Beginning to see each other

 O tanara de 34 de ani si partenerul ei

testarea genetica in timpul sarcinii deoarece
doresc sa mai aiba un copil. Cuplul are o
fetita de 4 ani cu Fibroza Chistica.
 Cum credeti ca au ajuns sa solicite consultatia?
 Ce lucruri anticipati ca doresc sa discute?
 Cum ati incepe consultatia?
 Ce lucruri ati dori sa abordati?
 O tanara de 23 de ani, aflata la prima sarcina
si insarcinata in 14 saptamani, a solicitat o
consultatie pentru a discuta riscul de a avea
un copil cu sindromul Down. In urma unei
ecografii a fost semnalata transulcenta nucala
si li s-a comunicat un risc estimat de 1 la 50.
Cuplul este nehotarat in privinta testarii
invazive.
 Cum ati incepe consultatia?
 Ce ati avea nevoie sa stiti pentru a intelege mai
bine situatia cu care se confrunta?
 Cum puteti interveni pentru a le facilita decizia?
 Setting
 Getting started
 Programare / Trimitere
 Breaking the ice
 Small talk (ex. Finding the place, Ipod)
 Other people coming with the patient
 Greeting
 Names, Relationships
 Working environment
 Shared vision of what is to come
 Expectations / Hopes
 Setting realistic goals
 “I want to know if my baby is going to be healthy”
 Aggenda setting
 Feedback
 Verbal / Non verbal communication
 mutatie, aberatie, retard(at), handicap, autist, etc
 What is and is not being said!
 Interview
 Questionning (ex. Family / Children; Information given
during the session)
 Open ended
 Focused
 Closed
 Rephrasing
 Redirecting
 “It is very important… but let’s go back to…”
 “Before moving on to…”
 “Let’s slow down / go back to…”
 Reflecting
 Shared language
 “Non working / Bad” gene
 Neurofibromatosis = NF
 Silence
 Key assessment points
 Family / Personal history
 Support system
 Understanding / Previous knowledge
 Attitudes
 Beliefs
 Religion
 Education
 Emotional state

Don’t ever assume anything!