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• Multifactorial origin
• Taking a long-term course
• Often being progressive
• Having multiple restricting physical and psychosocial
effects
• High prevalence for mental comorbidity
• High psychosocial need for communication
Group N: Group G:
Group A:
Chronic Mixed
Attributes Chronic Stat. in-
renal sample of ∑
ophthalmic ference
insufficient chronic
patients
patients patients
Sample size 555 529 731 1.815
Gender
Male 238 (42.9%) 298 (56.3%) 351 (48%) 887 (48.9%) X² = 19.97
Female 317 (57.1%) 231 (43.7%) 380 (52%) 928 (51.1%) p< .0001
Age
Average age 48.2 ±15.5 F = 56.31
53.8 ±14.1 46.7 ±13.1 45.1 ±16.9
in years (16-86) p< .0001
Results of Scale Analyses 7
ECQ scales α Gen- Age Corre-
der lations
APC Active, problem oriented coping .80
DSP Distance & self-promotion .64
ISE Information seeking & exchange of .79 ♀⇑
experiences
TWD Trivialisation, wishful thinking and defence .51 Old ⇑
DP Depressive processing .74 Young ⇑ Distress
WAH Willingness to accept help .65
ASS Active search for social integration .78 Young ⇑ Support
TMC Trust in medical care .65 ♀⇑
FIS Finding of inner stability .65 Old ⇑
Results: Factorial Validity 8
I Social support
II Trust and drive
III Search for information and meaning
IV Depressive trivialising processing
V Mistrust and retreat
Nine a priori scales Five New Domains
ASS Active search for social integration (5/5) I Social
WAH Willingness to accept help (4/5) support
DSP Distance & self-promotion (2/5) (11)
TMC Trust in medical care (3/5) II Trust &
APC Acting, problem oriented coping (5/5) drive (11)
DSP Distance & self-promotion (2/5)
FIS Finding of inner stability (1/5)
ISE Information seeking & exchange of experiences (5/5) III Search for
FIS Finding of inner stability (2/5) information &
WAH Willingness to accept help (1/5) meaning (8)
DP Depressive processing (5/5) IV Depressive
TWD Trivialisation, wishful thinking & defence (3/5) trivialising
processing (8)
TMC (No) Trust in medical care (2/5) V Mistrust &
FIS Finding of inner stability (1/5) retreat (4)
TWD Trivialization, wishful thinking & defence (1/5)
Results: Normative Data 10
• The mean value Scale M ± Stanine Score
Conf RCI
per patient has APC Acting, problem-oriented coping 2.24 0.88 2 2
little significance 1.96 0.78
DSP Distance and self-promotion 2 3
and therefore 1.42 0.93
ISE Information seeking and 2 2
should be exchange of experiences
transformed into TWD Trivialisation, wishful thinking 1.22 0.71 3 3
stanine scores and defence
DP Depressive Processing 0.71 0.70 2 2
• Normalization WAH Willingness to accept help 1.48 0.76 2 3
was performed in ASS Active search for social 1.93 0.89 2 2
the complete integration
2.46 0.79
TMC Trust in medical care 2 3
analysis sample of
1.32 0.81
N = 1,815 FIS Finding of inner stability 2 3
Results: Replicability was proven in a
sample of neurological rehabilitation 11
patients (n = 48)
Scale p<
6 experiences
5 TWD Trivialisation, -
wishful thinking and
defence
4
DP Depressive Processing -
3
WAH Willingness to .03
accept help
2
ASS Active search for .001
1 social integration
Ophthalmology
• Visual impairment: Franke et al., 2003
• Uveitis: Schütte et al., 2004
Transplantation medicine
• Kidney: Bernhardt et al., 2010; Franke, 2010; Jagla et al.
2009
• Kidney: Wick et al., 2015
• Hand: Hautz et al., 2010; Kumnig et al., 2012, 2014
Utilisation in German speaking
countries 13