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Reupert Et Al (2015) Parents With Mental Illness - Review
Reupert Et Al (2015) Parents With Mental Illness - Review
To cite this article: Andrea Reupert & Darry Maybery (2015): What do we know about families
where parents have a mental illness? : A systematic review, Child & Youth Services, DOI:
10.1080/0145935X.2016.1104037
Article views: 35
Download by: [Purdue University Libraries] Date: 15 March 2016, At: 04:50
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What do we know about families where parents have a mental illness? : A systematic review
Krongold Centre
Faculty of Education
3800 Victoria
Australia
andrea.reupert@monash.edu.au
Monash University,
PO Box 973
AUSTRALIA
darryl.maybery@monash.edu.au
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Abstract:
This paper provides an overview of what we know about families where a parent has a mental
illness, in order to situate the following papers for the special edition. An extensive search
during November, 2014 in the Ovid MEDLINE and PsycINFO databases identified relevant
papers that were then synthesized and presented in terms of (i) prevalence of parents and
children living with parental mental illness (ii) mechanisms of risk for children (iii) needs of
children (iv) needs of parents and (v) intervention types and outcomes. A significant paradigm
shift across all levels of policy and service development is required to adequately meet the needs
Highlights:
Protective and risk factors emulate from the child, parent, family and community
Parents need to manage their mental illness and assume a parenting role
A paradigm shift is needed in mental health services to better meet family needs
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This opening paper establishes the context for the special edition, by synthesizing research
regarding the prevalence of these families, the mechanisms of risk for children, the needs of
family members, and the types of interventions currently available to children, parents and
families living with parental mental illness. Recommendations for policy and practice conclude
this paper and provide a springboard to the subsequent papers which explore these issues in
further depth.
The adverse outcomes of children of parents with a mental illness are well established. We
know that compared to other children, children living in these families are at risk of poorer
psychological health (Reupert & Maybery, 2007), dropping out of school (Farahati, Marcotte &
Whitehead & Hurley, 2005), lower rates of perceived competence (Maughan, Cicchetti, Toth &
Rogosch, 2007) and as adults have higher substance abuse rates (Mowbray & Oyserman, 2003).
At the same time, not all children will be adversely affected nor will all children in the same
family be affected in the same way (Reupert, Maybery & Kowalenko, 2012). Recent research
efforts have moved beyond considering whether children are at risk, and instead have begun to
identify the mechanisms by which risk is transmitted to children. Perhaps even more important
is the emerging evidence for the different types of interventions for children and parents living
with parental mental illness, which provides a critical evidence base to support practice change.
The research questions framing this review are: what do we know about families where a parent
has a mental illness in terms of (i) prevalence (ii) mechanisms of risk for children (iii) needs of
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children, (iv) needs of parents and (v) intervention types and outcomes. Framed within these
Methodology
Relevant literature was drawn from the Ovid MEDLINE and PsycINFO data bases and searched
during November, 2014 for peer reviewed, English language papers. Search terms included
variations of parent (e.g. mother or father) and child (e.g. child or offspring) as well as specific
parental disorders (such as depress* or affect* and so on) (specific search terms available from
the authors). There was a preference for more recent studies (post 2000) though some seminal
studies were included. There were no geographical limitations for the papers selected in this
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review. We included only those papers that considered children under the age of 18 years which
and narrative) and research papers with primary data; we excluded opinion pieces and editorials.
Papers were identified on the basis of their relevance to the review questions.
A total of 1863 papers across the three data bases were found using the search terms, though only
297 of these were considered relevant to the questions framing this paper. Not all papers are
cited in this review; instead we attempted to provide a range of timely studies across various
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i. Prevalence
There are generally two types of studies in this area; those that estimate the number of parents
with a mental illness who have children or those that estimate the number of children living with
a parent with a mental illness. An early study in the former group comes from the US, where
Nicholson, Biebel, Katz-Leavy and Williams (2004) estimated the prevalence of parenthood
among adults meeting psychiatric diagnostic criteria for mental illnesses using data from the U.S.
National Comorbidity Survey (NCS) obtained in the early 1990‟s. They found that women (68%)
and men (54%) meeting criteria for mental illnesses were slightly more likely to be parents than
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those reporting no psychiatric or substance use disorder (62.4% and 52.9% respectively). Over
the course of their lifetime, the majority of women and men falling into the representative
diagnostic categories were parents: affective disorders (66.8% of the women; 58% of the men),
anxiety disorders (68.2% women and 56.4% men) and posttraumatic stress disorder (72.8%
women; 67.9% men) and non-affective psychosis (61.8% women and 55.2% men). Among
participants who were parents, almost half of the mothers and almost a third of the fathers had a
lifetime prevalence of mental illness. More recently, Luciano, Nicholson and Meara (2014)
estimated the prevalence of motherhood as 42% among women with no mental illness to 38%
among women with serious mental illness by using data from the 2009 and 2010 U.S. National
Survey on Drug Use and Health. Rates of fatherhood ranged from 35% among men with no
mental illness to 23% among men with serious mental illness. Again using a population approach,
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Campbell et al., (2012) used data from the second Australian survey of psychosis (n=1825) and
found that more than half the women and about one quarter of men were parents.
Other studies examine the numbers of clients in psychiatric settings who are parents. In a cross-
sectional survey of psychiatric in- and out-patients in Sweden, 36% (n=137) of adult clients had
children under 18 years of age (Östman & Eidevall, 2005). In the USA, Craig and Bromet
(2004) found that 130 (29% ) of 453 clients at a community based mental health service were
parents, with women twice as likely as men to be parents in all diagnostic groups. Patients with
mood disorder and/or psychosis were twice as likely to be parents as those with
among fathers and to a somewhat lesser extent among mothers. However, as parenting status is
not routinely collected in mental health services, these results may be an underestimation of the
The second group of studies estimates the number of children living with parental mental illness.
Some studies screen for psychopathology in parents when children present with their own mental
health difficulties. For example, in the USA, Vidair et al., (2011) found that of the 801 mothers
and 182 fathers seeking mental health treatment for their children, 18.8% of mothers and 18.4%
of fathers reported elevated internalizing symptoms. However, such studies are problematic as
they focus on children who are registered in a mental health service. As not all children living in
these families present with mental health difficulties or are not receiving treatment, an
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Maybery, Reupert, Patrick, Goodyear and Crase (2009) examined both the number of parents
and children by examining three data sets. First, they combined two population studies from the
public domain; the Mental Health and Wellbeing: Profile of Adults, Australia 1997 and family
characteristic data from the Australian Bureau of Statistics. Second, they examined 38,455 client
attendee records at all state run psychiatric units in one Australian state over during the 2003-
2004 financial year to examine parenting status. Third, a survey of 701 community participants
with children 8-12 years was conducted in 2006, where parents self-identified their own and/or
their spouse‟s mental illness status. On this basis, they concluded that 23.3% of all Australian
children have a parent with a non-substance mental illness, 20.4% of mental health service users
have dependent children and 14.4% of the community sample have at least one parent with a
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mental illness.
participants were recruited (adult psychiatry or child mental health services), which family
members are included (parents, children or both), from where (community or clinical settings)
and how the parent‟s mental illness was diagnosed. Whether and how parenting status was
defined also varies. Moreover, rarely do these studies consider the heterogeneous nature of
families, such as the severity/chronicity /diagnosis of the parent‟s disorder and different family
A recent review of theoretical frameworks explored how children are impacted (or not) by their
parent‟s mental illness (Reupert, Maybery & Nicholson, in press). Across these frameworks, the
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risk exposure for children varies, depending upon multiple and interacting genetic, child, parent,
Recent research suggests that while children of mothers with schizophrenia are at an elevated
risk of schizophrenia, they are also at risk of acquiring other psychotic, affective and personality
disorders (Dean, Stevens, Mortensen, Murray, Walsch & Pedersen, 2010). The authors suggest
that this broad-spectrum effect may be attributable to interactions between genetic factors,
Child characteristics that may predispose them to be more or less affected include a difficult
temperament, behavioural inhibition, negative emotionality, stress reactivity and poor cognitive
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and social skills (Hosman, van Doesum & van Santvoort, 2009). These child related variables
may result from exposure to the parent‟s mental illness, or be present in the child independent of
the parental disorder and subsequently function as a moderator of the impact of the parent‟s
illness on the child. Nonetheless, child variables have the potential to influence a child‟s
relationship with his or her parent, as well as other significant adults in a child‟s life.
Many of those with a mental illness can parent well while others need support (Foster, O‟Brien
& Korhonen, 2012). Moreover, parents that require support may not need this all the time;
symptomology fluctuates and/or parents may find some phases of child development more
challenging than others (e.g. infancy or adolescence). Parenting capacity does not appear to be
related to diagnosis but instead to severity (e.g. suicidality or psychotic behaviour) and the
frequency and duration of the illness (brief, reactive or endogenous) (Reupert, Maybery &
Kowalenko, 2012). However, having a mental illness may disrupt parenting behaviour and the
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2011). Similarly, because of their mental illness a parent may be emotionally unavailable to
Another moderating pathway involved in the transmission of mental illness from parents to
children is social learning, for example children may observe their parent using alcohol as a
means of regulating mood and subsequently copy this behavior (Kroll, 2004). The illness itself
may also impact parent-child relationships, for example, compared to other parents, those with
an anxiety disorder are less likely to grant their children autonomy, to be more catastrophizing
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during child interactions and more likely to demonstrate an overprotective style (Gerull & Rapee,
2002). Finally, the symptomatology of some disorders (for example, personality disorders or
substance abuse disorders) may be associated with impaired self-awareness, which may mean
that the parent is not able to perceive the impact of his or her illness on children and not seek
assistance for the family (Reupert, Maybery, Nicholson, Göpfert & Seeman, in press).
Family discord, trauma and domestic violence may be both the consequences of and/or risk
related factors for parental mental illness (Hosman, van Doesum & van Santvoort, 2009). The
presence of another parent will also influence the level of risk that children are exposed to; if the
partner also has a mental illness or is abusive this will further exacerbate risk to the child, though
if supportive may successfully buffer the negative impact of a parent‟s illness (Hosman, van
Doesum & van Santvoort, 2009). Other research has found low cohesion and poor
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communication among families with a serious mental illness (Warner, Musfon & Weissman,
1995).
Similar to the other domains, the community in which a child lives may be both a protective and
a risk factor for children. Social networks, including neighbors, teachers, grandparents, may
offer support, diversion and respite to families (Hosman, van Doesum & van Santvoort, 2009).
The support the parent receives from mental health agencies is another factor that might
influences family outcomes in some countries. For example, in Australia parents with a mental
illness do not typically receive support for their parenting role when being treated for their illness,
and similarly, mental health clinicians rarely ask about their client‟s children (Maybery &
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Reupert, 2009). The needs of families are often not incorporated into mental health policy and
organizational procedures (including collecting parental status); this is also associated with
deficits with practitioner skill and knowledge for working with parents and children (Maybery &
Reupert, 2009). More broadly, the stigma related to mental illness means that parents with a
mental illness may be seen as incompetent or violent and children as contaminated or pitiful,
which in turn may lead to discrimination regarding child custody arrangements, housing or
employment opportunities (Larson & Corrigan, 2008). Rutter (1987) argues that the direct
effects of parental mental illness are less detrimental than the social adversities typically
In sum, there is no single risk, protective factor or developmental course that dictates children‟s
outcomes. As can be seen here, while a parent‟s mental illness represents a significant risk factor
to the wellbeing of children, it is by no means the sole contributor for how children fare.
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Additionally, we need to acknowledge the bi-directional influences between parents and children,
where not only does a parent‟s illness impact children, but a child‟s behavior and/or emotional
All children need love and nurturing from a significant adult, and an environment in which to
strive. Children whose parents have a mental illness have additional needs, though the child‟s
developmental stage will influence their understanding of the family circumstances and their
coping ability; for example, the needs of an infant and those of an adolescent will differ. Other
factors that influence children‟s needs include the relationship of the child to the parent, for
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example, whether the parent who has the mental illness is the primary caregiver. The severity
and chronicity of the illness are other factors that influence children‟s needs, e.g. a prolonged
illness may tax a child‟s coping resources, while a parent who is suddenly ill may engender
shock or disbelief.
Notwithstanding these variations, a number of generic needs may be ascertained. The primacy of
family was highlighted by the studies reviewed by Gladstone, Boydell, Seeman and McKeever
(2011), as children worried about being separated from their parents (through hospitalisation or
intervention from child protective services), and wanted to keep their family together and
emotionally connected. Similarly, in an Australian, interview based study with 12 young people
whose parent had both a mental illness and a substance abuse disorder, Reupert, Maybery and
Goodyear (2012) found that children valued “good times” with their family and wanted more
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Some children assume caring responsibilities for their parent and/or siblings. While part of a
healthy upbringing involves some degree of caring, respite may be required if caring becomes
onerous and limits a young people‟s educational and social opportunities (Charles, Stainton &
Marshall, 2008; 2012). A recent meta-synthesis on the qualitative findings of 11 studies of the
experiences of young carers (including but not limited to caring for parents with a mental illness)
found that some young people felt that they had no choice when it came to adopting their caring
role (Rose & Cohen, 2010). While many described the difficult aspects of the role, including
uncertainty and isolation, they sought to derive a sense of pride and self-esteem from being a
„carer‟. Specific to young people caring for a parent with mental health issues were issues of
„invisibility‟, shame and stigma (Rose & Cohen, 2010). Banks et al., (2002) argues that while
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some level of caring is always like to occur in some families, those youth who wish to provide
care need support to enable them to do so, and respite as required. Additionally, young people
who care for their parent and/or siblings need to have this role acknowledged and supported by
Children also express a need for knowledge and information about mental illness generally and
their parent‟s illness in particular (Grove, Reupert & Maybery, 2013). A seminal study
undertaken in the USA by Beardslee and Podorefsky (1988) with 15 resilient young people
found that they were able to distinguish between themselves and their parent‟s illness and
appreciated that they were not the cause of their parents‟ illness. Focht and Beardslee (1996)
found that enhancing children‟s understanding helps them to develop a sense of coherence
regarding what they are seeing, experiencing and feeling which “helps them to trust their own
experience” (p. 9). While there is some contention as how much to tell children about their
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parent‟s illness, Murdoch (2010) concluded that children “needed enough information about
mental illness to help them live with their circumstances, avoid unnecessary emotional duress
Closely related to knowledge, is the need for open and honest family communication about the
parent‟s illness. While many people (such as the family doctor or teacher) may talk to the child
about their parent‟s illness, many young people want to discuss the illness with their affected
parent (Fudge & Mason, 2004). Opening up family conversations gives young people the
opportunity to discuss what is happening for them and ask specific questions that they may have.
Family conversations provide an opportunity for parents to hear from children what they are
experiencing. As Solantaus, Reupert and Maybery (in press) summarise, “The aim of these
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conversations is for children to understand their parent‟s behaviour and for the parent to
understand their children‟s experiences in order for parents and children to find mutual
Opportunities for emotional expression are another developmental need for children. The review
by Gladstone et al., (2011) indicted that some children have no safe outlet for difficult feelings
related to their parent‟s illness including worry, fear, sadness, shame, guilt and blame. Children
potentially negative reactions when talking about their shameful „family secret‟ (Gladstone, et al.,
2011, p. 283). The company of similar peers, whose parents also have a mental illness, helped
them realise that they were not alone (Gladstone, et al., 2011). Similarly, connectedness with the
others if the parent is not available, such as from the other well parent, peers, extended family
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members, teachers and so forth is regarded as an important source of social and emotional
Crises such as when a parent is hospitalised or very unwell are particularly at risk times for
children. Crisis plans may be useful here; these involve the family working out together (when
the parent is well) what needs to happen if or when a crisis should occur, such as where the child
may need to stay (Reupert, Green & Maybery, 2008). In these times, practical support is
essential, and may include allowing the child to visit his/her parent in hospital, and having a
A parent with a mental illness faces the same challenges that all parents face but simultaneously
needs to cope with the sometimes debilitating symptoms of their mental illness. Hence, their
needs relate to managing their mental illness as well as assuming parenting responsibilities.
With appropriate support, treatment and/or medication, most people with a serious mental illness
can become competent parents (Risley-Curtiss, Stomwall, Trueet Hunt & Teska, 2004).
There is some disagreement as to whether mental health services should focus on improving a
parent‟s illness, without incorporating parenting responsibilities into treatment plans. For
example, an Australian medical practitioner interviewed by Reupert, Maybery and Morgan (2015)
argued she needed to focus on “getting the parent well [because] then parenting looks after
itself”. There is some research to support this stance. Swartz et al., (2008) found evidence of
symptoms and functioning. Conversely, Forman and colleagues (2007) found that the treatment
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relationship. Likewise, Kelley and Fals-Stewart (2002) found that couple-based therapy recorded
greater benefits for children than individual based therapy, for families where a parent had a
positively impacted on family dynamics. We would suggest that the above research highlights
the need for both; timely and effective treatment for the parent and the need to include parenting
Just like other parents in the community, some parents with a mental illness may require support
and guidance in their parenting interactions. However, generic parenting programs generally do
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not address the specific concerns of a parent who has a mental illness (Thomas & Kalucy, 2002).
Instead parenting programs for those with a mental illness need to be flexible in program content
and time to allow for parents to drop in and out as required, and provide opportunities to learn
from and with other parents in similar circumstances (Reupert & Maybery, 2011). In terms of
specific skills, Solantaus, Reupert and Maybery (in press) suggest that some parents may not
have the language or confidence to talk to their children about their illness and may require
Others have also highlighted the nature of support required by some parents, for role modelling,
emotional support, companionship, and practical assistance in caring for children and running a
household (Reupert & Maybery, 2007). At the same time, support needs for parents will vary
over time and fluctuate depending on symptomology. Nicholson et al., (1998) found that while
a partner or extended family member may help the parent with the mental illness by assisting in
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child care, they may take over the running of the household and negatively impact family
dynamics.
There have been several reviews conducted on the type and/or efficacy of interventions currently
available for children, parents and/or families (see Bee, et al., 2014; Brockington et al., 2011;
Hosman, van Doesum & van Santvoort, 2009; Reupert, Cuff, Drost, Foster, van Doesum & van
Santvoort, 2012; Reupert, Maybery & Kowalenko, 2012). The following is not a definitive list
of all available interventions. Instead we present a selected group to demonstrate the scope of
intervention types for different stakeholders, and the range of ways they are evaluated.
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Peer support programs may be offered to children whose parents have a mental illness, where
groups of children living in similar families learn more about mental illness, adaptive coping
strategies, develop peer relationships and are provided with respite from caring. In the
Netherlands, van Santvoort, Hosman, van Doesum and Janssens (2014) assessed the
effectiveness of one such program, using a randomized controlled trial (RCT) of children from
254 families. Children in the intervention group experienced a greater decrease in negative
cognitions and sought more social support, immediately after participation and three months later,
as compared to control group children. Peer support programs commonly adopt a group,
strength based, preventative approach that aim to prevent mental health issues from occurring;
this may mean that children with current mental health difficulties are excluded and instead
directed to active, individual treatment (Reupert, Cuff, Drost, Foster, van Doesum & van
Santvoort, 2012). Other less commonly documented child approaches include online
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interventions (Drost, Cuijpers & Schippers, 2011) and bibliotherapy, where children are
presented with literature with characters who are in similar positions to themselves (Tussing &
Valentine, 2001). Young people who care for their siblings and/or parent may also be supported
financially, e.g., Carers Australia provides bursaries to allow young carers to continue or return
to study. It is still early days for these latter approaches in building an efficacy base.
Other interventions focus on parents as the catalyst of change back in their family. For example,
Let‟s Talk about Children, is a manualised, 2-3 session intervention that provides parents with
the skills to discuss depression with their children and support their family within the context of
the disorder. A RCT conducted with 109 Finnish families reported increased parent
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understanding, reduced guilt and shame and children reported significant reductions in emotional
symptoms and improved pro-social behaviour (Punamäki, Paavonen, Toikka & Solantaus, 2013).
In the USA, the Families Facing the Future intervention (Haggerty, Skinner, Fleming, Gainey &
Catalano, 2008) targets parents in methadone treatment and is designed to reduce their risk of
relapse and their children‟s risk of substance abuse. The intervention includes a parent training
curriculum where parents are taught positive family management practices, how to communicate
more effectively with children and how to teach children problem-solving and drug-refusal skills.
While there was evidence of a significant difference in intervention by gender (with a reduced
risk of developing a substance disorder for boys compared to girls), there was no difference for
Family interventions target the whole family though there are different ways these are conducted.
For example, the US based Keeping Families Strong is designed for depressed mothers and their
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children aged 9-16 (Valdez, Mills, Barrueco, Leis & Riley, 2011). This cognitive behavioral
approach involves ten sessions including parent and child multifamily groups and individual
and emotional problems, improvements in the quality of family interactions and routines and
improvements in their own well-being and support from others (Valdez, Mills, Barrueco, Leis &
Riley, 2011). Children reported decreased internalizing symptoms, improved coping, increased
Family Options is a very different family focused intervention conducted through a clubhouse
agency in the USA (Nicholson, Albert, Gershenson, Williams & Biebel, 2009). Designed for
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parents with a serious mental illness and their children aged 1.5 through to 16, the goal of Family
Options is to build essential skills in both parents and children and promote access to formal and
informal supports systems. Families meet with a Family Coach, and together they work on a
family care plan, where family goals are identified in domains such as family relationships, child
behavior management, work and school. Support is then provided to the family in achieving
these goals, within a 12-18 month time frame. While child outcomes have yet to be reported,
Recently, Bee et al., (2014) reviewed 29 intervention studies, of which 26 targeted parents and/or
children where the parent had depression, highlighting a need for interventions for parents with
other disorders. While they found evidence for effect in 18 programs for severely depressed
mothers they concluded that most trials were of poor or unclear quality and few collected
longitudinal data. As Reupert and Maybery (2015) summarise, we still do not know enough
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about intervention targets (child, parent, family), content (e.g. therapy or psycho-education) and
Some tentative conclusions might be drawn about the research conducted in this field. Most
research focuses on families where a parent has an affective disorder, in a Western context
(North America, Europe and Australia); more research is needed on different family types
(including same sex parents), parental diagnoses other than an affective disorder, and various
cultural groups including those from the developing world, migrant and refugee families. On the
whole, studies in this area fail to consider the economic implications of parental mental illness or
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the cost effectiveness of interventions (Bee et al., 2014) and these areas need to be a priority for
future work.
A fundamental paradigm shift is required at all levels of service development, delivery and
policy to better meet the needs of families. Parenting status needs to be a standard intake
question and assessment should consider the needs of a client‟s children and identify the supports
required by the client in assuming his or her parenting role. Family focused practices and
interventions should be delivered with each member of the family in mind. For example, family-
friendly spaces should be provided in psychiatric wards, so that children may safely visit their
parents when hospitalised. Family sensitive policies and guidelines need to be considered when
addition, training in family focused practices needs to be offered during graduate years and
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ongoing professional development programs (see for example, Reupert, Foster, Maybery, Eddy
& Fudge, 2011) including supervision. More research is required to determine what works, for
whom, and when, in regard to prevention and early intervention for these families. Similarly,
there is a need for culturally sensitive and/or targeted interventions necessary for increasingly
We know that children and parents living in families affected by parental mental illness are at
greater risk of various adverse outcomes but at the same time, the research clearly demonstrates
that these consequences do not have to be inevitable. Given that we know that these children are
a particular at risk group, it is a moral imperative to ensure that these families are identified, and
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structures are in place to adequately address their needs at prevention and early intervention
stages. While an evidence base is still emerging in terms of formal child, parent and family
interventions, there is still much to be done to ensure that community, mental health and other
services have the capacity to work with clients with mental health issues and their children, in an
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