#HPM Tweet Chat 10:19:11

#hpm - Healthcare Social Media Transcript
6/27/12 12:33 PM
#hpm transcript
Healthcare Social Media Transcript
From: To: Wed Oct 19 18:00:00 PDT 2011 Wed Oct 19 19:15:00 PDT 2011 change time period
New ! Explore analytics for this time period: #hpm analytics Explore the world of healthcare social media: Healthcare Conferences - Healthcare Tweet Chats - Disease Hashtags Learn more about #hpm at The Healthcare Hashtag Project
renee_berry
Hi Everyone, Welcome & thanks for joining the #hpm chat, please take a few minutes to say hello & introduce yourself
Wed Oct 19 18:00:37 PDT 2011
nursefriendly
Hello Everyone, Andrew Lopez, RN from New Jersey, Bedside Nurse, Webmaster, Entrepreneur, take care of a lot of #hospice #patients #hpm
Wed Oct 19 18:01:41 PDT 2011
aliciabloom
it's #hpm chat time! expect a flurry of tweets about #hospice & #palliative care.
Wed Oct 19 18:02:32 PDT 2011
renee_berry
I'm hosting #hpm tonight, work @gobemore &am an advocate for early #palliative care & advance care planning, started as a #hospice volunteer
Wed Oct 19 18:02:54 PDT 2011
nursefriendly
RT @renee_berry: Hi Everyone, Welcome & thanks for joining the #hpm chat, please take a few minutes to say hello & introduce yourself
Wed Oct 19 18:03:09 PDT 2011
drseisenberg
@renee_berry @nursefriendly @aliciabloom hey hey hey #hpm

Wed Oct 19 18:03:11 PDT 2011
http://hashtags.symplur.com/healthcare-hashtag-transcript.php?ha&smin=0&tdate=10-19-2011&thour=19&tmin=15&ssec=00&tsec=00&img=1
Page 1 of 35
6/27/12 12:33 PM
jfclearywisc
@jfclearywisc joining hospice & palliative medicine tweetchat for the next hour Or is it palliative Medicine tweetchat? :-) #hpm
Wed Oct 19 18:04:01 PDT 2011
aliciabloom
MSW, LSW in hospice & palliative care across healthcare settings. clinical educator. passionate re: effective goals of care discussions #hpm
Wed Oct 19 18:04:43 PDT 2011
nursefriendly
Uh, oh, is #twitter acting sluggish for anyone else? #hpm

Wed Oct 19 18:04:48 PDT 2011
aliciabloom
@drseisenberg hi! #hpm

Wed Oct 19 18:04:50 PDT 2011
renee_berry
@jfclearwisc haha great question! @drseisenberg @aliciabloom @nursefriendly thanks for joining tonight! #hpm
Wed Oct 19 18:04:52 PDT 2011
MarksPhone
Hi all back from trying to find my footing, Mark here Expertise and experience in implementing strategically focused medical education #hpm
Wed Oct 19 18:04:59 PDT 2011
renee_berry
@MarksPhone Hi Mark, thanks for joining, great to see you. We're just about to get started with T1 #hpm
Wed Oct 19 18:06:01 PDT 2011
nickdawson
@renee_berry @marksphone need to help some of my coworkers and grad school cohort get involved with #HPM - its important!
Wed Oct 19 18:06:40 PDT 2011
jen_c_taylor
Jennifer here......Hi! #hpm

Wed Oct 19 18:06:48 PDT 2011
renee_berry
@nursefriendly my twitter was acting up about 20 minutes ago, but seems to be doing ok at the moment, we'll keep our fingers crossed #hpm
Wed Oct 19 18:06:57 PDT 2011
nursefriendly
Lotsa familiar faces tonight :) Just browsed #socpharm a bit :) #hpm

Wed Oct 19 18:06:59 PDT 2011
renee_berry
@nickdawson oooo you may just have jumped into T3 a bit :) would be happy to chat with you about that #hpm
Wed Oct 19 18:07:26 PDT 2011
RossJeanette
Hi all glad to join in for tweet chat. hPM doc from Texas #Hpm
Wed Oct 19 18:07:27 PDT 2011
Page 2 of 35
6/27/12 12:33 PM
renee_berry
Topic1 Should the word "hospice" be taken out of some professional society names? Why or Why Not? http://t.co/ODjZLpCU via @geripalblog #hpm
Wed Oct 19 18:07:33 PDT 2011
nursefriendly
@renee_berry On Sunday for #hcsm was in slow motion for the first 20 minutes, then it came back to life for last 1/2 hour . . #hpm
Wed Oct 19 18:07:49 PDT 2011
renee_berry
@jen_c_taylor @RossJeanette great to see you! Thanks for joining in! #hpm
Wed Oct 19 18:07:56 PDT 2011
No_Bozo
RT @renee_berry: I'm hosting #hpm tonight, work @gobemore &am an advocate for early #palliative care & advance care planning, started as a #hospice volunteer
Wed Oct 19 18:08:07 PDT 2011
nursefriendly
T1 think #hospice is an integral part of what we do, and lets people identify with the purpose of the organization #hpm
Wed Oct 19 18:08:40 PDT 2011
AllenBryanNoTea
RT @nursefriendly: T1 think #hospice is an integral part of what we do, and lets people identify with the purpose of the organization #hpm
Wed Oct 19 18:08:52 PDT 2011
nursefriendly
T1 If you took a straw poll, of one hundred people, more would have heard of #hospice, than #palliative #medicine I bet. #hpm
Wed Oct 19 18:09:23 PDT 2011
renee_berry
@nursefriendly I absolutely agree that the word hospice is important, some interesting points though in @geripalblog article #hpm
Wed Oct 19 18:09:57 PDT 2011
nursefriendly
T1 So much of what we do in #palliative care is leading up to, or in support of #hospice, don't see how separation is beneficial #hpm
Wed Oct 19 18:10:19 PDT 2011
aliciabloom
research shows most people don't understand what #palliative care is, but many have heard of hospice. #hpm
Wed Oct 19 18:10:46 PDT 2011
renee_berry
RT @nursefriendly: T1 So much of what we do in #palliative care is leading up to, or in support of #hospice, don't see how separation is beneficial #hpm
Wed Oct 19 18:11:00 PDT 2011
MarksPhone
Hospice has a place and meaning to the average person we should first determine what it means to them #hpm
Wed Oct 19 18:11:07 PDT 2011
Page 3 of 35
6/27/12 12:33 PM
nursefriendly
T1 It has taken a very long time for #hospice to gain familiarity and acceptance. Don't think it would be smart to toss it. #hpm
Wed Oct 19 18:11:27 PDT 2011
renee_berry
@nursefriendly that's really interesting, I agree, but I do see how separation could be beneficial. #hpm
Wed Oct 19 18:11:28 PDT 2011
MarksPhone
@aliciabloom #palliative #hpm I agree the palliative is more abstract

Wed Oct 19 18:11:40 PDT 2011
renee_berry
RT @MarksPhone: Hospice has a place and meaning to the average person we should first determine what it means to them #hpm
Wed Oct 19 18:11:42 PDT 2011
nursefriendly
T1 Just when HCPs and #doctors #nurses were starting to understand and accept #hospice, they change the name, confuse all? #hpm
Wed Oct 19 18:12:21 PDT 2011
hollyby
Hi all! Joining from the Chicago airport. Holly Yang, doc from @SanDiegoHospice. All tweets are my own. #hpm
Wed Oct 19 18:12:57 PDT 2011
jfclearywisc
T1: With ABMS discussion re specialty, stated that Emerg room med was Emerg med; ER was place where Emerg med happened. Ditto Hospice #hpm
Wed Oct 19 18:13:09 PDT 2011
nursefriendly
T1 Think removing the #hospice from professional organizations would cause more #confusion than #clarification #hpm
Wed Oct 19 18:13:14 PDT 2011
renee_berry
T1 palliative may be less familiar to people, but distinguishing care for serious illness that is not exclusive to eol is important #hpm
Wed Oct 19 18:13:31 PDT 2011
hollyby
For the next 45 min I'll be tweetchatting about #hospice and #palliative medicine. Come join us! #hpm
Wed Oct 19 18:13:38 PDT 2011
renee_berry
@hollyby Hey Holly, good to see you! For T1 we're chatting about the @geripalblog article http://t.co/ODjZLpCU #hpm
Wed Oct 19 18:14:19 PDT 2011
aliciabloom
it is important to clearly differentiate palliative care from hospice, though, in order to meet the meet the needs of more patients. #hpm
Wed Oct 19 18:14:24 PDT 2011
It takes a very long time for #medicine to accept anything new, #hospice is gaining traction,
http://hashtags.symplur.com/healthcare-hashtag-transcript.php?ha&smin=0&tdate=10-19-2011&thour=19&tmin=15&ssec=00&tsec=00&img=1 Page 4 of 35
6/27/12 12:33 PM
nursefriendly
lets not pull the rug out from under it. #hpm
Wed Oct 19 18:14:29 PDT 2011
RossJeanette
T1 agree Palliative care opens more opportunity to care for anyone with serious illness wether teminally I'll or not. #Hpm
Wed Oct 19 18:14:59 PDT 2011
MarksPhone
can hospice exist w/o palliation? They exist in balance to each other what we are talking about is defining the relation of the two #hpm
Wed Oct 19 18:15:10 PDT 2011
renee_berry
RT @aliciabloom: it is important to clearly differentiate palliative care from hospice, though, in order to meet the meet the needs of more patients. #hpm
Wed Oct 19 18:15:21 PDT 2011
nursefriendly
Good point :) #Socpharm RT @hollyby: For the next 45 min Ill be tweetchatting about #hospice and #palliative medicine. Come join us! #hpm
Wed Oct 19 18:15:22 PDT 2011
jen_c_taylor
I think it comes down to the fact that more awareness and education is needed for BOTH hospice and Palliative medicine. #hpm
Wed Oct 19 18:15:46 PDT 2011
aliciabloom
hospice is care focused on palliation at the end of life, but not all palliative care is end of life care. #hpm
Wed Oct 19 18:16:19 PDT 2011
MarksPhone
If people understand hospice what do they understand and can we should we define it and mortis in palliation? #hpm
Wed Oct 19 18:16:21 PDT 2011
nursefriendly
T1 Both disciplines work closely together whether the patient is terminal or not. #hpm
Wed Oct 19 18:16:29 PDT 2011
ctsinclair
Hi all, coming in a little late but glad I made it! #hpm

Wed Oct 19 18:16:29 PDT 2011
nursefriendly
T1 It is not unheard of for a #patient getting #palliative care to end up on #hospice, or a #hospice pt to have #palliative #hpm
Wed Oct 19 18:17:51 PDT 2011
renee_berry
@MarksPhone I think people understand hospice as end of life care, #palliative care can be provided long before #eolc #hpm
Wed Oct 19 18:17:56 PDT 2011
schwartzbrown
Hi, Mindy here. Sorry I'm late too. #hpm

Wed Oct 19 18:18:06 PDT 2011
Page 5 of 35
6/27/12 12:33 PM
nursefriendly
RT @aliciabloom: hospice is care focused on palliation at the end of life, but not all palliative care is end of life care. #hpm
Wed Oct 19 18:18:17 PDT 2011
jfclearywisc
RT @aliciabloom: hospice is care focused on palliation at the end of life, but not all palliative care is end of life care. #hpm
Wed Oct 19 18:18:20 PDT 2011
ctsinclair
Can anyone RT topic 1? #hpm

Wed Oct 19 18:18:45 PDT 2011
nursefriendly
@aliciabloom Not all #hospice #patients die. Depends when they are put on hospice, some live for years afterwards. #hpm
Wed Oct 19 18:18:57 PDT 2011
aliciabloom
technically, cardiologists/pulmonologists are doing #palliative care for CHF/COPD patients at a certain point in disease trajectory. #hpm
Wed Oct 19 18:19:06 PDT 2011
ctsinclair
RT @hollyby: For the next 45 min Ill be tweetchatting about #hospice and #palliative medicine. Come join us! #hpm
Wed Oct 19 18:19:10 PDT 2011
renee_berry
@ctsinclair Hi Christian, Hi Mindy @SchwartzBrown we're discussing the "H" in AAHPM HPNA via @geripalblog article http://t.co/ODjZLpCU #hpm
Wed Oct 19 18:19:21 PDT 2011
aliciabloom
@nursefriendly you're right, but that's the exception not the rule. #hpm
Wed Oct 19 18:19:28 PDT 2011
colleen_young
Hi everyone. Jumping in late. Very topical as we were just discussing early palliative care at Princess Margaret Cancer Centre today #hpm
Wed Oct 19 18:19:29 PDT 2011
PalliativeActiv
RT @jfclearywisc: RT @aliciabloom: hospice is care focused on palliation at the end of life, but not all palliative care is end of life care. #hpm
Wed Oct 19 18:19:30 PDT 2011
MarksPhone
I see there is a relationship of the two now how can we make those work together to help patients and families #hpm
Wed Oct 19 18:19:42 PDT 2011
nursefriendly
@renee_berry #hospice doesn't need to be started at the end. If initiated early in process, a patient can be on it for some time. #hpm
Wed Oct 19 18:19:55 PDT 2011
Page 6 of 35
6/27/12 12:33 PM
colleen_young
Can hospice be a part of early palliative care? Help me understand. #hpm

Wed Oct 19 18:20:27 PDT 2011
SunnyinPink
@renee_berry Hello Renee, Ramona Forbis here, Survivor #hpm

Wed Oct 19 18:20:43 PDT 2011
nursefriendly
@aliciabloom Know plenty of #dementia, #alzheimers #patients that are put on #hospice years before they start physical decline. #hpm
Wed Oct 19 18:20:49 PDT 2011
colleen_young
@nursefriendly Thanks you answered before my question was posted. #hpm

Wed Oct 19 18:20:52 PDT 2011
ctsinclair
This topic comes up all the time when you get enough hospice and palliative care people together. #hpm
Wed Oct 19 18:21:08 PDT 2011
nursefriendly
Yes, it can be initiated early in #disease RT @colleen_young: Can hospice be a part of early palliative care? Help me understand. #hpm
Wed Oct 19 18:21:31 PDT 2011
hollyby
Palliative care is the umbrella term, it can be for patients with serious illness who may even be cured. #hpm
Wed Oct 19 18:21:40 PDT 2011
nursefriendly
RT @MarksPhone: I see there is a relationship of the two now how can we make those work together to help patients and families #hpm
Wed Oct 19 18:21:54 PDT 2011
ctsinclair
Too many principles shared between #hospice and palliative care to make a split. The big factor is a difference in time/prognosis #hpm
Wed Oct 19 18:22:16 PDT 2011
ctsinclair
RT @hollyby: Palliative care is the umbrella term, it can be for patients with serious illness who may even be cured. #hpm
Wed Oct 19 18:22:23 PDT 2011
renee_berry
@SunnyinPink thanks for joining us Ramona, welcome to #hpm

Wed Oct 19 18:22:28 PDT 2011
nursefriendly
@MarksPhone By letting #families #patients know the services exist, #educate them, they can decide which is more appropriate #hpm
Wed Oct 19 18:22:47 PDT 2011
RossJeanette
T1 the association with terminal illness and misrepresentation in media has hurt us. palliative would be more inclusive. #Hpm
Wed Oct 19 18:22:56 PDT 2011
Page 7 of 35
6/27/12 12:33 PM
ctsinclair
Just gave a talk today to estate planners about why they need to know about palliative care #hpm
Wed Oct 19 18:23:18 PDT 2011
schwartzbrown
Insurance funding for palliative care without hospice could be an interesting issue #hpm
Wed Oct 19 18:23:26 PDT 2011
pamressler
Hi all...joining in late but very interested in the topic of palliative care #hpm
Wed Oct 19 18:23:45 PDT 2011
aliciabloom
Wed Oct 19 18:23:50 PDT 2011
hollyby
Hospice cannot be a part of early palliative care if the person is expected to live > 6 mo, currently hospice is specifically for EOL. #hpm
Wed Oct 19 18:23:55 PDT 2011
nursefriendly
T1 @ctsinclair Like living wills and advanced directives, the earlier the discussion is started, the better. #hpm
Wed Oct 19 18:24:06 PDT 2011
DrBeckerSchutte
Fantastic. We need that. RT @ctsinclair: Just gave a talk today to estate planners about why they need to know about palliative care #hpm
Wed Oct 19 18:24:14 PDT 2011
MarksPhone
@RossJeanette #Hpm that's a great point palliative care exists anywhere hospice is a state where palliative care can be applied #hpm
Wed Oct 19 18:24:16 PDT 2011
renee_berry
T1 If I'm a patient not ready to categorize myself at eol even if clinicians are, I might not want to see a aaHpm board certified MD #hpm
Wed Oct 19 18:24:59 PDT 2011
DrBeckerSchutte
And I'm Ann, a psychologist from Kansas City. I specialize in whole person health and cohost the #EOLchat later tonight. #hpm
Wed Oct 19 18:25:01 PDT 2011
nursefriendly
@hollyby Have seen #oncology patients placed on it with longer than six months of life expected. #hpm
Wed Oct 19 18:25:25 PDT 2011
renee_berry
RT @hollyby: Hospice cannot be a part of early palliative care if the person is expected to live > 6 mo, currently hospice is specifically for EOL. #hpm
Wed Oct 19 18:25:25 PDT 2011
Page 8 of 35
6/27/12 12:33 PM
aliciabloom
hospice is not part of early palliative care given the current clinical criteria for admission. #hpm
Wed Oct 19 18:25:32 PDT 2011
jfclearywisc
T1. Even hospice alone can be confusing; a care, a home-based service, an insurance benefit, or a place. #hpm
Wed Oct 19 18:25:38 PDT 2011
DrBeckerSchutte
@renee_berry So are there ways that we can change the conversation so that hospice is seen as being about QOL rather than dying? #hpm
Wed Oct 19 18:25:56 PDT 2011
aliciabloom
however, there is much work to do to improve earlier access to hospice for clinically appropriate patients as median LOS ~21 days. #hpm
Wed Oct 19 18:26:00 PDT 2011
renee_berry
Hello @pamressler (group side note, Pam is doing fascinating research on patient blogs) #hpm
Wed Oct 19 18:26:09 PDT 2011
DrBeckerSchutte
Agree!! RT @jfclearywisc: T1. Even hospice alone can be confusing; a care, a home-based service, an insurance benefit, or a place. #hpm
Wed Oct 19 18:26:20 PDT 2011
SunnyinPink
RT @nursefriendly: T1 If you took a straw poll, of one hundred people, more would have heard of #hospice, than #palliative #medicine I bet. #hpm
Wed Oct 19 18:26:23 PDT 2011
nursefriendly
@hollyby Is the six month requirement for your hospice, or #medicare? Who makes that rule? #hpm
Wed Oct 19 18:26:24 PDT 2011
aliciabloom
RT @nursefriendly: @hollyby Is the six month requirement for your hospice, or #medicare? Who makes that rule? <-- Medicare criteria #hpm
Wed Oct 19 18:26:56 PDT 2011
renee_berry
@DrBeckerSchutte I think that is what the conversation is about but a good example of the challenges with that were seen in @Frontline #hpm
Wed Oct 19 18:27:15 PDT 2011
SunnyinPink
Agree! @nursefriendly: T1 If you took a straw poll, of 100 people, more would have heard of #hospice, than #palliative #medicine I bet. #hpm
Wed Oct 19 18:27:21 PDT 2011
aliciabloom
hospice criteria includes an expected prognosis of 6 months or less if the disease takes it natural/expected course #hpm
Wed Oct 19 18:27:23 PDT 2011
Page 9 of 35
6/27/12 12:33 PM
nursefriendly
@aliciabloom #nursinghomes are full of #hospice #patients not expected to expire for months to years down the line. #hpm
Wed Oct 19 18:27:23 PDT 2011
hollyby
@nursefriendly Prognosis is difficult, so many live for more than 6 months, which is okay. No penalty for outliving the estimate. :) #hpm
Wed Oct 19 18:27:27 PDT 2011
pamressler
@renee_berry Thanks, I am blushing #hpm

Wed Oct 19 18:27:38 PDT 2011
uvmer
@renee_berry Agreed. Sorry for jumping in...my partner had brain cancer.Even though we knew it was bad...talking EOL felt like giving up#hpm
Wed Oct 19 18:27:51 PDT 2011
DrBeckerSchutte
So what is the point for better education, clarification, & patient confusion reduction? #hpm
Wed Oct 19 18:28:01 PDT 2011
renee_berry
@DrBeckerSchutte @Pallimed post on @Frontline Facing Death http://t.co/XTX1EZYn #hpm

Wed Oct 19 18:28:10 PDT 2011
ctsinclair
RT @renee_berry: T1 If Im a patient not ready to categorize myself at eol, I might not want to see a aaHpm board certified MD "doubt" #hpm
Wed Oct 19 18:28:16 PDT 2011
DrBeckerSchutte
RT @hollyby: Prognosis is difficult, so many live for more than 6 months, which is okay. No penalty for outliving the estimate. :) #hpm
Wed Oct 19 18:28:24 PDT 2011
pamressler
I see palliative care as a way for patients to be cared for along the trajectory of chronic or life-limiting illness not only at #eol #hpm
Wed Oct 19 18:29:03 PDT 2011
DrBeckerSchutte
@hollyby I think people need to be reminded that there's no "penalty" for outliving a hospice estimate! #hpm
Wed Oct 19 18:29:13 PDT 2011
jfclearywisc
T1: Patient confusion: many of my patients get confused with the neurologist (brain) and urologist (bladder). Our job to educate #hpm
Wed Oct 19 18:29:16 PDT 2011
ctsinclair
RT @hollyby: Prognosis is difficult, so many live for more than 6 months, which is okay. No penalty for outliving the estimate. #hpm
Wed Oct 19 18:29:21 PDT 2011
DrBeckerSchutte
Thanks! RT @renee_berry: @DrBeckerSchutte @Pallimed post on @Frontline Facing

Page 10 of 35
http://hashtags.symplur.com/healthcare-hashtag-transcript.php?h&smin=0&tdate=10-19-2011&thour=19&tmin=15&ssec=00&tsec=00&img=1
6/27/12 12:33 PM
Death http://t.co/75nlU6Bg #hpm

Wed Oct 19 18:29:28 PDT 2011
nursefriendly
@hollyby I'm thinking there is leeway for the #doctor No way the #hospice patients on most of my units had only six months #hpm
Wed Oct 19 18:29:31 PDT 2011
jordangrumet
#hpm t1 need to rebrand. Term #hospice scares people away

Wed Oct 19 18:29:36 PDT 2011
renee_berry
@ctsinclair haha it makes a good discussion, you're correct because it's me, but I have a friend right now that's dealing w/that #hpm
Wed Oct 19 18:29:48 PDT 2011
ctsinclair
RT @pamressler: I see palliative care for patients to be cared for along trajectory of chronic/ life-limiting illness not only at #eol #hpm
Wed Oct 19 18:29:58 PDT 2011
nursefriendly
How so? RT @renee_berry: @nursefriendly that's really interesting, I agree, but I do see how separation could be beneficial. #hpm
Wed Oct 19 18:30:30 PDT 2011
DrBeckerSchutte
MT @jfclearywisc: T1: Patient confusion-many patients get confused with the neurologist (brain) and urologist (bladder). Job to educate #hpm
Wed Oct 19 18:30:37 PDT 2011
hollyby
Palliative care is an "extra layer of support" for patients with serious illness, independent of age and prognosis. #hpm
Wed Oct 19 18:30:42 PDT 2011
MarksPhone
@jordangrumet #hpm #hospice that is an important idea rebranding but it needs to be done based on how it is perceived #hpm
Wed Oct 19 18:30:46 PDT 2011
renee_berry
RT @ctsinclair: RT @pamressler: I see palliative care for patients to be cared for along trajectory of chronic/ life-limiting illness not only at #eol #hpm
Wed Oct 19 18:30:56 PDT 2011
aliciabloom
@nursefriendly perhaps months, not years & years. clinical criteria is clear & avg LOS on hospice is short-- often referred late. #hpm
Wed Oct 19 18:31:02 PDT 2011
ctsinclair
RT @jordangrumet: t1 need to rebrand. Term #hospice scares people away "just kicks the can down the road, new term will get stigma too" #hpm
Wed Oct 19 18:31:12 PDT 2011
ctsinclair
RT @hollyby: Palliative care is an "extra layer of support" for patients with serious illness, independent of age and prognosis. #hpm
Page 11 of 35
6/27/12 12:33 PM
Wed Oct 19 18:31:22 PDT 2011
nursefriendly
RT @RossJeanette: T1 agree Palliative care opens more opportunity to care for anyone with serious illness wether teminally I'll or not. #Hpm
Wed Oct 19 18:31:26 PDT 2011
TexasKidDoc
@DrBeckerSchutte @renee_berry Change the rules: not just 6mo to live and give up curative therapy. In TX kids can have both. #HPM
Wed Oct 19 18:31:45 PDT 2011
uvmer
@renee_berry Agreed.Sorry for jumping in..my partner had brain cancer.Even though we knew it was bad...talking EOL felt like giving up #hpm
Wed Oct 19 18:31:45 PDT 2011
jordangrumet
#hospice and #palliative need to merge. Different meaning but same cause. Continuum#hpm
Wed Oct 19 18:31:49 PDT 2011
aliciabloom
RT @jordangrumet: #hpm t1 need to rebrand. Term #hospice scares people away <-- the new word will just become scary in the future. #hpm
Wed Oct 19 18:31:55 PDT 2011
colleen_young
@uvmer How did you get around not talking about EOL? What words/terms would have helped? #hpm
Wed Oct 19 18:32:00 PDT 2011
DrBeckerSchutte
@jfclearywisc I think that makes it critical for HC providers to make sure we're using plain language & check for understanding. #hpm
Wed Oct 19 18:32:03 PDT 2011
VNSNY_News
RT @ctsinclair: RT @hollyby: Palliative care is an "extra layer of support" for patients with serious illness, independent of age and prognosis. #hpm
Wed Oct 19 18:32:12 PDT 2011
ctsinclair
@jordangrumet it is really about the content that scares people not the name #hpm
Wed Oct 19 18:32:14 PDT 2011
pamressler
Palliative care (perhaps with a bit of "rebranding") is most beneficial if introduced early in a debilitating, progressive illness. #hpm
Wed Oct 19 18:32:37 PDT 2011
DrBeckerSchutte
Yup @pamressler: I see palliative care for patients to be cared for along trajectory of chronic/ life-limiting illness not only at #eol #hpm
Wed Oct 19 18:32:42 PDT 2011
aliciabloom
talking about EoL issues sometimes feels like "giving up" because clinicians are using language that makes patients feel that way. #hpm
Wed Oct 19 18:32:47 PDT 2011
Page 12 of 35
6/27/12 12:33 PM
nursefriendly
@RossJeanette So lets say a #patient with #multiplesclerosis or #als or a #quadriplegic might benefit from #palliative care vs #hospice #Hpm
Wed Oct 19 18:32:49 PDT 2011
jordangrumet
@ctsinclair maybe we can control perception of new term #hpm

Wed Oct 19 18:32:52 PDT 2011
equijada
Rebranding palliative care/hospice shouldn't be to move from EOL. Our education should focus to destigmatize death. #hpm
Wed Oct 19 18:32:54 PDT 2011
ctsinclair
@uvmer You are welcome here, and that is a normal feeling #hpm
Wed Oct 19 18:32:57 PDT 2011
nursefriendly
RT @jen_c_taylor: I think it comes down to the fact that more awareness and education is needed for BOTH hospice and Palliative medicine. #hpm
Wed Oct 19 18:33:03 PDT 2011
renee_berry
@TexasKidDoc extra important for pediatrics #hpm

Wed Oct 19 18:33:08 PDT 2011
VNSNY_News
RT @lfettig: : RT @DeathwDignity: Are u following @npr's series on end-of-life issues? Catch up: http://t.co/QvQ9Uocq #eol #hpm #death #dying
Wed Oct 19 18:33:12 PDT 2011
renee_berry
RT @TexasKidDoc: @DrBeckerSchutte @renee_berry Change the rules: not just 6mo to live and give up curative therapy. In TX kids can have both. #HPM
Wed Oct 19 18:33:14 PDT 2011
equijada
Destigmatize death -> culture shift is tough, Tough, TOUGH #hpm

Wed Oct 19 18:33:21 PDT 2011
RossJeanette
Agree branding is important! Many people associate hospice with giving up. Need to contimnue educating healthcare profess and people #Hpm
Wed Oct 19 18:33:30 PDT 2011
DrBeckerSchutte
LOVE!!RT @equijada: Rebranding palliative care/hospice shouldnt be to move from EOL. Our education should focus to destigmatize death. #hpm
Wed Oct 19 18:33:32 PDT 2011
VNSNY_News
RT @lfettig: : RT @DeathwDignity: Are u following @npr's series on end-of-life issues? Catch up: http://t.co/QvQ9Uocq #eol #hpm #death #dying
Wed Oct 19 18:33:43 PDT 2011
MarksPhone
@ctsinclair #hpm but people have a perception that needs to be realized and over come prior to content #hpm
Page 13 of 35
6/27/12 12:33 PM
Wed Oct 19 18:33:44 PDT 2011
DrBeckerSchutte
Yes it sure is. Dying kids are even tougher convos. RT @renee_berry: @TexasKidDoc extra important for pediatrics #hpm
Wed Oct 19 18:33:55 PDT 2011
ctsinclair
RT @jordangrumet: @ctsinclair maybe we can control perception of new term "very hard to control the public perception, ;)" #hpm
Wed Oct 19 18:33:56 PDT 2011
nursefriendly
@jen_c_taylor Yep, more education for #patients #doctors #nurses #HCPs #caregivers, educate them all on #hospice #palliative #hpm
Wed Oct 19 18:33:59 PDT 2011
ctsinclair
RT @equijada: Destigmatize death -> culture shift is tough, Tough, TOUGH #hpm
Wed Oct 19 18:34:03 PDT 2011
uvmer
@colleen_young You know...we never talked about it. She went into a coma, was in intensive care, and I took her home. #hpm
Wed Oct 19 18:34:19 PDT 2011
ctsinclair
RT @equijada: Rebranding palliative care/hospice shouldnt be to move from EOL. Our education should focus to destigmatize death. #hpm
Wed Oct 19 18:34:20 PDT 2011
TexasKidDoc
@aliciabloom @jordangrumet MD Anderson changed their palliative team name to "Supportive Care" and referrals and consults skyrocketed #hpm
Wed Oct 19 18:34:24 PDT 2011
renee_berry
RT @MarksPhone: @ctsinclair #hpm but people have a perception that needs to be realized and over come prior to content #hpm
Wed Oct 19 18:34:40 PDT 2011
DrBeckerSchutte
It is, but it's doable w/persistent, compassionate engagement.RT @equijada: Destigmatize death -> culture shift is tough, Tough, TOUGH #hpm
Wed Oct 19 18:34:50 PDT 2011
nursefriendly
@renee_berry Just checking, are we still on T1/ #hpm

Wed Oct 19 18:34:55 PDT 2011
uvmer
@colleen_young That was the first time I would talk to anyone about it...because at that point I needed a little direction. #hpm
Wed Oct 19 18:35:07 PDT 2011
hollyby
@TexasKidDoc I wonder how much of that is a physician education issue #hpm

Wed Oct 19 18:35:12 PDT 2011
Page 14 of 35
6/27/12 12:33 PM
nursefriendly
RT @renee_berry: @MarksPhone I think people understand hospice as end of life care, #palliative care can be provided long before #eolc #hpm
Wed Oct 19 18:35:24 PDT 2011
DrBeckerSchutte
@uvmer Welcome to the conversation. I'm sorry to hear about your loss, and so grateful you're here talking. #hpm
Wed Oct 19 18:35:26 PDT 2011
drseisenberg
hospice = healing organization specifically positioned in caring environments #hpm

Wed Oct 19 18:35:35 PDT 2011
colleen_young
@uvmer And was that okay or would you have wished for words that could help? People to help with those words? #hpm
Wed Oct 19 18:35:36 PDT 2011
TexasKidDoc
@renee_berry Agreed. Many palliative kids have chronic disease. Not just clear cut EOL issues. #HPM
Wed Oct 19 18:35:41 PDT 2011
renee_berry
@nursefriendly we are, there were so many thoughts I was trying to keep up with I decided to let T1 keep going, about to move to T2 #hpm
Wed Oct 19 18:35:49 PDT 2011
jordangrumet
@ctsinclair name scares people before they understand #hospice. #hpm

Wed Oct 19 18:35:53 PDT 2011
pamressler
As one who lost a child to ca, hospice was not an option at the time because requirement to forgo curative Rx. #hpm
Wed Oct 19 18:36:02 PDT 2011
ctsinclair
@MarksPhone good point. Experience > education > assumptions #hpm

Wed Oct 19 18:36:05 PDT 2011
nursefriendly
@renee_berry agreed, though #hospice can be initiated early in the game as well before a #patient is at #deaths door #palliative #eolc #hpm
Wed Oct 19 18:36:09 PDT 2011
DrBeckerSchutte
Ooh! Stealing. RT @drseisenberg: hospice = healing organization specifically positioned in caring environments #hpm
Wed Oct 19 18:36:11 PDT 2011
DrBeckerSchutte
Oh no.RT @pamressler: As one who lost a child to ca, hospice was not an option at the time because requirement to forgo curative Rx. #hpm
Wed Oct 19 18:36:41 PDT 2011
AfternoonNapper
Hi! I'm late dropping in. Good evening to all. #hpm

Page 15 of 35
6/27/12 12:33 PM
Wed Oct 19 18:36:50 PDT 2011
renee_berry
RT @pamressler: As one who lost a child to ca, hospice was not an option at the time because requirement to forgo curative Rx. #hpm
Wed Oct 19 18:36:53 PDT 2011
colleen_young
Has this requirement changed now? MT @pamressler: ....hospice was not an option at the time because requirement to forgo curative Rx. #hpm
Wed Oct 19 18:36:54 PDT 2011
ctsinclair
RT @jordangrumet: name scares people before they understand #hospice. "agree, key is identifying patient needs and then matching care" #hpm
Wed Oct 19 18:37:05 PDT 2011
renee_berry
@AfternoonNapper hello hello, we're just about to move to T2 #hpm

Wed Oct 19 18:37:18 PDT 2011
TexasKidDoc
@hollyby MD Anderson's data shows it's BOTH docs AND pts who were more responsive to the name change. Also came earlier to care. #hpm
Wed Oct 19 18:37:23 PDT 2011
renee_berry
Pre-T2 Hospital based #palliative care is increasing http://t.co/nskz7hgh via @amermedicalassn #hpm
Wed Oct 19 18:37:25 PDT 2011
equijada
@DrBeckerSchutte I think what our organizations should do is re-focus on what our minimal viable product is and unify. #hpm
Wed Oct 19 18:37:25 PDT 2011
nursefriendly
RT @renee_berry: @ctsinclair Hi Christian, Hi Mindy @SchwartzBrown we're discussing the "H" in AAHPM HPNA via @geripalblog article http://t.co/ODjZLpCU #hpm
Wed Oct 19 18:37:25 PDT 2011
colleen_young
The poet has arrived! RT @drseisenberg: hospice = healing organization specifically positioned in caring environments #hpm
Wed Oct 19 18:37:27 PDT 2011
jordangrumet
RT @TexasKidDoc: @aliciabloom @jordangrumet MD Anderson changed their palliative team name to "Supportive Care" and referrals and consults skyrocketed #hpm
Wed Oct 19 18:37:27 PDT 2011
MarksPhone
When a patient and family first become aware of these concepts it is critical to understand their experiences and help manage those #hpm
Wed Oct 19 18:37:42 PDT 2011
nursefriendly
RT @colleen_young: Hi everyone. Jumping in late. Very topical as we were just discussing early palliative care at Princess Margaret Cancer Centre today #hpm
Wed Oct 19 18:37:43 PDT 2011
Page 16 of 35
6/27/12 12:33 PM
drseisenberg
A name is a name. An intention is timeless. #hpm

Wed Oct 19 18:37:45 PDT 2011
DrBeckerSchutte
RT @TexasKidDoc: MD Andersons data shows its BOTH docs AND pts who were more responsive to the name change. Also came earlier to care. #hpm
Wed Oct 19 18:37:46 PDT 2011
aliciabloom
in Pennsylvania we now have concurrent care laws to increase access to hospice for pediatric patients and their families. #hpm
Wed Oct 19 18:37:52 PDT 2011
uvmer
@colleen_young Well...everyone was so nice. And with their help I could take her home and take care of her myself. #hpm
Wed Oct 19 18:37:58 PDT 2011
kdhoffman2
I'm so sorryRT @pamressler: As one who lost a child to ca, hospice was not an option at the time requirement to forgo curative Rx. #hpm
Wed Oct 19 18:38:15 PDT 2011
pamressler
@colleen_young This requirement has been changed for pediatric pts in MA -- with a lot of hard work with policy by parents. #hpm
Wed Oct 19 18:38:17 PDT 2011
DrBeckerSchutte
Makes sense. RT @equijada: I think what our organizations should do is re-focus on what our minimal viable product is and unify. #hpm
Wed Oct 19 18:38:36 PDT 2011
equijada
What is the core of hpm? Is it symptoms? acceptance? what is it in it's simplest form? #hpm
Wed Oct 19 18:38:37 PDT 2011
renee_berry
Topic2 How can #hpm professionals reach out/provide mentorship to students in #meded to increase young adult interest in entering the field?
Wed Oct 19 18:38:48 PDT 2011
nursefriendly
Wed Oct 19 18:38:52 PDT 2011
kdhoffman2
RT @aliciabloom: in PA we now have concurrent care laws to increase access to hospice for pediatric patients and their families. #hpm
Wed Oct 19 18:38:55 PDT 2011
colleen_young
@uvmer Thank you for sharing this. It really helps me understand. #hpm
Wed Oct 19 18:38:58 PDT 2011
I like "supportive care". Good term. #hpm

http://hashtags.symplur.com/healthcare-hashtag-transcript.php?h&smin=0&tdate=10-19-2011&thour=19&tmin=15&ssec=00&tsec=00&img=1 Page 17 of 35
6/27/12 12:33 PM
jordangrumet renee_berry
Wed Oct 19 18:39:02 PDT 2011
@equijada comfort care #hpm

Wed Oct 19 18:39:03 PDT 2011
nursefriendly
RT @ctsinclair: Too many principles shared between #hospice and palliative care to make a split. The big factor is a difference in time/prognosis #hpm
Wed Oct 19 18:39:05 PDT 2011
drseisenberg
love RT @equijada: What is the core of hpm? Is it symptoms? acceptance? what is it in its simplest form? #hpm
Wed Oct 19 18:39:07 PDT 2011
DrBeckerSchutte
I agree AND if the name gets pts to care, I'm down with a change. RT @drseisenberg: A name is a name. An intention is timeless. #hpm
Wed Oct 19 18:39:10 PDT 2011
nursefriendly
RT @RossJeanette: T1 the association with terminal illness and misrepresentation in media has hurt us. palliative would be more inclusive. #Hpm
Wed Oct 19 18:39:26 PDT 2011
colleen_young
@pamressler Thank goodness. What incredible advocates parents can be. #hpm
Wed Oct 19 18:39:37 PDT 2011
renee_berry
RT @RossJeanette: Agree branding is important! Many people associate hospice with giving up. Need to contimnue educating healthcare profess and people #Hpm
Wed Oct 19 18:40:13 PDT 2011
renee_berry
RT @RossJeanette: T1 the association with terminal illness and misrepresentation in media has hurt us. palliative would be more inclusive. #Hpm
Wed Oct 19 18:40:15 PDT 2011
aliciabloom
"supportive care" is easy to understand, #palliative care is a big word with many definitions. #hpm
Wed Oct 19 18:40:19 PDT 2011
pamressler
Yes! RT @colleen_young: @pamressler Thank goodness. What incredible advocates parents can be. #hpm
Wed Oct 19 18:40:20 PDT 2011
DrBeckerSchutte
@pamressler As a parent, my heart is with you. So sorry that you had to be an advocate after loss, but grateful you were! #hpm
Wed Oct 19 18:40:21 PDT 2011
nursefriendly
@RossJeanette T1 Think it is accurate to say that the majority of #patients receiving #palliative care or #hospice do not improve #Hpm
Wed Oct 19 18:40:26 PDT 2011
Page 18 of 35
6/27/12 12:33 PM
jordangrumet
T2 the medical narrative. Write about it. It's power.#hpm

Wed Oct 19 18:40:36 PDT 2011
DrBeckerSchutte
The second poet of the night. RT @equijada: What is the core of hpm? Is it symptoms? acceptance? what is it in its simplest form? #hpm
Wed Oct 19 18:40:41 PDT 2011
jfclearywisc
RT @RossJeanette: T1 association with terminal illness and misrepresentation in media has hurt us. palliative would be more inclusive. #hpm
Wed Oct 19 18:40:46 PDT 2011
equijada
How would Steve Jobs rebrand #hpm? He would take the frills out, make the simplest product that people love #hpm
Wed Oct 19 18:40:50 PDT 2011
AfternoonNapper
Should goal be getting more med students interested in palliative care/hospice or get students even before they get to med school? #hpm
Wed Oct 19 18:40:56 PDT 2011
uvmer
@colleen_young The words brain cancer were horrifying.Words end of life were unspeakable. I'm not sure anyone could have helped w/that #hpm
Wed Oct 19 18:41:00 PDT 2011
nursefriendly
Yes, planning, education :) RT @ctsinclair: Just gave a talk today to estate planners about why they need to know about palliative care #hpm
Wed Oct 19 18:41:02 PDT 2011
MarksPhone
Patients & families come into EOL Palliation Hospice etc w/some knowledge & perceptions expecting something how do we manage that? #hpm
Wed Oct 19 18:41:05 PDT 2011
hollyby
Maximizing quality of life and supporting pts & families facing serious illness. MT @equijada: What is the core of hpm? #hpm
Wed Oct 19 18:41:14 PDT 2011
renee_berry
@aliciabloom I think "supportive care" can mean so many things too, important clinicians have a base understanding of #palliative #hpm
Wed Oct 19 18:41:18 PDT 2011
jfclearywisc
"supportive care" very US. Rest of the world is coping with "palliative care" although UK has similar h vs pc struggles. #hpm
Wed Oct 19 18:41:45 PDT 2011
nursefriendly
Don't see the issue . RT @schwartzbrown: Insurance funding for palliative care without hospice could be an interesting issue #hpm
Wed Oct 19 18:41:54 PDT 2011
Page 19 of 35
6/27/12 12:33 PM
DrBeckerSchutte
Indeed. RT @equijada: How would Steve Jobs rebrand #hpm? He would take the frills out, make the simplest product that people love #hpm
Wed Oct 19 18:42:02 PDT 2011
pamressler
Great Q RT @equijada: How would Steve Jobs rebrand #hpm? He would take the frills out, make the simplest product that people love #hpm
Wed Oct 19 18:42:04 PDT 2011
DrBeckerSchutte
RT @renee_berry: I think "supportive care" can mean so many things too, important clinicians have a base understanding of #palliative #hpm
Wed Oct 19 18:42:17 PDT 2011
colleen_young
Have to leave. Thx for convo abt words. Important as I am soon to start as community moderator of #hpm caregiver & patient online community.
Wed Oct 19 18:42:33 PDT 2011
aliciabloom
@renee_berry you're so right. i wonder if consults increased with the name change because it was just easier to understand. #hpm
Wed Oct 19 18:42:38 PDT 2011
drseisenberg
living well with a disease, any disease, any stage #hpm

Wed Oct 19 18:42:40 PDT 2011
RossJeanette
T2 HPM profess need to involve themselves in medical & other healthcare professions education. Early contact proper understanding #Hpm
Wed Oct 19 18:42:44 PDT 2011
MarksPhone
The majority of the time these terms happen in the middle of a crisis. It should be moved up to well before need #hpm
Wed Oct 19 18:42:58 PDT 2011
renee_berry
@MarksPhone I think a problem is professionals have just as many perceptions, how can patients understand w/o professional consistency? #hpm
Wed Oct 19 18:43:05 PDT 2011
jfclearywisc
Apple would likely unbundle everything from benefit and look at new ways of putting package together in user meaningful way #hpm
Wed Oct 19 18:43:08 PDT 2011
nursefriendly
Welcome :) We're not going anywhere. RT @pamressler: Hi all...joining in late but very interested in the topic of palliative care #hpm
Wed Oct 19 18:43:10 PDT 2011
DrBeckerSchutte
@renee_berry @aliciabloom At the end of the day, we all need to understand the core services and benefit to patients. #hpm
Wed Oct 19 18:43:20 PDT 2011
Page 20 of 35
6/27/12 12:33 PM
pamressler nursefriendly
Exactly RT @drseisenberg: living well with a disease, any disease, any stage #hpm
Wed Oct 19 18:43:23 PDT 2011
RT @hollyby: Hospice cannot be a part of early palliative care if the person is expected to live > 6 mo, currently hospice is specifically for EOL. #hpm
Wed Oct 19 18:43:24 PDT 2011
renee_berry
RT @MarksPhone: The majority of the time these terms happen in the middle of a crisis. It should be moved up to well before need #hpm
Wed Oct 19 18:43:31 PDT 2011
drseisenberg
I think Steve Jobs would call it EnlightenMed #hpm

Wed Oct 19 18:43:45 PDT 2011
equijada
So what is the core - too me, it's something spiritual. Magic happens in the presence of death #hpm
Wed Oct 19 18:44:00 PDT 2011
DrBeckerSchutte
That's a goal to get behind. RT @pamressler: Exactly RT @drseisenberg: living well with a disease, any disease, any stage #hpm
Wed Oct 19 18:44:01 PDT 2011
No_Bozo
RT @renee_berry: Topic2 How can #hpm professionals reach out/provide mentorship to students in #meded to increase young adult interest i ...
Wed Oct 19 18:44:03 PDT 2011
equijada
If we could define and scale that magic, people would flock to hpm regardless of name #hpm
Wed Oct 19 18:44:23 PDT 2011
hollyby
T2: Need to raise awareness & basic skills in med students, & target significant skill training in residents -> generalist level PM #hpm
Wed Oct 19 18:44:32 PDT 2011
nursefriendly
@hollyby Have my doubts about that being a hard and fast rule > 6mo, see #doctors do #hospice consults on people who will live years #hpm
Wed Oct 19 18:44:33 PDT 2011
uvmer
@jordangrumet "Supportive care" instead of EOL care? Much better term.When fighting cancer & hoping for a miracle,dont want to hear EOL #hpm
Wed Oct 19 18:44:36 PDT 2011
DrBeckerSchutte
Yes,yesRT @MarksPhone: The majority of the time these terms happen in the middle of a crisis. It should be moved up to well before need #hpm
Wed Oct 19 18:44:43 PDT 2011
aliciabloom
opportunities for formal & informal education with medical students & residents in everyday practice. find the teachable moments. #hpm
Page 21 of 35
6/27/12 12:33 PM
Wed Oct 19 18:44:57 PDT 2011
nursefriendly
RT @renee_berry: T1 If I'm a patient not ready to categorize myself at eol even if clinicians are, I might not want to see a aaHpm board certified MD #hpm
Wed Oct 19 18:44:57 PDT 2011
RossJeanette
T2 HPMproff can help create palliative medicine interest groups among students. #Hpm
Wed Oct 19 18:45:17 PDT 2011
drseisenberg
RT @equijada: So what is the core - too me, its something spiritual. Magic happens in the presence of death #hpm
Wed Oct 19 18:45:22 PDT 2011
renee_berry
RT @hollyby: T2: Need to raise awareness & basic skills in med students, & target significant skill training in residents -> generalist level PM #hpm
Wed Oct 19 18:45:24 PDT 2011
MarksPhone
Steve Jobs had palliative care and EOL I wonder what questions he asked and how he prepared it is an outlier for the majority #hpm
Wed Oct 19 18:45:33 PDT 2011
renee_berry
RT @aliciabloom: opportunities for formal & informal education with medical students & residents in everyday practice. find the teachable moments. #hpm
Wed Oct 19 18:45:35 PDT 2011
jordangrumet
The dignity movement. Die with the dignity we struggle to maintain in life.#hpm
Wed Oct 19 18:45:37 PDT 2011
nursefriendly
@renee_berry The #patient, #family #caregivers need to be ready to have the discussion for #hospice or #palliative care #hpm
Wed Oct 19 18:45:44 PDT 2011
DrBeckerSchutte
MT @renee_berry: T2 How can hpm professionals reach out to students in meded to increase young adult interest in entering the field? #hpm
Wed Oct 19 18:45:52 PDT 2011
AfternoonNapper
Seems there is not enough awareness abt palliative caredidn't know it existed until recently & could've used it. #hpm
Wed Oct 19 18:45:55 PDT 2011
nursefriendly
RT @DrBeckerSchutte: And I'm Ann, a psychologist from Kansas City. I specialize in whole person health and co-host the #EOLchat later tonight. #hpm
Wed Oct 19 18:46:05 PDT 2011
drseisenberg
RT @jordangrumet: The dignity movement. Die with the dignity we struggle to maintain in life.#hpm #hpm
Wed Oct 19 18:46:21 PDT 2011
Page 22 of 35
6/27/12 12:33 PM
DrBeckerSchutte
MT @aliciabloom: opportunities for formal & informal education with medical students & residents in everyday practice. #hpm
Wed Oct 19 18:46:29 PDT 2011
nursefriendly
Written in stone? RT @aliciabloom: hospice is not part of early palliative care given the current clinical criteria for admission. #hpm
Wed Oct 19 18:46:37 PDT 2011
pamressler
Comprehensive Care would also be a term that encompasses the nuances and trajectory of illness. #hpm
Wed Oct 19 18:46:41 PDT 2011
jfclearywisc
RT @AfternoonNapper: Seems there is not enough awareness abt palliative caredidnt know it existed until recently & couldve used it. #hpm
Wed Oct 19 18:46:41 PDT 2011
renee_berry
@nursefriendly as professionals along the continuum of care, we should help them be ready for these discussions, ask early & often #hpm
Wed Oct 19 18:46:44 PDT 2011
equijada
The difference between android and iphone is in it's name, android is a robot, i is a personal. Difference in hpm is personal care. #hpm
Wed Oct 19 18:46:47 PDT 2011
AfternoonNapper
With greater awareness of the service comes greater interest in providing the service thereby reaching med students and all. #hpm
Wed Oct 19 18:46:49 PDT 2011
renee_berry
RT @jfclearywisc: RT @AfternoonNapper: Seems there is not enough awareness abt palliative caredidnt know it existed until recently & couldve used it. #hpm
Wed Oct 19 18:47:17 PDT 2011
nursefriendly
Yes, edu needed RT @jfclearywisc: T1.Even hospice alone can be confusing; a care,a home-based service,an insurance benefit, or a place. #hpm
Wed Oct 19 18:47:21 PDT 2011
jordangrumet
T2 we also have to train practicing docs what good #hpm is so they can teach students. #hpm
Wed Oct 19 18:47:31 PDT 2011
hollyby
Agreed! Thanks for helping us raise awareness! MT @AfternoonNapper: Seems there is not enough awareness abt palliative care... #hpm
Wed Oct 19 18:47:36 PDT 2011
DrBeckerSchutte
T2-I think part of the answer is that we need to shift to thinking about death as a natural health outcome-not just in med school #hpm
Wed Oct 19 18:47:41 PDT 2011
Page 23 of 35
6/27/12 12:33 PM
nursefriendly
RT @DrBeckerSchutte: @renee_berry So are there ways that we can change the conversation so that hospice is seen as being about QOL rather than dying? #hpm
Wed Oct 19 18:47:46 PDT 2011
TexasKidDoc
Palliative medicine is just good medicine. Should start at diagnosis. Less scary if introduced then too when not in crisis. #hpm
Wed Oct 19 18:47:49 PDT 2011
MarksPhone
There are 5domains dx, tx management, palliation, hospice EOL not fix continuum but a process where each domain offers a point to act #hpm
Wed Oct 19 18:47:51 PDT 2011
InpatientMed
Many, myself included would love to specialize in #hpm but are prohibited because of limited grandfathering.
Wed Oct 19 18:47:56 PDT 2011
AfternoonNapper
@InpatientMed Limited grandfathering? Please explain. #hpm

Wed Oct 19 18:48:24 PDT 2011
nursefriendly
@DrBeckerSchutte Ideally, #hospice and #palliative care would be used to keep comfortable in last months, rather than last days #hpm
Wed Oct 19 18:48:27 PDT 2011
renee_berry
@equijada AT&T & Verizon don't make you stay on their service for 6 months before giving you the iphone :) #hpm
Wed Oct 19 18:48:28 PDT 2011
renee_berry
RT @TexasKidDoc: Palliative medicine is just good medicine. Should start at diagnosis. Less scary if introduced then too when not in crisis. #hpm
Wed Oct 19 18:48:45 PDT 2011
DrBeckerSchutte
YESMT @TexasKidDoc: Palliative medicine is just good medicine. Should start at diagnosis. Less scary if introduced when not in crisis. #hpm
Wed Oct 19 18:48:47 PDT 2011
equijada
@renee_berry ha!! #hpm

Wed Oct 19 18:49:03 PDT 2011
jocelyn528
T2 Stories from family members who experienced #hpm as valuable and beneficial. Focus on surviving family members, not dying pt.
Wed Oct 19 18:49:09 PDT 2011
schwartzbrown
RT @DrBeckerSchutte: T2-I thk part of the answer is we need shift thinking abt death as natural health outcome-not just in med school #hpm
Wed Oct 19 18:49:20 PDT 2011
Page 24 of 35
6/27/12 12:33 PM
RossJeanette renee_berry
@equijada HPM could be highly personal medicine. #Hpm

Wed Oct 19 18:49:23 PDT 2011
interesting RT @InpatientMed Many, myself included would love to specialize in #hpm but are prohibited bc of limited grandfathering #hpm
Wed Oct 19 18:49:25 PDT 2011
renee_berry
is RT @RossJeanette: @equijada HPM could be highly personal medicine. #hpm

Wed Oct 19 18:49:46 PDT 2011
PalliativeActiv
RT @jfclearywisc RT @AfternoonNapper: "Seems there is not enough awareness abt palliative caredidnt know it existed until recently..." #hpm
Wed Oct 19 18:50:16 PDT 2011
DrBeckerSchutte
MT @jocelyn528: T2 Stories from family members who exp. #hpm as valuable & beneficial. Focus on surviving family members-not dying pt. #hpm
Wed Oct 19 18:50:21 PDT 2011
renee_berry
@schwartzbrown death in medicine is not always clinical failure, this needs to be a part of #meded #hpm
Wed Oct 19 18:50:33 PDT 2011
DrBeckerSchutte
It's such a privilege to practice that way. RT @RossJeanette: @equijada HPM could be highly personal medicine. #hpm
Wed Oct 19 18:50:42 PDT 2011
renee_berry
RT @schwartzbrown: RT @DrBeckerSchutte: T2-I thk part of the answer is we need shift thinking abt death as natural health outcome-not just in med school #hpm
Wed Oct 19 18:50:46 PDT 2011
equijada
Off topic: Siri, what is palliative care? #hpm

Wed Oct 19 18:50:57 PDT 2011
kdhoffman2
RT @DrBeckerSchutte: YESMT @TexasKidDoc: Palliative medicine is just good medicine. Should start at diagnosis. Less scary if introduced when not in crisis. #hpm
Wed Oct 19 18:50:57 PDT 2011
equijada
RT @RossJeanette: @equijada HPM could be highly personal medicine. #Hpm

Wed Oct 19 18:51:01 PDT 2011
nursefriendly
@aliciabloom Ok I get it, so #hospice services can be initiated if there is a chance, the patient will only have six months #medicare #hpm
Wed Oct 19 18:51:24 PDT 2011
No_Bozo
RT @renee_berry: interesting RT @InpatientMed Many, myself included would love to specialize in #hpm but are prohibited bc of limited gr ...
Wed Oct 19 18:51:27 PDT 2011
Page 25 of 35
6/27/12 12:33 PM
nursefriendly
RT @renee_berry: @DrBeckerSchutte I think that is what the conversation is about but a good example of the challenges with that were seen in @Frontline #hpm
Wed Oct 19 18:51:33 PDT 2011
DrBeckerSchutte
Singing my song! RT @renee_berry: @schwartzbrown death in medicine is not always clinical failure, this needs to be a part of #meded #hpm
Wed Oct 19 18:51:41 PDT 2011
nursefriendly
RT @aliciabloom: hospice criteria includes an expected prognosis of 6 months or less if the disease takes it natural/expected course #hpm
Wed Oct 19 18:51:46 PDT 2011
renee_berry
RT @jocelyn528: T2 Stories from family members who experienced #hpm as valuable and beneficial. Focus on surviving family members, not d ...
Wed Oct 19 18:51:48 PDT 2011
nursefriendly
RT @hollyby: @nursefriendly Prognosis is difficult, so many live for more than 6 months, which is okay. No penalty for outliving the estimate. :) #hpm
Wed Oct 19 18:51:56 PDT 2011
No_Bozo
Wed Oct 19 18:51:58 PDT 2011
aliciabloom
MT @renee_berry: death in medicine is not always clinical failure <-- it will be the outcome for all patients at some point. #hpm
Wed Oct 19 18:52:02 PDT 2011
laurapcd1
Wed Oct 19 18:52:07 PDT 2011
nursefriendly
RT @pamressler: I see palliative care as a way for patients to be cared for along the trajectory of chronic or life-limiting illness not only at #eol #hpm
Wed Oct 19 18:52:22 PDT 2011
RossJeanette
RT @equijada: Off topic: Siri, what is palliative care? I'm not sure but there probably is an app for that. :) #Hpm
Wed Oct 19 18:52:22 PDT 2011
itsthebunk
Hi @pamressler and ppl of #hpm. Not *in* chat but noticed tweet. Sorry if stupid question, but asking anyway: *what is* palliative care?
Wed Oct 19 18:52:33 PDT 2011
nursefriendly
RT @jfclearywisc: T1: Patient confusion: many of my patients get confused with the neurologist (brain) and urologist (bladder). Our job to educate #hpm
Wed Oct 19 18:52:51 PDT 2011
Page 26 of 35
6/27/12 12:33 PM
pamressler
RT @aliciabloom: MT @renee_berry: death in medicine is not always clinical failure <will be the outcome for all patients at some point. #hpm
Wed Oct 19 18:52:53 PDT 2011
jordangrumet
There is such a need for #hpm here in Chicago. I have been offered positions because I am hospice friendly. Offered to train me. #hpm
Wed Oct 19 18:52:56 PDT 2011
renee_berry
for all people RT @aliciabloom MT death in medicine is not always clinical failure <-- it will be the outcome for all pts at some point #hpm
Wed Oct 19 18:53:02 PDT 2011
AfternoonNapper
@equijada You might want to visit http://t.co/HT9DiDA9 for a bit of an explanation. #hpm
Wed Oct 19 18:53:03 PDT 2011
aliciabloom
@itsthebunk no stupid questions! glad you're asking. here's a great resource: http://t.co/SMShAwSP #hpm
Wed Oct 19 18:53:36 PDT 2011
InpatientMed
I am a hospitalist, internal medicine trained. I see those at end of life and see that as one of the opportunities to really help. #hpm
Wed Oct 19 18:53:43 PDT 2011
RossJeanette
Great chat everyone I need to leave now goodnight! #Hpm

Wed Oct 19 18:53:48 PDT 2011
drseisenberg
we're all patients and we're all gonna die someday -- gimme peace and comfort every step of the way #hpm
Wed Oct 19 18:54:05 PDT 2011
MarksPhone
There is an app for palliative care it is the application of the best clinical care for the most important time in a pt and family #hpm
Wed Oct 19 18:54:12 PDT 2011
renee_berry
RT @aliciabloom: @itsthebunk no stupid questions! glad you're asking. here's a great resource: http://t.co/SMShAwSP #hpm
Wed Oct 19 18:54:16 PDT 2011
DrBeckerSchutte
RT @aliciabloom: @itsthebunk no stupid questions! glad youre asking. heres a great resource: http://t.co/EFifCsTS<<<No stupid questions #hpm
Wed Oct 19 18:54:36 PDT 2011
AfternoonNapper
Post official conversation, I've got a question for the group, if you will entertain it! #hpm
Wed Oct 19 18:54:46 PDT 2011
renee_berry
Last few minutes of the chat, please share some closing thoughts, thanks for joining
Page 27 of 35
6/27/12 12:33 PM
everyone #hpm
Wed Oct 19 18:54:47 PDT 2011
DrBeckerSchutte
Yes indeed! RT @drseisenberg: were all patients and were all gonna die someday -gimme peace and comfort every step of the way #hpm
Wed Oct 19 18:54:47 PDT 2011
pamressler
@itsthebunk Palliative care is supportive and curative care along the illness trajectory, may include hospice care #hpm
Wed Oct 19 18:54:51 PDT 2011
jordangrumet
#hpm is the "medicine" we offer when can't offer cure. "there is something we can do"
Wed Oct 19 18:54:55 PDT 2011
renee_berry
RT @MarksPhone: There is an app for palliative care it is the application of the best clinical care for the most important time in a pt and family #hpm
Wed Oct 19 18:54:56 PDT 2011
nursefriendly
@renee_berry T2 We are incuding mentorship for #nurses #respiratory therapists and other #hcps too, not just #doctors right? #hpm
Wed Oct 19 18:54:58 PDT 2011
itsthebunk
Thanks! RT @aliciabloom: @itsthebunk no stupid questions! glad youre asking. heres a great resource: http://t.co/lEz4pE8L #hpm
Wed Oct 19 18:55:12 PDT 2011
DrBeckerSchutte
And as we near the official end tonight, I want to invite anyone interesting shifting the culture to pop over to #EOLchat at 9 CST. #hpm
Wed Oct 19 18:55:30 PDT 2011
nursefriendly
Wed Oct 19 18:55:39 PDT 2011
renee_berry
MT @jordangrumet hospice is the "medicine" we offer when cant offer cure. "there is something we can do" #hpm
Wed Oct 19 18:55:46 PDT 2011
DrBeckerSchutte
Beautiful. And needed by all. RT @jordangrumet: #hpm is the "medicine" we offer when cant offer cure. "there is something we can do" #hpm
Wed Oct 19 18:55:46 PDT 2011
nursefriendly
RT @aliciabloom: @nursefriendly perhaps months, not years & years. clinical criteria is clear & avg LOS on hospice is short-- often referred late. #hpm
Wed Oct 19 18:55:57 PDT 2011
amyrnbsn
RT @drseisenberg: we're all patients and we're all gonna die someday -- gimme peace and comfort every step of the way #hpm
Page 28 of 35
6/27/12 12:33 PM
Wed Oct 19 18:56:05 PDT 2011
drseisenberg
RT @MarksPhone: There is app 4 palliative care-- the application of the best clinical care 4 the most important time in a pt & family #hpm
Wed Oct 19 18:56:08 PDT 2011
DrBeckerSchutte
@AfternoonNapper Can't wait to hear your question. #hpm

Wed Oct 19 18:56:17 PDT 2011
InpatientMed
Would love to have opportunity to specialize in #hpm but would be required to quit what I now do for another yr of training.
Wed Oct 19 18:56:20 PDT 2011
drseisenberg
Amen, brother jordan... RT @jordangrumet: #hpm is the "medicine" we offer when cant offer cure. "there is something we can do" #hpm
Wed Oct 19 18:56:50 PDT 2011
aliciabloom
RT @renee_berry: MT @jordangrumet hospice is the "medicine" we offer when cant offer cure. "there is something we can do" #hpm
Wed Oct 19 18:56:52 PDT 2011
nursefriendly
@aliciabloom Agree, usually by the time an acutely ill #patient is referred to #hospice they are long overdue for comfort care #hpm
Wed Oct 19 18:57:02 PDT 2011
schwartzbrown
Death is seen as a negative outcome in much of medical culture here #hpm

Wed Oct 19 18:57:02 PDT 2011
DrBeckerSchutte
MT @MarksPhone: There is an app for palliative care: the application of best clinical care for the most important time in a pt & family #hpm
Wed Oct 19 18:57:10 PDT 2011
TexasKidDoc
until recently, medicine wasn't about a cure. A good doc was someone who could tell you want to expect and helped you through it #hpm
Wed Oct 19 18:57:20 PDT 2011
nursefriendly
RT @TexasKidDoc: @DrBeckerSchutte @renee_berry Change the rules: not just 6mo to live and give up curative therapy. In TX kids can have both. #HPM
Wed Oct 19 18:57:25 PDT 2011
DrBeckerSchutte
Yes indeed! RT @schwartzbrown: Death is seen as a negative outcome in much of medical culture here #hpm
Wed Oct 19 18:57:28 PDT 2011
itsthebunk
@pamressler TY. Y to idea of "rebranding"-or a better way 2 communicate what Palliative care is. I prob cd've used some 4 cancer tx! #hpm
Wed Oct 19 18:57:28 PDT 2011
Page 29 of 35
6/27/12 12:33 PM
AfternoonNapper
@InpatientMed I totally see your point - but isn't that the same issue that we all face when we want to make a career change? #hpm
Wed Oct 19 18:57:32 PDT 2011
pamressler
@itsthebunk Good to see you on the chat! #hpm

Wed Oct 19 18:57:36 PDT 2011
nursefriendly
RT @uvmer: @renee_berry Agreed.Sorry for jumping in..my partner had brain cancer.Even though we knew it was bad...talking EOL felt like giving up #hpm
Wed Oct 19 18:57:36 PDT 2011
jfclearywisc
MT @MarksPhone: There is an app for palliative care: The application of best clinical care for the most important time in a pt & family #hpm
Wed Oct 19 18:57:41 PDT 2011
renee_berry
RT @TexasKidDoc: until recently, medicine wasn't about a cure. A good doc was someone who could tell you want to expect and helped you through it #hpm
Wed Oct 19 18:57:55 PDT 2011
nursefriendly
RT @DrBeckerSchutte: @jfclearywisc I think that makes it critical for HC providers to make sure we're using plain language & check for understanding. #hpm
Wed Oct 19 18:57:57 PDT 2011
jordangrumet
#hpm I wrote a poem "hope" about just this. Will post in a few minutes.
Wed Oct 19 18:58:05 PDT 2011
itsthebunk
@pamressler Thanks! Glad I caught the tail end of it:) #hpm

Wed Oct 19 18:58:13 PDT 2011
DrBeckerSchutte
MT @TexasKidDoc: until recently, medicine wasnt about a cure. A good doc was someone who told what to expect and helped you through it #hpm
Wed Oct 19 18:58:31 PDT 2011
AfternoonNapper
@itsthebunk These folks are some great folks to know. Glad to see you here too! #hpm
Wed Oct 19 18:58:53 PDT 2011
kdhoffman2
sorry I missed so much of this chat. I'll try to be with you at #EOL #hpm
Wed Oct 19 18:58:55 PDT 2011
healthpolicygrp
MT @MarksPhone: The *app* for palliative care? Application of the best clinical care for Patients' & loved ones' most important time. #hpm
Wed Oct 19 18:58:57 PDT 2011
nursefriendly
Education #patients at their level of #healthlit is critical to them retaining the info. @rBeckerSchutte: @jfclearywisc #hpm
Wed Oct 19 18:58:58 PDT 2011
Page 30 of 35
6/27/12 12:33 PM
renee_berry
RT @AfternoonNapper: @itsthebunk These folks are some great folks to know. Glad to see you here too! #hpm
Wed Oct 19 18:59:16 PDT 2011
DrBeckerSchutte
Final thoughts: I don't care what names we use, if we can help increase comfort, quality of life, and decrease fear & pain-that's a win #hpm
Wed Oct 19 18:59:20 PDT 2011
TexasKidDoc
RT @DrBeckerSchutte: Final thoughts: I don't care what names we use, if we can help increase comfort, quality of life, and decrease fear & pain-that's a win #hpm
Wed Oct 19 18:59:50 PDT 2011
jordangrumet
#hpm thanks @renee_berry for hosting. Was my first time joining. Need to type faster.
Wed Oct 19 18:59:51 PDT 2011
nursefriendly
T2 Need to normalize and "kitchen table" the topic of #hospice #palliative care.Treate it as a normal course of #treatment #hpm
Wed Oct 19 18:59:57 PDT 2011
healthpolicygrp
Wed Oct 19 19:00:04 PDT 2011
itsthebunk
RT @nursefriendly: RT @hollyby: Palliative care = "extra layer of support" 4 patients w serious illness, independent of age & prognosis #hpm
Wed Oct 19 19:00:10 PDT 2011
DrBeckerSchutte
RT @nursefriendly: Education #patients at their level of #healthlit is critical to them retaining the info. @jfclearywisc #hpm
Wed Oct 19 19:00:15 PDT 2011
jen_c_taylor
Good night, sleep tight, and let your dreams come true..........thanks Renee. #hpm
Wed Oct 19 19:00:19 PDT 2011
drseisenberg
Final thought: Love you guys. #hpm

Wed Oct 19 19:00:32 PDT 2011
healthpolicygrp
RT @DrBeckerSchutte: Final thoughts: I don't care what names we use, if we can help increase comfort, quality of life, and decrease fear & pain-that's a win #hpm
Wed Oct 19 19:00:33 PDT 2011
DrBeckerSchutte
I often feel that way. RT @jordangrumet: #hpm thanks @renee_berry for hosting. Was my first time joining. Need to type faster. #hpm
Wed Oct 19 19:00:38 PDT 2011
Page 31 of 35
6/27/12 12:33 PM
nursefriendly
Final thoughts: The sooner we initiate the conversation of #palliative #endoflife care, the sooner our #patients can decide #hpm
Wed Oct 19 19:00:52 PDT 2011
renee_berry
Thanks again for joining the chat! hope to see you all next week! http://t.co/8dfVVWuw All welcome to join in the conversation #hpm
Wed Oct 19 19:00:53 PDT 2011
itsthebunk
Yes and same here!! :) RT @AfternoonNapper: @itsthebunk These folks are some great folks to know. Glad to see you here too! #hpm
Wed Oct 19 19:01:02 PDT 2011
pamressler
@renee_berry Thanks so much for a wonderful conversation...great to connect with you again and again...love it! #hpm
Wed Oct 19 19:01:06 PDT 2011
hollyby
Definition is important, but our message must be clear if we intend to help people w/ serious illness get the care they need & deserve. #hpm
Wed Oct 19 19:01:14 PDT 2011
hollyby
Ditto! RT @drseisenberg: Final thought: Love you guys. #hpm

Wed Oct 19 19:01:30 PDT 2011
aliciabloom
great topics tonight...high-five @renee_berry! #hpm

Wed Oct 19 19:01:40 PDT 2011
nursefriendly
Final: Sooner they know, sooner #patients #families can decide if #hospice #palliative care is the #treatment they want #hpm
Wed Oct 19 19:01:44 PDT 2011
schwartzbrown
Thank you @renee_berry for hosting another great chat #hpm

Wed Oct 19 19:01:57 PDT 2011
pamressler
Thanks everyone! Enjoyed the chat. Take care. #hpm

Wed Oct 19 19:01:59 PDT 2011
hollyby
Thanks @renee_berry for hosting! Great job!!! #hpm

Wed Oct 19 19:02:00 PDT 2011
AfternoonNapper
Personal Q tied in to access & awareness of palliative care: (for providers, opinion Q): why have I never been offered palliative care? #hpm
Wed Oct 19 19:02:07 PDT 2011
MarksPhone
Names are not important but names are where we define knowledge we need to understand how words are perceived first & redefine #hpm
Wed Oct 19 19:02:13 PDT 2011
Page 32 of 35
6/27/12 12:33 PM
DrBeckerSchutte
Thanks all--this has been a blast. So glad to catch more than a few minutes. @renee_berry: Loved the topics. #hpm
Wed Oct 19 19:02:16 PDT 2011
InpatientMed
@AfternoonNapper #hpm is new subspeciality and needs docs to get it started. Certification requirements too restrictive. IMO
Wed Oct 19 19:02:40 PDT 2011
nursefriendly
@renee_berry Thanks for hosting Renee :) see you next time! Night all, moving to #eolchat to continue conversation #hpm
Wed Oct 19 19:02:41 PDT 2011
MarksPhone
Thank you all sorry I was a bit off point still trying to find my way in this new world of w/o #hpm
Wed Oct 19 19:03:22 PDT 2011
SunnyinPink
RT @DrBeckerSchutte: MT @jocelyn528: T2 Stories from family members who exp. #hpm as valuable & beneficial. Focus on surviving family me ...
Wed Oct 19 19:03:37 PDT 2011
itsthebunk
RT @DrBeckerSchutte: Final: I dont care what names we use, if we cn help increase comfort, QualityOfLife & decrease fear&pain-that=win #hpm
Wed Oct 19 19:03:39 PDT 2011
nursefriendly
Final Thought: Minimize the #confusion over what to call it, leave #hospice as is, #palliation is #palliative #educate on both #hpm
Wed Oct 19 19:03:54 PDT 2011
jordangrumet
My poem Hope http://t.co/84dgGkAV #hpm

Wed Oct 19 19:03:55 PDT 2011
MtnMD
MT @drseisenberg: Amen, brother jordan @jordangrumet: #hpm is the "medicine" we offr when cant offer cure. "there is somethng we cn do" #hpm
Wed Oct 19 19:04:25 PDT 2011
ShahinaLakhani
When People Think They Don't Deserve Forgiveness #wellbeing #livingpowerfully #hpm #RNchat #palliative care http://t.co/rlQxZnzS
Wed Oct 19 19:04:38 PDT 2011
colleen_young
Please blog abt answer. MT @AfternoonNapper: Personal Q (for providers, opinion Q): why have I never been offered palliative care? #hpm
Wed Oct 19 19:05:24 PDT 2011
AfternoonNapper
@colleen_young I'd love to blog about the answer...but I'm not getting one! #hpm
Wed Oct 19 19:06:04 PDT 2011
nursefriendly
Very true, #death scares everyone RT @ctsinclair: @jordangrumet it is really about the
Page 33 of 35
6/27/12 12:33 PM
content that scares people not the name #hpm

Wed Oct 19 19:06:32 PDT 2011
itsthebunk
Thanks for welcoming me! Glad I caught last bit of chat. Is palliative care synonymous w hospice/end of life care? #hpm
Wed Oct 19 19:07:12 PDT 2011
colleen_young
@AfternoonNapper Can it be that you've been offered palliative care without it being called palliative? Does this happen? @hollyby #hpm
Wed Oct 19 19:07:23 PDT 2011
nursefriendly
RT @DeathwDignity: Hey there #hpm & #EOLchat folks, hope you can join convo tomorrow 6pm ET--personal experiences with dying: http://t.c ...
Wed Oct 19 19:07:27 PDT 2011
renee_berry
@uvmer no apologies, sorry to hear about your partner, I think that is such an important contribution to our conversation tonight #hpm
Wed Oct 19 19:07:34 PDT 2011
nursefriendly
@DeathwDignity If I'm not at work, I'll be there :) #hpm #EOLchat #DWDchat

Wed Oct 19 19:07:45 PDT 2011
nursefriendly
RT @DrBeckerSchutte: And as we near the official end tonight, I want to invite anyone interesting shifting the culture to pop over to #EOLchat at 9 CST. #hpm
Wed Oct 19 19:08:09 PDT 2011
AfternoonNapper
@colleen_young @hollyby Been in fairly large hospitals & have never heard a peep about palliative type care. Even had to ask for PT. #hpm
Wed Oct 19 19:09:13 PDT 2011
nursefriendly
RT @pamressler: Palliative care (perhaps with a bit of "rebranding") is most beneficial if introduced early in a debilitating, progressive illness. #hpm
Wed Oct 19 19:09:28 PDT 2011
renee_berry
RT @uvmer: @renee_berry Agreed.Sorry for jumping in..my partner had brain cancer.Even though we knew it was bad...talking EOL felt like giving up #hpm
Wed Oct 19 19:09:50 PDT 2011
nursefriendly
@pamressler Hmmm. . offer it as a form of "comfort care" that begins long before the #disease becomes #terminal? #hpm
Wed Oct 19 19:10:23 PDT 2011
rlbates
RT @jordangrumet My poem Hope http://t.co/nzDhESvp #hpm

Wed Oct 19 19:10:29 PDT 2011
AfternoonNapper
So my question could be asked aswhat's the criteria for palliative care? Who "prescribes" it? #hpm
Wed Oct 19 19:10:56 PDT 2011
Page 34 of 35
6/27/12 12:33 PM
uvmer
@renee_berry Thank you. It is an important conversation you are having. #hpm

Wed Oct 19 19:11:23 PDT 2011
KathyKastner
Only began to think abt legacy with #hpm and #eolchat :)

Wed Oct 19 19:11:33 PDT 2011
nursefriendly
RT @aliciabloom: talking about EoL issues sometimes feels like "giving up" because clinicians are using language that makes patients feel that way. #hpm
Wed Oct 19 19:12:02 PDT 2011
colleen_young
@AfternoonNapper And another Q. Can one receive palliative care without it being called such? Help us understand #hpm providers.
Wed Oct 19 19:12:13 PDT 2011
uvmer
RT @jordangrumet My poem Hope http://t.co/Z3wVGcOM #hpm

Wed Oct 19 19:12:14 PDT 2011
nursefriendly
@aliciabloom How you present the message plays a big part in how it is received, perceived by #patient #family #caregiver #eolchat #hpm
Wed Oct 19 19:12:55 PDT 2011
itsthebunk
& 4 ppl w cancer Tx. Could've helped me-could def help mny ppl #bcsm @AfternoonNapper's Q: "why've I never bn offered palliative care?" #hpm
Wed Oct 19 19:13:17 PDT 2011
AfternoonNapper
@colleen_young Someone caring throughout the process is just incredible vs. the usual practice of just sending pt home w/ nothing. #hpm
Wed Oct 19 19:13:49 PDT 2011
InpatientMed
Terminal disease. RT "@AfternoonNapper: So my question could be asked aswhat's the criteria for palliative care? Who "prescribes" it? #hpm"
Wed Oct 19 19:13:50 PDT 2011
hollyby
@AfternoonNapper Docs order it as a consultation. No specific criteria, but usually for challenging symptoms or situations. #hpm
Wed Oct 19 19:14:03 PDT 2011
KathyKastner
RT @nursefriendly: @aliciabloom How you present the message plays a big part in how it is received, perceived by #patient #family #caregiver #eolchat #hpm
Wed Oct 19 19:14:14 PDT 2011
Page 35 of 35

#HPM Tweet Chat 10:19:11

Uploaded by

Document Information

Original Description:

Original Title

Copyright

Available Formats

Share this document

Share or Embed Document

Sharing Options

Did you find this document useful?

Is this content inappropriate?

Copyright:

Available Formats

#HPM Tweet Chat 10:19:11

Uploaded by

Copyright:

Available Formats

#hpm - Healthcare Social Media Transcript

@renee_berry @nursefriendly @aliciabloom hey hey hey #hpm

#hpm - Healthcare Social Media Transcript

Uh, oh, is #twitter acting sluggish for anyone else? #hpm

@drseisenberg hi! #hpm

Jennifer here......Hi! #hpm

Lotsa familiar faces tonight :) Just browsed #socpharm a bit :) #hpm

#hpm - Healthcare Social Media Transcript

#hpm - Healthcare Social Media Transcript

@aliciabloom #palliative #hpm I agree the palliative is more abstract

#hpm - Healthcare Social Media Transcript

Hi all, coming in a little late but glad I made it! #hpm

Hi, Mindy here. Sorry I'm late too. #hpm

#hpm - Healthcare Social Media Transcript

Can anyone RT topic 1? #hpm

#hpm - Healthcare Social Media Transcript

Can hospice be a part of early palliative care? Help me understand. #hpm

@renee_berry Hello Renee, Ramona Forbis here, Survivor #hpm

@nursefriendly Thanks you answered before my question was posted. #hpm

@SunnyinPink thanks for joining us Ramona, welcome to #hpm

#hpm - Healthcare Social Media Transcript

#hpm - Healthcare Social Media Transcript

#hpm - Healthcare Social Media Transcript

@renee_berry Thanks, I am blushing #hpm

@DrBeckerSchutte @Pallimed post on @Frontline Facing Death http://t.co/XTX1EZYn #hpm

Thanks! RT @renee_berry: @DrBeckerSchutte @Pallimed post on @Frontline Facing

#hpm - Healthcare Social Media Transcript

Death http://t.co/75nlU6Bg #hpm

#hpm t1 need to rebrand. Term #hospice scares people away

#hpm - Healthcare Social Media Transcript

Wed Oct 19 18:31:22 PDT 2011

#hpm - Healthcare Social Media Transcript

@ctsinclair maybe we can control perception of new term #hpm

@TexasKidDoc extra important for pediatrics #hpm

Destigmatize death -> culture shift is tough, Tough, TOUGH #hpm

#hpm - Healthcare Social Media Transcript

Wed Oct 19 18:33:44 PDT 2011

@renee_berry Just checking, are we still on T1/ #hpm

@TexasKidDoc I wonder how much of that is a physician education issue #hpm

#hpm - Healthcare Social Media Transcript

hospice = healing organization specifically positioned in caring environments #hpm

@ctsinclair name scares people before they understand #hospice. #hpm

@MarksPhone good point. Experience > education > assumptions #hpm

Hi! I'm late dropping in. Good evening to all. #hpm

#hpm - Healthcare Social Media Transcript

Wed Oct 19 18:36:50 PDT 2011

@AfternoonNapper hello hello, we're just about to move to T2 #hpm

#hpm - Healthcare Social Media Transcript

A name is a name. An intention is timeless. #hpm

I like "supportive care". Good term. #hpm

#hpm - Healthcare Social Media Transcript

Wed Oct 19 18:39:02 PDT 2011

@equijada comfort care #hpm

#hpm - Healthcare Social Media Transcript

T2 the medical narrative. Write about it. It's power.#hpm

#hpm - Healthcare Social Media Transcript

living well with a disease, any disease, any stage #hpm

#hpm - Healthcare Social Media Transcript

I think Steve Jobs would call it EnlightenMed #hpm

#hpm - Healthcare Social Media Transcript

Wed Oct 19 18:44:57 PDT 2011

#hpm - Healthcare Social Media Transcript