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Factitious disorders 1
Early recognition and management of fabricated or induced
illness in children
Christopher Bass, Danya Glaser

Lancet 2014; 383: 1412–21 Fabricated or induced illness (previously known as Munchausen syndrome by proxy) takes place when a caregiver
Published Online elicits health care on the child’s behalf in an unjustified way. Although the fifth edition of the Diagnostic and Statistical
March 6, 2014 Manual of Mental Disorders specifies deception as a perpetrator characteristic, a far wider range is encountered
http://dx.doi.org/10.1016/
S0140-6736(13)62183-2
clinically and is included in this Review. We describe the features of fabricated or induced illness, its effect on the child,
and the psychosocial characteristics of caregivers and their possible motives. Present evidence suggests that
See Online/Comment
http://dx.doi.org/10.1016/ somatoform and factitious disorders are over-represented in caregivers, with possible intergenerational transmission
S0140-6736(13)62640-9 of abnormal illness behaviour from the caregiver to the child. Paediatricians’ early recognition of perplexing
See Online/Series presentations preceding fabricated or induced illness and their management might obviate the development of this
http://dx.doi.org/10.1016/ disorder. In cases of fully developed fabricated or induced illness, as well as protection, the child will need help to
S0140-6736(13)62186-8
return to healthy functioning and understand the fabricated or induced illness experience. Management of the
This is the first in a Series of two perpetrator is largely dependent on their capacity to acknowledge the abusive behaviour and collaborate with helping
papers about factitious disorders
agencies. If separation is necessary, reunification of mother and child is rare, but can be achieved in selected cases.
Department of Psychological
Medicine, John Radcliffe
More collaborative research is needed in this specialty, especially regarding close study of the characteristics of women
Hospital, Oxford, UK with somatoform and factitious disorders who involve their children in abnormal illness behaviour. We recommend
(C Bass FRCPsych); and Great that general hospitals establish proactive networks including multidisciplinary cooperation between designated staff
Ormond Street Hospital for from both paediatric and adult mental health services.
Children, London, UK
(D Glaser FRCPsych)
Correspondence to:
Introduction Unlike other definitions, DSM-5 specifies identified
Dr Christopher Bass, Department Many changes have taken place in nomenclature since deception by the perpetrator as an essential criterion.
of Psychological Medicine, Meadow first described Munchausen syndrome by proxy Although restriction of the definition in this way allows
John Radcliffe Hospital, Oxford in 1977,1 including renaming to factitious disorder by for clarity, the other definitions include a far wider range
OX3 9DU, UK
christopher.bass@
proxy,2 paediatric condition falsification,3 fabricated or of motivations and behaviour that represent clinical
oxfordhealth.nhs.uk induced illness in the UK,4 and medical child abuse in reality. Justification for use of the wider definitions of
the USA.5 In 2013, the fifth edition of the Diagnostic and abnormal illness behaviour by carers in relation to their
Statistical Manual of Mental Disorders (DSM-5),6 children is that the harmful effects on the child are
introduced factitious disorder imposed on another remarkably similar, irrespective of the mother’s actions
(previously factitious disorder by proxy; panel 1). and motivations. In this Review we use the term
fabricated or induced illness and the terms perpetrator
and caregiver are used when appropriate. We suggest
Search strategy and selection criteria techniques for earlier recognition, and possibly aversion
We included the terms “Münchausen syndrome by proxy” OR of fabricated or induced illness, and discuss strategies for
“Factitious disorder* by proxy” OR “fabricated illness by carer*” management of diagnosed fabricated or induced illness.
OR “induced illness by carer*” OR “Munchhausen syndrome by
proxy” OR “Munchausen syndrome by proxy” OR “Munch?ausen What constitutes fabricated or induced illness?
by proxy syndrome” OR “P?diatric Condition Falsification” OR Fabricated or induced illness can involve reported
“Fabricated or Induced Illness” OR FII and entered them into concerns about both the physical and mental health of
PsychINFO and SCIE databases. We reviewed the reference lists of the child, such as difficulties in the autism spectrum.7
articles identified by the search strategy and included articles Fabricated or induced illness has been located on a
judged as relevant. We examined papers written in English and continuum of parental health-care seeking for a child,
published since 2002, but also included widely referenced and which ranges from extreme neglect (failure to seek
highly regarded older publications and books published since medical care for the child) to induced illness.8 This
1998. We did not include the term malingering. We also did a continuum includes both the more common erroneous
PubMed search with the same terms, and a MeSH search. We did verbal reports, which might or might not include an
our search between Feb 19, 2013, and Aug 19, 2013. We cite intention to deceive, and the far rarer use of hands by the
findings from recent research and evidence from learned bodies caregiver to falsify the child’s medical records,9 interfere
(eg, Royal Colleges in the UK and American Academy of with specimens, or induce illness in the child, all of
Pediatrics in the USA) and clinical experience. which are forms of deception (panel 2). This abnormal
form of health-care-eliciting behaviour by the caregiver,

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for the child, often co-exists with abnormal relationships


with health-care and social-work professionals that can Key messages
have an adverse effect on the child. • The definition of fabricated or induced illness in the fifth edition of the Diagnostic and
For fabricated or induced illness to arise, three parties Statistical Manual of Mental Disorders is clear, but narrow, and excludes the many
are actively, if inadvertently, involved: the child, the cases of harm not caused by deception
caregiver, and a health professional (usually a doctor; • Early recognition by paediatricians of perplexing presentations with alerting signs,
figure). Important to note is that the child might have past followed by direct observation of the child, might obviate the full development of
or coexisting genuine health problems10 and sometimes, fabricated or induced illness
the abnormal illness behaviour might involve adults.11 • The fabricated or induced illness is established by paediatricians and child mental
health professionals, not by adult psychiatrists
Epidemiology • Many children will have a past or coexisting genuine medical disorder
Fabricated or induced illness is not confined to English- • The effects of fabricated or induced illness on children are serious, wide ranging, and
speaking industrialised countries. Feldman and Brown12 similar, irrespective of perpetrator behaviour or motivation
identified 59 articles from 24 countries describing at least • Interdisciplinary liaison is essential, with multidisciplinary planning for the child’s
122 cases in nine different languages. Some disorders are protection
more likely to be fabricated than others. Seizures are a • Perpetrators of fabricated or induced illness are usually caregiving mothers who have
presenting feature in 42% of cases of fabricated or reported high rates of early childhood privation, neglect, and abuse
induced illness,13 and are especially vulnerable to • More than 50% of perpetrators have a somatoform or factitious disorder, and more
fabrication because they are common and intermittent.4,14 than 75% have a coexisting personality disorder, particularly cluster B disorders
In a childhood asthma clinic, 1% of families had fabricated (ie, sociopathic, borderline, or histrionic)
or induced illness, with abnormal parenting behaviour • Detection of factitious disorder in a mother of young children should provoke a search
leading to combinations of treatment withholding and for fabricated or induced illness and other forms of maltreatment in her offspring
overtreatment.15 One series of child victims described • The perpetrating caregiver needs comprehensive assessment of underlying
high rates of asthma, allergy, and sinopulmonary psychopathological abnormalities and capacity to acknowledge responsibility before
infections that often led to unnecessary surgery.16 treatment can be considered
Defining of incidence is dependent on the inclusion • The child and family will need therapeutic intervention to develop a narrative about
criteria adopted by a specific study. With strict criteria, their experiences and adjust to the child’s more healthy functioning
McClure and colleagues17 reported a combined annual • Reunification is feasible but only in very carefully selected cases for which some
incidence of roughly 0·5 per 100 000 children younger acknowledgment of fabricated or induced illness has been made; follow-up is needed
than 16 years, and of at least 2·8 per 100 000 children • When reunification is not possible, long-term treatment of the personality
younger than 1 year. With broader criteria Watson reported disturbance and any other coexisting mental disorder (often a somatoform disorder)
an incidence of 89 per 100 000 children and adolescents in is needed
a 2 year period, but no deaths,18 and Denny and colleagues19
reported an incidence of 2 per 100 000 children with the
same criteria as McClure and colleagues, but no deaths.
Panel 1: Diagnostic and Statistical Manual, fifth edition,
Child’s median age at diagnosis was 2·7 years. All these
criteria for factitious disorder imposed on another, code
numbers are likely to be underestimates. In a population-
300.196 (International Classification of Diseases-10 code
based prospective study from Italy,20 14 (2%) of 751 children
F68)
(mean age 8·4 years) referred to a paediatric unit were
diagnosed with factitious disorder, with fever being the 1 Falsification of physical or psychological signs or symptoms,
most common presentation. With stringent criteria, the or induction of injury or disease, in another; associated with
investigators identified fabricated or induced illness in identified deception
four of the 751 cases, resulting in a prevalence of 0·53% 2 The individual presents another individual (victim) to others
(mothers were the perpetrator in three cases and a as ill, impaired, or injured. The perpetrator, not the victim,
grandmother in one). This increased prevalence was likely receives the diagnosis
to be the consequence of inclusion of a trained 3 The deceptive behaviour is evident even in the absence of
multidisciplinary team who were alert to the possibility of obvious external rewards
these diagnoses. Important to recall is that induced 4 The behaviour is not better explained by another mental
symptoms are generally more difficult to detect than disorder, such as delusional disorder or another psychotic
fabrication of symptoms, but once they are detected they disorder
might be easier to confirm or prove.21

Possible explanatory mechanisms and Several reasons explain this need, which are not mutually
motivations exclusive (panel 3).
A possible overall explanation is that the caregiver has an Evidence has shown intergenerational transmission of
underlying need to have the child recognised as being ill abnormal illness behaviour in these caregivers. Of the
when they are not, or as more ill than they actually are. medically unexplained symptoms reported by mothers

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disorder induced illness, not only in herself but also in her


Panel 2: Illness fabrication and induction three children, with exogenous insulin injection.
Erroneous reporting (fabrication) of medical history,
symptoms, or signs by: Characteristics of perpetrators
• Exaggeration In view of the diverse motivations, caregivers have no one
• Misconstruing of real events on the basis of mistaken profile of behaviour, personality, or psychiatric disorder
belief about their meaning and no psychiatric diagnosis exists for Munchausen
• Reporting of actual events that only happen in the syndrome by proxy. People who fabricate illness in their
mother’s presence (ie, situation specific events, therefore children are almost always women and 14–30% have
not a disorder located solely in the child) professional ties to the health-care profession.26 Sheridan26
• False reporting reported that 76% of the perpetrators were the child’s
biological mother and 7% were the father. In the few cases
There might or might not be an intention to deceive
for which fathers are the main perpetrators, the father is
Deception by use of hands likely to have either a factitious disorder or clinically
• Falsification of records or charts significant somatoform disorder.27 Grandmothers
• Interference with investigations and specimens (eg, putting sometimes support the mothers and someone in loco
blood or sugar in the child’s urine) parentis can also fabricate illness in a child.
• Interference with lines In general, the non-perpetrating fathers of child victims
• Inducing of signs or illness in the child by, for example, of fabricated or induced illness tend to be distant,
poisoning or overmedication (eg, laxatives, salt), suffocating, uninvolved, and emotionally and physically detached
starving from the family system.28 Some fathers are truly unaware,
some might believe the mother’s contentions, and some
might be suspicious and attempt to challenge the mother
unsuccessfully.29
Talks Findings from studies of female perpetrators have
Mother Doctor
shown high rates of reported privation, childhood abuse,
and significant loss and bereavement.30 In this study of
Induces illness or Investigates 41 children (15 with failure to thrive through active
interferes with investigation and treats withdrawal of food or alleged allergies) and 26 victims of
Child fabricated or induced illness, six mothers had a factitious
Might have a genuine disorder, one had hypochondriasis, and 16 had a history
illness or disorder of depression.
Figure: The inter-relationship between mother, doctor, and child
Somatoform and factitious disorders
Somatoform and factitious disorders are over-represented
Panel 3: Explanatory mechanisms and motivations among perpetrators: in a study of 47 mothers, 30 of
whom were active inducers, Bools and colleagues31 noted
• Extreme anxiety leading to exaggeration of symptoms and
that the most probable diagnosis for 34 (72%) participants
signs to encourage the doctor to rule out or identify any
was a somatoform disorder (of whom 25 [74%] had a
treatable disorder
factitious disorder with physical symptoms). Similar
• To confirm (false) beliefs about a child’s ill health
findings were reported in a more recent study of
(eg, developmental disorder, food allergy7,22,23), including
28 mothers (all with evidence of fabrication or induction
beliefs held by caregivers with Asperger’s syndrome and
of illness in children),24 in which somatoform disorders
rarely with a delusional disorder)
were reported in 57% of participants and factitious
• Wish for attention
disorders in 64%, with co-occurrence of these disorders
• Deflection of blame for child’s (usually behavioural)
in 39% of participants. A third of these patients were in
difficulties
receipt of disability benefits. Detailed examination of
• Maintain closeness to child
both primary care and extensive medical and social-work
• Material gain
records might uncover episodes of illness deception and
pathological lying,32 often coexisting with somatoform
with somatoform disorders, a high proportion is presentations.
pseudoneurological (fainting and pseudoseizures), The distinction between a somatoform and factitious
gastroenterological (abdominal pain and nausea), and disorder is mainly based on volitional choice and the
obstetric or gynaecological.24 Caregivers with pseudo- known consequences that might follow its exercise in
neurological disorders might state that their offspring has specific situations.33 With a somatoform disorder the adult
similar distressing symptoms, such as syncope and does not consciously or deliberately fabricate symptoms,
seizures.24 In a report,25 a mother with adult factitious whereas with factitious disorders the caregiver consciously

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chooses this behaviour, or is at least consciously aware of adult somatisation, and, in some women, transmission
the deception and possible gains involved. of abnormal illness behaviour to their offspring.46
These findings are important for two reasons: (1)
mothers with somatoform disorders have children with Effect on the child
more health problems and higher rates of medical At the rare, severe end with illness induction, several
consultations than those of well mothers or organically accounts have been reported by victims of this abuse,47
ill mothers;34,35 (2) that some of these mothers include and a bestselling book by Gregory48 describes the
their children in abnormal illness behaviour suggests physical, behavioural, and emotional consequences. In a
their capacity to care for them appropriately is impaired. review of 451 cases of fabricated or induced illness from
As a consequence the children of mothers with rigidly 154 articles from medical and psychological journals,26
held or abnormal health beliefs can become medicalised time elapsed from onset to diagnosis averaged
and in turn the victims of abnormal illness behaviour by 21·8 months. Most of the 6% of children who died had
proxy. At present it is not known what characteristics of illness induced. and 7% were judged to have suffered
mothers with somatoform or factitious disorders might long-term or permanent injury. 25% of victims’ known
determine that they will involve their children in siblings were dead, and 61% of siblings had illnesses
abnormal care-eliciting behaviours. Only by assessment similar to those of the victim or which raised suspicions
of cohorts of childbearing women with somatoform of fabricated or induced illness.
disorders will this question be answered.36 Aside from mortality, which is associated with illness
induction, the child has the same forms of harm,
Personality disorder irrespective of the nature of the mother’s behaviour. The
Very few studies have been done of personality in female harm to the child can be grouped within three domains
perpetrators. In a systematic study of personality in (panel 4).49
19 mothers with fabricated or induced illness (two-thirds Many children also have comorbid emotional and
with evidence of deception), high rates of personality behavioural problems not directly related to the illness
disorder were identified in 17 (89%) mothers, with fabrication or induction, but probably related to parent–
antisocial, histrionic, borderline, avoidant, and child interactions.50
narcissistic categories being most frequently identified.29
Some mothers had more than one personality disorder. Effects in adolescence
In a German study, three of four mothers had a In adolescence the complexity of the situation increases.
personality disorder, with paranoid personality diagnosed Some children who independently falsify illness might
in two mothers.37 Borderline personality disorder in have had a previous experience of victimisation or
particular is associated with marked difficulties in encouragement of illness falsification by a caregiver,51
mother–infant interaction.38 and so-called symptom coaching has been described.52

The role of attachment


Fabricated or induced illness has been suggested to Panel 4: Effect of fabricated or induced illness on the child
represent an abnormality in the attachment system Physical health
between mother and child.39 Because attachment theory • The child has repeated (and, in retrospect, unnecessary)
provides an account of both care eliciting and caregiving investigations, procedures, treatments, and periods of
as behavioural systems operating between parents and hospital admission
children,40 this theory might be useful for understanding • Illness induction is associated with additional serious harm,
dynamics within fabricated or induced illness. and 6% mortality26
Attachment insecurity is over-represented in maltreating
parents compared with non-clinical samples, including Daily life and functioning
in those with fabricated or induced illness.41,42 An • Low or interrupted school attendance and education
attachment perspective might also be relevant because of • Few normal activities such as sport
the association between attachment security and both • Assuming of a sick role with aids (eg, wheelchairs)
illness behaviour and medically unexplained symptoms • Social isolation
in adults. Patients with fearful and insecure attachment Psychological health
report substantially more physical symptoms than do • The child is troubled by a distorted view of their health and
secure patients,43 and patients with chronic widespread might become anxious and preoccupied about their state
pain are more likely to have insecure attachment than are of health and vulnerability; be confused about their state of
those who are free from pain.44 The early attachment health because they might not feel ill, but be repeatedly
experiences of these mothers are likely to affect both examined, investigated, and treated; collude with the
parenting capacity and personality development.45 These illness presentation or be silently trapped in falsification of
findings suggest an important association between illness; or develop a factitious or somatoform disorder
abnormal forms of attachment, childhood adversity,

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they had attention deficit hyperactivity disorder.59 Notably,


Panel 5: Alerting features that should prompt health-care two of the five mothers in this series had a factitious
workers, social workers, teachers, and families to suspect disorder, and four (44%) of the children had a coexisting
fabricated or induced illness56 fabricated medical disorder. The mother’s actions might
The child’s history, physical, or psychological presentation be inferred, false reporting sometimes witnessed,
shows discrepancy with findings of examinations, assessments, physical actions rarely observed, and her actions (verbal
or investigations, and one or more of the following occurrences: and physical) occasionally admitted to by the mother.52
• Reported symptoms and signs are only observed, Guidelines for school and other personnel confronted
or appear in the presence of, the parent or carer with repeated requests for unwarranted special
• An inexplicably poor response to prescribed drugs or educational services have been published.60
other treatment Fabricated or induced illness can present in obstetric
• New symptoms are repeatedly reported settings, and mothers who are responsible for fabricated
• Biologically unlikely history of events or induced illness in their children have been described
• Despite a definitive clinical opinion being reached, various with factitious disorder in pregnancy.61 Characteristic
opinions from both primary and secondary care are sought fabricated presentations include antepartum haemor-
and disputed by the parent or carer, and the child rhage, feigned premature labour, and induced post-
continues to be presented for investigation and treatment partum bleeding leading to anaemia. Self-induced labour
with a range of signs and symptoms has been described leading to death of a child.62 These
• The child’s normal daily activities, (eg, school attendance) findings suggest that a finding of fabricated or induced
are few, or the child is using aids to daily living (eg, illness in a previous child should suggest to the
wheelchairs) beyond expected need from any medical obstetrician an increased risk of obstetric factitious
disorder that the child has disorder in a pregnant woman. Furthermore, the
• Expression of concern by relatives or other professionals presence of factitious symptoms during pregnancy
should alert the paediatrician to the possibility of
The child might have a recognised past or concurrent physical
fabricated or induced illness.63 Increased rates of
or psychological disorder
pseudocyesis (false pregnancy) have been reported in
female perpetrators.24
Cases have been reported of victims of fabricated or
induced illness corroborating and participating in the Medical contribution
perpetrator’s deception,53 or continuing to be the victims Unlike the usual medical response to ill health or a sick
of fabricated illness by their parents decades after the child, for fabricated or induced illness there seems to be
initial abuse.54 In a remarkable case an adolescent male an over-reliance on parental reports even when they do
victim, after separation from the perpetrator, continued not accord with others’ direct observations of the child.
to endorse symptoms of chronic medical illnesses for This over-reliance often leads to over investigation and
which there were no causes.55 Of particular interest is inappropriate treatment of the child’s reported
that adolescents with factitious disorders have strikingly symptoms and incidental abnormal findings from
similar clinical and demographic characteristics to the investigations, neglecting the harm to the child’s present
adult perpetrators of fabricated or induced illness.24 In a functioning. Moreover, doctors might also support or
recent retrospective study of adolescents with factitious not question the child’s low or non-attendance at school,
disorder (mean age 16 years), three-quarters were confirm the use of aids that the child might not actually
female, half had witnessed severe somatic illness within need, and support seeking of financial and welfare
their immediate family, a third had personally had severe payments for the care of the child. Several possible
or chronic illness, half had been adopted or fostered, explanations exist for this medical response, which
42% had histories of self-harm, and 42% history of become obstacles to a more adaptive or appropriate
physical or sexual abuse.56 approach (panel 6).58,65
Conversely and rarely, paediatricians might conclude a
Presentation and recognition decision of possible fabricated or induced illness too
Many children who are subjected to fabricated or induced early, and not pursue sufficient investigations. The
illness also have, or have had, a genuine medical (physical balance between overinvestigation and underinvesti-
or psychological) disorder or disability.57 Fabricated or gation is potentially difficult to make.
induced illness should be recognised and identified early
in the process by several alerting features in the child’s Earlier recognition and management of
presentation,58 usually to doctors (panel 5). Other potential fabricated or induced illness
professionals including, in particular, teachers, might With the exception of some cases of illness induction, a
notice some of these features. For example, fabricated substantial delay almost invariably takes place before an
educational difficulties were described in nine children explicit mention of fabricated or induced illness by a
from five families whose mothers were insistent that doctor. During this period, alerting features of fabricated

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or induced illness are repeatedly encountered, meaning


doctors face perplexing presentations.66 However, not all Panel 6: Possible explanations for the medical response to signs alerting to fabricated
perplexing presentations are, or need to be treated as, or induced illness
fabricated or induced illness. • Concern about missing a treatable disorder in the child
To shorten the process, reduce harm to the child, and • Usual practice of working with parents
possibly avoid the development of fabricated or induced • Difficulty of withstanding pressure from the mother to continue to investigate and
illness, the doctor should establish as quickly as possible treat the child
what is or not wrong with the child as soon as they feel • Discomfort of disbelieving or suspecting a parent, especially if this might prove to be
perplexed, after undertaking the usually expected unjustified
examination and investigations. To achieve early • Doctors’ dependence on the history of the child’s problems given by the parent or parents
identification, several steps are needed.66 At this early • Difficulty of saying explicitly that doctor is mystified about child’s presentation
stage, the responsibility lies with paediatric services, • Doctors with interests in particular diseases might want to rise to the diagnostic
although information might also be needed from other challenge
agencies. The appendix provides a full account of this • Doctors working in private practice are likely to work in isolation with little
alternative approach. communication with other professionals
• Increasing medical subspecialisation, with poor communication between specialists,
Child protection process risks having no identified clinician with overall responsibility for the child64
Child protection procedures to manage probable cases • Doctors might want to avoid complaints against them and therefore continue to
of fabricated or induced illness have been well follow the parents’ requests
described9,64,66–69 and entail joint responsibility of • Doctors might be uncertain when to mention suspicion, what to say to parents, and
children’s social care services and the police. Any what to write in the medical file
possible evidence of physical actions by the mother • Pursuing concerns about the possibility of fabricated or induced illness is very time
requires preservation for the police of all relevant consuming
specimens and materials that might have been tampered • Some doctors are reluctant to initiate a child protection process within which they will
with. An aspect of concern during investigations of have little control and about whose benefits they might have doubts
fabricated or induced illness is the theoretical possibility
that if the mother becomes aware of suspicions before
the child is removed from her care, she might cause The use of standardised measures can be helpful in some See Online for appendix
serious harm to the child by illness induction to prove cases. These measures, which include the relationship
her contention that the child is unwell. scales questionnaire72 and the parental bonding
Recognition of fabricated or induced illness in a child instrument,73,74 can provide an indication of attachment
usually results in care proceedings to establish whether security of the parent. The adult attachment interview is a
the abusing parent should continue to care for the child. well-validated method for the measurement of attachment
Other siblings are also at risk.13,26,30 Therefore, in most organisation in adults, but needs training for administration
cases children will, in the first instance, be placed in the and rating.75 The dynamic maturational model has been
care of the non-abusing parent (if separated), grand- used to code assessments of attachment in both adults and
parents (only if they accept the presence of fabricated or children and adolescents.76,77 The structured clinical
induced illness), or the local authority. Criminal interview for DSM-IV-TR axis II personality disorders78 is a
prosecution of the parent can be pursued by the police if diagnostic technique; the standard assessment of
deemed to be in the public interest, but is not a main or personality79 is a screening technique, and document-
necessary part of child protection. derived assessment80 can provide useful information.
This assessment will lead to an understanding of the
Assessment of the caregiver and the role of the caregiver’s mental health, including possible autism
psychiatrist spectrum disorder, for which there is a screening
After the paediatric assessment and investigation has instrument.81 Some parents with this disorder might
established the existence of fabricated or induced illness present with beliefs about their child’s health that are
and the child’s state of health and ill health, or after a difficult to corroborate (panel 3). Predisposing and
legal fact-finding hearing has taken place,70 and maintaining factors for the fabrication or induction of
sometimes in the process of management of perplexing illness in the child should also be sought. Most
presentations, an adult psychiatrist might be asked to importantly, the assessment will also show the degree
assess the caregiver (panel 7). and quality of acknowledgment of abuse by the caregiver,
Establishment of whether the caregiver can their partner and wider family, and their willingness and
acknowledge the concerns of others and accept some individual capacities to engage in a programme of risk
responsibility for harming the child is important. Such management and treatment. Some risk factors have been
establishment will have a major effect on management identified that should alert the clinician to the potential
recommendations and outcome and willingness to risk a caregiver might pose by involving a child in
engage with professionals in the long term.71 abnormal illness behaviour.24

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need a truthful narrative to explain the caregiver’s


Panel 7: Assessment of caregiver and the role of the actions,82–84 and, when applicable, the reasons for
psychiatrist separation from her. They will also need sensitive support
• Assessment of the caregiver follows paediatric for the possible loss of a primary caregiving relationship
ascertainment of the presence of fabricated or induced with their parent. Older children might feel guilty and
illness complicit, and some children have great difficulty in
• The purpose is to provide an opinion on the mental state accepting the fact of illness fabrication by their parent.
and personality of the caregiver, elucidate underlying
reasons for their behaviour, suggest therapeutic steps, and Therapeutic needs of the family
identify capacity to change This section is written from the perspective of a
• Preparation is essential before any interview of the heterosexual nuclear family, because this pattern is the
caregiver in the form of detailed scrutiny of all medical, most common. The father needs individual help to
social work, and police records process the new awareness of his family, in particular the
• Important to establish whether the caregiver can abuse of his child or children, and any possible feelings of
acknowledge the concerns of others and accept some guilt for his previous absence of awareness, or of his
responsibility for harming the child support of the mother. He will need additional support if
• Use of standardised measures can be helpful he assumes the role of the main caregiver, particularly if
he had been excluded from involvement in his child’s day-
to-day physical and emotional care.85,86
Panel 8: Characteristics of perpetrators that present obstacles Siblings will often have been relatively neglected whilst
to psychotherapy the caregiver focused attention on the “sick” child. They
might feel excluded and angry, especially if their mother
• Confrontational and demanding leaves the family. The remaining family together need
• Low impulse control help in the formation of a different family with a now
• Denial of past actions and their consequences and well child. An important aspect of this work is the
pathological lying—eg, “I used to lie because it made me construction of a narrative of their experiences. Work
feel happy and got me friends”; “is it possible that I put with the child and family would appropriately be done by
the drugs into Jack’s bottle without knowing that I did it?” child and adolescent mental health services. Pragmatic
• Somatisation—eg, attribution of bodily sensations to a interventions encouraging engagement of the family,
serious physical cause such as chest tightness and feelings of problem solving, and formulation sharing (with use of
so-called air hunger caused by anxiety or hyperventilation assessments of attachment) have been described in the
are attributed to heart attack; this characteristic is often treatment of complex presentations involving
allied to difficulty accepting reassurance when informed that exaggerated or fabricated symptoms in children.82,87–89
tests and investigations are normal
• Feelings of emptiness and difficulty in regarding emotional Therapeutic needs of the perpetrating caregiver
experiences as real, leading to the creation of drama and Perpetrating caregivers will need therapy to address the
excitement to compensate for feelings of emptiness by, for harm they have caused, its effect on the child, and
example, fire setting, calling out ambulances, or making possibly the effect of the loss of that relationship. Therapy
hoax telephone calls should address feelings of guilt, shame, and sometimes
associated suicidal feelings. When feelings of guilt and
shame are wholly absent, the perpetrator’s capacity to
Further steps after ascertainment of fabricated mentalise the effect of harm on the child should be
or induced illness questioned and explored. As for all psychological
Whether the child might at a future time return to the treatments, successful treatment needs both engagement
care of the perpetrating parent is dependent on two main and commitment. Personality pathology is treatable,90,91
issues. First, overall parenting capacity should be but many perpetrators report having experienced
assessed in relation to the child in question and other extreme neglect and abuse, and have little capacity for
children in the family on the basis of possible other self-reflection, making meaningful engagement in
difficulties in the parent–child relationship, not related to psychological therapy difficult, especially if they continue
fabricated or induced illness.38 The second issue is the to display deceptive behaviour. Furthermore, individuals
caregiver’s response to treatment offered. who use denial and cannot admit their behaviours
present almost insurmountable obstacles to psychological
Therapeutic needs of the child treatment. The initial focus of therapy should include the
Children whose health and daily life and functioning, individual’s acknowledgment of the harm they have
including education and peer relationships, have been caused to any child in their care. Panel 8 shows some of
adversely affected by fabricated or induced illness, will the psychological characteristics that present obstacles to
need active rehabilitation. The child and siblings will psychological treatment.

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Very few specialist services can provide treatment for expert witnesses are needed. There is scope for
both perpetrator and child in cases of this nature.92 The interdisciplinary collaboration between Royal Colleges of
parent will often be rejected by regular psychological Psychiatrists and Paediatrics and Child Health.
treatment services as being too disturbed, yet they are More collaborative research is needed in this
often not disturbed enough to reach criteria for the specialty,102 which has so far been scarce. Many questions
intervention of forensic services. Most parents will need remain,1 such as what distinguishes perplexing
treatment for somatoform, mood, or personality disorders, presentations that do not develop into fabricated or
usually of the emotionally unstable, borderline type. induced illness from those that do, and what is the
Ample evidence exists to show that personality pathology relative prevalence of the two;2 could an international
responds to treatment regimens that address affect and database be established;3 what is the prevalence of this
arousal regulation, such as dialectical behaviour therapy disorder in educational settings;4 why do some mothers
and mentalisation-based therapy.93 Although many patients with chronic somatoform disorders involve their
report reductions in symptom severity, improvement in children in this behaviour and not others5; and how does
social and vocational function is more difficult to achieve.94 the internet contribute to this disorder?103,104
A case exists for the establishment of more proactive
Prognosis networks to support professionals in the early
Prognosis is dependent on a multitude of complex identification of parents and children before harm to the
factors, but in general, a better outcome for reunification child takes place. For example, recommendations state
of carer and child is associated with acknowledgment by that regular hospital-based multidisciplinary meetings
the carer of the illness fabrication or induction, be established to discuss cases and share information
willingness to work and cooperate with helping agencies, between disciplines. These meetings should involve a
the capacity of the treating team to work with a psychiatric designated child protection doctor for the hospital,
formulation, and the presence of specific stressors at the hospital paediatricians, the local community
time of the abuse.95,96 paediatrician, nurses and social workers, and an adult
Very few studies have been done of reunification of consultation liaison psychiatrist with experience of these
families. Reunification is dependent on clear evidence of presentations.105 Involvement of hospital legal teams
the caregiver’s positive response to treatment, within might also be needed.
timescales appropriate for the child’s developmental Contributors
stage and managed within a child protection framework.97 CB and DG conceptualised the Review, CB did the literature search and
This finding was shown in a small follow-up study of wrote the first draft. DG wrote the section on perplexing presentations
and assessment, and contributed to later refinements and additions to
17 children from 16 families (12 with induction of illness, the final draft. Both authors contributed figures and approved the final
four with fabrication, and one with tampering of submitted version.
samples).98 Reunification requires careful consideration, Conflicts of interest
as in 20% of cases the abuse recurs if the child remains We declare that we have no conflicts of interest.
with the parent/abuser.99 References
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