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PERS PE C T IV E A Good Physician — On Complacency and Communication

A Good Physician — On Complacency and Communication

A Good Physician — On Complacency and Communication


Michelle M. Kittleson, M.D., Ph.D.

I n the fall of 1997, my medical


school roommate lent me her
copy of Anne Fadiman’s The Spirit
for updates and never went back
myself.
After a few months, the pa-
recite the names and dosages of
his medications by heart. His fa-
ther appeared relieved to no lon-
Catches You and You Fall Down.1 I tient received the magic call. He ger be our go-between, and I was
stayed awake for two nights, fas- sailed through transplantation ashamed because I had never
cinated and appalled by the mis- and was home within 10 days. bothered to learn more than the
understanding between the young I should have been proud, but an patient’s medical history.
Hmong patient’s family and He had had a myocardial
her American physicians. Tak- infarction in his early 40s,
ing the cautionary tale to which was complicated by
heart, I dutifully used the tri- ventricular septal rupture. Af-
angular seating arrangement ter surgery, he was left with
recommended for patient, in- an ischemic cardiomyopathy,
terpreter, and physician. Often and 2 years later, consider-
before the interpreter could ation of a transplant was
translate a response, I knew warranted. His condition was
whether the patient was con- stabilized with low-dose ino-
fused, unconvinced, or fright- trope support, and I planned
ened, and I delighted in the to discharge him to wait for a
power of this connection. heart transplant as an outpa-
But much can change in tient. But his insurance com-
two decades. I recently cared pany decided that though they
for a 45-year-old man for over a adage from William Osler nagged would approve transplantation,
month and never spoke to him. at me: “The good physician treats they would not approve a defi-
He was admitted with cardiogen- the disease; the great physician brillator. How could he go home
ic shock, stabilized, and listed treats the patient who has the with inotropic support but no
for heart transplantation. Every disease.” I knew I had missed defibrillator? Alternatively, how
morning, I rounded with my the mark. could he be listed as an outpa-
heart failure team. The patient, At the patient’s first visit to tient with a projected wait time
pulmonary artery catheter se- the heart transplant clinic after of months to years, yet remain in
cured to his neck, usually looked surgery, we had our first conver- the hospital?
up when we entered but then re- sation. I perched on the exam- He spent 2 weeks in limbo,
turned his attention immediate- room stool, one point of a trian- and every day I explained to the
ly to his ever-present phone. gle with the patient and the father his son’s uncertain future.
His father was the other con- American Sign Language (ASL) I described my attempts to corner
stant in the room. Every morn- interpreter, and introduced my- the insurance company’s medical
ing, as I spoke to his father, I self. As the interpreter’s hands director across time zones and
glanced at my patient. He would fluttered like birds, I was equally his seemingly conscious efforts
offer a half-hearted smile, but I charmed and embarrassed. to duck my calls. I offered the
never knew how much he under- My patient had a bright and option of a wearable defibrilla-
stood or what he was thinking. ready smile. He joked about his tor, and when the insurance com-
I sometimes asked the cardiology low pain tolerance but still tried pany also declined to pay for that,
fellow to circle back after rounds to avoid pain medications. He was I described our (also unsuccess-
to see whether the patient had excited because he could climb a ful) attempts to finagle a free
any questions, but I never asked flight of stairs. He was proud to device.

1798 n engl j med 381;19 nejm.org November 7, 2019


PE R S PE C T IV E A Good Physician — On Complacency and Communication

The patient’s body ultimately (for me) inertia. I was relieved to on the radar of his new life. He
made the decision for us. His cre- avoid explaining the same frus- was also resigned, explaining that
atinine level, the canary-in-the- trating medical quandary twice he had stared at his phone be-
coal-mine of organ perfusion, each morning. I fell into a com- cause trying to follow spoken
worsened, and he required high- placency born of pragmatism conversation was too frustrating.
er doses of inotropic support that and confidence in my abilities: After the third visit, I emphati-
justified listing him as an inpa- I knew I was providing the best cally signed “You’re awesome,”
tient. The uncertainty about how medical care, so I ignored the realizing a few months too late
to safely usher him to transplan- importance of direct communi- that nuances of tone and style
tation was resolved. Throughout cation. could be conveyed without a voice.
it all, his father was calm, while In the two decades since I fin- I never returned my roommate’s
my patient’s face, lit only by the ished medical school, medical di- copy of The Spirit Catches You and
glow of his phone, remained in- lemmas have ceased to keep me You Fall Down, and Fadiman’s
scrutable. Whenever I care for a up at night; there is rarely a situ- words now offer an ironic re-
patient in the hospital awaiting a ation I have not encountered al- minder and reproach: “Every ill-
transplant, I always ask, “Is there ready. But after that clinic visit, ness is not a set of pathologies
anything we can do to make your I did lose sleep. How had my pa- but a personal story.”1 My patient
life easier?” But I never asked him. tient felt, being ignored each had a happy ending and he has
Why had I settled for being morning? How frustrated was he, forgiven me, but that is beside
just a good physician? Half the a grown man, made to rely on the point. It is harder to forgive
problem was logistics: scheduling his father to understand his own myself. I suspect I will always
a daily real-life ASL interpreter, care? And what if his condition feel a prickle of guilt and embar-
available in the 2-hour window had worsened, warranting dis- rassment when I see him, and
allotted for teaching rounds, cussions of mechanical circula- that small sting will remind me
seemed impossible. The other half tory support or hospice? I had of something I will not forget
was the absurdity of a video inter- neglected to gain the trust that again: diseases may become rou-
preter: between the fuzzy screen, is essential for guiding patients tine with experience, but patients
the static-filled audio, and the through difficult decisions. When must not.
time delay, any conversation would presented with the unique chal- Disclosure forms provided by the author
have left us more confused and lenge of caring for a deaf patient, are available at NEJM.org.
frustrated than when we started. I took the convenient way out,
In retrospect, I should have every day, for a month. I’d set a From the Department of Cardiology, Smidt
Heart Institute, Cedars-Sinai Medical Cen-
used his father as interpreter in- poor example for my team, I’d ter, Los Angeles.
stead of messenger. But on my failed to comfort a patient in
first day, neither the patient nor need, and I’d missed out on the 1. Fadiman A. The spirit catches you and
his father requested that I speak joy of that relationship. you fall down:​a Hmong child, her American
doctors, and the collision of two cultures.
directly with the patient, and af- On his second clinic visit, I New York:​Farrar, Straus and Giroux, 1997.
ter the second and third days worked up the courage to apolo-
passed with the same calm ac- gize. He was nonplussed yet gra- DOI: 10.1056/NEJMp1907319
ceptance, we fell into an easy cious, my negligence but a blip Copyright © 2019 Massachusetts Medical Society.
A Good Physician — On Complacency and Communication

n engl j med 381;19 nejm.org  November 7, 2019 1799

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