Professional Documents
Culture Documents
Emotional Wellbeing
RCN Guidance
CLINICAL PROFESSIONAL RESOURCE
This publication is due for review in March 2023. To provide feedback on its contents or on
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Contents
1. Introduction 4
Conclusion 12
References 13
Further support 14
1. Introduction
Fertility care is a well-established aspect of throughout the service provision and need to be
reproductive health care. Health care staff fully prepared to provide the best support, advice
who work in this specialty support individuals and care they can. Health care assistants play an
and couples to become parents or accept that, important role as they are often the first person
even with the advances in technology today, to be with an individual at various stages of their
this may not always be possible. The journey pathway.
to become pregnant can be lengthy, starting in
general practice and often encompassing a wide As HCAs are part of the multidisciplinary team,
range of services including the more technical providing hands on care, they contribute to the
and complex care offered by fertility services overall experience and should be able to provide
(whether in the NHS or the independent sector). an initial level of emotional support whilst
recognising when they need to refer to a
Fertility treatment can be a complex pathway, registered nurse for further assistance.
with uncertain outcomes. For those who embark
on this journey, it can lead to a range of emotions, At any stage of treatment, a woman may be
sometimes rewarding (but also very challenging). given unexpected, and/or devastating news and
the HCA is often the person she will turn to for
In 2017 NICE produced a statement on fertility support, reassurance or further explanation of
care (NICE 2017a). This explains that: what has happened. It is important to recognise
the registrant and non-registrant roles in care
“People who are having problems conceiving provision; however, it must be acknowledged
are offered counselling before, during and that the woman (and her partner) may not make
after investigation and treatment for their that distinction. The HCA must seek appropriate
fertility problems.” help with this, speaking to a registered nurse to
ensure clarification and offer the appropriate
The rationale is:
pathway of care.
“People experiencing fertility problems
The Human Fertilisation and Embryology
should be offered counselling because
Authority (HFEA), the regulator for fertility
fertility problems themselves, and the
services across the UK, has produced a patient
investigation and treatment for fertility
support pathway: Good Emotional Support
problems, can cause emotional stress.”
Practices for Fertility Patients (HFEA, 2018a).
This guidance is focused on the nursing This outlines the key issues and should be read
community working in all areas of fertility care in conjunction with this guidance.
and acknowledges the differences between
emotional support and wellbeing, implications
counselling and therapeutic counselling (these
Note about language
will be explored later in this publication). The RCN recognises the diversity of those
seeking fertility care, however, for convenience
Registered nurses, midwives, nursing associates of authorship the term women has been used
and non-registered health care assistants (HCAs) throughout and, where appropriate, woman
will all engage with women and their partners (and partner).
• interaction with family and friends The HFEA’s view of support is that emotional
wellbeing and support should be embedded
• hobbies and interests. in all interactions with women and their
If a woman reports that several of these points partners, with the emphasis on simple,
have been affected, then this may be a sign that practical improvements which can be
further intervention is needed. adapted to specific groups and resources.
The HADS (Hospital Anxiety and Depression A patient survey by HFEA in 2018 (HFEA,
Scale), a well-established tool used to recognise 2018b) showed a mixed picture in terms of the
the need for support (Stern, 2014), is a 14-item support women and partners received. Most
scale used in consultation to take a holistic respondents said they could talk to nurses about
approach to emotional wellbeing for women the emotional side of the experience and could be
undergoing fertility care by asking specific relied on as a listening ear if needed. The survey
questions in relation to anxiety and depression. identified ‘interest shown in you as a person’, as
Recognising the emotional needs of women (and one of the top three drivers of satisfaction and
their partners) is a key part of the role of health improvement of this measure as being ‘likely to
care professionals throughout the fertility journey, have the greatest impact on overall satisfaction
who will have more opportunity to recognise with the fertility treatment process as a whole.’
and support needs. This continuity means that Respondents spoke positively about emotionally
individuals will generally feel more comfortable intelligent consultants, ‘kind and friendly’ nurses,
discussing how they are feeling and coping with receptionists having a friendly chat with them
those they know better, particularly if they have in the waiting-room and support staff learning
established a trusting relationship and rapport. women’s (and partner’s) names, as key factors.
4. T
he impact of repeated cycle
failure – being childless not
by choice
For many women, the reality of finding out
treatment has been unsuccessful is heart- Fertility Network UK
breaking and can have a far-reaching and
devastating impact on their life. A survey by the A leading patient-focused fertility charity,
Fertility Network (2016) reported that ‘those providing free and impartial support and
most in danger of experiencing high levels of information for anyone affected by fertility
distress and suicidal feelings were those who had issues including those:
unsuccessful treatment and who spent longer
• considering their future fertility
trying to conceive’. It must be acknowledged that
although failed treatment is a regular occurrence • trying to become parents
in clinics, for a woman, it can signify the end of
hopes and dreams and it can feel like a personal • facing the challenges of involuntary
failure, so sensitivity and awareness of this loss childlessness
must be shown to all.
• successful after fertility problems.
Since fertility treatment can be an all-consuming
process, being given the news of another It is the patient voice in the campaign for
failed fertility cycle can lead to a deterioration equitable access to NHS fertility treatment,
in mental health, relationships and overall and Fertility Network UK co-chair the
wellbeing. As a nurse or health care assistant, campaign group Fertility Fairness. Their
it is vital to acknowledge that any feelings of education project raises awareness of
sadness, grief or loss being experienced are the importance of fertility education and
normal and guide them to access appropriate highlights practical steps young people
support and resources, including counselling. can take to help protect their future fertility.
Where results are being presented in a clinic fertilitynetworkuk.org/how-we-can-help
setting, it can be helpful for private space or
a room to be offered to the woman(and her
partner) to enable them to process difficult news
before leaving the premises.
Psychological effects
of having problems
with fertility
NICE (2017a) is clear that when couples have
fertility problems, they should be informed
that stress in one or both partners can affect
the couple’s relationship and is likely to reduce
libido and frequency of intercourse, which can
contribute to fertility problems. Individuals who
experience fertility problems should be:
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Conclusion
The RCN believes that all health care • All health care professionals providing
professionals involved in the care of individuals emotional support to women and their
seeking fertility treatment should be able to partners need to understand the principles
offer the necessary emotional support needed of the 6 Cs at all times. Care, Compassion,
or be aware when they need to refer on to an Competence, Communication, Courage and
appropriately trained health care practitioner. Commitment (NHS, 2016).
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References
Elgin C (2018) The importance of understanding Mind (2019) What are the signs of stress? Online
health literacy for perioperative patient safety, resource available at: www.mind.org.uk/
AORN Journal, 107(1):126–130. Available at: information-support/types-of-mental-health-
aornjournal.onlinelibrary.wiley.com/doi/ problems/stress/signs-of-stress/
full/10.1002/aorn.12008
National Institute for Health and Care Excellence
Fertility Network UK (2016) Fertility Network (updated 2017a) Psychological effects of fertility
UK survey on the impact of fertility problems. problems. Online resource available at: pathways.
London: Middlesex University London. Available nice.org.uk/pathways/fertility/fertility-
at: fertilitynetworkuk.org/wp-content/ overview#content=view-node%3Anodes-
uploads/2016/10/SURVEY-RESULTS-Impact- psychological-effects-of-fertility-problems
of-Fertility-Problems.pdf
National Institute for Health and Care Excellence
Guidelines for Nurses (2017) The power of (updated 2017b) Fertility problems: assessment
listening: stress, distress, and depression. and treatment, CG156. London: NICE. Available
Available at: guidelinesfornurses.co.uk at: nice.org.uk/guidance/cg156
Human Fertilisation and Embryology Authority NHS England (2016) Leading change, adding
(2006) One Child at A time: Report of the Expert value. A framework for nursing, midwifery
Group on Multiple Births after IVF. London: and care staff. London: Department of Health.
HFEA. Available at: ifqlive.blob.core.windows. Available at: england.nhs.uk/publication/
net/umbraco-website/1311/one-child-at-a- leading-change-adding-value-a-framework-
time-report.pdf for-nursing-midwifery-and-care-staff
Human Fertilisation and Embryology Authority Royal College of Nursing (2017) An RCN education
(2018a) Good Emotional Support Practices and career progression framework for fertility
for Fertility Patients: portal.hfea.gov.uk/ nursing. London: RCN. Available at: rcn.org.uk/
knowledgebase/emotional-support-for- professional-development/publications/pdf-
patients-resources/ 006690
Human Fertilisation and Embryology Authority Stern AF (2014) The hospital anxiety and
(2018b) Pilot national fertility patient survey depression scale, Occupational Medicine,
2018. London: HFEA. Available at: www.hfea. 64(5)393–394. Available at: academic.oup.com/
gov.uk/about-us/publications/research-and- occmed/article/64/5/393/1436876
data
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Further support
The British Infertility Counselling Association MIND - provides advice and support to empower
(BICA) is an organisation of qualified specialist anyone experiencing a mental health problem.
counsellors, working across the UK, who can mind.org.uk
offer support.
bica.net/about-us/what-is-counselling More to Life Seminars and support (Fertility
Network) – webinar series offering expert opinion
Donor Conception Network - A supportive and advice on tackling the diverse range of issues
network of more than 2,000 mainly UK based that manifest when living without children.
families with children conceived with donated fertilitynetworkuk.org/life-without-children/
sperm, eggs or embryos, those considering or more-to-life-webinars
undergoing donor conception procedures; and
donor conceived people Royal College of Nursing
dcnetwork.org rcn.org.uk/get-help
The Dovecote – enabling and inspiring people The Sperm, Egg and Embryo Donation (SEED)
facing involuntary childlessness to reconnect Trust. Provides impartial advice, support and
with their daily lives and rediscover a passion information to prospective donors, intended
and purpose. parents and surrogates
thedovecoteorg.wordpress.com seedtrust.org.uk
Fertility Friends – an online community for Where a woman and her partner have
women seeking advice for infertility, adoption, suffered a loss, further support is available
parenting after infertility and moving on. from a range of organisations:
fertilityfriends.co.uk ARC Antenatal Results and Choices
Gateway Women: Global Childless Friendship arc-uk.org
Network – a support network for childless women Miscarriage Association
gateway-women.com miscarriageassociation.org.uk
HFEA Clinic Portal - patient support resources Multiple Births Foundation
hfea.gov.uk/treatments/explore-all- multiplebirths.org.uk
treatments/getting-emotional-support
The Ectopic Pregnancy Trust
HFEA multiple births campaign ectopic.org.uk
https://www.hfea.gov.uk/about-us/our-
campaign-to-reduce-multiple-births/
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March 2020
Date
Review Date: March 2023
Publication code 007 770
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