Professional Documents
Culture Documents
Submitted to
Tribhuvan University
Submitted by
Group D
2076
FAMILY HEALTH EXERCISE, 2076
We, the following students of MBBS third year have produced this report as an
outcome of Family Health Exercise Field. We have invested our sincere efforts and
consider this work to be original.
Group D
Table A: Group members
5 23 Devraj Mahato
6 24 Dewendra Bishwas
7 91 Sadhana Subedi
This report has been accepted and forwarded for final examination.
…………………………
Head of the Community Medicine Department
Gandaki Medical College
Date:
i
GROUP MEMBERS
First row (Left to Right): Sadhana Subedi, Binita Basnet, Chiranjibi Sharma
Second row (Left to Right): Dewendra Bishwas, Devraj Mahato, Bom Bahadur Resmi
Thapa, Bikrant Khanal
ACKNOWLEDGEMENT
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Having successfully completed our family health exercise, we would like to extend
some words of gratitude to all those people without whom it would not have been
possible to accomplish our task.
First and foremost, we would like to extend our honest and heartfelt gratitude to all
the patients and their families for being so kind, helpful and cooperative throughout
the whole exercise, thereby providing us with an overwhelming learning experience.
We particularly feel indebted towards Principal Prof. Dr. Rabeendra Prashad Shrestha
and the Department of Community Medicine, Gandaki Medical College, Pokhara for
guiding us from day one, through orientation, to this day of our completion of task, in
every way. We would like to thank our respected faculties from the department of
community medicine, Head of department Prof. Dr. Ishwari Sharma Poudel, Dr. Hari
Prasad Ghimire, Dr. Bimala Sharma, Dr. Nirmala Shrestha, Dr. Sharad Koirala, Dr.
Saurabh Kishor Sah, Dr. Nisha Gurung, Mr. Ishori Bhandari and Ms. Kiran Adhikari
Subedi for providing us with the essential materials, continual support, guidance and
feedbacks throughout the exercise.
We are thankful to our supervisor Associate Prof. Dr. Bimala Sharma for helping us
throughout the exercise with her proper guidance, support and regular feedbacks.
All the hospital staffs who have helped us find the cases from the hospital records or
in any other way also deserve our sincere thanks. Thanks are also due to Regional
Tuberculosis & DOTS center, Pokhara for helping us to find the cases. We are
grateful to the hospital administration of GMCTH for the benefits provided to our
patients.
Lastly, we express our gratitude to the family members who provided their precious
time during family visit and seniors, friends and every other individual who have
helped us in one way or the other to successfully accomplish the Family Health
Exercise.
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LIST OF ACRONYMS / ABBREVIATIONS
Approx. Approximate
BD Twice daily
Cap Capsule
CNS Central Nervous System
CVS Cardiovascular System
DLC Differential leukocyte count
ESR Erythrocyte Sedimentation Rate
GMCTH Gandaki Medical College Teaching Hospital
DM Diabetes Mellitus
Hb Haemoglobin
HTN Hypertension
HOD Head of Department
Hpf High power field
KAP Knowledge, Attitude and Practice
LPG Liquified petroleum gas
MBBS Bachelor of Medicine and Bachelor of Surgery
mm of Hg Millimetre of mercury
NS Normal Saline
OD Once daily
H Isoniazid
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R Rifampin
Z Pyrazinamide
E Ethambutol
S Streptomycin
CRT Cardiac Resynchronization Therapy
DoHS Department of Health Services
NDHS Nepal Demographic and Health Survey
Etc. Et cetera
DOTS Directly Observed Treatment Short Course
UTI Urinary tract infection
LMP Last menstrual period
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EXECUTIVE SUMMARY
The Family Health Exercise was a great opportunity to learn about the disease process
in the family. With valuable guidance from the Department of Community Medicine
(DCM), we studied five different families with different types of illness. We tried to
learn the various ways in which the illness has affected the family and also in
retrospection, how family values, willingness, health seeking behavior affect the
causation, progression and outcome of the illness.
The family health exercise was conducted with the objective of studying the illness of
a person and analyzing the factors
» lifestyle, education, family environment, socioeconomic condition
» culture, belief, practice, health seeking behaviors, gender status in the family
» Knowledge, Attitude and Practice (KAP) regarding the illness which affect the
course and outcome of the illness and explore the social, psychological, and economic
impact of the illness on the patients and his families.
An orientation session was conducted by DCM, during which fifteen groups were
formed from A-O. We belonged to group D with total seven members. Following the
session, various literatures were reviewed, cases were selected as per the criteria
provided and the hospital records were reviewed.
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We took a case of 33 years male from Amarsingh suffering from pulmonary
tuberculosis. Pulmonary tuberculosis was chosen as per the criteria of infectious
disease. His family was a joint, upper middle-class family who believed in modern
treatment system but not in traditional healing practices. To fulfill the non-infectious
disease criteria, a 49 year old female with Breast carcinoma from Dulegauda was
chosen. There was mainly economical and psychological impact of the disease in this
family. A male of 79 years from Rambazar with the case hemiparesis was sort out
from GMCTH for the criteria of physical disability. His family was economically
stable and believed in modern treatment system of medicine. A case of Alcohol
dependent syndrome was chosen as to meet the guideline of psychosomatic illness.
He was a 26 year male from Kahukhola, his illness had physical, psychological as
well as financial burden on the family. 35 years female from Amarsingh with CKD
was the case of our choice. Patient had to go for dialysis twice a week in GMC. Her
married daughter stay with her and takes care of her. We were able to meet our
objectives of FHE in each of the families that we visited. From how the low socio-
economic status of the family affects the disease and its progression to how even well
off families play a significant role in acquisition of the disease was learnt.
Thus, we concluded that different aspects of the family like socio-economic status,
educational status, knowledge, attitude and practice, customs and traditions have a
great role in the causation, progression and recovery from disease. Once the patients
leave the hospital premises we as a future medical professional are completely
unaware of disease progression, treatment compliance and recovery of patient. During
that period family plays a great role in helping the patient to cope with his disease.
The socioeconomic status has a major role on the reach towards proper treatment and
hence determines the prognosis of any disease. Educated people have good KAP
about the disease which helps them and their family to seek proper treatment, care and
prevention of complication.
Lastly, we would like to thank the Department of Community Medicine for giving us
this opportunity to understand various dynamic aspects of family, thereby helping to
broaden our vision regarding the outlook of disease. By this means we have learnt to
look beyond the level of individual and more towards the impact of disease on the
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family and vice-versa.
TABLE OF CONTENTS
LIST OF TABLES
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10 Activity profile 98
11 Access and control profile 99
LIST OF FIGURES
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PLAN OF ACTION
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CHAPTER 1
Introduction
Family
“The family is a group of individuals with a continuing legal, genetic and or
emotional relationship.” -American Association of Family Practitioners.
Family is a group of biologically related individuals living together and eating from a
common kitchen. Family is the primary biological, social, cultural, epidemiological
unit in all societies.
Health
“Health is a state of complete physical, mental and social well-being but not merely
absence of disease or infirmity.”- WHO (1948).
Family health
Family health is the situation in which each and every member of a family is able to
experience optimal level of physical, mental, social and spiritual well-being and not
just merely the absence of disease or infirmity.
Such healthy interaction between family members gives rise to the health of
individual of the family and to the health of the family as a unit of society thus,
contributing positively to community and national development.
Importance of Family Health in Public Health
Coverage of all aspects of health
Cost effective
Comprehensive care
Integration of health care
Organized effort
Research
Participatory
Easy to monitor and evaluation
Accessibility
As per curriculum, the Family Health Exercise enables its students to look at the
complete picture and have a holistic approach of health and disease. The community
diagnosis program during the first year and family health exercise during third year
are integral parts of the community oriented MBBS curriculum. While the first year
community diagnosis program enabled us to look at the community as a whole and
understand the various aspects of its relationship to health, the third year family health
exercise was a more in-depth study about the dynamics of family and its relationship
to the various aspects of disease.
In family health exercise, we studied individuals living in families having five
different types of illnesses, exploring the various ways in which the illness has
affected the family and also in retrospection try to find out how factors like the family
values and culture, environment, lifestyle, economic status, beliefs, health seeking
behavior had any role in the causation, progression, prevention, control, treatment and
rehabilitation of illness. We took up the family unit and explored each and every facet
of its interrelationship with health.
We also looked at the gender status in the family and analyzed what role it plays in
the various aspects of disease and health in the family set up.
General objective:
To understand the socio-economic and psychological aspects of illness and the
roles of gender and asset ownership within the family in causation,
progression and the management of the disease, including follow-up.
Specific objectives:
To know the detailed history of the disease in the patient
To learn the status of the factors in the family, those directly or indirectly
affect the health of an individual
To describe the socio-psychological and economic pressure on the diseased
individual and on the family
To assess the Knowledge, Attitude and Practice (KAP) of the patient and
his/her family regarding the disease, its prevention and management
To describe the consequences of the disease on the patient, his/her family and
community
To assess the gender status in the family and effect of gender status on health
To advice the patient and the family members to change the KAP regarding
the illness, if necessary
To motivate the patient for regular follow-up as necessary
Methodology is the case study method involving qualitative, quantitative tools and
techniques. It deployed following tools and techniques during our study.
a) Orientation
b) Group division
c) Group discussion
d) Case selection
e) Review of hospital records
f) Literature review
g) Family visits
h) Consultation with supervisor
i) Case analysis
j) Report writing
a) Orientation
The orientation classes (2076-Poush-8th to Poush-10th) regarding the Family Health
Exercise was organized for us. We were empowered with the knowledge and the
experiences shared by all the teachers. We were told what we were expected to do and
given the guidelines so as to carry out the exercise. We were also enlightened with
classes on gender analysis.
b) Group division
The class was divided into a total of 15 groups. Our group was of 7 members.
c) Group Discussion
We had group discussions for selection of cases, formulation of tools, work
distribution, preparation for family visits, report writing and interpretation of our
findings.
d) Case selection
As per the requisite given to us, five cases were selected from the different wards and
OPD of GMCTH and other health centers in consultation with our faculty members
Infectious disease: Pulmonary tuberculosis
Non-infectious disease: Breast Carcinoma
Physical Disability: Hemiparesis (Stroke)
f) Literature review
Different text books and lecture notes on community medicine, clinical medicine, and
research methodology and communication skills were reviewed. We also reviewed
reports of our seniors and several web sites relevant to our exercise.
g) Family visits
Following the addresses and instruction given by the families, we made three visits
per family. The first visit was more or less introductory and we strengthened our
rapport with the family and enquired generally about the family. The second visits
were for more detailed discussion on the illness and its impact on the family. We also
used our gender analysis tools in the same visit. The third visits were more or less like
bidding adieus to the family. We asked whatever questions were remaining and
answered their queries. And we were supervised by our group supervisor, Dr. Bimala
Sharma in different visits.
i) Case analysis
We all the group members discussed about each and every case and compiled all the
relevant information for our report.
j) Report writing
We tried to write a comprehensive report on our family health exercise encompassing
all the information and analysis we had acquired.
During the entire course of our family visits, it was really challenging for us to
manage time for our autopsy postings and allocate time for family visits in different
families parallely. We, all the group members, collected fund and used it for all the
resources to conduct our field report. Our group arranged the transportation fare
needed during our visits to the families. We also managed cost for the tools (like
questionnaire, observation checklist, gender analysis tool) and the printing of report.
Case summary
In this chapter we have discussed about the five different cases focusing on the case
selection, detailed case history, impact of family on disease and impact of disease on
family.
Table 2: Case details
S. Category Name of patient Age/ Diagnosis Case Address
N. Sex identified
from
1. Infectious Bal Jung Gurung 33/M Pulmonary Regional Amarsingh,
disease Tuberculosis Dots Pokhara
Center
2. Non- Maya Devi 49/F Breast and GMC Dulegauda,
infectious Sigdel Ovarian Tanahun
disease Carcinoma
Introduction
Tuberculosis (TB) is globally emerging problem due to its correlation with HIV-
AIDS. Tuberculosis is often caused by Mycobacterium tuberculosis. It commonly
affects the lungs and causes pulmonary tuberculosis. It can also affects the meninges,
intestine, lymph-node and other various parts of the body. Tuberculosis occurs
disproportionately among disadvantaged population such as those living in
overcrowded and substandard housing. There is an increased occurrence of
tuberculosis among HIV-positive individuals.
Clinical Manifestations
Chronic cough
Night sweating
Weight loss
Chest pain
Fatigue
Loss of appetite
Hemoptysis
Low grade fever
Problem Statement
Global scenario: According to the latest WHO Global TB Report 2018, Tuberculosis
Mortality rate was 23 per 100,000 populations, which exclude HIV+TB. As per the
Global TB report, 6000 to 7000 people are dying per year from TB disease, However,
TB death among registered TB patients was 3% (1,023 deaths) among 31,644
registered TB cases in FY 2073/74.
Nepal: During this reporting year, National Tuberculosis Program (NTP) registered
32,474 all forms of TB cases, which includes 31,723 incident TB cases (new and
relapse). Among all forms of incident TB cases (new and relapse) 18,000 (57%) were
bacteriologically confirmed (PBC) incident TB cases, 4,411 (14%) were pulmonary
clinically diagnosed (PCD) incident TB cases and 9,312 (29%) were extra pulmonary
incident TB cases reported during the reporting year. Out of total registered cases in
NTP, there were 11,889 (37%) female and 20,585 (63%) male.
Epidemiological Determinants
A. Agent Factors
1. Agent
Mycobacterium species especially Mycobacterium tuberculosis, also M.
avium, M. bovis, M. microti and M. africanum. They are slow growing
aerobes, non-motile, non-spore forming and non-capsulated acid fast bacilli,
arranged singly or in groups.
2. Source of infection
There are two source of infection:
Human source: Sputum positive and cases who haven’t received
treatment.
Bovine source: Infection usually from infected milk.
3. Communicability
Untreated patient is infective. Effective antimicrobial treatment reduces
infectivity by 90 % within 48 hours.
4. Mode of Transmission
Droplet infection and droplet nuclei.
5. Incubation Period
It may be weeks, months or years. It takes 3-6 weeks for the development of
positive tuberculin test after infection.
C. Environmental Factors
1. Poor quality of life and low socio economic status
2. Poor housing and overcrowding
3. Under nutrition
4. Lack of awareness of causes of illness.
5. Tuberculosis thrives in condition of poverty and can worsen poverty.
Case Study
We first met our patient in the Regional Tuberculosis & DOTS center. We were
searching through the files for selecting a case, when we came across this particular
case that could fit into the category of 'infectious disease'. Then we gathered
necessary information from duty staff there, contacted his family, and explained to
them about our family health program and requested for their support. They agreed to
help us.
Rationale
Tuberculosis is often regarded as barometer of social welfare and remains one of
major public health problem in Nepal. It is a chronic disease and requires active and
conscious participation of the patient and family. WHO estimates that around 45,000
people develop active TB every year in Nepal, Nearly fifty percentage of them are
estimated to have infectious pulmonary disease and can spread the disease to others.
Chief Complaints
Cough for one week
Difficulty in breathing for one week
Weakness
Weight loss by 5 kg
Physical examination:
The patient was comfortable, conscious, cooperative and well oriented to time place
and person. He was lying comfortably on the bed.
General condition:
Fair
Weight: 56 kg
Height: 5’5”
Vitals:
B.P.: 110/80 mmHg
Pulse: 80/min.
Temperature: 98.4 °F
Respiratory rate: 16/min
Cardinal signs:
Icterus – absent, Pallor – absent, Clubbing – absent, Cyanosis – absent,
Lymphadenopathy – absent and well hydrated.
Systemic Examination
Respiratory System
Family genogram
64 55
33 31
12
Objectives
To know about the disease progression
To access the knowledge attitude and practice of the family.
To know about the effect of disease on the family and the consequent change
in their KAP regarding this.
To evaluate their housing and environmental condition.
To evaluate the gender role through the gender analysis tool.
Activities
We utilized the second visit for gathering information. We talked to the patient and
asked about the health condition, enquired upon the compliance to the advices and
follow up. We obtained information of the patient and family about the knowledge,
attitude and practice about the disease, its causation, effects on the family and any
predisposing factors based on the semi-structured questionnaire we had prepared.
Outcomes
KAP on illness and health seeking behaviour
The family members seem to have a good KAP on common illness. They visit TB
center for regular sputum checkup since having positive TB patient in family.
Beliefs, Culture, Customs and Religion
The family follows Buddhism. Their beliefs, culture and customs are guided by
their religion and caste. All festivals, rites and rituals are followed as per their
religion and caste. Belief in lama is quite not present but they value traditional
healing.
Care and Support System by the Family Members
The family provides good care & support to the patient as is indicated by the
cleanliness of his room. He is alerted every day for regular medicine intake and for
regular health checkup by his family members.
On the patient
Physical and psychological: Initially patient felt fatigue and weight loss by 5kg.
Due to prolonged fatigue he was not able to perform his daily tasks. Because of
impairment in the daily performance he has got psychological disturbance and he
was tensed.
On social relationship
He was unable to attend social gatherings and functions due to hesitation. He was
quite conscious and worried about his medical condition.
On the family
Physical and psychological: Since patient was able to manage his finance and
livelihood properly and was able to take nutritive diets there was no such
psychological pressure regarding his illness in the family. He was able to continue
his job. Though he was slightly weak due to illness but it didn’t created much
difference.
On daily activities
Daily activities of the family members were not hampered by the disease because
he can visit hospital alone for medication and can perform his daily routine wroks
by himself.
On the community
As it is an infectious disease there is a chance of transmission to other people in the
community. He is in contact with many people due to his job and the risk of
transmission is increased as he doesn’t use mask or cover mouth with tissue paper
while sneezing and coughing. He even don’t wash his hand or use sanitizer after
coughing or sneezing. People except his family members doesn’t know about his
disease. Even the people in the office doesn’t know about his disease due to which
they don’t use any precaution and are at high risk to get infected.
Gender Analysis
Tool I: Activity profile
Table 3.3: Activity profile
Activities Women/Girls Men / Boys
Source of income
Agriculture
Business
Employment
Domestic routine works
Water related
Collection
Washing clothes
Cleaning dishes
Fuel related
Obtaining gas or kerosene
Cooking
Health related chores
Child immunization
Care during ill health
Activity profile helps to understand the trend of involvement of male and female in
several works in their household. It gives the pattern of work distribution in the
family. Here in this family the more daily routine household works are done by
female while outdoor works are mainly carried out by men.
Objectives
To know about the disease progression
To explore about the progression of the disease over the period of time
To counsel the patient and family members and encourage them for change if
necessary.
Activities
We called our patient and fixed the time of visit. We asked him about the change in
attitude toward the disease regarding its prevention and transmission. We
conducted a counseling regarding the importance of covering face while sneezing
and coughing, importance of mask and washing hands. We advice him to stop
drinking and smoking habit. Lastly we thanked the family for their cooperation and
support.
Outcomes
We convinced the patient to go for a follow up which they agreed. We made him
aware about the mode of transmission of disease and he agreed to use mask while
working outside. We also told that family members should also visit for sputum
examination. We taught them how the disease can be prevented by maintaining
personal hygiene and environmental sanitation.
Counseling
We counsel the patient that not to be more anxious about the disease. We also
assure him that disease will be cured after completion of DOTS and disease has
very less infectivity after initiating the Anti-tubercular treatment. We told the
patient not to smoke and drink alcohol.
Introduction
Cancer: “An abnormal mass of tissue, the growth of which exceeds and is
uncoordinated with that of normal tissue and persists in the same excessive manner
after the cessation of stimuli which evoked the change”.
Breast cancer: Breast cancer is a malignant proliferation of epithelial cells lining the
ducts of lobules of the breast.
Types of Breast cancer:
a) Ductal carcinoma in situ
b) Invasive ductal carcinoma
Ovarian cancer: Cancer that forms in the tissues of the ovary
Types of Ovarian cancer:
a) Epithelial ovarian cancer
b) Germ cell ovarian cancer
c) Stromal cell ovarian cancer
Clinical manifestations
Breast cancer
a) A lump or mass in the breast is present
b) Swelling of all or some part of breast
c) Pain in breast and nipple
d) Nipple retraction, nipple discharge present
e) Redness, scaly or thickened nipple or breast skin
f) Change in breast color, increasing in breast size and shape
Long term effect of Breast cancer: Fatigue, pain & numbness, headache,
lymphedema, menopausal symptoms, infertility etc.
Ovarian cancer
a) Abdominal bloating or swelling
b) Quickly feeling full when eating
c) Weight loss
d) Discomfort in the pelvic area
e) Changes in bowel habits (constipation)
f) A frequent need to urination
Complication of ovarian cancer: Ascites, extreme pain, bowel obstruction, edema of
extremities, pleural effusion, bladder obstruction.
Nepal: Breast cancer is the 2nd most common malignant disorder among Nepalese
women.
According to the Annual report of DOHS 2074/075, 1808 new cases of breast cancer
were diagnosed in Nepal.
Table 4.1: Status of breast cancer – 2074/75
Province Province Bagmati Gandaki Province Karnali Sudur
1 2 Province province 5 province paschim
province
11 cases 29 cases 1435 278 cases 47 cases 2 cases 6 cases
cases
Ovarian cancer
Global: According to the world cancer fund and American institute for cancer
research, ovarian cancer is the 8th most common occurring cancer in women. Nearly
300,000 new cases of ovarian cancer were detected in 2018.
Nepal: According to WHO, In 2017 Ovarian cancer deaths in Nepal reached 649.
Epidemiological Determinants
A. Agent factors: *Human Cytomegalovirus (HCMV) and Epstein-Barr virus
(EBV) of the family Herpesviridae family have been implicated as a cause of
breast cancer.
B. Host factors:
Breast cancer
Age: Age group more than 50 years are at high risk
however breast cancer can strike below 50 years of age
also.
Sex: Most common in female
C. Environmental factors:
Breast cancer
Tobacco smoke (both active & passive exposure)
Dietary (charred and processed meats)
Alcohol consumption
Environment carcinogens (Ex-exposures to pesticides,
radiation, environmental & dietary estrogens)
Obesity
Menopause
Ovarian cancer
Older age
Family history of ovarian cancer
Reproductive history and infertility
• Early menstruation
• Not giving birth to any child
• No exposure to any oral contraceptive pills
• Infertility
• Menopause
Method of diagnosis
A. Clinical examination of breast: Involves a thorough physical examination of
whole breast area including both breast, nipple, armpits and collar bone.
B. Mammography:
Dominant mass
Mammography Mammograp
yyyy yy hy
suspicious
Biopsy Not
suspicious
Suspicious
Fine needle
aspiration
N
ot
suspicious
Consider
observation
Case History
Patient profile
Name: Maya Devi Sigdel
Age: 49 years
Sex: Female
Address: Dulegauda, Tanahun
Marital status: Married
Educational status: Up to 7 class
Occupation: Housewife
Religion: Hindu
Informant: Self
Chief complaints
1. Left lower abdominal pain for 1 week
2. Fullness of abdomen for 1 week
3. Vomiting for 1 week
History of present illness
Patient was apparently well a week before then she developed acute, spasmodic, non-
migrating pain in lower left flank with episodes of vomiting associated with mild
fever, headache, weakness and loss of appetite. Pain is not associated with burning
micturition, constipation and shortness of breath.
Past medical history
Systemic examination
Respiratory system
On auscultation normal vesicular breathes sounds heard over bilateral lung fields. Due
to some personal problem she didn’t allowed us for inspection, palpation and
percussion of thorax region.
Cardiovascular system
On auscultation normal first and second heart sounds were heard and no murmurs
were present.
Gastro-intestinal system
On GI examination abdomen was found to be scaphoid in shape, there was no any
venous prominence, no any sings of enlargement of nearby organs. Mild tenderness
was present on the lower abdomen. Tympanic sound was heard during percussion.
Central nervous system
All cranial nerves functions were intact. Sensory, motor and autonomic functions
were normal and superficial and deep reflex were intact.
Current diagnosis
Breast carcinoma of left breast with the history of left sided partial mastectomy and
hysterectomy with bilateral salpingo-oophorectomy.
Nutritional assessment
She takes a cup of black tea with few biscuits, fresh seasonal fruits and few bowls of
jaaulow in a day.
Treatment Seeking Priority
Patient and her family had a good treatment seeking behavior. They prefer visiting
private clinics and hospitals as soon as possible for any illness. Being an earlier
FCHV she had a good knowledge and she knows the importance of early visiting of
hospitals and health settings.
Family profile
Type of family: Nuclear family
Family size: 4 members
Household head: Muktinath sigdel
Source of income: Government school Teacher
S.n. Name Age / Relation with Education Occupation
Sex patient
1. Radhika Sigdel 82 / F Mother in law Illiterate Housemaker
2. Muktinath Sigdel 50 / M Husband Masters Teacher
3. Maya Devi Sigdel 49 / F (Self) Class 7 Housemaker
4. Madan Sigdel 29 / M Son MBS Student
Table 4.2: Family composition and structure
Family Genogram
49 50
(Pt’s brother) (Pt’s brother) (Pt’s Sister) (Pt’s Sister) (Pt’s Sister)
29 24 22
Index
Female:
Male :
Patient:
Dead male:
Dead female:
Affected female:
Married:
Socio-economic status
According to the Kuppuswamy socioeconomic status scale, the score is 22 and the
family belongs to upper middle class family. The main source of income is from job
of the head of the family as a teacher in government school.
Observation checklist
Housing condition: The house was cemented, made up of concrete, there were 2
rooms for 4 members. According to person per room criteria and sex separation
criteria, there was overcrowding. Lighting was satisfactory. Cross ventilation was
present. There was provision of separate kitchen with chimni system and they utilize
LPG gas to cook food.
Environmental sanitation: Tap water was the source of drinking water. Usually they
use it without processing but occasionally they use to boil it before drinking. The
latrine was water seal type with septic tank method of excreta diposal and they use
soap for hand washing after using it. Solid waste was collected by the municipality.
There were no pets in the house.
Table 4.4: Observation check list
Housing Assets Sanitation
Objectives
To understand the impact of disease in the family.
To know the role of family in the disease process.
To assess the gender status in the family and its role in illness.
To check for compliance.
To collect information on the progression of the disease.
To know the KAP about the disease.
Activities
We had our second visit arranged after a week and had consulted about it with our
supervisor Dr. Bimala Sharma. In this visit after reaching the home of the patient we
received the warm welcome. We inquired the patient about the knowledge, attitude,
and practice towards the disease. Their health seeking behavior and compliance
towards the treatment were asked in detailed. History was taken on two way
association of family and disease. We inquired about the role of family members on
the causation, progression and recovery of the diseases. We also asked about the
impact of the disease on the individual and family.
Outcome
KAP on illness and health seeking behaviour
My patient was aware about the disease she was suffering from. She thinks that it is
non-communicable and she was aware about the disease, its sign and symptoms. But
she was unaware of the complication and the ways of preventing it. Her family
members were supportive, with positive attitude and good practice about the disease.
She had fear of consequences of the disease. She has been taking regular medicine for
last 4 years and time to time she goes for follow up in Gandaki Medical College and
teaching hospital.
Health seeking behavior
When she first felt small palpable mass on her left breast, she immediately went to the
hospital care and get prompt treatment with the diagnosis of breast cancer. The patient
and her family members does not believe in traditional healers, witch doctors or
Gender analysis
Tool I: Activity profile
Table 4.5: Activity profile
Activities Women/girl Men/boys Both
s
Breadwinner
Sources of income
Agriculture
Business
Jobs
Household chores
Washing clothes
Cleaning dishes
Cooking
Health related activities
Decision of health care
Care during illness
Activity profile helps to understand the trend of involvement of male and female in
several works in their household. It gives the pattern of work distribution in the
family. Here in this family the more daily routine household works are done by
females while outdoor works are mainly carried out by men. Some of the important
tasks are done on common understanding by both.
Objectives
To counsel the patient and family members and encourage them for change, if
necessary.
To know about the progress of the visit over the period of time.
Activities
Prior notice was given to patient about our visit. We conducted counseling and health
education considering their KAP regarding the disease. Necessary and remaining
questions were inquired as well. Several suggestions were given to them, based on our
observation and feedback was taken from them. We concluded our visit with words of
gratitude for cooperation.
Compliance
The patient was under routinely medication since last 4 years but she refused to go
under further chemotherapy for her breast cancer because it was costly and she
couldn’t bear the side effects of the treatment. Hence the compliance was not good in
this case.
Counseling
The patient was counseled to take her medicine timely and properly. Also, she was
counseled to follow up timely and regularly according to the schedule given by the
doctor. Rest of family members specially her daughters were counseled about the
preventive measures and techniques for timely diagnosis of such illness.
Introduction
Alcohol dependence is a chronic form of disease where a pattern of self-
administration of alcohol or the drinks containing alcohol that usually results in
tolerance, withdrawal and compulsive alcohol taking behaviour is seen. A person with
this disease continues the use of alcohol despite of significant alcohol related
problems.
Symptoms
Unable to keep a drink limit
Restless without drink
Difficulty rejecting drinking
Missing meals
Memory lapses, blackouts
Morning retching and vomiting
Sweating excessively at night
Withdrawal fits (motor seizures)
Hallucinations, frank delirium tremens
Anxiety, psychomotor agitation
Convulsions
Problem Statement
Global scenario
According to the Global Status Report on Alcohol and Health (WHO) worldwide per
capita consumption of alcoholic beverages in 2005 equaled 6.13 liters of pure alcohol
consumed by every person aged 15 years or older. A large portion of this
consumption i.e 28.6% was homemade and illegally produced alcohol. A large
variation exists in adults per capita consumption. The highest consumption levels can
be found in developed world, mostly the Northern Hemisphere. Low consumption
levels can be found in populations of Islamic faith which have very high rates of
abstention.
Patient profile
Clinical Examination
General physical examination
Our patient was alert, well oriented to the time, place and person and cooperative.
Vitals
Pulse: 74beats/min
Respiratory rate: 15breaths/min,
Blood pressure: 126/92 mm of Hg,
Temperature: 98◦F
Cardinals
No pallor, icterus, lymphadenopathy, cyanosis, clubbing, edema and dehydration.
Respiratory System
Inspection
During inspection it was found that the chest was bilaterally symmetrical, no bulging
and no any scars marks were present. Chest expansion was equal on both side and
intercostal space was normal in appearance.
Palpation
There was no tracheal shift or increased vocal fremitus and no any tenderness was
present over chest region.
Percussion
On percussion there was resonant note on both side of chest and normal liver dullness
was heard from 5th intercostal space to lower costal margin.
Outcome
Family Profile
The family is leading a life of upper middle socio-economic class. The patient is 26
years old male from kahunkhola diagnosed to have Alcohol dependence syndrome.
After being treated for few days, he is improving. He is unmarried and lives with his
family. The family has done every effort for the treatment and is hopeful for the
improvement.
Family Genogram
60 59
32 30 26 24
Index
Male:
Female:
Patient:
Married:
Socioeconomic status
According to Kuppuswamy’s scale, they fall under upper middle class family
(Kuppuswamy’s scale 16-25). Their main source of income is from driving vehicles.
Their family income is around Rs. 40,000 to 60,000 per month. As he became ill, he
has to frequently visit clinics and hospitals, so the expenditure has risen up.
Objectives
To understand the impact of the disease on the family.
To understand the role of the family in the disease process.
To understand the Knowledge, Attitude and Practice of the patient and the
care provider and regarding the disease.
To check for compliance.
To assess the gender status of the family using specific gender tools.
To counsel the family if required.
To collect information on the progression of the disease.
Activities
When we reached the house for second visit, the patient’s condition was good enough.
This time we held conversations about the disease, its impact on the patient and his
family. Various open and closed questions were asked to the patient and the family
members to know their KAP regarding illness and health seeking behaviour of the
family. We also discussed with them about the compliance with the treatment and
follow ups to the hospital. Gender analysis was done using the specific tools. We also
asked different questions to know about the impact of disease in the family and role of
family in causation, progression and relief of the disease. After two hours of long
chat, we gathered necessary information required and concluded our visit by thanking
them. We also informed them about our final visit and arrange the time for the same.
Outcome
KAP regarding illness and Health seeking behaviour
Though the patient and his parents hadn’t achieved higher formal education but they
are aware about the impact of the disease upon their children and on society. Specially
his parents used to advice him to stop the drinking habit. Patient was found
determined to stop drinking and according to his parents he hasn’t been drunk since
the last hospital visit. They understood the importance of the compliance in treatment
and followed all the instructions given to them regarding treatment precisely.
Impact of disease
On patient
Physical and psychological: According to patient he was weak and lethargic and unable to
perform regular work after the disease. He feels guilty about himself for what he has done.
The disease took a massive effect on him physically as well as psychologically. The patient
has realized that alcohol consumption is the main precipitating factors and it is the illness
that can be controlled only by medications, family support and alcohol abstinence.
Source of income
Agriculture
Business
Employment
Domestic chores
Water related
Collection
Washing clothes
Cleaning dishes
Fuel related
Obtaining gas/ kerosene
Cooking
Health related chores
Child immunization
Care during ill health
Taking sick to medical
institute
Buying medicine
Child care
Cleaning and maintenance
task
Budget allocation and
marketing
Land / housing ++ ++ ++ +
Equipment ++ ++ ++ +
Labour and division ++ ++ ++
of labour
Cash/economic ++ ++ ++ +
resources
Education/training + + + +
Ownership of assets ++ ++ ++
Basic needs
Food /clothing/ shelter ++ ++ ++ ++
Objectives
To counsel the patient and family members regarding the illness and personal
hygiene and environmental condition as well as the importance of compliance.
To know about the disease progression.
Activities
After confirming about the date and time of our visit through telephone, we visited the
patient’s house. Prior to this visit we had made a list of things we had forgotten to ask.
So we inquired about them. The family was very happy that we visited them and then
treated us with great hospitality. They were enthusiastic to know more about the
disease and asked us queries regarding its progression and treatment. We fulfilled
their queries to our full capabilities.
We counsel about illness and explained the importance of regular drug intake and
follow up. We departed after thanking for their courtesy and cooperation. They
blessed us to be good doctors. We were happy to know that patient was co-operating
with the family members to get rid of this disorder and doing his utmost to make
change in his behaviour by self-commitment. Finally, we expressed our sincere thanks
to the patient and his family for availing us their valuable time and cooperation.
Outcome
We evaluated the changes that had been brought to the family with our counseling,
suggestions and knowledge provided to them. We saw the behavioural and cognitive
changes in the family members regarding the disease. They were feeling determined
and more concerned that he would quit his drinking habits.
Counseling
During counseling we made the patient more aware about the hazards of drinking
alcohol and its impact in family member and his future. We also counseled his family
members to have patience and to behave with him properly until his bad habits are
gone. Counseling was also done on the part of maintaining peace and harmony in the
family by understanding each other problems and trying to solve them collectively
and also to understand the state of mind of his son and act accordingly.
Introduction
Cerebrovascular disease is the third most common cause of death in high income
countries after cancer and ischemic heart disease and the most common cause of
physical disability. It includes range of disorder of central nervous system. Stroke is
the most common clinical manifestation of cerebrovascular disease and result in
episode of brain dysfunction due to focal ischemia or hemorrhage.
Risk factors
A. Unavoidable risk factors
Age
Gender (male > female except at extreme of age)
Race ( Afro-Caribbean> Asian > European
Previous vascular event
• Myocardial infarction
• Stroke
• Periphery vascular disease
Heredity
High fibrinogen
B. Modifiable risk factors
Blood pressure
Cigarette smoking
Hyperlipidemia
Excessive alcohol intake
Diabetes mellitus
Symptoms
Dizziness, Difficulty in swallowing
Black out, numbness and weakness that can cause complete paralysis
Sudden and several headache
Sudden loss of vision, Problem in balancing and coordination
Difficulties in speaking understanding
Complications
Case History
Patient Profile
Name: Chandra Bahadur Chhetri
Age: 79 years of age
Sex: Male
Marital status: Married
Religion: Hindu
Address: Rambazar ,Pokhara
Education: N/A
Occupation: Retired Indian Army
Source: Khadka Kumari chhetri (Wife of the patient)
Reliability: Good
Chief Complaint
Unable to move right part of body.
History of present illness
According to the informant, the patient has been unable to function properly with
right parts of his body. Along with that, he has been suffering with episodic seizures.
Clinical Examination
General condition
Vitals
Pulse: 73/ min in left radial artery
Respiratory rate: 18/ min in sitting position
Blood pressure: 120/80 mm of Hg Temperature: 98.6^0 F
Cardinals
Systemic Examination
Respiratory system
Bilateral breath sound heard
Cardio-vascular system
1st (S1) and 2nd (S2) heart sounds were heard and no murmurs were present.
Neurological examination
Higher mental function was intact. Power at right shoulder, elbow, knee were
decreased in right upper and lower limbs, tone was normal.
Muscle strength grading: left hand: 4 and right hand: 2
Investigations
ECG and MRI was done and other investigations couldn’t be reported.
Diagnosis
Right sided hemiparesis secondary to left ischemic CVA with bowel and bladder
involvement with UTI.
TREATMENT
During hospitalization
Inj. Pantop 40 mg iv BD
Inj. Zydotum 1.5gm iv TDS
Syp. Lactulose 20ml PO HS
Syp. Osrovit 500mg 2.5ml PO OD HS
Cap. Vit-d 1000d 1cap daily sublingual
Whey-o-life 2 tsf PO TDS with 1 cup of milk
Syp. Dj Citral 10ml in 1 glass of water PO TDS
Tab. Clopid 75mg PO OD//S
Tab. Rovastin 20mg PO OD
Nebulisation with a:i:ns(1:1:2) 8 hourly
Tab. Sonate 300mg PO OD
Advice at the time of discharge
Physiotherapy for three month
Maintain personal hygiene
Objectives
To locate the house of the patient
To build a positive rapport with the patient and his family members.
To explain the family members about the purpose of our visit.
To get to know the patient, family members, socio-economic status of
the family, social and cultural beliefs of the family and analyze how it
affects the health of the family.
To observe the condition of housing, assets and sanitation using
observation checklist.
Activities
We got the contact number of the patient from OPD of Gandaki Medical College,
Pokhara.We arranged a meeting with his family via telephone contact. After reaching
the patient’s residence, we greeted and introduced ourselves to the family members.
The family provided us with a warm welcome. The patient and his wife were quite
cheerful and cooperative. We clarified them about the purpose of our visit and
discussed with them about their family, surroundings and analyzed about any possible
risk factors if any in relation to the disease. Our patient couldn’t talk properly so, we
mostly interacted with his wife. We interacted with her and asked as many questions
to meet the objectives of our visit. The observation checklist tool was used to evaluate
the housing condition, assets and sanitation. The discussion continued for about an
hour and then we informed them about our second visit. We thus met the objectives of
our first visit.
Outcome
Mr. Chandra Bahadur Chhetri is living in his own house, which is pakka type, having
five rooms. The house is attached side to side and has adequate setback. The rooms
are well ventilated, with cross ventilation & well lighted. They have a separate
kitchen and use LPG for cooking. They drink water from jar water. They own assets
like television, refrigerator, heater,mobiles and rice cooker. The rooms were well
79 69
36 38
17 15
Patient:
Dead male:
Dead female:
Married:
Socioeconomic status
The family belongs to upper middle socio-economic class according to Kuppuswamy
socioeconomic scale with a score of 23. At present there are 2 members (patient and
his wife) in the family living at their home. The main source of income is from
pension of the patient. They have a family house in Rambazar, Pokhara. The family
was well equipped with all the technological and entertainment facilities in the house.
All the family needs, requirements and demands were met without any kind of
difficulty. They have average income of 75,000 from patient’s pension. The family is
socially well respected and loved in the community. They do not have disputes with
the neighbors or their kinds.
Objectives
To collect information on the progression of the disease.
To understand the role of the family in the causation of
disease.
To understand the impact of the disease on the family.
To understand the KAP of the patient and the care provider
regarding the disease.
To assess the gender status of the family using specific
gender tools.
Activities
After a week of our first visit, we made a second visit in the family. This time we
were focused on the detailed discussion of the patient’s condition. We conversed
about the disease, the kind of impact it has caused on the patient and his family for
about an hour. We asked some closed questions to the patient’s wife to know the KAP
of the family regarding that particular disease and health seeking behavior of the
family. We asked her if he was dependent on anyone for his daily activities and got to
know that he was totally dependent upon his wife. Since he is a member of
independent living society he is well aware about all the limitations and complications
of his condition.
Outcome
Health seeking behavior and KAP about disease: The patient and the family members
are aware about his disease. The family do not believe in the traditional healers. They
seek help of medical professional in case of any illness. Compliance of the family to
medications and follow-up in health institution is satisfactory. They are satisfied with
the health facilities they have received.
Compliance
Patient is trying his best. He is being taken cared of very well by his wife. He is
compliant to the medications and intsructions which is given to him.
Gender Analysis
Unlike a stereotypical Nepali family, the females in the family exercise a decisive role
in household undertakings. Our patient isn’t upon any family activities.
Source of income
Agriculture
Business
Employment
Domestic chores
Water related
Collection
Washing clothes
Cleaning dishes
Cooking
Health related chores
Child immunization
Care during ill health
Taking sick to medical institute
Buying medicine
Child care
Cleaning and maintenance task
Budget allocation and
marketing
(Activity profile shows the pattern of distribution of labor, and the burden of work each
sex has to bear. The values are either positive or negative, and the skewing of positive
values towards a particular sex shall imply that the respective gender bears a greater
burden of work than the other.) Here in this family the major work load is covered by
female.
Tool II: Access and control profile
Table 6.4: Access and control profile
Objectives
To enquire about the improvement of the patient.
To counsel the family members regarding the illness and importance of
compliance.
To counsel the patient regarding the disease.
Activities
This was the last visit to the family. We greeted the family. They were still helpful
and cooperative. Prior to the visit we had reviewed our previous interview notes and
made a list of things remaining to be asked. We couldn’t be happier that our
counseling has had some positive effect on him. He was emotionally stronger.
Appropriate counseling was provided to the patient and family members. We also
encouraged the family members to not lose hope, and be supportive to him. We
expressed our sincere appreciation to the patient and his family for the hospitality they
showered upon us in these three visits. Finally, we bid farewell to the family and
departed wishing him good health and good luck for him future endeavors.
Conclusion
Disability cases are increasing day by day, mainly due to traumatic events, genetic
causes and infections during pregnancy and mal nutrition. As it is a disabling disease,
it needs the support of family and society along with the therapeutic interventions.
Emotional and psychological supports are the medicines of disability. A study based
on US has generated the fact that this cases is present about 2.3-3.6 per 1000 live
births. There is no forbidding of the fact that there is no cure for cerebrovascular
accidents but this condition can be assisted. The people can really be benefitted and
these individuals can live a long, healthy and quality life. Not only in Nepal but in a
global scenario disability has a huge impact upon the working hands of the nation.
They directly affect the economy of the country. Here in this case, lack of compliance
is also contributory to the causation of disease. Had the patient been on a healthy diet
and been taking his medication for hypertension regularly and doing proper checkup
Introduction
The term chronic renal failure applies to the process of continuing significant
irreversible reduction in number of nephrons, deterioration in renal function and
usually develops over a period of years. Initially, it manifests as a biochemical
abnormality leading to eventual loss of excretory, metabolic and endocrine functions
of kidney. This causes clinical symptoms and signs of renal failure, which is referred
to as uremia. When death is likely without Renal Replacement Therapy, it is known as
End Stage Renal Disease.
3b 30-44
Risk factors that increase the risk of CKD even in individuals with normal Glomerular
Filtration Rate are as follows:
Complication
Anaemia
Gout
Bone disease and high phosphorous
Heart disease
High potassium fluid build up
Global Burden
Chronic kidney disease affected 753 million people globally in 2016: 417 million
females and 336 million males. The global burden disease 2015 study estimated that
1.2 million deaths(an increase of 32% since 2005) , 19 million disability adjusted life
years. The causes that contribute to the greatest number of deaths are high blood
pressure at 550,000, followed by diabetes at 418,000, and glomerulonephritis at
238,000. In 2010 an estimated 2.3-7.1 million people with end stage kidney diseas
Epidemiological Determinants
A. Agent factor
Infections like leptospirosis, hanta virus, leprosy and malaria have been known to lead
to chronic kidney disease.
B. Host factor
• Age: May affect any age group, commonly seen in above 40 years of age.
• Race: African Americans and Asians have been found to have higher risk of
developing CKD.
C. Environmental factors
CKD is a global epidemic which is associated with high cost and financial burden to
patients, families and health system of any country. At the same time, CKD is also
associated with increased risks of cardiovascular diseases, premature deaths and
decreased quality of life. It has been found that identifying CKD in its earliest stage
could prevent disease progression and can lessen high medical costs.. As we know,
HTN and diabetes are two of the most prevalent non-communicable diseases in our
country and they have been pushing a greater population at risk for developing CKD.
We wanted to assess the role of the family in such condition and its impact on the
family. Therefore, we believed this case would provide knowledge on all the aspects
of FHE, as it is an emerging burden on public health.
Case details
Patient’s profile:
Age: 35 years
Sex: Female
Occupation: Housewife
Religion: Buddhist
Education: 5 class
Reliability: Excellent
Chief complaints
According to the patient, she was asymptomatic 5 years back then suddenly one day
she lost her consciousness and fell down. She was then taken to Lamjung, Besisahar
hospital after symptomatic treatment she was referred to higher center where she was
diagnosed with CKD stage 5. Since then she is on dialysis twice a week. She also
complained of edema around leg and abdomen after hospital admission. The edema
had subsided 4 years back. Patient had no history of headache, vomiting, chest pain.
Past History
Family history
Her small brother is suffering from diabetes mellitus since 10 years and her mother
died due to sudden cardiac arrest.
Personal History
She consumes alcohol occasionally. She does not smoke or chew tobacco. She is a
non-vegetarian.
Allergic history
Dietary history
She has 3 child two living and had second child aborted at 8 month.
Drug History
Clinical Examination
General Condition
Patient is co-operative and well oriented to time, place and person. She is sitting up
with a fistula on her left hand.
General examination
Icterus: absent
Pallor: absent
Lymphadenopathy: absent
Cyanosis: absent
Edema: no edema
Dehydration: absent
Vitals
Temperature: 96.3 °F
Blood pressure: 214/117 mmHg on right arm (taken 1 day before dialysis)
CRT: 2 sec
Systemic Examination
Respiratory system
Cardiovascular system
Gastrointestinal system
CNS was grossly intact, no motor or sensory deficit in any part of the body.
Treatment
Objectives
Activities
We met the patient during her dialysis at the hospital and took her daughter’s contact
number. So it was not difficult to find the location of the house as it was in
Amarshingh (on way to miapatan). The family members warmly welcomed us all. We
enquired about the wellbeing of the patient and if she was feeling well or not. Then
we explained the purpose of our visit. We asked about the family members, their
education and occupation. We assessed their housing and sanitation through our
observation checklist. After our objectives were fulfilled we returned describing them
about the second visit simultaneously.
Outcomes
Family profile
Family genogram
40 41
(Pt’s Sister) (Pt’s Brother) (Pt’s Brother) (Pt’s Brother) (Pt’s Sister)
Index
Male:
Female:
Patient:
Married:
Affected male:
Affected Female:
Socioeconomic status
SN Component Score
Observation checklist
Objectives
Activities
We went for the 2nd visit a week later. We explained the purpose of our second visit to
the patient and her family. This time we were focused on disease progression,
compliance, and role of the family in disease and effect of the disease on the patient
as well as the family. We also assessed gender status through access and control
profile, KAP of the patient towards the disease and explored the coping strategies of
patient and family members towards the disease. We found that the patient was
worried about her lifelong dialysis needed and its huge impact on their family and
daily lifestyle.
Outcomes
The patient follows the instructions and advice given by the doctor properly regarding
daily activities and lifestyle modification. She is taking her medications on time and
goes on dialysis twice a week at GMCTH.
Role in causation
The patient had pregnancy induced hypertension during her antenatal checkup of third
child. But after the delivery she didn’t went for a regular checkup and later on after 2
years she landed having CKD.
The family has played a vital role in progression of the disease. She was taken to
various hospitals for initial diagnosis. Her daughter had left her study to take care of
her mother. She stays on her mother house just to take care of her mother. She takes
her mother to the hospital for dialysis two times a week and Physiotherapy centre
every day. Her condition has improved since the dialysis, as she was unable to move
about in the past.
Role in relief
The patient was taken to many hospitals for diagnosis and treatment of her disease.
According to the patient, due to the caring nature, emotional support and
understanding of her family, she was being able to deal with her disease. Her daughter
takes her for regular follow-ups on time as well as for dialysis regularly.
The family follows Buddhist religion. They visit private clinic or hospitals for every
disease.
On the patient
Physical: The patient was weak, fatigued and ill looking. She has a fistula on her left
hand. She is not very strong and is unable to walk for long time. As she has to go for
dialysis two times a week, it is really affecting her daily routine. Even to bath she is
dependent on her daughter. Due to these reasons, she is not able to work properly.
Psychological: The patient suffers from a chronic, irreversible disease. As a result, she
was very worried about both herself and for her husband and son and daughter also.
Due to her inability to work, she is frustrated and stressed out.
Economical: She didn’t contribute to the family before the disease but used to do
farming which provided basic food. But now they have to buy everything. She had
left her village Lumjung since 1 year for her dialysis. Her husband is also working in
foreign country just to manage expenses.
On the family
Her disease has caused a huge economic burden on the family. Although, she has
been receiving dialysis free of cost under the recommendation of Nepal Government,
she also requires other medication, blood transfusion and laboratory investigations
which amount up to 20,000 NRs per month. As she has to go to hospital twice a week
for dialysis, her daughter’s daily routine has also been affected, as he has to be there
for her most of the time. They are also very worried about the patient and are under
enormous stress.
The knowledge, attitude and practices of the family are not satisfactory. They did not
know about the causation of her disease. But now as per doctor’s advice she follows
the medication and has brought changes to her dietary habits.
Gender Analysis
All the family members have adapted and are used to with their work. Her daughter
seems to do the household chores of cooking, cleaning and maintaining the house .As
her husband is in abroad, most of the works are done by her daughter like purchasing
medicine, taking her to hospital and caring her. So, the gender status in this family
seems unsatisfactory. The female member had to do everything on their own.
Access Control
Particulars Women/girl Men/boys Women/girl Men/boys
s s
Land/Housing + ++ + ++
Equipment ++ ++ + ++
Labor and decision of ++ ++ ++ ++
labor
Cash/Economic resource ++ ++ + ++
Education/Training ++ ++ ++ ++
Ownership of assets + ++ + ++
Basic needs ++ ++ ++ ++
Food/Shelter/Clothing
Access and control profile shows a difference of less than 5 (that is 2). So the gender
situation is good.
Note:
Age related As the age progresses, there is the high chance that
one can land to the renal diseases. Though the
patient is not such in extremes of age, other
various factors has predisposed her to the CKD.
Day to day activities and The patient is housewife and performs daily
responsibilities of men and household activities. Her day-to-day activities are
women significant for the causation of this disease.
Educational status and health Although the patient and her husband were
seeking behavior uneducated , they were not much aware of the
various risk factors and don’t have knowledge on
disease till she was diagnosed of CKD.
Economic status and its impact CKD is the disease requiring long-term dialysis.
on health Though at present she is doing dialysis under the
aid of Nepal Government, crisis situation may
appear in near future, as the cost of investigation
and medications has to be born by the patient’s
family themselves.
Gender norms and values in There is gender inequality in the family daughter
health and wife had to mange everything on their own
husband had only finanacial support. all the family
member are worried equally about the disease and
Access to and control over The control and access has no such significant
resources and the impact impact on disease process.
Perception of disease in the CKD is the disease requiring the lifelong dialysis
society and other social norms and renal transplantation is only the permanent
and values that affect disease solution for it. So people and other member of the
process society takes it as a devastating disease. But all
relatives and community people had the love and
affection towards the patient.
Access to information and its They are uneducated and had no access to the
impact modern equipment but after the diagnosis of
disease they have gained adequate knowledge on
the disease process.
Objectives
To know about the progress of the disease over the period of time.
To counsel the patient and family members and encourage them for
change, if necessary.
Activities
On our third visit we discussed about the further prognosis of the disease. We advised
the patient to consider kidney transplantation as she has her whole life ahead of her
and a transplant would increase her quality of life by a significant amount. We
thanked the family for their cooperation and wished them all the best for their future.
Outcomes
The patient was not aware about the complications of CKD and its proper
management. We counseled her as well as her family about the dietary changes and
the importance of compliance of drug with at least 30mins exercise daily, regular
health checkup required for proper management of the disease. We also advised her to
stay emotionally and mentally strong, as the disease would require further effort and
management in future also. We also advised her to consider kidney transplantation, as
it would improve her quality of life. We also encouraged her family to steer the
patient towards a kidney transplant.
Conclusion
Chronic kidney disease is emerging as a major public health problem. With high
prevalence of DM and HTN, the two most important causes of CKD, the disease has
been on an increasing trend. However, preventing the emergence of risk factors such
as smoking, dietary habits, sedentary lifestyle and alcohol consumption can prevent
the disease.
Conclusion
The family health exercise is a descriptive and qualitative study. It was solely based
on in-depth interview and observation of patients and their families in their homes.
Tools such as interview guidelines, observation checklist and tools for gender analysis
were developed for this purpose.
After completion of the visits, we came to the conclusion that different aspects of the
family like socio-economic status, educational status, knowledge, attitude and
practice, customs and traditions have a great role in the causation, progression and
recovery from disease. Similarly, we also found out that disease can result various
impacts on the patient and his/her family. Family plays a great role in helping a
patient cope with his disease but a disturbed family may also play role in causation of
stress and certain psychiatric disease. The socioeconomic status has a major effect
regarding towards the proper treatment and thus plays a great role in determining
prognosis of any disease. Educated people have a pretty good knowledge of the
disease through which they or their family members are suffering and know about the
control and prevention majors as well.
To sum it all up we feel proud to have been a part of this exercise which helped us to
see beyond the individual, into to the family and its overall impact which remained in
dark side, unexplored and most often hidden behind the curtains. Any disease
however minor has a huge impact on the family of the diseased person.
And now here we all are, with our outlooks into disease having changed and ready to
take giant leaps towards being a better human being. We will always cherish the
golden moments and great experiences spent with the family which will always
inspire and motivate us to move ahead for the whole of our future. And all the credit
goes to the Department of Community Medicine as per to the curriculum for
organizing this exercise.
Recommendations
To the hospital
The hospital should provide some sort of identity like cards or tokens to avoid
inconveniences by patients to seek services made free for them in health care settings.
Family Profile
Type of Family
Number of Family Members
Family and Relationship
Scio-economic Status
Number of economically active people
Sources of Income
Loan/Mortgaging during economic need
Educational status of family members
Formal or informal education
Level of education
Health seeking behavior and KAP
Care pattern of healer
Belief in causation and treatment, Compliance
High Risk Behavior
Changes in belief pattern and cultural practices brought by disease awareness
Life Style modification after awareness
Role of family and community on disease
Role in disease causation and progression
Role in relief, rehabilitation, cure and disease prevention
The sick roles involved
Effect of disease on the patient
Employment, Source of Income
Disability/Handicap/Disfigurement
Inter-personal and family relationships, social relations and community
behavior.
Psychological and emotional, including self-esteem and confidence
Changes in Health related KAP
(Activity profile shows the pattern of distribution of labor and the burden of work
each sex has to bear. The values are either positive or negative and the skewing of
positive values towards a particular sex shall imply that the respective gender bears a
greater burden of work than the other.)