Professional Documents
Culture Documents
By
2023
1
Supervisor Sheet
Under Supervision:
Name Job Signature
1 Prof. Dr. Mona Ahmed Professor of Psychiatric and
Elbilsha Mental Health Nursing
Faculty of Nursing
Mansoura University
2 Dr. Azza Ibrahim Abd- Lecture of Psychiatric and
Elraof Mental Health Nursing
Faculty of Nursing
Mansoura University
Approval Committee:
Name Job Signature
1 Prof. Dr. Mona Ahmed Professor of Psychiatric and Mental
Elbilsha Health Nursing-Faculty of Nursing
Mansoura University
2 Prof. Dr. Mervat Mostafa Professor of Psychiatric and
El Gueneidy Mental Health Nursing, Faculty of
Nursing-Alexandria University
Prof. Dr. Ahmed Gamal Professor of Neurological and
Azab Psychiatric Medicine Faculty of
Medicine, Mansoura University
Head of the Vice dear for Dean of
Department Postgraduate studies and researches the faculty
Acknowledge
In the name of Allah, the most gracious and the most merciful, First and
foremost profound gratitude goes to almighty "ALLAH" for giving me strength,
knowledge, ability and opportunity to undertake this study.
I sure it is Allah's blessing and grace that I completed my work and ended up with
this dissertation.
I would like to express my deepest gratitude and sincerest appreciation to
Prof. Dr. Mona Ahmed El-Bilsha, Professor of Psychiatric and Mental
Health Nursing – Faculty of Nursing – Mansoura University for her constructive
supervision, valuable advices, Kind help, and continuous encouragements, and
support offered throughout the entire course of this work.
My deepest thanks go to Dr. Azza Ibrahim Abd El-Raoof, Lecture of
Psychiatric and Mental Health Nursing, Faculty of Nursing, Mansoura University,
who gave me all encouragement and support, her valuable guidance and sincere
advice.
I am grateful and indebted to psychiatric patients and their caregivers for
helping me during the collection of the data and implement of the intervention.
List of Tables
Table Page
Table (1) Frequency Distribution of studied sample according to
Socio-demographic characteristics
Table (2) Frequency Distribution of studied sample according to
Social condition
Table (3) Frequency Distribution of studied sample according to
Physical condition
Table (4) Frequency Distribution of the studied sample according to
Clinical data
Table (5) Total score of Schizophrenia quality of life (SQOL-18)
between pre assessment, immediately and after one month
Table (6) Total score of scoring system of Learned Helplessness
scale between preassessment, immediately and after one
month
Table (7) Total score of Learned Helplessness scale between
preassessment, immediately and after one month
Table (8) Total score of scoring system about Recovery Assessment
Scale- Domains and Stage (RAS-DS) Pre-assessment, post-
assessment (immediately and after one month)
Table (9) Total score of Recovery Assessment Scale- Domains and
Stage (RAS-DS) Pre-assessment, post- assessment
(immediately and after one month)
Table (10) Total score of Empowerment Scale between pre-
assessment, immediately and after one month
Table (11) Total score of Positive and Negative Symptoms Scale
(PANSS) between pre-assessment, immediately and after
one month
Table (12) Total score of scoring system of Positive and Negative
Symptoms Scale (PANSS) between pre-assessment,
immediately and after one month
Table (13) Correlation between studied patients scores on different
study variables Pre assessment
Table (14) Correlation between studied patient’s scores on different
study variables Post Immediately
Table (15) Correlation between studied patient’s scores on different
study variables After one month
List of figures
Figures Page
Figures (1) Diagram of Learned Helplessness Theory.
List of Abbreviations
Abbreviation Full words
WHO World Health Organization
Abstract
Schizophrenia imposes a significant disability on people with suffering from and very often
unable to achieve life various goals. Schizophrenia is associated with a heterogeneous group of
symptoms that cause significant distress to their sufferers; affecting their interpersonal relations,
personal care, with its negative impact on patient’s quality of life and recovery. Empowerment
intervention is a core component of the recovery framework, together with connectedness, hope
and optimism about the future identity and meaning of life. Empowerment intervention is
strengthen the individual's competence, natural helping systems and proactive behaviors found to
be effective in promoting recovery and overcoming their illness-related disability. Therefore, this
study aimed at assesses the effect of empowerment intervention on helplessness, recovery and
quality of life among schizophrenic patients. A quasi-experimental research design [pretest -
posttest] was carried out between January 2021 and January 2022 involving 60 participants who
had been diagnosed with schizophrenia were chosen according to inclusion criteria, was
conducted at the inpatient and outpatient psychiatric department of the Mansoura University
Hospital. Method the instruments used for data collection was socio-demographic data sheet,
Learned Helplessness Scale, Schizophrenia Quality of Life-18, Recovery Assessment Scale-
Domains and Stages, Rogers Empowerment Scale and Positive and Negative Symptoms Scale.
These 60 participants were divided into ten groups, six participants in each group; each group
attended twelve sessions (3 sessions /week). Results revealed that there was statistical significant
difference in mean scores of helplessness, recovery, empowerment, quality of life and positive
and negative symptoms before and after Empowerment Intervention. To conclude, it is
concluded that, helplessness, recovery, empowerment, quality of life and positive and negative
symptoms of patients with schizophrenia improved significantly after Empowerment
Intervention. Recommendation: Further research on developing programs that are needed for a
better understanding of relation between Schizophrenia, Empowerment and to improve and self-
Empowerment levels of patients with Schizophrenia.
Introduction
Schizophrenia is a terrible and permanent mental illness. Individuals with
schizophrenia frequently experience a variety of deprivations, including poor
physical health, powerlessness, early death, severe functional disability, and low
quality of life (Law, 2017). 1% of the population is affected by schizophrenia
(World Health Organization [WHO], 2018).
Many people with schizophrenia are symptom-free, while others can have
quite productive lives. However, most of them will continue to have some function
impairment, and many will have frequent relapses or persistent levels of their
positive symptoms. Although the definition of symptom remission is clear, the
term "recovery" is more ambiguous and diffuse concept like productivity,
independence, and fulfilling relationships (Park & Sung, 2013).
Recovery is not connected to partial symptom improvements; rather, it is the
total or almost complete remission of psychiatric symptoms and impairments
(Hasan & Musleh, 2017). The development of daily well-being, which
encompasses environmental mastery, personal growth, life purpose, improved
autonomy, self-acceptance, and healthy interpersonal relationships, is one part of
rehabilitation (Eisenstadt, Monteiro, Diniz & Chaves, 2012; Slade et al., 2014).
Hope, accepting one's condition, taking responsibility for one's own health,
receiving the best care possible, and being in supportive surroundings have all been
found to be elements that support in these recovery (Soundy et al., 2015).
"Both subjective and objective methods have been used to assess the quality
of life (QoL) of people with schizophrenia. Subjective measurements of quality of
life (QoL) encompass general life satisfaction indicators and a variety of life
domains, including contentment with one's career, family, social relationships,
finances, and housing status. The socio-demographic data, role functioning in
society, and indicators of the external conditions of living are typically included in
the objective assessments of quality of life (Desalegn, Girma, & Abdeta, 2020).
Research Hypotheses
15
Overview about Schizophrenia
Definition of schizophrenia
Schizophrenia is one of the most common and serious forms of mental
illness and is often chronic, recurrent, disabling and debilitating an extreme
psychotic disorder that manifests as a variety of symptoms, including cognition,
perceptual, avolition, and affective disturbances as well as psychomotor
abnormalities (Carpenter & Tandon, 2013). It changes how people see reality and
has an impact on their overall wellness, productivity, autonomy, and subjective
well-being (Desalegn, Girma, Tessema, Yeshigeta & Kebeta, 2020).
Schizophrenia is a serious and persistent mental disorder and the 3rd leading
cause of worldwide disability among mental disorders across age groups. Although
the outcome of schizophrenia is not uniformly negative, only a minority of
individuals with first episode psychosis return to work or report being in a
relationship (Dondé et al., 2023). Schizophrenia is associated with deficiencies in a
number of cognitive functions that result in problems of abstract thinking and
make it difficult to deal with psychological and social challenges in daily life.
(Deshpande, Bhatia, Mohandas & Nimgaonkar, 2016).
Schizophrenia, one of the most devastating mental illnesses in the world, is
associated with recurrence, a high hospitalization rate, decreased capacity to work,
early death, and huge economic expenses on a global world. Schizophrenic patients
experience stigmatization, which leads to discrimination, and negatively affects
their access to housing, healthcare services, education, job, and social interactions.
Life expectancy and quality of life are impacted by schizophrenia. This may have a
big influence on society and people with schizophrenia (Mahmoud, Ali & Bassma,
2021).
Epidemiology of schizophrenia
According to Zwicker, Denovan-Wright, and Uher (2018), 1% of the world's
population has been diagnosed with schizophrenia, which means that over 21
million individuals experience schizophrenia illnesses at any given moment
(WHO, 2018). According to Orrico-Sánchez, López-Lacort, Muoz-Quiles,
Sanfélix-Gimeno & Dez-Domingo (2020) seven people out of every 1000 will
experience schizophrenia at some point in their lives. 12 million men and 9 million
women worldwide suffer from schizophrenia.
Schizophrenia is first manifests between the late teen years and the mid-30s.
The first psychotic episode often begins in men when they are in their early to
middle 20s, while it does in women when they are in their late 20s. Because
schizophrenia begins in women later than in men, the clinical symptoms are also
less severe in women. This might be as a result of estrogen's anti-dopaminergic
effects. Although the illness's initial five to ten years might be turbulent and
stormy, this time is typically followed by decades of somewhat stable symptoms
(though a return to baseline is unlikely) (APA, 2013).
Predisposing factors
There is no recognized exact etiology of schizophrenia. According to
studies, a person may be more susceptible to develp schizophrenia due to a mixture
of genetic, psychological, and environmental factor (Janoutová et al., 2016).
Biological Factors (hereditary)
It has been clear that certain families are seeing a rise in the occurrence of
schizophrenia almost since it was initially discovered. Others accepted the harmful
effects of the environment alone, while some maintained that only hereditary
elements are involved. The development of schizophrenia is now understood to be
predisposed by both hereditary and environmental factors. The heredity of
schizophrenia has been estimated to be up to 80% (Hosak, 2013).
Neuroanatomical factors
There are several generalized micro and macro neuroanatomical
abnormalities that are linked to schizophrenia disease. With significant cortical and
cerebellar atrophy, micro-abnormalities have also been seen. And macro
abnormality as, the cerebral lateral ventricles are often expanded, the third
ventricle is typically increased, and the amount of grey matter is generally
diminished, Amygdala and hippocampus volume loss in the temporal lobe is more
pronounced on the left side. Monozygotic twins with one twin suffering from
schizophrenia had a smaller total brain capacity (Castle & Buckley, 2011).
Neurotransmitters factors (Biochemical)
Multiple biochemical pathways likely contribute to schizophrenia, which is
why detecting one particular abnormality is difficult. Based mostly on how patients
react to psychoactive substances, a variety of neurotransmitters have been
connected to this condition. Common neurotransmitters implicated in the reason of
schizophrenia include dopamine, serotonin, norepinephrine, GABA, and glutamate
(Ayano, 2016).
Psychological factors
Sigmund Freud
A conflict between the id, ego, and superego results from the patient's
extremely traumatic childhood experiences, according to the psychodynamic
interpretation. Regression to the initial phases of psychosexual stages or obsession
comes from this conflict if it is not resolved. In particular, basic narcissism, a
period of the oral development where the ego was still attached to the id, is linked
to schizophrenia. The person thus ceases to function according to the reality
principle (Kline, 2013).
Theories of psychoanalysis
According to Sullivan, schizophrenia is a disorder of interpersonal
relationships and described that schizophrenia is an appropriate strategy used to
avoid panic, horror, and the dissolution of the sense of self. The patient's extreme
anxiety causes a sense of relatedness that is transformed into parataxis
abnormalities, which are typically persecutory but not always. Throughout
development, accumulating experiencing traumas have been the cause of
pathological anxiety. That adaptation problems and ongoing stress were the two
main causes of schizophrenia (Sullivan, 2013).
Schizophrenia often affects persons born at the end of winter and beginning
of spring. Winter is the high season for influenza and other acute respiratory tract
infections (a flu epidemic) (Martínez-Ortega et al., 2011; Schwartz, 2011).
Influenza virus infection during pregnancy is a known risk factor for
neurodevelopmental abnormalities in the offspring, including the risk of
schizophrenia (Landreau et al., 2012).
The fact that sunlight supplies the body with about 90% of the necessary
vitamin D is very significant. Lack of the vitamin (D) can cause insufficient fetal
growth factor in pregnant women, which can harm the fetus's brain growth.
Neonatal vitamin D concentrations are linked to increased risk of schizophrenia in
both high and low levels and concentrations (McGrath, Saha, Chant & Welham,
2008).
The risk of schizophrenia is around twofold for those born in cities or urban;
the higher the population density, the greater the risk. According to Szöke et al.
(2014), excessive noise, crime, pollution, stress, the availability of illegal drugs,
family dissolution, and other unfavorable aspects of the urban lifestyle may all
have a role in the development of schizophrenia.
Infection
The evidence suggesting an infectious cause of the illness is generally
circumstantial and indirect. It cannot, however, be disregarded. Bacterial,
protozoal, and viral infections are the causes of acute and subacute alterations
(Flegr et al., 2014; Konat, 2016).
A) Minimum of two (or more) of the items listed below must each be
present throughout the majority of a given month (or less if successfully treated).
(1), (2), or (3) must apply to at least one of the following:
Delusions.
Hallucinations.
Disorganized speech (e.g., frequent derailment or incoherence).
Grossly disorganized or catatonic behavior.
Negative symptoms (i.e., diminished emotional expression or avolition).
B) For a significant portion of the time since the onset of the disturbance,
level of functioning in one or more major areas, such as work, interpersonal
relations, or self-care, is markedly below the level achieved prior to the onset (or
when the onset is in childhood or adolescence, there is failure to achieve expected
level of interpersonal, academic, or occupational functioning).
Learned Helplessness
Overview
It is generally known that people with schizophrenia might struggle with
intense emotions of helplessness and powerlessness as well as a fragile sense of
wellbeing. Studies of the connections between helplessness, powerlessness, and
characteristics of the illness in schizophrenia have concentrated on the positive
symptoms. More extreme levels of positive symptoms are associated with higher
levels of subjective discomfort, indicating that severe symptomatology is
inherently disabling and causes emotions of powerlessness and helplessness
(Lysaker, Clements, Wright, Evans & Marks, 2001; Sharp, J. G., Sharp, J. C. &
Young 2020).
According to Kilday, 2013, apparent loss of hope has also been observed in
mental patients. When a hospital caught fire, some patients had to be forcibly
removed from the building because they would have stayed and died rather than
escape the fire. This failure to escape from something that should be considered
harmful when given the opportunity is learned helplessness.
This idea supported before by (Seligman & Maier, 1967), when describe the
idea of "learned helplessness" is widely accepted in both experimental and clinical.
The failure of certain experimental animals to avoid or escape shock when given
the chance to do so after prior exposure to inescapable shock is where the notion
initially appeared.
Since then, the phrase has come to refer to people's inability to find, use, or
acquire adaptive procedural actions, which is particularly pronounced in mental ill
people who appear to have given up on the idea of being able to effectively
manage significant environmental events and situation by voluntary action
(Seligman, 1975).
The causes of helplessness and its (unfavorable) effects are still not fully
understood scientifically. This is partly because the phrase is not consistently used
(Ziegler et al., 2020). When a person feels helpless, nothing they choose to do have
any impact on what is occurring. Following the idea that whatever a person
accomplishes doesn't matter, it is the quitting or giving up response that is in
consideration (Nuvvula, 2016).
People suffering from LH accept that bad things will take place and they will
have little control over them. Those who are exposed to complex problems for an
extended period learn that responses and events are unconnected. Learning attained
in this situation weakens imminent learning and leads to inactivity. Consequently,
they will be unsuccessful to resolve any concern even if there is a possible solution
for the concern (Mohanty, Pradhan & Jena, 2015).
A) Lack of Motivation:
In the first stage of the learned helplessness hypothesis, a loss in motivation
is defined as a reduced response to an escapable unpleasant stimuli following
exposure to an inescapable aversive stimulus (Maier & Seligman, 1976). When
offered the chance to avoid (prevent) shocks after being exposed to uncontrolled
shocks, participants not only fail to do so but also refuse to do so. Accordingly,
uncontrollability seems to impair the desire to engage in prophylactic action in
addition to preventing the development of escape behavior, as shown by Overmier
and Seligman (1967) In comparison to dogs that weren't first exposed to
unavoidable stimuli, dogs who were first exposed to unavoidable stimuli had a
harder time evading following avoidable shocks.
B) Lack of Cognition:
Even if a reaction is successful in ending an unpleasant stimulus, the
uncontrollability of the undesired behavior may prevent the responder from
understanding this. Cognitive deficit is the term used to describe this failure in one-
trial learning. The lack of one-trial learning is used by the authors as proof that
learning cannot occur for people who have previously seen an unavoidable
unpleasant stimuli with just one right answer. This is especially startling when you
realize that experimentally untrained individuals can learn from just one accurate
response (Maier & Seligman, 1976).
When later tested with escapable shocks within a shuttle box after having
previously been subjected to inescapable shocks, the dogs failed to exhibit escape
tendencies. The dogs were crated and trained to initiate a flight reaction by being
pulled from one end of the shuttle box to the other in order to lessen the impact of
the uncontrolled unpleasant stimuli. Although it took some time, this strategy was
successful in lessening the learned helplessness impact (Kilday, 2013).
C) Lack of Emotion:
A fear or terror reaction to the unpleasant stimuli is the end result of
uncontrolled unpleasant stimuli, known as emotional deficits. According to Maier
and Seligman (1976), a fear or terror response would persist in the face of
uncontrollable unpleasant stimuli until the subject discovers whether the
unpleasant stimulus is controlled or uncontrolled. Terror and fear-related physical
manifestations include loss of weight, stomach ulcer development, more
defecation, and excessive drinking. When the subject realizes they have control
over the aversive stimuli, their level of anxiety and fear decreases, which in turn
results in less general movement after an escape reaction. However, if the person
realizes they have no control over the unpleasant stimuli, anxiety may give way to
despair, which causes diminished response.
Quality of life (QoL), which evolved during the post-World War II time to
improve the post-war economic affluence and standards of living, is a
comprehensive view of health from a bio-psycho-social perspective. This point of
view developed out of a perceived need to build on the achievements of modern
medicine to better quality of life in the case of long-term severe illnesses.
Sociologists, whose population-based QoL research has a substantial impact on
social indices, discovered several broad concepts. Work, family, wealth, religion,
and the environment are some of the common areas of quality of life (QoL) that
have always been covered (Alshowkan, Curtis & White, 2015).
About 20% of those with schizophrenia tend to have a good path, and a tiny
percentage of those people reportedly make a full recovery. The idea of treatment
has changed, placing greater focus on patient viewpoints like quality of life.
Numerous aspects of functioning are impacted by schizophrenia; those who suffer
from the condition frequently live alone and marginally, have low incomes, limited
education, and poor social and occupational skills. Most people work at lower
levels, and the bulk of them only interact with people outside of their families
occasionally. Patients with schizophrenia are also more likely to experience
stigma, which reduces their quality of life and chances (Ayano, 2016).
Kennedy, Altar, Taylor, Degtiar & Hornberger (2014), found link between
lower QOL and schizophrenia. Schizophrenia is a progressive illness distinguished
by its devastating progression. High levels of functional impairment result in
missed pay, work deterioration, and other individual, social, and financial
consequences.
People with schizophrenia experience worse living circumstances and a
lower quality of life as a result of their current depressive and positive symptoms,
which are linked to struggles with finances, careers, relationships, and daily
functioning in clients who endure lengthy hospital stays, delayed recovery, and
subpar treatment outcomes, all of which significantly lower their quality of life
(de Pinho, Pereira, Chaves & Batista, 2018; de Almeida, Braga, Neto & de Mattos
Pimenta, 2013).
The improvement of quality of life and overall wellbeing is the "primary aim
of every government healthcare approach." The quality of life has been regarded as
a crucial element of functional success in any rehabilitation program. Healthy
living is only one aspect of high quality of life. The total of a person's physical,
social, emotional, spiritual, and occupational well-being may be represented by it
on an essential and important level (ElGhonemy, Meguid & Soltan, 2012).
The multifaceted notion of quality of life (QoL) was first seen as an addition
to the conventional ideas of functionality and healthy. An individual's functional,
social, physiological and psychological health would all be evaluated as part of a
perfect and comprehensive health assessment. As new technologies have either
increased QoL without extending life or have prolonged life, sometimes at the
price of QoL, this idea has gained greater traction in the field of health care and
intervention. Therefore, it is now necessary to evaluate health-related quality of life
(HRQoL), as measures of outcomes like mortality rates and life expectancy alone
are no longer sufficient (Karimi & Brazier, 2016).
PSYCHOLOGICAL DOMAIN
Psychiatric symptoms (e.g. LEVEL OF INDEPENDENCE
anxiety, depression, psychosis) Psychosocial dysfunction
PHYSICAL High level of unmet needs
Side effects of medication DOMAIN
Low self-efficacy Low number of daily activities
Physical
Low self-esteem Being admitted in a
symptoms
Perceived stigma psychiatric hospital
Many previous psychiatric
Negative coping
admissions
strategies Negative attitude
Alcohol abuse
toward antipsychotic
medication
Weak problem-solving
ENVIRONMENT
ability POOR
Unemployment
SUBJECTIE
QUALITY Dissatisfaction with work situation
OF LIFE Insufficient financial means
Meaningless leisure activities
SOCIAL RELATIONSHIPS Few leisure activities
Poor social support
Poor personal safety
Loneliness
Being a victim of crime
Unsatisfied amount of
contact with family members
Figure (2): Factors potentially impairing QoL in patients with schizophrenia grouped according
to the WHOQOL Group’s (1998) conception of QoL domains.
In order to assess the effectiveness of the care and therapies given to people
with schizophrenia, QoL evaluations have become crucial. A crucial component of
recovering from mental illness is taking a comprehensive perspective. Recovery is
the ability to have a fulfilling life, as determined by each individual, whether or not
they are experiencing symptoms. This comprehensive approach to treatment takes
into account all aspects of a person's quality of life, with a focus on a person's
strengths and a more upbeat attitude of psychiatric illness as schizophrenia
(Bradstreet & Mcbrierty, 2012).
Idea of therapy in mental health care needs to be replaced with the idea of
enhancing quality of life. Finding out how well they can improve the quality of life
for their users should be the major focus of evaluating mental health therapies,
especially rehabilitative interventions (Lehman, Ward & Linn, 1982; Gigantesco &
Giuliani, 2011).
From the nurses’ descriptions of nursing interventions which they use to
support patients’ QoL five main categories (empowering interventions, social
interventions, activating interventions, security interventions and interventions
related to care planning) were identified. Nurses who improve patients' quality of
life through empowering interventions were defined as taking acts that demonstrate
interest, engage in conversation, encourage, provide knowledge, uphold optimism,
and motivate. Social interventions were defined by nurses as supporting patients'
families, providing patients with chances for social interaction or to complete their
education, and setting up social support. Activating interventions, which are acts
where nurses do activities with patients, plan activities, provide chances for
patients to participate in activities, and direct patients to activities, were defined as
ways that nurses promote patients' quality of life (Pitkänen, 2010).
The idea of recovery in schizophrenia has been a crucial idea in the past 20
years when it comes to understanding and treating schizophrenia and other diseases
on the schizophrenia spectrum. Historically, "recovery" has been largely seen as a
result marked by symptom reduction or mitigation and enhancements in
functioning abilities. This perspective is based on the scientific model, which
emphasizes the symptomatic nature of mental diseases and the importance of
focused therapies to lower symptoms and limitations (Ahmed, Mabe & Buckley,
2011).
Since the second half of the 20th century, patient advocacy groups have
contested the notion that those who suffer schizophrenia are unable to lead
fulfilling lives. Even when psychotic symptoms are prolonged, recovery is
possible, according to patients (Bellack, 2006).
More lately and recently, a person's ability to take charge of their life and
making it individually significant and enjoyable has been identified as a sign of
recovery from psychiatric disorder (Roe, Mashiach-Eizenberg & Lysaker, 2011).
For those who are suffering with psychiatric illness, this idea of healing has the
capacity to inspire, empower, and strengthen realistic hope. However, given that
these definitions of recovery are framed within the framework of the industrialized
world, it is critical to comprehend how people in underdeveloped nations
experience schizophrenia recovery. Recovery is what individuals feel when they
are able to take control of their lives, live lives that are important and rewarding,
and feel a feeling of belonging in their specific society and/or culture (Nxumalo-
Ngubane, 2016).
Definition of Recovery:
Schizophrenia patients face considerable challenges and are frequently
unable to accomplish their goals in life. In mental health services across the world,
recovery has grown in importance as a component of treatment (Corrigan, Mueser,
Bond, Drake & Solomon, 2012). For schizophrenia, which has historically been
viewed as a disorder with a poor prognosis, recovery-oriented approaches have
become more popular. A personal and a clinical definition of recovery in
schizophrenia have been developed as a result of scientific and patient-based
influences (Slade, Amering & Oades, 2008).
Helen Glover reaffirmed her own journey toward recovery from mental
illness in an autobiographical essay. Glover was a teacher before she was given a
mental disorder diagnosis, but even after she fell ill, the Queensland Department of
Education felt unable to keep her on the job since she had been given a mental
illness diagnosis. She switched careers and became a social worker after
graduating, where she not only enjoyed helping those who were suffering from
mental illness but also saw it as a chance for her to heal as she engaged with
inspiring experts. Glover defined five developmental stages as a consequence of
her experience, and she thinks anyone going through the recovery process might
recognize them. Glover claims that the following are crucial in assisting survivors
to find direction in their life based on her experience (Glover, 2012):
1. From passive to an active sense of identity: The patient survivor has the
energy to use her power, talents, and effort in the healing process rather
than relying on the contribution and effort of others.
2. Moving from helplessness and despair to optimism: realizing there is
hope for the future rather than giving up.
3. Moving from being under the influence of others to taking individual
accountability and influence of one's actions instead of blaming people or
circumstances.
4. Using the previous to constructively impact the present or learning from
the past: from alienation to discovery.
5. Rather than isolating or being isolated as a result of living with a mental
illness, social participation and involvement with the rest of the
community as a citizen is preferred.
Principle of Recovery from Mental Illness as schizophrenia:
The following are the fundamental ideas in conquering any mental
condition, such schizophrenia (Shepherd, Boardman & Slade, 2008):
Whether or not there are persistent or recurrent symptoms or issues,
recovery is about creating a meaningful and fulfilling life, as determined
by the individual.
Recovering signifies a shift from pathologies, disease, and manifestations
to health, capabilities, and wellbeing.
The ability to perceive how one may have greater agency over one's life
and how others have overcome obstacles can both help people find hope,
which is essential to rehabilitation and recovery.
Self-management is promoted and made easier. Self-management
techniques are similar, yet what works for each person may be extremely
different. No situation is "one size fits all."
The expert-patient relationship between clinicians and service users
changes to one of coach and partner on a discovery journey. The role of
the clinician is to be "on tap, not on top."
Recovery does not occur in isolation. Involvement in meaningful and
gratifying social duties within one's local community, as opposed to
receiving treatment in a segregated setting, is strongly correlated with
recovery. In order to recover, a person must find or rediscover their sense
of self, which is distinct from their sickness or handicap.
Finding or regaining a sense of one's own identity that is distinct from
one's disease or handicap is a key component of recovery.
Family members and other allies are frequently essential to rehabilitation
and recovery, therefore it is best to work with them as partners whenever
feasible. Peer support is crucial to many people's rehabilitation and
recovery.
Modals of recovery:
Over the past few decades, it has been clear that therapies that just target the
symptoms of schizophrenia do not provide comprehensive treatment success, are
insufficient for successful employment, and do not foster positive interpersonal
interactions. Additional outcome measures, such as QoL, occupation, family,
leisure time, and other aspects of daily living, finances, and physical and mental
health, have been acknowledged as being pertinent for appropriate strategies in
schizophrenia (Juckel & Morosini, 2008).
The Substance Abuse and Mental Health Services Administration and the
American Psychiatric Nurses Association worked together on an endeavor to
change and transition recovery principles and attitudes to concrete recovery-
oriented practices as the model of mental nursing care provision (American
Psychiatric Nurses Association, 2011).
According to Lee, K. T., Lee, S. K., Lu, Hsieh & Liu (2021), significantly,
worldwide mental healthcare attempts to enhance recovery, and industrialized
nations have already created recovery programs and assessed their efficacy.
Additionally, mental health services need to be recovery-, human-, and
community-focused given that the degree of individual recovery might affect the
individuals with mental illnesses who live in the community. The recovery rates
for people with mental illnesses only ranged from 13.5 to 37.9%, according to
meta-analyses and follow-up research. In addition, a patient's recovery from
schizophrenia will lower medical expenses. Therefore, it is crucial to encourage
healing in those who are suffering from mental illnesses like schizophrenia.
Schizophrenia Management
Goals and objective for schizophrenia management:
Recent research have demonstrated that therapeutic interaction can speed
recovery from schizophrenia, which is a persistent and severe form of mental
disease marked by skewed perceptions, thoughts, and emotions. The use of therapy
can help someone's mindset, actions, attitudes, self-efficacy, emotional suffering,
and perceptions change. It is also seen to be essential to the healing process, giving
people with mental illnesses the knowledge and abilities to control their condition
(Hewitt & Coffey, 2005; Kopelowicz et al., 2008).
Early management must be holistic and specialized, with quick and simple
access to resources, planning for education and employment, and treatment of
coexisting conditions. Drug therapy, personal and community therapy, and family
psychosocial treatments as an empowerment intervention should all be included in
bio-psychosocial care plans (Nolin, Malla, Tibbo, Norman, & Abdel-Baki, 2016).
• Psychopharmacology
Antipsychotic medications, which stifle the positive symptoms, are the
foundation of therapy for schizophrenia. In both the acute and maintenance periods
of schizophrenia, antipsychotic medication is used to treat symptoms and prevent
recurrence (Huhn et al., 2019).
Cognitive Behavior Therapy can improve coping for patients with symptoms
that are drug-resistant and, in particular, reduce positive manifestation (Valencia,
Fresan, Juárez, Escamilla, & Saracco, 2013). While cognitive remediation and
integrated psychological therapy support neurocognitive, social, and global
functioning, psychological education can encourage treatment adherence and
independent living. One kind of non-pharmacological and psychosocial treatment
is empowerment (Matheson, Shepherd & Carr, 2014).
Empowerment
Patients with mental illnesses are more likely to heal when they feel
empowered. Finding a method to lead a fulfilling life despite symptoms has been
described as an individual journey in the recovery from mental illness. For those
with mental illnesses like schizophrenia, empowerment is seen to be crucial to this
process and entails gaining more influence over somebody's lives through
decision-making and being capable of going through on those decisions. This may
require developing knowledge and abilities (Sutton, Bejerholm & Eklund, 2019).
People with mental illnesses like schizophrenia who are empowered are
more at ease realistically teaching everyone else about their experiences,
viewpoints, and demands. The rest of the group seems to believe that individuals
with mental illnesses like schizophrenia would find it simpler to handle societal
concerns by self-advocacy if they are empowered. Some even suggested that
empowering one's identity would encourage one to be more forthcoming with one's
diagnosis (Fleming, 2015).
Empowerment Concept:
Today's culture of health and social services has evolved to include the idea
of empowerment as a common and highly appreciated component. The Latin term
"potere," which means "to be able," is where the idea of empowerment originates
(Grealish, 2014).
The idea of recovery and the empowerment concept have been intertwined
in mental health studies. It is related to a situation in which people actively
participate in daily tasks and communal life while also experiencing fewer
symptoms of their psychiatric illness and the related stigma. Patients with
psychiatric illnesses who are empowered will experience higher self-growth,
reclaim their independence, and live meaningful lives in the community while
having mental disorders (Aziz, Fadzil, Othman & Kueh, 2021).
Empowerment Paradigm
Through three cycles—the cycle of recovery, the cycle of healing, and the
spiral of development—which represents the increasing growth of a person's voice
and self, this paradigm offers a compelling vision of how to move from a position
of being excluded from society due to being labeled as mentally ill. The 12
Principles of Empowerment feed the cycle. This enables the individual to create
fulfilling connections, including those in love and at employment (figure 3)
(Fisher, 2017).
Figure (3): Empowerment Paradigm of Development, Healing and Recovery (Fisher,
2017).
In an effort to assist persons with schizophrenia feel that they are a part of
the healing process, empowerment intervention has been created (Shearer, 2009,
Warner, 2009). According to Rappaport (1997) a concept known as empowerment
connects personal skills and aptitudes, inborn support networks, and proactive
behaviors to social policy and societal change. In terms of health, empowerment
stresses enhancing one's perception of capacity to consciously engage in decisions
regarding one's health and healthcare.
Patients with schizophrenia who feel more empowered are better able to
manage their symptoms and have more control over their lives. Patients benefit
from empowerment in ways like enhanced quality of life and increased self-
confidence (Sibitz et al., 2011). On the other hand, disempowerment is the removal
of power from people, leaving them with a powerless, poor self-esteem, inability to
manage their lives, and a lower likelihood of success. Patients who are well
empowered by their own abilities tend to be more optimistic about their conditions,
feel more involved in their care, experience less helplessness, have less negative
mental symptoms, have higher quality of life, recover more quickly, and
experience fewer relapses (Elsherif, Badawy & Gado, 2022). Figure 4.
Figure 4: Potential impacts of empowerment intervention (Hasan & Musleh, 2017).
The Role of Mental Health and Diseases Nursing During Empowerment and
Recovery
Nursing interventions in psychiatric care can play a crucial role in this new
holistic vision of psychiatric treatment and patients' rehabilitation because nursing
places a strong emphasis on patients' reactions to their illnesses, their functional
adaptations, and their holistic requirements. In order to improve patients' quality of
life, psychiatric nurses adopt broad-based treatments. The core element of
psychiatric nursing is an interactive process in the nurse-patient relationship.
Because human relationships are important determinants of QoL, patient-nurse
relationships are also expected to enhance patients’ QoL. QoL provides a good and
broad view for this interpersonal relationship to discuss the patient’s individual
perceptions and needs and to let the patient to become a central player in his or her
care (Peplau 1994).
The nurses stated that in order to improve patients' quality of life, they built
a connection with them based on respect, dignity, and empowerment, listening to
their aspirations and desires, speaking up for and educating them, and assisting
them in creating their own QoL objectives. Patients' QoL was improved by
providing for their fundamental requirements, facilitating access to resources, and
treating symptoms. On the other hand, in a nurse-patient relationship, nurses may
improve patients' quality of life by nearly any nursing intervention, depending on
the patient's specific requirements (Pitkänen, 2010).
Before they begin their efforts, psychiatric nurses need to have a thorough
understanding of the types of challenges that people encounter and their goals.
Patients who feel understood develop therapeutic relationships with their nurses. A
crucial component of empowerment recovery is collaboration, which is a
component of the therapeutic method (Shanley & Jubb-Shanley, 2007).
Expecting to recover might be difficult for patients. As a result, the nurse-
patient relationship must be one of support and opportunity for growth. Restoring
hope requires adjusting to all losses in those with severe mental illness. Patients
who have previously lost their identities and responsibilities might get in touch
with others who have gone through a similar situation since they could feel alone.
Nurses must be aware of patients' perspectives as they relate to cultural
conventions during the healing process. The time the health professionals spend
with patients, and the quality of the relationship they build with them, is more
significant than any level of knowledge (Aston & Coffey, 2012).
Given the support they receive, patient relatives, who are an integral part of
the recovery process, may go unnoticed. It's possible for patient relatives to feel
helpless, alone, and isolated. In order to improve the quality of life for patient
relatives, nurses must include them in their care. The conduct of patients, their
desire for assistance, their interactions with nurses, and their ability to adjust to
therapy are all significantly influenced by the manners and attitudes of community.
A person loses trust in their own value if others do not believe in them and what
they are capable of. For hope to be restructured, support and assistance are crucial.
In order to foster a recovering atmosphere, nurses must work together to boost
hope. Patients should be motivated to make plans for the future, rearrange their
priorities, enhance and strength of their self, and form optimistic perspectives.
Nurses should work together as an interdisciplinary team to educate patients,
families, and society (Ryrie & Norman, 2013).
Research Design:
A quasi experimental research design [pretest - posttest] was used in the
current study.
Setting:
This study was conducted in the inpatient psychiatric department and the
outpatient clinics at the psychiatric department of Mansoura University Hospital.
The inpatient department and the outpatient clinics provide psychiatric care
for all patients with psychotic, neurotic disorders in addition to patients with
substance abuse. Most of the clinical services are provided for free of charge for
the majority of patients.
Population Target:
Patients diagnosed with Schizophrenia.
Sample Study:
A convenience sample of individuals with a diagnosis of schizophrenia was
used in this intervention. The study's sample size was 60 patients who complied
with the requirements listed below:
Inclusion criteria:
1. According to patient’s records, all clients diagnosed with schizophrenia met
the guidelines of the Diagnostic and Statistical Manual of Mental Disorders,
5th Edition.
2. Patients who are at least in the 2nd episodes.
3. Age from 18 to less than 60 years old.
4. Both sexes.
5. Able to communicate.
Exclusion criteria:
1. Schizoaffective disorders.
2. Psychotic disorder due to another medical condition.
3. Intellectual developmental disorder.
Six tools were used in the current study to collect relevant required collect data.
The total score ranged from 18 to 90 with a higher score indicating a better
quality of life. This tool demonstrated a good psychometric characteristic with
adequate reliability Cronbach’s alpha is .72–.84 in European countries (Boyer et
al., 2010) and .82 when translated into Arabic.
The PANSS scores for each component were determined by adding the
ratings for all of the component elements. Therefore, the possible ranges for the
subscales measuring positive and negative symptoms are each 7 to 49; however,
the subscale measuring general psychopathology has ranges of 16 to 112.
The positive and negative scales are scored according to the following categories:
Mild (7 to 21)
Moderate (21 to 35)
Severe (35 to 49).
The general psychological scale is broken into three categories:
Mild (16–48),
Moderate (48–80),
Severe (80–112).
The Cronbach's alpha value (Internal consistency) and criterion-related
validity were 0.77 (positive scale) and 0.77 (negative scale) and 0.52 with the
Clinical Global Impression scale (Kay, Opler & Lindenmayer, 1988).
Method
Administrative steps
Ethical Consideration
1. Informed oral consent was obtained from the schizophrenic patients before
conducting the study after clarifying the aim of the study and assuring them
about the confidentiality of the information.
4. The right to participate and to withdraw from the study was emphasized to
the participants.
5. All tools of data collection were coded to avoid declaration of any personal
information of sample information.
The tools' preparation:
2. Tool II (S-QoL-18), III (LHS), and IV (ES) were translated into the Arabic
language by the researcher.
3. The translated tools (II, III, and IV) were tested for content validity by five
experts in the field of psychiatric nursing and English language. They were
accepted as valid. Arabic translation was also double checked and corrected.
5. Pilot study was carried out during the month of September 2020 one month
before the data collection. Patients of the pilot study were excluded from the
main sample of the study.
6. Data collection was conducted during the period from January 2021 to
January 2022. Data was collected sequentially from inpatient and outpatient
clinics of Psychiatric Department at Mansoura University Hospitals.
Program Development:
The program was developed by the researcher after reviewing the relevant
literature. It aimed at enhancing helplessness, recovery and quality of life among
patients with schizophrenia.
Session content:
Session content:
Session content:
Defining of communication.
Identify Non-verbal communication instructions.
Express positive emotions and Express negative feelings.
Submit a positive request.
Illustrate how to be active listener.
Session content: People with schizophrenia should adopt the following healthy
behaviors to enhance their quality of life:
Quit smoking.
Maintain personal hygiene.
Maintain a healthy weight.
Be active.
Get enough sleep and Stay away from stress.
Objective: Identify the patients about anxiety and apply of relaxation technique to
reduce anxiety.
Session content:
Session content:
Session content:
Session content:
Session content:
Statistical Analysis:
Software called Statistical Package for the Social Sciences (SPSS) was used
to enter and evaluate the data (version 22).
Level of Significance:
The 5% level is the set threshold of significance for all statistical tests
(p-value).
When the likelihood of mistakes is less than 5% (p is less than 0.05), the
result is significance; when it is greater than 5%, the result is non-
significant (p is more than 0.05).
When the likelihood of inaccuracy is smaller than 0.1%, it is highly
significant (p is less than 0.001).
The significance of the results increases when the p-value is low.
Limitation of this study:
This study was done in a large period of time due to the beginning of the
spread of the Corona virus epidemic in 2020, the strict protective measures in all
health institutions, there was a difficult in completion data collection for different
periods.
Results
Part II: Relationships between pre assessment, immediately and after one month
of intervention according to studied variables (Table 5:12)
Total score of 44.58 ± 6.78 49.88 ± 6.55 52.71 ± 6.58 141.647 .000
schizophrenia quality
of life
Dimension of
schizophrenia quality
of life scale.
Self-esteem 5.23 ± 1.58 7.13 ± 1.22 8.64 ± 1.11 131.548 .000
dimension
resilience 7.90 ± 1.95 9.56 ± 1.89 10.81 ± 1.63 82.030 .000
dimension
Autonomy 5.08 ± 1.83 5.88 ± 1.60 6.33 ± 1.44 26.875 .000
dimension
Physical wellbeing 5.05 ± 1.65 6.20 ± 1.32 6.80 ± 1.16 54.840 .000
dimension
Family relationship 5.05 ± 2.44 5.56 ± 2.36 5.86 ± 2.40 14.265 .000
dimension
Friend relationship 3.1 ± 1.25 3.31 ± 1.26 3.45 ± 1.33 3.086 .053
dimension
Sentimental life 3.21 ± 1.87 4.08 ± 2.00 4.63 ± 2.04 30.159 .000
dimension
Psychological 9.91 ± 3.12 8.13 ± 2.81 6.66 ± 2.52 104.042 .000
wellbeing
dimension
Test: General Linear Model
Table (6): Total Score of scoring system of Learned Helplessness scale (LHS)
between pre-assessment, immediately and after one month (n=60):
Table (7): Total Score of Learned Helplessness scale (LHS) between pre-
assessment, immediately and after one month (n=60):
Table (8) Total Score of Recovery Assessment Scale- Domains and Stage
(RAS-DS) between Pre-assessment, post- assessment (immediately and after
one month) (n=60):
Total of recovery 70.07 ±11.62 90.25 ± 12.95 97.33 ± 12.85 165.821 .000**
assessment scale
Total Function recovery 13.25 ± 2.82 16.06 ± 2.73 17.55 ± 2.55 160.439 .000**
Total Personal recovery 36.98 ± 7.14 47.08 ± 6.90 50.11 ± 6.68 118.661 .000**
Total Clinical recovery 8.53 ± 1.85 14.06 ± 2.46 15.56 ± 2.67 153.695 .000**
Total Social recovery 11.30 ± 2.81 13.03 ± 2.74 14.10 ± 2.85 49.793 .000**
Table (11) Total score of Positive and Negative symptoms scale (PANSS)
between pre-assessment, immediately and after one month (n=60):
Pre- Immediately After one Test
assessment month
Mean ± SD Mean ± SD Mean ± SD F P
Table (12) Total Score of scoring system of positive and negative symptoms
scale (PANSS) between pre assessment, immediately and after one month
(n=60):
Total SQOL -.430-** .001 .674** .000 .160 .223 -.171- .191
Total Learned -.430-** .001 -.473-** .000 .111 .399 .178 .173
helplessness
Recovery .674** .000 -.473-** .000 .269* .037 -.340-** .008
assessment
Total .160 .223 .111 .399 .269* .037 -.248- .056
Empowerment
Total PANSS -.171- .191 .178 .173 -.340-** .008 -.248- .056
Discussion
Schizophrenia is a complex chronic mental illness characterized by
delusions, hallucination, or confusion in speech and behavior. Cognitive
impairment has been shown to affect global functions, leading to employment
difficulties and social withdrawal, which consequently influence their quality of
life and recovery and also affect the degree of recovery and necessitate long-term
continuous care (Lee et al., 2021).
In the present study the characteristics of studied patients revealed that more
than half of the total sample was at the age group between 30-45 years. This
outcome was in line with a report by Hamed, El-Bilsha, El-Atroni, and El Gilany
(2014) who stated that more than half of patients were between the ages of 30 and
50, and also agreement with Forma, Green, Kim, and Teigland (2020).
Majority of the patients in the present study were males. This result may be
due to their families with female patients not seeking help as a result of
stigmatization and may be related to the symptoms of schizophrenia stronger in
male than female so the male patient need hospitalization. This result was in
harmony with a study in Egypt by Mahmoud & Zaki (2015). This result also was
consistent with a study by Altun, Karakaş, Olçun, Polat (2018). On the other hand,
this result was not consistent with a study in Egypt by Ghanem, Gadallah, Meky,
Mourad & Kholy (2009). Also, Osuji & Onu (2019) reported that females were
more than males.
Only 11.6% of the analyzed sample had no formal education, while 48.4%
had some form of a diploma, secondary schooling, and technical training. This may
be because more than half of patients came from rural areas where higher
education receives less attention. Additionally, nearly half of their households have
more than four members, and the majority of them earn little income. An Egyptian
research that showed 14% of schizophrenia patients were illiterate and 40% had
secondary education corroborated this finding (Mahmoud, Berma, & Gabal, 2017).
Additionally, this outcome was consistent with an Egyptian research by Dewedar,
Harfush, and Gemeay (2018), which found that 9.2% of patients were illiterate and
44.2% of patients had just a secondary education.
According to the current study, 65% of participants were single with regard
to marital status. This outcome is attributed to (86.7%) the majority of patients age
group less than 45 years and this age of marriage and so being a patient with a
mental illness delaying the marriage related to the stigma of being a patient in a
mental health facility and due to more than half of the study sample living in a
rural region where everyone knows each other generated fear of stigma. This result
was congruent with a study with Altamura, Buoli, Pozzoli (2014) that showed that
majority of schizophrenic patients were not married. In contrast Shin, Fei, Yi,
Ruslan & Sharkawi (2020) in Malaysia contradicted that majority of patients with
schizophrenia were married.
Based on the findings of the current study, two thirds (66.7%) of the studied
samples were working. This finding may be the result of poor income and a need
for money to survive; patients in the present research made up 62.5% of their
income from work but working as farmers, drivers, and market vendors when
symptoms abated and absent. This result wasn’t agreeing with a study in Egypt by
Soliman, Mahdy & Fouad (2018) who stated that half of schizophrenic patients
were unemployed. In addition to another Egyptian study in Tanta by Harfush &
Gemeay (2017) revealed that more than half of schizophrenic patients were
unemployed.
More than half (51.7%) of the participants in the current research were from
rural areas, according to the study's findings. This finding may be construed as
indicating that rural areas frequently seek out elders for Traditional therapy, put off
obtaining psychiatric care, and have an adverse impact on mental health and due to
delay the psychiatric treatment caused chronicity of illness and need
hospitalization. This result was congruent with a study in Egypt by El-Monshed &
Amr (2020) who found that more than half of schizophrenic patients were from
rural area. In addition, this result was associated with Dutesco et al. (2018) who
mentioned that majority of patients with schizophrenia was from rural area. In
contrast to this result, Desalegn, Girma, & Abdeta (2020) in Southwest Ethiopia
contradicted that more than half of schizophrenic patients were from urban.
Only 15% of the participants were living alone, while 65% of the studied
sample was living with their parents. This may be explained by the fact that nearly
three-quarters of patients (73.3%) reported having insufficient money and that
more than half of patients (65%) were single. It may also be explained by the fact
that our parents are the people who look out for us and care for us the most. More
over half (56.7%) of the studied samples were parents who provided care to their
patients. Guedes de Pinho, Pereira, and Chaves (2018) observed that more than
half of patients lived with their families, which was consistent with this outcome.
Additionally, this outcome was supported by a research conducted in Egypt by
Mohammed & Ghaith (2019). In addition, this result was consistent with Henry &
Jombo (2015) who reported that majority of the sample were residing with their
family members.
This study found that about more than half (60%) of the studied sample
either disregarded personal hygiene or completed it with help. This outcome can be
as a result of the negative symptoms and busy all time because positive symptoms
as hallucination or delusion. According to an Egyptian research by El-Bilsha
(2019), more than half of schizophrenia patients disregard personal hygiene, and
this outcome was consistent with that finding.
The current study found that one-fourth of the patients had eating troubles,
such as refusal eating, anorexia, and eating with help, according to eating patterns.
This outcome could be attributed to the fact that approximately 55.8% of the
sample had delusion of persecution a false belief that food is poisoned. This result
was consistent with Al-maghraby, El-Bilsha, and El-Hadidy (2020), who reported
that more over one-third of the schizophrenia patients refused to eat.
The present study found that two third (66.7%) of the studied sample
experienced sleep disturbances, with fewer than 6 hours of sleep being the average.
This outcome might be the consequence of psychotic symptoms, which can
produce dread and worries that impair regular sleep patterns at night and perhaps
arise from hospitalization. This finding was in line with that of (Al-maghraby, El-
Bilsha, and El-Hadidy, 2020), who found that more than one third of schizophrenia
patients had sleeplessness. In the current study, 78.3% of participants report having
insomnia, whether it is early, late, or interrupted. These findings support Reeve,
Sheaves, and Freeman's (2019) finding that 50% of psychosis patients have
insomnia.
According to the current study, more than two thirds of patients had a
confirmed family history of mental illness. This outcome is a result of the
influence of hereditary and genetics factors, which are frequently a predisposing
factor for mental illness. This outcome was in line with that of (Kiwan et al.,
2020).
The majority of the studied sample (96.7%) had not physical illness, this
finding related to 86.7% of the studied sample less than 45 years old. These
findings agree with Al-maghraby, El-Bilsha, and El-Hadidy (2020).
According to duration of the disease, more than one third (43.3%) of the
studied samples were from 5 to 10 years, this result due to chronicity of the
schizophrenia and also related to 20% of the studied sample non-adherence to
medication and two third (66.7%)of the studied sample was interrupted to give the
treatment. This result supported by El-Bilsha (2019).
The present study revealed that, when it came to form of admission, more
than two thirds of patients were forcibly admitted to mental hospitals. This
outcome can be the result of ignorance of the condition and stigma-related anxiety.
This finding was in agreement with an Egyptian research by Ibrahim, Callaghan,
Mahgoub, El-Bilsha, and Michail (2015), which found that more than two thirds of
patients with mental illness were admitted involuntarily.
According to this study's findings, the majority of the sample often had
auditory hallucinations and persecution delusions. This outcome might be the
consequence of non-adherence to medication, which can lead to the worsening of
positive symptoms like hallucinations and delusions. This outcome was consistent
with research done in Egypt by (Sayied, Ahmed, 2017).
In the present study found lower in the quality of life among patients with
schizophrenia this result may be related to negative symptoms of schizophrenia
and the patient busy all time by positive symptoms and inability to live by normal
way and also frequent hospitalization, this finding supported by (Kennedy et al.,
2014).
In the same line, the study's findings therefore confirmed the null hypothesis
that intervention recipients would exhibit reduced helplessness both immediately
after the intervention and at the one-month after in terms of despair and recovery.
As a result, this would enhance quality of life, helplessness with show significance
statistical among the participants (Warner, 2009).
The present study showed that low in the recovery among schizophrenic
patients in pre-assessment, about low to moderate subjective feeling of recovery,
this result may be due to long term and chronicity of schizophrenia and also related
to frequent hospitalization and frequent relapses. And show significance statistical
improves recovery level immediately after intervention and one month after. This
result may be related to how empowered schizophrenic patients are linked to a
decrease in psychiatric symptoms, an increase in empowerment levels, and an
improvement in recovery score. It shows that helplessness counterbalances the
impact of schizophrenia knowledge on the hope, self confidence and self-esteem of
schizophrenic patients. This study agrees with (Pijnenborg, van Donkersgoed,
David & Aleman, 2013; Štrkalj Ivezić, Alfonso Sesar & Mužinić, 2017) he
reported that the meanings individuals give to their condition and the actual
therapy have an impact on how well psychological therapy and rehabilitation
treatments work.
Based on the findings of the current study, it can be concluded that regarding
our empowerment intervention is an organized, recovery-based intervention
conducted in 12 sessions in one month, three of which were weekly. This study is
the quasi experimental study that has examined helplessness recovery
empowerment intervention, which has investigated a wide array of outcomes. This
format of delivering intervention is less demanding and accessible and more
accepted by mentally ill patients. This study shows that the Empowerment
intervention was superior in decreasing individual helplessness and increasing
personal strength and empowerment, improving recovery rate, decreasing
psychiatric symptoms and improving quality of life.
Recommendation
Based on the results of the study, the following recommendations are suggested:
possible.
Future study needs to obtain qualitative data from many cases and reflect on
compliance.
Conduct a study with large sample size and longer follow up to investigate
schizophrenia.
Summary
Schizophrenia imposes a significant disability on people with suffering from
and very often unable to achieve life various goals. In about three-fourth of cases,
the course of schizophrenia has various phases including a remission phase which
with relapses and despite giving effective pharmacological treatments and
psychosocial interventions, less than 15% recovery rate is found. The concept of
empowerment as a process which accesses to information, knowledge and
developed skills, the ability to make decisions, developed individual strength,
participation in society and real control, hope, share decision making, community
approaches and stigma. Empowerment intervention is a core component of the
recovery framework, together with connectedness, hope and optimism about the
future identity and meaning of life. Empowerment is an appropriate treatment goal
for psychosis to enhance quality of life and helplessness. Empowerment
intervention is strengthen the individual's competence, natural helping systems and
proactive behaviors found to be effective in promoting recovery and overcoming
their illness-related disability.
The aim of this study was to assess the effect of Empowerment intervention on
helplessness, recovery and quality of life among patients with schizophrenia.
A quasi experimental research design was used in the study. The study was
conducted at the In-patient and out-patients of Psychiatric Department of
Mansoura University Hospital.
They were chosen according to hospital reports and patient’s records, all
clients diagnosed with schizophrenia met the guidelines of the Diagnostic and
Statistical Manual of Mental Disorders, 5th Edition. With inclusion criteria:
Scoring system:
The PANSS scores for each component were determined by adding the
ratings for all of the component elements. Therefore, the possible ranges for the
subscales measuring positive and negative symptoms are each 7 to 49; however,
the subscale measuring general psychopathology has ranges of 16 to 112.
The positive and negative scales are scored according to the following
categories:
Mild (7 to 21)
Moderate (21 to 35)
Severe (35 to 49).
Both positive and negative symptoms were covered by this.
The general psychological scale is broken into three categories:
Mild (16–48),
Moderate (48–80),
Severe (80–112).
As far the actual study, the actual study was conducted during a period from
the first of January 2021 to the January 2022. It went through three phases:
1-Assessment Phase
Ethical approval was obtained from the Research Ethics Committee of
Faculty of Nursing, Mansoura University.
Official permission was obtained from the Head of Psychiatric Department.
The patient’s privacy was respected and protected. Patients were informed
that data confidentiality was assured and maintained.
The researcher met with the participants, introduced herself, and explained
to them the aim of the study to obtain their consent to participate in the
study, gain their cooperation and confidence.
The subject was interviewed individually before applying the planned
program to collect the baseline data using all study tools.
The researcher started to fill-out the questionnaire from the participants
through individual interviewing until reached the total number. The
researcher read and explained each item to the participants and recorded
their responses to each item. This interview took about 25 to 30 minutes.
The objective of the program was to helping patients become more
knowledgeable and allowing them to take control over their symptoms,
dealing with disease and treatment. Another important nuance is that patient
empowerment can go beyond the healthcare context, and also enter the
realm of everyday life (development of self-esteem and coping skills).
Empowering patients can enable them to take more responsibility for
managing their health and encourage self-management activities.
The program also provides these patients good communication and assertive
communication, solving the problem and decision making to enhance their
QOL and recovery. Also, learn them about anxiety and how deal with the
stress by learning them the relaxation technique.
3-Evaluation phase
Immediately and after one month evaluate for participants by tools (tool II
(S-QOL-18), tool III (LHS), tool IV (ES), tool V (RAS-DS) and tool VI
(PANSS)).
Data were analyzed using SPSS (statistical package for social science)
software version 22.
Conclusion:
Based on the findings of the present study, this study revealed that the
empowerment intervention was superior in decreasing individual helplessness,
improving recovery rate, decreasing psychiatric symptoms and improving quality
of life. This study has also demonstrated that intervention content and method of
its delivery was acceptable and can be easily carried out by psychiatric outpatient
clinics. The study revealed the possibility of including empowerment interventions
as a part of an inclusive psychosocial intervention. Also, this study indicated that
the empowering intervention was an effective intervention when integrated with
treatment as usual.
Recommendation:
suggested:
Agius, M., Goh, C., Ulhaq, S., & McGorry, P. (2010). The staging model in
schizophrenia, and its clinical implications. Psychiatria Danubina, 22(2),
211-220.
Alshowkan, A., Curtis, J., & White, Y. (2015). Factors affecting the quality of life
for people with schizophrenia in Saudi Arabia: a qualitative study.
Altun, Ö. Ş., Karakaş, S. A., Olçun, Z., Polat, H. (2018). An investigation of the
relationship between schizophrenic patients' strength of religious faith
and adherence to treatment. Achieves of Psychiatric Nursing, 32:62-65.
Andresen, R., Caputi, P., & Oades, L. (2006). Stages of recovery instrument:
development of a measure of recovery from serious mental
illness. Australian & New Zealand Journal of Psychiatry, 40(11-12),
972-980.
Andresen, R., Oades, L., & Caputi, P. (2003). The experience of recovery from
schizophrenia: towards an empirically validated stage model. Australian
& New Zealand Journal of Psychiatry, 37(5), 586-594.
Andresen, R., Oades, L. G., & Caputi, P. (2011). Psychological recovery: Beyond
mental illness. John Wiley & Sons.
Anthony, W. A. (1993). Recovery from mental illness: the guiding vision of the
mental health service system in the 1990s. Psychosocial rehabilitation
journal, 16(4), 11.
Aston, V., & Coffey, M. (2012). Recovery: what mental health nurses and service
users say about the concept of recovery. Journal of Psychiatric and
Mental Health Nursing, 19(3), 257-263.
Barbic, S., & Krupa, T. (2007). The effectiveness of the Recovery Workbook as a
psychoeducation intervention for facilitating recovery in persons with
serious mental illness.
Barker, P. (2003). The Tidal Model: Psychiatric colonization, recovery and the
paradigm shift in mental health care. International Journal of Mental
Health Nursing, 12(2), 96-102.
Barrett, B., Young, M. S., Teague, G. B., Winarski, J. T., Moore, K. A., &
Ochshorn, E. (2010). Recovery orientation of treatment, consumer
empowerment, and satisfaction with services: a mediational model.
Psychiatric Rehabilitation Journal, 34(2), 153.
Bateson, G., Jackson, D. D., Haley, J., & Weakland, J. (1956). Toward a theory of
schizophrenia. Behavioral science, 1(4), 251-264.
Boevink, W., Kroon, H., Delespaul, P., & Van Os, J. (2016). Empowerment
according to persons with severe mental illness: development of the
Netherlands empowerment list and its psychometric properties. Open
Journal of Psychiatry, 7(1), 18-30.
Bourdeau, G., Lecomte, T., & Lysaker, P. H. (2015). Stages of recovery in early
psychosis: Associations with symptoms, function, and narrative
development. Psychology and Psychotherapy: Theory, Research and
Practice, 88(2), 127-142.
Boyer, L., Baumstarck, K., Boucekine, M., Blanc, J., Lancon, C., & Auquier, P.
(2013). Measuring quality of life in patients with schizophrenia: an
overview. Expert review of pharmacoeconomics & outcomes research,
13(3), 343-349.
Boyer, L., Simeoni, M. C., Loundou, A., D'Amato, T., Reine, G., Lancon,C.,
Auquier, P. (2010). The development of the S-QoL 18: a shortened
quality of life questionnaire for patients with schizophrenia. Schizophr.
Res., 121 (1-3), 241-250.
Brohan, E., Elgie, R., Sartorius, N., Thornicroft, G., & GAMIAN-Europe Study
Group. (2010). Self-stigma, empowerment and perceived discrimination
among people with schizophrenia in 14 European countries: The
GAMIAN-Europe study. Schizophrenia research, 122(1-3), 232-238.
Çam, O., & Yalçıner, N. (2018). Mental illness and recovery. Journal of
Psychiatric Nursing, 9(1), 55-60.
Caqueo-Urízar, A., Boyer, L., Boucekine, M., & Auquier, P. (2014). Spanish
cross-cultural adaptation and psychometric properties of the
Schizophrenia Quality of Life short-version questionnaire (SQoL18) in 3
middle-income countries: Bolivia, Chile and Peru. Schizophrenia
research, 159(1), 136-143.
Castle, D., & Buckley, P. (2011). Schizophrenia (2nd Ed.). United Kingdom:
Oxford University Press.
Chong, H. Y., Teoh, S. L., Wu, D. B. C., Kotirum, S., Chiou, C. F., &
Chaiyakunapruk, N. (2016). Global economic burden of schizophrenia: a
systematic review. Neuropsychiatric disease and treatment, 12, 357.
Choo, C. C., Chew, P. K., Ho, C. S., & Ho, R. C. (2017). Prediction of quality of
life in Asian patients with schizophrenia: A cross-sectional pilot study.
Frontiers in psychiatry, 8, 198.
Chou, K. R., Shih, Y. W., Chang, C., Chou, Y. Y., Hu, W. H., Cheng, J. S., ... &
Hsieh, C. J. (2012). Psychosocial rehabilitation activities, empowerment,
and quality of community-based life for people with schizophrenia.
Archives of psychiatric nursing, 26(4), 285-294.
Clarke, S., Oades, L. G., & Crowe, T. P. (2012). Recovery in mental health: a
movement towards well-being and meaning in contrast to an avoidance
of symptoms. Psychiatric Rehabilitation Journal, 35(4), 297.
Copic, V., Deane, F. P., Crowe, T. P., & Oades, L. G. (2011). Hope, meaning and
responsibility across stages of recovery for individuals living with an
enduring mental illness. The Australian Journal of Rehabilitation
Counselling, 17(2), 61-73.
Corrigan, P. W., Mueser, K. T., Bond, G. R., Drake, R. E., & Solomon, P. (2012).
Principles and practice of psychiatric rehabilitation: An empirical
approach. Guilford press.
Corrigan, P. W., Rafacz, J., & Rüsch, N. (2011). Examining a progressive model of
self-stigma and its impact on people with serious mental illness.
Psychiatry research, 189(3), 339-343.
Corrigan, P. W., Salzer, M., Ralph, R. O., Sangster, Y., & Keck, L. (2004).
Examining the factor structure of the recovery assessment
scale. Schizophrenia bulletin, 30(4), 1035-1041.
De Almeida, J. G., Braga, P. E., Neto, F. L., & de Mattos Pimenta, C. A. (2013).
Chronic pain and quality of life in schizophrenic patients. Revista
Brasileira de Psiquiatria, 35(1), 13-20.
De Almeida, J. L., Zuppo, I. D. F., Castel, S., Reis, E. A., de Oliveira, H. N., &
Ruas, C. M. (2020). Health-related quality of life in patients treated with
atypical antipsychotics. Brazilian Journal of Psychiatry, 42, 599-607.
Deegan, P. (1996). Recovery as a journey of the heart. Psychiatric rehabilitation
journal, 19(3), 91.
Demoz, Z., Legesse, B., Teklay, G., Demeke, B., Eyob, T., Shewamene, Z., &
Abera, M. (2014). Medication adherence and its determinants among
psychiatric patients in an Ethiopian referral hospital. Patient preference
and adherence, 8, 1329.
Desalegn, D., Girma, S., & Abdeta, T. (2020). Quality of life and its association
with psychiatric symptoms and socio-demographic characteristics among
people with schizophrenia: a hospital-based cross-sectional study. PloS
one, 15(2), e0229514.
Desalegn, D., Girma, S., Tessema, W., Yeshigeta, E., & Kebeta, T. (2020). Quality
of Life and Associated Factors among Patients with Schizophrenia
Attending Follow-Up Treatment at Jimma Medical Center, Southwest
Ethiopia: A Cross-Sectional Study. Psychiatry journal, 2020.
Dipiro, J. T., Talbert, R. L., Yee, G. C., Matzke, G. R., Wells, B. G., & Posey, L.
M. (2014). Pharmacotherapy: a pathophysiologic approach, ed.
Connecticut: Appleton and Lange, 4, 141-142.
Dondé, C., Kantrowitz, J. T., Medalia, A., Saperstein, A. M., Balla, A., Sehatpour,
P., ... & Javitt, D. C. (2023). Early auditory processing dysfunction in
schizophrenia: mechanisms and implications. Neuroscience &
Biobehavioral Reviews, 105098.
Dorrington, S., Zammit, S., Asher, L., Evans, J., Heron, J., & Lewis, G. (2014).
Perinatal maternal life events and psychotic experiences in children at
twelve years in a birth cohort study. Schizophrenia research, 152(1),
158-163.
Durgoji, S., Muliyala, K. P., Jayarajan, D., & Chaturvedi, S. K. (2019). Quality of
life in Schizophrenia: What is important for persons with Schizophrenia
in India?. Indian journal of psychological medicine, 41(5), 420-427.
Durmaz, H., & Okanlı, A. (2014). Investigation of the effect of self-efficacy levels
of caregiver family members of the individuals with schizophrenia on
burden of care. Archives of Psychiatric Nursing, 28(4), 290-294.
Duțescu, M. M., Popescu, R. E., Balcu, L., Duica, L. C., Strunoiu, L. M.,
Alexandru, D. O., & Pîrlog, M. C. (2018). Social Functioning in
Schizophrenia Clinical Correlations. Current Health Sciences Journal,
44(2), 151–156. Retrieved from https://doi.org/10.12865/CHSJ.44.02.10.
Eisenstadt, P., Monteiro, V. B., Diniz, M. J., & Chaves, A. C. (2012). Experience
of recovery from a first‐episode psychosis. Early intervention in
psychiatry, 6(4), 476-480.
ElGhonemy, S. H., Meguid, M. A., & Soltan, M. (2012). Quality of life among
Egyptian patients with schizophrenia disorder, impact of
psychopathology. Middle East Current Psychiatry, 19(3), 142-148.
Emsley, R., Chiliza, B., & Asmal, L. (2013). The evidence for illness progression
after relapse in schizophrenia. Schizophrenia research, 148(1-3), 117-
121.
Eticha, T., Teklu, A., Ali, D., Solomon, G., Alemayehu, A. (2015). Factors
associated with medication adherence among patients with schizophrenia
in Mekelle, Northern Ethiopia. PLoS One, 10(3):e0120560. Laks J,
editor; [cited 2017 Jun 18]. Retrieved from
https://doi.org/10.1371/journal.pone.0120560.
Fatani, B. Z., Aldawod, R., Alhawaj, A., Alsadah, S., Slais, F. R., Alyaseen, E.
N., ... & Qassaim, Y. A. (2017). Schizophrenia: etiology,
pathophysiology and management-a review. The Egyptian Journal of
Hospital Medicine, 69(6), 2640-2646.
Fisher, D., & Spiro, L. (2010). Finding and using our voice: How
consumer/survivor advocacy is transforming mental health care. Mental
health self-help: Consumer and family initiatives, 213-233.
Flegr, J., Priplatova, L., Hampl, R., Bicikovia, M., Ripova, D., & Mohr, P. (2014).
Difference of neuro-and immunomodulatory steroids and selected
hormone and lipid concentrations between Toxoplasma-free and
Toxoplasma-infected but not CMV-free and CMV-infected schizophrenia
patients. Neuroendocrinology Letters, 35(1), 20-27.
Fleming, K. C. (2015). Finding a story for ending mental health stigma (Doctoral
dissertation, Colorado State University).
Forchuk, C. (1991). Peplau's theory: Concepts and their relations. Nursing Science
Quarterly, 4(2), 54-60.
Forma, F., Green, T., Kim, S., Teigland, C. (2020). Antipsychotic Medication
Adherence and Healthcare Services Utilization in Two Cohorts of
Patients with Serious Mental Illness. Clinico Economics and Outcomes
Research, 12, 123–132.
Friedman, J. I., Kanellopoulou, I., Novakovic, V., Albert, J. S., & Wood, M. W.
(2012). The cholinergic hypothesis: an introduction to the hypothesis and
a short history. Targets and Emerging Therapies for Schizophrenia.
Hoboken, New Jersey: A John Wiley & Sons, Inc., Publication, 295-318.
Fu, S., Czajkowski, N., Rund, B. R., & Torgalsbøen, A. K. (2017). The
relationship between level of cognitive impairments and functional
outcome trajectories in first-episode schizophrenia. Schizophrenia
Research, 190, 144-149.
Fujimaki, K., Morinobu, S., Yamashita, H., Takahashi, T., & Yamawaki, S.
(2012). Predictors of quality of life in inpatients with schizophrenia.
Psychiatry research, 197(3), 199-205.
Gigantesco, A., & Giuliani, M. (2011). Quality of life in mental health services
with a focus on psychiatric rehabilitation practice. Annali dell'Istituto
superiore di sanita, 47, 363-372.
Gomes, E., Bastos, T., Probst, M., Ribeiro, J. C., Silva, G., & Corredeira, R.
(2016). Quality of life and physical activity levels in outpatients with
schizophrenia. Brazilian Journal of Psychiatry, 38, 157-160.
Grealish, A., Tai, S., Hunter, A., & Morrison, A. P. (2013). Qualitative exploration
of empowerment from the perspective of young people with
psychosis. Clinical psychology & psychotherapy, 20(2), 136-148.
Hamed, Sh., El-Bilsha, M., El-Atroni, M., & El Gilany, A. (2014). Effect of stigma
on self-esteem and treatment compliance among mentally ill patients and
their family caregivers. Mansoura University, Unpublished Master
Thesis.
Hewitt, J., & Coffey, M. (2005). Therapeutic working relationships with people
with schizophrenia: Literature review. Journal of advanced nursing,
52(5), 561-570.
Holubova, M., Prasko, J., Latalova, K., Ociskova, M., Grambal, A., Kamaradova,
D., ... & Hruby, R. (2016). Are self-stigma, quality of life, and clinical
data interrelated in schizophrenia spectrum patients? A cross-sectional
outpatient study. Patient preference and adherence, 10, 265.
Huang, J., Zhao, L., Sergent, J. D., & Neuhengen, J. (2014). Measurement
Equivalence of the Rogers' Empowerment Scale for White and Black
Persons with Severe Mental Illness Scott B. Morris Illinois Institute of
Technology.
Huhn, M., Nikolakopoulou, A., Schneider-Thoma, J., Krause, M., Samara, M.,
Peter, N. et al. (2019). Comparative efficacy and tolerability of 32 oral
antipsychotics for the acute treatment of adults with multi-episode
schizophrenia: a systematic review and network meta-analysis. Lancet,
394(10202):939–51. Retrieved from https://doi.org/10.1016/s0140 -
6736(19)31135 -3.
Hsiao, C. Y., Lu, H. L., & Tsai, Y. F. (2018). Effect of family sense of coherence
on internalized stigma and health‐related quality of life among
individuals with schizophrenia. International journal of mental health
nursing, 27(1), 138-146.
Ibrahim, N., Callaghan, P., Mahgoub, N., El-Bilsha, M., Michail, M. (2015).
Investigating the Impact of the Strengths-Based Service Delivery Model
on References 145 Adults diagnosed with Severe Mental Illness in Egypt.
Biomedicine and Nursing, 1(2): 1-10]. (ISSN: 1545-0740). Retrieved
from http://www.nbmedicine.org.
İpçi, K., Yildiz, M., İncedere, A., Kiras, F., Esen, D., & Gürcan, M. B. (2020).
Subjective recovery in patients with schizophrenia and related factors.
Community mental health journal, 56(6), 1180-1187.
Jacobson, N., & Greenley, D. (2001). What is recovery? A conceptual model and
explication. Psychiatric services, 52(4), 482-485.
Jaiswal, A., Carmichael, K., Gupta, S., Siemens, T., Crowley, P., Carlsson, A., ...
& Brown, N. (2020). Essential elements that contribute to the recovery of
persons with severe mental illness: a systematic scoping study. Frontiers
in psychiatry, 11.
Janoutová, J., Janáčková, P., Šerý, O., Zeman, T., Ambroz, P., Kovalová, M., ... &
Janout, V. (2016). Epidemiology and risk factors of schizophrenia.
Neuroendocrinology Letters, 37(1), 1-8.
Juckel, G., & Morosini, P. L. (2008). The new approach: psychosocial functioning
as a necessary outcome criterion for therapeutic success in
schizophrenia. Current Opinion in Psychiatry, 21(6), 630-639.
Kao, C. C., & Huang, H. M. (2014). A comparison of the quality of life of patients
with schizophrenia in daycare and homecare settings. Journal of Nursing
Research, 22(2), 126-135.
Karimi, M., & Brazier, J. (2016). Health, health-related quality of life, and quality
of life: what is the difference?. Pharmacoeconomics, 34(7), 645-649.
Kay, S. R., Fiszbein, A., & Opler, L. A. (1987). The positive and negative
syndrome scale (PANSS) for schizophrenia. Schizophrenia
bulletin, 13(2), 261-276.
Kay, S. R., Opler, L. A., & Lindenmayer, J. P. (1988). Reliability and validity of
the positive and negative syndrome scale for schizophrenics. Psychiatry
research, 23(1), 99-110.
Keepers, G. A., Fochtmann, L. J., Anzia, J. M., Benjamin, S., Lyness, J. M.,
Mojtabai, R., ... & (Systematic Review). (2020). The American
Psychiatric Association practice guideline for the treatment of patients
with schizophrenia. American Journal of Psychiatry, 177(9), 868-872.
Kennedy, J. L., Altar, C. A., Taylor, D. L., Degtiar, I., & Hornberger, J. C. (2014).
The social and economic burden of treatment-resistant schizophrenia: a
systematic literature review. International clinical psychopharmacology,
29(2), 63-76.
Kim, E. M. & Suh, M.j. (2005). A study on the relationship between learned
helplessness and self-care agency dialysis patients. Seoul, South Korea:
Seoul National University.
Kiwan, N., Mahfoud, Z., Ghuloum, S., Chamali, R., Yehya, A., Hammoudeh, S., ...
& Al-Amin, H. (2020). Self-reported sleep and exercise patterns in
patients with schizophrenia: A cross-sectional comparative
study. International journal of behavioral medicine, 27(4), 366-377.
Kline, P. (2013). Fact and Fantasy in Freudian Theory (RLE: Freud). Routledge.
Kopelowicz, A., Ventura, J., Liberman, R. P., & Mintz, J. (2008). Consistency of
Brief Psychiatric Rating Scale factor structure across a broad spectrum of
schizophrenia patients. Psychopathology, 41(2), 77-84.
Kornhaber, R., Walsh, K., Duff, J., & Walker, K. (2016). Enhancing adult
therapeutic interpersonal relationships in the acute health care setting: an
integrative review. Journal of multidisciplinary healthcare, 9, 537.
Lam, M. M., Pearson, V., Ng, R. M., Chiu, C. P., Law, C. W., & Chen, E. Y.
(2011). What does recovery from psychosis mean? Perceptions of young
first-episode patients. International Journal of Social Psychiatry, 57(6),
580-587.
Landreau, F., Galeano, P., Caltana, L. R., Masciotra, L., Chertcoff, A., Pontoriero,
A., ... & Savy, V. L. (2012). Effects of two commonly found strains of
influenza A virus on developing dopaminergic neurons, in relation to the
pathophysiology of schizophrenia. PloS one, 7(12), e51068.
Law, H., & Morrison, A. P. (2014). Recovery in psychosis: a Delphi study with
experts by experience. Schizophrenia bulletin, 40(6), 1347-1355.
Lawrence, R. E., First, M. B., & Lieberman, J. A. (2015). Schizophrenia and other
psychoses. Psychiatry, 1, 791-856.
Leamy, M., Bird, V., Le Boutillier, C., Williams, J., & Slade, M. (2011).
Conceptual framework for personal recovery in mental health: systematic
review and narrative synthesis. The British Journal of Psychiatry, 199(6),
445-452.
Lee, K. T., Lee, S. K., Lu, M. J., Hsieh, W. L., & Liu, W. I. (2021). Mediating
effect of empowerment on the relationship between global function and
personal recovery among community-dwelling patients with
schizophrenia: a cross-sectional study. Bmc psychiatry, 21(1), 1-8.
Le Foll, B., Ng, E., Di Ciano, P., & Trigo, J. M. (2015). Psychiatric disorders as
vulnerability factors for nicotine addiction: what have we learned from
animal models?. In The Neuropharmacology of Nicotine Dependence
(pp. 155-170). Springer, Cham.
Lehman, A. F., Lieberman, J. A., Dixon, L. B., McGlashan, T. H., Miller, A. L.,
Perkins, D. O., ... & Regier, D. (2004). Practice guideline for the
treatment of partients with schizophrenia. American Journal of
psychiatry, 161(2 SUPPL).
Lehman, A. F., Ward, N. C., & Linn, L. S. (1982). Chronic mental patients: the
quality of life issue. The American journal of psychiatry.
Li, C. P., & Chiu, E. C. (2017). Construct validity of the Empowerment Scale in
patients with schizophrenia. Neuropsychiatry, 7(5), 501-508.
Lidz, T. (1973). The origin and treatment of schizophrenic disorders. Basic Books.
Lysaker, P. H., Clements, C. A., Wright, D. E., Evans, J., & Marks, K. A. (2001).
Neurocognitive correlates of helplessness, hopelessness, and well-being
in schizophrenia. The Journal of nervous and mental disease, 189(7),
457-462.
Ma, Q., Jiang, L., Chen, H., An, D., Ping, Y., Wang, Y., ... & Hu, W. (2023).
Histamine H2 receptor deficit in glutamatergic neurons contributes to the
pathogenesis of schizophrenia. Proceedings of the National Academy of
Sciences, 120(9), e2207003120.
Mahmoud, A., Berma, A., &Gabal, S. (2017). Relationship between Social Support
and the Quality of Life among Psychiatric Patients. Journal of Psychiatry
Psychiatric Disorders, 1 (2), 57-75.
Mahmoud, S., & Zaki, R. A. (2015). Internalized Stigma of Mental Illness among
Schizophrenic Patients and Their Families (Comparative Study). Journal
of Education and Practice, 6(12), 82-98.
Mahone, I. H., Maphis, C. F., & Snow, D. E. (2016). Effective strategies for nurses
empowering clients with schizophrenia: Medication use as a tool in
recovery. Issues in Mental Health Nursing, 37(5), 372-379.
Maier, S. F., Peterson, C., & Schwartz, B. (2000). From helplessness to hope: The
seminal career of Martin Seligman. The science of optimism and hope:
Research essays in honor of Martin EP Seligman, 11-37.
Matheson, S. L., Shepherd, A. M., & Carr, V. J. (2014). How much do we know
about schizophrenia and how well do we know it? Evidence from the
Schizophrenia Library. Psychological medicine, 44(16), 3387-3405.
doi:10.1017/S0033291714000166.
McGrath, J., Saha, S., Chant, D., & Welham, J. (2008). Schizophrenia: a concise
overview of incidence, prevalence, and mortality. Epidemiologic reviews,
30(1), 67-76.
Mohanty, A., Pradhan, R. K., & Jena, L. K. (2015). Learned helplessness and
socialization: A reflective analysis. Psychology, 6(07), 885.
Morris, S. B., Huang, J., Zhao, L., Sergent, J. D., & Neuhengen, J. (2014).
Measurement equivalence of the Empowerment Scale for White and
Black persons with severe mental illness. Psychiatric rehabilitation
journal, 37(4), 277.
National Institute for Health and Care Excellence [NICE]. (2014). Psychosis and
schizophrenia in adults: prevention and management; National Clinical
Practice Guidelines Number CG178.
Ng, P., Chun, R. W., & Tsun, A. (2012). Recovering from hallucinations: A
qualitative study of coping with voices hearing of people with
schizophrenia in Hong Kong. The Scientific World Journal, 2012.
Nolin, M., Malla, A., Tibbo, P., Norman, R., & Abdel-Baki, A. (2016). Early
intervention for psychosis in Canada: What is the state of affairs?
Canadian Journal of Psychiatry, 61(3), 186–194
Ottman, N., Ruokolainen, L., Suomalainen, A., Sinkko, H., Karisola, P.,
Lehtimäki, J., ... & Fyhrquist, N. (2019). Soil exposure modifies the gut
microbiota and supports immune tolerance in a mouse model. Journal of
allergy and clinical immunology, 143(3), 1198-1206.
Owen, M. J., & Sawa, A., & Mortensen PB (2016). Schizophrenia Lancet, 388, 86-
97.
Padilla, G. V., Grant, M. M., & Ferrell, B. (1992). Nursing research into quality of
life. Quality of Life Research, 1(5), 341-348.
Park, S. A., & Sung, K. M. (2013). The effects on helplessness and recovery of an
empowerment program for hospitalized persons with schizophrenia.
Perspectives in Psychiatric Care, 49(2), 110-117.
Patel, K. R., Cherian, J., Gohil, K., & Atkinson, D. (2014). Schizophrenia:
overview and treatment options. Pharmacy and Therapeutics, 39(9), 638.
Patrick, D. L., & Erickson, P. (1993). Health status and health policy: quality of
life in health care evaluation and resource allocation.
Paul, S., Joseph, J. W., & Pratap, A. (2020). Impact of empowerment intervention
on recovery and symptoms reduction in people with schizophrenia.
National Journal of Professional Social Work, 56-62.
Paul, N. B., Strauss, G. P., Gates-Woodyatt, J. J., Barchard, K. A., & Allen, D. N.
(2023). Two and five-factor models of negative symptoms in
schizophrenia are differentially associated with trait affect, defeatist
performance beliefs, and psychosocial functioning. European Archives of
Psychiatry and Clinical Neuroscience, 1-10.
Penckofer, S., Byrn, M., Mumby, P., & Ferrans, C. E. (2011). Improving subject
recruitment, retention, and participation in research through Peplau’s
theory of interpersonal relations. Nursing Science Quarterly, 24(2), 146-
151.
Petersen, K. S., Friis, V. S., Haxholm, B. L., Nielsen, C. V., & Wind, G. (2015).
Recovery from mental illness: a service user perspective on facilitators
and barriers. Community mental health journal, 51, 1-13.
Picco, L., Pang, S., Lau, Y. W., Jeyagurunathan, A., Satghare, P., Abdin, E., ... &
Subramaniam, M. (2016). Internalized stigma among psychiatric
outpatients: Associations with quality of life, functioning, hope and self-
esteem. Psychiatry research, 246, 500-506.
Pijnenborg, G. H., van Donkersgoed, R. J., David, A. S., & Aleman, A. (2013).
Changes in insight during treatment for psychotic disorders: a meta-
analysis. Schizophrenia Research, 144(1-3), 109-117.
Pushpa-Rajah, J. A., McLoughlin, B. C., Gillies, D., Rathbone, J., Variend, H.,
Kalakouti, E., & Kyprianou, K. (2015). Cannabis and schizophrenia.
Schizophrenia bulletin, 41(2), 336-337.
Reeve, S., Sheaves, B. & Freeman, D. (2019). Sleep disorders in early psychosis:
incidence, severity, and association with clinical symptoms.
Schizophrenia Bulletin, 45, pp. 287-295, 10.1093/schbul/sby129.
Roberts, S. H., & Bailey, J. E. (2013). An ethnographic study of the incentives and
barriers to lifestyle interventions for people with severe mental illness.
Journal of Advanced Nursing, 69(11), 2514-2524.
Roe, D., Mashiach-Eizenberg, M., & Lysaker, P. H. (2011). The relation between
objective and subjective domains of recovery among persons with
schizophrenia-related disorders. Schizophrenia research, 131(1-3), 133-
138.
Rogers, E. S., Anthony, W. A., Cohen, M., & Davies, R. R. (1997). Prediction of
vocational outcome based on clinical and demographic indicators among
vocationally ready clients. Community Mental Health Journal, 33(2), 99-
112.
Roth, D., & Crane-Ross, D. (2002). Impact of services, met needs, and service
empowerment on consumer outcomes. Mental Health Services Research,
4(1), 43-56.
Ryrie, I., & Norman, I. (2013). Mental disorder. The Art and Science of Mental
Health Nursing: A Textbook of Principles and Practice. Third edition.
Open University Press, Maidenhead, 17-32.
Sabry, N., Rabie, M., Shaker, N. M., Noby, S., & Ali, M. (2017). National survey
of prevalence of mental disorders in Egypt: community survey.
San, L., Bernardo, M., Gomez, A., Martinez, P., Gonzalez, B., & Pena, M. (2012).
Socio-demographic, clinical and treatment characteristics of relapsing
schizophrenic patients. Nordic Journal of Psychiatric, 23, 324–331.
Schmolke, M., Amering, M., & Svettini, A. (2016). Recovery, empowerment, and
person centeredness. In Person Centered Psychiatry (pp. 97-111).
Springer, Cham.
Schwartz, PJ (2011). Season of birth in schizophrenia: a maternal-fetal
chronobiological hypothesis. Med Hypotheses. 76: 785–793.
Seligman, M. E., & Maier, S. F. (1967). Failure to escape traumatic shock. Journal
of experimental psychology, 74(1), 1.
Sharp, J. G., Sharp, J. C., & Young, E. (2020). Academic boredom, engagement
and the achievement of undergraduate students at university: A review
and synthesis of relevant literature. Research Papers in Education, 35(2),
144-184.
Shin, T. K., Fei, S. H., Yi, C. S., Ruslan, N.B., Sharkawi, N. B.(2020). Depression,
Anxiety, Stress and Perceived Social Support in Primary Caregivers of
Patients with Schizophrenia at Hospital Sentosa, Kuching, Sarawak,
Malaysia. Malaysian Journal of Psychiatry Online Early,29,1.
Sibitz, I., Amering, M., Unger, A., Seyringer, M. E., Bachmann, A., Schrank, B., ...
& Woppmann, A. (2011). The impact of the social network, stigma and
empowerment on the quality of life in patients with schizophrenia.
European psychiatry, 26(1), 28-33.
Slade, M. (2010). Mental illness and well-being: the central importance of positive
psychology and recovery approaches. BMC health services research,
10(1), 1-14.
Slade, M., Amering, M., Farkas, M., Hamilton, B., O'Hagan, M., Panther, G., ... &
Whitley, R. (2014). Uses and abuses of recovery: implementing
recovery‐oriented practices in mental health systems. World Psychiatry,
13(1), 12-20.
Slade, M., Amering, M., & Oades, L. (2008). Recovery: an international
perspective. Epidemiologia e psichiatria sociale, 17(2), 128.
Soliman, E., Mahdy, R., & Fouad, H. (2018). Impact of psychoeducation program
on quality of life of schizophrenic patients and their caregivers. Egyptian
Journal of Psychiatry VO - 39, 39(1), 159–163. Retrieved from
https://doi.org/10.4103/ejpsy.ejpsy.
Sorrenti, L., Spadaro, L., Mafodda, A. V., Scopelliti, G., Orecchio, S., &
Filippello, P. (2019). The predicting role of school Learned helplessness
in internalizing and externalizing problems. An exploratory study in
students with Specific Learning Disorder. Mediterranean Journal of
Clinical Psychology, 7(2).
Soundy, A., Stubbs, B., Roskell, C., Williams, S. E., Fox, A., & Vancampfort, D.
(2015). Identifying the facilitators and processes which influence
recovery in individuals with schizophrenia: a systematic review and
thematic synthesis. Journal of Mental Health, 24(2), 103-110.
Štrkalj Ivezić, S., Alfonso Sesar, M., & Mužinić, L. (2017). Effects of a group
psychoeducation program on self-stigma, empowerment and perceived
discrimination of persons with schizophrenia. Psychiatria Danubina,
29(1), 66-73.
Sutton, D., Bejerholm, U., & Eklund, M. (2019). Empowerment, self and
engagement in day center occupations: A longitudinal study among
people with long-term mental illness. Scandinavian journal of
occupational therapy, 26(1), 69-78.
Szöke, A., Charpeaud, T., Galliot, A. M., Vilain, J., Richard, J. R., Leboyer, M., ...
& Schürhoff, F. (2014). Rural-urban variation in incidence of psychosis
in France: a prospective epidemiologic study in two contrasted catchment
areas. BMC psychiatry, 14(1), 78.
Thoma, P., & Daum, I. (2013). Comorbid substance use disorder in schizophrenia:
a selective overview of neurobiological and cognitive underpinnings.
Psychiatry and clinical neurosciences, 67(6), 367-383.
Tse, S., Davidson, L., Chung, K. F., Yu, C. H., Ng, K. L., & Tsoi, E. (2015).
Logistic regression analysis of psychosocial correlates associated with
recovery from schizophrenia in a Chinese community. International
Journal of Social Psychiatry, 61(1), 50-57.
Valencia, M., Fresan, A., Juárez, F., Escamilla, R., & Saracco, R. (2013). The
beneficial effects of combining pharmacological and psychosocial
treatment on remission and functional outcome in outpatients with
schizophrenia. Journal of Psychiatric Research 47(12): 1886–1892.
Van Eck, R. M., Burger, T. J., Vellinga, A., Schirmbeck, F., & de Haan, L. (2018).
The relationship between clinical and personal recovery in patients with
schizophrenia spectrum disorders: A systematic review and meta-
analysis. Schizophrenia Bulletin, 44(3), 631-642.
Vauth, R., Kleim, B., Wirtz, M., & Corrigan, P. W. (2007). Self-efficacy and
empowerment as outcomes of self-stigmatizing and coping in
schizophrenia. Psychiatry research, 150(1), 71-80.
Vigod, S. N., Kurdyak, P. A., Dennis, C. L., Gruneir, A., Newman, A., Seeman, M.
V.,…... & Ray, J. G. (2014). Maternal and newborn outcomes among
women with schizophrenia: a retrospective population‐based cohort
study. BJOG: An International Journal of Obstetrics & Gynaecology,
121(5), 566-574.
Vita, A., & Barlati, S. (2018). Recovery from schizophrenia: is it possible?.
Current opinion in psychiatry, 31(3), 246-255.
Vrbova, K., Prasko, J., Ociskova, M., Kamaradova, D., Marackova, M., Holubova,
M.,..... & Latalova, K. (2017). Quality of life, self-stigma, and hope in
schizophrenia spectrum disorders: a cross-sectional study.
Neuropsychiatric disease and treatment, 13, 567.
Wang, X. Q., Petrini, M. A., & Morisky, D. E. (2017). Predictors of quality of life
among Chinese people with schizophrenia. Nursing & health sciences,
19(2), 142-148.
Warner, R. (2009). Recovery from schizophrenia and the recovery model. Current
opinion in psychiatry, 22(4), 374-380.
Wartelsteiner, F., Mizuno, Y., Frajo‐Apor, B., Kemmler, G., Pardeller, S.,
Sondermann, C., ... & Hofer, A. (2016). Quality of life in stabilized
patients with schizophrenia is mainly associated with resilience and self‐
esteem. Acta Psychiatrica Scandinavica, 134(4), 360-367.
Woodall, J., Raine, G., South, J., & Warwick-Booth, L. (2010). Empowerment &
health and well-being: evidence review.
Wu, S., & Tu, C. C. (2019). The impact of learning self-efficacy on social support
towards learned helplessness in China. EURASIA Journal of
Mathematics, Science and Technology Education, 15(10), em1825.
Ziegler, A., Gläser-Zikuda, M., Kopp, B., Bedenlier, S., & Händel, M. (2020).
Helplessness Among University Students: An Empirical Study Based on
a Modified Framework of Implicit Personality Theories.
) ( -2سنتين :اقل من اربع سنين ) -23مدة العالج -1 :أقل من سنتين (
) ( -3اكثر من اربع سنين
) -0ال ( -24المواظبه على العالج :
) ( -2نعم بانقطاع ) ( -1نعم بانتظام
) ( -1فقدان الشهيه ) ( -0رفض األكل -28االكل :
) ( -3يأكل بمفرده ) ( -2يأكل ويطلب المزيد
) ( -4يأكل بمساعده
) ( -1نعم ) ( -0ال -1تبدأ الكالم مع اآلخرين: -30التفاعل االجتماعى :
) ( -1نعم ) -2تحفظ على العالقات مع اآلخرين-0:ال (
)Appendix (II
)Schizophrenia Quality of Life-18 (SQoL-18
مقياس جوده الحياه للفصام
أكثر مما كما كنت أقل بقليل مما أقل مما أقل بكثير مما
كنت أفضل افضل كنت أفضل كنت أفضل كنت أفضل
()5 ()4 ()3 ()2 ()1
الثقه بالنفس
5 4 3 2 1 أنا واثق في الحياة. .1
5 4 3 2 1 راض عن نفسي.
ٍ أشعر بمزاج جيد .أنا .2
المرونه
5 4 3 2 1 أكافح من أجل النجاح في حياتى. .3
5 4 3 2 1 أستطيع التخطيط لمستقبلي المهني أو الشخصي. .4
5 4 3 2 1 أبذل الجهود للعمل. .5
الحكم الذاتى
5 4 3 2 1 أشعر بحرية في اتخاذ القرارات. .6
5 4 3 2 1 اشعر بحريه فى العمل والتصرف. .7
العالقه األسريه
5 4 3 2 1 لقد ساعدتني ودعمتني عائلتي. .10
5 4 3 2 1 عائلتي تهتم بى. .11
عالقه االصدقاء
5 4 3 2 1 لقد ساعدني ودعمني أصدقائي أو أقاربي. .12
5 4 3 2 1 لدى أصدقاء. .13
الحياه العاطفيه
5 4 3 2 1 أنا راض بحياتى العاطفيه. .14
5 4 3 2 1 أنا قادر على تحقيق مشاريعى العائليه والعاطفيه. .15
الرفاهيه والسالمه النفسيه
1 2 3 4 5 لدي صعوبة في التركيز،والتفكيربشكل مستقيم .16
1 2 3 4 5 أشعر بالعزله عن العالم الخارجي .17
1 2 3 4 5 ال أستطيع التعبير عن مشاعري .18
المجموع الكلى:
)Appendix (III
غير موافق غير موافق موافق موافق تماما
تماما
()1 ()2 ()3 ()4
1 2 3 4 أيا كان المجهود المبذول فى العمل ،أشعر أننى ال أتحكم فى النتائج. .1
1 2 3 4 بسبب فشلي اشعر بعجزى وعدم قدرتى في حل المشكالت. .2
1 2 3 4 ال أجد حلوالً للمشاكل الصعبة. .3
1 2 3 4 ال أضع نفسي في المواقف عندما اكون غير قادر على التنبؤ بنتائجها. .4
1 2 3 4 عندما احقق مهمه ما بنجاح فذلك غالبا الننى محظوظ. .5
1 2 3 4 ليس لدي القدرة على حل معظم مشاكل الحياة. .6
1 2 3 4 عندما ال أنجح في مهمة ما ،ال أحاول القيام بأي مهام مماثلة لشعوري اننى سوف .7
افشل فيها ايضا.
1 2 3 4 عندما ال تتم الشيء بنفس الطريقه التى خططت لها اعرف انها بسبب انه ليس لدى .8
القدره اساسا.
1 2 3 4 يتمتع األشخاص اآلخرون بالسيطرة على نجاحهم و /أو فشلهم أكثر مني .9
1 2 3 4 ال أحاول فى مهمة جديدة إذا فشلت في القيام بمهام مماثلة في الماضي. .10
1 2 3 4 عندما اؤدى أداء سيئا ،فإن هذا يرجع إلى عدم قدرتي على األداء بشكل أفضل. .11
1 2 3 4 ال أقبل مهمة ال أعتقد أنني سأنجح فيها. .12
1 2 3 4 أشعر أن لدي القليل من السيطرة على نتائج عملي. .13
1 2 3 4 أنا غير ناجح في معظم المهام التي أحاول تنفيذها. .14
1 2 3 4 أشعر أن أي شخص اخر يمكن أن يؤدى أفضل مني في معظم المهام. .15
1 2 3 4 أنا غير قادر على الوصول إلى أهدافي في الحياة. .16
1 2 3 4 عندما ال أنجح في مهمة ما ،أجد نفسى القي اللوم على غبائي كسبب فى هذا. .17
1 2 3 4 مهما حاولت جاهدا ال تاتى االشياء ابدا بالطريقه التى اريدها. .18
1 2 3 4 أشعر أن نجاحاتى هى انعكاس للفرصه وليس لقدرتي. .19
1 2 3 4 يبدو ان سلوكى ال يؤثر. .20
)Appendix (IV
Empowerment Scale
مقياس التمكين
4 3 2 1 عمو ًما أحقق ما قمت بالتخطيط له. .1
4 3 2 1 لدى اتجاه إيجابي نحو ذاتي. .2
4 3 2 1 عندما أضع خطه ،بكون غالبا متأكد من قدرتى على تحقيقها. .3
4 3 2 1 عادة ما يكون لدى الثقة فى القرارات التي اتخذها. .4
4 3 2 1 غالبا ما أكون قادرا على التغلب على المصاعب التي تواجهنى. .5
4 3 2 1 أشعر بأنني شخص ذو قيمه ،على األقل بالمساواه مع اآلخرين. .6
4 3 2 1 أرى نفسي أننى انسان قادر. .7
4 3 2 1 أنا قادرعلى عمل األشياء مثل اغلبيه الناس االخرين. .8
4 3 2 1 أشعر أنني لدي عدد من الصفات الجيدة. .9
4 3 2 1 ال يمكنك ان تواجه الحاكم /االداره. .12
4 3 2 1 اشترك برأى مع الجماعه عندما ال أكون متأكد من شيء ما. .13
4 3 2 1 الخبراء هم أفضل من يقررون ما يجب على الناس فعله. .14
4 3 2 1 أغلبيه األشياء السيئه ( المصائب) في حياتى نتيجه سوء الحظ. .15
4 3 2 1 عادة ،أشعر بالوحدة. .16
4 3 2 1 ليس للناس الحق في الغضب لمجرد أنهم ال يحبون الشيء. .17
4 3 2 1 الناس لديهم الحق لتقرير المصير والتخاذ قراراتهم حتى لو كانوا .18
سيئين.
4 3 2 1 يجب على الناس ان يعيشوا حياتهم كما يريدون ويشاوؤن. .19
4 3 2 1 عمل الناس معا يمكن ان يؤثر على مجتمعاتهم. .20
4 3 2 1 يكون للناس قوه أكثر اذا عملوا كمجموعه. .21
4 3 2 1 العمل مع االخرين في المجتمع ممكن ان يساعد في تغيير األشياء .22
لألفضل.
4 3 2 1 غالبًا ما تحل المشكالت باتخاذ اجراءات .23
4 3 2 1 يلتزم الناس فقط بما يعتقدون انه ممكن. .24
4 3 2 1 أستطيع ان احدد بدرجه كبيره ماذا سوف يحدث فى حياتى. .25
4 3 2 1 أنا متفائل بشكل عام بشأن المستقبل. .26
4 3 2 1 غالبًا ما تحل المشكالت باتخاذ اجراءات. .27
4 3 2 1 الشعور بالغضب تجاه شيء ما هو غالبا الخطوه األولى نحو .28
تغييره.
4 3 2 1 ليس للناس الحق في الغضب لمجرد أنهم ال يحبون الشيء. .29
4 3 2 1 الشعور بالغضب من شيء ما ال يمكن ان يساعدك. .30
المجموع الكلي:
)Appendix (V
)Recovery Assessment Scale- Domains and Stage (RAS-DS
مقياس تقييم الشفاء – المراحل والمجاالت
صحيح كليا صحيح غالبا صحيح قليال غير صحيح
()4 ()3 ()2 ()1
القيام بأشياء اقدرها
4 3 2 1 من المهم الحصول على بعض المرح. .1
4 3 2 1 من المهم ممارسه عادات صحيه جيده. .2
4 3 2 1 أقوم بفعل اشياء ذات معنى بالنسبه لي. .3
4 3 2 1 أواصل الحصول على هوايات او اهتمامات جديده .4
4 3 2 1 أقوم بفعل أشياء قيمه ومساعده االخرين. .5
4 3 2 1 أقوم بفعل أشياء تجعلنى اشعر بسعاده. .6
التطلع للمستقبل
4 3 2 1 أستطيع التعامل مع الوضع اذا شعرت بالمرض ثانيه. .7
4 3 2 1 استطيع ان اساعد نفسى لكى اتحسن. .8
4 3 2 1 لدى اهداف فى الحياه اريد ان احققها. .10
4 3 2 1 اعتقد انى استطيع الوصول الى اهدافى الشخصيه. .11
4 3 2 1 اذا واصلت المحاوله فسأستمر فى التحسن. .16
4 3 2 1 لدى فكره عما اريد ان اكون فى المستقبل. .17
4 3 2 1 هناك شيء جيد سيحصل فى النهايه. .18
4 3 2 1 انا اكثر شخص مسؤول فى تحسن حالتى. .19
4 3 2 1 اعرف ما هو الشيء الذي يساعدنى على التحسن. .23
4 3 2 1 لدى خطه خاصه لكى ابقى او اصبح بصحه جيده. .26
4 3 2 1 هناك اشياء استطيع القيام بها تساعدنى على التعامل مع .27
االعراض غير المرغوب فيها.
4 3 2 1 اعرف ان هناك خدمات الصحه النفسيه لمساعدتى. .28
4 3 2 1 على الرغم من ان االعراض ممكن ان تصبح اسوأ لكننى .29
أعرف كيف استطيع التعامل معها.
4 3 2 1 تأثير االعراض المرضيه على حياتى يتضائل شيئا فشيئا. .30
4 3 2 1 فى كل مره اواجه فيها اعراض المرض تكون مدتها اقل من .31
المره السابقه.
التواصل واالنتماء
4 3 2 1 هناك اشخاص استطيع االعتماد عليهم. .32
4 3 2 1 حتى عندما ال اؤمن بنفسى فان االخرين يثقون بى. .33
4 3 2 1 من المهم الحصول على عدد متنوع من االصدقاء. .34
4 3 2 1 لدى اصدقاء عانوا من االمراض النفسيه ايضا. .35
4 3 2 1 لدى اصدقاء ليس لديهم امراض نفسيه. .36
4 3 2 1 اشعر بالرضى تجاه وضعى العائلى. .38
المجموع الكلي:
Appendix (VI)
Positive and Negative Symptoms Scale (PANSS) Rating Form
Positive Symptoms:
P2 Conceptual 1 2 3 4 5 6 7
disorganization
P3 Hallucinatory 1 2 3 4 5 6 7
behavior
P4 Excitement 1 2 3 4 5 6 7
P5 Grandiosity 1 2 3 4 5 6 7
P6 Suspiciousness / 1 2 3 4 5 6 7
Persecution
P7 Hostility 1 2 3 4 5 6 7
Total score of positive symptoms:
Negative Symptoms:
Absent Minimal Mild Moderate Moderate Severe Extreme
(2) (2) (3) (4) severe(5) (6) (7)
N1 Blunted affect 1 2 3 4 5 6 7
N2 Emotional 1 2 3 4 5 6 7
withdrawal
N3 Poor rapport 1 2 3 4 5 6 7
N4 Passive / apathetic 1 2 3 4 5 6 7
social withdrawal
N5 Difficulty in 1 2 3 4 5 6 7
abstract thinking
N6 Lack of spontaneity 1 2 3 4 5 6 7
& flow of conversation
N7 Stereotyped 1 2 3 4 5 6 7
thinking
Total score of negative symptoms:
General Psychopathology Symptoms
G2 Anxiety 1 2 3 4 5 6 7
G3 Guilt feeling 1 2 3 4 5 6 7
G4 Tension 1 2 3 4 5 6 7
G5 Mannerisms & 1 2 3 4 5 6 7
Posturing
G6 Depression 1 2 3 4 5 6 7
G7 Motor retardation 1 2 3 4 5 6 7
G8Uncooperativeness 1 2 3 4 5 6 7
G9 Unusual thought 1 2 3 4 5 6 7
content
G10 Disorientation 1 2 3 4 5 6 7
G12Lack of judgment 1 2 3 4 5 6 7
&Insight
G13 Disturbance of 1 2 3 4 5 6 7
volition
G14 Poor impulse 1 2 3 4 5 6 7
control
G15 Preoccupation 1 2 3 4 5 6 7
General objectives:
At the end of this program, the patients will be able to acquire the necessary
knowledge that are essentials for understanding the nature of the illness and
treatment in order to be more skillfully and efficiently capable of dealing with
their illness. The program also, provides these patients with a number of healthy
coping strategies that enhance their helplessness, quality of life (QOL) and
recovery.
Specific objectives:
يتس±بب الفص±ام في اعاق±ه كب±يره ويجع±ل مرض±ي ±الفص±ام غ±ير ق±ادرين ±على تحقي±ق اه±داف الحي±اه
المختلفه .حوالى ثالثه ارباع الح±±االت يع±±انون من مراح±±ل متنوع±±ه من مراح±±ل الفص±±ام ويش±±مل االنتكاس±±ات
ومرحله عوده اعراض المرض بالرغم من تقديم عالج دوائي فعال وتدخالت نفسيه اجتماعيه ويوجد اقل من
% 15من حدوث شفاء .مفهوم التمكين كعملية تصل إلى المعلومات والمعرفة والمهارات ±المتطورة والق±±درة
على اتخاذ القرارات وتطوير القوة الفردية والمشاركة في المجتمع والس±±يطرة الحقيقي±±ة واألم±±ل وتب±±ادل ص±±نع
القرار والنهج المجتمعية ووصمة الع±ار .يع±د ت±دخل التمكين عنص±رًا أساس±يًا في إط±ار التع±افي ±والش±فاء ،إلى
ج±انب التراب±ط واألم±ل والتف±اؤل بش±أن المس±تقبل ومع±نى الحي±اة .التمكين ه±و ه±دف عالجي مناس±ب للفص±ام
لتحسين نوعية الحياة والعجز .التدخل التمكيني هو تقوية كفاءة الفرد وأنظمة المساعدة الطبيعية التي ثبت أنه±±ا
فعالة في تعزيز التعافي ±والتغلب على اإلعاقة المرتبطة بالمرض.
هدف الرساله:
تهدف هذه الدراسة الى تقييم تأثير تدخل التمكين على العجز والشفاء وجوده الحياة بين مرضى الفصام.
تم استخدام ±تصميم بحث تجريبي في الدراسة .أجريت الدراس±±ة في العي±±ادات الداخلي±±ة والخارجي±ة بقس±±م الطب
النفسي بمستشفى ±جامعة المنصورة.
تم اختيار المرضى ±وفقًا لسجالت المرضى ±بالمستشفي ،وقد استوفى ±جمي±±ع المش±±تركين فى البرن±±امج ال±±ذين تم
تشخيص إصابتهم ±بالفصام إرشادات الدليل التشخيصي ±واإلحصائي ±لالضطرابات ±العقلية ،اإلصدار الخامس
المرضى الذين يعانونون على األقل من النوبه الثانية. .1
العمر من - 18اقل من 60سنة. .2
كال الجنسين ذكورا ±وإناثا. .3
قادر على التواصل. .4
األداة األولى:
الخصائص االجتماعیة والدیموغرافیة :تشمل الخصائص االجتماعیة والدیموغرافیة للمرض±±ى مث±±ل
العمر والجنس والحالة االجتماعیة والتعلیم والمھنة واإلقامة والدخل.
بیانات إكلینیكیة مثل عمرالمريض عند ظھور المرض ،ومدة الم±±رض ،وع±±دد م±±رات ال±±دخول إلى
مستشفى األمراض النفسیة ،والتاریخ العائلي لألمراض النفسیة ،واألدویة النفسیة السابقة.
هو اإلصدار ±المختصر من 41عنصرًا استبيانًا ±فرنسيًا ±متعدد األبعاد يتم إجراؤه ذاتيًا في جوده الحي±±اه
يتعلق بالظروف ±الحالية ومصمم لمرضى ±الفص±±ام .يتك±±ون من 18عنص±رًا تص±ف 8 ±أبع±±اد .يق±±وم ذل±±ك بتق±±ييم
وجهة نظر المريض حول جوده الحياه الحالية .تراوحت النتيجة اإلجمالية من 18إلى 90مع كل درجة أعلى
تشير إلى جوده حياة أفضل.
تم تطوير ±مقياس العجز المكتسب بواسطة استبيان تقري±±ر ذاتي يحت±±وي على 20عنص±رًا تم تس±±جيلها±
باستخدام مقياس من 4نقاط من " = 1ال أوافق بشدة" إلى " = 4أوافق ±بشدة"
يتم تس±جيله من 20إلى 80بدرج±ة عالي±ة تش±ير إلى أن األف±راد ±يع±انون من مس±تويات أعلى من
العجز
من 20إلى 40عجز خفيف ، .1
من 40إلى 60حالة من العجز المعتدل. .2
من 60إلى 80درجة عالية من العجز. .3
هو يقيس التمكين الشخصي بين مستهلكي ±خدمات الصحة العقلية .يحتوي المقياس علي أربع نقاط مع
خيارات استجابة من (" )1أوافق ±بشدة" إلى (" )4ال أوافق ±بشدة" .العناصر عبارة صحيحة أو خاطئة .يتكون
المقياس من 28عنص ًرا تمثل خمسة عوامل :احترام الذات ،وعجز القوة ،والنشاط ±المجتمعي واالس±±تقاللية ،
والتفاؤل والسيطرة على المستقبل ،والغضب الصالح .تم تمثيل ثالثة عناصر لكل منها في مقياسين فرعيين.
يه±±دف إلى تق±±ييم األع±±راض اإليجابي±±ة واألع±±راض الس±±لبية واالع±±راض المرض±±يه العام±±ه المرتبط±±ه
بالفصام .يتكون من ثالثة أج±±زاء ،الج±±زء األول لتق±±ييم األع±±راض اإليجابي±±ة ،وال±±تي تش±±مل س±±بعة أع±±راض.
عرض±ا لتق±ييم الم±±رض
ً الجزء الثاني يختص بتقييم األعراض الس±لبية .أخ±يرًا ،يتك±±ون الج±زء الث±±الث من 16
العام.
يتم تص±نيف ±ك±ل عنص±ر في مقي±اس المتالزم±ه االيجابي±ه والس±لبيه على مقي±اس تص±نيف ±من 7نق±اط
ويكون مصحوبًا بتعريف ±كامل باإلضافة إلى معايير تثبيت مفصلة لجمي±ع نق±اط التص±نيف ±الس±بع .عن±د تع±يين
التص±±نيف ، ±يتم النظ±±ر أوالً في م±±ا إذا ك±±ان العنص±±ر موج±±ودًا على اإلطالق ،كم±±ا يتم الحكم علي±±ه من خالل
تعريفه .تعكس الدرجة ( )1عدم وجود هذا العرض ،مما يؤدي ±إلى مجموع نقاط 30لمريض بدون أعراض ،
ويتم تصنيف ش±±دة أي عنص±±ر على مقي±±اس من 2إلى .7تش±±ير الدرج±±ة ( )2إلى أن الخط±±ورة من األع±±راض
المصنفة على أنها قليله ،في حين أن الدرجة ( )7تشير إلى الحد األقص±±ى ،أي أن االع±±راض تت±±داخل بش±±كل
كبير في معظم أو كل وظائف ±الحياة الرئيسية.
تم تطوير ±استبيان الخصائص االجتماعية والديموغرافية من قبل الب±±احث .تمت ترجم±±ة األداة (الث±±اني
والثالث والرابع) إلى اللغة العربية .فحصت هيئة المترجمين صالحية المحتوى ،وكشفت أن األداة صالحة.
دراسة تجريبيه
قب±±ل الش±±روع ±في الدراس±±ة الفعلي±±ة ،تم إج±±راء دراس±±ة تجريبي±±ة على 20م±±ريض بالفص±±ام لض±±مان
وضوح أدوات الدراسة وقابليتها للتطبيق ±وإمكانية تطبيقها.
أما بالنسبة للدراسة الفعلية ،فقد أجريت الدراسة الفعلية خالل الفترة من األول من (يناير) 2021إلى
(يناير) 2022وكانت 60مريض فصام ومرّت بثالث مراحل:
مرحله التقييم
الموافقة األخالقية من لجنة أخالقيات البحث بكلية التمريض جامعة المنصورة. .1
تم الحصول على إذن رسمي من رئيس قسم الطب النفسي. .2
احترام وحماية خصوصية الم±±ريض .تم إبالغ المرض±ى ±أن±ه تم ض±±مان س±±رية البيان±±ات والحف±±اظ .3
عليها.
التقت الباحثة بالمشاركين وقدمت نفسها وشرحت لهم الهدف من الدراسة للحصول على موافقتهم .4
على المشاركة في الدراسة وكسب تعاونهم وثقتهم.
تمت مقابل±±ة الموض±±وع ±بش±±كل ف±±ردي ±قب±±ل تط±±بيق ±البرن±±امج المخط±±ط لجم±±ع البيان±±ات األساس±±ية .5
باستخدام جميع أدوات الدراسة.
بدأت الباحثة في تعبئة االستمارة من المشاركين من خالل المق±±ابالت الفردي±±ة ح±±تى الوص±±ول إلى .6
العدد اإلجمالي .قام الب±±احث بق±±راءة وش±±رح ك±±ل بن±±د للمش±±اركين وتس±±جيل ردودهم ±على ك±±ل بن±±د.
استغرقت هذه المقابلة حوالي 25إلى 30دقيقة.
كان الهدف من البرنامج هو مساعدة المرضى ±على أن يصبحوا ±أكثر دراية بالس±±ماح لهم ب±±التحكم .7
في أعراضهم ±والتعامل مع المرض والعالج .وايضا ان تمكين الم±±ريض يمكن أن يتج±±اوز ±س±±ياق
الرعاية الصحية ،ويدخل أيضًا إلى مجال الحياة اليومية (تنمية احترام ±ال±ذات ومه±±ارات الت±أقلم).
يمكن أن يم ّكنهم ±تمكين المرضى من تحمل المزيد من المسؤولية إلدارة صحتهم وتش±±جيع أنش±±طة
اإلدارة الذاتية وان يكونوا ±قادرين على اتخاذ قراراتهم ±في العالج الخاص بهم.
أيض±ا ت±دريبًا ±على المه±ارات االجتماعي±ة له±±ؤالء المرض±ى مث±±ل التواص±±ل الجي±د
يوفر البرن±±امج ً .8
والتواصل الحازم لتعزيز ±جوده الحياه والتعافي والشفاء.
مرحلة التدخل
تم تنفيذ البرنامج في قسم الطب النفسي الداخلي والخارجي±.
تم تنفي±±ذ البرن±±امج لمرض±ى ±الفص±±ام الخاض±±عين للدراس±±ة .تم تقس±±يمهم إلى ( )10مجموع±±ات 6 ،
مشاركين في كل مجموعة .حضرت كل مجموعة 12جلسة ( 3جلسات /أسبوع) .نفذت الباحث±±ة
البرن±±امج لك±±ل مجموع±±ة في األوق±±ات ±واألي±±ام المح±±ددة .لض±±مان تع±±رض جمي±±ع المش±±اركين في
المجموع±±ات لنفس المحت±±وى ±وخ±±برات التعلم .تم توف±±ير ±نفس المحت±±وى باس±±تخدام نفس ط±±رق±
التدريس والمناقشات ±والنشرات.
تم تنفي±±ذ البرن±±امج من خالل ط±±رق ت±±دريس مختلف±±ة مث±±ل المحاض±±رات القص±±يرة ،والمناقش±±ات
الجماعية ،والعصف ±ال±ذهني ،وإع±ادة الع±رض التوض±يحي ،ولعب األدوار .تض±منت الوس±ائط
التعليمية عروض باور ±بوينت وكتيب.
بدأ الباحث كل جلس±ة ب±±الترحيب بمرض±ى ±ك±ل مجموع±±ة ،وملخص لم±±ا تم تقديم±±ه خالل الجلس±±ة
الس±±ابقة وأه±±داف الجلس±±ة الجدي±±دة للتأك±±د من أن المش±±اركين يتعرف±±ون على محت±±وى البرن±±امج ،
ومناقشة الواجب المنزلي السابق من الجلس±±ة الس±±ابقة وكيفي±±ة تحقي±±ق الغ±±رض من ك±±ل جلس±±ة م±±ع
مراعاة استخدام لغة بسيطة تتناسب مع المستوى ±التعليمي للمشاركين .تم استخدام تقنيات التحف±±يز
والتعزيز ±مثل الثناء والتقدير خالل الجلسة لتعزيز المشاركة والتعلم.
أعط مكافأة بسيطة لكل من التزم بقواعد البرنامج بعد كل جلسة.
أجرى الباحث جمع البيانات خالل فترة اثني عشر ش±±هرا ب±±دأت من األول من ين±±اير 2021ح±±تى
يناير 2022
مرحلة التقييم
التقييم الفوري وايضا ±بعد شهر واحد للمشاركين من خالل األدوات (األداة الثانية واألداة الثالث±±ة
واألداة الرابعة واألداة الخامسة واألداة السادسة).
تم تحليل البيانات باستخدام ±برنامج (الحزمة اإلحصائية للعلوم االجتماعية) اإلصدار .22
النتائج:
فيما يتعل±±ق بالخص±±ائص االجتماعي±±ة والديموغرافي±±ة للعين±±ة ،ك±±ان أك±±ثر من نص±±ف العين±±ة ()٪56.7
ض±±من الفئ±±ة العمري±±ة من 30إلى 45س±±نة .ك±±انت غالبي±±ة عين±±ات الدراس±±ة من ال±±ذكور ( .)٪91.7وبحس±±ب
المستوى التعليمي ،كانت تلت العينه غير متعلمين أو يق±±روؤن ويكتب±±ون ±وتعليم ابت±±دائي .فيم±±ا يتعل±±ق بالحال±±ة
االجتماعية ( )٪65كانوا غير متزوجين .كان ثل±±ثى المرض±ى ±الخاض±±عين للدراس±±ة ( )٪62.5يعمل±±ون اعم±±ال
حرفيه .كان اكثر من نصف العينة من الريف ( .)٪51.7وفيما يتعلق بالدخل المرضي فإن ما يقرب من ثالثة
أرباع العينة المدروسة ( )٪73.3لم يكن لديهم دخل كاف.
قد وجد أن متوسط ±درجة تتزايد بعد مباشره وبعد شهر واح±±د من ت±±دخل التمكين على نوعي±±ة الحي±±اة
الفصام ،والعجز المكتسب ،وتقييم التعافي والشفاء ،والتمكين ،و مقياس المتالزمه الس±±لبيه وااليجابي±±ه ،م±±ع
وجود فرق ±مهم إحصائيًا±.
الجزء الثالث :االرتباط بين درجات المرضى الخاضعين للدراسة على متغيرات الدراسة المختلفة:
توجد عالقة سلبية ذات داللة إحصائية بين :مقياس العجز المكتس±±ب ومقي±±اس نوعي±±ة الحي±±اة ،وك±±ذلك
مقياس العجز المكتسب ومقياس التعافي( ±الشفاء) ،وايضا ±مقياس المتالزمه السلبيه وااليجابي±±ه ومقي±±اس ج±±وده
الحياه ،واخيرا ±مقياس المتالزمه السلبيه وااليجابيه ومقياس التعافي( ±الشفاء) .توجد عالقة ارتباط موجب±±ة ذات
دالله احصائيه بين :مقياس جوده الحياه ومقياس التع±±افي (الش±±فاء) ،تق±±ييم التمكين ومقي±±اس التع±±افي (الش±±فاء)،
مقياس المتالزمه السلبيه وااليجابيه ومقياس العجز المكتسب .وأخيرا هن±±اك عالق±±ة إيجابي±±ة بين مقي±±اس ج±±وده
الحياه ومقياس التمكين.
توجد عالقة سلبية ذات داللة إحص±ائية بين مقي±اس العج±ز المكتس±ب ومقي±اس ج±وده الحي±اة ،وك±ذلك
مقياس العجز المكتسب ومقياس التعافي( ±الشفاء) ،مقياس المتالزمه السلبيه وااليجابيه و مقياس ج±±وده الحي±±اه،
واخيرا مقياس المتالزمه السلبيه وااليجابيه ومقياس التع±±افي( ±الش±±فاء) .توج±±د عالق±±ة ارتب±±اط موجب±±ة معنوي±±ة
بين :مقياس جوده الحياه ومقياس التعافي (الشفاء) ،وايضا ±مقياس التمكين ومقياس التع±افي (الش±فاء) ،وايض±ا
مقي±±اس المتالزم±±ه الس±±لبيه وااليجابي±±ه و مقياس±±ي العج±±ز المكتس±±ب .وهن±±اك عالق±±ة س±±لبية بين مقي±±اس التمكين
ومقياس العجز المكتسب.
االستنتاج:
بنا ًء على نتائج الدراسة الحالية ،كشفت هذه الدراسة أن تدخل التمكين ك±±ان متفوقً±±ا في تقلي±±ل العج±±ز،
أيض±ا
وتحسين معدل الشفاء والتعافي ،وتقليل األعراض النفسية وتحسين جوده الحياة .أظه±±رت ه±±ذه الدراس±±ة ً
أن محت±±وى ±الت±±دخل وطريق±±ة توص±±يله ك±±ان مقب±±واًل ويمكن تنفي±±ذه بس±±هولة عن طري±±ق العي±±ادات الخارجي±±ة
لألمراض النفسية .كشفت الدراس±ة عن إمكاني±ة تض±مين ت±دخالت التمكين كج±زء من ت±دخل نفس±ي اجتم±اعي
شامل .كما أشارت هذه الدراسة إلى أن التدخل التمكيني كان تدخالً فعاالً عند تكامله مع العالج كالمعتاد±.
التوصيات:
.عنوان الرساله :تأثير تدخل التمكين على العجز والشفاء وجوده الحياة بين مرضي الفصام
:لجنه االشراف
التوقيع الوظيفه االسم
أستاذ بقسم التمريض النفسي والصحه أ.د/منى أحمد البلشه 1
النفسيه
كليه التمريض – جامعه المنصوره
مدرس بقسم التمريض النفسي والصحه د /عزه ابراهيم عبد الرؤوف 2
النفسيه
كليه التمريض – جامعه المنصوره
أستاذ بقسم التمريض النقسى والصحه أ.د /ميرفت مصطفي الجنيدى 2
النفسيه
كليه التمريض – جامعه االسكندريه
أستاذ االمراض العصبيه والنفسيه أ.د /أحمد جمال عزب 3
كليه الطب -جامعه المنصوره
.عنوان الرساله :تأثير تدخل التمكين على العجز والشفاء وجوده الحياة بين مرضي الفصام
:لجنه االشراف
مدرس بقسم التمريض النفسي والصحه د /عزه ابراهيم عبد الرؤوف 2
النفسيه
كليه التمريض – جامعه المنصوره
رﺳﺎﻟﺔ ﻋﻠﻤﯿﺔ
مقدمه من
المشرفين
أ.د /منى أحمد البلشه