PRADER WILLI SYNDROME EDU 280 Evelyn Miramontes

MY RELATIONSHIP WITH FOOD

Be honest
Share your thoughts
Make it fun
Have at lest 3 things
WHO WANTS MORE SNACKS

Dont feel satisfied?

IM STARVING AND MY PARENTS WONT FEED ME
It is never enough food
Children suffering from PWS are always starving
Will do anything in their power to eat food

How would you feel if you where starving and no one seemed to care?
PRADER-WILLI SYNDROME
best described complex genetic disorder affecting appetite, growth, metabolism,
cognitive function and behavior - http://www.pwsausa.org/basic-facts/
Although considered a rare disorder, PWS is one of the most common conditions
seen in genetic clinics and is the most common genetic cause of obesity that has been
identified to date. - http://www.pwsausa.org/basic-facts/
one in 12,000 to 15,000 people suffer (considered rare)
PWS is found in people of both sexes and in all races worldwide.
HOW IS IT CHARACTERIZED???
low muscle tone
short stature (when not treated with growth hormone),
incomplete sexual development
cognitive disabilities
Obesity (BIGGEST FACTOR)
Behavioral problems
No self control especially around food
Described as a drug addict trying to get he/she next high
Nightmare for parents
BUT WHY IS THIS HAPPENING!!
Genetic mutation
Head trauma
GENETIC MUTATION
Prader-Willi syndrome is caused by changes in the 15th chromosome
Normally contributed by the father
Most cases are missing the 15th chromosome
This mutation is genetically passed down by a parent (Parent will not be effected)
Flaw in the hypothalamus part of their brain, which normally registers feelings
of hunger and satiety.
HEAD TRAUMA

Trauma can occur in the brain causing one to not get the proper signals to indicate
one is full and satisfied
Cancer can also be a factor
VIDEO
https://www.youtube.com/watch?v=t72b4RKhH7U
CAN THIS BE TREATED?
There is no cure
Treatment includes:
Non-stop supervision
Strict portion control
hormone treatment (if detected early)
WHATS IT TO US?
As educators what can we do in our classrooms to help our students become socially
aware of this disorder
QUIZ!
For your quiz you will be as to participate in a discussion with a partner then the class

How has this lesson changed your view on your relationship on food?

Do you believe obesity is a diseases? Why/why not?

With so many disorders and disease out there are we prepared to teach how to
deal with them and educate students on regular ED subjects?