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Impact of a Contextual Intervention on Child Participation

and Parent Competence Among Children With Autism


Spectrum Disorders: A Pretest–Posttest
Repeated-Measures Design

Winnie Dunn, Jane Cox, Lauren Foster, Lisa Mische-Lawson,


Jennifer Tanquary

KEY WORDS OBJECTIVE. We tested an occupational therapy contextual intervention for improving participation in
 activities of daily living children with autism spectrum disorders and for developing parental competence.

 autistic disorder METHOD. Using a repeated-measures pretest–posttest design, we evaluated the effectiveness of a con-
textually relevant reflective guidance occupational therapy intervention involving three components: au-
 education
thentic activity settings, family’s daily routines, and the child’s sensory processing patterns (Sensory
 parenting
Profile). We used these components to coach 20 parents in strategies to support their child’s participation.
 professional–family relations Intervention sessions involved reflective discussion with parents to support them in identifying strategies to
 sensation meet their goals and make joint plans for the coming week. We measured child participation (Canadian
 sensory threshold Occupational Performance Measure, Goal Attainment Scaling) and parent competence (Parenting Sense of
Competence, Parenting Stress Index).
RESULTS. Results indicated that parents felt more competent and children significantly increased par-
ticipation in everyday life, suggesting that this approach is an effective occupational therapy intervention.

Dunn, W., Cox, J., Foster, L., Mische-Lawson, L., & Tanquary, J. (2012). Impact of a contextual intervention on child par-
ticipation and parent competence among children with autism spectrum disorders: A pretest–posttest repeated-measures
design. American Journal of Occupational Therapy, 66, 520–528. http://dx.doi.org/10.5014/ajot.2012.004119

F
Winnie Dunn, PhD, OTR, FAOTA, is Professor and amily-centered practice (Dunst, Bruder, Trivette, & Hamby, 2006) empha-
Chair, Department of Occupational Therapy Education,
sizes practitioner–caregiver partnerships (McWilliam, 2010) and principles
School of Health Professions, University of Kansas
Medical Center, 3033 Robinson Hall, Mailstop 2003, such as use of family resources to generate solutions to family-identified goals,
3901 Rainbow Boulevard, Kansas City, KS 66160-7602; family uniqueness, and interventions in authentic contexts (e.g., Dunn, 2011;
wdunn@kumc.edu LaVesser & Berg, 2011). Twenty years of studies (e.g., Ackland, 1991; Dunst
Jane Cox, MS, OTR, is Clinical Assistant Professor,
et al., 2006) have shown that with professional support, parents and teachers
Department of Occupational Therapy Education, University effectively promote positive child outcomes. Parent-implemented interventions
of Kansas Medical Center, Kansas City. involve identifying everyday activities, settings, and child interests to support
Lauren Foster, OTD, OTR, is Clinical Assistant
child learning during everyday activities (Dunst, 2006). For example, daily
Professor, Department of Occupational Therapy Education, routines such as dressing, eating, sleeping, car rides, and playing (Doo & Wing,
University of Kansas Medical Center, Kansas City. 2006; Dunst et al., 2006; King et al., 2003; Shani-Adir, Rozenman, Kessel, &
Engel-Yeger, 2009) can serve as intervention contexts that yield positive child
Lisa Mische-Lawson, PhD, RRT, is Assistant
Professor, Department of Occupational Therapy Education, outcomes (e.g., Darrah et al., 2011; Law et al., 2011). Spagnola and Fiese
University of Kansas Medical Center, Kansas City. (2007) described the dinnertime routine to demonstrate how typical routines
can be sources of predictable, repeated learning opportunities.
Jennifer Tanquary, MEd, is Research Program
Administrator, Department of Occupational Therapy
Coaching is an evidence-based intervention method that is family centered
Education, University of Kansas Medical Center, Kansas and promotes adult learning (McWilliam, 2010; Rush & Shelden, 2011).
City. Coaching occurs in family settings, promotes parent-directed goals and sol-
utions, and builds parents’ capacity to identify and implement interventions
during life routines (Dunst et al., 2006; Graham, Rodger, & Ziviani, 2010).

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Given that coaching focuses on building parents’ corded other family services but did not control for them.
capacity to design their own solutions, we consider the We excluded children with typical sensory patterns.
impact of contextual interventions on parental compe-
Measures
tence. Parents of children with autism spectrum disorders
(ASD) often experience more stress (Mori, Ujiie, Smith, Sensory Profile. In the SP, the caregiver answers 125
& Howlin, 2009), and home-based, parent-directed prac- questions about the child’s sensory experiences on a
tices may reduce stress and increase competence (e.g., King, 5-point Likert scale. The SP reports internal consistency
Teplicky, King, & Rosenbaum, 2004). ranging from .41 to .91 and construct validity (.517–.796)
Thus, to adequately address the needs of families with the School Function Assessment (Coster, Deeney,
raising children with ASD, occupational therapists must Haltiwanger, & Haley, 1988). Discriminant validity has
consider evidence-based interventions that reflect family- been reported in many studies over the past decade (Dunn,
centered care, occur in natural environments, and reflect Myles, & Orr, 2002; Engel-Yeger, 2008; Kientz & Dunn,
interests of families with children with ASD (Bruder, 1997; Rogers, Hepburn, & Wehner, 2003; Shani-Adir
2010). Knowing that children with ASD have more in- et al., 2009; Tomchek & Dunn, 2007; Watling, Deitz,
tense sensory processing, we hypothesized that providing & White, 2001). The SP yields four processing scores
contextual interventions within daily routines informed (seeking, avoiding, sensitivity, registration) and six sensory
by the child’s sensory patterns would improve parental scores (auditory, visual, proprioception, vestibular, tactile,
competence and child outcomes. We used Dunn’s (1997, oral; Dunn, 1999).
2001, 2008) model of sensory processing—which out- Canadian Occupational Performance Measure. The Ca-
lines four patterns of seeking, avoiding, sensitivity, and nadian Occupational Performance Measure (COPM; Law
registration—combined with occupational therapy using et al., 1998) is an outcome-based assessment; caregivers
a contextually relevant, guided approach to examine two identify issues in self-care, productivity, and leisure. Pa-
research questions: When parents participate in contex- rents rate performance and satisfaction (scores range from
tual occupational therapy interventions, 1 to 10). Psychometric properties include internal con-
1. Do children increase their participation in family sistencies of .56 and .71, respectively, and test–retest re-
activities and routines? liability of .80 (Law et al., 1998; Law, Baum, & Dunn,
2. Do parents increase their competence and de- 2005). Intervention goals come from parent-identified
crease stress in their parenting role (i.e., parental issues. Change scores indicate met outcomes (Law et al.,
competence)? 1998). Consistent with Darrah et al. (2011), we used the
COPM to support parents in developing functional
goals.
Method Goal Attainment Scaling. Goal Attainment Scaling
(GAS; Schaaf & Nightlinger, 2007) quantifies goal prog-
Research Design
ress in everyday life. Miller, Schoen, James, and Schaaf
We used a one-group repeated-measures pretest–posttest (2007) reported an interrater reliability of .67 with various
research design to investigate whether contextually rele- populations. To use GAS, one identifies current behavior,
vant interventions led to (1) increased child participation creates incremental steps toward desired behavior, and
and (2) increased parental competence and decreased then evaluates level of goal attainment at the conclusion of
perceived stress. We obtained approval from the Human the intervention. Studies have indicated that GAS is an
Subjects Committee at the University of Kansas Medical effective posttest measure for parents to report behavior
Center. Parents provided informed consent; children ³ change (Graham et al., 2010; Miller et al., 2007). For
age 7 provided assent. this study, parents identified goals and therapists coached
parents in scaling them incrementally.
Participants
We recorded parents’ exact words and continued
We recruited families who have children with ASD (based asking reflective questions until GAS had five levels (we
on parent reports) ages 3–10 through schools and support used a 5-point scale for analyses). Parents indicated that
groups in a Midwestern suburban area. We selected each step represented satisfactory progress (Graham et al.,
families on a first-come, first-served basis when parents 2010).
indicated that they had unmet needs in their family life Parenting Stress Index–Short Form. The Parenting
and when children had at least one sensory pattern out- Stress Index–Short Form (PSI–SF; Abidin, 1995) is a 36-
side typical (Sensory Profile [SP]; Dunn, 1999). We re- item self-report measure (responses are made on a 5-point

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Likert scale) of parent responses to life events. Validity settings distinguish this intervention from traditional
and reliability are reported in the manual, along with a therapy, which might occur in clinic interactions with
.94 correlation between the short and long form. Recent therapists. Evidence has indicated that children get more
reliability estimates ranged from .84 to .93 for the Pa- practice and develop and generalize skills when inter-
rental Distress subscale (Zaidman-Zait et al., 2010). In- ventions are embedded within routines (e.g., getting
ternal consistency between subtests and the total score dressed, playing, sitting in grocery cart; Dempsey &
was .90 and remained the same 1 yr later (Haskett, Dunst, 2004; Law, Garrett, & Nye, 2004).
Ahern, Ward, & Allaire, 2006). Haskett et al. (2006) also We used SP data, expertise about sensory process-
reported discriminant validity by comparing the PSI–SF ing, and task analysis to consider the impact of each
with six measures of emotional health, parental percep- child’s sensory patterns on routines and settings. In
tions of child adjustment, and parenting behaviors of conversations with parents, we linked sensory processing
parents who were or were not abusive; five comparisons principles to their family’s routines and settings, so that
yielded significant differences, with Cohen’s ds (indi- parents learned how their children’s sensory processing
cating effect size) ranging from 0.22 to 2.02. patterns might affect participation. One parent who had
Parenting Sense of Competence Scale. The Parenting successfully used visual schedules with an older child
Sense of Competence Scale (PSOC; Ohan, Leung, & made one for her younger child’s morning routine but
Johnston, 2000; Rogers & Matthews, 2004) is a 17-item found that it did not help. The therapist coached, “Let’s
scale (responses range from 1 5 strongly agree to 6 5 look at your daughter’s sensory patterns and see if we
strongly disagree) that measures parental self-efficacy and can see why the visual schedule didn’t work.” Through
satisfaction on the basis of factor analyses. Gilmore and coaching, the mother realized her daughter’s auditory
Cuskelly (2008) accounted for 50% of variance among strengths and decided to try a kitchen timer instead,
1,200 parents with these factors. Graham et al. (2010) because that approach took advantage of the daughter’s
reported that the PSOC was an effective measure of strength in auditory processing. The timer prompted her
change. daughter to get out of the shower and move through her
The COPM, GAS, PSI–SF, and PSOC formed the routine.
Outcomes Measures Battery (OMB). During the first intervention session, therapists met
with parents to review their priorities from the COPM,
Intervention GAS, and activity configurations (i.e., outline of family’s
Two occupational therapists provided 10 intervention daily schedule) to provide the settings and routines
sessions per family; sessions lasted approximately 1 hr components of the contextual interventions. Using SP
(total 5 10 hr) over 12–15 wk. The intervention reflected findings, therapists coached parents to design interven-
principles of context therapy (Darrah et al., 2011) and tion plans for Week 1. At each subsequent visit, they
contained three intervention characteristics: activity set- discussed what had happened since the last visit. When
tings, daily life routines, and sensory processing patterns. closing each session, parent and therapist made a joint
Figure 1 illustrates the relationships among intervention plan detailing the family’s strategies; the plan reflected
characteristics and outcomes (successful child participa- how sensory knowledge informed the strategies in au-
tion, increased parental competence). thentic settings and life routines for that week.
Parents identified goals and selected activity settings in We followed coaching principles outlined by Rush
which they needed support on the basis of their priorities and Shelden (2011) and consistent with context therapy
and interests (e.g., home, park, grocery store). Activity (Darrah et al., 2011) to guide intervention planning.
Therapists used reflective statements and questions to
invite parents to discuss possible ways to achieve those
goals. Therapists avoided yes–no questions; rather, they
fostered insights. For example, they would ask, “How
does he wash his face now?” (awareness); “What other
times does he get things on his face; how does he act
during those other times?” (analysis); “I wonder how we
could use successful past strategies to change his routine?”
(alternatives); and “What supports do you need to try
that?” (action). Therapists did not offer expert advice or
Figure 1. Illustration of contextual intervention and outcomes. directives. Instead, they continued to ask questions to

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uncover what the child’s participation would look like routines and services. They completed the OMB at TEST
(e.g., “If his performance was a little better, what would 2, and therapists scheduled intervention sessions.
he be doing instead?”) and make comments until parents During the intervention period, therapists met with
identified specific characteristics that would represent parents (face to face or by phone) according to their needs
progress or goal achievement for them. and at their convenience (10 sessions). During these
sessions, therapists coached families to support their
Maintaining Fidelity of Contextual Intervention children using three intervention characteristics. TEST 3
Two occupational therapists provided interventions to 10 occurred after 10 intervention sessions. During sustain-
families each. Therapists attended statewide training in ability (4 wk), therapists and parents did not meet; families
coaching, which involved 4 days of training with 6 mo of continued routines and services from other sources. Fi-
follow-along coaching (Rush & Shelden, 2011). As di- nally, during TEST 4 therapists and parents completed the
rector of a statewide evidence-based practice project, the OMB again.
senior researcher, Winnie Dunn, collaborated to develop
materials used in the statewide training. After intensive Data Analysis
training with simulated practice, therapists implemented We used a within-subject (repeated-measures) analysis of
coaching strategies with actual families and obtained variance with post hoc testing to determine effects for time
feedback from experienced coaches. They kept coaching (Figure 1). We made four comparisons:
logs and analyzed them for reflective questioning strate- 1. TEST 1–TEST 2 (baseline): Do outcomes change
gies. This process continued until logs contained re- over a 4-wk period without additional intervention?
flective questions and comments and did not contain 2. TEST 2–TEST 3: Is the intervention effective?
directives. The intervention was manualized for future 3. TEST 3–TEST 4: Are effects sustained without
publication. contact?
The research team met weekly to review research 4. TEST 1–TEST 4: Are there overall changes from first
procedures and provide coaching to therapists; recordings to last meeting?
from visits served as references for these meetings. The With four pairwise comparisons, Holm’s sequential
therapists also met weekly to ensure they were providing Bonferroni procedure controlled for familywise error
consistent intervention. rates (Green & Salkind, 2011). With this correction, we
set p < .0125 as our significance level. We used poly-
Data Collection
nomial contrast calculations to identify the source of
During testing, parents and therapists completed the significant differences when there was overall significance.
OMB. The same therapist provided testing and inter-
ventions to families. Intervention therapists were blind to
parents’ responses on the PSI–SF and PSOC; parents Results
completed them, and other team members entered and Sample Characteristics
scored their forms. They were not blind to parents’ results
on the GAS and COPM, which they needed to guide Participants were parents of 17 boys and 3 girls, ages 3–10 yr
interventions. (mean 5 6.5 yr). Twelve children had autism, 1 had As-
Figure 2 details data collection timelines. During perger syndrome, and 7 had ASD and another diagnosis
TEST 1 (the initial visit after consent), therapists re- (e.g., developmental delay, attention deficit hyperactivity
viewed the study and completed the OMB and an activity disorder, depression). Physicians diagnosed 11 participants;
configuration about daily routines of interest to the a team diagnosed the other 9 participants. Ten children took
family. During baseline (4 wk), families continued usual supplements (e.g., melatonin, homeopathics) or medication
(e.g., citalopram).
Nineteen mothers and 1 father served as participants.
Two families had one child; others had 2–6 children.
Eighteen families were suburban; 2 families were urban.
One family was Latino, 17 were White, and 2 reported
Figure 2. Timeline for data collection. more than one ethnicity. Families reported household
a
During testing periods, therapists administered the Outcome Measures Bat- income levels (1, <$30,000; 5, $30,000–$75,000; 14,
tery: Canadian Occupational Performance Measure, Goal Attainment Scaling,
Parenting Stress Index–Short Form, and Parenting Sense of Competence
>$75,000). All parents had some college education. All
Scale. children received other services.

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Sensory Profile Patterns
For 10 children, all four quadrant scores were 1–2 stan-
dard deviations greater than those of their peers without
autism. Nine children had three or four quadrants in the
more-than-others categories. One child had only Regis-
tration in the more-than-others category.

Intervention Characteristics
The contextual intervention characteristics (active ingre-
dients) were activity settings and routines and the child’s
sensory patterns. Parents selected activity settings—home Figure 3. Mean scores for child outcomes across testing periods
(n 5 20 children, 44 goals).
(74%; e.g., bedroom, bathroom, transitions) and com-
Note. COPM 5 Canadian Occupational Performance Measure; GAS 5 Goal
munity (22%; e.g., church, parking lots, stores)—and Attainment Scaling.
routines—self-care (49%; e.g., dressing, eating, sleeping,
hygiene) and leisure (37%; e.g., playing, watching TV). nificant linear effect for defensive responding (7 items;
The third characteristic was the child’s sensory pat- F [1, 19] 5 17.049, p 5 .001, h2 5 .516) and parental
terns. When creating joint plans, therapists referenced distress (12 items; F [1, 19] 5 13.031, p 5 .002, h2 5
sensory patterns: seeking (21%), avoiding (1%), sensi- .449). Comparison 4 was significant (ps 5 .001). For
tivity (10%), registration (13%), and two or more pat- defensive responding, parents began the study at the 96th
terns (55%). They used sensory system information: percentile and ended the study at the 70th percentile on
auditory (13%), visual (26%), touch (20%), movement the basis of PSI–SF scoring criteria. For parental distress,
(17%), body position (13%), and other (e.g., oral; 11%). parents went from the 85th percentile to the 50th
percentile.
Children’s Participation PSOC results indicated that parents experienced
For the COPM, results indicated a significant time effect a significant improvement in efficacy. The analysis of
for Performance (Wilks’s L 5 .137, F [4, 16] 5 27.408, variance indicated a significant time effect (Wilks’s L 5
p < .001, h2 5 .863) and Satisfaction (Wilks’s L 5 .181, .335, F [4, 16] 5 10.065, p 5 .001, h2 5 .665). Poly-
F [4, 16] 5 19.546, p < .001, h2 5 .819). Polynomial nomial contrasts indicated a significant linear effect (F [1,
contrasts for COPM indicated a significant linear effect 19] 5 22.078, p < .000, h2 5 .580). Only Comparison 4
for Performance scores (F [1, 19] 5 90.907, p < .001, was significant (p < .001), with parents increasing their
h2 5 .858). Comparisons 2 and 4 were significant (both sense of efficacy from the first visit to the last. Compared
ps < .001). Ratings changed from 3.6 to 7.0 (10-point with a normative Australian sample (Gilmore & Cuskelly,
scale). Polynomial contrasts for COPM Satisfaction in- 2008), parental efficacy levels in this study were 2 standard
dicated a significant linear effect (F [1, 19] 5 66.502, p < deviations higher than average. Parental satisfaction did
.001, h2 5 .816). Comparisons 2 and 4 (both ps < .001) not change in our study; however, when compared with
and Comparison 1 (p 5 .011) were significant. Ratings Gilmore and Cuskelly’s (2008) data, parental satisfaction
changed from 3.2 to 7.0 (10-point scale). Figure 3 il- in our study was about average.
lustrates changes across time periods.
For GAS, results indicated a significant time effect as Discussion
well (Wilks’s L 5 .070, F [4, 16] 5 66.328, p < .001, h2 5 We found that a 10-session contextual intervention was
.930). Polynomial contrasts indicated a significant effective in improving children’s participation and pa-
linear effect (F [1, 19] 5 215.963, p < .001, h2 5 rental competence among families with children with
.927). Comparisons 2 and 4 (both ps < .001) were ASD. We provided interventions by meeting with parents
significant. The average change for goals was 2 points to discuss their goals and supporting them in identifying
(4-point scale; Figure 3). new ways to achieve their goals. Our intervention shares
core principles of context therapy as reported in Darrah
Parental Competence et al. (2011); for example, work centers on parents within
For the PSI–SF, results indicated a significant time effect the family’s authentic environments and activities. We
(Wilks’s L 5 .436, F [4, 16] 5 6.037, p < .007, h2 5 focused on building the family’s capacity to achieve its
.564). Polynomial contrasts for subtests indicated a sig- own goals. Findings indicated that this brief intervention

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(10 sessions) had a strong positive impact on parents and Children’s Participation
children. Study findings indicate significant improvements in
Intervention Characteristics children’s performance (COPM and GAS). Parents ex-
hibited positive perceptions of their children’s participa-
Because our intervention focused on families in natural tion through the sustainability period, suggesting that
environments, it is not surprising that the bulk of activity
families discovered successful methods for managing their
settings were home (74%) and community (22%). This
daily lives.
study illustrated that although children received special
Families set 44 goals (mean 5 2.4 goals, range 5 1–5
services through school, families continued to have sig-
goals). When they felt satisfied, parents identified new
nificant needs for support in their daily lives. In general,
goals based on GAS. Sometimes parents discontinued goals
therapy services for self-care are not the scope of practice
because they realized during coaching what the basis of
for school personnel. Self-care represented nearly half of
their child’s behavior was or determined that the behavior
goals, and playing represented 24% of goals. Although all
was appropriate. For example, one mother decided to
families focus on self-care and playing at home and in the
address playing and realized that traditional playing
community, the increased intensity of managing daily life
routines were not enjoyable for her son. She discovered
with children who are vulnerable (e.g., those with ASD)
that he preferred helping to fold laundry. By redefining
may require more attention. Other researchers have
what was satisfying, she recognized his strengths and
reported that family life revolves around ASD and that
interests.
families have only fleeting moments of feeling like a family
Parents asked for help in many areas, including
(DeGrace, 2004). Occupational therapists might consider
dressing, eating, getting shots, riding in cars, and
how to reform services for school-age children to include
transitioning from bus to home. Therapists listened
family needs.
carefully to parents’ explanations about goal areas and
Parents talked about intervention characteristics as
they told us how the joint plans had worked the previous guided discussions so that together they specified levels
week. In early team meetings, we discussed what we of behavior for GAS. Therapists asked questions such
thought parents could do to achieve their goals. Because as, “What would it look like if she cared for her own
our intervention was not an expert approach, therapists hair properly?” Although this process took time, ask-
did not give parents these ideas. We asked ourselves how to ing reflective questions to specify measurement levels
support parents to identify strategies in their own lives and on GAS invited parents to think about what aspects of
gain insight into their situation. We presumed that parents routines were going well and which needed adjustments.
had the resources to achieve their goals (strengths ap- For children’s outcomes, Comparison 2 revealed
proach) and that we were responsible for providing re- changes from the intervention period, and Comparison 4
flective feedback and questions to reveal their capacity and indicated overall changes from the beginning to the end
resources. Using this reflective support, parents identified of the study; outcomes at both time points improved
and implemented strategies that we could not have significantly. No changes occurred during waiting peri-
imagined. For example, one parent wanted her son to ods, confirming that children’s participation did not
behave better after school. In coaching sessions with each change during baseline (Comparison 1) and remained
other, we thought he needed a snack. However, in sub- high after the study (Comparison 3). Parents said they
sequent weeks, this mother realized through reflective benefited from dedicated time to talk about their family
discussions and joint plans that giving her son attention for and being accountable to someone for trying things each
a few minutes after school fostered his playing alone until week.
dinner. Had we given our expert advice, we would have There was one exception: The COPM Satisfaction
misguided this family. score improved during Comparison 1. Perhaps during
Sometimes it was helpful to understand why plans baseline, parents became more aware of satisfaction factors
did not work. One mother used music for morning regarding their child’s participation and so had a different
routines because her son loved music, but it did not perspective when intervention began because they had
motivate him to get out of bed. In joint planning, the thought about it for 4 wk. During the second visit, pa-
mother wondered whether he was hungry; he was also rents and therapists may have been more comfortable
motivated by sweet flavors, so she decided to provide with their new relationships. Parents expected to say what
sweet breakfast foods. was wrong with their children; because our approach

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emphasized strengths, TEST 1 may have reflected dis- professionals can feel rushed with families because of
satisfaction, thereby dampening initial scores. caseloads and other responsibilities; this intervention
takes time to implement and achieve results. Perhaps
Parental Competence parents’ experience of trying strategies with their children
On the PSI–SF, parents reported significantly lower and achieving goals they set allows them to build their
distress and less defensive responding (e.g., “I feel trapped competence.
by my responsibilities as a parent”). Additionally, pa- Although parents’ satisfaction ratings did not change
rental distress was at the 50th percentile at study’s end. (PSOC), they maintained high satisfaction as parents
Considering that these parents are handling challenging (70%). The Satisfaction scale reflects parental emotions
daily lives with children who have ASD, this finding is (Rogers & Matthews, 2004); parents’ scores indicated
notable. As parents continued to reflect on their lives and that they have relatively low levels of frustration and
identify strategies to support their family, perhaps they anxiety about parenting. Even with the intense life they
began to understand their own capacity to find solutions experience with their children, these parents indicated
for situations that were overwhelming before inter- that they were satisfied with being a parent.
vention. These findings are consistent with those of Parents made plans every week; not all strategies were
other studies of parent empowerment (e.g., Nachshen & effective. Therapists completed an intervention docu-
Minnes, 2005). mentation form at each session that included a question
Parents reported significant improvements in parental about how effective parents felt with joint plans. Across all
efficacy. According to Rogers and Matthews (2004), the plans, parents said joint plans worked well 26% of the
PSOC Efficacy scale assesses capability and problem- time, were “okay” 23% of the time, and were not effective
solving ability (e.g., “If anyone can find the answer to 51% of the time. Because efficacy improved and distress
what is troubling my child, I am the one”). Efficacy may diminished, perhaps the iterative problem-solving process
be inversely related to distress, because distress reduced led to changes for parents. An expert approach might
and efficacy increased significantly. Parents demonstrated bypass the growth that is possible when a parent has to
efficacy by reporting how the joint plan worked, planning consider how to meet a goal.
with the therapist, and offering their own suggestions
about how to make adjustments to achieve goals. Study Limitations
Sometimes, parents made adjustments to joint plans Because families volunteered, we might have had families
without direct therapist support. Parents also demon- who were more motivated to follow through with plans.
strated efficacy when they had “aha” moments during Therapists collected test data with families they served,
coaching conversations; for example, 1 parent said she which may have affected results because they had de-
realized that going to his brother’s soccer game was not veloped a relationship and were invested in positive
fun for her son and that they were all more satisfied when outcomes. However, comments such as those reported
she went to the game and got him a babysitter. Before the here suggest that parental insights had a strong part to play
study, she thought that she was neglecting him by leaving in the outcomes. In future studies, we will need to specify
him at home. the details of the intervention process using transcripts
Efficacy levels were also notably stronger than those of from sessions and from coaching meetings; until then,
98% of typical parents (Gilmore & Cuskelly, 2008). a provider may not have enough information to imple-
Perhaps parents who must pay vigilant attention develop ment these interventions and achieve similar outcomes.
a stronger sense of themselves as parents. This example
may be one of an “uber” strength, a characteristic of the Future Research
person that has required his or her attention and so be- We need to establish clear fidelity parameters so we can
comes both a unique feature of the person’s identity and replicate interventions and findings with other providers.
a strength because of the attention the person has given to We need to conduct additional studies to build evidence
its development (Dunn, 2010). for contextual interventions; even this small sample
Efficacy levels were significantly improved only for yielded good power and effect size estimates, suggesting
Comparison 4 (i.e., from the beginning to the end of the that this approach has promise. Parents and therapists both
study). Perhaps parents need time to feel less distressed and felt meeting in person at first was helpful, so identifying
more confident. These data suggest that parents need time the most salient features of the intervention process so we
to process their child’s progress, contextual factors, and can train experienced occupational therapists and faculty
their own reactions to their child’s behavior. Sometimes will be critical to moving this evidence into practice.

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Implications for Occupational a disability. Journal of Intellectual and Developmental
Disability, 29, 40–51. http://dx.doi.org/10.1080/1366
Therapy Practice 8250410001662874
The results of this study have the following implications Doo, S., & Wing, Y. K. (2006). Sleep problems of children
for occupational therapy practice: with pervasive developmental disorders: Correlation with
• This study contributes evidence that families are parental stress. Developmental Medicine and Child Neurology,
48, 650–655. http://dx.doi.org/10.1017/S001216220600137X
strong resources for managing their own lives. By pro-
Dunn, W. (1997). The impact of sensory processing abilities
viding a structure for problem solving (intervention on the daily lives of young children and families: A con-
characteristics) and reflective guidance (coaching), we ceptual model. Infants and Young Children, 9, 23–35.
supported parents in finding unique ways to achieve http://dx.doi.org/10.1097/00001163-199704000-00005
prioritized goals. Dunn, W. (1999). The Sensory Profile manual. San Antonio,
• Interventions focused solely on supporting families to TX: Psychological Corporation.
achieve their prioritized goals lead to significant im- Dunn, W. (2001). The sensations of everyday life: Empirical,
theoretical, and pragmatic considerations. American Jour-
provement in children’s participation in ways that pa-
nal of Occupational Therapy, 55, 608–620. http://dx.doi.
rents found useful. org/10.5014/ajot.55.6.608
• Using coaching with parents to find strategies to Dunn, W. (2008). Living sensationally: Understanding your
achieve their goals leads to the parents feeling more senses. London: Jessica Kingsley.
competent in their parenting role. Dunn, W. (2010, December). You say “deficit” I say “defines
• Linking sensory patterns to daily life activities and me”: Daring to celebrate the contributions of people on the
settings provides a structure for problem solving. s autism spectrum. Paper presented at the AOTA Specialty
Conference on Autism, Baltimore.
Dunn, W. (2011). Best practice occupational therapy in commu-
Acknowledgments nity service with children and families. Thorofare, NJ: Slack.
Dunn, W., Myles, B. S., & Orr, S. (2002). Sensory processing
We are grateful to the families who participated in this
issues associated with Asperger syndrome: A preliminary
study; their insights lit the way to better practices for all investigation. American Journal of Occupational Therapy,
families. We acknowledge the Kansas Center for Autism 56, 97–102. http://dx.doi.org/10.5014/ajot.56.1.97
Research and Training for providing funding. We also Dunst, C. J. (2006). Parent-mediated everyday child learning
acknowledge the Department of Occupational Therapy opportunities: I. Foundations and operationalization.
Education at the University of Kansas for providing an CASEinPoint, 2(2), 1–10. Retrieved from www.fippcase.
environment of discovery, supporting all of us to think big org/caseinpoint/caseinpoint_vol2_no2.pdf
Dunst, C. J., Bruder, M. B., Trivette, C. M., & Hamby, D. W.
about possibilities for occupational therapy practice and
(2006). Everyday activity settings, natural learning envi-
research.
ronments, and early intervention practices. Journal of Pol-
icy and Practice in Intellectual Disabilities, 3, 3–10. http://
References dx.doi.org/10.1111/j.1741-1130.2006.00047.x
Engel-Yeger, B. (2008). Sensory processing patterns and daily
Abidin, R. (1995). Parenting Stress Index: Short Form. Lutz, FL:
activity preferences of Israeli children. Canadian Journal of
Psychological Assessment Resources.
Occupational Therapy, 75, 220–229.
Ackland, R. (1991). A review of the peer coaching literature.
Gilmore, L., & Cuskelly, M. (2008). Factor structure of the
Journal of Staff Development, 12, 22–27.
Bruder, M. (2010). Early childhood intervention: A promise to Parenting Sense of Competence scale using a normative
children and families for their future. Exceptional Children, sample. Child: Care, Health and Development, 35, 48–55.
26, 339–355. http://dx.doi.org/10.1111/j.1365-2214.2008.00867.x
Coster, W., Deeney, T., Haltiwanger, J., & Haley, S. (1988). Graham, F., Rodger, S., & Ziviani, J. (2010). Enabling oc-
School Function Assessment. San Antonio, TX: Pearson. cupational performance of children through coaching
Darrah, J., Law, M. C., Pollock, N., Wilson, B., Russell, D. J., parents: Three case reports. Physical and Occupational Ther-
Walter, S. D., et al. (2011). Context therapy: A new in- apy in Pediatrics, 30, 4–15. http://dx.doi.org/10.3109/
tervention approach for children with cerebral palsy. 01942630903337536
Developmental Medicine and Child Neurology, 53, 615–620. Green, S., & Salkind, N. (2011). Using SPSS for Windows and
http://dx.doi.org/10.1111/j.1469-8749.2011.03959.x Macintosh: Analyzing and understanding data. Boston:
DeGrace, B. W. (2004). The everyday occupation of families Prentice Hall.
with children with autism. American Journal of Occupa- Haskett, M. E., Ahern, L. S., Ward, C. S., & Allaire, J. C.
tional Therapy, 58, 543–550. http://dx.doi.org/10.5014/ (2006). Factor structure and validity of the Parenting
ajot.58.5.543 Stress Index–Short Form. Journal of Clinical Child and
Dempsey, I., & Dunst, C. J. (2004). Help-giving styles and Adolescent Psychology, 35, 302–312. http://dx.doi.org/10.
parent empowerment in families with a young child with 1207/s15374424jccp3502_14

The American Journal of Occupational Therapy 527


Downloaded from http://ajot.aota.org on 05/26/2020 Terms of use: http://AOTA.org/terms
Kientz, M. A., & Dunn, W. (1997). A comparison of the mental disabilities. Journal of Intellectual Disability
performance of children with and without autism on the Research, 49, 889–904. http://dx.doi.org/10.1111/j.1365-
Sensory Profile. American Journal of Occupational Therapy, 2788.2005.00721.x
51, 530–537. http://dx.doi.org/10.5014/ajot.51.7.530 Ohan, J. L., Leung, D. W., & Johnston, C. (2000). The Par-
King, G., Law, M., King, S., Rosenbaum, P., Kertoy, M. K., & enting Sense of Competence Scale: Evidence of a stable
Young, N. L. (2003). A conceptual model of the factors factor structure and validity. Canadian Journal of Behav-
affecting the recreation and leisure participation of children ioural Science/Revue Canadienne des Sciences du Comporte-
with disabilities. Physical and Occupational Therapy in Pediat- ment, 32, 251–261. http://dx.doi.org/10.1037/h0087122
rics, 23, 63–90. http://dx.doi.org/10.1080/J006v23n01_05 Rogers, H., & Matthews, J. (2004). The Parenting Sense of
King, S., Teplicky, R., King, G., & Rosenbaum, P. (2004). Competence Scale: Investigation of the factor structure,
Family-centered service for children with cerebral palsy reliability and validity for an Australian sample. Australian
and their families: A review of the literature. Seminars in Psychologist, 39, 88–96. http://dx.doi.org/10.1080/0005
Pediatric Neurology, 11, 78–86. http://dx.doi.org/10.1016/ 0060410001660380
j.spen.2004.01.009 Rogers, S. J., Hepburn, S., & Wehner, E. (2003). Parent re-
LaVesser, P., & Berg, C. (2011). Participation patterns in pre- ports of sensory symptoms in toddlers with autism and
school children with an autism spectrum disorder. OTJR: those with other developmental disorders. Journal of Au-
Occupation, Participation and Health, 31, 33–39. http: tism and Developmental Disorders, 33, 631–642. http://dx.
//dx.doi.org/10.3928/15394492-20100823-01 doi.org/10.1023/B:JADD.0000006000.38991.a7
Law, M., Baptiste, S., Carswell-Opzoomer, A., McColl, M. A., Rush, D., & Shelden, M. (2011). The early childhood coaching
Polatajko, H., & Pollock, N. (1998). Canadian Occupa- handbook. Baltimore: Paul H. Brookes.
tional Performance Measure (2nd ed.). Ottawa, Ontario: Schaaf, R. C., & Nightlinger, K. M. (2007). Occupational
CAOT Publications. therapy using a sensory integrative approach: A case study
Law, M., Baum, C., & Dunn, W. (2005). Measuring occupa- of effectiveness. American Journal of Occupational Therapy,
tional performance: Supporting best practice in occupational 61, 239–246. http://dx.doi.org/10.5014/ajot.61.2.239
therapy (2nd ed.). Thorofare, NJ: Slack. Shani-Adir, A., Rozenman, D., Kessel, A., & Engel-Yeger, B.
Law, M., Darrah, J., Pollock, N., Wilson, B., Russell, D., Walter, (2009). The relationship between sensory hypersensitivity
S., et al. (2011). Focus on function: A cluster, randomized and sleep quality of children with atopic dermatitis. Pediat-
controlled trial comparing child- versus context-focused in- ric Dermatology, 26, 143–149. http://dx.doi.org/10.1111/j.
tervention for young children with cerebral palsy. Develop- 1525-1470.2009.00904.x
mental Medicine and Child Neurology, 53, 621–629. http:// Spagnola, M., & Fiese, B. H. (2007). Family routines and
dx.doi.org/10.1111/j.1469-8749.2011.03979.x rituals: A context for development in the lives of young
Law, J., Garrett, Z., & Nye, C. (2004). The efficacy of treat- children. Infants and Young Children, 20, 284–299. http://
ment for children with developmental speech and language dx.doi.org/10.1097/01.IYC.0000290352.32170.5a
delay/disorder: A meta-analysis. Journal of Speech, Lan- Tomchek, S. D., & Dunn, W. (2007). Sensory processing in
guage, and Hearing Research, 47, 924–943. http://dx.doi. children with and without autism: A comparative study
org/10.1044/1092-4388(2004/069) using the Short Sensory Profile. American Journal of Oc-
McWilliam, R. (2010). Working with families of young children cupational Therapy, 61, 190–200. http://dx.doi.org/10.
with special needs. New York: Guilford Press. 5014/ajot.61.2.190
Miller, L. J., Schoen, S. A., James, K., & Schaaf, R. C. (2007). Watling, R. L., Deitz, J., & White, O. (2001). Comparison of
Lessons learned: A pilot study on occupational therapy Sensory Profile scores of young children with and without
effectiveness for children with sensory modulation disor- autism spectrum disorders. American Journal of Occupa-
der. American Journal of Occupational Therapy, 61, tional Therapy, 55, 416–423. http://dx.doi.org/10.5014/
161–169. http://dx.doi.org/10.5014/ajot.61.2.161 ajot.55.4.416
Mori, K., Ujiie, T., Smith, A., & Howlin, P. (2009). Parental Zaidman-Zait, A., Mirenda, P., Zumbo, B. D., Wellington, S.,
stress associated with caring for children with Asperger’s Dua, V., & Kalynchuk, K. (2010). An item response the-
syndrome or autism. Pediatrics International, 51, 364–370. ory analysis of the Parenting Stress Index–Short Form
http://dx.doi.org/10.1111/j.1442-200X.2008.02728.x with parents of children with autism spectrum disorders.
Nachshen, J. S., & Minnes, P. (2005). Empowerment in pa- Journal of Child Psychology and Psychiatry, 51, 1269–1277.
rents of school-aged children with and without develop- http://dx.doi.org/10.1111/j.1469-7610.2010.02266.x

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