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Journal of Intellectual Disability Research doi: 10.1111/j.1365-2788.2007.00952.

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volume 51 part 11 pp 913–922 november 2007

Hearing aids: expectations and satisfaction of people


with an intellectual disability, a descriptive pilot study
A. Meuwese-Jongejeugd,1 H. Verschuure2 & H. M. Evenhuis1
1 Intellectual Disability Medicine, Department of General Practice, Erasmus University Medical Center, Rotterdam,
The Netherlands
2 Department of E.N.T., Audiological Center, Erasmus University Medical Center, Rotterdam, The Netherlands

Abstract hearing aids. All satisfaction domains as described


for the general population could be recognized.
Background In spite of an increased risk of hearing
Most participants were partially or totally depen-
impairment in persons with an intellectual disability
dent on carers in use and maintenance of hearing
(ID), rehabilitation with hearing aids often fails. We
aids.
performed a descriptive pilot study with the follow-
Conclusions Adults with ID may have explicit ideas
ing study questions:
and wishes about hearing aids and, if specifically
1 Do comparable elements as in the general popu-
asked, are capable of expressing these. Given infor-
lation contribute to expectations of and satisfaction
mation should be checked and repeated. In satisfac-
with hearing aids in adults with mild or moderate
tion with hearing aids, comparable elements may
IDs?
play a role as in the general population: benefit, cos-
2 To what extent do adults with an ID depend on
metics, sound quality/acoustics, comfort/ease of use,
carers in use and maintenance of hearing aids?
and service delivery. These findings, however, are
Method Study population: 16 adults with a mild or
from a small-scale study. Additional research is nec-
moderate ID and a recent diagnosis of hearing
essary to find out whether they are applicable more
impairment. Method: information by means of spe-
generally.
cially designed booklets; semi-structured interviews
prior to hearing aid fitting and 6 months afterwards. Keywords dependency, hearing aids, intellectual
Analysis: descriptive. disability, satisfaction
Results In total, 14/16 participants were able to
give reliable answers. Most were aware of their
hearing loss and familiar with reasons for hearing Introduction
aids. A minority expressed positive expectations.
Some expressed explicit wishes on the looks of In the past decades, researchers have reported that
adults with an intellectual disability (ID) may have
an increased risk of hearing impairment. This
Correspondence: Professor Heleen M. Evenhuis, Chair of Intellec-
tual Disability Medicine, Department of General Practice,
applies not only to children and adults with Down
Erasmus University Medical Center, PO Box 2040, 3000 CA syndrome (Buchanan 1990; Marcel & Cohen 1992;
Rotterdam, The Netherlands (e-mail: h.evenhuis@erasmusmc.nl). Evenhuis et al. 1992; Roizen et al. 1993), but also to

© 2007 The Authors. Journal Compilation © 2007 Blackwell Publishing Ltd


Journal of Intellectual Disability Research volume 51 part 11 november 2007
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A. Meuwese-Jongejeugd et al. • Hearing aids in persons with an ID: attitude and satisfaction

people with other causes of ID ( Wilson & Haire accept hearing aids. We have shown that insufficient
1990; Yeates 1992, 1995; Beange et al. 1995; Mul involvement of providers of ID services and
et al. 1997; Schrojenstein Lantman-de Valk et al. unfavourable acoustics may play a negative role in
1997; Evenhuis et al. 2001; Janicki et al. 2002; Lif- this process (Meuwese-Jongejeugd et al. 2005).
shitz & Merrick 2004). However, reported preva- McMillan et al. (2000) have shown that a deaf
lence figures vary considerably as a result of small awareness training for staff has a positive effect on
or selected study populations, different diagnostic carers’ knowledge of hearing impairment and
criteria and methods of data collection. We have hearing aid management, and on the use of strate-
recently completed a large-scale population-based gies to facilitate communication. In a pilot study,
epidemiological study among adults with ID in the we explored whether in adults with a mild or mod-
Netherlands, applying World Health Organization erate ID, comparable elements as in the general
criteria, which enabled us to estimate population population may contribute to expectations of
prevalences and to quantify risks in subgroups hearing aids and to satisfaction with the application,
(Meuwese-Jongejeugd et al. submitted). With a and to what extent they are dependent on carers for
population prevalence of 30.3%, the risk of hearing the use and maintenance of the devices.
impairment is indeed significantly increased, as
compared with prevalences of 16–17% in general
adult populations in high-income countries (Davis Methods
1989; Quaranta et al. 1996; Wilson et al. 1999). So,
especially in the perspective of the current transi- Study design
tion to community-based living in many countries, A descriptive pilot study was established.
timely detection and audiological rehabilitation
seem of paramount importance for communication
and independent functioning. Study group
In the general population, many persons with a We assumed that adults with a mild (IQ 55–70) or
hearing loss that would warrant use of hearing aids moderate (IQ 35–55) ID would have sufficient com-
do not own such devices (van den Brink et al. 1996; munication skills to participate in the study, under
Smeeth et al. 2002). It was demonstrated during the the condition that the researcher was an ID physi-
early 1990s that acceptance of hearing aids was cian with many years of experience in communicat-
positively influenced by experienced functional ing with persons with an ID. Sixteen adults with a
problems, which were not always related to the recent diagnosis of hearing impairment, defined as
severity of hearing impairment (Mulrow et al. 1990; a loss of more than 25 dB at the best ear, averaged
Stephens et al. 1990). In the past decades, major over 1, 2 and 4 kHz (Evenhuis & Nagtzaam 1998),
improvements in quality of sound and cosmetic were recruited from an implementation study of
appearance of hearing aids have been achieved. audiological rehabilitation in ID services, which was
Nevertheless, usage of hearing aids still appears to in progress in 2002. The degree of hearing impair-
be strongly related to perceived benefit (Smeeth ment was classified as mild (losses of 26–40 dB),
et al. 2002). But perceived benefit is not the only moderate (41–60 dB), severe (61–80 dB), or pro-
issue that determines satisfaction with hearing aids. found (over 80 dB) ( World Health Organization
Based on a review and synthesis of published work, 1997). Written informed consent was obtained from
followed by an additional survey (structured inter- the participants and/or their legal representatives.
views), Cox & Alexander (1999) categorized the
important elements in satisfaction with hearing aids
Methods
in six domains: benefit, cosmetics and self-image,
sound quality/acoustics, comfort and ease of use, The audiological rehabilitation programme included
costs, and service. dissemination of specifically designed information
In adults with an ID, rehabilitation with hearing booklets (Meuwese et al. 2002), hearing aid pre-
aids often fails or is not even started. It is often scription and training, training of staff, and advice
assumed that people with an ID do not easily on optimization of acoustic circumstances

© 2007 The Authors. Journal Compilation © 2007 Blackwell Publishing Ltd


Journal of Intellectual Disability Research volume 51 part 11 november 2007
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A. Meuwese-Jongejeugd et al. • Hearing aids in persons with an ID: attitude and satisfaction

(Meuwese-Jongejeugd et al. 2005). All participants ‘behind the ear’ hearing aids. However, client F
were interviewed individually by the researcher received ‘in the ear’ hearing aids, because he
before, and 6 months after, the introduction of insisted on having these owing to his glasses. A
hearing aids. Topics of the semi-structured inter- speech and language therapist to provide hearing
views were related to the research question (Appen- aid habituation and training was not available to
dix 1). The interviewer used an open interview four participants. Acoustical circumstances had not
technique, posing short simple questions, and asked been assessed in the living rooms of four partici-
the clients to illustrate their answers whenever this pants, and were found unfavourable in the living
was relevant. During the interview, it was regularly rooms of five participants, but this had not been
checked with the interviewee whether the informa- corrected during the time span of the pilot study.
tion was correctly understood. In case of answers
regarding colours, it was checked whether the par-
ticipant could correctly point out the specific Discussion of findings
colour. Each client was first tested on ‘acquiescent
Knowledge and expectancies before hearing aid fitting
responding’: the tendency of providing the inter-
viewer with desirable answers (Appendix 2) Interviews before hearing aids were adjusted, were
(Cummins 1997). The interviews lasted around obtained from 12 participants. Two participants (I
10 min each, and were recorded on tape after and K) were not interviewed prior to hearing aid
consent of the interviewee. The taped interviews fitting, for psychological or logistical reasons. Ten
were transcribed literally by an independent interviewees were aware of their hearing loss,
coworker. The analysis was performed in a qualita- whereas A denied it, and M was unclear about it.
tive, descriptive way. Reported positive and negative M, however, indicated her preference for sitting at
experiences were compared with the domains of the ‘table for deaf people’, because ‘that is with ges-
satisfaction, as identified for the general adult popu- tures, and there I can express myself better’. Only
lation (Cox & Alexander 1999): benefit, cosmetics four interviewees appeared familiar with the infor-
and self-image, sound quality/acoustics, comfort mation booklet. After the first interview, booklets
and ease of use, and service. The domain of costs were again handed to the carers. This resulted in 10
was not included, because in the Netherlands, out of 14 participants being familiar with the book-
hearing aids are reimbursed by health insurances. lets during the second interview. Although one of
them thought the booklet to be worthless and child-
ish (C), and another found it difficult, the other
Results eight said they appreciated it, which was expressed
as: nice, good or interesting. Three of them could
Study group and characteristics of rehabilitation
illustrate this: due to the booklet, they understood
Characteristics of the 16 participants are presented things better (N and P) and it gave practical infor-
in Table 1. Acquiescent responding testing identified mation (H).
two participants ( J and L), who were not able to All 12 clients knew why they would receive
give reliable answers. Hearing aids turned out to be hearing aids: ‘my ear doesn’t work’, ‘not hearing
a success in J, and a failure in L. The remaining 14 well’, or ‘to hear better’. The number of hearing
participants were six females and eight males in the aids was mentioned correctly by five and incorrect
age range of 30–67 years. Nine participants lived in by four, and three persons did not know. Based on
community-based homes, and five in larger residen- experience with hearing aids in parents or house-
tial settings. Nine had a mild, and five a moderate mates, six persons knew what hearing aids looked
hearing impairment. Ten participants were pre- like. E assumed that the hearing aid would be put
scribed binaural hearing aids, whereas four got uni- under his skin (he pointed at his chest) and from
lateral hearing aids because of asymmetrical hearing there linked to the ear with a wire. Five clients
loss or untreatable loss in one ear. Prescribed knew what hearing aids would do for them: the
hearing aids were analogue (6), digital (6) or hybrid sound would be louder (C and M), or they would
(2) (Table 1). All clients were primarily prescribed hear better (B, D and F). D added: ‘A little wire

© 2007 The Authors. Journal Compilation © 2007 Blackwell Publishing Ltd


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Table 1 Characteristics of participants, their hearing function and hearing aids

Speech and
Age Interval start Type HI in HI in Classification Number language
Sex (years) HA– interview of care Level of ID dB right dB left of HI HA of HA therapist Acoustics
Journal of Intellectual Disability Research

A 씸 48 6 months Inst Moderate 38 43 Mild Analogue 2 + Favourable


B 씹 54 6 months Inst Moderate 75 42 Moderate (R > L) Analogue 1 on L + Favourable
C 씹 45 6 months Inst/cb Mild – moderate 27 40 Mild Analogue 1 on L + Unfavourable
D 씸 36 6 months Inst Moderate 27 28 Mild Analogue 1 on L + Favourable
E 씹 60 6 months Inst Moderate 35 82 Mild (L > R) Analogue 1 on R + Favourable
F 씹 54 6 months Inst/cb Mild 38 42 Mild In-the-ear-canal 2 + Unfavourable
G 씹 55 6 months Inst/cb Moderate 38 37 Mild Digital 2 +→– Unfavourable
H 씸 54 6 months Inst/cb Mild – moderate 37 48 Mild Digital 2 + Unfavourable
I 씸 43 4 months Inst Moderate 60 55 Moderate Hybride 2 + Favourable
K 씹 30 6 months Inst/cb Mild 38 48 Mild Hybride 2 – Unfavourable
M 씸 47 1 month cb Mild 50 50 Moderate Digital 2 – ?

© 2007 The Authors. Journal Compilation © 2007 Blackwell Publishing Ltd


N 씸 66 6 months cb Moderate 62 47 Moderate Digital 2 – ?
O 씹 67 6 months cb Moderate 52 58 Moderate Digital 2 – ?
P 씹 38 6 months cb Mild 37 43 Mild Digital 2 – ?
Excluded participants because no relevant answers were given:
J 씹 57 Inst Moderate – severe 43 50 Moderate Hybride 2
L 씸 60 cb Moderate 45 45 Moderate Digital 2
A. Meuwese-Jongejeugd et al. • Hearing aids in persons with an ID: attitude and satisfaction

Inst, institutional based; cb, community based; Inst/cb, living in the community but using the facilities of the nearby institution; HI, hearing impairment; HA, hearing aids; ID, intellectual
disability; R, right ear; L, left ear; ?, not assessed.
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Journal of Intellectual Disability Research volume 51 part 11 november 2007
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A. Meuwese-Jongejeugd et al. • Hearing aids in persons with an ID: attitude and satisfaction

Table 2 Attitude towards hearing aids before application television and radio (B), and improved detection of
sounds (F: traffic and cat). In addition to under-
A ‘Don’t like it that I will get hearing aids’ (could not specify standing other persons better, P described a
this further) decrease in fatigue, which enabled him to work
C ‘If they trouble me, I won’t wear them, I won’t wear whole instead of half days.
them’ A special case is G, in whom hearing aids were
D ‘I am afraid that I will have to live with them all my life’
F ‘I like it, because I know that when I will have a little thing
an initial success after introduction under the guid-
like that, I will hear somewhat better’ ance of a speech and language therapist. During a
G ‘Give it a try; old age I think’ check-up of the hearing aids, the audiologist had
M ‘I want that it cannot be seen, but that there is one in it increased the volume of the hearing aids, which was
alright’ too loud for G, so his devices disappeared in a
N ‘On the 11th I will have to go to the ear doctor and then
they can check if I need a hearing aid, or maybe not’
drawer. Until the second interview (2.5 months
P ‘Honestly I am glad that I will receive it, because then I later), no action had taken place to solve this
will be able to hear a lot better’ problem. Fitting with hearing aids failed in three
participants (C, E and M). E and M did not experi-
ence any benefit, whereas for C, irritation of the
device in his ear and whistling dominated his expe-
that will move your ear’. F had heard he would
rience; benefit was neither reported nor denied.
have the hearing aids on trial first and was worried
Twelve participants were content with the looks
that he would be used as a guinea pig.
of the hearing aids (‘nice’, ‘good’, or satisfaction
Three participants expressed (moderately) posi-
with small size). E and M, in whom hearing aids
tive expectations (F, G and P) and three others had
failed, were not content with the visibility of the
a more negative response, which had to do with
hearing aids. All participants received skin-coloured
comfort (C) and fear of the lifelong aspect of the
hearing aids. Ten were content with this colour,
fitting (D), whereas A could not specify her attitude
although three of them had preferred red ones prior
any further (Table 2).
to the fitting, whereas two (B and O) would now
For client M, invisibility was important. Four
prefer brightly coloured ones (blue and red).
participants preferred brightly coloured hearing aids
Eleven participants reported problems with envi-
(blue and red), one a grey one, two were satisfied
ronmental sounds (Table 4). In five of these cases,
with brown, two had no colour preference and two
acoustics in the living rooms had been established
did not know.
as unacceptable. Eight persons were troubled by the
As a conclusion, most participants were aware of
loudness of sounds, caused by other people’s voices
their hearing loss and familiar with the reasons for
(A, D, K and P), the television set or radio (F and
hearing aids prescription. Given information was
M), the wind (F), or by everything (H and G),
remembered incompletely or incorrectly. Therefore,
which resulted in nonacceptance in one case (G).
information before and during hearing aid fitting
Two persons were troubled by persons talking at
should be checked and repeated. Effective informa-
the same time: D did not understand what was
tion might add to positive expectations of hearing
said, and K found it very tiring. Three participants
rehabilitation. About half of the group communi-
(A, C and N) were disturbed by humming or whis-
cated specific preferences for cosmetic aspects
tling sounds when other people were talking or
(bright colours, invisibility).
when the television was switched on. Indeed, envi-
ronmental sound is included in the adversiveness
Acceptance and satisfaction after hearing aid fitting
score in the Abbreviated Profile of Hearing Aid
Hearing aids were a success in 11/14 participants Benefit (Cox & Alexander 1995) and has been
(Table 3). With the exception of one, they received described by Kramer et al. (1995) as intolerance of
hearing aids on both sides. As reasons for success noise.
were mentioned: hearing (other persons) better (A, Five participants reported trouble with the
F, H, I and O), understanding other persons better hearing aids, caused by pain (B, N and P) or dis-
(D, K and N), understanding better what is said on comfort (C and M), whereas D removed her

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A. Meuwese-Jongejeugd et al. • Hearing aids in persons with an ID: attitude and satisfaction

Table 3 Reasons for success or failure of hearing aid fitting

Success or
failure Reason for success or failure

A + ‘I can hear better now. Sound of people. If they talk I can understand them’
B + ‘I can hear better what they say, on television and on the radio. If the hearing aid is out of
my ear, then I cannot hear so loud, very soft. I want a hearing aid just like this for the
other ear’
C – ‘The hearing aid wasn’t comfortable, it just irritated me. So I said: I take it off and will not
put it in for the time being’
D + ‘I can understand staff better, that’s important’
E – He could not tell the difference with or without. ‘I think it is a waste of money.’ Apart
from this, he thought the hearing aid to be too big. ‘People were staring at me’
F + ‘I think they are perfect. I had asked for these (‘in the ear’ hearing aids) you know’. One
hears better, I can hear the oncoming traffic better. And if my cat is miaowing a few
houses down the block, then I know exactly: that’s my cat’
G +→– Hearing aids did help him at the start but: ‘Some bloke messed with them. I am not going
to mess with your (interviewer) things either, put things loud. It drives me crazy’
H + ‘I can hear better’
I + ‘Without hearing aids I can not hear it, hearing aids make you hear other people better’
K + ‘Can hear better what we are talking about’
M – She found it a nuisance when hearing aids were inserted in the ears and were taken out
again. Apart from this, she thought she would receive one hearing aid only. ‘They are in
an envelop in the hearing aid shop, but I won’t wear them, I’m not going there anymore
for these aids, if I can communicate well like now’. ‘It was louder with the hearing aids.
But I can talk more easily without them’. ‘I didn’t like these things behind my ears. I want
to have something that you cannot see. I would like to give that a try’
N + ‘Carers had to say things a few times, and I said: I don’t understand it. Now I understand
everything’
O + ‘If they are in my ear, I can hear more easily, if somebody starts to talk to you I can hear it
more easily’
P + ‘If somebody says something to me, I can hear things better’. ‘I work on a school as a
caretaker. Before, I had to copy something, say two or three times, and then I came back
with five or six. And then they said: no, we’ve ordered two or three. And then I said: I
didn’t hear it’ From January I worked half days, April 1st I received my hearing
aids, . . . and since 14 days I am back to working all day’

hearing aids during meals, because of fear that her that Kramer et al. (1995) described as fundamental
ears would start itching afterwards. Four persons in auditory disability: distinction of sounds, auditory
reported persistent humming or whistling sounds localization, intelligibility in quiet as well as in noise,
after hearing aid fitting (A, C, E and I). Three par- and detection of sounds. Fatigue has been described
ticipants with such complaints attended their as adding to disability, because of the constant effort
hearing aid dispenser, who had his shop next door to hear and respond appropriately (Hétu et al. 1988;
and successfully ‘did something about it’. In one Kramer et al. 1997; Grimby & Ringdahl 2000). Cos-
participant with pain, the problem still existed at metic aspects, especially the visibility of hearing aids,
the time of the interview, 6 months after hearing aid demonstrably influenced acceptation and satisfaction
fitting. in some cases. Although a wish for beautification of
We conclude that, like in the general population, hearing aids by bright colours was regularly
perceived benefit appears to play a central role in expressed in this group, this did not seem to be
acceptance of hearing aids by adults with ID. crucial for acceptance. Disturbing environmental
Reported benefit related primarily to the five factors sounds were reported in a majority of cases and may

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A. Meuwese-Jongejeugd et al. • Hearing aids in persons with an ID: attitude and satisfaction

Table 4 Hearing aids and environmental sounds

A ‘When you are talking to somebody, then it’s really loud and it hums’. ‘If the radio is turned on, if there’s music, it hums’
B He is troubled by the sound of the wind when he is wearing his aid: ‘When I have to do some shopping (on his bicycle),
then the wind goes hoeoeoe, but the wind doesn’t bite’
C It started to whistle and to hum in the living room when he was with others. Then he removed it from his ears.
D ‘If I go to my work and put it in, then I hear people talk very loud. I rather have soft language. Sometimes I hear my
neighbour talk very loud, then I have these fears, but then I just look for staff’. ‘If people are talking with each other, I
can’t hear anything’
E No trouble with sound
F They make a lot of noise in the bus; however, in a touring bus they do not. He explains that the engine in a touring bus
is at the back instead of in the middle, as in an ordinary bus. He does not wear the hearing aids in the kitchen where
he works because of the noise. He is troubled by loud music in the living room and then asks if the volume can be
turned down
G The fitting with hearing aids failed in spite of an initial success. The volume which was increased by the audiologist
appeared to be too loud for G. No action was taken by carers to solve this problem.
H ‘If I wear them, everything sounds so loud’. ‘At my work during coffee break and with sowing and hammering I turn
them off ’. ‘If there is a little noise, like (coffee) cups and so on, then I take them out of my ears’
I No trouble with sound
K ‘At the fair it usually hurts a lot, because of the very big music boxes’. ‘When people are talking at the same time, it is
very tiring’. ‘I like to simply listen at people, but they shouldn’t have loud voices. Then I say: take it easy’
M She does not like thunderstorm and ambulances with wailing sirens or television sounds that are too loud
N ‘When the television is too loud I hear cracking, cracking noises’
O No trouble with sound
P ‘If somebody talks loudly, they are used to do that of course, then I say: not too loud’

lead to nonacceptance. Uncorrected poor acoustics asked. Elements that define satisfaction with
in part of these cases have most likely contributed to hearing aids in the general population (Cox &
the problems. A majority complained of pain and Alexander 1999) can all be recognized in positive
other discomfort. Discomfort may disturb accep- and negative experiences, reported by this group.
tance, and should be addressed immediately. Benefits, as described by most participants, were
However, six participants appeared totally depen- completely comparable to fundamental aspects of
dent on carers, six partially, and only two with a mild auditory disability (Hétu et al. 1988; Kramer et al.
ID were totally independent. Especially for problems 1997; Grimby & Ringdahl 2000). Although the
with environmental sounds and with comfort of interviews usually did not last longer than 10 min
hearing aids, dependency on carers may be and answers might be short and simple, problems
unfavourable. This was shown in the fact that, in with cosmetic aspects, sound quality and acoustics,
spite of given staff trainings, such problems had comfort and ease of use, and service provision
mostly remained unattended until the second inter- were all clearly articulated and illustrated. Total
view, 6 months after hearing aid fitting. Effective or partial dependence on carers and hearing aid
help for loudness of noise or discomfort was only dispensers, even among those with mild IDs, may
given to three participants who had a hearing aids hinder timely solving of problems as background
dispenser next door, which illustrates the importance noise or pain and discomfort caused by the
of easily accessible service. hearing aids.
Although this was just a descriptive pilot study,
not providing any quantitative information, it gives
Discussion
some clear indications for improvement of service
This small pilot study demonstrates that adults with provision to this group and for research.
a mild or moderate ID are capable of expressing 1 Although in this pilot, benefits of audiological
their opinions on, and experiences with, hearing rehabilitation were articulated by a majority, this is
aids, provided that simple, concrete questions are not scientific evidence. Well-designed studies of

© 2007 The Authors. Journal Compilation © 2007 Blackwell Publishing Ltd


Journal of Intellectual Disability Research volume 51 part 11 november 2007
920
A. Meuwese-Jongejeugd et al. • Hearing aids in persons with an ID: attitude and satisfaction

acceptance and effects of intervention are urgently Acknowledgements


needed, as a basis for improvement of rehabilitation
This research was financed by grants of the Nether-
in this group.
lands Organization for Health Research and Devel-
2 Giving ID clients a choice in the looks of hearing
opment (ZonMw 97-06-012), the Amantia
aids may positively influence acceptance. Although
Foundation and De Bruggen Intellectual Disability
we do realize that ‘in the ear’ hearing aids may not
Centre, Zwammerdam, the Netherlands. We are
be an option to every person with an ID, because of
grateful to all persons who participated in the inter-
the more complicated handling and vulnerability, it
views. Alireza Ghandi typed the interviews.
certainly may be an option in selected clients. Prac-
tical barriers to obtain coloured devices, e.g. after a
prolongued hearing aids training, should not auto-
matically preclude a choice of coloured devices in References
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huisartsenpraktijk [Hearing loss in people with Accepted 14 December 2006

© 2007 The Authors. Journal Compilation © 2007 Blackwell Publishing Ltd


Journal of Intellectual Disability Research volume 51 part 11 november 2007
922
A. Meuwese-Jongejeugd et al. • Hearing aids in persons with an ID: attitude and satisfaction

Appendix 1: Topics of the interview before booklet? Did the booklet help you with your
and after the start with hearing aids hearing aids?
(translated from Dutch) 7 What do other people think of your hearing
aids?
Interview before the start with hearing aids
8 How does it feel to have the hearing aids in
1 I am told that you will receive hearing aids. Why
your ears?
will you receive hearing aids?
9 Do the hearing aids hurt you every now and
2 Did you notice yourself that you can’t hear
then?
properly?
10 Are there sounds that bother you?
3 How will those hearing aids help you?
11 Who puts the hearing aids in your ears?
4 What do hearing aids look like?
12 Who takes the hearing aids out of your ears?
5 Would you like to receive coloured hearing aids?
6 Will you have one or two hearing aids?
7 What do you think about the hearing aids that
you will receive? Appendix 2: Client testing for acquiescent
8 Who told you that you will receive hearing aids? responding (Cummins 1997)
What did he/she tell you?
Procedure:
9 Did your carer show you a booklet on hearing
The primary carer may be present for the adminis-
aids? Can you remember what is in the booklet?
tration of the test. However, if they are present, it is
Can you describe a picture in the booklet? What
essential that:
do you think of the booklet?
1 They be instructed to make no response whatso-
10 Do you know other people with hearing aids?
ever to the questions as they are read to the
11 What do you think about those hearing aids
client.
12 Do you have any questions about the hearing
2 They must be located outside the client’s visual
aids?
field.
13 Do you have anything to add about the
hearing aids? Administration:
After checking that the carer is informed as above,
Interview after the introduction of hearing
and the client is comfortable and ready to respond,
aids
carefully and slowly read each question:
1 What do you think of your hearing aids?
1 Point to the client’s watch or some item of
2 Do the hearing aids help you?
clothing.
3 Do you wear the hearing aids all day?
‘Does that (watch) belong to you?’
4 What do you think of the way the hearing aids
2 Do you make all your own clothes and shoes?
look like?
3 Have you seen the people who live next door?
5 What do you think of the colour of the hearing
4 Did you choose who lives next door?
aids?
6 Are you familiar with this booklet (booklet is Scoring:
shown)? Can you remember what is in the If a positive response is provided to items 2 and 4,
booklet? Can you describe a picture in the no further testing should take place.

© 2007 The Authors. Journal Compilation © 2007 Blackwell Publishing Ltd

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