Arlyn G.

Moya

BSE - English

Article Review – “Bubble kid' success puts gene therapy back on track”

a. What are the relevant facts of this case?

Severe Combined Immunodeficiency (SCID) is an inherited primary immunodeficiency disease (PIDD)

that an infancy born without immune system due to a genetic defect. It is also known as “bubble boy”
disease. SCID patients who were diagnosed and treated early 3.5 months had a 91% survival rate and those
treated after 3.5 months had a 76% survival rate.

b. What are some ethical questions or concerns raised in this case?

The patients who suffered Severe Combined Immunodeficiency (SCID) had a possible consequence in their
treatment that can be fully recovered or temporary and “is it ethical that a child raise in isolation?, that is
also one of the concern that they think. For them, that it is not ethical to raise child in bubble.

c. Who are the stakeholders in this situation? Who are affected by the decisions made?

I think that the parents and the doctors are the one who makes decision and if something happen they can be
affected even the one who has the disease. Every decision that the one who is involved, can affect many
newborn babies as well.

d. What values influence the decision of each group of stakeholders?

For me, the values influence the decision is that everything is possible in the way they treat their patients
even there is no chance in surviving. And in the future many people will want to help those children with
disease.
e. What are some possible actions and their consequences?

Some possible action was that they will have many challenges that will come but even after many years
they can still help many new born babies that are born with this disease and any consequences that will
come they can still make it.

f. What do you consider to be the best action and why?

For me, the best action was when David had his normal life as a child even if it is just for a day. He can
enjoy playing with other kids as well as bonding with his family.