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Families, Systems, & Health

© 2020 American Psychological Association 2020, Vol. 38, No. 1, 1–5


ISSN: 1091-7527 http://dx.doi.org/10.1037/fsh0000477

EDITORIAL

Family Science and Family-Based Research in Integrated and Health


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Care Contexts: Future Considerations for Families, Systems, & Health

Keeley J. Pratt, PhD Jennifer T. Sonney, PhD


The Ohio State University University of Washington School of Nursing
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The focus on families and application to families. In this editorial, we describe the foun-
health sets Families, Systems, & Health apart dations of family science and health, how these
from other sister journals. Family science is a foundations inform family-based research, and
thriving field of study experiencing rapid ad- the translational bridge of family-based re-
vances in the discovery, verification, and appli- search in health care. We conclude by describ-
cation of knowledge about families (Burr, Day, ing a tiered approach for family involvement
& Bahr, 1993; Doherty, Boss, LaRossa, and assessment in family-based interventions
Schumm, & Steinmetz, 1993; National Council taking place in health care, with specific atten-
on Family Relations [NCFR] Task Force on the tion on dissemination and implementation re-
Development of a Family Discipline, 1988). It search in integrated care settings.
is essential that these advances in family science
are transferable to research focused on families Family Science Foundations of Family
in integrated health care contexts, and it is our Based Research in Health Care
hope that Families, Systems, & Health with be
at the forefront in disseminating this work. Family science is defined as the scientific
While there is an abundance of research focused study of families and the close interpersonal
on families and health outcomes, there is much relationships and dynamics found within them
less focused on the dissemination and imple- (Doherty et al., 1993; NCFR, 1993). This focus
mentation of family-based interventions in on families is different from the long-standing
health care and integrated health care contexts. fields of psychology and sociology, which tend
In order to advance our understanding how fam- to observe and describe individuals or groups of
ily members are included in family-based inter- individuals (NCFR, 1993; NCFR.org). Instead,
ventions, it is essential to operationalize how family science research seeks to understand the
family-based interventions involve and assess influence of the family through concepts like
family functioning, relationship quality and sat-
isfaction, family support, and interpersonal dy-
namics (Burr et al., 1993; Pratt & Skelton,
2018; Whitchurch & Constantine, 1993). The
X Keeley J. Pratt, PhD, Department of Human Sci- assessment and measurement of these concepts
ences, College of Education and Human Ecology, and is ideally conducted with dyadic (i.e., couples,
Department of Surgery, Wexner Medical Center, The
Ohio State University; X Jennifer T. Sonney, PhD, De-
parents and children), triadic, and multiple per-
partment of Child, Family, and Population Health Nursing, spectives from family members (Didericksen et
University of Washington School of Nursing. al., 2018; Doherty et al., 1993).
Correspondence concerning this article should be ad- As the field of family science was being
dressed to Keeley J. Pratt, PhD, Department of Human established, collaboration with scholars from
Sciences, College of Education and Human Ecology, and
Department of Surgery, Wexner Medical Center, The Ohio diverse health-oriented multidisciplinary back-
State University, 130-B Campbell Hall, 1787 Neil Avenue, grounds (i.e., nursing, medicine, dietetics) pro-
Columbus, OH 43210. E-mail: Pratt.192@osu.edu vided the foundation for studying families and
1
2 PRATT AND SONNEY

health. Grounded in multidisciplinary collabo- tions provide important new information about
ration, the aim of family science research is to the design and development of family-based
inform evidence-based practice, from a interventions in health care, including which
strengths-based perspective applied to preven- family constructs may be modifiable to inter-
tion and treatment contexts (Doherty et al., vention or change over time. For example, Seg-
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1993; NCFR.org). Often, this research is termed rin and colleagues (2019) used the actor-partner
“family-based,” by including the patient and at interdependence model to evaluate the longi-
least one targeted family member (Berge & tudinal interdependence in psychological and
Everts, 2011). There is a wide range of family- physical distress between survivor and care-
based research, grounded in family science, as givers. They found that survivors and their
applied to health outcomes varying from assess- caregivers experienced interdependence in
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ment of patient only perceptions, to the assess-


psychological, but not physical, distress.
ment of patients and a targeted family member,
They further suggest that emotional conta-
to the inclusion of patients and family members
in interventions, and further interventions for gion, or the synchronization of emotional re-
impaired family dynamics in the treatment of a sponses, may account for the comparable
health-related condition. emotional, but not physical, reactions be-
tween survivor and caregiver. These findings
establish preliminary and new evidence for
The Translational Bridge of Family Science the development of a family-based interven-
and Health Outcomes tion aimed at emotional well-being of both
Polaha and Sunderji (2018) set forth a vision survivor and caregiver.
for Families, Systems, & Health to translational
family science across the research continuum Efficacy and Effectiveness
(Zerhouni, 2003). The metaphor for science
translation is a bridge, in which basic science is Further along the translational bridge are ef-
on the far left, applied science and studies of ficacy and effectiveness studies. These studies
efficacy and effectiveness are in the center, and build upon basic science to pilot interventions,
dissemination and implementation science are often using randomized controlled trials, in or-
on the far right, articulated to real-world set- der to test for changes in health behaviors
tings on the land beyond. Discoveries across and/or conditions through the inclusion of fam-
this continuum form the foundation upon which ily members and/or modification of family in-
the science builds. While there is a wealth of terpersonal interactions. Although these studies
empirical literature on the far left of the bridge are becoming more common, they are still
representing family science and health out- greatly underrepresented. Dougherty, Thomp-
comes through basic science, there is much less son, & Kudenchuk (2019) conducted an effi-
research representing the far right side of dis- cacy study that sought to compare two interven-
semination and implementation. Below we tions aimed at improving the physical and
highlight exemplars of family science studies psychological outcomes of patients with an im-
that span the translational bridge to examine plantable cardioverter-defibrillator. The first in-
interpersonal dynamics and health outcomes, tervention consisted of education, telephone
with particular attention paid to dissemination coaching, and video demonstrations for the pa-
and implementation. tient alone while the second differed only in
inclusion of the partner. Results of the prospec-
Basic Science
tive randomized controlled trial revealed the
Representing the left portion of the transla- patient ⫹ partner intervention was more effec-
tional bridge, basic science, plays a critical role tive, with significant improvement in outcomes
in the discovery of associations between family for both patient (symptoms, depression, and
factors, such as interpersonal dynamics, and knowledge) and partner (caregiving burden,
health outcomes. While basic science studies self-efficacy, and knowledge). These findings
are abundant in the literature, those conducted highlight the reciprocal influence of patients
with novel populations, constructs, or condi- and partners in health.
FAMILY SCIENCE AND RESEARCH IN HEALTH CARE 3

Dissemination and Implementation comes from families in integrated and health


care settings. It is important to note that the
The most poorly constructed portion of the family-based research conducted is parallel
translational bridge is the far right side repre- with the level of family inclusion in clinical
senting dissemination and implementation of care. Similar to integrated health care, where a
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family-based interventions in health care. Ox- high level of integration is not the goal for every
ford and colleagues (2018) evaluated the imple- health care settings, a high level of family in-
mentation fidelity of Promoting First Relation- clusion may be not ideal for every health care
ships, a 10-week home-based intervention setting. The utility of Figure 1 is to provide a
aimed at preparing health care providers to help means of operationalizing how family members
caregivers become more emotionally available are included and what outcomes are assessed in
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to their children under age three. Specifically, family-based interventions delivered in inte-
they used a multidimensional approach to eval- grated and health care settings. Thus, imple-
uate implementation of their intervention in- mentation research at the point of delivery will
cluding training uptake, content adherence, de- look different with low, moderate, and high
livery quality, dosage, and participant family inclusion.
satisfaction. Findings showed high uptake and Low family inclusion involving the patient
content adherence, but variable provider deliv- and a targeted family member (see Figure 1) is
ery quality. Program dosage and participant sat- often seen through the engagement of a parent
isfaction were also high. Oxford’s study repre- in integrated pediatric primary care or a partner/
sents a timely exemplar of a successful caregiver of an adult in family medicine set-
approach to achieve implementation fidelity of tings. Low family inclusion involves screenings
an evidence- and family-based intervention. and assessments that primarily focus on patient
outcomes from both the patient and targeted
Family-Based Research in Integrated and family member’s perspective. This allows re-
Health Care Contexts: Future search to be conducted on concordance or
Considerations agreement between the patient’s and a targeted
family member’s responses pertaining to an as-
While the research on family science related pect of the patient’s health: for example, the
to health conditions is abundant, translation of assessment of child and parent perspectives
this work into family-based interventions in about child adherence to asthma care recom-
health care, especially integrated health care mendations. This involvement of a targeted
settings is lacking. Further, when family-based family member in assessment and intervention
interventions are conducted, it can often be dif- provides important information about progress
ficult to discern how family members are in- made in working toward a health-related goal or
cluded. Figure 1 details the levels of family outcome, which can be utilized by the inte-
inclusion (low, moderate, and high) with re- grated health care team to modify dosage and
spect to the involvement and assessment of out- type of intervention delivery. At a low level of

Figure 1. Levels of Family Inclusion in Family-based Research in Health Care.


4 PRATT AND SONNEY

family inclusion, research at the point of deliv- from broader interventions in, and extending
ery may asses how psychoeducational interven- from, health care (via remote or in-home deliv-
tions delivered to patients and a targeted family ery options) to intervene upon problematic dy-
member may increase patient adherence, behav- namics. Research conducted with a high level of
ior change, and health outcomes of a particular family involvement in integrated health care is
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condition. At the provider and system level, able to screen and assess to determine if inter-
implementation research about the feasibility, ventions should be delivered to aid the overall
acceptability, adoption, and appropriateness of family and the patient at the same time. In
such interventions in integrated and health care specific situations, interventions may need to be
settings are also needed. delivered at the family level prior to being de-
Moderate family inclusion includes at least livered directly to the patient, so that the family
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one family member, more family members environment is conducive for health behavior
when feasible, and includes the patient’s and change (Pratt & Skelton, 2018). For example,
family member’s perspectives of the family families with a high degree of chaos and limited
member’s role in the patient’s health: for exam- structure may need assistance with establishing
ple, in routine visits with bariatric surgery clin- rules and boundaries before behavioral changes
ical teams, assessing how supported patients can be successfully implemented for a pediatric
feel by their attending family members in mak- patient to have routine sleep/wake times and the
ing and maintaining dietary changes pre- and family to do healthy meal planning. Research
postoperatively, while simultaneously assessing conducted with a high level of family involve-
how supportive family members believe they ment can assess for changes in family-level
are to patients as they make dietary changes. outcomes from family-based interventions in
This dyadic assessment of family members pro- integrated care, such as changes in impaired
vides essential information that allows the focus family functioning, as a result of family-based
of intervention in health care to move from intervention. Further, research conducted with a
being isolated to patient outcomes and perspec- high level of family involvement can determine
tives of patient outcomes, to included aspects which family-level variables may severe as me-
about the interpersonal interactions between diators or moderators of patient outcomes in
family members that support patient outcomes. family-based interventions delivered in inte-
Hence, interventions may include how romantic grated and health care contexts.
partners can be more supportive to patients as Research at the point of delivery with a high
they make behavioral changes. Subsequently, level of family inclusion in integrated and
these interventions in integrated health care set- health care settings should seek to determine the
tings involve the necessary collaboration of be- capacity of the setting and team to assess and
havioral health and medical practitioners to in- intervene upon challenging family dynamics
tervene with patients and family member’s and relationships in routine care. In addition,
behaviors affecting patient health outcomes. different delivery approaches such as group
Research at the point of delivery in integrated family visits or family-based interventions de-
health care settings with moderate family inclu- livered by behavioral providers, remotely or
sion may assess practical aspects about how in-person to patient homes, may allow for the
behavioral and medical providers collaborate to involvement of multiple family members while
screen and refer families into specialized inter- remaining engaged with the health care team. It
ventions for interpersonal interactions, and the is important that the future of family-based re-
feasibility of integrating interventions into rou- search, built on a family science foundation, in
tine services and costs of such services. health care considers alternative methods of en-
High family inclusion builds upon prior low gagement for families and family members who
and moderate assessments of patient outcomes are traditionally more challenging to reach or
and family members’ roles in patient outcomes, reluctant to engage.
to family dynamics and relationships. This may
include how the overall functioning of the fam- Conclusion
ily (family functioning) affects patient adoption
of new health behaviors. Families with clini- Families, Systems, & Health seeks to publish
cally impaired family functioning may benefit rigorous family science research in health con-
FAMILY SCIENCE AND RESEARCH IN HEALTH CARE 5

texts representative of the more right-hand side National Council on Family Relations. (1993). Fam-
of the translational bridge, with an emphasis on ily science is the scientific study of families & close
evaluating dissemination and implementation of interpersonal relationships. Retrieved from https://
family-based approaches in integrated and family.science/what-is-family-science
National Council on Family Relations Task Force on
health care contexts. Building on the strong
Content may be shared at no cost, but any requests to reuse this content in part or whole must go through the American Psychological Association.

the Development of a Family Discipline. (1988).


foundation of research conducted in family sci- What is family science? Family Science Review, 1,
ence and health care, we encourage our readers 87–101.
and future submissions to contextualize and de- Oxford, M. L., Spieker, S. J., Lohr, M. J., Fleming,
fine the inclusion (involvement and assessment) C. B., Dillon, C., & Rees, J. (2018). Ensuring
of families in interventions to determine point- implementation fidelity of a 10-week home visit-
of-care delivery to patients and families in dif- ing program in two randomized clinical trials. Ma-
This document is copyrighted by the American Psychological Association or one of its allied publishers.

ferent health care contexts. ternal and Child Health Journal, 22, 376–383.
http://dx.doi.org/10.1007/s10995-017-2387-8
Polaha, J., & Sunderji, N. (2018). A vision for the
future of Families, Systems, & Health: Focusing
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