Professional Documents
Culture Documents
Assessing The Validity and Reliability of The Pool
Assessing The Validity and Reliability of The Pool
net/publication/5463955
Assessing the validity and reliability of the Pool Activity Level (PAL) Checklist
CITATIONS READS
25 2,528
6 authors, including:
Jane Burgess
North East London NHS Foundation Trust
39 PUBLICATIONS 747 CITATIONS
SEE PROFILE
All content following this page was uploaded by Jackie Pool on 31 May 2014.
Assessing the validity and reliability of the Pool Activity Level (PAL) Checklist for use with
older people with dementia
Jennifer Wenborna*, David Challisb, Jackie Poolc, Jane Burgessd, Nicola Elliottd and Martin Orrella
a
Department of Mental Health Sciences, University College London, UK; bPersonal Social Services Research Unit,
University of Manchester, UK; cJackie Pool Associates, Bishop Waltham, Hampshire, UK; dNorth East London Mental
Health NHS Trust, UK
(Received 15 December 2006; final version received 29 May 2007)
Activity is key to maintaining physical and mental health and well-being. However, as dementia affects the ability
to engage in activity, care-givers can find it difficult to provide appropriate activities. The Pool Activity Level
(PAL) Checklist guides the selection of appropriate, personally meaningful activities. The aim of this study was to
assess the reliability and validity of the PAL Checklist when used with older people with dementia. A postal
questionnaire sent to activity providers assessed content validity. Validity and reliability were measured in a
sample of 60 older people with dementia. The questionnaire response rate was 83% (102/122). Most respondents
felt no important items were missing. Seven of the nine activities were ranked as ‘very important’ or ‘essential’ by
at least 77% of the sample, indicating very good content validity. Correlation with measures of cognition, severity
of dementia and activity performance demonstrated strong concurrent validity. Inter-item correlation indicated
strong construct validity. Cronbach’s alpha coefficient measured internal consistency as excellent (0.95). All items
achieved acceptable test-retest reliability, and the majority demonstrated acceptable inter-rater reliability. We
conclude that the PAL Checklist demonstrates adequate validity and reliability when used with older people with
dementia and appears a useful tool for a variety of care settings.
Keywords: activity; assessment; care homes; dementia
provision, they need a quick and easy to use an Phase 1 – content validity
assessment tool that has good psychometric properties. The postal questionnaire was circulated to three
The Pool Activity Level (PAL) Instrument (Pool, groups: (1) the College of Occupational Therapists
Downloaded By: [Wenborn, Jennifer] At: 10:59 11 April 2008
1999) was published as part of the Bradford Dementia Specialist Section – Older People’s Dementia Clinical
Group Good Practice Guide series. It was developed Forum; (2) The National Association for Providers
by Jackie Pool, an occupational therapist, at the of Activities for Older People; and (3) other experts,
request of the late Tom Kitwood. He sought a practical primarily occupational therapists and activity provi-
resource for carers of people with dementia, to assess ders. Respondents were asked to state their profes-
and enable their engagement in meaningful occupa- sional background, whether they had previously used
tion. Pool used the underpinning theory from the the PAL Checklist and, if so, in what type of setting:
Cognitive Disability Model (Allen, Earhart, & Blue, ward/day service/person’s home/care home? The fol-
1992), later refined and renamed the Functional lowing questions were asked: ‘Are any important items
Information Processing Model (Allen, 1999). This missing?’; ‘Are any items redundant?’; and ‘Are the
occupational therapy model outlines six cognitive instructions clear?’ Each question required a yes or no
levels, each of which is described in terms of the response and space was provided for comments.
limitations and abilities observed within behavioural Finally, respondents were asked, ‘How easy or difficult
patterns whilst undertaking everyday tasks. The levels do you think it is to complete the PAL Checklist?’ and
span from six, where functioning is normal, to one given four options from which to choose: very difficult/
where the person is profoundly impaired. quite difficult/quite easy/very easy. Respondents were
Pool aimed to enable those who assist a person with asked to rank the importance of each of the nine
dementia to identify and capitalise on the individual’s Checklist items using a four-point scale, when 1 ¼ not
abilities as well as assisting with their needs. important; 2 ¼ quite important; 3 ¼ very important;
A Checklist to identify the level of ability and a and 4 ¼ essential. The frequency and percentage of
Profile to guide the care-giver in engaging and enabling responses for each questionnaire item was recorded
the person was developed. Early in its development, the and the data analysed using descriptive statistics in
Checklist was implemented in a variety of care settings order to evaluate content validity.
for people with dementia, including a continuing care
hospital ward; five social services residential care
homes; and in a mental health NHS Trust providing Phase 2 - validity and reliability
services to people with dementia on an assessment A range of specialist services for people with dementia,
ward and living in the community. Care workers, provided by a NHS Mental Health Trust were
including nurses, occupational therapists, support approached by mail and then a telephone call by JW,
workers and activity providers were guided to use the in order to recruit 60 older people with dementia.
Checklist and Profile in their assessment and care These services comprised: two day hospitals, four
planning. Following feedback, the tool was refined and admission/assessment in-patient wards and two units
the first edition published (Pool, 1999). Following providing continuing care. Participants had to: be aged
further users’ feedback, a second edition containing 60 years or over; have received the service for at least
additional refinements was published (Pool, 2002). The two weeks (or four visits in the case of the two day
Pool Activity Level (PAL) Instrument (Pool, 2002) hospitals); meet the DSM-IV (American Psychiatric
comprises a number of sections, including the PAL Association, 1994) diagnostic criteria for dementia;
Checklist. It is widely used in community, day care and and score less than 24 on the Mini Mental Status
care home settings throughout the UK and is Examination (MMSE: Folstein, Folstein, & Mchugh,
recommended in the National Clinical Practice 1975). Information Sheets were provided and consent
Guideline for Dementia (NICE, 2006) as an instrument obtained directly from participants if possible.
to guide providers of daily living and leisure activities. For those people unable to sign a consent form, their
The aim of the present study was to assess the participation was discussed with relatives (if applic-
validity and reliability of the PAL Checklist when used able) and relevant nursing or care staff (unit manager
with older people who have dementia. or keyworker) to ensure their best interests were
represented. Participants’ general practitioners were
informed of their inclusion within the study. Ethical
Methods approval was granted by the NHS Barking & Havering
Study design Local Research Ethics Committee, reference number:
05/Q0602/8.
The study comprised two phases. Phase 1 used a postal
questionnaire to assess content validity of the PAL
Checklist. Phase 2 assessed the criterion, concurrent
Instruments
and construct validity; internal consistency; and inter-
rater and test-retest reliability of the PAL Checklist The pool activity level checklist
in a sample of older people receiving specialist mental The PAL Checklist is a carer-rated instrument that
health services for people with dementia. identifies the level of cognitive ability that an
204 J. Wenborn et al.
Table 1. The Pool Activity Levels.
solve any problems that arise in the process. A person functioning at this activity level is able to carry out activities that have a
tangible outcome, such as: crafts with an end result; cooking and baking; traditional board games and larger group games;
group discussions and quizzes.
Exploratory activity level
A person can carry out very familiar activities in familiar surroundings, but is more concerned with the effect of doing the activity
than the actual outcome. A person functioning at this activity level is able to carry out creative activities, for example: painting
and pottery; reminiscence, music, dance and movement.
Sensory activity level
A person is primarily concerned with the sensation being experienced and so moves his/her body in response. A person
functioning at this activity level is able to complete simple, one-step activities to provide a range of sensations, for example:
simple ball games, dancing, folding, dusting, sweeping, rummaging, massage, soft toys and dolls, animals.
Reflex activity level
A person is probably no longer aware of their surrounding environment, nor their own body, so movement is a reflex response to
a stimulus. Direct sensory stimulation is needed to raise the person’s self-awareness. It is important to avoid sensory overload
so activities should utilise single sensations. A person functioning at this activity level is able to engage in: music, massage,
touch, multi-sensory stimulation.
individual has to engage in activity. There are four Tombaugh & McIntyre (1992). The maximum score
activity levels: planned, exploratory, sensory and reflex of 30 indicates no cognitive impairment. A negative
(see Table 1). correlation between the MMSE score and the PAL
The PAL Checklist (see Appendix 1) covers nine activity level was predicted.
everyday activities: bathing/washing; getting dressed;
eating; contact with others; groupwork skills; commu-
Clinical dementia rating scale
nication skills; practical activities (for example: craft,
domestic chores, gardening); use of objects; and The Clinical Dementia Rating Scale (CDR: Hughes,
looking at a newspaper/magazine. Four descriptive Berg, Daniziger, Coben, & Martin, 1982) is a global
statements are provided for each activity. The care- rating of the severity of dementia. Inter-rater reliability
giver ticks the one that most accurately describes the has been established (Berg, Miller, & Storandt, 1988;
individual’s performance of that activity over the Hughes et al., 1982). The Chronic Care Version
preceding two weeks. The number of statements includes two further categories of severity: profound
selected for each level is totalled and the highest and terminal and was therefore used in this study in
‘scoring’ one indicates the individual’s activity level. In order to cover the range of service settings included.
practice, no score is recorded, just the activity level. The lowest possible score of 0 indicates no evidence of
However, to enable statistical analysis, the PAL dementia. A positive correlation between the CDR
Checklist data were entered into the SPSS database score and the PAL activity level was predicted.
using the following nominal values: 1 ¼ planned;
2 ¼ exploratory; 3 ¼ sensory; and 4 ¼ reflex. Barthel index
The PAL Instrument includes an Activity Profile
The Barthel Index (BI: Mahoney & Barthel, 1965)
for each activity level. These profiles outline the likely
measures functional ability and the degree of assistance
abilities and limitations of a person at that activity
required (physical and/or verbal) in ten daily living
level. They also provide guidance to care-givers on how
activities. The score indicates the individual’s level of
best to engage and enable an individual at that activity
level. For example, the optimal positioning of tools, dependency. Validity, inter-rater and test-retest relia-
verbal instructions and non-verbal directions are bility and sensitivity have been assessed as being
described. This information can guide care-givers to excellent (Wade & Collin, 1988). The activities assessed
present personally meaningful activity (as identified by both the BI and the PAL Checklist are: bathing/
through completion of the PAL Personal History washing, getting dressed and eating. The maximum
Profile) at an appropriate level of challenge or ‘fit’. score of 100 indicates independence in daily living
activities. A negative correlation between the total BI
score and the PAL activity level was predicted.
Mini mental state examination
The MMSE is a well-known cognitive screening
test frequently used in clinical and research settings. Bristol activities of daily living scale
Validity, test-retest and inter-rater reliability The Bristol Activities of Daily Living Scale (BADLS:
were established by the original authors (Folstein Bucks, Ashworth, Wilcock, & Siegfried, 1996) is a
et al., 1975) and have been further reviewed by carer rated scale comprising 20 items. It was developed
Aging & Mental Health 205
specifically for use with people with dementia. Face, therefore selected as they either: assess key factors that
construct and concurrent validity, and test-retest influence the ability to engage in activity, such as the
reliability have been confirmed (Bucks et al., 1996). severity of dementia (CDR) and degree of cognitive
Downloaded By: [Wenborn, Jennifer] At: 10:59 11 April 2008
The activities assessed by both the BADLS and the impairment (MMSE); or the ability to carry out
PAL Checklist are: bathing/washing, dressing, eating, specific activities that are also assessed by the PAL
communication and participation in activities. The Checklist (BI, BADLS, CAPE-BRS).
lowest possible score of 0 indicates independence in
daily living activities. A positive correlation between
the overall BADLS score and the PAL activity level Assessing reliability
was predicted. Inter-rater reliability was assessed by completing the
PAL Checklist with another staff member on the same
Clifton assessment procedures for the day. Staff were asked not to confer with colleagues.
Elderly – Behaviour Rating Scale Test-retest reliability was assessed by repeating the
PAL Checklist with the first staff member approxi-
The Clifton Assessment Procedures for the Elderly –
mately a week later.
Behaviour Rating Scale (CAPE-BRS: Pattie &
Gilleard, 1979) is a carer-rated scale that assesses a
range of daily living activities and behaviours in order
Results
to indicate the individual’s level of dependency. Four
sub-sections consider: physical dependency, apathy, Phase 1
communication difficulties and social disturbance. The In total, 122 questionnaires were circulated to poten-
activities assessed by both the CAPE-BRS and the tially eligible participants. One-hundred-and-two com-
PAL Checklist are: bathing, dressing, participation in pleted questionnaires were received, representing a
activity, socialising and communication. The lowest response rate of 84%. Fifty-five (54%) respondents
possible score of 0 indicates independent function. had previously used the PAL Checklist and forty-seven
A positive correlation between the overall CAPE-BRS (46%) had not. Of those who had used the instrument,
score and the PAL activity level was predicted. 25 (45%) had used it in a ward; 20 (36%) in a day
service; 22 (40%) in a person’s own home; and
27 (49%) in a care home setting. Seventy-five (74%)
Assessing validity were occupational therapists or occupational therapy
Data were gathered, within the service settings, by one support workers; twelve (12%) were activity providers;
of three raters: JW, JB and NE. The MMSE was and the other fourteen (14%) were from a variety of
completed with the participant with dementia. professional backgrounds, including nursing and
A member of the nursing or care staff was interviewed psychology.
regarding each participant and asked to complete the
PAL Checklist. Their reported observation of how the
individual had actually behaved over the preceding Content validity
two weeks, together with information obtained from Ninety-five (97%) said the instructions for completing
the care plan, enabled the rater to complete the other the PAL Checklist were clear. Using a four-point scale
instruments. Criterion validity was assessed by com- ranging from very difficult to very easy, 90 respondents
paring the PAL activity levels by service setting. It was (93%) rated the Checklist as quite easy or very easy to
predicted that the day hospital attendees (who were complete. Seven items were ranked as very important
still living in the community) would achieve a higher or essential by at least 73 (77%) of respondents. The
PAL activity level, i.e. planned or exploratory, than most highly ranked of these seven items was contact
those living in continuing care. An inter-item correla- with others, by 93 (99%) of respondents; followed by:
tion matrix was used to evaluate construct validity. communication skills, 89 (94%); eating, 87 (93%);
It was anticipated that the highest correlation would be getting dressed, 79 (84%); bathing/washing, 78 (82%);
between the following sets of activities: (1) bathing, use of objects, 74 (78%); and practical activities,
dressing, practical activities, use of objects and looking 73 (77%). Fifty-seven (60%) ranked groupwork skills
at a newspaper, as these rely on recognising and using as very important or essential, and a further 33 (35%)
objects appropriately and in the correct sequence; and ranked it as quite important. Only 30 (32%) respon-
(2) contact with others, groupwork and communica- dents ranked the newspaper item as very important or
tion, as these all depend on interacting and commu- essential, but a further 45 (47%) ranked it as quite
nicating with others. Concurrent validity was tested by important. Most respondents (48/55%) said no impor-
correlating the PAL Checklist results with data tant items were missing. Although 39 (45%) said that
obtained using the other instruments. There is no one or more important items were missing and
relevant ‘gold standard’ instrument against which to 52 (60%) made comments there was no consistent
directly compare the PAL Checklist, i.e. a generic, pattern to their responses. Nine (17%) responses
quick and easy to use tool that assesses an individual’s related to describing the individual’s mood and
level of ability to engage in activities. Instruments were motivation, for example: ‘perhaps ‘mood’ or ‘ability
206 J. Wenborn et al.
to co-operate’ could be included?’ Eight (15%) 19 (32%) at reflex level. Table 2 also demonstrates
commented on the individual’s level of orientation that, as predicted, the day hospital attendees achieved
and/or ability to navigate their environment, for higher PAL levels overall and for all-but-one of the
Downloaded By: [Wenborn, Jennifer] At: 10:59 11 April 2008
example: ‘orientation to place, e.g. ability to find way individual items. This indicates a higher level of ability
around familiar/unfamiliar buildings or places’. Five than those requiring the additional support provided
(10%) responses suggested the inclusion of mobility within a continuing care setting. Conversely, those in
and another five (10%) felt that ‘having information continuing care obtained lower PAL activity levels for
and assessment of a person’s ability to transfer, i.e. on all the individual items, reflecting their higher level of
and off bed, chair and toilet’ was needed. A further five dependency.
(10%) specifically suggested that using the toilet and/
or continence should be included.
Some redundant items were identified by 24 (27%). Concurrent validity
Comments related primarily to two items: ‘groupwork’ Concurrent validity was demonstrated through corre-
(13/15%) and ‘looking at a newspaper’ (14/16%), lation of the PAL Checklist data with the overall scores
based on the practitioners’ own experience of using the obtained on each of the other instruments. The
instrument. The difficulty of completing the group- Spearman’s rank order correlation coefficient (RHO)
work item when assessing people living on their own in for each correlation were as follows: MMSE: -0.75; BI:
the community was highlighted, and its relevance -0.71; CAPE-BRS: 0.71; BADLS: 0.82; and CDR:
questioned as this approach is not seen as appropriate 0.81. All correlations were highly significant
for those in the later stages of dementia. It was also (p 5 0.001). As expected, the negative correlation
pointed out that ‘groupwork is the kind of skill which with the MMSE and BI reflected that higher scores
has something to do with staff’. There were three obtained using these tools indicate higher levels of
themes related to the newspaper item: some felt it can cognitive ability and independence in daily living
be difficult to assess; others that it may not be a activities respectively. Conversely, higher scores on
familiar activity to some people and, therefore, not the CAPE-BRS, the BADLS and the CDR reflect
relevant to assess; whilst others stated, ‘it is very higher dependency, poorer ability to perform daily
specific’, suggesting that ‘this may be better widened to living activities and more severe dementia.
include other similar activities, e.g. TV’.
Table 2. Frequency (%) of PAL activity levels per service setting and per PAL Checklist items (n ¼ 60).
Table 3. Construct validity: inter item correlation of the Pool Activity Level (PAL) Checklist.
Table 4. Reliability: Kappa and intra class coefficient emphasis on personal care rather than other activities
values. and the tendency observed in some practice settings to
use the PAL Checklist as an assessment of daily living
Inter-rater Test-retest
Downloaded By: [Wenborn, Jennifer] At: 10:59 11 April 2008
earlier comments reported under content validity. well-being. However, Harmer (2006) also noted that
The other high correlations, between contact with staff may lack the necessary skills to achieve this, and
others and groupwork, and between the newspaper suggested that further research was needed to identify
Downloaded By: [Wenborn, Jennifer] At: 10:59 11 April 2008
item and use of objects, were also anticipated. The ways in which staff can be assisted to enable residents
latter supports Pool̀s original rationale when develop- with dementia access meaningful activities at an
ing the tool, which included the newspaper item as a appropriate level.
way of double checking the ability to handle objects A future randomised controlled trial is planned to
(Pool, 2005). evaluate the effectiveness of an occupational therapy
The Cronbach’s alpha value indicated excellent intervention to improve the quality of life for people
internal consistency, which may be seen as highlighting with dementia in care homes. The intervention
the contribution of each of the items when assessing will include education sessions for care staff, who will
the ability to engage in activity. also complete work based learning tasks to develop
Inter-rater reliability was assessed as being accep- their knowledge and skills in the selection and
table. The range of values for individual items perhaps provision of appropriate activities to residents. As the
reflects variations in the role of the assessor and the PAL Checklist appears to be a valid and reliable tool
particular service setting. For example, the staff in a for use in this setting, it will form part of the
day hospital who did not routinely provide personal intervention.
care assistance found it difficult to score the bathing
and dressing items. Staff were interviewed separately
and asked not to confer, thus reducing the risk of bias Acknowledgements
and, hence, providing a more rigorous test of JW wishes to thank all those colleagues and older people who
reliability. Bearing in mind the number of staff contributed to this study and to acknowledge: the funding of
involved in the study, and their differing levels of her post by the North East London Mental Health NHS
qualification and experience, the fact that inter-rater Trust (NELMHT) Occupational Therapy Service; continued
reliability for each item was acceptable reflects how support of the NELMHT Research & Development
quick and easy it is to learn and put into practice with Directorate; the College of Occupational Therapists and
the Hospital Savings Association (HSA) for the 2005 PhD
reasonable consistency. Test-retest reliability was also Scholarship Award.
acceptable. This would be expected for a tool that
needs to be completed by care-givers who know the
person well, measuring a level of performance that References
would not be expected to change significantly over the
course of a week or so. Allen, C.K. (1999). Structures of the cognitive performance
These results compare well to previous studies to modes. FL: Allen Conferences, Ormond Beach, Florida.
assess other relevant instruments. Reliability and Allen, C.K., Earhart, C.A., & Blue, T. (1992). Occupational
validity studies of the ACLS were primarily conducted therapy treatment goals for the physically and cognitively
in adult psychiatric or physically disabled populations disabled. Rockville, MD: The American Occupational
(Allen et al., 1992). A study of 20 non-institutionalised Therapy Association.
participants assessed it as being useful for use with American Psychiatric Assocation. (1994). Diagnosis and
statistical manual of mental disorders, (4th ed.).
people with dementia (Wilson, Allen, Mccormack, &
Washington, DC: American Psychiatric Association.
Burton, 1989). A further study established the validity
Archibald, C., (1999). Commentary on Allen-Burge, R.,
of an enlarged version designed for use with older Stevens, A.B., & Burgio, L.D., (1999). Effective beha-
people with impaired visual or manual dexterity vioural interventions for decreasing dementia-related
(Kehrberg, Kuskowski, Mortimer, & Shoberg, 1992). challenging behaviour in nursing homes. International
The AMPS has been shown to be reliable and valid for Journal of Geriatric Psychiatry, 14, 228–230.
use with older people with dementia living in the Beck, C. (2001). Identification and assessment of effective
community (Robinson & Fisher, 1996), but it is not services and interventions: The nursing home perspective.
suitable for people who are unable to participate in the Aging and Mental Health, 5(Suppl. 1), S99–S111.
initial interview, activity selection and contract setting Berg, L., Miller, J.P., & Storandt, M. (1988). Mild senile
that is required before the two task assessments take dementia of the Alzheimer type: 2. Longitudional assess-
place. This therefore excludes the use of the AMPS for ment. Annals of Neurology, 23, 497–484.
people with severe dementia, such as those within Brawley, E.C. (2001). Environmental design for Alzheimer’s
continuing care settings. disease: A quality of life issue. Aging and Mental Health,
5(Suppl. 1), S79–S83.
It may, therefore, be concluded that the PAL
Bucks, R.S., Ashworth, D.L., Wilcock, G.K., & Siegfried, K.
Checklist tool demonstrates adequate validity and (1996). Assessment of activities of daily living in dementia:
reliability when used with older people with dementia Development of the Bristol Activities of Daily Living
and, as such, can be described as being fit for purpose. Scale. Age & Ageing, 25, 113–120.
Harmer (2006) highlighted the need to identify each Challis, D., Godlove Mozley, C., Sutcliffe, C., Bagley, H.,
resident’s individual preferences, skills and abilities and Price, L., Burns, A., et al. (2000). Dependency in older
to adapt activities to their capabilities; thus facilitating people recently admitted to care homes. Age & Ageing, 29,
engagement in activities and contributing to 255–260.
210 J. Wenborn et al.
Earhart, C., Pollard, D., Allen, C., & David, S. (2003). Large Nolan, M., Grant, G., & Nolan, J. (1995). Busy doing
Allen Cognitive Screen (LACLS) test manual. Colchester, nothing: Activity and interaction levels amongst differing
CT: S&S. populations of elderly patients. Journal of Advanced
Fisher, A.G. (2003). AMPS: Assessment of motor and process Nursing, 22, 528–538.
Downloaded By: [Wenborn, Jennifer] At: 10:59 11 April 2008
skills, Volume 1: Development, Standardization, and Pattie, A.H., & Gilleard, C.J. (1979). Manual of the Clifton
Administration Manual, (5th ed.). CO: Three Star Press, Assessment Procedures for the Elderly (CAPE).
Fort Collins, Colorado. Sevenoaks, Kent: Hodder & Stoughton Educational.
Folstein, M.F., Folstein, S.E., & Mchugh, P.R. (1975). Mini Perrin, T. (1997). Occupational need in severe dementia: A
Mental State: A practical guide for grading the cognitive descriptive study. Journal of Advanced Nursing, 25,
state of patients for the clinician. Journal of Psychiatric 934–941.
Research, 12(3), 189–198. Pool, J. (1999). The Pool Activity Level (PAL) Instrument: A
Godlove, C., Richard, L., & Rodwell, G. (1982). Time for practical resource for carers of people with dementia.
action. Sheffield, UK: Community Care, University of London: Jessica Kingsley.
Sheffield. Pool, J. (2002). The Pool Activity Level (PAL) Instrument for
Green, S., & Acheson Cooper, B. (2000). Occupation as a Occupational Profiling: A practical resource for carers of
quality of life constituent: A nursing home perspective. people with cognitive impairment, (2nd ed.). London:
British Journal of Occupational Therapy, 63(1), 17–24. Jessica Kingsley.
Hancock, G.A., Woods, R., Challis, D., & Orrell, M. (2006). Pool, J (2005). Personal communication.
The needs of older people with dementia in residential care. Powell Lawton, M. (2001). The physical environment of the
International Journal of Geriatric Psychiatry, 21, 43–49. person with Alzheimer’s disease. Aging & Mental Health,
Harmer, B. (2006). What is meaningful activity? A study to 5(Suppl. 1), S56–S64.
examine and compare the perceptions of older people with Robinson, S.E., & Fisher, A.G. (1996). A study to
dementia living in care homes with those of staff and family examine the relationship of the Assessment of Motor
carers. (Unpublished MSc dissertation, University College and Process Skills (AMPS) to other tests of cognition
London, Department of Mental Health Sciences, 2006). and function. British Journal of Occupational Therapy,
Hughes, C.P., Berg, L., Daniziger, W.L., Coben, L.A., & 59(6), 260–263.
Martin, R.L. (1982). A new clinical scale for the staging of Schneider, J., Mann, A.H., Levin, E., Netten, A., Mozley, C.,
dementia. British Journal of Psychiatry, 140, 566–572. Abbey, A., et al. (1997). Quality of care: Testing some
Kehrberg, K.L., Kuskowski, M.A., Mortimer, J.A., & measures in homes for elderly people. Discussion Paper
Shoberg, T.D. (1992). Validating the use of an enlarged, 1245, Personal Social Services Research Unit (PSSRU),
easier-to-see Allen Cognitive Level in Geriatrics. Physical University of Kent at Canterbury.
& Occupational Therapy in Geriatrics, 10(3), 1–14. Tombaugh, T.N., & Mcintyre, N.J. (1992). The Mini-
Mahoney, F.I., & Barthel, D.W. (1965). Functional evalua- Mental State Examination: A comprehensive review.
tion: The Barthel Index. Maryland State Medical Journal, Journal of the American Geriatrics Society, 40,
14, 61–65. 922–935.
Mozley, C.G. (2001). Exploring connections between occu- Townsend, P. (1962). The last refuge. London: Routledge &
pation and mental health in care homes for older people. Keegan Paul.
Journal of Occupational Science, 8(3), 14–19. Wade, D.T., & Collin, C. (1988). The Barthel ADL Index: A
Mozley, C., Sutcliffe, C., Bagley, H., Cordingley, L., Challis, standard measure of physical disability?. International
D., Huxley, P., et al. (2004). Towards quality care: Outcomes Disability Studies, 10, 64–67.
for older people in care homes. Aldershot, UK: Ashgate. Wilcocks, D., Peace, S., & Kellaher, L. (1987). Private lives in
National Institute For Health And Clinical Excellence public places. London: Tavistock Publications.
(NICE). (2006). Dementia: Supporting people with dementia Wilson, D.S., Allen, C.K., Mccormack, G., & Burton, G.
and their carers in health and social care. National Clinical (1989). Cognitive disability and routine task behaviors in a
Practice Guideline Number CG 042 (p. 188), community-based population with senile dementia.
www.nice.org.uk. Occupational Therapy Practice, 1(1), 58–66.
Aging & Mental Health 211
Completing the checklist. For each activity, the statements refer to a different level of ability. Thinking of the last two weeks,
tick the statement that represents the person’s ability in each activity. There should be only one tick for each activity. If in
doubt about which statement to tick, choose the level of ability which represents the person’s average performance over the
last two weeks. Make sure you tick one statement for each of the activities.
1 Bathing/Washing
. Can bathe/wash independently, sometimes with a little help to start œP
. Needs soap put on flannel and one-step-at-a-time directions to wash œE
. Mainly relies on others but will wipe own face and hands if encouraged œS
. Totally dependent and needs full assistance to wash or bathe œR
2 Getting dressed
. Plans what to wear; selects own clothing from cupboard; dresses in correct order œP
. Needs help to plan what to wear but recognises items and how to wear them: needs help œE
with order of dressing
. Needs help to plan, and with order of, dressing, but can carry out small tasks if someone œS
directs each step
. Totally dependent on someone to plan, sequence and complete dressing; may move limbs to assist œR
3 Eating
. Eats independently and appropriately using the correct cutlery œ P
. Eats using a spoon and/or needs food to be cut up into small pieces œ E
. Only uses fingers to eat food œ S
. Relies on others to be fed œ R
4 Contact with others
. Initiates social contact and responds to the needs of others œ P
. Aware of others and will seek interaction, but may be more concerned with own needs œ E
. Aware of others but waits for others to make the first social contact œ S
. May not show an awareness of the presence of others unless in direct physical contact œ R
5 Groupwork skills
. Engages with others in a group activity, can take turns with the activity/tools œ P
. Occasionally engages with others in a group, moving in and out of the group at whim œ E
. Aware of others in the group and will work alongside others although tends to focus on own activity œ S
. Does not show awareness of others in the group unless close one-to-one attention is experienced œ R
6 Communication skills
. Is aware of appropriate interaction, can chat coherently and is able to use complex language skills œ P
. Body language may be inappropriate and may not always be coherent, but can use simple language skillsœ E
. Responses to verbal interaction may be mainly through body language; comprehension is limited œ S
. Can only respond to direct physical contact from others through touch, eye contact or facial expression œ R
7 Practical activities (craft, domestic chores, gardening)
. Can plan to carry out an activity, hold the goal in mind and work through a familiar sequence; œ P
may need help solving problems
. More interested in the making or doing than in the end result, needs prompting to remember purpose, œ E
can get distracted
. Activities need to be broken down and presented one step at a time; multisensory stimulation can help œ S
to hold the attention
. Unable to ‘do’ activities, but responds to the close contact of others and experiencing physical sensations œ R
8 Use of objects
. Plans to use and looks for objects that are nbot visible; may struggle if objects are not in usual/familiar œ P
place (i.e. toiletries in a cupboard below washbasin)
. Selects objects appropriately only if in view (i.e. toiletries on a shelf next to washbasin) œE
. Randomly uses objects as chances upon them; may use inappropriately œS
. May grip objects when placed in the hand but will not attempt to use them œR
9 Looking at a newspaper/magazine
. Comprehends and shows interest in the content, turns the pages and looks at headlines and pictures œP
. Turns the pages randomly, only attending to items pointed out by others œE
. Will hold and may feel the paper, but will not turn the pages unless directed and will not show œS
interest in the content
. May grip the paper if it is placed in the hand but may not be able to release grip; or may not œR
take hold of the paper
Select the appropriate PAL Profile to act as a general guide to engaging with the person in a variety of activities
Complete a PAL Individual Action Plan to act as a specific guide to facilitating personal activities
Planned Exploratory Sensory Reflex
TOTAL:
Pool, J. (2002). The Pool Activity Level (PAL) Instrument for Occupational Profiling: A practical
resource for carers of people with cognitive impairment. London: Jessica Kingsley.