Improving the

Quality of Life for

Your CML Patients:
A Patient Survey Analysis

A better way.
The survey was conducted in collaboration with the
French CML Patient Association (LMC France). The survey
was run to better understand the patient’s perception
of their BCR-ABL monitoring, in particular in relation to
the time it takes for them to receive their results and the
impact this has on their lives.
PATIENT’S SURVEY DISTRIBUTION
25%

20%

15%

10%

5%

0%
0-3 4-6 7-12 13-18 1,5-3 3-5 >5
MONTHS MONTHS MONTHS MONTHS YEARS YEARS YEARS

138 patients completed the survey, the demographics gave a

good spread across the population in terms of length of time
under a monitoring service.

DELIVERING FAST AND MEANINGFUL

RESULTS
 : According to you, what is the maximum
Q
acceptable time from blood sampling to
BCR-ABL result?
100%
Actual time to result 98%
Max. acceptable
75%
71%
62%
50%

25% 32%
26%

12% 10%
9%
0%
2 DAYS 7 DAYS 15 DAYS 30 DAYS
OR LESS OR LESS OR LESS OR LESS

Currently only 32% of patients receive their results within

15 days or less, while 62% declare 15 days or less as the
maximum acceptable time to result.

 : How do you receive your results vs how

Q
would you like to receive them?
Current Method Preferred Method
2% 4%
4%
24% 23%

51% 29%
5%
7%

16% 33%

Follow up visit Email SMS

Phone Post Other
Only 7% of patients currently receive their results by email while
33% would prefer email over any other form of communication.
MANAGING PATIENT ANXIETY AND
EXPECTATIONS DURING THE FIRST
18 MONTHS OF TREATMENT

Q: How would you qualify the time while waiting

for your BCR-ABL monitoring results?
LENGTHY
60%

50%

40%

30%
50% 30%
of newly 20% of patients
treated under long term
patients 10% monitoring
qualify it as qualify it as
lengthy 0% lengthy
<18 MONTHS >18 MONTHS

Q: How would you qualify your life while waiting

for the results?
ABNORMAL
70%

60%

50%

40%

61% 30% 28%

of newly of patients
20%
treated under long term
patients 10% monitoring
qualify it as qualify it as
abnormal 0% abnormal
<18 MONTHS >18 MONTHS

Q: How would you qualify your need to know the

results?
CAN’T WAIT
60%

50%

40%

30%
51% 27%
of newly 20% of patients
treated under long term
patients 10% monitoring can’t
can’t wait for wait for their
their results 0% results
<18 MONTHS >18 MONTHS

There is a strong correlation between the length of treatment

and the anxiety level induced by the waiting time to results in the
newly diagnosed patient group.
A PATIENT FOCUSED BCR-ABL
MONITORING
Q: Would you like to receive your results in 48h?
78% of patients answered YES
Fact: Today, 91% of the patients experience time
to result longer than 2 days for their BCR-ABL
results when the most rapid labs provide BCR-ABL
measurements on the International Scale (IS) in less
than 2 hours from receipt of the sample.

Q
 : How could the current situation be
improved for you?
Getting a copy of the report
Receive the results faster
More comprehensive explanation of the results
Receive results automatically
Getting a graphical report with history

KEY OUTCOME
There is a strong demand from patients to receive results
faster (<15 days) proactively.
According to the patient, faster results would reduce
their anxiety, improve the ownership of their disease and
significantly improve their quality of life.

ABOUT CEPHEID

Xpert® BCR-ABL Ultra

Simplified, standardized, fast testing for
improved CML patient management.

Cepheid’s 95 minute fully automated BCR-ABL monitoring

solution improves patient management in laboratories
around the world, delivering for everyone, the same
accurate, reproducible and standardised results on the
International Scale (IS), enabling clinicians to manage their
patients with the best standard of care in a timely manner.

Not available in all countries.

The data presented in this document is extracted from an internet survey conducted
by Cepheid with the French CML Patient association (LMC France) in Nov 2013.
www.lmc-france.fr

CEPHEID
904 Caribbean Drive
Sunnyvale, CA 94089 USA
TOLL FREE +1.888.336.2743
PHONE +1.408.541.4191
FAX +1.408.541.4192

EUROPEAN HEADQUARTERS
Vira Solelh
81470 Maurens-Scopont, France
PHONE +33.563.82.53.00
FAX +33.563.82.53.01
EMAIL cepheid@cepheideurope.fr
www.Cepheidinternational.com

D19681 – 08/30/2020