Professional Documents
Culture Documents
DOI:10.3233/NRE-131015
IOS Press
Abstract.
BACKGROUND: Measures of cognitive rehabilitation should include comprehensive holistic rehabilitation as well as interven-
tions targeting specific cognitive functions; it is however not clear how this knowledge should be put into practice.
OBJECTIVE: To describe services provided at the cognitive rehabilitation unit at Sunnaas Rehabilitation Hospital (SRH), a
regional rehabilitation centre in Norway.
METHODS: Cognitive rehabilitation programs offered at SRH are described. For all patients served in 2011 and 2012, epidemi-
ological and hospitalization related data were retrieved. Results from a patient satisfaction survey are presented.
RESULTS: The services include individual holistic cognitive rehabilitation as well as group programs. 307 individual patients
were served in 355 hospitalizations; 68.1% were male; age ranged from 18 to 78 years. The largest patient groups were stroke
(46.6%) and traumatic brain injury (33.0%). Mean length of stay was 36.9 days. Median time post injury was 0.8 years (range 16
days – 14 years). More than 90% of the patients were satisfied with the services they received to a large or very large extent.
CONCLUSIONS: Providing cognitive rehabilitation that encompasses both a holistic approach and targets specific cognitive
functions is challenging. More research is warranted to illuminate further how cognitive rehabilitation services should be designed
and conducted in practice.
1053-8135/14/$27.50 © 2014 – IOS Press and the authors. All rights reserved
88 F. Becker et al. / Cognitive rehabilitation at Sunnaas Rehabilitation Hospital
holistic rehabilitation models as described by e.g. Bar- the American Congress of Rehabilitation Medicine
bara Wilson (2002), Ben-Yishay and Prigatano (1990) (ACRM) in providing up-to date reviews of the state
and Sohlberg and Mateer (2001) have strongly inspired of the art in cognitive rehabilitation research (Cicerone
cognitive rehabilitation programs around the world, et al., 2000, 2005, 2011) has been tremendously inspir-
including the program described in this paper. These ing and trend-setting. One of the conclusions given
programs acknowledge that brain injuries will result is that comprehensive, holistic rehabilitation programs
in cognitive, emotional, behavioral, psychosocial as can improve community integration, functional inde-
well as vocational challenges, and that a comprehen- pendence, and productivity, even many years post
sive understanding of the complexity of living with injury, and thus that comprehensive rehabilitation pro-
brain injury should form the basis of brain injury reha- grams should be considered practice standard following
bilitation. Descriptions of several holistic cognitive moderate and severe TBI (Cicerone et al., 2011). It was
rehabilitation programs have been published revealing also noted that psychosocial interventions may facili-
similarities, but also – in part substantial – differences: tate the effectiveness of treatments directed at specific
Most of the programs serve patients with traumatic cognitive impairments (Cicerone et al., 2005). A chal-
brain injury (TBI; e.g. Cicerone et al., 2008; Prigatano lenge with comprehensive programs is however that
et al., 1984; Vanderploeg et al., 2008), while others also they can be underspecified with regard to their approach
include persons with other etiologies as cerebrovascular to distinct cognitive functions. They thereby run the
accidents (CVA; e.g. Klonoff et al., 2007; Schönberger risk of not providing the specificity and/or intensity
et al., 2001; Svendsen & Teasdale, 2006). The level of of training that has been increasingly acknowledged as
cognitive and general functioning at admission differs necessary in domain-specific rehabilitation (Bhogal et
rather widely between programs, from patients who are al., 2003; Kleim & Jones, 2008). Up to date cognitive
independent in activities of daily living (e.g. Sarajuuri rehabilitation programs should include evidence-based
et al., 2005; Svendsen & Teasdale, 2006) to patients interventions on distinct cognitive domains that can be
who are confused when enrolled into the program (e.g. regarded as effective, e.g. attention training or visual
Niemeier et al., 2005; Vanderploeg et al., 2008). Also scanning training (Cappa et al., 2011; Cicerone et al.,
the time point after injury when the program is applied 2011). Also, research suggests that intensive, repetitive
varies. While participants in some programs have lived and purposeful specific language therapy for persons
on average five years or more with their brain injury with aphasia can lead to improvement in language
(e.g. Cicerone et al., 2008; Sherer, 1997), or even 17 skills, also when it is carried out over shorter time peri-
years (Svendsen & Teasdale, 2006), other programs ods and in the chronic stage (Berthier & Pulvermüller,
include patients only weeks or few months post injury 2011).
(e.g. Braverman et al., 1999; Niemeier et al., 2005). Recently, Dams-O’Connor and Gordon (2013) have
Most of the programs are outpatient services, while only proposed a synergistic approach to neurorehabilitation:
a few are inpatient services (e.g. Braverman et al., 1999; They describe cognitive processes as hierarchically
Sarajuuri et al., 2005; Vanderploeg et al., 2008). Nev- organized with functions as attention or arousal at
ertheless, also most of the outpatient programs provide the basis and problem-solving and self-monitoring at
treatment four to six hours per day, four or five days the top of a functional pyramid (Dams-O’Connor &
a week (e.g. Goranson et al., 2003; Prigatano et al., Gordon, 2013). The importance of both restorative
1984; Rattok et al., 1992). Treatment periods are often or “bottom-up” interventions and compensatory or
between two to six months (e.g. Cicerone et al., 2008; “top-down” approaches is stressed. Additionally, the
Prigatano et al., 1984; Schönberger et al., 2001). patient’s awareness of his or her impairments and emo-
The past decade has brought along significantly tional factors influencing on cognitive capacity play a
increased optimism regarding the potential for plasticity crucial role. The authors suggest that bottom-up and
in the human brain, and thus also new hope and evidence top-down training should not be regarded as mutually
regarding the potential for training of specific cognitive exclusive, but rather integrated in all training activi-
functions affected by brain injury (Nordvik et al., 2012; ties (Dams-O’Connor & Gordon, 2013). This stands in
Rabipour & Raz, 2012; Tomassini et al., 2012). Along contradiction to other approaches that advocate starting
with this development, there has been increasing focus rehabilitation with efforts to improve basic functions
on the need to deliver evidence based health practices, as attention, before moving on to higher order cogni-
including rehabilitation. The work of The Brain Injury tive functions (Laatsch et al., 2000). There is however
Interdisciplinary Special Interest Group (BI-ISIG) of little controversy about the notion that comprehensive
F. Becker et al. / Cognitive rehabilitation at Sunnaas Rehabilitation Hospital 89
cognitive rehabilitation should include impairment ori- illuminate some characteristics of the patients served.
ented training as well as strategy learning, and different Data from 2011 and 2012 are presented, including
opinions might arise from differences in the cognitive epidemiological, disease related and service related
level of patients served. parameters in addition to results from a patient satisfac-
Another debate concerns whether holistic cogni- tion survey. We hypothesized that patients with different
tive rehabilitation always needs to address different types of brain injury were served, and that the patient
cognitive domains simultaneously, or whether specific groups would differ with regard to age, sex, and post
functions as e.g. memory or language should be put into injury time, but that there were no greater differences
focus for certain time periods. A theoretical argument in length of stay depending on the etiology of the brain
for such an approach is constituted by the proposal that injury. Regarding patient satisfaction, we suspected that
– when different domains are treated simultaneously patients respond that they have been informed about
– their “plasticities” might interfere with each other the consequences of brain injury to a high or very high
in a negative manner (Kleim & Jones, 2008). Further- degree, and that they are involved in their rehabilitation
more, high training intensity for specific functions can process as these two areas are highly focused in our
be more readily obtained in this way. individual cognitive rehabilitation program.
At our facility, the principal aim is to provide rehabil-
itation services on the basis of evidence-based practice,
i.e. the integration of individual clinical expertise, 2. Methods
including patients’ preferences, with the best avail-
able external clinical evidence from systematic research A qualitative description of services at KReSS is
(Sackett et al., 1996). A major effort is currently put for- given, based on the authors’ own experiences and con-
ward in trying to establish an evidence based practice tributions to the programs, as well as existing program
where intensive, specific training of distinct cognitive manuals, procedures etc.
functions are provided within a general framework of Furthermore, a retrospective descriptive study of
a comprehensive holistic rehabilitation program. Over inpatient activities at KReSS in the years 2011 and 2012
the past 5 years or so, there has thus been increas- was performed. In the following, the methodology for
ing focus on establishing research projects and clinical this quantitative description is presented.
interventions targeting the cognitive functions most
often affected by injury, such as memory, executive 2.1. Participants
functions, working memory, and language. With regard
to the clinical services, this includes the introduction of All patients discharged from KReSS between
new, domain targeted services, and an increased focus 1.1.2011 and 31.12.2012, were included. Thus, admis-
on the intensity of bottom-up interventions. sion to KReSS was the sole inclusion criterion and no
Although substantial improvements have been made exclusion criteria were applied (see below for admis-
(cf. Wilson et al., 2009), cognitive rehabilitation ser- sion criteria).
vices are still under development and more detailed
descriptions of cognitive rehabilitation interventions 2.2. Procedure
are lacking (van Heugten et al., 2012). Thus, the
purpose of this study is to describe the cognitive Reports which included the following data were
rehabilitation program offered at KReSS (Kognitiv retrieved from the hospital’s medical charts system:
Rehabiliteringsenhet Sunnaas Sykehus); the cognitive social security number, dates of admission and dis-
rehabilitation unit at Sunnaas Rehabilitation Hospi- charge, cause of admission, origin from which the
tal (SRH) in Norway. To share and discuss different patient was admitted, type of discharge destination, and
cognitive rehabilitation programs including their theo- county of residence.
retical approaches, organizational backgrounds, target In addition, data from the hospital-wide continuous
groups and rehabilitation activities can contribute to assessment of patient satisfaction were included. At the
an exchange of experiences and can stimulate further end of their stay, all patients at SRH are offered to
development. respond to an anonymous web inquiry, either at the hos-
In addition to a qualitative presentation of the back- pital before discharge or from home within two weeks
ground for and content of the activities at KReSS, a after. Data from the patient satisfaction assessment are
retrospective descriptive study was performed to further aggregated every four months and included in quality
90 F. Becker et al. / Cognitive rehabilitation at Sunnaas Rehabilitation Hospital
reports. We summarized data from the six respective Eastern health region, serving as the regional rehabil-
reports from 2011 and 2012. itation hospital with also some national services and
responsibilities, e.g. for patients with locked in syn-
2.3. Measures drome.
Sex and age at admission were derived from the 3.1.2. Sunnaas Rehabilitation Hospital
social security number. Length of stay was calculated Founded in the 1950s as a home for the disabled, in
by subtracting date of admission from date of dis- the following decades, SRH became the leading neu-
charge. Patients, who were admitted before 1.1.2011 rorehabilitation facility in Norway. Seven hundred and
or discharged after 31.12.2012, were excluded from fifty employees serve approximately 2.800 in-patient
the length of stay analysis. Furthermore, stays are stays and 3.500 out-patient consultations per year. Clin-
sometimes interrupted due to planned or unplanned ical services are organized in three departments with a
admission to other hospitals, family reasons etc. Stays total of 157 beds: 1) acquired brain injury, 2) spinal cord
interrupted for less than 14 days or for summer holidays injury, and 3) assessment and follow-up services. The
were merged, and the total length of stay is reported. hospital is somewhat remotely located on a peninsula
The “cause of admission” field in the medical chart in the Oslo fjord, with a 45 minute drive or 10 min-
system includes information about diagnosis and type utes helicopter fare to reach acute hospital facilities at
of program; in case of doubt, the individual charts Oslo University Hospital. All rehabilitations programs
were reviewed to ensure correct diagnosis and type of are accredited by the Commission on the Accreditation
program. Date of brain injury was looked up in each of Rehabilitation Facilities (CARF, www.carf.org).
patient’s medical chart, and time since injury (time from
injury to date of admission) was calculated. Descriptive 3.1.3. KReSS – background and history
statistical analysis was performed using SPSS 18.0. KReSS has its roots in the rehabilitation ser-
The patient satisfaction inquiry contains 17 questions vices provided for people with ABI since the latter
ranging from sex and age to satisfaction with food etc. half of the 1970s. As cognitive impairments were
For this study, we selected the four questions which given increased attention in brain injury rehabilita-
we found most relevant with regard to the content of tion, a need for targeted assessment and treatment
the cognitive rehabilitation program; they concern 1) services emerged. An interdisciplinary team model
the patients’ evaluation of provision of information was established at SRH in the mid eighties that
about the patient’s condition, 2) patient participation involved a division of the TBI rehabilitation unit
in rehabilitation process, 3) preparation of the patient into separate rehabilitation teams for three func-
for time after discharge, and 4) overall satisfaction. For tionally defined patient groups based on degree of
these questions, one has to choose between five possi- physical and cognitive impairment (Finset et al.,
ble answers: “Not at all”, “To small extent”, “To some 1992, 1995). One group served patients with predom-
extent”, “To a large extent”, or “To a very large extent”. inantly cognitive symptoms of a mild to moderate
degree, where an intensive and adapted rehabilitation
program was developed, inspired by work from Israel,
3. Results: Qualitative description of KReSS Denmark, and the USA (Ben-Yishay & Prigatano,
activities 1990; Christensen & Teasdale, 1995; Prigatano et al.,
1984).
3.1. Background and setting Financed by governmental grants, KReSS was estab-
lished as a project in the 1990 s with three major goals:
3.1.1. Norwegian health system
Providing hospital services is a public responsibil- 1) Establish cognitive rehabilitation services in the
ity in Norway. With few exceptions, basic health care chronic phase (at least 1.5 years post injury).
is publicly funded for all persons legally residing in 2) Disseminate knowledge and information about
the country. Four regional health trusts are commis- cognitive rehabilitation and brain injury to health
sioned with hospital treatment, with the South Eastern professionals, other agencies and the general pop-
Regional Health Trust serving about 2.5 million people, ulation.
i.e. half of the Norwegian population. Sunnaas Reha- 3) Exploring new technology (e.g. telemedicine) as
bilitation Hospital is one of 8 health trusts in the South a method for delivering cognitive rehabilitation.
F. Becker et al. / Cognitive rehabilitation at Sunnaas Rehabilitation Hospital 91
The precursor of the still existing chronic phase group positive neuroradiological findings, acute indicators of
program was developed for patients with mild to mod- severe pathology (e.g. prolonged unconsciousness), or a
erate cognitive impairments following ABI. More than neuropsychological profile indicating organically based
100 patients attended the programs, which were eval- cognitive impairment. It is however well-known that
uated clinically (Skogan & Tornås, 2001; Sæther & premorbid and secondary psychological problems are
Tornås, 2001; Sæther et al., 2003). Unfortunately, scien- common in the patient group in question, resulting in
tific evaluations of treatment effects were not performed. a frequent need to address issues related to differential
In 2005, the program was merged with existing diagnosis (Davis et al., 2012; Gould et al., 2011).
inpatient cognitive rehabilitation activities in a distinct Further inclusion criteria require the need for inter-
unit within the Department of Brain Injuries. Thus, disciplinary rehabilitation with focus on cognitive
Norway’s first permanent unit for cognitive rehabilita- dysfunction. The patient needs to be able to partici-
tion for ABI was established – offering individual and pate in an active rehabilitation program including both
group-based rehabilitation services. There has been a individual and group treatment sessions. As efficient
steep increase in post-acute individual treatment over communication is essential for successful participation
the past years, which has been accompanied by a in KReSS’ services, adequate understanding of Norwe-
larger focus on assessment, understanding of sequelae, gian (or in some cases English) is required. People with
psycho-educational approaches, focus on facilitating moderate to severe aphasia or moderate to severe motor
positive family interactions and psychosocial support deficits are served by the hospital’s stroke or TBI units,
in the early phase following injury, as well as planning with the exception of the intensive language training
of community interventions and vocational rehabilita- program. Most patients are able to entertain indepen-
tion together with local health workers. The treatment dent living, and return to an active social life is a main
approach at KReSS thus has a broad theoretical basis goal for most. Inpatients preferably spend the weekends
(cf. Wilson, 2008). at home in order to facilitate generalization of treatment
efforts to daily living also during the admission period.
3.1.4. Infrastructure, staff, equipment We consider it beneficial for patients not to be directly
To date, KReSS is one of nine rehabilitation units at transferred from acute hospitals to KReSS, but to first
SRH and comprises 18 beds. The physical environment experience their new life situation in their usual environ-
of KReSS is less “hospital-like” than other parts of the ment and during activities of everyday living. Actually,
hospital. For example, staff does not wear hospital uni- patients are often not referred during their acute hospital
forms, and the ward includes areas for socializing, like stay, but in later phases. It is not unusual that cogni-
a gaming, pool- and TV-room, and a patient library. tive impairment remains undiagnosed for a longer time
Staff density at the ward has varied somewhat; per period, and that patients are referred to KReSS several
date, approximately 1 specialist in physical medicine years after ABI.
and rehabilitation medicine, 2.5 neuropsychologists,
3.6 occupational therapists, 2 physiotherapists, 1 speech 3.1.6. Admission process, cooperation with
and language therapist, 6.5 nurses, 1 nursing assistant, referring hospitals
0.5 cognitive testing assistant, 1 social worker, as well as Patients are referred from hospitals, family doctors
a team coordinator and a team manager run the 18 beds and private practitioners. Quite a few patients are treated
available. Beyond this, KReSS makes use of personnel at our department’s CVA or TBI rehabilitation unit
at the Department of Brain Injury and the hospital at before later being admitted to KReSS as a continua-
large as needed. tion of their post acute rehabilitation. All referrals to
the Department of Brain Injury are considered accord-
3.1.5. Target population, admission criteria ing to the Norwegian Patients’ bill of rights by the head
KReSS serves adult patients with mild to moderate physician (first author F.B.) with regard to the individ-
cognitive impairments due to ABI. Typical diagnoses ual patient’s needs for specialized rehabilitation. SRH
are CVA, TBI, anoxic brain injury, brain tumors and has concluded agreements of cooperation with 3 neigh-
infectious brain diseases. Patients without verified ABI boring hospital trusts. Guidelines for the referral of
are not admitted to avoid inducing a “brain injured patients from these are established and evaluated every
identity” in patients where factors not related to ABI 6 months. However, patients from other health trusts
play a major role in symptom development. The follow- within the region, and patients from the rest of Norway
ing indicators are regarded as sufficient to verify ABI: can also be admitted.
92 F. Becker et al. / Cognitive rehabilitation at Sunnaas Rehabilitation Hospital
Information on local user organizations is given. A One day during the four week program is reserved for
multidisciplinary report as well as a medical discharge a “network day” where significant others are informed
summary is prepared. about memory deficits and rehabilitation.
To update on recent developments, the staff meets
briefly (15 minutes) on a daily basis. All patients are 3.2.2.3. Chronic phase group treatment. The chronic
briefly discussed in a weekly one hour staff meeting, phase program is a 6-week, inpatient program for per-
and another one hour weekly meeting is dedicated to sons with chronic (>1.5 years post onset) cognitive
preparation of the patient schedules for the week to deficits. The program is conducted as group treatment
come. While the “thematic coffee hour” is arranged with six to eight patients and is grounded in a psycho-
by one of the team members every Friday, the remain- educative approach, which combines the participants‘
ing staff will use this time for updating on literature individual experience with professional knowledge and
etc. clinical experience from the multidisciplinary team.
The program’s principal aim is to enhance mastering
3.2.2. Group programs of daily life activities. The program consists of the fol-
3.2.2.1. Intensive language training. SRH offers a lowing weekly themes covering cognitive subjects in
clinical program for intensive language treatment (Sun- lectures and group discussions: brain and brain injury,
CIST) for persons with sub-acute (>3 months post executive functioning, memory and attention, commu-
stroke) aphasia which aims at improving expressive nication, social life in relation to significant others and
language deficits after stroke and incorporates the prin- family, and social life in relation to more peripheral
ciples of constraint induced language therapy (CILT; friends and work/education. The program also includes
Kirmess et al., 2012). CILT involves card game activi- physical and leisure activities. As a home-work task
ties using high- and low-frequency picture stimuli with over the weekends, the participants are asked to pre-
communicative relevance at different levels of com- pare a self-presentation related to their own personal
plexity, applied in a small group of three participants experience and needs. In order to apply their knowledge
by a trained SLP (Kirmess & Maher, 2010). In addi- and experience to normal life activities including social
tion to CILT two to three hours a day, the program has interaction, the group also has to plan and carry out
an interdisciplinary group approach that also focuses a cultural group activity during their stay. Significant
on psychosocial and physical aspects, as well as on the others are invited to join the group at two day-courses.
use of language skills in naturalistic communication Two four-day follow-ups are offered approximately six
situations. The program is carried out as a 3-week, inpa- and twelve months after the first stay.
tient intervention for groups of six patients. Overall,
SunCIST offers an average of 45 hours with structured
language activities, as well as 30 hours of other group 3.3. Outpatient services, telerehabilitation
activities within a 15 working day schedule.
Due to the remote location of SRH as well as the
3.2.2.2. Memory group. Recently, a group program fact that patients from all over Norway are served, the
focusing on the rehabilitation of mild to moderate amount of outpatient services has been limited, but is
memory deficits has been introduced. The program is however now increasing as it is more and more recog-
conducted over four weeks with six to eight patients nized that patients benefit from specialist services over
at a time. Strategy training as well as education on longer time periods than during hospitalization only.
memory and memory related subjects is combined Outpatient consultations typically involve assessment
with computer-based training of working memory using of the patients’ need and motivation for cognitive reha-
Cogmed (Westerberg et al., 2007). Daily sessions are bilitation, but sometimes also follow-up. All patients
scheduled for individual work with a memory aid which externally referred to the chronic phase group pro-
is chosen beforehand. A major goal is to stimulate the gram or to the intensive language training program
participants to continuously apply new knowledge and are screened beforehand through an outpatient consul-
skills in practical activities. As an example, the group tation. Furthermore, all patients discharged from the
is instructed to prepare lunch where individual duties individual cognitive rehabilitation program are offered
are assigned and the participants shall use acquired a 3-month follow up phone call.
strategies when purchasing items and preparing food. Telemedicine is part of ordinary clinical activities
Furthermore, physical and social activities are included. at SRH; a telemedicine team has been established
94 F. Becker et al. / Cognitive rehabilitation at Sunnaas Rehabilitation Hospital
Fig. 1. Age distribution. Age distribution of patients served at KReSS in 2011 and 2012. Number of patients per age interval (years).
Table 2
Patient etiology, sex, age, time since injury, and length of stay in individual rehabilitation program
Diagnosis n (% of total) % female Age (mean, SD) Years post onset Length of
(median, min/max) stay (mean, SD)
Stroke 86 (41.7) 29.1 52.2 (11.4) 0.5 (0.0–11.1) 39 (15)
Traumatic brain injury 68 (33.0) 20.6 38.5 (14.8) 0.9 (0.1–14.1) 34 (18)
Brain tumor 15 (7.3) 53.3 43.7 (15.4) 1.7 (0.2–5.4) 38 (12)
Anoxic brain injury 12 (5.8) 25.0 48.7 (14.6) 0.6 (0.2–7.8) 36 (17)
Subarachnoid hemorrhage 10 (4.9) 60.0 52.0 (9.8) 1.2 (0.2–3.5) 33 (10)
Infectious brain disease 9 (4.4) 22.2 39.8 (10.3) 1.0 (0.1–11.0) 43 (13)
Subdural hemorrhage 3 (1.5) 0.0 51.0 (11.5) 0.2 (0.1–1.2) 25 (11)
Other 3 (1.5) 33.3 49.8 (5.4) 5.5 (0.2–7.8) 52 (18)
Total 206 (100.0) 28.6 46.2 (14.2) 0.8 (0.0–14.1) 36.9 (16.0)
Age in years, length of stay in days. SD: standard deviation.
Fig. 2. Time post injury. Time since injury for patients who participated in the holistic individual rehabilitation program. Number of patients per
time interval (months).
KReSS between 6 and 24 months post injury (Fig. 2). all involved. More than two thirds (68.8%) replied that
While the median time post injury is shortest for stroke they to a large or very large degree were prepared for
and anoxic brain injured persons (0.5 and 0.6 years time after discharge. Overall satisfaction was high: half
respectively), patients with brain tumor have the longest of the patients (50.5%) were satisfied to a very large
median time post onset (1.7 years). extent with their rehabilitation at KReSS, and 41.3% to
Mean length of stay for individual rehabilitation a large extent.
patients is 36.9 days, and no substantial differences
in length of stay were observed between the most fre- 5. Discussion
quent etiologies. Figure 3 illustrates that the majority of
patients have a length of stay between 20 and 50 days. This paper describes rehabilitation services pro-
The patient satisfaction survey was completed by vided at the Cognitive Rehabilitation Unit at Sunnaas
185 KReSS patients (52.1%). More than 3/4 of the Rehabilitation Hospital, and characterizes the persons
responders (76.6%) regarded their information needs served. It is the first description of comprehensive cog-
as satisfied to a large or very large degree (Table 3). nitive rehabilitation in Norway. The study presents one
While the majority of the patients answered that they model of how cognitive rehabilitation services can be
were to some or to a large extent involved in decisions organized in a rural country where the provider has
about their own rehabilitation process, about a quarter the liability to ensure specialized rehabilitation for the
(26.4%) of the patients stated that they only were “to population of a defined geographical area. The find-
some extent”, and 12.0% that they were little or not at ings furthermore illustrate a model for the combination
F. Becker et al. / Cognitive rehabilitation at Sunnaas Rehabilitation Hospital 97
Fig. 3. Length of stay. Length of hospitalization in days for patients who participated in the holistic individual rehabilitation program, number of
patients per 10-day interval. Patients whose stay began in 2010 or ended in 2013, are excluded (remaining n = 193).
Table 3
Patients’ degree of satisfaction with services∗
Not at all To small extent To some extent To a large extent To a very large extent
Did the professionals provide you with sufficient 0.6 3.3 19.4 54.4 22.2
information about your condition?
Did you participate in decisions regarding your 4.0 8.0 26.4 43.7 17.8
rehabilitation process?
Did you experience that the professionals prepared you 2.8 4.5 23.9 46.6 22.2
for the time after discharge?
All in all, how satisfied are you with the services you 0.0 1.1 7.1 41.3 50.5
received at Sunnaas Rehabilitation Hospital?
∗ Percentage of responses for each category.
of holistic cognitive rehabilitation with interventions patients’ functioning needs to be investigated. Ongo-
targeted at specific cognitive domains. ing research projects regarding the language training
The main limitation of this study is the small amount program, training of executive functions, as well as
of measurable data both regarding patient characteris- working memory training are examples in this respect,
tics and quantitative parameters of the interventions. and scientific evaluations will be published in years to
Although qualitative descriptions of cognitive rehabil- come. Further scientific studies are warranted, espe-
itation programs are warranted and contribute to the cially concerning outcome related to the comprehensive
exchange of ideas and possibly even the detection of cognitive rehabilitation program as well as intervention
different procedures, quantitative data provide impor- research in unselected patient groups on an “inten-
tant insights into the clients and the services and ease the tion to treat” basis. Since early 2013, the Sunnaas
comparison of programs. The retrospective and descrip- Rehabilitation Register is in operation, which gradu-
tive nature of the present study limits the validity of ally will provide detailed information on functioning
the results. The response rate in the patient satisfaction with regard to all ICF-domains as well as follow-up
survey (52.1%) is somewhat low. data. In other fields of health psychology, there has been
Another limitation is the lack of outcome data – an increasing interest in characterizing premorbid, psy-
we describe some aspects of our cognitive rehabilita- chosocial and other factors contributing to resilience
tion services, but have per date no data on how this (Bonanno, 2012; Quale & Schanke, 2010). The interest
affects our patients. Thus, two aspects are essential has shifted from attempts to characterize risk factors for
in further improving services at KReSS: there is a poor outcome, to investigation of protective factors that
need of becoming better informed about KReSS’ tar- contribute to good adjustment following adverse life
get groups, and the impact of KReSS’ services on the events. Research on protective factors that contribute
98 F. Becker et al. / Cognitive rehabilitation at Sunnaas Rehabilitation Hospital
to resilient trajectories in the ABI population is sorely pated in decisions regarding their rehabilitation process
needed (Sarre et al., 2013). (38.4%); this also regards preparation for discharge
When comparing our individual holistic cognitive (31.2%). This is particularly interesting as user partic-
rehabilitation program with existing descriptions, a ipation and involvement in the rehabilitation process
number of similarities can be found: the post injury time as well as community related work, are regarded as
ranges from few weeks to several years and patients dif- highly important ingredients in the rehabilitation pro-
fer with regard to their age, but means are comparable gram. Whether the patients actually were not involved
with the majority of existing studies (e.g. Schönberger or this mainly is their retrospective perception, war-
et al., 2001), with the exception of TBI only programs, rants further investigation, as does an exploration of the
where patients usually are younger (e.g. Goranson et al., cause of this shortcoming. However, one has to take into
2003). The length of stay at KReSS is rather short, but account that the patient satisfaction survey includes all
comparable with other inpatient programs (e.g. Sara- KReSS patients and can not be analyzed for the differ-
juuri et al., 2005). While a number of programs report ent programs separately; the language group program,
only participants with TBI, we also serve patients with for example, focuses mainly on intensive training of
brain lesions of other etiologies, as some other pro- language functions. Still, the results might indicate that
grams also do (e.g. Svendsen & Teasdale, 2006). The the group programs could benefit from a larger degree
content of our program seems to be rather similar to of individualization.
other well-known programs (Ben-Yishay & Prigatano, Cognitive rehabilitation services at KReSS both
1990; Wilson, 2002), which is not surprising, given that comprise programs offering holistic cognitive rehabili-
these programs were the role models when our program tation and programs targeted at specific cognitive func-
first was established. tions. Comprehensive, holistic rehabilitation programs
One distinct feature of services at KReSS is the high as well as interventions for distinct cognitive impair-
degree of inpatient services for patients who are able to ments e.g. regarding attention, memory, aphasia, and
live independently, and thus are not necessarily in need executive function are supported by available evidence
of hospitalization. Only the Finnish program seems to (Cicerone et al., 2000, 2005, 2011). In our experience, it
be comparable in this regard (Sarajuuri et al., 2005). The is a clinical challenge to balance the two aims. Broad,
main reason for in-hospital admission is the rural Nor- holistic interventions address the complexity of ABI-
wegian geography in addition to the somewhat remote symptomatology, but run the risk of lacking the speci-
location of the hospital. Also, the existing financing ficity of highly targeted programs. Interventions target-
system for specialist rehabilitation services in Norway ing distinct functions, on the other hand, offer the focus
encourages inpatient services. A positive effect is that needed to achieve the necessary intensity, but might not
patients spend more time together during their stay, give enough room for the broad emotional, psychoso-
providing ample opportunity to exchange ideas and cial and vocational needs of the patients. At KReSS, we
experiences. aim to integrate interventions targeting specific func-
As outpatient services are underdeveloped and partly tions into holistic programs, but also to expand the
difficult to deliver due to geography, services that follow array of services by offering specified programs target-
patients through their rehabilitation process over longer ing impairments of distinct cognitive functions. Future
time periods are difficult to establish. For the time being, research should investigate the optimal manner of offer-
the described group based interventions are the main ing and combining these two approaches, including
services available in chronic stages; however, relying the definition of possible subgroups with regard to
purely on group based treatment is not advisable. The impairment patterns or etiology, the best timing of inter-
establishment of more comprehensive services ranging ventions and their optimal length and intensity.
from the first post injury period into later stages and In addition to the clinical services, the unit is highly
a more flexible combination of in- and outpatient ser- engaged in education and research activities. In a coun-
vices is a challenge in a further development of KReSS’ try with a small population as Norway, a major or
services. sole centre for a certain field needs to take responsibil-
Results from the patient satisfaction survey indicate ity for developing, spreading and ensuring up-to-date
a high level of satisfaction with the cognitive reha- expertise. To balance efforts in direct patient work
bilitation services at KReSS. It is however notable with education and research activities is a continuous
that a substantial proportion of the patients did answer and challenging task even in a prosperous country as
that they only to a small extent or even less partici- Norway.
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