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Chronic Care

By Reinhard Busse and Juliane Stahl


doi: 10.1377/hlthaff.2014.0419

Integrated Care Experiences And


HEALTH AFFAIRS 33,
NO. 9 (2014): 1549–1558
©2014 Project HOPE—
The People-to-People Health

Outcomes In Germany, The Foundation, Inc.

Netherlands, And England

Reinhard Busse (rbusse@tu-


ABSTRACT Care for people with chronic conditions is an issue of berlin.de) is a professor in and
head of the Department of
increasing importance in industrialized countries. This article examines Health Care Management, a
three recent efforts at care coordination that have been evaluated but not World Health Organization
Collaborating Center for
yet included in systematic reviews. The first is Germany’s Gesundes Health Systems Research and
Kinzigtal, a population-based approach that organizes care across all Management, at the
Technische Universität Berlin,
health service sectors and indications in a targeted region. The second is in Germany.
a program in the Netherlands that bundles payments for patients with
Juliane Stahl was a research
certain chronic conditions. The third is England’s integrated care pilots, fellow in the Department of
which take a variety of approaches to care integration for a range of Health Care Management at
the Technische Universität
target populations. Results have been mixed. Some intermediate clinical Berlin at the time of this
outcomes, process indicators, and indicators of provider satisfaction study. She is now a research
fellow at the German Institute
improved; patient experience improved in some cases and was unchanged for Economic Research, in
or worse in others. Across the English pilots, emergency hospital Berlin.

admissions increased compared to controls in a difference-in-difference


analysis, but planned admissions declined. Using the same methods to
study all three programs, we observed savings in Germany and England.
However, the disease-oriented Dutch approach resulted in significantly
increased costs. The Kinzigtal model, including its shared-savings
incentive, may well deserve more attention both in Europe and in the
United States because it combines addressing a large population and
different conditions with clear but simple financial incentives for
providers, the management company, and the insurer.

P
eople who have chronic diseases teams, or both are—to varying degrees and in
need a long-term response coordi- different combinations—important components
nated by different health profes- of integrated care models.1,2 In short, as Ingrid
sionals, especially if multiple disor- Mur-Veeman and coauthors write, “Integrated
ders occur in parallel. To address care is…an organizational process of coordina-
the needs of patients with chronic diseases, tion that seeks to achieve seamless and continu-
many countries have experimented with inte- ous care, tailored to the patient’s needs, and
grated care models in an attempt to overcome based on a holistic view of the patient.”3
the known shortcomings of treatment by differ- The aims of integrated care are clear: to im-
ent providers in an episodic manner. prove outcomes, patient experience, and effi-
No generally accepted definition of integrated ciency. But how this is best achieved, which tar-
care exists. However, care coordination; case get groups would benefit most from which types
management; self-management support; and of interventions, and what role financial incen-
care by multidisciplinary clinical pathways, tives play in helping achieve the objectives are

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Chronic Care

not well understood. Integrated care has been Germany: A Population-Based


discussed extensively in both Europe and the Approach
United States, where the terminology has shifted The “sectorization” of health care delivery (espe-
from integrated delivery networks to accountable cially between ambulatory and inpatient care) in
care organizations.4 Germany has been recognized as a major obsta-
Systematic reviews have assessed the evidence cle to improving care for patients with chronic
about the effects of integrated care models, and a conditions.8 New provisions for so-called inte-
number of reviews of these reviews have been grated care were introduced in German statute
completed. For example, Marielle Ouwens and in 2000, with the aim of improving cooperation
coauthors looked at reviews of integrated care between ambulatory care providers and hospi-
models published between 1996 and 2004,1 and tals. The terms of such cooperation are spelled
Ellen Nolte and Emma Pitchforth looked at stud- out in contracts between sickness funds (insur-
ies of integrated care models from 2004 to 2012.2 ers) and individual providers or groups of pro-
We examined newer European approaches to viders from different sectors.
integrated care that have not yet been analyzed In 2004 a law removed existing barriers to
in publications included in such systematic re- developing and implementing integrated care
views. We conducted this examination to gain models and provided financial incentives for
insights into whether newer integrated care both sickness funds and providers to proceed
models achieved the stated objectives and, if with such models. A substantial number of inte-
so, what were the crucial factors in the models’ grated care models have been developed since
success. then.
We examined only integrated care approaches In spite of great euphoria among sickness
that had been evaluated using both control funds and providers during the start-up phase,
groups (most often defined as care as usual) the implementation of integrated care models
and, to the extent possible, measurements be- has progressed slowly. Spending on care provid-
fore and after the start of the intervention.5 Often ed through integrated care contracts has ac-
the two approaches are combined in a difference- counted for less than 1 percent of total expenses
in-differences approach, in which changes in the on health care. This is the case even though the
intervention group before and after an interven- estimated number of integrated care contracts in
tion are compared to a control group during the 2011 looked impressive: 6,300 contracts be-
same time. Some of the evaluations were pub- tween sickness funds and provider groups that
lished in journals. Others have so far been pub- collectively cared for 1.9 million people.9 How-
lished only as “grey literature”—for example, as ever, many contracts are limited to rehabilitation
project reports by the organizations responsible care, ambulatory care following surgery, or both.
for the evaluation. The central goal of the integrated care mod-
To achieve these objectives, we contacted ex- els—to better coordinate, and potentially inte-
perts and searched the Internet for examples.We grate, care across sectors for people with chronic
excluded some interesting approaches because diseases to improve their experiences and out-
they were very narrow (including only a few pa- comes—has scarcely been addressed. The well-
tients or limited interventions) or had not been known disease management programs—which
evaluated.6 For each example included, we pro- combine clinical guidelines, quality assurance
vide details on the target populations (Exhibit 1) measures, and training of and information for
as well as on the methods and data sources, providers and patients8—address only single
which included administrative data (often used chronic conditions, but many of the participants
to analyze processes, utilization, outcomes, and in such programs have multiple morbidities.
costs) and surveys and interviews (used to exam- Gesundes Kinzigtal (GK)—literally, Healthy
ine patient and provider experience) (Exhibit 2). Kinzig Valley—is an exception. The only truly
Further details are given in Appendix Exhibit 1.7 population-based integrated care approach in
We then report on intermediate clinical out- Germany, it organizes care across all health ser-
comes and mortality, use of hospital care, proc- vice sectors and indications for people of all ages
ess indicators, patient experience, provider ex- and care needs.
perience, and costs (Exhibit 3; for further Gesundes Kinzigtal GmbH, which runs this
details, see Appendix Exhibit 2).7 integrated care system, is a joint venture. One
The rest of the article follows a country-by- partner is the Hamburg-based health manage-
country approach. We briefly explain the policy ment company OptiMedis AG, which was
environment for the integrated care models and founded in 2003 and holds one-third of the
then describe the organizational features, inter- shares in the venture. The second partner is
ventions, and incentives used. the Medizinisches Qualitätsnetz—Ärzteinitia-
tive Kinzigtal (literally, Medical Quality Net-

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work—Physicians Initiative Kinzigtal), which ments with pharmacies, health and sports clubs,
has more than forty physician members, was gyms, companies with workplace health promo-
founded in 1993, and holds two-thirds of the tion programs, adult education centers, self-help
shares. groups, and local governments.
Since January 2006 Gesundes Kinzigtal Financial Incentives GK’s financial goal is to
GmbH has been contractually accountable for improve the margin for the contracting sickness
the whole health care service budget for nearly funds. Achieving this involves realizing savings
half of the 69,000 inhabitants of the Kinzigtal within the Kinzigtal region in relation to German
region in southwestern Germany (Exhibit 1). standardized costs and to a reference period be-
These people are insured by one of two partici- fore the intervention.
pating sickness funds: Allgemeine Ortskranken- Standardized costs are average costs across all
kasse (AOK) Baden-Württemberg (about 29,300 sickness funds. They are used in the so-called risk
insured in Kinzigtal) and Landwirtschaftliche structure compensation mechanism, which allo-
Krankenkasse (LKK) (about 1,700 insured).10 cates money from a central pool to the approxi-
However, fewer than half of them have actively mately 130 sickness funds in Germany. The pool
enrolled in GK. is managed by the Federal Insurance Authority
GK cooperates with almost a hundred pro- (Bundesversicherungsamt, or BVA), a govern-
viders, including general practitioners, special- mental body, and all insured people in the coun-
ists, hospitals, psychotherapists, nursing try pay a percentage of their income into the
homes, ambulatory home health agencies, and pool. Since 2009, allocations for each insured
physiotherapists. Additionally, GK has agree- person have been determined by age, sex, and

Exhibit 1

Characteristics Of Integrated Care Interventions In Three European Countries


Intervention Location Target population Time frame Funding or financial incentives
Germany
Gesundes Kinzig Valley, Baden- General population (regardless of Since January 2006 All providers (regardless of location
Kinzigtal (GK) Württemberg disease or age) insured by one of or whether they are affiliated
two insurers (almost 50% of 69,000 with GK) are paid by insurer in
inhabitants) usual ways; total expenditure for
all insured inhabitants is
compared to risk-adjusted
standardized costs, and insurer
and GK share savings
Netherlands
Bundled payment Nationwide Patients with diabetes, cardiovascular Since January 2007 for Disease-specific care groups
system disease, or chronic obstructive diabetes; since receive single bundled payment
pulmonary disease (COPD) January 2010 for for all included disease-specific
cardiovascular risk services; other services are paid
management; since by insurer in the usual way
July 2010 for COPD
England
16 integrated 16 areas across Differing, including the elderly (11 April 2009–March 2011 $127,000–$289,000 per ICP from
care pilots England ICPs); people with chronic Department of Health to cover
(ICPs) conditions, especially if at risk for start-up costs, evaluation
hospital admission (7 ICPs); people activity, and other expenses
with dementia or mental health resulting from participation in the
problems (4 ICPs); people at risk of pilot program
falling (3 ICPs); and people needing
end-of-life care (3 ICPs)
North West 6 London boroughs: The elderly and people with diabetes Since May 2011 $16.6 million from the London
London ICP Brent, Ealing, Strategic Health Authority for
Hammersmith and governance, salaries and
Fulham, Hounslow, infrastructure of support team,
Kensington and and development and
Chelsea, and implementation of data-sharing
Westminster platform

SOURCE Authors’ analysis. NOTES For further details on target populations, see Appendix Exhibit 1 (see Note 7 in text). For further details on funding or financial incentives,
see the text and appropriate notes.

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Chronic Care

Exhibit 2

Methods And Data Sources For Evaluated Dimensions Of Integrated Care Interventions in Three European Countries
Intervention Process or administrative data Surveys Interviews
Germany
Gesundes Kinzigtal Health outcomes, patients leaving insurance, costs Patient experience (from postintervention —e
(GK) (from administrative claims data of all GK- questionnaire);c provider experience
enrolled and matched controls, using propensity (from annual questionnaire)d
score matching);a use and cost of hospital care
(from statutory health insurance data for people
from Kinzigtal and controls)b
Netherlands
Bundled payment Process and health outcomes (from patient record Patient experience (from postintervention Provider experience
system (diabetes) data);f use of hospital care and costs (from questionnaire)f (from semistructured
nationwide insurance claims data)g interviews with
stakeholders)f
England
16 integrated care Use of hospital care (from Hospital Episode Patient experience (from patient or —e
pilots (ICPs) Statistics [HES] for cases and matched controls);h,i service user surveys before and after
costs (estimated from HES data by applying an intervention);h,i provider experience
payment by results tariffs)h,i (from staff surveys early and late in the
evaluation)h,i
North West London Use and costs of hospital care (from HES and other Patient experience (from survey of —e
ICP administrative data to select controls);j process service users enrolled in the pilot);m
and health outcomes for patients with diabetes provider experience (from survey of
only (from patient-level data in general practice professionals)k
computer systems; inpatient, outpatient, and
emergency department care, and community
information data sets from local trusts; social
care data from local authorities);k,l dementia
diagnoses and care plans (from ICP primary care
data)l

SOURCE Authors’ analysis of items in the exhibit footnotes, which are cited in full in the notes in the text (exact endnote numbers are referenced only when more than one
source exists with the same author name and year). NOTE For further details on the methods and data, see Appendix Exhibit 1 (Note 7 in text). aSchulte et al., 2012. bKöster
et al., 2011. cZerpies et al., 2013. dSiegel and Stössel, 2012. eNot applicable. fStruijs et al., 2012 (Note 19 in text). gStruijs et al., 2012 (Note 21 in text). hRoland et al., 2012.
i
RAND Europe and Ernst and Young, 2012. jBardsley et al., 2013 (Note 28 in text). kCurry et al., 2013. lSoljak et al., 2013. mPappas et al., 2013.

expenditures attributed to any of eighty chronic patient has been identified as being at risk for
or high-cost preexisting disease.11 a certain disease—for example, during the com-
The contracts between Gesundes Kinzigtal prehensive checkup that routinely follows en-
GmbH and the two sickness funds are based rollment—doctor and patient are supposed to
on the “virtual” budget of each fund’s total allo- develop an individual treatment plan and to
cation from the central allocation pool. The bud- agree upon treatment goals. GK teaches physi-
get is “virtual” because the money is not actually cians how to improve their case management
passed through GK to providers. Instead, pro- and provides additional services for the patients,
viders continue to receive their reimbursements such as education programs.
from the sickness funds as usual. If a sickness ▸ PATIENT SELF - MANAGEMENT AND SHARED
fund spends less on care for its insured Kinzigtal DECISION MAKING : By supporting patients’
population—whether or not the care comes from self-help and self-management activities, and
a participating provider—than it receives from by training doctors in shared decision making,
the pool, the respective fund and GK share the GK attempts to support patients’ active partici-
difference.10 pation. In addition, a patient advisory board and
Interventions GK’s care and preventive pro- a patient ombudsman ensure that patients’ per-
grams target common chronic diseases that have spectives are carefully considered before impor-
a large effect on patients’ health status and for tant decisions are made by GK.
which effective interventions are available. The ▸ FOLLOW - UP CARE AND CASE MANAGEMENT :
activities are performed according to a set of The lack of coordination of follow-up care after
principles described below. patients’ discharge from a hospital or rehabilita-
▸ INDIVIDUAL TREATMENT PLANS AND GOAL - tion facility is an obvious shortcoming of the
SETTING AGREEMENTS : Whenever an enrolled German system. By facilitating the cooperation

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Exhibit 3

Highlights Of Evaluation Results Of Integrated Care Interventions In Three European Countries

SOURCE Authors’ analysis of results from the following sources (exact endnote numbers are referenced only when more than one
source exists with the same author name and year): Schulte et al. 2012; Köster et al., 2011; Zerpies et al., 2013; Siegel and Stössel,
2012; Struijs et al., 2012 (Note 19 in text); Struijs et al., 2012 (Note 21 in text); Roland et al., 2012; RAND Europe and Ernst and Young,
2012; Curry et al., 2013; Nuffield Trust, 2013; and Pappas et al., 2013. NOTES Dark green indicates a significant positive result (for
integrated care versus control). Light green indicates a generally positive result, which may be statistically significant for certain
subresults. Yellow indicates mixed positive and negative results. Red indicates a significant negative result. Further details on
the results (including the quotes) are in Appendix Exhibit 2 (see Note 7 in text). HbA1c is glycosylated hemoglobin. BMI is body mass
index. aTwo and a half years after enrollment, mortality among Kinzigtal inhabitants who had joined the program was 1.76 percent,
compared with 3.74 percent among those who had not. bBased on six pilots. The value shown is the sum of values from mixed results on
several components: emergency admissions, $276; elective admissions, −$529; and outpatient care, −$106 (all dollar amounts are
rounded). cBased on fifteen pilots. The value shown is the sum of values from mixed results on several components: emergency ad-
missions, $143; elective admissions, −$204; and outpatient care, −$32.

of hospitals with other providers via jointly de- in the record is encrypted.12
veloped care pathways, synchronizing medica- Evaluation Methods GK has commissioned
tions across formularies specific to hospitals several independent research institutions to con-
and ambulatory care providers, and using com- duct evaluations, which have been coordinated
mon electronic health records across the sectors by the university-based agency Evaluating
of care, GK aims to facilitate better coordinated Kinzigtal Integrated Care.10 A summary of data
follow-up care. The patient’s “doctor of trust” sources used in the evaluations of the various
(chosen by the patient as his or her medical dimensions is provided in Exhibit 2 (details
home), who is not necessarily a general practi- are available in Appendix Exhibit 1).7
tioner, takes charge of follow-up care. The evaluations compared different groups.
▸ SYSTEMWIDE ELECTRONIC HEALTH REC- Specifically, Timo Schulte and coauthors com-
ORD : Partner providers have access to patients’ pared Kinzigtal inhabitants enrolled in the inte-
electronic health records if the patient—as the grated care system with those who had not en-
owner of his or her data—has granted that ac- rolled by a particular point in time—using
cess. The diagnostic and treatment information careful propensity score matching—to examine

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Chronic Care

mortality rates, contribution margins (the differ- ness and quality of care for people with chronic
ence between standardized costs and actual ex- conditions have been implemented in recent
penditures), and acceptance of the model.13 years in the Netherlands. Many of the initiatives
Ingrid Köster and coauthors mainly focused involve multidisciplinary cooperation, both
on comparisons of the whole population of among physicians and between physicians and
Kinzigtal (independent of people’s enrollment other health care professionals. The fragmented
status) with people living in other regions of funding structures of the respective components
Baden-Württemberg.14 These authors note that of care and the difficulties in securing funds for
because of the ongoing recruitment process components that do not directly involve treat-
and the fact that people could enroll in the inter- ment or care were among the challenges that
vention while the evaluation was being con- needed to be overcome.17
ducted, continuous changes were occurring in In 2007 the Netherlands began experimenting
the composition and size of the intervention and with a bundled payment approach for ten care
control groups during the evaluation. Thus, they groups for diabetes, which received a bundled
argue that the Kinzigtal population as a whole is payment for this care.18 Without waiting for the
more homogeneous over time than the insured findings of an evaluation of this approach, the
who are enrolled in the integrated care system. country’s Parliament voted in September 2009
Evaluation Results Exhibit 3 summarizes to implement ongoing bundled payment pro-
some of the results that have become public in grams for both type 2 diabetes and cardiovascu-
various publications (for additional results, see lar risk management, starting in January 2010,
Appendix Exhibit 2).7 Probably the most striking and for chronic obstructive pulmonary disease,
result is the difference in mortality rate: It was starting in July 2010 (Exhibit 1).
reduced by half 2.5 years after enrollment among In response to a parliamentary request, the
those who were enrolled in the integrated care health minister created the Bundled Payment
program, compared to those who were not. Evaluation Committee in 2010. The committee
Among those who had enrolled, 1.76 percent was charged with monitoring developments and
had died; the rate was 3.74 percent among those reporting periodically to the minister during the
not enrolled.13 next three years on progress in implementing
Because of the careful propensity score match- bundled payment programs and on whether
ing approach used in this evaluation, this result the intended effects had become evident.19
is not the result of selection bias. This conclusion Financial Incentives And Care Standards
is further supported by the fact that even after the The bundled payment system makes it possible
exclusion of deaths in the first six months (to for different elements of care for specific chronic
take into consideration the fact that terminally ill diseases to be purchased, delivered, and billed as
people were not enrolled), the difference was a single product or service. In contrast, services
still almost as large (1.59 percent versus 2.94 per- and goods for all other diseases remain outside
cent). The average age at death was 1.4 years of the bundled payment contracts.
earlier among people who had not enrolled Health insurers, which are responsible for
(76.6 years) than among those who had running the statutory health insurance system
(78.0 years).13 but which compete with each other, pay a single
Patients’ and providers’ experiences were fee to a principal contracting entity—the care
found to be positive as well: Almost all patients group—which serves as the general contractor
and 80 percent of providers would join GK and is responsible for organizing all diabetes
again,15,16 and significantly fewer enrolled people care and ensuring its delivery. Often owned by
left their sickness fund and joined another one, general practitioners, the care groups either de-
compared to people who were not enrolled liver the various components of care or subcon-
(Exhibit 3).13 So was the cost trajectory, or at tract with other health care providers—such as
least the contribution margin—the difference be- general practitioners, laboratories, dietitians,
tween what the insurer gets from the central and specialists—to deliver them. The price for
health fund pool and its spending. In the first each bundle of services is negotiated between
three years after the start of integrated care, the the insurer and the care group, and the fees
margin improved by €151 (US$203) per person for the subcontracted providers (if any) are ne-
per year in the integrated care population, com- gotiated between them and the care group.18
pared to the nonenrolled population. The negotiations on the content of care that is
included in the bundle are driven by care stand-
ards that are jointly developed—and whose use is
The Netherlands: Bundled Payments jointly authorized—by caregiver organizations,
For Single Chronic Diseases patient associations, and public health authori-
Numerous initiatives to improve the effective- ties. Insurers are consulted during the develop-

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ment of the standards, which are based mainly mented services to provide supportive, person-
on existing medical guidelines, protocols, and centered care—which, in turn, would facilitate
performance indicators.20 earlier and more cost-effective interventions.
The interventions described in the care stand- The English Department of Health thus invited
ards are categorized into general and disease- applications from health care organizations to
specific modules. The general modules include propose innovative approaches to providing bet-
interventions such as physical activity programs ter integrated care, given concerns that care was
and smoking cessation support that are applica- becoming more fragmented, especially for older
ble to all chronic conditions. The disease-specific people.
modules are additions to the general modules The new integrated care organizations were
and are specifically targeted to particular chronic meant “to achieve more personal, responsive
conditions. These modules are subdivided ac- care and better health outcomes for a local pop-
cording to four phases of care: early detection ulation.”22 However, no blueprint was given on
and prevention; diagnosis; individual care plan how integration was to be achieved. In 2009 the
and treatment; and coordination, rehabilitation, Department of Health selected and modestly
participation, and secondary prevention.20 funded sixteen integrated care pilots (ICPs) that
The Dutch approach has incentivized collabo- took a wide range of approaches to integration.23
ration among physicians on a routine rather Sixteen Selected Integrated Care Pilots
than voluntary basis, as was the case earlier.18 Despite the variation inherent in the sixteen sep-
It has also reassigned tasks both from specialists arate pilot projects, some commonalities could
to general practitioners and from physicians to be seen (Exhibit 1; for further details, see Appen-
nurses.19 dix Exhibit 1).7 Nearly all of the ICPs provided a
Evaluation The National Institute for Public great deal of primary care, which may seem ob-
Health and the Environment was charged with vious since in England general practitioners pro-
evaluating the care groups. It used patient rec- vide care for people who register to have a par-
ords and insurance claims data (including for a ticular practitioner manage their health care.
control group of patients not cared for by the The practitioners serve as gatekeepers to the rest
care groups), as well as surveys of patients and of the health care system. Thus, general practi-
interviews with stakeholders19,21 (Exhibit 2 and tioners constitute a useful level at which to coor-
Appendix Exhibit 1).7 dinate care.
As Exhibit 3 and Appendix Exhibit 27 show, In addition to general practitioners, most ICPs
results of the diabetes care groups were mixed. involved multiple other organizations, both
There was improvement in many process param- within the NHS (such as hospitals) and external
eters, such as patients’ receiving regular check- to it (such as social services agencies). The pilot
ups and foot examinations. However, the rate of projects targeted varying populations and con-
annual eye tests declined. ditions. Some focused on a single condition, but
Intermediate clinical measures also showed most addressed a range of conditions.
mixed results. Some, such as blood pressure Most of the pilot projects adopted an approach
and cholesterol, improved; for others there that identified populations at risk. The risk in
was no change or a negative change. Both pa- question varied from pilot to pilot, with the most
tients’ and providers’ experiences were positive. common being risk of emergency hospital ad-
Use of hospital-based specialist care for diabe- mission, dementia, or mental health problems
tes declined by almost 25 percent, which resulted (see Appendix Exhibit 1 for a list of all the tar-
in savings of US$47 per patient per year, com- geted indications).7
pared to the control group. However, total costs The chosen interventions also varied. Howev-
for specialist care increased by US$189 more er, a common feature was the use of an integrat-
than in the control group, perhaps because pa- ed or multidisciplinary team. Implementation
tients in the intervention group were referred to strategies ranged from regular meetings of dif-
specialists later, when they needed more com- ferent professionals involved with the same pa-
plex care. Total annual costs per patient in- tients to setting up a single multiprofessional
creased by US$388 more than in the control team that worked in the same building and pro-
group (Exhibit 3).21 vided both medical care and social services.
Several pilot projects implemented “virtual
wards,” a forum in which a number of
England: Integrated Care Pilots For professionals from different specialties and or-
Various Groups ganizations discuss a patient. Methods by which
The 2008 National Health Service (NHS) “Next patients were identified for admission, processes
Stage Review”22 articulated the need for better for operating virtual wards, and the level of in-
coordination and integration of previously frag- tensity of patient care varied among ICPs.24

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Chronic Care

Evaluation RAND Europe and Ernst and ber 2013 fourteen such pioneers were chosen.
Young conducted a real-time evaluation of the The first evaluation results will be available in
sixteen ICPs, using Health Episode Statistics, a mid-2015 at the earliest.
data warehouse containing details of all admis- North West London Integrated Care Pilot
sions, outpatient appointments, and emergency Among the pioneers is the North West London
department visits at NHS hospitals in England ICP, which had been established in 2011. It was
(for the patients within ICPs and control groups) originally planned to run for one year only, but
as well as patient and staff surveys (Exhibit 2 and its term was extended. The ICP was started by
Appendix Exhibit 1).7,24 Additional evaluations clinicians and funded with US$16.6 million by
are available that were restricted to specific por- the London Strategic Health Authority.26 It
tions of the pilots. brought together organizations from the com-
For instance, Martin Roland and coauthors munity and the sectors of social services and
reported results based solely on six ICPs that primary, secondary, and mental health care.
focused on intensive case management of elderly The North West London ICP provided coordi-
people who were at risk of emergency hospital nated, multidisciplinary care to approximately
admission.23 And the Nuffield Trust analyzed the 22,800 residents ages seventy-five and older
impact on hospital activity in eleven ICPs in and to roughly 15,200 residents of any age with
which possible changes in hospital admissions diabetes (some 8,700 patients fell into both cat-
were seen as a relevant outcome.25 egories). It included two hospitals, two mental
Exhibit 3 shows the main available findings health care providers, three community health
(for details, see Appendix Exhibit 2).7 RAND care service providers, five municipal providers
Europe and Ernst and Young summarized their of social services, two nongovernmental organ-
findings as follows: “Integrated care led to proc- izations, and 103 general practitioners. It oper-
ess improvements such as an increase in the use ated as a network, in which separate provider
of care plans and the development of new roles organizations worked together toward common
for care staff. Staff believed that these process goals according to a set of contractual agree-
improvements were leading to improvements in ments they had signed upon joining the ICP.26
care, even if some of the improvements were not The goals of the North West London ICP were
yet apparent.”24(p iii) to improve outcomes for patients; provide access
The evaluators pointed out that patients did to better, more integrated care outside the hos-
not, in general, share the sense of improvement. pital; reduce unnecessary hospital admissions;
The evaluators believed “that the lack of im- and allow professionals to work effectively
provement in patient experience was in part across provider boundaries.27 Various ap-
due to professional rather than user-driven proaches were used at different levels in order
change, partly because it was too early to identify to achieve these goals.
impact within the timescale of the pilots, and First, general practitioners were expected to
partly because, despite having project manage- create care plans for all patients in the ICP. These
ment skills and effective leadership, some pilots plans were intended to increase standardization
found the complex changes they set for them- and disseminate best practices across the ICP.
selves were harder to deliver than anticipated.” The development of care plans was enabled by
They also speculated “that some service users an ICP-wide web-based platform that also made it
(especially older patients) were attached to the possible for all provider organizations to share
pre-pilot ways of delivering care, although we their plans. The web-based platform also collect-
recognize this may change over time.”24(p iii) ed and displayed utilization data across pro-
A key aim of many pilots was to reduce the use viders and allowed for the identification of pa-
of hospital care. The evaluators found no evi- tients needing intensive case management.
dence of a general reduction in emergency ad- Second, the ICP was divided into ten multidis-
missions. However, there were reductions in ciplinary groups, each of which included 5–17
planned admissions and in outpatient appoint- general practitioner practices. The groups were
ments with specialists. established to improve care coordination across
In spite of the mixed results, the National Col- different services, particularly for patients at
laboration for Integrated Care and Support high risk of hospitalization. Besides general
(which includes the NHS as well as other organ- practitioners, the groups included district
izations) announced a second round of integrat- nurses, specialist physicians, social workers,
ed care projects in May 2013. Local jurisdictions and members of other professional disciplines.
were invited to demonstrate the use of ambitious The groups regularly reviewed their own per-
and innovative approaches to deliver person- formance.
centered, coordinated care and support in what Third, representatives of all organizations in-
was called the pioneers program. In Novem- volved were invited to attend the monthly meet-

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ings of the Integrated Management Board. Par- any pilot aimed at improving care coordination
ticipating organizations can send representa- should have as a central feature a well-designed
tives to the meetings or not as they choose. How- evaluation that would help others learn from its
ever, attending can be beneficial. For example, experience.
organizations that sent representatives received Many intermediate clinical outcome mea-
extra payment to compensate for the extra staff sures, process indicators, and patient and pro-
time required to attend meetings of the multidis- vider experiences improved under the ap-
ciplinary groups and produce the care plans. proaches examined here. However, this was
Evaluation Although the North West London not always the case. For example, in England,
ICP only began in 2011, extensive evaluations of participants felt that they were less involved and
diverse outcome indicators have already been that their preferences were less often taken into
conducted and published (Exhibits 2 and 3; account. Also in England, emergency hospital
for further details, see Appendix Exhibits 1 admissions rose, while planned admissions
and 2).7,26–30 Similar to other integrated care eval- and specialist care decreased. However, the sav-
uations, these found mixed results, with im- ings were larger than the additional costs.
provements in process parameters and some in- Overall savings were also observed in Ger-
termediate outcomes (especially patients’ many. However, in the Netherlands, the slightly
cholesterol levels). Patients were generally posi- reduced costs for diabetes care were surpassed by
tive about the idea of service integration. So were higher costs for other care, which resulted in
health care professionals, who experienced en- significantly higher overall costs.
hanced interprofessional learning, clinical Both the Netherlands and Germany applied
knowledge, and collaborative working.26 Howev- financial incentives, using bundled payments
er, patients felt minimal actual effects, and there and shared-gain arrangements, respectively.
were no apparent changes in use or costs during However, the Dutch focus on only one disease
the first year.26,29 seemed to allow the shifting of costs to providers
and services not included in the bundled pay-
ment—a result that was not possible in Germany.
Conclusion Therefore, our second conclusion is that the Ger-
This article has described developments toward man integrated care program, which targeted
integrated care in three European countries, roughly 50 percent of the population in a well-
concentrating on approaches that have been defined area regardless of people’s age or health
carefully evaluated in regard to processes, out- status, deserves to be more closely studied by
comes, utilization, costs, and the experiences of researchers and policy makers in the United
patients and providers. As Annalijn Conklin and States as they search for solutions to help ac-
coauthors noted,5 most other approaches have countable care organizations overcome the
not been properly evaluated, and even those that weaknesses of fragmentation, find appropriate
have been used designs that lacked a control financial incentives, and meet the needs of peo-
group. Therefore, our first conclusion is that ple with chronic conditions. ▪

An earlier version of this article was November 13–15, 2013. The authors comments from the participants in the
presented at the Commonwealth Fund’s gratefully acknowledge the input by Commonwealth Fund symposium.
sixteenth International Symposium on experts in the three countries, especially
Health Policy, Washington, D.C., Helmut Hildebrandt, as well as helpful

NOTES
1 Ouwens M, Wollersheim H, 3 Mur-Veeman I, Hardy B, European countries. See Conklin A,
Hermens R, Hulscher M, Grol R. Steenbergen M, Wistow G. Develop- Nolte E, Vrijhoef H. Approaches to
Integrated care programmes for ment of integrated care in England chronic disease management evalu-
chronically ill patients: a review of and the Netherlands: managing ation in use in Europe: a review of
systematic reviews. Int J Qual Health across public-private boundaries. current methods and performance
Care. 2005;17(2):141–6. Health Policy. 2003;65(3):227. measures. Int J Technol Assess
2 Nolte E, Pitchforth E. What is the 4 Burns LR, Pauly MV. Accountable Health Care. 2013;29(1):61–70.
evidence on the economic impacts of care organizations may have diffi- 6 For example, the Danish health care
integrated care? [Internet]. culty avoiding the failures of inte- agreements have not been evaluated.
Copenhagen: World Health Organi- grated delivery networks of the See Rudkjøbing A, Olejaz M, Birk
zation; 2014 [cited 2014 Jul 28]. 1990s. Health Aff (Millwood). HO, Nielsen AJ, Hernández-
Available from: http://www.euro 2012;31(11):2407–16. Quevedo C, Krasnik A. Integrated
.who.int/__data/assets/pdf_file/ 5 The fact that evaluations using both care: a Danish perspective. BMJ.
0019/251434/What-is-the-evidence- a control group and a before-and- 2012;345:e4451.
on-the-economic-impacts-of- after approach are rare was recently 7 To access the Appendix, click on the
integrated-care.pdf convincingly shown for twelve Appendix link in the box to the right

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Chronic Care

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