed his MPT degree with a paediatric
family wants him to run and play with his peer group in school. specialty in 2008 and worked as a lecturer and head of the
Until I joined the NDT course, I was treating him with paediatric physiotherapy department at CU Shah Physio-
strengthening exercises for his abdominal obliques on the therapy College for two years. He has been a full time clinician
in Bhavnagar, Gujarat since 2010, working with all types of
therapy ball in supine, quadriceps strengthening with sit to
paediatric conditions, including patients with orthopedic,
stand, and standing and reaching with weight shifts. He was
cardiac, and neurological impairments. Thanks to mentor Jane
not enjoying treatment sessions. I did not choose age appro- Styer-Acevedo, who added a new dimension to treatment.

He started enjoying the sessions when I included play in therapy.

priate toys for him to play with. But seven weeks with Jane Kaushal can be reached at kaushaldbhatt007@yahoo.co.in.
Geographically, he can be reached at: KIDS Paediatric Phys-
Styer-Acevedo in the NDT course changed my abilities to
iotherapy Centre, 2nd floor, Sukhshanti Complex, Kalanala,
observe, assess, and handle patients. I learnt the three ‘Fs’ during
Bhavnagar, Gujarat, India.
the course: FUNCTION, FUN & FACILITATION.
As I returned to work after the course, I worked on Kabir’s core,

are You following us?


especially on the obliques, since he was using the rectus more than
his obliques. We worked on alignment of his feet, knees, and hips.
After therapy, his feet were aligned neutral from supination, and
he could coactivate his postural muscles, especially the gluteals Join us on all of our social
and abdominals. I could facilitate movements with play using media pages: facebook,
games of ball throwing and puzzles. He started enjoying the sessions Twitter, linkedin, and
when I included play in therapy. He responded well in just three youtube. go to the
sessions. He stood with support and walked with neutral alignment ndTa.org homepage to
of his feet and his knees extended rather than hyperextended. His
get connected.
hips were extended and mildly externally rotated, and his pelvis
was neutrally aligned. His lumbar spine was extended, and his • follow nDta news
thoracic spine flexed while holding onto a chair in front of him. • send us photos of nDt in action
His parents were amazed to see these changes in three sessions. • share your nDt success stories
As I’ve treated him only for three sessions post NDT, I’ve not yet
• find other members in your area
given any ideas about a home program. But I’ll continue to see
• find out what’s new with the association
him three times/week for 45 minute sessions. I predict that he
may go to school within a year by himself and will be able to take • let us know where you would like to see an
part in school activities but his short attention span may interfere nDta sponsored seminar
with his learning. He has a great interest in music, and we hope

NDTA NETWORK • JANUARY/FEBRUARY 2014 • DEVELOPING THE PLAN OF CARE • 15


THE BEN DABLE BRAIN

PROGRAM INFORMATION
CONTACT HOURS
SCHEDULE AT-A-GLANCE Friday . . . . . . . . . . 6 hours
Saturday . . . . . . . . 7 hours
THURSDAY, MAY 15, 2014 Sunday . . . . . . . . . 4 hours
Total Available . . . . 17 hours
3:00 – 7:00 pm. . . . . . Registration Subject to change.

7:00 – 9:00 pm. . . . . . Welcome Reception

FRIDAY, MAY 16, 2014

7:00am – 8:00am . . . . Registration and Continental Breakfast


9:30am – 10:30am . . . Exhibitor Showcase and Morning Break
12:15pm – 1:45pm . . . Networking Lunch/NDTA Membership Meeting
3:00pm – 4:00pm . . . . Exhibitor Showcase and Afternoon Break www.ndta.org
6:00pm – 8:00pm . . . . Exhibitor Showcase /Wine & Cheese Reception

GENERAL SESSIONS
8:00 am – 12:00 pm . . KEYNOTE ADDRESS: Brain Plasticity-Based Therapeutics – Dr. Michael M. Merzenich,
Professor Emeritus, UCSF; Director, Brain Plasticity Institute; CSO, Posit Science.

2:00 – 6:00 pm . . . . . . CONCURRENT SESSIONS / LABS


PEDS P1. Handling: A Lot More Than Hands On… Emphasizing the Power of Sensation C/NDT Required

Added Handling to Support Gaining Function


Lezlie Adler, OT, C/NDT
PEDS P2. Tapping into the Postural System C/NDT Required
Margo Prim Haynes, MA, PT, DPT, PCS, C/NDT
Mary Rose Franjoine, PT, C/NDT
PEDS P3. Movement Organization: Starting, Stopping and Synchronizing
Brenda Lindsay, PT, C/NDT
Sheila Frick, OTR/L
PEDS P4. Bouncing Back: A Look at Pediatric Brain Injury
Jacqueline Grimenstein, PT, C/NDT
Kathy Hall-Olsen, MA, CCC-SLP, C/NDT
AH A1. Intervention Doesn’t Need to be a Gamble: Maximizing Your Session C/NDT Required

with the Client for Maximal Functional Gain


Karen Brunton, PT, C/NDT
Cathy Hazzard, B.Sc, MBA, PT, C/NDT
AH A2. Creating Lasting Changes: Considerations from a Whole Body Perspective
Takashi Misuda, PT, C/NDT
Kris Gellert, OTR/L, C/NDT

REGISTER BY APRIL 16 AND SAVE! GO TO www.ndta.org


SCHEDULE AT-A-GLANCE
SATURDAY, MAY 17, 2014
7:00 – 8:00am . . . . Continental Breakfast
9:30 – 10:30am . . . Exhibitor Showcase, Staffed Poster Session, Morning Break
12:15 – 1:45pm . . . Award of Excellence Lunch

GENERAL SESSION
7:00 – 8:00 am . . . . . . Exhibitor Presentations
8:00 am – 12:00 pm . . KEYNOTE ADDRESS: (continued) Brain Plasticity-Based Therapeutics
Dr. Michael M. Merzenich, Professor Emeritus, UCSF;
Director, Brain Plasticity Institute; CSO, Posit Science.

2:00 – 6:00 pm . . . . . . CONCURRENT SESSIONS / LABS


PEDS P1. Blending of NDT and Modified CIMT to Enhance Function C/NDT Required

Margo Prim Haynes, PT, MA, DPT, PCS, C/NDT


Christine Cayo, OTR/L, C/NDT
PEDS P2. Neuroplasticity, Contemporary NDT and Evidence – Interconnected? C/NDT Required

Suzanne Davis, PT, C/NDT


Kate Bain, HScD, OT, C/NDT
PEDS P3. Movement Organization: Starting, Stopping and Synchronizing (repeat)
Brenda Lindsay, PT, C/NDT
Sheila Frick, OTR/L
PEDS P4. The Role of Exercise in Oral Motor Treatment
Rona Alexander, PhD, CCC-SLP, C/NDT
Marybeth Trapani-Hanasewych, MS, CCC-SLP, C/NDT
AH A1. Practice Makes Perfect: Designing Home Programs That Work C/NDT Required

Monica Diamond, PT, MS, C/NDT


AH A2. Upping the Ante: Neuroplasticity Principles that Change Outcomes
Jason Knox, PT, C/NDT

SUNDAY, MAY 18, 2014


10:00 – 10:15 am . . Morning Break

8:00 am – 12:15 pm . . ROUNDTABLE BREAKFAST / GENERAL SESSION

DON'T DELAY REGISTRATION, SESSIONS FILL UP FAST!


To ensure you are able to attend the sessions of your choice, we recommend you register as soon as possible.

N E U R O - D E V E L O P M E N TA L T R E AT M E N T A S S O C I AT I O N
SESSION PREVIEW
Intervention Doesn’t Need to Be a Gamble
MAXIMIZING YOUR SESSION WITH THE CLIENT FOR
MAXIMAL FUNCTIONAL GAIN
CONCURRENT SESSION • FRIDAY, MAY 16, 2014 • 2:00 – 6:00 pm

Presenters:
Cathy Hazzard, C/NDT, NDTA Coordinator Instructor
Karen Brunton, C/NDT, NDTA Coordinator Instructor

How often have you felt that you never have enough time with your patients in acute care or acute rehabilitation
to help them improve to the functional level that you feel they have the potential to accomplish? When faced
with the limited time we have in therapy, do you feel pressured to make choices in intervention that lead to
compensatory recovery versus true functional recovery? Research in the fields of neuroplasticity and neurore-
covery provides us with the evidence that true recovery can happen for our patients. The evidence is limited
but is growing, demonstrating that the long term effects of the use of compensatory movement strategies can
be detrimental, resulting in learned non-use, osteoporotic changes in the hemiparetic limbs, and increased
incidents of musculoskeletal overuse injuries in the less affected limbs. The concerns that the use of compensatory
strategies to achieve immediate functional gains may be detrimental to long term motor recovery has some
researchers further investigating movement quality.

Maximizing our time with our patients in the intervention session by making conscious choices about what
task(s) are practiced, practicing movement components versus movement solutions, setting up the environment
to optimize movement recovery, using our hands to stop what we don’t want and to encourage what we do
want are all components to successful outcomes. This workshop at the 2014 NDTA Conference “The Bendable
Brain” will extrapolate key concepts from the literature known to drive neuroplasticity and motor learning
and correlate implications of these concepts to the structure of an intervention session.

We need to be able to address multiple impairments at the same time while working in functional contexts.
We need to set up practice repetition that provides challenge and offers repetition without repetition. That
is, our patients need volumes of repetition but of functional movements and activities that offer them variety
and progressive challenge. It’s not enough to just have our patients do repetitive sets of exercises. We need
to find practice strategies that can be integrated into our patients’ daily routines on the hospital unit and that
our health care colleagues can support as well.

These choices can be easier than you think if you have a framework to work from. This conference session
will focus on a framework for organizing the intervention session to maximize patient outcomes. The framework
has been developed with consideration of the concepts from the neuroplasticity, motor learning, and NDT
literature. We will focus on the in-patient (acute and acute rehabilitation) settings with discussions about
how to work with all levels of patients in less than ‘real’ environments. ■

REGISTER BY APRIL 16 AND SAVE! GO TO www.ndta.org


M E M B E R R E S E A R C H

Postural Control in Children with


Autism Spectrum Disorder
By Marcella Nelson, MOT, OTR/L and Mary F. Baxter, PhD, OT, FAOTA

inTroduCTion control deficits. Assessments should also measure general function


Movement and participation in context requires successful and sensory processing factors which are highly represented in
processing of information from multiple sensory sources. The children with autism. One assessment that measures posture
vestibular, somatosensory, and visual systems contribute to and sensory processing factors is the DeGangi-Berk Test of
postural control through perception and responses to these cues.1 Sensory Integration.
Postural control is essential to an individual’s participation in
daily occupations. Postural control is the ability to control one’s review of liTeraTure
center of mass over the base of support.2 neurobiology of posture
The body’s ability to process information to control one’s center The vestibular, somatosensory, and visual systems are the afferents
of mass has been found to be different among children with autism involved in the complex process of maintaining upright balance
spectrum disorder (ASD). Sensory-motor deficits in children with in humans.4 The sensory organization process of postural control
ASD have long been implicated as a cause of motor problems. involves the interplay of one or more of the orientation senses:
The deficits in motor coordination are negatively correlated with vestibular, somatosensory, and vision.1 Adjustments in motor
qualitative impairments in social interaction and decreased partic- control involving postural control require the individual to
ipation and function in everyday activities of children.3 execute coordinated and properly scaled musculoskeletal

The purpose of this study was to determine if children with autism spectrum
disorder (ASD) demonstrate decreased postural control, sensory processing and
function as measured by the DeGangi-Berk Test of Sensory Integration, the
Sensory Profile and the Pediatric Evaluation of Disability Inventory (PEDI).

Although the current trend in autism research is based around responses automatically.1 In order for individuals to make these
etiology, a few studies look at postural control deficits in children adjustments and maintain an upright position, they must process
with autism. More research needs to occur in order to establish sensory information correctly during any activity. This processing
whether children with autism present with decreased postural is found within the cerebral cortex within several cortical regions.5
control. Future studies should involve appropriate assessments
to measure postural control. The current literature is limited in neurological impairments in autism
the assessments used to measure this factor: The Movement The neurobiology and neuropathology of autism spectrum
Assessment Battery for Children, Peabody Developmental Motor disorder remains poorly defined but a few imaging studies (fMRI
Scales, Bruiniks-Oseretsky Test of Motor Proficiency, and the and MRI) and post mortem cases have revealed subtle abnor-
Test of Gross Motor Development are of the most common malities in the cerebellum, limbic structures, brainstem and
assessments reported in studies. Although three of these assess- cerebral cortex.6 Other areas of abnormalities include the medial
ments measure pieces of postural control, their main focus is temporal lobe, thalamus, basal ganglia, and vestibular system.7
gross motor and fine motor function. One can infer from scores A number of studies have found the areas of the brain respon-
on a gross motor test that a low score could signify postural sible for posture to be abnormal in (continued on next page)

NDTA NETWORK • JANUARY/FEBRUARY 2014 • DEVELOPING THE PLAN OF CARE • 20


M E M B E R R E S E A R C H

Postural Control in Children with Autism Spectrum Disorder (continued)

children with autism spectrum disorder. One of the most repli- focus to begin studying the effects these abnormalities have on
cated structural findings in individuals with ASD is increased occupational performance of children diagnosed with ASD and
total brain volume involving grey and white matter.8 Increased their effects on postural control, sensory processing and function.
total brain volume with a decrease in the size of the corpus
callosum in individuals with ASD affects the white and gray postural Control and function in Children
matter of the brain; this has been linked to several clinical features Postural control serves many purposes, and its focus is on estab-
such as social deficits, repetitive behaviors and sensory abnor- lishing a boundary between perception and action.13 Postural
malities.9 Kemper obtained brain weights of 11 individuals with control allows an individual to engage in hand functioning activ-
autism and noted a significant increase in weight as compared ities found in daily living. Such daily activities for children include
with a control group.7 Another study reported increased brain fastening buttons, drawing a picture of an animal, brushing one’s
volume and an enlarged head circumference (macrocephaly) of teeth or hair, playing with Legos® or Barbie dolls and eating
infants and toddlers diagnosed with autism.10 finger foods.
Sensory abnormalities associated with decreased size of the In order for a child to move and engage freely in his or her
corpus callosum will affect an individual’s ability to maintain world, he or she must not be limited by the inability to sustain
an upright posture. The corpus callosum plays a role in commu- an upright position. The body must be able to remain in an

The results of this study support the hypothesis that children with autism
spectrum disorder have deficits in postural control. In addition, the results support
that children with ASD also have difficulties in function – specifically, self-care and
social function. Lastly, the results characterize children with ASD as having various
sensory processing difficulties.

nicating perceptual, cognitive, learned and volitional information, upright position during challenges to stability as in brushing
and alterations might affect the integration of these functions.9 teeth, combing hair, putting on clothes and putting shoes on.
When overgrowth of the cortical regions of the brain occurs, Normal postural control and postural adaptation involve the
growth arrest results in dysfunction of the brain leading to autistic individual producing and controlling movements throughout a
behaviors.11 Abnormalities in corpus callosum size may demon- variety of joint ranges.1 A disruption of skilled performance in
strate atypical neural development, which results in decreased handwriting or fine motor skills can be indicative of postural
connectivity and processing of information. instability or malalignment of the body. Many children with
In a report of a 16-year-old boy with autism, slight thickening autism may show postural asymmetries while sitting and standing,
of the meninges and thinning of the corpus callosum were hindering their performance during tasks. This type of asym-
apparent in the lower brainstem.12 Structural MRI studies have metrical postural alignment may be due to the presence of inter-
consistently reported reductions in total corpus callosum size in fering reflexes, such as an asymmetrical tonic neck reflex, which
autism, and more importantly, most studies observed that fibers would result in a child’s body being dominated by more extensor
originating in the motor cortex crossed through the posterior tone on one side of the body14 or it could be a result of decreased
half of the corpus callosum.9 With these motor connections sensory processing or other neurological impairments.
crossing through the altered corpus callosum, the trajectory of
information is impaired, which may cause dysfunction. research objectives
Children with ASD have abnormalities in the cerebellum, The purpose of this study was to determine if children with
corpus callosum, limbic system, and vestibular system and have autism spectrum disorder (ASD) demonstrate decreased
enlarged brain volume. These impairments give researchers a postural control, sensory processing and (continued on next page)

NDTA NETWORK • JANUARY/FEBRUARY 2014 • DEVELOPING THE PLAN OF CARE • 21


M E M B E R R E S E A R C H

Postural Control in Children with Autism Spectrum Disorder (continued)

function as measured by the DeGangi-Berk Test of Sensory between different interviews was highest among reports from
Integration, the Sensory Profile and the Pediatric Evaluation parents and the kindergarten teachers (inter-respondent reliability)
of Disability Inventory (PEDI). indicated by ICC from 0.64-0.74.16 The study’s results indicate
that improved reliability is ensured when the same interviewer is
MeThodology used for the same respondent, as well as when two trained inter-
participants viewers are used with the same respondent. When two different
The participants (n=4) were children aged five years who had respondents are interviewed, their scores should be reviewed for
been diagnosed with autism spectrum disorder (ASD) before consistency.16 The researchers suggest that interviewers and
age three using the criteria established by the DSM-IV, a Diag- personnel administering the PEDI should be well trained using
nostic and Statistical Manual for Mental Disorders. All four the required procedures to ensure consistency and reliability.
participants were male and had been receiving occupational The Sensory Profile is a caregiver questionnaire designed to
therapy or physical therapy services for no more than 12 months. measure the frequency of behaviors related to sensory processing,
The participants were selected from a convenience sample at a modulation and emotional responsivity to sensory input in
pediatric therapy clinic in Houston, Texas – The Care Group. children 3 to 12 years of age.17 Test reliability was established by
The participants were not excluded due to gender or ethnicity. calculating internal consistency for each section using Cronbach’s
coefficient alpha. The alpha values ranged from .47 to .9. 17
instruments Content validity was established during development of the
This study used three individual assessments: the DeGangi-Berk, Sensory Profile by including various methods such as literature
Sensory Profile, and the Pediatric Evaluation of Disability review, a review by eight therapists trained in applying sensory
Inventory (PEDI). integration theory to practice and a category analysis based on
The DeGangi-Berk Test of Sensory Integration is a standardized a national study.17 The Sensory Profile also has both convergent
assessment measure of postural control, bilateral motor inte- and discriminant validity, which was established by correlating
gration and reflex integration.15 This test is designed for use the School Function Assessment with the Sensory Profile.
with children ages three to five. The DeGangi-Berk is a criterion
referenced test which has an 81% accuracy rate for identifying procedure
dysfunction and a 9% false normal error rate. Based on a sample A sample population of four children aged five-years-old was
of 29 subjects, reliability coefficients of .85 to .96 were obtained obtained. The inclusion criterion was children aged three to five
for total test scores.15 This test will determine if postural control with autism spectrum disorder who were receiving occupational
and balance issues are present in the participant. The scoring therapy and/or physical therapy for no more than 1 year. Informed
for this test is either 0 to 4 or 0 to 3 for each item tested. Items consent was obtained from parents prior to participation. The
are then summed per domain (postural control, bilateral motor Pediatric Evaluation of Development Inventory (PEDI) was
integration, reflex integration) or they can be summed for all performed by each participant’s OTR or PT either prior to the
test items together. For the purpose of this study only the postural study or during the study. Each participant’s guardian filled out
control domain was administered. The Sensory Profile during a treatment session or prior to the study.
The PEDI is an evaluation tool to assess key functional abilities Each participant’s therapist provided the following information to
of children. The therapist observes mobility, self-care and social the researcher at the start of the study: 1) age in months and years
function to measure capability and performance. The PEDI is 2) official diagnosis and 3) length of services provided. The scores
standardized on a normative sample, which allows the scorer to of the Sensory Profile and PEDI were obtained by the researcher
calculate the child’s results using both standard and scaled scores. from the therapists during a designated time. The researcher
This assessment can be used on children from 6 months to 7.5 performed the standardized DeGangi-Berk Test of Sensory Inte-
years old. In a study examining the reliability of the PEDI, the gration during a scheduled treatment session within The Care
inter-rater and intra-rater reliability showed excellent agreement, Group facility. The average length of administration lasted from 30
indicated both by small differences and high intra class correlation to 90 minutes. Several participants required two or more sessions
coefficients (ICC) (0.95-0.99).16 Berg found the discrepancies to complete all of the tasks required. (continued on next page)

NDTA NETWORK • JANUARY/FEBRUARY 2014 • DEVELOPING THE PLAN OF CARE • 22


M E M B E R R E S E A R C H

Postural Control in Children with Autism Spectrum Disorder (continued)

resulTs Figure 3. Results of the Sensory Profile


All four participants in this study scored with deficiencies in Deficient Postural Control and Sensory Processing
postural control as measured by the DeGangi-Berk Test (Figure Sensory Profile Typical Probable Definite
1). Among the four participants, two of them scored within the Factors Performance Difference Difference
normative range for mobility function and two scored below Sensory Seeking . . . . . . . . . . . . . . . . 0 . . . . . . . . . . . 1 . . . . . . . . . . 3
the normative range (mean = 31.65; normative range 30-70). Emotionally Reactive. . . . . . . . . . . . . 3 . . . . . . . . . . . 0 . . . . . . . . . . 1
All four participants scored below the normative range for self- Low Endurance/tone. . . . . . . . . . . . . 4 . . . . . . . . . . . 0 . . . . . . . . . . 0
care function (mean = 13.35) and social function (mean = Oral Sensory Sensitivity . . . . . . . . . . 1 . . . . . . . . . . . 1 . . . . . . . . . . 2
12.025). Figure 2 provides a visual representation of the scores Inattention/ Distractibility. . . . . . . . . 1 . . . . . . . . . . . 0 . . . . . . . . . . 3
obtained from the Pediatric Evaluation of Disability Inventory. Poor Registration . . . . . . . . . . . . . . . 2 . . . . . . . . . . . 1 . . . . . . . . . . 1
A list of scores from the Sensory Profile can be found in Sensory Sensitivity. . . . . . . . . . . . . . . 4 . . . . . . . . . . . 0 . . . . . . . . . . 0
Figure 3. Among the 23 sensory processing factors tested, all Sedentary. . . . . . . . . . . . . . . . . . . . . . 3 . . . . . . . . . . . 0 . . . . . . . . . . 1
four participants scored definite difference in vestibular Fine Motor/Perceptual . . . . . . . . . . . 1 . . . . . . . . . . . 1 . . . . . . . . . . 2
processing. Three of the four participants scored definite difference Auditory Processing . . . . . . . . . . . . . 1 . . . . . . . . . . . 0 . . . . . . . . . . 3
in sensory seeking, inattention/distractibility, auditory processing Visual Processing . . . . . . . . . . . . . . . . 4 . . . . . . . . . . . 0 . . . . . . . . . . 0
and touch processing. Three of the four participants scored Vestibular Processing . . . . . . . . . . . . 0 . . . . . . . . . . . 0 . . . . . . . . . . 4
either probable or definite difference in oral sensory sensitivity, Touch Processing. . . . . . . . . . . . . . . . 1 . . . . . . . . . . . 0 . . . . . . . . . . 3
fine motor/perceptual, multisensory processing, oral sensory Multisensory Processing . . . . . . . . . . 1 . . . . . . . . . . . 1 . . . . . . . . . . 2
processing, modulation related to body position, and movement Oral Sensory Processing. . . . . . . . . . 1 . . . . . . . . . . . 1 . . . . . . . . . . 2
and behavioral outcomes of sensory processing. All four partic- Sensory Processing related to
ipants scored typical performance in low endurance/tone, sensory endurance/tone . . . . . . . . . . . . . . . 4 . . . . . . . . . . . 0 . . . . . . . . . . 0
sensitivity, visual processing, and sensory processing related to Modulation related to body
position and movement. . . . . . . . . 1 . . . . . . . . . . . 2 . . . . . . . . . . 1
endurance/tone.
Modulation of movement affecting
Figure 1. Results of the DeGangi-Berk Test of Sensory Integration, activity level . . . . . . . . . . . . . . . . . . 2 . . . . . . . . . . . 1 . . . . . . . . . . 1
Postural Control Subtest Modulation of sensory input
affecting emotional responses. . . . 3 . . . . . . . . . . . 0 . . . . . . . . . . 1
Postural Control in Children with Autism Spectrum Disorder
Modulation of visual input affecting
DeGangi-Berk Test of Sensory Integration Normal Deficient emotional responses and
Postural Control subtest . . . . . . . . . . . . . . . . . . . 0. . . . . . . . . . 4 activity level . . . . . . . . . . . . . . . . . . 3 . . . . . . . . . . . 0 . . . . . . . . . . 1
Emotional/ Social responses. . . . . . . 2 . . . . . . . . . . . 1 . . . . . . . . . . 1
Figure 2. Results of the Pediatric Evaluation of Disability Inventory Behavioral Outcomes of
Sensory Processing . . . . . . . . . . . . 0 . . . . . . . . . . . 3 . . . . . . . . . . 1
Deficient Postural Control and Function
Items indicating thresholds
Pediatric Evaluation Mean of Range of Normative
for response . . . . . . . . . . . . . . . . . . 1 . . . . . . . . . . . 0 . . . . . . . . . . 3
of Disability Inventory Scores Scores Range
Self-care function . . . . . . . 13.35 . . . . . . . . 9,9,12.6,22.8 . . . . . . . 30-70
Mobility Function . . . . . . . 31.65 . . . . . . 9,15.40,51.0,51.2 . . . . . 30-70 The children with deficient postural control demonstrated
Social Function . . . . . . . . 12.025. . . . . . . 2.5,9,16.9,19.7 . . . . . . 30-70 deficits in both self-care and social function as measured by
the PEDI. Problems in these areas could be a result of both
disCussion decreased postural control and decreased sensory processing.
The results of this study support the hypothesis that children A common characteristic of ASD is decreased social function:
with autism spectrum disorder have deficits in postural control. these results help support current literature and also bring to
In addition, the results support that children with ASD also have view the deficits found in self-care function. An important
difficulties in function – specifically self-care and social function. factor for children within schools and the home is to be able
Lastly, the results characterize children with ASD as having to perform basic self-care tasks such as going to the bathroom,
various sensory processing difficulties. washing hands, feeding, and dressing. (continued on next page)

NDTA NETWORK • JANUARY/FEBRUARY 2014 • DEVELOPING THE PLAN OF CARE • 23


M E M B E R R E S E A R C H

Postural Control in Children with Autism Spectrum Disorder (continued)

These results suggest that children with ASD will have hindered typically seen as children with low tone or children with decreased
performance in all of these areas. endurance. This gives us a good understanding in regards to
The Sensory Profile is a thorough examination of several postural control; decreased postural control is not a reflection
sensory processing factors involved in an individual’s ability to of decreased tone for the four participants in this study.
process information from his or her environments. Although
all four participants were evaluated on all 23 items, several factors liMiTaTions and fuTure researCh
were reviewed further when the majority of the participants The study presented with several limitations. First, the study
scored either definite difference in performance or typical consisted of a very small sample (n=4) and were all male. Future
performance. When reviewing all 23 factors, the four participants research should incorporate both males and females and have
all scored definite difference in vestibular processing. Vestibular a much larger sample. Secondly, throughout the administration
processing is the ability to process input such as movement of The DeGangi-Berk Test, participants were very distractible
(acceleration or deceleration) and gravitational pull. The and inattentive, therefore making it difficult to maintain
vestibular system affects function such as posture and balance engagement in tasks. Although all four participants fit the age
and works closely with tactile, auditory, and visual information criteria and were able to follow simple 1 to 2 step commands,
that the environment provides. As a reflection of the close their attention to follow tasks in a proper sequence was low.
connection of the vestibular system to tactile and auditory Future researchers should confer about possibly breaking up
processing, three of the four participants scored definite difference tasks on a day by day basis as opposed to completing all tasks
in performance in both auditory and touch processing. Having on one day. Thirdly, most of the tasks found in the DeGangi-
definite difference in vestibular processing could transfer as Berk Test were novel to the participants. This novelty posed a
decreased postural control and decreased self-care function. If challenge for the researcher, the clinician and the participant.
a child is unable to process the environment’s stimuli appropri- Most participants required two or three sessions to complete all
ately as well as his/her body’s own movements, he or she will tasks. During one session a task may have been introduced to
inherently be unable to perform tasks requiring movement or the participant but not necessarily tested that day. Throughout
interaction with the environment or context. Another factor the week, the clinician worked on developing interest and under-
examined was modulation related to body position and standing of the task being asked of the participant. Eventually,
movement. This modulation correlates with the participant’s the participant was able to complete the task after several trials
decreased ability to process vestibular input. Three out of the and practice. This “practice” could have resulted in a learned
four participants scored either probable or definite difference in practice effect skewing results, but ultimately it was not a powerful
this factor. For example, if a child is unable to process auditory effect because all four participants scored deficient in postural
and tactile cues during functional tasks, his or her ability to control. And finally, along with the novelty of the tasks, the stan-
engage in a conversation will greatly be reduced. dardized wording instructions associated with each task proved
Among the scores ranging from probable to definite difference, difficult for the participants. Having standardized wording limited
several factors stood out as meaningful in this study. Participants the researcher’s ability to ensure that the participant understood
showed difficulties in fine motor/perceptual tasks. This could be the task and how to complete it. As the study showed, children
a result of both decreased sensory processing as well as deficient with ASD have auditory processing difficulties, and this may
postural control. As mentioned earlier, postural control allows an have been the issue. Further research should incorporate ways
individual to engage in table top tasks. If a child is unable to uphold to ensure participants are able to understand instructions given
his or her posture, the ability to manipulate objects and to perceive to them whether visually or verbally.
the world is decreased. Fine motor/perceptual skills are inherent
in self-care tasks such as dressing, grooming and feeding. CliniCal iMpliCaTions
Of all 23 factors, all four participants scored typical performance Children with autism spectrum disorder exhibit varying levels
in low endurance/tone, sensory sensitivity, visual processing and of deficiencies in sensory processing, postural control, and func-
sensory processing related to endurance/tone. These results tional skills. Postural control and sensory processing appear to
suggest that children with autism spectrum disorder are not be linked in development and provide a (continued on next page)

NDTA NETWORK • JANUARY/FEBRUARY 2014 • DEVELOPING THE PLAN OF CARE • 24


M E M B E R R E S E A R C H

Postural Control in Children with Autism Spectrum Disorder (continued)

foundation for functional and social skill development. This as deficits, along with auditory and touch processing and fine
study suggests that interventions addressing postural control motor/perceptual differences. Among function, children with
and sensory processing should be an integral part of occupational deficient postural control scored below the norm in both self-
therapy for children with autism spectrum disorder. More specif- care and social function. This study suggests that occupational
ically, interventions addressing self-care and social function therapy intervention should be geared toward increasing postural
should be addressed early on in intervention. control, self-care, and social function while also addressing
Children with ASD are diagnosed at a much earlier age than specific sensory processing needs characterized in children with
in the past. With this research, clinicians can begin intervening autism spectrum disorder. ■
and providing the resources for these children to develop social
and self-care skills through adaptation, compensation, and Marcella Nelson, MOT, OTR/L completed this study in partial
learning. The Sensory Profile provides clinicians a great view of fulfillment of her Master’s program at Texas Women’s
specific sensory processing issues that are found in children with University. She works at Reach Therapy Center/The Care
ASD. Sensory diets and sensory integration treatment should be Group, an NDTA Facility Partner as a Registered Occupational
Therapist. She can be reached at marcie.a.nelson@gmail.com.
focused on auditory, touch processing, and vestibular processing
to increase a child’s ability to interact with the environment. Mary Frances Baxter, PhD, OT, FAOTA is an associate professor
Ultimately, occupational therapists should focus on developing at Texas Woman's University (TWU), School of Occupational

This study suggests that occupational therapy intervention should be


geared towards increasing postural control, self-care and social function
while also addressing specific sensory processing needs characterized in
children with autism spectrum disorder.

adequate postural control in children with ASD. As children age, Therapy, Department of Health Sciences, Houston, TX. Dr.
their ability to succeed in school is highly dependent on partic- Baxter earned her doctorate in kinesiology from the University
ipation in indoor and outdoor tasks. Postural control will allow of Houston, an MA in occupational therapy with emphasis on
rehabilitation technology from Texas Woman's University, and
children the ability to engage in art classes as well as participating
her bachelor’s degree in occupational therapy from Colorado
in team sports such as soccer. Developing postural control and
State University. At TWU, she teaches graduate and under-
increasing a child’s social participation and ability to care for
graduate courses in neuroscience and neuro-based treatments.
them are crucial skills that occupational therapists can provide. Her research is based on neuroscience principles related to patient
intervention, including postural control across the lifespan.
ConClusion
The aim of this study was to determine if children diagnosed
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NDTA NETWORK • JANUARY/FEBRUARY 2014 • DEVELOPING THE PLAN OF CARE • 26


MONOGRAPH:

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