In a stratified society characterized by inequality, certain groups
experience marginalization. Marginalization refers to the unequal distribution of resources and power which produces conflict between groups, leaving some more vulnerable to abuse than others. Persons with disabilities are one such group (Oliver, 1996; Campbell and Oliver, 1996). They are marginalized socially, economically and politically and frequently are treated as a subordinate group within society. Individually and collectively they are denied full participation in society. Their marginalization places them at a serious disadvantage within the community. People with disabilities experience conflict in a variety of forms, including problems of physical accessibility, lack of employment opportunities and lower salaries, and problems accessing health care.
One important manifestation of the marginalization of persons with
disabilities can be seen in the rate of abuse directed at people with disabilities. Research on abuse traditionally defined as physical, emotional, sexual and financial abuse and neglect has documented that people with disabilities experience rates much higher than the rate for people without disabilities (Crosse et al., 1993; Sobsey et al., 1995; Sullivan and Knutson, 2000; Wilson and Brewer, 1992). Traditional methods of capturing data on crime victims, however, such as the Bureau of Justice Statistics National Crime Victimization Survey and the Federal Bureau of Investigation's Uniform Crime Report have not included data on the crime victim's disability status.
While abuse in the literature is defined by researchers and providers as
physical, sexual, emotional, and financial abuse and neglect, there are very few studies which focus on how people with disabilities actually define abuse. The Roeher Institute (1995) surveyed a sample of people with disabilities (as well as conducted interviews and focus groups with service providers, police, advocates, and family members). They found that types of violence and abuse identified by persons with disabilities included: physical violence; denial of rights, necessities, privileges, and opportunities; verbal and emotional abuse; and failure to respond to their complaints of abuse and violence. In addition, there have been studies of other marginalized populations where it was found that members of the affected population have defined abuse more broadly. For example, Lewis, et al (2005) studied intimate partner violence in the Latino community and found that women (many of whom were victims of violence) added another category to possible types of abuse. In addition to identifying traditional types of abuse (physical, sexual, emotional, and financial abuse), they spoke of the unequal burden of expectations imposed on women in society as a type of abuse. This abuse (identified as "unequal burden") referred to the abusive expectation that women were not only expected to cook, clean house, shop and prepare food, care for children and aging parents, and meet the needs of their spouse, but they were also expected to contribute financially as a breadwinner within the family — and in many cases, the only breadwinner.
A similar understanding of how people with disabilities actually define
abuse is missing from the literature. The overall goal of our research was to develop a better understanding of abuse directed at people with disabilities — from their perspective. In particular, we wanted to learn about types of behaviors identified as abusive, likely abusers, reporting behaviors and perceived outcomes. This paper focuses on the way in which abuse is defined by people with disabilities and who they identify as likely abusers. Findings with regard to reporting abuse have been presented elsewhere (West and Gandhi, 2005).
Statement of the Problem
This study is set out to address the following questions:
1. Who is likely to do these things to people with disabilities?
2. How does the respondent describe their experience regarding physical abuse? 3. How do they overcome physical abuse?