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Mazing : Infertile Couples and the Quest for

a Child
Margarete Sandelowski, Betty G. Harris, Diane Holditch-Davis

Method
The overall purpose of ihe ongoing research prqect on which this report is based Techniques generic to grounded theory research were
is to explore the transition io parenthood of infertile couples who achieve parent- employed to designate subjects for this study and for data
hood through adoption or biotechnical means. Mazing, the process of negoiiat- collection, analysis and verification. This methodologic ap-
ing the paihs to parenthood, was found to be a key component of that transition proach is a recursive process, itself intended to uncover proc-
and the core variable that integrates the experiences of infutile couples ajier a ess in the phenomenon under investigation. Theoretical
period of trying but failing to have a child of their own on their own. The the- explanations are continually generated on the basis of incom-
o v of mazing is grounded in information obtained from 40 couples who were ing data, and sampling, data collection and verification tech-
designaied for ihis siudy by means of theoreiical sampling. Techniques generic niques are continually subject to modification in order to
to grounded theory research were employed; these included open-ended inter- confirm or refute these explanations.
views, consiant comparison and subject ualidaiion. Mazing, a recursiue, iter- Theoretical sampling (Glaser & Strauss, 1967; Lincoln &
ative and resource-intensive process, includes (a) the construction of a calculus Guba, 1985) was employed to designate the subjects for this
of pursuit, (b) six distinctive paiierns of pursuit, and (c) the refaming o j study. Sampling began with couples who would be most
desire. likely to illuminate infertile couples’ transition to parent-
hood-couples who had experienced difficulty conceiving or
carrying a child and who were currently expecting a child of
* * * their own or waiting to adopt a child. Sampling decisions
were subsequently guided by the need to find comparative
groups of subjects to explicate and validate heuristic theoreti-
cal lines or to saturate theoretical categories. These groups
included a variant group of infertile and expectant couples in

I
nfertile couples’ quest for a child now involves more
options than ever before but not necessarily better which one of the partners had undergone a sterilization rever-
chances of achieving the goal of parenthood. New tech- sal, infertile couples who had already delivered or adopted
nologic developments such as in vitro fertilization and their children prior to entering the study and expectant cou-
the greater availability and acceptability of old solutions to ples with no histories of infertility. Sampling to complete the
infertility such as artificial insemination and adoption offer theory presented in this paper ended at the point of “infor-
hope. Yet the promise of becoming a parent is undermined mational redundancy” (Lincoln & Guba, 1985, p. 202) or
by the relatively low success rates of some of these biotechni- when no new information was obtained from the subjects.
cal procedures and the increasing competition for a decreas- Forty couples provided the data on which this report is
ing supply of adoptable babies. Nevertheless, at least 50 based. They are profiled in Table 1. Because of the costs of
percent of infertile couples who pursue parenthood will reach infertility and adoption services, the sample is fairly homoge-
their goals (Collins, Wrixon, Janes & Wilson, 1983; Kliger, neous in terms of socioeconomic class (middle income), race
1984; Poston & Cullen, 1986). (white) and age (primarily 30s). The childbearing couples
Although infertile couples increasingly are taking alterna-
tive and controversial routes to parenthood, these routes have MARGARETE SANDELOWSKI, R.N., Ph.0.. Alpha Alpha, is Associate Pro-
yet to be fully explored for their impact on individual and fessor, and BETTY G. HARRIS, R.N.. Ph.D.. and DIANE HOLDITCH-
DAVIS, R.N., Ph.D., are both Assistant Professors at University of
family well-being. Accordingly, the overall purpose of the North Carolina at Chapel Hill, School of Nursing. The authors thank Dr.
ongoing project on which this report is based is to explore Phyllis N. Stern for her consultative support and Claudia Earle for the
the transition to parenthood of infertile couples who have design of the figure. This research is supported by Grant #NR01707,
achieved parenthood through adoption or through biotechni- from the National Center for Nursing Research. Correspondence t o
cal means including drugs, artificial insemination, in vitro Professor Sandetowski. UNC-CH #7460 Carrington Hall. Chapel Hill, NC
27599.
fertilization and corrective surgery. This paper addresses a I Accepted for publication June 16,1989.
process within that transition.

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Mazing : Infertile Couples and the Quest for a Child

without histories of infertility had background characteristics childbearing couples were first interviewed in the first trimes-
similar to those of the infertile couples. The sample is varied ter and four in the second trimester; 15 adopting couples
in terms of fertility and parenthood status and type of diagno- were interviewed initially within six months of having
sis, treatment and adoption. Couples were recruited with the obtained approval to adopt an infant; and one couple, five
assistance of nurse, physician and caseworker intermediaries weeks after they learned that a baby would be available
in private physician practices, infertility services, adoption through private adoption. In addition, one adopting couple,
agencies, infertility and adoption support groups; through who had a child placed with them within only two months of
advertising; and through subject and personal referrals. obtaining approval to adopt, was interviewed initially seven
These 40 couples are currently participating, or have com- days after placement of a child. Three infertile couples who
pleted their involvement, in the research project entitled “the had already had their children and were not awaiting an
transition to parenthood of infertile couples, ” which began in additional child were interviewed only once, one to two years
April of 1987. The current protocol for this project calls for after their last child was born or placed.
(a) couples to enter the study as soon as possible after learn- Couples were interviewed together in their homes, each
ing that pregnancy has been achieved or approval to adopt interview lasting from one and one-half to three hours. These
has been obtained; (b) childbearing couples to be interviewed audiotaped interviews were open-ended; couples were asked
five times in the home-three times during the pregnancy, to tell the story of their infertility and their impending or
once within a week of delivery and once when the infant has achieved parenthood. The techniques of probing (Schatzman
been home for three months; and (c) adopting couples to be & Strauss, 1973) and tracking (Daniels & Weingarten, 1983)
interviewed every three to four months until placement and were employed to clarify information and to validate inter-
then one week and three months after placement. viewer interpretations of that information.
The process explicated in this paper was described by the The research protocol was approved by either a Human
couples primarily in the first interview (and in one diary sub- Rights Committee or designated agent at each recruitment
mitted by one of the wives), allowing theoretical closure site. The subjects’ consent was obtained with an approved
within the time and sampling group specified here. Sixteen consent form. Subject privacy was protected by assigning

~-
TABLE 1. Profile of Four Sarnpllna Flrst Research Contact (N = 40)
. - Groups of Couples at -
Factors Contributing Treatment Prior to Type of Adoption
to lnfertility/Sterilitya Target Pregnancy
Grc
- - PSb - - Groups Groups
- -
1
- - 2 - 3 - 1 2 -
- 3
SF snsc
- ISF sp sc
Impairment p steriliza- 3 0 0 FertilitylHormonal drugs 3 Locallprivate agency 8 0
tion (includes vasecto-
my and BTL)

Male factor (excludes 2 5 0 Drugs + AIH 3 Locallpublic agency 4 1


sterilization impair-
ment)

Endometriosis 1 4 2 Drugs + AID 2 Interstate agency 1 0

Ovulatorylhorrnonal d y s 11 7 2 IVF 7 Independent 1 0


f unct ionsC

Hysterectomy 0 3 1 Spontaneous pregnancy 1 International agency 3 0

Cervicallmucus dysfunc- 1 4 1
tion

Tube factor (includes sal- 6 3 0


pingectomy; excludes
impairments p BTL)

Other (includes DES com- 3 3 0


plex, infectionladhes-
ions, immunologic
factor)

No explanation 0 1 0

a Couples fall into more than one catego Couples placed in this category i f they stated this
b Group 1-InfertilelStenlelPregnant (n =76). diagnosis or stated that one or more fertility/
Group 2-InfertilelSterileiWaiting to Adopt (n = 17). hormonal drugs were taken.
Group 3-InfertilelSterilelAlready Parents;
not expectinglwaiting for a child (n = 3). One couple in this group had first child by IVF
Group 4-FertilelPregnant (n = 4). and second child by spontaneous pregnancy.

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Mazing : Infertile Couples and the Quest for a Child

code numbers to interview data and pseudonyms to each


couple.
Constant comparison (Glaser & Straws, 1967; Lincoln &
Guba, 1985) was the principle technique of analysis used with
the interview data. This technique involves moving back and
forth among data sets, comparing elements of the data to dis-
cover the core category that integrates it and accounts for
much of its variation. Consensus was reached on the essential
storyline, categories and components and variations of cate-
gories in a schema outlined by Turner (1981) in weekly meet-
ings held by the three members of the research team. The two
co-investigators acted to check the analysis of the principal
investigator (Rennie, Phillips & Quartaro, 1988, p. 148).
Techniques appropriate to inquiry in the naturalist para-
digm were employed to ensure the rigor of this investigation
(Lincoln & Guba, 1985; Sandelowski, 1986). These in-
cluded prolonged contact with subjects; triangulation across R refraining desire
informants, interviewers and data collection techniques; * to have/to get a baby

informant validation; and continuous review of decisions Figure 1. The theory of mazing.
relating to sampling and other elements of the research proto-
col. The informants and the three members of the research thine process was to have a child, the ultimate goal was to exit
team comprised the “panel of experts” (Stern, 1989). Cou- the maze with no regrets, an objective accounting for infertile
ples who had completed the study were mailed a draft of this couples’ high tolerance for suffering and failure and low toler-
research report to determine the “recognizability” (Lincoln ance for the “should-haves” and “what-ifs” that threatened
& Guba, 1985, p. 314) of their experience in the investiga- to shadow their lives. Ellen Gorman recalled an infertile
tors’ reconstruction of it. A consultant in grounded theory friend telling her that she would “regret ...that I didn’t try
research contributed to the auditing of the evolving research everything possible. I can deal with trying and failing easier
protocol. As an additional verification measure, the data col- than not trying at all.’’
lected for this study were compared to data collected from Couples typically began mazing in the state of in-
infertile women in a previous study (Sandelowski & Pollock, betweenness that defines infertility. Infertility is a relative
1986); and to memoirs written by adopting couples published rather than an absolute condition, the ability to reproduce
since 1981 in OURS: The Magazine of Adoptive Families, a publi- varying in each partner with time and circumstance. When
cation of a national adoption support group. reproductive dysfunctions were discovered, they were neither
necessary nor sufficient causes of infertility, and their cures
Results did not always lead to conception. When no dysfunctions
In stark contrast to the fertile couples in the study who were discovered, infertility remained unexplained. With
moved directly from point A to point B, from trying to con- reversal techniques, even the presumably absolute incapacity
ceive to achieving parenthood, infertile couples who wanted to reproduce in voluntarily sterilized individuals became
to become parents were forced to enter a maze of alternative potential capacity; sterility reversed to infertility. Accord-
paths to parenthood with no assurances that point B would ingly, infertile couples were in a tenuous state of being in-
ever be reached. These infertile couples engaged in muzing, a between reproductive capacity and incapacity, between
tortuous process of negotiating the paths to parenthood, assuming that a child could be conceived and successfully
unknown and unimagined by couples who easily, unthink- borne at will to accepting that such an event could occur only
ingly and accidentally conceive and bear children. Infertile with medical assistance or might never happen at all. In per-
couples in turn, as adoptive father Charles Bond observed, ceptional and medical terms-in terms of identity and diag-
“can’t imagine what it’s like for the blissfully fertile, the nosis-infertile couples were neither absolutely capable nor
obliviously fertile.” (All names used in reporting the data are incapable of procreation.
pseudonyms.) Within a year or less of trying and failing to have a child of
The process of mazing, shown in Figure 1, is recursive, their own on their own, couples typically sought medical
iterative and capital-intensive, demanding vast expenditures assistance and entered the maze of contemporary infertility
of time, physical and psychic energy and the financial diagnosis and treatment protocols, or embarked on “doing
resources to drive it. Steve Morrison evoked the image of infertility. ” Doing infertility was initiated when couples
Sisyphus, persistently thwarted in his labors to push a stone began to question their failure to conceive, and involved
up a mountain, when he described the “medical and emo- enlisting medical assistance to look for “what was wrong’’
tional journey” that he and his wife had taken to achieve and to “make [pregnancy] happen.” Couples spent relatively
pregnancy. For him, the journey was like a stone whose little or no time at all trying on their own to determine the
weight compounded itself as attempts were made to move reasons for their infertility or seeking the means to reproduce
forward. outside the medical realm. Even the Morrisons, who placed a
Infertile couples documented the fatigue involved in “try- high premium on living self-reliant lives within a “natural ...
ing” and “having to try” to have a child. The amount of holistic” framework, started “doing infertility” after only
effort expended in negotiating the maze and in managing its one year of trying on their own. Infertile couples typically felt
dead ends-treatment and adoption failures and pregnancy the need to seek medical help after no more than one year of
losses-was staggering. If the immediate goal of this labyrin- trying to conceive, but there was also the feeling, especially

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Mazing : Infertile Couples and the Quest for a Child

among women with medical knowledge, that trying for one required and decided to put their resources into two IVF
year before getting help was wasting time. Kristin Danvers attempts.
knew a woman who insisted her doctor put her on Clomid Couples also determined the level of resources they were
after only two months of trying to conceive. willing to invest in pursuit of uncertain options. For example,
“Doing adoption,” typically embarked on only after some couples who perceived the 20 percent chance to have a child
attempts at doing infertility had failed, involved pursuing one by IVF as good odds, or “better than no chance” to conceive
of the many adoption routes to a child including adoption at all, were willing to undergo the emotional and bodily trau-
though local private or public agencies, interstate and foreign mas of this procedure. The Kosters, who were waiting to
adoption and private adoption. Couples such as the Danvers, adopt a second child, decided that they were unwilling to do
the Sargents and the Iversons spent relatively little or no time infertility any longer because they perceived it as unduly risk-
at all doing infertility before pursuing adoption. After one ing emotional health and marital stability. The Langstons
year of trying to have a child. Kristin Danvers was diagnosed were unwilling even to consider donor insemination because
with endometrial cancer and had to undergo a hysterectomy. of Kurt’s feelings that Belinda’s child would belong to
The Sargents had not attempted to have a child at all when another man.
Cheryl had a hysterectomy for severe endometriosis. Within Finally, couples determined the amount of regret they would
five months of medical testing, the Iversons knew that Quin- experience if they did not pursue a particular option at all or
ton had a congenital anomaly that had left him sterile. These any longer. Couples tried to “clear the slate” and “go the
three couples were spared the exigencies of doing infertility gamut” in their efforts to avoid “if-onlys.” Already regret-
(although not the traumas engendered by cancer, surgery and ting or, at the very least, reviewing fertility choices made
sterility) that characterized the typical journey to parenthood in the past (e.g., delaying childbearing, elective pregnancy
of infertile couples. As Cynthia Ingram, who knew before her terminations, elective sterilizations), infertile couples antici-
marriage to Sam that her tubes were blocked, explained it, pated regret in their cost accounting of the benefits and liabil-
there was no “wondering” for them about what was imped- ities of pursuing any one path to parenthood. Before deciding
ing conception. Moreover, circumstances such as absent vasa to adopt their second child, Gail Koster went back on Clomid
and hysterectomy removed any uncertainty about whether or for six months to be certain that she had not “dropped”
not conception would ever occur. These couples were in an doing infertility “too abruptly. ’ ’ After this trial period, and
absolute state (sterile) rather than in an in-between state because they were so pleased with their first adopted child,
(infertile) of fertility and were quickly forced to consider the Kosters anticipated no regrets about stopping the pursuit
doing adoption or never entering the maze at all and remain- of pregnancy.
ing childless. Each couple’s calculus of pursuit allowed them to deter-
Once in the maze, couples were confronted with a variety mine what part of the parenthood maze they would enter at
of paradoxical and frustrating situations. Couples doing any one time. When a conception occurred, or when they
infertility were confronted with being infertile without defini- made an agency’s adoption list, they had the exit point in
tive cause, with presumed causes of their infertility for which sight, the “light at the end of the tunnel.” When a failure
treatments were unavailable or ineffective and with treat- was incurred, couples repeated the process and constructed a
ments suggested in the absence of any established causes. new calculus of pursuit. Couples determined whether doing
Similarly, couples doing adoption were confronted with avail- infertility or doing adoption was the ‘‘surer thing,” the path
able babies whom they could not get, bureaucratic policies more likely to get them out of the maze.
and decisions that they could not fathom and varying criteria
for acceptance as adopters that they could not rationalize. Patterns of pursuit
Calculus of pursuit Couples exhibited six patterns of pursuit of parenthood
Accordingly, couples engaged in as rational an accounting that reflected the calculations that they had made. The sequen-
process as they could and weighed the options known and tial tracking pattern was exhibited by couples who elected to
accessible to them and then constructed their own calculus of “exhaust one route before we start another” such as trying
pursuit. As shown in Figure 1, couples constructed a matrix one or a variety of treatment options in tandem for a limited
of resources, of venture capital including time, money and number of cycles before selecting one of the many adoption
physical and psychic energy and then, for each option, deter- tracks available. Couples did not necessarily choose freely this
mined whether or not to pursue it at a given time. Couples pattern of pursuit. For example, the Dussaults wanted to pur-
calculated the amount of each of these four categories of sue simultaneously several foreign adoption tracks to save
resources available to them including what they could borrow time, but the adoption agencies would not allow this.
at the time of decision making. For example, they considered A second pattern of pursuit and a variant of sequential
the time available to them to pursue options such as adoption tracking was backtrucking, in which couples restarted the medi-
and in vitro fertilization (IVF), given their ages and the age cal regimen with a new physician or returned to a previously
limits of these ventures, and the loans they could secure to do attempted treatment or adoption option. The Danvers
IVF. Couples determined the level of resources that any par- returned to and were accepted by an adoption agency that
ticular medical or adoption protocol required for an acceptable had previously discouraged their application.
probability of success. For example, couples considering IVF A third pattern of pursuit, exhibited by couples only while
perceived the 20 percent chance of succeeding with this pro- doing infertility, was getting stuck. Seeing, believing or being
cedure alternatively as improving or declining with each try encouraged by their physicians that persistence paid off, those
and therefore alternatively worth or not worth the high cost of couples who got stuck in a treatment groove attempted the
repeated attempts. The Bostwicks calculated that the 5 per- same regimen over and over and over again. Charlene Shaw
cent chance they were given of conception after tubal surgery had roughly 200 injections of various hormonal preparations
was not worth the capital investments that the procedure before achieving conception. The Everetts mentioned a

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Mazing : Infertile Couples and the Quest for a Child

woman they knew who had tried IVF 11 times before she Now at the end of the period after Mona’s corrective surgery
achieved success. Nancy and Tony Sellers tried IVF 4 times when a pregnancy should have occurred, if it were going to
before they achieved a pregnancy, and would have continued happen at all, the Edgertons would have to reconsider the
with this technique if it had failed again because they believed options. As Mona observed: “If I could just ...forget the
their chances to succeed increased with every attempt. As adoption and know I’d get pregnant, or forget the pregnancy
they explained it, the technology was steadily improving and and go ahead and adopt.” Four months later, after a chance
the doctors “get to know you more as an individual and your to adopt fell through, Mona remembered that when they
body” every time IVF was tried. Moreover, Nancy tended to received the call about that baby, she forgot about getting
locate the three IVF failures she had experienced in herself, a pregnant, “forgot and didn’t even care...a nice feeling.”
factor that encouraged her to stay in the IVF groove. Even After the adoption failure, they were back to doing infertility
though she knew that “the odds are against you” with IVF, (backtracking), undergoing repeated cycles of fertility drugs
she wondered “what did I not do that was right that would and homologous inseminations (getting stuck), and they were
have made a difference?” She attributed the success of her waiting for another call that a baby was available for them
fourth IVF attempt to her having taken “better care of to adopt.
myself. ” Similarly, Connie Cunningham was encouraged to Similarly, the Ingles maintained that you have to “seek all
try IVF a third time because she was told that persistence your outlets and investigate anything that you hear about. ”
paid off and that she was a “good stimulator” (a reference The Ingles illustrated the complete lack of closure to any new
to the numbers of eggs she produced with hormonal in- option that might appear that was characteristic of paralleling
ducements). by remaining on an adoption agency waiting list while con-
Getting stuck in a treatment groove not only suggested a tinuing to do infertility and staying open to any chance for a
belief in persistence and personal control over the treatment private adoption. Couples like the Ingles paid a high psychic
but also an inability to accept infertility and a low tolerance price for paralleling, spending several years of never letting
for anticipated regret. Marsha Underwood tried donor go of any path to parenthood, suffering many failures and
insemination 15 times before achieving success. Having con- losses and investing a tremendous amount of energy just to
ceived and borne a child in a previous marriage and not stay on track with every option being pursued. The burdens
accepting that she could not conceive another, she was willing ofjuggling too many options at the same time included mari-
“to play the odds” and would have continued to play them tal tension, frustration and sometimes even deception when
had she not achieved a pregnancy. adoption agency policy prohibited couples from simulta-
A fourth pattern of pursuit was paralleling, or the attempt to neously doing infertility and adoption.
pursue simultaneously and actively (rather than merely A fifth pattern of pursuit was taking a break. Couples had a
“thinking about,” “talking about” or “looking into” an variety of reasons for withdrawing from either pursuit of fer-
option) multiple tracks. Generally exhibited by couples who tility or parenthood for several months to years, including
felt “in a panic” and “desperate,” paralleling was a means breaks necessitated by moves to new locations, financial and
to “maximize the options” while minimizing the time wasted insurance constraints and the need to recover from failures
in pursuit. In extremis, in both having to resort to and losses. Taking a break had positive consequences. The
“unusual,” “extraordinary” and “backup” means toward Danelins achieved a pregnancy while taking a break from
parenthood and in feeling pushed to the wall, these couples doing infertility. Taking a break also allowed couples to
decided “not to close any doors,” “to keep the options recapitalize their waning financial, physical and psychic
open,” “to keep our irons in the fire,” and, most signifi- reserves and to construct a new calculus of pursuit.
cantly, “to never give up.” Alternatively, not taking a break had negative conse-
Couples exhibiting the paralleling pattern attempted to quences. Evelyn Everett moved directly from one IVF failure
navigate several paths at the same time, even pursuing addi- to another without giving herself “time to grieve.” Similarly,
tional paths as they opened up. The Edgertons, who had been the Harrisons decided only ‘Lanhour after” being informed
trying to conceive for five years, decided after an initial that Donna could die having a child to go to an orientation
period of doing infertility to “look into” adoption. They per- meeting for adopting couples. She recalled that her intensely
sisted in doing infertility because they felt they were finally negative feelings about pursuing adoption at that time had
making progress medically and had “something to shoot been a “reaction” to the stunning “blow” her doctor had
for.” When that something did not work, they moved along inflicted on her and recognized that it had not been “good
(in a sequential tracking pattern) to the next stages of doing timing” on her part to think about adoption so soon after sus-
infertility. Increasingly, though, they experienced “desperate taining it.
feeling(s)” as they lost “excess years,” and decided to “pur- A sixth pattern of pursuit, exhibited by couples doing
sue both sides.” Their physicians gave them hope, but they infertility, was drawing the line. Couples “drew the line,” or
had nor as yet succeeded in becoming pregnant. They felt stopped doing infertility at different points in time, depend-
compelled to get on an adoption waiting list, even though ing on when they became “fed up” with, or were no longer
they had reservations about adopting because they were “see- willing to invest in, medical solutions. The Carlsons decided
ing time go by.” As Mona explained: to stop doing infertility after only two years, Larue finding
the process of diagnosis and her one year on Clomid painful,
I’m having to decide now whether I’m going to go back and spend
money that is not covered by insurance to go any further when we
degrading and futile. Linda and Donald Lafferty spent two
don’t have to. [We are] kind of af II crossro& again [emphasis is ours] years doing infertility before considering adoption. They
since i t hasn’t worked so far. It seems like I would be better off psycho- were frustrated by the fact that, before Linda’s tuboplasty,
logically if I’d been told that I can’t get pregnant. Then I’d just forget she was given a 30 percent to 50 percent chance of conceiv-
that part and I could be all for the adoption with no reservations. But I ing, but she was given almost no chance after surgery. Linda
just haven’t got to that point yet. recalled thinking while she was being rolled into surgery,

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Mazing : Infertile Couples and the Quest for a Child

“why am I doing this?” Having to undergo a second opera- having children of their own to the point of terminating a
tion for an ovarian cyst, which she thought was a pregnancy, pregnancy in the early years of their marriage. For Cheryl,
Linda decided she “had had it” with medical efforts. Impor- the hysterectomy she had to undergo because of severe endo-
tantly, the Laffertys had reached a point where they no metriosis “was almost like a relief because I had always felt a
longer anticipated regretting not doing infertility anymore. lot of peer pressure to have my own children.” The hysterec-
In contrast, there were couples who took much longer to tomy “simplified” her situation and the decision of whether
draw the line. The Bonds spent seven years doing infertility; or not to have a child of her own. This couple, now waiting
going to different physicians, and trying Clomid, Pergonal, to adopt, eventually came to the point where they wanted
Danazol, cauterizations, inseminations and varicocele repair a child because they felt something was missing from
to treat the irregular ovulation, endometriosis and low sperm their lives.
count believed to be contributing to their inability to con- Once the desire for children was affirmed but unfulfilled,
ceive. Lenore observed that there is “a little male factor, the reframing of desire involved altering the desire to have a
there’s a little female factor.. .(but) there’s no statement with baby naturally to having it with medical help. Elaine Morri-
all this evaluation that we will never be able to conceive a son wanted to make pregnancy happen on her own but was
child.” The Bonds finally determined that it was “very forced to consider unnatural alternatives. Elaine progressed
unlikely” they would conceive a child and decided to pursue from wanting to have a baby naturally and failing to wanting
adoption. to have a baby with medical assistance and failing to being
Couples who eventually drew the line on doing infertility unsure that adoption is “what I want.” The pregnancy she
still harbored a “faint hope,” “like waiting for publishers’ finally achieved made it unnecessary for her to consider seri-
clearinghouse,” that pregnancy might occur, but they no ously whether wanting to beget a baby was more powerful
longer “actively,” “seriously” or “aggressively” tried to than wanting to get one.
make it happen. They had reached the “if it happens, it hap- For those couples who succeeded fairly early in doing infer-
pens” stage. Couples who had not as yet drawn the line were tility, no reframing of desire-from wanting to have a baby
still doing infertility “at the eleventh hour.” Maureen Ingle, to wanting to get a baby-was necessary. In contrast, those
admittedly “a puzzle case” to her physician and at a point in couples who suffered repeated failures to have a child with
doing infertility where “we’ve tried everything basically medical assistance were forced into a more intensive and
other than in vitro,” vowed “to keep trying as long as I painful process of reconsideration, revaluing and introspec-
can,” no matter what the odds. Even if her doctor told her tion. Donna Harrison explained that couples in the situation
there was no way she could become pregnant, she could not of having to consider adoption had to ask themselves the right
give up “100 percent.” questions: “It’s not, Do you want to adopt? It’s, Do you
want children? You weigh the two things, Either have a child
Maybe 98 percent; 2 percent will always nag me ...I can’t give up. Not that’s adopted or don’t have children.”
unless that doctor looks at me and says there’s no way under
Asking the right questions, confronting self, revelation and
God’s green earth that you are going to get pregnant. Sometimes they
have told people that and they still have gotten pregnant. I just can’t
letting go were key components of the reframing of desire.
give up. Evelyn Everett had always “placed a high premium on being
pregnant,” even though she had not wanted a child before
Her only impediment to continuing to do infertility was falling in love with Edwin. Because the “idea” of pregnancy
financial; she felt she could “deal with the physical anguish was so hard for her to give up, she experienced her first dis-
for now.” Maureen’s tolerance for anguish was high, but it tancing from Edwin, who had no trouble with the idea of
was low for the regret she anticipated if she stopped trying. their adopting a child. She recalled that her husband was
What if she gave up too soon? shocked that she might not be able to love an adopted child as
much as her own. Evelyn was forced to confront herself as she
Reframing Desire appeared in her husband’s eyes. Grieving over the “tragedy”
At some point in their failed questing for a child, infertile of discovering that she would never have her own child, she
couples had to confront what they really wanted. They had to began to reframe her desire:
distinguish between wanting to have and wanting to get a I t gelled in my mind that I wanted to be a parent rather than be preg-
baby, between wanting fertility and wanting parenthood, nant. I did very much want to be pregnant, but if I couldn’t have that,
distinctions that are at the most only theoretical for the I wanted to be a parent.
“obliviously” fertile. Both the medical and adoptive routes to
Having focused for too long on what she wanted but could
parenthood forced these couples to examine the differences
not have, Evelyn gradually
among wanting a child at all, wanting pregnancy, wanting a
healthy baby, wanting a baby, wanting a healthy child and came to terms with what I really wanted, which was difficult for me. I
wanting any child to parent. The new conceptive techniques fell in love with the idea [of adoption]. Thaf has become what I wanf.
as well as adoption create and accentuate the separation [Emphasis is ours] ...I want the child more than I want to be pregnant
between genetic, gestating and social parenthood. ...It didn’t all of a sudden come to me in the middle of the night. Just
through a lot of introspection and trying to figure out and talking to a
The rejraming of desire was a refrain, a recurring task, in
therapist about what I really wanted.
infertile couples’ efforts to “come through and come out the
other end” of the maze. For those individuals who entered Importantly, Evelyn experienced a revelation reading a story
their marriage with little or no desire for children, the re- written by the grandparents of an adopted child who had
framing of desire-the process in which wants in relation to observed that love was not contingent on relationship by
fertility and parenthood are reconsidered, refined and altered blood. She realized that there was no one she loved more than
-began with resolving their ambivalence about becoming her husband, who was also not her blood kin. She started
parents. Cheryl and George Sargent were ambivalent about “thinking in a whole new portion of my brain about relation-

Volume 2 1, Number 4, Winter 1989 225


Mazing : Infertile Couples and the Quest for a Child

ships and what does this genetic tie mean?” Her “awaken- There is an important qualification to the theory presented
ing” to the unimportance of blood ties led to her comfortably here. The theory of mazing explicates the process of pursuit
replacing her desire for pregnancy with a desire for a child. of parenthood engaged in by both infertile and sterile couples
A consequence of the confrontation with self was a new who want a child and who choose to do infertility and/or
appraisal of personal values and prejudices. Adopting couples adoption in the public domain. Information concerning this
typically felt good about the fact that they could look posi- public pursuit of parenthood or seeking solutions from the
tively on adoption and about what they had discovered about medical or legal systems necessarily excludes many individu-
themselves and their partners while preparing their family a l s and couples unable but wanting to become parents who
history and album for their homestudy. But confrontation choose to do nothing but wait for God to grant them a child,
with the self alternatively included the discovery that the who cannot afford infertility and adoption services, who are
desire to parent could not as yet or never include the desire reluctant to suffer the scrutiny of medical personnel and case-
for just any child. F. U., in the Sandelowski and Pollock workers, who attempt folk or other extramedical remedies for
study (1986), who adopted an American child, observed that infertility or who arrange intrafamily or other kinds of private
having to face adoption confronted her with her basic beliefs. adoptions without engaging the medical or legal systems. Sig-
It upset her “that she said no to a [Korean] child out there nificantly, the best current estimates of the use of infertility
who needs a family,” while professing to want a child. In services suggest that at least half and perhaps two thirds of
addition, she was ambivalent about her ability to “handle couples who are unable but wanting to become parents act in
such a child.” B. I., also in that study, knew she was being private domains not readily accessible to investigation
“harsh” and “inhuman” in her judgment of adoptees as (Hirsch & Mosher, 1987). Whether these individuals and
“bad seeds” and “rejects.” Yet she allowed that should she couples undergo a similar process is still unknown and is a
not have a child of her own by the time she was 35, she might question for future research.
have to reconsider adoption.
References

Discussion Colliis, J. A,, Wrixon, W., Janes, L. B., & Wilson, E. G. (1983). Treatment-
independent pregnancy among infertile couples. New England Journal of Mcdi-
The theory of mazing explicates the questing process that cine, 309,1201-1206.
infertile (and sterile) couples engage in to reach the desired Corea, G. (1985). The mother machine: Reproductive technologies from artificial
goal of parenthood, a deliberative process that helps couples insemination to artificial wombs. New York Harper & Row.
preserve mastery and make order out of ambiguity (Sande- Daly, K. (1988). Reshaped parenthood identity: The transition to adoptive parenthood.
Journal of Contemporary Ethnography, 17,40-66.
lowski, 1987) and chaos. Although infertile couples’ questing Daniels, P., & Weingarten, K.(1983). Sooner or later: The timing of parenthood in
may on the surface be viewed as “grasping at straws” or adult lives. New York: W. W. Norton.
“wandering” (Daly, 1988) in a maze of treatment and adop- Glaser, B. G., & Strauss, A. L. (1967). The discovery of grounded theory. New
tion solutions, the theory of mazing reveals that infertile cou- York: Aldine.
Greil, A. L., & Porter, K.L. (1988, November). Explaining “treatment addiction’’
ples’ efforts to achieve parenthood are based on a rational, if in infertile couples. Paper prepared for presentation at the annual meeting of the
idiosyncratic, calculus, which nurses must understand if they National Council of Family Relations, Philadelphia. PA.
are to assist couples in such areas as limit setting, energy con- Hirsch, M. B., & Mosher, W. D. (1987). Characteristics of infertile women in the
servation and preservation of self. United States and their use of infertility services. Fertility and Sterility, 47,
Infertile couples have been described as “treatment- 618-625.
Kliger, B. E. (1984). Evaluation, therapy, and outcome in 493 infertile couples. Fertil-
addicted” (Greil & Porter, 1988) and “driven” (Olshansky, ity and Sterility, 41,4046.
1988) in their questing for a child. The infertile couples in the Lincoln, Y. S., & Guba, E. G. (1985). Naturalistic inquiry. Beverly Hills,
present study were not so much treatment-addicted (deriving California: Sage.
no pleasure from any medical regimen per se), as they were Olshansky, E. F. (1988). Responses to high technology infertility treatment. Image:
Journal of Nursing Scholarship, 20,128-131.
intolerant of regret. In addition, there are indications that the Paterson, P., & Chan, C . (1987). What proportion of couples undergoing unrestricted
tenacity of their pursuit may, in part, be attributable to invitro fertilization treatments can expect to bear a child? Journal of Invitro Fertil-
encouragement by physicians, nurses and others to keep try- ization and Embryo Trauufm, 4,334-337.
ing. Paterson and Chan (1987), for example, suggested that Poston, D. L. & Cullen, R. M. (1986). Log-liear analyses of patterns of adoption
infertile couples ought to be encouraged to keep trying IVF behavior: U. S . white women, 1982,1976, and 1973. Social Biology, 33,241-248.
Rennie, D. L., Phillips, J. R.. & Quartaro, G. K. (1988). Grounded theory: A promis-
since pregnancy rates in later cycles have been shown to be as ing approach to conceptualization in psychology? Canadian Psychology, 29,
high as rates in the first cycle. Medical experts and critics of 139-150.
advancements in conceptive technology, however, have Sandelowski. M. (1987). The color gray: Ambiguity and infertility. Image: Journal of
lamented the distorted “success” rates and pronatalist imper- Nursing Scholarship, 19, 70-74.
Sandelowski, M. (1986). The problem of rigor in qualitative reserach. Advances in
atives used to lure infertile couples to keep doing infertility
Nursing Science, 8,27-37.
(Corea, 1985; Soules, 1985). Sandelowski, M. (1988). Without child: The world of infertile women. Health Care for
The couples described here have successfully exited the Women International, 9,147-161.
maze and have either become parents or are currently in Sandelowski, M., & Pollock, C. (1986). Women’s experiencn of infertility. Image:
waiting for a child. There are couples who quit the maze Journal of Nursing Sfholmhip, 18,140-144.
Schatzman. L., & Strauss, A. (1973). Field r e i e w h : S t r a t e e s for a natural sociol-
childless, failing to achieve success with the options they have ogy. Englewood Cliffs, New Jersey: Prentice-Hall.
chosen and/or rejecting options, notably adoption, that might Soules, M. R. (1985). The invitro fertilization pregnancy rate: Let’s be honest with one
have led to parenthood. S.L. (Sandelowski, 1988) quit maz- another. Fertility and Sterility, 43,511-513.
ing by drawing the line on doing infertility and rejecting Stern, P. N. (1989). Are counting and coding a c w U a appropriate in qualitative
research? In J. M. Morse (Ed.), Qualitative nursing research A contemporary
adoption and was even contemplating hysterectomy to put an
dialogue (pp. 135-148). Rockville, Maryland Aspen.
unequivocal end to any further pursuit. Significantly, mazing Turner, B. A. (1981). Some practical aspects of qualitative data analysis: One way of
describes the process of pursuit of parenthood, whether or not organising the cognitive processes associated with the generation of grounded theory.
it is achieved. w i
ty and Quantity, 15,225-247.

226 IMAGE: Journal of Nuning Scho&znh@

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