4/2/23, 10:53 AM Young People on TikTok Are Self-Diagnosing - The New York Times

https://www.nytimes.com/2022/10/29/well/mind/tiktok-mental-illness-diagnosis.html

Teens Turn to TikTok in Search of a Mental Health Diagnosis

While social media can help people feel less alone, using it to evaluate symptoms has several downsides.

By Christina Caron

Oct. 29, 2022

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About a year into the pandemic, Kianna, a high school student in Baltimore, was feeling increasingly isolated. While sitting alone in her
bedroom there was too much time to think, she said, so sometimes she would fixate on her seclusion or start critiquing her appearance.

“I remember just being on TikTok for hours during my day,” added Kianna, 17, who asked to be referred to by only her first name when
speaking about her mental health. “That’s when my self-esteem started declining.”

At the time, in early 2021, her 10th grade classes were virtual, and she had begun texting with her friends instead of talking to them. Her
anxiety bred headaches, poor sleep and the odd feeling of living outside of her body. Then, she started seeing videos on TikTok about
depersonalization disorder, a type of dissociative condition that can make people feel disconnected, as though their body is detached from
their thoughts, almost like being in a dream.

“I have this,” she recalled thinking to herself. But mental illness wasn’t the type of thing she would normally discuss with her friends or
family. She didn’t tell anyone about her revelation. “I was so in my head that something was wrong with me.”

In recent years, discussions about mental health have proliferated on social media, particularly on TikTok, where the format allows for
easily digestible, intimate videos that appear in a never-ending algorithmic feed. And for those researching various disorders, it has
become increasingly easy to find bite-sized definitions and self-assessment quizzes online. While this bounty of unfiltered resources can
serve to reduce the stigma associated with mental illness, there are downsides.

A number of mental health providers say that they are seeing an uptick in teenagers and young adults who are diagnosing themselves
with mental illnesses — including rare disorders — after learning more about the conditions online. In some cases, this information can
lead them toward getting the help they need, but it can also result in people incorrectly labeling themselves, avoiding a professional
assessment and embracing ineffective or inappropriate treatments.

Annie Barsch, a licensed marriage and family therapist in Elburn, Ill., a suburb of Chicago, has fielded multiple inquiries from teenagers
and adolescents who arrive at her office with a specific diagnosis in mind.

“People go, ‘Well, if I have the symptom, I have to have the disorder’ — but it’s not that kind of relationship,” she said.

Some will say, “I’m so O.C.D.,” she added.

But “if you’re organized and you have structure and you like things a certain way and you’re functioning, you don’t have obsessive-
compulsive disorder — you’re organized,” Ms. Barsch said. “People who have O.C.D. cannot function because of their compulsions.”

Some adolescents will choose to believe TikTok over a therapist, she added, and for several sessions they “keep pushing the same agenda.”

And when clients become fixated on a particular diagnosis, providers say they must walk the fine line between offering a reality check and
finding a way to support their clients, who are often deeply concerned.

“It’s almost as though me, as a professional — with a master’s degree, a clinical license and years of experience — is competing with these
TikTokers,” Ms. Barsch said.

‘It’s incredibly easy to misdiagnose.’

TikTok is one of the most popular web domains in the world, particularly among adolescents and young adults, and its algorithms are
adept at showing people content that is similar to what they have lingered on in the past. (Instagram and Facebook users also see this type
of content via the Reels feature.) The format — looping videos that are often less than one minute long — doesn’t leave much room for
nuance. Viewers in search of mental health information may find little more than a bullet list of symptoms.

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But part of what makes diagnosis so complicated is that the same disorder can express itself in a child, adolescent and adult very
differently — in other words, the same list of symptoms does not apply to every age group.

“It’s incredibly easy to misdiagnose,” said Mitch Prinstein, the chief science officer of the American Psychological Association. “You might
have symptoms that look like what an adult’s depression would look like, but as a child or adolescent it very well could mean something
completely different.”

It can also be hard to be self-aware of certain symptoms, he said, and these really ought to be observed by an objective party.

Therapists must look at the range of experiences a client is having, when they occur and for how long. Are they functioning in their life?
How are they sleeping, eating, relating to others? How is their mood and motivation?

On Friday, a TikTok spokeswoman said in a statement:“We strongly encourage individuals to seek professional medical advice if they are
in need of support,” adding that the company continues to invest in digital literacy education aimed at helping people evaluate online
content.

Sara Anne Hawkins, a licensed marriage and family therapist in Minneapolis, said that three of her young clients recently told her they
have misophonia, a condition that can make people feel rage upon hearing other people’s sounds, like chewing or breathing.

“They’re self-effacing about it, like, ‘Oh god, I got this off TikTok,’” she said. “They’re like — ‘this is me, right?’”

As it turned out, only one of her clients ended up struggling with the disorder. Regardless, bringing it up provided an opportunity for all
three to further discuss any feelings of anger and irritability.

“I think it empowers youth to know it’s not just them making something up, or it’s not all in my head — ‘Look, other people feel this way,
too,’” she said. But, Ms. Hawkins added, “a little bit of information can be dangerous.”

‘It’s so easy to get roped in.’

Ms. Hawkins’s son, Ronan Cosgrove, 16, who has been on TikTok for about four years, said that among some of his peers it has become
trendy to identify with a mental health disorder. For them, he added, it is considered a personality trait rather than something you want to
heal.

“On TikTok they show ‘Oh, I’m this, and look at how cool I am,’ and then people will look up to those people — and it’s just so skewed and
not, like, reality,” Ronan said. “It’s so easy to get roped in.”

Kids are searching for a community, and are using their current struggle with mental health symptoms as a way to find like-minded
people, sometimes wearing their symptoms as a badge of pride or a shorthand way to explain themselves to others, Dr. Prinstein said.

And some adolescents may seek mental health information online because the adults in their lives are not open to talking about it.

“It’s incredibly disheartening,” he added.

A study published in March analyzed 100 videos on TikTok with the hashtag #mentalhealth that had collectively received more than 1
billion views. It showed that adolescents appear to be turning to TikTok as a source of support, and the advice there is largely driven by
users’ conversations.

“A great concern is that adolescents may be making faulty self-diagnoses and treatment plans in the absence of professional insight,” said
Corey H. Basch, a professor of public health at William Paterson University of New Jersey and the lead author of the study. And teenagers
may also come across inaccurate information or accounts that encourage harmful behavior, like cutting, or trigger those who are
struggling, she added.

On the flip side, she added, finding a positive, supportive community online can be powerful, especially for those who are marginalized or
who lack access to mental health resources.

That was the case for Jorge Alvarez, 23, a young adult mental health advocate and content creator in Elmwood Park, N.J., who received his
first clue that he might have attention deficit hyperactivity disorder on TikTok when he was 20.

“It kind of brought me into a world that I would have never otherwise have seen,” he said.

As he listened to people share symptoms, he recognized some as being eerily familiar — because they had actually happened to him.

“One was impulsively getting up in a work meeting or in the middle of an assignment to go get ice cream,” he said. “It wasn’t just a food
craving. It was like my brain needed this dopamine.”

In college, when he was taking pre-med classes, he struggled in his science courses and suffered from anxiety and depression. When he
began to think he might have A.D.H.D., he spoke with three psychiatrists and two therapists before eventually being evaluated for
A.D.H.D. at his school’s mental health center. After a few testing sessions there, he finally received a formal diagnosis.

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“Oh my god, it was so transformative,” Mr. Alvarez said. The impulsivity and other difficulties he had experienced now made sense. With
the help of medication and therapy he felt less overwhelmed and began completing some tasks in half the time it normally took.

‘Your diagnosis is not who you are.’

If a teenager comes to their parents to discuss something they’ve seen on TikTok or another social media platform, it’s best to remain open
and curious, experts say.

“Take that as an opportunity to engage them and find out more about your teenager and some of the challenges and struggles that your
teenager is going through,” said Anish Dube, chairman of the Council on Children, Adolescents and their Families at the American
Psychiatric Association. “What are some of the things that they enjoy about this person or page they’re following? What are they
identifying with? What is it that they’re concerned about?”

Often the information presented on social media can be inaccurate or overly simplistic, so Dr. Dube also recommended pointing kids
toward reliable sources like the A.P.A.’s directory of mental health topics, which is also available in Spanish, and the American Academy of
Child and Adolescent Psychiatry’s resources page for families and youths.

In a college setting, sometimes students are seeking a diagnosis in order to receive services or an accommodation, said Seli Fakorzi, the
director of mental health operations at TimelyMD, a virtual health provider that serves more than 1.5 million students on over 230 college
campuses.

But other times, she added, they just want to discover why they feel different, “or what makes me the same as other people that I know
that struggle with the same thing.”

Ms. Hawkins said it’s also important to help kids understand that “your diagnosis is not who you are — it’s a part of what you have.”

“Diagnosis is a starting point of understanding,” she added. “It’s not the endpoint.”

Kianna, the teenager in Baltimore who believed she had depersonalization disorder, discovered additional videos on TikTok claiming the
condition could be treated by varying your daily routines and starting new hobbies. So she began to do so in earnest: crocheting, writing in
a journal and learning to roller-skate.

But none of it was helping.

Then, later that year, she returned to school in person and starting spending time with her friends. “I suddenly felt like I was happy again,”
Kianna said.

Eventually she saw her school’s psychologist, who reassured Kianna that she did not have depersonalization disorder, but also did not
discount the difficulties she experienced during remote learning.

“You don’t really need to have a mental health disorder to be suffering,” Kianna said. “Everyone needs emotional support.”
Christina Caron is a reporter for the Well section, covering mental health and the intersection of culture and health care. Previously, she was a parenting reporter, general
assignment reporter and copy editor at The Times. @cdcaron
A version of this article appears in print on , Section D, Page 7 of the New York edition with the headline: Teenagers Turn to TikTok for Mental Health Answers

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