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Stanford Medicine 2017 Health Trends Report

Harnessing
the Power of
Data in Health

June 2017
Foreword from
Stanford Medicine

Dean Minor

Today across the world, enormous to better understand the most important
transformations are taking place in health care trends and gain insight into the
health care. future. We interviewed industry experts
to better understand those trends and
Demographic, economic and technolog- how they envision the future of medicine.
ical changes are forcing us to reconsider And we spoke to our own faculty to better
everything about health care, from its understand their work and how it fits into
delivery to its funding models, from the wider picture. patient’s various personalized
education to scientific innovation and monitoring devices, whether they be
from the role of the physician to the What has become very clear from wearables or home devices, can now
role of pharmaceutical companies, the findings in this paper is that be interpreted to identify trends and
payors and patients. the greatest force behind these markers of future disease.
trends is data.
Like the rest of the world, health care is But that is just the start. Among many
becoming increasingly connected but Whether it is health wearables or things, data will change how doctors,
also increasingly complex. This poses on-demand testing, better hospital health care teams and institutions like
both an opportunity and a challenge to software or algorithms capable of catching Stanford partner together, how cost is
institutions like our own whose job it is to disease more effectively, rapid change is rationalized to increase accessibility
heal, innovate and educate. taking place because of increased access and, most importantly, how we protect
to big data and advanced data analytics. patient privacy and maintain patient
That’s why, given all of these forces If this continues – and we firmly believe it trust. We do not expect to provide all
shaping health care, I am very pleased to will – doctors will need to learn new skill the answers here. But we do hope it’s
introduce Stanford Medicine’s inaugural sets that, in turn, will require changes to the start of a lively debate and, if you
Health Trends Report. education and learning. As Kleiner Perkins’ have any feedback or thoughts, I’d be
Mary Meeker stated in her recent Internet delighted to hear them.
Our aim in producing this Report is to draw Trends Report, “health care is at a digital
together the key trends facing the health inflection point.” We couldn’t agree more. I hope you find the inaugural
care sector and by doing so inform and But what role will big data play? Health Trends Report valuable.
educate patients, doctors, governments
and other members of the medical We at Stanford Medicine believe in a vision
community about the opportunities and of health care – Precision Health – that is
challenges that lie ahead. If there is one more preventive, predictive, personalized
thing we can confidently predict about and precise. By leveraging big data and Lloyd B. Minor, MD
the future, it’s that the trends we have scientific advancements while maintaining Dean
identified in this paper will upend our the important doctor-patient bond, we Stanford University School of Medicine
thinking and revolutionize patient care. believe we can create a health system
that will go beyond curing disease after
To produce the Report, we undertook a the fact to preventing disease before it
comprehensive review and analysis of a strikes by focusing on health and wellness.
wide range of existing open-source data For instance, the data gathered from a
Executive
Stanford Medicine

Summary

The future of health care is being Data is permeating every component of When it comes to the road ahead, it will
shaped dramatically by a number of the health care ecosystem: be absolutely vital that all players in the
significant trends. • Medical research: Access to new, di- health care community, in both private
verse data and open datasets are fueling and public sectors, come together to
With the cost of care on the rise, the drug discovery and making clinical trials overcome several challenges:
industry is experiencing a shift toward and research more efficient. • Rising costs: Spiraling costs across the
preventive and value-based care. At the • Daily life: Wearable devices, online U.S. health care system could nullify the
same time, technology like wearable diagnostic tools and genetic sequencing additive role data plays.
devices, at-home testing services and services hold the promise of better • Data sharing and security: Silos and
telemedicine are empowering patients informed and engaged patients. roadblocks prevent effective data shar-
to be more engaged with and proactive • The patient experience: Health ing but, at the same time, privacy and
about their own health. Meanwhile, the systems are investing heavily in security of patient data is paramount.
industry is grappling with the tension technology, including machine learning, • Policy and legislation: Data privacy
between encouraging data sharing which is proving as effective as or more and interoperability must be addressed
to maximize the benefits of data and effective than human diagnosticians. at a legislative level to create a
maintaining patient privacy and trust. • Ongoing care: Telemedicine and health regulatory environment that encourages
All of these developments are altering apps make it possible for physicians innovation and research while putting
the role of physicians and their relation- to see patients virtually, outside of patients first.
ships with patients. traditional facilities for increased access • Electronic medical records (EMRs):
and tailored care. Frustrations with the design of elec-
Behind these trends is one fundamental • Prediction and prevention: Health tronic medical records undermine the
force driving health care transformation: data is allowing doctors to build better physician-patient relationship.
the power of data. patient profiles and predictive models • Skills and training: Without proper
to more effectively anticipate, diagnose infrastructure and a data-literate clinical
and treat disease. workforce, health data can only be
collected and stored, not leveraged fully.
• Encouraging preventive health care:
Reliance on reactive health care will
hamper physicians’ ability to anticipate,
diagnose and treat disease.

A focus on data in the coming years has the potential to make


health care more preventive, predictive and personalized, meaningfully
reduce health care costs and lead to better patient outcomes.
Table of
Stanford Medicine

Contents

Introduction 1

Data’s Impact on Health Care 2

Medical Research 3

Daily Life 5

The Patient Experience 7

Ongoing Care 9

Prediction and Prevention 11

The Road Ahead 12

Rising Costs 12

Data Sharing and Security 12

Policy and Legislation 14

Electronic Medical Records (EMRs) 14

Skills and Training 15

Encouraging Preventive Health Care 17

Appendix 18
Introduction
Stanford Medicine

On the front lines of this change, quality of care and cost of care. At both
A number of important trends are
human capital needs are shifting as the individual and population level,
shaping the future of health care. As
technological advancements and data is helping us reach new frontiers
the cost of health care continues to
artificial intelligence transform how in how to treat patients, improve
climb, in the U.S. alone health care
care is delivered. Cybersecurity is top outcomes and achieve new solutions.
spending has outstripped inflation by
a 5:1 ratio over the past 10 years.1 As a of mind in an era of sophisticated
targeted cyberattacks, while industry In the Report that follows, we’ll share
result, we are seeing a shift toward
experts are pushing for more open the key trends in health care and the
encouraging preventive care through
data sharing infrastructure to gain way in which data is revolutionizing the
an increased focus on nutrition,
faster, broader insights into public industry and our view on how to best
exercise and wellness, and a pivot
health. Meanwhile, the rapid increase foster and embrace this change.
toward value-based payment models.
in corporate partnerships and VC
Along with the widespread use of funding in the sector are accelerating
online resources such as WebMD change at a powerful pace.
that sees 212 million unique monthly
visitors,2 the increased use of wearable Behind these key themes lies an
devices and at-home genetic testing important common thread: the
services are leading to a generation of power of data and its potential to
empowered patients who are taking fundamentally transform the future
increasing ownership of their health of health care.
far beyond the walls of their doctor’s
office. And on the horizon, the use of Information is becoming easier to
telemedicine is widely expanding collect, analyze and understand,
access to, and convenience of care opening the door for major advances
across the globe. when it comes to preventive care,

1
Data’s Impact on
Stanford Medicine

Health Care

The last decade has seen major advances


in the production and collection of data, as
well our ability to effectively analyze and
understand this new information. Big data Daily Life
is helping every industry become more
efficient and productive – and health care
is no exception.

Today, data is a powerful force driving


health care forward. The year 2016
reinforced the impact data is having on all
aspects of the health cycle. Notably, the Ongoing Care
Medical The Patient
Chan Zuckerberg Initiative announced a $3 Research Experience
billion investment over the next decade to
find solutions to cure, manage and prevent
diseases. Rather than spending only on
scientific research, significant funding is
going towards bringing together scientists
and engineers. The research and output
produced will be open data for physicians Prevention &
and researchers. In addition, the initiative Prediction
will seek to improve communication chan-
nels between key sector stakeholders.

The government has also been involved


in data changes in health care. The Center
for Medicare and Medicaid Services (CMS)
has implemented innovative policies that
put data at the center of health care. The of entire health care systems – currently prepared to push the bounds even further
implementation of accountable care preventing the medical community from to improve health care faster.
organizations seeks to maximize not using data to its full potential.
only care quality but also interoperability In this Report, we look at data’s impact
and consistent patient records. Further- The growth seen in medical data (by some throughout each step in the health care
more, it has released public health care estimates 48% each year), computing cycle: from medical research, to daily life,
ratings to increase transparency power and technical ability are enabling to the patient experience, to ongoing care,
for patients and physicians. the medical field to reinvent itself in ways to prediction and prevention.
never before possible. Medicine has made
In 2017, we see the need to overcome tremendous strides over the past century,
existing barriers – whether they be upcom- but with the influx of big data, some
ing policy changes or security breaches observers believe the field of medicine is

2
Data’s Impact on
Stanford Medicine

Health Care

Medical Research Startups, tech companies, universities,


hospitals and public institutions are
Medical research is among the areas in joining forces to maximize the benefits
health care where the power of big data of big data in health. Leaders like IBM
has had the most visible impact. We’re bringing together Watson and Memorial Sloan-Kettering are
diverse kinds of data that collaborating to develop treatment plans
we haven’t had available for cancer patients.6 Meanwhile, Microsoft
Today and the University of Pittsburgh Medical
to us before that will help Center are partnering to improve the
Medical researchers and physicians have us address questions delivery of health care.7 As hospitals face
access to vast amounts of data that did about care and about the more data challenges, these partnerships
not exist five or 10 years ago, including determinants of health. allow the medical community to leverage
socioeconomic, environmental, biomed- the expertise of technology leaders on
- Stanford Faculty
ical, molecular and genetic information, critical issues like data governance, IT staff
along with individual health statuses, and data science.
behaviors and outcomes. Recent open
data initiatives such as the City Health Case Study: Critical New
dashboard3 have dramatically increased Partnerships
the types of publicly-accessible data,
allowing researchers to pose new ques- Advancements in genomics and Verily-Stanford Medicine-Duke School
tions, uncover new findings (such as new gene-sequencing have led to the creation of Medicine: Efforts like Verily’s Project
treatments being developed for malaria4) of large volumes of diverse datasets for Baseline are being pursued in an effort to
and validate breakthrough hypotheses. drug discovery. In the past few years, we gain a broader understanding of health.
have witnessed the successful use of big Spearheaded by Alphabet’s life sciences
data across the full drug discovery process, unit Verily, Project Baseline will collect
accelerating the rate at which researchers comprehensive health data from 10,000
develop new products. This approach participants over four years in collabora-
is currently being used to identify new tion with Stanford and Duke to build a map
People are actually treatments for Parkinson’s.5 of human health and disease.
thinking about data
And the findings are not only drawn from Apple: Launched in 2015, Apple’s
now. A decade ago most
“traditional” medical data. Experts are ResearchKit is an open-source software
of these practices were using new sources to structure clinical framework designed for iOS devices to
running on paper, and trials more efficiently, reducing the cost collect genetic data and medical test
the fact that there is this and length of time needed to conduct results for use in medical research and
data is really interesting, medical research. With advanced analytics diagnostic apps. In aggregate, the data
and people will now and accessible databases, researchers gathered from Apple’s vast user base
seeking participants for clinical trials can makes for a powerful resource for
think about, ‘Hey, what
now harness the power of data to identify medical research.
else can we measure in patients with specific conditions and the
a quantified way that most effective sites for recruiting.
hasn’t been measured?’
- Industry Expert
3
Stanford Medicine

The Future Experts point out that true progress can


only take place with a proper biomedical
Experts agree that over time, big data Data is fundamentally research infrastructure in place, and
will become even more essential for changing the research moreover, one focused on collaboration,
medical breakthroughs. Many envision enterprise and creating interoperability and data governance.
a future of ongoing data collection via
multiple sources. For example, a patient’s
new extraordinary So how will data circulate in the future?
electronic medical records (EMRs) will opportunities to learn Experts foresee a loop of data generation
be combined with data captured from things that were either with two potential outcomes. A closed-
wearables and genetic testing. un-learnable or would loop process is already taking place today,
have taken generations. in which information passes through a
two-way channel between the patient
- Stanford Faculty and the company capturing the data. This
Consumer-Level system gives the patient information about
Genetic Data
their health while simultaneously affording
the company data to analyze.
EMR Data Wearables The sheer volume of health care data
Data is growing at an astronomical rate: 153 In the future, experts aspire to an
exabytes (one exabyte = one billion open loop system that allows the data
gigabytes) were produced in 2013 and an generated to feed directly into medical
estimated 2,314 exabytes will be produced research and fuel new discoveries. With
in 2020, translating to an overall rate of the potential to replace many studies
increase at least 48 percent annually.8 typically conducted in labs, big data will be
positioned to revolutionize the process of
medical research as we know it.
Holistic Image Growth in Health Care Data
of Patient
2,314
Exabytes
By gathering and analyzing all of this data, [Tech companies are]
researchers will be able to replace some collectively envisioning
traditional studies conducted in labs. a closed-loop system in
which information from a
health system combined
with information from the
patient, all their wearable
Those troves of information, digitalized
information become the images, their genome
foundation for biomed- and millions of other tests
ical research… We are that they’ve had, can be
153
beginning to reconstruct Exabytes combined with brilliant
the relationship between informatics algorithms to
2013 2020
genes and life and health produce right back at the
in ways that are likely to bedside highly important
be transformative. Source: International Data Corporation (IDC)
clinical advice.
- Stanford Faculty - Stanford Faculty
4
Stanford Medicine

Estimated growth in direct to


Daily Life Today consumer testing market

Long before patients enter their The popularity of wearable devices, such $350M
doctors’ offices, data is connecting as pedometers and heart rate monitors,
their day-to-day lives and behaviors is exploding. Experts predict that health
to tangible health outcomes. In three and fitness technology will see record U.S.
primary areas, the health care sector sales in 2017, with 35 million units in sales.9
is already making noticeable strides Global sales were estimated to be as high
outside of the doctor’s office: as 274 million devices in 2016.10 Among
• Wearable devices continuously collect consumers, fitness bands are the most
patient health care data popular type of wearable, and people cite
$15M
• Direct-to-consumer testing, including health as a top motivator for using the new
genetic tests wearable technologies.11
2010 2020
• Access to online research and medical
informational websites Source: Kalorama Information

Expected
Parents Impact ofincrease
believe an Wearable Technology
in wearable technology can improve their:
This market growth reflects a desire for
Health 85% on-demand care at more affordable prices.
As with wearables, the increased demand
Tech Proficiency 80%
for at-home testing demonstrates that
Parenting 77% patients are deliberately choosing to be
Productivity 77% more actively engaged and empowered by
Efficiency 70% taking greater ownership of their health.
Relationships 64%
The internet continues to empower
Stress Level 61%
patients by providing easy access to health
Source: PwC, “The Wearable Life 2.0”
information. Traffic patterns on sites like
MayoClinic.com and WebMD.com show
that patients are curious and eager to
The desire to understand individual health better understand and take control of
Top reasons to have
and take control of it is already prevalent. their health. According to the Department
a wearable device
As consumers continue to experiment with of Health and Human Services, as of 2003
new technologies, they will be more likely “over a third of U.S. adults would [have]
to adopt innovative iterations of wearables difficulty with common health tasks, such
83% that link the data produced directly to as following directions on a prescription
medical professionals, including doctors drug label or adhering to a childhood
and researchers. immunization schedule.”13 However,
Thermoelectric pulses to heat, cool, and consumers are now seeking to change
soothe your body via a bracelet that senses Various types of testing, including digitized that. According to analytics company
temperature, pain, and stress
glucose tests, blood pressure and genetic Quantcast, WebMD sees over 25 million
testing, are allowing individuals to take daily visitors, and the site is among the
control of their health without requiring 50 most-visited sites in the country. While
interaction with doctors, insurance health literacy remains an important issue
82%
companies or pharmacies. According to address, experts agree: in today’s world,
to a report from Kalorama Information, individuals begin their personal health
the direct-to-consumer testing market is journeys through at-home online research
The ability to track your child’s health,
safety, or location via wearables
expected to grow from $15 million in 2010 rather than a visit to the doctor’s office.
to $350 million by 2020.12

Source: PwC, “The Wearable Life 2.0” 5


Stanford Medicine

The Future A majority of people would be While the market is currently dominated
excited to experience wearable by recreational technology and fitness
As current trends continue, health care technology from the following: companies, there’s a market opportunity
data will eventually permeate many for health care organizations to enter the
aspects of a person’s life, where activities wearable market by delivering FDA-com-
and behaviors are constantly tracked and pliant, HIPAA-compliant devices producing
linked back to the medical community. medically robust and relevant data.

Some experts suggest that invisible or While experts are optimistic about a

65%
implanted wearables will become the future of empowered patients, it will be
norm and will create continuous streams incumbent on patients to prioritize their
of data and health tracking, while at-home own health literacy. As consumers are
testing will help detect diseases in a more doctors given access to more health data, it will
targeted way. For instance, research become part of the physician’s role to
from Stanford Medicine has shown that help interpret the troves of information
wearable devices can use biosensors to at their fingertips.
detect symptoms of possible illness, such
as Lyme disease.14 In a future of wearables
and testing, patients will no longer need
to feel physical illness to prompt them to
seek medical attention. The promise of
wearables is in the ability to detect and

62%
therefore treat illness at an earlier stage.

Soon, medical centers, rather than tech


and fitness companies, will become the hospitals
de facto providers of wearables. In fact, a
majority of people already agree that they
would be excited to experience wearable
technology from a doctor (65%), from
a hospital (62%) or a health insurance
company (62%).15

62%
health insurance
companies

Source: PwC, “The Wearable Life 2.0”

6
Stanford Medicine

The Patient The Future


Experience More and more providers EMR Technology: As EMR technology
are spending hours becomes even more ubiquitous, experts
What happens once a patient walks into dealing with things to hope that the industry continues to
the doctor’s office? Today, patient visits champion interoperability to expedite the
stereotypically involve long wait times,
get all the data into the potential for better patient outcomes.
scant physician face time and inaccessi- system, so the extent to
ble personal health records. All of these which we can make the Case Study: Kaiser Permanente’s
challenges are interconnected and are data collection easier and Investment
experiencing change today. the speed in which the
provider gets that data Kaiser Permanente has created a program
called HealthConnect that unifies health
Today turned around to them is records across its system. Since 2013, the
an issue. program is already credited with $1 billion
We have already seen significant invest- - Industry Expert in cost reduction across the system.
ments in technology to optimize physician
data usage: nearly all (96%) hospitals in Changing the Diagnostics: Algorithms
the U.S. have traded paper records for with machine learning capabilities are
online portals16 designed to help the proving as effective as or more effective
doctor track testing, imaging and visits than human diagnosticians, including
and give patients access to information Physician Time Distribution cases such as spotting cancers in
without necessitating a call or fax to the During Office Hours 18 test results.19 In fact, recent research
doctor’s office. conducted by Stanford Medicine found
that algorithms can “match the perfor-
Although the technology is generally mance of dermatologists” at detecting
viewed favorably, there are significant skin cancer.20 There is significant potential
challenges and the technology imple-
mentation has not been as successful as
49% for catching more diseases at earlier
stages, thus increasing the likelihood of
expected. While some medical systems successful treatment.
are already realizing cost efficiencies 33%
of electronic medical records (EMRs), Industry experts say medical decisions
a recent study found that physicians are now being based on more robust
spend more time on desk work than with statistics. For a growing number of people,
patients. This suggests that, in fact, EMR 21% there is now sufficient longitudinal data
technology is not reducing paperwork and from their entire lives, which allows
providing more time with patients,17 but medical experts to answer questions
merely changing the type of desk work that about a patient’s health based on more
physicians are responsible for. than just global or national statistical
averages. In time, physicians will be able to
identify benchmarks that are defined by a
EMR and Other Clinical patient’s specific health history, as well as
Desk Work Face Time community health standards.
49% 21% 33%

Source: American Medical Association and


Dartmouth-Hitchcock health system

7
Stanford Medicine

Case Study: IBM Watson New Health Care Roles: Not only will National governments are also increasing
doctors require stronger data analysis their investments in personalized
IBM is developing an interface that would skills, but the physician’s office will need medicine, with France recently committing
allow Watson to analyze existing medical to add new roles to its roster. As machine €670 million to personalized medicine and
research on any given topic, then synthe- learning becomes a growing component genomics research.24
size and summarize the information for of health care, specialists in data science,
the doctor. The intention is to help doctors governance and IT infrastructure will
quickly determine the best treatment become vital to the practice or health
options for an individual based on the vast system. Industry analysts predict that 30
amounts of data available. percent of providers will use cognitive
analytics to interpret patient data by
The reason for which
The New Doctor: As data continues to 2018,22 which will require specialists to personalized medicine
define the health care space, physicians help implement these new technologies. is possible is because
will be required to understand technology you have access to that
to properly take advantage of new tools Personalized Medicine: In the near massive data that is being
at their disposal to make data analysis future, the doctor may also choose to use analyzed; and as you
more useful. Many predict educational personalized medicine as a treatment
programs will be designed to better train option by tailoring medication regimens
analyze it, you therefore
doctors in quantitative skills, statistics and to a person’s unique genetic makeup. This understand what is likely
data analysis. This is already taking place is done by integrating a person’s genetic to be the medical profile
with increased interest among medical blueprint with data on their lifestyle and of a certain individual
students studying the field of public environment, and evaluating it alongside and are able to dig much
health, who are focused on connecting an array of patient blueprints to predict deeper into what are his
health policy with data. illness and determine the best course
of treatment. Some analysts estimate
risks and what are his
Stanford Medicine has responded to this the current of size of the personalized ideal treatments if he’s
need to better understand datasets by medicine market to be at $1 billion, with already suffering.
investing in its Biomedical Data Science expectations that it will reach more than - Industry Expert
Initiative,21 which provides formal support $2 billion by 2022.23
to the study of complex datasets.

Global personalized medicine market by product 2012 - 2022


(USD Billion)

Many of the medical


students are getting
Masters of Public Health,
in fact, some of them
1,007.88
instead of PhDs. You
have concrete evidence
that datasets are now
considered ripe for 2012 2013 2014 2015 2016 2017 2018 2019 2020 2021 2022
evaluations.
PM Diagnostics PM Therapeutics
- Industry Expert Personalized Medical Care Personalized Nutrition & Wellness

Source: Grand View Research

8
Stanford Medicine

Ongoing Care both convenience and customer service in


an increasingly time-constrained industry
After a doctor visit, health care continues. and society. Moreover, telemedicine is Telemedicine is an
Patients must cope with diagnoses, tack- increasing access to health care for under- example of a system that
le prescriptions and develop new health served communities. Given the high costs really works… That’s an
care habits. Technological innovation is of building hospitals and health centers,
enabling new types of care beyond the telemedicine is being used to alleviate some
example where modern
traditional patient experience, leading to of the demands for access to physicians in technology has made a
novel types of data creation. rural areas with no proper health facilities. huge difference.
- Industry Expert
Today The rapid adoption of telemedicine as a
service shows the value of the technology:26
Telemedicine, or the remote delivery
of health care through technology, is
being used today in a variety of ways Growth of Telemedicine Case Study: Stanford Medicine’s
and for a variety of reasons. Already, Technology ClickWell Program
Google, Verizon and AT&T have ventures
in the telemedicine space, along with a Through Stanford Medicine’s telemedicine
rising number of insurers and startups program, called ClickWell Care, patients
in the space. According to research firm 2016 can choose when and where they meet
IHS, the telehealth market is expected
to grow from $240 million in 2013 to
2016
1.2 million
virtual visits
with their health care providers, whether
in-person, over the phone or via video
1.2 million
$1.9 billion by 2018.25 virtual visits conferencing. A year after the program
started, an estimated 55-60% of clinic
Providers with Programs
Hospitals visits were handled virtually.27
Expected Growth in Hospitals
Telehealth Market Case Study: Novartis Foundation
72%
$1.9B
72% The Novartis Foundation uses telemed-
icine to reach patients who do not have
Physician groups access to traditional health care facilities.
They connect with patients remotely
Physician groups in sub-Saharan Africa to treat cases of
52% hypertension. Their work has expanded
to the point where they now provide
52% telemedicine services to an area with an
estimated population side of 1.5 million.28
The percentage of large employers
offering telemedicine benefits
$240M The percentage of large employers
offering telemedicine benefits
2013 2018 48% 74%
Source: IHS Technology
48% 74%
2015 2016
Telemedicine has recently been accelerat-
ed by new technologies. For one, it allows 2015 2016
for a more continuous “concierge” style
of virtual care. This level of care solves for Source: American Telemedicine Association

9
Stanford Medicine

The Future However, with fewer barriers to medical


support, patients may be more proactive
Experts expect that technology and in seeking health care, which would in It’s very expensive
infrastructure enabling telemedicine turn result in healthier communities. to expand a hospital
will continue to improve, and tech Experts acknowledge limitations to system – there’s a lot of
companies will help make these systems telemedicine technology and recognize
increasingly user-friendly and effective. that many studies of telemedicine effec-
infrastructure, personnel,
Telehealth is also expected to take tiveness remain inconclusive, particularly etc. But if you do it
advantage of the global adoption of as it relate to the ability for doctors to through telemedicine,
smartphones, with some estimates collect sufficient patient information via you increase the reach of
anticipating half of the global population digital meetings. However, all agree on your referral base, that’s
to have smartphones by 2019.29 the inevitability of the technology and a fairly inexpensive way
see great potential in this service.
Among those with steady access to
to go. There are economic
health care, ongoing care will mean fibers to telemedicine.
on-demand access to professional - Industry Expert
opinions without the inconvenience of
travel or time. The average American will
only see their doctor four times a year,
less than many other OECD countries.30

Annual Average Doctor Visits Per Person in Select Countries

Japan 13.0 Telemedicine is going


to be really important
Germany 9.7 in terms of how doctors
relate with patients in a
Canada 7.4 way that is more efficient
France 6.8 and doesn’t require them
necessarily to come into
Australia 6.7 the office as often.
UK 5.0 - Stanford Faculty

USA 4.1

Source: Statistia

10
Stanford Medicine

Prediction and Case Study: Chan-Zuckerberg more data on healthy people (rather than
Prevention Initiative exclusively on the sick) allowing for earlier
detection of disease.
In September 2016, Mark Zuckerberg and
How can we better harness data to Priscilla Chan announced their decision Emerging technologies make it possible to
predict and prevent disease before it to donate $600 million to form a new, routinely evaluate risks for each individual
strikes? Experts agree that health care as independent research organization: the patient based on their genomics. Currently,
we know it is primarily reactive in nature Chan Zuckerberg Biohub. This ambitious this is reserved for select cases, but as
– people tend to seek care, get tests and collaboration between Stanford, UC San genetic testing technology becomes more
monitor their health only in response Francisco and UC Berkeley aims to engage common and affordable, experts predict
to a problem. However, the medical in research projects with the goal of testing will become routine for all patients.
community is trying to shift from reactive developing and applying the technologies In addition, innovative wearable technol-
care to proactive and preventive care. that will enable doctors to prevent, cure or ogies currently in development will ensure
manage all diseases during our children’s that detection will take place beyond
lifetime. formal testing. While most “smart clothing”
Today today is fitness oriented, innovators in
Case Study: Stanford Byers Center the sector are working on applying the
An effort to prioritize prevention is on for Biodesign technology to early detection of diseases.
the rise, with universities, startups and For example, the “smart bra” by Cyrcadia
non-profits participating in the effort. The Stanford Byers Center for Biodesign is Health uses photoacoustic imaging to
At-home genetic testing companies developing a number of predictive devices detect early breast cancer.
such as Color Genomics and 23andMe to prevent disease before it strikes. These
are contributing to this effort with their innovations include a monitoring device
genetic testing kits that allow individuals that predicts pediatric asthma attacks
to better understand their genetic days before they occur, a cost-effective
predispositions. Non-profits such as the test for the genetic causes of heart disease
Foundation for Health in Aging and the and a rapid non-invasive test for potential Giving people the tools
Preventive Medicine Research Institute heart-transplant rejection. to enable them to make
are increasingly focused on educating and
changes in their screening
preventing disease, rather than simply Since 2011, nearly $2 billion has been
combatting them after they have already invested to fund health care companies
and health care and
hit. Companies like IBM, Google, Medtronic that use predictive analytics in health prevention approach is
and Merck are developing predictive care,31 and we expect to see this trend one of the highest return
devices to be integrated into daily life. continue in the coming years. impacts you can have in
This thriving ecosystem is contributing public health today.
to a future that is more preventive,
predictive and personalized. The Future - Industry Expert

Experts expect it won’t be long before


health data allows doctors to build more
accurate patient profiles and predictive
models to more effectively anticipate,
diagnose and treat disease. Another
outcome of increased monitoring will be

11
The Road
Stanford Medicine

Ahead

The opportunities presented by data The U.S. faces health care costs that the number of hospital readmissions,
in health care are immense, but so continue to increase year over year, for instance. Data must be leveraged to
are the obstacles the sector faces as it outpacing inflation.33 Experts fear that identify areas that can lead to significant
evolves. To move forward, the following increasing costs will continue to crowd out cost reductions, and experts must trans-
challenges must be addressed: budgets at all levels, from state and federal late that data into actionable solutions
governments to the private sector. that yield healthier outcomes and lower
• Rising costs overall health care costs. Moreover, if we
continue to promote an open, collabo-
• Data sharing and security rative data environment, the financial
burden associated with medical research
• Policy and legislation and development can lessen significantly
The premiums for resulting in industry-wide savings.
• Electronic medical records (EMRs) employer-based
insurance are going
• Skills and training
up. The copays and Data Sharing and
• Encouraging preventive health care deductibles have gone Security
up faster than salaries.
The private and public sectors must You are finding families How can data sharing be encouraged
work closely together to overcome these struggling, businesses across the health care sector to facili-
challenges, listening to and engaging struggling, state, local tate medical research and pharmaceu-
with a range of voices across stakeholder tical research and development? At the
groups to ensure the solutions consider
and federal governments same time, how can we improve data
all individuals and communities who struggling. If health care security and protect patient privacy?
will be affected. costs continue unabated,
they will bankrupt A tension lies at the heart of the new age
potentially families and of health care. On one hand experts agree
Rising Costs some governmental that infrastructure and policies encour-
aging the sharing of data are essential
How can payors, medical systems, and
institutions, or crowd to maximize the benefits of big data. On
the technology sector combat the rising out many other kinds the other hand, the health care sector
cost of health care? of spending. has become a target for cybersecurity
- Stanford Faculty attacks and concerns exist when it comes
Experts recognize the cost of health care to protecting patient privacy. The industry
in the U.S. is a unique challenge. Among must resolve how to harness the full
industrialized nations, the U.S. spends a Managing health care costs will require potential of big data by sharing it to benefit
disproportionately high amount of money collaboration from all sector stakeholders. public health, while still ensuring patient
on health care – in fact, more than twice While government may be able to subsi- information remains safe and secure.
the OECD average. 32 dize drug prices, it cannot directly impact

12
Stanford Medicine

Willingness to Share Data New Threats to


Privacy and Security
Individuals are willing to share
personal information to increase the While patients’ willingness to share data The U.S. Department of Health and Human
amount of data in the health care space. is encouraging, the medical community Services reports that three in four (75%)
Surveys show that patient willingness must focus on patient privacy and security of all the health care breaches involving
to share data is particularly high when in order to maintain trust and access to 500 or more individuals are the result of
it comes to information from passive voluntary patient data. deliberate hacking.35
monitoring devices:34

Patient Willingness to Healthcare Breaches Reported to HHS


Share Data Involving 500 or more Individuals
Cause of Breach by Number of Affected Individuals

vital statistics like


84% blood pressure or
basic lab tests
75%

14%
1%1% Hacking/IT
information from a
5% 75%
75% special monitor that’s been
swallowed to track internal
4%
organ health Theft
14%

Loss
5%
70% health information collected
from a “smart toilet”
Unauthorized
Access/Disclosure
4%

Unknown
1%
47% health records Other
1%

Source: Intel Health Barometer Source: US Department of Health


and Human Services

13
Stanford Medicine

The threat to privacy and data security However, there is a consensus that policy fact, EMRs were at the top of a recent list
has grown more pronounced since the interventions are necessary to confront of ideas to transform health care in a STAT
“WannaCry” malware attacks in May 2017, many of the health care challenges we face news survey of 425 practicing physicians
which targeted the British National Health today and to realize the promise of data and health care leaders.36
Service and medical device companies in and new technologies.
the United States.
Policy often does not move fast enough Best Ways to Transform
Experts agree that striking a balance to keep up with innovation. Legislative Health Care
between effectively sharing and protecting bodies will need to address data privacy,
medical data will be challenging – but that interoperability and collaboration to
achieving this is critical to maximizing the create a regulatory environment that 1. Improving electronic health records
and related technologies to enhance
future of care. Finding the optimal solutions encourages innovation and research, while the experience of patients and
will require private and public sectors, protecting patients and accounting for their clinicians
payors and patients to collaborate. other stakeholders’ best interests.

2. Restructuring physician work-life to


promote better self-care and work-life
balance, especially for physician parents
in dual-career families

While we’re mindful of [In] our country and most


security and privacy, other countries, the pol- 3. Reorganizing the funding of medical
education to diminish burdensome debt
we need to leave open icymakers are struggling for early-career physicians
systems that can link with and have prioritized
different pieces of data so the question, of ‘How do
we can learn from them. you deliver great care for 4. Placing more emphasis on identifying
emotional intelligence in medical school
Anyone who imagines a lower amount of annual admissions
that we can have both health care spending?’ It’s
perfect privacy and great a universal aspiration.
5.Modifying systemic factors (e.g.
science just doesn’t get it, - Stanford Faculty reimbursement, medical malpractice)
because we won’t. that impede genuine, multidisciplinary
team-based care that will unburden
- Stanford Faculty physicians

Electronic Medical 6. Rebalancing the funding and focus of


Records (EMRs) graduate medical education to produce
Policy and Legislation more primary care physicians and fewer
hospital-based specialists
How can the current EMR systems be
What are the policy or legislative made more user-friendly, clinically
solutions that will help to facilitate useful and interoperable? What are the 7. Enhancing the reimbursement of
solutions to these challenges? roadblocks to improvement? physicians who focus on health
maintenance and primary care
A significant level of uncertainty permeates EMRs are one of the most visible aspects of
the health care policy landscape, with the the increasing proliferation of data in health
8. Accelerating migration away from
final composition of health care legislation care. Unfortunately, their potential has yet utilization-driven fee-for-service care
not yet fully determined. As a result, experts to be fully realized and many experts that to so-called “value-based care”
are cautious about making predictions have used EMRs express frustration with
about the future of health care policy. the systems that have been designed. In Source: STAT News survey

14
Stanford Medicine

Individuals who use EMRs report many Skills and Training


different frustrations, including complaints
about the effectiveness of the user The biggest problem with How can university systems and
interface, as well as interoperability them is that they don’t continuing physician education evolve
issues.37 In particular, EMRs undermine talk to each other and their approach to train a more tech-sav-
the doctor-patient relationship and the they’re almost useless for vy and data-literate clinical workforce?
personalized attention that patients
need. In their current form, they are time
the patients. That is, if I’m Maximizing the potential of data in health
consuming, prioritize billing codes over in California and I’m in a care will require two key components.
patient care and function more as a tool car accident, nobody can First, it will require a data-literate
for legal record-keeping than a means for get my [EMR] without my workforce that can understand how to
doctors to glean meaningful insights. giving permission. manage, analyze and interpret complex
data. This will be especially critical
- Industry Expert as efforts to facilitate and manage
interoperability continue. Secondly,
organizations must make investments in
infrastructure, analytical tools and data
People are spending For one, EMRs could incorporate basic governance solutions. Today, organiza-
more time with the box diagnostic support functions that simplify tions can collect vast amounts of data,
and less time with the physicians’ jobs, enabling them to focus but insights cannot be drawn if they lack
more acutely on treating the whole the technical expertise to interpret it or
patients… They’re talking patient. They could also be redesigned proper tools to analyze it.
to the patient, but facing in new ways that serve both patients and
the box, because they doctors, for example, by making effective
feel they’ve got to get use of voice recognition software. EMRs Talent
this information into the could also benefit from adjustments to
computer. other steps in the process. For instance, Experts have identified a talent gap in
employing a medical technician who the health care sector. Today, there is a
- Industry Expert accompanies the doctor during clinic shortage within the system of profession-
visits and inputs data into the EMR, which als with expertise in data analysis or
is what Stanford Medicine’s new Primary data science.
Care 2.0 program does.
Experts also express frustration with
EMRs’ failure to deliver on a core purpose: EMRs are central to the increasing use of
the ability to connect one patient’s data data in health care, but more needs to be
seamlessly across different clinics and done for technology to realize its potential
hospitals. Platforms not only need to otherwise the one-size-fits-all approach We don’t have the talent
be smarter and more doctor-friendly, will continue to cause frustrations for to be able to keep up with
but organizations must agree to create doctors and patients alike. the rapid changes that
platforms with similar data infrastructures
that will make combining datasets easier.
are occurring in machine
learning and artificial
intelligence… there’s a
whole new set of jobs
emerging around a health
care tech skillset that is
very different than it was
even just 5 years ago.
- Industry Expert
15
Stanford Medicine

The job market has recognized the Infrastructure and Tools Organizations that lack the tools to
need to attract data-savvy talent. analyze data will only be able to collect
According to Glassdoor,38 the “Best Job” In addition to staff, experts believe that and store it, but they will not be equipped
for 2017 is “Data Scientist,” with “Data health care organizations will need to interpret the data to improve patient
Engineer” and “Analytics Manager” also to invest in the appropriate tools and outcomes or influence public health.
among the site’s top five. infrastructure to effectively manage data.

Best Jobs in America


It’s very easy now to buy

1st Data
Scientist
Data doesn’t do you any
good until you can turn it
into information, and that
a toy that will convert
everything you do all day
into one or another bit
is really our challenge. of data, and it’s easy to

2 nd DevOps
Engineer
- Stanford Faculty download that data into
little apps that you can
look at … But has any of
it been subject to the kind

3
The health care sector lags when it comes
rd Data to infrastructure and analysis. Research
of analysis that would
change your behavior?
Engineer from Deloitte identifies several ways that
the health care sector has failed to adopt Not yet.
effective data management strategies:40 - Stanford Faculty

4th Tax
Manager

Lack of Effective Data

5th
Management Strategies
Analytics
Manager

Source: Best Jobs in America

The sector must adapt and find ways


4in5 1in3 1in4
to incorporate these roles into health
care organizations.
organizations surveyed health systems report health systems report
This shift in the health care sector will do not have an that they do not know that they do not have
create growing pains. Almost a third of integrated strategy for their organization’s total a data governance
health care IT providers report that they using analytics spending on analytics model in place
have been negatively impacted by staffing
challenges, and that those challenges
relate to difficulties recruiting qualified
staff and the development of their skills.39 Source: Deloitte

16
Stanford Medicine

Encouraging A study published in the Journal of General


Preventive The issue is not that you
Internal Medicine found similar findings:
the research showed a cost reduction of
Health Care don’t know that you over $3,700 for patients that experienced
should lead a healthy the care transition intervention. 44
How can patients be encouraged to
change their behavior to reduce health
lifestyle and maintain an
care costs over the long-term? ideal body weight and Healthcare Costs per
not drink too much or Person in the 6 Months
A greater focus on preventive care could smoke… it’s how do you After Discharge, Adjusted*
potentially reduce the overall cost of get people to actually
health care and positively impact many of do that? That is going to Inpatient
the other underlying issues that result in Readmission
poor health care outcomes.
continue to be a central Costs
challenge. How do you
While a preventive, proactive care change health behaviors?
Control $11,671.00
approach is not a cure-all to reducing - Stanford Faculty Group
health care costs,41 experts have identified
certain areas where early interventions can
reduce costs over the long term, including
With $8,011.00
HIV treatments and programs to prevent
Preventitive
the onset of diabetes.42 Intervention
Already, there is a notable rise in case
Effective behavioral changes will be manager roles, non-medical employees
paramount to realize the potential of who help patients – particularly senior Gross $3,660.00
Savings
preventive care. Experts can identify patients – take medication, make
potential uses of large datasets to design and attend appointments and refill
preventive health care strategies (such as prescriptions. Aetna is one company
using socioeconomic data to identify links proving the benefits of new health Source: Journal of General Internal Medicine
between economic conditions and health care roles. Through a program that
care outcomes) but these links will mean “embeds” nurse case managers in
little if the behaviors they identify cannot physician offices, Aetna saw 45% fewer As accountability continues to be a weak
be changed in patients. hospital admissions, and per-member point,45 these case manager roles will
cost reduction between 16.5% and extend beyond the elderly to help ensure
33% for members in the program.43 better adherence to health programs.

17
Appendix
Stanford Medicine

1
“Medical Cost Trend: Behind the Numbers 15
“The Wearable Life 2.0: Connected living in a 30
“Americans Visit Their Doctor 4 Times A Year.
2017,” PwC, 2016. wearable world,” PWC Consumer Intelligence People in Japan Visit 13 Times A Year,” Forbes,
Series, 2016. September 2014.
“Inflation, consumer prices for the
United States,” Federal Reserve Bank of 16
“Adoption of Electronic Health Record 31
“The Future of Personalized Health Care:
St. Louis, 2017.
Systems among U.S. Non-Federal Acute Predictive Analytics,” Rock Health, October
Care Hospitals: 2008-2015,” ONC/American 2014.
2
“WebMD focuses on content, social media as
Hospital Association Annual Survey Informa-
users flock to mobile,” MobiHealth News,
tion Technology Supplement, May 2016. 32
“Health Costs: How the U.S. Compares With
August 2015.
Other Countries,” PBS, 2012.
17
“Allocation of Physician Time in Ambulatory
3
“Visualization Takes Open Data to the Next
Practice: A Time and Motion Study in 4 33
“Medical Cost Trend, Behind the Numbers
Level,” Government Technology, June 2017.
Specialties,” Annals of Internal Medicine, 2017,” PwC Health Research Institute, June
December 2016. 2016.
4
“Open data in drug discovery and
development: lessons from malaria,” Nature, 18
“Study: Physicians spend nearly twice as much 34
“Intel Healthcare Innovation Barometer,” Intel,
August 2016.
time on EHR/desk work as patients,” AHA December 2013.
5
“New technologies are accelerating drug News Now, September 2016.
35
“Health Care Breach Charts,” Davis Wright
development, bringing hope to patients,” 19
“How Big Data Keeps Transforming Health- Tremaine LLP Privacy and Security Law Blog,
Elesevier, June 2016.
care,” LinkedIn, May 2017. March 2017.
6
“Memorial Sloan Kettering’s Expertise 20
“Deep learning algorithm does as well as 36
“Why are doctors burned out? Our health care
Combined With the Power of IBM Watson
dermatologists in identifying skin cancer, ” system is a complicated mess,” Stat News,
is Poised to Help Doctors Make Better
Stanford News, January 2017 December 2016.
Treatment Choices,” Memorial Sloan Kettering
Cancer Center, January 2014. 37
“We asked people how to fix EMRs, and boy
21
“Biomedical Data Science Initiative,” Stanford
news, July 2015. did they have answers,” Health care IT News,
7
“Microsoft partners with UPMC, launches
May 2017.
patient engagement, population health 22
“Worldwide Semiannual Cognitive/Artificial
initiatives,” Healthcare IT News, February 2017. 38
“Big Data Experts in Big Demand,” Data Center
Intelligence Systems Spending Guide,” IDC,
September 2016. Knowledge, May 2017
8
“The Digital Universe of Opportunities: Rich
Data and the Increasing Value of the Internet 39
“2017 HIMSS Leadership and Workforce Sur-
23
“Personalized Medicine (PM) Market Analysis
of Things,” EMC Digital Universe with Research vey,” Healthcare Information and Management
By Product (PM Diagnostics, PM Therapeutics,
and Analysis by IDC, April 2014. Systems Society, February 2017.
Personalized Medical Care, Personalized
Nutrition & Wellness) And Segment Forecasts
9
“U.S. Consumer Technology & Sales Forecasts 40
“Health System Analytics: The missing key to
To 2022,” Grandview Research, June 2016.
2012-2017,” Consumer Technology Association, unlock value-based care,” Deloitte, September
May 2016. 2015.
24
“France Plans to Invest €670M in Genomics,
Personalized Medicine,” GenomeWeb, June
10
“Gartner Says Worldwide Wearable Devices 41
“Does Preventive Care Save Money? Health
2016.
Sales to Grow 18.4 Percent in 2016,” Gartner, Economics and the Presidential Candidates,”
February 2016. New England Journal of Medicine, February
25
“World Market for Telehealth – 2014 Edition,”
HIS, January 2014. 2008.
11
“The Wearable Life 2.0: Connected living in a
wearable world,” PWC Consumer Intelligence 42
“Economic Benefits of Preventing Disease,”
26
“How Telemedicine Is Transforming Health
Series, 2016. United States Surgeon General, January 2015.
Care,” The Wall Street Journal, June 2016.
12
“We Can Improve At-Home Lab Tests - Here are 43
“Payer-Provider Collaboration in Accountable
27
“How Stanford achieved 60% telehealth
3 ways direct-to-consumer testing can better Care Reduced Used and Improved Quality
adoption at a primary care clinic,” The
serve consumers’ health needs,” U.S. News & in Medicare Advantage Plan,” Aetna, Health
Advisory Board, March 2016.
World Report, June 2016. Affairs, 2012.
28
“Telemedicine Factsheet,” Novartis Founda-
13
“The Health Literacy of America’s Adults: 44
“Is Implementation of the Care Transitions
tion, 2016.
Results from the 2003 National Assessment of Intervention Associated with Cost Avoidance
Adult Literacy,” U.S. Department of Health and 29
“Google designed Android Go to win over After Hospital Discharge?” Journal of General
Human Services, 2003. the next billion smartphone users in the Internal Medicine, March 2014.
developing world,” Quartz, May 2017.
14
“Wearable sensors can tell when you are 45
“How Doctors Rate Patients,” The Wall Street
getting sick,” Stanford Medicine, January 2017. Journal, May 2014.

18
med.stanford.edu/healthtrends

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