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Asian Journal of Psychiatry 54 (2020) 102433

Contents lists available at ScienceDirect

Asian Journal of Psychiatry


journal homepage: www.elsevier.com/locate/ajp

Making mental health more accessible in light of COVID-19: Scalable digital


health with digital navigators in low and middle-income countries
Elena Rodriguez-Villa a, John Naslund b, *, Matcheri Keshavan a, Vikram Patel b, John Torous a
a
Division of Digital Psychiatry at the Beth Israel Deaconess Medical Center and Harvard Medical School, Boston, MA, United States
b
Harvard Medical School and Harvard T.H. Chan School of Public Health, Boston, MA, United States

A R T I C L E I N F O A B S T R A C T

Keywords: The rapid spread of COVID-19 and the devastating consequences to economies and healthcare systems around
COVID-19 the world has highlighted the exigent need for accessible mental health support. Increasing use of mobile devices
Telehealth in Lower Middle-Income Countries (LMIC) such as India offers novel opportunity to expand treatment options
Mobile
and reach underserved populations. Prior efforts have utilized technology to redistribute or supplement clinical
care but measurable outcomes of this research are limited. In this paper, we explain the structural barriers that
prevent access to care and build on prior research to demonstrate how technology can be utilized to offer
treatment if it is aided by education and technical support.

1. The need Understanding the growth and potential of technology augmented


care, however, requires that it be understood within the unique cultural
The need for digital mental health tools to reduce the mental health context of a given population. A national effort to understand the
gap and increase access to care in low and middle-income countries epidemiology of mental illness in India in 2015 revealed that 13.6 % of
(LMIC) is clear (De Sousa et al., 2020). Even before the COVID 19 the population experiences a mental disorder during their lifetime and
pandemic, the feasibility of solutions that utilized technology had been an estimated 86 % of these cases are untreated (Murthy, 2017). The
well reviewed (Naslund et al., 2017). Reviews showed, however, that treatment gap in India has activated recent initiatives from its govern­
despite tremendous research efforts devoted to innovative care, the ment and garnered attention from international stakeholders. The
impact of digital mental health tools to date in LMIC remains limited or Mental Health Care Act, effective beginning in 2018, specifies protocol
unknown. In this paper, we explore barriers and opportunities, and, for screening and treating mental illness and guarantees citizens medi­
using India as a case example, propose a new paradigm for studying and cation and care, regardless of whether they can afford it (Duffy and
implementing digital health to increase uptake and impact. Kelly, 2019). Government spending on mental health care, however,
COVID-19 has heightened global awareness around the inaccessi­ hovers near. 06 % of total healthcare spending (Mishra and Galhotra,
bility of effective treatment and support for mental illness (Tandon, 2018). The public sector is overwhelmed - it does not have the financial
2020) (Keshavan, 2020). On March 25th, 2020 India declared a capital or human capital to treat and support 176.8 million mentally ill
nationwide lockdown in an effort to prevent the spread of COVID19. individuals. Even doubling the number of psychiatrists today would not
With a population that exceeds 1.3 billion, and close to 21 % of the address the challenge, further highlighting the need for technology to
population living below the poverty line in the recent past (World Bank supplement and extend care as well as workforce development.
Open Data, 2011), and only 10,000 psychiatrists serving the entire Mental healthcare infrastructure in India cannot meet the growing
country (Garg et al., 2019), access to care that was already limited demand for treatment. Mental illness doubled its contribution to the
before the pandemic became nearly nonexistent. New initiatives such as total disease burden in India between 1990 and 2017 (Sagar et al., 2020)
a telephone hotline and expanding online therapy programs at the Na­ and increasing isolation across the country to avoid coronavirus infec­
tional Institute of Mental Health and Neuro-Sciences (NIMHANS) in tion introduces a new barrier in delivering care. Although the paucity of
response to COVID-19 (Agrawal, 2020) are representative of how trained and licensed clinicians in India is consistent with other parts of
technology can be rapidly employed to make treatment more accessible. the world including the United States (Kohn et al., 2018), the burden on

* Corresponding author at: 330 Brookline Ave, Boston, MA, 02446, United States.
E-mail address: jtorous@bidmc.harvard.edu (J. Naslund).

https://doi.org/10.1016/j.ajp.2020.102433
Received 5 August 2020; Received in revised form 30 September 2020; Accepted 1 October 2020
Available online 28 October 2020
1876-2018/© 2020 Elsevier B.V. All rights reserved.
E. Rodriguez-Villa et al. Asian Journal of Psychiatry 54 (2020) 102433

India’s population is intensified by its vast geography and how clinical (Murthy, 2017). The number of districts in a state covered by the DMHP
expertise is disproportionately clustered. Clinicians are where the ranged from 13.64 % in Punjab to 100 % in Kerala (Murthy, 2017). This
mental health hospitals are, concentrated in South and West India (Patel contrast highlights stark geographic patterns in inequality throughout
et al., 2016). Patients were crossing state lines to reach mental health India. 6 states clustered around the northern and eastern regions of the
care providers before the pandemic. Thus, there is imminent need to country - with a combined population of 56 million people – do not have
build new systems and utilize different tools that draw on some of In­ a single mental health hospital meanwhile other states in India, pri­
dia’s strengths – its young, diverse, and rapidly growing population and marily in the South, have several (Patel et al., 2016).
economy, and its propensity for building and adopting technologies – to Already there is promising pilot data that technology-based solutions
begin closing the mental health care treatment gap before it widens any can begin to address some of the mental health care disparities in LMIC.
more (Fig. 1). Efforts to date have focused on offering high quality treatment at a
distance, largely using synchronous telehealth technologies such as
2. The basis for opportunity video and phone visits. By eliminating barriers physical distance pre­
sents, mobile devices can enable access to treatment (Ramalho et al.,
Opportunities for technologies such as smartphones to augment 2020). A handful of studies have tested this hypothesis. Globally, tele­
mental health care are clear – and the barriers that challenge imple­ therapy has proven an effective alternative to in-person therapy (Hubley
mentation – are distinct in LMIC. Studies in India have shown that most et al., 2016). Treatments such as cognitive-based therapy (CBT) and
individuals surveyed with mental illness have access to a mobile phone motivational interviewing can be delivered successfully over the phone
(Jain et al., 2015). Only a small percentage of these mobile phones, by a mental health professional. While telehealth offers a means to in­
however, are smartphones (Sreejith and Menon, 2019). These findings crease access to care (Torous et al., 2020), the unique opportunities and
are consistent with population-level statistics that estimate just under 1 challenges telehealth presents LMIC has not been evaluated in depth.
in 4 Indians owns a smartphone (Pew, 2019a,b). Thus, while digital Efforts in India have been made to replicate the success of teletherapy,
resources such as smartphone apps will be able to serve millions of pa­ including an initiative in Chennai that utilized local non-governmental
tients today, simpler technologies like text messaging can reach even organizations (NGO) to set up telepsychiatry sites (Thara et al., 2008).
more. As smartphones become more affordable and prevalent around Helplines that offer one-off support and crisis prevention also leverage
the world, the opportunity for apps will only increase. Given the rapid mobile devices and enable remote support. However, these technologies
global adoption of smartphones, there is an opportunity to introduce are only as effective and available as the voice on the other end of the
these devices to those first accessing them not only as communication line. A survey of helpline volunteers in India demonstrated that the
tools but also as health tools. The need to consider multiple types of demand for counseling exceeded their service capabilities and that
technology use and the constant evolution and upgrading towards gender preferences and language requirements of callers could not be
smartphones requires a multifaceted approach that is not dependent on met (Pendse et al., 2020). Telepsychiatry and helplines make mental
any one mode of technology but rather embraces this diversity as an healthcare more accessible but to the extent there are sufficient human
opportunity. resources to sustain it. The burden on clinical care providers has high­
Delivering effective care in LMIC also means understanding the di­ lighted both the need and opportunity to redistribute work (Buttorff
versity of care that is necessary. Access to mental health care is varied et al., 2012).
across India and highlights the complex needs any technology solution It is possible to extend access to care through training non-clinical
must address. The District Mental Health Program (DMHP) was initiated professionals to support clinical work. Strong evidence shows that
in 1990 to increase access to treatment at community levels but even by non-medical workers can offer basic organizational and psychological
2015 many states were not sufficiently supported by the program support at the community level (Patel et al., 2011). Several initiatives in

Fig. 1. The Digital Navigator connects patients to appropriate technology and works with them to customize it. Patients use the technology with ongoing support and
teaching available from the Digital Navigator. The Digital Navigator modifies the technology with feedback from the patient so that it continues to meet their
evolving needs.

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E. Rodriguez-Villa et al. Asian Journal of Psychiatry 54 (2020) 102433

India and other lLMIC have provided education around identifying support and counseling. Instead of focusing on any one digital tool or
mental illness and offered training in counseling (Shields-Zeeman et al., method, Digital Navigators consider all technologies –from text
2017; Patel et al., 2017). Not only do these efforts make care more messaging and voice calls that can be utilized from a basic mobile phone,
accessible and regular, but they also help reduce stigma and falsify to apps and actigraphy sensors unique to smartphones – that can sup­
common misconceptions of mental illness. In the absence of public plement care. Different modalities offer aspects of the same treatment
funding for mental health care, leadership from NGOs has contributed to protocol but the Digital Navigator works with users to determine and
important findings on the feasibility and efficacy of task-sharing in India optimize the mode that is most accessible to them. Digital Navigators
through utilizing technology. help individuals decide what communication mediums they are most
Technology offers an opportunity to aid task-sharing and can play a comfortable with and equip these individuals with the digital literacy
key supporting role for non-medical workers (Raviola et al., 2019). At required to access that medium. In addition to connecting patients with
their core, digital devices help make information more accessible and the right digital tools and offering treatment support, the Digital Navi­
communication more possible. Efforts that leverage technology to gator works towards increasing access to smartphones through teaching
expand the reach and capabilities of non-medical workers are increasing patients basic smartphone skills and helping them gain access to smart
in LMIC across medical fields (Joshi et al., 2014) but in most cases the technology. Given the utility of these tools to help patients partake in the
longevity and the extent of their effectiveness is unmeasured (Naslund modern economy and access online only resources, digital literacy offers
et al., 2019). Digital use cases related to mental health range from increasing opportunity towards recovery and functional outcomes
performing clinical assessments on tablets (Maulik et al., 2017) to the (Hoffman et al., 2020).
dissemination of maternal health videos that can be viewed on mobile The potential of the Digital Navigator to help individuals utilize
devices (Kumar and Anderson, 2015). Recently, a study in Madya Pra­ diverse digital tools is best understood in the context of current research
desh successfully utilized an online learning platform delivered on findings on mental health in India. The effectiveness of any technology
tablets, laptops, and mobile phones to train Accredited Social Health hinges on how accessible it is to the user. Before trust or engagement are
Activist (ASHA) workers in evidence-based treatment for depression considerations, technology must be customized to meet the needs of its
(Muke et al., 2019). These programs are representative of how tech­ user. In India, where several studies reveal a preference for voice mes­
nology can supplement caregiving and increase accessibility. Digital sages over text messages (VA et al., 2010; Chandra et al., 2014;Sreejith
devices are not poised to assume the responsibility of a clinician or and Menon, 2019), short symptom surveys and medication reminders
non-medical worker but they can help share it. can be delivered through voice menus and messages instead. Or, if a user
Successful use cases of digital technologies in LMIC must account for prefers text messages, they can opt in to automated texts that remind
the unique factors they are being asked to solve for. While increasing them to take their medication, encourage them to complete a mood
access to care remains the underlying goal, addressing the heterogeneity survey using single digit responses, or provide them psychoeducation
in languages, cultures, technologies, educational levels, and unique ex­ tips. Engagement can also be measured through automated voice mes­
periences of mental illness across different regions of countries cannot sages or text messages via simple responses prompted at the end of an
be ignored. Other factors such as maintenance and evolution of tech­ activity (e.g. “Dial 1 if you will take your medication today” or “Text 1 if
nology are constant across any country in the world and represent a you found this tip helpful”). Given how easy it is to quantify patient
challenge that must also be considered in light of the unique infra­ engagement with quantifiable data, it is subsequently also easy to gauge
structure present in LMIC, as well as clinical infrastructure (Ransing the effectiveness of Digital Navigators and quantify their success.
et al., 2020). Markers that indicate the efficacy of the Digital Navigator, the tech­
Research in India on the acceptability of using mobile devices for nology utilized, and the treatment the technology offers are outlined
medical purposes favors the development of mobile health (mHealth) below in Tables 1 and 2.
technologies and programs to reduce the treatment gap. The majority of Anxiety disorders and depressive disorders contribute more than any
patients and their family members are willing to use mobile phones other mental illnesses to disability adjusted life years (DALYs) in India
towards their personal health (Deb et al., 2018; DeSouza et al., 2014). A (Sagar et al., 2020). Digital Navigators can play an influential role in
randomized control trial (RCT) in Hunan, China demonstrated how connecting untreated anxious and depressed individuals to mood
acceptability of mHealth can be leveraged to connect patients with tracking and support that are clinically proven to relieve symptoms
serious mental illness to treatment (Xu et al., 2019). The LEAN program (Torous et al., 2015) without involving a mental health care profes­
provided an intervention that combined medication adherence encour­ sional. While technology cannot obviate a nationwide deficit in mental
agement through regular text messages with support from non-medical health care professionals and treatment options, it can help offer basic
workers trained in counseling (Xu et al., 2019). Patients receiving the treatment and information to those who would otherwise not receive it.
intervention had greater medication adherence at the end of the study A customizable digital platform that can reach individuals via the mo­
and showed a smaller risk of relapse and rehospitalization (Xu et al., dality of their choice with content unique to their condition offers un­
2019). These results highlight the potential of mobile devices, reinforced matched potential to increase access to care. The Digital Navigator is the
by the support and organization of non-medical workers, to treat mental critical component in turning the potential of mental health technology
illness. into a reality (Table 3).

3. The innovation 4. The implementation

Building off prior research, we propose a hybrid solution that com­ Digital Navigators can offer support out of a range of local settings
bines adaptive technology with teaching and support. The solution and medical institutions: primary health care facilities, community
highlights the need and potential in India for the role of a Digital Nav­ health centers, NGO sites, inpatient hospitals, outpatient clinics, and
igator– a non-medical worker who connects patients to technology that schools. This flexibility guarantees that Digital Navigators can deliver
is accessible and beneficial to them. care to individuals who need it in areas that are underserved. It also
The Digital Navigator does not replace the role of a clinician or as­ means that they can integrate into established healthcare infrastructure
sume their responsibilities. Instead, Digital Navigators educate patients and trusted systems in place that are already treating patients effectively
on available technologies and support them in accessing and using but require more support. The role of the Digital Navigator is being
relevant digital tools (Wisiewski and Torous, 2020). Ideally, they are utilized successfully in an outpatient clinic at the Beth Israel Deaconess
trusted members of the community who are already comfortable with Medical Center in Boston, MA (Rodriguez-Villa et al., 2020). Here, the
technology and willing to be trained in offering basic psychosocial Digital Navigator works with patients to collect and interpret symptom

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E. Rodriguez-Villa et al. Asian Journal of Psychiatry 54 (2020) 102433

Table 1
Challenges and opportunities in India parallel other LMIC and highlight the feasibility and scalability of training Digital Navigators in diverse settings.

will and should look different from that in another setting. Even within a
Table 2 region or community, users’ comfort levels with technology and per­
Goals and outcomes can be measured using metrics that reflect patient
sonal preferences will distinguish iterations and the support the tech­
engagement with technology. Through customization, teaching and offering
nology offers. The Digital Navigator plays an essential role in
support, Digital Navigators increase engagement with technology and improve
clinical outcomes. customizing the platform and utilizing the strengths of care systems in
place to engage the end user.
Goal Indicator of Success Measurement(s)
The private sector and NGOs are the lead providers of mental
Digital Navigator is Patient uses technology Patient responds to 1 healthcare in India (Patel et al., 2016). Both bodies are positioned to
effective teacher on their own survey
offer invaluable organizational support and resources. NGOs form a
Digital Navigator is Patient engages with 1. Patient responds to
customizing technology technology regularly >50 % of surveys given strong network of community-based sites that local programs can
to meet patient’s needs 2. Clinical outcomes operate out of. The successful ones build trust overtime and are inte­
Technology responds real- Technology switches Patient responds to grated into the community. In settings where private sector institutions
time to patient’s needs modality if it isn’t survey after technology and NGOs are already folded into local systems, they can facilitate the
utilized switches modality
Clinical outcomes for Patient’s symptoms Batteries administered to
utilization of Digital Navigators and supporting technology. From staff
patient related to anxiety and patient over technology who can help identify potential Digital Navigators in the community to
depression decrease lending physical space a Digital Navigator can meet with someone in,
the private sector and NGOs can provide structure, insight, and experi­
ence vital to the early stages of program implementation. Their influ­
and actigraphy data using mindLAMP, a digital platform with both a
ence and establishment within communities may significantly help to
smartphone app and dashboard component. mindLAMP is customized
increase uptake and engagement.
by the Digital Navigator, with input from the patient and their clinician,
To assess the degree to which a Digital Navigator and technology can
to track specific symptoms and offer psychoeducation relevant to their
meet and match the needs of a given setting, we propose a framework
unique condition. The utilization of mindLAMP at BIDMC was deter­
that accounts for measures in three distinct categories: 1) Mobile Con­
mined by factors unique to the hospital’s setting and the population it
nectivity 2) Population Demographics 3) Mental Health Infrastructure.
serves. Most patients own smartphones and wireless coverage in the
This framework is a holistic approach to helping identify the settings a
Boston area is ubiquitous, thus making it possible for most patients to
Digital Navigator can be most effective in and the technology it can
access the platform on a mobile app. For mindLAMP or another platform
utilize to best support care.
to support treatment in regions across India, it needs to be adapted based
on input and insight from the individuals who will be using it.
5. The implications
Successful innovations in technology and medicine require careful
consideration of the context they will be used in. Cultural relevance
The treatment gap in India and around the world will continue to
separates useful tools from ineffective ones. Implementation frame­
grow if mental health care infrastructure remains stagnant. In the next
works have not been researched in India to the extent that they have
10 years, the population of India is expected to become the largest in the
been reviewed and evaluated in other parts of the world (Ramaswamy
world (Pew, 2019a,b). This rapid growth, in conjunction with increased
et al., 2018). As such, approaches to initiating and sustaining clinical
social distancing measures related to COVID-19, is poised to strain re­
programs requires close collaboration with end users and infrastructure
sources that are already stretched thin. Increasing access to care in a
that is already in place. India’s economic, religious, and cultural di­
sustainable, scalable way will require innovation. Technology offers
versity – combined with the variance of mental health resources across
novel opportunity to reach infinite patients and connect them with care.
and within states – suggests that the platform one setting benefits from
Harnessing this potential and guaranteeing its efficacy, however, calls

Table 3
Several factors are taken into consideration to determine whether a Digital Navigator can increase access to care in a given setting and which technology they can help
patients utilize.
Mobile Connectivity Population Demographics Mental Health Infrastructure

Region % Mobile Phone % of area w/ Cost of % Mental Illness % Below Primary Care Provider Avg Distance from Clinician to
Ownership Network Wireless Prevalence Poverty Line (eg private/public/ mental health patient ratio
Connectivity Coverage NGO) facility

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nonspecialist health workers for task sharing and scaling up mental health care
globally. Harv. Rev. Psychiatry 27 (May/June(3)), 181–192.
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Financial disclosure Patel, V., Xiao, S., Chen, H., Hanna, F., Jotheeswaran, A.T., Luo, D., Parikh, R.,
Sharma, E., Usmani, S., Yu, Y., Druss, B.G., 2016. The magnitude of and health
None. system responses to the mental health treatment gap in adults in India and China.
Lancet 388 (December 17 (10063)), 3074–3084.
Patel, V., Weobong, B., Weiss, H.A., Anand, A., Bhat, B., Katti, B., Dimidjian, S.,
Araya, R., Hollon, S.D., King, M., Vijayakumar, L., 2017. The Healthy Activity
Declaration of Competing Interest
Program (HAP), a lay counsellor-delivered brief psychological treatment for severe
depression, in primary care in India: a randomised controlled trial. Lancet 389
The authors report no declarations of interest. (January 14 (10065)), 176–185.
Pendse, S.R., Lalani, F.M., De Choudhury, M., Sharma, A., Kumar, N., 2020. “Like shock
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