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    © All Rights Reserved
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    17 views60 pages

    SCES Biblio13060510230

    Uploaded by

    Andrea Cavalheiro

    Copyright:

    © All Rights Reserved
    Download as PDF or read online from Scribd
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    of 60
    po tt tt FEMINIST DISABILITY STUDIES EDITED BY KIM Q. HALL a Ser —_| Pros Suan sn oan INDIANA UNIVERSITY PRESS Bloomington and indianapolis Contents Acknowledgmens Reimagining Disability and Gender dough Feminist Disability Studies: ‘A Traduction eto @. HALL ‘Pant ONE Toward » Theoretical Framework for Feminist Disability Suadies 11 ‘ve Integrating Disability, eansforming Feminist Thenry / “10 Critical Divides father Body Tory and ‘he Question of Distlty/ ELLEN SAMUELS. 48, ‘PART Two Refiguing Litorauure 7 THREE, Invisible Disability: Gebngina Klege Sight Unseen / SUSANNAH HATZ 69 Foun Revising the Conpuscf the Madwoman: Further Notes toward (Feminist Disb Soe Theory of Menta lness/wLAZ ABET Doxarpsox 9 PART nee Inverrogating ness: Nation, deny, aed Ctizenship 115 FE The Color of Violence: Reflecting on Gnd Rac, and Disabity (Wartime /IROCALABREVELLES 17 15x Gwendalyn Brooks, Word War I and the Palites” of Rehabiation /PeNOUPER C. Fa3tES 36 SEVEN Revising the Subject: Dibaba “Thin Dimension Clear ight of Day and You Have Come Back/ CINDY LACOM 159 LioHT A Heritage of Abit Rhetoric American Feminism from the ‘Eugenics Period SHARON LAMP AND W. CAROL CLRIGH 176 ‘pant Foun Sewol Agency and Quoer Feminist Futures 109 ve Dist, Sex Radiclsm, and Policl Agency NY WILEERSOW 193 en Debating emit Futures: Sippery Soper Curl Ant ad ‘the Cas ofthe Def Lesa / ALISON RATER 218, ‘PART FIVE Incisions, Exclusions, and Tranformations 243 even Disparate bat Disabled: Fat Embodiment an Disabil Sts ‘TweLve Chronic ilnes and Hauatonal Egy: The Poles of Vsiity /xARIN ELIZABETH TUNG 263 "DARTEEN Res{Chipting Feminist heater through Disablity Theater Sltions from the Dist Pryjct AHS FOX AND JOAN LIPKIN ay Contributor 301 Index 315 ‘Acknowledgments "The Men for this projec emerge asa result of my participation in the 2000 National Endowment for Uhe Humanities Insate a Disabity Studies Fr thei rita insights, work, and genera bilianee 1am ‘Seep grateful tothe codiectrs, Rosemarie Garland-Thomson and Pal ‘Longmore and all the participants who contin o inform my thinking shout the body and identi. This Book would nos have Been possible without conversations that happened theze A couple of moths afer "nse the book, Pal Longmore died. Pal was super scolar and 1 poweral voice for disability righ hope this book woald have made im proud, arts of this book were originally published asa special issue of the ‘Navonal Womers tudes Associaton) and when Hearne that al cop ies ofthe special ese old ont, {decided to propose i ar «book with previously pblishe arcs revised asthe authors deemed desable, new ‘say and «new intodaston | would ike to thankall the contributors to ths volume fr sending metheirwark ad for weting such interesting, ‘thought provoking essays Ie is peg oak thei workin frist lsat tues aralale toa wider audience, ‘So mary people made possible the completion of dis project. Fam rtf to Kate Caras andl Dee Mortensen at Inana University Press for their eothovasm and pasince throughout the vets sages of ths Project. Tir continuous supprt ofthis project hasbeen vital sas been their support of me. Many frends and calleagues provided per sonal and intellectual community and fedack at rail times. For ask ing about my progress, rowing insight, and encouraging me, thanks in particular to Amy Hadnal, Beth Caro, Chris Cuomo, Gsle Turner, Po REIMAGINING DISABILITY AND GENDER THROUGH FEMINIST STUDIES An Introduction KIM Q. HALL Feminist dssity stoic, ke the gendered or dialed body, i more than oso of parts, Js a dab stdin sbows how dsb Is medic to bodily impairmest, feminist theory shows how gender i ineducbe to bslogial sex. However, understanding feminist dsb iy studle as simpy + combination of feminism and disability ste. literal edge en essen ite potential to intervene in theoretical ‘nd socal trinsormatin. A Rosemarie Gariand-Thomson observes in recent review ay ofthe Bld, feminist dba studies relmagines ‘lability (2005 3957). And, {would assert it also reimagines gene As such, eins tity ties des not just add dsabled woman expe- ences to scholarship i dsaity studies and feminist theory. Instead, 1s Garland Tomtom argaes in er coatsbuon to this volume, tans forms both el “Two recent events luminae the need for feminist ait analysis of ses, geer cls, sexuality andthe body andthe potenti of that anly- ts to provide crac iasights nto the mjlad forms of gendered oppres- sion i amsiry 207 maintrara US moda eadnesbroke the oy of| ‘e"Plow Angel” Readers learned the “Plow Ange” was Ashley. adi ble gil whose parents in 2004 had obtained approval from doctors and the ethcs commie at he Sete Childrens Hospital to pursue medical {ectment hat woul tp her growth and sexsl development. Asserting that Astley woald always have the motor and cognitive sls ofa three ‘month-ld baby. those who supported tis treatment catmed the tet ent would improve her quay ae by preventing fate disomiort ‘in trauma and by mag esi foe her parents to ake cate oer. Ashley wae sx yan ol tthe time ofthe treatment, whic consisted thigh dove eogen therapy and fusion of bone pats stp growth, ee «hysterectomy to prevent future menstruation and pregnancy, ad the removal of breast bade to prevent the development of an adult words ‘ress Ashley parents fer to the proceduresa the “Ashley Treatment and have defended thie decision as necessary to improve her quality of Ime, the Ashley Treatment ensures that Asleys body will ever develop the marks of wornanhood. No matter how ald Ashley gets, hex body il remain a childs body (Carson 209, 3). “Alay story sparked the outrage of many sabi right activi nd feminists. Philosopher Peter Singer weighed in with his support othe oct and paea’ decision, asserting that the procedures minimized Ashley’ satering and was bes for her an her fly (207) should be noted tha, nhs argument fr euthanasia, Singers chraceriatione ‘of dsbilty a burdensome and a mark of cminished quality of be ave not to pat t mi, made him the darling of cai rights ace and scholars. il, iis surprising how many people rapa unaware of Ashley’ story. n tel contest his book, Sharoa Lamp and Carol (Gegh rte eins for not speaking out against what they contend isan example of contemporary egenictestment of disabled hie and ‘Another recent event shat outraged many in queer, eins, and dis- biitycomsnuniis was the highly publicize gener vericaton esting forced upon Caster Sermenya, 2b eighteen year-old South Afcan runner who won the women’ Soo-meterraeat the IAAF (ntrational Asoc ton of Athletes Federations) World Championships fx Bertin in August 2009, Her stunning icory was mmediatelyflowedy workdwide mda speculation bout whether she woman and, thus, cgi o compete Jn wormed trad events. When members of the South Affian govern sete to consider aresolaton regarding Caster Semeny, Noland Mayende Si, the Miniter of Wornen, Chiliren and Pesons with Ds" abies in South Afri, spoke agunstthe violation of Semen harman rights (Ley 2009, 30) Alter some deliberation Semenya was ale to keep ‘the medal she won in Berlin in 20035 however, she wasn allowed 1 compet in otber tac events unl fly 201. Al thet of this woting, Semenya i ble to compete in womed track events, but te TAAP has not released the results f the sex determination tts it performed Con twoversy contines to surround Semenya participation In women tack sents (Claey 2010). Semenya who wat ate as gil has had to chr intrusive inguicy out her mscalar bil, deep vaice and comportent In their writings bout tis event, Alice Dreger (2009) and Ariel Levy 2009) ave into duced the mainstream policin the Une States to questions with which erin and quer thorns have long been cancers what makes 2 flail and a boy boy? Do sex chiraceitcs provide an unproble Sl unguestionble foundation for sex and gender ident? Wht the ‘eltionsp wen the body and gender! OM fist glance it may seem strange to dscss the controversy sur rou Semen victory in an introdsction toa hook about feminist ‘Sables, Aral Aske s widely perceived tobe disabled how ter Caster Semenya neers identifies as ao is widely perceived to te disabled. In ft, dominant conceptons of dst place wonld-ass athetsand dsbled people in eiferenteatgories, with the “overcoming tran” the only place where the two oveap in dominant discourse out dsl. Commentary ding the Oly i saturated with sto fis of ales who have overcome disabling impaemens, and various ‘special Olympics are held for athletes who ae disabled nthe exerom ing asative of daily is precisely throogh ats of athletic prowess that» dibled pero “overcomes” dsbity El Claes critique of the pervsie overcoming narrative shows ow ican be internalized ad can Inlaence even the mos ality poltczed disabled persons embodied unertanding (999.9) “Thinking aboot the teatmnt of Semonya and Ashley Xthroagh the lens of eno diabd gender snd disability enables a reimapning of lisa and gender in ways that contebute farther isight iat the Injustice aga both From a feminist diablty stidee perspective, both Semenja and Ashley Xhave extraordinary bodies and mainstream responses to bath reveal the material impictions af the normateRose- mare Gaiand: Thomson dtines the aormate a "the figure ated by fn rey of deviant others whose marked bods shore up the norms toni. [I s the constructed Weniyof those who, by way of ‘he holy configurations ad cultural capital they assume, can ep nto 2 postion of authority and wield tg power it grant then (1997 8 The normale gehder and sex are not challenged athe norma growth and development dictate how all should grow and deeop. The normates ‘glnst which both Ashley X and Caster Semenya are dened are the ea woman and thereby, the ideal man;a5 Simone de Beauvoir famous an now ney earlated remark, “One i not bor, bat rather becomes, woman (20,28) explains, woman is defined in relation to man ab efciency and lack, a the Other~a pot tha feminist theorists sch 2 ris Masion Young have suggested understands woman as “phystealy handicapped” (2005 42)* Within feminit disability studies the suggestion that “womans iabled by compulsory heterosexuality and. pateiccy i met with ambivalence Whie the im etalshesan portant concep connes tio between disability and gender i alo reflects (and sks perpetuating) dominant conceptions bya ck and decency. othe exten hat 1tis accompanied bya st to stow tha the asciton of women with soli sunjust 0 women. This association leaves in place abel nin- tentowally the idea tht diaailty einheremy contening and thst cera bol conditions tbensales are dain Thus uaderstod, a= ‘cereus reclamation and realaton of woman atthe expense a is- tied people Within feminist abt tui, exploring conceptl and ved connections between gender and daily helps to make vibe the historical and anging intreationship between al fom of oppression In er discussion af how feminist analyses of oppression would be enhanced by consdeston ofthe Ines of intectully disabled people (partici ntlectully dsb worten cia Canon writes rephras- ingFlaeth Spelman, "Does the existence of those who canbe defined as ‘complete women and mothers demand the exidence of others whe can- ot be granted womanhood and motherhood?” (2010, 8). The Adley ‘Treatment provides an afrmative answer to tat question, In esponse to the otrage many people expresed on Asle' behalf, Ashley: pent St up a webte to explain their decision and assure al concerned that they are good parents who simply want whats best for tee chil. Thee os includes an explanation for why they think of Asley a thee “il- low Angel "We cll her our Pillow Ange since sh 0 sweet and says right where we plac her usally ona pllow” (Ashley Treatment” 20¢7. Ashley “oweetes” and staying in her place rect cultural gendered ‘expectations of good ile gis splat afc by the fact that photos sccompanying media coverage have tended to feature Ale dessed in pink. Dresodn pink and perpetually smal, Ashley is presented as some tne wo will ways be ase, ea to-manage litle il "The assumption thar sable people cannot be sexual beings i Fea ture of dsabily oppression. the sme time, cogatvely ised people are ofen stereotyped as hypersexual. Bath assumption infor temp ously the AsMey Treatment. Ashley's parents and doctars and oth ‘ess wo defend their decison, seem unable to recone the dea of being,

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