Opt-out implementation data flow map (MSDS approach – England only)

NMPA Team Secure N3 Server Main Annual Report

Host: RedCentric
Accessible only to NMPA team,
NMPA data manager/statistician to request including Data Managers
linked Maternity Services Dataset (MSDS) from
NHS Digital (NHSD).
NMPA project team
At the point of requesting this linked dataset, access pseudonymised
the NMPA will reinforce that no data from data (NMPA ID only) for
those who have opted-out should be included analysis
Anonymised and aggregated
Small numbers suppressed
Audit benchmarking website
Anonymised and aggregated
Small numbers suppressed
Topic-specific sprint audit
reports
Anonymised and aggregated
Small numbers suppressed

NHS Digital
CQC metrics
NHS Digital link English ONS register of live births and stillbirths Anonymised and aggregated
Small numbers suppressed
with ONS mortality register, PDS birth notification dataset, MSDS,
MIS, NNRD, HES and English mental health datasets (controllers of
linked data: ONS & NHS Digital),
Peer-reviewed articles, papers
Pseudonymised data & PhD/Masters theses
Anonymised and aggregated
securely transferred via Small numbers suppressed
SFTP

DATA FLOW
Blue = Identifiable data
Green = Pseudonymised data Third party access to
Red = Anonymised and aggregated pseudonymised NMPA data
Third parties apply to HQIP for access
via DARG
National Maternity and Perinatal Audit (NMPA) Data Flow Diagram 2/12/2020 IGU - Version 6.1
Datasets Data linkage NMPA Outputs
For linked data: Data controller: HQIP/NHS E Data controller: Anonymised and aggregated
Data processor: NMPA HQIP/NHS E
Data processor: NMPA

NHS Digital link English PDS Birth Notification dataset + HES APC Pseudonymised
Birth Register, Death Register, Birth Notification “Annual cohort” identifiable data Main Annual Report
data set Source: NHS Digital Cohort with Civil Registration Data (mothers and babies) includes baby DOB only Anonymised and aggregated
English cohort to be Small numbers suppressed
HES Data Controller: NHS Digital NHS Digital link English PDS Birth Notification dataset + HES APC NMPA project
based on PDS Birth Cohort with HES APC data (mothers and babies) team access Audit benchmarking website
Maternity Services Data Set (MSDS) Notification data for
NHS Digital link English PDS Birth Notification dataset + HES APC pseudonymised Anonymised and aggregated
Controller: NHS Digital England and HES Small numbers suppressed
Cohort with MSDS (mothers and babies) data for analysis
specification
English mental health datasets (MHSDS, provided by the Topic-specific sprint audit
MHMDS) Controller: NHS Digital NHS Digital link English PDS Birth Notification dataset + HES APC reports
NMPA “HES APC
Cohort with mental health data sets (mothers only) Anonymised and aggregated
Cohort”
Small numbers suppressed

CQC metrics
Anonymised and aggregated
“Quarterly updates” Small numbers suppressed

English cohort to be NHS Digital to derive cohort from HES APC data (mothers and Peer-reviewed articles,
based on HES babies) papers & PhD/Masters theses
Anonymised and aggregated
specification
Small numbers suppressed
provided by the NHS Digital link HES APC Cohort with Civil Registration data
NMPA “HES APC (mothers and babies)
Third party access to
Cohort”
pseudonymised NMPA data
Pseudonymised
Third parties apply to HQIP for access
via DARG

DATASET CATEGORIES:
Orange = Maternity data
DATA FLOW
Green = Use for case
Blue = Identifiable data (Section 251 approval)
ascertainment
Light Green = De-identified data (Covered by Data Protection Act
Dark Blue = Use for data
schedule 2 condition 6(1) & schedule 3 condition 8)
quality validation and
Red = Anonymised and aggregated
longitudinal analysis
Legal bases for all data flows: GDPR Article 6(1)(e), 9(2)(H), 9(2)(I)
Purple = Sprint audit data
Wales
DATA FLOW NHS Digital
Blue = Identifiable data
Green = Pseudonymised data
Red = Anonymised and aggregated
NMPA Team Secure N3 Server Main Annual Report
NHS Digital link Welsh ONS register of live births and stillbirths Host: RedCentric Anonymised and aggregated
with ONS mortality register, PDS birth notification dataset, MIds, Accessible only to NMPA team Small numbers suppressed
NCCHD and PEDW (controllers of linked data: ONS, NHS Digital &
Identifiers securely NWIS)
transferred via SFTP NMPA project Audit benchmarking website
team access Anonymised and aggregated
Small numbers suppressed
pseudonymised
NWIS data (NMPA ID
only) for analysis
NWIS separate patient identifiers (Mother’s & Topic-specific sprint audit
baby’s NHS number, mother’s and baby’s date of birth, NWIS link NCCHD with MIds and PEDW (controller of linked data: reports
baby’s gender, mother’s postcode) from NWIS) Anonymised and aggregated
Small numbers suppressed
pseudonymised data in MIds, NCCHD and
PEDW data
Pseudonymised data
securely transferred via Peer-reviewed articles, papers
SFTP & PhD/Masters theses
Anonymised and aggregated
Small numbers suppressed

Data Type of extract

Dataset(s) Country Purpose
controller received

Office for National Statistics (ONS) live birth, stillbirth and mortality registers England & Wales ONS Pseudonymised Case ascertainment

Personal Demographics Service (PDS) birth notification dataset England & Wales NHS Digital Pseudonymised Linkage, validation

National Community Child Health Database (NCCHD) Wales NWIS Pseudonymised Maternity data

Maternity Indicators data set (MIds) Wales NWIS Pseudonymised Maternity data

Patient Episode Database for Wales (PEDW) Wales NWIS Pseudonymised Longitudinal analysis, validation
 Scotland
NMPA Data Manager Secure N3 Server NMPA Team Secure N3 Main Annual Report
Host: RedCentric Anonymised and aggregated
Server Small numbers suppressed
Accessible only by NMPA Data Managers Host: RedCentric
NMPA data managers receive NNRD from NDAU, and Accessible only to NMPA team
separate patient identifiers (Mother’s & baby’s NHS Pseudonymised data
number, mother’s and baby’s date of birth, baby’s made available to rest Audit benchmarking website
gender, mother’s postcode) from pseudonymised data of NMPA team Anonymised and aggregated
in NNRD data NMPA project Small numbers suppressed
team access
pseudonymised
data (NMPA ID Topic-specific sprint audit
only) for analysis reports
Anonymised and aggregated
Small numbers suppressed
Identifiers securely ISD
transferred via SFTP Pseudonymised data
ISD link NRS with SMR-02, SBR, SMR-01, NNRD, SMR-04 and securely transferred via
Peer-reviewed articles, papers
SICSAG data (controller of linked data: ISD) SFTP
DATA FLOW & PhD/Masters theses
Blue = Identifiable data Anonymised and aggregated
Green = Pseudonymised data Small numbers suppressed
Red = Anonymised and aggregated

Data Type of extract

Dataset(s) Country Purpose
controller received

National Records for Scotland (NRS) birth register Scotland NRS Pseudonymised Case ascertainment

Scottish Morbidity Record-02 (SMR-02) Scotland ISD Pseudonymised Maternity data

Scottish Birth Record (SBR) Scotland ISD Pseudonymised Maternity data

Scottish Morbidity Record-01 (SMR-01) Scotland ISD Pseudonymised Longitudinal analysis, validation

Scottish Intensive Care Society Audit Group (SICSAG) Scotland SICSAG Pseudonymised Maternal intensive care data

Scottish Morbidity Record-04 (SMR-04) Scotland ISD Pseudonymised Perinatal mental health data

National Neonatal Research Database (NNRD) England, Scotland and Wales NDAU Identifiable Neonatal care data