ing Occupational Life
elton, Roberta P. Holzmueller, Riitta Keponen, Louise
Kelly Munger, and Gary Kielhofner (posthumous)
CHAPTER 9
ED LEARNING OUTCOMES
mpletion of this chapter, readers will be able to:
fe meaning of their personal occupational life narrative within a po!
le by defining the “plot” of the narrative and using metaphor to
in their story.
ibe the occupational narrative of others whose unique circum-
es have been compromised through iliness, disability, or other chal-
Bing circumstances.
the model of human occupation (MOHO) concepts, explain how an
idual is challenged to craft or shape their occupational lives in order
Berticipate in occupations that are important and satisfying to them.
line how occupational narratives evolve over time to craft an in
's occupational life
fein how an individual's self-awareness of their occupational life nat=
je can enable meaningful and sustainable occupational solutions for
with clients.
her own unique life. These elements are always in the
background, shaping how people craft their ongoing
occupational lives in the stream of time and within
their social and physical environment, Moreover they
tional identity represents a composite sense _ “integrated into each persons unique occupational
elf and one’ future generated from ongoing aoe a = ace vin
S performance capacity, nt in
itional participation. It further noted that oc over time to influence what a client aaa
or her life. This process forms a plot with a central
metaphor that reflects a client's understanding of his:
or her own experience of disability.
craft their occupational lives through a
fic system and ongoing process of generat
B maintaining their occupational identity
;petence. In Chapter 8 it was noted that
pnal competence involves sustaining a pattern
cipation that reflects one’ identity.
purpose of this chapter is to consider further
rsons are challenged to organize, shape, or
heir occupational lives in order to participate
Bupations whicl
nn individual holds as important : . :
Support a person's unique sense of pleasure and Cecil, a 70-year-old retired busi
tisfaction in doing things former amateur boxer, and widower
Reinforce knowledge of one’s own capacities, patiently to be seen by an occup
imitations, and relative effectiveness therapist in an outpatient clinic,
lign with one’s awareness of who one is in in his youth he was a high-achieving st
ference to the social world and top athlete, he also carried a dia
Have familiarity with the rhythms and routines | of attention-deficit hyperactivity
MOHO Problem-Solver: Geriatrics
of life He has always struggled with issues of
manate lived experience asan embodied being _ impulsivity, organization, and focus.
‘Acknowledge apprehension of the world however, Cecil's difficulties with.
Occupational identity and competence encompass | functioning have been:
e aspects of volition, habituation, and perfor- | to lose things and forget to p
e capacity collectively orient each person to his/Chapter 9 Crafting Occupational life 125
a variety of ways (Gergen & Gergen, 1988; Jonsson,
Kielhofner, & Borell, 1997).
‘A narrative’ plot reveals its overall meaning be-
cause it sums up where life has been and is going. For
example, the tragic plot is found in a life when some
event results in a steep downward turn in a previously
jer, 1999; Geertz, 1986; Gergen & Gergen, 1988; 800d or improving life. It signifies a life ruined. The
ich, Kielhofner, & Mattingly, 1994; Mattingly, _ Melodramatic plot involves a series of upward and
; Schafer, 1981; Spence, 1982; Taylor, 1989) downward turns. It reveals a life of struggle. In this
y considering each individual’ volition, habitua- Ws plotting life events links them together in a way
performance capacity, and unique set ofenviron- __ that makes sense of the life as a whole. Consequently,
al constructs, occupational therapy can facilitate the variouslife episodes derive their meaning from the
ing meaning of occupational life in changed or _°VeTall shape ofthe plot. One way of understanding
Jenging circumstances. This leads to health- and _atTative plots that have been used in occupational
being-promoting benefits as well as encourag- therapy research and practice isto characterize them
.ccupational participation (Fossey & Scanlan, _& Fegressive, progressive, or stability narratives
), an improved experience of occupational life Jonsson et al., 1997; Kielhofner et al., 2004). As
tert & Fossey, 2010), and a negotiated sense of shown in Figure 9-1 a progressive narrative is one
ging personal occupational identity (Alasker & it which the story is headed upward, a regressive
hsson, 2013; Lal et al., 2013; Price, Stephenson, _@¥Fative heads downward, and a stability narrative
tz, & Ward, 2011). continues life in a constant direction.
‘o important features of narratives—plot and People seek to evaluate life events in terms of their
phor—synthesize and impart meaningon many Significance or impact on the unfolding life story.
ents and episodes of life. The following sections Most events represent a continuation of the basic
ine these two features of narrative. direction of life. Others positively change or threaten
where life is headed. In evaluating ongoing events of
life, the underlying plot (the direction for better or
for worse that life will take) is always at stake. For
en and Gergen (1988) refer to plotas the founda- example, Cheah and Presnell (2011) demonsti
of the narrative that determines how people think that older people’s experience of acute hospit
talk when they use stories. The plot of a story tion, while important for health, was, at a
esents the intersection between the progression _ time, disruptive to their “normal” oce
ime and the direction (for better or for worse) People evaluate each new unfolding,
life takes. Consequently, the narrative plot is of life in terms of how such things h
way in which an individual characterizes the _ and in terms of where it might lead.
y of events that they are experiencing over time. _ Jonsson et al. (1997) studied how
tapes events over time as they experience life in _ anticipated their retirement. What ead
Good
Bad
RE 9-1 The Slopes of,
essive, Regressive, and
le Narratives.126
Part Explaining Human Occupation
expected in retirement was always intimately tied
to how past and present occupational life, especially
‘work, had been experienced. If work was negative,
then retirement could be seen as an escape. In this
‘case, life after retirement could be expected to get
ppetter. If work was positive, then retirement could
continue a good life by providing opportunities to do
other valued things or it could be a loss that would
make life worse.
How past and future are linked depends on and
reveals the plot. If, for example, ones living a tragiy
parative, past successes do not mean that things wil
hecessarily go well in the future. On the other hand, if
Snes in a story where things are getting betten past
failures will be lessons that provided the person with
fnew strengths or obstacles that were overcome, The
significance ofthe past forthe present and the future
depends on and reflects the narratives plot This is
fllustrated in Smiths (2008) account of powerful
personal stories and the circumstances that influence
Per narrative plot. In a similar fashion, inevitable O°
likely events in the future take on theis significance
with reference to the past and present. How they are
voor to relate to pastor present also depends on and
reflects the underlying plot
METAP
stories are also given meaning by metaphors (Gan”
1993). Metaphor is the use of a familiar object or
phenomenon to standin the pace ot the less under
stood event or situation (Ortonys 1979). Metaphors
succinctly characterize complex or emotionally dif
ficult circumstances by evoking sometli 98 familiar
Peveadily understood to stand in the place f that
or niehis difficult to grasp and/or face, Metaphor®*
provide a way of dea dif rcumstanc
serious, jet 3
illness, peop! a b
metaphor casts the diseas ,
that must be fought an:
People also evoke 1
disabilities. For ex
Mattingly (1996) ident
and entrapment i
‘mental iliness. People \
illness often referred
inertia, impetus, acceleratior ;
related images such as getting lif f
slowing down, life passing one aan
halt, or life going nowhere when t ai
up or evaluating the events of their lives. They wad
the metaphor of momentum to characterize their
struggles, motives life junctures, and life events by
evaluating them in terms ofthe progression and direc-
tion of their lives. Importantly, the way in which they
lived their lives also embodied such slowieg dawnt
heading off in wrong directions, and
comingto aha Ra math mental ness deserted
their lives as. being severely restricted or confined by
Mee reurgsances Tek oa imbued with the
wish for escape OF fOF finding a way out of the maze,
They saw their Situations as both intolerable and in-
exorable. Importantly, they also acted as individuals
‘cho were trapped: TREY Jould not make decisions,
They sometimes ‘exhibited symptoms of agoraphobia
and were literally ‘onfined in their ‘eae on hone
They stayed in dissatis'7i08 relationships jobs, and life
Tey Enterestingl: sat ‘broad themes emerged
cl 112011) studied older peoples
e of acute hospitalization, “The participants
expres ool pension enorme
in relation to their own Sccupational roles, routines,
Choices, and environment and the incapacitating and
timpleacant effect ofthis 28 evident.
pe Narrative Meaning
phors Shi
How Meta
gchdn (1979) noted that metaphors are a primary
Schiele through which persone comprehend thin
“rat have gone wrong in life Consequently,
Tivesare troubled and when people are st
comprehend dificult, painful and incomprel
things that have happened
of assigning meaning tO
gum up “what needs fixi
‘Metaphors have also been
learning experience of indivi
groups. For example,
Gefined their developing
MOHO theory in pra
heir participation
practice to another (
netaphors of m
na new direction,
wn. Metaphors 6
stescape or be fi
meaning as
present them
openness in
of whatever
1990a, 1990b
do continuesg things along, and sometimes acquiescing
at seems inevitable (Jonsson, Josephson, &
jofner, 2000; Jonsson et al., 1997). Occupation
femanates from and influences where one’ story
ig (Clark, 1993; Helfrich et al., 1994).
this reason, narratives can either impede or
action. For example, if someone already sees his
life as a tragedy, there is little reason to work
rd goals because the tragic plot pronounces that
s are ruined. On the other hand, if someone sees
her life as getting better, he or she will likely
tivated to work hard toward that outcome. For
iple, in a study of 129 participants with AIDS,
jofner et al. (2004) found that clients’ narratives
significant predictors of whether people would
iin in or drop out of a program of vocational
ices and of whether those who successfully par-
ated in the program would achieve employment
ther productive outcomes.
MARY,
coherence and meaning people achieve in their
is facilitated through narratives. The following
res of narratives give them this integrating and
.g-making potential:
Narratives tie together past, present, and future
as well as integrate multiple themes of self and
the world.
Narratives integrate and impart meaning through
the use of plot and metaphor.
Narratives are open-ended and thus allow us to
comprehend emergent events and circumstances
of life, tying them to what has gone before and
what might come next.
Narratives are not only told but are also done.
What one does continues the unfolding of one's
narrative.
rn these considerations, an occupational nar-
is defined as a story (both told and enacted)
integrates across time one’s unfolding volition,
jituation, performance capacity, and environments
ugh plots and metaphors that sum up and assign
ning to these elements, Both occupational iden-
and our competence are reflected and enacted in
upational narratives.
low occupational narratives figure in ongoing life
n best be appreciated by detailed examination
f such stories. The following sections present
ur occupational narratives. Each narrative tells
bout living with an impairment. Aaron’s story is
Chapter 9. Crafting Occupational Life 127
told by his mother, Roberta Paikoff, with liberal
perspectives from Aaron. It illustrates the extent
to which crafting an occupational narrative can
involve the collective efforts of parents and child.
Kelly's story is in the first person because she au- |
thored it. Leena’s and Lisa’s stories are rendered in
the third person, because the text was shaped by
someone other than the story's character.
Pediatrics Narrative
Aaron is currently planning his sixth birthday party,
to which he plans to invite all the children in his
mainstream kindergarten class, as well asa few friends
from last year’s preschool class. He has a clearly ar-
ticulated theme (jungle animals) and place (home)
where he'd like to have his party, as well as some
ideas for things the guests will do (crafts and games
where we make or pretend we are jungle animals).
‘Aaron practices using his muscles by playing sportsGood
Bad,
Past
|GURE 9-5 Leena’s Narrative Slope
tines of everyday life. Each experiences a body
ith physical or mental impairments.
These narratives make comprehensible the
ings each person does (or does not) do. For
sample, they reveal why Aaron uses and enjoys
; swift imagination, how Leena manages to
orward through life, why Lisa gave up her
{taking the bus into the city, and why Kelly
uing a PhD in disability studies. These
s and actions all take meaning from and
the fundamental plot of the narrative to
they belong.
nately, how these persons go about life—
ccupational competence—is tied to the
ng plots and metaphors of their stories.
persons all clearly conduct their lives in
{ their narratives.
/uences on the Occupational
rrative
ratives are ultimately shaped by many things.
netheless, three factors appear to have an important,
act, These are the unfolding events of life, social
ces, and the presence or absence of an engaging
pation. The following sections examine each of
se factors.
FOLDING EVENTS AND CIRCUMSTANCES
FE
ch of the four narratives shared in this chapter so
indicates that ongoing events and circumstances
life insert themselves into narratives, having
ignificant influence on how they unfold. In a
igitudinal study, Jonsson et al. (2000) examined
135
Chapter 9 Crafting Occupational Life
Present
tt on
how narratives shape and are shaped by what
happens as lives unfold. The study began when a
‘group of older persons was anticipating retirement
and continued as they progressed into retirement.
Over time, the actual direction that retirees’ lives
took was reflective of an interaction between their
original narrative and unfolding events and cir-
cumstances, Subjects’ narratives readied them to
respond in particular ways to ongoing life events
and circumstances. Nonetheless, differences in those
external circumstances and events could also nudge
the narrative in one direction or another. ae
stories tended to be resilient, that is, to mi
their own plot. However, whereas life
circumstances were usually integrated i
existing plot, they sometimes
case, the narrative had to come to te
events and circumstances.
SOCIOCULTURAL INFLUENCES ON
NARRATIVE
A dynamic tension always exists b
narrate our lives and what is around
While each person constructs his or her:
narrative, there are also important
influences by the sociocultural context,
person derives a sense of narrative pk
metaphors from surrounding cultures.
and images that populate our narrati
derived from the kinds of discourse we er
our everyday worlds. Prevailing plots
that are part of the language and b
culture serve as templates for how person
sense of and enact their lives. Moreover,
of socialization and throughout life, s
to members what kinds of stories can b136 Part! Explaining Human Occupation
ieee ory hes borrowed heavily from dominant
| themes. To the extent that societies provide
prevailing narrative themes, they may have an im
pact on the kinds of narratives persons within them
construct for themselves. For example, Kielhofner
and Barrett (1997) document how a woman living
in poverty is located in a narrative of seeking escape
and refuge from the ongoing circumstances of her
life in the inner city. Such a narrative arises out of
‘social conditions and appears common among those
who share such conditions,
"Because our occupational lives unfold in inter
tion with others, our narratives are also invariably
tied to how others act toward us and how we act
toward them, Those who enter and find a place in
urlives, and their characteristics and actions, affect
‘our occupational narratives. This feature of narratives
pias illusyrated in the study of retirees when family
members were mobilized to do things that av sided
the negative turn of events anticipated by their rela-
tives (Jonsson etal, 2000). Itis an important feat
of social life that we note and seek to influence the
‘occupational narratives of those whose lives intersect
with our own. In the end, our stories are tied to theirs.
Tnsum, social influences on narrative are two! id.
First, the content and shape of our narratives aré PP
vided by the social context. We invariably constt
narratives that draw on so ially a
metaphors. Second, since we live 0
narratives in interaction with othe ir
affect our stories.
vailable plots and
‘The third phase of t
previously suggests th
story requires a perso
engaging occupatio'
hofner, 2001). Engagu
of passion or feel
narrative. They are done wit
perseverance and stand
person does. They are infused B
connected to interest +P nf njor
ment), personal causation (i.e. one’s sense of ability
to do something lief that
something is worth doing, important, and makes a
contribution to family or society). Thus, the engaging
occupation resonates with all aspects of volition. It
is typically done with regularity over a long period
of involvement and includes several occupational
forms that cohere or constitute an interrelated
whole. Involvement in an engaging occupation also
Jue
ommitment or sense of duty t
remain and a connection t0 = come oe
cupatirea common interest in that occupation
who py. an engaging occupation isa coherent a
sgl se of occupational forms that cohereang
mean ep feeling a sense of duty, commitment
cv erseverance leading 1 regular involvement a
time in elation toa community of people who share
the engaging occupation,
ene Marratives shared in this chapter appear y
suppor the concept of engaging occupations and