FREQUENTLY ASKED QUESTIONS

ON HEMOPHILIA

Q: What is hemophilia?

A: Hemophilia is a commonly inherited disorder that causes excessive bleeding

during injuries or surgeries due to the body’s inability to clot blood properly. People
who have hemophilia have blood with low levels of factor VIII (8) or factor IX (9),
which are proteins needed in blood clotting. Developing hemophilia later in life is rare.
Hemophilia is usually inherited at birth from parents who already have the disorder or
carry genes that causes it. The genetic mutations are often found in the X
chromosome.

Q: What are the types of hemophilia?

A: There are two types of Hemophilia depending on which clotting factor is lacking.
Hemophilia A, also known as Classic Hemophilia, is due to the low levels of Factor
VIII. Hemophilia B, also known as Christmas Disease, is due to the low levels of
Factor IX.

Q: What are the symptoms of hemophilia?

A: Symptoms of hemophilia depends on the level of the clotting factors. It may range
from mild to moderate symptoms such as easy bruising, prolonged bleeding during
minor surgeries or dental procedures, bleeding during vaccination, frequent and hard-
to-stop nosebleeds and heavy menstruation; and to severe symptoms such as
spontaneous bleeding in different body organs.
 FREQUENTLY ASKED QUESTIONS
ON HEMOPHILIA

Q: How is hemophilia diagnosed?

A: There are several blood tests that can diagnose hemophilia such as Clotting factor
test, Complete blood count (CBC), Activated Partial Thromboplastin Time (APTT)
Test, and Fibrinogen Test. Other laboratory tests may be needed depending on the
evaluation of your healthcare provider.

Q: How is hemophilia treated?

A: Hemophilia management depends on the severity of the symptoms, but generally

this involves control of bleeding and infusion of the necessary clotting factors. Other
medications may be used such as emicizumab, desmopressin acetate, and epsilon
amino caproic acid, however these medications will only be used depending on the
recommendation of your healthcare provider.
T: Ano ang hemophilia?

S: Ang hemophilia ay isang pambihirang sakit na namamana na nagdudulot ng

sobrang pagdurugo tuwing may sugat sa katawan dahil sa kawalan ng kakayahan
nitong mapigilan ang pagdurugo o blood clotting. Ang mga taong may hemophilia ay
may dugong mababa ang mga lebel ng factor VIII (8) o factor IX (9), na mga protinang
kailangan para mag-clot ang dugo. Ang pagkakaroon ng hemophilia kapag matanda
na ay di pangkaraniwan. Ang hemophilia ay kadalasan namamana simula
pagkapanganak at nakukuha sa mga magulang na meron nito o nagdadala ng genes
na nagdudulot nito. Ang mga pagbabagong genetiko o genetic mutations ay
kadalasang matatagpuan sa X chromosome ng tao.

T: Anu-ano ang mga uri ng hemophilia?

S: Ang sakit na ito ay may dalawang uri depende sa kung anong factor ang kulang sa
dugo. Ang Hemophilia A o Classic Hemophilia ay dulot ng mababang lebel ng factor
VIII sa dugo. Samantala, ang Hemophilia B o Christmas Disease ay dulot ng
mababang lebel ng factor IX sa dugo.

T: Anu-ano ang mga sintomas ng hemophilia?

S: Ang mga sintomas ng hemophilia ay depende sa lebel ng clotting factors sa dugo.

Ito ay maaaring maging banayad hanggang katamtaman lamang katulad ng
madaling pagkabukol, matagalang pagdurugo tuwing nagkakasugat nang hindi
malala o tuwing nagpapadentista, pagdurugo tuwing nagpapabakuna, malakas na
pagdaloy ng menstruation, at madalas at mahirap na mapigilan na nosebleed. Ang
mga severe na sintomas ng hemophilia naman ay karaniwang nauuwi sa biglaang
pagdurugo sa loob ng katawan
T: Paano sinusuri kung ikaw ay may hemophilia?

S: May mga maaaring gawing pagsusuri sa dugo para malaman kung ikaw ay may
hemophilia: Clotting factor test, Complete blood count (CBC), Activated Partial
Thromboplastin Time (APTT) Test, at Fibrinogen Test. Maaari ring magkaroon ng iba
pang blood test upang ma-diagnose ang hemophilia.

T: Paano ginagamot ang hemophilia?

S: Ang paggamot sa hemophilia ay nakadepende sa pagkaseryoso ng mga

nararamdamang sintomas, ngunit ito ay karaniwang may kinalaman sa pagpigil sa
pagdurugo at sa pag-infuse ng mga kinakailangan na clotting factors. May ibang
gamot na maaaring ireseta katulad ng emicizumab, desmopressin acetate, at epsilon
amino caproic acid, subalit ito ay ibinibigay lamang sa rekomendasyon ng iyong
doktor.