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    Duplicate of Pudecherry

    Uploaded by

    StefiSundaran

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    © All Rights Reserved
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    Free * ORIGINAL ARTICLE, ISSN 0976 3325 | eISSN 2229 6816 Open Access Article 8 oat fwuw.njemindiaons Needs of People Requiring Palliative Care in an Urban Area of Pondicherry, South India: An Exploratory Study Praveena Daya A Sonali Sarkar Sitanshu Sekhar Kar nancial Suppor: None declared Confit of ntrst Nene dled ABSTRACT Cop Right he osm ew he copies ths erga Hew ce prxducton ernie with dae Ssonfedgemene tthe Context: Diseases requiring palliative care are on rise and peopic sutering from these diseases experien.e pain, psy. hosocial dis- tress and other semptoms which decrease their juality of live. stucly was conducted to ~ssess the needs ot people requiring pal- liative care é1 terms of medical social. psychological, financial and spiritual aspects i two selected areas in Pondicherry Materials and Methods: An exploratory descriptive study coa- ducted among 3554 individuals in L001 households in two selected areas under an Lrban PHC in Pondicherry identified 22 people in need of palliative care and their needs were studied using Needs Assessment Tool: Progressive Disease (NAT: PD). Data was ana- lysed using IBM SPSS Software version 20, Levels of concern for \atious domaine were rated subjectively as none, some, significant and expressed in proportions, Results: Major needs of the patients were in psychological domain followed by physical and financial domains. Common physical symptoms reported were sleep problems followed by fatigue or tiredness. Psychological problems reported were sustained lower- ing of mood followed by tearfulness. Financial problems reported ‘were loss of income followed by costs of treatment and travel ex- penses. Conclusion: Early identifications of these needs help to alleviate the problems of patients and their dependents to a great extent, ‘Keywords: Palliative care, urban, patients, Physical problems, Psychological problems How te ate this etic: Laya AY, Sarkar S, Kar $8. Neods ot People Requiring Palliative Care in an ‘Urban Area of Pondichetry, South In dia: An Exploratory Study. Nat! Community Med 2018; 95): 372-379 Author's Affiliation: ‘Assistant Professor, Dept. of Comur nity Medicine, irunelveli Medical Col- lege, firunelvel, familnadu ‘ndia; Additional, -rofessor, pt. of Preven tive and Social Medicine, Jawaharlal “naitate of Post Graduate Medical Education and Ressarch (IPMER), Pa ducherry, India, Cones onaence Dr Praveena Daya A drdayamd@gmailcom Date of Subscissiun: 17-04-18, Date of Acceptance: 2-05-18 Date of Publication: 31-05-13 INTRODUCTION require palliative care live in low and middle- income countries!. Demand for these services will Need for palliative care services are in an incseas- ing pace globally. World Health Organization de- fines palliative care for adults as an approach that prevents and relieves the sufferings, improves the quality of life of people suffering from life- tdweatening illness and their families by identifying, and assessing their sufferings at an earlier stage and treating their pain, other physical, psychoso- ‘Gal and spiritual issues Worldwide, every year nearly 20 million people are in need of palliative care services and among them 6% ate childen, Around 78%, of adults who further increase because of the rising burden of noncommunicable diseases and increasing, num- ber of ageing population who are expected to live Jong and suffer from these lie threatening condi- tions. Indian scenario is comparable with the situa- tion prevailing globally. In India each yeas, around 98 million people are facing their death and around 60% of tem would be im need of palliative care services. This will be further fuelled by the rising burden of non-communicable diseases con- tributing to 53% of total deaths? and increasing ‘National foural of comunity M dane |Voluue 9 [sew 5] May 018 Fea B open doses Focal |i oe SEN 07765305 | SGN 2296816 ‘proportion of elderly population (260 years) in In- dia. The 2011 census estimated 76 million (75%) elderly in the country and it is expected to attain 12.17% by 20264. Despite the growing need there exists inadequate accessibility and availability to palliative care services, as only very few countries are providing palliative care services thvough a ‘public health approach, Assessing the needs of people requiring palliative care is a global humanitarian need to alleviate the sufferings of those patients and their families. His- torically palliative care programmes have concen- trated on the needs of the cancer patients who ‘were known to suffer from high symptom burden. But there are other non-malignant conditions like HIV, drugzesistant TB, cerebrovascular disease, congestive heart failure, chronic respiratory dis- eases, netrodegenerative disorders, diseases of el- erly! ete. which make the people suffer physical- psychologically, financially and socially making, ‘their end stage of life miserable. Worldwide various studies have assessed the needs of people requiring palliative care in various domains. There is paucity of evidence in the cur- rent geographic region. So the present study was conducted to identify the people in need of pallia- ‘ve cage in tivo selected areas in an wwzhan PHC of Pondicherry, to assess the needs of patients in terms of medical, social, psychological aspects and, needs of Jamily caregivers in various domains. MATERIALS AND METHODS ‘Study design and setting: An exploratory deserip- tive study was conducted in two areas, Senthama- zai nagar and Thiruvalluvar nagar having about 500 households each, under Muthialpet Primary Health Centre (PHO), an Urban PHC in Pondicher- zy, selected pusposively to sepresent the usban population of Pondicherry after discussion with the Deputy Director of Public Health, Govt. of Pu-

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