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So help me...anyone.
What does this have to do with a book on mental illness called The Lily
Pond: A Memoir of Madness, Memory, Myth and Metamorphosis?
Everything, really. A core theme running through the book–sometimes
addressed explicitly, more often implicitly–is the existential conundrum
of how to maintain a self and a life, when that self and life are subject
to regular and radical disruption. How does chaos become continuity?
Before I try to suggest an answer to that, and say why I think it has a
special relevance to education, let me briefly summarize my memoir.
The Lily Pond consists of four sections, which I imagine
sometimes as the ripples that would result if a stone fell, or a frog
jumped, into a still pond. The innermost circle, the book’s first section,
describes my first psychosis and hospitalization, a very protracted and
almost-fatal eighteen months. From that first episode, as it’s
sometimes called, the circles spread outward, in time and in society: to
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childhood and family, considered over decades, in the second section;
to work as a writer, and as a participant in psychotherapy, in the third.
And then there is a fourth section, but I didn’t know that at first. After
I’d written what is now the third section of the book, I thought the
manuscript was done. I showed it to a few friends...cautiously,
tentatively. Their reactions were encouraging, but I had a nagging
sense that the matters I’d been writing about were still hanging
overhead, left undone, developing. Why? I kept asking. What’s next?
What’s coming? Part of what was coming, as my doctor pointed out,
was simply more life, living with it. Something doesn’t end because
you write about it. But what also turned out to be developing–and I tell
this with her permission, as she generously and courageously gave me
her permission to write about it–was my wife Heather’s deepening
mental health crisis, which spiralled into an acute episode and her own
diagnosis of bipolar disorder. Along with all the emotions anyone
would feel–worry, fear, sadness, exhaustion–I wondered: Had I learned
anything from my own experience that could help her? Or, even more
simply, could we find a way to be sick together...to perform the often
awkward, but sometimes strangely graceful, dance of helping and
being helped? You’ll hear more about Heather at times today. I’m
grateful to her, as always, for allowing me to tell parts of her story as
parts of my own.
The Lily Pond’s four rings, then, move gradually outward from
isolation and passivity–lying motionless on a hospital bed–to a life
shared with others, including shared illness. They chronicle the
journey (as the book’s back cover says) “from the darkness of
unconscious suffering to the daylight of mindful recovery.” What I
mean by mindful recovery is not a cure–nothing so final or triumphant-
sounding. It is more like tugging recurrent problems into better light so
they can be worked on, coped with, managed. This is a long, indeed
endless process. Ongoing active awareness is what I mean.
I also think of these concentric rings in another way: as my
particular story of mental illness, inside the larger story of mental
health, which in turn fits inside the much larger story of existence and
its challenges, for some of which we use the shorthand “mental
health.” The story in The Lily Pond spans four decades. There are
mentions in it of my stop-and-start university career, but that’s not
described in detail. I’d like to look at it a little more closely now.
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all of this in a series of rented rooms–a “tumbleweed life,” I called it
once–before I decided, at age 30, to complete the last year of my
degree which had stalled at the three-year mark.
Why did it take me so long? And what, since I call the
interruptions “forced,” was forcing me?
There’s more than one answer to that question. But the main
reason, I think, is one that eluded me for many years; in fact, it was not
until fairly recently that I fully acknowledged it.
Mental illness. Plunges into listless or agitated depressions,
followed by equally destabilizing flights into rushing manias. And–far
more damaging than these swings themselves–my bewilderment about
what was happening to me, which led me to ascribe my swings to
other, misleading causes.
Here is what kept happening. I’d start a school year with energy
and enthusiasm–attending lectures, doing the readings, getting good
marks...learning–and then at some point–usually in the late fall or
spring, though it was not strictly seasonal–I would simply bottom out.
Lose interest in the classes and the readings, start falling asleep over
books, have trouble following a line of argument or even a
sentence...and I would think: Why am I here? I’m not interested in this
stuff. Or: I’m not smart enough, I can’t do this. (Forgetting–for
depression has its characteristic amnesia as well as other forms of
inattention–that only weeks or days before I had been smart enough,
interested enough.) My reading and attendance became spotty, my
work and marks trailed off...I dropped out. Usually vowing never to
return.
Looking back, I see that what I was mainly lacking, to pursue my
education, was not intelligence or desire or diligence, but self-
knowledge. I was not well enough acquainted with myself, and not
forgiving or understanding enough of those parts with which I was
acquainted, to succeed in school. I needed to educate myself about
myself before I could educate myself about anything else. Or at least–
since the processes should occur in tandem–I needed to be learning
about myself while I was trying to learn about Geoffrey Chaucer and
John Milton.
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meaningless–is a common symptom of depression, and doesn’t at all
betoken apathy or lack of intelligence. Or at least not permanent
forms of those things. What it may mean, though, is a temporary
impairment of interest and cognitive ability. And there are far better
ways to deal with that than simply dropping out of the life one wants.
Like what? you may be thinking. What are you supposed to do if
you find yourself bottoming out just when you need yourself most?
Unable to read–but an exam coming up? Unable to write–but an essay
due? I can think of some practical approaches to these problems, but
outlining them would take us too far astray in a short talk. And I would
be the last person to say that these are not serious problems, serious
threats. Fluctations in mental health still threaten my job and my
personal life; they’re a minefield I’m always trying, and always will try,
to pick my way through. I have no wish to travel back in time to advise
my younger self: he did the best he could, what he had to do, then.
But I know a couple of things he didn’t. One is that hiding a problem–
from yourself and from others–usually takes more energy than trying to
manage it. Coming out is almost always a good idea. What I hope I
would do now, when I felt myself slipping, is to approach someone I
trust with the facts: I want to do this (finish my course, write my
exam, hang on till tomorrow), but for some reason I’m unable to. I
need help, something to get me through this. That would be a start.
Not a solution yet, but the only sure step I know towards finding one. I
don’t say it is an easy step to take.
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image and expectations of yourself–that have helped to mold this
unforgiving deity? Just because what you need isn’t on offer–or
doesn’t appear to be–doesn’t mean you can’t ask for it, claim it. A
system may function badly–many do–but it can’t function better than
we ask it to. Demand it to. And: permit it to. “Time heals,” we say,
but do we act as if we believe it? It takes courage to trust time–the
courage to wait and see.
After that, of course, comes the challenge of admitting what you
see, and finding room to accept it. Several times each year I still
experience what I call my “shut-downs.” These are the periods that
have taught me how far beyond sadness depression really goes. They
are periods when my brain and body and spirit–my whole self, really–
become, in stages, unable to comprehend or respond to much of the
world. It is a lot like that famous scene in 2001, when Dave Bowman
unplugs HAL, and the computer disappears circuit by circuit–busted
right down to his programmed origins of “Dai-sy...Dai-sy”–though by
that time I have long since lost the urge to sing. At such times I’ve
learned to apply what I call the small-circle cure. This means reducing
activity and stimulation to a bare minimum. Dimming the lights,
unplugging the phone, cancelling social engagements. And, as I feel
my ability to think in sequence ebbing away, scaling my reading down
from the love life of Anna Karenina to the love life of Britney
Spears...and then further down, to just flipping through books of
pictures or watching reruns of The Sopranos. To return to the idea of
functioning: Someone seeing me lying on my side for hours beside a
single lamp, flipping pages of Rolling Stone or People, might see a very
low order of functioning...and it is, in a way...but it is a much higher
order of functioning than I showed in the years when I tried to keep
reading and writing through these spells, which can last six weeks or
more, and added terrible frustration to depression when I could
understand nothing, produce nothing. Self-acceptance, I’ve come to
see, involves a better understanding of one of the simplest words: and.
I am a person who reads, and writes, challenging books...and I am a
person who, at times, cannot read or write the simplest sentence. The
two facts are not mutually exclusive; they mustn’t be, since I’m living
both of them.
But that little word and can be a terribly hard word to remember. A
major part of my ongoing recovery, including the therapy I do with the
excellent psychiatrist I have now, involves trying to remember the
truth of and. As I said earlier, there is a degree of amnesia to my
condition, so that every time I lurch upward into mania or downward
into depression, it feels like the first time, and I lose all memory that I
have been here before and gotten through it. Retaining a thin thread
of memory, enough that I can say, “I know this place; I was here
before, and I left again,” is one of the most important gains I’ve made
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in recent years. It’s a lifeline to cling to, a thread to guide me out of
the labyrinth.
I learned all this again just last fall. Ironically, after my book
launch in October, and at the talks I gave subsequently, some listeners
said to me, “You seem well now,” as if all the troubles I was describing
were safely behind me. “I do feel well,” I said, “...now.” But I could tell
they didn’t believe me when I said I knew bad times would return,
times they, and even I, could scarcely imagine. Sure enough, within a
month, I was floundering, slipping into a netherworld of sleeplessness
and incoherent thoughts and depression and even hallucinations. I
could barely understand the book I myself had written or the talks I
had given about it. But while I felt myself slipping, while I still had
time, I did a useful, practical thing. Using what few verbal resources I
had left, I wrote myself a letter, a sort of “message in a bottle” from
my still-hanging-on self to the unwell self I felt gaining on him. I taped
the letter to the wall beside my desk, it is still there, and read it often
in the next two months, feeling disbelief but also comfort at its
assurances that I had gone to this black place before and had returned
from it. I wanted to read it as part of this talk, but it is a little too long.
Titled “Letter to Thursday,” it is posted on the blog I started recently, if
any of you are interested. It is a frank and simple statement from one
self to another, saying in essence: I know you, even if you don’t
remember me. We are in this together.
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both ways. This gets at a paradox I’m learning more about each day.
If your view of yourself is elastic enough to allow for downtimes,
backslides, failures, even breakdowns–not only are you more likely to
get back on your feet after these setbacks, but–and this is the truly
magical part of the paradox–you are even less likely to get knocked
down in the first place. “The door swings both ways.” You can more
easily go out a swinging door, but also more easily come back in.
Knowing there is such a door may even mean you don’t need to use it.
Another, longer passage from near the end of the book uses the
example of the wood frog to explore this tolerant truth of out...and in.
Down...and back up again. The passage is from the book’s last
section, called “The Lily Pond,” where the main focus shifts to Heather,
as she survives a mental health crisis and is diagnosed herself with
bipolar disorder. After a siege of several months, exhausted, we took a
cautious week’s vacation in a rented cabin on Lake Temagami.
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finally, one makes a small hop. Alive.
Down to zero–close to it–and back again. Neither of us
says a word. There is nothing to be said; we saw it.
On our last day, we take the last sections of our
watermelon in a plastic bag and paddle to a quiet bay we
visited before. Heather turns around in her seat to face me
and we drift in the deep green shadows of the pines and
cedars, eating pink watermelon and dropping the gnawed
rinds into the bag. It is a moment of perfect restfulness, and it
ends with a perfect, miraculous discovery. We have seen only
one frog up here, a large leopard frog that hopped away once
as we landed the canoe. The nights have been cold for late
August, a few aspens already tinged with yellow. But today,
when we stop on shore to stretch our legs, I see movement in
the pine needles at my feet. I am a few moments spotting the
small frog, his browns are blended so perfectly with the
needles and rock and lichen. I put down my hand and trap him
easily; he barely squirms inside my fingers. When I show him
to Heather, parting my fingers to let his upper half pop out,
then pinning him gently by the legs, we are amazed to see that
it is the wood frog from the TV documentary. His black,
robber-mask eye markings cinch it. It seems providential
somehow, a sign, and standing on the rock admiring then
releasing him–he hops away unhurriedly–we are both too
moved to speak.
Heather, who has paddled in the bow all week, suggests
that she try paddling us home herself. She stays facing me
and begins moving us homeward, awkwardly at first, unsure of
her steering, having to switch from side to side, but then
strongly and more steadily, smiling with shy disbelief as her J-
stroke returns to her. It is wonderful to watch; and hard in a
way, too. Mental illness–meaning, here, the diagnosis and
treatment of it, especially–is working against her confidence,
implanting radical doubts in her about her basic capability. It
is one of the reasons I feel so strongly that hospitalization
should be avoided except as a last resort. If diagnosis means
that one is being considered seriously for a position, then
hospitalization is confirmation that one has got the job. And it
can be a hard position to leave; it can easily become a career
leading to retirement, and beyond. (The Lily Pond, pages 175-
177)
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before I had no wish to advise my younger self, it’s not really true. I do
in fact sometimes travel back in time to counsel him. He isn’t very
inclined to listen–that hasn’t changed–but that no longer deters me
from sharing with him what I’ve learned. What I tell him is a sort of
footnote to Polonius, that off-and-on pedagogue ironically prone to
forgetting himself. His admonition, given to Laertes as he returns to
school, runs, in my amended version, like this: To thine own selves be
true. Honour the people you were and will be, not just the person you
are today.