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363400TECSE

Topics in Early Childhood

Supporting Families of Young Children Special Education


30(1) 20­–31
© Hammill Institute on Disabilities 2010
With Disabilities: Examining the Role of Reprints and permission: http://www.
sagepub.com/journalsPermissions.nav

Administrative Structures DOI: 10.1177/0271121410363400


http://tecse.sagepub.com

Pamela Epley1, George S. Gotto IV2, Jean Ann Summers3,


Mary Jane Brotherson4, Ann P. Turnbull3, and Anna Friend5

Abstract
This article presents findings from two early intervention agencies examining how administrative structures affect providers’
ability to serve families of young children with disabilities. Based on previous research identifying three administrative
structures (i.e., vision/leadership, organizational climate, and resources), this article illustrates the relationship between
administrative structures, provider practices, and family supports and services. Findings include (a) the role of administrators’
knowledge and vision influencing provider practices, (b) the importance of organizational climates that foster partnership
and peer support for implementing and evaluating practices, (c) the effects of resource allocation decisions on family
supports and services, and (d) the need for accountability to ensure effective practices and family supports and services.

Keywords
early education programs, evidence-based practices, support for families, policy issues, case studies, research methodologies,
systems change

A major distinction between early intervention (EI) and Additionally, they found that administrative policies and
early childhood education and special education is its focus practices, particularly those related to increasing profes-
on young children with disabilities within the context of sional competency, influenced collaboration between par-
their families. This fundamental principle is evident in the ents and professionals. These findings suggest that
family-centered service delivery model, the provision of administrative policies, procedures, and service delivery
supports and services to families of infants and toddlers with models may directly affect family-professional partnerships
disabilities, and the requirement that EI programs assess not (Brotherson et al., 2009; Dinnebeil et al., 1999; Hebbeler,
only child outcomes but family outcomes as well (Bailey et 1997; Summers et al., 2001). Concluding that EI programs
al., 2006). Increased emphasis on accountability for child are complex systems which include families, practitioners,
and family outcomes prompted us to examine the role and administrative structures among other things, Dinnebeil
administrative structures play in successful outcomes. Based et al. (1999) emphasized the importance of understanding
on our previous research (Summers et al., 2005), we define the relationships between these various components and
administrative structures as an agency’s leadership and how they interact to support effective EI. Similarly, Sum-
vision, organizational climate, and resources. They are the mers et al. (2001) found a relationship between administra-
general operating processes that enable the staff to deliver tive structures and service integration in Early Head Start
services in a way that embodies recommended practices. and EI programs. Administrators and service providers iden-
Though the influence of administrative structures on ser- tified networking activities, interagency agreements, staff
vice delivery and outcomes may be generally acknowl-
edged, few researchers (Dinnebeil, Hale, & Rule, 1999; 1
Erikson Institute, Chicago, IL, USA
Summers et al., 2001) have examined the relationship 2
University of Missouri–Kansas City, MO, USA
between administrative structures, the provision of services, 3
University of Kansas, Lawrence, KS, USA
4
and outcomes for young children with disabilities and their Iowa State University, Ames, IA, USA
5
families. Examining the effect of administrative policies on Pittsburg State University, Pittsburg, KS, USA
collaboration, Dinnebeil and colleagues (1999) found that Corresponding Author:
the philosophy and principles that guided EI programs were Pamela Epley, Erikson Institute, 451 N. LaSalle Ave, Chicago, IL 60614, USA
reflected in the programs’ overall organizational climate. E-mail: pepley@erikson.edu
Epley et al. 21

training, and structured opportunities for contact and col- understanding of the phenomena under study (Creswell,
laboration as important administrative structures for effec- 2005). The data reported here represent a strand of investi-
tive service integration. In another study, Summers et al. gation from a larger ethnographic study about family sup-
(2005) constructed a measure with 32 items drawn from the ports and services in EI (Brotherson et al., 2009; Friend,
literature about effective management and then asked 157 2007).
social service providers to rate how often an item was char-
acteristic of their agency on a 5-point scale. An exploratory
factor analysis identified three basic, underlying factors Participants
comprising administrative structures: vision/leadership (the Case Study Sites. We recruited two case study sites that
degree to which the agency’s leadership embraces values provided diversity and met three specific criteria (Merriam,
and focuses on expectations for evidence-based practice), 1998): (a) provided services for young children birth-to-
organizational climate (professional autonomy, workload, three with disabilities and their families, (b) utilized a home
and opportunities for collaboration with peers), and visiting model of intervention, and (c) provided services to
resources (the degree to which the agency has flexible and a diverse group of children and families. We chose EI pro-
adequate financial, physical, and training resources to sup- grams that differed in size and geographic location.
port practitioners and families) (Summers et al., 2005). Although both in a Midwest state with the state’s Depart-
Effectively meeting the needs of young children with dis- ment of Health serving as the lead agency, Program A
abilities and their families, however, requires more than sim- served a relatively small community within a larger metro-
ply identifying factors for effective management. It requires politan area whereas Program B provided services to mul-
knowledge and understanding about the context in which tiple rural communities across 12 counties. Program A was
practitioners deliver and children and families receive EI. part of the local school district’s special education depart-
Whereas a few researchers have begun to investigate how ment. Program B, on the other hand, was a community-
administrative structures affect EI, the focus has been lim- based, not-for-profit child development center.
ited to identifying administrative policies and practices that Early Intervention Practitioners and Families. Table 1
support collaboration (Dinnebeil et al., 1999) or service inte- describes the demographic characteristics of participating
gration (Park & Turnbull, 2003; Summers et al., 2001). practitioners and families. In both programs, the 16 practi-
The purpose of this article is to examine the relationship tioners (including the two program administrators) repre-
between administrative structures, practitioner practices, sented many disciplines/roles including early childhood
and family supports and services in EI. This study builds on special education, social work, school psychology, speech/
the work of Summers et al. (2005) and used the three language therapy, nursing, and service coordination. In both
administrative structures (vision/leadership, organizational sites the practitioners varied in age, number of years
climate, and resources) identified in this previous research employed, employment status (full- versus part-time), and
as our definition of administrative structures. The purpose total years’ experience. All were European American,
was not to validate the three components of administrative except 2 practitioners in Program B who were Latina.
structures identified in our earlier work but rather to (a) We asked the EI practitioners at each agency to recruit a
identify factors influencing the specific administrative minimum of 4 families representative of typical and chal-
vision, organizational climate, and decisions about lenged families served by the agency. We purposely did not
resources; and (b) explore how these specific structures define “typical” or “challenged” families for the practitio-
may affect practitioners’ services to families of young chil- ners as one of the research questions for the larger study
dren with disabilities. was to understand the perspectives of practitioners about
the meaning of challenged versus typical families; see
Friend (2007) for results of that analysis. The research team
Method interviewed and/or observed a total of 14 families in home
A case study is a type of ethnography that focuses on a pro- visits and subsequently interviewed 9 of these families in
gram, event, or activity to understand and interpret the our two case study sites. Five families were unavailable for
group’s shared patterns of behavior, beliefs, interactions, follow-up interviews, but we retained them in the study
language, and economic and political structures over time because we had their signed consent and notes from home
(Creswell, 2005). A case study offers in-depth understand- visit observations. Because of our request for practitioners
ing of a situation and the means to investigate complex to identify both “typical” and “challenged” families, these
social systems within a context (Merriam, 1998; Yin, 1994). families represented a wide range of socioeconomic cir-
Furthermore, a comparative case study is the use of two or cumstances, single- versus two-parent households, strengths
more case studies to examine common themes or analyze in terms of social support networks or education, and chal-
factors contributing to differences, thus enhancing overall lenges such as physical or mental health issues. We
22 Teacher Education and Special Education 30(1)

Table 1.  Demographic Characteristics of All Professional and Family Participants

Characteristics of professionals Characteristics of families

Program A Program B Program A Program B


Gender
  Male — — 1 1
  Female 7 9 3 9
Ethnicity
  White 7 7 3 7
  African American — — 1 —
  Hispanic — 2 — 3
  Other — — — —
SES
  Economically disadvantaged — — 2 5
  Non–economically disadvantaged 7 9 2 5
Total 7 9 4 10

provided incentives (e.g., including gift cards and library In addition to tape-recording the focus group and inter-
donations) to practitioners and family participants. At Pro- views for later transcription, site team members took
gram B’s request, we did not provide individual gifts to the detailed notes during observations and completed contact
practitioners but rather made a donation to their library. summary sheets following both observations and inter-
views. The contact summary sheet is an observational pro-
tocol for capturing data and organizing thoughts and ideas
Data Collection (Creswell, 1998). Our contact summary sheet included gen-
A team of two researchers collected data at each site using eral descriptions and reflections, main themes and issues,
multiple sources and methods. At Program A, these included and potential future questions. The contact summary sheet
a focus group with the six EI practitioners and individual also served as a vehicle for regular peer debriefings. This
interviews with administrators, practitioners serving the enabled the larger research team to meet and discuss emerg-
families we observed, and families. We also observed a reg- ing themes while waiting for audiotapes to be transcribed.
ularly scheduled home visit for each of the four families in Using detailed field notes, researchers recorded data regard-
the study from Program A. The interview and focus group ing the context of the home visit, specific interventions and
protocols for administrators and practitioners included ques- assessments, interactions between the practitioner and par-
tions about their roles and responsibilities, supports the ent and between the practitioner and child, and specific
agency provided to help practitioners do their job, barriers family and child supports observed.
they experienced, and supports and services provided to
families. The family interview protocol included questions
about the types of supports they received from the agency, Data Analysis
additional supports they would like to have, and impacts Data analysis was a three-step process. First, the entire
they believed the agency has had on themselves and their research team met at least biweekly to analyze data, develop
child. Program B was a long distance away from our research a coding system, and identify themes that were emerging
offices; therefore, our research team traveled there and spent from the observation notes and contact summary sheets.
two full days collecting data. The two team members split Data analysis and data collection were conducted simulta-
up, and each spent a day riding along with different home neously, using field notes and contact summary sheets to
visitors to their regularly scheduled home visits; each home discuss emergent themes. This enabled the team to process
visiting team consisted of two professionals and a translator. information and develop emergent themes while waiting
This approach resulted in 10 home visit observations. Five for the audio recordings of interviews to be transcribed.
families participated in telephone interviews conducted the Also, these meetings enabled cross-site triangulation, with
following week. At Program B’s request, we did not conduct reports and emerging themes identified by one site team
a focus group but instead observed their weekly staff meet- being checked in subsequent interviews with follow-up
ing and instead conducted individual interviewed with all probes in the other site. Second, these emergent themes in
professional staff members at the program as well as the turn formed the basis for an initial codebook to enable anal-
administrator and family liaison specialist. We used the ysis of the data using QSR N6 (QSR, 2002). We coded tran-
same protocol for the professional staff interviews as we had scripts and observation field notes sequentially using a
for the focus group in Program A. constant comparative approach. Constant comparison is an
Epley et al. 23

the integration of Parents as Teachers (PAT) with EI in one


program, whereas in the other program the PAT program
I nfluencing Factor s

Vision/Leadership
Provider Practices & was involved more as an additional service offered to fami-
Family Supports and lies. The table illustrates how the divergent influencing fac-
Services
Administrative tors and administrative structures may either create barriers
Structures
or facilitate practitioners’ ability to support families. In the
Organizational
Resources
sections to follow, we compare and contrast the two sites on
Climate
each of the components shown in Figure 1 and listed in
Figure 1. Administrative structures conceptual framework summary form in Table 2.

inductive data analysis procedure that involves generating Influencing Factors


and connecting categories by comparing incidents in the Program A
data to other incidents, and categories to other categories The small urban community and independent school dis-
(Creswell, 2005). Finally, through peer debriefing, discus- trict that Program A served had a long history of individual
sion, and comparison of these coded incidents, we moved identity, which they preserved within the larger urban area
beyond the identification of codes to conceptual categories that had grown up around them. The “we take care of our
and emerging themes (Harry, Sturges, & Klingner, 2005). own” philosophy was evident in the school district’s deci-
Part of the coding analysis included coding relevant sec- sion to retain responsibility for providing Part C services
tions of the data based on the three administrative structures rather than participate in the local countywide Part C
derived from previous research (Summers et al., 2005); as agency. The appointment of Program A’s director from
this was our definition of administrative structures, the within the ranks of the district also demonstrated this phi-
coded material gave us insights into variations in these losophy. With a teaching background in math and science
three structures. We further used the data to develop a con- and administrative experience in the district’s alternative
ceptual framework to explain how various factors influence high school, the director had limited experience with spe-
these structures and how they in turn affect provider prac- cial education but had been influential in bringing a PAT
tices and family supports and services. We applied this con- program to the district. She described her appointment as
ceptual framework across the two case study sites, using the director of special services more than 13 years previously:
coded transcripts and employing continuous rereading and
discussion, to analyze the impacts of influencing factors on Not being a part of special ed [sic], I didn’t pay that
(a) the character of the three administrative structures and much attention.  .  .  . In August the superintendent
(b) the ways in which family supports and services are called me in and said “guess what, you’re going to be
delivered. Finally, we compared the applied framework the interim director of special ed.” I said “I can’t do
between sites to identify overarching themes and patterns. that because I don’t have sped certification.” . . . [T]o
make a long story short, I went back to school to get
my certification and have been director ever since.
Findings
Figure 1 demonstrates how various environmental factors The tendency of the community to “take care of our own”
within the community and/or agency influence the adminis- and to hire from within directly influenced the appointment
trative vision/leadership, organizational climate, and of Program A’s director and ultimately shaped the pro-
resources that formed our conceptualization of administra- gram’s administrative vision, climate, and resources.
tive structures (Summers et al., 2005). These administrative
structures, in turn, interact to directly affect practitioners’ Program B
ability to serve families in two ways: by influencing the In contrast to the rather compact geographic region served
practices in which the practitioners engage and the supports by Program A, Program B serves a far-flung and sparsely
and services families receive. populated territory covering 12 counties. This large region
Table 2 provides a comparison of the influencing factors, often required providers to spend the majority of their day
administrative structures, provider practices, and family away from the office driving to small communities and
supports and services for the two programs. The table farm homes. One practitioner described the distances she
reveals that in some ways the two programs are quite simi- had to drive and the associated problems:
lar; for example, in training topics and in the degree to
which delivery of family supports such as diapers and find- I [have] seven counties and the farthest that I drive is
ing employment opportunities go undocumented. In other probably an hour and a half . . . and sometimes you
ways the two programs are very different; for example, in get there and [families forget] you were coming and
24 Teacher Education and Special Education 30(1)

Table 2.  Comparison of Conceptual Framework Across Early Intervention Programs

Program A Program B
Influencing factors “We take care of our own” community Not-for-profit organization
philosophy Large, rural geographic boundaries
Small, self-contained urban community High percentage of transient, multicultural
Administered by local school district families
Director with administrative, Parents as Director with early intervention background;
Teachers (PAT), and general education previous position was supervisor of home
background visitors
Administrative structures
  Vision and leadership Director’s role fiscal and personnel resources, Emphasis on evidence-based practice
more hands-off style of supervision Direct involvement of director
Grounded in PAT belief that parents are “Shared Values Statement” developed by
“teachers” and service providers are Board of Directors
“consultants” Explicit policies and organization
Implicit policies and values

  Organizational climate High level of professional autonomy Emphasis on team collaboration


Frequent and informal communication among Structured opportunities for team interac-
practitioners tion in weekly staff meetings

  Resources Staff assigned part-time to PAT program and Full-time family support specialist and trans-
early intervention lators
Other staff assigned to Part B preschool part- Diverse sources of funding for equipment
time and materials
Small fund for family incidentals Respite fund
Referrals to other urban area agencies
Provider practices
Routines-based intervention—implementation Relationship-based approaches
shaped by PAT Routines-based intervention
Informal team evaluation/accountability Use of video-recording as intervention and
reflective practice
Family supports and services
Informal and undocumented supports such as Informal and undocumented supports finding
diapers, food, and transportation employment and child care
PAT playgroups “Respite” fund provides a variety of sup-
PAT social activities ports, e.g., transportation, orthopedic
Referral to community programs shoes, space heaters

they’re not there, they’re in town somewhere and so could also speak Spanish. The program created formal
it’s like oh no, oh no. teams of 8 to 10 professionals assigned by geography, that
is, one team served the northern half of the program catch-
Working under these conditions placed a premium on team- ment area, and the other served the southern half. Each
work as practitioners frequency traveled in teams, in part to regional team had a full complement of interdisciplinary
make the delivery of services more efficient, and in part professionals, including speech-language, occupational,
because the home visitors needed translators. The demo- and physical therapists; a psychologist and/or social worker;
graphic makeup of the community included 44% Latino a nurse; and early childhood special educators. The distance
and 3% Asian families. The teams we observed consisted in and time practitioners spent together influenced decision
one case of a speech-language and physical therapist, making about team organization, the time available for sup-
accompanied by a translator; and in the other of a nurse/ port and consultation among members of the staff, and
social worker and an early childhood special educator who resources available to serve families.
Epley et al. 25

A second influencing factor for Program B is the loca- board of directors to support in-house training each year as
tion of this EI program in a not-for-profit agency rather than well as travel expenses for practitioners to attend out-of-
within a school district as in Program A. Program B had its town conferences. There was some resistance to the direc-
own board of directors and the ability to seek funding from tor’s insistence on new practices (e.g., relationship-based
a variety of public and private sources in addition to the approaches), and some long-time staff members had chosen
state funding available through the Part C Lead Agency to leave rather than change how they delivered services.
(Department of Health). Furthermore, the administrative Others were slowly making changes. One practitioner
separation from the school district meant that Program B described the shift in her approach from a medical model to
began as an EI program and only later added a contract to a relationship-based approach.
support the area PAT program; this sequence is directly
opposite the evolution of Program A, which began life as a Coming from a medical model when I first came here
PAT program and later added EI. Whereas both directors 4 years ago, I felt like my role involved direct ther-
were hired from within (Program B’s director was newly apy; working directly with the child. But it’s
promoted from a position as supervisor of the EI home visi- evolved . . . and now I feel like my role is as a parent
tors), the backgrounds of the two directors mirrored the two educator . . . we do a lot of direct teaching with the
programs’ administrative location: The Program A director parents and modeling and then giving them time to
had a background in general education administration, and interact with their child and to carry out the kinds of
the Program B director had a background in early childhood things that you’re looking for.
special education.
In addition, the board of directors formalized a “Shared Val-
ues Statement” explicitly identifying the program’s vision,
Administrative Structures its employees, and the families it served. This vision, devel-
Administrative Vision/Leadership oped and periodically updated in a retreat involving both
Program A. The director’s strong PAT background and staff and leadership, included a commitment to quality ser-
her administrative experience were two particular factors vices and accountability; respect for and willingness to
that influenced how she perceived her role and vision of accommodate the needs of families and staff; communica-
services for infants and toddlers and their families. Explain- tion among staff, families, and community members; ongo-
ing her role as director, she noted that Program A was the ing teaming or collaboration; and quality staff and resources.
only program within the special education department for In contrast, Program A had no such formally articulated
which she had a “coordinator-type” person. She described document; thus, their shared values and operating princi-
the organizational structure and her role in Program A: ples were more implicit than explicit.

[Part C psychologist’s name] runs everything by me, Organizational Climate


and we talk about it. But the day-to-day kind of stuff Program A. At Program A, the director’s focus on fiscal
and as far as working with the rest of the staff, she is and personnel matters resulted in a high degree of profes-
able to do that. So my role is . . . two major things: sional autonomy for the staff. Though she conducted some
making sure the resources are where they need to be annual evaluations, her involvement with day-to-day ser-
fiscally and the personnel part of it. But less so with vice provision was limited. She stated, “I don’t go on the
the day-to-day, making sure families are served. home visits and participate in [the] weekly meetings all the
time, unless there’s a tough situation and they ask me to
The director’s PAT background was a pervasive influence on come in.” In addition, many of the policies and guidelines
how services were delivered to young children with disabili- related to service delivery were implicit. Practitioners,
ties and their families. She described her philosophy, and that nonetheless, expressed feeling supported by both the direc-
of Program A, as grounded in the PAT belief that “parents are tor and each other. A speech therapist commented,
the teachers, and service providers are the consultants.”
Program B. We began our research only 1 month after the It seems like I always have [someone who is] really
director took her position. The 4 years prior to this, she had prompt at getting back to me. Like [director’s name]
served as the EI coordinator. Program B’s director was more called me last night at 5:30 to talk about a child . . .
“hands-on” in providing guidance on the delivery of ser- it’s nice. I feel like I have a lot of support. . . . I can
vices on a daily basis. She said that as coordinator, she felt always go to everybody else on the team and ask for
practitioners were not using evidence-based practices and resources or . . . handouts . . . or information about
had begun to offer professional trainings. She convinced the something, so that is nice.
26 Teacher Education and Special Education 30(1)

Program A’s limited size also influenced practitioners’ and you know acknowledging that, I mean there’s just a real
workloads and peer collaboration. The large majority of EI team from top to bottom.” The practitioners also saw the
service coordinators and other practitioners also had a role director as supportive because she had been a practitioner
in PAT, either as educators or consultants. Practitioners also herself prior to becoming director. One practitioner
shared an office space consisting of a large room with desks expressed this very well:
arranged in a square, so that the staff literally faced each
other routinely. Needless to say, that enabled frequent com- I just think she brings that whole piece and having
munication and collaboration in addition to their weekly been out there and  .  .  . then when we come to her
meeting. Practitioners commented that their overlapping because I think she can either listen to us vent or help
roles and responsibilities and close physical proximity were us problem solve when she knows what we’re really
advantageous for effective collaboration: dealing with versus just sitting behind a desk and . . .
you know being the paper person that wears the nice
Based on the belief that the parents are the “teachers” clothes and never gets out in the home.
and the service providers are the “consultants” we
also try to brainstorm how to most effectively and Resources
efficiently provide services. . . . For example, instead Program A. The relatively small size of Program A, as well
of offering just personal visits from the SLP [speech- as its location within a school district, placed some limita-
language pathologist], we also offer speech/language tions on the resources available for the program. The major-
services during playgroup sessions or through a lan- ity of the staff were part-time in EI, with other parts of their
guage-enriched PAT/Part C visit. We often brain- time assigned to PAT or to the Part B preschool services. The
storm together possible community supports for the director, practitioners, and families all mentioned benefits of
families or children. sharing these resources, including flexibility in funding, ease
of transition between Part C and Part B, access to additional
Program B. Program B’s values statement specifically related service providers, and PAT-sponsored activities such
addressed “ongoing teaming” or collaboration. The fact that as playgroups and a lending library. Program A also had
EI staff were typically out of the office for the majority of access to a small emergency fund to purchase small items for
the day required special efforts to make sure that team col- families such as diapers and formula. During the focus group,
laboration occurred. Program B designated Fridays as their one practitioner noted that although they did at times “go
staff meeting day. On the day we observed these meetings, above and beyond” to provide diapers, they did not want to
the morning was spent as a whole group receiving informa- “advertise” the availability of this small fund for fear that it
tion about the director’s and other staff members’ recent would be overused.
attendance at conferences. In the afternoon the two teams Because of its location within a larger urban area, Pro-
(the northern and southern teams described earlier) met gram A was able to provide referrals to a variety of other
separately. We observed that the director split her time programs for their families. These included the local Early
between the two teams but sat in the back of the room; she Head Start program, a teen mother program, area food pan-
only spoke when asked a direct question. One team debated tries and clothing exchanges, and other not-for-profit pro-
the advantages and disadvantages of scheduling joint home grams. However, in one instance, one of the parents we
visits versus separate visits for each team member involved interviewed expressed an interest in mental health counsel-
with a given child and family. They decided to continue the ing for his children, but he reported that Program A said it
practice of joint visits whenever possible because they could not provide those services.
believed it was less intrusive for the families to have only Program B. Because Program B is a community-based
one visit on a biweekly basis. In our interviews, the staff nonprofit organization, its financial resources come from
recognized and appreciated their ability to have a “say” in many sources, including the state Part C agency, federal and
the operation of the program. As one pointed out, “that state grants, county government, and donations from fund-
whole thing of making you feel like you are important, you raising. Additionally, it pooled resources with the local PAT
know coming from above or coming from within, that’s to provide playgroup opportunities where parents could
really important . . . and you always feel like [the Director] network and practitioners could provide interventions.
is there to listen too.” The most important financial resources were devoted to
Whereas the staff in both Program A and Program B staff. In addition to the professional staff, the program pro-
described the support received from coworkers, in Program vided support staff (e.g., translators) that practitioners
B the support derived from collaboration appeared to per- needed to meet families’ needs. Although there were a few
meate the whole organization, as noted by one practitioner: part-time practitioners (mostly therapists), the majority of
“Well . . . right down to our custodian who takes wonderful the staff worked full-time for the agency. Program B also
care of our building, [everyone] takes great pride in [that] hired a full-time parent liaison, who was a parent of a child
Epley et al. 27

with a disability and a former participant in the program. Family supports. Regarding the provision of additional sup-
The program also provided equipment such as vehicles for ports to families, the informal and unwritten policies of Pro-
travel and cell phones. One practitioner explained that Pro- gram A, as well as its more limited resources, led to a more
gram B was good about providing training and then backing “under the table” approach to providing supports to families
it up by providing the equipment needed to implement the and utilizing the resources of the program. In the focus group,
training (e.g., handheld portable DVD recorders to enable practitioners discussed how they supported families:
practitioners to implement the strategies from the relation-
ship-based training the program had recently sponsored). Practitioner 1: We’ve driven families to [the electric
Finally, an important resource enabling flexible support to company] to pay their bills. . . . I don’t know that
families was a “respite fund,” which was actually an all- that ever would be documented because there are
purpose fund available to address a variety of family needs. some things we just do that we don’t want to be on
We observed the use of this fund during several home visits; an IFSP [individualized family service plan].
for example, in one family, the home visitor provided the Practitioner 2: We do it because you can’t not do it.
parent with information and vouchers to cover her costs for But maybe it’s something the higher-ups wouldn’t
travel and lodging so that her child could get “fitted” for a approve.
wheelchair at a tertiary care clinic located 300 miles away. Researcher: Why not?
During another visit, the practitioner pointed to a space Practitioner 2: Liability issues. It would probably not
heater the program had purchased for the family during the be approved, but it’s one of those things that you
previous winter using “respite” funds. ask for forgiveness instead of permission,
because . . . because the administration wouldn’t
want to be liable for those things but it is one of
Practitioner Practices and Family Supports and those things you would do off the record.
Services Administrative resources associated with the combined
Determination of the degree to which practitioners were Part C/PAT program and affiliation with the local school
consistently engaging in evidence-based practices was district also directly affected the supports and services fam-
beyond the scope of this study due to our short engagement ilies received. All four of the families we interviewed iden-
in the programs. In this section, we focus primarily on the tified family supports and services primarily associated
practices and family supports we observed, the perceptions with PAT. One mother remarked,
of the practitioners about the degree to which they per-
ceived them as “evidence-based,” and the connection The playgroups . . . they have had the most wonderful
between these perceptions and the administrative structures playgroups  .  .  . all the information they give you
of the two programs. about food, potty training, every little thing they did
I was just ecstatic. . . . Being a stay-at-home mom, it
Program A is hard to find something for them to do.
Practices. Practitioners in Program A had recently
received training on routines-based interviews and inter- Program B
ventions. Several practitioners expressed what they per- Practices. An example of the impact of administrative
ceived to be congruence between their PAT philosophy (i.e., structures on practices can be seen in the staff’s reaction to
professionals as consultants and parents as teachers) and training they had received on relationship-based
routines-based intervention. One practitioner reported a approaches. We observed a home visit in which the practi-
positive experience implementing a routines-based inter- tioners viewed a video with the mother, pointing out how
vention with the family of a 22-month- old girl with mild her interactions influenced the child. The mother sat on
speech and language delays. The practitioner discussed the the floor and watched the video with her children and the
family’s success with a routines-based intervention: “I practitioners on a portable DVD player. They discussed
made . . . the routine for them, and the next time I went, she specific parts of the intervention and then reviewed them.
had it taped up on the back of the [bathroom] door . . . she After the home visit, the practitioner said, “That was the
is very adamant on getting that child to talk, she wants that first time she ever got on the floor with us” and went on to
child to be right on.” The idea that this practitioner “made” say that this mother had previously been disengaged in the
a routine for a family is not congruent with EI conceptual- home visits. The practitioners were pleased that their new
izations such as those expressed by McWilliam (2005). It is, process was enabling them to be more family-directed and
however, congruent with the PAT approach. Thus, these less child-directed. As noted earlier, one of the two teams
comments illustrate the degree to which the administrative in Program B was actively using video tapes to explore
vision of PAT influences the practices of the staff. parent-child interactions, whereas the other was not. The
28 Teacher Education and Special Education 30(1)

team resisting the relationship-based approach was also families who spoke “Low German” as well as Chinese fam-
resisting other practices. During one home visit, the thera- ilies. To serve these families, Program B employed two
pist told the researcher that she did not “totally” subscribe full-time bilingual (English and Spanish) paraprofessionals
to the “no toy bag idea,” because many of her families did and contracted on an as-needed basis for other languages.
not have many resources. She said she had, however, mod- One of the bilingual paraprofessionals had worked at Pro-
ified her practice by applying another training they had gram B for almost a year. She felt very strongly that her
received on making “Toys from Trash,” by bringing items work was important. She felt that she was able to help the
made from common household materials (e.g., a drum interventionists do their jobs effectively, but more impor-
made from an oatmeal box), and leaving them in the home. tantly she was able to help Spanish-speaking families ben-
On this day she had some plastic bubble wrap, which she efit from the services.
unrolled and showed the mother how to entice the child
(who had gross motor difficulties) to walk on it. The child
was delighted at the feel of the bubbles and the popping Discussion
sounds, and the mother was amused; the practitioner left a Current conceptualizations of family-centered practice
second roll of bubble wrap behind for them to use. In acknowledge the particular circumstances and institutional
brief, it appears that even though the practitioners were contexts in which EI practices occur (Sanderson, 2003).
not completely embracing some of the practices their This study adds another layer to the discourse on family-
director was advocating, they were modifying their prac- centered practice: whether and how various influencing
tices to make sure families were more engaged and able to factors and administrative structures affect how practitio-
follow up with activities they demonstrated. ners implement family-centered practice, both in terms of
Family supports and services. The agency’s formal values the practices they use and the supports and services they are
statement expressed the belief that families are the key to able to offer to families. To effectively meet the needs of
successful outcomes for children. This belief meant that the young children with disabilities and their families, we must
program was structured to provide more than EI services. understand the context in which family-centered practice
The parent liaison described her job his way: occurs and the multiple factors affecting it. The conceptual
framework presented in Figure 1 provides one way of
I call it case management sometimes, but maybe more examining how administrative structures shape family-cen-
the family service coordination for those other pieces. tered practice.
I do a lot of Medicaid paperwork and following up on
that. Helping families apply for Social Security
Income for their children, if that’s appropriate. Limitations
First, because our purpose was to explore the influence of
In addition to this, she also managed the respite care fund, administrative structures on practices and family supports
which, as described earlier, was an important resource due at the local level, we deliberately restricted the sites in this
to its flexibility to provide for a wide range of family needs. case study to programs within the same state to limit pos-
The value placed on families enabled practitioners to sible variation that might be introduced by very different
provide flexible supports and services. For example, two EI state policies. This decision, however, limits the variability
professionals provided numerous supports to a young sin- of program structures that we might have observed and
gle mother with two children in EI. The mother provided removes the opportunity to investigate how different state
this description: policies might influence administrative structures. Because
the function of qualitative research is not to produce gener-
Right now they’re trying to help me get the kids in a alizable data (Creswell, 2003; Maxwell, 2005), but rather to
day care, and I find that works, so that kind of helps. develop a framework or a set of observed principles that
They were trying to help me look for a job when I may be transferable to other sites and situations (Creswell,
was unemployed and they mentioned about U-Pump-it 2003; Merriam, 1998), this study should be replicated in
so I went there and they helped me fill out the appli- other states with different administrative and policy struc-
cation and stuff like that and I got that job. tures. We believe, however, that this study has value in that
it sheds light on the processes influencing how administra-
Another important commitment to supporting families is tive structures are implemented and the ways in which these
related to the fact that more than half of their families are structures interact to shape both early childhood practice
Latino, and many of these families do not speak English. and family supports.
The same is true for many of the Southeast Asian families A second limitation is that the predominance of mothers
(primarily Vietnamese) they serve. In addition to these lan- compared to fathers and the limited representation of prac-
guage groups, practitioners talked of serving Mennonite titioners from culturally diverse backgrounds. The fact that
Epley et al. 29

recruitment of families by practitioners may have skewed organization with the needs and expectations of those it
the types of children and families selected for participation serves as qualities of good leaders. The administrative
should be taken into account as well. Finally, we cannot vision may be explicitly articulated, as in Program B, or it
claim that we had prolonged engagement in the sense that may be more implicit, as in Program A, but it drives the
many case studies involve repeated engagement with a site program. The central role of PAT in Program A is an exam-
over a period of months. This study includes approximately ple of how the leadership’s vision permeates all aspects of
20 hours at Program A and 37 hours (2 days with two the program design, perceptions of “evidence-based prac-
research team members, plus five follow-up interviews) at tice” by the practitioners, and delivery of services and sup-
Program B. Consequently, we have only a “snapshot” of ports to families. The PAT orientation of Program A has
how each program provided family supports and services. implications for programs providing services in inclusive
settings. On the one hand, Program A is a good example of
embedding services for infants and toddlers with disabili-
Implications ties within a general program serving all children (PAT); on
The case studies of two EI agencies illustrate how the over- the other, the PAT philosophy perhaps impeded successful
all structure of an agency and its administration are shaped implementation of some evidence-based practices such as
by the influencing factors inherent in the community and routines-based intervention. It suggests that, if a director’s
the agency’s history. In turn, these influencing factors shape background is not in early childhood special education,
the development of three important and interrelated compo- and/or if the program is to be implemented in a fully inclu-
nents of administrative structures: vision/leadership, orga- sive setting, some consultation and support is needed to
nizational climate, and resources (Summers et al., 2005). make sure that evidence-based EI practices are imple-
These administrative structures affect providers’ practices mented with fidelity in the program.
and the supports and services families receive. We believe In contrast, the EI background of the director in Program
these findings offer many insights for program administra- B was leading to a gradual reformation of the staff to
tors and policy makers, to help maximize the ability of embrace more current practices. Yet in this program we also
practitioners to provide high-quality practices and family observed that evidence-based practices were not being con-
supports. In this section, we discuss these implications for sistently implemented throughout the program, with one
each of the major components of our model: (a) influencing team embracing change more than another. Program B’s
factors, (b) vision/leadership, (c) organizational climate, director was aware of this and was continuing to push for
and (d) resources. changes in practices. The dilemma she faced is illustrative
of one of the issues of accountability: how to ensure quality
services in a program where the services are delivered away
Influencing Factors from the center and thus away from the eyes of a supervisor.
Influencing factors describe the basic culture of the com- Hopefully by filling the empty supervisor position (which
munity the program serves. The two cases highlighted in the director had recently vacated due to her promotion), this
this study are very different in size and location. The pro- issue could be addressed. The point is that having a vision
grams also differed in their administrative “home,” with is a critical component, but it is not enough if the account-
one directed by a school district and the other a not-for- ability mechanisms to implement it are not in place.
profit agency. These differing administrative and geograph-
ical locations require administrators to develop strategies to
maximize the benefits and compensate for the drawbacks. Organizational Climate
For example, Program A’s location within a school district The second point this study highlights is the importance of
had advantages in giving it access to district resources but an organizational climate that fosters peer collaboration for
also had drawbacks in its lack of resources. Increased flex- effective implementation of family-centered practice. This
ibility as well as increased resources could result if Program is consistent with Decker, Bailey, and Westergaard (2002),
A could procure additional grants to enable a wider range of who found that the optimal relationship between supervi-
supports. sors and workers is one that promotes self-growth and a
sense of significance as team members. In this study, prac-
titioners in both programs expressed a sense of autonomy
Vision/Leadership balanced by support from their supervisors and from each
This study is consistent with literature emphasizing the other. In Program A, this was easier to do because of the
importance of leadership for program administrators smaller size of the program, enabling staff to confer daily
(Bruder, 2000; Johnson et al., 1992). Mitchell and Ross- across their desks. In Program B, collaboration had to be
moore (2001) identified the ability to create a vision, trans- deliberately arranged by designating a weekly staff meeting
form that vision into reality, and align all aspects of the day for team meetings, in-service training, and other group
30 Teacher Education and Special Education 30(1)

support. In both programs, the leadership appeared to be are the supports and referrals (e.g., to another agency) pro-
successful in fostering a sense of autonomy and developing vided on the spot during home visits. In Program A, practi-
a supportive coworker atmosphere. However, a dilemma is tioners avoided documenting these supports for fear of
how to foster autonomy while maintaining accountability. being prohibited from doing it. In Program B, the lack of
An example is the uneven implementation of practices pre- documentation was due to a more simple—and yet more
sented in training in Program B. As the director commented, difficult to resolve—aversion to excessive paperwork. As
some of the more resistant staff members had left the pro- one practitioner pointed out, “It seems kind of dumb to
gram, but others were still in the program, particularly in come back to the office and write up an objective that is
one of the two teams. Especially in rural, sparsely popu- already done.” The lack of data about the extent of family
lated communities where highly trained EI specialists are supports provided is an issue for both accountability and for
not available to replace those who resist change, it is not the ability of advocates to document the true value of EI
only infeasible to summarily discharge practitioners who services. One strategy may be to improve data record keep-
are resisting change but also could have a very negative ing through technology, for example, equipping home visi-
effect on organizational climate. One possible strategy tors with laptops and entering information about family
might be to rotate membership in the two teams from time supports and other occurrences in home visits directly
to time, which could improve the possibility that both teams online to a centralized database.
would be able to implement the training they had received.
Conclusion
Resources The two cases presented here illustrate the critical role of
Resource allocation is particularly relevant given the diffi- administrative structures in facilitating practices and family
culty EI programs face in managing multiple funding supports and services. The framework shown in Figure 1
sources and the resulting fragmentation of services that can illustrates how the influencing factors might create very dif-
occur (Brown, Perry, & Kurland, 1994). The contrasts ferent administrative structures in terms of vision/leadership,
between the two programs in this study reflect the impor- organizational climate, and resources. The two programs pre-
tance of adequate resources. Program A had fewer resources, sented very different characteristics and approaches that
which resulted in a discrepancy between the two programs played out as both barriers and facilitators to enable staff to
in the amounts and types of resources families received. provide services to children and families. Implications for
The fact that Program B had a full-time family support spe- administrators are that effective operation of a program
cialist, resources to hire translators, and a generous and depends on a clear vision, an organizational climate that fos-
flexible “respite fund” enabled the program to do consider- ters collaborative teams and balances autonomy with
ably more for its families than Program A. The administra- accountability, and adequate and flexible resources.
tive location of Program A within a school district may also
restrict the program’s flexibility in developing these Declaration of Conflicting Interests
resources—for example, hiring a parent as a family support The authors declared no conflicts of interest with respect to the
specialist might require some bureaucratic athleticism that authorship and/or publication of this article.
Program B would not need to exercise. An implication of
the imbalance in resources between smaller and larger pro- Funding
grams is that state Part C directors should consider these The authors disclosed receipt of the following financial support
potential imbalances and provide support (either technical for the research and/or authorship of this article: This research
assistance in obtaining grants from other sources or direct was supported by a grant from the U.S. Department of Education,
resource allocation) to address the imbalances. National Institute of Disability and Rehabilitation Research,
Another issue raised in both programs was the lack of Grant No. H133B031133.
visibility of the family supports provided. In Program A,
practitioners did not publicize the availability of their small References
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